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FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC: Form 990EZ, tax year 2025

View the entire original 990 at ProPublica ↗

Organization
FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC (EIN 01-0771966)
Tax period
2025-01-01 to 2025-12-31
Filed
2026-02-27
IRS object ID
202640589349200404
Schema version
2025v4.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-02-27T04:42:32-08:00ReturnTs
Tax Period End2025-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN610567366PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1CHARLES T MITCHELL CO PLLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1229 W MAIN ST STE 103AddressLine1Txt
CityFRANKFORTCityNm
State AbbreviationKYStateAbbreviationCd
ZIP40601ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2025-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN010771966EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FIBROMUSCULAR DYSPLASIA SOCIETY OFBusinessNameLine1Txt
Business Name Line2AMERICA INCBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlFIBRBusinessNameControlTxt
Phone2168342410PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line126777 LORAIN RD 311AddressLine1Txt
CityNORTH OLMSTEDCityNm
State AbbreviationOHStateAbbreviationCd
ZIP44070ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonKAY TANNERPersonNm
Person TitlePresidentPersonTitleTxt
Signature2026-02-27SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonGreg Miklavcic CPAPreparerPersonNm
PTINP00946625PTIN
Phone5022277395PhoneNum
FieldValueIRS element (for citing)
Tax2025TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Amended ReturnYes (X)AmendedReturnInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Schedule B Not RequiredYes (X)ScheduleBNotRequiredInd
Website AddressWWW.FMDSA.ORGWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$158,513GrossReceiptsAmt
Info In Schedule O Part IYes (X)InfoInScheduleOPartIInd
Contributions Gifts Grants Etc$158,506ContributionsGiftsGrantsEtcAmt
Investment Income$7InvestmentIncomeAmt
Cost Or Other Basis Expense Sale$0CostOrOtherBasisExpenseSaleAmt
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Special Events Direct Expenses$0SpecialEventsDirectExpensesAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt
Total Revenue$158,513TotalRevenueAmt
Grants And Similar Amounts Paid$50,000GrantsAndSimilarAmountsPaidAmt
Salaries Other Comp Empl Bnft$65,694SalariesOtherCompEmplBnftAmt
Fees And Other Pymt To Ind Cntrct$5,050FeesAndOtherPymtToIndCntrctAmt
Occupancy Rent Utlts And Maint$3,600OccupancyRentUtltsAndMaintAmt
Other Expenses Total$37,468OtherExpensesTotalAmt
Total Expenses$161,812TotalExpensesAmt
Excess Or Deficit For Year-$3,299ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$136,693NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$133,394NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIYes (X)InfoInScheduleOPartIIInd

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$137,816BOYAmt
EOY$134,555EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$137,816BOYAmt
EOY$134,555EOYAmt

Sum Of Total Liabilities SumOfTotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,123BOYAmt
EOY$1,161EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$136,693BOYAmt
EOY$133,394EOYAmt
FieldValueIRS element (for citing)
Primary Exempt PurposeFMDSA is a public healthcare related charity working towards better diagnosis and treatments for Fibromuscular Dysplasia (FMD). The organization is engaged in funding and facilitating research, physician education and support, building awareness of FMD within the medical community and patient communities, providing patient support, and in patient education programs.PrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp (8 entries)

Description Program Srvc AccomDescriptionProgramSrvcAccomTxtProgram Service ExpensesProgramServiceExpensesAmt
In 2007, FMDSA laid the foundations for the creation of an FMD medical data registry with the goal of increasing understanding of FMD and providing physicians and researchers with a vehicle to capture and analyze characteristics associated with the disease to identify potential markers and commonly used treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program at the University of Michigan is the coordinating center for the registry. Patient enrollment in the FMDSA Registry increased from 4598 patients at the end of 2024 to 5118 patients at the end of 2025. There are 21 actively participating Medical registry sites. New sites in 2025 included The University of Pennsylvania and Virginia Mason Franciscan Health.$134,965
Patient support is a large program due to the significant increase in the number of patients diagnosed with FMD annually. The organization continues to grow Volunteer Support Networks with volunteers across the United States and internationally. Patient support also includes social media outreach, including Inspire, Instagram, and Facebook, where thousands of patients participate. The organization is also active on Twitter, allowing patients and physicians to communicate directly. Materials and videos are continuously added to the FMDSA website and YouTube channel, and we offer nearly sixty FMD related videos in multiple languages and work with our international colleagues who offer additional language specific materials. FMDSA continues to host virtual patient meetings for all patients in the US - and worldwide.
Patient and family member education services. The organization provides educational support and resources for patients educate their family, friends, and healthcare providers about FMD with written materials and videos. Resources that help communicate the complex medical language and physiological elements of FMD are laid out in easy-to-understand terms and materials include a Public Service Announcement and tailored materials designed to bridge the gaps between patients and physicians. The Program also includes educational work with media outlets, other organizations, journals, speaking engagements, and articles. It is a rare day when we are not contacted by a newly diagnosed patient. We have seen the diagnosis rate grow in direct proportion to our programs. We also participate in events such as the Cleveland & Detroit Marathons, along with other high profile well attended events, to help increase awareness and to raise funds to support our programs.
Physician, research specialist, and other healthcare provider education. We educate medical professionals worldwide at meetings such as the International StrokeConference, Hospital led Conferences, Hospital Grand Rounds, and Research Meetings. The awareness, education, and research happening around the world is a direct result of the seeds FMDSA has been planting since 2003.
In person meetings. In 2025, the organization participated in in-person meetings, including the American Heart Association Scientific Sessions, the VanSCAD meeting in Vancouver, Canada, the Atrium Health Southeast FMD Patient Symposium, and the Kentucky Neuroscience Expo. The result of this participation is patient representation and awareness of FMD patient perspectives for medical community. It has facilitated improved medical knowledge, the development of critical partnerships and research activity. We maintain a research database on the website which contains medical findings from the FMDSA patient registry, and from other researchers for patients. There are also PowerPoint presentations and videos available for healthcare providers.
Registry funding. FMDSA has been the sole source of funding and has been the sole sponsor of the North American FMD Registry since 2008. The first participant's data was entered in January 2009. Patient data is collected and rigorously analyzed to learn more about the disease. Research from the date contained in this registry has contributed to the identification of genetic variants connected to FMD (PHARCTR1, ATP281, LRP1, and LIMA1), and in 2024, a key driver gene called UBR4 was discovered. This was a huge advance. Based on the associated genes, researchers believe that 3-5% of the U.S. population may be afflicted with FMD.
When held in person, FMDSA Conferences bring together FMD patients, including those who have had spontaneous coronary dissection (SCAD), caregivers, and medical professionals. These meeting provides an opportunity for patients to meet others also affected. FMDSA also hosts a separate meeting with researchers to discuss updates and current and future research projects. The forum has provided a platform for research projects, including blood draws, saliva collection, and quality-of-life studies. There is no other meeting in the world where patients have the opportunity to participate in research. Most recently, FMDSA has also participated in and coordinated Zoom webinars and, in 2025, the Annual Conference was held as a virtual event, to support broader, national and global participation.
One of our most important charters is to educate patients and families about FMD. We offer educational materials, videos, a research section, news and events, and contacts for patients worldwide. The website is a resource for patients, family members, and medical professionals worldwide. FMDSA is the premier resource of FMD information for the layperson and an excellent place for physicians to easily find medical articles and abstracts. The FMDSA website also offers community events for those wanting to get more involved. FMDSA is the recognized leader in FMD support and resources.
FieldValueIRS element (for citing)
Total Program Service Expenses$134,965TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (6 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmt
KAY TANNER
President5.00$0
ROSIE MIKLAVCIC
Secretary5.00$0
GIAMILA FANTUZZI
Director2.50$0
CATHLIN JAMISON
Director40.00$0
ALLISON GAINES
Director2.50$0
PAM MACE
EXECUTIVE DIRECTOR60.00$0
FieldValueIRS element (for citing)
Activities Not Previously RptfalseActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not RptfalseChgMadeToOrgnzngDocNotRptInd
Organization Had UBIfalseOrganizationHadUBIInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Organization Dissolved EtcfalseOrganizationDissolvedEtcInd
Form1120 Pol FiledfalseForm1120PolFiledInd
Made Loans To From OfficersfalseMadeLoansToFromOfficersInd
Tax Imposed Under IRC4911$0TaxImposedUnderIRC4911Amt
Tax Imposed Under IRC4912$0TaxImposedUnderIRC4912Amt
Tax Imposed Under IRC4955$0TaxImposedUnderIRC4955Amt
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
Tax Imposed On Organization Mgr$0TaxImposedOnOrganizationMgrAmt
Tax Reimbursed By Organization$0TaxReimbursedByOrganizationAmt
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
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Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonANITA MEYERSPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line126777 LORAIN RDAddressLine1Txt
CityNORTH OLMSTEDCityNm
State AbbreviationOHStateAbbreviationCd
ZIP44070ZIPCd
FieldValueIRS element (for citing)
Phone2168342410PhoneNum
FieldValueIRS element (for citing)
Foreign Financial AccountfalseForeignFinancialAccountInd
Foreign OfficefalseForeignOfficeInd
Donor Advised FndsfalseDonorAdvisedFndsInd
Operate HospitalfalseOperateHospitalInd
Tanning Services ProvidedfalseTanningServicesProvidedInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
School OperatingfalseSchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Part VI Of Comp Of Hghst Pd EmplNONEPartVIOfCompOfHghstPdEmplTxt
Part VI Hghst Pd Cntrct Prof SrvcNONEPartVIHghstPdCntrctProfSrvcTxt
Filed Schedule AYes (true)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$202,598CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$142,236CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$147,938CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$145,428CurrentTaxYearMinus1YearAmt
Current Tax Year$158,406CurrentTaxYearAmt
Total$796,606TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years$11,428CurrentTaxYearMinus2YearsAmt
Total$11,428TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$202,598CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$142,236CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$159,366CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$145,428CurrentTaxYearMinus1YearAmt
Current Tax Year$158,406CurrentTaxYearAmt
Total$808,034TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$808,034PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$22CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$11CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$11CurrentTaxYearMinus2YearsAmt
Current Tax Year$7CurrentTaxYearAmt
Total$51TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$22CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$11CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$11CurrentTaxYearMinus2YearsAmt
Current Tax Year$7CurrentTaxYearAmt
Total$51TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$202,620CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$142,247CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$159,377CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$145,428CurrentTaxYearMinus1YearAmt
Current Tax Year$158,413CurrentTaxYearAmt
Total$808,085TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.99990PublicSupportCY509Pct
Public Support PY5090.99990PublicSupportPY509Pct
Investment Income CY0.00010InvestmentIncomeCYPct
Investment Income PY0.00010InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Grants and Similar Amounts Paid In Excess of $5,000.1| Donee's Name: MCORRP UNIVERSITY OF MICHIGAN | Donee's Address: 24 FRANK LLOYD WRIGHT DRIVE ANN ARBOR MI 48106 | Cash Amount Given: $50000
Other Expenses.1002Office Expenses $8394
Other Expenses.1003Information Technology $8571
Other Expenses.1005Travel $18788
Other Expenses.1012Insurance $1715
Total Liabilities.1001Accounts Payable and Accrued Expenses - Beginning $1123 Accounts Payable and Accrued Expenses - Ending $1161

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