NEPHCURE KIDNEY INTERNATIONAL: Form 990, tax year 2012
View the entire original 990 at ProPublica ↗
- Organization
- NEPHCURE KIDNEY INTERNATIONAL (EIN 38-3569922)
- Tax period
- 2012-01-01 to 2012-12-31
- Filed
- 2013-11-13
- IRS object ID
- 201313179349303061
- Schema version
- 2012v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule L
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Timestamp | 2013-11-13T12:35:37-06:00 | Timestamp |
| Tax Period End Date | 2012-12-31 | TaxPeriodEndDate |
Preparer Firm PreparerFirm
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 232896692 | EIN |
Preparer Firm Business Name PreparerFirmBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | BBD LLP | BusinessNameLine1 |
Preparer Firm US Address PreparerFirmUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1835 MARKET STREET 26TH FLOOR | AddressLine1 |
| City | PHILADELPHIA | City |
| State | PA | State |
| ZIP Code | 19103 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnType |
| Tax Period Begin Date | 2012-01-01 | TaxPeriodBeginDate |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 383569922 | EIN |
Name Name
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NEPHCURE FOUNDATION | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Control | NEPH | NameControl |
| Phone | 6105400186 | Phone |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 15 WATERLOO AVENUE | AddressLine1 |
| City | BERWYN | City |
| State | PA | State |
| ZIP Code | 19312 | ZIPCode |
Officer Officer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | IRVING A SMOKLER | Name |
| Title | PRESIDENT | Title |
| Phone | 6105400186 | Phone |
| Date Signed | 2013-11-12 | DateSigned |
| Authorize Third Party | 1 | AuthorizeThirdParty |
Preparer Preparer
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name | MARIANNE MAK | Name |
| PTIN | P00297744 | PTIN |
| Phone | 2155677770 | Phone |
| Date Prepared | 2013-11-04 | DatePrepared |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax Year | 2012 | TaxYear |
| Build TS | 2016-02-24 21:20:13Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Principal Officer Person | IRVING A SMOKLER | NameOfPrincipalOfficerPerson |
Address Principal Officer US AddressPrincipalOfficerUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 15 WATERLOO AVENUE | AddressLine1 |
| City | BERWYN | City |
| State | PA | State |
| ZIP Code | 19312 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | 2836431 | GrossReceipts |
| Group Return For Affiliates | 0 | GroupReturnForAffiliates |
| Organization501c3 | X | Organization501c3 |
| Web Site | WWW.NEPHCURE.ORG | WebSite |
| Type Of Organization Corporation | X | TypeOfOrganizationCorporation |
| Year Formation | 2000 | YearFormation |
| State Legal Domicile | MI | StateLegalDomicile |
| Activity Or Mission Description | SEE PAGE 2, PART III STATEMENT OF PROGRAM SERVICE ACCOMPLISHMENTS, LINE 1. | ActivityOrMissionDescription |
| Nbr Voting Members Governing Body | 18 | NbrVotingMembersGoverningBody |
| Nbr Independent Voting Members | 18 | NbrIndependentVotingMembers |
| Total Nbr Employees | 0 | TotalNbrEmployees |
| Total Nbr Volunteers | 620 | TotalNbrVolunteers |
| Total Gross UBI | 0 | TotalGrossUBI |
| Net Unrelated Business Txbl Income | 0 | NetUnrelatedBusinessTxblIncome |
| Contributions Grants Prior Year | 2348653 | ContributionsGrantsPriorYear |
| Contributions Grants Current Year | 2184438 | ContributionsGrantsCurrentYear |
| Program Service Revenue Prior Year | 10113 | ProgramServiceRevenuePriorYear |
| Program Service Revenue CY | 273691 | ProgramServiceRevenueCY |
| Investment Income Prior Year | 4205 | InvestmentIncomePriorYear |
| Investment Income Current Year | 3314 | InvestmentIncomeCurrentYear |
| Other Revenue Prior Year | 0 | OtherRevenuePriorYear |
| Other Revenue Current Year | 0 | OtherRevenueCurrentYear |
| Total Revenue Prior Year | 2362971 | TotalRevenuePriorYear |
| Total Revenue Current Year | 2461443 | TotalRevenueCurrentYear |
| Grants And Similar Amnts Prior Year | 1658609 | GrantsAndSimilarAmntsPriorYear |
| Grants And Similar Amnts CY | 516000 | GrantsAndSimilarAmntsCY |
| Benefits Paid To Members Prior Year | 0 | BenefitsPaidToMembersPriorYear |
| Benefits Paid To Members CY | 0 | BenefitsPaidToMembersCY |
| Salaries Etc Prior Year | 0 | SalariesEtcPriorYear |
| Salaries Etc Current Year | 0 | SalariesEtcCurrentYear |
| Total Prof Fundrsng Exp Prior Year | 0 | TotalProfFundrsngExpPriorYear |
| Total Prof Fundrsng Exp CY | 0 | TotalProfFundrsngExpCY |
| Total Fundrsng Exp Current Year | 276714 | TotalFundrsngExpCurrentYear |
| Other Expense Prior Year | 1205665 | OtherExpensePriorYear |
| Other Expenses Current Year | 1576300 | OtherExpensesCurrentYear |
| Total Expenses Prior Year | 2864274 | TotalExpensesPriorYear |
| Total Expenses Current Year | 2092300 | TotalExpensesCurrentYear |
| Revenues Less Expenses Prior Year | -501303 | RevenuesLessExpensesPriorYear |
| Revenues Less Expenses CY | 369143 | RevenuesLessExpensesCY |
| Total Assets BOY | 1607780 | TotalAssetsBOY |
| Total Assets EOY | 1484616 | TotalAssetsEOY |
| Total Liabilities BOY | 2689726 | TotalLiabilitiesBOY |
| Total Liabilities EOY | 2197419 | TotalLiabilitiesEOY |
| Net Assets Or Fund Balances BOY | -1081946 | NetAssetsOrFundBalancesBOY |
| Net Assets Or Fund Balances EOY | -712803 | NetAssetsOrFundBalancesEOY |
| Mission Description | THE NEPHCURE FOUNDATION IS THE ONLY ORGANIZATION COMMITTED EXCLUSIVELY TO SUPPORT RESEARCH SEEKING THE CAUSE OF THE POTENTIALLY DEBILITATING KIDNEY DISEASE FOCAL SEGMENTAL GLOMERULOSCLEROSIS (FSGS) AND NEPHROTIC SYNDROME, IMPROVE TREATMENT AND FIND A CURE. | MissionDescription |
| Significant New Program Services | 0 | SignificantNewProgramServices |
| Significant Change | 0 | SignificantChange |
| Expense | 1449416 | Expense |
| Grants | 516000 | Grants |
| Description | RESEARCH - THE NEPHCURE FOUNDATION COMMITTED TO MULTI-YEAR GRANTS FOR BASIC, TRANSLATIONAL AND CLINICAL SCIENTIFIC RESEARCH. THE PURPOSE BEING TO DETERMINE CAUSES OF KIDNEY DISEASE, FSGS & NEPHROTIC SYNDROME THAT COULD LEAD TO EFFECTIVE TREATMENTS. (DONATED PROFESSIONAL SERVICES: $180,388) | Description |
Activity2 Activity2
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 226759 | Expense |
| Revenue | 37754 | Revenue |
| Description | HEALTH AND EDUCATION - THE NEPHCURE FOUNDATION FUNDS AND MANAGES PROGRAMS TO EDUCATE PATIENT/FAMILIES ABOUT NEPHROTIC SYNDROME & FSGS. THE NEPHCURE FOUNDATION ALSO PROVIDES EDUCATION MATERIALS (BI-LINGUAL) FOR PHYSICIANS AND DIRECTLY TO PATIENT FAMILIES. (DONATED PROFESSIONAL SERVICES: $2,235,281) | Description |
Activity3 Activity3
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | 56799 | Expense |
| Description | ADVOCACY - THE NEPHCURE FOUNDATION WORKS WITH THE NATIONAL INSTITUTES OF HEALTH AND OTHER HEALTH FUNDING ORGANIZATIONS TO ENCOURAGE MORERESEARCH INTO NEPHROTIC SYNDROME & FSGS. | Description |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expense | 1732974 | TotalProgramServiceExpense |
| Described In501 C3 | 1 | DescribedIn501C3 |
| Schedule B Required | 1 | ScheduleBRequired |
| Political Activities | 0 | PoliticalActivities |
| Lobbying Activities | 1 | LobbyingActivities |
| Subject To Proxy Tax | 0 | SubjectToProxyTax |
| Donor Advised Funds | 1 | DonorAdvisedFunds |
| Conservation Easements | 0 | ConservationEasements |
| Collections Of Art | 0 | CollectionsOfArt |
| Credit Counseling | 0 | CreditCounseling |
| Term Or Permanent Endowments | 0 | TermOrPermanentEndowments |
| Report Land Bldg Equip | 0 | ReportLandBldgEquip |
| Report Invest Oth Securities | 0 | ReportInvestOthSecurities |
| Report Prog Rel Invest | 0 | ReportProgRelInvest |
| Report Other Assets | 0 | ReportOtherAssets |
| Report Other Liabilities | 0 | ReportOtherLiabilities |
| Report Fin48 Footnote | 1 | ReportFin48Footnote |
| Independent Audit Financial Stmt | 1 | IndependentAuditFinancialStmt |
| Consolidated Audit Financial Stmt | 0 | ConsolidatedAuditFinancialStmt |
| School | 0 | School |
| Foreign Office | 0 | ForeignOffice |
| Foreign Activities | 1 | ForeignActivities |
| More Than5000 K To Organizations | 1 | MoreThan5000KToOrganizations |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividuals |
| Professional Fundraising | 0 | ProfessionalFundraising |
| Fundraising Activities | 1 | FundraisingActivities |
| Gaming | 1 | Gaming |
| Hospital | 0 | Hospital |
| Grants To Organizations | 1 | GrantsToOrganizations |
| Grants To Individuals | 0 | GrantsToIndividuals |
| Schedule J Required | 0 | ScheduleJRequired |
| Tax Exempt Bonds | 0 | TaxExemptBonds |
| Excess Benefit Transaction | 0 | ExcessBenefitTransaction |
| Prior Excess Benefit Transaction | 0 | PriorExcessBenefitTransaction |
| Loan To Officer Or DQP | 0 | LoanToOfficerOrDQP |
| Grant To Related Person | 0 | GrantToRelatedPerson |
| Bsnss Rltnshp With Organization | 1 | BsnssRltnshpWithOrganization |
| Bsnss Rltnshp Thru Family Member | 0 | BsnssRltnshpThruFamilyMember |
| Officer Entity With Bsnss Rltnshp | 0 | OfficerEntityWithBsnssRltnshp |
| Deductible Non Cash Contributions | 0 | DeductibleNonCashContributions |
| Deductible Contributions Of Art | 0 | DeductibleContributionsOfArt |
| Terminated | 0 | Terminated |
| Partial Liquidation | 0 | PartialLiquidation |
| Disregarded Entity | 0 | DisregardedEntity |
| Related Entity | 0 | RelatedEntity |
| Related Org Controlled Entity | 0 | RelatedOrgControlledEntity |
| Transfers To Exempt Non Chrtbl Org | 0 | TransfersToExemptNonChrtblOrg |
| Activities Conducted Partnership | 0 | ActivitiesConductedPartnership |
| Schedule O Required | 1 | ScheduleORequired |
| Number Forms Transmitted With1096 | 32 | NumberFormsTransmittedWith1096 |
| Number W2 G Included | 0 | NumberW2GIncluded |
| Number Of Employees | 0 | NumberOfEmployees |
| Unrelated Business Income | 0 | UnrelatedBusinessIncome |
| Foreign Financial Account | 0 | ForeignFinancialAccount |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTrans |
| Taxable Party Notification | 0 | TaxablePartyNotification |
| Non Deductible Contributions | 0 | NonDeductibleContributions |
| Quid Pro Quo Contributions | 1 | QuidProQuoContributions |
| Quid Pro Quo Disclosure | 1 | QuidProQuoDisclosure |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOf |
| Funds To Pay Premiums | 0 | FundsToPayPremiums |
| Premiums Paid | 0 | PremiumsPaid |
| Excess Business Holdings | 0 | ExcessBusinessHoldings |
| Taxable Distributions | 0 | TaxableDistributions |
| Distribution To Donor | 0 | DistributionToDonor |
| Indoor Tanning Services | 0 | IndoorTanningServices |
| Info In Schedule O Part VI | X | InfoInScheduleOPartVI |
| Nbr Voting Governing Body Members | 18 | NbrVotingGoverningBodyMembers |
| Number Independent Voting Members | 18 | NumberIndependentVotingMembers |
| Family Or Business Relationship | 1 | FamilyOrBusinessRelationship |
| Delegation Of Management Duties | 1 | DelegationOfManagementDuties |
| Changes To Organizing Docs | 0 | ChangesToOrganizingDocs |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuse |
| Members Or Stockholders | 0 | MembersOrStockholders |
| Election Of Board Members | 0 | ElectionOfBoardMembers |
| Decisions Subject To Approval | 0 | DecisionsSubjectToApproval |
| Minutes Of Governing Body | 1 | MinutesOfGoverningBody |
| Minutes Of Committees | 1 | MinutesOfCommittees |
| Officer Mailing Address | 0 | OfficerMailingAddress |
| Local Chapters | 0 | LocalChapters |
| Form990 Provided To Governing Body | 1 | Form990ProvidedToGoverningBody |
| Conflict Of Interest Policy | 1 | ConflictOfInterestPolicy |
| Annual Disclosure Covered Persons | 1 | AnnualDisclosureCoveredPersons |
| Regular Monitoring Enforcement | 1 | RegularMonitoringEnforcement |
| Whistleblower Policy | 1 | WhistleblowerPolicy |
| Document Retention Policy | 1 | DocumentRetentionPolicy |
| Compensation Process CEO | 0 | CompensationProcessCEO |
| Compensation Process Other | 0 | CompensationProcessOther |
| Investment In Joint Venture | 0 | InvestmentInJointVenture |
| States Where Copy Of Return Is Filed | AL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AK | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AZ | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | AR | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CO | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | CT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | FL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | GA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | KS | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | KY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | IL | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | LA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | ME | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MD | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MS | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | MO | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NJ | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NM | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NY | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | NC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OK | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OH | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | OR | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | PA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | RI | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | SC | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | TN | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | UT | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | VA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WV | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WA | StatesWhereCopyOfReturnIsFiled |
| States Where Copy Of Return Is Filed | WI | StatesWhereCopyOfReturnIsFiled |
| Upon Request | X | UponRequest |
The Books Are In Care Of TheBooksAreInCareOf
Name Business NameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | EXECUTIVE DIRECTOR | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Telephone Number | 6105400186 | TelephoneNumber |
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 15 WATERLOO AVENUE | AddressLine1 |
| City | BERWYN | City |
| State | PA | State |
| ZIP Code | 19312 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | X | NoListedPersonsCompensated |
Form990 Part VII Section A Form990PartVIISectionA (19 entries)
| TitleTitle | Average Hours Per WeekAverageHoursPerWeek | Individual Trustee Or DirectorIndividualTrusteeOrDirector | OfficerOfficer | Reportable Comp From OrganizationReportableCompFromOrganization | Reportable Comp From Related OrgsReportableCompFromRelatedOrgs | Other CompensationOtherCompensation |
|---|---|---|---|---|---|---|
| IRVING A SMOKLER PHD | ||||||
| PRESIDENT | 7.00 | X | X | 0 | 0 | 0 |
| RON COHEN | ||||||
| VICE PRESIDENT | 1.00 | X | X | 0 | 0 | 0 |
| CAROL SMOKLER PHD | ||||||
| TREASURER | 1.00 | X | X | 0 | 0 | 0 |
| MICHAEL LEVINE | ||||||
| SECRETARY | 15.00 | X | X | 0 | 0 | 0 |
| KATHLEEN BRODERICK | ||||||
| BOARD MEMBER | 5.00 | X | 0 | 0 | 0 | |
| CLAIRE CASCIO RN | ||||||
| BOARD MEMBER | 5.00 | X | 0 | 0 | 0 | |
| JIM DUQUETTE | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| SCOTT GOLDSTEIN | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| DAVID KERSHAW MD | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| ELAINE KAMIL MD | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| SARETTA MCDONOUGH ESQ | ||||||
| BOARD MEMBER | 2.00 | X | 0 | 0 | 0 | |
| JOHN ROY | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| ANDREW SILVERMAN | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| WILLIAM SMOYER MD | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| SONDRA STUBBLEFIELD | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| JENNIFER GEISSER SIEGEL | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| CHARLES TURNER | ||||||
| BOARD MEMBER | 4.00 | X | 0 | 0 | 0 | |
| MANU VARMA | ||||||
| BOARD MEMBER | 1.00 | X | 0 | 0 | 0 | |
| HENRY BREHM | ||||||
| EXECUTIVE DIRECTOR | 72.00 | X | 0 | 0 | 0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | 0 | TotalReportableCompFromOrg |
| Total Reportable Comp Frm Rltd Orgs | 0 | TotalReportableCompFrmRltdOrgs |
| Total Other Compensation | 0 | TotalOtherCompensation |
| Number Individuals GT100 K | 0 | NumberIndividualsGT100K |
| Formers Listed | 0 | FormersListed |
| Total Comp GT150 K | 0 | TotalCompGT150K |
| Compensation From Other Sources | 0 | CompensationFromOtherSources |
Contractor Compensation ContractorCompensation
Name Of Contractor NameOfContractor
Name Business NameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | VIZION GROUP | BusinessNameLine1 |
Address Of Contractor AddressOfContractor
Address US AddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 15 WATERLOO AVENUE | AddressLine1 |
| City | BERWYN | City |
| State | PA | State |
| ZIP Code | 19312 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Description Of Services | MGT & OTHER SERVICES | DescriptionOfServices |
| Compensation | 688203 | Compensation |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Number Of Contractors GT100 K | 1 | NumberOfContractorsGT100K |
| Fundraising Events | 1471550 | FundraisingEvents |
| All Other Contributions | 712888 | AllOtherContributions |
| Total Contributions | 2184438 | TotalContributions |
Program Service Revenue ProgramServiceRevenue (2 entries)
| DescriptionDescription | Business CodeBusinessCode | Total Revenue ColumnTotalRevenueColumn | Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome | ExclusionExclusionAmount |
|---|---|---|---|---|
| CONFERENCE REVENUE | 900099 | 235937 | 57937 | $178,000 |
| PATIENT EDUC SEMINARS | 900099 | 37754 | 37754 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | 273691 | TotalProgramServiceRevenue |
Investment Income InvestmentIncome
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 3314 | TotalRevenueColumn |
| Exclusion | $3,314 | ExclusionAmount |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Income Fundraising Events | 306366 | GrossIncomeFundraisingEvents |
| Cntrbtns Rprtd Fundraising Events | 1471550 | CntrbtnsRprtdFundraisingEvents |
| Fundraising Direct Expenses | 306366 | FundraisingDirectExpenses |
Net Income From Fundraising Events NetIncomeFromFundraisingEvents
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Income Gaming | 68622 | GrossIncomeGaming |
| Gaming Direct Expenses | 68622 | GamingDirectExpenses |
Net Income From Gaming NetIncomeFromGaming
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 0 | TotalRevenueColumn |
Total Revenue TotalRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | 2461443 | TotalRevenueColumn |
| Related Or Exempt Function Income | 95691 | RelatedOrExemptFunctionIncome |
| Unrelated Business Revenue | 0 | UnrelatedBusinessRevenue |
| Exclusion | $181,314 | ExclusionAmount |
Grants To Domestic Orgs GrantsToDomesticOrgs
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 453500 | Total |
| Program Services | 453500 | ProgramServices |
Foreign Grants ForeignGrants
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 62500 | Total |
| Program Services | 62500 | ProgramServices |
Fees For Services Management FeesForServicesManagement
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 536445 | Total |
| Program Services | 424690 | ProgramServices |
| Management And General | 31323 | ManagementAndGeneral |
| Fundraising | 80432 | Fundraising |
Fees For Services Lobbying FeesForServicesLobbying
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 27750 | Total |
| Program Services | 27750 | ProgramServices |
Fees For Services Other FeesForServicesOther
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 57873 | Total |
| Program Services | 55103 | ProgramServices |
| Management And General | 2770 | ManagementAndGeneral |
Advertising Advertising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 136458 | Total |
| Program Services | 134503 | ProgramServices |
| Fundraising | 1955 | Fundraising |
Office Expenses OfficeExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 58433 | Total |
| Program Services | 17258 | ProgramServices |
| Management And General | 39789 | ManagementAndGeneral |
| Fundraising | 1386 | Fundraising |
Information Technology InformationTechnology
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 15141 | Total |
| Program Services | 12870 | ProgramServices |
| Management And General | 757 | ManagementAndGeneral |
| Fundraising | 1514 | Fundraising |
Occupancy Occupancy
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 50544 | Total |
| Program Services | 41500 | ProgramServices |
| Management And General | 1507 | ManagementAndGeneral |
| Fundraising | 7537 | Fundraising |
Travel Travel
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 17526 | Total |
| Program Services | 14856 | ProgramServices |
| Management And General | 2670 | ManagementAndGeneral |
Conferences Meetings ConferencesMeetings
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 397374 | Total |
| Program Services | 397374 | ProgramServices |
Insurance Insurance
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 7549 | Total |
| Program Services | 6039 | ProgramServices |
| Management And General | 1510 | ManagementAndGeneral |
Other Expenses OtherExpenses (4 entries)
| DescriptionDescription | TotalTotal | FundraisingFundraising | Program ServicesProgramServices | Management And GeneralManagementAndGeneral |
|---|---|---|---|---|
| SPECIAL EVENTS | 177512 | 177512 | ||
| DISCOUNT ON GRANTS PAY. | 42393 | 42393 | ||
| PROFESSIONAL SERVICES | 22861 | 20575 | 2286 | |
| GRANT EXPENSES | 11623 | 11623 |
All Other Expenses AllOtherExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 16818 | Total |
| Program Services | 10440 | ProgramServices |
| Fundraising | 6378 | Fundraising |
Total Functional Expenses TotalFunctionalExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | 2092300 | Total |
| Program Services | 1732974 | ProgramServices |
| Management And General | 82612 | ManagementAndGeneral |
| Fundraising | 276714 | Fundraising |
Cash Non Interest Bearing CashNonInterestBearing
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 685044 | BOY |
| EOY | 374470 | EOY |
Savings And Temp Cash Investments SavingsAndTempCashInvestments
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 713721 | BOY |
| EOY | 874078 | EOY |
Pledges And Grants Receivable PledgesAndGrantsReceivable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 116835 | BOY |
| EOY | 198409 | EOY |
Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 92180 | BOY |
| EOY | 37659 | EOY |
Total Assets TotalAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1607780 | BOY |
| EOY | 1484616 | EOY |
Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 91915 | BOY |
| EOY | 70453 | EOY |
Grants Payable GrantsPayable
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2520686 | BOY |
| EOY | 2075325 | EOY |
Deferred Revenue DeferredRevenue
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 77125 | BOY |
| EOY | 51641 | EOY |
Total Liabilities TotalLiabilities
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 2689726 | BOY |
| EOY | 2197419 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Follow SFAS117 | X | FollowSFAS117 |
Unrestricted Net Assets UnrestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | -1140156 | BOY |
| EOY | -771013 | EOY |
Temporarily Restricted Net Assets TemporarilyRestrictedNetAssets
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 58210 | BOY |
| EOY | 58210 | EOY |
Total Net Assets Fund Balances TotalNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | -1081946 | BOY |
| EOY | -712803 | EOY |
Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | 1607780 | BOY |
| EOY | 1484616 | EOY |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expenses | 369143 | ReconcilationRevenueExpenses |
| Reconcilation Other Changes | 0 | ReconcilationOtherChanges |
| Method Of Accounting Accrual | X | MethodOfAccountingAccrual |
| Accountant Compile Or Review | 0 | AccountantCompileOrReview |
| FS Audited | 1 | FSAudited |
FS Audited Basis FSAuditedBasis
| Field | Value | IRS element (for citing) |
|---|---|---|
| Financial Statement Separate | X | FinancialStatementSeparate |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | 1 | AuditCommittee |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequired |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org170b1 Avi | X | PubliclySupportedOrg170b1Avi |
Gifts Grants Contrib Received170 GiftsGrantsContribReceived170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 1632256 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 2021853 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 2069743 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 2358766 | CurrentTaxYearMinus1Year |
| Current Tax Year | 2362438 | CurrentTaxYear |
| Total | 10445056 | Total |
Total170 Total170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 1632256 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 2021853 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 2069743 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 2358766 | CurrentTaxYearMinus1Year |
| Current Tax Year | 2362438 | CurrentTaxYear |
| Total | 10445056 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amounts Subst Contributors Total | 73993 | AmountsSubstContributorsTotal |
| Public Support Total170 | 10371063 | PublicSupportTotal170 |
Gross Investment Income170 GrossInvestmentIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 30928 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 19274 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 6097 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 4205 | CurrentTaxYearMinus1Year |
| Current Tax Year | 3314 | CurrentTaxYear |
| Total | 63818 | Total |
Other Income170 OtherIncome170
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | 249316 | CurrentTaxYearMinus4Years |
| Current Tax Year Minus3 Years | 132417 | CurrentTaxYearMinus3Years |
| Current Tax Year Minus2 Years | 181334 | CurrentTaxYearMinus2Years |
| Current Tax Year Minus1 Year | 270091 | CurrentTaxYearMinus1Year |
| Current Tax Year | 374988 | CurrentTaxYear |
| Total | 1208146 | Total |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | 11717020 | TotalSupport |
| Gross Receipts From Admissions Etc | 95691 | GrossReceiptsFromAdmissionsEtc |
| Public Support Pertcentage170 | 0.88510 | PublicSupportPertcentage170 |
| Public Support Pertcent Prior Year | 0.90270 | PublicSupportPertcentPriorYear |
| Thirty Three Percnt Tests CY170 | X | ThirtyThreePercntTestsCY170 |
Schedule B IRS990ScheduleB
Contributor Info ContributorInfo
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor Number | RESTRICTED | ContributorNumber |
Contributor Name Business ContributorNameBusiness
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor Address US ContributorAddressUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Aggregate Contributions | RESTRICTED | AggregateContributions |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | 1 | Volunteers |
| Paid Staff Or Management | 0 | PaidStaffOrManagement |
| Media Advertisements | 0 | MediaAdvertisements |
| Mailings Members | 0 | MailingsMembers |
| Publications Or Broadcast | 0 | PublicationsOrBroadcast |
| Grants Other Organizations | 0 | GrantsOtherOrganizations |
| Direct Contact Legislators | 1 | DirectContactLegislators |
| Direct Contact Legislators | $27,750 | DirectContactLegislatorsAmount |
| Rallies Demonstrations | 0 | RalliesDemonstrations |
| Other Activities | 0 | OtherActivities |
| Total Lobbying Expenditures IIB | 27750 | TotalLobbyingExpendituresIIB |
| Not Described In501c3 | 0 | NotDescribedIn501c3 |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Number DA Fs Held | 6 | NumberDAFsHeld |
| Donor Advised Contributions | 39068 | DonorAdvisedContributions |
| Aggregate DAF Value | 149097 | AggregateDAFValue |
| Disclosed Orgs Legal Control | 1 | DisclosedOrgsLegalControl |
| Disclosed For Charitable Purposes | 1 | DisclosedForCharitablePurposes |
| Total Of Book Value Land Buildings | 0 | TotalOfBookValueLandBuildings |
| Footnote In Part XIII | X | FootnoteInPartXIII |
| Tot Revenue Etc Audited Fincl Stmt | 5252100 | TotRevenueEtcAuditedFinclStmt |
| Donated Srvc And Use Of Facilities | 2415669 | DonatedSrvcAndUseOfFacilities |
| Other Revenues | 374988 | OtherRevenues |
| Revenue Not Rptd F990 | 2790657 | RevenueNotRptdF990 |
| Revenue Subtotal | 2461443 | RevenueSubtotal |
| Revenue Not Rptd On Fin Stmt | 0 | RevenueNotRptdOnFinStmt |
| Total Revenue Per Form990 | 2461443 | TotalRevenuePerForm990 |
| Tot Expenses Etc Audited Fincl Stmt | 4882957 | TotExpensesEtcAuditedFinclStmt |
| Donated Services Use Of Facilities | 2415669 | DonatedServicesUseOfFacilities |
| Other Expenses Included | 374988 | OtherExpensesIncluded |
| Expenses Not Rptd F990 | 2790657 | ExpensesNotRptdF990 |
| Expenses Subtotal | 2092300 | ExpensesSubtotal |
| Expenses Not Rptd On Fin Stmt | 0 | ExpensesNotRptdOnFinStmt |
| Total Expenses Per Form990 | 2092300 | TotalExpensesPerForm990 |
Form990 Schedule D Part XIII Form990ScheduleDPartXIII (3 entries)
| IdentifierIdentifier | Return ReferenceReturnReference | ExplanationExplanation |
|---|---|---|
| DESCRIPTION OF UNCERTAIN TAX POSITIONS UNDER FIN 48: | PART X, LINE 2: | UNCERTAIN TAX POSITIONS UNDER ASC 740 GAAP REQUIRES ENTITIES TO EVALUATE, MEASURE, RECOGNIZE AND DISCLOSE ANY UNCERTAIN INCOME TAX POSITIONS TAKEN ON THEIR TAX RETURNS. GAAP PRESCRIBES A MINIMUM RECOGNITION THRESHOLD THAT A TAX POSITION IS REQUIRED TO MEET IN ORDER TO BE RECOGNIZED IN THE FINANCIAL STATEMENTS. THE FOUNDTAION BELIEVES THAT IT HAD NO UNCERTAIN TAX POSITIONS AS DEFINED IN GAAP AND THE STANDARD HAD NO IMPACT ON THE FOUNDATION'S FIANCIAL STATEMENTS. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | SPECIAL EVENTS-DIRECT BENEFITS TO DONORS 374,988. | |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | SPECIAL EVENTS-DIRECT BENEFITS TO DONORS 374,988. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintained |
Accts Actvs Out US Table AcctsActvsOutUSTable (2 entries)
| RegionRegion | Number Of OfficesNumberOfOffices | Number Of EmployeesNumberOfEmployees | Type Of Activities ConductedTypeOfActivitiesConducted | Specific Services ProvidedSpecificServicesProvided | Total ExpendituresTotalExpenditures |
|---|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | RESEARCH | 37500 |
| NORTH AMERICA | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN REGION | RESEARCH | 25000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Number Of Offices | 0 | SubtotalNumberOfOffices |
| Subtotal Number Of Employees | 0 | SubtotalNumberOfEmployees |
| Cont Number Of Offices | 0 | ContNumberOfOffices |
| Cont Number Of Employees | 0 | ContNumberOfEmployees |
| Total Number Of Offices | 0 | TotalNumberOfOffices |
| Total Number Of Employees | 0 | TotalNumberOfEmployees |
| Subtotal Amount Spent | 62500 | SubtotalAmountSpent |
| Cont Amount Spent | 0 | ContAmountSpent |
| Total Amount Spent | 62500 | TotalAmountSpent |
Grants To Orgs Outside US GrantsToOrgsOutsideUS (2 entries)
| RegionRegion | Purpose Of GrantPurposeOfGrant | Amount Of Cash GrantAmountOfCashGrant | Manner Of Cash DisbursementMannerOfCashDisbursement |
|---|---|---|---|
| UNITED KINGDOM | FOR RESEARCH | 37500 | CHECK |
| CANADA | FOR RESEARCH | 25000 | CHECK |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Number Of501c3 Orgs | 2 | TotalNumberOf501c3Orgs |
| Transfer To Foreign Corp | 0 | TransferToForeignCorp |
| Interest In Foreign Trust | 0 | InterestInForeignTrust |
| Own Foreign Corp | 0 | OwnForeignCorp |
| Passive Foreign Invest Co | 0 | PassiveForeignInvestCo |
| Foreign Partnership | 0 | ForeignPartnership |
| Boycott Countries | 0 | BoycottCountries |
Form990 Schedule F Part V Form990ScheduleFPartV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURE FOR MONITORING GRANTS OUTSIDE THE U.S.: | Identifier |
| Explanation | SCHEDULE F, PART I, LINE 2: GRANTS MONITORING PROCEDURES THE FOUNDATION GRANT AWARDS STIPULATE THAT DISBURSEMENT OF FUND IS TIED TO THE RECEIPT OF WRITTEN PROGRESS REPORTS EVERY SIX MONTHS. THE PRINCIPAL INVESTIGATOR MUST NOTE IN THOSE REPORTS IF THERE ARE ANY BUDGET CHANGES THAT DEVIATE FROM THE APPROVED PROJECT BUDGET ABOVE A DEFINED POINT (USUALLY $5,000). ON AN ANNUAL BASIS, THE PRINCIPAL INVESTIGATOR AND HIS/HER INSTITUTION MUST PROVIDE A DETAILED BUDGET REPORT LISTING ACTUAL EXPENDITURES BY BUDGET CATEGORY (E.G. SALARY AND FRINGE, EQUIPMENT, SUPPLIES, TRAVEL). | Explanation |
Schedule G IRS990ScheduleG
Events Information EventsInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | NEPHCURE WALKS | NameOfEvent1 |
| Gross Receipts Event1 | 717987 | GrossReceiptsEvent1 |
| Charitable Contributions Event1 | 677540 | CharitableContributionsEvent1 |
| Gross Revenue Event1 | 40447 | GrossRevenueEvent1 |
| Rent Facility Costs Event1 | 2400 | RentFacilityCostsEvent1 |
| Other Direct Expenses Event1 | 38047 | OtherDirectExpensesEvent1 |
| Name Of Event2 | COUNTDOWN TO A CURE | NameOfEvent2 |
| Gross Receipts Event2 | 679591 | GrossReceiptsEvent2 |
| Charitable Contributions Event2 | 489969 | CharitableContributionsEvent2 |
| Gross Revenue Event2 | 189622 | GrossRevenueEvent2 |
| Cash Prizes Event2 | 200 | CashPrizesEvent2 |
| Food And Beverage Event2 | 129331 | FoodAndBeverageEvent2 |
| Other Direct Expenses Event2 | 60091 | OtherDirectExpensesEvent2 |
| Total Number Of Other Events | 3 | TotalNumberOfOtherEvents |
| Gross Receipts Other Events | 380338 | GrossReceiptsOtherEvents |
| Charitable Contrib Other Events | 304041 | CharitableContribOtherEvents |
| Gross Revenue Other Events | 76297 | GrossRevenueOtherEvents |
| Rent Facility Costs Other Events | 1306 | RentFacilityCostsOtherEvents |
| Food And Beverage Other Events | 42000 | FoodAndBeverageOtherEvents |
| Other Direct Expenses Other Events | 32991 | OtherDirectExpensesOtherEvents |
| Gross Receipts Total | 1777916 | GrossReceiptsTotal |
| Charitable Contributions Total | 1471550 | CharitableContributionsTotal |
| Gross Revenue Total Events | 306366 | GrossRevenueTotalEvents |
| Cash Prizes Total Events | 200 | CashPrizesTotalEvents |
| Rent Facility Costs Total Events | 3706 | RentFacilityCostsTotalEvents |
| Food And Beverage Total Events | 171331 | FoodAndBeverageTotalEvents |
| Other Direct Expenses Total Events | 131129 | OtherDirectExpensesTotalEvents |
| Direct Expense Summary Events | 306366 | DirectExpenseSummaryEvents |
| Net Income Summary | 0 | NetIncomeSummary |
Gaming Information GamingInformation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Revenue Other Gaming | 68622 | GrossRevenueOtherGaming |
| Cash Prizes Other Gaming | 293 | CashPrizesOtherGaming |
| Rent Facility Costs Other Gaming | 21899 | RentFacilityCostsOtherGaming |
| Other Direct Expenses Other Gaming | 46430 | OtherDirectExpensesOtherGaming |
| Volunteer Labor Other Gaming | 1 | VolunteerLaborOtherGaming |
| Volunteer Labor Prcnt Other Gaming | 0.98000 | VolunteerLaborPrcntOtherGaming |
| Gross Revenue Total Gaming | 68622 | GrossRevenueTotalGaming |
| Cash Prizes Total Gaming | 293 | CashPrizesTotalGaming |
| Rent Facility Costs Total Gaming | 21899 | RentFacilityCostsTotalGaming |
| Other Direct Expenses Total Gaming | 46430 | OtherDirectExpensesTotalGaming |
| Direct Expense Summary Gaming | 68622 | DirectExpenseSummaryGaming |
| Field | Value | IRS element (for citing) |
|---|---|---|
| States Where Gaming Conducted | NY | StatesWhereGamingConducted |
| Licensed | 0 | Licensed |
| Explanation If No | THE STATE OF NEW YORK DOES NOT PROVIDE LICENSES FOR CHARITY CASINO EVENTS. | ExplanationIfNo |
| License Suspended Etc | 0 | LicenseSuspendedEtc |
| Gaming With Nonmembers | 1 | GamingWithNonmembers |
| Member Of Other Entity | 0 | MemberOfOtherEntity |
| Percentage Of Gaming Othr Facility | 1.00000 | PercentageOfGamingOthrFacility |
| Name Of Gaming Rec Keeper Person | EXECUTIVE DIRECTOR OF THE ORGANIZAT | NameOfGamingRecKeeperPerson |
Address Of Gaming Rec Keeper US AddressOfGamingRecKeeperUS
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 15 WATERLOO AVENUE | AddressLine1 |
| City | BERWYN | City |
| State | PA | State |
| ZIP Code | 19312 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contract With3rd Party For Gam Rev | 0 | ContractWith3rdPartyForGamRev |
| Charitable Distrib Required | 0 | CharitableDistribRequired |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Records Maintained | 1 | RecordsMaintained |
Recipient Table RecipientTable (9 entries)
| Address Line1AddressUS/AddressLine1 | CityAddressUS/City | StateAddressUS/State | ZIP CodeAddressUS/ZIPCode | EIN Of RecipientEINOfRecipient | IRC SectionIRCSection | Amount Of Cash GrantAmountOfCashGrant | Purpose Of GrantPurposeOfGrant |
|---|---|---|---|---|---|---|---|
| CHILDREN'S HOSPITAL OF BOSTON | |||||||
| 300 LONGWOOD AVENUE | BOSTON | MA | 02115 | 104277444 | 501(C)(3) | 50000 | YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT |
| CHILDERN'S HOSPITAL OF PHILADELPHIA | |||||||
| 3401 CIVIC CENTER BLVD | PHILADELPHIA | PA | 19104 | 231352166 | 501(C)(3) | 50000 | NEPHCURE FOUNDATION-ASN RESEARCH GRANT |
| MASSACHUSETTS GENERAL HOSPITAL | |||||||
| 55 FRUIT ST | BOSTON | MA | 02114 | 041564655 | 501(C)(3) | 37500 | YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT |
| SUNY UPSTATE MEDICAL UNIVERSITY | |||||||
| 750 E ADAMS STREET | SYRACUSE | NY | 13210 | 141368631 | 501(C)(3) | 50000 | YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT |
| UNIVERSITY OF MIAMI SCHOOL OF MEDICINE | |||||||
| BATCHELOR BUILDING | MIAMI | FL | 33136 | 590624458 | 501(C)(3) | 100000 | YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT |
| UNIVERSITY OF PENNSLYVANIA | |||||||
| 3451 WALNUT STREET | PHILADELPHIA | PA | 19104 | 231352685 | 501(C)(3) | 25000 | POST-DOCTOTRAL FELLOWSHIP GRANT |
| CHILDRENS HOSPITAL OF PITTSBURG - UPMC | |||||||
| 1405 SHADY AVENUE | PITTSBURGH | PA | 15217 | 232935278 | 501(C)(3) | 50000 | ESTABLISHED INVESTIGATOR NEW DIRECTION GRANTS |
| UNIVERSITY OF WASHINGTON | |||||||
| UW BOX 353010 | SEATTLE | WA | 98195 | 911486484 | 501(C)(3) | 16000 | YOUNG INVESTIGATOR CAREER DEVELOPMENT GRANT |
| RESEARCH INSTITUTE AT NATIONWIDE | |||||||
| 700 CHILDRENS DR | COLUMBUS | OH | 43205 | 311036372 | 501(C)(3) | 75000 | NCF RESEARCH GRANT |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Nbr Of501 C3 And Govt Grants | 9 | TotalNbrOf501C3AndGovtGrants |
Form990 Schedule I Part IV Form990ScheduleIPartIV
| Field | Value | IRS element (for citing) |
|---|---|---|
| Identifier | PROCEDURE FOR MONITORING GRANTS IN THE U.S.: | Identifier |
| Return Reference | PART I, LINE 2: | ReturnReference |
| Explanation | SCHEDULE I, PART I, LINE 2: THE ORGANIZATION MONITORS THE USE OF GRANT FUNDS THROUGH ITS GRANT APPLICATION PROCESS, WHICH REQUESTS A NUMBER OF DEPARTMENT AUTHORIZATIONS THAT ENSURE SUPPORT FOR EACH GRANT RECIPIENT. THE ORGANIZATION ALSO REQUIRES AN INTERIM REPORT FROM EACH GRANT RECIPIENT. UPON APPROVAL OF THE RECIPIENT'S INTERIM REPORT THE REMAINDER OF FUNDING IS DISBURSED. A FINAL REPORT IS ALSO REQUESTED OF THE GRANT RECIPIENT ONCE THE GRANT PERIOD HAS ENDED. | Explanation |
Schedule L IRS990ScheduleL
Form990 Schedule L Part IV Form990ScheduleLPartIV (2 entries)
| RelationshipRelationship | Amount Of TransactionAmountOfTransaction | Description Of TransactionDescriptionOfTransaction | Sharing Of RevenuesSharingOfRevenues |
|---|---|---|---|
| VIZION GROUP | |||
| ENTITY >35% OWNED BY THE EXECUTIVE DIRECTOR | 649694 | INDEPENDENT CONTRACTOR ARRANGEMENT | 0 |
| VIZION GROUP | |||
| ENTITY >35% OWNED BY THE EXECUTIVE DIRECTOR | 9084 | OCCUPANCY COSTS | 0 |
Schedule O IRS990ScheduleO
General Explanation GeneralExplanation (5 entries)
| Return ReferenceReturnReference | ExplanationExplanation |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 2 | FAMILY RELATIONSHIP AMONG VOTING MEMBERS IRVING A. SMOKLER, PHD AND CAROL SMOKLER, PHD ARE HUSBAND AND WIFE AND SERVE AS OFFICERS OF THE BOARD OF DIRECTORS. |
| FORM 990, PART VI, SECTION A, LINE 3 | DELEGATION OF MANAGEMENT DUTIES TO A MANAGEMENT COMPANY FOR EFFICIENCY PURPOSES THE ORGANIZATION CONTRACTS WITH AN INDEPENDENT CHARITY MANAGEMENT SERVICE COMPANY, INCLUDING THE POSITION OF EXECUTIVE DIRECTOR (NON-VOTING MEMBER OF THE BOARD) AND OTHER MANAGEMENT PERSONNEL OF THE ORGANIZATION. THE ORGANIZATION COVERS THE COST OF THE PERSONNEL WITHOUT MARK-UP AND MAY REDUCE THE FEE BY TERMINATING FUNCTIONS. THE ORGANIZATION INCURRED MANAGEMENT FEES AND OTHER PROFESSIONAL SERVICES FOR A TOTAL OF $649,694 FOR THE TAX YEAR ENDING 2012 (INCLUDING $135,000 SALARY TO THE EXECUTIVE DIRECTOR). |
| FORM 990, PART VI, SECTION B, LINE 11 | GOVERNING BODY REVIEW OF FORM 990 PRIOR TO ITS FILING, A FINAL COPY OF THE FORM 990 IS DISTRIBUTED TO EACH VOTING MEMBER OF THE GOVERNING BOARD. |
| FORM 990, PART VI, SECTION B, LINE 12C | MONITORING AND ENFORCEMENT OF CONFLICTS POLICY THE BOARD REVIEWS COMPLETED QUESTIONNAIRES AND DISCLOSES INFORMATION DURING THE ANNUAL BOARD MEETING FOR BOARD APPROVAL. |
| FORM 990, PART VI, SECTION C, LINE 19 | PUBLIC AVAILABILITY OF OTHER DOCUMENTS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENT, AND FORM 990 ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. |
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