SJOGRENS FOUNDATION INC: Form 990, tax year 2012

View the entire original 990 at ProPublica ↗

Organization: SJOGRENS FOUNDATION INC (EIN 11-2779073)
Tax period: 2012-07-01 to 2013-06-30
Filed: 2013-11-15
IRS object ID: 201303199349303170
Schema version: 2012v2.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule D
Schedule G
Schedule I
Schedule J
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Timestamp	2013-11-15T10:01:13-06:00	Timestamp
Tax Period End Date	2013-06-30	TaxPeriodEndDate

Preparer Firm PreparerFirm

Field	Value	IRS element (for citing)
EIN	541498950	EIN

Preparer Firm Business Name PreparerFirmBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RENNER AND COMPANY CPA PC	BusinessNameLine1

Preparer Firm US Address PreparerFirmUSAddress

Field	Value	IRS element (for citing)
Address Line1	700 NORTH FAIRFAX ST SUITE 400	AddressLine1
City	ALEXANDRIA	City
State	VA	State
ZIP Code	22314	ZIPCode

Field	Value	IRS element (for citing)
Return Type	990	ReturnType
Tax Period Begin Date	2012-07-01	TaxPeriodBeginDate

Filer Filer

Field	Value	IRS element (for citing)
EIN	112779073	EIN

Name Name

Field	Value	IRS element (for citing)
Business Name Line1	SJOGREN'S SYNDROME FOUNDATION INC	BusinessNameLine1

Field	Value	IRS element (for citing)
Name Control	SJOG	NameControl
Phone	3015304420	Phone

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6707 DEMOCRACY BLVD NO 325	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20817	ZIPCode

Officer Officer

Field	Value	IRS element (for citing)
Name	STEVEN TAYLOR	Name
Title	CHIEF EXECUTIVE OFFICER	Title
Phone	3015304420	Phone
Date Signed	2013-11-14	DateSigned
Authorize Third Party	1	AuthorizeThirdParty

Preparer Preparer

Field	Value	IRS element (for citing)
Name	JOAN MRENNER	Name
PTIN	P00456765	PTIN
Phone	7035351200	Phone

Field	Value	IRS element (for citing)
Tax Year	2012	TaxYear
Build TS	2015-11-30 17:44:51Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Name Of Principal Officer Person	STEVEN TAYLOR	NameOfPrincipalOfficerPerson

Address Principal Officer US AddressPrincipalOfficerUS

Field	Value	IRS element (for citing)
Address Line1	6707 DEMOCRACY BLVD NO 325	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20817	ZIPCode

Field	Value	IRS element (for citing)
Gross Receipts	1815304	GrossReceipts
Group Return For Affiliates	0	GroupReturnForAffiliates
Organization501c3	X	Organization501c3
Web Site	WWW.SJOGRENS.ORG	WebSite
Type Of Organization Corporation	X	TypeOfOrganizationCorporation
Year Formation	1983	YearFormation
State Legal Domicile	NY	StateLegalDomicile
Activity Or Mission Description	THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE.	ActivityOrMissionDescription
Nbr Voting Members Governing Body	17	NbrVotingMembersGoverningBody
Nbr Independent Voting Members	17	NbrIndependentVotingMembers
Total Nbr Employees	9	TotalNbrEmployees
Total Nbr Volunteers	0	TotalNbrVolunteers
Total Gross UBI	98328	TotalGrossUBI
Net Unrelated Business Txbl Income	0	NetUnrelatedBusinessTxblIncome
Contributions Grants Prior Year	1127854	ContributionsGrantsPriorYear
Contributions Grants Current Year	1096264	ContributionsGrantsCurrentYear
Program Service Revenue Prior Year	564685	ProgramServiceRevenuePriorYear
Program Service Revenue CY	485677	ProgramServiceRevenueCY
Investment Income Prior Year	9547	InvestmentIncomePriorYear
Investment Income Current Year	4721	InvestmentIncomeCurrentYear
Other Revenue Prior Year	55944	OtherRevenuePriorYear
Other Revenue Current Year	40747	OtherRevenueCurrentYear
Total Revenue Prior Year	1758030	TotalRevenuePriorYear
Total Revenue Current Year	1627409	TotalRevenueCurrentYear
Grants And Similar Amnts Prior Year	211250	GrantsAndSimilarAmntsPriorYear
Grants And Similar Amnts CY	151250	GrantsAndSimilarAmntsCY
Benefits Paid To Members Prior Year	0	BenefitsPaidToMembersPriorYear
Benefits Paid To Members CY	0	BenefitsPaidToMembersCY
Salaries Etc Prior Year	799081	SalariesEtcPriorYear
Salaries Etc Current Year	866056	SalariesEtcCurrentYear
Total Prof Fundrsng Exp Prior Year	0	TotalProfFundrsngExpPriorYear
Total Prof Fundrsng Exp CY	0	TotalProfFundrsngExpCY
Total Fundrsng Exp Current Year	239579	TotalFundrsngExpCurrentYear
Other Expense Prior Year	833166	OtherExpensePriorYear
Other Expenses Current Year	813032	OtherExpensesCurrentYear
Total Expenses Prior Year	1843497	TotalExpensesPriorYear
Total Expenses Current Year	1830338	TotalExpensesCurrentYear
Revenues Less Expenses Prior Year	-85467	RevenuesLessExpensesPriorYear
Revenues Less Expenses CY	-202929	RevenuesLessExpensesCY
Total Assets BOY	642235	TotalAssetsBOY
Total Assets EOY	493898	TotalAssetsEOY
Total Liabilities BOY	503490	TotalLiabilitiesBOY
Total Liabilities EOY	528624	TotalLiabilitiesEOY
Net Assets Or Fund Balances BOY	138745	NetAssetsOrFundBalancesBOY
Net Assets Or Fund Balances EOY	-34726	NetAssetsOrFundBalancesEOY
Info In Schedule O Part III	X	InfoInScheduleOPartIII
Mission Description	THE FOUNDATION'S MISSION IS TO EDUCATE PATIENTS AND THEIR FAMILIES ABOUT SJOGREN'S SYNDROME, TO INCREASE PUBLIC AND PROFESSIONAL AWARENESS OF SJOGREN'S SYNDROME AND TO ENCOURAGE RESEARCH INTO NEW TREATMENTS AND A CURE.	MissionDescription
Significant New Program Services	0	SignificantNewProgramServices
Significant Change	0	SignificantChange
Expense	304612	Expense
Grants	151250	Grants
Description	RESEARCH GRANTS TO PROMOTE CONTINUED MEDICAL AND SCIENTIFIC RESEARCH IN THE AREA OF SJOGREN'S SYNDROME. SIX GRANTS WERE AWARDED TO UNIVERSITY AFFILIATED RESEARCHERS DURING FYE 2013. TWO STUDENT FELLOWSHIPS WERE ALSO AWARDED FOR INTERNSHIPS IN A SJOGREN'S RESEARCH LABORATORY.	Description

Activity2 Activity2

Field	Value	IRS element (for citing)
Expense	265368	Expense
Description	NEWSLETTER - THE SSF PRODUCES TWO NEWSLETTERS. "THE MOISTURE SEEKERS" IS A PATIENT FOCUSED NEWSLETTER WITH INFORMATION ABOUT SJOGREN'S AND ITS MANY MANISFESTATIONS. TMS IS PRODUCED MONTHLY. THE "SJOGREN'S QUARTERLY" IS A PROFESSIONAL PUBLICATION PRODUCED 4 TIMES A YEAR AND OFFERED FREE TO ALL HEALTHCARE PROFESSIONALS TO INCREASE AWARENESS AND EDUCATION AROUND SJOGREN'S.	Description

Activity3 Activity3

Field	Value	IRS element (for citing)
Expense	190895	Expense
Revenue	50408	Revenue
Description	ONE NATIONAL PATIENT CONFERNCE WAS HELD THIS PAST YEAR. THIS CONFERENCE WAS HELD FOR PATIENTS AND THEIR FAMILIES TO LEARN FROM HEALTHCARE PROFESSIONALS ABOUT TREATMENT AND MANAGEMENT OF SJOGRENS SYNDROME. OVER 400 INDIVIDUALS ATTENDED THESE CONFERENCES.	Description

Activity Other ActivityOther (2 entries)

ExpenseExpense	DescriptionDescription	RevenueRevenue
322471	AWARENESS ACTIVITIES HELP TO PROMOTE SJOGREN'S SYNDROME AND EDUCATE POTENTIAL PATIENTS THROUGH MEDIA AND PUBLIC RELATIONS. THESE PROGRAMS INCLUDE SPEAKING AT PROFESSIONAL CONFERENCES AS WELL AS DISTRIBUTING EDUCATIONAL MATERIALS TO THE PUBLIC AND TO PROFESSIONALS.
411166	OTHER MEMBER SERVICES	283610

Field	Value	IRS element (for citing)
Total Of Other Program Service Exp	733637	TotalOfOtherProgramServiceExp
Total Of Other Program Service Rev	283610	TotalOfOtherProgramServiceRev
Total Program Service Expense	1494512	TotalProgramServiceExpense
Described In501 C3	1	DescribedIn501C3
Schedule B Required	1	ScheduleBRequired
Political Activities	0	PoliticalActivities
Lobbying Activities	0	LobbyingActivities
Subject To Proxy Tax	0	SubjectToProxyTax
Donor Advised Funds	0	DonorAdvisedFunds
Conservation Easements	0	ConservationEasements
Collections Of Art	0	CollectionsOfArt
Credit Counseling	0	CreditCounseling
Term Or Permanent Endowments	0	TermOrPermanentEndowments
Report Land Bldg Equip	1	ReportLandBldgEquip
Report Invest Oth Securities	0	ReportInvestOthSecurities
Report Prog Rel Invest	0	ReportProgRelInvest
Report Other Assets	0	ReportOtherAssets
Report Other Liabilities	1	ReportOtherLiabilities
Report Fin48 Footnote	0	ReportFin48Footnote
Independent Audit Financial Stmt	1	IndependentAuditFinancialStmt
Consolidated Audit Financial Stmt	0	ConsolidatedAuditFinancialStmt
School	0	School
Foreign Office	0	ForeignOffice
Foreign Activities	0	ForeignActivities
More Than5000 K To Organizations	0	MoreThan5000KToOrganizations
More Than5000 K To Individuals	0	MoreThan5000KToIndividuals
Professional Fundraising	0	ProfessionalFundraising
Fundraising Activities	1	FundraisingActivities
Gaming	0	Gaming
Hospital	0	Hospital
Grants To Organizations	1	GrantsToOrganizations
Grants To Individuals	0	GrantsToIndividuals
Schedule J Required	1	ScheduleJRequired
Tax Exempt Bonds	0	TaxExemptBonds
Excess Benefit Transaction	0	ExcessBenefitTransaction
Prior Excess Benefit Transaction	0	PriorExcessBenefitTransaction
Loan To Officer Or DQP	0	LoanToOfficerOrDQP
Grant To Related Person	0	GrantToRelatedPerson
Bsnss Rltnshp With Organization	0	BsnssRltnshpWithOrganization
Bsnss Rltnshp Thru Family Member	0	BsnssRltnshpThruFamilyMember
Officer Entity With Bsnss Rltnshp	0	OfficerEntityWithBsnssRltnshp
Deductible Non Cash Contributions	0	DeductibleNonCashContributions
Deductible Contributions Of Art	0	DeductibleContributionsOfArt
Terminated	0	Terminated
Partial Liquidation	0	PartialLiquidation
Disregarded Entity	0	DisregardedEntity
Related Entity	0	RelatedEntity
Related Org Controlled Entity	0	RelatedOrgControlledEntity
Transfers To Exempt Non Chrtbl Org	0	TransfersToExemptNonChrtblOrg
Activities Conducted Partnership	0	ActivitiesConductedPartnership
Schedule O Required	1	ScheduleORequired
Number Forms Transmitted With1096	1	NumberFormsTransmittedWith1096
Number W2 G Included	0	NumberW2GIncluded
Compliance With Backup Witholding	1	ComplianceWithBackupWitholding
Number Of Employees	9	NumberOfEmployees
Employment Tax Returns Filed	1	EmploymentTaxReturnsFiled
Unrelated Business Income	1	UnrelatedBusinessIncome
Form990-T Filed	1	Form990-TFiled
Foreign Financial Account	0	ForeignFinancialAccount
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTrans
Taxable Party Notification	0	TaxablePartyNotification
Non Deductible Contributions	0	NonDeductibleContributions
Quid Pro Quo Contributions	0	QuidProQuoContributions
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOf
Funds To Pay Premiums	0	FundsToPayPremiums
Premiums Paid	0	PremiumsPaid
Form8899 Filed	0	Form8899Filed
Form1098 C Filed	0	Form1098CFiled
Indoor Tanning Services	0	IndoorTanningServices
Info In Schedule O Part VI	X	InfoInScheduleOPartVI
Nbr Voting Governing Body Members	17	NbrVotingGoverningBodyMembers
Number Independent Voting Members	17	NumberIndependentVotingMembers
Family Or Business Relationship	0	FamilyOrBusinessRelationship
Delegation Of Management Duties	0	DelegationOfManagementDuties
Changes To Organizing Docs	0	ChangesToOrganizingDocs
Material Diversion Or Misuse	0	MaterialDiversionOrMisuse
Members Or Stockholders	0	MembersOrStockholders
Election Of Board Members	0	ElectionOfBoardMembers
Decisions Subject To Approval	0	DecisionsSubjectToApproval
Minutes Of Governing Body	1	MinutesOfGoverningBody
Minutes Of Committees	1	MinutesOfCommittees
Officer Mailing Address	0	OfficerMailingAddress
Local Chapters	0	LocalChapters
Form990 Provided To Governing Body	1	Form990ProvidedToGoverningBody
Conflict Of Interest Policy	1	ConflictOfInterestPolicy
Annual Disclosure Covered Persons	1	AnnualDisclosureCoveredPersons
Regular Monitoring Enforcement	1	RegularMonitoringEnforcement
Whistleblower Policy	1	WhistleblowerPolicy
Document Retention Policy	1	DocumentRetentionPolicy
Compensation Process CEO	1	CompensationProcessCEO
Compensation Process Other	0	CompensationProcessOther
Investment In Joint Venture	0	InvestmentInJointVenture
States Where Copy Of Return Is Filed	AK	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CO	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	CT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	FL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	IL	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MD	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MI	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	MS	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	NY	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OH	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	OR	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	PA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	SC	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	TN	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	UT	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	VA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WA	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WV	StatesWhereCopyOfReturnIsFiled
States Where Copy Of Return Is Filed	WI	StatesWhereCopyOfReturnIsFiled
Own Website	X	OwnWebsite
Upon Request	X	UponRequest

The Books Are In Care Of TheBooksAreInCareOf

Name Business NameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	SJOGREN'S SYNDROME FOUNDATION	BusinessNameLine1

Field	Value	IRS element (for citing)
Telephone Number	3015304420	TelephoneNumber

Address US AddressUS

Field	Value	IRS element (for citing)
Address Line1	6707 DEMOCRACY BLVD SUITE 325	AddressLine1
City	BETHESDA	City
State	MD	State
ZIP Code	20817	ZIPCode

Form990 Part VII Section A Form990PartVIISectionA (19 entries)

TitleTitle	Average Hours Per WeekAverageHoursPerWeek	Individual Trustee Or DirectorIndividualTrusteeOrDirector	Reportable Comp From OrganizationReportableCompFromOrganization	Reportable Comp From Related OrgsReportableCompFromRelatedOrgs	Other CompensationOtherCompensation	OfficerOfficer	Highest Compensated EmployeeHighestCompensatedEmployee
DENISE FAUSTMAN MD PHD
MSAB CHAIRMAN	2.00	X	0	0	0
PAMELA S BROWN
SECRETARY	2.00	X	0	0	0
STEVEN CARSONS MD
DIRECTOR	2.00	X	0	0	0
MARY MCNEIL
DIRECTOR	2.00	X	0	0	0
LYNN M PETRUZZI RN MSN
IMMEDIATE PAST CHAIR	2.00	X	0	0	0
VIDYA SANKAR DMD MPH
DIRECTOR	2.00	X	0	0	0
MICHAEL BRENNAN DDS
DIRECTOR	2.00	X	0	0	0
NANCY L CARTERON MD FACR
DIRECTOR	2.00	X	0	0	0
ESTRELLA BIBBEY
DIRECTOR	2.00	X	0	0	0
SHARI ROOD
DIRECTOR	2.00	X	0	0	0
S LANCE FORSTOT MD
CHAIRMAN OF THE BOARD	2.00	X	0	0	0
KATHRYN P MCCARREN
TREASURER	2.00	X	0	0	0
KEN ECONOMOU
CHAIRMAN-ELECT	2.00	X	0	0	0
STEPHEN COHEN OD
DIRECTOR	2.00	X	0	0	0
THERESA LAWRENCE FORD MD
DIRECTOR	2.00	X	0	0	0
JANET E CHURCH
DIRECTOR	2.00	X	0	0	0
JACK FARICELLI
DIRECTOR	2.00	X	0	0	0
STEVEN TAYLOR
CHIEF EXECUTIVE OFFICER	40.00		219105	0	22044	X
SHERIESE DEFRUSCIO
VP OF DEVELOPMENT	40.00		103176	0	18164		X

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	322281	TotalReportableCompFromOrg
Total Reportable Comp Frm Rltd Orgs	0	TotalReportableCompFrmRltdOrgs
Total Other Compensation	40208	TotalOtherCompensation
Number Individuals GT100 K	2	NumberIndividualsGT100K
Formers Listed	0	FormersListed
Total Comp GT150 K	1	TotalCompGT150K
Compensation From Other Sources	0	CompensationFromOtherSources
Number Of Contractors GT100 K	0	NumberOfContractorsGT100K
Fundraising Events	302152	FundraisingEvents
All Other Contributions	794112	AllOtherContributions
Noncash Contributions	23922	NoncashContributions
Total Contributions	1096264	TotalContributions

Program Service Revenue ProgramServiceRevenue (3 entries)

DescriptionDescription	Business CodeBusinessCode	Total Revenue ColumnTotalRevenueColumn	Related Or Exempt Function IncomeRelatedOrExemptFunctionIncome	ExclusionExclusionAmount	Unrelated Business RevenueUnrelatedBusinessRevenue
MEMBERSHIP DUES	541900	246441	246441
CONFERENCE	541900	140908	50408	$90,500
ADVERTISING	541800	98328			98328

Field	Value	IRS element (for citing)
Total Program Service Revenue	485677	TotalProgramServiceRevenue

Investment Income InvestmentIncome

Field	Value	IRS element (for citing)
Total Revenue Column	10353	TotalRevenueColumn
Exclusion	$10,353	ExclusionAmount

Royalties Revenue RoyaltiesRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	3578	TotalRevenueColumn
Exclusion	$3,578	ExclusionAmount

Gross Amount Sales Assets GrossAmountSalesAssets

Field	Value	IRS element (for citing)
Securities	50080	Securities
Other	15332	Other

Less Cost Oth Basis Sales Expenses LessCostOthBasisSalesExpenses

Field	Value	IRS element (for citing)
Securities	51995	Securities
Other	19049	Other

Gain Or Loss GainOrLoss

Field	Value	IRS element (for citing)
Securities	-1915	Securities
Other	-3717	Other

Net Gain Or Loss Investments NetGainOrLossInvestments

Field	Value	IRS element (for citing)
Total Revenue Column	-5632	TotalRevenueColumn
Exclusion	-$5,632	ExclusionAmount

Field	Value	IRS element (for citing)
Gross Income Fundraising Events	96072	GrossIncomeFundraisingEvents
Cntrbtns Rprtd Fundraising Events	302152	CntrbtnsRprtdFundraisingEvents
Fundraising Direct Expenses	96072	FundraisingDirectExpenses

Net Income From Fundraising Events NetIncomeFromFundraisingEvents

Field	Value	IRS element (for citing)
Total Revenue Column	0	TotalRevenueColumn

Field	Value	IRS element (for citing)
Gross Sales Of Inventory	54496	GrossSalesOfInventory
Cost Of Goods Sold	20779	CostOfGoodsSold

Net Income Or Loss NetIncomeOrLoss

Field	Value	IRS element (for citing)
Total Revenue Column	33717	TotalRevenueColumn
Related Or Exempt Function Income	33717	RelatedOrExemptFunctionIncome

Other Revenue Misc OtherRevenueMisc

Field	Value	IRS element (for citing)
Description	MISCELLANEOUS INCOME	Description
Business Code	541900	BusinessCode
Total Revenue Column	3452	TotalRevenueColumn
Related Or Exempt Function Income	3452	RelatedOrExemptFunctionIncome

Field	Value	IRS element (for citing)
Total Other Revenue	3452	TotalOtherRevenue

Total Revenue TotalRevenue

Field	Value	IRS element (for citing)
Total Revenue Column	1627409	TotalRevenueColumn
Related Or Exempt Function Income	334018	RelatedOrExemptFunctionIncome
Unrelated Business Revenue	98328	UnrelatedBusinessRevenue
Exclusion	$98,799	ExclusionAmount

Grants To Domestic Orgs GrantsToDomesticOrgs

Field	Value	IRS element (for citing)
Total	151250	Total
Program Services	151250	ProgramServices

Comp Current Officers Directors CompCurrentOfficersDirectors

Field	Value	IRS element (for citing)
Total	228027	Total
Program Services	182421	ProgramServices
Management And General	22803	ManagementAndGeneral
Fundraising	22803	Fundraising

Other Salaries And Wages OtherSalariesAndWages

Field	Value	IRS element (for citing)
Total	507616	Total
Program Services	415957	ProgramServices
Management And General	16452	ManagementAndGeneral
Fundraising	75207	Fundraising

Pension Plan Contributions PensionPlanContributions

Field	Value	IRS element (for citing)
Total	9309	Total
Program Services	7629	ProgramServices
Management And General	335	ManagementAndGeneral
Fundraising	1345	Fundraising

Other Employee Benefits OtherEmployeeBenefits

Field	Value	IRS element (for citing)
Total	72567	Total
Program Services	59210	ProgramServices
Management And General	3014	ManagementAndGeneral
Fundraising	10343	Fundraising

Payroll Taxes PayrollTaxes

Field	Value	IRS element (for citing)
Total	48537	Total
Program Services	39498	ProgramServices
Management And General	2525	ManagementAndGeneral
Fundraising	6514	Fundraising

Fees For Services Accounting FeesForServicesAccounting

Field	Value	IRS element (for citing)
Total	27040	Total
Program Services	4959	ProgramServices
Management And General	21263	ManagementAndGeneral
Fundraising	818	Fundraising

Fees For Services Invst Mgmnt Fees FeesForServicesInvstMgmntFees

Field	Value	IRS element (for citing)
Total	4036	Total
Management And General	4036	ManagementAndGeneral

Fees For Services Other FeesForServicesOther

Field	Value	IRS element (for citing)
Total	70029	Total
Program Services	62928	ProgramServices
Management And General	1701	ManagementAndGeneral
Fundraising	5400	Fundraising

Office Expenses OfficeExpenses

Field	Value	IRS element (for citing)
Total	265252	Total
Program Services	191679	ProgramServices
Management And General	5629	ManagementAndGeneral
Fundraising	67944	Fundraising

Information Technology InformationTechnology

Field	Value	IRS element (for citing)
Total	21560	Total
Program Services	17590	ProgramServices
Management And General	1108	ManagementAndGeneral
Fundraising	2862	Fundraising

Occupancy Occupancy

Field	Value	IRS element (for citing)
Total	120334	Total
Program Services	97766	ProgramServices
Management And General	6303	ManagementAndGeneral
Fundraising	16265	Fundraising

Travel Travel

Field	Value	IRS element (for citing)
Total	60474	Total
Program Services	60474	ProgramServices

Conferences Meetings ConferencesMeetings

Field	Value	IRS element (for citing)
Total	103530	Total
Program Services	103221	ProgramServices
Management And General	309	ManagementAndGeneral

Interest Interest

Field	Value	IRS element (for citing)
Total	5748	Total
Management And General	5748	ManagementAndGeneral

Depreciation Depletion DepreciationDepletion

Field	Value	IRS element (for citing)
Total	30319	Total
Program Services	24674	ProgramServices
Management And General	1576	ManagementAndGeneral
Fundraising	4069	Fundraising

Insurance Insurance

Field	Value	IRS element (for citing)
Total	9337	Total
Program Services	7599	ProgramServices
Management And General	485	ManagementAndGeneral
Fundraising	1253	Fundraising

Other Expenses OtherExpenses (4 entries)

DescriptionDescription	TotalTotal	Program ServicesProgramServices	Management And GeneralManagementAndGeneral	FundraisingFundraising
STAFF DEVELOPMENT	22729	18498	1181	3050
DUES, SUBSCRIPTIONS AND	21881	17947	1098	2836
BANK AND CREDIT CARD FE	21450	11936	45	9469
MISCELLANEOUS	13265	7270	449	5546

All Other Expenses AllOtherExpenses

Field	Value	IRS element (for citing)
Total	16048	Total
Program Services	12006	ProgramServices
Management And General	187	ManagementAndGeneral
Fundraising	3855	Fundraising

Total Functional Expenses TotalFunctionalExpenses

Field	Value	IRS element (for citing)
Total	1830338	Total
Program Services	1494512	ProgramServices
Management And General	96247	ManagementAndGeneral
Fundraising	239579	Fundraising

Cash Non Interest Bearing CashNonInterestBearing

Field	Value	IRS element (for citing)
BOY	-24897	BOY
EOY	14449	EOY

Savings And Temp Cash Investments SavingsAndTempCashInvestments

Field	Value	IRS element (for citing)
BOY	21708	BOY
EOY	1709	EOY

Accounts Receivable AccountsReceivable

Field	Value	IRS element (for citing)
BOY	175046	BOY
EOY	70904	EOY

Inventories For Sale Or Use InventoriesForSaleOrUse

Field	Value	IRS element (for citing)
BOY	1628	BOY
EOY	2071	EOY

Prepaid Expenses Deferred Charges PrepaidExpensesDeferredCharges

Field	Value	IRS element (for citing)
BOY	10339	BOY
EOY	4769	EOY

Field	Value	IRS element (for citing)
Land Buildings Equipment Basis	189318	LandBuildingsEquipmentBasis
Land Bldg Equipment Accum Deprec	135040	LandBldgEquipmentAccumDeprec

Land Buildings Equipment Basis Net LandBuildingsEquipmentBasisNet

Field	Value	IRS element (for citing)
BOY	67560	BOY
EOY	54278	EOY

Investments Pub Traded Securities InvestmentsPubTradedSecurities

Field	Value	IRS element (for citing)
BOY	383992	BOY
EOY	338859	EOY

Other Assets Total OtherAssetsTotal

Field	Value	IRS element (for citing)
BOY	6859	BOY
EOY	6859	EOY

Total Assets TotalAssets

Field	Value	IRS element (for citing)
BOY	642235	BOY
EOY	493898	EOY

Accounts Payable Accrued Expenses AccountsPayableAccruedExpenses

Field	Value	IRS element (for citing)
BOY	46123	BOY
EOY	152404	EOY

Grants Payable GrantsPayable

Field	Value	IRS element (for citing)
BOY	265000	BOY
EOY	190000	EOY

Deferred Revenue DeferredRevenue

Field	Value	IRS element (for citing)
BOY	144747	BOY
EOY	117929	EOY

Other Liabilities OtherLiabilities

Field	Value	IRS element (for citing)
BOY	47620	BOY
EOY	68291	EOY

Total Liabilities TotalLiabilities

Field	Value	IRS element (for citing)
BOY	503490	BOY
EOY	528624	EOY

Field	Value	IRS element (for citing)
Follow SFAS117	X	FollowSFAS117

Unrestricted Net Assets UnrestrictedNetAssets

Field	Value	IRS element (for citing)
BOY	138745	BOY
EOY	-34726	EOY

Total Net Assets Fund Balances TotalNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	138745	BOY
EOY	-34726	EOY

Total Liab Net Assets Fund Balances TotalLiabNetAssetsFundBalances

Field	Value	IRS element (for citing)
BOY	642235	BOY
EOY	493898	EOY

Field	Value	IRS element (for citing)
Reconcilation Revenue Expenses	-202929	ReconcilationRevenueExpenses
Reconciliation Unrealized Invest	29458	ReconciliationUnrealizedInvest
Reconcilation Other Changes	0	ReconcilationOtherChanges
Info In Schedule O Part XII	X	InfoInScheduleOPartXII
Method Of Accounting Accrual	X	MethodOfAccountingAccrual
Accountant Compile Or Review	0	AccountantCompileOrReview
FS Audited	1	FSAudited

FS Audited Basis FSAuditedBasis

Field	Value	IRS element (for citing)
Financial Statement Separate	X	FinancialStatementSeparate

Field	Value	IRS element (for citing)
Audit Committee	1	AuditCommittee
Federal Grant Audit Required	0	FederalGrantAuditRequired

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Publicly Supported Org509a2	X	PubliclySupportedOrg509a2

Gifts Grants Contrib Received509 GiftsGrantsContribReceived509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	1481166	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1403954	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1634110	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	1389185	CurrentTaxYearMinus1Year
Current Tax Year	1342705	CurrentTaxYear
Total	7251120	Total

Gross Receipts From Admissions GrossReceiptsFromAdmissions

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	334570	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	246454	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	230508	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	245379	CurrentTaxYearMinus1Year
Current Tax Year	140908	CurrentTaxYear
Total	1197819	Total

Total509 Total509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	1815736	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1650408	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1864618	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	1634564	CurrentTaxYearMinus1Year
Current Tax Year	1483613	CurrentTaxYear
Total	8448939	Total

Amts Recd From Disqual Persons AmtsRecdFromDisqualPersons

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	903042	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	817293	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	791836	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	687653	CurrentTaxYearMinus1Year
Current Tax Year	591090	CurrentTaxYear
Total	3790914	Total

Amts From Subst Contributors AmtsFromSubstContributors

Field	Value	IRS element (for citing)
Total	0	Total

Support From DQ Ps Etc SupportFromDQPsEtc

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	903042	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	817293	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	791836	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	687653	CurrentTaxYearMinus1Year
Current Tax Year	591090	CurrentTaxYear
Total	3790914	Total

Field	Value	IRS element (for citing)
Public Support Total509	4658025	PublicSupportTotal509

Gross Investment Income509 GrossInvestmentIncome509

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	16266	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	8368	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	17154	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	14515	CurrentTaxYearMinus1Year
Current Tax Year	13931	CurrentTaxYear
Total	70234	Total

Investment Income And UBTI InvestmentIncomeAndUBTI

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	16266	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	8368	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	17154	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	14515	CurrentTaxYearMinus1Year
Current Tax Year	13931	CurrentTaxYear
Total	70234	Total

Total Support Total TotalSupportTotal

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	1832002	CurrentTaxYearMinus4Years
Current Tax Year Minus3 Years	1658776	CurrentTaxYearMinus3Years
Current Tax Year Minus2 Years	1881772	CurrentTaxYearMinus2Years
Current Tax Year Minus1 Year	1649079	CurrentTaxYearMinus1Year
Current Tax Year	1497544	CurrentTaxYear
Total	8519173	Total

Field	Value	IRS element (for citing)
Public Support Percentage509	0.54680	PublicSupportPercentage509
Prior Year Support Percentage	0.56400	PriorYearSupportPercentage
Investment Income Percentage	0.00820	InvestmentIncomePercentage
Prior Yr Invest Income Percentage	0.00960	PriorYrInvestIncomePercentage
Thirty Three Percnt Tests CY509	X	ThirtyThreePercntTestsCY509

Schedule B IRS990ScheduleB

Contributor Info ContributorInfo

Field	Value	IRS element (for citing)
Contributor Number	RESTRICTED	ContributorNumber

Contributor Name Business ContributorNameBusiness

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor Address US ContributorAddressUS

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Aggregate Contributions	RESTRICTED	AggregateContributions

Schedule D IRS990ScheduleD

Equipment Equipment

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	128471	OtherCostOrOtherBasis
Depreciation	86703	Depreciation
Book Value	41768	BookValue

Other Land Buildings OtherLandBuildings

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	60847	OtherCostOrOtherBasis
Depreciation	48337	Depreciation
Book Value	12510	BookValue

Field	Value	IRS element (for citing)
Total Of Book Value Land Buildings	54278	TotalOfBookValueLandBuildings

Other Liabilities OtherLiabilities (2 entries)

DescriptionDescription	AmountAmount
CAPITAL LEASE PAYABLE	$32,232
DEFERRED RENT	$36,059

Field	Value	IRS element (for citing)
Total Of Amounts	68291	TotalOfAmounts
Tot Revenue Etc Audited Fincl Stmt	1677327	TotRevenueEtcAuditedFinclStmt
Net Unrealized Gains Investments	29458	NetUnrealizedGainsInvestments
Revenue Not Rptd F990	29458	RevenueNotRptdF990
Revenue Subtotal	1647869	RevenueSubtotal
Investment Expenses Not Included	4036	InvestmentExpensesNotIncluded
Other Revenues Not Included	-24496	OtherRevenuesNotIncluded
Revenue Not Rptd On Fin Stmt	-20460	RevenueNotRptdOnFinStmt
Total Revenue Per Form990	1627409	TotalRevenuePerForm990
Tot Expenses Etc Audited Fincl Stmt	1850798	TotExpensesEtcAuditedFinclStmt
Other Expenses Included	24496	OtherExpensesIncluded
Expenses Not Rptd F990	24496	ExpensesNotRptdF990
Expenses Subtotal	1826302	ExpensesSubtotal
Investment Expenses Not Included2	4036	InvestmentExpensesNotIncluded2
Expenses Not Rptd On Fin Stmt	4036	ExpensesNotRptdOnFinStmt
Total Expenses Per Form990	1830338	TotalExpensesPerForm990

Form990 Schedule D Part XIII Form990ScheduleDPartXIII (2 entries)

IdentifierIdentifier	ExplanationExplanation
PART XI, LINE 4B - OTHER ADJUSTMENTS:	COST OF GOODS SOLD REPORTED ON PART VIII -20,779. LOSS ON DISPOSAL OF PROPERTY -3,717.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	COST OF GOODS SOLD REPORTED ON PART VIII 20,779. LOSS ON DISPOSAL OF PROPERTY 3,717.

Schedule G IRS990ScheduleG

Events Information EventsInformation

Field	Value	IRS element (for citing)
Name Of Event1	WALKABOUTS AND SIPS EVENTS	NameOfEvent1
Gross Receipts Event1	362130	GrossReceiptsEvent1
Charitable Contributions Event1	266058	CharitableContributionsEvent1
Gross Revenue Event1	96072	GrossRevenueEvent1
Other Direct Expenses Event1	96072	OtherDirectExpensesEvent1
Name Of Event2	ADDRESS LABEL	NameOfEvent2
Gross Receipts Event2	19265	GrossReceiptsEvent2
Charitable Contributions Event2	19265	CharitableContributionsEvent2
Total Number Of Other Events	2	TotalNumberOfOtherEvents
Gross Receipts Other Events	16829	GrossReceiptsOtherEvents
Charitable Contrib Other Events	16829	CharitableContribOtherEvents
Gross Receipts Total	398224	GrossReceiptsTotal
Charitable Contributions Total	302152	CharitableContributionsTotal
Gross Revenue Total Events	96072	GrossRevenueTotalEvents
Other Direct Expenses Total Events	96072	OtherDirectExpensesTotalEvents
Direct Expense Summary Events	96072	DirectExpenseSummaryEvents
Net Income Summary	0	NetIncomeSummary

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Records Maintained	1	RecordsMaintained

Recipient Table RecipientTable (6 entries)

Address Line1AddressUS/AddressLine1	CityAddressUS/City	StateAddressUS/State	ZIP CodeAddressUS/ZIPCode	EIN Of RecipientEINOfRecipient	IRC SectionIRCSection	Amount Of Cash GrantAmountOfCashGrant	Purpose Of GrantPurposeOfGrant
NIDCR - MOLECULAR PHYSIOLOGY BRANCH
31 CENTER DR MSC 2324	BETHESDA	MD	208922324	520858115	SECTION 501(C)(3)	15000	RESEARCH GRANT
OKLAHOMA MEDICAL RESEARCH FOUNDATION
825 NE 13TH ST	OKLAHOMA CITY	OK	73104	730580274	SECTION 501(C)(3)	25000	RESEARCH GRANT
ROCKEFELLER UNIVERSITY NEW YORK
1230 YORK AVE	NEW YORK	NY	10065	131624158	SECTION 501(C)(3)	15000	RESEARCH GRANT
BOSTON UNIVERSITY
75 E CONCORD ST	BOSTON	MA	02118	042103547	SECTION 501(C)(3)	35000	RESEARCH GRANT
UC BERKELEY SCHOOL OF OPTOMETRY VISION SCIENCE
380 MINOR HALL	BERKELEY	CA	94720	946002123	SECTION 501(C)(3)	30000	RESEARCH GRANT
UNIVERSITY OF MINNESOTA SCHOOL OF DENTISTRY
515 DELAWARE ST SE	MINNEAPOLIS	MN	55455	416007513	SECTION 501(C)(3)	20000	RESEARCH GRANT

Form990 Schedule I Part IV Form990ScheduleIPartIV

Field	Value	IRS element (for citing)
Identifier	PROCEDURE FOR MONITORING GRANTS IN THE U.S.:	Identifier
Return Reference	PART I, LINE 2:	ReturnReference
Explanation	SCHEDULE I, PART I, LINE 2: THE SJOGREN'S SYNDROME FOUNDATION ENCOURAGES AND SUPPORTS RESEARCH INTO SJOGREN'S SYNDROME BY OFFERING ANNUAL RESEARCH GRANT AND STUDENT FELLOWSHIPS. BOTH AWARD CATEGORIES ARE OPEN TO APPLICANTS AT U.S. INSTITUTIONS. GRANTS ARE AWARDED BY A PEER REVIEW PANEL OF SJOGREN'S RESEARCH PROFESSIONALS AND GRANTEES ARE REGULARLY REVIEWED THROUGHOUT THE GRANT CYCLE. OUR RESEARCH PROGRAM PROMOTES BASIC SCIENCE AND CLINICAL INVESTIGATIONS INTO THE CAUSE, PREVENTION, DIAGNOSIS, TREATMENT AND ULTIMATELY A CURE FOR THIS PREVALENT AUTOIMMUNE DISEASE.	Explanation

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	X	CompensationCommittee
Form990 Of Other Organizations	X	Form990OfOtherOrganizations
Written Employment Contract	X	WrittenEmploymentContract
Compensation Survey	X	CompensationSurvey
Board Or Committee Approval	X	BoardOrCommitteeApproval
Severance Payment	0	SeverancePayment
Supplemental Nonqual Retire Plan	0	SupplementalNonqualRetirePlan
Equity Based Comp Arrangement	0	EquityBasedCompArrangement
Comp Based On Revenue Of Filing Org	0	CompBasedOnRevenueOfFilingOrg
Comp Based On Revenue Related Orgs	0	CompBasedOnRevenueRelatedOrgs
Comp Based Net Earnings Filing Org	0	CompBasedNetEarningsFilingOrg
Comp Based Net Earnings Relate Orgs	0	CompBasedNetEarningsRelateOrgs
Any Non Fixed Payments	0	AnyNonFixedPayments
Initial Contract Exception	0	InitialContractException

Form990 Schedule J Part II Form990ScheduleJPartII

Field	Value	IRS element (for citing)
Name Person	STEVEN TAYLOR	NamePerson
Title	CHIEF EXECUTIVE OFFICER	Title
Base Compensation Filing Org	151400	BaseCompensationFilingOrg
Comp Based On Related Orgs	0	CompBasedOnRelatedOrgs
Bonus Filing Org	67705	BonusFilingOrg
Bonus Related Orgs	0	BonusRelatedOrgs
Other Compensation Filing Org	0	OtherCompensationFilingOrg
Other Compensation Related Orgs	0	OtherCompensationRelatedOrgs
Deferred Comp Filing Org	3100	DeferredCompFilingOrg
Deferred Comp Related Orgs	0	DeferredCompRelatedOrgs
Nontaxable Benefits Filing Org	18944	NontaxableBenefitsFilingOrg
Nontaxable Benefits Related Orgs	0	NontaxableBenefitsRelatedOrgs
Total Compensation Filing Org	241149	TotalCompensationFilingOrg
Total Compensation Related Orgs	0	TotalCompensationRelatedOrgs
Comp Report Prior990 Filing Org	0	CompReportPrior990FilingOrg
Comp Report Prior990 Related Orgs	0	CompReportPrior990RelatedOrgs

Schedule O IRS990ScheduleO

General Explanation GeneralExplanation (5 entries)

Return ReferenceReturnReference	ExplanationExplanation	IdentifierIdentifier
FORM 990, PART VI, SECTION B, LINE 11	BOARD MEMBERS WILL HAVE A WEEK TO REVIEW 990 AND MAKE COMMENTS BEFORE IT IS FILED. THE 990 WILL BE READ BY THE CHIEF EXECUTIVE OFFICER BEFORE IT IS SIGNED.
FORM 990, PART VI, SECTION B, LINE 12C	EACH DIRECTOR, OFFICER, COMMITTEE MEMBER OR EMPLOYEE MUST ANNUALLY REVIEW A COPY OF THIS POLICY AND SHALL BE REMINDED OF THE OBLIGATION TO CONFORM TO IT. EACH COVERED PERSON MUST ANNUALLY COMPLETE A CONFLICT OF INTEREST INFORMATION FORM IDENTIFYING ANY RELATIONSHIPS, POSITIONS OR CIRCUMSTANCES IN WHICH THE COVERED PERSON IS INVOLVED THAT HE OR SHE BELIEVES COULD CREATE A CONFLICT OF INTEREST.
FORM 990, PART VI, SECTION B, LINE 15A	BOARD ANNUALLY REVIEWS COMPARABLE SALARY AND BONUS INFORMATION AND COMPARES CEO SALARY.
FORM 990, PART VI, SECTION C, LINE 19	FINANCIALS ARE POSTED ON THE FOUNDATION'S WEBSITE FOR DONORS, PATIENTS AND VISITORS TO REVIEW. GOVERNANCE DOCUMENTS, CONFLICT OF INTEREST, ETC. ARE ALL AVAILABLE BY CONTACTING THE MAIN OFFICE, FREE OF CHARGE. ALSO THE COPIES OF OUR 990S AND FINANCIALS ARE AVAILABLE BE CONTACTING MAIN OFFICE.
FORM 990, PART XI, LINE 2C	THE ORGANIZATION HAS NOT CHANGED THIS PROCESS FROM THE PRIOR YEAR.	RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT: