HUNTINGTON S DISEASE FOUNDATION: Form 990, tax year 2011

View the entire original 990 at ProPublica ↗

Organization
HUNTINGTON S DISEASE FOUNDATION (EIN 23-7376197)
Tax period
2011-01-01 to 2011-12-31
Filed
2012-11-14
IRS object ID
201203199349304820
Schema version
2011v1.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2012-11-14T14:31:11-06:00Timestamp
Tax Period End Date2011-12-31TaxPeriodEndDate

Preparer Firm PreparerFirm

FieldValueIRS element (for citing)
EIN521480805EIN

Preparer Firm Business Name PreparerFirmBusinessName

FieldValueIRS element (for citing)
Business Name Line1CHACONAS & WILSON PCBusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

FieldValueIRS element (for citing)
Address Line12100 PENNSYLVANIA AVENUE NW 580AddressLine1
CityWASHINGTONCity
StateDCState
ZIP Code20037ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnType
Tax Period Begin Date2011-01-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN237376197EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1HEREDITARY DISEASE FOUNDATIONBusinessNameLine1
FieldValueIRS element (for citing)
Name ControlHERENameControl
Phone2129280420Phone

US Address USAddress

FieldValueIRS element (for citing)
Address Line13960 BROADWAY 6TH FLOORAddressLine1
CityNEW YORKCity
StateNYState
ZIP Code10032ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameNANCY WEXLERName
TitlePRESIDENTTitle
Phone2129280420Phone
Date Signed2012-11-14DateSigned
Authorize Third Party1AuthorizeThirdParty

Preparer Preparer

FieldValueIRS element (for citing)
NameMOLLIE LAMBERTName
PTINP01336155PTIN
Phone2024298890Phone
FieldValueIRS element (for citing)
Tax Year2011TaxYear
Build TS2016-02-24 21:20:13ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Name Of Principal Officer PersonNANCY WEXLERNameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

FieldValueIRS element (for citing)
Address Line13960 BROADWAYAddressLine1
CityNEW YORKCity
StateNYState
ZIP Code10032ZIPCode
FieldValueIRS element (for citing)
Gross Receipts4447435GrossReceipts
Group Return For Affiliates0GroupReturnForAffiliates
Organization501c3XOrganization501c3
Web SiteWWW.HDFOUNDATION.ORGWebSite
Type Of Organization CorporationXTypeOfOrganizationCorporation
Year Formation1968YearFormation
State Legal DomicileCAStateLegalDomicile
Activity Or Mission DescriptionALL OF THE RESEARCH FOCUSES ON DISCOVERING NEW TREATMENTS AND CURES FOR HUNTINGTON'S DISEASE AND RELATED DISORDERS. THE STARTING POINT FOR MOST OF THE RESEARCH HAS BEEN THE QUESTION OF HOW THE EXPANSION OF A POLYGLUTAMINE TRACT IN A PROTEIN CALLED HUNTINGTIN CAN LEAD TO NEURODEGENERATIVE DISEASES.ActivityOrMissionDescription
Nbr Voting Members Governing Body17NbrVotingMembersGoverningBody
Nbr Independent Voting Members10NbrIndependentVotingMembers
Total Nbr Employees5TotalNbrEmployees
Total Nbr Volunteers0TotalNbrVolunteers
Total Gross UBI0TotalGrossUBI
Net Unrelated Business Txbl Income0NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year2214255ContributionsGrantsPriorYear
Contributions Grants Current Year661521ContributionsGrantsCurrentYear
Program Service Revenue Prior Year0ProgramServiceRevenuePriorYear
Program Service Revenue CY0ProgramServiceRevenueCY
Investment Income Prior Year363242InvestmentIncomePriorYear
Investment Income Current Year264612InvestmentIncomeCurrentYear
Other Revenue Prior Year0OtherRevenuePriorYear
Other Revenue Current Year0OtherRevenueCurrentYear
Total Revenue Prior Year2577497TotalRevenuePriorYear
Total Revenue Current Year926133TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year669122GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY680948GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year0BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY0BenefitsPaidToMembersCY
Salaries Etc Prior Year518550SalariesEtcPriorYear
Salaries Etc Current Year551499SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year0TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY0TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year34006TotalFundrsngExpCurrentYear
Other Expense Prior Year930538OtherExpensePriorYear
Other Expenses Current Year860414OtherExpensesCurrentYear
Total Expenses Prior Year2118210TotalExpensesPriorYear
Total Expenses Current Year2092861TotalExpensesCurrentYear
Revenues Less Expenses Prior Year459287RevenuesLessExpensesPriorYear
Revenues Less Expenses CY-1166728RevenuesLessExpensesCY
Total Assets BOY10852807TotalAssetsBOY
Total Assets EOY9436673TotalAssetsEOY
Total Liabilities BOY471177TotalLiabilitiesBOY
Total Liabilities EOY596220TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY10381630NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY8840453NetAssetsOrFundBalancesEOY
Info In Schedule O Part IIIXInfoInScheduleOPartIII
Mission DescriptionALL OF THE RESEARCH FOCUSES ON DISCOVERING NEW TREATMENTS AND CURES FOR HUNTINGTON'S DISEASE AND RELATED DISORDERS. THE STARTING POINT FOR MOST OF THE RESEARCH HAS BEEN THE QUESTION OF HOW THE EXPANSION OF A POLYGLUTAMINE TRACT IN A PROTEIN CALLED HUNTINGTIN CAN LEAD TO NEURODEGENERATIVE DISEASES.MissionDescription
Significant New Program Services0SignificantNewProgramServices
Significant Change0SignificantChange
Expense1789598Expense
Grants680948Grants
DescriptionTHE STARTING POINT FOR MOST OF THE RESEARCH HAS BEEN THE QUESTION OF HOW THE EXPANSION OF A POLYGLUTAMINE TRACT IN A PROTEIN CALLED HUNTINGTIN CAN LEAD TO NEURODEGENERATIVE DISEASE. MUCH OF THE RESEARCH FOCUS HAS BEEN ON ESSAYS THAT WILL ALLOW HIGH THROUGH-PUT SCREENING OF MOLECULES THAT CAN BE TURNED INTO MEDICINES.Description
Total Program Service Expense1789598TotalProgramServiceExpense
Described In501 C31DescribedIn501C3
Schedule B Required1ScheduleBRequired
Political Activities0PoliticalActivities
Lobbying Activities0LobbyingActivities
Subject To Proxy Tax0SubjectToProxyTax
Donor Advised Funds0DonorAdvisedFunds
Conservation Easements0ConservationEasements
Collections Of Art0CollectionsOfArt
Credit Counseling0CreditCounseling
Term Or Permanent Endowments1TermOrPermanentEndowments
Report Land Bldg Equip1ReportLandBldgEquip
Report Invest Oth Securities1ReportInvestOthSecurities
Report Prog Rel Invest0ReportProgRelInvest
Report Other Assets0ReportOtherAssets
Report Other Liabilities1ReportOtherLiabilities
Report Fin48 Footnote1ReportFin48Footnote
Independent Audit Financial Stmt1IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt0ConsolidatedAuditFinancialStmt
School0School
Foreign Office0ForeignOffice
Foreign Activities1ForeignActivities
More Than5000 K To Organizations0MoreThan5000KToOrganizations
More Than5000 K To Individuals1MoreThan5000KToIndividuals
Professional Fundraising0ProfessionalFundraising
Fundraising Activities0FundraisingActivities
Gaming0Gaming
Hospital0Hospital
Grants To Organizations0GrantsToOrganizations
Grants To Individuals1GrantsToIndividuals
Schedule J Required1ScheduleJRequired
Tax Exempt Bonds0TaxExemptBonds
Excess Benefit Transaction0ExcessBenefitTransaction
Prior Excess Benefit Transaction0PriorExcessBenefitTransaction
Loan To Officer Or DQP0LoanToOfficerOrDQP
Grant To Related Person0GrantToRelatedPerson
Bsnss Rltnshp With Organization0BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member0BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp0OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions1DeductibleNonCashContributions
Deductible Contributions Of Art0DeductibleContributionsOfArt
Terminated0Terminated
Partial Liquidation0PartialLiquidation
Disregarded Entity0DisregardedEntity
Related Entity0RelatedEntity
Related Org Controlled Entity0RelatedOrgControlledEntity
Transaction Related Entity0TransactionRelatedEntity
Transfers To Exempt Non Chrtbl Org0TransfersToExemptNonChrtblOrg
Activities Conducted Partnership0ActivitiesConductedPartnership
Schedule O Required1ScheduleORequired
Number Forms Transmitted With10960NumberFormsTransmittedWith1096
Number W2 G Included0NumberW2GIncluded
Number Of Employees5NumberOfEmployees
Employment Tax Returns Filed1EmploymentTaxReturnsFiled
Unrelated Business Income0UnrelatedBusinessIncome
Foreign Financial Account0ForeignFinancialAccount
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTrans
Taxable Party Notification0TaxablePartyNotification
Non Deductible Contributions0NonDeductibleContributions
Quid Pro Quo Contributions1QuidProQuoContributions
Quid Pro Quo Disclosure1QuidProQuoDisclosure
Form8282 Property Disposed Of0Form8282PropertyDisposedOf
Funds To Pay Premiums0FundsToPayPremiums
Premiums Paid0PremiumsPaid
Indoor Tanning Services0IndoorTanningServices
Info In Schedule O Part VIXInfoInScheduleOPartVI
Nbr Voting Governing Body Members17NbrVotingGoverningBodyMembers
Number Independent Voting Members10NumberIndependentVotingMembers
Family Or Business Relationship1FamilyOrBusinessRelationship
Delegation Of Management Duties0DelegationOfManagementDuties
Changes To Organizing Docs0ChangesToOrganizingDocs
Material Diversion Or Misuse0MaterialDiversionOrMisuse
Members Or Stockholders0MembersOrStockholders
Election Of Board Members0ElectionOfBoardMembers
Decisions Subject To Approval0DecisionsSubjectToApproval
Minutes Of Governing Body1MinutesOfGoverningBody
Minutes Of Committees1MinutesOfCommittees
Officer Mailing Address0OfficerMailingAddress
Local Chapters0LocalChapters
Form990 Provided To Governing Body0Form990ProvidedToGoverningBody
Conflict Of Interest Policy1ConflictOfInterestPolicy
Annual Disclosure Covered Persons0AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement0RegularMonitoringEnforcement
Whistleblower Policy1WhistleblowerPolicy
Document Retention Policy0DocumentRetentionPolicy
Compensation Process CEO1CompensationProcessCEO
Compensation Process Other1CompensationProcessOther
Investment In Joint Venture0InvestmentInJointVenture
States Where Copy Of Return Is FiledCAStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledNYStatesWhereCopyOfReturnIsFiled
Upon RequestXUponRequest

The Books Are In Care Of TheBooksAreInCareOf

Name Business NameBusiness

FieldValueIRS element (for citing)
Business Name Line1KAREN DEANBusinessNameLine1
FieldValueIRS element (for citing)
Telephone Number2129280420TelephoneNumber

Address US AddressUS

FieldValueIRS element (for citing)
Address Line13960 BROADWAY 6TH FLOORAddressLine1
CityNEW YORKCity
StateNYState
ZIP Code10032ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (19 entries)

TitleTitleAverage Hours Per WeekAverageHoursPerWeekIndividual Trustee Or DirectorIndividualTrusteeOrDirectorOfficerOfficerReportable Comp From OrganizationReportableCompFromOrganizationReportable Comp From Related OrgsReportableCompFromRelatedOrgsOther CompensationOtherCompensationKey EmployeeKeyEmployeeHighest Compensated EmployeeHighestCompensatedEmployee
NANCY WEXLER PHD
PRESIDENT35.00XX000
FRANK GEHRY
VICE PRESIDENT1.00X000
BERTA GEHRY
TREASURER2.00X000
ALICE WEXLER PHD
SECRETARY2.00X000
GERALD ARONSON MD
DIRECTOR1.00X000
ROBI BLUMENSTEIN
DIRECTOR1.00X000
BRUCE DONALDSON
DIRECTOR1.00X000
JODIE EVANS
DIRECTOR1.00X000
SANDY FOX
DIRECTOR1.00X000
DAVID GERSTENHABER
DIRECTOR1.00X000
KELLY POSNER GERSTENHABER PHD
DIRECTOR1.00X000
ARTHUR GOLDING MD
DIRECTOR1.00X000
JONATHAN GUEST
DIRECTOR1.00X000
DAVID HOUSMAN PHD
DIRECTOR1.00X000
JONATHAN MATZ
DIRECTOR1.00X000
HERBERT PARDES MD
DIRECTOR2.00X000
ANNE B YOUNG MD PHD
DIRECTOR1.00X000
CARL JOHNSON
DIRECTOR OF SCIENCE40.00190000015723X
KAREN DEAN
CONTROLLER40.00101750015589X
FieldValueIRS element (for citing)
Total Reportable Comp From Org291750TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs0TotalReportableCompFrmRltdOrgs
Total Other Compensation31312TotalOtherCompensation
Number Individuals GT100 K2NumberIndividualsGT100K
Formers Listed0FormersListed
Total Comp GT150 K1TotalCompGT150K
Compensation From Other Sources0CompensationFromOtherSources
Number Of Contractors GT100 K0NumberOfContractorsGT100K
All Other Contributions661521AllOtherContributions
Total Contributions661521TotalContributions

Investment Income InvestmentIncome

FieldValueIRS element (for citing)
Total Revenue Column308662TotalRevenueColumn
Exclusion$308,662ExclusionAmount

Gross Amount Sales Assets GrossAmountSalesAssets

FieldValueIRS element (for citing)
Securities3477252Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

FieldValueIRS element (for citing)
Securities3521302Securities

Gain Or Loss GainOrLoss

FieldValueIRS element (for citing)
Securities-44050Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

FieldValueIRS element (for citing)
Total Revenue Column-44050TotalRevenueColumn
Related Or Exempt Function Income-44050RelatedOrExemptFunctionIncome

Total Revenue TotalRevenue

FieldValueIRS element (for citing)
Total Revenue Column926133TotalRevenueColumn
Related Or Exempt Function Income-44050RelatedOrExemptFunctionIncome
Unrelated Business Revenue0UnrelatedBusinessRevenue
Exclusion$308,662ExclusionAmount

Grants To Domestic Individuals GrantsToDomesticIndividuals

FieldValueIRS element (for citing)
Total554547Total
Program Services554547ProgramServices

Foreign Grants ForeignGrants

FieldValueIRS element (for citing)
Total126401Total
Program Services126401ProgramServices

Comp Current Officers Directors CompCurrentOfficersDirectors

FieldValueIRS element (for citing)
Total205723Total
Program Services205723ProgramServices

Other Salaries And Wages OtherSalariesAndWages

FieldValueIRS element (for citing)
Total253149Total
Program Services110580ProgramServices
Management And General128765ManagementAndGeneral
Fundraising13804Fundraising

Other Employee Benefits OtherEmployeeBenefits

FieldValueIRS element (for citing)
Total63551Total
Program Services28189ProgramServices
Management And General34577ManagementAndGeneral
Fundraising785Fundraising

Payroll Taxes PayrollTaxes

FieldValueIRS element (for citing)
Total29076Total
Program Services18736ProgramServices
Management And General9577ManagementAndGeneral
Fundraising763Fundraising

Fees For Services Legal FeesForServicesLegal

FieldValueIRS element (for citing)
Total905Total
Management And General905ManagementAndGeneral

Fees For Services Accounting FeesForServicesAccounting

FieldValueIRS element (for citing)
Total21472Total
Program Services14386ProgramServices
Management And General6227ManagementAndGeneral
Fundraising859Fundraising

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

FieldValueIRS element (for citing)
Total57756Total
Program Services57756ProgramServices

Fees For Services Other FeesForServicesOther

FieldValueIRS element (for citing)
Total224737Total
Program Services217103ProgramServices
Management And General7184ManagementAndGeneral
Fundraising450Fundraising

Office Expenses OfficeExpenses

FieldValueIRS element (for citing)
Total168314Total
Program Services149761ProgramServices
Management And General16807ManagementAndGeneral
Fundraising1746Fundraising

Occupancy Occupancy

FieldValueIRS element (for citing)
Total177947Total
Program Services119294ProgramServices
Management And General53196ManagementAndGeneral
Fundraising5457Fundraising

Travel Travel

FieldValueIRS element (for citing)
Total34708Total
Program Services33542ProgramServices
Management And General1097ManagementAndGeneral
Fundraising69Fundraising

Conferences Meetings ConferencesMeetings

FieldValueIRS element (for citing)
Total133947Total
Program Services133947ProgramServices

Depreciation Depletion DepreciationDepletion

FieldValueIRS element (for citing)
Total14858Total
Program Services9293ProgramServices
Management And General5244ManagementAndGeneral
Fundraising321Fundraising

Insurance Insurance

FieldValueIRS element (for citing)
Total11866Total
Program Services6545ProgramServices
Management And General4213ManagementAndGeneral
Fundraising1108Fundraising

Other Expenses OtherExpenses (3 entries)

DescriptionDescriptionTotalTotalFundraisingFundraisingProgram ServicesProgramServicesManagement And GeneralManagementAndGeneral
SPECIAL EVENT86448644
DUES AND SUBSCRIPTIONS36653665
TAXES AND LICENSES15951301465

Total Functional Expenses TotalFunctionalExpenses

FieldValueIRS element (for citing)
Total2092861Total
Program Services1789598ProgramServices
Management And General269257ManagementAndGeneral
Fundraising34006Fundraising

Cash Non Interest Bearing CashNonInterestBearing

FieldValueIRS element (for citing)
BOY258618BOY
EOY12004EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

FieldValueIRS element (for citing)
BOY329811BOY
EOY249209EOY

Accounts Receivable AccountsReceivable

FieldValueIRS element (for citing)
BOY672BOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

FieldValueIRS element (for citing)
EOY33333EOY
FieldValueIRS element (for citing)
Land Buildings Equipment Basis646982LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec332590LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

FieldValueIRS element (for citing)
BOY321073BOY
EOY314392EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

FieldValueIRS element (for citing)
BOY9683938BOY
EOY6198978EOY

Investments Other Securities InvestmentsOtherSecurities

FieldValueIRS element (for citing)
EOY2373235EOY

Other Assets Total OtherAssetsTotal

FieldValueIRS element (for citing)
BOY258695BOY
EOY255522EOY

Total Assets TotalAssets

FieldValueIRS element (for citing)
BOY10852807BOY
EOY9436673EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

FieldValueIRS element (for citing)
BOY43779BOY
EOY111330EOY

Grants Payable GrantsPayable

FieldValueIRS element (for citing)
BOY418650BOY
EOY469550EOY

Other Liabilities OtherLiabilities

FieldValueIRS element (for citing)
BOY8748BOY
EOY15340EOY

Total Liabilities TotalLiabilities

FieldValueIRS element (for citing)
BOY471177BOY
EOY596220EOY
FieldValueIRS element (for citing)
Follow SFAS117XFollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

FieldValueIRS element (for citing)
BOY2228813BOY
EOY929806EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY8152817BOY
EOY7910647EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY10381630BOY
EOY8840453EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY10852807BOY
EOY9436673EOY
FieldValueIRS element (for citing)
Info In Schedule O Part XIXInfoInScheduleOPartXI
Reconcilation Revenue Expenses-1166728ReconcilationRevenueExpenses
Reconcilation Other Changes-374449ReconcilationOtherChanges
Info In Schedule O Part XIIXInfoInScheduleOPartXII
Method Of Accounting AccrualXMethodOfAccountingAccrual
Accountant Compile Or Review0AccountantCompileOrReview
FS Audited1FSAudited
Audit Committee0AuditCommittee
Financial Statement SeparateXFinancialStatementSeparate
Federal Grant Audit Required0FederalGrantAuditRequired

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org170b1 AviXPubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years1960654CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years2096774CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years560667CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year2214255CurrentTaxYearMinus1Year
Current Tax Year661521CurrentTaxYear
Total7493871Total

Total170 Total170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years1960654CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years2096774CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years560667CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year2214255CurrentTaxYearMinus1Year
Current Tax Year661521CurrentTaxYear
Total7493871Total
FieldValueIRS element (for citing)
Amounts Subst Contributors Total2709442AmountsSubstContributorsTotal
Public Support Total1704784429PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years480617CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years401018CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years289511CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year279992CurrentTaxYearMinus1Year
Current Tax Year308662CurrentTaxYear
Total1759800Total

Other Income170 OtherIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus2 Years1000CurrentTaxYearMinus2Years
Total1000Total
FieldValueIRS element (for citing)
Total Support9254671TotalSupport
Public Support Pertcentage1700.51700PublicSupportPertcentage170
Public Support Pertcent Prior Year0.53360PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170XThirtyThreePercntTestsCY170

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

FieldValueIRS element (for citing)
Contributor NumberRESTRICTEDContributorNumber

Contributor Name Business ContributorNameBusiness

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor Address US ContributorAddressUS

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Aggregate ContributionsRESTRICTEDAggregateContributions

Schedule D IRS990ScheduleD

Current Year CurrentYear

FieldValueIRS element (for citing)
Beginning Of Year Balance8152817BeginningOfYearBalance
Contributions173820Contributions
Investment Earnings Or Losses-173007InvestmentEarningsOrLosses
Other Expenditures242983OtherExpenditures
End Of Year Balance7910647EndOfYearBalance

Current Year Minus1 Year CurrentYearMinus1Year

FieldValueIRS element (for citing)
Beginning Of Year Balance7676747BeginningOfYearBalance
Investment Earnings Or Losses676070InvestmentEarningsOrLosses
Other Expenditures200000OtherExpenditures
End Of Year Balance8152817EndOfYearBalance

Current Year Minus2 Years CurrentYearMinus2Years

FieldValueIRS element (for citing)
Beginning Of Year Balance6576189BeginningOfYearBalance
Investment Earnings Or Losses1454238InvestmentEarningsOrLosses
Other Expenditures353680OtherExpenditures
End Of Year Balance7676747EndOfYearBalance

Current Year Minus3 Years CurrentYearMinus3Years

FieldValueIRS element (for citing)
Beginning Of Year Balance9256971BeginningOfYearBalance
Investment Earnings Or Losses-2224126InvestmentEarningsOrLosses
Other Expenditures456656OtherExpenditures
End Of Year Balance6576189EndOfYearBalance
FieldValueIRS element (for citing)
Term Endowment EOY Balance1.00000TermEndowmentEOYBalance
Endowments Held By Unrelated Orgs0EndowmentsHeldByUnrelatedOrgs
Endowments Held By Related Orgs0EndowmentsHeldByRelatedOrgs

Leasehold Improvements LeaseholdImprovements

FieldValueIRS element (for citing)
Other Cost Or Other Basis401737OtherCostOrOtherBasis
Depreciation98188Depreciation
Book Value303549BookValue

Equipment Equipment

FieldValueIRS element (for citing)
Other Cost Or Other Basis200505OtherCostOrOtherBasis
Depreciation190063Depreciation
Book Value10442BookValue

Other Land Buildings OtherLandBuildings

FieldValueIRS element (for citing)
Other Cost Or Other Basis44740OtherCostOrOtherBasis
Depreciation44339Depreciation
Book Value401BookValue
FieldValueIRS element (for citing)
Total Of Book Value Land Buildings314392TotalOfBookValueLandBuildings

Other Securities OtherSecurities (4 entries)

DescriptionDescriptionBook ValueBookValueMethod Of ValuationMethodOfValuation
FHLMC 4.625% 10/25/12518005F
FHLMC 4.125% 09/27/13638526F
FNMA 5.25% 09/15/16593545F
FNMA 5% 05/11/17623159F
FieldValueIRS element (for citing)
Total Of Book Value Securities2373235TotalOfBookValueSecurities

Other Liabilities OtherLiabilities

FieldValueIRS element (for citing)
DescriptionACCRUED VACATIONDescription
Amount$15,340Amount
FieldValueIRS element (for citing)
Total Of Amounts15340TotalOfAmounts
Total Revenue926133TotalRevenue
Total Expenses2092861TotalExpenses
Excess Or Deficit For Year-1166728ExcessOrDeficitForYear
Net Unrealized GL On Investments-374449NetUnrealizedGLOnInvestments
Total Adjustments-374449TotalAdjustments
Excess Or Deficit Per FS-1541177ExcessOrDeficitPerFS
Tot Revenue Etc Audited Fincl Stmt493928TotRevenueEtcAuditedFinclStmt
Other Revenues-374449OtherRevenues
Revenue Not Rptd F990-374449RevenueNotRptdF990
Revenue Subtotal868377RevenueSubtotal
Investment Expenses Not Included57756InvestmentExpensesNotIncluded
Revenue Not Rptd On Fin Stmt57756RevenueNotRptdOnFinStmt
Total Revenue Per Form990926133TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt2035105TotExpensesEtcAuditedFinclStmt
Expenses Not Rptd F9900ExpensesNotRptdF990
Expenses Subtotal2035105ExpensesSubtotal
Investment Expenses Not Included257756InvestmentExpensesNotIncluded2
Expenses Not Rptd On Fin Stmt57756ExpensesNotRptdOnFinStmt
Total Expenses Per Form9902092861TotalExpensesPerForm990

Form990 Schedule D Part XIV Form990ScheduleDPartXIV (3 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
DESCRIPTION OF INTENDED USE OF ENDOWMENT FUNDS:PART V, LINE 4:ERADICATE GENETIC ILLNESS
DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48:PART X:THE FOUNDATION HAS ADOPTED FASB ACCOUNTING STANDARDS CODIFICATION 740-10, INCOME TAXES, WHICH PRESCRIBES MEASUREMENT AND DISCLOSURE REQUIRMENTS FOR CURRENT AND DEFERRED INCOME TAX PROVISIONS. THE INTERPRETAION PROVIDES FOR A CONSISTENT APPROACH IN IDENTIFYING AND REPORTING UNCERTAIN TAX POSITIONS. IT IS MANAGEMENT'S BELIEF THAT THE FOUNDATION DOES NOT HOLD ANY UNCERTAIN TAX POSITIONS.
PART XII, LINE 2D - OTHER ADJUSTMENTS:NET UNREALIZED LOSSES ON INVESTMENTS -374,449.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records Maintained1GrantRecordsMaintained

Accts Actvs Out US Table AcctsActvsOutUSTable

FieldValueIRS element (for citing)
RegionEUROPERegion
Number Of Offices0NumberOfOffices
Number Of Employees0NumberOfEmployees
Type Of Activities ConductedGRANTS TO RECIPIENTS LOCATED IN REGIONTypeOfActivitiesConducted
Specific Services ProvidedGRANTS TO HELP IDENTIFY ROUTES TO THE DEVELOPMENT OF CURES AND TREATMENTS FOR HUNTINGTON'S DISEASE AND OTHER SIMILAR HEREDITARY DISORDERS.SpecificServicesProvided
Total Expenditures126401TotalExpenditures
FieldValueIRS element (for citing)
Subtotal Number Of Offices0SubtotalNumberOfOffices
Subtotal Number Of Employees0SubtotalNumberOfEmployees
Cont Number Of Offices0ContNumberOfOffices
Cont Number Of Employees0ContNumberOfEmployees
Total Number Of Offices0TotalNumberOfOffices
Total Number Of Employees0TotalNumberOfEmployees
Subtotal Amount Spent126401SubtotalAmountSpent
Cont Amount Spent0ContAmountSpent
Total Amount Spent126401TotalAmountSpent

Grants To Ind Outside US GrantsToIndOutsideUS

FieldValueIRS element (for citing)
Type Of AssistanceHEREDITARY DISEASE FOUNDATION GRANTS ARE HELPING IDENTIFY ROUTES TO THE DEVELOPMENT OF CURES AND TREATMENTS FOR HUNTINGTON'S DISEASE AND OTHER SIMILAR HEREDITARY DISORDERS.TypeOfAssistance
RegionEUROPERegion
Number Of Recipients2NumberOfRecipients
Amount Of Cash Grant126401AmountOfCashGrant
Manner Of Cash DisbursementCHECKMannerOfCashDisbursement
Description Of Non Cash AssistanceN/ADescriptionOfNonCashAssistance
Method Of ValuationN/AMethodOfValuation
FieldValueIRS element (for citing)
Transfer To Foreign Corp0TransferToForeignCorp
Interest In Foreign Trust0InterestInForeignTrust
Own Foreign Corp0OwnForeignCorp
Passive Foreign Invest Co0PassiveForeignInvestCo
Foreign Partnership0ForeignPartnership
Boycott Countries0BoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

FieldValueIRS element (for citing)
IdentifierPROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.:Identifier
ExplanationSCHEDULE F, PART I, LINE 2: THE GRANT RECIPIENTS ARE REQUIRED TO SUBMIT PROGRESS REPORTS IN ORDER TO RECEIVE ADDITIONAL FUNDING. THE DIRECTOR OF SCIENCE REVIEWS THE PROGRESS REPORTS AND AUTHORIZES THE ADDITIONAL FUNDING. AT THE END OF THE GRANT PERIOD THE GRANT RECIPIENTS SUBMIT A FINAL REPORT.Explanation

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Records Maintained1RecordsMaintained

Form990 Schedule I Part III Form990ScheduleIPartIII

FieldValueIRS element (for citing)
Type Of GrantHEREDITARY DISEASE FOUNDATION GRANTS ARE HELPING IDENTIFY ROUTES TO THE DEVELOPMENT OF CURES AND TREATMENTS FOR HUNTINGTON'S DISEASE AND OTHER SIMILAR HEREDITARY DISORDERS.TypeOfGrant
Number Of Recipients14NumberOfRecipients
Amount Of Cash Grant554547AmountOfCashGrant
Method Of ValuationN/AMethodOfValuation

Form990 Schedule I Part IV Form990ScheduleIPartIV

FieldValueIRS element (for citing)
IdentifierPROCEDURE FOR MONITORING GRANTS IN THE U.S.:Identifier
Return ReferencePART I, LINE 2:ReturnReference
ExplanationSCHEDULE I, PART I, LINE 2: THE GRANT RECIPIENTS ARE REQUIRED TO SUBMIT PROGRESS REPORTS IN ORDER TO RECEIVE ADDITIONAL FUNDING. THE DIRECTOR OF SCIENCE REVIEWS THE PROGRESS REPORTS AND AUTHORIZES THE ADDITIONAL FUNDING. AT THE END OF THE GRANT PERIOD THE GRANT RECIPIENTS SUBMIT A FINAL REPORT.Explanation

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Written Employment ContractXWrittenEmploymentContract
Severance Payment0SeverancePayment
Supplemental Nonqual Retire Plan0SupplementalNonqualRetirePlan
Equity Based Comp Arrangement0EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org0CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs0CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org0CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs0CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments0AnyNonFixedPayments
Initial Contract Exception0InitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII

FieldValueIRS element (for citing)
Name PersonCARL JOHNSONNamePerson
Base Compensation Filing Org190000BaseCompensationFilingOrg
Comp Based On Related Orgs0CompBasedOnRelatedOrgs
Bonus Filing Org0BonusFilingOrg
Bonus Related Orgs0BonusRelatedOrgs
Other Compensation Filing Org0OtherCompensationFilingOrg
Other Compensation Related Orgs0OtherCompensationRelatedOrgs
Deferred Comp Filing Org0DeferredCompFilingOrg
Deferred Comp Related Orgs0DeferredCompRelatedOrgs
Nontaxable Benefits Filing Org15723NontaxableBenefitsFilingOrg
Nontaxable Benefits Related Orgs0NontaxableBenefitsRelatedOrgs
Total Compensation Filing Org205723TotalCompensationFilingOrg
Total Compensation Related Orgs0TotalCompensationRelatedOrgs
Comp Report Prior990 Filing Org0CompReportPrior990FilingOrg
Comp Report Prior990 Related Orgs0CompReportPrior990RelatedOrgs

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTraded

FieldValueIRS element (for citing)
Non Cash CheckboxXNonCashCheckbox
Number Of Contributions12NumberOfContributions
Noncash Contribs Rptd F99035026NoncashContribsRptdF990
Method Of Determining RevenuesFMV DATE OF DONATIONMethodOfDeterminingRevenues
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeld
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGifts
Third Parties Used0ThirdPartiesUsed

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (7 entries)

Return ReferenceReturnReferenceExplanationExplanationIdentifierIdentifier
FORM 990, PART VI, SECTION A, LINE 2THE PRESIDENT OF THE BOARD OF DIRECTORS AND THE SECRETARY ARE SISTERS. THE TREASURER AND THE VICE-PRESIDENT OF THE BOARD OF DIRECTORS ARE HUSBAND AND WIFE. TWO OTHER BOARD MEMBERS ARE ALSO HUSBAND AND WIFE. JONATHAN MATZ IS THE FOUNDATION'S INVESTMENT ADVISOR AT GOLDMAN SACHS. GOLDMAN SACHS RECEIVED $57,756 IN INVESTMENT FEES.
FORM 990, PART VI, SECTION B, LINE 11THE BOARD OF DIRECTORS HAS DESIGNATED THE PRESIDENT AND/OR THE SECRETARY OF THE BOARD TO REVIEW THE FORM 990 BEFORE IT IS FILED.
FORM 990, PART VI, SECTION B, LINE 15THE DIRECTOR OF SCIENCE'S SALARY WAS DETERMINED THROUGH A SIGNED AGREEMENT/CONTRACT THAT WAS APPROVED BY THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 18THE FOUNDATION'S FORM 990 AND FORM 1023 ARE AVAILABLE UPON REQUEST.
FORM 990, PART VI, SECTION C, LINE 19THE DOCUMENTS ARE AVAILABLE UPON WRITTEN REQUEST.
FORM 990, PART XI, LINE 5:NET UNREALIZED LOSSES ON INVESTMENTS: -374,449.CHANGES IN NET ASSETS OR FUND BALANCES:
FORM 990 PART XII LINE 2C; THE PRESIDENT OF THE FOUNDATIONAND ONE OF THE BOARD OF DIRECTORS ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.

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