FURP.ORG / PUBLIC DATA EXPLORER

PEDIATRIC EPILEPSY RESEARCH FOUNDATION

Cite this

Plain text PEDIATRIC EPILEPSY RESEARCH FOUNDATION. furp.org, nonprofit organization profile, tax years 2010–2024. https://furp.org/org/pediatric-epilepsy-research-foundation-201779737. Retrieved 2026-10-22.

APA furp.org. (n.d.). PEDIATRIC EPILEPSY RESEARCH FOUNDATION [Nonprofit organization profile; tax years 2010–2024]. Retrieved October 22, 2026, from https://furp.org/org/pediatric-epilepsy-research-foundation-201779737

MLA “PEDIATRIC EPILEPSY RESEARCH FOUNDATION.” furp.org, tax years 2010–2024, https://furp.org/org/pediatric-epilepsy-research-foundation-201779737. Accessed 22 Oct. 2026.

Retrieved 2026-10-22; covers tax years 2010–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990PF · revenue $2.7M · expenses $1.4M · assets $35.2M

EIN
20-1779737
Address
8390 LBJ FREEWAY STE 350, DALLAS, TX 75243-1666
NTEE code
H54
Subsection
501(c)(3)
Ruling year
2006
Cross-check
ProPublica Nonprofit Explorer

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

13 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Karen Mcewen ADMINISTRATO2015-2024 $91,109$758,567 1
Joanne Nakagawa GRANTS LIAIS2023-2024 $91,109$177,974 1
Renee Shellhaas PRESIDENT2021-2024 $86,500$174,000 1
Roy D Elterman Md TREASURER2010-2024 $0$54,837 1
Deborah Hirtz Md DIRECTOR2016-2024 $0$10,088 1
Peter Camfield Md DIRECTOR2014-2024 $0$7,396 1
Stephen Ashwal Md DIRECTOR2010-2024 $0$5,494 1
E Martina Bebin Md DIRECTOR2015-2024 $0$3,220 1
Sookyong Koh Md DIRECTOR2016-2024 $0$1,712 1
W Donald Shields Md VICE PRESIDE2010-2024 $0$1,167 1
Michael V Johnston Md (former) DIRECTOR2015-2021 $0$2,962 1
Eric Weatherford (former) DIRECTOR2016-2021 $0$1,498 1
Cynthia Morriss (former) Director2010-2014 $241$403 1

Officers and directors, no compensation reported

10 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Herbert Winokur EMERITUS2010-2024 0 $0 reported 2
John Murray EMERITUS2018-2024 0 $0 reported 1
Niko Kaciroti DIRECTOR2022-2024 0 $0 reported 1
Lori Jordan DIRECTOR2022-2024 0 $0 reported 1
Teri Behnke DIRECTOR2022-2024 0 $0 reported 1
Dennis Dlugos DIRECTOR2022-2024 0 $0 reported 1
David McLaughlin (former) Director2011-2016 0 $0 reported 1
Alicia Freysinger (former) Director2010-2015 0 $0 reported 1
Lawrence Madigan (former) Director2010-2014 0 $0 reported 1
J Phil Keeter (former) Director2010 0 $0 reported 1

People by year

2024 · 16 people listed · 3 paid, $269K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAREN MCEWEN ADMINISTRATO0 $91,109-- $91,1091
JOANNE NAKAGAWA GRANTS LIAIS40 $91,109-- $91,1091
RENEE SHELLHAAS PRESIDENT20 $86,500-$0 $86,5001
ROY D ELTERMAN MD TREASURER3 $0-$0 $01
W DONALD SHIELDS MD VICE PRESIDE0 $0-$0 $01
STEPHEN ASHWAL MD DIRECTOR0 $0-$0 $01
E MARTINA BEBIN MD DIRECTOR0 $0-$0 $01
HERBERT WINOKUR EMERITUS0 $0-$0 $02
PETER CAMFIELD MD DIRECTOR0 $0-$0 $01
DEBORAH HIRTZ MD DIRECTOR0 $0-$0 $01
SOOKYONG KOH MD DIRECTOR0 $0-$0 $01
JOHN MURRAY EMERITUS0 $0-$0 $01
NIKO KACIROTI DIRECTOR0 $0-$0 $01
LORI JORDAN DIRECTOR0 $0-$0 $01
TERI BEHNKE DIRECTOR0 $0-$0 $01
DENNIS DLUGOS DIRECTOR0 $0-$0 $01
2023 · 16 people listed · 3 paid, $236K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAREN MCEWEN ADMINISTRATO40 $86,865-- $86,8651
JOANNE NAKAGAWA GRANTS LIAIS40 $86,865-- $86,8651
RENEE SHELLHAAS PRESIDENT-EL8 $62,500-$0 $62,5001
ROY D ELTERMAN MD PRESIDENT0 $0-$0 $01
W DONALD SHIELDS MD VICE PRESIDE0 $0-$0 $01
STEPHEN ASHWAL MD DIRECTOR0 $0-$0 $01
E MARTINA BEBIN MD DIRECTOR0 $0-$0 $01
HERBERT WINOKUR EMERITUS0 $0-$0 $02
PETER CAMFIELD MD DIRECTOR0 $0-$0 $01
DEBORAH HIRTZ MD DIRECTOR0 $0-$0 $01
SOOKYONG KOH MD DIRECTOR0 $0-$0 $01
JOHN MURRAY EMERITUS0 $0-$0 $01
NIKO KACIROTI DIRECTOR0 $0-$0 $01
LORI JORDAN DIRECTOR0 $0-$0 $01
TERI BEHNKE DIRECTOR0 $0-$0 $01
DENNIS DLUGOS DIRECTOR0 $0-$0 $01
2022 · 15 people listed · 2 paid, $105K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAREN MCEWEN ADMINISTRATO40 $80,225-- $80,2251
RENEE SHELLHAAS PRESIDENT-EL8 $25,000-$0 $25,0001
ROY D ELTERMAN MD PRESIDENT40 $0-$0 $01
W DONALD SHIELDS MD VICE PRESIDE0 $0-$0 $01
STEPHEN ASHWAL MD DIRECTOR0 $0-$0 $01
E MARTINA BEBIN MD DIRECTOR0 $0-$0 $01
HERBERT WINOKUR EMERITUS0 $0-$0 $02
PETER CAMFIELD MD DIRECTOR0 $0-$0 $01
DEBORAH HIRTZ MD DIRECTOR0 $0-$0 $01
SOOKYONG KOH MD DIRECTOR0 $0-$0 $01
JOHN MURRAY EMERITUS0 $0-$0 $01
NIKO KACIROTI DIRECTOR0 $0-$0 $01
LORI JORDAN DIRECTOR0 $0-$0 $01
TERI BEHNKE DIRECTOR0 $0-$0 $01
DENNIS DLUGOS DIRECTOR0 $0-$0 $01
2021 · 13 people listed · 1 paid, $77K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAREN MCEWEN ADMINISTRATO40 $76,509-- $76,5091
ROY D ELTERMAN MD PRESIDENT0 $0-$0 $01
W DONALD SHIELDS MD VICE PRESIDE0 $0-$0 $01
STEPHEN ASHWAL MD DIRECTOR0 $0-$0 $01
E MARTINA BEBIN MD DIRECTOR0 $0-$0 $01
HERBERT WINOKUR EMERITUS0 $0-$0 $02
PETER CAMFIELD MD DIRECTOR0 $0-$0 $01
DEBORAH HIRTZ MD DIRECTOR0 $0-$0 $01
SOOKYONG KOH MD DIRECTOR0 $0-$0 $01
ERIC WEATHERFORD DIRECTOR0 $0-$0 $01
JOHN MURRAY DIRECTOR0 $0-$0 $01
MICHAEL V JOHNSTON MD DIRECTOR0 $0-$0 $01
RENEE SHELLHAAS DIRECTOR0 $0-$0 $01
2020 · 12 people listed · 2 paid, $77K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAREN MCEWEN ADMINISTRATO40 $74,844-- $74,8441
ROY D ELTERMAN MD PRESIDENT10 $0-$1,696 $1,6961
W DONALD SHIELDS MD VICE PRESIDE1 $0-$0 $01
STEPHEN ASHWAL MD DIRECTOR1 $0-$0 $01
E MARTINA BEBIN MD DIRECTOR0 $0-$0 $01
HERBERT WINOKUR EMERITUS1 $0-$0 $02
PETER CAMFIELD MD DIRECTOR0 $0-$0 $01
DEBORAH HIRTZ MD DIRECTOR1 $0-$0 $01
SOOKYONG KOH MD DIRECTOR0 $0-$0 $01
ERIC WEATHERFORD DIRECTOR0 $0-$0 $01
JOHN MURRAY DIRECTOR0 $0-$0 $01
MICHAEL V JOHNSTON MD DIRECTOR0 $0-$0 $01
2019 · 12 people listed · 9 paid, $91K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAREN MCEWEN ADMINISTRATO40 $72,837-- $72,8371
ROY D ELTERMAN MD PRESIDENT10 $0-$10,600 $10,6001
PETER CAMFIELD MD DIRECTOR0 $0-$1,531 $1,5311
ERIC WEATHERFORD DIRECTOR0 $0-$1,498 $1,4981
DEBORAH HIRTZ MD DIRECTOR1 $0-$1,465 $1,4651
MICHAEL V JOHNSTON MD DIRECTOR0 $0-$1,147 $1,1471
E MARTINA BEBIN MD DIRECTOR0 $0-$829 $8291
SOOKYONG KOH MD DIRECTOR0 $0-$626 $6261
STEPHEN ASHWAL MD DIRECTOR1 $0-$596 $5961
W DONALD SHIELDS MD VICE PRESIDE1 $0-$0 $01
HERBERT WINOKUR DIRECTOR1 $0-$0 $02
JOHN MURRAY DIRECTOR0 $0-$0 $01
2018 · 12 people listed · 8 paid, $85K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
KAREN MCEWEN ADMINISTRATO40 $70,860-- $70,8601
DEBORAH HIRTZ MD DIRECTOR1 $0-$4,696 $4,6961
ROY D ELTERMAN MD PRESIDENT10 $0-$4,568 $4,5681
PETER CAMFIELD MD DIRECTOR0 $0-$1,566 $1,5661
E MARTINA BEBIN MD DIRECTOR0 $0-$948 $9481
MICHAEL V JOHNSTON MD DIRECTOR0 $0-$944 $9441
STEPHEN ASHWAL MD DIRECTOR1 $0-$806 $8061
SOOKYONG KOH MD DIRECTOR0 $0-$577 $5771
W DONALD SHIELDS MD VICE PRESIDE1 $0-$0 $01
HERBERT WINOKUR DIRECTOR1 $0-$0 $02
ERIC WEATHERFORD DIRECTOR0 $0-$0 $01
JOHN MURRAY DIRECTOR0 $0-$0 $01
2017 · 11 people listed · 8 paid, $82K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Karen McEwen Administration40 $64,260-- $64,2601
Roy D Elterman MD President10 $0-$11,347 $11,3471
Peter Camfield MD Director0 $0-$1,873 $1,8731
Deborah Hirtz MD Director1 $0-$1,692 $1,6921
Stephen Ashwal MD Director1 $0-$971 $9711
E Martina Bebin MD Director0 $0-$644 $6441
Sookyong Koh MD Director0 $0-$509 $5091
Michael V Johnston MD Director0 $0-$416 $4161
W Donald Shields MD Vice President1 $0-- $01
Herbert Winokur Director1 $0-- $02
Eric Weatherford Director0 $0-- $01
2016 · 12 people listed · 6 paid, $89K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Karen McEwen Administration40 $64,260-$12,853 $77,1131
Roy D Elterman MD President10 $0-$6,771 $6,7711
Deborah Hirtz MD Director0 $0-$2,235 $2,2351
Peter Camfield MD Director0 $0-$1,204 $1,2041
E Martina Bebin MD Director0 $0-$799 $7991
Stephen Ashwal MD Director1 $0-$601 $6011
W Donald Shields MD Vice President1 $0-- $01
David McLaughlin Director0 $0-- $01
Michael V Johnston MD Director0 $0-- $01
Herbert Winokur Director1 $0-- $02
Sookyong Koh MD Director0 $0-- $01
Eric Weatherford Director0 $0-- $01
2015 · 10 people listed · 5 paid, $70K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Karen McEwen Administration40 $63,945-- $63,9451
Roy D Elterman MD President10 $0-$3,579 $3,5791
Peter Camfield Director0 $0-$1,222 $1,2221
Michael V Johnston Director0 $0-$455 $4551
Stephen Ashwal MD Director1 $0-$375 $3751
W Donald Shields MD Vice President1 $0-- $01
Alicia Freysinger Director0 $0-- $01
David McLaughlin Director0 $0-- $01
E Martina Bebin Director0 $0-- $01
Herbert Winokur Director1 $0-- $02
2014 · 9 people listed · 4 paid, $3K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Roy D Elterman MD President10 $0-$1,276 $1,2761
Stephen Ashwal MD Director1 $0-$507 $5071
W Donald Shields MD Vice President1 $0-$499 $4991
Cynthia Morriss Director0 $0-$241 $2411
Alicia Freysinger Director0 $0-- $01
David McLaughlin Director0 $0-- $01
Lawrence Madigan Director0 $0-- $01
Herbert Winokur Director1 $0-- $02
Peter Camfield Director0 $0-- $01
2013 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Roy D Elterman MD President5 $0-- $01
W Donald Shields MD Director0 $0-- $01
Stephen Ashwal MD Director0 $0-- $01
Alicia Freysinger Director0 $0-- $01
David McLaughlin Director0 $0-- $01
Lawrence Madigan Director0 $0-- $01
Cynthia Morriss Director0 $0-- $01
Herbert Winokur Director0 $0-- $02
2012 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Herbert Winokur Director0 $0-- $02
Cynthia Morriss Director0 $0-- $01
Lawrence Madigan Director0 $0-- $01
David McLaughlin Director0 $0-- $01
Alicia Freysinger Director0 $0-- $01
Stephen Ashwal MD Director0 $0-- $01
W Donald Shields MD Director0 $0-- $01
Roy D Elterman MD President5 $0-- $01
2011 · 8 people listed · none paid
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Herbert Winokur Director0 $0-- $02
Cynthia Morriss Director0 $0-- $01
Lawrence Madigan Director0 $0-- $01
David McLaughlin Director0 $0-- $01
Alicia Freysinger Director0 $0-- $01
Stephen Ashwal MD Director0 $0-- $01
W Donald Shields MD Director0 $0-- $01
Roy D Elterman MD President5 $0-- $01
2010 · 8 people listed · 4 paid, $17K
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Roy D Elterman MD Foundation Mgr5 $15,000-- $15,0001
Stephen Ashwal MD Director0 $1,000-$638 $1,6381
W Donald Shields MD Director0 $0-$668 $6681
Cynthia Morriss Director0 $0-$162 $1621
Herbert Winokur Director0 $0-- $02
Lawrence Madigan Director0 $0-- $01
J Phil Keeter Director0 $0-- $01
Alicia Freysinger Director0 $0-- $01

Highest-paid independent contractors

No independent contractors reported.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2024 · 29 grants to organizations · $929K
2023 · 17 grants to organizations · $761K
2022 · 25 grants to organizations · $2.0M

Listed grants add up to $2,046,969; the return's “grants paid” expense line says $2,068,969. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2021 · 27 grants to organizations · $1.1M
2020 · 24 grants to organizations · $630K
2019 · 28 grants to organizations · $2.7M
2018 · 16 grants to organizations · $2.7M
2017 · 4 grants to organizations · $541K · 22 grants to individuals · $2.4M
2016 · 5 grants to organizations · $861K · 10 grants to individuals · $1.3M
2015 · 3 grants to organizations · $202K · 5 grants to individuals · $1.4M
2014 · 4 grants to organizations · $322K · 4 grants to individuals · $1.0M
2013 · 4 grants to organizations · $235K · 1 grant to individuals · $346K
2012 · 0 grants to organizations · $0 · 8 grants to individuals · $456K
2011 · 3 grants to organizations · $237K · 2 grants to individuals · $195K
2010 · 4 grants to organizations · $518K · 1 grant to individuals · $50K

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributors listed on Schedule B of the Form 990-PF: name, city and state as filed (street addresses are not shown), with total and noncash contributions for the year. A link to an organization's page is tagged Fuzzy with its name-similarity score (0 to 1) when it rests on name and state; Schedule B lists no EIN, so no link here is an exact identifier match.

2015 · 2 contributors · $87K
#ContributorTypeCity, stateTotalNoncashSource
1 Child Neurology Foundation Organization or other Minneapolis, MN $69,901- Form 990PF Sch. B, 2015 · filing
2 Loma Linda University Fuzzy 1.00 Organization or other Loma Linda, CA $16,716- Form 990PF Sch. B, 2015 · filing

Contributors listed here are as reported on the filing. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990PF period ending 2024-12-31 · amended · view filing · original 990 ↗
$2,721,526$1,374,345 $35,151,181$32,936,596 $2,466- $86,500--
2024 · Form 990PF period ending 2024-12-31 · superseded · view filing · original 990 ↗
$2,721,526$1,374,345 $35,151,181$32,936,596 $2,466- $86,500--
2023 · Form 990PF period ending 2023-12-31 · view filing · original 990 ↗
$3,086,671$1,217,622 $32,948,389$32,173,583 $44- $62,500--
2022 · Form 990PF period ending 2022-12-31 · view filing · original 990 ↗
$4,718,750$2,376,817 $28,110,168$27,026,028 $6,152- $25,000--
2021 · Form 990PF period ending 2021-12-31 · view filing · original 990 ↗
$5,406,021$1,321,183 $30,762,097$29,647,631 $1,938- ---
2020 · Form 990PF period ending 2020-12-31 · view filing · original 990 ↗
$4,122,387$844,487 $28,081,124$27,137,746 $692- ---
2019 · Form 990PF period ending 2019-12-31 · view filing · original 990 ↗
$4,747,062$2,858,839 $22,368,502$18,902,406 $3,469- ---
2018 · Form 990PF period ending 2018-12-31 · view filing · original 990 ↗
$6,900,509$2,846,837 $18,564,817$15,253,412 $5,260- ---
2017 · Form 990PF period ending 2017-12-31 · view filing · original 990 ↗
$7,509,038$3,156,081 $16,127,299$13,357,827 $2,404- $17,452--
2016 · Form 990PF period ending 2016-12-31 · view filing · original 990 ↗
$5,390,026$2,322,501 $11,448,133$9,887,799 $1,200- $11,610--
2015 · Form 990PF period ending 2015-12-31 · view filing · original 990 ↗
$4,301,026$1,772,568 $8,484,263$6,129,787 $88,315- $5,631--
2014 · Form 990PF period ending 2014-12-31 · view filing · original 990 ↗
$3,510,609$1,536,196 $6,320,018$3,151,535 $434- $2,523--
2013 · Form 990PF period ending 2013-12-31 · view filing · original 990 ↗
$2,387,623$731,646 $4,483,732$3,311,991 -- ---
2012 · Form 990PF period ending 2012-12-31 · view filing · original 990 ↗
$1,866,275$580,656 $2,826,457$2,574,350 -- ---
2011 · Form 990PF period ending 2011-12-31 · view filing · original 990 ↗
$1,490,988$540,416 $1,541,294$1,541,294 -- ---
2010 · Form 990PF period ending 2010-12-31 · view filing · original 990 ↗
$1,186,754$604,517 $590,722$590,722 -- $17,468--

Connected to

Organizations that list some of the same people on their returns (officers, directors, key employees on this organization’s latest return), and related organizations it lists on Schedule R.

Funders of this organization

Not reported: no grants to this organization appear in the filings we have (tax years 2010 to 2025).

Similar organizations

Ranked without any AI: same NTEE code first, then the same NTEE group; then revenue within 2x, 5x or 10x; then the same state; then similar name and mission text. Same state only · More (100)

OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
PEDIATRIC EPILEPSY RESEARCH CONSORTIUM INCILH54 $569,812$287,892 EXECUTIVE DIRECTOR$89,180 Same NTEE code H54, revenue within 5x, similar name
FRIENDS OF FACESVAH54 $479,515$413,797 PRESIDENT$0 Same NTEE code H54, revenue within 10x
DANERS HOPE FOUNDATIONTXH54 $2,000$0 CEO/FOUNDER$0 Same NTEE code H54, revenue differs more than 10x, same state
EPILEPSY FOUNDATION OF LONG ISLAND INCNYH54 $191,808$292,975 PRESIDENT/CEO (AS OF 02/24)$0 Same NTEE code H54, revenue differs more than 10x
PPP3CA HOPE FOUNDATION INCNYH54 $156,395$67,605 PRESIDENT$0 Same NTEE code H54, revenue differs more than 10x
SOUTH CAROLINA ADVOCATES FOR EPILEPSYSCH54 $47,409$44,708 EXECUTIVE DIRECTOR$20,750 Same NTEE code H54, revenue differs more than 10x
TIEP RESEARCH INSTITUTECAH54 $0$1,900 PRESIDENT$0 Same NTEE code H54
SIERRA LEONE EPILEPSY SOCIETYVAH54 $0$0 PRESIDENT$4,000 Same NTEE code H54
RETINA RESEARCH FOUNDATIONTXH41 $3,168,044$2,775,106 EXECUTIVE DIRECTOR$110,000 Same NTEE group H, revenue within 2x, same state, similar name
THE GORDON AND MARY CAIN PEDIATRIC NEUROLOGY RESEARCH FOUNDATIONTXH96 $2,319,076$982,668 FORMER OFFICER / SENIOR VICE PRESIDENT THROUGH 8/6/24$1,482,060 Same NTEE group H, revenue within 2x, same state, similar name
CLL GLOBAL RESEARCH FOUNDATIONTXH30 $3,170,285$3,943,865 CDO$135,000 Same NTEE group H, revenue within 2x, same state, similar name
CENTRAL TEXAS VETERANS RESEARCH FOUNDATIONTXH90 $1,811,673$1,649,268 BOARD MEMBER$0 Same NTEE group H, revenue within 2x, same state
COALITION FOR NATIONAL TRAUMA RESEARCHTXH12 $2,524,205$2,002,228 Executive Director$230,112 Same NTEE group H, revenue within 2x, same state
RARE VILLAGE FOUNDATIONTXH12 $3,660,787$2,368,236 VICE PRESIDENT SECRETARY DIRECTOR$0 Same NTEE group H, revenue within 2x, same state
GUADALUPE REGIONAL MEDICAL FOUNDATIONTXH12 $1,881,416$597,221 CHAIR$0 Same NTEE group H, revenue within 2x, same state
DALLAS VA RESEARCH CORPORATIONTXH05 $3,055,887$3,037,593 DIRECTOR$408,641 Same NTEE group H, revenue within 2x, same state
TEXAS HEALTH RESEARCH & EDUCATION INSTITUTETXH20 $4,905,286$6,411,115 President/Trustee$2,459,823 Same NTEE group H, revenue within 2x, same state
TEXAS ONCOLOGY FOUNDATION INCTXH30 $2,112,896$1,246,175 Executive Director$199,423 Same NTEE group H, revenue within 2x, same state
SHELBY LAVINE FAMILY FOUNDATIONTXH30 $1,773,434$0 President$0 Same NTEE group H, revenue within 2x, same state
FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICSTXH12 $5,388,260$10,391,969 CHIEF SCIENCE OFFICER$509,945 Same NTEE group H, revenue within 2x, same state
KIDNEY CANCER ASSOCIATIONTXH99 $4,934,440$5,900,708 PRESIDENT & CEO$382,972 Same NTEE group H, revenue within 2x, same state
NATIONAL OVARIAN CANCER COALITION INCTXH20 $5,376,100$5,365,375 CEO$225,691 Same NTEE group H, revenue within 2x, same state
AMERICAN-EUROPEAN CONGRESS OF OPHTHALMIC SURGERYTXH03 $2,230,686$2,095,847 EXECUTIVE DIRECTOR$333,581 Same NTEE group H, revenue within 2x, same state
CHILDRENS CANCER FUND OF DALLAS INCTXH30 $2,275,389$2,433,565 Executive OFFICER$163,800 Same NTEE group H, revenue within 2x, same state
TEXAS ACADEMY OF MEDICINE ENGINEERING SCIENCE AND TECHNOLOGYTXH03 $1,678,457$1,701,141 EXECUTIVE DIRECTOR$204,197 Same NTEE group H, revenue within 2x, same state

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
DONOR ADVISED CHARITABLE GIVING DAF sponsor$39,328,015251 442014–2024 HOPE FOR DEPRESSION RESEARCH FOUNDATION; ELLISON INSTITUTE RESEARCH FOUNDATION; PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC; CITIZENS UNITED FOR RESEARCH IN EPILEPSY and 40 more
GREATER KANSAS CITY COMMUNITY FOUNDATION DAF sponsor$33,149,27515 62010–2024 HOPE FOR DEPRESSION RESEARCH FOUNDATION; HEARING HEALTH FOUNDATION; CITIZENS UNITED FOR RESEARCH IN EPILEPSY; HAROLD PUMP FOUNDATION and 2 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor$18,073,596315 582016–2024 CITIZENS UNITED FOR RESEARCH IN EPILEPSY; PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC; ARTHRITIS NATIONAL RESEARCH FOUNDATION; THE PROGERIA RESEARCH FOUNDATION INC and 54 more
NATIONAL PHILANTHROPIC TR DAF sponsor$13,527,705132 362014–2024 RUNX1 FOUNDATION; CITIZENS UNITED FOR RESEARCH IN EPILEPSY; CYSTINOSIS RESEARCH FOUNDATION; PACIFIC PEDIATRIC NEURO-ONCOLOGY CONSORTIUM FOUNDATI and 32 more
WOLF CREEK CHARITABLE FOUNDATION Private foundation$11,500,0008 12017–2024 CLL GLOBAL RESEARCH FOUNDATION
WWWW FOUNDATION Private foundation$9,995,0007 12018–2024 OSTEOSARCOMA INSTITUTE
THE SEAMAN FOUNDATION INC Private foundation$5,000,0002 12020–2022 NEUROSURGERY RESEARCH AND EDUCATION FOUNDATION
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$4,902,403148 362019–2024 PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC; ORGANIZATION FOR AUTISM RESEARCH INC; RARE VILLAGE FOUNDATION; CEREBRAL PALSY ALLIANCE RESEARCH FOUNDATION and 32 more
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC DAF sponsor$4,884,35065 252013–2024 CANCER RESEARCH FOUNDATION; ARTHRITIS NATIONAL RESEARCH FOUNDATION; PACIFIC PEDIATRIC NEURO-ONCOLOGY CONSORTIUM FOUNDATI; FRAXA RESEARCH FOUNDATION INC and 21 more
YALE UNIVERSITY DAF sponsor$4,595,30222 32012–2024 VA CONNECTICUT RESEARCH AND EDUCATION FOUNDATION INC; DALLAS VA RESEARCH CORPORATION; TAMPA VA RESEARCH AND EDUCATION FOUNDATION INC
FORGOOD INC DAF sponsor$4,382,174110 292010–2024 SAEM RESEARCH FOUNDATION; BREAST CANCER RESEARCH FOUNDATION OF ALABAMA; TOWER CANCER RESEARCH FOUNDATION; ASTS FOUNDATION and 25 more
STERLING DONOR ADVISED FUND DAF sponsor$4,259,1394 12019–2022 FRIENDS OF FACES
COMMUNITIES FOUNDATION OF TEXAS DAF sponsor$4,064,83419 72015–2024 OSTEOSARCOMA INSTITUTE; CHILDRENS CANCER FUND OF DALLAS INC; TEXAS ACADEMY OF MEDICINE ENGINEERING SCIENCE AND TECHNOLOGY; THE PROGERIA RESEARCH FOUNDATION INC and 3 more
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$3,873,25683 302020–2024 RARE VILLAGE FOUNDATION; CITIZENS UNITED FOR RESEARCH IN EPILEPSY; BEAR NECESSITIES PEDIATRIC CANCER FOUNDATION; CYSTINOSIS RESEARCH FOUNDATION and 26 more
TEXAS HEALTH RESOURCES FOUNDATION DAF sponsor$2,979,12120 32010–2024 TEXAS HEALTH RESEARCH & EDUCATION INSTITUTE; TEXAS ONCOLOGY FOUNDATION INC; DALLAS VA RESEARCH CORPORATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990PF · $1,374,345 spent · pay $300,084 · grants $929,487 · events $75,924
LineAs describedTotalShare
Contributions, gifts, grants paid $929,487 67.6%
Other salaries and wages $182,218 13.3%
Pay: officers, directors, trustees $86,500 6.3%
Travel, conferences and meetings $75,924 5.5%
Taxes $45,728 3.3%
Pension plans and employee benefits $31,366 2.3%
Occupancy $9,600 0.7%
Other expenses $8,736 0.6%
Fees: legal $4,786 0.3%
Total$1,374,345100%

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2023 · Form 990PF · $1,217,622 spent · pay $270,491 · grants $765,693 · events $79,187
LineAs describedTotalShare
Contributions, gifts, grants paid $765,693 62.9%
Other salaries and wages $173,730 14.3%
Travel, conferences and meetings $79,187 6.5%
Pay: officers, directors, trustees $62,500 5.1%
Taxes $47,174 3.9%
Other expenses $34,712 2.9%
Pension plans and employee benefits $34,261 2.8%
Occupancy $11,400 0.9%
Fees: legal $8,965 0.7%
Total$1,217,622100%

View the filing

2022 · Form 990PF · $2,376,817 spent · pay $158,289 · grants $2,068,969 · events $52,311
LineAs describedTotalShare
Contributions, gifts, grants paid $2,068,969 87.0%
Other salaries and wages $108,866 4.6%
Taxes $69,259 2.9%
Travel, conferences and meetings $52,311 2.2%
Pay: officers, directors, trustees $25,000 1.1%
Pension plans and employee benefits $24,423 1.0%
Other expenses $12,895 0.5%
Occupancy $12,000 0.5%
Fees: legal $3,019 0.1%
Fees: accounting $75 0.0%
Total$2,376,817100%

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2021 · Form 990PF · $1,321,183 spent · pay $96,423 · grants $1,111,057 · events $10,597
LineAs describedTotalShare
Contributions, gifts, grants paid $1,111,057 84.1%
Taxes $79,877 6.0%
Other salaries and wages $76,509 5.8%
Pension plans and employee benefits $19,914 1.5%
Occupancy $12,400 0.9%
Travel, conferences and meetings $10,597 0.8%
Fees: accounting $4,525 0.3%
Other expenses $3,609 0.3%
Fees: legal $2,695 0.2%
Total$1,321,183100%

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2020 · Form 990PF · $844,487 spent · pay $95,443 · grants $629,793 · events $1,696
LineAs describedTotalShare
Contributions, gifts, grants paid $629,793 74.6%
Taxes $86,206 10.2%
Other salaries and wages $74,844 8.9%
Pension plans and employee benefits $20,599 2.4%
Occupancy $13,000 1.5%
Other expenses $9,690 1.1%
Fees: accounting $8,370 1.0%
Travel, conferences and meetings $1,696 0.2%
Fees: legal $289 0.0%
Total$844,487100%

View the filing

2019 · Form 990PF · $2,858,839 spent · pay $90,908 · grants $2,686,371 · events $18,910
LineAs describedTotalShare
Contributions, gifts, grants paid $2,686,371 94.0%
Other salaries and wages $72,837 2.5%
Taxes $49,453 1.7%
Travel, conferences and meetings $18,910 0.7%
Pension plans and employee benefits $18,071 0.6%
Occupancy $11,000 0.4%
Other expenses $1,522 0.1%
Fees: accounting $375 0.0%
Fees: legal $300 0.0%
Total$2,858,839100%

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2018 · Form 990PF · $2,846,837 spent · pay $89,018 · grants $2,653,564 · events $14,106
LineAs describedTotalShare
Contributions, gifts, grants paid $2,653,564 93.2%
Other salaries and wages $70,860 2.5%
Taxes $70,725 2.5%
Pension plans and employee benefits $18,158 0.6%
Travel, conferences and meetings $14,106 0.5%
Occupancy $12,000 0.4%
Fees: accounting $4,750 0.2%
Other expenses $1,749 0.1%
Fees: legal $925 0.0%
Total$2,846,837100%

View the filing

2017 · Form 990PF · $3,156,081 spent · pay $100,543 · grants $2,944,953 · events $0
LineAs describedTotalShare
Contributions, gifts, grants paid $2,944,953 93.3%
Taxes $81,115 2.6%
Other salaries and wages $71,310 2.3%
Pay: officers, directors, trustees $17,452 0.6%
Occupancy $12,000 0.4%
Pension plans and employee benefits $11,781 0.4%
Other expenses $10,452 0.3%
Fees: accounting $4,750 0.2%
Fees: legal $2,268 0.1%
Total$3,156,081100%

View the filing

2016 · Form 990PF · $2,322,501 spent · pay $94,123 · grants $2,129,999 · events $1,257
LineAs describedTotalShare
Contributions, gifts, grants paid $2,129,999 91.7%
Other salaries and wages $69,660 3.0%
Taxes $59,217 2.5%
Pension plans and employee benefits $12,853 0.6%
Occupancy $12,000 0.5%
Pay: officers, directors, trustees $11,610 0.5%
Fees: legal $11,206 0.5%
Other expenses $7,799 0.3%
Fees: accounting $4,900 0.2%
Fees: other professional $2,000 0.1%
Travel, conferences and meetings $1,257 0.1%
Total$2,322,501100%

View the filing

2015 · Form 990PF · $1,772,568 spent · pay $86,564 · grants $1,598,776 · events $2,080
LineAs describedTotalShare
Contributions, gifts, grants paid $1,598,776 90.2%
Other salaries and wages $68,145 3.8%
Taxes $48,570 2.7%
Other expenses $16,236 0.9%
Pension plans and employee benefits $12,788 0.7%
Occupancy $12,000 0.7%
Pay: officers, directors, trustees $5,631 0.3%
Fees: accounting $4,475 0.3%
Fees: other professional $3,867 0.2%
Travel, conferences and meetings $2,080 0.1%
Total$1,772,568100%

View the filing

2014 · Form 990PF · $1,536,196 spent · pay $81,523 · grants $1,358,790 · events $203
LineAs describedTotalShare
Contributions, gifts, grants paid $1,358,790 88.5%
Other salaries and wages $66,450 4.3%
Taxes $40,054 2.6%
Other expenses $22,872 1.5%
Fees: legal $15,129 1.0%
Pension plans and employee benefits $12,550 0.8%
Occupancy $12,000 0.8%
Fees: accounting $3,825 0.2%
Pay: officers, directors, trustees $2,523 0.2%
Fees: other professional $1,800 0.1%
Travel, conferences and meetings $203 0.0%
Total$1,536,196100%

View the filing

2013 · Form 990PF · $731,646 spent · pay $77,400 · grants $580,965 · events $1,549
LineAs describedTotalShare
Contributions, gifts, grants paid $580,965 79.4%
Other salaries and wages $65,000 8.9%
Taxes $52,725 7.2%
Pension plans and employee benefits $12,400 1.7%
Occupancy $12,000 1.6%
Fees: accounting $3,923 0.5%
Travel, conferences and meetings $1,549 0.2%
Fees: other professional $1,500 0.2%
Fees: legal $1,103 0.2%
Other expenses $481 0.1%
Total$731,646100%

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2012 · Form 990PF · $580,656 spent · pay $65,000 · grants $455,682 · events $0
LineAs describedTotalShare
Contributions, gifts, grants paid $455,682 78.5%
Other salaries and wages $55,000 9.5%
Taxes $41,534 7.2%
Occupancy $12,000 2.1%
Pension plans and employee benefits $10,000 1.7%
Fees: accounting $3,275 0.6%
Other expenses $3,165 0.5%
Total$580,656100%

View the filing

2011 · Form 990PF · $540,416 spent · pay $38,000 · grants $431,474 · events $0
LineAs describedTotalShare
Contributions, gifts, grants paid $431,474 79.8%
Taxes $56,314 10.4%
Other salaries and wages $32,167 6.0%
Occupancy $7,000 1.3%
Pension plans and employee benefits $5,833 1.1%
Other expenses $4,327 0.8%
Fees: accounting $2,745 0.5%
Fees: legal $556 0.1%
Total$540,416100%

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2010 · Form 990PF · $604,517 spent · pay $17,468 · grants $568,020 · events $0
LineAs describedTotalShare
Contributions, gifts, grants paid $568,020 94.0%
Pay: officers, directors, trustees $17,468 2.9%
Other expenses $10,606 1.8%
Fees: legal $4,073 0.7%
Occupancy $2,500 0.4%
Fees: accounting $1,850 0.3%
Total$604,517100%

View the filing