LUPUS RESEARCH ALLIANCE INC: Form 990, tax year 2025

View the entire original 990 at ProPublica ↗

Organization: LUPUS RESEARCH ALLIANCE INC (EIN 58-2492929)
Tax period: 2025-01-01 to 2025-12-31
Filed: 2026-09-03
IRS object ID: 202602469349300030
Schema version: 2025v4.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2026-09-03T09:32:41-05:00	ReturnTs
Tax Period End	2025-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	131655065	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	LUTZ AND CARR CPAS LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	551 FIFTH AVENUE SUITE 400	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10176	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2025-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	582492929	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	LUPUS RESEARCH ALLIANCE INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	LUPU	BusinessNameControlTxt
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	52 VANDERBILT AVE SUITE 401	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10017	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	DEBRA ROSE	PersonNm
Person Title	CHIEF FINANCIAL OFFICER	PersonTitleTxt
Phone	6468846000	PhoneNum
Signature	2026-09-02	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	JENNIFER COATES	PreparerPersonNm
PTIN	P02247728	PTIN
Phone	2126972299	PhoneNum

Field	Value	IRS element (for citing)
Tax	2025	TaxYr

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	DEBRA ROSE	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	52 VANDERBILT AVE SUITE 401	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10017	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$42,977,371	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	LUPUSRESEARCH.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1999	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	FREEING THE WORLD OF LUPUS.	ActivityOrMissionDesc
Voting Members Governing Body	23	VotingMembersGoverningBodyCnt
Voting Members Independent	23	VotingMembersIndependentCnt
Total Employee	71	TotalEmployeeCnt
Total Volunteers	500	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$11,172,604	PYContributionsGrantsAmt
CY Contributions Grants	$12,046,822	CYContributionsGrantsAmt
PY Program Service Revenue	$1,874,491	PYProgramServiceRevenueAmt
CY Program Service Revenue	$2,057,382	CYProgramServiceRevenueAmt
PY Investment Income	$4,937,822	PYInvestmentIncomeAmt
CY Investment Income	$9,021,341	CYInvestmentIncomeAmt
PY Other Revenue	$570,065	PYOtherRevenueAmt
CY Other Revenue	$575,904	CYOtherRevenueAmt
PY Total Revenue	$18,554,982	PYTotalRevenueAmt
CY Total Revenue	$23,701,449	CYTotalRevenueAmt
PY Grants And Similar Paid	$15,491,102	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$16,051,336	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$11,287,230	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$13,162,673	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$75,000	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$78,000	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$4,884,285	CYTotalFundraisingExpenseAmt
PY Other Expenses	$11,322,100	PYOtherExpensesAmt
CY Other Expenses	$12,857,921	CYOtherExpensesAmt
PY Total Expenses	$38,175,432	PYTotalExpensesAmt
CY Total Expenses	$42,149,930	CYTotalExpensesAmt
PY Revenues Less Expenses	-$19,620,450	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$18,448,481	CYRevenuesLessExpensesAmt
Total Assets BOY	$93,254,416	TotalAssetsBOYAmt
Total Assets EOY	$88,318,156	TotalAssetsEOYAmt
Total Liabilities BOY	$37,541,841	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$39,640,029	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$55,712,575	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$48,678,127	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	PUTTING PEOPLE WITH LUPUS AT THE CENTER OF ALL WE DO, THE LUPUS RESEARCH ALLIANCE DRIVES THE DISCOVERY & DEVELOPMENT OF NEXT GENERATION LUPUS DIAGNOSTICS AND CURATIVE TREATMENTS THROUGH INNOVATIVE RESEARCH & COLLABORATIONS.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$15,426,770	ExpenseAmt
Grant	$12,958,702	GrantAmt
Desc	THE LUPUS RESEARCH ALLIANCE (LRA), THE LARGEST NON-GOVERNMENTAL, PRIVATE FUNDER OF LUPUS RESEARCH WORLDWIDE. THE ORGANIZATION'S RESEARCH COMMITTEE OF THE BOARD OF DIRECTORS AND SCIENTIFIC ADVISORY BOARD INCLUDES TOP SCIENTIFIC EXPERTS, AND KEY LAY MEMBERS OF THE LRA'S BOARD OF DIRECTORS, WHO WORK WITH STAFF TO STRATEGICALLY GUIDE AND DRIVE THE RESEARCH FUNDING AGENDA. THE LRA FUNDS INNOVATIVE RESEARCH THAT SPANS THE SPECTRUM FROM FOUNDATIONAL TO CLINICAL RESEARCH. THE LRA HAS INVESTED NEARLY $228 MILLION IN LUPUS RESEARCH GRANTS INCLUDING 675+ RESEARCH GRANTS. IN 2025 OVER $12 MILLION WAS AWARDED IN GRANTS FOR OVER 31 HIGHLY INNOVATIVE PROJECTS WITH THE POTENTIAL TO IMPROVE TREATMENT AS WELL AS UNDERSTAND THE CAUSES OF LUPUS AND THUS LEAD TO A CURE. BELOW IS A SUMMARY OF RESEARCH GRANTS AND PROGRAMS FUNDED BY THE LRA IN 2025: 6 LUPUS INNOVATION AWARD GRANTS WERE AWARDED TOTALING OVER $2 MILLION OVER TWO YEARS, THIS PROGRAM SUPPORTS PIONEERING, HIGH-RISK, HIGH-REWARD PROJECTS ADDRESSING MAJOR CHALLENGES IN LUPUS RESEARCH. EARLY-STAGE INVESTIGATORS ARE GIVEN SPECIAL CONSIDERATION DURING THE REVIEW PROCESS AND ARE ELIGIBLE FOR A THIRD YEAR OF FUNDING; 7 EMPOWERING LUPUS RESEARCH ADMINISTRATIVE SUPPLEMENT GRANTS WERE AWARDED TOTALING $180,000. THIS PROGRAM SUPPORTS PROMISING TRAINEES WHO ARE WORKING WITH LRA-FUNDED RESEARCHERS OR INVESTIGATORS FOCUSED ON AUTOIMMUNITY SUPPORTED BY THE NATIONAL INSTITUTES OF HEALTH, DEPARTMENT OF DEFENSE, OR EQUIVALENT GRANTS IN GOOD STANDING.2 MECHANISTIC CLINICAL AWARDS WERE AWARDED TOTALING ALMOST $1.5 MILLION TO DEEPEN OUR EXPLORATION OF LIFESTYLE INTERVENTIONS IN A NIMBLER CLINICAL TESTING FRAMEWORK. THE AWARD PROVIDES FUNDS FOR PILOT STUDIES TESTING LIFESTYLE INTERVENTIONS IN CONCERT WITH HYPOTHESIS-DRIVEN MECHANISTIC ANALYSIS TO ILLUMINATE THE UNDERLYING EFFECTS OF LUPUS.2 GLOBAL TEAM SCIENCE AWARDS (GTSA) TOTALING ALMOST $6 MILLION TO SUPPORT INTERDISCIPLINARY, COLLABORATIVE, AND HIGHLY SYNERGISTIC PROJECTS THAT FOCUS ON THE MOLECULAR UNDERSTANDING OF HUMAN LUPUS AND THE HETEROGENEITY OF THE DISEASE. THESE AWARDS ALSO INCLUDE PLANNING GRANTS THAT SUPPORT RESEARCHERS IN PREPARING COMPETITIVE FULL APPLICATIONS.1 CROSS COLLABORATIVE GTSA SUPPLEMENT FOR 230K TO ENCOURAGE FURTHER SYNERGIES AND FOSTER THE CROSS-POLLINATION OF IDEAS ACROSS FUNDED GTSA TEAMS. BY MAXIMIZING THE POTENTIAL WITHIN THE GTSA PROGRAM, THE LRA AIMS TO PUSH THE BOUNDARIES OF PATIENT-CENTRIC RESEARCH, GENERATING COLLECTIVE KNOWLEDGE ON DISEASE HETEROGENEITY AND LEADING TO INNOVATIVE APPROACHES TO THERAPEUTIC TREATMENTS AND DISCOVERIES THAT WILL SHAPE THE FUTURE OF LUPUS RESEARCH AND CLINICAL TRANSLATION. 4 EMPOWERING LUPUS RESEARCH CAREER DEVELOPMENT AWARDS TOTALING $1.8 MILLION SUPPORTING OUTSTANDING EARLY-CAREER SCIENTISTS WHO REFLECT THE COMMUNITIES AND POPULATIONS OF PEOPLE LIVING WITH LUPUS. THIS AWARD PROVIDES FUNDS FOR AWARDEES TO ESTABLISH A COMPETITIVE INDEPENDENT RESEARCH PROGRAM IN THE LUPUS RESEARCH COMMUNITY.1 EMPOWERING LUPUS RESEARCH POSTDOCTORAL AWARD FOR $200K TO SUPPORT PROMISING SCIENTIST WHO REFLECTS THE COMMUNITIES AND POPULATIONS OF PEOPLE LIVING WITH LUPUS. THE AWARD PROVIDES SUPPORT FOR AWARDEES TO GENERATE THE SCIENTIFIC DATA AND UNIQUE RESEARCH IDEAS NECESSARY TO ULTIMATELY TRANSITION TO AN INDEPENDENT LUPUS RESEARCHER ROLE.IN ADDITION TO ITS TRADITIONAL GRANTS, THE LRA AWARDED THE LUPUS INSIGHT PRIZE, A $100,000 AWARD THAT RECOGNIZES A LEADING RESEARCHER WHO HAS MADE A MAJOR CONTRIBUTION RELEVANT TO LUPUS. THE PRIZE RECOGNIZES AND HONORS SIGNIFICANT SCIENTIFIC INSIGHTS THAT ADVANCE UNDERSTANDING OF THE CAUSES, PATHOGENESIS, OR TREATMENT OF LUPUS.AS PART OF ITS COMMITMENT TO COLLABORATION, THE LRA CONTINUED IN 2025 TO WORK WITH PARTNERS ACROSS SECTORS TO ACCELERATE RESEARCH DISCOVERIES, LEVERAGE RESOURCES, AND EXPEDITE THE DRUG DEVELOPMENT PROCESS. BY BRINGING TOGETHER KEY CONTRIBUTORS IN THE FIGHT AGAINST LUPUS--INCLUDING GRANTEES, SCIENTIFIC ADVISORS, CLINICIANS, THE BIOPHARMACEUTICAL INDUSTRY, THE U.S. GOVERNMENT, AND PEOPLE LIVING WITH LUPUS--THE LRA AIMS TO IMPROVE QUALITY OF LIFE FOR THOSE AFFECTED BY THE DISEASE.THE LRA'S ROBUST FUNDING MODEL SUPPORTS PROMISING RESEARCH EFFORTS DESIGNED TO IMPROVE THE LIVES OF PEOPLE WITH LUPUS. THROUGH A COMPETITIVE PEER-REVIEW PROCESS, THE LRA SUPPORTS PROJECTS THAT AIM TO TRANSLATE RESEARCH FINDINGS FROM THE BENCH TO THE BEDSIDE AS QUICKLY AS POSSIBLE.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$17,084,288	ExpenseAmt
Grant	$3,052,329	GrantAmt
Revenue	$2,057,382	RevenueAmt
Desc	THE LUPUS RESEARCH ALLIANCE (LRA) ADVANCED ITS SCIENTIFIC MISSION IN 2025 BY STRENGTHENING ITS RESEARCH STRATEGY, EXPANDING OPERATIONAL GRANTMAKING ACTIVITIES, AND ADVANCING COLLABORATIVE INITIATIVES DESIGNED TO ACCELERATE PROGRESS IN LUPUS DIAGNOSIS, TREATMENT, AND CLINICAL TRIAL READINESS.IN 2025, LRA IMPLEMENTED THE SECOND YEAR OF ITS 2024-2028 RESEARCH STRATEGY. AS PART OF THIS WORK, LRA RENEWED THE COMMON MECHANISMS IN AUTOIMMUNE DISEASES PROGRAM AND ADVANCED PLANNING FOR BIOMARKER AND DATA STRATEGIES INTENDED TO SUPPORT MORE PRECISE, EFFICIENT, AND COLLABORATIVE LUPUS RESEARCH.LRA'S GRANTMAKING PROGRAMS, INCLUDING THE GLOBAL TEAM SCIENCE AWARD, EMPOWERING RESEARCH PROGRAM, LUPUS INNOVATION AWARD, TRANSLATIONAL BRIDGE AWARD, AND MECHANISTIC CLINICAL TRIAL AWARD, CONTINUED TO SUPPORT INNOVATIVE AND TRANSLATIONAL LUPUS RESEARCH. DURING 2025, LRA ALSO RELEASED MULTIPLE REQUESTS FOR APPLICATIONS THROUGH THE GLOBAL TEAM SCIENCE AWARD AND CONTINUED THE ADMINISTRATIVE SUPPLEMENT TRAINING PROGRAM TO HELP STRENGTHEN THE LUPUS RESEARCH WORKFORCE. TO INCREASE AWARENESS OF ITS SCIENTIFIC PROGRAMS AND RESEARCH FINDINGS, LRA PRESENTED WORK AT MAJOR SCIENTIFIC MEETINGS AND CONVENED ITS ANNUAL FORUM FOR DISCOVERY AND ADDITIONAL PROGRAM-SPECIFIC INVESTIGATOR MEETINGS.OPERATIONAL IMPROVEMENTS INCLUDED THE SELECTION AND IMPLEMENTATION OF A NEW GRANT MANAGEMENT SYSTEM, THE RECRUITMENT AND ONBOARDING OF STAFF MEMBERS INCLUDING ADMINISTRATORS AND SCIENTISTS AND CONTINUING THE STRENGTHENING OF THE RESEARCH TEAM THROUGH TARGETED TEAM-BUILDING AND PROFESSIONAL DEVELOPMENT EFFORTS. LUPUS ABC HAS BEEN SUCCESSFULLY ESTABLISHED AS A MODEL PUBLIC-PRIVATE PARTNERSHIP IN THE REGULATORY SPACE, DEMONSTRATING LEADERSHIP AND INNOVATION IN ADVANCING LUPUS THERAPY DEVELOPMENT. SINCE ITS LAUNCH, PARTICIPATION IN LUPUS ABC, INCLUDING ENGAGEMENT FROM THE FDA, HAS GROWN THREEFOLD, HIGHLIGHTING THE CONSORTIUM'S CONVENING POWER AND COLLABORATIVE INFLUENCE. WORKS FROM LUPUS ABC HAS RESULTED IN FIVE PUBLICATIONS, INCLUDING ONE WITH THE FDA'S ACKNOWLEDGMENT OF CLASI 70 AS A PRIMARY EFFICACY ENDPOINT IN CUTANEOUS LUPUS CLINICAL TRIALS, MARKING A SIGNIFICANT ADVANCEMENT IN CLINICAL OUTCOME MEASUREMENT. IN ADDITION, LUPUS ABC LAUNCHED THREE NEW WORKING GROUPS, TWO OF WHICH FOCUS ON PATIENT-REPORTED OUTCOMES (PRO) TO FURTHER INTEGRATE PATIENT PERSPECTIVES INTO RESEARCH AND REGULATORY STRATEGIES. THE THIRD WORKING GROUP CENTERS ON IMMUNE RESET THERAPIES, A RAPIDLY EVOLVING FIELD WITH PROMISING POTENTIAL FOR INDIVIDUALS WITH LUPUS. IN 2025, LUPUS ABC RELEASED ITS FIRST REQUEST FOR PROPOSALS (RFP) WITH NEW PROJECTS SELECTED FOR SUPPORT TO BE ANNOUNCED IN MID-2026.LUPUS NEXUS COMPLETED ITS INFRASTRUCTURE BUILD AND OFFICIALLY LAUNCHED TO BOTH RESEARCH AND PATIENT COMMUNITIES. IT FINALIZED FOUNDATIONAL ANALYSIS PLANS, SELECTED KEY VENDORS, AND RECRUITED 635 PARTICIPANTS. ADDITIONALLY, 7 NEW CLINICAL SITES WERE ACTIVATED THROUGH LUCIN (SEE BELOW), AND A SUSTAINABLE FINANCIAL MODEL WITH A DEFINED MEMBERSHIP FEE STRUCTURE WAS ESTABLISHED. THE PROGRAM WAS PRESENTED AT 8 SCIENTIFIC CONFERENCES, HELPING TO SPREAD THE WORD ABOUT THE RESOURCE AVAILABLE TO THE RESEARCH COMMUNITY.LUPUS THERAPEUTICS,LLC:THE LRA FOUNDED LUPUS THERAPEUTICS, LLC (LT) AS THE CLINICAL RESEARCH AFFILIATE OF THE LRA IN 2018. WITH THIS ADDITION, THE LRA IS THE ONLY ORGANIZATION LEADING LUPUS RESEARCH ACROSS THE CONTINUUM FROM ACCELERATING BASIC DISCOVERIES IN THE LAB THROUGH CLINICAL EVALUATION OF NEW THERAPIES. LT IS ACTIVELY SUPPORTING SEVERAL CLINICAL STUDIES FOR NEW THERAPIES THROUGH THE LUPUS CLINICAL INVESTIGATORS NETWORK (LUCIN). LT OVERSEES LUCIN, A NORTH AMERICA-BASED LUPUS CLINICAL TRIALS NETWORK OF 60+ PREMIER RESEARCH MEDICAL CENTERS. THE LRA PROVIDED OVER $2.4 MILLION IN GRANTS IN 2025 TO CONTINUE FUNDING TOP ACADEMIC CENTERS TO FOSTER ROBUST, HIGH QUALITY CLINICAL TRIAL CONDUCT WITH PARTICIPATION ACROSS NORTH AMERICA.LT ALSO OFFERS EXPERTISE COMBINED WITH THAT OF 250+ LUCIN PROVIDERS AND THE LRA TO SUPPORT ACADEMIC, NONPROFIT AND BIOTECH AND PHARMACEUTICAL ORGANIZATIONS TO PLAN, INITIATE AND MANAGE CLINICAL RESEARCH. THIS OCCURS THROUGH DIVERSE ADVISORY SERVICES AND DIRECT CLINICAL OPERATIONS SUPPORT. AN ANNUAL LUCIN COMMUNITY MEETING IS HELD TO BRING TOGETHER ALL THE PARTNERS IN CLINICAL RESEARCH TO HIGHLIGHT RECENT ADVANCEMENTS, BOLSTER UNDERSTANDING, ADDRESS CURRENT CHALLENGES IN CLINICAL RESEARCH AND ENCOURAGE COLLABORATION FOR SUCCESSFUL DEVELOPMENT OF NEW TREATMENT APPROACHES.IN ADDITION, LT HAS EXPANDED THE FIRST PEER-TO-PEER CLINICAL TRIALS EDUCATION PROGRAM, PATIENT ADVOCATES FOR LUPUS STUDIES OR PALS TO INCLUDE TRIAL BUDDY SUPPORT DURING PARTICIPATION IN CLINICAL TRIALS. PALS AIMS TO IMPROVE CLINICAL RESEARCH AWARENESS, KNOWLEDGE AND ENROLLMENT, WITH A SPECIFIC FOCUS ON MAKING SURE POPULATIONS AT GREATEST RISK FOR LUPUS ARE WELL REPRESENTED IN STUDIES. LT ALSO SUPPORTS OTHER PATIENT ENGAGEMENT ACTIVITIES SUCH AS PATIENT ADVISORY BOARDS, PATIENT VISITS AND PATIENT PROTOCOL REVIEW COMMITTEES TO ENSURE THAT INDIVIDUALS IMPACTED BY LUPUS HAVE A VOICE IN THE TREATMENT DEVELOPMENT PROCESS. FINALLY, LT EFFORTS SUPPORT VARIOUS EDUCATION OFFERINGS FOR PROVIDERS AND PATIENTS, AND COMMUNITY-BASED OUTREACH TO ENSURE REPRESENTATIVE PARTICIPATION OF THE ENTIRE LUPUS COMMUNITY IN CLINICAL RESEARCH.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$645,427	ExpenseAmt
Grant	$40,305	GrantAmt
Desc	THE LUPUS RESEARCH ALLIANCE (LRA)'S ADVOCACY EFFORTS FOCUS ON EDUCATING CONGRESS ABOUT LUPUS AND URGING CONGRESS AND THE ADMINISTRATION TO PROVIDE THE FUNDS AND SUPPORT NEEDED TO ADVANCE LUPUS RESEARCH THAT CAN LEAD TO BETTER TREATMENTS AND, ULTIMATELY, A CURE. THE TOP GOALS OF THE LUPUS RESEARCH ALLIANCE PUBLIC POLICY PROGRAM FOCUS MAINLY ON FUNDING FOR LUPUS RESEARCH THAT WILL LEAD TO BETTER TREATMENTS FOR PEOPLE LIVING WITH LUPUS. GOALS INCLUDE: INCREASING FEDERAL FUNDING FOR LUPUS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH (NIH), AND SPECIFICALLY THE NATIONAL INSTITUTE FOR ALLERGY & INFECTIOUS DISEASE (NIAID), AND THE NATIONAL INSTITUTE FOR ARTHRITIS & MUSCULOSKELETAL DISORDERS (NIAMS). ADDITIONALLY, THE LRA ADVOCATES FOR LUPUS RESEARCH THROUGH THE DEPARTMENT OF DEFENSE (DOD) CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS (CDMRP); SUPPORTING THE LUPUS ACCELERATING BREAKTHROUGHS CONSORTIUM (LUPUS ABC), THE LRA'S PARTNERSHIP WITH THE U.S. FOOD AND DRUG ADMINISTRATION (FDA); AND ENSURING THE PATIENT VOICE IS INCORPORATED IN THE DRUG DEVELOPMENT PROCESS. VOLUNTEER ADVOCATES ACROSS THE COUNTRY HELP AMPLIFY THESE OUTREACH EFFORTS.THROUGH THE LRA'S ONGOING PUBLIC POLICY PROGRAM EFFORTS, CONGRESS HAS APPROPRIATED $75 MILLION FOR THE CDMRP LUPUS RESEARCH PROGRAM OPERATED BY THE ARMY MEDICAL RESEARCH AND DEVELOPMENT COMMAND. GIVEN THE HIGH DEMAND FOR NEW RESEARCH ALONGSIDE THE RISING NUMBERS OF WOMEN TREATED AT MILITARY HEALTH FACILITIES, AS WELL AS THE LINK BETWEEN POST-TRAUMATIC STRESS DISORDER (PTSD) AND THE DEVELOPMENT OF AN AUTOIMMUNE DISEASE, THE LUPUS RESEARCH ALLIANCE HAS WORKED TO CONVINCE CONGRESS TO INCREASE ITS INVESTMENT AND PROVIDE $15 MILLION FOR THE LUPUS RESEARCH PROGRAM IN THE DEFENSE APPROPRIATIONS BILL. THIS ADDITIONAL INVESTMENT IS CRITICAL FOR DISCOVERIES THAT CAN MAKE A DIFFERENCE IN PATIENTS' ABILITY TO BE THE BEST VERSION OF THEMSELVES. THE LRA LED THE PUSH FOR THE CREATION OF THE LUPUS RESEARCH PROGRAM, WHICH WAS FIRST FUNDED WITH $5 MILLION IN 2017 AND INCREASED TO $10 MILLION PER YEAR IN 2020. IN 2025, THE FUNDING FOR THIS PROGRAM WAS NOT ALLOCATED IN THE BUDGET, LEADING THE LUPUS RESEARCH ALLIANCE TO PUSH FOR THIS FUNDING TO BE RESTORED IN THE FY26 BUDGET. LRA LEADERSHIP, ADVOCATES, AND ALLIED MEMBERS OF CONGRESS ARE WORKING TO ADVANCE RESEARCH PRIORITIES LIKE THIS THAT ARE CRITICAL TO THE LUPUS RESEARCH ALLIANCE AND ALL PEOPLE IMPACTED BY LUPUS. IN 2025, THE LRA CONTINUED WORK TO STAVE OFF PROPOSED CUTS TO MEDICAL RESEARCH AT THE NIH FOR LUPUS AND ALL DISEASES. LRA STAFF, LEADERSHIP, AND ADVOCATES ENGAGED IN MEETINGS WITH MEMBERS OF CONGRESS AND CONGRESSIONAL STAFF IN-PERSON, BY PHONE, AND THROUGH VIRTUAL MEETINGS, AND LRA ORGANIZED A CONGRESSIONAL BRIEFING IN COORDINATION WITH THE LEADERS OF THE BIPARTISAN CONGRESSIONAL LUPUS CAUCUS. TO SUPPORT THESE EFFORTS, THE LRA CREATED WRITTEN RESOURCES AND HELD VIRTUAL OFFICE HOUR SESSIONS TO ANSWER QUESTIONS, AND HELP ADVOCATES PREPARE TO SHARE THEIR STORIES AND EMPHASIZE THE IMPORTANCE OF RESEARCH FUNDING. ONGOING ADVOCACY FOCUSES ON ENACTING LEGISLATION THAT INCLUDES THE FEDERAL FUNDING NECESSARY TO SUPPORT INVESTIGATORS AND FOLLOW THROUGH WITH RESEARCH DISCOVERIES THAT WILL IMPROVE THE UNDERSTANDING OF AND TREATMENT FOR LUPUS.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$33,156,485	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	0	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	0	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	Yes (1)	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	Yes (1)	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	113	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	71	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	23	GoverningBodyVotingMembersCnt
Independent Voting Member	23	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Other Website	Yes (X)	OtherWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DEBRA ROSE	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6468846000	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	52 VANDERBILT AVE SUITE 401	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10017	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (38 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	OfficerOfficerInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
IRA AKSELRAD
CHAIR	1.00	Yes (X)	Yes (X)	$0	$0	$0
JOSEPH MAURIELLO
TREASURER	1.00	Yes (X)	Yes (X)	$0	$0	$0
ANNA FISCH
SECRETARY	1.00	Yes (X)	Yes (X)	$0	$0	$0
JAMES ANDREW
DIRECTOR	1.00	Yes (X)		$0	$0	$0
BISHOP RUDY V CARLTON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ANDREW C CHAN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIE COLON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIFER DAKIN
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JENNIE DESCHERER
DIRECTOR	1.00	Yes (X)		$0	$0	$0
KATEY DRISCOLL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JOE GERMANOTTA
DIRECTOR	1.00	Yes (X)		$0	$0	$0
XAVIER GOSS
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DAVID KIES
DIRECTOR	1.00	Yes (X)		$0	$0	$0
GARY KORETSKY
DIRECTOR	1.00	Yes (X)		$0	$0	$0
VERONICA VARGAS LUPO
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NADEEM MEGHJI
DIRECTOR	1.00	Yes (X)		$0	$0	$0
NIDHI PATEL
DIRECTOR	1.00	Yes (X)		$0	$0	$0
LISA HERTZ ROBINSON
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ROBERT SEDER MD
DIRECTOR	1.00	Yes (X)		$0	$0	$0
DANIEL J WALLACE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
JULIUS WILLIAMS
DIRECTOR	1.00	Yes (X)		$0	$0	$0
WILLIAM WOLFE
DIRECTOR	1.00	Yes (X)		$0	$0	$0
SPENCER ZWICK
DIRECTOR	1.00	Yes (X)		$0	$0	$0
ALBERT T ROY
CEO AND PRESIDENT	40.00		Yes (X)	$457,769	$0	$96,080
STACIE BELL PHD
CHIEF CLINICAL RESEARCH OF	40.00		Yes (X)	$282,244	$0	$50,676
DEBRA ROSE
CHIEF FINANCAL OFFICER	40.00		Yes (X)	$251,485	$0	$88,548
TEODORA STAEVA PHD
CHIEF SCIENTIFIC OFFICER	40.00		Yes (X)	$339,146	$0	$83,817
ANDREA O'NEILL
VP, DEVELOPMENT	40.00		Yes (X)	$270,566	$0	$44,585
NICOLE CAPOSSELA
CHEIF ADVANCEMENT OFFICER	40.00		Yes (X)	$350,753	$0	$41,164
NISHANT RASTOGI
MANAGING DIRECTOR, LUPUS VENTURES	40.00		Yes (X)	$63,597	$0	$11,016
PENELOPE MITCHELL
VP OF COMMUNICATIONS	40.00			$212,381	$0	$47,497	Yes (X)
LUKE EASLEY
VP OF HR & ADMINISTRATION	40.00			$208,977	$0	$42,715	Yes (X)
DEVON KELLY
LUPUS NEXUS DIRECTOR	40.00			$236,282	$0	$45,857		Yes (X)
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANT	40.00			$189,027	$0	$47,748		Yes (X)
HOANG NGUYEN
DIRECTOR OF SCIENTIFIC PAR	40.00			$200,171	$0	$39,501		Yes (X)
NIKOLAY NEPOCHATOV
BIOINFORMATICS SOFTWARE ENGINEER	40.00			$174,534	$0	$50,807		Yes (X)
KENNETH M FARBER
FORMER CEO & PRESIDENT	40.00			$340,000	$0	$0			Yes (X)
JENNIFER MERIWETHER
CLIN OPS DIRECTOR, LT	40.00			$217,433	$0	$39,763		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$3,794,365	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$729,774	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	38	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (1)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
EG&A CIRP DBA MCS HEALTHCARE PR
110 ALLEN ROAD SUITE 300	BASKING RIDGE	NJ	07921	PUBLIC RELATIONS CONSULTANT	$451,156
CONVERGENCY LLCCONVERGENCY LLC
9117 FRIARS ROAD	BETHESDA	MD	20817	LUPUS ABC CONSULTANT	$221,473
SCHANER & LUBITZ PLLC
4550 MONTGOMERY AVE SUITE 1100 N	BETHESDA	MD	20814	LIFE SCIENCES ATTORNEY	$154,107
ULO CONSULTING
PO BOX 1545	HAYES	VA	23072	LUPUS NEXUS CONSULTANT	$144,625
LAUTMAN MASKA NEIL AND CO
1703 RHODE ISLAND AVE NW STE 301	WASHINGTON	DC	20036	DIRECT RESPONSE CONSULTANT	$126,000

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	10	CntrctRcvdGreaterThan100KCnt
Fundraising	$3,829,159	FundraisingAmt
All Other Contributions	$8,217,663	AllOtherContributionsAmt
Noncash Contributions	$201,792	NoncashContributionsAmt
Total Contributions	$12,046,822	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

Field	Value	IRS element (for citing)
Desc	LUCIN CONSULTING REVENUE	Desc
Business	900099	BusinessCd
Total Revenue Column	$2,057,382	TotalRevenueColumnAmt
Related Or Exempt Func Income	$2,057,382	RelatedOrExemptFuncIncomeAmt

Field	Value	IRS element (for citing)
Total Program Service Revenue	$2,057,382	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,845,334	TotalRevenueColumnAmt
Exclusion	$1,845,334	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$25,569,105	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$18,393,098	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$7,176,007	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$7,176,007	TotalRevenueColumnAmt
Exclusion	$7,176,007	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$882,824	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$3,829,159	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$882,824	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$0	TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	SUBLET INCOME	Desc
Business	900099	BusinessCd
Total Revenue Column	$575,904	TotalRevenueColumnAmt
Exclusion	$575,904	ExclusionAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$575,904	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$23,701,449	TotalRevenueColumnAmt
Related Or Exempt Func Income	$2,057,382	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$9,597,245	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$15,114,743	TotalAmt
Program Services	$15,114,743	ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

Field	Value	IRS element (for citing)
Total	$40,305	TotalAmt
Program Services	$40,305	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$896,288	TotalAmt
Program Services	$896,288	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$3,067,690	TotalAmt
Program Services	$1,752,855	ProgramServicesAmt
Management And General	$581,851	ManagementAndGeneralAmt
Fundraising	$732,984	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$7,049,998	TotalAmt
Program Services	$4,237,075	ProgramServicesAmt
Management And General	$1,111,532	ManagementAndGeneralAmt
Fundraising	$1,701,391	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$569,684	TotalAmt
Program Services	$344,041	ProgramServicesAmt
Management And General	$85,974	ManagementAndGeneralAmt
Fundraising	$139,669	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$1,756,547	TotalAmt
Program Services	$1,053,488	ProgramServicesAmt
Management And General	$275,046	ManagementAndGeneralAmt
Fundraising	$428,013	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$718,754	TotalAmt
Program Services	$426,696	ProgramServicesAmt
Management And General	$118,661	ManagementAndGeneralAmt
Fundraising	$173,397	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$203,629	TotalAmt
Program Services	$130,274	ProgramServicesAmt
Management And General	$31,464	ManagementAndGeneralAmt
Fundraising	$41,891	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$62,271	TotalAmt
Management And General	$62,271	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$197,631	TotalAmt
Program Services	$197,631	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$78,000	TotalAmt
Fundraising	$78,000	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$110,408	TotalAmt
Management And General	$110,408	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,577,068	TotalAmt
Program Services	$1,627,414	ProgramServicesAmt
Management And General	$440,793	ManagementAndGeneralAmt
Fundraising	$508,861	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$150,854	TotalAmt
Program Services	$94,891	ProgramServicesAmt
Management And General	$29,896	ManagementAndGeneralAmt
Fundraising	$26,067	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,768,465	TotalAmt
Program Services	$2,395,772	ProgramServicesAmt
Management And General	$242,466	ManagementAndGeneralAmt
Fundraising	$130,227	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$902,439	TotalAmt
Program Services	$227,036	ProgramServicesAmt
Management And General	$582,776	ManagementAndGeneralAmt
Fundraising	$92,627	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$630,509	TotalAmt
Program Services	$349,450	ProgramServicesAmt
Management And General	$160,820	ManagementAndGeneralAmt
Fundraising	$120,239	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$1,601,340	TotalAmt
Program Services	$1,476,787	ProgramServicesAmt
Management And General	$98,274	ManagementAndGeneralAmt
Fundraising	$26,279	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$131,334	TotalAmt
Program Services	$77,984	ProgramServicesAmt
Management And General	$21,787	ManagementAndGeneralAmt
Fundraising	$31,563	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$75,108	TotalAmt
Program Services	$46,045	ProgramServicesAmt
Management And General	$11,808	ManagementAndGeneralAmt
Fundraising	$17,255	FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
CLINICAL STUDIES	$2,445,430	$2,445,430
PRINTING & PUBLICATIONS	$428,477	$68,476	$65,294	$294,707
POSTAGE, SHIPPING & DEL	$240,155	$37,758	$20,248	$182,149
DATA PROCESSING	$120,840	$31,785	$11,624	$77,431

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$211,963	TotalAmt
Program Services	$84,261	ProgramServicesAmt
Management And General	$46,167	ManagementAndGeneralAmt
Fundraising	$81,535	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$42,149,930	TotalAmt
Program Services	$33,156,485	ProgramServicesAmt
Management And General	$4,109,160	ManagementAndGeneralAmt
Fundraising	$4,884,285	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$3,033,725	BOYAmt
EOY	$1,904,566	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$259,307	BOYAmt
EOY	$103,720	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$13,309,587	BOYAmt
EOY	$3,699,420	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$281,210	BOYAmt
EOY	$601,662	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$635,827	BOYAmt
EOY	$836,617	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$1,324,535	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$1,023,518	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$182,047	BOYAmt
EOY	$301,017	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$73,055,389	BOYAmt
EOY	$76,897,060	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
BOY	$598,131	BOYAmt
EOY	$637,726	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$1,899,193	BOYAmt
EOY	$3,336,368	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$93,254,416	BOYAmt
EOY	$88,318,156	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$2,313,310	BOYAmt
EOY	$1,981,020	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$32,647,877	BOYAmt
EOY	$34,129,830	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$2,580,654	BOYAmt
EOY	$3,529,179	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$37,541,841	BOYAmt
EOY	$39,640,029	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$34,833,646	BOYAmt
EOY	$38,380,621	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$20,878,929	BOYAmt
EOY	$10,297,506	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$55,712,575	BOYAmt
EOY	$48,678,127	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$93,254,416	BOYAmt
EOY	$88,318,156	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$18,448,481	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$10,831,430	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$582,603	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$18,941,837	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$18,375,553	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$41,038,661	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$11,172,604	CurrentTaxYearMinus1YearAmt
Current Tax Year	$12,046,822	CurrentTaxYearAmt
Total	$101,575,477	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$18,941,837	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$18,375,553	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$41,038,661	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$11,172,604	CurrentTaxYearMinus1YearAmt
Current Tax Year	$12,046,822	CurrentTaxYearAmt
Total	$101,575,477	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$39,388,051	SubstantialContributorsTotAmt
Public Support Total170	$62,187,426	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$2,025,770	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$2,655,902	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,929,526	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,867,297	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,845,334	CurrentTaxYearAmt
Total	$10,323,829	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$111,899,306	TotalSupportAmt
Gross Receipts Rltd Activities	$7,399,113	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.55570	PublicSupportCY170Pct
Public Support PY170	0.44800	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$645,427	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$645,427	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$41,504,503	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$42,149,930	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$622,162	CurrentYearMinus3Amt
Current Year Minus2	$761,506	CurrentYearMinus2Amt
Current Year Minus1	$571,134	CurrentYearMinus1Amt
Current Year	$645,427	CurrentYearAmt
Total	$2,600,229	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$50,605,471	BeginningYearBalanceAmt
Investment Earnings Or Losses	$12,218,791	InvestmentEarningsOrLossesAmt
Other Expenditures	$5,354,071	OtherExpendituresAmt
End Year Balance	$57,470,191	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$51,925,078	BeginningYearBalanceAmt
Investment Earnings Or Losses	$2,690,242	InvestmentEarningsOrLossesAmt
Other Expenditures	$4,009,849	OtherExpendituresAmt
End Year Balance	$50,605,471	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$53,986,019	BeginningYearBalanceAmt
Investment Earnings Or Losses	$1,956,112	InvestmentEarningsOrLossesAmt
Other Expenditures	$4,017,053	OtherExpendituresAmt
End Year Balance	$51,925,078	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$61,314,537	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$3,669,040	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,659,722	OtherExpendituresAmt
End Year Balance	$53,986,019	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$56,586,437	BeginningYearBalanceAmt
Investment Earnings Or Losses	$7,839,333	InvestmentEarningsOrLossesAmt
Other Expenditures	$3,111,233	OtherExpendituresAmt
End Year Balance	$61,314,537	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Board Designated Balance EOY	1.00000	BoardDesignatedBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$548,216	OtherCostOrOtherBasisAmt
Depreciation	$384,047	DepreciationAmt
Book Value	$164,169	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$776,319	OtherCostOrOtherBasisAmt
Depreciation	$639,471	DepreciationAmt
Book Value	$136,848	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$301,017	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

Field	Value	IRS element (for citing)
Desc	OPERATING LEASE LIABILITIES	Desc
Amt	$3,529,179	Amt

Field	Value	IRS element (for citing)
Total Liability	$3,529,179	TotalLiabilityAmt
Total Rev Etc Audited Fincl Stmt	$35,005,074	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$10,831,430	NetUnrealizedGainsInvstAmt
Recoveries Prior Year Grants	$582,603	RecoveriesPriorYearGrantsAmt
Revenue Not Reported	$11,414,033	RevenueNotReportedAmt
Revenue Subtotal	$23,591,041	RevenueSubtotalAmt
Investment Expenses Not Incld	$110,408	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$110,408	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$23,701,449	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$42,039,522	TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported	$0	ExpensesNotReportedAmt
Expenses Subtotal	$42,039,522	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$110,408	InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt	$110,408	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$42,149,930	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART V, LINE 4:	FormAndLineReferenceDesc
Explanation	BOARD DESIGNATED (QUASI) ENDOWMENT FUND INCOME TO BE USED FOR SUPPORTING OPERATIONS AND THE RESEARCH PROGRAM. PRINCIPAL TO REMAIN INTACT UNLESS HIGH PRIORITY LUPUS RESEARCH PROJECTS NEED TO BE FUNDED THAT COULD NOT BE FUNDED OTHERWISE.	ExplanationTxt

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxt	OfficesOfficesCnt	EmployeeEmployeeCnt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	0	0	GRANTS TO RECIPIENTS	$417,676
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	0	0	GRANTS TO RECIPIENTS	$478,612

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$896,288	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$896,288	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (14 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
NORTH AMERICA	LUPUS RESEARCH	$77,522	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$15,000	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$44,892	WIRE	$0
NORTH AMERICA	LUPUS RESEARCH	$30,785	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$51,886	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$23,000	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$15,000	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$32,461	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$30,391	CHECK	$0
NORTH AMERICA	LUPUS RESEARCH	$8,000	ACH	$0
NORTH AMERICA	LUPUS RESEARCH	$88,739	CHECK	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$17,420	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$8,719	WIRE	$0
EUROPE (INCLUDING ICELAND AND GREENLAND)	LUPUS RESEARCH	$490,510	WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	11	Total501c3OrgCnt
Total Other Org	3	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, DURING THE APPLICATION PHASE, THE SPONSORING INSTITUTION (SI) MUST AGREE THAT THEY WILL AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S GRANT-SPECIFIC POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: A. CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. B. AGREE THAT PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. C. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. D. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. E. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. F. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING - FORUM FOR DISCOVERY. G. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OR PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD PROJECT PHASE: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THAT THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE PROJECT THAT IS THE SUBJECT OF THE AWARD. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THAT THE PI WILL ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LRA. E. PI'S WILLINGNESS TO COMPLETE A BRIEF SURVEY AND SUBMIT A COPY OF THEIR UP-TO-DATE CV TO THE LRA TWO AND FIVE YEARS AFTER THE GRANT END DATE. ALL SI'S RECEIVE A PAYMENT AND DELIVERABLES SCHEDULE AND THE PROJECT IS MONITORED BY: A. PERIODIC PROGRESS REPORTS B. PERIODIC FINAL REPORTS C. ANNUAL MILESTONES SCHEDULE D. ADHERENCE TO LRA TERMS AND CONDITIONS GRANT CHANGES: WHEN EXTENSIONS ARE AWARDED, ADDITIONAL PROGRESS REPORTS AND FINANCIAL REPORTS ARE REQUIRED. AT THE END OF THE GRANT, FINAL PROGRESS AND FINANCIAL REPORTS ARE REQUIRED; UNSPENT AMOUNTS OVER $500 ARE TO BE RETURNED TO THE LRA. A. THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND ORAL OR POSTER PRESENTATIONS. B. THE SI MUST SUBMIT A COPY OF THE IRS DETERMINATION LETTER OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	DS CONSULTING GROUP	BusinessNameLine1Txt

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	757 THIRD AVE 20TH FL	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10017	ZIPCd

Field	Value	IRS element (for citing)
Activity	SPECIAL EVENT CONSULTANT NY GALA	ActivityTxt
Fundraiser Control Of Funds	Yes (1)	FundraiserControlOfFundsInd
Gross Receipts	$2,756,174	GrossReceiptsAmt
Retained By Contractor	$78,000	RetainedByContractorAmt
Net To Organization	$2,756,174	NetToOrganizationAmt

Field	Value	IRS element (for citing)
Total Gross Receipts	$2,756,174	TotalGrossReceiptsAmt
Total Retained By Contractors	$78,000	TotalRetainedByContractorsAmt
Total Net To Organization	$2,756,174	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	GALA CELEBRATION	Event1Nm
Gross Receipts Event1	$3,928,958	GrossReceiptsEvent1Amt
Charitable Contri Event1	$3,147,808	CharitableContriEvent1Amt
Gross Revenue Event1	$781,150	GrossRevenueEvent1Amt
Food And Beverage Event1	$176,609	FoodAndBeverageEvent1Amt
Entertainment Event1	$232,429	EntertainmentEvent1Amt
Other Direct Expenses Event1	$372,112	OtherDirectExpensesEvent1Amt
Event2	WALK-A-THONS	Event2Nm
Gross Receipts Event2	$783,025	GrossReceiptsEvent2Amt
Charitable Contri Event2	$681,351	CharitableContriEvent2Amt
Gross Revenue Event2	$101,674	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$3,230	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$80,765	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$6,124	FoodAndBeverageEvent2Amt
Other Direct Expenses Event2	$11,555	OtherDirectExpensesEvent2Amt
Gross Receipts Total	$4,711,983	GrossReceiptsTotalAmt
Charitable Contributions Tot	$3,829,159	CharitableContributionsTotAmt
Gross Revenue Total Events	$882,824	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$3,230	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$80,765	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$182,733	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$232,429	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$383,667	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$882,824	DirectExpenseSummaryEventsAmt
Net Income Summary	$0	NetIncomeSummaryAmt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE G, PART I, LINE 2B, COLUMN (V)	FormAndLineReferenceDesc
Explanation	DS CONSULTING PLANNED AND MANAGED LRA'S GALA EVENT. CONTRACT AMOUNT FOR THE PERIOD COVERING 1/1/25 - 12/31/25 WAS $78,000 PLUS REIMBURSABLE EXPENSES.	ExplanationTxt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (65 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ALBERT EINSTEIN COLLEGE OF MEDICINE
1300 MORRIS PARK AVE	BRONX	NY	10461	472209056	501(C)(3)	$22,386	$0	LUPUS RESEARCH
BETH ISRAEL DEACONESS MEDICAL CENTER
330 BROOKLINE AVENUE	BOSTON	MA	02215	042103881	501(C)(3)	$16,088	$0	LUPUS RESEARCH
BRIGHAM AND WOMEN'S HOSPITAL
77 AVENUE LOUIS PASTEUR	BOSTON	MA	02115	042312909	501(C)(3)	$3,037,963	$0	LUPUS RESEARCH
BOSTON CHILDREN'S HOSPTIAL
300 LONGWOOD AVENUE	BOSTON	MA	02115	042774441	501(C)(3)	$167,680	$0	LUPUS RESEARCH
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BLVD	LOS ANGELES	CA	90048	951644600	501(C)(3)	$2,815,610	$0	LUPUS RESEARCH
COLUMBIA UNIVERSITY MEDICAL CENTER
154 HAVEN AVE 2ND FL	NEW YORK	NY	10032	133598093	501(C)(3)	$49,416	$0	LUPUS RESEARCH
EMORY UNIVERSITY
1762 CLIFTON RD NE	ATLANTA	GA	30322	580566256	501(C)(3)	$552,746	$0	LUPUS RESEARCH
FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH
350 COMMUNITY DRIVE	MANHASSET	NY	11030	112673595	501(C)(3)	$32,890	$0	LUPUS RESEARCH
FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH
9650 ROCKVILLE PIKE	BETHESDA	MD	20814	521986675	501(C)(3)	$100,000	$0	LUPUS RESEARCH
GEORGETOWN UNIVERSITY MEDICAL CENTER
3970 RERSERVOIR RD NW	WASHINGTON	DC	20057	530196603	501(C)(3)	$26,000	$0	LUPUS RESEARCH
HOSPITAL FOR SPECIAL SURGERY
535 E 70TH STREET	NEW YORK	NY	10021	131624135	501(C)(3)	$84,731	$0	LUPUS RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
55 FRUIT STREET	BOSTON	MA	02114	042697983	501(C)(3)	$30,328	$0	LUPUS RESEARCH
MAYO CLINIC
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	501(C)(3)	$41,303	$0	LUPUS RESEARCH
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$47,150	$0	LUPUS RESEARCH
MEDICAL UNIVERSITY OF SOUTH CAROLINA
179 ASHLEY AVENUE	CHARLESTON	SC	29425	576028985		$115,966	$0	LUPUS RESEARCH
MEMORIAL SLOAN-KETTERING CANCER CENTER
633 THIRD AVE 4TH FL	NEW YORK	NY	10017	131924236	501(C)(3)	$302,573	$0	LUPUS RESEARCH
NYU LANGONE HOSPITALS JOSEPH S AND DIANE H STEINBERG AMBULATORY CARE CEN
70 ATLANTIC AVE	BROOKLYN	NY	11201	133971298	501(C)(3)	$15,000	$0	LUPUS RESEARCH
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562308	501(C)(3)	$118,887	$0	LUPUS RESEARCH
NORTHWELL HEALTH - DIVISION OF RHEUMATOLOGY
972 BRUSH HOLLOW RD 5TH FL	WESTBURY	NY	11590	112673595	501(C)(3)	$50,627	$0	LUPUS RESEARCH
NORTHWESTERN UNIVERSITY
633 CLARK STREET	EVANSTON	IL	60208	362167818	501(C)(3)	$47,942	$0	LUPUS RESEARCH
OKLAHOMA MEDICAL RESEARCH FOUNDATION
825 NE 13TH STREET	OKLAHOMA CITY	OK	73104	730580274	501(C)(3)	$77,661	$0	LUPUS RESEARCH
PENNSYLVANIA STATE UNIVERSITY
ONE OLD MAIN	UNIVERSITY PARK	PA	16802	246000376	501(C)(3)	$610,890	$0	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA IRVINE
5171 CALIFORNIA AVENUE STE 150	IRVINE	CA	92697	952226406	501(C)(3)	$38,595	$0	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE MC0934	LA JOLLA	CA	92093	956006144	501(C)(3)	$812,485	$0	LUPUS RESEARCH
RUSH UNIVERSITY MEDICAL CENTER
1653 WEST CONGRESS PARKWAY	CHICAGO	IL	60612	362174823	501(C)(3)	$29,875	$0	LUPUS RESEARCH
STANFORD UNIVERSITY
3145 PORTER DRIVE	PALO ALTO	CA	94304	941156365	501(C)(3)	$320,175	$0	LUPUS RESEARCH
STATE UNIVERSITY OF NY AT STONY BROOK
ONE LINCOLN CENTER	SYRACUSE	NY	13202	141368361	501(C)(3)	$32,000	$0	LUPUS RESEARCH
THE METROHEALTH SYSTEM
2500 METROHEALTH DRIVE	CLEVELAND	OH	44109	346004382		$25,125	$0	LUPUS RESEARCH
THE OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	311702164		$31,160	$0	LUPUS RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
10920 WILSHIRE BLVD STE 620	LOS ANGELES	CA	90024	956006143	501(C)(3)	$76,108	$0	LUPUS RESEARCH
THE UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE STE 501	CHICAGO	IL	60637	362177139	501(C)(3)	$32,200	$0	LUPUS RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
6000 FELDWOOD ROAD	COLLEGE PARK	GA	30349	566001393	501(C)(3)	$147,511	$0	LUPUS RESEARCH
TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$1,344,967	$0	LUPUS RESEARCH
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1530 3RD AVE S	BIRMINGHAM	AL	35294	636005396	501(C)(3)	$58,100	$0	LUPUS RESEARCH
UNIVERSITY OF ARIZONA COLLEGE OF MEDICINE TUCSON
1501 N CAMPBELL AVE	TUCSON	AZ	85724	742652689		$40,656	$0	LUPUS RESEARCH
UNIVERSITY OF CALIFORNIA SAN FRANCISCO
2200 UNIVERSITY HALL	BERKELEY	CA	94720	946036493	501(C)(3)	$72,940	$0	LUPUS RESEARCH
UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS
3100 MARINE ST 6TH FL	BOULDER	CO	80309	846000555	501(C)(3)	$442,073	$0	LUPUS RESEARCH
UNIVERSITY OF FLORIDA
207 TIGERT HALL	GAINSEVILLE	FL	32611	596002052		$29,859	$0	LUPUS RESEARCH
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE
3901 RAINBOW BLVD	KANSAS CITY	KS	66160	481108830	501(C)(3)	$22,779	$0	LUPUS RESEARCH
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGON STREET 4TH FL	BALTIMORE	MD	21201	521830242		$58,860	$0	LUPUS RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUENORTH	WORCESTER	MA	01655	043167352		$146,058	$0	LUPUS RESEARCH
UNIVERSITY OF MIAMI
1320 S DIXIE HIGHWAY GABLES ONE	CORAL GABLES	FL	33146	590624458	501(C)(3)	$62,188	$0	LUPUS RESEARCH	TOWER 650
UNIVERSITY OF MICHIGAN
503 THOMPSON STREET	ANN ARBOR	MI	48109	386006309	501(C)(3)	$333,441	$0	LUPUS RESEARCH
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
1 GUSTAVE L LEVY PL	NEW YORK	NY	10029	136171197	501(C)(3)	$449,585	$0	LUPUS RESEARCH
UNIVERSITY OF NEBRASKA MEDICAL CENTER
988145 NEBRASKA MEDICA CTR	OMAHA	NE	68198	911858433	501(C)(3)	$30,770	$0	LUPUS RESEARCH
UNIVERSITY OF NEVADA LAS VEGAS
4505 S MARYLAND PARKWAY	LAS VEGAS	NV	89154	886000024		$40,536	$0	LUPUS RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE	PITTSBURGH	PA	15213	250965591	501(C)(3)	$93,029	$0	LUPUS RESEARCH
UNIVERSITY OF ROCHESTER
518 HYLAN BUILDING	ROCHESTER	NY	14627	160743209	501(C)(3)	$35,498	$0	LUPUS RESEARCH
UNIVERSITY OF SOUTHERN CALIFORNIA
1640 MARENGO STREET 7TH FL	LOS ANGELES	CA	90033	951642394	501(C)(3)	$25,795	$0	LUPUS RESEARCH
UNIVERSITY OF WASHINGTON
3917 UNIVERSITY WAY NE	SEATTLE	WA	98195	916001537		$327,414	$0	LUPUS RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	75390	746000203		$62,887	$0	LUPUS RESEARCH
VANDERBILT UNIVERSITY MEDICAL CENTER
1211 MEDICAL CENTER DRIVE	NASHVILLE	TN	37232	352528741	501(C)(3)	$63,370	$0	LUPUS RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTONSALEM	NC	27157	223849199	501(C)(3)	$24,743	$0	LUPUS RESEARCH
WALLACE RHEUMATIC STUDIES CENTER LLC
8737 BENVERLY BLVD STE 301	W HOLLYWOOD	CA	90048	455434561	501(C)(3)	$68,184	$0	LUPUS RESEARCH
WASHINGTON UNIVERSITY SCHOOL OF MEDICINE MISSOURI
ONE BROOKINGS DRIVE	ST LOUIS	MO	63130	430653611	501(C)(3)	$27,185	$0	LUPUS RESEARCH
WEILL CORNELL MEDICAL COLLEGE
1300 YORK AVENUE	NEW YORK	NY	10065	131623978	501(C)(3)	$10,000	$0	LUPUS RESEARCH
YALE UNIVERSITY
BOX 208239	NEW HAVEN	CT	06520	060646973	501(C)(3)	$121,813	$0	LUPUS RESEARCH
UNIVERSITY OF VIRGINIA
1001 N EMMET ST	CHARLOTTESVILLE	VA	22903	546001796	501(C)(3)	$577,127	$0	LUPUS RESEARCH
BREAKTHROUGH T1D
200 VESEY STREET 28TH FLOOR	NEW YORK	NY	10281	231907729	501(C)(3)	$224,989	$0	LUPUS RESEARCH
OREGON HEALTH AND SCIENCE UNIVERSITY
3181 SAM JACKSON PARK ROAD	PORTLAND	OR	97239	931176109	501(C)(3)	$26,000	$0	LUPUS RESEARCH
PROVIDENCE ST JOSEPH HEALTH
1801 LIND AVE SW	RENTON	WA	98057	811244422	501(C)(3)	$33,482	$0	LUPUS RESEARCH
FASEB
6120 EXECUTIVE BLVD STE 230	ROCKVILLE	MD	20852	520700497	501(C)(3)	$6,000	$0	LUPUS RESEARCH
JOHNS HOPKINS UNIVERSITY
3400 N CHARLES ST	BALTIMORE	MD	21218	520595110	501(C)(3)	$288,825	$0	LUPUS RESEARCH
UNIVERSITY OF HOUSTON
4800 CALHOUN ROAD	HOUSTON	TX	77004	746001399	501(C)(3)	$33,248	$0	LUPUS RESEARCH
SEATTLE CHILDRENS HOSPITAL
818 STEWART ST	SEATTLE	WA	98145	910564748	501(C)(3)	$29,083	$0	LUPUS RESEARCH

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

Field	Value	IRS element (for citing)
Grant Type	LUPUS EMERGENCY GRANT- $500 MAX PER PERSON	GrantTypeTxt
Recipient	84	RecipientCnt
Cash Grant	$40,305	CashGrantAmt
Valuation Method Used	BILLS	ValuationMethodUsedDesc
Non Cash Assistance	LUPUS EMERGENCY GRANT- $500 MAX PER PERSON	NonCashAssistanceDesc

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	PRE AWARD AND APPLICATION PHASE: BEFORE A GRANT IS AWARDED, DURING THE APPLICATION PHASE, THE SPONSORING INSTITUTION (SI) MUST AGREE THAT THEY WILL AGREE TO THE TERMS AND CONDITIONS OUTLINED IN THE LUPUS RESEARCH ALLIANCE (LRA)'S GRANT-SPECIFIC POLICY STATEMENT FOR RESEARCH GRANTS THAT INCLUDE: A. CONFIRMATION BY THE PRINCIPAL INVESTIGATOR (PI) AND THE SI THAT FUNDS WILL ONLY BE USED AS DESCRIBED IN THE APPLICATION SUBMITTED AND APPROVED FOR FUNDING. B. AGREE THAT THE PI AND SI ARE BOTH RESPONSIBLE FOR INSURING THAT ALL RESEARCH ACTIVITIES ARE CONDUCTED IN A SAFE, RESPONSIBLE AND ETHICAL MANNER. THEY MUST KEEP UPDATED APPROVAL FROM THE SI'S INSTITUTIONAL REVIEW BOARD AND ANIMAL CARE AND USE COMMITTEE THROUGHOUT THE PROJECT PERIOD. C. AGREE TO GET APPROVAL FROM THE LRA IF THERE NEEDS TO BE A SIGNIFICANT CHANGE TO THE BUDGET AS SUBMITTED. D. AGREE TO GET APPROVAL FROM THE LRA IF ADDITIONAL TIME IS NEEDED TO COMPLETE THE PROJECT WORK. E. AGREE TO SUBMIT ALL DELIVERABLES AND REPORTS AS SCHEDULED: (A) ANNUAL PROGRESS REPORTS AND (B) ANNUAL FINANCIAL REPORTS ARE REQUIRED. F. TRAVEL FUNDS PROVIDED AS PART OF THE PROJECT ARE EXPECTED TO BE USED TO ATTEND THE LRA'S ANNUAL MEETING - FORUM FOR DISCOVERY. G. CONFIRMATION THAT THERE IS NO OTHER ACTIVE OR PENDING SUPPORT FOR THE SPECIFIC PROJECT THAT IS THE SUBJECT OF THE GRANT. POST AWARD PROJECT PHASE: THE PI AND A REPRESENTATIVE FROM THE SI MUST SUBMIT A SIGNED LETTER OF ACCEPTANCE CONFIRMING THE FOLLOWING: A. PI'S WILLINGNESS TO ADHERE TO THE TERMS OF THE BUDGET AS OUTLINED IN THE FUNDING LETTER. B. PI'S WILLINGNESS TO COMPLY WITH ALL OF THE CONDITIONS OUTLINED IN THE POLICY STATEMENT FOR RESEARCH GRANTS AND PATENT AND INTELLECTUAL PROPERTY POLICY. C. THAT THERE IS NO OVERLAPPING SOURCE OF SUPPORT FOR THE PROJEC TTHAT IS THE SUBJECT OF THE AWARD. OTHER FUNDING THAT MIGHT BE CONSTRUED AS OVERLAPPING, MUST BE EXPLAINED IN DETAIL. D. THAT THE PI WILL ACCEPT RESPONSIBILITY FOR THE SCIENTIFIC AND TECHNICAL CONDUCT OF THE PROJECT AND FOR THE PROVISION OF ALL PROGRESS REPORTS REQUIRED FROM INVESTIGATORS FUNDED BY A GRANT FROM THE LRA. E. PI'S WILLINGNESS TO COMPLETE A BRIEF SURVEY AND SUBMIT A COPY OF THEIR UP-TO-DATE CV TO THE LRA TWO AND FIVE YEARS AFTER THE GRANT END DATE. ALL SI'S RECEIVE A PAYMENT AND DELIVERABLES SCHEDULE AND THE PROJECT IS MONITORED BY: A. PERIODIC PROGRESS REPORTS B. PERIODIC FINAL REPORTS C. ANNUAL MILESTONE SCHEDULE D. ADHERENCE TO LRA TERMS AND CONDITIONS GRANT CHANGES: WHEN EXTENSIONS ARE AWARDED, ADDITIONAL PROGRESS REPORTS AND FINANCIAL REPORTS ARE REQUIRED. AT THE END OF THE GRANT, FINAL PROGRESS AND FINANCIAL REPORTS ARE REQUIRED; UNSPENT AMOUNTS OVER $500 ARE TO BE RETURNED TO THE LRA. THE LRA MUST BE LISTED AS A FUNDER IN ANY PUBLISHED PAPERS AND ORAL OR POSTER PRESENTATIONS. THE SI MUST SUBMIT A COPY OF THE IRS DETERMINATION LETTER OR OTHER TAX GOVERNING INSTITUTION CONFIRMING THE TAX STATUS OF THE SI.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Written Employment Contract	Yes (X)	WrittenEmploymentContractInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	0	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (14 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
ALBERT T ROY
CEO AND PRESIDENT	$369,801	$0	$85,000	$0	$2,968	$0	$34,500	$0	$61,580	$0	$553,849	$0	$0	$0
STACIE BELL PHD
CHIEF CLINICAL RESEARCH OF	$268,900	$0	$10,000	$0	$3,344	$0	$24,000	$0	$26,676	$0	$332,920	$0	$0	$0
DEBRA ROSE
CHIEF FINANCAL OFFICER	$238,620	$0	$10,000	$0	$2,865	$0	$31,301	$0	$57,247	$0	$340,033	$0	$0	$0
TEODORA STAEVA PHD
CHIEF SCIENTIFIC OFFICER	$286,934	$0	$50,000	$0	$2,212	$0	$34,481	$0	$49,336	$0	$422,963	$0	$0	$0
ANDREA O'NEILL
VP, DEVELOPMENT	$252,482	$0	$15,000	$0	$3,084	$0	$26,964	$0	$17,621	$0	$315,151	$0	$0	$0
NICOLE CAPOSSELA
CHEIF ADVANCEMENT OFFICER	$299,175	$0	$50,000	$0	$1,578	$0	$0	$0	$41,164	$0	$391,917	$0	$0	$0
PENELOPE MITCHELL
VP OF COMMUNICATIONS	$193,872	$0	$15,000	$0	$3,509	$0	$20,720	$0	$26,777	$0	$259,878	$0	$0	$0
LUKE EASLEY
VP OF HR & ADMINISTRATION	$207,813	$0	$0	$0	$1,164	$0	$18,553	$0	$24,162	$0	$251,692	$0	$0	$0
DEVON KELLY
LUPUS NEXUS DIRECTOR	$223,554	$0	$9,042	$0	$3,686	$0	$18,084	$0	$27,773	$0	$282,139	$0	$0	$0
DOREY NEILINGER
SENIOR DIRECTOR OF PHILANT	$185,306	$0	$0	$0	$3,721	$0	$20,530	$0	$27,218	$0	$236,775	$0	$0	$0
HOANG NGUYEN
DIRECTOR OF SCIENTIFIC PAR	$188,100	$0	$10,000	$0	$2,071	$0	$13,439	$0	$26,062	$0	$239,672	$0	$0	$0
NIKOLAY NEPOCHATOV
BIOINFORMATICS SOFTWARE ENGINEER	$173,652	$0	$0	$0	$882	$0	$17,233	$0	$33,574	$0	$225,341	$0	$0	$0
KENNETH M FARBER
FORMER CEO & PRESIDENT	$340,000	$0	$0	$0	$0	$0	$0	$0	$0	$0	$340,000	$0	$0	$0
JENNIFER MERIWETHER
CLIN OPS DIRECTOR, LT	$205,752	$0	$10,288	$0	$1,393	$0	$15,827	$0	$23,936	$0	$257,196	$0	$0	$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	8	ContributionCnt
Noncash Contributions Rpt F990	$201,792	NoncashContributionsRptF990Amt
Method Of Determining Revenues	AVG STOCK VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	Yes (1)	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 32B:	FormAndLineReferenceDesc
Explanation	LRA HAS AN ACCOUNT WITH MORGAN STANLEY, WHICH LRA USES TO SELL THE CONTRIBUTIONS IT RECEIVES THOUGH STOCKS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 1A	EXECUTIVE COMMITTEE IS COMPRISED OF THE BOARD CO-CHAIRS, PRESIDENT, BOARD SECRETARY AND ONE ADDITIONAL VOTING BOARD MEMBER. THE EXECUTIVE COMMITTEE APPROVES DETAILS OF PROGRAMS ALREADY APPROVED BY THE BOARD, STAFF COMPENSATION AND LARGE CONTRACT NEGOTIATIONS.
FORM 990, PART VI, SECTION A, LINE 2	IRA AKSELRAD AND ROBERT WOOD JOHNSON, IV (PAST CHAIRMAN OF THE BOARD), HAVE A BUSINESS RELATIONSHIP. RICHARD K. DESCHERER (CO-CHAIR) AND JENNIE DESCHERER HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION B, LINE 11B	AFTER PREPARATION OF FORM 990 BY LRA'S AUDITOR, LUTZ AND CARR, THE 990 IS REVIEWED BY THE LRA'S EXECUTIVE OFFICERS, THE CHIEF FINANCIAL OFFICER AND THE PRESIDENT. THE FINANCE AND AUDIT COMMITTEE OF THE BOARD THEN MEETS TO REVIEW THE 990 BEFORE FILING AND APPROVES FOR FILING WITH ANY NOTED CHANGES. A DRAFT OF THE 990 IS THEN SENT OUT TO THE FULL BOARD FOR COMMENT PRIOR TO FILING WITH THE IRS. THE FINAL FORM 990 IS PRESENTED TO THE FULL BOARD AT THE NEXT SCHEDULED MEETING.
FORM 990, PART VI, SECTION B, LINE 12C	THE EXECUTIVE COMMITTEE OF THE BOARD IS RESPONSIBLE FOR MONITORING CONFLICTS OF INTEREST. AN ANNUAL CONFLICT OF INTEREST DISCLOSURE FORM IS REQUIRED TO BE FILLED OUT EACH YEAR BY BOARD MEMBERS, OFFICERS AND KEY EMPLOYEES.
FORM 990, PART VI, SECTION B, LINE 15	THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS ASSISTED THE BOARD IN FULFILLING ITS OVERSIGHT RESPONSIBILITIES RELATING TO THE COMPENSATION AND BENEFITS OF THE PRESIDENT AND OTHER EXECUTIVE OFFICERS; AND PROVIDED RECOMMENDATIONS REGARDING MANAGEMENT SUCCESSORS. ANNUALLY THE COMMITTEE REVIEWS AND RECOMMENDS TO THE BOARD THE SALARY FOR THE PRESIDENT AND OTHER OFFICERS/KEY EMPLOYEES. IN 2025, THE COMMITTEE REVIEWED AND APPROVED BASE SALARIES, 2026 COMPENSATION PLAN INCLUDING THE 2025 YEAR-END BONUS POOL FOR ALL STAFF AND THE 403B NON-ELECTIVE EMPLOYER CONTRIBUTION TO ALL ELIGIBLE STAFF.
FORM 990, PART VI, SECTION C, LINE 19	THE ORGANIZATION'S GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST, THE CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE ALSO AVAILABLE UPON REQUEST AND ARE ON THE FINANCIALS PAGE OF OUR WEBSITE AND ON GUIDESTAR.ORG
FORM 990, PART XI, LINE 9:	CANCELLED GRANTS 582,603.
FORM 990, PART V, QUESTION 2A	THE LRA CONTRACTS WITH TRINET, A PROFESSIONAL EMPLOYER ORGANIZATION (PEO), TO PROVIDE PAYROLL AND BENEFITS AS A CO-EMPLOYER WITH THE LRA. LRA PAYROLL AND BENEFITS ARE ADMINISTERED BY TRINET AS APPROVED BY LRA OFFICERS. LRA PAYROLL IS THEREFORE UNDER THE TRINET EIN: 13-3867443 AND W-2'S ARE PREPARED UNDER THAT EIN BY TRINET.

Schedule R IRS990ScheduleR

Id Disregarded Entities IdDisregardedEntitiesGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	EINEIN	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile StateLegalDomicileStateCd	Total IncomeTotalIncomeAmt	End Of Year AssetsEndOfYearAssetsAmt	Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt
LUPUS THERAPEUTICS LLC
52 VANDERBILT AVE SUITE 401	NEW YORK	NY	10017	823984908	LRA'S CLINICAL TRIAL AFFILIATE, OVERSEEING CLINICAL RESEARCH ACTIVITY	NY	$3,236,521	$501,280	YES
LUPUS VENTURES LLC
52 VANDERBILT AVE SUITE 401	NEW YORK	NY	10017	582492929	LRA'S VENTURE INVESTMENT FUND	NY	$0	$361,524	YES