FURP.ORG / PUBLIC DATA EXPLORER

LEWY BODY DEMENTIA ASSOCIATION INC

Cite this

Plain text LEWY BODY DEMENTIA ASSOCIATION INC. furp.org, nonprofit organization profile, tax years 2020–2025. https://furp.org/org/lewy-body-dementia-association-inc-050577683. Retrieved 2026-10-21.

APA furp.org. (n.d.). LEWY BODY DEMENTIA ASSOCIATION INC [Nonprofit organization profile; tax years 2020–2025]. Retrieved October 21, 2026, from https://furp.org/org/lewy-body-dementia-association-inc-050577683

MLA “LEWY BODY DEMENTIA ASSOCIATION INC.” furp.org, tax years 2020–2025, https://furp.org/org/lewy-body-dementia-association-inc-050577683. Accessed 21 Oct. 2026.

Retrieved 2026-10-21; covers tax years 2020–2025. Data: furp.org, CC BY 4.0.

2025 · Form 990 · revenue $5.1M · expenses $4.4M · assets $10.8M

EIN
05-0577683
Address
912 KILLIAN HILL RD SW STE 105, LILBURN, GA 30047-8976
Website
www.lbda.org
NTEE code
G96
Subsection
501(c)(3)
Ruling year
2004
Cross-check
ProPublica Nonprofit Explorer

Mission

THROUGH OUTREACH, EDUCATION, AND RESEARCH,WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS.

Each tax year counts once: when a return was amended, only the latest return for that period is used below (superseded returns stay listed, greyed, under Finances).

People paid by the organization

9 people paid across every filing: current people first, then by total pay from this organization. Organizations counts every nonprofit each person appears on.

NameLatest titleYearsLatest year payTotal pay from hereOrganizations
Allison Feldman Executive Director2022-2025 $238,478$807,820 1
Angela Taylor Vice President of Strategic Partnerships2022-2025 $122,052$578,315 1
Keith Fargo Director of Scientific Initiatives2023-2025 $196,706$563,206 1
Julia Wood Director of Professional & Community Education2022-2025 $124,080$440,507 1
Sudhir Sivakumaran Chief Scientific Officer2025 $143,462$143,462 1
Lena Fung Director of Development2025 $116,700$116,700 1
Ian Richard (former) VICE PRESIDENT OF DEVELOPMENT2022-2024 $142,566$393,427 1
Todd Graham (former) EXECUTIVE DIRECTOR2020-2022 $108,417$370,811 1
Mark Wall (former) Executive Director2020-2021 $132,394$262,394 1

Officers and directors, no compensation reported

19 people listed on the returns with $0 (or no amount) in every compensation column: current people first. Hours are as filed on the latest return each person appears on.

NameLatest titleYearsHrs/wk (latest)CompensationOrganizations
Sarah Sung PRESIDENT2022-2025 5 $0 reported 1
Carla Abdelnour VICE PRESIDENT2022-2025 5 $0 reported 1
Anitha Rao Md MEMBER2022-2025 2 $0 reported 1
Rodney Witcher MEMBER2022-2025 2 $0 reported 1
Angela Lunde MEMBER2023-2025 2 $0 reported 1
Jeffrey Jacob TREASURER2023-2025 5 $0 reported 1
Genell Greenberg SECRETARY2024-2025 5 $0 reported 1
Jeffrey Bodington MEMBER2025 2 $0 reported 1
Jennifer Goldman MEMBER2025 2 $0 reported 1
Mary-Kay Boler MEMBER2025 2 $0 reported 1
Marshall Cannon (former) VICE PRESIDENT2020-2024 1 $0 reported 1
Roger Bean (former) TREASURER2020-2024 1 $0 reported 1
Shannon Mccarty-Caplan (former) PRESIDENT2020-2023 2 $0 reported 1
Andy Matteis (former) CO-VICE PRESIDENT2020-2023 2 $0 reported 1
Christina M Christie (former) PRESIDENT2020-2022 5 $0 reported 1
James Galvin Md (former) DIRECTOR2020-2022 1 $0 reported 1
Anglea Lunde (former) Director2021 8 $0 reported 1
Tony Schueth (former) Director2020-2021 8 $0 reported 1
Emily N Pualman (former) Director2020 8 $0 reported 1

People by year

2025 · 16 people listed · 6 paid, $941K · 21 employees · 200 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ALLISON FELDMAN Executive Director40 $229,278$0$9,200 $238,4781
KEITH FARGO Director of Scientific Initiatives40 $189,140$0$7,566 $196,7061
SUDHIR SIVAKUMARAN Chief Scientific Officer40 $140,385$0$3,077 $143,4621
JULIA WOOD Director of Professional & Community Education40 $122,566$0$1,514 $124,0801
ANGELA TAYLOR Vice President of Strategic Partnerships40 $118,752$0$3,300 $122,0521
LENA FUNG Director of Development40 $113,500$0$3,200 $116,7001
CARLA ABDELNOUR VICE PRESIDENT5 $0$0$0 $01
GENELL GREENBERG SECRETARY5 $0$0$0 $01
JEFFREY JACOB TREASURER5 $0$0$0 $01
SARAH SUNG PRESIDENT5 $0$0$0 $01
ANGELA LUNDE MEMBER2 $0$0$0 $01
ANITHA RAO MD MEMBER2 $0$0$0 $01
JEFFREY BODINGTON MEMBER2 $0$0$0 $01
JENNIFER GOLDMAN MEMBER2 $0$0$0 $01
MARY-KAY BOLER MEMBER2 $0$0$0 $01
RODNEY WITCHER MEMBER2 $0$0$0 $01
2024 · 14 people listed · 5 paid, $842K · 22 employees · 9 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ALLISON FELDMAN EXECUTIVE DIRECTOR40 $229,285$0$9,023 $238,3081
KEITH FARGO DIRECTOR OF SCIENTIFIC INITIATIVES40 $181,919$0$7,138 $189,0571
ANGELA TAYLOR VICE PRESIDENT OF STRATEGIC INITIATIVES40 $155,931$0$6,118 $162,0491
IAN RICHARD VICE PRESIDENT OF DEVELOPMENT40 $137,931$0$4,635 $142,5661
JULIA WOOD DIRECTOR OF PROFESSIONAL AND COMMUNITY EDUCATION40 $110,030$0$0 $110,0301
SARAH SUNG PRESIDENT1 $0$0$0 $01
MARSHALL CANNON VICE PRESIDENT1 $0$0$0 $01
CARLA ABDELNOUR SECRETARY1 $0$0$0 $01
ROGER BEAN TREASURER1 $0$0$0 $01
ANITHA RAO MD MEMBER1 $0$0$0 $01
RODNEY WITCHER MEMBER1 $0$0$0 $01
ANGELA LUNDE MEMBER1 $0$0$0 $01
JEFFREY JACOB MEMBER1 $0$0$0 $01
GENELL GREENBERG MEMBER1 $0$0$0 $01
2023 · 15 people listed · 5 paid, $792K · 23 employees · 9 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ALLISON FELDMAN EXECUTIVE DIRECTOR40 $217,028$0$6,632 $223,6601
KEITH FARGO DIRECTOR OF SCIENTIFIC INITIATIVES40 $173,405$0$4,038 $177,4431
ANGELA TAYLOR VICE PRESIDENT OF STRATEGIC INITIATIVES40 $149,328$0$4,548 $153,8761
IAN RICHARD VICE PRESIDENT OF DEVELOPMENT40 $128,310$0$3,538 $131,8481
JULIA WOOD DIRECTOR OF PROFESSIONAL & COMMUNITY EDUCATION40 $105,429$0$0 $105,4291
SHANNON MCCARTY-CAPLAN PRESIDENT2 $0$0$0 $01
MARSHALL CANNON CO-VICE PRESIDENT2 $0$0$0 $01
ANDY MATTEIS CO-VICE PRESIDENT2 $0$0$0 $01
SARAH SUNG SECRETARY2 $0$0$0 $01
ROGER BEAN TREASURER2 $0$0$0 $01
ANITHA RAO MD MEMBER2 $0$0$0 $01
RODNEY WITCHER MEMBER2 $0$0$0 $01
ANGELA LUNDE MEMBER2 $0$0$0 $01
CARLA ABDELNOUR MEMBER2 $0$0$0 $01
JEFFREY JACOB MEMBER2 $0$0$0 $01
2022 · 15 people listed · 5 paid, $576K · 22 employees · 10 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
ANGELA TAYLOR VICE PRESIDENT OF STRATEGIC INITATIVES40 $140,338$0$0 $140,3381
IAN RICHARD VICE PRESIDENT OF DEVELOPMENT40 $119,013$0$0 $119,0131
TODD GRAHAM EXECUTIVE DIRECTOR40 $108,417$0$0 $108,4171
ALLISON FELDMAN EXECUTIVE DIRECTOR40 $107,374$0$0 $107,3741
JULIA WOOD DIRECTOR OF PROFESSIONAL AND COMMUNITY EDUCATION40 $100,968$0$0 $100,9681
CHRISTINA M CHRISTIE PRESIDENT5 $0$0$0 $01
SHANNON MCCARTY-CAPLAN VICE PRESIDENT3 $0$0$0 $01
ANDY MATTEIS TREASURER3 $0$0$0 $01
MARSHALL CANNON SECRETARY3 $0$0$0 $01
CARLA ABDELNOUR MD DIRECTOR1 $0$0$0 $01
JAMES GALVIN MD DIRECTOR1 $0$0$0 $01
RODNEY WITCHER DIRECTOR1 $0$0$0 $01
ROGER BEAN DIRECTOR1 $0$0$0 $01
SARAH SUNG DIRECTOR1 $0$0$0 $01
ANITHA RAO MD DIRECTOR1 $0$0$0 $01
2021 · 10 people listed · 2 paid, $265K · 19 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Todd Graham Executive Director40 $132,394$0$0 $132,3941
Mark Wall Executive Director40 $132,394$0$0 $132,3941
Shannon McCarty-Caplan Vice President8 $0$0$0 $01
Andy Matteis Treasurer8 $0$0$0 $01
Anglea Lunde Director8 $0$0$0 $01
James Galvin MD Director8 $0$0$0 $01
Marshall Cannon Secretary8 $0$0$0 $01
Christina M Christie President8 $0$0$0 $01
Tony Schueth Director8 $0$0$0 $01
Roger Bean Director8 $0$0$0 $01
2020 · 10 people listed · 2 paid, $260K · 16 employees · 0 volunteers
NameTitleHrs/wkFrom orgFrom relatedOtherTotalOrgs
Todd Graham Executive Director40 $130,000$0$0 $130,0001
Mark Wall Executive Director40 $130,000$0$0 $130,0001
Shannon McCarty-Caplan Vice President8 $0$0$0 $01
Andy Matteis Treasurer8 $0$0$0 $01
Emily N Pualman Director8 $0$0$0 $01
James Galvin MD Director8 $0$0$0 $01
Marshall Cannon Secretary8 $0$0$0 $01
Christina M Christie President8 $0$0$0 $01
Tony Schueth Director8 $0$0$0 $01
Roger Bean Director8 $0$0$0 $01

Highest-paid independent contractors

2025 · 1 contractor · $378K
NameLocationServicePaid
HARRIS BAIO & MCCULLOUGH MARKETING COMMUNICATIONSPHILADELPHIA, PAMARKETING$378,182
2024 · 1 contractor · $180K
NameLocationServicePaid
HARRIS BAIO & MCCULLOUGH MARKETING COMPHILADELPHIA, PAMARKETING$180,032

Federal grants and contracts

Awards from USAspending.gov to a recipient with this organization's name and zip code. Obligations by federal fiscal year (October to September); each award links to its page on usaspending.gov.

Fiscal yearGrants and other assistanceContractsAwards
2020$0$01
Largest awards · 0 shown
YearAgencyKindProgramDescriptionObligated

Who the money went to

Grants this organization reported paying: Schedule I Part II of the Form 990, or the grants-paid list on the 990-PF. Open a year for every recipient. Recipients link to their own page when the grant names an EIN we have (990-PF grants list no EIN, so those link only on an exact, unique name and state). Grants to individuals are counted; their names are not shown.

2025 · 28 grants to organizations · $562K
2024 · 25 grants to organizations · $388K
2023 · 22 grants to organizations · $300K

Listed grants add up to $300,000; the return's “grants paid” expense line says $323,296. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2022 · 22 grants to organizations · $208K

Listed grants add up to $207,500; the return's “grants paid” expense line says $223,500. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

2020 · 4 grants to organizations · $72K

Listed grants add up to $72,500; the return's “grants paid” expense line says $140,000. Returns can differ here (grants paid vs. accrued, items listed elsewhere); check the filing.

Negative amounts are returned or refunded grants; they are listed last and left out of the totals of grants paid.

Who gave

Contributor names are not public for this form type.

Public charities filing Form 990 or 990-EZ report large donors on Schedule B, but the IRS withholds their names and addresses from public copies. Private foundations (990-PF) are different: their contributors are public.

Finances

Newest first. Each filing: its name on one row, its figures on the row beneath. Greyed filings are superseded by a later return for the same period and are left out everywhere else on this page.

RevenueExpensesAssetsNet assetsContributionsProgram revenueOfficer payEmployeesVolunteers
2025 · Form 990 period ending 2025-12-31 · view filing · original 990 ↗
$5,102,891$4,440,540 $10,756,254$10,294,290 $4,332,106$476,719 $238,47921200
2024 · Form 990 period ending 2024-12-31 · view filing · original 990 ↗
$4,977,169$4,040,700 $9,612,448$9,282,161 $4,587,955$264,620 $238,308229
2023 · Form 990 period ending 2023-12-31 · view filing · original 990 ↗
$3,641,562$3,055,794 $8,179,993$7,957,242 $2,932,041$447,476 $223,660239
2022 · Form 990 period ending 2022-12-31 · view filing · original 990 ↗
$4,183,987$2,648,788 $7,321,282$7,099,122 $4,151,470$0 $215,7912210
2021 · Form 990 period ending 2021-12-31 · view filing · original 990 ↗
$2,872,342$2,382,784 $6,013,384$5,939,512 $2,871,842$0 $264,788190
2020 · Form 990 period ending 2020-12-31 · view filing · original 990 ↗
$3,748,830$2,037,647 $5,554,767$5,449,954 $3,748,271$0 $260,000160

Funders of this organization

93 grantors reported grants to this organization, $4,242,729 in all, tax years 2010 to 2025; the 25 largest shown (all 93). Exact: the grantor wrote this organization's EIN. Fuzzy: the grantor wrote only a name (foundations' 990-PF has no EIN field), matched to the same or a near-identical name in the same state; the name as filed is shown. From the latest return for each grantor and year, so amended returns aren't counted twice. CSV

GrantorTypeMatchYears givenGrantsTotalLatest yearLatest year's amountGrants
FIDELITY INVESTMENTS CHARITABLE GIFT FUND DAF sponsor Exact 2016-2024 9$755,351 2024$126,727
show
FIDELITY NON-PROFIT MANAGEMENT FOUNDATION Public charity Exact 2024 1$500,000 2024$500,000
show
THE COMMUNITY FOUNDATION OF UTAH DAF sponsor Exact 2024 1$500,000 2024$500,000
show
DONOR ADVISED CHARITABLE GIVING DAF sponsor Exact 2015-2016, 2018-2024 9$271,766 2024$60,704
show
WILLIAM GERALD WILLETT CHARITABLE FOUNDATION Private foundation Fuzzy filed as “LEWY BODY DEMENTIA ASSOCIATION INC” 2020-2024 5$250,075 2024$100,000
show
AMERICAN ONLINE GIVING FOUNDATION INC DAF sponsor Exact 2019-2024 6$243,161 2024$46,126
show
AARP Public charity Exact 2020, 2023 2$195,000 2023$95,000
show
GLOBAL IMPACT DAF sponsor Exact 2017-2021 5$186,711 2021$39,749
show
NATIONAL PHILANTHROPIC TR DAF sponsor Exact 2018-2024 7$166,750 2024$54,250
show
PAYPAL CHARITABLE GIVING FUND DAF sponsor Exact 2019, 2021-2024 5$145,039 2024$95,272
show
FRONTSTREAM GLOBAL FUND DAF sponsor Exact 2021-2024 4$118,287 2024$47,396
show
VANGUARD CHARITABLE ENDOWMENT PROGRAM DAF sponsor Exact 2020-2024 5$91,500 2024$38,000
show
MIGHTYCAUSE CHARITABLE FOUNDATION DAF sponsor Exact 2019-2023 5$76,207 2023$12,899
show
PLEDGELING FOUNDATION DAF sponsor Exact 2019, 2021-2024 5$74,361 2024$17,416
show
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC DAF sponsor Exact 2019-2021, 2023 4$70,000 2023$10,000
show
JEWISH FEDERATION OF PALM BEACH COUNTY INC DAF sponsor Exact 2012-2020, 2023 10$55,000 2023$10,000
show
MARIA FOUNDATION 60982-8 P2-PTPP-10-2 Private foundation Fuzzy filed as “LEWY BODY DEMENTIA ASSOCIATION INC” 2019-2025 7$40,814 2025$4,000
show
CHARITIES AID FOUNDATION AMERICA DAF sponsor Exact 2021-2024 4$37,930 2024$11,504
show
PHILADELPHIA FOUNDATION DAF sponsor Exact 2022-2024 3$35,500 2024$6,000
show
AMERICAN ENDOWMENT FOUNDATION DAF sponsor Exact 2016, 2019, 2024 3$32,986 2024$18,250
show
SILICON VALLEY COMMUNITY FOUNDATION DAF sponsor Exact 2019, 2024 2$31,500 2024$25,000
show
DEMENTIA SOCIETY INC Public charity Exact 2021, 2023, 2025 3$30,000 2025$10,000
show
COLOR STREET FOUNDATION INC Public charity Exact 2022 1$30,000 2022$30,000
show
THE BLACKBAUD GIVING FUND DAF sponsor Exact 2022-2023 2$26,620 2023$12,511
show
RAINWATER CHARITABLE FOUNDATION Private foundation Fuzzy filed as “LEWY BODY DEMENTIA ASSOCIATION INC” 2020 1$25,000 2020$25,000
show

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OrganizationStateNTEELatest revenueLatest expensesTop-paid titleTop payWhy similar
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INTERNATIONAL SOCIETY FOR NEUROCHEMISTRY INCCAG96 $3,284,268$1,859,115 COMPANY SECRTY$0 Same NTEE code G96, revenue within 2x
PEDIATRIC DEVELOPMENT CENTER INCMAG96 $2,561,884$2,426,705 EXECUTIVE DIRECTOR$69,067 Same NTEE code G96, revenue within 2x
CHILD NEUROLOGY SOCIETYMNG96 $3,699,895$3,735,182 EXECUTIVE DIRECTOR$321,734 Same NTEE code G96, revenue within 2x
NEUROCRITICAL CARE SOCIETY INCILG96 $4,791,580$4,049,836 SECRETARY$0 Same NTEE code G96, revenue within 2x
AMERICAN SOCIETY OF PAIN AND NEUROSCIENCEWVG96 $3,658,862$1,948,983 CHAIRMAN$80,000 Same NTEE code G96, revenue within 2x
AMERICAN COLLEGE OF NEUROPSYCHOPHARMACOLOGY INCTNG96 $4,049,199$3,574,082 EXECUTIVE DIRECTOR$576,464 Same NTEE code G96, revenue within 2x
INTERNATIONAL NEUROTOXIN ASSOCIATIONNYG96 $1,675,419$1,565,003 PAST PRESIDENT$0 Same NTEE code G96, revenue within 5x
AMERICAN ASSOCIATION OF NEUROPATCOG96 $1,418,287$1,166,785 EDITOR-IN-CH$40,000 Same NTEE code G96, revenue within 5x
THE INTERNATIONAL PARKINSON AND MOVEMENT DISORDER SOCIETY INCWIG96 $13,590,824$14,486,863 PRESIDENT$106,100 Same NTEE code G96, revenue within 5x
CHIARI & SYRINGOMYELIA FOUNDATIONNYG96 $1,153,190$917,419 EXECUTIVE DI$175,777 Same NTEE code G96, revenue within 5x
NORTH AMERICAN NEURO-OPTHALMOLOGY SOCIETYMNG96 $2,233,093$1,612,122 PRESIDENT$0 Same NTEE code G96, revenue within 5x
CONGRESS OF NEUROLOGICAL SURGEONS INC UNIVERSITY OF MICHIGANILG96 $17,989,949$16,282,074 CHIEF EXECUTIVE OFFICER$804,743 Same NTEE code G96, revenue within 5x
COMBINEDBRAIN INCTNG96 $1,195,476$1,298,565 EXECUTIVE DIRECTOR$66,667 Same NTEE code G96, revenue within 5x
BLUE BIRD CIRCLETXG96 $2,188,573$2,064,609 President$0 Same NTEE code G96, revenue within 5x
SOCIETY OF NUCLEAR MEDICINE AND MOLECULAR IMAGINGVAG96 $16,661,336$16,500,278 CHIEF EXECUTIVE OFFICER$446,835 Same NTEE code G96, revenue within 5x
GUSSIE LEE FOUNDATIONCAG96 $554,636$163,353 PRESIDENT$391,283 Same NTEE code G96, revenue within 10x
NEURO ASSISTANCE FOUNDATIONTXG96 $923,913$943,274 EXECUTIVE DIRECTOR$146,583 Same NTEE code G96, revenue within 10x
AUSTISM CENTER OF NORTH MISSISSIPPIMSG96 $980,735$1,054,947 EXECUTIVE DI$114,482 Same NTEE code G96, revenue within 10x
FIELD NEUROSCIENCE INSTITUTEMIG96 $679,067$213,724 DIRECTOR (PART YEAR)$2,106,820 Same NTEE code G96, revenue within 10x
AMERICAN SOCIETY OF NEUROPHYSIOLOGICAL MONITORINGILG96 $511,112$494,464 DIRECTOR$0 Same NTEE code G96, revenue within 10x
NEXTSTEP KANSAS CITYKSG96 $572,642$470,999 EXECUTIVE DIRECTOR$55,993 Same NTEE code G96, revenue within 10x
BROWN NEUROLOGYRIG96 $45,189,004$45,683,218 PRESIDENT & CHIEF PHYSICIAN$721,475 Same NTEE code G96, revenue within 10x
NEUROSURGICAL SOCIETY OF AMERICAWAG96 $867,962$588,616 PRESIDENT-EL$0 Same NTEE code G96, revenue within 10x
ATLANTA NEUROSCIENCE FOUNDATION INCGAG96 $216,350$474,196 CEO - ANI$362,955 Same NTEE code G96, revenue differs more than 10x, same state

Who funds organizations like this

Grantors that funded the 100 most similar organizations. Ranked by total given to them. Foundations (990-PF) and donor-advised fund sponsors only. Same matching as Funders above (by EIN, or by name for foundations).

GrantorTypeTotal givenGrantsOrganizations fundedYearsWhich ones
FIDELITY INVESTMENTS CHARITABLE GIFT FUND funds this one DAF sponsor$5,362,57990 302016–2024 NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC; TOURETTE ASSOCIATION OF AMERICA INC; CONCUSSION LEGACY FOUNDATION INC; CHIARI & SYRINGOMYELIA FOUNDATION and 26 more
JEWISH COMMUNITY FOUNDATION OF SAN DIEGO DAF sponsor$3,457,8183 12022–2024 MUCOLIPIDOSIS TYPE IV FOUNDATION INC
JEWISH FEDERATION OF GREATER ATLANTA INC DAF sponsor$3,053,99815 22011–2024 MUCOLIPIDOSIS TYPE IV FOUNDATION INC; JSCREENORG INC
DONOR ADVISED CHARITABLE GIVING funds this one DAF sponsor$2,625,08368 162014–2024 CHARLOTTE NEUROSCIENCE ASSOCIATION INC; TOURETTE ASSOCIATION OF AMERICA INC; PULMONARY HYPERTENSION ASSOCIATION INC; NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC and 12 more
ANITA BHATIA FOUNDATION FOR TOMORROW INC Private foundation$2,604,7509 12021–2024 NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC
THE CHICAGO COMMUNITY TRUST DAF sponsor$2,418,8549 32018–2023 MARGARET HACKETT FAMILY CENTER NFP; CONCUSSION LEGACY FOUNDATION INC; VICTOR RIVERA FOUNDATION
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC funds this one DAF sponsor$1,627,26426 62014–2024 TOURETTE ASSOCIATION OF AMERICA INC; NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC; CONCUSSION LEGACY FOUNDATION INC; MUCOLIPIDOSIS TYPE IV FOUNDATION INC and 2 more
NATIONAL PHILANTHROPIC TR funds this one DAF sponsor$1,364,37027 72014–2024 SOCIETY OF NUCLEAR MEDICINE AND MOLECULAR IMAGING; NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC; TOURETTE ASSOCIATION OF AMERICA INC; BRAIN INJURY ASSOCIATION OF COLORADO INC and 3 more
AMERICAN ONLINE GIVING FOUNDATION INC funds this one DAF sponsor$1,281,53151 182019–2024 NATIONAL TUBEROUS SCLEROSIS ASSOCIATION INC; NEW DISABLED SOUTH INC; CONCUSSION LEGACY FOUNDATION INC; NOT IMPOSSIBLE FOUNDATION INC and 14 more
FORGOOD INC funds this one DAF sponsor$1,100,20531 112014–2024 PULMONARY HYPERTENSION ASSOCIATION INC; SICKLE CELL FOUNDATION OF GEORGIA INC; BLUE BIRD CIRCLE; NEUROCRITICAL CARE SOCIETY INC and 7 more
GREATER MILWAUKEE FOUNDATION INC DAF sponsor$960,2395 12020–2024 VISION FORWARD ASSOCIATION INCORPORATED
ROBERT WOOD JOHNSON FOUNDATION Private foundation$845,0554 22024–2024 NEW DISABLED SOUTH INC; ACADEMIC PEDIATRIC ASSOCIATION
GS DONOR ADVISED PHILANTHROPY FUND FOR WEALTH MANAGEMENT INC DAF sponsor$758,50014 32017–2024 TOURETTE ASSOCIATION OF AMERICA INC; CONCUSSION LEGACY FOUNDATION INC; INTERNATIONAL SOCIETY FOR FRONTOTEMPORAL DEMENTIAS INC
SILICON VALLEY COMMUNITY FOUNDATION funds this one DAF sponsor$752,5008 52017–2024 COMBINEDBRAIN INC; CONGRESS OF NEUROLOGICAL SURGEONS INC UNIVERSITY OF MICHIGAN; TOURETTE ASSOCIATION OF AMERICA INC; PULMONARY HYPERTENSION ASSOCIATION INC and 1 more
JEWISH COMMUNITY FEDERATION OF S F MARIN PENINSULA & SONOMA COUNTIES funds this one DAF sponsor$750,20010 22009–2022 TOURETTE ASSOCIATION OF AMERICA INC; KURT PETER FOUNDATION

The full list · all similar organizations

Where the money went

Every expense line on each return, biggest first: Form 990 Part IX (with its program, management and fundraising columns), 990-EZ Part I, or 990-PF Part I. Event marks lines the organization itself describes as events. “Events” in each summary adds those lines, conferences and meetings, and the direct costs of fundraising events. Unusual is not the same as improper. Many of these patterns have ordinary explanations. Check the filing.

2025 · Form 990 · $4,440,540 spent · pay $2,455,511 · grants $564,522 · events $171,058
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,795,937$1,605,507$110,495$79,935 40.4%
Grants to US organizations and governments $564,522$564,522-- 12.7%
Fees: other services $424,556$337,460$83,184$3,912 9.6%
Pay: officers, directors, trustees, key employees $238,479$166,934$47,697$23,848 5.4%
Other employee benefits $226,242$197,285$17,466$11,491 5.1%
Information technology $181,411$63,792$38,691$78,928 4.1%
Advertising and promotion $179,968$179,968-- 4.1%
Conferences, conventions and meetings $171,058$152,110$18,948- 3.9%
Payroll taxes $152,743$133,193$11,792$7,758 3.4%
Travel $143,181$127,321$15,860- 3.2%
Office expenses $129,685$87,093$34,614$7,978 2.9%
Insurance $76,981-$62,562$14,419 1.7%
Fees: investment management $48,696-$48,696- 1.1%
Pension plan contributions $42,110$38,303$2,121$1,686 0.9%
Occupancy $29,378-$29,378- 0.7%
Fees: accounting $28,400-$28,400- 0.6%
Fees: professional fundraisers $4,009--$4,009 0.1%
Fees: legal $3,184-$3,184- 0.1%
Total$4,440,540100%

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2024 · Form 990 · $4,040,700 spent · pay $2,117,962 · grants $389,500 · events $217,869
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,484,646$1,330,464$67,827$86,355 36.7%
Fees: other services $521,460$433,493$87,967- 12.9%
Grants to US organizations and governments $389,500$389,500-- 9.6%
Pay: officers, directors, trustees, key employees $238,308$212,094$16,682$9,532 5.9%
Other employee benefits $220,389$197,320$10,786$12,283 5.5%
Conferences, conventions and meetings $217,869$204,224$11,505$2,140 5.4%
Information technology $176,272$63,073$57,149$56,050 4.4%
Travel $148,099$138,823$7,821$1,455 3.7%
Payroll taxes $135,600$121,406$6,636$7,558 3.4%
Fees: legal $107,729-$107,729- 2.7%
Advertising and promotion $90,689$90,689-- 2.2%
Office expenses $74,456$159$42,162$32,135 1.8%
Fees: professional fundraisers $54,596--$54,596 1.4%
Occupancy $49,801$25$49,776- 1.2%
Fees: investment management $41,936-$41,936- 1.0%
Pension plan contributions $39,019$34,983$1,719$2,317 1.0%
Fees: accounting $35,853-$35,853- 0.9%
Insurance $14,478$10$10,601$3,867 0.4%
Total$4,040,700100%

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2023 · Form 990 · $3,055,794 spent · pay $1,867,164 · grants $323,296 · events $31,090
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,328,145$1,182,489$75,945$69,711 43.5%
Grants to US organizations and governments $323,296$323,296-- 10.6%
Pay: officers, directors, trustees, key employees $223,660$199,131$12,789$11,740 7.3%
Fees: other services $215,765$166,682$40,451$8,632 7.1%
Other employee benefits $182,174$162,195$10,417$9,562 6.0%
Travel $161,040$154,958-$6,082 5.3%
Information technology $151,232$67,978$49,825$33,429 4.9%
Payroll taxes $112,883$100,503$6,455$5,925 3.7%
Office expenses $103,893$23,918$43,787$36,188 3.4%
Occupancy $51,102-$51,102- 1.7%
Fees: investment management $42,175-$42,175- 1.4%
Advertising and promotion $41,961$35,080-$6,881 1.4%
Conferences, conventions and meetings $31,090$29,916-$1,174 1.0%
Fees: accounting $23,875-$23,875- 0.8%
Fees: legal $21,456-$21,456- 0.7%
Pension plan contributions $20,302$18,075$1,161$1,066 0.7%
Insurance $17,995$139$12,145$5,711 0.6%
Fees: professional fundraisers $3,750--$3,750 0.1%
Total$3,055,794100%

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2022 · Form 990 · $2,648,788 spent · pay $1,539,711 · grants $223,500 · events $30,888
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $1,076,785$601,389$382,820$92,576 40.7%
Information technology $280,237$262,561$4,345$13,331 10.6%
Grants to US organizations and governments $223,500$223,500-- 8.4%
Pay: officers, directors, trustees, key employees $215,791$156,633$20,536$38,622 8.1%
Fees: other services $160,936$111,813$48,610$513 6.1%
Other employee benefits $149,076$83,959$30,654$34,463 5.6%
Office expenses $140,542$77,752-$62,790 5.3%
Payroll taxes $90,963$64,084$11,164$15,715 3.4%
Travel $71,477$60,525$6,118$4,834 2.7%
Fees: investment management $42,656-$42,656- 1.6%
Occupancy $37,977$28,147$3,277$6,553 1.4%
Fees: legal $37,575-$37,575- 1.4%
Insurance $31,656-$31,656- 1.2%
Conferences, conventions and meetings $28,364$14,283$1,480$12,601 1.1%
Fees: accounting $25,172-$25,172- 1.0%
Advertising and promotion $12,723$7,047-$5,676 0.5%
Pension plan contributions $7,096$5,180$639$1,277 0.3%
Other (as described)VOLUNTEER RECOGNITION $4,343$4,343-- 0.2%
Other (as described)PROFESSIONAL DEVELOPMEN $3,804-$3,804- 0.1%
Fees: professional fundraisers $3,350--$3,350 0.1%
Other (as described) EventEVENT HONORARIA $2,524$2,524-- 0.1%
Other (as described)DUES $2,164$1,694$470- 0.1%
All other expenses $77$77-- 0.0%
Total$2,648,788100%

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2021 · Form 990 · $2,382,784 spent · pay $1,447,981 · grants $45,000 · events $47,358
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $907,568$801,569$46,095$59,904 38.1%
Fees: other services $469,971$439,312$18,036$12,623 19.7%
Pay: officers, directors, trustees, key employees $264,788$184,028$72,816$7,944 11.1%
Other employee benefits $176,635$111,114$27,581$37,940 7.4%
Information technology $119,148$92,482$11,104$15,562 5.0%
Payroll taxes $91,717$77,517$8,943$5,257 3.8%
Office expenses $89,495$19,038$46,345$24,112 3.8%
Other (as described)Client Materials and Ed $77,164$77,164-- 3.2%
Occupancy $54,311$39,148$5,831$9,332 2.3%
Conferences, conventions and meetings $47,358$33,501-$13,857 2.0%
Grants to US organizations and governments $45,000$45,000-- 1.9%
Other (as described)Postage & Shipping $29,261$21,523-$7,738 1.2%
Pension plan contributions $7,273$4,550$2,279$444 0.3%
Fees: legal $3,095-$3,095- 0.1%
Total$2,382,784100%

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2020 · Form 990 · $2,037,647 spent · pay $1,152,504 · grants $140,000 · events $14,857
LineAs describedTotalProgramManagementFundraisingShare
Other salaries and wages $654,286$562,128$71,022$21,136 32.1%
Other (as described)Client Materials and Ed $333,535$306,652$3,959$22,924 16.4%
Pay: officers, directors, trustees, key employees $260,000$174,200$39,000$46,800 12.8%
Other employee benefits $161,836$122,097$20,878$18,861 7.9%
Grants to US organizations and governments $140,000$140,000-- 6.9%
Fees: other services $94,350$63,829$17,069$13,452 4.6%
Information technology $90,303$62,740$10,351$17,212 4.4%
Payroll taxes $70,119$56,700$8,155$5,264 3.4%
Office expenses $67,215$23,978$28,163$15,074 3.3%
Fees: accounting $60,500-$60,500- 3.0%
Occupancy $53,919$39,750$4,737$9,432 2.6%
Other (as described)Postage & Shipping $17,391$14,898-$2,493 0.9%
Conferences, conventions and meetings $14,857$14,857-- 0.7%
Depreciation and depletion $9,153-$9,153- 0.4%
Pension plan contributions $6,263$4,572$564$1,127 0.3%
Fees: legal $3,920$1,200$2,720- 0.2%
Total$2,037,647100%

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