PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC (EIN 58-1966822)
Tax period
2024-10-01 to 2025-09-30
Filed
2026-08-15
IRS object ID
202602279349301105
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-08-15T11:43:01-00:00ReturnTs
Tax Period End2025-09-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN331037531PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1Outfitters4 IncBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1717 Coliseum Dr NWAddressLine1Txt
CityWinston SalemCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27106ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-10-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN581966822EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Pediatric Brain Tumor Foundation of the United States IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlPEDIBusinessNameControlTxt
Phone8002536530PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1380 Knollwood St STE H 125AddressLine1Txt
CityWinston SalemCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27103ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJeffrey A GelfandPersonNm
Person TitleBoard ChairPersonTitleTxt
Phone8002536530PhoneNum
Signature2026-08-14SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonBrittany EmeryPreparerPersonNm
PTINP02119496PTIN
Phone3369300140PhoneNum
Preparation2026-08-14PreparationDt
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJeffrey A GelfandPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1380 Knollwood St STE H 125AddressLine1Txt
CityWinston SalemCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27103ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$5,848,026GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.curethekids.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1992FormationYr
Legal Domicile StateDELegalDomicileStateCd
Activity Or MissionEliminate childhood brain tumors and support families living with this devastating disease.ActivityOrMissionDesc
Voting Members Governing Body14VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee28TotalEmployeeCnt
Total Volunteers475TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$4,881,230PYContributionsGrantsAmt
CY Contributions Grants$5,771,143CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$158,216PYInvestmentIncomeAmt
CY Investment Income$76,883CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$5,039,446PYTotalRevenueAmt
CY Total Revenue$5,848,026CYTotalRevenueAmt
PY Grants And Similar Paid$1,880,872PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,157,997CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$3,010,566PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$2,683,942CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$810,931CYTotalFundraisingExpenseAmt
PY Other Expenses$1,758,670PYOtherExpensesAmt
CY Other Expenses$2,291,193CYOtherExpensesAmt
PY Total Expenses$6,650,108PYTotalExpensesAmt
CY Total Expenses$6,133,132CYTotalExpensesAmt
PY Revenues Less Expenses-$1,610,662PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$285,106CYRevenuesLessExpensesAmt
Total Assets BOY$3,337,274TotalAssetsBOYAmt
Total Assets EOY$2,864,550TotalAssetsEOYAmt
Total Liabilities BOY$1,191,093TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,003,475TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$2,146,181NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$1,861,075NetAssetsOrFundBalancesEOYAmt
MissionVision A world without childhood brain tumors. Mission Care. Cure. Thrive.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$4,617,296ExpenseAmt
Grant$1,157,997GrantAmt
DescThe Pediatric Brain Tumor Foundation funded research by leading experts across many institutions including Joelle Straehla at Seattle Childrens Hospital, Drs. Paul Northcott and Ching Lau at the Brain Tumor Funders Collective, Dr. David H. Gutmann and team at Washington University School of Medicine, Drs. Bandopadhayay and Beroukhim as well as Dr. Ligon at Dana Farber Cancer Institute, and Drs. Castro and Lowestein as well as Dr. Koschmann at the University of Michigan. PBTF also funded a Pediatric Statistical report led by Dr. Quinn Ostrom Risch Brain Tumor Center at Duke University at the Central Brain Tumor Repository of the United States. The Foundation played a critical role in establishing a Pediatric Neurology Oncology Journal led by Dr. Sabine Mueller. PBTF served 3,694 families through critical guidance, assistance with accessing care, and financial aid. PBTF also made policy impacts at the state and federal level through a network of 2,251 advocates. This work was made possible due in part to the addition of 6,718 new donors, a 13 increase in donors from last year.Desc
Total Program Service Expenses$4,617,296TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (true)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document26IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee28EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members14GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersYes (true)LocalChaptersInd
Policies Reference ChaptersYes (true)PoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
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Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Outfitters4 IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone3369300140PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1717 Coliseum Drive NWAddressLine1Txt
CityWinston SalemCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27106ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (22 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtOfficerOfficerIndFormer Ofcr Director TrusteeFormerOfcrDirectorTrusteeIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeIndIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
Courtney Davies
CEO/President Through Sept 2024050.00Yes (X)Yes (X)$319,545$0$21,704
Alyson Levine
Chief Development Officer040.00$200,924$0$0Yes (X)
Geoff Still
CFO/COO050.00Yes (X)$178,746$0$18,565
Ian M Joyce
Chief Marketing/Mission Officer Through Sept 2024040.00$129,151$0$13,522Yes (X)
Michael Henry
Director of Advocacy040.00$109,619$0$4,387Yes (X)
Tammy Bates
Senior Director of Operations040.00$108,258$0$4,990Yes (X)
Kimberly Roy-Canning
Director of Donor Relations Through Dec 2024040.00$101,705$0$9,959Yes (X)
Larry Little
Secretary002.00Yes (X)$0$0$0Yes (X)
Chuck Boderman
Vice Chair002.00Yes (X)$0$0$0Yes (X)
Peter Krause
Treasurer001.00Yes (X)$0$0$0Yes (X)
Jeffrey A Gelfand
Chair020.00Yes (X)$0$0$0Yes (X)
Karl Mueller
Director001.00$0$0$0Yes (X)
Ken Murphy
Director001.00$0$0$0Yes (X)
John Ragnoni
Director002.00$0$0$0Yes (X)
Anne Sutton
Director001.00$0$0$0Yes (X)
Kristin Young
Director001.00$0$0$0Yes (X)
Bryan Waddell
Director002.00$0$0$0Yes (X)
Andrew Janower
Director001.00$0$0$0Yes (X)
Katie Bernard
Director001.00$0$0$0Yes (X)
Sanjay Gupta
Director Through Nov 2024001.00$0$0$0Yes (X)
Sam Blackman
Director Effective Jan 2025001.00$0$0$0Yes (X)
Tyler Henritze
Director Effective 10/15/2024001.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$1,147,948TotalReportableCompFromOrgAmt
Total Other Compensation$73,127TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K7IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedYes (true)FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
Group Gordon
747 3rd Ave 32nd FloorNew YorkNY10017Public Relations$225,055
Outfitters4 Inc
717 Coliseum Dr NWWinston SalemNC27106Accounting Services$106,852
FreeWill Co
PO Box 5322KingwoodTX77325Website Services$175,964
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K3CntrctRcvdGreaterThan100KCnt
All Other Contributions$5,771,143AllOtherContributionsAmt
Noncash Contributions$148,000NoncashContributionsAmt
Total Contributions$5,771,143TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$76,883TotalRevenueColumnAmt
Exclusion$76,883ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,848,026TotalRevenueColumnAmt
Exclusion$76,883ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$684,781TotalAmt
Program Services$684,781ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$473,216TotalAmt
Program Services$473,216ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$253,909TotalAmt
Program Services$192,392ProgramServicesAmt
Management And General$32,215ManagementAndGeneralAmt
Fundraising$29,302FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$2,001,557TotalAmt
Program Services$1,516,625ProgramServicesAmt
Management And General$253,948ManagementAndGeneralAmt
Fundraising$230,984FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$80,233TotalAmt
Program Services$60,794ProgramServicesAmt
Management And General$10,180ManagementAndGeneralAmt
Fundraising$9,259FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$175,728TotalAmt
Program Services$133,153ProgramServicesAmt
Management And General$22,296ManagementAndGeneralAmt
Fundraising$20,279FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$172,515TotalAmt
Program Services$130,718ProgramServicesAmt
Management And General$21,888ManagementAndGeneralAmt
Fundraising$19,909FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$203,957TotalAmt
Program Services$154,543ProgramServicesAmt
Management And General$25,877ManagementAndGeneralAmt
Fundraising$23,537FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Fees For Services Prof FundraisingFeesForServicesProfFundraising

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$593,924TotalAmt
Program Services$450,030ProgramServicesAmt
Management And General$75,354ManagementAndGeneralAmt
Fundraising$68,540FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$224,932TotalAmt
Program Services$172,873ProgramServicesAmt
Management And General$3,580ManagementAndGeneralAmt
Fundraising$48,479FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$187,823TotalAmt
Program Services$102,373ProgramServicesAmt
Management And General$19,499ManagementAndGeneralAmt
Fundraising$65,951FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$501,568TotalAmt
Program Services$305,272ProgramServicesAmt
Management And General$63,641ManagementAndGeneralAmt
Fundraising$132,655FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$18,298TotalAmt
Program Services$3,009ProgramServicesAmt
Management And General$10,529ManagementAndGeneralAmt
Fundraising$4,760FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$163,134TotalAmt
Program Services$65,916ProgramServicesAmt
Management And General$51,733ManagementAndGeneralAmt
Fundraising$45,485FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$25,731TotalAmt
Program Services$6,755ProgramServicesAmt
Management And General$9,464ManagementAndGeneralAmt
Fundraising$9,512FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$72,563TotalAmt
Management And General$72,563ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$15,593TotalAmt
Program Services$9,199ProgramServicesAmt
Management And General$2,980ManagementAndGeneralAmt
Fundraising$3,414FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Fees and licenses$112,536$19,982$15,887$76,667
Auto Expense$40,391$15,596$11,709$13,086
Donor Other Incentives$92,406$90,498$512$1,396

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$38,337TotalAmt
Program Services$29,571ProgramServicesAmt
Management And General$1,050ManagementAndGeneralAmt
Fundraising$7,716FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$6,133,132TotalAmt
Program Services$4,617,296ProgramServicesAmt
Management And General$704,905ManagementAndGeneralAmt
Fundraising$810,931FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$430,318BOYAmt
EOY$745,453EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$596,492BOYAmt
EOY$925,296EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$59,245BOYAmt
EOY$25,383EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$217,688LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$139,079LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$151,172BOYAmt
EOY$78,609EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$2,097,068BOYAmt
EOY$1,084,701EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$2,979BOYAmt
EOY$5,108EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$3,337,274BOYAmt
EOY$2,864,550EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$352,453BOYAmt
EOY$147,856EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$838,640BOYAmt
EOY$855,619EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,191,093BOYAmt
EOY$1,003,475EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$732,647BOYAmt
EOY$386,699EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,413,534BOYAmt
EOY$1,474,376EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,146,181BOYAmt
EOY$1,861,075EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$3,337,274BOYAmt
EOY$2,864,550EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$285,106ReconcilationRevenueExpnssAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedfalseFSAuditedInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,836,629CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$6,000,577CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,929,228CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,805,735CurrentTaxYearMinus1YearAmt
Current Tax Year$5,771,143CurrentTaxYearAmt
Total$25,343,312TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,836,629CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$6,000,577CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,929,228CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,805,735CurrentTaxYearMinus1YearAmt
Current Tax Year$5,771,143CurrentTaxYearAmt
Total$25,343,312TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$3,409,953SubstantialContributorsTotAmt
Public Support Total170$21,933,359PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$14,534CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$21,568CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$129,201CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$158,216CurrentTaxYearMinus1YearAmt
Current Tax Year$76,883CurrentTaxYearAmt
Total$400,402TotalAmt
FieldValueIRS element (for citing)
Total Support$25,743,714TotalSupportAmt
Public Support CY1700.85200PublicSupportCY170Pct
Public Support PY1700.98600PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Incl Escrow Custodial Acct LiabfalseInclEscrowCustodialAcctLiabInd

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$732,647BeginningYearBalanceAmt
Other Expenditures$345,948OtherExpendituresAmt
End Year Balance$386,699EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,473,767BeginningYearBalanceAmt
Other Expenditures$741,120OtherExpendituresAmt
End Year Balance$732,647EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,473,767BeginningYearBalanceAmt
End Year Balance$1,473,767EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$1,041,946BeginningYearBalanceAmt
Contributions$431,821ContributionsAmt
End Year Balance$1,473,767EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$816,243BeginningYearBalanceAmt
Contributions$225,703ContributionsAmt
End Year Balance$1,041,946EndYearBalanceAmt
FieldValueIRS element (for citing)
Board Designated Balance EOY1.00000BoardDesignatedBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$217,688OtherCostOrOtherBasisAmt
Depreciation$139,079DepreciationAmt
Book Value$78,609BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$78,609TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (2 entries)

DescDesc
Financial derivatives and other financial products
Closely-held equity interests

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescFederal income taxesDesc

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (9 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
Society for Neuro-Oncology
PO Box 273296HoustonTX77277760499664501c3$100,000Research Grant
Health Research Alliance Inc
3110 Edwards Mill Rd Ste 300RaleighNC27612680617198501c3$100,000Research Grant
American Association for Cancer Research Foundation
615 Chestnut St Fl 17PhiladelphiaPA19106233100004501c3$60,000Research Grant
Central Brain Tumor Registry of the United States
15 Salt Creek Ln Ste 200HinsdaleIL60521363918407501c3$60,013Brain Tumor Report Grant
Regents of the University of Michigan
2301 Commonwealth Blvd Ste 100Ann ArborMI48105386006309501c3$125,664Research Grant
Richi Childhood Cancer Foundation
705 Adams StHollistonMA01746800893992501c3$5,000Research Grant
Dana-Farber Cancer Institute
450 Brookline Avenue Bp418BostonMA02215042263040501c3$325,000Research Grant
Tough2gether Foundation
2201 Columbian RdWamegoKS66547921204987501c3$5,500Research Grant
Association of Pediatric Oncology Social Workers Inc
559 Jones Woods RdNewcastleME04553251428562501c6$10,000Research Grant
FieldValueIRS element (for citing)
Total501c3 Org8Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeDirect Aid to FamiliesGrantTypeTxt
Recipient276RecipientCnt
Cash Grant$473,216CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I Line 2FormAndLineReferenceDesc
ExplanationAll annual research grants undergo scientific peer review by PBTFs Research Advisory Network RAN and Technology Advisory Network TAN, with final selections made by the Research Advisory Committee RAC, based on five criteria Scientific Significance, Rigor Translational Pathway, Data Strategy Harmonization, AI/ML Integration, and Team, Governance Equity. Each recipient must submit a hypothesis-driven proposal with specific aims and a timeline, periodic progress reports with a scientific rationale for aims achieved or, if circumstances alter the timeline, a stated reason and a no-cost extension request with a revised timeline, and a final report before the final grant payment is released. Each grant is subject to an optional site visit by PBTFs Senior Director of Research, Senior Scientific Research Advisor, and Chief Executive Officer, at which researchers present results in person and answer questions these requirements apply uniformly regardless of the researchers or institutions location. Progress and final reports are reviewed by PBTFs Senior Director of Research, the Research Advisory Network, and final approval of all grants is conditioned on approval by the Board of Directors.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtBonus Filing OrganizationBonusFilingOrganizationAmountDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
Geoff Still
CFO/COO$178,200$546$8,387$10,178$197,311
Courtney Davies
CEO/President Through Sept 2024$319,545$13,770$7,934$341,249
Alyson Levine
Chief Development Officer$200,417$507$200,924

Schedule M IRS990ScheduleM

Other Non Cash Contri Table OtherNonCashContriTableGrp (3 entries)

Non Cash CheckboxNonCashCheckboxIndDescDescContributionContributionCntNoncash Contributions Rpt F990NoncashContributionsRptF990AmtMethod Of Determining RevenuesMethodOfDeterminingRevenuesTxt
Yes (X)Ride Share Services3$120,000FMV
Yes (X)Squishmallows pillows1$12,500FMV
Yes (X)Gift Cards2$15,500FMV

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part IV, Line 12aTHE ORGANIZATION CHANGED ITS FISCAL YEAR-END FROM SEPTEMBER 30 TO JUNE 30. CONSEQUENTLY, AN INDEPENDENT AUDIT IS SCHEDULED FOR THE 21-MONTH TRANSITION PERIOD COVERING OCTOBER 1, 2024, THROUGH JUNE 30, 2026. STANDALONE AUDITED FINANCIAL STATEMENTS WERE NOT PREPARED OR ISSUED FOR THE FISCAL YEAR ENDED SEPTEMBER 30, 2025 FINANCIAL RESULTS FOR THIS PERIOD WILL BE AUDITED AS PART OF THE FULL TRANSITION PERIOD AUDIT.
Form 990, Part VI, Section B, Line 11bUpon receiving a final draft, the return is presented at a scheduled Executive Committee meeting. The return is presented to the full Executive Committee by the management of the organization and comments are allowed.
Form 990, Part VI, Section B, Line 12cAll financial transactions both revenue and expenses are conducted with the knowledge and/or approval of either the CEO or the CFO. These transactions are reviewed for any potential conflicts of interest. Any conflicts of interests are brought to the attention of the Executive Committee.
Form 990, Part VI, Section B, Line 15The Boards Executive Committee determines compensation and benefits for the CEO after reviewing the most current Candid nonprofit compensation report, other comparable data, scope of responsibility, size of organization, responsibility and budget to determine the reasonableness of the salary.
Form 990, Part VI, Section C, Line 18Recent filings of the Form 990 are available online at curethekids.org, Candid, and charity navigator.
Form 990, Part VI, Section C, Line 19The Foundation makes its governing documents, conflict of interests policy, and financial statements available via written request. Additionally, these documents are made available to all state governments that require annual filling of charitable organizations.

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