MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2010

View the entire original 990 at ProPublica ↗

Organization: MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period: 2010-01-01 to 2010-12-31
Filed: 2011-08-12
IRS object ID: 201102289349300815
Schema version: 2010v3.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule L
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2011-08-12T10:39:35-07:00	Timestamp
Tax Period End Date	2010-12-31	TaxPeriodEndDate
Return Type	990	ReturnType
Tax Period Begin Date	2010-01-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	131665552	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	MUSCULAR DYSTROPHY ASSOCIATION INC	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	MUSC	NameControl
Phone	5205292000	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	3300 EAST SUNRISE DRIVE	AddressLine1
City	TUCSON	City
State	AZ	State
ZIP Code	85718	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	STEPHEN P EVANS CPA	Name
Title	Asst Treasurer	Title
Date Signed	2011-08-12	DateSigned

Field	Value	IRS element (for citing)
Tax Year	2010	TaxYear
Build TS	2016-02-24 21:20:13Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	GERALD C WEINBERG	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	3300 EAST SUNRISE DRIVE	AddressLine1
City	TUCSON	City
State	AZ	State
ZIP Code	857183299	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	343230363	GrossReceipts
Group Return For Affiliates	false	GroupReturnForAffiliates
All Affiliates Included	false	AllAffiliatesIncluded
Organization501c3	X	Organization501c3
Web Site	WWW.MDA.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1950	YearFormation
State Legal Domicile	NY	StateLegalDomicile
Activity Or Mission Description	MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY AND EDUCATION.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	20	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	19	NbrIndependentVotingMembers
Total Nbr Employees	1577	TotalNbrEmployees
Total Nbr Volunteers	1500000	TotalNbrVolunteers
Total Gross UBI	204340	TotalGrossUBI
Contributions Grants Prior Year	175435559	ContributionsGrantsPriorYear
Contributions Grants Current Year	171494101	ContributionsGrantsCurrentYear
Program Service Revenue CY	0	ProgramServiceRevenueCY
Investment Income Prior Year	2930115	InvestmentIncomePriorYear
Investment Income Current Year	2233083	InvestmentIncomeCurrentYear
Other Revenue Prior Year	1029135	OtherRevenuePriorYear
Other Revenue Current Year	899855	OtherRevenueCurrentYear
Total Revenue Prior Year	179394809	TotalRevenuePriorYear
Total Revenue Current Year	174627039	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	53499249	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	50095415	GrantsAndSimilarAmntsCY
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	75818898	SalariesEtcPriorYear
Salaries Etc Current Year	70690451	SalariesEtcCurrentYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	26106110	TotalFundrsngExpCurrentYear
Other Expense Prior Year	60703412	OtherExpensePriorYear
Other Expenses Current Year	58957390	OtherExpensesCurrentYear
Total Expenses Prior Year	190021559	TotalExpensesPriorYear
Total Expenses Current Year	179743256	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	-10626750	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	-5116217	RevenuesLessExpensesCY
Total Assets BOY	129092180	TotalAssetsBOY
Total Assets EOY	121222970	TotalAssetsEOY
Total Liabilities BOY	54591188	TotalLiabilitiesBOY
Total Liabilities EOY	53951327	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	74500992	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	67271643	NetAssetsOrFundBalancesEOY
Mission Description	MDA IS THE NONPROFIT HEALTH AGENCY DEDICATED TO CURING MUSCULAR DYSTROPHY, ALS AND RELATED DISEASES BY FUNDING WORLDWIDE RESEARCH. THE ASSOCIATION ALSO PROVIDES COMPREHENSIVE HEALTH CARE AND SUPPORT SERVICES, ADVOCACY AND EDUCATION.	MissionDescription
Significant New Program Services	false	SignificantNewProgramServices
Significant Change	false	SignificantChange
Expense	77263235	Expense
Grants	6684022	Grants
Description	HEALTH CARE AND COMMUNITY SERVICES - SEE FEDERAL SUPPLEMENTAL INFORMATION PAGE - 3	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	38743491	Expense
Grants	35152476	Grants
Description	RESEARCH - SEE FEDERAL SUPPLEMENTAL INFORMATION PAGE - 1	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	23222445	Expense
Description	PROFESSIONAL AND PUBLIC HEALTH EDUCATION - SEE FEDERAL SUPPLEMENTAL INFORMATIONPAGE 6	Description

Field	Value	IRS element (for citing)
Total Program Service Expense	139229171	TotalProgramServiceExpense
Described In501 C3	true	DescribedIn501C3
Schedule B Required	false	ScheduleBRequired
Political Activities	false	PoliticalActivities
Lobbying Activities	true	LobbyingActivities
Subject To Proxy Tax	false	SubjectToProxyTax
Donor Advised Funds	false	DonorAdvisedFunds
Conservation Easements	false	ConservationEasements
Collections Of Art	false	CollectionsOfArt
Credit Counseling	false	CreditCounseling
Term Or Permanent Endowments	true	TermOrPermanentEndowments
Report Land Bldg Equip	true	ReportLandBldgEquip
Report Invest Oth Securities	false	ReportInvestOthSecurities
Report Prog Rel Invest	false	ReportProgRelInvest
Report Other Assets	false	ReportOtherAssets
Report Other Liabilities	true	ReportOtherLiabilities
Report Fin48 Footnote	true	ReportFin48Footnote
Independent Audit Financial Stmt	true	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	false	ConsolidatedAuditFinancialStmt
School	false	School
Foreign Office	false	ForeignOffice
Foreign Activities	false	ForeignActivities
More Than5000 K To Organizations	true	MoreThan5000KToOrganizations
More Than5000 K To Individuals	false	MoreThan5000KToIndividuals
Professional Fundraising	false	ProfessionalFundraising
Fundraising Activities	true	FundraisingActivities
Gaming	true	Gaming
Hospital	false	Hospital
Grants To Organizations	true	GrantsToOrganizations
Grants To Individuals	true	GrantsToIndividuals
Schedule J Required	true	ScheduleJRequired
Tax Exempt Bonds	false	TaxExemptBonds
Invest Tax Exempt Bonds	false	InvestTaxExemptBonds
Escrow Account	false	EscrowAccount
On Behalf Of Issuer	false	OnBehalfOfIssuer
Excess Benefit Transaction	false	ExcessBenefitTransaction
Prior Excess Benefit Transaction	false	PriorExcessBenefitTransaction
Loan To Officer Or DQP	false	LoanToOfficerOrDQP
Grant To Related Person	false	GrantToRelatedPerson
Bsnss Rltnshp With Organization	true	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	false	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	true	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	true	DeductibleNonCashContributions
Deductible Contributions Of Art	false	DeductibleContributionsOfArt
Terminated	false	Terminated
Partial Liquidation	false	PartialLiquidation
Disregarded Entity	false	DisregardedEntity
Related Entity	false	RelatedEntity
Related Org Controlled Entity	false	RelatedOrgControlledEntity
Transaction Related Entity	false	TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org	false	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	false	ActivitiesConductedPartnership
Schedule O Required	true	ScheduleORequired
Number Forms Transmitted With1096	923	NumberFormsTransmittedWith1096
Number W2 G Included	33	NumberW2GIncluded
Compliance With Backup Witholding	true	ComplianceWithBackupWitholding
Number Of Employees	1577	NumberOfEmployees
Employment Tax Returns Filed	true	EmploymentTaxReturnsFiled
Unrelated Business Income	true	UnrelatedBusinessIncome
Form990-T Filed	false	Form990-TFiled
Foreign Financial Account	false	ForeignFinancialAccount
Prohibited Tax Shelter Trans	false	ProhibitedTaxShelterTrans
Taxable Party Notification	false	TaxablePartyNotification
Form8886 T Filed	false	Form8886TFiled
Non Deductible Contributions	false	NonDeductibleContributions
Non Deductible Disclosure	false	NonDeductibleDisclosure
Quid Pro Quo Contributions	true	QuidProQuoContributions
Quid Pro Quo Disclosure	true	QuidProQuoDisclosure
Form8282 Property Disposed Of	true	Form8282PropertyDisposedOf
Number Of8282 Filed	25	NumberOf8282Filed
Funds To Pay Premiums	false	FundsToPayPremiums
Premiums Paid	false	PremiumsPaid
Form8899 Filed	false	Form8899Filed
Form1098 C Filed	false	Form1098CFiled
Excess Business Holdings	false	ExcessBusinessHoldings
Taxable Distributions	false	TaxableDistributions
Distribution To Donor	false	DistributionToDonor
Filed Lieu1041	false	FiledLieu1041
Licensed More Than One State	false	LicensedMoreThanOneState
Indoor Tanning Services	false	IndoorTanningServices
Form720 Filed	false	Form720Filed
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	20	NbrVotingGoverningBodyMembers
Number Independent Voting Members	19	NumberIndependentVotingMembers
Family Or Business Relationship	false	FamilyOrBusinessRelationship
Delegation Of Management Duties	false	DelegationOfManagementDuties
Changes To Organizing Docs	false	ChangesToOrganizingDocs
Material Diversion Or Misuse	false	MaterialDiversionOrMisuse
Members Or Stockholders	false	MembersOrStockholders
Election Of Board Members	false	ElectionOfBoardMembers
Decisions Subject To Approval	false	DecisionsSubjectToApproval
Minutes Of Governing Body	true	MinutesOfGoverningBody
Minutes Of Committees	true	MinutesOfCommittees
Officer Mailing Address	false	OfficerMailingAddress
Local Chapters	true	LocalChapters
Policies Reference Chapters	true	PoliciesReferenceChapters
Form990 Provided To Governing Body	true	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	true	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	true	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	true	RegularMonitoringEnforcement
Whistleblower Policy	true	WhistleblowerPolicy
Document Retention Policy	true	DocumentRetentionPolicy
Compensation Process CEO	true	CompensationProcessCEO
Compensation Process Other	true	CompensationProcessOther
Investment In Joint Venture	false	InvestmentInJointVenture
Written Policy Or Procedure	false	WrittenPolicyOrProcedure
States Where Copy Of Return Is Filed	WY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	RI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NM	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NJ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NE	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ND	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ME	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	LA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	KS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	ID	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	HI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	GA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	DE	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	DC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AZ	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	AK	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Field	Value	IRS element (for citing)
Name Person	STEPHEN P EVANS VP - FINANCE	NamePerson
Telephone Number	5205292000	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	3300 E SUNRISE DR	AddressLine1
City	TUCSON	City
State	AZ	State
ZIP Code	857183299	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (31 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Key EmployeeKeyEmployee	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	Individual Trustee Or DirectorIndividualTrusteeOrDirector	OfficerOfficer	Highest Compensated EmployeeHighestCompensatedEmployee
VALERIE A CWIK MD
Exec VP - Research & Medical	0.00	X	181269	0	9651
TIMMI MASTERS
Secretary	0.00		0	0	0	X
SUZANNE LOWDEN
Treasurer	0.00		0	0	0	X
STEVE FARELLA
Director	0.00		0	0	0	X
STEPHEN P EVANS CPA
Asst Treasurer	50.00		103684	0	13746		X
STANLEY H APPEL MD
Director	0.00		0	0	0	X
ROBERT M BENNETT
Director	0.00		0	0	0	X
ROBERT M GRINSFELDER
VP - S CENTRAL DIV	0.00		129661	0	13699			X
R RODNEY HOWELL MD
Chairman	0.00		0	0	0	X
PETER MORGAN
Exec VP - Field Organization	0.00	X	170823	0	15088
OLIN F MORRIS
Director	0.00		0	0	0	X
MAUREEN McGOVERN
Director	0.00		0	0	0	X
LOUIS M KUNKLE PhD
Director	0.00		0	0	0	X
LOIS R WEST
Director	0.00		0	0	0	X
KEVIN W MORAN
EVP - BUS DEVELOP	50.00		148310	0	14638			X
JOHN WALSH
SR VP FIELD ORG	50.00		148616	0	14644			X
JOHN D McCORMICK
VP - S.E. DIVISION	50.00		129669	0	14243			X
JODI WALTERS
Asst Treasurer	50.00		69270	0	6022		X
HONORABLE BRAD HENRY
Director	0.00		0	0	0	X
HAROLD C CRUMP
Director	0.00		0	0	0	X
GERALD C WEINBERG
President & CEO	60.00	X	381022	0	5983	X	X
GAIL SCHMERTZ KERNER ESQ
EVP GEN COUNSEL	50.00	X	197343	0	15619		X
EDWARD M NIGRO
Director	0.00		0	0	0	X
DAVE HUTTON
Director	0.00		0	0	0	X
DANIEL G FRIES
Director	0.00		0	0	0	X
CHRISTOPHER J ROSA PhD
Director	0.00		0	0	0	X
CHRISTINA C KENNEDY
Asst Secretary	50.00		63884	0	7294		X
CHARLES D SCHOOR ESQ
Director	0.00		0	0	0	X
BRADLEY J BARGHOLS
SR VP FIELD ORG	50.00		138645	0	9365			X
BENJAMIN F CUMBO III
Director	0.00		0	0	0	X
BART CONNER
Director	0.00		0	0	0	X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	1862196	TotalReportableCompFromOrg
Total Other Compensation	139992	TotalOtherCompensation
Number Individuals GT100 K	32	NumberIndividualsGT100K
Formers Listed	false	FormersListed
Total Comp GT150 K	true	TotalCompGT150K
Compensation From Other Sources	false	CompensationFromOtherSources

Contractor Compensation ContractorCompensation (5 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1	CityAddressOfContractor/AddressUS/City	StateAddressOfContractor/AddressUS/State	ZIP CodeAddressOfContractor/AddressUS/ZIPCode	Description Of ServicesDescriptionOfServices	CompensationCompensation
UNITED ENVELOPE LLC
PO BOX 951431	CLEVELAND	OH	44193	PRINTER	802919
ROBERT HALF INTERNATIONAL INC
PO BOX 60000	SAN FRANCISCO	CA	94160	TEMPORARY AGENCY	993397
MOORE WALLACE
PO BOX 730165	DALLAS	TX	75373	PRINTER	1711615
METROGROUP MARKETING SERVICES INC
P O BOX 87618	CHICAGO	IL	60680	LETTERSHOP SERVICES	4343318
EXPRESS PERSONNEL SERVICES
PO BOX 841634	DALLAS	TX	75284	TEMPORARY AGENCY	823019

Field	Value	IRS element (for citing)
Number Of Contractors GT100 K	79	NumberOfContractorsGT100K
Federated Campaigns	815571	FederatedCampaigns
Fundraising Events	138662220	FundraisingEvents
All Other Contributions	32016310	AllOtherContributions
Noncash Contributions	517762	NoncashContributions
Total Contributions	171494101	TotalContributions
Total Program Service Revenue	0	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	1482719	TotalRevenueColumn
Related Or Exempt Function Income	1482719	RelatedOrExemptFunctionIncome

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	72434	TotalRevenueColumn
Related Or Exempt Function Income	72434	RelatedOrExemptFunctionIncome

Net Rental Income Or Loss NetRentalIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Gross Amount Sales Assets GrossAmountSalesAssets

Field	Value	IRS element (for citing)
Securities	135038404	Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

Field	Value	IRS element (for citing)
Securities	134288040	Securities

Gain Or Loss GainOrLoss

Field	Value	IRS element (for citing)
Securities	750364	Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	750364	TotalRevenueColumn
Related Or Exempt Function Income	750364	RelatedOrExemptFunctionIncome

Field	Value	IRS element (for citing)
Gross Income Fundraising Events	34026389	GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events	138662220	CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses	34026389	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Field	Value	IRS element (for citing)
Gross Income Gaming	679080	GrossIncomeGaming
Gaming Direct Expenses	288895	GamingDirectExpenses

Net Income From Gaming NetIncomeFromGaming

Field	Value	IRS element (for citing)
Total Revenue Column	390185	TotalRevenueColumn

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc (2 entries)

DescriptionDescription	Business CodeBusinessCode	Total Revenue ColumnTotalRevenueColumn	Unrelated Business RevenueUnrelatedBusinessRevenue	ExclusionExclusionAmount
QUEST-ADVERTISING	541800	204340	204340
LIST RENTALS	900002	232896		$232,896

Field	Value	IRS element (for citing)
Total Other Revenue	437236	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	174627039	TotalRevenueColumn
Related Or Exempt Function Income	2305517	RelatedOrExemptFunctionIncome
Unrelated Business Revenue	204340	UnrelatedBusinessRevenue
Exclusion	$232,896	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	30792720	Total
Program Services	30792720	ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

Field	Value	IRS element (for citing)
Total	14942939	Total
Program Services	14942939	ProgramServices

Foreign Grants ForeignGrants

Field	Value	IRS element (for citing)
Total	4359756	Total
Program Services	4359756	ProgramServices

Benefits To Members BenefitsToMembers

Field	Value	IRS element (for citing)
Total	0	Total

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	1240696	Total
Program Services	361401	ProgramServices
Management And General	869442	ManagementAndGeneral
Fundraising	9853	Fundraising

Comp Disqual Persons CompDisqualPersons

Field	Value	IRS element (for citing)
Total	0	Total

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	56546878	Total
Program Services	48710403	ProgramServices
Management And General	4885302	ManagementAndGeneral
Fundraising	2951173	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	0	Total

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	7843431	Total
Program Services	6840513	ProgramServices
Management And General	613041	ManagementAndGeneral
Fundraising	389877	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	5059446	Total
Program Services	4361461	ProgramServices
Management And General	436434	ManagementAndGeneral
Fundraising	261551	Fundraising

Fees For Services Management FeesForServicesManagement

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Legal FeesForServicesLegal

Field	Value	IRS element (for citing)
Total	220511	Total
Management And General	220511	ManagementAndGeneral

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	275752	Total
Management And General	275752	ManagementAndGeneral

Fees For Services Lobbying FeesForServicesLobbying

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	0	Total

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	294920	Total
Management And General	294920	ManagementAndGeneral

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	13543844	Total
Program Services	2495115	ProgramServices
Management And General	92279	ManagementAndGeneral
Fundraising	10956450	Fundraising

Advertising Advertising

Field	Value	IRS element (for citing)
Total	0	Total

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	2531886	Total
Program Services	1676598	ProgramServices
Management And General	517746	ManagementAndGeneral
Fundraising	337542	Fundraising

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	557356	Total
Management And General	557356	ManagementAndGeneral

Royalties Royalties

Field	Value	IRS element (for citing)
Total	0	Total

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	10833753	Total
Program Services	9443125	ProgramServices
Management And General	633146	ManagementAndGeneral
Fundraising	757482	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	6375440	Total
Program Services	5359808	ProgramServices
Management And General	483482	ManagementAndGeneral
Fundraising	532150	Fundraising

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

Field	Value	IRS element (for citing)
Total	0	Total

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	91509	Total
Program Services	66561	ProgramServices
Management And General	15923	ManagementAndGeneral
Fundraising	9025	Fundraising

Interest Interest

Field	Value	IRS element (for citing)
Total	0	Total

Payments To Affiliates PaymentsToAffiliates

Field	Value	IRS element (for citing)
Total	0	Total

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	1465167	Total
Program Services	762532	ProgramServices
Management And General	651083	ManagementAndGeneral
Fundraising	51552	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	0	Total

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
TELEPHONE	4653478	3180520	140650	1332308
PRINTING & PUBLICATIONS	6186460	2206043	414525	3565892
POSTAGE & SHIPPING	7477370	2837636	437362	4202372
MISCELLANEOUS	4449944	832040	2869021	748883

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	0	Total

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	179743256	Total
Program Services	139229171	ProgramServices
Management And General	14407975	ManagementAndGeneral
Fundraising	26106110	Fundraising

Field	Value	IRS element (for citing)
Joint Costs	X	JointCosts

Total Joint Costs TotalJointCosts

Field	Value	IRS element (for citing)
Total	7167000	Total
Program Services	3064000	ProgramServices
Management And General	520000	ManagementAndGeneral
Fundraising	3583000	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	19448656	BOY
EOY	21809108	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
EOY	0	EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

Field	Value	IRS element (for citing)
BOY	3866327	BOY
EOY	5917002	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

Field	Value	IRS element (for citing)
EOY	0	EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

Field	Value	IRS element (for citing)
EOY	0	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
EOY	0	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	3022368	BOY
EOY	3158123	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	21857192	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	6872582	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	9805583	BOY
EOY	14984610	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
BOY	92949246	BOY
EOY	75354127	EOY

Investments Other Securities InvestmentsOtherSecurities

Field	Value	IRS element (for citing)
EOY	0	EOY

Investments Program Related InvestmentsProgramRelated

Field	Value	IRS element (for citing)
EOY	0	EOY

Intangible Assets IntangibleAssets

Field	Value	IRS element (for citing)
EOY	0	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
EOY	0	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	129092180	BOY
EOY	121222970	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	9660127	BOY
EOY	7779948	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	23885138	BOY
EOY	26132145	EOY

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
BOY	21045923	BOY
EOY	20039234	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	54591188	BOY
EOY	53951327	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	73096629	BOY
EOY	66114022	EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	1404363	BOY
EOY	1157621	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	74500992	BOY
EOY	67271643	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	129092180	BOY
EOY	121222970	EOY

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	X	InfoInScheduleOPartXI
Reconcilation Revenue Expenses	-5116217	ReconcilationRevenueExpenses
Reconcilation Other Changes	-2113132	ReconcilationOtherChanges
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	false	AccountantCompileOrReview
FS Audited	true	FSAudited
Audit Committee	true	AuditCommittee
Financial Statement Separate	X	FinancialStatementSeparate
Federal Grant Audit Required	false	FederalGrantAuditRequired
Federal Grant Audit Performed	false	FederalGrantAuditPerformed

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org170b1 Avi	X	PubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	183532791	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	137586210	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	182595766	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	175900213	CurrentTaxYearMinus1Year
Current Tax Year	171247359	CurrentTaxYear
Total	850862339	Total

Tax Rev Levied For Org Benefit170 TaxRevLeviedForOrgBenefit170

Field	Value	IRS element (for citing)
Total	0	Total

Value Srvc Fclts Furnished By Govt ValueSrvcFcltsFurnishedByGovt

Field	Value	IRS element (for citing)
Total	0	Total

Total170 Total170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	183532791	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	137586210	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	182595766	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	175900213	CurrentTaxYearMinus1Year
Current Tax Year	171247359	CurrentTaxYear
Total	850862339	Total

Field	Value	IRS element (for citing)
Amounts Subst Contributors Total	0	AmountsSubstContributorsTotal
Public Support Total170	850862339	PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	5032842	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	4246332	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	3946932	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	2794744	CurrentTaxYearMinus1Year
Current Tax Year	1555153	CurrentTaxYear
Total	17576003	Total

Net UBI NetUBI

Field	Value	IRS element (for citing)
Total	0	Total

Other Income170 OtherIncome170

Field	Value	IRS element (for citing)
Total	0	Total

Field	Value	IRS element (for citing)
Total Support	868438342	TotalSupport
Public Support Pertcentage170	0.97980	PublicSupportPertcentage170
Public Support Pertcent Prior Year	0.97450	PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170	X	ThirtyThreePercntTestsCY170

Schedule C IRS990ScheduleC

Field	Value	IRS element (for citing)
Form4720 Filed4955 Tax	false	Form4720Filed4955Tax
Correction Made	false	CorrectionMade

Total Grassroots Lobbying TotalGrassrootsLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	13300	FilingOrganizationsTotals

Total Direct Lobbying TotalDirectLobbying

Field	Value	IRS element (for citing)
Filing Organizations Totals	368927	FilingOrganizationsTotals

Total Lobbying Expenditures TotalLobbyingExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	382227	FilingOrganizationsTotals

Total Exempt Purpose Expenditures TotalExemptPurposeExpenditures

Field	Value	IRS element (for citing)
Filing Organizations Totals	382227	FilingOrganizationsTotals

Lobbying Nontaxable LobbyingNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	76445	FilingOrganizationsTotals

Grassroots Nontaxable GrassrootsNontaxableAmount

Field	Value	IRS element (for citing)
Filing Organizations Totals	19111	FilingOrganizationsTotals

Tot Lobby Expend Mns Lobbying Nontx TotLobbyExpendMnsLobbyingNontx

Field	Value	IRS element (for citing)
Filing Organizations Totals	305782	FilingOrganizationsTotals

Field	Value	IRS element (for citing)
Form4720 Filed	false	Form4720Filed

Lobbying Nontaxable Amount2 LobbyingNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus2	79159	CurrentYearMinus2
Current Year Minus1	50911	CurrentYearMinus1
Current Year	76445	CurrentYear
Total	206515	Total

Field	Value	IRS element (for citing)
Lobbying Ceiling	$309,773	LobbyingCeilingAmount

Total Lobbying Expenditures2 TotalLobbyingExpenditures2

Field	Value	IRS element (for citing)
Current Year Minus2	395794	CurrentYearMinus2
Current Year Minus1	254554	CurrentYearMinus1
Current Year	368927	CurrentYear
Total	1019275	Total

Grassroots Nontaxable Amount2 GrassrootsNontaxableAmount2

Field	Value	IRS element (for citing)
Current Year Minus2	19790	CurrentYearMinus2
Current Year Minus1	12728	CurrentYearMinus1
Current Year	19111	CurrentYear
Total	51629	Total

Field	Value	IRS element (for citing)
Grassroots Ceiling	$77,444	GrassrootsCeilingAmount

Grassroots Lobbying Expenditures GrassrootsLobbyingExpenditures

Field	Value	IRS element (for citing)
Current Year Minus2	10393	CurrentYearMinus2
Current Year Minus1	11500	CurrentYearMinus1
Current Year	13300	CurrentYear
Total	35193	Total

Form990 Schedule C Part IV Form990ScheduleCPartIV

Field	Value	IRS element (for citing)
Identifier	Part II-B, Line 1i	Identifier
Return Reference	Part II-B, Line 1i - Other Activities Description	ReturnReference
Explanation	Dedicated to the advancement of MDA's mission, the Association's advocacy efforts are committed to making life better for people with neuromuscular diseases. Through representation in matters of public policy and research advancement, nationally and internationally, we strive to be an effective voice for the hundreds of thousands of Americans served by MDA. We aim to encourage and facilitate active involvement of people with neuromuscular diseases in the community at large as well as in matters of public policy that are of specific concern to those with disabilities.	Explanation

Schedule D IRS990ScheduleD

Current Year CurrentYear

Field	Value	IRS element (for citing)
Contributions	115000	Contributions
Investment Earnings Or Losses	11313	InvestmentEarningsOrLosses
Administrative Expenses	646	AdministrativeExpenses
End Of Year Balance	125667	EndOfYearBalance

Field	Value	IRS element (for citing)
Permanent Endowment EOY Balance	1.00000	PermanentEndowmentEOYBalance
Endowments Held By Unrelated Orgs	false	EndowmentsHeldByUnrelatedOrgs
Endowments Held By Related Orgs	false	EndowmentsHeldByRelatedOrgs
Are Related Orgs Listed Schedule R	false	AreRelatedOrgsListedScheduleR

Land Land

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	1955436	OtherCostOrOtherBasis
Book Value	1955436	BookValue

Buildings Buildings

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	13363128	OtherCostOrOtherBasis
Depreciation	3809777	Depreciation
Book Value	9553351	BookValue

Leasehold Improvements LeaseholdImprovements

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	25255	OtherCostOrOtherBasis
Depreciation	6314	Depreciation
Book Value	18941	BookValue

Other Land Buildings OtherLandBuildings

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	6513373	OtherCostOrOtherBasis
Depreciation	3056491	Depreciation
Book Value	3456882	BookValue

Field	Value	IRS element (for citing)
Total Of Book Value Land Buildings	14984610	TotalOfBookValueLandBuildings

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
Description	PENSION POSTRETIREMENT PLAN OBLIGATIONS	Description
Amount	$20,039,234	Amount

Field	Value	IRS element (for citing)
Total Of Amounts	20039234	TotalOfAmounts
Total Revenue	174627039	TotalRevenue
Total Expenses	179743256	TotalExpenses
Excess Or Deficit For Year	-5116217	ExcessOrDeficitForYear
Net Unrealized GL On Investments	3448607	NetUnrealizedGLOnInvestments
Other	-$5,561,739	OtherAmount
Total Adjustments	-2113132	TotalAdjustments
Excess Or Deficit Per FS	-7229349	ExcessOrDeficitPerFS
Tot Revenue Etc Audited Fincl Stmt	178075645	TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments	3448606	NetUnrealizedGainsInvestments
Revenue Not Rptd F990	3448606	RevenueNotRptdF990
Revenue Subtotal	174627039	RevenueSubtotal
Total Revenue Per Form990	174627039	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	179743256	TotExpensesEtcAuditedFinclStmt
Expenses Subtotal	179743256	ExpensesSubtotal
Total Expenses Per Form990	179743256	TotalExpensesPerForm990

Form990 Schedule D Part XIV Form990ScheduleDPartXIV (3 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Part X	Part X : FIN48 Footnote	The Association adopted the accounting standard for the financial statement recognition, measurement, and disclosure of uncertain tax positions effective January 1, 2009. The adoption did not have a material impact on the Associations financial position. As of December 31, 2009, the Association had no significant uncertain tax positions.
Part XI, Line 8	Part XI, Line 8: Other Changes in Net Assets or Fund Balances	CHANGES IN UNRECOGNIZED BENEFIT PLAN COST $ -5314996 NET ASSETS RELEASE FROM RESTRICTIONS $ -246743
Part V, Line 4	Part V, Line 4: Intended uses of the endowment fund.	Endowment funds are designed to support MDA research projects and mission programs.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	true	GrantRecordsMaintained

Grants To Orgs Outside US GrantsToOrgsOutsideUS (44 entries)

RegionRegion	Purpose Of GrantPurposeOfGrant	Amount Of Cash GrantAmountOfCashGrant	Manner Of Cash DisbursementMannerOfCashDisbursement
South America	RESEARCH	66819	CASH
North America	RESEARCH	95000	CASH
North America	RESEARCH	84000	CASH
North America	RESEARCH	60000	CASH
North America	RESEARCH	59950	CASH
North America	RESEARCH	2000	CASH
North America	RESEARCH	135653	CASH
North America	RESEARCH	124260	CASH
North America	RESEARCH	120000	CASH
North America	RESEARCH	116160	CASH
North America	RESEARCH	115698	CASH
North America	RESEARCH	115000	CASH
North America	RESEARCH	114000	CASH
North America	RESEARCH	113121	CASH
North America	RESEARCH	104500	CASH
North America	RESEARCH	104390	CASH
North America	RESEARCH	103753	CASH
Middle East	RESEARCH	119900	CASH
Middle East	RESEARCH	103198	CASH
Middle East	RESEARCH	100000	CASH
European Union	RESEARCH	116700	CASH
Europe	RESEARCH	99323	CASH
Europe	RESEARCH	98230	CASH
Europe	RESEARCH	94210	CASH
Europe	RESEARCH	73000	CASH
Europe	RESEARCH	60000	CASH
Europe	RESEARCH	25650	CASH
Europe	RESEARCH	147341	CASH
Europe	RESEARCH	131661	CASH
Europe	RESEARCH	127985	CASH
Europe	RESEARCH	125000	CASH
Europe	RESEARCH	119842	CASH
Europe	RESEARCH	119750	CASH
Europe	RESEARCH	11250	CASH
Europe	RESEARCH	107883	CASH
Europe	RESEARCH	10000	CASH
Australia	RESEARCH	86493	CASH
Australia	RESEARCH	138750	CASH
Australia	RESEARCH	126735	CASH
Australia	RESEARCH	125000	CASH
Australia	RESEARCH	122700	CASH
Australia	RESEARCH	118750	CASH
Australia	RESEARCH	110796	CASH
Asia	RESEARCH	105305	CASH

Field	Value	IRS element (for citing)
Total Number Of Other Orgs	44	TotalNumberOfOtherOrgs
Transfer To Foreign Corp	false	TransferToForeignCorp
Interest In Foreign Trust	false	InterestInForeignTrust
Own Foreign Corp	false	OwnForeignCorp
Passive Foreign Invest Co	false	PassiveForeignInvestCo
Foreign Partnership	false	ForeignPartnership
Boycott Countries	false	BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

Field	Value	IRS element (for citing)
Identifier	Grantmaker's Description of How Grants are Used in Foreign Country	Identifier
Explanation	Upon awarding a grant, but prior to disbursement of any funds, MDA requires the following of all grantees: return of the signed notice of award and submission to MDA of current regulatory documents necessary to conduct the research (institutional review board (IRB) approvals, animal care approvals, FDA or other regulatory agency approvals, and the like). Continued funding for the period of the grant is contingent upon submission to and approval by MDA of annual progress reports and reports of expenditures from all grantees. If such reports are not received, or are deemed unsatisfactory, MDA may opt to suspend or cancel funding for the grant. For some MDA translational research grants, payments to the grantee are contingent upon meeting defined milestones. In such cases, a steering committee reviews the progress of the grantee and determines whether the milestone has been met.	Explanation

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	X	MailSolicitations
Email Solicitations	X	EmailSolicitations
In Person Solicitations	X	InPersonSolicitations
Solicitation Of Non Govt Grants	X	SolicitationOfNonGovtGrants
Solicitation Of Govt Grants	X	SolicitationOfGovtGrants
Special Fundraising Events	X	SpecialFundraisingEvents
Agreement Ref Fundraising	false	AgreementRefFundraising

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	SPECIAL EVENTS-OTHER	NameOfEvent1
Gross Receipts Event1	88827570	GrossReceiptsEvent1
Charitable Contributions Event1	81545103	CharitableContributionsEvent1
Gross Revenue Event1	7282467	GrossRevenueEvent1
Other Direct Expenses Event1	7282467	OtherDirectExpensesEvent1
Name Of Event2	TELETHON	NameOfEvent2
Gross Receipts Event2	48790550	GrossReceiptsEvent2
Charitable Contributions Event2	28792049	CharitableContributionsEvent2
Gross Revenue Event2	19998501	GrossRevenueEvent2
Other Direct Expenses Event2	19998501	OtherDirectExpensesEvent2
Total Number Of Other Events	2	TotalNumberOfOtherEvents
Gross Receipts Other Events	35070489	GrossReceiptsOtherEvents
Charitable Contrib Other Events	28325068	CharitableContribOtherEvents
Gross Revenue Other Events	6745421	GrossRevenueOtherEvents
Other Direct Expenses Other Events	6745421	OtherDirectExpensesOtherEvents
Gross Receipts Total	172688609	GrossReceiptsTotal
Charitable Contributions Total	138662220	CharitableContributionsTotal
Gross Revenue Total Events	34026389	GrossRevenueTotalEvents
Other Direct Expenses Total Events	34026389	OtherDirectExpensesTotalEvents
Direct Expense Summary Events	34026389	DirectExpenseSummaryEvents

Gaming Information GamingInformation

Field	Value	IRS element (for citing)
Volunteer Labor Bingo	false	VolunteerLaborBingo
Volunteer Labor Pull Tabs	false	VolunteerLaborPullTabs
Gross Revenue Other Gaming	679080	GrossRevenueOtherGaming
Cash Prizes Other Gaming	41500	CashPrizesOtherGaming
Non Cash Prizes Other Gaming	158084	NonCashPrizesOtherGaming
Other Direct Expenses Other Gaming	89311	OtherDirectExpensesOtherGaming
Volunteer Labor Other Gaming	true	VolunteerLaborOtherGaming
Volunteer Labor Prcnt Other Gaming	0.80000	VolunteerLaborPrcntOtherGaming
Gross Revenue Total Gaming	679080	GrossRevenueTotalGaming
Cash Prizes Total Gaming	41500	CashPrizesTotalGaming
Non Cash Prizes Total Gaming	158084	NonCashPrizesTotalGaming
Other Direct Expenses Total Gaming	89311	OtherDirectExpensesTotalGaming
Direct Expense Summary Gaming	288895	DirectExpenseSummaryGaming
Net Gaming Income Summary	390185	NetGamingIncomeSummary

Field	Value	IRS element (for citing)
States Where Gaming Conducted	WI	StatesWhereGamingConducted
States Where Gaming Conducted	VA	StatesWhereGamingConducted
States Where Gaming Conducted	TX	StatesWhereGamingConducted
States Where Gaming Conducted	PA	StatesWhereGamingConducted
States Where Gaming Conducted	OK	StatesWhereGamingConducted
States Where Gaming Conducted	NE	StatesWhereGamingConducted
States Where Gaming Conducted	MO	StatesWhereGamingConducted
States Where Gaming Conducted	MN	StatesWhereGamingConducted
States Where Gaming Conducted	MI	StatesWhereGamingConducted
States Where Gaming Conducted	LA	StatesWhereGamingConducted
States Where Gaming Conducted	KS	StatesWhereGamingConducted
States Where Gaming Conducted	HI	StatesWhereGamingConducted
States Where Gaming Conducted	CA	StatesWhereGamingConducted
States Where Gaming Conducted	AK	StatesWhereGamingConducted
Licensed	true	Licensed
License Suspended Etc	false	LicenseSuspendedEtc
Gaming With Nonmembers	false	GamingWithNonmembers
Member Of Other Entity	false	MemberOfOtherEntity
Percentage Of Gaming Othr Facility	1.00000	PercentageOfGamingOthrFacility

Name Of Gaming Rec Keeper Bus NameOfGamingRecKeeperBus

Field	Value	IRS element (for citing)
Business Name Line1	Stephen P Evans CPA	BusinessNameLine1

Address Of Gaming Rec Keeper US AddressOfGamingRecKeeperUS

Field	Value	IRS element (for citing)
Address Line1	3300 E Sunrise Drive	AddressLine1
City	Tucson	City
State	AZ	State
ZIP Code	85718	ZIPCode

Field	Value	IRS element (for citing)
Contract With3rd Party For Gam Rev	false	ContractWith3rdPartyForGamRev
Charitable Distrib Required	false	CharitableDistribRequired

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	true	RecordsMaintained

Recipient Table RecipientTable (279 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	Amount Of Cash GrantAmountOfCashGrant	Amount Of Non Cash AssistanceAmountOfNonCashAssistance	Purpose Of GrantPurposeOfGrant
YALE UNIVERSITY
800 HOWARD AVE BOX 208071	NEW HAVEN	CT	06520	060646973	6666	0	MEDICAL DIAGNOSIS, FOLLOW-UP
YALE UNIVERSITY
47 COLLEGE ST STE 203 BOX 208047	NEW HAVEN	CT	06520	060646973	283580	0	RESEARCH
WRIGHT STATE UNIVERSIT
3640 Col Glenn Hyw	Dayton	OH	45435	310732831	53358	0	RESEARCH
WICHITA FALLS NEUROLOGY CENTER
1600 7TH STREET STE B	WICHITA FALLS	TX	76301	752151000	10800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
WHITE PLAINS HOSPITAL MED CNTR
DAVIS AVENUE AT EAST POST ROAD	WHITE PLAINS	NY	10601	131740130	12600	0	MEDICAL DIAGNOSIS, FOLLOW-UP
WESLEY NEUROLOGY CLINI
1211 UNION AVE STE 400	MEMPHIS	TN	38104	581544781	97200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
WEILL MEDICAL COLLEGE OF CORNELL
1300 York Avenue Box 89	NEW YORK	NY	10063	131623978	194846	0	RESEARCH
WEILL MED COLLEGE OF CORNELL
100 Broadway 8th Floor	NEW YORK	NY	10021	131623978	40000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
WAYNE STATE UNIVERSITY
5057 WOODWARD STE 6402	DETROIT	MI	48202	386028429	564903	0	RESEARCH
WASHINGTON UNIV-ST LOUIS
660 S EUCLID AVE	ST LOUIS	MO	63110	430653611	784097	0	RESEARCH
WASHINGTON UNIVSCHOOL OF MED
600 S EUCLID AVE BOX 8111	ST LOUIS	MO	63110	430653611	126000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
WAKE FOREST UNIVERSITY
MEDICAL CENTER BLVD	WINSTONSALEM	NC	27157	223849199	95000	0	RESEARCH
WAKE FOREST UNIVSCHOOL OF MED
MEDICAL CENTER BLVD	WINSTON SALEM	NC	27157	223849199	18000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
WVIRGINIA UNIV RESEARCH CNTR
1 MEDICAL CENTER DR STE 7500	MORGANTOWN	WV	26508	550665758	32400	0	MEDICAL DIAGNOSIS, FOLLOW-UP
VIA CHRISTI MEDCTR-STFRANCES
929 NORTH ST FRANCIS	WICHITA	KS	67214	481172106	29250	0	MEDICAL DIAGNOSIS, FOLLOW-UP
VANDERBILT UNIV MEDICAL CNTR
3319 WEST END AVE STE 100	ATLANTA	GA	31192	620476822	60000	0	RESEARCH
VANDERBILT DEPARTMENT OF NEURO
1301 22ND AVE SOUTH 3603	NASHVILLE	TN	37212	620476822	149000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
VALIDUS BIOPHARMA INC
9700 Great Seneca Hwy	Rockville	MD	20850	263808415	360000	0	RESEARCH
UT SOUTH WEST MEDICAL CENTER
5323 HARRY HINES BLVD	DALLAS	TX	75390	756002868	469117	0	RESEARCH
USC NEUROMUSCULAR CENTER
637 SOUTH LUCAS AVE	LOS ANGELES	CA	90017	953947855	6188	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY PHYSICIANS INC
PO BOX 725	AURORA	CO	80040	742161737	135000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY PHYSICIANS UNIV OF MO
ONE HOSPITAL DRIVE	COLUMBIA	MO	65212	436003859	12600	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY PHYSICIANS
1501 N CAMPBELL	TUCSON	AZ	85724	942958258	63000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE	SEATTLE	WA	98195	916001537	561325	0	RESEARCH
UNIVERSITY OF UTAH
75 S 2000 E RM 11	SALT LAKE CITY	UT	84112	876000525	258591	0	RESEARCH
UNIVERSITY OF TEXAS HOUSTON
PO BOX 20036	HOUSTON	TX	77225	741761309	229624	0	RESEARCH
UNIVERSITY OF TENNESSEE MEDICAL
1928 ALCOA HWY STE B-102	KNOXVILLE	TN	37920	311626179	12600	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY OF ROCHESTER
1325 MT HOPE AVE STE 260	ROCHESTER	NY	14620	160743209	300349	0	RESEARCH
UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	560579	0	RESEARCH
UNIVERSITY OF NEBRASKA MED CNTR
600 S 42ND STREET	OMAHA	NE	68198	470049123	36000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY OF MISSOURI
310 JESSE HALL	COLUMBIA	MO	65211	436003859	485465	0	RESEARCH
UNIVERSITY OF MINNESOTA
200 OAK STREET SE	MINNEAPOLIS	MN	55455	416007513	398266	0	RESEARCH
UNIVERSITY OF MICHIGAN
3003 SOUTH STATE STREET RM 1054	ANN ARBOR	MI	48109	386006809	27000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY OF MICHIGAN
3003 S STATE STREET RM 1054	ANN ARBOR	MI	48109	386006309	246812	0	RESEARCH
UNIVERSITY OF MD BAL
60 West Redwood St	Baltimore	MD	21201	526002036	112971	0	RESEARCH
UNIVERSITY OF MARYLAND
620 W LEXINGTON ST 4th FL	BALTIMORE	MD	21201	526002033	60000	0	RESEARCH
UNIVERSITY OF IOWA
2 GILMORE HALL	IOWA CITY	IA	52242	426004813	240072	0	RESEARCH
UNIVERSITY OF ILLINOIS - CHICAGO
1801 WEST TAYLOR STREET	CHICAGO	IL	60612	376000511	45000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY OF ILLINOIS
809 S MARSHALL AVE	CHICAGO	IL	60612	376000511	283587	0	RESEARCH
UNIVERSITY OF FLORIDA
219 GRINTER HALL	GAINESVILLE	FL	32611	596002052	181885	0	RESEARCH
UNIVERSITY OF CT
14 Dog Lane Unit 4133	Storrs	CT	06269	060772160	125000	0	RESEARCH
UNIVERSITY OF COLORADO
500 13001 E 17TH PLACE BOX 6508	AURORA	CO	80045	846000555	321779	0	RESEARCH
UNIVERSITY OF CINCINNATI
PO BOX 210222	CINCINNATI	OH	45221	316000989	187989	0	RESEARCH
UNIVERSITY OF CHICAGO
5801 SOUTH ELLIS AVENUE	CHICAGO	IL	60637	362177139	394854	0	RESEARCH
UNIVERSITY OF CALIFORNIA LA
11000 KINROSS AVE STE 102	LOS ANGELES	CA	90095	956006143	620488	0	RESEARCH
UNIVERSITY OF CALIFORNIA IRVINE
200 S MANCHESTER AVE STE 110	ORANGE	CA	92868	952226406	66000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY OF CALIFORNIA
710 WESTWOOD PLAZA 4-231 RNRC	Los Angeles	CA	90095	956006143	108000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY OF ARIZONA
PO BOX 3308	TUCSON	AZ	85722	742652689	257025	0	RESEARCH
UNIVERSITY OF ALABAMA
1530 3rd Ave South	Birmingham	AL	35294	636005396	116711	0	RESEARCH
UNIVERSITY NEUROLOGY INC
231 BETHESDA AVE	CINCINNATI	OH	45267	311000664	70200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY MEDICAL ASSOCIATES
1 POSTON ROAD STE 350	CHARLESTON	SC	29407	571098556	35100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVERSITY HOSPITAL OF BROOKLYN
450 CLARKSON AVENUE BOX 1213	BROOKLYN	NY	11203	141368361	40500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVOF PUERTO RICO SCHL OF MED
MEDICAL SCI CAMPUSGPO BOX 5067	SAN JUAN	PR	00936	660433762	45000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVOF NEVADA SCHL OF MEDICINE
2040 W CHARLESTON BLVD STE 300	LAS VEGAS	NV	89102	880330858	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIVOF MISSISSIPPI MEDICAL CNTR
2500 N STATE STREET	JACKSON	MS	39216	646008520	31680	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF UTAH SCHOOL OF MEDICINE
50 NMEDICAL DR	SALT LAKE CITY	UT	84132	870480520	67500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF TEXAS SOUTHWESTERN
5323 HARRY HINES BLVD	DALLAS	TX	75390	756002868	189000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF ROCHESTER MEDICAL CNTR
601 ELMWOOD AVENUE-BOX 673	ROCHESTER	NY	14642	160743209	94500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF NORTH CAROLINA
104 AIRPORT DRIVE STE 2200	CHAPEL HILL	NC	27599	566001393	269578	0	RESEARCH
UNIV OF CA BERKELEY
2150 Shattuck Ave Ste 313	Berkeley	CA	94704	946002123	110000	0	RESEARCH
UNIV VIRGINIA HOSPITAL
PO BOX 9007	CHARLOTTESVILLE	VA	22906	541124769	57600	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF WASHINGTON MEDICAL CNTR
155 NE 100th STREET STE 506	SEATTLE	WA	98125	916001537	63900	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF TEXAS MEDICAL BRANCH
301 UNIVERSITY BLVD	GALVESTON	TX	77555	746000949	118750	0	RESEARCH
UNIV OF TEXAS HLTH SCIENCE CTR
7703 FLOYD CURL DRIVE	SAN ANTONIO	TX	78284	741586031	74700	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF TEXAS HEALTH SCIENCE
7703 FLOYD CURI DRIVE	SAN ANTONIO	TX	78229	741586031	118750	0	RESEARCH
UNIV OF SOUTHERN CALIFORNIA
837 W DOWNEY WAY	LOS ANGELES	CA	90089	951642394	391180	0	RESEARCH
UNIV OF PITTSMEDCTRFALK CLINI
200 LOTHROP ST-7th FLOOR	PITTSBURGH	PA	15213	250965591	54000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF NEW MEXICO HOSPITAL
915 CAMINO DE SALUD NE	ALBUQUERQUE	NM	87131	856000642	41400	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF NEW MEXICO
206 Scholes Hall	ALBEQUERQUE	NM	87131	856000642	113187	0	RESEARCH
UNIV OF MIAMI SCHOOL OF MEDICINE
1400 NW 10TH AVE	MIAMI	FL	33136	590624458	873501	0	RESEARCH
UNIV OF MIAMI SCHOOL OF MEDICINE
1150 NW 14th STREET STE 701	MIAMI	FL	33136	592579826	51300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF MASSACHUSETTS
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	124000	0	RESEARCH
UNIV OF LOUISVILLE
JOUETT HALL BELKNAP CAMPUS	LOUISVILLE	KY	40292	611029626	116402	0	RESEARCH
UNIV OF KENTUCKY RESEARCH FOUND
109 KINKEAD HALL	LEXINGTON	KY	40506	616033693	129828	0	RESEARCH
UNIV OF CALIFORNIA SANTA CRUZ
1156 HIGH STREET	SANTA CRUZ	CA	95064	941539563	100000	0	RESEARCH
UNIV OF CALIFORNIA SAN FRANCISCO
3333 CALIFORNIA ST STE 315	SAN FRANCISCO	CA	94118	946036493	534042	0	RESEARCH
UNIV OF CALIFORNIA SAN DIEGO
9500 GILMAN DR DEPT 0934	LA JOLLA	CA	92093	956006144	686759	0	RESEARCH
UNIV OF CALIFORNIA REGENTS
505 PARNASSUS AVE	SAN FRANCISCO	CA	94143	946036493	117000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF CALIFORNIA MERCED
5200 NORTH LAKE ROAD	MERCED	CA	95343	270093858	109784	0	RESEARCH
UNIV OF CALIFORNIA DAVIS
1850 RESEARCH PARK DR STE 300	DAVIS	CA	95618	946036494	433284	0	RESEARCH
UNIV OF ARKANSAS MEDICAL SCIENCE
4301 W MARKHAM	LITTLE ROCK	AR	72205	716046242	54000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF ALABAMA PEDIATRIC NEURO
1600 7th AVENUE SOUTH AAC STE 406	BIRMINGHAM	AL	35233	630307306	18000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV OF ALABAMA HEALTH SERVICES
625 SOUTH 19th STREET	BIRMINGHAM	AL	35294	630649108	22050	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNIV IOWA HOSPITALS & CLINICS
500 NEWTON RD	IOWA CITY	IA	52240	426004813	46800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UNC HOSPITALS
211 FRIDAY CENTER DRIVE	CHAPEL HILL	NC	27514	570935917	34200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UMPHYSICIANS-DEPT OF NEUROLOGY
420 DELAWARE ST SE BOX 295	MINNEAPOLIS	MN	55455	411843943	157500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UMDNJ-NJ MED SCHOOL
150 BERGEN STREET	NEWARK	NJ	07103	222095812	78300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UMASS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	21600	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UF CLINIC HEALTH SCIENCE CNTR
2000 ARCHER RD MEDICAL PLAZA	GAINESVILLE	FL	32610	596002052	7650	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UCLA EDUC & RESEARCH INSTITUTE
14445 OLIVE VIEW DRIVE	SYLMAR	CA	91342	952249539	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
UC DAVIS MEDICAL CENTER
4860 Y STREET STE 3850	SACRAMENTO	CA	95817	946036494	45000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
THOMAS JEFFERSON UNIVERSITY
125 S 9th Street 2nd Floor	PHILADELPHIA	PA	19107	231352651	168720	0	RESEARCH
THE UNIVERSITY OF VIRGINIA
PO BOX 400195	CHARLOTTESVILLE	VA	22904	546001796	440737	0	RESEARCH
THE TOLEDO HOSPITAL
2142 NORTH COVE BLVD	TOLEDO	OH	43606	344428256	40500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
THE NEUROMEDICAL CENTER
10101 PARK ROWE AVE STE 200	BATON ROUGE	LA	70809	720827144	20700	0	MEDICAL DIAGNOSIS, FOLLOW-UP
THE GENERAL HOSPITAL CORPORATION
13TH STREET BLDG 149	CHARLESTOWN	MA	02129	042697983	123300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
THE DULUTH CLINIC LTD
400 E3RD ST	DULUTH	MN	55805	410883623	6750	0	MEDICAL DIAGNOSIS, FOLLOW-UP
THE CHILDRENS HOSPITAL
13123 E 16TH AVE	AURORA	CO	80045	840166760	52200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
THE BATON ROUGE CLINIC AMC
7373 PERKINS ROAD	BATON ROUGE	LA	70808	721111417	10800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
TEXOMA NEUROLOGY ASSOCIATES
321 N HIGHLAND SUITE 210	SHERMAN	TX	75092	751739707	7650	0	MEDICAL DIAGNOSIS, FOLLOW-UP
TEXAS TECH UNIVERSITY
4800 ALBERTA AVENUE	EL PASO	TX	79905	752668014	16200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
TEXAS NEUROLOGY PA
6301 GASTON AVE STE 200W	DALLAS	TX	75214	752654757	9000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
TEMPLE UNIVERSITY
3400 North Broad Streeet	Philadelphia	PA	19140	231365971	125000	0	RESEARCH
TALLAHASSEE NEUROLOGICAL CLINIC
1401 CENTERVILLE RD STE 300	TALLAHASSEE	FL	32308	591286000	6750	0	MEDICAL DIAGNOSIS, FOLLOW-UP
STMARYS MEDICAL CNTR FOUNDATION
3700 WASHINGTON AVE	EVANSVILLE	IN	47750	237045370	13950	0	MEDICAL DIAGNOSIS, FOLLOW-UP
STANFORD UNIVERSITY
301 RAVENSWOOD AVE	MENLO PARK	CA	94025	941156365	193494	0	RESEARCH
STLUKES REHABILITATION INST
S 711 COWLEY	SPOKANE	WA	99202	911307555	18000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
STJOHNS REGIONAL MEDICAL CNTR
2727 MCCLELLAND BLVD	JOPLIN	MO	64804	440545809	7200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
STJOHNS REGIONAL HEALTH CENTER
1235 EAST CHEROKEE	SPRINGFIELD	MO	65804	440552485	18900	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ST PETERS HOSPITAL FOUNDATION
319 S MANNING BLVD STE 309	ALBANY	NY	12208	222262982	70000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ST PETERS HOSPITAL FOUNDATION
319 S MANNING BLVD STE 309	ALBANY	NY	12206	222262982	75000	0	RESEARCH
ST PETERS HOSPITAL
413 LILLY ROAD NE	OLYMPIA	WA	98506	910567732	45000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ST JUDES CHILDRENS
262 Danny Thomas Place	MEMPHIS	TN	38105	620646012	170000	0	RESEARCH
ST JOSEPHS HOSPITAL & MEDICAL
350 WEST THOMAS ROAD	PHOENIX	AZ	85013	860096787	150000	0	RESEARCH
ST FRANCIS MEDICAL CENTER
309 JACKSON STREET	MONROE	LA	71201	720408970	11250	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ST ELIZABETH HEALTH CENTER
1044 BELMONT AVENUE	YOUNGSTOWN	OH	44501	340505560	13500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ST ANTHONYS SPECIALIST
300 S PARK PLACE BLVD STE 170	CLEARWATER	FL	33759	743168197	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ST JOSEPHS HOSP & MEDICAL CNTR
350 WEST THOMAS RD	PHOENIX	AZ	85013	860096787	72000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ST JOSEPHS CHILDRENS HOSPITAL
3001 W DR MLK JR BLVD	TAMPA	FL	33607	591100828	31500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ST CHARLES HOSPITAL & REHAB CNTR
200 BELLE TERRE RD	PORT JEFFERSON	NY	11777	412076312	18000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
SPECIALLY FOR CHILDREN
1301 BARBARA JORDAN BLVD 200	AUSTIN	TX	78723	742800601	13500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
SPARTANBURG NEUROLOGICAL SERVICE
362 N PINE STREET	SPARTANBURG	SC	29302	570902952	8100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
SIU SCHOOL OF MEDICINE
PO BOX 19616	SPRINGFIELD	IL	62794	376005961	20000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
SHRINERS HOSPITAL FOR CHILDREN
911 W 5th STREET	SPOKANE	WA	99204	362193608	7200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
SHRINERS HOSPITAL FOR CHILDREN
3101 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	362193608	9000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
SHRINERS HOSP CHILDREN
2211 N OAK PARK AVE	CHICAGO	IL	60707	362193608	20000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
Sfida Biologic Inc
615 Arapeen Dr Suite 310	Salt Lake City	UT	84108	900513929	63257	0	RESEARCH
SENTARA NORFOLK GENERAL HOSPITAL
130 COLLEY AVE	NORFOLK	VA	23507	541547408	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
SCRIPPS RESEARCH INSTITUTE
10550 N TORREY PINES ROAD	LA JOLLA	CA	92037	330435954	188580	0	RESEARCH
SARASOTA MEMORIAL HOSPITAL
7214 38th COURT EAST	SARASOTA	FL	34243	596012500	18000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
SAINT LOUIS UNIVERSITY
221 NORTH GRAND BOULEVARD	ST LOUIS	MO	63103	430654872	118325	0	RESEARCH
SACRED HEART MEDICAL CENTER FOUN
1255 HILYARD ST BOX 10905	EUGENE	OR	97440	931084906	13500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
RUSH UNIVERSITY MEDICAL CENTER
1725 WEST HARRISON STE 1106	CHICAGO	IL	60612	362174823	58500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ROUND ROCK MEDICAL CENTER
2400 ROUND ROCK AVE	ROUND ROCK	TX	78681	742781812	13500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
RHODE ISLAND HOSPITAL
593 EDDY STREET	PROVIDENCE	RI	02903	050258954	16200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
RESEARCH INSTITUTE AT NATIONWIDE
700 CHILDRENS DRIVE	COLUMBUS	OH	43205	316056230	614431	0	RESEARCH
RESEARCH FOUNDATION OF SUNY
1400 WASHINGTON AVE	ALBANY	NY	12222	141638361	165792	0	RESEARCH
REPLIGEN CORPORATION
41 Seyon St	Waltham	ME	02453	042729386	985950	0	RESEARCH
RENOWN MED CNTR-SOUTH MEADOW
10085 DOUBLE R BOULEVARD SUITE	RENO	NV	89521	880401399	8100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
REHAB HOSPITAL OF TINTON FALLS
2 CENTRE PLAZA	TINTON FALLS	NJ	07724	631254173	27000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
RAPIDES SPECIALTY CLINIC
211 FOURTH STREET BOX 30101	ALEXANDRIA	LA	71301	611267229	9000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
RAPID CITY REGIONAL HOSPITAL
PO BOX 6000	RAPID CITY	SD	57709	460319070	7200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
RANCHO LOS AMIGOS
7601 E IMPERIAL HIGHWAY	DOWNEY	CA	90242	951911180	10000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
PURDUE UNIVERSITY
155 S GRANT STREET	WEST LAFAYETTE	IN	47907	356002041	111000	0	RESEARCH
PTC THERAPEUTICS INC
100 CORPORATE COURT	SOUTH PLAINS	NJ	07080	043416587	250000	0	RESEARCH
PREVEA CLINIC
PO BOX 19070	GREEN BAY	WI	54307	391839349	18000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
PONCE SCHOOL OF MEDICINE
PARRA BUILDING SUITE 302-303	PONCE	PR	00732	660379122	36000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
PALO ALTO INSTITUTE
3801 MIRANDA AVE 151P BOX V-38	PALO ALTO	CA	94304	770207331	118750	0	RESEARCH
OUR LADY OF LOURDES RMC
611 ST LANDRY STREET	LAFAYETTE	LA	70506	720423635	36000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
OSF MEDICAL GROUP NEUROLOGY
100 NE RANDOLPH ST	PEORIA	IL	61606	370662569	13500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
OREGON HEALTH & SCIENCE UNIV
3181 SW SAM JACKSON PARK ROAD	PORTLAND	OR	97201	931176109	36000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
OHIO STATE UNIVERSITY HOSPITALS
1581 DODD DRIVE	COLUMBUS	OH	43210	316025986	61200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316401599	231384	0	RESEARCH
NORTHWESTERN MEDICAL FACULTY
710 N LAKESHORE DRIVE RM 1123	CHICAGO	IL	60611	393097297	72000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
NORTH BROWARD HOSPITAL
1608 SE 3RD AVENUE	FT LAUDERDALE	FL	33316	596012065	6300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
NEW YORK UNIV SCHOOL OF MEDICINE
550 FIRST AVENUE	NEW YORK	NY	10016	135562309	110166	0	RESEARCH
NEUROSURGICAL ASSOCIATES PA
342 RICHLAND WEST CIRCLE	WACO	TX	76712	741756638	9000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
NEUROLOGY SPECIALISTS OF JUPITER
601 UNIVERSITY BLVD STE 102	JUPITER	FL	33458	650925187	7200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
NEUROLOGY MEDICAL SERVICE GROUP
750 EAST ADAMS STREET	SYRACUSE	NY	13210	166066240	45900	0	MEDICAL DIAGNOSIS, FOLLOW-UP
NEUROLOGY ASSOCIATES
1100 EAST 21ST ST STE 506	SIOUX FALLS	SD	57105	460364889	16200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
NEUROLOGY ASSOC OF LEE COUNTY
12600 CREEKSIDE LANE STE 7	FT MYERS	FL	33919	592521857	12600	0	MEDICAL DIAGNOSIS, FOLLOW-UP
NEUROLOGY ASSOC OF ARLINGTON
1001 WALDROP-STE 816	ARLINGTON	TX	76011	752405825	24300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
NEMOURS CHILDRENS CLINICS
807 CHILDRENS WAY	JACKSONVILLE	FL	32207	590634433	10800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MONTEFIORE MEDICAL CENTER
1515 BLONDELL AVE	BRONX	NY	10461	133908657	62100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MICHIGAN STATE UNIVERSITY
138 SERVICE ROAD A-117	EAST LANSING	MI	48824	386005984	27000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MICHIGAN ST UNIVERSIT
301 Administration Building	East Lansing	MI	48824	386005984	103685	0	RESEARCH
METROHEALTH MEDICAL CENTER
2500 METRO HEALTH DRIVE	CLEVELAND	OH	44109	346004382	36000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
METHODIST NEURO INSTITUTE
6560 FANNIN STREET	HOUSTON	TX	77030	870721923	243680	0	RESEARCH
METHODIST HOSPITAL PHYSICIAN ORG
6565 FANNIN	HOUSTON	TX	77030	870721923	132300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
METHODIST HOSPITAL OF INDIANA
1800 NORTH CAPITOL AVE	INDIANAPOLIS	IN	46202	351955872	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MERITCARE HOSPITAL
720 4TH STREET NORTH	FARGO	ND	58122	450226909	17100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MEMORIAL SLOAN-KETTERING CANCER
1275 YORK AVE	NEW YORK	NY	10065	131924236	105021	0	RESEARCH
MEDICAL COLLEGE OF WISCONSIN
9000 W WISCONSIN AVE STE C-540	MILWAUKEE	WI	53226	390806261	30600	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MEDICAL COLLEGE OF GEORGIA
1120 15TH STREET	AUGUSTA	GA	30912	581418202	130939	0	RESEARCH
MED COLLEGE OF GEORGIA HEALTH
1120 15th STREET	AUGUSTA	GA	30912	582144788	18000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MCLAREN REGIONAL MEDICAL CENTER
401 S BALLENGER HIGHWAY	FLINT	MI	48532	382383119	16200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MAYO CLINIC JACKSONVILLE
4500 SAN PABLE ROAD	JACKSONVILLE	FL	32224	593337028	27000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MAYO CLINIC - ROCHESTER
200 FIRST STREET SW	ROCHESTER	MN	55905	416011702	353783	0	RESEARCH
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVE STE 300	BOSTON	MA	02199	042697983	616382	0	RESEARCH
MARY HITCHCOCK MEMORIAL HOSPITAL
ONE MEDICAL CENTER DR	LEBANON	NH	03756	020222140	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MARY FREE BED HOSPITAL
235 WEALTHY SE	GRAND RAPIDS	MI	49503	381359265	45000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MARSHFIELD CLINIC
1000 NORTH OAK AVENUE	MARSHFIELD	WI	54440	390452970	10800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
MAINE MEDICAL CENTER
22 BRAMHALL STREET	PORTLAND	ME	04102	010238552	14850	0	MEDICAL DIAGNOSIS, FOLLOW-UP
LUTHERAN HOSPITAL OF INDIANA
7950 W JEFFERSON BLVD	FORT WAYNE	IN	46804	351963748	14400	0	MEDICAL DIAGNOSIS, FOLLOW-UP
LUDWIG INSTITUTE
9500 GILMAN DR MC-0660 CMM-E 3041	LA JOLLA	CA	92093	237121131	60000	0	RESEARCH
LUCILE SALTER PACKARD CHILD HOS
725 WELCH ROAD	PALO ALTO	CA	94304	770003859	18000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
LOYOLA UNIV CHICAGO
2160 S 1ST AVENUE	MAYWOOD	IL	60153	361408475	135000	0	RESEARCH
LOUISIANA STATE UNIVSCHL OF MED
433 BOLIVAR STREET	NEW ORLEANS	LA	70112	721304948	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
LOUISIANA STATE UNIVHEALTH SCIE
1501 KINGS HIGHWAY	SHREVEPORT	LA	71130	720702002	27000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
LOMA LINDA UNIV HEALTH
11215 MT VIEW AVE STE 165	LOMA LINDA	CA	92354	330364239	26100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
LAHEY CLINIC FOUNDATION INC
41 MALL ROAD	BURLINGTON	MA	01805	042704683	14850	0	MEDICAL DIAGNOSIS, FOLLOW-UP
KUMC RESEARCH INSTITUTE
39TH AND RAINBOW BLVD	KANSAS CITY	KS	66103	481108830	70200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
KENNEDY HOSPITAL
500 MARLBORO RD	CHERRY HILL	NJ	08034	221773439	15300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
JOHNS HOPKINS UNIVERSITY
600 NWOLFE STREET	BALTIMORE	MD	21287	320061260	195300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
JOHN HOPKINS UNIVERSITY
733 NORTH BROADWAY	BALTIMORE	MD	21205	520595110	1248933	0	RESEARCH
JACKSON LABORATORY
600 MAIN STREET	BAR HARBOR	ME	04609	010211513	60000	0	RESEARCH
iPIERIAN INC
951 GATEWAY BLVD	SAN FRANCISCO	CA	94080	260440235	60000	0	RESEARCH
IOWA METHODIST MEDICAL CENTER
1200 PLEASANT ST	DES MOINES	IA	50309	420680452	10800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
INSTOF REHABMEDNY UNIVMEDSC
400 EAST 34th STREET	NEW YORK	NY	10016	133971298	72900	0	MEDICAL DIAGNOSIS, FOLLOW-UP
INDIANA UNIVERSITY
620 UNION DRIVE RM 618	INDIANAPOLIS	IN	46202	356001673	125569	0	RESEARCH
IDAHO ELKS REHABILITATION HOSP
600 ROBBINS RD	BOISE	ID	83702	820302317	19800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
HOSPITAL SPECIAL SURGE
535 E 70TH STREET	NEW YORK	NY	10021	131624135	40000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
HOSPITAL OF THE GOOD SAMARITAN
616 S WITMER STREET	LOS ANGELES	CA	90017	951656366	6188	0	MEDICAL DIAGNOSIS, FOLLOW-UP
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVE	NEW BRITAIN	CT	06053	060646766	60100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
HOSPESPANOL DE AUXILIO MUTUO
AVE PONCE DE LEON PDA 36 1/2	HATO REY	PR	00919	660486907	49500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
HERSHEY MEDICAL CENTER
500 UNIVERSITY DRIVE	HERSHEY	PA	17033	251854772	73800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
HARVARD UNIVERSITY
25 SHATTUCK STREET STE 509A	BOSTON	MA	02115	042103580	243946	0	RESEARCH
HARPER UNIVERSITY HOSPITAL
3990 JOHN R	DETROIT	MI	48201	386028429	13500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
HAMOT 2ND CENTURY FUND
302 FRENCH STREET	ERIE	PA	16507	251400909	9000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
GOOD SHEPHERD REHABILITATION HOS
501 ST JOHN STREET	ALLENTOWN	PA	18103	231371947	61200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
GLENDALE NEUROLOGICAL ASSOC
28595 ORCHARD LAKE RD 200	FARMINGTON HILLS	MI	48334	381889896	63000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
GEORGETOWN UNIVERSITY
3800 RESERVOIR RD NW	WASHINGTON	DC	20007	530196603	20700	0	MEDICAL DIAGNOSIS, FOLLOW-UP
FRED HUTCHINSON CANCER RESEARCH
1100 FAIRVIEW AVE N	SEATTLE	WA	98109	237156071	60000	0	RESEARCH
FOOD AND DRUG ADMINISTRATION
5600 FISHERS LANE	ROCKVILLE	MD	20857	530196965	81771	0	RESEARCH
FLETCHER ALLEN NEUROLOGY
ONE SOUTH PROSPECT STREET	BURLINGTON	VT	05401	030219303	6300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
FEDERATION of ASEB
9650 ROCKVILLE PIKE	BETHESDA	MD	20814	520700497	12500	0	RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLR	ATLANTA	GA	30322	580566256	1119847	0	RESEARCH
EMORY CLINIC
1365 CLIFTON RD NE	ATLANTA	GA	30322	582030692	81000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ELKHART CLINIC LLC
303 S NAPPANEE	ELKHART	IN	46514	351911857	14400	0	MEDICAL DIAGNOSIS, FOLLOW-UP
EASTERN MAINE MEDICAL CENTER
489 STATE STREET	BANGOR	ME	04401	010211501	10800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
DUKE UNIVERSITY MEDICAL CENTER
705 BROAD STREET	DURHAM	NC	27706	561029437	81000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
DUKE UNIVERSITY
2200 W MAIN STREET STE 820	DURHAM	NC	27708	560532129	373863	0	RESEARCH
DREXEL NEUROLOGICAL ASSOCIATES
245 NORTH 15TH ST	PHILADELPHIA	PA	19102	754022380	33750	0	MEDICAL DIAGNOSIS, FOLLOW-UP
DRA MARLA JORDAN
PO BOX 8010 MARINA STATION	MAYAGUEZ	PR	00680	582836633	6421	0	MEDICAL DIAGNOSIS, FOLLOW-UP
DENT NEUROLOGIC GROUP LLP
3980 SHERIDAN DRIVE 6TH FLOOR	AMHERST	NY	14226	161582336	15750	0	MEDICAL DIAGNOSIS, FOLLOW-UP
DEAN CLINIC
1808 W BELTLINE HWY	MADISON	WI	53713	391128616	12500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
COOPER CLINIC
6801 ROGERS AVENUE	FORT SMITH	AR	72903	710445686	16200	0	MEDICAL DIAGNOSIS, FOLLOW-UP
COOK CHILDRENS MEDICAL CENTER
901 SEVENTH AVENUE STE 120	FORT WORTH	TX	76104	752051646	8100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
COLUMBUS CHILDRENS HOSPITAL
700 CHILDRENS DR	COLUMBUS	OH	43205	314379441	28800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
COLUMBIA UNIVERSITY MEDICAL CNTR
710 WEST 168TH STREET	NEW YORK	NY	10032	133908657	176400	0	MEDICAL DIAGNOSIS, FOLLOW-UP
COLUMBIA UNIV MEDICAL CENTER
630 W 168TH ST BOX 49	NEW YORK	NY	10032	135598093	1285085	0	RESEARCH
CLINICAL NEUROLOGY PC
4221 S WESTERN SUITE 5010	OKLAHOMA CITY	OK	73109	412141136	107100	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CLEVELAND CLINIC FOUNDATION
9500 EUCLID AVE	CLEVELAND	OH	44195	340714585	187891	0	RESEARCH
CLARIAN HEALTH PARTNERS
550 N UNIVERSITY BLVD	INDIANAPOLIS	IN	46202	351955872	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHRISTUS SPOHN HOSPITAL
600 ELIZABETH STREET	CORPUS CHRISTI	TX	78404	741109836	12600	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHRISTIANA CARE HEALTH SVS
774 CHRISTIANA RD STE 201	WILMINGTON	DE	19713	510103684	5400	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS RESEARCH INSTITUTE
111 MICHIGAN AVE NW	WASHINGTON	DC	20010	521654453	323865	0	RESEARCH
CHILDRENS MED CENTER OF DALLAS
1935 MOTOR STREET	Dallas	TX	75235	750800628	27000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITALMEDICAL CNTR
4800 SAND POINT WAY BOX 5371	SEATTLE	WA	98105	910564748	49050	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL OF PITTSBURG
3705 FIFTH AVE	PITTSBURGH	PA	15213	250402510	18900	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL NEUROLOGY
300 LONGWOOD AVENUE	BOSTON	MA	02115	222678594	27000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL NATL MED CTR
111 MICHIGAN NW	WASHINGTON	DC	20010	530196580	32400	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL MEDICAL CNTR
3333 BURNET AVE	CINCINNATI	OH	45229	310833963	40500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL CENTRAL CA
9300 VALLEY CHILDRENS PLACE	MADERA	CA	93638	941294954	9000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL BOSTON
300 LONGWOOD AVE	BOSTON	MA	02115	042774441	324870	0	RESEARCH
CHILDRENS HOSPITAL ORANGE CNTY
455 S MAIN STREET	ORANGE	CA	92868	952321788	5400	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL
200 HENRY CLAY AVENUE	NEW ORLEANS	LA	70118	720467503	9000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL
3020 CHILDRENS WAY	SAN DIEGO	CA	92123	951691313	45000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPITAL
2924 BROOK ROAD	RICHMOND	VA	23220	540506309	15300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSPOF PHILADELPHIA
34TH STREET CIVIC CENTER	PHILADELPHIA	PA	19104	231352166	90000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILDRENS HOSP OF PHILADELPHIA
3615 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	451363	0	RESEARCH
CHILDRENS CLINICS FOR REHAB SVS
2600 NORTH WYATT DRIVE	TUCSON	AZ	85712	860667510	24300	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CHILD NEUROLOGY ASSOC
5505 PEACHTREE DUNWOODY RD STE 500	ATLANTA	GA	30342	581947689	36000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BOULEVARD	LOS ANGELES	CA	90048	951644600	311579	0	RESEARCH
CATABASIS PHARMACEUTIC
161 First Street Suite 1	Cambridge	MA	02142	263687168	75000	0	RESEARCH
CASTLE MEDICAL CENTER
640 ULUKAHIKI STREET	KAILUA	HI	96734	990107330	22500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CAROLINAS MEDICAL CTNR
1221 E MOREHEAD	CHARLOTTE	NC	28204	561398929	181524	0	RESEARCH
CAROLINAS MEDICAL CENTER
1010 EDGEHILL ROAD NORTH	CHARLOTTE	NC	28207	566060481	90000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CARLE CLINIC ASSOCIATION
602 WEST UNIVERSITY AVENUE	URBANA	IL	61801	371188284	10800	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CAL PACIFIC MEDICAL CTR
475 BRANNAN STREET STE 220	SAN FRANCISCO	CA	94107	940562680	312691	0	RESEARCH
CAL PACIFIC MEDICAL CTR
2324 SACRAMENTO ST STE 150	SAN FRANCISCO	CA	94115	940562680	90000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
CAL INST OF TECHNOLOGY
1200 E CALIFORNIA BLVD	PASADENA	CA	91125	951643307	60000	0	RESEARCH
BURNHAM INSTITUTE
10901 N TORREY PINES RD	LA JOLLA	CA	92037	510197108	103112	0	RESEARCH
BRIGHAM & WOMENS HOSPITAL INC
75 FRANCIS STREET	BOSTON	MA	02115	042312909	611045	0	RESEARCH
BRIGHAM & WOMENS HOSPITAL
75 FRANCIS STREET	BOSTON	MA	02115	042312909	32580	0	MEDICAL DIAGNOSIS, FOLLOW-UP
BOSTON BIOMEDIC RESEARCH
64 GROVE STREET	WATERTOWN	MA	02472	042451939	100994	0	RESEARCH
BILLINGS CLINIC
2800 10TH AVE NORTH BOX 37000	BILLINGS	MT	59107	810407289	11700	0	MEDICAL DIAGNOSIS, FOLLOW-UP
BETH ISRAEL DEACONESS MEDICAL
330 BROOKLINE AVE	BOSTON	MA	02215	042103881	118232	0	RESEARCH
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA	HOUSTON	TX	77030	741613878	589210	0	RESEARCH
BAPTIST HOSPITAL EAST
4000 KRESGE WAY	LOUISVILLE	KY	40207	610444707	11700	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ARIZONA STATE UNIVERSITY
PO BOX 873503	TEMPE	AZ	85287	860196696	122033	0	RESEARCH
ALS THERAPY DEV INST
215 First Street	Cambridge	MA	02142	043462719	3540600	0	RESEARCH
ALL GRANTS UNDER 5K
3300 East Sunrise Drive	Tucson	AZ	85718		42346	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ALFRED duPONT HOSPITAL FOR CHILD
1600 ROCKLAND ROAD	WILMINGTON	DE	19899	590634433	49500	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ALBERT EINSTEIN COLLEGE OF MED
1300 MORRIS PARK AVE	BRONX	NY	10461	131624225	130500	0	RESEARCH
ALBANY MEDICAL COLLEGE
47 NEW SCOTLAND AVE	ALBANY	NY	12208	141338310	18900	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ALASKA REGIONAL HOSPITAL
2801 DeBARR ROAD	ANCHORAGE	AK	99508	611000033	9000	0	MEDICAL DIAGNOSIS, FOLLOW-UP
ACCELERON PHARMA
149 Sydney St	Cambridge	MA	02139	270072226	500000	0	RESEARCH
4s3 BIOSCIENCE INC
43 Riverside Ave 4	Medford	MA	02115	320246380	148138	0	RESEARCH

Field	Value	IRS element (for citing)
Total Nbr Of501 C3 And Govt Grants	45	TotalNbrOf501C3AndGovtGrants
Total Nbr Of Other Organizations	234	TotalNbrOfOtherOrganizations

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	Grantmaker's Description of How Grants are Used	Identifier
Explanation	Upon awarding a grant, but prior to disbursement of any funds, MDA requires the following of all grantees: return of the signed notice of award and submission to MDA of current regulatory documents necessary to conduct the research (institutional review board (IRB) approvals, animal care approvals, FDA or other regulatory agency approvals, and the like). Continued funding for the period of the grant is contingent upon submission to and approval by MDA of annual progress reports and reports of expenditures from all grantees. If such reports are not received, or are deemed unsatisfactory, MDA may opt to suspend or cancel funding for the grant. For some MDA translational research grants, payments to the grantee are contingent upon meeting defined milestones. In such cases, a steering committee reviews the progress of the grantee and determines whether the milestone has been met.	Explanation

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
First Class Or Charter Travel	X	FirstClassOrCharterTravel
Travel For Companions	X	TravelForCompanions
Written Policy Re T And E Expenses	true	WrittenPolicyReTAndEExpenses
Substantiation Required	true	SubstantiationRequired
Form990 Of Other Organizations	X	Form990OfOtherOrganizations
Written Employment Contract	X	WrittenEmploymentContract
Board Or Committee Approval	X	BoardOrCommitteeApproval
Severance Payment	false	SeverancePayment
Supplemental Nonqual Retire Plan	false	SupplementalNonqualRetirePlan
Equity Based Comp Arrangement	false	EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org	false	CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs	false	CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org	false	CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs	false	CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments	false	AnyNonFixedPayments
Initial Contract Exception	false	InitialContractException
Rebuttable Presumption Procedure	false	RebuttablePresumptionProcedure

Form990 Schedule J Part II Form990ScheduleJPartII (6 entries)

Base Compensation Filing OrgBaseCompensationFilingOrg	Deferred Comp Filing OrgDeferredCompFilingOrg	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrg	Total Compensation Filing OrgTotalCompensationFilingOrg
VALERIE A CWIK MD
181269	3625	6026	190920
PETER MORGAN
170823	11672	3416	185911
KEVIN W MORAN
148310	2966	11672	162948
JOHN WALSH
148616	11672	2972	163260
GERALD C WEINBERG
381022		5983	387005
GAIL SCHMERTZ KERNER ESQ
197343	3947	11672	212962

Form990 Schedule J Part III Form990ScheduleJPartIII

Field	Value	IRS element (for citing)
Identifier	Sch J, Part I, Line 1a	Identifier
Return Reference	Part I, Line 1a: Relevant information in regards to selections on 1a.	ReturnReference

Schedule L IRS990ScheduleL

Form990 Schedule L Part IV Form990ScheduleLPartIV (3 entries)

RelationshipRelationship	Amount Of TransactionAmountOfTransaction	Description Of TransactionDescriptionOfTransaction	Sharing Of RevenuesSharingOfRevenues
EDWARD NIGRO
MDA BOARD MEMBER	215040	REAL ESTATE RENOVATIONS	false
STEVE FARELLA
MDA BOARD MEMBER	219307	PLACEMENT OF PSA'S	false
DANIEL G FRIES
MDA BOARD MEMBER	314285	PENSION ACTUARIES SERV	false

Schedule M IRS990ScheduleM

Works Of Art WorksOfArt

Field	Value	IRS element (for citing)
Non Cash Checkbox	X	NonCashCheckbox
Number Of Contributions	6	NumberOfContributions

Securities Publicly Traded SecuritiesPubliclyTraded

Field	Value	IRS element (for citing)
Number Of Contributions	34	NumberOfContributions
Noncash Contribs Rptd F990	639661	NoncashContribsRptdF990

Other Non Cash Contributions Table OtherNonCashContributionsTable

Field	Value	IRS element (for citing)
Description	MEDICAL EQUIP	Description
Number Of Contributions	83	NumberOfContributions
Noncash Contribs Rptd F990	517762	NoncashContribsRptdF990
Method Of Determining Revenues	APPRAISAL	MethodOfDeterminingRevenues

Field	Value	IRS element (for citing)
Any Property That Must Be Held	false	AnyPropertyThatMustBeHeld
Review Process Unusual NC Gifts	true	ReviewProcessUnusualNCGifts
Third Parties Used	false	ThirdPartiesUsed

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (9 entries)

IdentifierIdentifier	Return ReferenceReturnReference	ExplanationExplanation
Form 990, Part VI, Line 19	Form 990, Part VI, Line 19: Other Organization Documents Publicly Available	Governing documents and the conflict of interest policies are internal documents. Copies of the audited financial statements are available upon request.
Form 990, Part VI, Line 15b	Form 990, Part VI, Line 15b: Compensation Review and Approval Process for Officers and Key Employees	Compensation is comparative to other national agencies and is approved by the Board of Directors
Form 990, Part VI, Line 12c	Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of Conflicts	The conflict of interest policy is monitored by the human resource department in conjunction with the MDA legal department
Form 990, Part VI, Line 11	Form 990, Part VI, Line 11: Form 990 Review Process	Each Board Member is provided with a paper version of the federal form 990 before filing with the IRS.
		Client Note 5 - Statement 5Schedule L, Part IVMDA Board member Dan Fries is employed by Sibson Consulting as Senior Vice President and Marketing Director. Sibson MDA's pension actuaries, received fees of $314,285.MDA Board member Steve Farella is Chief Executive Officer of TargetCast. TargetCast provides MDA with placement of free public service announcements in national media publications. In 2010 TargetCast Industries, Inc. receieved fees of $219,307.MDA Board member Edward Nigro is president of Omega Industries, Inc. was contracted to oversee the expansion and reovations of the National Headquarters. In 2010 Omega Industries, Inc. received fees of $215,040.
		Client Note 4 - Schedule J Compensation InformationPart 1 Line 1aSpecial travel arrangements are authorized for board members who require accommodations due to their physical conditions.
		Client Note 3 - PROFESSIONAL AND PUBLIC HEALTH EDUCATIONIn the year ended December 31, 2010, the Muscular Dystrophy Association (MDA) expended $23.2 million on its professional and public health education program. MDA annually provides the medical profession, scientific community, general public, and people affected by neuromuscular diseases with timely and thorough information about MDA's programs and the diseases they cover.MDA successfully worked with media outlets nationwide in 2010, placing more than 10,000 documented news stories about its lifesaving mission on network, syndicated and local media outlets, along with substantial news coverage on the Internet. Conservatively representing hundreds of millions of impressions collectively, these valuable earned media placements were reinforced by thousands of no-cost public service advertisements. In addition to free banner advertisements on many high-traffic websites, large numbers of MDA's award-winning "Make a Muscle, Make a Difference" PSAs were published by newspapers and other periodicals; broadcast by national, regional and local television, cable and radio stations.MDA publications and extensive online postings produced a steady stream of information about MDA-funded research and health care services, as well as insightful articles on relevant legislation and inspiring individuals. MDA produced four issues of its award-winning national magazine, Quest, offering a readership of more than 350,000 a stimulating mix of articles. The Association also published six issues of ALS News magazine for those affected by ALS (amyotrophic lateral sclerosis or Lou Gehrig's disease) helping keep nearly 60,000 readers informed.In addition, MDA produced and distributed a variety of educational videos for families affected by muscular dystrophy and related diseases. These videos were reinforced by an extensive array of program-specific spots broadcast during the 2010 MDA Labor Day Telethon viewed by tens of millions. Among these spots were special profiles of people living with neuromuscular diseases; research updates; educational spots on the myriad of medical and health care services available through MDA's national network of 200 hospital-affiliated clinics; a spotlight on MDA's extraordinary summer camp program for children ages six to 17, and much more. The Association also continued to enhance its popular mda.org website, as well as a dozen other microsites. Internationally recognized as a key source of information about muscle and nerve diseases, total 2010 page views at mda.org surpassed 5 million, with unique visitors exceeding 2.2 million for the year.MDA also facilitated and promoted a variety of online chats monthly to give the families it serves, as well as medical and health care professionals, ample opportunities to ask questions about diseases, research, services and many other topics.
		Client Note 2 - HEALTH CARE AND COMMUNITY SERVICESThroughout the United States and Puerto Rico, the Muscular Dystrophy Association (MDA) provides a wide variety of services to those affected by any of the disorders in its program, irrespective of age, race, creed, gender or color. MDA's services program is designed to assist those affected by muscular dystrophy and related diseases of the neuromuscular system, which affect children as well as adults. A complete list of diseases covered by MDA is contained in the Association's services brochure, copies of which are available upon request through MDA's National Headquarters at 3300 East Sunrise Drive, Tucson, Arizona 85718, from any of its 200 field offices in the United States and Puerto Rico, or its Web site at www.mda.org.MDA maintains the most comprehensive services program of any voluntary health agency in the country, helping individuals and their families meet the problems imposed by chronic, progressive neuromuscular diseases. This aspect of the Association's program accounted for over $ 77.3 million of its 2010 expenditures. The Association makes available a broad program of services ranging from a nationwide network of clinics providing access to top health professionals skilled in the diagnosis and medical management of neuromuscular diseases to assistance with essential support services, including the following: Diagnostic consultations and follow-up examinations by neuromuscular specialists through a nationwide network of 200 MDA clinics A national medical equipment program providing gently-used items, such as wheelchairs, communication technologies, walkers, hospital beds, bath aids and other assistive devices to enhance independence Assistance with repairs to prescribed medical equipment Nearly 80 week-long summer camp programs across the country providing fun and friendship for children affected by neuromuscular disease Annual physical, occupational, respiratory and speech therapy consultations Free flu shots Transitional services designed to provide support and resources for youth with neuromuscular disease who are entering adulthood Referrals to federal, state and community-based resources that offer assistance to those living with disabilities Support groups to assist families and individuals in coping with the special problems imposed by neuromuscular diseases Online support network and e-community, www.mda.org/mymda Online care coordination tool for families served by MDA, www.mda.org/myMuscleTeam/ Educational seminars that provide information about neuromuscular diseases and offer a forum to discuss subjects of importance to families living with these disordersMDA ClinicsMDA maintains a network of 200 hospital-affiliated neuromuscular clinics located at medical institutions and university-based facilities across the United States and Puerto Rico. Each year MDA provides tens of thousands of medical visits through its clinic program. Individuals affected by any of the disorders in MDA's purview have access to these clinics staffed by top health professionals using a multidisciplinary team approach. These experts advise about all aspects of medical management of neuromuscular disease, including respiratory care and physical therapy. Anyone whose physician suspects a neuromuscular disorder, upon referral by the person's physician, is eligible for a diagnostic evaluation at an MDA clinic. Should the diagnosis indicate a disease other than one included in MDA's program, the Association will then refer the individual to an appropriate community resource.Also, MDA clinics are essential to the advancement of neuromuscular disease research and serve as focal points for the clinical application of scientific advances designed to treat these disorders. They serve as the key centers for ongoing clinical trials for the development of potential therapies, which is the main priority of MDA's research program. As part of its clinic program, the Association has established 38 amyotrophic lateral sclerosis (ALS) centers across the country to focus attention on this very rapidly progressive debilitating neuromuscular disorder that strikes adults in the prime of life. Sites of MDA's ALS centers are as follows:* The Eleanor and Lou Gehrig MDA/ALS Center at Columbia University Medical Center in New York, NY;* Forbes Norris MDA/ALS Center at California Pacific Medical Center in San Francisco, CA; * Jerry Lewis MDA/ALS Clinical and Research Center in Los Angeles, CA; * MDA/ALS Center at the University of Wisconsin in Madison, WI; * MDA/ALS Center at Methodist Neurological Institute in Houston, TX; * MDA/ALS Center at Massachusetts General Hospital in Boston, MA; * MDA/ALS Center at the University of Illinois at Chicago in Chicago, IL; * MDA/ALS Center at UCLA in Los Angeles, CA; * MDA/ALS Center at the University of Colorado in Denver, CO; * MDA/ALS Center at Yale University in New Haven, CT; * MDA/ALS Center at Emory University School of Medicine in Atlanta, GA; * MDA/ALS Center at Johns Hopkins University in Baltimore, MD; * MDA/ALS Center at Washington University School of Medicine in St. Louis, MO; * MDA/ALS Center at the University of Texas in Dallas, TX; * Kessenich Family MDA/ALS Center at the University of Miami, FL; * MDA/ALS Center at the University of Utah in Salt Lake City, UT; * MDA/ALS Center at Carolinas Medical Center in Charlotte, NC; * MDA/ALS Center at SUNY Upstate Medical University in Syracuse, NY; * MDA/ALS Center at the University of Kansas Medical Center in Kansas City, KS; * The MDA/ALS Center at the Michigan Institute for Neurological Disorders in Farmington, MI.* MDA/ALS Center of Hope at Drexel University College of Medicine in Philadelphia, PA;* MDA/ALS Center at St. Joseph's Hospital and Medical Center in Phoenix, AZ;* MDA/ALS Center at UPH Hospital in Tucson, AZ;* MDA/ALS Center at the University of New Mexico Health Sciences Center in Albuquerque, NM;* MDA/ALS Center at the University of California, Irvine, CA;* MDA/ALS Center through the University of Texas Health Science Center at San Antonio, TX;* MDA/ALS Center at the University of Washington Medical Center in Seattle, WA;* MDA/ALS Center at Vanderbilt University Medical Center in Nashville, TN;* MDA/ALS Center at Ohio State University in Columbus, OH;* MDA/ALS Center at the University of Rochester Medical Center in Rochester, NY;* MDA/ALS Center at the University of Arkansas for Medical Sciences in Little Rock, AR;* MDA/ALS Center at the University of Pittsburgh Medical Center in Pittsburgh, PA;* MDA/ALS Center at the University of Massachusetts Medical Center in Worcester, MA;* MDA/ALS Center at Integris Southwest Medical Center in Oklahoma City, OK;* MDA/ALS Center at Oregon Health & Science University in Portland, OR;* MDA/ALS Center of Memphis Mid-South in Cordova, TN.* MDA/ALS Center at UCSF Medical Center in San Francisco, CA.* The Michigan State University MDA/ALS Center with two clinical sites at Michigan State University in East Lansing and Mary Free Bed Rehabilitation Hospital in Grand Rapids, MIMDA's services program is administered through its network of 200 field offices located in the United States and Puerto Rico. MDA health care service coordinators knowledgeable about federal, state and local community resources also assist families served by MDA by advising them about other services for which they may be eligible. MDA provides assistance to those it serves in need of prescribed medical equipment. In 2010 thousands of adaptive devices were provided to individuals through MDA's equipment program -- including, but not limited to, walkers, canes, bath equipment, wheelchairs, hydraulic lifts, communication technologies and hospital beds. MDA also assisted with repairs to all types of medical equipment for those it serves. In 2010, nearly 3,500 children ages 6-17 enjoyed a week of fun and friendship through MDA summer camps which offer activities geared to the special needs and abilities of those with neuromuscular disease. Thousands of individuals and their families received support through MDA's nationwide network of nearly 200 support groups, as well as through MDA-sponsored educational seminars, referral services and online chat sessions at www.mda.org/chat/calendar.html and live expert-hosted webinars which are then archived at www.mda.org. Support also was available through MDA's e-community, www.mda.org/mymda, and its online care coordination tool for families, www.mda.org/myMuscleTeam/.Additional information about MDA's Health Care and Community Services Program is available through MDA's Web site at www.mda.org/services.html.
		Client Note 1 - RESEARCHGeneralThe Muscular Dystrophy Association, Inc., (MDA) is a not-for-profit corporation incorporated on June 6, 1950, under the laws of the State of New York. MDA supports worldwide research to find the causes of and cures for muscular dystrophy and related neuromuscular disorders. The programs of MDA are supported almost entirely by individual private contributions from the general public. MDA neither receives fees from those it serves nor applies any means test for services, and by choice is not a United Way-supported agency.The diseases supported by MDA are the muscular dystrophies (among which are Duchenne and Becker); motor neuron diseases, including amyotrophic lateral sclerosis (ALS, Lou Gehrig's disease) and spinal muscular atrophy; the peripheral nerve disorders Charcot-Marie-Tooth disease and Friedreich's ataxia; inflammatory myopathies; disorders of the neuromuscular junction; metabolic diseases of muscle as well as other myopathies. Many of the disorders in MDA's program are genetic. Most cause progressive weakness resulting in significant disability and chronic mobility impairment. Some of the over 40 neuromuscular diseases covered by MDA are fatal.As reported by the U.S. Department of Health and Human Services, National Institutes of Health (NIH), in the United States alone, muscular dystrophy and other neuromuscular disorders are estimated to affect some 1 million people.ResearchMDA continues to support some 300 research teams worldwide through its investigator initiated research grants program primarily at academic institutions. It is the basic science supported by MDA at these institutions that has led to the discoveries now being applied to the development of effective therapies. The Association is funding studies in genetic-based therapies, stem cell therapy, drug development, muscle and nerve biology, proteomics, muscle and nerve regeneration and differentiation, etc.MDA sponsors research grants in the United States and 15 foreign countries. The Association's research program accounted for some $35.1 million of its expenditures for the calendar year. MDA's Scientific and Medical Advisory Committees, whose members are among the nation's foremost scientists and physicians in the field of neuromuscular disease, carefully review all research supported by the Association. MDA maintains a diverse program of basic research which advances investigations of possible treatments for neuromuscular diseases, muscle function, regulation and regeneration; biochemical changes involved in muscle disease; the genetics of neuromuscular disease; and the interaction of nerve and muscle. This work is necessary in order to provide a sound scientific foundation from which practical advances against disease can arise. Additionally, the Association's Translational Research Program is focused on milestone driven contracts with the biotech industry, pharmaceutical companies and academic investigators for research that is directly relevant to bringing new therapies to market. Advisors to MDA's Translational Research Program include a number of top neuromuscular disease researchers, as well as representatives of NIH and industry. Searching for the Causes of Neuromuscular DiseaseThe majority of the neuromuscular diseases covered by MDA's programs, including all of the muscular dystrophies, are genetic disorders. In 1986, MDA researchers ushered in a new era in neuromuscular disease research with the identification of the gene that when defective causes Duchenne and Becker muscular dystrophies. This gene, the largest human gene ever discovered, was the first major human disease gene isolated without prior knowledge of its protein product. MDA has been in the forefront of research on inherited diseases with an ever-expanding list of new genetic research projects and an extensive list of genes that have been found defective in inherited neuromuscular disorders. MDA-funded scientists continue to investigate the causes of neuromuscular disease.Search for TreatmentFindings from early research supported by MDA served as the scientific basis for approval by the FDA of the first drug available for prescription use for ALS. This drug, called riluzole, works by partially blocking the natural substance glutamate. MDA researchers worked on the glutamate theory that led to riluzole's development. Over the years a number of measures have been adopted to treat neuromuscular diseases including, nutrition, bracing, physical therapy and drugs such as prednisone. Several measures are used to successfully manage these disorders. Plasma exchange is a life saving measure for myasthenia gravis, prednisone slows the progression of muscle weakness in Duchenne muscular dystrophy (DMD) and L-carnitine is used in the treatment of carnitine deficiency.MDA sponsored early research in Pompe's disease and also helped support clinical testing of Myozyme, which was developed by Genzyme Corp. of Cambridge, Mass. Myozyme is the first FDA-approved therapy for a genetic disorder in MDA's program. Recent Research AccomplishmentsThe first U.S. human gene therapy trial of Biostrophin targeting Duchenne Muscular Dystrophy (DMD), launched in March 2006 at Columbus Children's Hospital (now Nationwide Children's Hospital in Ohio) in boys with DMD, have shown that the procedure, in a single muscle, is safe and well tolerated. Gene therapy studies for DMD have advanced to a second phase - large animal studies in canine and non-human primate DMD models to test the safety and effectiveness of delivering Biostrophin, to replace the faulty gene in DMD, to an entire limb. Gene therapy is also under development for limb-girdle muscular dystrophy (LGMD). A clinical trial of gene therapy for type 2D LGMD, caused by a deficiency of the protein alpha-sarcoglycan, proved the therapy to be safe and well-tolerated when injected into a single foot muscle. The treatment also resulted in a significant increase in the amount of alpha-sarcoglycan protein in the gene-injected muscle. MDA continues to support studies for development of gene transfer via the bloodstream aimed at delivering the treatment to multiple muscles simultaneously, which will be necessary for clinical benefit. Exon skipping coaxes muscle cells to ignore, or "skip over," a flawed section of genetic instructions for the dystrophin protein, which is missing in people with DMD. Data from several studies demonstrated that this strategy has great therapeutic potential. MDA funded much of the early work that led to exon skipping drugs that are now in human clinical trials, and MDA continues to develop the strategy for DMD. The first U.S. human clinical trial for exon skipping in DMD began in 2010 and a second trial will get underway in 2011. Researchers found a critical key to blocking the cause of myotonic muscular dystrophy, the most common form of muscular dystrophy, by fooling defective genetic material in a discovery that could have major implications for finding a treatment for the disease. They used a synthetic molecule, called a morpholino antisense oligonucleotide, CAG25, to block disease-causing genetic instructions in cells. The CAG25 released proteins held hostage in muscle and other cells by defective RNA, a byproduct of the flawed genetic instructions. The blocked proteins resumed their normal functions and the muscles showed improvement in molecular structure and function. Planning for human clinical trials of this therapeutic strategy for myotonic muscular dystrophy is underway. In ALS, therapies are under development to target the underlying cause in an inherited form of the disorder. Some familial cases of ALS are caused by mutations in the superoxide dismutase 1 (SOD1) gene, resulting in the production of SOD1 protein that is toxic to motor neurons. Investigators at Washington University (St. Louis, MO) and Massachusetts General Hospital (Boston, MA) are testing whether antisense oligonucleotides, developed by ISIS Pharmaceuticals of Carlsbad, CA, can inhibit the toxic SOD1 protein. Human trials began in 2010. MDA and the ALS Therapy Development Institute (ALS TDI) continued to work together in 2010 and the Association provided the institution a new $2.5 million milestone-driven grant as part of the drug discovery partnership begun in 2007. In 2010, ALS TDI's leading therapeutic candidate was ALSTDI-00846, a molecule that blocks a key immune pathway identified as being overactive in some cases of ALS. MDA's Clinical Research Network, which includes five sites focused on DMD and five on ALS continued several clinical studies. The DMD network is developing clinical trial outcome measures for very young children as well as those no longer walking with DMD. In the future, these populations, typically excluded from clinical trials, will have the opportunity to participate in trials of promising therapies. In addition, the DMD investigators are conducting a study of the natural history of cardiomyopathy i