CHOROIDEREMIA RESEARCH FOUNDATION INC: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
CHOROIDEREMIA RESEARCH FOUNDATION INC (EIN 04-3511754)
Tax period
2024-07-01 to 2025-06-30
Filed
2026-03-07
IRS object ID
202600669349300505
Schema version
2024v5.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-03-07T07:37:30-08:00ReturnTs
Tax Period End2025-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN320048525PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1LaPier Dillon & Associates PCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1333 Elm StAddressLine1Txt
CityW SpringfieldCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01089ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN043511754EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHOROIDEREMIA RESEARCH FOUNDATION INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCHORBusinessNameControlTxt
Phone8002100233PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line123 E BRUNDRETH STREETAddressLine1Txt
CitySPRINGFIELDCityNm
State AbbreviationMAStateAbbreviationCd
ZIP01109ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonKathi WagnerPersonNm
Person TitleExecutive Dir.PersonTitleTxt
Signature2026-03-07SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonNicholas LaPierPreparerPersonNm
PTINP01227383PTIN
Phone4137320200PhoneNum
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerKathi WagnerPrincipalOfficerNm
Gross Receipts$964,837GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.curechm.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2000FormationYr
Legal Domicile StateMALegalDomicileStateCd
Activity Or MissionTo raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.ActivityOrMissionDesc
Voting Members Governing Body20VotingMembersGoverningBodyCnt
Voting Members Independent20VotingMembersIndependentCnt
Total Employee6TotalEmployeeCnt
Total Volunteers200TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$660,391PYContributionsGrantsAmt
CY Contributions Grants$932,115CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$38,678PYInvestmentIncomeAmt
CY Investment Income$30,908CYInvestmentIncomeAmt
CY Other Revenue$1,814CYOtherRevenueAmt
PY Total Revenue$699,069PYTotalRevenueAmt
CY Total Revenue$964,837CYTotalRevenueAmt
PY Grants And Similar Paid$363,127PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$418,922CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$188,881PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$199,909CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$89,049CYTotalFundraisingExpenseAmt
PY Other Expenses$137,470PYOtherExpensesAmt
CY Other Expenses$200,225CYOtherExpensesAmt
PY Total Expenses$689,478PYTotalExpensesAmt
CY Total Expenses$819,056CYTotalExpensesAmt
PY Revenues Less Expenses$9,591PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$145,781CYRevenuesLessExpensesAmt
Total Assets BOY$810,811TotalAssetsBOYAmt
Total Assets EOY$956,687TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$810,811NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$956,687NetAssetsOrFundBalancesEOYAmt
MissionTo raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$656,983ExpenseAmt
DescTo raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public.Desc
Total Program Service Expenses$656,983TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (true)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstYes (true)ReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee6EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members20GoverningBodyVotingMembersCnt
Independent Voting Member20IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersYes (true)MembersOrStockholdersInd
Election Of Board MembersYes (true)ElectionOfBoardMembersInd
Decisions Subject To ApprovaYes (true)DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonCORY A MACDONALDPersonNm
Phone4135235393PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line123 E BRUNDRETH STREETAddressLine1Txt
CitySPRINGFIELDCityNm
State AbbreviationMAStateAbbreviationCd
ZIP011092110ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerInd
KATHI WAGNER
EXECUTIVE DIRECTOR40.000.00$107,780$0$0
Neal Bench
President1.000.00$0$0$0Yes (X)Yes (X)
John Trott
Vice President1.000.00$0$0$0Yes (X)Yes (X)
Michael Mullen
Vice President1.000.00$0$0$0Yes (X)Yes (X)
Tara Cassidy-Driscoll
Director1.000.00$0$0$0Yes (X)
Brian Mayer
Secretary1.000.00$0$0$0Yes (X)Yes (X)
Michael Laengsfeld
Director1.000.00$0$0$0Yes (X)
Jason McKinney
Director1.000.00$0$0$0Yes (X)
Dr John-Ross Rizzo
Director1.000.00$0$0$0Yes (X)
Liza Zumsteg
Treasurer1.000.00$0$0$0Yes (X)
Jon Salois
Director1.000.00$0$0$0Yes (X)
Kayla Schiller
Treasurer1.000.00$0$0$0Yes (X)Yes (X)
Bob Hillier
DIRECTOR1.000.00$0$0$0Yes (X)
Brian Counter
Director1.000.00$0$0$0Yes (X)
Aurelie Harp
Director1.000.00$0$0$0Yes (X)
Yamil Rosete-Rodriguez
Director1.000.00$0$0$0Yes (X)
Sarah Thompson
Director1.000.00$0$0$0Yes (X)
Mary Porter
Director1.000.00$0$0$0Yes (X)
Rachel Oster
Director1.000.00$0$0$0Yes (X)
Naama Goldman-Einhorn
Director1.000.00$0$0$0Yes (X)
Thomas Driscoll
Director1.000.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$107,780TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$932,115AllOtherContributionsAmt
Total Contributions$932,115TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$30,908TotalRevenueColumnAmt
Exclusion$30,908ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescCredit Card RewardsDesc
Total Revenue Column$1,814TotalRevenueColumnAmt
Related Or Exempt Func Income$1,814RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Other Revenue Total$1,814OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$964,837TotalRevenueColumnAmt
Related Or Exempt Func Income$1,814RelatedOrExemptFuncIncomeAmt
Exclusion$30,908ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$214,946TotalAmt
Program Services$214,946ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$203,976TotalAmt
Program Services$203,976ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$100,280TotalAmt
Program Services$60,349ProgramServicesAmt
Management And General$21,289ManagementAndGeneralAmt
Fundraising$18,642FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$85,031TotalAmt
Program Services$51,175ProgramServicesAmt
Management And General$18,052ManagementAndGeneralAmt
Fundraising$15,804FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$14,598TotalAmt
Program Services$8,785ProgramServicesAmt
Management And General$3,100ManagementAndGeneralAmt
Fundraising$2,713FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$250TotalAmt
Management And General$250ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$13,273TotalAmt
Management And General$13,273ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$15,778TotalAmt
Program Services$3,417ProgramServicesAmt
Management And General$10,070ManagementAndGeneralAmt
Fundraising$2,291FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$14,018TotalAmt
Program Services$5,893ProgramServicesAmt
Management And General$4,063ManagementAndGeneralAmt
Fundraising$4,062FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$101,042TotalAmt
Program Services$101,042ProgramServicesAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$215TotalAmt
Program Services$129ProgramServicesAmt
Management And General$46ManagementAndGeneralAmt
Fundraising$40FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$2,612TotalAmt
Program Services$1,572ProgramServicesAmt
Management And General$555ManagementAndGeneralAmt
Fundraising$485FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtFundraisingFundraisingAmtManagement And GeneralManagementAndGeneralAmtProgram ServicesProgramServicesAmt
FUNDRAISER EXPENSE$19,800$19,800
BANK CHARGES$17,512$16,902$610
SPECIAL EVENTS$6,809$6,809
MISCELLANEOUS$4,500$837$955$2,708

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$4,416TotalAmt
Program Services$2,991ProgramServicesAmt
Management And General$761ManagementAndGeneralAmt
Fundraising$664FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$819,056TotalAmt
Program Services$656,983ProgramServicesAmt
Management And General$73,024ManagementAndGeneralAmt
Fundraising$89,049FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$42,390BOYAmt
EOY$135,313EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$3,699LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$2,517LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$1,397BOYAmt
EOY$1,182EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$767,024BOYAmt
EOY$820,192EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$810,811BOYAmt
EOY$956,687EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$381,801BOYAmt
EOY$364,797EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$429,010BOYAmt
EOY$591,890EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$810,811BOYAmt
EOY$956,687EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$810,811BOYAmt
EOY$956,687EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$145,781ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$95NetUnrlzdGainsLossesInvstAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$671,033CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$652,492CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$536,725CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$660,391CurrentTaxYearMinus1YearAmt
Current Tax Year$932,115CurrentTaxYearAmt
Total$3,452,756TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$671,033CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$652,492CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$536,725CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$660,391CurrentTaxYearMinus1YearAmt
Current Tax Year$932,115CurrentTaxYearAmt
Total$3,452,756TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$3,452,756PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$355CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$11,682CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$24,167CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$38,678CurrentTaxYearMinus1YearAmt
Current Tax Year$30,908CurrentTaxYearAmt
Total$105,790TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$355CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$11,682CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$24,167CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$38,678CurrentTaxYearMinus1YearAmt
Current Tax Year$30,908CurrentTaxYearAmt
Total$105,790TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year$1,814CurrentTaxYearAmt
Total$1,814TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$671,388CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$664,174CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$560,892CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$699,069CurrentTaxYearMinus1YearAmt
Current Tax Year$964,837CurrentTaxYearAmt
Total$3,560,360TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.96980PublicSupportCY509Pct
Public Support PY5090.97310PublicSupportPY509Pct
Investment Income CY0.02970InvestmentIncomeCYPct
Investment Income PY0.02690InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$372,010BeginningYearBalanceAmt
Contributions$54,693ContributionsAmt
Investment Earnings Or Losses$19,066InvestmentEarningsOrLossesAmt
End Year Balance$445,769EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$332,606BeginningYearBalanceAmt
Contributions$20,517ContributionsAmt
Investment Earnings Or Losses$18,887InvestmentEarningsOrLossesAmt
End Year Balance$372,010EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$300,307BeginningYearBalanceAmt
Contributions$32,000ContributionsAmt
Investment Earnings Or Losses$6,947InvestmentEarningsOrLossesAmt
Administrative Expenses$6,648AdministrativeExpensesAmt
End Year Balance$332,606EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$249,838BeginningYearBalanceAmt
Contributions$40,042ContributionsAmt
Investment Earnings Or Losses$10,427InvestmentEarningsOrLossesAmt
End Year Balance$300,307EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Contributions$250,000ContributionsAmt
Investment Earnings Or Losses-$162InvestmentEarningsOrLossesAmt
End Year Balance$249,838EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd
Related Org List Sch RfalseRelatedOrgListSchRInd

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$3,699OtherCostOrOtherBasisAmt
Depreciation$2,517DepreciationAmt
Book Value$1,182BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,182TotalBookValueLandBuildingsAmt
Total Book Value Program Rltd$820,192TotalBookValueProgramRltdAmt
Total Rev Etc Audited Fincl Stmt$964,932TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$95NetUnrealizedGainsInvstAmt
Revenue Not Reported$95RevenueNotReportedAmt
Revenue Subtotal$964,837RevenueSubtotalAmt
Total Revenue Per Form990$964,837TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$819,056TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$819,056ExpensesSubtotalAmt
Total Expenses Per Form990$819,056TotalExpensesPerForm990Amt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
AustraliaChoroideremia Rsrch$25,000Wire Trnsfer
CanadaChoroideremia Rsrch$19,567Wire Trnsfer
EnglandChoroideremia Rsrch$34,764Wire Trnsfer
IsrealChoroideremia Rsrch$124,645Wire Trnsfer
FieldValueIRS element (for citing)
Total Other Org4TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedfalseGrantRecordsMaintainedInd

Recipient Table RecipientTable (4 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
University of Michigan
1109 Geddes AveAnn ArborMI48109386006309$25,000$0General Support
University of Pennsylvannia
3451 Walnut StreetPhiladelphiaPA19104231352685$59,310$0General Support
University of Virginia
1827 University AveCharlottesvilleVA22903546001796$30,636$0General Support
University of Wisconson
500 Lincoln DrMadisonWI53706390743975$100,000$0General Support
FieldValueIRS element (for citing)
Total501c3 Org4Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section A, Line 2Tara Cassidy-Driscoll is the mother of Thomas Driscoll, both are Board Members.
Form 990, Part VI, Section B, Line 11bTHE BOARD MEMBERS ARE PROVIDED WITH A COPY OF THE 990 FOR REVIEW BEFORE APPROVAL.
Form 990, Part VI, Section B, Line 15aTHE BOARD OF DIRECTORS APPROVES COMPENSATION FOR THE EXECUTIVE DIRECTOR.
Form 990, Part VI, Section C, Line 19GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICIES, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST BY WRITING KATHI WAGNER, EXECUTIVE DIRECTOR AT KATHIWAGNER@CURECHM.ORG OR BY PHONE AT 800-210-0233.
Form 990, Part XII, Line 2cCOORDINATION OF THE AUDIT IS OVERSEEN BY THE DIRECTOR, EXECUTIVE DIRECTOR, AND TREASURER. THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS ARE ALSO ACTIVELY INVOLVED IN THE PROCESS.
Schedule F, Part II Grants to Organizations Outside the United StatesAustralia - University of Melbourne - $25,000Canada - The Hospital for Sick Children - $19,567United Kingdom - University of Oxford - $34,764Israel - Hadassah-Hebrew University Medical Center - $124,645

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