CROHNS & COLITIS FOUNDATION INC: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization
CROHNS & COLITIS FOUNDATION INC (EIN 13-6193105)
Tax period
2012-01-01 to 2012-12-31
Filed
2013-11-12
IRS object ID
201333169349303373
Schema version
2012v2.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Timestamp2013-11-12T10:47:32-06:00Timestamp
Tax Period End Date2012-12-31TaxPeriodEndDate

Preparer Firm PreparerFirm

Preparer Firm Business Name PreparerFirmBusinessName

FieldValueIRS element (for citing)
Business Name Line1GRANT THORNTON LLPBusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

FieldValueIRS element (for citing)
Address Line1666 THIRD AVENUEAddressLine1
CityNEW YORKCity
StateNYState
ZIP Code100174057ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnType
Tax Period Begin Date2012-01-01TaxPeriodBeginDate

Filer Filer

FieldValueIRS element (for citing)
EIN136193105EIN

Name Name

FieldValueIRS element (for citing)
Business Name Line1Crohn's & Colitis Foundation of America IncBusinessNameLine1
FieldValueIRS element (for citing)
In Care Of Name% RONALD GOLDSMANInCareOfName
Name ControlCROHNameControl
Phone2126853440Phone

US Address USAddress

FieldValueIRS element (for citing)
Address Line1733 Third AvenueAddressLine1
Address Line2Suite 510AddressLine2
CityNew YorkCity
StateNYState
ZIP Code10017ZIPCode

Officer Officer

FieldValueIRS element (for citing)
NameRonald GoldsmanName
TitleControllerTitle
Phone2125990100Phone
Date Signed2013-11-12DateSigned
Authorize Third PartytrueAuthorizeThirdParty

Preparer Preparer

FieldValueIRS element (for citing)
Phone2125990100Phone
FieldValueIRS element (for citing)
Tax Year2012TaxYear
Build TS2016-03-07 17:11:31ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeXAddressChange
Name Of Principal Officer Personrichard geswellNameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

FieldValueIRS element (for citing)
Address Line1733 Third AvenueAddressLine1
Citynew yorkCity
StateNYState
ZIP Code10017ZIPCode
FieldValueIRS element (for citing)
Gross Receipts69653599GrossReceipts
Group Return For AffiliatesfalseGroupReturnForAffiliates
Organization501c3XOrganization501c3
Web Sitewww.ccfa.orgWebSite
Type Of Organization CorporationXTypeOfOrganizationCorporation
Year Formation1965YearFormation
State Legal DomicileNYStateLegalDomicile
Activity Or Mission DescriptionTo cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.ActivityOrMissionDescription
Nbr Voting Members Governing Body24NbrVotingMembersGoverningBody
Nbr Independent Voting Members23NbrIndependentVotingMembers
Total Nbr Employees459TotalNbrEmployees
Total Nbr Volunteers4100TotalNbrVolunteers
Total Gross UBI0TotalGrossUBI
Net Unrelated Business Txbl Income0NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year49476219ContributionsGrantsPriorYear
Contributions Grants Current Year49808240ContributionsGrantsCurrentYear
Program Service Revenue Prior Year328632ProgramServiceRevenuePriorYear
Program Service Revenue CY273683ProgramServiceRevenueCY
Investment Income Prior Year524667InvestmentIncomePriorYear
Investment Income Current Year712453InvestmentIncomeCurrentYear
Other Revenue Prior Year576016OtherRevenuePriorYear
Other Revenue Current Year768556OtherRevenueCurrentYear
Total Revenue Prior Year50905534TotalRevenuePriorYear
Total Revenue Current Year51562932TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year15624591GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY16343303GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year0BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY0BenefitsPaidToMembersCY
Salaries Etc Prior Year19338839SalariesEtcPriorYear
Salaries Etc Current Year20314221SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year221952TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY250091TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year4626556TotalFundrsngExpCurrentYear
Other Expense Prior Year14419490OtherExpensePriorYear
Other Expenses Current Year14482965OtherExpensesCurrentYear
Total Expenses Prior Year49604872TotalExpensesPriorYear
Total Expenses Current Year51390580TotalExpensesCurrentYear
Revenues Less Expenses Prior Year1300662RevenuesLessExpensesPriorYear
Revenues Less Expenses CY172352RevenuesLessExpensesCY
Total Assets BOY23007692TotalAssetsBOY
Total Assets EOY23629249TotalAssetsEOY
Total Liabilities BOY16795118TotalLiabilitiesBOY
Total Liabilities EOY17228648TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY6212574NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY6400601NetAssetsOrFundBalancesEOY
Info In Schedule O Part IIIXInfoInScheduleOPartIII
Mission DescriptionFOR OVER FOUR DECADES, THE CROHN'S & COLITIS FOUNDATION ("CCFA") HAS BEEN DEDICATED TO ITS MISSION OF FINDING A CURE FOR CROHN'S DISEASE AND ULCERATIVE COLITIS AND IMPROVING THE QUALITY OF LIFE OF CHILDREN AND ADULTS AFFECTED BY THESE DISEASES. CCFA HAS DEFINED ITSELF BY SPONSORING THE BEST AND BRIGHTEST RESEARCHERS AND SEEDING THE FIELD WITH GROUNDBREAKING STUDIES AND RESEARCH INITIATIVES TO ADVANCE THE UNDERSTANDING AND TREATMENT OF INFLAMMATORY BOWEL DISEASES ("IBD").MissionDescription
Significant New Program ServicesfalseSignificantNewProgramServices
Significant ChangefalseSignificantChange
Expense23460552Expense
Grants0Grants
Revenue273683Revenue
DescriptionCCFA provides information and education in an effort to reach the more than 1.4 million IBD patients and their families through a variety of periodicals (Take Charge, Under the Microscope), books, awareness campaigns, local chapters, its Webcasts, and through its website. CCFA also reaches its many members with exclusive mailings. CCFA also offers professional education on Inflammatory Bowel Diseases, its professional journal, and health professional workshops. Revenues reported as program service revenue of $273,683 represents camp registration fees for workshops/camp programs run for children and families affected by either crohn's disease or colitis. CCFA support services are delivered through its chapters nationwide which offer more than 220 support groups annually, summer camps for children with IBD, and a range of educational and training programs for local communities. Read more about CCFA's chapters on its website, www.ccfa.org, or view its webcasts.Description

Activity2 Activity2

FieldValueIRS element (for citing)
Expense16811162Expense
Grants16343303Grants
Revenue0Revenue
DescriptionResearch - Since its inception, CCFA has been at the forefront of medical research in Crohn's disease and ulcerative colitis -collectively known as inflammatory bowel disease (IBD). There are two main research categories. Basic research explores the scientific foundations of the diseases. It answers such questions as: What is the underlying cause of Crohn's and colitis? Which genes are involved in these diseases? Although basic research is complex and can be difficult for laypersons to understand, these studies will ultimately lead to the cure for IBD. Clinical research determines which medical and surgical options work best for patients. - CCFA HAS PLAYED A SIGNIFICANT ROLE IN MANY MAJOR SCIENTIFIC BREAKTHROUGHS IN IBD, FROM GENERATING DATA THAT LED TO NEW THERAPIES TO THE DISCOVERY OF THE FIRST GENE FOR CROHN'S. - CCFA invests in human resources: It takes 10 years to "build" a full-fledged, senior investigator. To make sure that the most talented researchers enter and remain in the field of IBD, CCFA provides research training awards to develop the next generation of investigators. Many of today's most prominent researchers received training awards from CCFA early in their careers. - CCFA sets the research agenda: CCFA brings together the finest minds in the international scientific community (both basic and clinical) to develop and update our strategic plan for research "Challenges in IBD Research". - CCFA SUPPORTS INNOVATIVE AND ESSENTIAL RESEARCH IN THE FIELD OF IBD. SINCE ITS INCEPTION IN 1967, CCFA HAS FUNDED NEARLY 1,400 PROJECTS AND INVESTED $201 MILLION IN RESEARCH. A 2013 REPORT SHOWED THAT CCFA-FUNDED GRANTEES HAVE RECEIVED NEARLY $2.9 BILLION IN FUNDING FROM THE UNITED STATES NATIONAL INSTITUTES OF HEALTH. THIS FIGURE REPRESENTS A RETURN ON INVESTMENT OF 7.5 FEDERAL AWARDS PER CCFA-SPONSORED PROJECT. - CCFA-SPONSORED GRANTEES HAVE ALSO RECEIVED FUNDING FROM INTERNATIONALLY RENOWNED ORGANIZATIONS INCLUDING 25 DIVISIONS OF THE UNITED STATES NATIONAL INSTITUTES OF HEALTH, THE JOHN D. AND CATHERINE MACARTHUR FOUNDATION, THE LEONA M. AND HARRY B. HELMSLEY CHARITABLE TRUST AND THE BILL AND MELINDA GATES FOUNDATION. - CCFA HAS INVESTED $8.3 MILLION ON PROJECTS CONDUCTED IN FOURTEEN NATIONS OUTSIDE THE UNITED STATES. - CCFA TRAINING AWARD RECIPIENTS HAVE SUCCESFULLY USED THEIR PROJECTS AS A LAUNCH PAD FOR SUCCESSFUL CAREERS IN IBD RESEARCH. FOR EXAMPLE, CCFA'S $33 MILLION COMMITMENT TO CAREER DEVELOPMENT AWARDEES HAS RESULTED IN $257 MILLION IN FEDERAL SUPPORT.Description
FieldValueIRS element (for citing)
Total Program Service Expense40271714TotalProgramServiceExpense
Described In501 C3trueDescribedIn501C3
Schedule B RequiredtrueScheduleBRequired
Political ActivitiesfalsePoliticalActivities
Lobbying ActivitiestrueLobbyingActivities
Subject To Proxy TaxfalseSubjectToProxyTax
Donor Advised FundsfalseDonorAdvisedFunds
Conservation EasementsfalseConservationEasements
Collections Of ArtfalseCollectionsOfArt
Credit CounselingfalseCreditCounseling
Term Or Permanent EndowmentsfalseTermOrPermanentEndowments
Report Land Bldg EquiptrueReportLandBldgEquip
Report Invest Oth SecuritiesfalseReportInvestOthSecurities
Report Prog Rel InvestfalseReportProgRelInvest
Report Other AssetsfalseReportOtherAssets
Report Other LiabilitiestrueReportOtherLiabilities
Report Fin48 FootnotetrueReportFin48Footnote
Independent Audit Financial StmttrueIndependentAuditFinancialStmt
Consolidated Audit Financial StmtfalseConsolidatedAuditFinancialStmt
SchoolfalseSchool
Foreign OfficefalseForeignOffice
Foreign ActivitiestrueForeignActivities
More Than5000 K To OrganizationstrueMoreThan5000KToOrganizations
More Than5000 K To IndividualstrueMoreThan5000KToIndividuals
Professional FundraisingtrueProfessionalFundraising
Fundraising ActivitiestrueFundraisingActivities
GamingtrueGaming
HospitalfalseHospital
Grants To OrganizationstrueGrantsToOrganizations
Grants To IndividualsfalseGrantsToIndividuals
Schedule J RequiredtrueScheduleJRequired
Tax Exempt BondsfalseTaxExemptBonds
Excess Benefit TransactionfalseExcessBenefitTransaction
Prior Excess Benefit TransactionfalsePriorExcessBenefitTransaction
Loan To Officer Or DQPfalseLoanToOfficerOrDQP
Grant To Related PersonfalseGrantToRelatedPerson
Bsnss Rltnshp With OrganizationfalseBsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family MemberfalseBsnssRltnshpThruFamilyMember
Officer Entity With Bsnss RltnshptrueOfficerEntityWithBsnssRltnshp
Deductible Non Cash ContributionstrueDeductibleNonCashContributions
Deductible Contributions Of ArtfalseDeductibleContributionsOfArt
TerminatedfalseTerminated
Partial LiquidationfalsePartialLiquidation
Disregarded EntityfalseDisregardedEntity
Related EntityfalseRelatedEntity
Related Org Controlled EntityfalseRelatedOrgControlledEntity
Transfers To Exempt Non Chrtbl OrgfalseTransfersToExemptNonChrtblOrg
Activities Conducted PartnershipfalseActivitiesConductedPartnership
Schedule O RequiredtrueScheduleORequired
Number Forms Transmitted With1096432NumberFormsTransmittedWith1096
Number W2 G Included0NumberW2GIncluded
Compliance With Backup WitholdingtrueComplianceWithBackupWitholding
Number Of Employees459NumberOfEmployees
Employment Tax Returns FiledtrueEmploymentTaxReturnsFiled
Unrelated Business IncomefalseUnrelatedBusinessIncome
Foreign Financial AccountfalseForeignFinancialAccount
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTrans
Taxable Party NotificationfalseTaxablePartyNotification
Non Deductible ContributionsfalseNonDeductibleContributions
Quid Pro Quo ContributionstrueQuidProQuoContributions
Quid Pro Quo DisclosuretrueQuidProQuoDisclosure
Form8282 Property Disposed OffalseForm8282PropertyDisposedOf
Funds To Pay PremiumsfalseFundsToPayPremiums
Premiums PaidfalsePremiumsPaid
Indoor Tanning ServicesfalseIndoorTanningServices
Info In Schedule O Part VIXInfoInScheduleOPartVI
Nbr Voting Governing Body Members24NbrVotingGoverningBodyMembers
Number Independent Voting Members23NumberIndependentVotingMembers
Family Or Business RelationshiptrueFamilyOrBusinessRelationship
Delegation Of Management DutiesfalseDelegationOfManagementDuties
Changes To Organizing DocsfalseChangesToOrganizingDocs
Material Diversion Or MisusefalseMaterialDiversionOrMisuse
Members Or StockholdersfalseMembersOrStockholders
Election Of Board MembersfalseElectionOfBoardMembers
Decisions Subject To ApprovalfalseDecisionsSubjectToApproval
Minutes Of Governing BodytrueMinutesOfGoverningBody
Minutes Of CommitteestrueMinutesOfCommittees
Officer Mailing AddressfalseOfficerMailingAddress
Local ChapterstrueLocalChapters
Policies Reference ChapterstruePoliciesReferenceChapters
Form990 Provided To Governing BodytrueForm990ProvidedToGoverningBody
Conflict Of Interest PolicytrueConflictOfInterestPolicy
Annual Disclosure Covered PersonstrueAnnualDisclosureCoveredPersons
Regular Monitoring EnforcementtrueRegularMonitoringEnforcement
Whistleblower PolicytrueWhistleblowerPolicy
Document Retention PolicytrueDocumentRetentionPolicy
Compensation Process CEOtrueCompensationProcessCEO
Compensation Process OtherfalseCompensationProcessOther
Investment In Joint VenturefalseInvestmentInJointVenture
States Where Copy Of Return Is FiledALStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledAKStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledAZStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledARStatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is FiledCAStatesWhereCopyOfReturnIsFiled
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States Where Copy Of Return Is FiledFLStatesWhereCopyOfReturnIsFiled
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Own WebsiteXOwnWebsite
Upon RequestXUponRequest

The Books Are In Care Of TheBooksAreInCareOf

FieldValueIRS element (for citing)
Name PersonRONALD GOLDSMANNamePerson
Telephone Number2126853440TelephoneNumber

Address US AddressUS

FieldValueIRS element (for citing)
Address Line1733 THIRD AVENUEAddressLine1
CityNEW YORKCity
StateNYState
ZIP Code100178804ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (39 entries)

TitleTitleAverage Hours Per WeekAverageHoursPerWeekIndividual Trustee Or DirectorIndividualTrusteeOrDirectorOfficerOfficerReportable Comp From OrganizationReportableCompFromOrganizationReportable Comp From Related OrgsReportableCompFromRelatedOrgsOther CompensationOtherCompensationKey EmployeeKeyEmployeeHighest Compensated EmployeeHighestCompensatedEmployee
Gary Sinderbrand
Chairman (Through 3/2012)6.0XX
Richard Geswell non-voting
President40.0XX497016052921
Bernard Eizen Esquire
Gen. counsel (through 3/2012)6.0X
Paul Salerno
Treasurer6.0XX
Lloyd Mayer MD
Trustee6.0X
Irwin Rosenthal
Trustee6.0X
Suzanne Rosenthal
Trustee6.0X
Shelby Modell
Trustee6.0X
Maura Breen
Chairman (From 04/2012)6.0XX
David Alberga
Trustee6.0X
Jonathan Braun MD PhD
Trustee6.0X
L Ted Denson MD
Trustee (through 06/30/2012)6.0X
Jennifer Feikin
Trustee6.0X
Lawrence Finkelstein
Trustee6.0X
Vance Gibbs Esquire
General Counsel & Secretary6.0XX
Mark Goldman
Trustee (Through 3/2012)6.0X
Steve Goodman
Trustee6.0X
John Hasenauer
Trustee6.0X
David levenson
Trustee6.0X
Joel Margolese
Trustee6.0X
Jeffrey Margolis
Trustee6.0X
Jeffrey Nedelman
Trustee6.0X
Michele Rubin APN CNS CGRN
Trustee6.0X
Francisco Sylvester MD
Trustee6.0X
Paul Tartell MD
Trustee6.0X
Jim Lewis MD
Trustee6.0X
Donald Burke
Trustee6.0X
John Crosson
Trustee6.0X
Matt Leavitt
Trustee6.0X
Kenneth Tirino
CFO (Through 05/2012)40.0X627693138
Robert Territo
Chief Financial Officer40.0X978621392
Judith Brown
Chief development officer40.022205721714X
Kimberly Frederick
SVP of Mission40.017780612676X
Kathleen Boggan
SVP Field & Campaign Mgmt40.02023928729X
Marie Granieri
Senior VP/Enterprise wide Tech40.01563138895X
Craig Comins
National Dir. Team Challenge40.014387914173X
Edda Ramsdell
Executive Director40.012592614491X
Anthony Leon
Director of Information Tech.40.01427367137X
Erin Mulvey Stoeber
Director of Marketing & Comm.40.01370006850X
FieldValueIRS element (for citing)
Total Reportable Comp From Org1965756TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs0TotalReportableCompFrmRltdOrgs
Total Other Compensation152116TotalOtherCompensation
Number Individuals GT100 K28NumberIndividualsGT100K
Formers ListedfalseFormersListed
Total Comp GT150 KtrueTotalCompGT150K
Compensation From Other SourcesfalseCompensationFromOtherSources

Contractor Compensation ContractorCompensation (5 entries)

Address Line1AddressOfContractor/AddressUS/AddressLine1CityAddressOfContractor/AddressUS/CityStateAddressOfContractor/AddressUS/StateZIP CodeAddressOfContractor/AddressUS/ZIPCodeDescription Of ServicesDescriptionOfServicesCompensationCompensation
direct print communications
201 E SANDPOINTE suite 400SANTA ANACA92707printing1596968
convio Inc
11501 domain drive suite 200AUSTINTX78758online marketing513807
intouch solutions
10975 BENSON DRIVE SUITE 200OVERLAND PARKKS66210marketing448438
BKV
PO Box 414149KANSAS CITYMO641414149Online Advertising317029
Barkley REI
PO Box 876270KANSAS CITYMO641876270Website Design304020
FieldValueIRS element (for citing)
Number Of Contractors GT100 K14NumberOfContractorsGT100K
Federated Campaigns1535948FederatedCampaigns
Fundraising Events24656461FundraisingEvents
Government Grants108756GovernmentGrants
All Other Contributions23507075AllOtherContributions
Noncash Contributions357934NoncashContributions
Total Contributions49808240TotalContributions

Program Service Revenue ProgramServiceRevenue

FieldValueIRS element (for citing)
DescriptionEDUCATION & CAMP REGISTRATION FEESDescription
Business Code900099BusinessCode
Total Revenue Column273683TotalRevenueColumn
Related Or Exempt Function Income273683RelatedOrExemptFunctionIncome
FieldValueIRS element (for citing)
Total Program Service Revenue273683TotalProgramServiceRevenue

Investment Income InvestmentIncome

FieldValueIRS element (for citing)
Total Revenue Column217168TotalRevenueColumn
Exclusion$217,168ExclusionAmount

Income From Invest Bond Proceeds IncomeFromInvestBondProceeds

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Royalties Revenue RoyaltiesRevenue

FieldValueIRS element (for citing)
Total Revenue Column563648TotalRevenueColumn
Exclusion$563,648ExclusionAmount

Rental Income Or Loss RentalIncomeOrLoss

FieldValueIRS element (for citing)
Real0Real
Personal0Personal

Net Rental Income Or Loss NetRentalIncomeOrLoss

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Gross Amount Sales Assets GrossAmountSalesAssets

FieldValueIRS element (for citing)
Securities11267907Securities

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

FieldValueIRS element (for citing)
Securities10772622Securities

Gain Or Loss GainOrLoss

FieldValueIRS element (for citing)
Securities495285Securities

Net Gain Or Loss Investments NetGainOrLossInvestments

FieldValueIRS element (for citing)
Total Revenue Column495285TotalRevenueColumn
Exclusion$495,285ExclusionAmount
FieldValueIRS element (for citing)
Gross Income Fundraising Events6987971GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events24656461CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses7252031FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

FieldValueIRS element (for citing)
Total Revenue Column-264060TotalRevenueColumn
Exclusion-$264,060ExclusionAmount
FieldValueIRS element (for citing)
Gross Income Gaming330074GrossIncomeGaming
Gaming Direct Expenses66014GamingDirectExpenses

Net Income From Gaming NetIncomeFromGaming

FieldValueIRS element (for citing)
Total Revenue Column264060TotalRevenueColumn
Exclusion$264,060ExclusionAmount

Net Income Or Loss NetIncomeOrLoss

FieldValueIRS element (for citing)
Total Revenue Column0TotalRevenueColumn

Other Revenue Misc OtherRevenueMisc (2 entries)

DescriptionDescriptionBusiness CodeBusinessCodeTotal Revenue ColumnTotalRevenueColumnExclusionExclusionAmount
SETTLEMENT PROCEEDS900099146042$146,042
MISCELLANEOUS INCOME58866$58,866
FieldValueIRS element (for citing)
Total Other Revenue204908TotalOtherRevenue

Total Revenue TotalRevenue

FieldValueIRS element (for citing)
Total Revenue Column51562932TotalRevenueColumn
Related Or Exempt Function Income273683RelatedOrExemptFunctionIncome
Exclusion$1,481,009ExclusionAmount
FieldValueIRS element (for citing)
Info In Schedule O Part IXXInfoInScheduleOPartIX

Grants To Domestic Orgs GrantsToDomesticOrgs

FieldValueIRS element (for citing)
Total16083922Total
Program Services16083922ProgramServices

Grants To Domestic Individuals GrantsToDomesticIndividuals

FieldValueIRS element (for citing)
Total0Total

Foreign Grants ForeignGrants

FieldValueIRS element (for citing)
Total259381Total
Program Services259381ProgramServices

Benefits To Members BenefitsToMembers

FieldValueIRS element (for citing)
Total0Total

Comp Current Officers Directors CompCurrentOfficersDirectors

FieldValueIRS element (for citing)
Total1194911Total
Program Services804366ProgramServices
Management And General228039ManagementAndGeneral
Fundraising162506Fundraising

Comp Disqual Persons CompDisqualPersons

FieldValueIRS element (for citing)
Total0Total

Other Salaries And Wages OtherSalariesAndWages

FieldValueIRS element (for citing)
Total14916833Total
Program Services10041409ProgramServices
Management And General2846762ManagementAndGeneral
Fundraising2028662Fundraising

Pension Plan Contributions PensionPlanContributions

FieldValueIRS element (for citing)
Total0Total

Other Employee Benefits OtherEmployeeBenefits

FieldValueIRS element (for citing)
Total2872300Total
Program Services1933516ProgramServices
Management And General548156ManagementAndGeneral
Fundraising390628Fundraising

Payroll Taxes PayrollTaxes

FieldValueIRS element (for citing)
Total1330177Total
Program Services895422ProgramServices
Management And General253854ManagementAndGeneral
Fundraising180901Fundraising

Fees For Services Management FeesForServicesManagement

FieldValueIRS element (for citing)
Total0Total

Fees For Services Legal FeesForServicesLegal

FieldValueIRS element (for citing)
Total93657Total
Program Services74694ProgramServices
Management And General11146ManagementAndGeneral
Fundraising7817Fundraising

Fees For Services Accounting FeesForServicesAccounting

FieldValueIRS element (for citing)
Total109955Total
Program Services98220ProgramServices
Management And General11735ManagementAndGeneral

Fees For Services Lobbying FeesForServicesLobbying

FieldValueIRS element (for citing)
Total69642Total
Management And General69642ManagementAndGeneral

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total250091Total
Fundraising250091Fundraising

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

FieldValueIRS element (for citing)
Total0Total

Fees For Services Other FeesForServicesOther

FieldValueIRS element (for citing)
Total4433070Total
Program Services4049465ProgramServices
Management And General383605ManagementAndGeneral

Advertising Advertising

FieldValueIRS element (for citing)
Total1140385Total
Program Services743220ProgramServices
Management And General231905ManagementAndGeneral
Fundraising165260Fundraising

Office Expenses OfficeExpenses

FieldValueIRS element (for citing)
Total2250944Total
Program Services1462531ProgramServices
Management And General460354ManagementAndGeneral
Fundraising328059Fundraising

Information Technology InformationTechnology

FieldValueIRS element (for citing)
Total1055860Total
Program Services708802ProgramServices
Management And General202647ManagementAndGeneral
Fundraising144411Fundraising

Royalties Royalties

FieldValueIRS element (for citing)
Total0Total

Occupancy Occupancy

FieldValueIRS element (for citing)
Total1500499Total
Program Services971123ProgramServices
Management And General309103ManagementAndGeneral
Fundraising220273Fundraising

Travel Travel

FieldValueIRS element (for citing)
Total1035892Total
Program Services698773ProgramServices
Management And General196844ManagementAndGeneral
Fundraising140275Fundraising

Travel Entrtnmnt Public Officials TravelEntrtnmntPublicOfficials

FieldValueIRS element (for citing)
Total0Total

Conferences Meetings ConferencesMeetings

FieldValueIRS element (for citing)
Total681460Total
Program Services560874ProgramServices
Management And General70410ManagementAndGeneral
Fundraising50176Fundraising

Interest Interest

FieldValueIRS element (for citing)
Total0Total

Payments To Affiliates PaymentsToAffiliates

FieldValueIRS element (for citing)
Total0Total

Depreciation Depletion DepreciationDepletion

FieldValueIRS element (for citing)
Total245759Total
Program Services172616ProgramServices
Management And General42708ManagementAndGeneral
Fundraising30435Fundraising

Insurance Insurance

FieldValueIRS element (for citing)
Total229121Total
Program Services148929ProgramServices
Management And General45824ManagementAndGeneral
Fundraising34368Fundraising

Other Expenses OtherExpenses (4 entries)

DescriptionDescriptionTotalTotalProgram ServicesProgramServicesManagement And GeneralManagementAndGeneralFundraisingFundraising
PUBLICATIONS1460534955367294967210200
PROV FOR DOUBTFUL ACCTS399262584282235861
LIST RENTAL FEES758140492051155371110718
GRANTS REFUNDED/RESCINDED-1290717-1290717

All Other Expenses AllOtherExpenses

FieldValueIRS element (for citing)
Total668838Total
Program Services381908ProgramServices
Management And General121015ManagementAndGeneral
Fundraising165915Fundraising

Total Functional Expenses TotalFunctionalExpenses

FieldValueIRS element (for citing)
Total51390580Total
Program Services40271714ProgramServices
Management And General6492310ManagementAndGeneral
Fundraising4626556Fundraising

Cash Non Interest Bearing CashNonInterestBearing

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

FieldValueIRS element (for citing)
BOY11240600BOY
EOY3988534EOY

Pledges And Grants Receivable PledgesAndGrantsReceivable

FieldValueIRS element (for citing)
BOY4452032BOY
EOY6719202EOY

Accounts Receivable AccountsReceivable

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Receivables From Officers Etc ReceivablesFromOfficersEtc

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Receivables From Disqual Persons ReceivablesFromDisqualPersons

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Other Notes Loans Receivable Net OtherNotesLoansReceivableNet

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

FieldValueIRS element (for citing)
BOY1793393BOY
EOY1473951EOY
FieldValueIRS element (for citing)
Land Buildings Equipment Basis3474672LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec2564736LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

FieldValueIRS element (for citing)
BOY418571BOY
EOY909936EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

FieldValueIRS element (for citing)
BOY4377841BOY
EOY9800921EOY

Investments Other Securities InvestmentsOtherSecurities

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Investments Program Related InvestmentsProgramRelated

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Intangible Assets IntangibleAssets

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Other Assets Total OtherAssetsTotal

FieldValueIRS element (for citing)
BOY725255BOY
EOY736705EOY

Total Assets TotalAssets

FieldValueIRS element (for citing)
BOY23007692BOY
EOY23629249EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

FieldValueIRS element (for citing)
BOY1992796BOY
EOY1792880EOY

Grants Payable GrantsPayable

FieldValueIRS element (for citing)
BOY14264290BOY
EOY14431955EOY

Deferred Revenue DeferredRevenue

FieldValueIRS element (for citing)
BOY0BOY
EOY500000EOY

Tax Exempt Bond Liabilities TaxExemptBondLiabilities

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Escrow Account Liability EscrowAccountLiability

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Loans From Officers Directors LoansFromOfficersDirectors

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Mort Notes Pybl Secured Invest Prop MortNotesPyblSecuredInvestProp

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Unsecured Notes Loans Payable UnsecuredNotesLoansPayable

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Other Liabilities OtherLiabilities

FieldValueIRS element (for citing)
BOY538032BOY
EOY503813EOY

Total Liabilities TotalLiabilities

FieldValueIRS element (for citing)
BOY16795118BOY
EOY17228648EOY
FieldValueIRS element (for citing)
Follow SFAS117XFollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

FieldValueIRS element (for citing)
BOY-167119BOY
EOY-822331EOY

Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY6379693BOY
EOY7222932EOY

Permanently Restricted Net Assets PermanentlyRestrictedNetAssets

FieldValueIRS element (for citing)
BOY0BOY
EOY0EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY6212574BOY
EOY6400601EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

FieldValueIRS element (for citing)
BOY23007692BOY
EOY23629249EOY
FieldValueIRS element (for citing)
Info In Schedule O Part XIXInfoInScheduleOPartXI
Reconcilation Revenue Expenses172352ReconcilationRevenueExpenses
Reconciliation Unrealized Invest-16500ReconciliationUnrealizedInvest
Reconcilation Other Changes32175ReconcilationOtherChanges
Method Of Accounting AccrualXMethodOfAccountingAccrual
Accountant Compile Or ReviewfalseAccountantCompileOrReview
FS AuditedtrueFSAudited

FS Audited Basis FSAuditedBasis

FieldValueIRS element (for citing)
Financial Statement SeparateXFinancialStatementSeparate
FieldValueIRS element (for citing)
Audit CommitteetrueAuditCommittee
Federal Grant Audit RequiredtrueFederalGrantAuditRequired
Federal Grant Audit PerformedtrueFederalGrantAuditPerformed

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org170b1 AviXPubliclySupportedOrg170b1Avi

Gifts Grants Contrib Received170 GiftsGrantsContribReceived170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years24484415CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years13419858CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years43742531CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year49476219CurrentTaxYearMinus1Year
Current Tax Year49808240CurrentTaxYear
Total180931263Total

Tax Rev Levied For Org Benefit170 TaxRevLeviedForOrgBenefit170

FieldValueIRS element (for citing)
Total0Total

Value Srvc Fclts Furnished By Govt ValueSrvcFcltsFurnishedByGovt

FieldValueIRS element (for citing)
Total0Total

Total170 Total170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years24484415CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years13419858CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years43742531CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year49476219CurrentTaxYearMinus1Year
Current Tax Year49808240CurrentTaxYear
Total180931263Total
FieldValueIRS element (for citing)
Amounts Subst Contributors Total26050890AmountsSubstContributorsTotal
Public Support Total170154880373PublicSupportTotal170

Gross Investment Income170 GrossInvestmentIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years521546CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years220831CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years588755CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year802238CurrentTaxYearMinus1Year
Current Tax Year780816CurrentTaxYear
Total2914186Total

Net UBI NetUBI

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years80094CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years0CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years13745CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year6130CurrentTaxYearMinus1Year
Current Tax Year0CurrentTaxYear
Total99969Total

Other Income170 OtherIncome170

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years19422425CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years1176967CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years5643836CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year6614989CurrentTaxYearMinus1Year
Current Tax Year7522953CurrentTaxYear
Total40381170Total
FieldValueIRS element (for citing)
Total Support224326588TotalSupport
Gross Receipts From Admissions Etc1569480GrossReceiptsFromAdmissionsEtc
Public Support Pertcentage1700.69042PublicSupportPertcentage170
Public Support Pertcent Prior Year0.72416PublicSupportPertcentPriorYear
Thirty Three Percnt Tests CY170XThirtyThreePercntTestsCY170

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

FieldValueIRS element (for citing)
Contributor NumberRESTRICTEDContributorNumber

Contributor Name Business ContributorNameBusiness

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor Address US ContributorAddressUS

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Aggregate ContributionsRESTRICTEDAggregateContributions

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
Total Grassroots LobbyingTotalGrassrootsLobbying
Total Direct LobbyingTotalDirectLobbying
Total Lobbying ExpendituresTotalLobbyingExpenditures
Other Exempt Purpose ExpendituresOtherExemptPurposeExpenditures
Total Exempt Purpose ExpendituresTotalExemptPurposeExpenditures
Lobbying NontaxableLobbyingNontaxableAmount
Grassroots NontaxableGrassrootsNontaxableAmount
Tot Lobbying Grassroot Minus Non TxTotLobbyingGrassrootMinusNonTx
Tot Lobby Expend Mns Lobbying NontxTotLobbyExpendMnsLobbyingNontx
VolunteersfalseVolunteers
Paid Staff Or ManagementfalsePaidStaffOrManagement
Media AdvertisementsfalseMediaAdvertisements
Mailings MemberstrueMailingsMembers
Publications Or BroadcastfalsePublicationsOrBroadcast
Grants Other OrganizationsfalseGrantsOtherOrganizations
Direct Contact LegislatorstrueDirectContactLegislators
Direct Contact Legislators$46,669DirectContactLegislatorsAmount
Rallies DemonstrationsfalseRalliesDemonstrations
Other ActivitiestrueOtherActivities
Other Activities$69,642OtherActivitiesAmount
Total Lobbying Expenditures IIB116311TotalLobbyingExpendituresIIB
Not Described In501c3falseNotDescribedIn501c3

Form990 Schedule C Part IV Form990ScheduleCPartIV

FieldValueIRS element (for citing)
IdentifierSchedule C, Part II-B, Line 1(i)Identifier
ExplanationThe Crohn's & Colitis Foundation of America, Inc. (CCFA) pays the Health and Medicine Counsel of Washington D.C. to keep the organization up-to-date on what is transpiring with legislation on Capitol Hill concerning health and medicine. (Total amount paid in 2012 was $69,642). It should be noted that the Health and Medicine Counsel of Washington is a healthcare advocacy group that may lobby on behalf of healthcare organizations; however, it is not paid to directly undertake any lobbying activities on behalf of CCFA. CCFA holds a "Day on the Hill" event every year, in which patients suffering with Crohn's disease volunteer to travel to Washington D.C. to discuss proposed healthcare bills with legislators. The "Day on the Hill" event was conducted during the calendar year 2012, for which expenses incurred were approximately $46,669. Expenditures of $46,669 for the Day on the Hill of event have been reported on Schedule C, Part II-B, 1(g). Included within the $46,669 are expenses incurred for mailings made to members, legislators or the public (line 1(d)); accordingly the Foundation has marked box 1(d) yes, but not reported an expense on that line (to avoid double-counting).Explanation

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Art Public Exhibition AmtsArtPublicExhibitionAmts
Held Works Of Art AmtsHeldWorksOfArtAmts
Current Year Minus3 YearsCurrentYearMinus3Years
Current Year Minus4 YearsCurrentYearMinus4Years
LandLand
BuildingsBuildings

Leasehold Improvements LeaseholdImprovements

FieldValueIRS element (for citing)
Other Cost Or Other Basis244729OtherCostOrOtherBasis
Depreciation217661Depreciation
Book Value27068BookValue

Equipment Equipment

FieldValueIRS element (for citing)
Other Cost Or Other Basis1807702OtherCostOrOtherBasis
Depreciation1774877Depreciation
Book Value32825BookValue

Other Land Buildings OtherLandBuildings

FieldValueIRS element (for citing)
Other Cost Or Other Basis1422241OtherCostOrOtherBasis
Depreciation572198Depreciation
Book Value850043BookValue
FieldValueIRS element (for citing)
Total Of Book Value Land Buildings909936TotalOfBookValueLandBuildings
Federal Income Tax Liability0FederalIncomeTaxLiability

Other Liabilities OtherLiabilities (2 entries)

DescriptionDescriptionAmountAmount
GIFT ANNUITY LIABILITY$387,975
DEFERRED RENT$115,838
FieldValueIRS element (for citing)
Total Of Amounts503813TotalOfAmounts
Footnote In Part XIIIXFootnoteInPartXIII
Tot Revenue Etc Audited Fincl Stmt55618638TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments-16500NetUnrealizedGainsInvestments
Donated Srvc And Use Of Facilities4040031DonatedSrvcAndUseOfFacilities
Other Revenues32175OtherRevenues
Revenue Not Rptd F9904055706RevenueNotRptdF990
Revenue Subtotal51562932RevenueSubtotal
Total Revenue Per Form99051562932TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt55430611TotExpensesEtcAuditedFinclStmt
Donated Services Use Of Facilities4040031DonatedServicesUseOfFacilities
Expenses Not Rptd F9904040031ExpensesNotRptdF990
Expenses Subtotal51390580ExpensesSubtotal
Total Expenses Per Form99051390580TotalExpensesPerForm990

Form990 Schedule D Part XIII Form990ScheduleDPartXIII (2 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
Reconciliation of RevenuePart XI, Line 2dChanges in gift annuities valuations: $32,175
Income TaxesPart XThe Foundation adopted guidance that clarifies the accounting for uncertainty in tax positions taken or expected to be taken in a tax return, including issues relating to financial statement recognition and measurement as of January 1, 2010. This section provides that the tax effects from an uncertain tax position can be recognized in the financial statements only if the position is "more-likely-than-not" to be sustained if the position were to be challenged by a taxing authority. The assessment of the tax position is based solely on the technical merits of the position, without regard to the likelihood that the tax position may be challenged. The Foundation is exempt from income tax under the Code, however, is subject to tax on income unrelated to its exempt purposes, unless that income is otherwise excluded under the Code. The tax years ending 2010, 2011 and 2012 are still open to audit for both federal and state purposes. The adoption of this guidance did not have an impact on the Foundation's financial statements as management believes that there are no uncertain tax positions within its financial statements.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedtrueGrantRecordsMaintained

Accts Actvs Out US Table AcctsActvsOutUSTable (2 entries)

RegionRegionType Of Activities ConductedTypeOfActivitiesConductedSpecific Services ProvidedSpecificServicesProvidedTotal ExpendituresTotalExpenditures
North AmericaGrantmakingResearch131202
Middle East and North AfricaGrantmakingResearch128179
FieldValueIRS element (for citing)
Subtotal Amount Spent259381SubtotalAmountSpent
Total Amount Spent259381TotalAmountSpent

Grants To Orgs Outside US GrantsToOrgsOutsideUS (3 entries)

RegionRegionPurpose Of GrantPurposeOfGrantAmount Of Cash GrantAmountOfCashGrantManner Of Cash DisbursementMannerOfCashDisbursement
Middle East and North AfricaRESEARCH128179CHECK
North AmericaResearch115830CHECK
North AmericaResearch15372CHECK
FieldValueIRS element (for citing)
Total Number Of501c3 Orgs3TotalNumberOf501c3Orgs
Transfer To Foreign CorpfalseTransferToForeignCorp
Interest In Foreign TrustfalseInterestInForeignTrust
Own Foreign CorpfalseOwnForeignCorp
Passive Foreign Invest CofalsePassiveForeignInvestCo
Foreign PartnershipfalseForeignPartnership
Boycott CountriesfalseBoycottCountries

Form990 Schedule F Part V Form990ScheduleFPartV

FieldValueIRS element (for citing)
IdentifierSchedule F, Part I, Line 1Identifier
ExplanationThe process for monitoring grants to researchers outside the United States is the same as the process undertaken for those inside the United States. (See Schedule I) Grants are awarded for specific projects for specific research and CCFA requires the researcher to issue progress reports periodically as the project is being done. Most awards are gifted for a period of 3 years and if the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated.Explanation

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsXMailSolicitations
Email SolicitationsXEmailSolicitations
Phone SolicitationsXPhoneSolicitations
In Person SolicitationsXInPersonSolicitations
Solicitation Of Non Govt GrantsXSolicitationOfNonGovtGrants
Solicitation Of Govt GrantsXSolicitationOfGovtGrants
Special Fundraising EventsXSpecialFundraisingEvents
Agreement Ref FundraisingtrueAgreementRefFundraising

Fundraiser Activity Information FundraiserActivityInformation (2 entries)

Name Of IndividualNameOfIndividualActivityActivityFundraiser Control Of FundsFundraiserControlOfFundsGross ReceiptsGrossReceiptsAmount Retained By ContractorAmountRetainedByContractorNet To OrganizationNetToOrganization
infocision management corporationtele- marketingfalse589033128727616
sanky communicationdirect mailfalse36388882188043420084
FieldValueIRS element (for citing)
Total Gross Receipts3697791TotalGrossReceipts
Total Retained By Contractors250091TotalRetainedByContractors
Total Net To Organization3447700TotalNetToOrganization
Licensed StatesALLicensedStates
Licensed StatesAKLicensedStates
Licensed StatesAZLicensedStates
Licensed StatesARLicensedStates
Licensed StatesCALicensedStates
Licensed StatesCOLicensedStates
Licensed StatesCTLicensedStates
Licensed StatesDELicensedStates
Licensed StatesDCLicensedStates
Licensed StatesFLLicensedStates
Licensed StatesGALicensedStates
Licensed StatesHILicensedStates
Licensed StatesIDLicensedStates
Licensed StatesILLicensedStates
Licensed StatesINLicensedStates
Licensed StatesIALicensedStates
Licensed StatesKSLicensedStates
Licensed StatesKYLicensedStates
Licensed StatesLALicensedStates
Licensed StatesMELicensedStates
Licensed StatesMDLicensedStates
Licensed StatesMALicensedStates
Licensed StatesMILicensedStates
Licensed StatesMNLicensedStates
Licensed StatesMSLicensedStates
Licensed StatesMOLicensedStates
Licensed StatesMTLicensedStates
Licensed StatesNELicensedStates
Licensed StatesNVLicensedStates
Licensed StatesNHLicensedStates
Licensed StatesNJLicensedStates
Licensed StatesNMLicensedStates
Licensed StatesNYLicensedStates
Licensed StatesNCLicensedStates
Licensed StatesNDLicensedStates
Licensed StatesOHLicensedStates
Licensed StatesOKLicensedStates
Licensed StatesORLicensedStates
Licensed StatesPALicensedStates
Licensed StatesRILicensedStates
Licensed StatesSCLicensedStates
Licensed StatesSDLicensedStates
Licensed StatesTNLicensedStates
Licensed StatesTXLicensedStates
Licensed StatesUTLicensedStates
Licensed StatesVTLicensedStates
Licensed StatesVALicensedStates
Licensed StatesWALicensedStates
Licensed StatesWVLicensedStates
Licensed StatesWILicensedStates
Licensed StatesWYLicensedStates

Events Information EventsInformation

FieldValueIRS element (for citing)
Name Of Event1TAKE STEPSNameOfEvent1
Gross Receipts Event19824774GrossReceiptsEvent1
Charitable Contributions Event18582352CharitableContributionsEvent1
Gross Revenue Event11242422GrossRevenueEvent1
Rent Facility Costs Event1439523RentFacilityCostsEvent1
Other Direct Expenses Event1802898OtherDirectExpensesEvent1
Name Of Event2TEAM CHALLENGENameOfEvent2
Gross Receipts Event29737204GrossReceiptsEvent2
Charitable Contributions Event26849013CharitableContributionsEvent2
Gross Revenue Event22888191GrossRevenueEvent2
Rent Facility Costs Event21311247RentFacilityCostsEvent2
Other Direct Expenses Event21576942OtherDirectExpensesEvent2
Total Number Of Other Events98TotalNumberOfOtherEvents
Gross Receipts Other Events12082454GrossReceiptsOtherEvents
Charitable Contrib Other Events9225096CharitableContribOtherEvents
Gross Revenue Other Events2857358GrossRevenueOtherEvents
Rent Facility Costs Other Events2129709RentFacilityCostsOtherEvents
Other Direct Expenses Other Events991712OtherDirectExpensesOtherEvents
Gross Receipts Total31644432GrossReceiptsTotal
Charitable Contributions Total24656461CharitableContributionsTotal
Gross Revenue Total Events6987971GrossRevenueTotalEvents
Rent Facility Costs Total Events3880479RentFacilityCostsTotalEvents
Other Direct Expenses Total Events3371552OtherDirectExpensesTotalEvents
Direct Expense Summary Events7252031DirectExpenseSummaryEvents
Net Income Summary-264060NetIncomeSummary

Gaming Information GamingInformation

FieldValueIRS element (for citing)
Volunteer Labor BingofalseVolunteerLaborBingo
Volunteer Labor Pull TabsfalseVolunteerLaborPullTabs
Gross Revenue Other Gaming330074GrossRevenueOtherGaming
Other Direct Expenses Other Gaming66014OtherDirectExpensesOtherGaming
Volunteer Labor Other GamingfalseVolunteerLaborOtherGaming
Gross Revenue Total Gaming330074GrossRevenueTotalGaming
Other Direct Expenses Total Gaming66014OtherDirectExpensesTotalGaming
Direct Expense Summary Gaming66014DirectExpenseSummaryGaming
Net Gaming Income Summary264060NetGamingIncomeSummary
FieldValueIRS element (for citing)
States Where Gaming ConductedCAStatesWhereGamingConducted
States Where Gaming ConductedFLStatesWhereGamingConducted
States Where Gaming ConductedGAStatesWhereGamingConducted
States Where Gaming ConductedMIStatesWhereGamingConducted
States Where Gaming ConductedNYStatesWhereGamingConducted
States Where Gaming ConductedPAStatesWhereGamingConducted
States Where Gaming ConductedWAStatesWhereGamingConducted
LicensedtrueLicensed
License Suspended EtcfalseLicenseSuspendedEtc
Gaming With NonmembersfalseGamingWithNonmembers
Member Of Other EntityfalseMemberOfOtherEntity
Percentage Of Gaming Othr Facility1.00000PercentageOfGamingOthrFacility
Name Of Gaming Rec Keeper PersonRonald GoldsmanNameOfGamingRecKeeperPerson

Address Of Gaming Rec Keeper US AddressOfGamingRecKeeperUS

FieldValueIRS element (for citing)
Address Line1733 Third Avenue Suite 510AddressLine1
CityNew YorkCity
StateNYState
ZIP Code10017ZIPCode
FieldValueIRS element (for citing)
Contract With3rd Party For Gam RevfalseContractWith3rdPartyForGamRev
Gaming Manager Name PersonSee part IVGamingManagerNamePerson
Gaming Manager Compensation0GamingManagerCompensation
Gaming Manager Services ProvidednoneGamingManagerServicesProvided
Charitable Distrib RequiredfalseCharitableDistribRequired

Form990 Schedule G Part IV Form990ScheduleGPartIV

FieldValueIRS element (for citing)
IdentifierSchedule G, Part III - Gaming ActivitiesIdentifier
ExplanationThe Crohn's & Colitis Foundation of America, Inc. only partakes in gaming activities to the extent the organization holds a raffle or game of chance during a gala, dinner or other special event. Each chapter is responsible for conducting its own special event activities and, as such, the organization does not have one person who oversees all gaming activities for purposes of Schedule G, Part III, Lines 14 & 16. Raffles are conducted as part of special events and not as separate fundraising activities. Chapters are responsible for securing applicable licenses and complying with reporting requirements. For the period covered by this return, only seven chapters held raffles: California, Florida, Georgia, Michigan, New York, Pennsylvania, and Washington.Explanation

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Records MaintainedtrueRecordsMaintained

Recipient Table RecipientTable (58 entries)

Address Line1AddressUS/AddressLine1CityAddressUS/CityStateAddressUS/StateZIP CodeAddressUS/ZIPCodeEIN Of RecipientEINOfRecipientIRC SectionIRCSectionAmount Of Cash GrantAmountOfCashGrantPurpose Of GrantPurposeOfGrantAddress Line2AddressUS/AddressLine2
Benaroya Research Institute
1201 Ninth AvenueSeattleWA98101910653422501(c)(3)116500Research
Beth Israel Deaconess Medical Center
330 Brookline Avenue DA-501BostonMA02215042103881501(c)(3)89911Research
Brigham & Women's Hospital
75 Francis Street Thorn Building RBostonMA02115042312909501(c)(3)301545Research
Cedars-Sinai Medical Center
8700 Beverly Blvd Davis Bldg Rm 4Los AngelesCA90048951644600501(c)(3)198964Research
Children's Hospital Boston
300 Longwood Avenue Enders 649BostonMA02215042774441501(c)(3)405580Research
Children's Hospital Los Angeles
4650 Sunset Blvd MS137Los AngelesCA90027951690977501(c)(3)288065Research
Children's Hospital of Philadelphia
3400 Civic Center BlvdPhiladelphiaPA19146231352166501(c)(3)204114Research
Cincinnati Children's Hospital Medical Center
MLC 2010 3333 Burnet AvenueCincinnatiOH45229136193105501(c)(3)231660Research
Columbia University Medical Center
630 West 168th StreetNew YorkNY10032135598093501(c)(3)115830Research
Cornell University Medical College
1300 York Avenue Box 56New YorkNY10021113162397501(c)(3)115830Research
Dana-Farber Cancer Institute
450 Brookline Ave D1420BostonMA02215042263040501(c)(3)56879Research
Emory University
Office of Sponsored ProgramsAtlantaGA303224250580566256501(c)(3)2359596Research1599 Clifton Road NE 4th Floor
Federation of Clinical Immunology Societies (FOCIS
10833 Le Conte AvenueLos AngelesCA90095760715404501(c)(3)10000Research
Johns Hopkins University
10500 Whiskey RoadIjamsvilleMD21754520595110501(c)(3)166430Research
Louisiana State University Health Sciences Center
1501 Kings Highway PO Box 33932ShreveportLA71130726000848501(c)(3)90000Research
Massachusetts General Hospital
MGH-GI Unit Jackson 722 55 Fruit SBostonMA02114042697983501(c)(3)962004Research
Mayo Clinic and Foundation
200 First Street SWRochesterMN55905411506440501(c)(3)111455Research
Medical College of Wisconsin
9200 West Wisconsin AvenueMilwaukeeWI53226390806261501(c)(3)430000Research
Medical University of South Carolina
173 Ashley Avenue Room 535 BSBCharestonSC29403570967350501(c)(3)128344Research
Montana State University
109 Lewis HallBozemanMT59717816010045501(c)(3)128700Research
Mount Sinai School of Medicine
1425 Madison Ave Room 11-02 Box 1New YorkNY10029136171197501(c)(3)864840Research
National Cancer Institute
Building 560 Room 31-71FrederickMD21702300050040501(c)(3)128700Research
New York University School of Medicine
550 First AvenueNew YorkNY10016135562309501(c)(3)289910Research
Northwestern University
1373 South Milledge AvenueAthensGA30605362167817501(c)(3)115830Research
Rosalind Franklin University of Medicine and Scien
3333 Green Bay RoadChicagoIL60064362181973501(c)(3)115830Research
Saint Louis University
1100 S Grand Blvd Rm 703St LouisMO63104430654872501(c)(3)115830Research
Society for Mucosal Immunology
5272 River Road Suite 630MilwaukeeWI53224541419447501(c)(3)10000Research
University of Alabama at Birmingham
845 19th Street South BBRB 870BirminghamAL35294636005396501(c)(3)492269Research
University of California Los Angeles
675 Charles Young Drive SouthLos AngelesCA90095956006143501(c)(3)416127Research
University of California San Diego
9500 Gilman DriveLa JollaCA92093946036493501(c)(3)438107Research
University of Chicago
KCBD 900 E 57th Street 9th FloorChicagoIL60637362177139501(c)(3)246200ResearchMailbox 9
University of Colorado Denver
12700 East 19th Avenue MS B-146AuroraCO80045846000555501(c)(3)690450Research
University of Connecticut Health Center
263 Farmington AvenueStorrsCT06030521725543501(c)(3)56825Research
University of Kentucky Medical Center
800 Rose Street Room MS419LexingtonKY40536616033693501(c)(3)231660Research
University of Miami
509 Gautier Bldg D-149 1011 NW 1MiamiFL33136590624458501(c)(3)289910Research
University of Michigan
200 Zina Pitcher Place 4410 KresgAnn ArborMI48109386006309501(c)(3)264200Research
University of North Carolina at Chapel Hill
103 Mason Farm RdChapel HillNC27599566001393501(c)(3)1478734Research
University of Texas Medical Branch
301 University BlvdGalvestonTX77555746000949501(c)(3)127463Research
University of Texas Southwestern Medical Center at
5323 Harry Hines BoulevardDallasTX75390756002868501(c)(3)244530Research
Washington University School of Medicine
660 S Euclid AvenueSt LouisMO63110126238900501(c)(3)861741Research
Yale University School of Medicine
Goodman Lab YAle West Campus PO BWest HavenCT065167388060646973501(c)(3)231660Research
Broad Institute
7 Cambridge CenterCambridgeMA02142263428781501(c)(3)250000Research
Rockefeller University
1230 York Avenue Founders Hall BoxNew YorkNY10065131624158501(c)(3)231660Research
Stanford University School of Medicine
301 Ravenswood AvenueMenlo ParkCA94025941156365501(c)(3)170070Research
Oregon Health & Science University
3181 SW Sam Jackson Park RdPortlandOR97239931176109501(c)(3)115830Research
Sanford Burnham Medical Research Institute
10901 North Torrey Pines RoadLa JollaCA92037151019710501(c)(3)115830Research
Trustees of the University of Pennsylvania
3451 Walnut Street Franklin BuildinPhiladelphiaPA19104231352685501(c)(3)115830Research
Veterans Medical Research Foundation
133018939501(c)(3)115830Research
University of Nebraska College of Medicine
312 N 14th StreetLincolnNE68588470049123501(c)(3)90000Research
Pennsylvania State University College of Medcine
500 University DrHersheyPA17033246000376501(c)(3)90000Research
Georgia State University
Research Financial Services PO BoxAtlantaGA30302586000205501(c)(3)89671Research
University of Texas Health Science Center at Houst
1941 East Rd Suite 5318HoustonTX77054174176130501(c)(3)86156Research
Research Institute at Nationwide Children's Hospit
700 Childrens DriveColumbusOH04320316056230501(c)(3)85000Research
St Jude's Childrens Research Hospital
262 Danny Thomas Place Mail Stop 7MemphisTN38105162064601501(c)(3)84930Research
University of Texas MD Anderson Cancer Center
1515 Holcombe BlvdHoustonTX77030174600111501(c)(3)74399Research
Harvard School of Public Health
39 Wyman TrailMoultonboroughNH03254104210358501(c)(3)65000Research
University of Pittsburgh
PO Box 371220PittsburghPA15251125096559501(c)(3)11250Research
Keystone Symposia on Molecular & Cellular Biology
841326605501(c)(3)9600Research
FieldValueIRS element (for citing)
Total Nbr Of501 C3 And Govt Grants58TotalNbrOf501C3AndGovtGrants

Form990 Schedule I Part IV Form990ScheduleIPartIV

FieldValueIRS element (for citing)
IdentifierGrantsIdentifier
Return ReferencePart I, Line 1ReturnReference
ExplanationThe Crohn's & Colitis Foundation of America, Inc. ("CCFA") is a non-profit organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. To accomplish this, the Foundation subsidizes research into both diseases. Grants are awarded for specific projects for specific research and CCFA requires the researcher to issue progress reports periodically as the project is being completed. Most awards are gifted for a period of 3 years and a progress report to the CCFA Board of Directors is required on an annual basis. If the progress reports do not show significant strides in the research, the grant will not be approved for additional funding and will be terminated.Explanation

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeXCompensationCommittee
Independent ConsultantXIndependentConsultant
Form990 Of Other OrganizationsXForm990OfOtherOrganizations
Compensation SurveyXCompensationSurvey
Board Or Committee ApprovalXBoardOrCommitteeApproval
Severance PaymentfalseSeverancePayment
Supplemental Nonqual Retire PlanfalseSupplementalNonqualRetirePlan
Equity Based Comp ArrangementfalseEquityBasedCompArrangement
Comp Based On Revenue Of Filing OrgfalseCompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related OrgsfalseCompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing OrgfalseCompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate OrgsfalseCompBasedNetEarningsRelateOrgs
Any Non Fixed PaymentstrueAnyNonFixedPayments
Initial Contract ExceptionfalseInitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII (6 entries)

TitleTitleBase Compensation Filing OrgBaseCompensationFilingOrgComp Based On Related OrgsCompBasedOnRelatedOrgsBonus Filing OrgBonusFilingOrgBonus Related OrgsBonusRelatedOrgsOther Compensation Filing OrgOtherCompensationFilingOrgOther Compensation Related OrgsOtherCompensationRelatedOrgsDeferred Comp Filing OrgDeferredCompFilingOrgDeferred Comp Related OrgsDeferredCompRelatedOrgsNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgNontaxable Benefits Related OrgsNontaxableBenefitsRelatedOrgsTotal Compensation Filing OrgTotalCompensationFilingOrgTotal Compensation Related OrgsTotalCompensationRelatedOrgsComp Report Prior990 Filing OrgCompReportPrior990FilingOrgComp Report Prior990 Related OrgsCompReportPrior990RelatedOrgs
Richard Geswell non-voting
President475016022000000295000234210549937000
Judith Brown
Chief development officer21368683711102110693243771
Kimberly Frederick
SVP of Mission174220358690193657190482
Marie Granieri
Senior VP/Enterprise wide Tech153015329877901105165208
Craig Comins
National Dir. Team Challenge143879075006673158052
Kathleen Boggan
SVP Field & Campaign Mgmt197656473658332896211121

Form990 Schedule J Part III Form990ScheduleJPartIII

FieldValueIRS element (for citing)
IdentifierIncentive ProgramIdentifier
Return ReferenceSchedule J, part I, line 7ReturnReference
ExplanationThe President's incentive is predicated off of a set of objectives that are developed and updated each year. These objectives include raising revenues, management of expenses, development of regions and related performance, building of infrastructure and maximization of research expenditures. Each area's results are evaluated by the President's Review Committee and the incentive is ultimately determined based on ratings of performance of these objectives. For all other employees, impact awards are given to employees if the individual meets net income and net revenue targets and must be recommended by their supervisor.Explanation

Schedule L IRS990ScheduleL

Form990 Schedule L Part IV Form990ScheduleLPartIV

Name Of Interested Person NameOfInterestedPerson

FieldValueIRS element (for citing)
Name PersonDavid AlbergaNamePerson
FieldValueIRS element (for citing)
RelationshipBoard MemberRelationship
Amount Of Transaction293000AmountOfTransaction
Description Of TransactionSee part VDescriptionOfTransaction
Sharing Of RevenuesfalseSharingOfRevenues

Form990 Schedule L Part V Form990ScheduleLPartV

FieldValueIRS element (for citing)
IdentifierForm 990, Schedule L, Part IVIdentifier
ExplanationBoard of Trustees member, David Alberga, is the President and CEO of Active Network, Inc., an organization that transacts business with the Crohn's & Colitis Foundation of America, Inc. ("CCFA") CCFA uses a website to process online contributions for its special events; this website is affiliated with Active Network, Inc. CCFA paid $293,000 to Active Network Inc. This transaction has been fully disclosed in CCFA's audited financial statements.Explanation

Schedule M IRS990ScheduleM

FieldValueIRS element (for citing)
Works Of ArtWorksOfArt
Art Historical TreasuresArtHistoricalTreasures
Art Fractional InterestArtFractionalInterest
Books And PublicationsBooksAndPublications
Clothing And Household GoodsClothingAndHouseholdGoods
Cars And Other VehiclesCarsAndOtherVehicles
Boats And PlanesBoatsAndPlanes
Intellectual PropertyIntellectualProperty

Securities Publicly Traded SecuritiesPubliclyTraded

FieldValueIRS element (for citing)
Non Cash CheckboxXNonCashCheckbox
Number Of Contributions48NumberOfContributions
Noncash Contribs Rptd F990357934NoncashContribsRptdF990
Method Of Determining RevenuesMarket PriceMethodOfDeterminingRevenues
FieldValueIRS element (for citing)
Securities Closely Held StockSecuritiesCloselyHeldStock
Securities Prtnrshp Trust IntrstsSecuritiesPrtnrshpTrustIntrsts
Securities MiscellaneousSecuritiesMiscellaneous
Qualified Contrib Hist StructQualifiedContribHistStruct
Qualified Contrib OtherQualifiedContribOther
Real Estate ResidentialRealEstateResidential
Real Estate CommercialRealEstateCommercial
Real Estate OtherRealEstateOther
CollectiblesCollectibles
Food InventoryFoodInventory
Drugs And Medical SuppliesDrugsAndMedicalSupplies
TaxidermyTaxidermy
Historical ArtifactsHistoricalArtifacts
Scientific SpecimensScientificSpecimens
Archaeological ArtifactsArchaeologicalArtifacts
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeld
Review Process Unusual NC GiftstrueReviewProcessUnusualNCGifts
Third Parties UsedtrueThirdPartiesUsed

Form990 Schedule M Part II Form990ScheduleMPartII

FieldValueIRS element (for citing)
IdentifierSchedule MIdentifier
ExplanationThe Foundation often receives contributions of publicly traded securities. The Foundation's investment manager or brokerage firm is tasked with selling these securities.Explanation

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (6 entries)

IdentifierIdentifierReturn ReferenceReturnReferenceExplanationExplanation
Governing Body and managementPart VI, Line 2Irwin Rosenthal and Suzanne Rosenthal, co-founders of the Crohn's and Colitis Foundation of America, Inc., have a family relationship.
Process used to review form 990Part VI, section B, Line 11The Form 990 was prepared by a national accounting firm in conjunction with the organization's financial department. A copy of the draft Form 990 was circulated to each member of the Audit Committee, a standing committee of the Board of Trustees, for discussion and comment. Each committee Member was provided an opportunity to comment on the information contained in the 990 prior to its filing with the Internal Revenue Service.
Conflict of Interest Policy Monitoring & EnforcementPart VI, Section B, Line 12Each officer, director, trustee and key employee of the Crohn's & Colitis Foundation of America, Inc. ("CCFA") is required to annually disclose any conflicts of interest that arise by virtue of employment, board service, or position with CCFA. CCFA monitors compliance with its conflict of interest policy through an annual questionnaire/disclosure statement that is distributed to these individuals. Potential conflicts are investigated immediately.
Process for determining compensationPart VI, section B, Line 15The Crohn's & Colitis Foundation is dependent on experienced and qualified leadership to achieve its goals. Factors such as annual gross revenues, geographic locations, tenure, mission and other factors help determine senior leadership compensation. The President's compensation is determined on an annual basis by the Chairman of the Board using guidelines and comparability data provided in National Compensation Studies of Chief Staff Executives as statistically prepared by an independent research firm. The Foundation has taken further initiative to benchmark executive level pay by hiring an independent compensation consultant to review and validate the compensation it pays all employees. CCFA anticipates that the consultant will continue the Foundation's policy of relying on benchmarking surveys and other industry data to compare the salaries CCFA pays to its executives with compensation paid to executives of other not for profit organizations of similar size.
Availability of documents to the publicpart vi, section C, line 19The taxpayer makes its Form 990 available to the public by retaining a copy at its place of business and on its website at www.ccfa.org. The Form 990 is likewise published on the internet at www.guidestar.org. The organization's financial statements are posted on its website. Governing documents and conflict of interest policy are not ordinarily made available to the public, but if requested, will be provided at management's discretion.
ContributionsPart VIII, line 1g, Noncash contributionsThe Crohn's & Colitis Foundation of America, Inc. ("CCFA") has utilized the services of Car Program, Inc., an organization that receives donated vehicles, sells them and remits the net proceeds to several charitable organizations. The vehicles are not donated directly to CCFA nor does CCFA have ownership rights to them. In 2012, CCFA received $35,483 in revenues from this program. Additionally, CCFA receives considerable in-kind contributions in the form of donated public service announcements on television and radio statements and services received from physicians and health professionals that have made significant contributions of their time in furtherance of CCFA's programs. The fair value of such in-kind contributions is reflected in the statement of activities as contributed services and airtime revenue and health professional education and public information program service expense. Since donated services are not reported on the Form 990, CCFA has not reported the contributed services and airtime on Schedule M on Part VIII, line 1(G). For the year ending December 31, 2012, contributed services and airtime amounted to $4,040,031. Form 990, Part XI, Line 9 Changes in Gift Annuities and Remainder Trust Valuations - $32,175

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