PEDIATRIC SPINE FOUNDATION

Cite this

Plain text PEDIATRIC SPINE FOUNDATION. furp.org, nonprofit organization profile, tax years 2010–2024. https://furp.org/org/pediatric-spine-foundation-203169071. Retrieved 2026-10-29.

APA furp.org. (n.d.). PEDIATRIC SPINE FOUNDATION [Nonprofit organization profile; tax years 2010–2024]. Retrieved October 29, 2026, from https://furp.org/org/pediatric-spine-foundation-203169071

MLA “PEDIATRIC SPINE FOUNDATION.” furp.org, tax years 2010–2024, https://furp.org/org/pediatric-spine-foundation-203169071. Accessed 29 Oct. 2026.

Retrieved 2026-10-29; covers tax years 2010–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $1.9M · expenses $1.7M · assets $7.9M

EIN
20-3169071
Address
PO BOX 1072, LAYTON, UT 84041-1047
Website
WWW.PEDIATRICSPINEFOUNDATION.ORG
NTEE code
H50
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
March 2007 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Hospital or medical research organization
Cross-check
ProPublica Nonprofit Explorer

Mission

PROVIDE STRUCTURE AND FUNDING TO SUPPORT EDUCATION, PROVIDE FAMILY SUPPORT, AND CONDUCT PROSPECTIVE AND RETROSPECTIVE STUDIES BY SURGEONS AND RESEARCHERS STUDYING COMPLEX CHEST WALL AND SPINE DEFORMITIES IN THE GROWING CHILD.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

6 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Tricia St Hilaire Mph EXECUTIVE DIRECTOR2014-2024 $183,681$1,664,763 1
Regina Woon RESEARCH MANAGER2020-2024 $124,529$477,475 1
John Smith Md MEMBER2010-2024 $0$70,000 2
Michael Vitale Md Mph PRESIDENT-ELECT2011-2024 $0$30,000 4
Randal Betz Md (former) MEMBER2010-2020 $0$71,151 1
Michaael G Vitale Md Mph (former) VP2010 $20,000$20,000 1

Officers and directors, no compensation reported

11 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
David Skaggs Md MEMBER2021-2024 3 $0 reported 4
Steve Schwartz CHAIRMAN2014-2024 3 $0 reported 1
Paul Sponseller Md PRESIDENT2021-2024 3 $0 reported 3
Laurel C Blakemore Md TREASURER2022-2024 3 $0 reported 3
Behrooz Akbarnia Md MEMBER2021-2024 3 $0 reported 2
Ron El-Hawary Md MEMBER2014-2024 3 $0 reported 3
Jack Flynn Md MEMBER2012-2024 3 $0 reported 1
Amer Samdani Md MEMBER2018-2024 3 $0 reported 1
Jeff Sawyer Md MEMBER2018-2024 3 $0 reported 1
Muharrem Yazici Md SECRETARY (UNTIL 01/01/24)2021-2024 3 $0 reported 3
John M Flynn Md (former) PRESIDENT (UNTIL 02/18)2016-2018 3 $0 reported 3

People by year

2024 · 14 people listed · 2 paid, $308K · 5 employees · 6 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE MPH EXECUTIVE DIRECTOR40 $183,681$0$0 $183,6811
REGINA WOON RESEARCH MANAGER40 $124,529$0$0 $124,5291
STEVE SCHWARTZ CHAIRMAN3 $0$0$0 $01
PAUL SPONSELLER MD PRESIDENT3 $0$0$0 $03
MICHAEL VITALE MD MPH PRESIDENT-ELECT3 $0$0$0 $04
LAUREL BLAKEMORE TREASURER3 $0$0$0 $03
BEHROOZ AKBARNIA MD MEMBER3 $0$0$0 $02
RON EL-HAWARY MD MEMBER3 $0$0$0 $03
JACK FLYNN MD MEMBER3 $0$0$0 $01
AMER SAMDANI MD MEMBER3 $0$0$0 $01
JEFF SAWYER MD MEMBER3 $0$0$0 $01
DAVID SKAGGS MD MEMBER3 $0$0$0 $04
JOHN SMITH MD MEMBER3 $0$0$0 $02
MUHARREM YAZICI MD SECRETARY (UNTIL 01/01/24)3 $0$0$0 $03
2023 · 14 people listed · 2 paid, $307K · 5 employees · 6 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE MPH EXECUTIVE DIRECTOR40 $177,519$0$5,325 $182,8441
REGINA WOON RESEARCH MANAGER40 $120,622$0$3,619 $124,2411
STEVE SCHWARTZ CHAIRMAN3 $0$0$0 $01
JACK FLYNN MD PRESIDENT3 $0$0$0 $01
PAUL SPONSELLER MD PRESIDENT-ELECT3 $0$0$0 $03
MICHAEL VITALE MD MPH VICE PRESIDENT3 $0$0$0 $04
MUHARREM YAZICI MD SECRETARY3 $0$0$0 $03
LAUREL BLAKEMORE TREASURER3 $0$0$0 $03
DAVID SKAGGS MD MEMBER3 $0$0$0 $04
RON EL-HAWARY MD MEMBER3 $0$0$0 $03
JOHN SMITH MD MEMBER3 $0$0$0 $02
JEFF SAWYER MD MEMBER3 $0$0$0 $01
AMER SAMDANI MD MEMBER3 $0$0$0 $01
BEHROOZ AKBARNIA MD MEMBER3 $0$0$0 $02
2022 · 13 people listed · 1 paid, $172K · 5 employees · 12 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE MPH EXECUTIVE DIRECTOR40 $166,665$0$5,000 $171,6651
STEVE SCHWARTZ CHAIRMAN3 $0$0$0 $01
JACK FLYNN MD PRESIDENT3 $0$0$0 $01
PAUL SPONSELLER MD PRESIDENT-ELECT3 $0$0$0 $03
MICHAEL VITALE MD MPH VICE PRESIDENT3 $0$0$0 $04
MUHARREM YAZICI MD SECRETARY3 $0$0$0 $03
LAUREL BLAKEMORE TREASURER3 $0$0$0 $03
DAVID SKAGGS MD MEMBER3 $0$0$0 $04
RON EL-HAWARY MD MEMBER3 $0$0$0 $03
JOHN SMITH MD MEMBER3 $0$0$0 $02
JEFF SAWYER MD MEMBER3 $0$0$0 $01
AMER SAMDANI MD MEMBER3 $0$0$0 $01
BEHROOZ AKBARNIA MD MEMBER3 $0$0$0 $02
2021 · 13 people listed · 2 paid, $282K · 5 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE MPH EXECUTIVE DIRECTOR40 $161,473$0$4,844 $166,3171
REGINA WOON RESEARCH MANAGER40 $112,058$0$3,347 $115,4051
STEVE SCHWARTZ CHAIRMAN3 $0$0$0 $01
DAVID SKAGGS MD PRESIDENT3 $0$0$0 $04
JACK FLYNN MD PRESIDENT-ELECT3 $0$0$0 $01
PAUL SPONSELLER MD VICE PRESIDENT3 $0$0$0 $03
MICHAEL VITALE MD MPH SECRETARY3 $0$0$0 $04
BEHROOZ AKBARNIA MD TREASURER3 $0$0$0 $02
RON EL-HAWARY MD MEMBER3 $0$0$0 $03
JOHN SMITH MD MEMBER3 $0$0$0 $02
JEFF SAWYER MD MEMBER3 $0$0$0 $01
AMER SAMDANI MD MEMBER3 $0$0$0 $01
MUHARREM YAZICI MD MEMBER3 $0$0$0 $03
2020 · 10 people listed · 2 paid, $277K · 5 employees · 8 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE EXECUTIVE DIRECTOR40 $158,796$0$4,777 $163,5731
REGINA WOON RESEARCH MANAGER40 $110,000$0$3,300 $113,3001
RON EL-HAWARY MD PRESIDENT3 $0$0$0 $03
STEVE SCHWARTZ VICE-PRESIDENT3 $0$0$0 $01
JOHN SMITH MD SECRETARY3 $0$0$0 $02
JEFF SAWYER TREASURER3 $0$0$0 $01
RANDAL BETZ MD MEMBER3 $0$0$0 $01
JACK FLYNN MEMBER3 $0$0$0 $01
AMER SAMDANI MEMBER3 $0$0$0 $01
MICHAEL VITALE MD MPH MEMBER3 $0$0$0 $04
2019 · 9 people listed · 1 paid, $154K · 4 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE EXECUTIVE DIRECTOR40 $151,016$0$2,700 $153,7161
MICHAEL VITALE MD MPH PRESIDENT3 $0$0$0 $04
RON EL-HAWARY MD VICE-PRESIDENT3 $0$0$0 $03
STEVE SCHWARTZ TREASURER3 $0$0$0 $01
JOHN SMITH MD SECRETARY3 $0$0$0 $02
RANDAL BETZ MD DIRECTOR3 $0$0$0 $01
JACK FLYNN DIRECTOR3 $0$0$0 $01
JEFF SAWYER DIRECTOR3 $0$0$0 $01
AMER SAMDANI DIRECTOR3 $0$0$0 $01
2018 · 10 people listed · 1 paid, $153K · 1 employee · 15 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE EXECUTIVE DIRECTOR40 $134,199$0$18,500 $152,6991
MICHAEL VITALE MD MPH PRESIDENT3 $0$0$0 $04
RON EL-HAWARY MD VICE-PRESIDENT3 $0$0$0 $03
STEVE SCHWARTZ TREASURER3 $0$0$0 $01
JOHN SMITH MD SECRETARY3 $0$0$0 $02
JOHN M FLYNN MD PRESIDENT (UNTIL 02/18)3 $0$0$0 $03
RANDAL BETZ MD DIRECTOR3 $0$0$0 $01
JACK FLYNN DIRECTOR3 $0$0$0 $01
JEFF SAWYER DIRECTOR3 $0$0$0 $01
AMER SAMDANI DIRECTOR3 $0$0$0 $01
2017 · 7 people listed · 1 paid, $135K · 1 employee · 6 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE EXECUTIVE DIRECTOR40 $117,344$0$18,000 $135,3441
MICHAEL VITALE MD MPH PRESIDENT3 $0$0$0 $04
JOHN M FLYNN MD PRESIDENT (02/18)3 $0$0$0 $03
RON EL-HAWARY MD VICE-PRESIDENT3 $0$0$0 $03
STEVE SCHWARTZ TREASURER3 $0$0$0 $01
JOHN SMITH MD SECRETARY3 $0$0$0 $02
RANDAL BETZ MD DIRECTOR3 $0$0$0 $01
2016 · 7 people listed · 1 paid, $120K · 0 employees · 6 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE EXECUTIVE DIRECTOR40 $120,125$0$0 $120,1251
JOHN SMITH MD DIRECTOR3 $0$0$0 $02
JOHN M FLYNN MD PRESIDENT3 $0$0$0 $03
RANDAL BETZ MD DIRECTOR3 $0$0$0 $01
MICHAEL VITALE MD MPH VICE PRESIDENT3 $0$0$0 $04
RON EL-HAWARY MD SECRETARY3 $0$0$0 $03
STEVE SCHWARTZ TREASURER3 $0$0$0 $01
2015 · 7 people listed · 1 paid, $120K · 0 employees · 10 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE EXECUTIVE DIRECTOR40 $120,125$0$0 $120,1251
JOHN SMITH MD DIRECTOR3 $0$0$0 $02
JACK FLYNN MD PRESIDENT3 $0$0$0 $01
RANDAL BETZ MD DIRECTOR3 $0$0$0 $01
MICHAEL VITALE MD MPH VICE PRESIDENT3 $0$0$0 $04
RON EL-HAWARY MD SECRETARY3 $0$0$0 $03
STEVE SCHWARTZ TREASURER3 $0$0$0 $01
2014 · 7 people listed · 1 paid, $115K · 0 employees · 6 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
TRICIA ST HILAIRE EXECUTIVE DIRECTOR40 $114,674$0$0 $114,6741
JOHN SMITH MD CHAIR3 $0$0$0 $02
JACK FLYNN MD VICE-CHAIR3 $0$0$0 $01
RANDAL BETZ MD TREASURER3 $0$0$0 $01
MICHAEL VITALE MD MPH SECRETARY3 $0$0$0 $04
RON EL-HAWARY MD DIRECTOR3 $0$0$0 $03
STEVE SCHWARTZ DIRECTOR3 $0$0$0 $01
2013 · 4 people listed · none paid · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
RANDAL BETZ MD SECRETARY1 $0$0$0 $01
JOHN T SMITH PRESIDENT1 $0$0$0 $02
MICHAEL G VITALE MD MPH TREASURER1 $0$0$0 $04
JACK M FLYNN MD VICE-PRESIDE1 $0$0$0 $01
2012 · 4 people listed · 3 paid, $50K · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
RANDAL BETZ MD SECRETARY1 $20,000$0$0 $20,0001
JOHN T SMITH PRESIDENT1 $20,000$0$0 $20,0002
MICHAEL G VITALE MD MPH TREASURER1 $10,000$0$0 $10,0004
JACK M FLYNN MD VICE-PRESIDE1 $0$0$0 $01
2011 · 3 people listed · 3 paid, $60K · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
MICHAEL G VITALE MD MPH Vice President1 $20,000$0$0 $20,0004
JOHN T SMITH President1 $20,000$0$0 $20,0002
RANDAL BETZ MD Vice President1 $20,000$0$0 $20,0001
2010 · 3 people listed · 3 paid, $81K · 0 employees
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
RANDAL BETZ MD VP1 $31,151$0$0 $31,1511
JOHN T SMITH MD PRESIDENT1 $30,000$0$0 $30,0002
MICHAAEL G VITALE MD MPH VP1 $20,000$0$0 $20,0001

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2024 · 7 grants to organizations · $125K

Listed grants add up to $125,190; the return's “grants paid” expense line says $202,613. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2023 · 5 grants to organizations · $70K

Listed grants add up to $70,370; the return's “grants paid” expense line says $128,989. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2022 · 3 grants to organizations · $47K

Listed grants add up to $46,828; the return's “grants paid” expense line says $102,520. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2021 · 3 grants to organizations · $26K

Listed grants add up to $26,375; the return's “grants paid” expense line says $90,026. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2020 · 1 grant to organizations · $16K

Listed grants add up to $15,775; the return's “grants paid” expense line says $19,903. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2019 · 1 grant to organizations · $6K

Listed grants add up to $6,000; the return's “grants paid” expense line says $17,825. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2018 · 1 grant to organizations · $107K

Listed grants add up to $107,401; the return's “grants paid” expense line says $116,329. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2017 · 3 grants to organizations · $66K

Listed grants add up to $65,727; the return's “grants paid” expense line says $75,850. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2016 · 3 grants to organizations · $66K

Listed grants add up to $65,586; the return's “grants paid” expense line says $81,714. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2015 · 3 grants to organizations · $45K

Listed grants add up to $45,009; the return's “grants paid” expense line says $61,897. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2014 · 5 grants to organizations · $96K

Listed grants add up to $95,857; the return's “grants paid” expense line says $97,243. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2013 · 2 grants to organizations · $93K
2012 · 4 grants to organizations · $154K
2011 · 5 grants to organizations · $238K
2010 · 8 grants to organizations · $249K

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$1,866,494$1,736,562 $7,870,627$7,738,862 $1,265,481$307,500 $183,68156
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$1,750,769$1,535,270 $6,941,374$6,891,450 $1,329,993$246,835 $182,84456
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$1,882,770$1,529,273 $6,005,970$5,932,967 $1,554,390$198,450 $166,665512
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$1,882,861$1,142,044 $6,289,488$6,189,975 $1,516,652$189,255 $166,31750
2020 · Form 990 period ending 2020-12-31 · view filing · original 990 ↗
$1,341,740$811,544 $3,509,371$3,507,322 $1,177,238$0 $163,57358
2019 · Form 990 period ending 2019-12-31 · view filing · original 990 ↗
$1,064,497$721,955 $2,961,110$2,895,788 $864,818$0 $153,71640
2019 · Form 990 period ending 2019-12-31 · amended · superseded · view filing · original 990 ↗
$1,064,497$721,955 $2,961,110$2,895,788 $864,818$0 $153,71640
2018 · Form 990 period ending 2018-12-31 · view filing · original 990 ↗
$778,089$585,469 $2,390,858$2,328,543 $576,235$0 $152,699115
2017 · Form 990 period ending 2017-12-31 · view filing · original 990 ↗
$678,921$546,552 $2,552,169$2,447,610 $565,922$0 $135,34416
2016 · Form 990 period ending 2016-12-31 · view filing · original 990 ↗
$636,374$495,755 $2,251,149$2,244,823 $599,248$0 $120,12506
2015 · Form 990 period ending 2015-12-31 · view filing · original 990 ↗
$749,616$442,244 $2,061,611$2,038,666 $677,476$0 $120,125010
2014 · Form 990 period ending 2014-12-31 · view filing · original 990 ↗
$1,034,751$487,720 $1,838,186$1,813,031 $1,044,880$0 $114,67406
2013 · Form 990 period ending 2013-12-31 · view filing · original 990 ↗
$926,717$520,076 $1,351,237$1,271,806 $925,965$0 -0-
2012 · Form 990 period ending 2012-12-31 · view filing · original 990 ↗
$904,921$519,661 $865,164$865,164 $904,369$0 $50,0000-
2011 · Form 990 period ending 2011-12-31 · view filing · original 990 ↗
$705,467$598,271 $479,955$479,904 $705,070$0 $60,0000-
2010 · Form 990 period ending 2010-12-31 · view filing · original 990 ↗
$880,963$623,003 $399,388$372,708 $880,401$0 $81,1510-

Connected to

Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.

Funders of this organization

5 grantors reported grants to this organization, $684,755 in all, tax years 2015 to 2024. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2016-2017, 2019-2021, 2023-2024 7$434,055 2024$11,000
show
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor Exact 2020-2024 5$79,000 2024$13,000
show
CHILDRENS ORTHOPAEDIC SURGERY FOUNDATION INC Public charity Exact 2018-2020 3$61,000 2020$10,500
show
MINNEAPOLIS FOUNDATION DAF sponsor Exact 2024 1$60,000 2024$60,000
show
CHRISTIAN COMMUNITY FOUNDATION OF MEMPHIS AND THE MID-SOUTH INC DAF sponsor Exact 2015-2016, 2018-2023 8$50,700 2023$10,100
show

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Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$12,038,339172 372016–2024 CHILDRENS TUMOR FOUNDATION; KERLAN-JOBE ORTHOPAEDIC FOUNDATION; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION; ORTHOCAROLINA RESEARCH INSTITUTE INC and 33 more
VANGUARD CHARITABLE ENDOWMENT PROGRAM funds this one DAF sponsor$9,841,73636 142020–2024 CURE DUCHENNE; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION; CMT RESEARCH FOUNDATION INC; CHILDRENS TUMOR FOUNDATION and 10 more
DONOR ADVISED CHARITABLE GIVING DAF sponsor$7,000,070120 272014–2024 CHILDRENS TUMOR FOUNDATION; FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC; CMT RESEARCH FOUNDATION INC; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION and 23 more
JEWISH COMMUNAL FUND DAF sponsor$6,074,55435 52009–2024 CHILDRENS TUMOR FOUNDATION; FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION; CHARLEYS FUND INC and 1 more
SPARTANBURG COUNTY FOUNDATION DAF sponsor$5,406,0008 12010–2017 THE HAWKINS FOUNDATION
THE@RICHARD AND MARCY HORVITZ FOUNDATION Private foundation$4,068,48728 12010–2022 CHILDRENS TUMOR FOUNDATION
AMERICAN JEWISH JOINT DISTRIBUTION COMMITTEE INC DAF sponsor$3,668,8596 12016–2022 FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$3,126,51865 152019–2025 CHILDRENS TUMOR FOUNDATION; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION; AUDRE LORDE PROJECT INC; CURE DUCHENNE and 11 more
FORGOOD INC DAF sponsor$2,219,09769 182010–2023 CURE CMD INC; MPN RESEARCH FOUNDATION; DETERMINED2HEAL FOUNDATION INC; CHILDRENS TUMOR FOUNDATION and 14 more
FOUNDATION FOR THE CAROLINAS DAF sponsor$1,931,2459 12015–2024 ORTHOCAROLINA RESEARCH INSTITUTE INC
NATIONAL PHILANTHROPIC TR DAF sponsor$1,860,42355 122014–2024 CHILDRENS TUMOR FOUNDATION; FOUNDATION OF ORTHOPEDICS AND COMPLEX SPINE INC; CURE DUCHENNE; OSTEOGENESIS IMPERFECTA FOUNDATION INC and 8 more
DUKE ENDOWMENT Private foundation$1,640,0006 12019–2024 ORTHOCAROLINA RESEARCH INSTITUTE INC
SKYLIGHT CHARITABLE TR Private foundation$1,450,0005 12022–2024 CMT RESEARCH FOUNDATION INC
RANDOLPH D ROUSE FOUNDATION INC Private foundation$1,300,0005 12020–2024 OSTEOGENESIS IMPERFECTA FOUNDATION INC
AMERICAN ENDOWMENT FOUNDATION DAF sponsor$1,294,96736 132016–2024 MPN RESEARCH FOUNDATION; CHILDRENS TUMOR FOUNDATION; CURE DUCHENNE; CHRISTOPHER REEVE FOUNDATION A NEW JERSEY NONPROFIT CORPORATION and 9 more

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $1,736,562 spent · pay $651,908 · grants $202,613 · events $556,803
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $556,803$556,803-- 32.1%
Other salaries and wages $371,032$371,032-- 21.4%
Fees: other services $193,786$187,405$6,381- 11.2%
Pay: officers, directors, trustees, key employees $183,681$183,681-- 10.6%
Grants to US organizations and governments $180,160$180,160-- 10.4%
Other (as described)REGISTRY EXPENSES $82,793$82,793-- 4.8%
Payroll taxes $44,331$44,331-- 2.6%
Other employee benefits $38,786$38,786-- 2.2%
Grants outside the US $22,130$22,130-- 1.3%
Fees: accounting $20,175-$20,175- 1.2%
Pension plan contributions $14,078$14,078-- 0.8%
Fees: legal $9,210-$9,210- 0.5%
Office expenses $6,544-$6,544- 0.4%
Other (as described)FUNDRAISING DONATION FE $3,921--$3,921 0.2%
Advertising and promotion $3,740-$3,740- 0.2%
Insurance $2,135-$2,135- 0.1%
Travel $1,847-$1,847- 0.1%
Other (as described)DUES & SUBSCRIPTIONS $1,087-$1,087- 0.1%
Grants to US individuals $323$323-- 0.0%
Total$1,736,562100%

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2023 · Form 990 · $1,535,270 spent · pay $641,571 · grants $128,989 · events $412,189
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $412,189$412,189-- 26.8%
Other salaries and wages $369,966$369,966-- 24.1%
Fees: other services $235,375$235,375-- 15.3%
Pay: officers, directors, trustees, key employees $182,844$182,844-- 11.9%
Grants to US organizations and governments $110,234$110,234-- 7.2%
Other (as described)REGISTRY EXPENSES $62,051$62,051-- 4.0%
Payroll taxes $44,806$44,806-- 2.9%
Other employee benefits $35,156$35,156-- 2.3%
Fees: accounting $19,000-$19,000- 1.2%
Grants outside the US $18,632$18,632-- 1.2%
Office expenses $13,079-$13,079- 0.9%
Fees: legal $10,438-$10,438- 0.7%
Pension plan contributions $8,799$8,799-- 0.6%
Other (as described)FUNDRAISING DONATION FE $5,534--$5,534 0.4%
Other (as described)DUES & SUBSCRIPTIONS $3,807-$3,807- 0.2%
Insurance $1,875-$1,875- 0.1%
Advertising and promotion $763-$763- 0.0%
Other (as described)EDUCATION EXPENSES $462$462-- 0.0%
Travel $137-$137- 0.0%
Grants to US individuals $123$123-- 0.0%
Total$1,535,270100%

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2022 · Form 990 · $1,529,273 spent · pay $592,595 · grants $102,520 · events $507,535
LineAs describedTotalProgramManagementFundraisingShare
Conferences, conventions and meetings $507,535$507,535-- 33.2%
Other salaries and wages $505,895$505,895-- 33.1%
Fees: other services $199,359$199,359-- 13.0%
Grants to US organizations and governments $95,501$95,501-- 6.2%
Other (as described)REGISTRY EXPENSES $68,712$68,712-- 4.5%
Payroll taxes $40,861$40,861-- 2.7%
Fees: accounting $34,600-$34,600- 2.3%
Other employee benefits $28,946$28,946-- 1.9%
Pension plan contributions $16,893$16,893-- 1.1%
Fees: legal $11,774-$11,774- 0.8%
Grants outside the US $7,019$7,019-- 0.5%
Office expenses $6,249-$6,249- 0.4%
Other (as described)FUNDRAISING DONATION FE $2,962--$2,962 0.2%
Insurance $1,979-$1,979- 0.1%
Other (as described)DUES & SUBSCRIPTIONS $988-$988- 0.1%
Total$1,529,273100%

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2021 · Form 990 · $1,142,044 spent · pay $549,351 · grants $90,026 · events $162,521
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $313,891$313,891-- 27.5%
Fees: other services $181,975$181,345$630- 15.9%
Pay: officers, directors, trustees, key employees $166,317$166,317-- 14.6%
Conferences, conventions and meetings $162,521$162,521-- 14.2%
Grants to US organizations and governments $84,758$84,758-- 7.4%
Other (as described)REGISTRY EXPENSES $73,208$73,208-- 6.4%
Payroll taxes $37,084$37,084-- 3.2%
Fees: accounting $30,432-$30,432- 2.7%
Fees: legal $29,116-$29,116- 2.5%
Other employee benefits $26,554$26,554-- 2.3%
Office expenses $7,483-$7,483- 0.7%
Other (as described)EDUCATION EXPENSES $7,364$7,364-- 0.6%
Pension plan contributions $5,505$5,505-- 0.5%
Grants to US individuals $5,268$5,268-- 0.5%
Advertising and promotion $3,510-$3,510- 0.3%
Other (as described)FUNDRAISING DONATION FE $2,365--$2,365 0.2%
Travel $2,050-$2,050- 0.2%
Insurance $1,994-$1,994- 0.2%
Other (as described)DUES & SUBSCRIPTIONS $577-$577- 0.1%
All other expenses $72-$72- 0.0%
Total$1,142,044100%

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2020 · Form 990 · $811,544 spent · pay $473,854 · grants $19,903 · events $19,043
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $249,799$249,799-- 30.8%
Fees: other services $198,567$189,449$9,118- 24.5%
Pay: officers, directors, trustees, key employees $163,573$163,573-- 20.2%
Other (as described)REGISTRY EXPENSES $83,712$83,712-- 10.3%
Payroll taxes $32,812$32,812-- 4.0%
Other employee benefits $21,606$21,606-- 2.7%
Conferences, conventions and meetings $19,043$19,043-- 2.3%
Grants to US organizations and governments $17,666$17,666-- 2.2%
Fees: legal $8,926-$8,926- 1.1%
Pension plan contributions $6,064$6,064-- 0.7%
Office expenses $2,790-$2,790- 0.3%
Grants to US individuals $2,237$2,237-- 0.3%
Other (as described)EMPLOYEE EXPENSES $1,857$1,600$257- 0.2%
Insurance $1,428-$1,428- 0.2%
Fees: accounting $1,165-$1,165- 0.1%
Travel $224-$224- 0.0%
Other (as described)DUES & SUBSCRIPTIONS $75-$75- 0.0%
Total$811,544100%

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2019 · Form 990 · $721,955 spent · pay $369,113 · grants $17,825 · events $43,974
LineAs describedTotalProgramManagementFundraisingShare
Fees: other services $189,910$179,053$10,857- 26.3%
Other salaries and wages $163,209$163,209-- 22.6%
Pay: officers, directors, trustees, key employees $153,716$153,716-- 21.3%
Other (as described)REGISTRY EXPENSES $66,438$66,438-- 9.2%
Conferences, conventions and meetings $43,974$43,974-- 6.1%
Payroll taxes $25,289$25,289-- 3.5%
Office expenses $17,283-$17,283- 2.4%
Pension plan contributions $13,736$13,736-- 1.9%
Other employee benefits $13,163$13,163-- 1.8%
Grants to US individuals $11,825$11,825-- 1.6%
Advertising and promotion $9,549$9,549-- 1.3%
Fees: accounting $7,734-$7,734- 1.1%
Grants to US organizations and governments $6,000$6,000-- 0.8%
Fees: legal $129-$129- 0.0%
Total$721,955100%

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2018 · Form 990 · $585,469 spent · pay $164,824 · grants $116,329 · events $45,775
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $152,699$152,699-- 26.1%
Fees: other services $140,246$130,261$9,985- 24.0%
Grants to US organizations and governments $107,401$107,401-- 18.3%
Other (as described)REGISTRY EXPENSES $88,000$88,000-- 15.0%
Conferences, conventions and meetings $45,775$45,775-- 7.8%
Fees: legal $13,990-$13,990- 2.4%
Office expenses $12,272-$12,272- 2.1%
Payroll taxes $12,125$12,125-- 2.1%
Grants to US individuals $8,928$8,928-- 1.5%
Advertising and promotion $3,000$3,000-- 0.5%
Fees: accounting $1,033-$1,033- 0.2%
Total$585,469100%

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2017 · Form 990 · $546,552 spent · pay $138,383 · grants $75,850 · events $66,612
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $135,344$135,344-- 24.8%
Fees: other services $102,458$92,186$10,197$75 18.7%
Other (as described)REGISTRY EXPENSES $88,000$88,000-- 16.1%
Conferences, conventions and meetings $66,612$66,612-- 12.2%
Grants to US organizations and governments $65,727$65,727-- 12.0%
Fees: legal $44,681-$44,681- 8.2%
Office expenses $14,629-$14,629- 2.7%
Grants to US individuals $10,123$10,123-- 1.9%
Travel $7,381$7,381-- 1.4%
Advertising and promotion $4,012$4,012-- 0.7%
Fees: accounting $3,846-$3,846- 0.7%
Payroll taxes $2,911$2,911-- 0.5%
Insurance $700-$700- 0.1%
Other employee benefits $128$128-- 0.0%
Total$546,552100%

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2016 · Form 990 · $495,755 spent · pay $120,125 · grants $81,714 · events $53,943
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $120,125$120,125-- 24.2%
Other (as described)REGISTRY EXPENSES $118,600$118,600-- 23.9%
Fees: other services $98,207$75,040$22,917$250 19.8%
Grants to US organizations and governments $69,750$69,750-- 14.1%
Conferences, conventions and meetings $53,943$53,943-- 10.9%
Grants to US individuals $11,964$11,964-- 2.4%
Fees: accounting $8,790-$8,790- 1.8%
Travel $6,258$6,258-- 1.3%
Office expenses $4,979-$4,979- 1.0%
Insurance $1,402-$1,402- 0.3%
Advertising and promotion $1,275$1,275-- 0.3%
Fees: legal $462-$462- 0.1%
Total$495,755100%

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2015 · Form 990 · $442,244 spent · pay $120,125 · grants $61,897 · events $85,147
LineAs describedTotalProgramManagementFundraisingShare
Pay: officers, directors, trustees, key employees $120,125$120,125-- 27.2%
Fees: other services $112,562$61,324$20,667$30,571 25.5%
Other (as described)REGISTRY EXPENSES $88,800$88,800-- 20.1%
Grants to US organizations and governments $54,245$54,245-- 12.3%
Conferences, conventions and meetings $48,274$48,274-- 10.9%
Grants to US individuals $7,652$7,652-- 1.7%
Fees: legal $4,202-$4,202- 1.0%
Fees: accounting $2,863-$2,863- 0.6%
Office expenses $2,336-$2,336- 0.5%
Insurance $750-$750- 0.2%
Travel $435$435-- 0.1%
Fundraising events Eventdirect expenses; gross income $57,895$36,873reported apart
Total$442,244100%

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2014 · Form 990 · $487,720 spent · pay $114,674 · grants $97,243 · events $94,782
LineAs describedTotalProgramManagementFundraisingShare
Fees: other services $119,773$103,633$16,140- 24.6%
Pay: officers, directors, trustees, key employees $114,674$114,674-- 23.5%
Grants to US organizations and governments $93,485$93,485-- 19.2%
Other (as described)REGISTRY EXPENSES $89,715$89,715-- 18.4%
Conferences, conventions and meetings $50,510$50,510-- 10.4%
Fees: legal $5,093-$5,093- 1.0%
Office expenses $4,042-$4,042- 0.8%
Grants to US individuals $3,758$3,758-- 0.8%
Fees: accounting $2,307-$2,307- 0.5%
Travel $1,582$1,582-- 0.3%
Advertising and promotion $1,037$1,037-- 0.2%
Depreciation and depletion $994$994-- 0.2%
Insurance $750-$750- 0.2%
Fundraising events Eventdirect expenses; gross income $26,650$44,272reported apart
Total$487,720100%

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2013 · Form 990 · $520,076 spent · pay $0 · grants $93,342 · events $46,364
LineAs describedTotalProgramManagementFundraisingShare
Fees: other services $207,131$207,131-- 39.8%
Grants to US organizations and governments $93,342$93,342-- 17.9%
Other (as described)REGISTRY EXPENSES $89,600$89,600-- 17.2%
Other (as described)STUDY RELATED EXPENSES $63,142$63,142-- 12.1%
Conferences, conventions and meetings $46,364$46,364-- 8.9%
Fees: legal $8,144$8,144-- 1.6%
Office expenses $7,458$7,458-- 1.4%
Fees: accounting $4,453$4,453-- 0.9%
Other (as described)STATISTICIAN $369$369-- 0.1%
Travel $73$73-- 0.0%
Total$520,076100%

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2012 · Form 990 · $519,661 spent · pay $50,000 · grants $153,664 · events $49,093
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $153,664$153,664-- 29.6%
Fees: other services $151,432$151,432-- 29.1%
Other (as described)REGISTRY EXPENSES $92,183$92,183-- 17.7%
Other salaries and wages $50,000$50,000-- 9.6%
Conferences, conventions and meetings $49,093$49,093-- 9.4%
Other (as described)STUDY-RELATED $11,666$11,666-- 2.2%
Travel $5,619$5,619-- 1.1%
Office expenses $2,936$2,936-- 0.6%
Other (as described)MISCELLANEOUS $759$759-- 0.1%
Insurance $750$750-- 0.1%
All other expenses $708$708-- 0.1%
Other (as described)DUES AND SUBSCRIPTIONS $705$705-- 0.1%
Fees: accounting $95$95-- 0.0%
Fees: legal $51$51-- 0.0%
Total$519,661100%

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2011 · Form 990 · $598,271 spent · pay $60,000 · grants $238,362 · events $42,094
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $238,362$238,362-- 39.8%
Fees: other services $152,640$152,640-- 25.5%
Other (as described)REGISTRY EXPENSES $90,713$90,713-- 15.2%
Pay: officers, directors, trustees, key employees $60,000$60,000-- 10.0%
Conferences, conventions and meetings $42,094$42,094-- 7.0%
Travel $10,041$10,041-- 1.7%
Other (as described)OFFICE SUPPLIES $1,324$1,324-- 0.2%
Fees: accounting $1,175$1,175-- 0.2%
Other (as described)STUDY-RELATED EXPENSES $1,025$1,025-- 0.2%
All other expenses $279$279-- 0.0%
Other (as described)DONATION EXPENSE $222$222-- 0.0%
Other (as described)POSTAGE AND DELIVERY $221$221-- 0.0%
Fees: legal $175$175-- 0.0%
Total$598,271100%

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2010 · Form 990 · $623,003 spent · pay $0 · grants $248,517 · events $0
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $248,517$248,517-- 39.9%
Fees: other services $226,076$226,076-- 36.3%
Other (as described)REGISTRY EXPENSES $96,718$96,718-- 15.5%
Other (as described)MEETING EXPENSES $29,537$29,537-- 4.7%
Other (as described)STUDY RELATED EXPENSES $13,386$13,386-- 2.1%
Other (as described)TRAVEL $4,675$4,675-- 0.8%
Other (as described)PROFESSIONAL FEES $2,291$1,596$695- 0.4%
All other expenses $1,803-$1,803- 0.3%
Total$623,003100%

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