CMT RESEARCH FOUNDATION INC: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
CMT RESEARCH FOUNDATION INC (EIN 82-5476655)
Tax period
2024-07-01 to 2025-06-30
Filed
2026-02-11
IRS object ID
202610429349301826
Schema version
2024v5.5
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-02-11T16:26:47-06:00ReturnTs
Tax Period End2025-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN581763570PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1JONES AND KOLBBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line13475 PIEDMONT ROAD NE SUITE 1500AddressLine1Txt
CityATLANTACityNm
State AbbreviationGAStateAbbreviationCd
ZIP30305ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2024-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN825476655EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CMT Research Foundation IncBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCMTRBusinessNameControlTxt
Phone4048067180PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line14062 Peachtree Road A209AddressLine1Txt
CityAtlantaCityNm
State AbbreviationGAStateAbbreviationCd
ZIP30319ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonErich FasnachtPersonNm
Person TitleCOOPersonTitleTxt
Phone4048067180PhoneNum
Signature2026-02-10SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info Curr0IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonANN M THOMPSONPreparerPersonNm
PTINP00719770PTIN
Phone4042627920PhoneNum
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerErich FasnachtPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line14062 Peachtree Road A209AddressLine1Txt
CityAtlantaCityNm
State AbbreviationGAStateAbbreviationCd
ZIP30319ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$8,678,472GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresscmtrf.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2018FormationYr
Legal Domicile StateILLegalDomicileStateCd
Activity Or MissionTo fund research which delivers treatments and cures to end Charcot-Marie-Tooth (CMT).ActivityOrMissionDesc
Voting Members Governing Body12VotingMembersGoverningBodyCnt
Voting Members Independent9VotingMembersIndependentCnt
Total Employee11TotalEmployeeCnt
Total Volunteers50TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$4,403,498PYContributionsGrantsAmt
CY Contributions Grants$8,471,921CYContributionsGrantsAmt
PY Program Service Revenue$117,193PYProgramServiceRevenueAmt
CY Program Service Revenue$83,947CYProgramServiceRevenueAmt
PY Investment Income$103,382PYInvestmentIncomeAmt
CY Investment Income$106,654CYInvestmentIncomeAmt
PY Other Revenue$0PYOtherRevenueAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$4,624,073PYTotalRevenueAmt
CY Total Revenue$8,662,522CYTotalRevenueAmt
PY Grants And Similar Paid$1,774,490PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$2,056,600CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,147,866PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,389,028CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$84,481PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$113,540CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$883,449CYTotalFundraisingExpenseAmt
PY Other Expenses$1,067,381PYOtherExpensesAmt
CY Other Expenses$1,028,377CYOtherExpensesAmt
PY Total Expenses$4,074,218PYTotalExpensesAmt
CY Total Expenses$4,587,545CYTotalExpensesAmt
PY Revenues Less Expenses$549,855PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$4,074,977CYRevenuesLessExpensesAmt
Total Assets BOY$4,673,303TotalAssetsBOYAmt
Total Assets EOY$8,705,044TotalAssetsEOYAmt
Total Liabilities BOY$355,279TotalLiabilitiesBOYAmt
Total Liabilities EOY$312,043TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$4,318,024NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$8,393,001NetAssetsOrFundBalancesEOYAmt
MissionWith a single focus on funding research, the CMT Research Foundation exclusively funds research leading to the discovery, development, and clinical application of treatments and cures for Charcot-Marie-Tooth (CMT).MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$3,224,540ExpenseAmt
Grant$2,056,600GrantAmt
Revenue$83,947RevenueAmt
DescSupport the most promising and efficient Charcot-Marie-Tooth research aimed only toward drug delivery by developing strategic alliances with academic and industry stakeholders.Desc
Total Program Service Expenses$3,224,540TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document21IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee11EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members12GoverningBodyVotingMembersCnt
Independent Voting Member9IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1The OrganizationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone4048067180PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line14062 Peachtree Road Suite A209AddressLine1Txt
CityAtlantaCityNm
State AbbreviationGAStateAbbreviationCd
ZIP30319ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (15 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeInd
Laura MacNeill
Chief Executive Officer40.00Yes (X)Yes (X)$73,613$0$303
Erich Fasnacht
Chief Operations Officer40.00Yes (X)$240,000$0$9,886
Anna Price
VP of Philanthropy40.00Yes (X)$163,132$0$28,667
Cleary Simpson
Vice-Chair / CEO thru 10/16/242.00Yes (X)Yes (X)$183,333$0$0
Riann Egusquiza
Director of Research40.00$151,896$0$8,593Yes (X)
Susan Ruediger
Co-Founder & Chief Mission Officer20.00Yes (X)Yes (X)$38,226$0$23,531
Peter DeSilva
Chair2.00Yes (X)Yes (X)$0$0$0
Susan Canavari
Secretary1.00Yes (X)Yes (X)$0$0$0
Adam Kauffman
Treasurer1.00Yes (X)Yes (X)$0$0$0
Maximiliano Barrientos
Member1.00Yes (X)$0$0$0
William Motley
Member2.00Yes (X)$0$0$0
Thomas Sander
Member1.00Yes (X)$0$0$0
Arthur Suckow
Member1.00Yes (X)$0$0$0
Santo Caivano
Member1.00Yes (X)$0$0$0
Ann Fairchild
Member1.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$850,200TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$70,980TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K4IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Schaner & Lubitz PLLCBusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

FieldValueIRS element (for citing)
Address Line14550 Montgomery Ave Ste 1100NAddressLine1Txt
CityBethesdaCityNm
State AbbreviationMDStateAbbreviationCd
ZIP20814ZIPCd
FieldValueIRS element (for citing)
ServicesLegal ServicesServicesDesc
Compensation$275,044CompensationAmt
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K1CntrctRcvdGreaterThan100KCnt
Fundraising$70,800FundraisingAmt
All Other Contributions$8,401,121AllOtherContributionsAmt
Total Contributions$8,471,921TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescConvention RevenueDesc
Business900099BusinessCd
Total Revenue Column$83,947TotalRevenueColumnAmt
Related Or Exempt Func Income$83,947RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$83,947TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$106,654TotalRevenueColumnAmt
Exclusion$106,654ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$15,950FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$70,800ContriRptFundraisingEventAmt
Fundraising Direct Expenses$15,950FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$8,662,522TotalRevenueColumnAmt
Related Or Exempt Func Income$83,947RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$106,654ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,733,412TotalAmt
Program Services$1,733,412ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$16,970TotalAmt
Program Services$16,970ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$306,218TotalAmt
Program Services$306,218ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$992,212TotalAmt
Program Services$479,619ProgramServicesAmt
Management And General$163,197ManagementAndGeneralAmt
Fundraising$349,396FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$287,161TotalAmt
Program Services$174,500ProgramServicesAmt
Management And General$81,750ManagementAndGeneralAmt
Fundraising$30,911FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$11,312TotalAmt
Program Services$6,626ProgramServicesAmt
Management And General$3,447ManagementAndGeneralAmt
Fundraising$1,239FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$11,807TotalAmt
Program Services$6,916ProgramServicesAmt
Management And General$3,598ManagementAndGeneralAmt
Fundraising$1,293FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$86,536TotalAmt
Program Services$45,253ProgramServicesAmt
Management And General$17,299ManagementAndGeneralAmt
Fundraising$23,984FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$166,747TotalAmt
Program Services$166,710ProgramServicesAmt
Management And General$37ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$91,573TotalAmt
Program Services$9,157ProgramServicesAmt
Management And General$82,416ManagementAndGeneralAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$113,540TotalAmt
Fundraising$113,540FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$97,382TotalAmt
Program Services$27,388ProgramServicesAmt
Management And General$33,778ManagementAndGeneralAmt
Fundraising$36,216FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$225,439TotalAmt
Program Services$2,574ProgramServicesAmt
Management And General$27,633ManagementAndGeneralAmt
Fundraising$195,232FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$67,921TotalAmt
Program Services$4,756ProgramServicesAmt
Management And General$25,968ManagementAndGeneralAmt
Fundraising$37,197FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$186,121TotalAmt
Program Services$112,074ProgramServicesAmt
Management And General$16,430ManagementAndGeneralAmt
Fundraising$57,617FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$144,326TotalAmt
Program Services$122,643ProgramServicesAmt
Management And General$1,683ManagementAndGeneralAmt
Fundraising$20,000FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$9,845TotalAmt
Management And General$9,845ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Miscellaneous$31,732$2,433$12,475$16,824
Association Fees$7,291$7,291

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$4,587,545TotalAmt
Program Services$3,224,540ProgramServicesAmt
Management And General$479,556ManagementAndGeneralAmt
Fundraising$883,449FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$37,686BOYAmt
EOY$131,374EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$3,407,330BOYAmt
EOY$3,048,897EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$1,140,728BOYAmt
EOY$5,398,775EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$87,559BOYAmt
EOY$125,998EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$4,673,303BOYAmt
EOY$8,705,044EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$340,049BOYAmt
EOY$300,893EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$15,230BOYAmt
EOY$11,150EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$355,279BOYAmt
EOY$312,043EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,262,355BOYAmt
EOY$5,064EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,055,669BOYAmt
EOY$8,387,937EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,318,024BOYAmt
EOY$8,393,001EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,673,303BOYAmt
EOY$8,705,044EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$4,074,977ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$216,898CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,349,158CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,401,534CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,403,498CurrentTaxYearMinus1YearAmt
Current Tax Year$8,471,921CurrentTaxYearAmt
Total$20,843,009TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$216,898CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,349,158CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,401,534CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$4,403,498CurrentTaxYearMinus1YearAmt
Current Tax Year$8,471,921CurrentTaxYearAmt
Total$20,843,009TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$10,253,639SubstantialContributorsTotAmt
Public Support Total170$10,589,370PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$106CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,127CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$76,362CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$103,382CurrentTaxYearMinus1YearAmt
Current Tax Year$106,654CurrentTaxYearAmt
Total$289,631TotalAmt
FieldValueIRS element (for citing)
Total Support$21,132,640TotalSupportAmt
Public Support CY1700.50110PublicSupportCY170Pct
Public Support PY1700.69870PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt
Total Rev Etc Audited Fincl Stmt$8,662,522TotalRevEtcAuditedFinclStmtAmt
Revenue Not Reported$0RevenueNotReportedAmt
Revenue Subtotal$8,662,522RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$8,662,522TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$4,587,545TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$4,587,545ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$4,587,545TotalExpensesPerForm990Amt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$0SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$0TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtNon Cash AssistanceNonCashAssistanceAmt
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumCollaborative research agreement$246,349Wire Transfer$0
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumCollaborative research agreement$42,625Wire Transfer$0
Europe (Including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumCollaborative research agreement$17,244Wire Transfer$0
FieldValueIRS element (for citing)
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 1:FormAndLineReferenceDesc
ExplanationThe Foundation executes collaborative research agreements with organizations that have expertise in the field of research, development, and commercialization of therapeutic and diagnostic agents for human diseases and conditions. The Foundation ensures the grants and other assistance are used in accordance with the terms of the collaborative research agreements and produce results which help the Organization further its mission.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Agrmt Prof Fundraising Acty0AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (4 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdActivityActivityTxtFundraiser Control Of FundsFundraiserControlOfFundsIndGross ReceiptsGrossReceiptsAmtRetained By ContractorRetainedByContractorAmtNet To OrganizationNetToOrganizationAmt
Allegiance Group
219 Roswell StreetAlpharettaGA30009Digital Advertising0$0$41,075$0
Lotos Nile
PO Box 90245NashvilleTN37209Marketing Services0$0$16,265$0
House of Search
65 EnterpriseAliso ViejoCA92656Marketing Services0$0$25,200$0
Schultz & Williams
11617 John F Kennedy Blvd 1700PhiladelphiaPA19103Campaign Feasibility Study0$0$31,000$0
FieldValueIRS element (for citing)
Total Retained By Contractors$113,540TotalRetainedByContractorsAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesAZLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDELicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesIDLicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesINLicensedStatesCd
Licensed StatesIALicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesMOLicensedStatesCd
Licensed StatesMTLicensedStatesCd
Licensed StatesNELicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesSDLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd
Licensed StatesWYLicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1Ohio What a NightEvent1Nm
Gross Receipts Event1$86,750GrossReceiptsEvent1Amt
Charitable Contri Event1$70,800CharitableContriEvent1Amt
Gross Revenue Event1$15,950GrossRevenueEvent1Amt
Other Direct Expenses Event1$15,950OtherDirectExpensesEvent1Amt
Gross Receipts Total$86,750GrossReceiptsTotalAmt
Charitable Contributions Tot$70,800CharitableContributionsTotAmt
Gross Revenue Total Events$15,950GrossRevenueTotalEventsAmt
Oth Direct Expnss Total Events$15,950OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$15,950DirectExpenseSummaryEventsAmt
Net Income Summary$0NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (7 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
Chicago Association for Research and Education in Science
5000 South 5th AvenueHinesTN37235$20,440$0Collaborative research agreement
Nationwide Children's Hospital
700 Childrens DriveColumbusOH43205$392,096$0Collaborative research agreement
University of Illinois at Chicago
1737 West Polk Street 304 AOBChicagoIL60612$207,892$0Collaborative research agreement
Vanderbilt University
2201 West End AvenueNashvilleTN37235$260,803$0Collaborative research agreement
Alloy Therapeutics Inc
275 Second Avenue Ste 200WalthamMA02451$500,000$0Collaborative research agreement
University of Miami
1320 S Dixie Highway Ste 650Coral GablesFL33146$142,681$0Collaborative research agreement
ASHA Therapeutics LLC
3802 Spectrum Blvd Ste 146TampaFL33612$209,500$0Collaborative research agreement

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeEmerging Researchers AwardsGrantTypeTxt
Recipient16RecipientCnt
Cash Grant$16,970CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part I, Line 2:The Foundation executes collaborative research agreements with organizations that have expertise in the field of research, development, and commercialization of therapeutic and diagnostic agents for human diseases and conditions. The Foundation ensures the grants and other assistance are used in accordance with the terms of the collaborative research agreements and produce results which help the Organization further its mission.
Part IIIThe Foundation provides grants to support early-career researchers currently conducting research on human diseases and conditions. The Foundation ensures the grants are used in accordance with the terms of the grant agreements.

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Written Employment ContractYes (X)WrittenEmploymentContractInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (4 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
Erich Fasnacht
Chief Operations Officer$240,000$0$0$0$0$0$9,648$0$238$0$249,886$0$0$0
Anna Price
VP of Philanthropy$163,132$0$0$0$0$0$7,048$0$21,619$0$191,799$0$0$0
Cleary Simpson
Vice-Chair / CEO thru 10/16/24$183,333$0$0$0$0$0$0$0$0$0$183,333$0$0$0
Riann Egusquiza
Director of Research$151,896$0$0$0$0$0$0$0$8,593$0$160,489$0$0$0

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution2ContributionCnt
Noncash Contributions Rpt F990$1,297,680NoncashContributionsRptF990Amt
Method Of Determining RevenuesAvg Trading ValueMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, line 11bThe draft of the tax return is provided to the Organization's Board of Directors prior to filing. The comments received are addressed by management and the tax return preparer. Once the comments have been addressed, the tax return is signed by an officer of the Organization and filed.
Form 990, Part VI, Section B, line 12cAnnually, the Foundation requires officers, directors and key employees to affirm that no conflicts of interest exist. Potential conflicts are addressed on a case by case basis, consistent with the Foundation's written conflict of interest policy.
Form 990, Part VI, Section B, line 15The Foundation's independent Board of Directors determines the CEO's compensation. The CEO and COO determine the salaries of all other staff.
Form 990, Part VI, Section C, line 19The Organization makes its financial statements available on its website and its governing documents and conflict of interest policy available to the public upon request.

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