MACULAR DEGENERATION ASSOCIATION: Form 990, tax year 2025

View the entire original 990 at ProPublica ↗

Organization
MACULAR DEGENERATION ASSOCIATION (EIN 27-3025707)
Tax period
2025-01-01 to 2025-12-31
Filed
2026-05-13
IRS object ID
202621339349306697
Schema version
2025v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-05-13T16:00:27-06:00ReturnTs
Tax Period End2025-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Linda Patterson CPA PABusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line15732 Whistlewood CircleAddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2025-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN273025707EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Macular Degeneration AssociationBusinessNameLine1Txt
FieldValueIRS element (for citing)
In Care Of% Lawrence HoffheimerInCareOfNm
Business Name ControlMACUBusinessNameControlTxt
Phone9418704399PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15969 Cattleridge Blvd STE 100AddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonLAWRENCE HOFFHEIMERPersonNm
Person TitleChairman of the BoardPersonTitleTxt
Phone9418704399PhoneNum
Signature2026-03-20SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonLINDA PATTERSONPreparerPersonNm
PTINP00543037PTIN
Phone9417354042PhoneNum
Preparation2026-05-13PreparationDt
FieldValueIRS element (for citing)
Tax2025TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerLawrence HoffheimerPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line15969 Cattleridge Blvd Ste 100AddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$6,420,323GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.macularhope.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2010FormationYr
Legal Domicile StateFLLegalDomicileStateCd
Activity Or MissionThe mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease.ActivityOrMissionDesc
Voting Members Governing Body4VotingMembersGoverningBodyCnt
Voting Members Independent1VotingMembersIndependentCnt
Total Employee7TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$4,214,800PYContributionsGrantsAmt
CY Contributions Grants$4,444,381CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$352,982PYInvestmentIncomeAmt
CY Investment Income$189,215CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$4,567,782PYTotalRevenueAmt
CY Total Revenue$4,633,596CYTotalRevenueAmt
PY Grants And Similar Paid$50,000PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$85,000CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$751,461PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$738,315CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$36,000PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$36,000CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$713,668CYTotalFundraisingExpenseAmt
PY Other Expenses$1,856,606PYOtherExpensesAmt
CY Other Expenses$1,957,199CYOtherExpensesAmt
PY Total Expenses$2,694,067PYTotalExpensesAmt
CY Total Expenses$2,816,514CYTotalExpensesAmt
PY Revenues Less Expenses$1,873,715PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,817,082CYRevenuesLessExpensesAmt
Total Assets BOY$7,756,435TotalAssetsBOYAmt
Total Assets EOY$10,002,450TotalAssetsEOYAmt
Total Liabilities BOY$183,488TotalLiabilitiesBOYAmt
Total Liabilities EOY$112,832TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$7,572,947NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$9,889,618NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionThe mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease.MissionDesc
Significant New Program SrvcYes (true)SignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$916,976ExpenseAmt
DescThe Macular Degeneration Association produces newsletters quarterly. The information provided is for those who have age-related macular degeneration, diabetic eye disease, glaucoma, geographic atrophy, dry eye disease, and cataracts. The newsletter provides educational information, new research, new drug therapies, clinical trials, and treatments. The newsletters go out to 49,200 doctors, patients, families, and caregivers. Brochures were designed and provided to doctors to help their patients navigate macular degeneration and find resources that can help. The Macular Degeneration Association has created a state-of-the-art website to provide an extensive number of resources and information to help those affected by macular degeneration and additional diseases that can affect macular degeneration. This website includes educational videos that are produced for patients, family members and caregivers. The website is ADA-compliant.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$730,512ExpenseAmt
DescThe Macular Degeneration Association (MDA) created informative and necessary educational programs for those affected by macular degeneration, diabetic macular edema, geographic atrophy, and dry eye disease. These programs not only provide information for the person affected by these eye diseases but also bring precautionary measures to their family members and helpful information for their caregivers. All programs feature experts in the field of retina or optometry providing information about risk factors, genetic predisposition, proper diagnosis, new treatment options, research information, clinical trials, and new drug advances. Participants are given a chance to interact with the doctor and ask questions. They are also able to share their challenges and successes with the other attendees.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$85,000ExpenseAmt
DescIn 2025, MDA funded research to Orange County Research for their project on Combination Therapy in Wet AMD and Geographic Atrophy, led by Rajiv Rathod, M.D. A donation was made to Good Days to help patients cover medication costs essential for preserving their vision. A grant was given to Women Make Movies for their film Seeing Stars the first fiction film about macular degeneration which is positioned to bring worldwide attention to the epidemic of vision loss, expanding support for services and retinal research that will lead to sight-saving treatments for millions of people.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$1,732,488TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingYes (true)ProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemYes (true)BusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityYes (true)RelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document12IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee7EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members4GoverningBodyVotingMembersCnt
Independent Voting Member1IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesfalseMinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
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Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonLinda PattersonPersonNm
Phone9418704399PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line15969 Cattleridge Blvd Ste 100AddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (5 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
Lawrence Hoffheimer
Chairman of the Board20.0020.00Yes (X)Yes (X)$232,390$158,390$6,736
Linda Patterson
Treasurer20.0020.00Yes (X)Yes (X)$115,000$65,000$13,120
Donna Auger
Director40.000.00Yes (X)$144,000$0$2,220
Dustin Tenney
Employee25.0015.00$74,913$36,898$25,269Yes (X)
Amy Carroll
Secretary2.002.00Yes (X)Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$566,303TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$260,288TotReportableCompRltdOrgAmt
Total Other Compensation$47,345TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K3IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1DirectMailcomBusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line15540 Ketch RoadAddressLine1Txt
CityPrince FrederickCityNm
State AbbreviationMDStateAbbreviationCd
ZIP20678ZIPCd
FieldValueIRS element (for citing)
ServicesDirect Mail ServicServicesDesc
Compensation$465,210CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
All Other Contributions$4,444,381AllOtherContributionsAmt
Total Contributions$4,444,381TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$296,149TotalRevenueColumnAmt
Exclusion$296,149ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$1,679,793SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$1,786,727SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$106,934SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$106,934TotalRevenueColumnAmt
Exclusion-$106,934ExclusionAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,633,596TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$189,215ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$85,000TotalAmt
Program Services$85,000ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$491,391TotalAmt
Program Services$375,793ProgramServicesAmt
Management And General$115,598ManagementAndGeneralAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$197,653TotalAmt
Program Services$173,207ProgramServicesAmt
Management And General$15,072ManagementAndGeneralAmt
Fundraising$9,374FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$49,271TotalAmt
Program Services$38,984ProgramServicesAmt
Management And General$9,570ManagementAndGeneralAmt
Fundraising$717FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$8,050TotalAmt
Program Services$6,440ProgramServicesAmt
Management And General$1,449ManagementAndGeneralAmt
Fundraising$161FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$36,000TotalAmt
Fundraising$36,000FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$44,416TotalAmt
Management And General$44,416ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$596,773TotalAmt
Program Services$299,814ProgramServicesAmt
Management And General$53,995ManagementAndGeneralAmt
Fundraising$242,964FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$82,820TotalAmt
Program Services$82,820ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$39,993TotalAmt
Program Services$31,994ProgramServicesAmt
Management And General$7,199ManagementAndGeneralAmt
Fundraising$800FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$100,017TotalAmt
Program Services$80,013ProgramServicesAmt
Management And General$18,003ManagementAndGeneralAmt
Fundraising$2,001FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$46,490TotalAmt
Program Services$46,490ProgramServicesAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$2,431TotalAmt
Program Services$1,639ProgramServicesAmt
Management And General$792ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$2,220TotalAmt
Program Services$2,220ProgramServicesAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Paper & Postage$769,746$346,386$76,974$346,386
List Rental$161,828$72,823$16,182$72,823
Educational Events$48,239$48,239
Telephone & Internet$12,176$9,741$2,192$243

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$42,000TotalAmt
Program Services$30,885ProgramServicesAmt
Management And General$8,916ManagementAndGeneralAmt
Fundraising$2,199FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,816,514TotalAmt
Program Services$1,732,488ProgramServicesAmt
Management And General$370,358ManagementAndGeneralAmt
Fundraising$713,668FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$1,510,251TotalAmt
Program Services$604,100ProgramServicesAmt
Management And General$151,025ManagementAndGeneralAmt
Fundraising$755,126FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,975,066BOYAmt
EOY$4,073,536EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$555BOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$11,669LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$3,924LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$1,979BOYAmt
EOY$7,745EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$5,778,835BOYAmt
EOY$5,921,169EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$7,756,435BOYAmt
EOY$10,002,450EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$183,488BOYAmt
EOY$112,832EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$183,488BOYAmt
EOY$112,832EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$7,572,947BOYAmt
EOY$9,889,618EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,572,947BOYAmt
EOY$9,889,618EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,756,435BOYAmt
EOY$10,002,450EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,817,082ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$499,589NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteefalseAuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,385,688CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,810,423CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,224,424CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,214,800CurrentTaxYearMinus1YearAmt
Current Tax Year$4,444,381CurrentTaxYearAmt
Total$17,079,716TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,385,688CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,810,423CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,224,424CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,214,800CurrentTaxYearMinus1YearAmt
Current Tax Year$4,444,381CurrentTaxYearAmt
Total$17,079,716TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$139,734SubstantialContributorsTotAmt
Public Support Total170$16,939,982PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$61,553CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$90,224CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$137,878CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$347,794CurrentTaxYearMinus1YearAmt
Current Tax Year$296,149CurrentTaxYearAmt
Total$933,598TotalAmt
FieldValueIRS element (for citing)
Total Support$18,013,314TotalSupportAmt
Public Support CY1700.94040PublicSupportCY170Pct
Public Support PY1700.92440PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$11,669OtherCostOrOtherBasisAmt
Depreciation$3,924DepreciationAmt
Book Value$7,745BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$7,745TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$5,133,185TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$499,589NetUnrealizedGainsInvstAmt
Revenue Not Reported$499,589RevenueNotReportedAmt
Revenue Subtotal$4,633,596RevenueSubtotalAmt
Total Revenue Per Form990$4,633,596TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,816,514TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$2,816,514ExpensesSubtotalAmt
Total Expenses Per Form990$2,816,514TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart X, Line 2-Text in footnote regarding FIN 48 (ASC 740)FormAndLineReferenceDesc
ExplanationManagement has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the Organization had no uncertain income tax positions that could have a significant effect on the consolidated financial statements for the year ended December 31, 2025. The Organizations federal income tax returns for fiscal years ended December 31, 2024, 2023, and 2022 are subject to examination by the Internal Revenue Service generally for three years after the federal income tax returns were filed.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Agrmt Prof Fundraising ActyYes (true)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

FieldValueIRS element (for citing)
Business Name Line1DirectmailcomBusinessNameLine1Txt
FieldValueIRS element (for citing)
ActivityDirect Mail ManagementActivityTxt
Fundraiser Control Of FundsfalseFundraiserControlOfFundsInd
Gross Receipts$3,323,580GrossReceiptsAmt
Retained By Contractor$36,000RetainedByContractorAmt
Net To Organization$3,287,580NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$3,323,580TotalGrossReceiptsAmt
Total Retained By Contractors$36,000TotalRetainedByContractorsAmt
Total Net To Organization$3,287,580TotalNetToOrganizationAmt
All StatesAll StatesAllStatesCd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
Chronic Disease Fund Inc
2611 Internet Boulevard Suite 105FriscoTX75034611462062501c3$10,000Prescription Assistance
Rathod Medical Corp
5 ArabellaNewport CoastCA92657811815034$50,000Research
Women Makes Movies
231 29th st Suite 1006New YorkNY10001132740460501c3$25,000Education
FieldValueIRS element (for citing)
Total501c3 Org2Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmt
LAWRENCE HOFFHEIMER
Chairman of the Board$232,390$158,390$6,736$232,390$165,126
LINDA PATTERSON
Treasurer$115,000$65,000$13,120$115,000$78,120

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

FieldValueIRS element (for citing)
PersonJoanna HoffheimerPersonNm
FieldValueIRS element (for citing)
Relationship DescriptionFamily member of CEORelationshipDescriptionTxt
Transaction$28,150TransactionAmt
TransactionEmployee processes state registrations.TransactionDesc
Sharing Of RevenuesfalseSharingOfRevenuesInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (10 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Officer directors etc family relationship Part VI line 2Lawrence Hoffheimer and Amy Carroll are related family members.
Committee meeting documentation Part VI line 8bNo committee meetings were held.
Form 990 governing body review Part VI line 11All members of the board reviewed the tax return prior to submission to the Internal Revenue Service.
Conflict of interest policy compliance Part VI line 12cOfficers must sign annual disclosure staement disclosing conflicts of interest.
CEO executive director top management comp Part VI line 15aExecutive compensation was compared to other entities reported on their Form 990s and approved by the board.
Other officer or key employee compensation Part VI line 15bCompensation is reviewed annually and approved by the board.
Governing documents etc available to public Part VI line 19Available upon request.
Significant program services not listed on prior year return Part III line 2In 2025, the Macular Degeneration Association began funding Good Days to provide prescription assistance to those who cannot afford their prescribed medications for macular degeneration. This program will be expanded in future years, so more individuals can benefit.
List of other fees for services expenses Part IX line 11g11G Total Program Admin Fund Raising Copywriting 15,400 6,930 1,540 6,930 Data Management 29,969 13,486 2,997 13,486 Direct Mail Processors 29,345 13,205 2,935 13,205 Direct Mail Services 465,209 209,344 46,521 209,344 Medical Director 50,000 50,000 Honorariums 6,850 6,850
General explanation attachmentPart IV, Schedule C, Line 17 All states recieve copies of Form 990.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp

Disregarded Entity Name DisregardedEntityName

FieldValueIRS element (for citing)
Business Name Line1Parkinson Research Foundation IncBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line15969 Cattleridge Blvd Suite 100AddressLine1Txt
CitySarasotaCityNm
State AbbreviationFLStateAbbreviationCd
ZIP34232ZIPCd
FieldValueIRS element (for citing)
EIN200205035EIN
Primary ActivitiesParkinson Disease - Research, EducationPrimaryActivitiesTxt
Legal Domicile StateFLLegalDomicileStateCd
Exempt Code Section501c3ExemptCodeSectionTxt
Public Charity Status10PublicCharityStatusTxt
Direct Controlling NAN/ADirectControllingNACd
Controlled OrganizationfalseControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts RyltsfalseReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth OrgfalseGiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgfalseGiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other OrgfalseLoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth OrgfalseLoansOrGuaranteesFromOthOrgInd
Div Related OrganizationfalseDivRelatedOrganizationInd
Asset Sale To Other OrgfalseAssetSaleToOtherOrgInd
Asset Purchase From Other OrgfalseAssetPurchaseFromOtherOrgInd
Asset ExchangefalseAssetExchangeInd
Rental Of Facilities To Oth OrgfalseRentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth OrgYes (true)RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth OrgfalsePerformOfServicesForOthOrgInd
Perform Of Services By Other OrgfalsePerformOfServicesByOtherOrgInd
Sharing Of FacilitiesYes (true)SharingOfFacilitiesInd
Paid Employees SharingYes (true)PaidEmployeesSharingInd
Reimbursement Paid To Other OrgfalseReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other OrgfalseReimbursementPaidByOtherOrgInd
Transfer To Other OrgfalseTransferToOtherOrgInd
Transfer From Other OrgfalseTransferFromOtherOrgInd

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