FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE

Cite this

Plain text FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE. furp.org, nonprofit organization profile, tax years 2011–2024. https://furp.org/org/families-and-friends-supporting-cystic-fibrosis-care-134166186. Retrieved 2026-10-27.

APA furp.org. (n.d.). FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE [Nonprofit organization profile; tax years 2011–2024]. Retrieved October 27, 2026, from https://furp.org/org/families-and-friends-supporting-cystic-fibrosis-care-134166186

MLA “FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE.” furp.org, tax years 2011–2024, https://furp.org/org/families-and-friends-supporting-cystic-fibrosis-care-134166186. Accessed 27 Oct. 2026.

Retrieved 2026-10-27; covers tax years 2011–2024. Data: furp.org, CC BY 4.0.

2024 · Form 990 · revenue $194K · expenses $328K · assets $1.9M

Also known as
FIBROSIS CARE
EIN
13-4166186
Address
55 E END AVE APT 14D, NEW YORK, NY 10028-7937
NTEE code
G80
Exempt type
501(c)(3): charitable, religious, educational, scientific or literary (corporation)
Ruling date
February 2002 (when the IRS recognized its exemption)
IRS status
Exempt (unconditional) (IRS Business Master File) IRS data ↗
Tax-deductible donations
Yes: listed in IRS Publication 78 (public charity) Pub 78 ↗
Foundation status
Public charity supported by the public (170(b)(1)(a)(vi))
Cross-check
ProPublica Nonprofit Explorer

Mission

FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE, INC. IS AN ORGANIZATION COMMITTED TO ENHANCING THE QUALITY OF LIFE OF CYSTIC FIBROSIS PATIENTS WHILE THEY AWAIT A CURE. THE ORGANIZATION ACCOMPLISHES THIS BY SUPPORTING AND ENDEAVORING TO IMPROVE THE SPECIAL PROGRAMS AVAILABLE FOR PATIENTS.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

None of the 24 people listed on these returns reported compensation from the organization. They are listed below.

Officers and directors, no compensation reported

24 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Gwen M Engelhard Dds PRESIDENT2011-2024 0 $0 reported 1
Jill Dalton CHIEF FINANCIAL OFFICER2011-2024 0 $0 reported 1
John Z Jacoby PRESIDENT EMERITUS/SECRETA2011-2024 0 $0 reported 1
Marnee Mccarthy ASSISTANT SECRETARY2012-2024 0 $0 reported 1
Kaitlyn Cheney DIRECTOR2018-2024 0 $0 reported 1
Robert M Hutchinson DIRECTOR2011-2024 0 $0 reported 1
Sean Mccooe DIRECTOR2011-2024 0 $0 reported 1
Judy Nance DIRECTOR2011-2024 0 $0 reported 1
Lumi Castlen DIRECTOR2015-2024 0 $0 reported 1
Melissa Argenio DIRECTOR2015-2024 0 $0 reported 1
David Shepherd DIRECTOR2012-2024 0 $0 reported 1
Thomas G Leahy VICE PRESIDENT2011-2024 0 $0 reported 1
Rose Marie Manger DIRECTOR2018-2024 0 $0 reported 1
Melissa Smith DIRECTOR2012-2024 0 $0 reported 1
Lisa Troyano-Ascolese DIRECTOR2018-2024 0 $0 reported 1
Mary Jean Jacoby (former) DIRECTOR2011-2022 0 $0 reported 1
Hugh Brennan (former) DIRECTOR2011-2019 0 $0 reported 1
Jo-Ann Costantino (former) DIRECTOR2018-2019 0 $0 reported 1
Terrence E Bradley (former) DIRECTOR2011-2017 0 $0 reported 1
Ellen Starr (former) VICE PRESIDENT2011-2014 0 $0 reported 1
Matthew Mccooe (former) DIRECTOR2014 0 $0 reported 1
Ann Wilson (former) PRESIDENT2011-2013 0 $0 reported 1
Aldo Parcesepe (former) DIRECTOR2011-2013 0 $0 reported 1
Helene Parcesepe (former) DIRECTOR2011-2013 0 $0 reported 1

People by year

2024 · 15 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
KAITLYN CHENEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
ROSE MARIE MANGER DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
LISA TROYANO-ASCOLESE DIRECTOR0 $0$0$0 $01
2023 · 15 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
KAITLYN CHENEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
ROSE MARIE MANGER DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
LISA TROYANO-ASCOLESE DIRECTOR0 $0$0$0 $01
2022 · 16 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
KAITLYN CHENEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
ROSE MARIE MANGER DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
LISA TROYANO-ASCOLESE DIRECTOR0 $0$0$0 $01
2021 · 16 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
KAITLYN CHENEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
ROSE MARIE MANGER DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
LISA TROYANO-ASCOLESE DIRECTOR0 $0$0$0 $01
2019 · 18 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
HUGH BRENNAN DIRECTOR0 $0$0$0 $01
KAITLYN CHENEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
JO-ANN COSTANTINO DIRECTOR0 $0$0$0 $01
ROSE MARIE MANGER DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
LISA TROYANO-ASCOLESE DIRECTOR0 $0$0$0 $01
2018 · 18 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETARY0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
HUGH BRENNAN DIRECTOR0 $0$0$0 $01
KAITLYN CHENEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
JO-ANN COSTANTINO DIRECTOR0 $0$0$0 $01
ROSE MARIE MANGER DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
LISA TROYANO-ASCOLESE DIRECTOR0 $0$0$0 $01
2017 · 14 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
HUGH BRENNAN DIRECTOR0 $0$0$0 $01
TERRENCE E BRADLEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
2016 · 14 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
HUGH BRENNAN DIRECTOR0 $0$0$0 $01
TERRENCE E BRADLEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
2015 · 14 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETA0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
HUGH BRENNAN DIRECTOR0 $0$0$0 $01
TERRENCE E BRADLEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
LUMI CASTLEN DIRECTOR0 $0$0$0 $01
MELISSA ARGENIO DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
2014 · 15 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
GWEN M ENGELHARD DDS PRESIDENT0 $0$0$0 $01
ELLEN STARR VICE PRESIDENT0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
JILL DALTON CHIEF FINANCIAL OFFICER0 $0$0$0 $01
HUGH BRENNAN DIRECTOR0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS/SECRETARY0 $0$0$0 $01
TERRENCE E BRADLEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
MATTHEW MCCOOE DIRECTOR0 $0$0$0 $01
MARNEE MCCARTHY ASSISTANT SECRETARY0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
2013 · 17 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ANN WILSON PRESIDENT0 $0$0$0 $01
GWEN M ENGELHARD DDS CHIEF FINANCIAL OFFICER0 $0$0$0 $01
ELLEN STARR VICE PRESIDENT0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
JILL DALTON TREASURER0 $0$0$0 $01
HUGH BRENNAN SECRETARY0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS0 $0$0$0 $01
TERRENCE E BRADLEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
ALDO PARCESEPE DIRECTOR0 $0$0$0 $01
HELENE PARCESEPE DIRECTOR0 $0$0$0 $01
MARNEE MCCARTHY DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
2012 · 17 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ANN WILSON PRESIDENT0 $0$0$0 $01
GWEN M ENGELHARD DDS CHIEF FINANCIAL OFFICER0 $0$0$0 $01
ELLEN STARR VICE PRESIDENT0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
JILL DALTON TREASURER0 $0$0$0 $01
HUGH BRENNAN SECRETARY0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS0 $0$0$0 $01
TERRENCE E BRADLEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
ALDO PARCESEPE DIRECTOR0 $0$0$0 $01
HELENE PARCESEPE DIRECTOR0 $0$0$0 $01
MARNEE MCCARTHY DIRECTOR0 $0$0$0 $01
DAVID SHEPHERD DIRECTOR0 $0$0$0 $01
MELISSA SMITH DIRECTOR0 $0$0$0 $01
2011 · 14 people listed · none paid · 0 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ANN WILSON PRESIDENT0 $0$0$0 $01
GWEN M ENGELHARD DDS CHIEF FINANCIAL OFFICER0 $0$0$0 $01
ELLEN STARR VICE PRESIDENT0 $0$0$0 $01
THOMAS G LEAHY VICE PRESIDENT0 $0$0$0 $01
JILL DALTON TREASURER0 $0$0$0 $01
HUGH BRENNAN SECRETARY0 $0$0$0 $01
JOHN Z JACOBY PRESIDENT EMERITUS0 $0$0$0 $01
TERRENCE E BRADLEY DIRECTOR0 $0$0$0 $01
ROBERT M HUTCHINSON DIRECTOR0 $0$0$0 $01
MARY JEAN JACOBY DIRECTOR0 $0$0$0 $01
SEAN MCCOOE DIRECTOR0 $0$0$0 $01
JUDY NANCE DIRECTOR0 $0$0$0 $01
ALDO PARCESEPE DIRECTOR0 $0$0$0 $01
HELENE PARCESEPE DIRECTOR0 $0$0$0 $01

Highest-paid independent contractors

No independent contractors reported.

State business registration

The same business name in the same state, from the state’s official registry data.

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2024 · 1 grant to organizations · $250K
2023 · 1 grant to organizations · $250K

Listed grants add up to $250,000; the return's “grants paid” expense line says $262,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2022 · 1 grant to organizations · $650K

Listed grants add up to $650,000; the return's “grants paid” expense line says $678,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2019 · 1 grant to organizations · $175K
2018 · 1 grant to organizations · $325K
2017 · 1 grant to organizations · $0

Listed grants add up to $0; the return's “grants paid” expense line says $150,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2016 · 1 grant to organizations · $250K
2015 · 1 grant to organizations · $0

Listed grants add up to $0; the return's “grants paid” expense line says $305,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2014 · 1 grant to organizations · $227K
2013 · 1 grant to organizations · $200K
2012 · 1 grant to organizations · $286K
2011 · 1 grant to organizations · $183K

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2024 · Form 990 period ending 2025-03-31 · view filing · original 990 ↗
$194,150$327,957 $1,947,402$1,947,402 $127,517$0 $000
2023 · Form 990 period ending 2024-03-31 · view filing · original 990 ↗
$497,707$354,917 $2,062,361$2,062,361 $481,008$0 $000
2022 · Form 990 period ending 2023-03-31 · view filing · original 990 ↗
$817,705$755,393 $1,901,654$1,901,654 $779,251$0 $000
2021 · Form 990 period ending 2022-03-31 · view filing · original 990 ↗
$487,864$76,785 $2,005,924$1,978,406 $468,266$0 $000
2019 · Form 990 period ending 2020-03-31 · view filing · original 990 ↗
$396,226$257,294 $1,556,427$1,556,427 $352,397$0 $000
2018 · Form 990 period ending 2019-03-31 · view filing · original 990 ↗
$470,524$391,721 $1,329,478$1,329,478 $429,377$0 $000
2017 · Form 990 period ending 2018-03-31 · view filing · original 990 ↗
$254,816$219,385 $1,211,982$1,211,982 $215,521$0 $000
2016 · Form 990 period ending 2017-03-31 · view filing · original 990 ↗
$283,752$330,971 $1,181,506$1,181,506 $244,753$0 $000
2015 · Form 990 period ending 2016-03-31 · view filing · original 990 ↗
$476,783$371,809 $1,282,672$1,282,672 $444,097$0 $000
2014 · Form 990 period ending 2015-03-31 · view filing · original 990 ↗
$316,603$257,237 $1,143,935$1,143,935 $298,224$0 $000
2013 · Form 990 period ending 2014-03-31 · view filing · original 990 ↗
$695,840$253,867 $1,048,482$1,048,482 $691,510$0 $000
2012 · Form 990 period ending 2013-03-31 · view filing · original 990 ↗
$332,100$341,816 $606,884$606,509 $329,922$0 $000
2011 · Form 990 period ending 2012-03-31 · view filing · original 990 ↗
$229,464$217,980 $621,885$616,225 $227,146$0 $000

Funders of this organization

5 grantors reported grants to this organization, $1,785,688 in all, tax years 2017 to 2023. Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2017-2023 7$1,744,800 2023$200,200
show
DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2019-2021 3$21,450 2021$11,350
show
UD LAKEFIELD FAMILY FDN Private foundation Fuzzy filed as “FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE” 2023 1$10,000 2023$10,000
show
JOE & HELLEN DARION FOUNDATION INC Private foundation Fuzzy filed as “FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE” 2018-2019, 2021 3$8,500 2021$2,500
show
AMAZONSMILE FOUNDATION Private foundation Fuzzy filed as “FAMILIES AND FRIENDS SUPPORTING CYSTIC FIBROSIS CARE” 2020-2023 4$938 2023$167
show

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CYSTIC FIBROSIS ASSOCIATION OF WEST PLAINS INCMOG80 $106,574$98,266 PRESIDENT$0 Same NTEE code G80, revenue within 2x
ALIGN SCOLIOSIS FOUNDATIONCAG80 $201,120$198,744 CEO$0 Same NTEE code G80, revenue within 2x
ROCKY MOUNTAIN HEMOPHILIA AND BLEEDING DISORDERS ASSOCIATIONMTG80 $225,749$243,542 EXECUTIVE DI$92,358 Same NTEE code G80, revenue within 2x
PARKINSONS COMMUNITY LOS ANGELESCAG80 $287,331$225,418 President$0 Same NTEE code G80, revenue within 2x
CADASIL ASSOCIATIONMNG80 $257,055$107,475 TRUSTEE$0 Same NTEE code G80, revenue within 2x
NATIONAL CAPITAL LYME DISEASE ASSOCIATIONVAG80 $115,882$127,919 EXECTIVE DIRECTOR$0 Same NTEE code G80, revenue within 2x
AMERICAN DIABETES RESEARCH AND TREATMENT FUNDCAG80 $239,161$237,873 PRESIDENT$0 Same NTEE code G80, revenue within 2x
CONNECTING TO CURE CROHNS AND COLIT IS INCCAG80 $316,617$124,264 President, Director$0 Same NTEE code G80, revenue within 2x
HEMOPHILIA AND BLEEDING DISORDERSOF ALABAMAALG80 $335,362$346,749 EXECUTIVE DIRECTOR$87,219 Same NTEE code G80, revenue within 2x
AFE FOUNDATIONCAG80 $380,821$286,435 Executive Dir.$91,192 Same NTEE code G80, revenue within 2x
DIABETES SOLUTIONS OK INCOKG80 $197,322$275,762 Executive Dir.$55,087 Same NTEE code G80, revenue within 2x
DANVILLE DELEGANCE FOUNDATION INCCAG80 $247,935$256,267 Chairman$0 Same NTEE code G80, revenue within 2x
MI LUPUS FOUNDATIONMIG80 $126,877$152,390 DIRECTOR$0 Same NTEE code G80, revenue within 2x
CHRONIC CARE INTERNATIONALNEG80 $331,206$282,417 DIRECTOR$0 Same NTEE code G80, revenue within 2x
BE THE HOPE FOUNDATIONCOG80 $127,800$79,702 President$0 Same NTEE code G80, revenue within 2x
NATIONAL HEMOPHILIA FOUNDATIONCAG80 $192,891$193,702 PRESIDENT$0 Same NTEE code G80, revenue within 2x
SMITH-KINGSMORE SYNDROME FOUNDATIONOHG80 $168,029$165,899 Director of Development$36,050 Same NTEE code G80, revenue within 2x
GLOBAL DARE FOUNDATIONMEG80 $290,078$176,491 Vice President$0 Same NTEE code G80, revenue within 2x

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor$1,905,0007 52012–2024 GLOBAL DARE FOUNDATION; SMITH-KINGSMORE SYNDROME FOUNDATION; CADASIL ASSOCIATION; APS TYPE 1 FOUNDATION and 1 more
PAYPAL CHARITABLE GIVING FUND DAF sponsor$1,685,44235 182017–2024 WYLDER NATION FOUNDATION; RAIDEN SCIENCE FOUNDATION; SPECIAL SPIRIT INC; MI LUPUS FOUNDATION and 14 more
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor$1,002,40757 222019–2025 RAIDEN SCIENCE FOUNDATION; END ALEXANDER DISEASE INC; ROCKY MOUNTAIN RETT ASSOCIATION; AFE FOUNDATION and 18 more
FORGOOD INC DAF sponsor$798,64460 212011–2024 SMITH-KINGSMORE SYNDROME FOUNDATION; NATIONAL FOUNDATION OF SWALLOWINGDISORDERS; CONNECTING TO CURE CROHNS AND COLIT IS INC; KENNEDY LADD FOUNDATION and 17 more
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$686,47641 152016–2024 FRIENDS WITH DIABETES INTERNATIONALINC; TEAM DREA FOUNDATION INC; MLD FOUNDATION; CONNECTING TO CURE CROHNS AND COLIT IS INC and 11 more
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$623,02554 212014–2024 MALE BREAST CANCER GLOBAL ALLIANCE; WYLDER NATION FOUNDATION; AMERICAN ASSOCIATION OF ENDOCRINE SURGEONS FOUNDATION; PD ACTIVE and 17 more
COLORADO GIVES FOUNDATION DAF sponsor$392,43716 22012–2024 ROCKY MOUNTAIN RETT ASSOCIATION; PARKINSONS COMMUNITY CENTER
MULCHAND & PARPATI THADMANI FOUNDATION INC Private foundation$355,0002 12023–2024 AFE FOUNDATION
NATIONAL PHILANTHROPIC TR DAF sponsor$211,45011 82015–2024 DANVILLE DELEGANCE FOUNDATION INC; ROCKY MOUNTAIN RETT ASSOCIATION; FRIENDS OF C-15 FOUNDATION INC; CONNECTING TO CURE CROHNS AND COLIT IS INC and 4 more
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor$154,0005 22020–2024 TEAM DREA FOUNDATION INC; JULIAN CHANG FAMILY FOUNDATION FOR DRAVET
VIRGINIA B TOULMIN CHARITABLE FOUNDATION III 20-102080246164 Private foundation$150,0003 12019–2022 JOEL A GINGRAS JR MEMORIAL FOUNDATION INC
COMMUNITY FOUNDATION OF ELKHART COUNTY INC DAF sponsor$150,0003 22021–2024 PROJECT CASK INC; KOOLEN-DE VRIES SYNDROME FOUNDATION
THE OJC FUND DAF sponsor$147,3409 22016–2024 FRIENDS WITH DIABETES INTERNATIONALINC; KUMI URI USA
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC DAF sponsor$135,0007 52020–2024 ALIGN SCOLIOSIS FOUNDATION; JOEL A GINGRAS JR MEMORIAL FOUNDATION INC; AFE FOUNDATION; HERPES CURE ADVOCACY and 1 more
GIVING HOPE WORLDWIDE FOUNDATION Private foundation$104,5006 12016–2023 WYLDER NATION FOUNDATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2024 · Form 990 · $327,957 spent · pay $0 · grants $250,000 · events $77,594
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $250,000$250,000-- 76.2%
Fees: other services $45,750-$45,750- 13.9%
Office expenses $12,925-$12,925- 3.9%
Fees: accounting $8,064-$8,064- 2.5%
Conferences, conventions and meetings $5,097-$5,097- 1.6%
Other (as described)METASOFT SYSTEMS $4,121-$4,121- 1.3%
Insurance $2,000-$2,000- 0.6%
Fundraising events Eventdirect expenses; gross income $72,497$72,497reported apart
Total$327,957100%

View the filing

2023 · Form 990 · $354,917 spent · pay $0 · grants $262,500 · events $98,375
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $262,500$262,500-- 74.0%
Fees: other services $72,000-$72,000- 20.3%
Office expenses $7,630-$7,630- 2.1%
Fees: accounting $7,507-$7,507- 2.1%
Conferences, conventions and meetings $5,280-$5,280- 1.5%
Fundraising events Eventdirect expenses; gross income $93,095$93,095reported apart
Total$354,917100%

View the filing

2022 · Form 990 · $755,393 spent · pay $0 · grants $678,000 · events $30,219
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $678,000$678,000-- 89.8%
Fees: other services $61,250-$61,250- 8.1%
Fees: accounting $7,000-$7,000- 0.9%
Office expenses $6,215-$6,215- 0.8%
Conferences, conventions and meetings $2,928-$2,928- 0.4%
Fundraising events Eventdirect expenses; gross income $27,291$27,291reported apart
Total$755,393100%

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2021 · Form 990 · $76,785 spent · pay $0 · grants $500 · events $82,892
LineAs describedTotalProgramManagementFundraisingShare
Fees: other services $47,250-$47,250- 61.5%
Conferences, conventions and meetings $12,489-$12,489- 16.3%
Fees: accounting $7,000-$7,000- 9.1%
Office expenses $4,882-$4,882- 6.4%
Insurance $4,664-$4,664- 6.1%
Grants to US organizations and governments $500$500-- 0.7%
Fundraising events Eventdirect expenses; gross income $70,403$70,403reported apart
Total$76,785100%

View the filing

2019 · Form 990 · $257,294 spent · pay $0 · grants $175,000 · events $88,762
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $175,000$175,000-- 68.0%
Fees: other services $66,585-$66,585- 25.9%
Fees: accounting $6,250-$6,250- 2.4%
Other (as described)MEETING EXPENSE $3,942-$3,942- 1.5%
Office expenses $3,417-$3,417- 1.3%
Insurance $2,100-$2,100- 0.8%
Fundraising events Eventdirect expenses; gross income $88,762$88,762reported apart
Total$257,294100%

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2018 · Form 990 · $391,721 spent · pay $0 · grants $325,500 · events $87,184
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $325,500$325,500-- 83.1%
Fees: other services $53,730-$53,730- 13.7%
Fees: accounting $6,250-$6,250- 1.6%
Office expenses $4,141-$4,141- 1.1%
Insurance $2,100-$2,100- 0.5%
Fundraising events Eventdirect expenses; gross income $87,184$87,184reported apart
Total$391,721100%

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2017 · Form 990 · $219,385 spent · pay $0 · grants $150,000 · events $83,783
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $150,000$150,000-- 68.4%
Fees: other services $57,730-$57,730- 26.3%
Fees: accounting $6,250-$6,250- 2.8%
Office expenses $3,080-$3,080- 1.4%
Insurance $2,100-$2,100- 1.0%
Fees: legal $225-$225- 0.1%
Fundraising events Eventdirect expenses; gross income $83,783$83,783reported apart
Total$219,385100%

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2016 · Form 990 · $330,971 spent · pay $0 · grants $250,000 · events $96,882
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $250,000$250,000-- 75.5%
Fees: other services $60,085-$60,085- 18.2%
Other (as described)MEDICAL EQUIPMENT $7,163$7,163-- 2.2%
Fees: accounting $6,250-$6,250- 1.9%
Other (as described)WEB PAGE MAINTENANCE $2,469-$2,469- 0.7%
Office expenses $2,119-$2,119- 0.6%
Insurance $2,100-$2,100- 0.6%
Depreciation and depletion $560-$560- 0.2%
Fees: legal $225-$225- 0.1%
Fundraising events Eventdirect expenses; gross income $96,882$96,882reported apart
Total$330,971100%

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2015 · Form 990 · $371,809 spent · pay $0 · grants $305,000 · events $87,625
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $305,000$305,000-- 82.0%
Fees: other services $49,390-$49,390- 13.3%
Office expenses $6,616-$6,616- 1.8%
Fees: accounting $6,250-$6,250- 1.7%
Insurance $2,100-$2,100- 0.6%
Other (as described)WEB PAGE MAINTENANCE $1,525-$1,525- 0.4%
Depreciation and depletion $560-$560- 0.2%
Other (as described)TRANSPORTATION $368-$368- 0.1%
Fundraising events Eventdirect expenses; gross income $87,625$87,625reported apart
Total$371,809100%

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2014 · Form 990 · $257,237 spent · pay $0 · grants $227,064 · events $75,758
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $227,064$227,064-- 88.3%
Fees: other services $18,770-$18,770- 7.3%
Fees: accounting $6,250-$6,250- 2.4%
Insurance $2,100-$2,100- 0.8%
Office expenses $1,968-$1,968- 0.8%
Depreciation and depletion $560-$560- 0.2%
Travel $300-$300- 0.1%
Fees: legal $225-$225- 0.1%
Fundraising events Eventdirect expenses; gross income $75,758$75,758reported apart
Total$257,237100%

View the filing

2013 · Form 990 · $253,867 spent · pay $0 · grants $200,000 · events $96,216
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $200,000$200,000-- 78.8%
Fees: other services $40,921-$40,921- 16.1%
Fees: accounting $6,250-$6,250- 2.5%
Office expenses $2,480-$2,480- 1.0%
Insurance $1,906-$1,906- 0.8%
Advertising and promotion $1,750-$1,750- 0.7%
Depreciation and depletion $560-$560- 0.2%
Fundraising events Eventdirect expenses; gross income $96,216$96,216reported apart
Total$253,867100%

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2012 · Form 990 · $341,816 spent · pay $0 · grants $286,500 · events $60,822
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $286,500$286,500-- 83.8%
Fees: other services $24,750-$24,750- 7.2%
Conferences, conventions and meetings $16,477$16,477-- 4.8%
Fees: accounting $6,250-$6,250- 1.8%
Other (as described)EDUCATIONAL MATERIALS $2,376$2,376-- 0.7%
Insurance $1,765-$1,765- 0.5%
Office expenses $1,703-$1,703- 0.5%
Travel $835-$835- 0.2%
Fees: legal $600-$600- 0.2%
Depreciation and depletion $560-$560- 0.2%
Fundraising events Eventdirect expenses; gross income -$44,345reported apart
Total$341,816100%

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2011 · Form 990 · $217,980 spent · pay $0 · grants $183,500 · events $77,275
LineAs describedTotalProgramManagementFundraisingShare
Grants to US organizations and governments $183,500$183,500-- 84.2%
Fees: other services $22,700-$22,700- 10.4%
Fees: accounting $6,250-$6,250- 2.9%
Other (as described)PRINTING (NEWSLETTER) $1,710-$1,710- 0.8%
Insurance $1,650-$1,650- 0.8%
Office expenses $1,570-$1,570- 0.7%
Fees: legal $600-$600- 0.3%
Fundraising events Eventdirect expenses; gross income -$77,275reported apart
Total$217,980100%

View the filing

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