FOUNDATION FIGHTING BLINDNESS INC: Form 990, tax year 2013
View the entire original 990 at ProPublica ↗
- Organization
- FOUNDATION FIGHTING BLINDNESS INC (EIN 23-7135845)
- Tax period
- 2013-07-01 to 2014-06-30
- Filed
- 2014-10-29
- IRS object ID
- 201403029349300330
- Schema version
- 2013v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2014-10-29T12:34:08-05:00 | ReturnTs |
| Tax Period End | 2014-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 521511275 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Raffa PC | BusinessNameLine1 |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1899 L Street NW Suite 900 | AddressLine1 |
| City | Washington | City |
| State | DC | State |
| ZIP Code | 20036 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2013-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 237135845 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | The Foundation Fighting Blindness Inc | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | FOUN | BusinessNameControlTxt |
| Phone | 4104230600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7168 Columbia Gateway Drive No 100 | AddressLine1 |
| City | Columbia | City |
| State | MD | State |
| ZIP Code | 21046 | ZIPCode |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Annette Hinkle | PersonNm |
| Person Title | Chief Financial Officer | PersonTitleTxt |
| Phone | 4104230600 | PhoneNum |
| Signature | 2014-10-29 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Frank H Smith | PreparerPersonNm |
| PTIN | P00639053 | PTIN |
| Phone | 2028225000 | PhoneNum |
| Preparation | 2014-10-28 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2013 | TaxYr |
| Build TS | 2015-11-30 17:44:51Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Annette Hinkle | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7168 Columbia Gateway Drive No 100 | AddressLine1 |
| City | Columbia | City |
| State | MD | State |
| ZIP Code | 21046 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $57,345,958 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.fightblindness.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1971 | FormationYr |
| Legal Domicile State | MD | LegalDomicileStateCd |
| Activity Or Mission | FFB funds research to discover causes and cures for retinal diseases leading to blindness. | ActivityOrMissionDesc |
| Voting Members Governing Body | 24 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 24 | VotingMembersIndependentCnt |
| Total Employee | 98 | TotalEmployeeCnt |
| Total Volunteers | 2500 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $40,828,587 | PYContributionsGrantsAmt |
| CY Contributions Grants | $37,077,623 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $328,270 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $408,658 | CYProgramServiceRevenueAmt |
| PY Investment Income | $2,196,517 | PYInvestmentIncomeAmt |
| CY Investment Income | $1,625,426 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$688,965 | PYOtherRevenueAmt |
| CY Other Revenue | -$765,444 | CYOtherRevenueAmt |
| PY Total Revenue | $42,664,409 | PYTotalRevenueAmt |
| CY Total Revenue | $38,346,263 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $11,850,463 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $12,720,767 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $7,404,141 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $6,704,696 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $381,920 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $421,331 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $6,864,280 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $6,317,052 | PYOtherExpensesAmt |
| CY Other Expenses | $5,981,599 | CYOtherExpensesAmt |
| PY Total Expenses | $25,953,576 | PYTotalExpensesAmt |
| CY Total Expenses | $25,828,393 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $16,710,833 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $12,517,870 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $73,618,451 | TotalAssetsBOYAmt |
| Total Assets EOY | $82,788,523 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $15,872,986 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $12,524,827 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $57,745,465 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $70,263,696 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | The mission of The Foundation Fighting Blindness, Inc. (FFB) is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome, and the spectrum of retinal degenerative diseases. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $14,368,147 | ExpenseAmt |
| Grant | $12,720,767 | GrantAmt |
| Revenue | $265,873 | RevenueAmt |
| Desc | Research - FFB funded researchers are achieving remarkable success with a wide range of promising therapies for saving and restoring sight. The Foundation, and its subsidiary Foundation Fighting Blindness Clinical Research Institute (FFB CRI), have funded translational research and clinical trials of gene therapy that have restored vision in patients who were virtually blind from a childhood form of retinitis pigmentosa. Thanks to the therapy, they can now enjoy some of life's simple joys, like reading and playing baseball. The Foundation, and its subsidiary FFB CRI, have funded cross cutting drug treatment therapies, showing potential for slowing vision loss caused by retinal diseases. (Continued on page 53)FFB CRI has launched a human trial to test a drug that may preserve vision in people with a specific form of retinitis pigmentosa. Foundation funded researchers are using stem cells derived from a variety of sources, including a person's own skin, to create healthy retinal cells that can potentially restore vision. Stem cell treatments hold great promise for people with advanced vision loss. In addition, the Foundation has committed $9 million to existing research projects based on future milestones and has set aside $52 million for future innovative opportunities. This gives the Foundation the flexibility and opportunity to invest in upcoming large-scale studies and clinical trials when they become available. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $2,365,416 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $142,785 | RevenueAmt |
| Desc | Public Health Education - FFB funded health education programs reach over 250,000 people through educational seminars, newsletters, web based information, and community outreach through FFB's approximately 50 chapters around the U.S. and through partnerships with numerous retinal specialists. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $16,733,563 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | Yes (1) | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | 0 | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (1) | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | Yes (1) | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | Yes (1) | RelatedEntityInd |
| Related Organization Ctrl Ent | Yes (1) | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | 0 | TransactionWithControlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 188 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (1) | BackupWthldComplianceInd |
| Employee | 98 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 24 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 24 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (1) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (1) | MembersOrStockholdersInd |
| Election Of Board Members | Yes (1) | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Annette Hinkle | BusinessNameLine1 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 4104230600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7168 Columbia Gateway Drive 100 | AddressLine1 |
| City | Columbia | City |
| State | MD | State |
| ZIP Code | 21046 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part VII | Yes (X) | InfoInScheduleOPartVIIInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (36 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| Gordon Gund | ||||||||
| Chairman | 10.00 | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| Jeremiah Shaw | ||||||||
| Vice Chairman | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Edward Gollob | ||||||||
| President | 1.00 | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| Joel Davis | ||||||||
| Vice Chairman | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| David Brint | ||||||||
| Vice Chairman | 1.00 | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| Haynes Lea | ||||||||
| Treasurer | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Yvonne Chester | ||||||||
| Secretary | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| Steve Alper | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Ed Babin | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Daniel Bergstein | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Jason Ferreira | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Marilyn Green | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| James McNiel | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Nancy Mendelow | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Evan Mittman | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Karen Petrou | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Nancy Pollack | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Edward Russnow | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Bruce Sawyer | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Moira Shea | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Jonathan Steinberg | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Maryrose Sylvester | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| Warren Thaler | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| George Villere | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| David Walsh | ||||||||
| Director | 1.00 | Yes (X) | $0 | $0 | $0 | |||
| William Schmidt | ||||||||
| Chief Executive Officer | 40.00 | 1.00 | Yes (X) | $322,751 | $0 | $7,652 | ||
| James Minow | ||||||||
| Chief Development Officer | 40.00 | Yes (X) | $241,637 | $0 | $15,189 | |||
| Patricia Zilliox | ||||||||
| Chief Drug Development Officer | 1.00 | 40.00 | Yes (X) | $0 | $220,068 | $9,131 | ||
| Stephen Rose | ||||||||
| Chief Research Officer | 40.00 | Yes (X) | $212,557 | $0 | $25,450 | |||
| Annette Hinkle | ||||||||
| Chief Financial Officer | 40.00 | 1.00 | Yes (X) | $191,312 | $0 | $13,370 | ||
| Pat Dudley | ||||||||
| Chief Human Resource Officer | 40.00 | Yes (X) | $137,544 | $0 | $21,965 | |||
| Susan Brumley | ||||||||
| Sr. National Director Major Gifts | 40.00 | $158,999 | $0 | $18,265 | Yes (X) | |||
| Brian Mansfield | ||||||||
| Deputy Chief Research Officer | 40.00 | $150,221 | $0 | $23,127 | Yes (X) | |||
| Lorraine Hirsch | ||||||||
| Deputy Chief Financial Officer | 40.00 | $118,871 | $0 | $5,062 | Yes (X) | |||
| Michele Mercer | ||||||||
| Sr. Director Database | 40.00 | $102,079 | $0 | $15,696 | Yes (X) | |||
| Anastasia Staten | ||||||||
| Sr. Director, Membership | 40.00 | $100,341 | $0 | $8,973 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,736,312 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $220,068 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $163,880 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 10 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1 | CityContractorAddress/USAddress/City | StateContractorAddress/USAddress/State | ZIP CodeContractorAddress/USAddress/ZIPCode | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| Truskey Inc | |||||
| 431 S Walnut Street | Kennett Square | PA | 19348 | Construction services | $1,064,334 |
| Production Advantage | |||||
| 13873 Park Center Road Suite 15 | Oak Hill | VA | 20171 | Printing/mail house services | $288,919 |
| Concord Litho Group | |||||
| 92 Old Turnpike Road | Concord | NH | 03301 | Printing/mail house services | $264,404 |
| Marriott Baltimore Waterfront | |||||
| 700 Aliceanna Street | Baltimore | MD | 21202 | Conference venue | $256,382 |
| Convio Inc | |||||
| PO Box 671445 | Dallas | TX | 75267 | Online fundraising | $228,453 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 12 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $195,572 | FederatedCampaignsAmt |
| Fundraising | $9,453,082 | FundraisingAmt |
| All Other Contributions | $27,428,969 | AllOtherContributionsAmt |
| Noncash Contributions | $5,464,626 | NoncashContributionsAmt |
| Total Contributions | $37,077,623 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| Contract revenue | 900099 | $265,873 | $265,873 |
| Conference fees | 900099 | $142,785 | $142,785 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $408,658 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,754,887 | TotalRevenueColumnAmt |
| Exclusion | $2,754,887 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $16,204,920 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $17,334,381 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$1,129,461 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$1,129,461 | TotalRevenueColumnAmt |
| Exclusion | -$1,129,461 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $737,310 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $9,453,082 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $1,646,449 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$909,139 | TotalRevenueColumnAmt |
| Exclusion | -$909,139 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gaming Gross Income | $22,670 | GamingGrossIncomeAmt |
| Gaming Direct Expenses | $18,865 | GamingDirectExpensesAmt |
Net Income From Gaming NetIncomeFromGamingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,805 | TotalRevenueColumnAmt |
| Exclusion | $3,805 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp (3 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | ExclusionExclusionAmt |
|---|---|---|---|
| FFB CRI service fees | 900099 | $99,900 | $99,900 |
| Sublease income | 900099 | $32,473 | $32,473 |
| Research patent | 900099 | $7,517 | $7,517 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $139,890 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $38,346,263 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $408,658 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $859,982 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $10,850,494 | TotalAmt |
| Program Services | $10,850,494 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,870,273 | TotalAmt |
| Program Services | $1,870,273 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,221,393 | TotalAmt |
| Program Services | $442,099 | ProgramServicesAmt |
| Management And General | $430,126 | ManagementAndGeneralAmt |
| Fundraising | $349,168 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,391,846 | TotalAmt |
| Program Services | $1,239,850 | ProgramServicesAmt |
| Management And General | $602,110 | ManagementAndGeneralAmt |
| Fundraising | $2,549,886 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $88,356 | TotalAmt |
| Program Services | $26,712 | ProgramServicesAmt |
| Management And General | $10,637 | ManagementAndGeneralAmt |
| Fundraising | $51,007 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $603,329 | TotalAmt |
| Program Services | $168,323 | ProgramServicesAmt |
| Management And General | $101,122 | ManagementAndGeneralAmt |
| Fundraising | $333,884 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $399,772 | TotalAmt |
| Program Services | $115,840 | ProgramServicesAmt |
| Management And General | $64,158 | ManagementAndGeneralAmt |
| Fundraising | $219,774 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,983 | TotalAmt |
| Management And General | $3,760 | ManagementAndGeneralAmt |
| Fundraising | $2,223 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $73,174 | TotalAmt |
| Management And General | $69,396 | ManagementAndGeneralAmt |
| Fundraising | $3,778 | FundraisingAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $421,331 | TotalAmt |
| Fundraising | $421,331 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $183,312 | TotalAmt |
| Management And General | $168,467 | ManagementAndGeneralAmt |
| Fundraising | $14,845 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $903,162 | TotalAmt |
| Program Services | $674,461 | ProgramServicesAmt |
| Management And General | $72,505 | ManagementAndGeneralAmt |
| Fundraising | $156,196 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,276,204 | TotalAmt |
| Program Services | $127,499 | ProgramServicesAmt |
| Management And General | $358,432 | ManagementAndGeneralAmt |
| Fundraising | $790,273 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $270,529 | TotalAmt |
| Program Services | $3,369 | ProgramServicesAmt |
| Management And General | $47,259 | ManagementAndGeneralAmt |
| Fundraising | $219,901 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $640,766 | TotalAmt |
| Program Services | $79,218 | ProgramServicesAmt |
| Management And General | $113,582 | ManagementAndGeneralAmt |
| Fundraising | $447,966 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $392,289 | TotalAmt |
| Program Services | $79,588 | ProgramServicesAmt |
| Management And General | $35,755 | ManagementAndGeneralAmt |
| Fundraising | $276,946 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $745,178 | TotalAmt |
| Program Services | $565,460 | ProgramServicesAmt |
| Management And General | $67,509 | ManagementAndGeneralAmt |
| Fundraising | $112,209 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $464,026 | TotalAmt |
| Program Services | $279,905 | ProgramServicesAmt |
| Management And General | $29,315 | ManagementAndGeneralAmt |
| Fundraising | $154,806 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $159,566 | TotalAmt |
| Program Services | $43,942 | ProgramServicesAmt |
| Management And General | $27,385 | ManagementAndGeneralAmt |
| Fundraising | $88,239 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Printing & production | Desc |
| Total | $867,410 | TotalAmt |
| Program Services | $166,530 | ProgramServicesAmt |
| Management And General | $29,032 | ManagementAndGeneralAmt |
| Fundraising | $671,848 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $25,828,393 | TotalAmt |
| Program Services | $16,733,563 | ProgramServicesAmt |
| Management And General | $2,230,550 | ManagementAndGeneralAmt |
| Fundraising | $6,864,280 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,372,214 | BOYAmt |
| EOY | $4,904,426 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,209 | BOYAmt |
| EOY | $6,619 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,791,757 | BOYAmt |
| EOY | $6,702,848 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $959,053 | BOYAmt |
| EOY | $2,184,396 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $562,476 | BOYAmt |
| EOY | $566,089 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $5,966,503 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $3,617,775 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,501,588 | BOYAmt |
| EOY | $2,348,728 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $55,995,664 | BOYAmt |
| EOY | $59,037,542 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,365,579 | BOYAmt |
| EOY | $6,823,376 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $63,911 | BOYAmt |
| EOY | $214,499 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $73,618,451 | BOYAmt |
| EOY | $82,788,523 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,089,833 | BOYAmt |
| EOY | $2,685,111 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,406,812 | BOYAmt |
| EOY | $8,285,742 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $228,755 | BOYAmt |
| EOY | $265,937 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,147,586 | BOYAmt |
| EOY | $1,288,037 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $15,872,986 | BOYAmt |
| EOY | $12,524,827 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,223,133 | BOYAmt |
| EOY | $8,992,654 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $50,022,332 | BOYAmt |
| EOY | $60,771,042 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $500,000 | BOYAmt |
| EOY | $500,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $57,745,465 | BOYAmt |
| EOY | $70,263,696 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $73,618,451 | BOYAmt |
| EOY | $82,788,523 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $12,517,870 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$7,304 | NetUnrlzdGainsLossesInvstAmt |
| Donated Services And Use Fclts | $7,665 | DonatedServicesAndUseFcltsAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | Yes (1) | FederalGrantAuditRequiredInd |
| Federal Grant Audit Performed | Yes (1) | FederalGrantAuditPerformedInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $30,918,188 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $36,268,303 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $38,553,517 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $40,828,587 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $37,077,623 | CurrentTaxYearAmt |
| Total | $183,646,218 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $30,918,188 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $36,268,303 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $38,553,517 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $40,828,587 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $37,077,623 | CurrentTaxYearAmt |
| Total | $183,646,218 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $65,875,539 | SubstantialContributorsTotAmt |
| Public Support Total170 | $117,770,679 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $368,024 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $717,281 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,671,104 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,360,118 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,787,360 | CurrentTaxYearAmt |
| Total | $7,903,887 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $185,097 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $155,990 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $162,804 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $112,380 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $107,417 | CurrentTaxYearAmt |
| Total | $723,688 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $192,273,793 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $5,467,256 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.61250 | PublicSupportCY170Pct |
| Public Support PY170 | 0.62260 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part IV Form990ScheduleAPartIVGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule A, Part II, Line 10, Explanation of Other Income: | FormAndLineReferenceDesc |
| Explanation | FFB CRI service fees - 2009 Amount: $ 99,900. 2010 Amount: $ 99,900. 2011 Amount: $ 99,900. 2012 Amount: $ 99,900. 2013 Amount: $ 99,900. Miscellaneous - 2009 Amount: $ 79,285. 2010 Amount: $ 50,717. 2011 Amount: $ 60,384. Research patent - 2009 Amount: $ 5,912. 2010 Amount: $ 5,373. 2011 Amount: $ 2,520. 2012 Amount: $ 12,480. 2013 Amount: $ 7,517. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $500,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $21,205 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $19,117 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $2,088 | AdministrativeExpensesAmt |
| End Year Balance | $500,000 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $500,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $14,507 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $12,469 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $2,038 | AdministrativeExpensesAmt |
| End Year Balance | $500,000 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $500,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $19,092 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $17,076 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $2,016 | AdministrativeExpensesAmt |
| End Year Balance | $500,000 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $500,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $32,633 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $29,953 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $2,680 | AdministrativeExpensesAmt |
| End Year Balance | $500,000 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $500,000 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $54,476 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $52,024 | GrantsOrScholarshipsAmt |
| Administrative Expenses | $2,452 | AdministrativeExpensesAmt |
| End Year Balance | $500,000 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 0.00000 | BoardDesignatedBalanceEOYPct |
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.00000 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $897,717 | OtherCostOrOtherBasisAmt |
| Depreciation | $285,647 | DepreciationAmt |
| Book Value | $612,070 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $1,491,356 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,226,196 | DepreciationAmt |
| Book Value | $265,160 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $3,577,430 | OtherCostOrOtherBasisAmt |
| Depreciation | $2,105,932 | DepreciationAmt |
| Book Value | $1,471,498 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $2,348,728 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (3 entries)
| DescDesc | Book ValueBookValueAmt | Method ValuationMethodValuationCd |
|---|---|---|
| Charitable gift annuity funds | $688,268 | F |
| Pooled income funds | $45,110 | F |
| Beneficial interest in remainder trusts | $6,089,998 | F |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Securities | $6,823,376 | TotalBookValueSecuritiesAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (3 entries)
| DescDesc | AmtAmt |
|---|---|
| Pooled income fund obligation | $7,355 |
| Charitable gift annuity obligation | $719,962 |
| Deferred compensation obligation | $560,720 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $1,288,037 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $42,286,470 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$7,304 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $93,026 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $4,737,263 | OtherRevenueAmt |
| Revenue Not Reported | $4,822,985 | RevenueNotReportedAmt |
| Revenue Subtotal | $37,463,485 | RevenueSubtotalAmt |
| Other Revenues Not Included | $882,778 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $882,778 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $38,346,263 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $30,166,590 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $85,361 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $5,135,614 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $5,220,975 | ExpensesNotReportedAmt |
| Expenses Subtotal | $24,945,615 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $882,778 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $882,778 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $25,828,393 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part V, Line 4: | The income earned on these net assets is restricted by the donors for research. Investment earnings on endowment funds are expended for the restricted purpose required in the year earned. |
| Part X, Line 2: | The Foundation has performed an evaluation of its uncertain tax positions for the year ended June 30, 2014, and determined that there were no matters that would require recognition in the consolidated financial statements or that may have any effect on its tax-exempt status. |
| Part XI, Line 2d - Other Adjustments: | Subsidiary revenue included on consolidated financial statements 4,737,263. |
| Part XI, Line 4b - Other Adjustments: | Intercompany grants and management fee 882,778. |
| Part XII, Line 2d - Other Adjustments: | Subsidiary expenses included on consolidated financial statements 5,135,614. |
| Part XII, Line 4b - Other Adjustments: | Intercompany grants and management fee 882,778. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|
| Europe (including Iceland and Greenland) | 0 | 0 | Grantmaking | $1,470,273 |
| Middle East and North Africa | 0 | 0 | Grantmaking | $300,000 |
| South Asia | 0 | 0 | Grantmaking | $100,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $1,870,273 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $1,870,273 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (12 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| Europe (Including Iceland & Greenland) | Research | $392,414 | Check |
| Europe (Including Iceland & Greenland) | Research | $361,300 | Check |
| Europe (Including Iceland & Greenland) | Research | $260,378 | Check |
| Middle East and North Africa | Research | $200,000 | Check |
| Middle East and North Africa | Research | $100,000 | Check |
| Europe (Including Iceland & Greenland) | Research | $100,000 | Check |
| South Asia | Research | $100,000 | Check |
| Europe (Including Iceland & Greenland) | Research | $100,000 | Check |
| Europe (Including Iceland & Greenland) | Research | $99,681 | Check |
| Europe (Including Iceland & Greenland) | Research | $75,000 | Check |
| Europe (Including Iceland & Greenland) | Research | $51,500 | Check |
| Europe (Including Iceland & Greenland) | Research | $30,000 | Check |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 12 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2: | FormAndLineReferenceDesc |
| Explanation | Each grantee is required to submit a yearly scientific progress report, which is reviewed by the FFB science staff and compared with the proposed milestones submitted with the original grant application. Attention is also given to the plan for experiments to be performed in the coming year. Any problems or issues identified by the grantee and/or FFB scientific staff are resolved to our mutual satisfaction; however, if a consensus cannot be reached or if the apparent progress is not satisfactory in the opinion of FFB scientific staff, after consultation with members of the FFB Scientific Advisory Board, the grant is terminated with a short phase out period. Each grantee is required to submit a yearly financial report detailing grant expenditures according to their FFB approved grant budget. Science staff review each financial report for adherence to budgeted expenditures in each category. With proper documentation and if determined appropriate, requests for carryover of unexpended funds to the next fiscal year are reviewed and approved on a case-by-case basis. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (4 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| Dina Beaumont | ||||||||
| 9720 Owen Brown Road | Columbia | MD | 21045 | Special Event Fundraising Counsel | 0 | $298,847 | $48,210 | $250,637 |
| Strategic Fundraising | ||||||||
| 7591 9th Street N | St Paul | MN | 55128 | Telemarketing Fundraising Counsel | 0 | $165,097 | $112,678 | $52,419 |
| Charity Dynamics | ||||||||
| 3420 Executive Center Drive G-100 | Austin | TX | 78731 | Fundraising Counsel | 0 | $0 | $167,172 | -$167,172 |
| NNE Marketing | ||||||||
| 724 Massachusetts Avenue | Arlington | MA | 02476 | Fundraising Counsel | 0 | $0 | $93,271 | -$93,271 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $463,944 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $421,331 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $42,613 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | DC | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | ID | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | IA | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | MT | LicensedStatesCd |
| Licensed States | NE | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | SD | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | TX | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WY | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Name Of Event1 | Dinner - NY | NameOfEvent1Amt |
| Gross Receipts Event1 | $713,894 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $660,314 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $53,580 | GrossRevenueEvent1Amt |
| Rent Facility Costs Event1 | $17,330 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $68,570 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $3,804 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $10,503 | OtherDirectExpensesEvent1Amt |
| Name Of Event2 | Dinner - Boston | NameOfEvent2Amt |
| Gross Receipts Event2 | $525,375 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $495,445 | CharitableContriEvent2Amt |
| Gross Revenue Event2 | $29,930 | GrossRevenueEvent2Amt |
| Rent Facility Costs Event2 | $9,425 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $60,744 | FoodAndBeverageEvent2Amt |
| Entertainment Event2 | $0 | EntertainmentEvent2Amt |
| Other Direct Expenses Event2 | $12,846 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 73 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $8,951,123 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $8,297,323 | CharitableContriOtherEventsAmt |
| Gross Revenue Other Events | $653,800 | GrossRevenueOtherEventsAmt |
| Rent Fclty Costs Other Events | $357,422 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $791,907 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $86,450 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $227,448 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $10,190,392 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $9,453,082 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $737,310 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $384,177 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $921,221 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $90,254 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $250,797 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $1,646,449 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$909,139 | NetIncomeSummaryAmt |
Gaming Information GamingInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Revenue Other Gaming | $22,670 | GrossRevenueOtherGamingAmt |
| Non Cash Prizes Other Gaming | $18,865 | NonCashPrizesOtherGamingAmt |
| Volunteer Labor Other Gaming | 0 | VolunteerLaborOtherGamingInd |
| Gross Revenue Total Gaming | $22,670 | GrossRevenueTotalGamingAmt |
| Non Cash Prizes Total Gaming | $18,865 | NonCashPrizesTotalGamingAmt |
| Direct Expense Summary Gaming | $18,865 | DirectExpenseSummaryGamingAmt |
| Net Gaming Income Summary | $3,805 | NetGamingIncomeSummaryAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| States Where Gaming Conducted | DC | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | FL | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | MN | StatesWhereGamingConductedCd |
| States Where Gaming Conducted | NJ | StatesWhereGamingConductedCd |
| Licensed | Yes (1) | LicensedInd |
| License Suspended Etc | 0 | LicenseSuspendedEtcInd |
| Gaming With Nonmembers | 0 | GamingWithNonmembersInd |
| Member Of Other Entity | 0 | MemberOfOtherEntityInd |
| Gaming Other Facility | 1.00000 | GamingOtherFacilityPct |
| Individual With Books | ANNETTE HINKLE | IndividualWithBooksNm |
Persons With Books US Address PersonsWithBooksUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 7168 COLUMBIA GATEWAY DRIVE 100 | AddressLine1 |
| City | COLUMBIA | City |
| State | MD | State |
| ZIP Code | 21046 | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct With3rd Prty For Game Rev | 0 | CntrctWith3rdPrtyForGameRevInd |
| Gaming Manager Person | ANNETTE HINKLE | GamingManagerPersonNm |
| Gaming Manager Compensation | $0 | GamingManagerCompensationAmt |
| Gaming Manager Is Director Ofcr | Yes (X) | GamingManagerIsDirectorOfcrInd |
| Charitable Distribution Rqr | 0 | CharitableDistributionRqrInd |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (71 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| Foundation Fighting Blindness Clinical Research Institute | |||||||
| 7168 Columbia Gateway Drive | Columbia | MD | 21046 | 450524687 | 501(c)(3) | $782,878 | Research |
| University of Florida | |||||||
| PO Box 100284 | Gainesville | FL | 32610 | 592729133 | 501(c)(3) | $546,404 | Research |
| University of Iowa | |||||||
| 2 Gilmore Hall | Iowa City | IA | 52242 | 237436761 | 501(c)(3) | $517,440 | Research |
| University of Pennsylvania | |||||||
| 3451 Walnut Street | Philadelphia | PA | 19104 | 232810852 | 501(c)(3) | $500,000 | Research |
| Massachusetts Eye and Ear Infirmary | |||||||
| 243 Charles Street | Boston | MA | 02114 | 042103591 | 501(c)(3) | $500,000 | Research |
| Applied Genetic Technologies | |||||||
| 11801 Research Drive Suite D | Alachua | FL | 32615 | 593533710 | N/A | $490,000 | Research |
| Harvard University | |||||||
| 243 Charles Street | Boston | MA | 02114 | 042103580 | 501(c)(3) | $374,614 | Research |
| Oregon Health and Science University | |||||||
| 3375 Terwilliger Boulevard SW | Portland | OR | 97201 | 237083114 | 501(c)(3) | $336,985 | Research |
| University of Wisconsin | |||||||
| 21 North Park Street | Madison | WI | 53715 | 390743975 | 501(c)(3) | $334,569 | Research |
| University of Iowa | |||||||
| 200 Hawkins Drive | Iowa City | IA | 52242 | 237436761 | 501(c)(3) | $329,000 | Research |
| The Cleveland Clinic Foundation | |||||||
| 9500 Euclid Avenue | Cleveland | OH | 44195 | 340714585 | 501(c)(3) | $322,589 | Research |
| University California San Francisco | |||||||
| 100 Stein Plaza | Los Angeles | CA | 90095 | 956006143 | 501(c)(3) | $298,223 | Research |
| Massachusetts Eye and Ear Infirmary | |||||||
| 243 Charles Street | Boston | MA | 02114 | 042103591 | 501(c)(3) | $237,593 | Research |
| Michigan State | |||||||
| 426 Auditorium Road | East Lansing | MI | 48824 | 386005984 | 501(c)(3) | $212,471 | Research |
| University of Michigan | |||||||
| 100 Wall Street | Ann Arbor | MI | 48105 | 386006309 | 501(c)(3) | $212,310 | Research |
| Columbia University | |||||||
| 635 West 165th Street | New York | NY | 10032 | 135598093 | 501(c)(3) | $211,303 | Research |
| The Cleveland Clinic Foundation | |||||||
| 9500 Euclid Avenue | Cleveland | OH | 44195 | 340714585 | 501(c)(3) | $200,000 | Research |
| University of Pennsylvania | |||||||
| 3451 Walnut Street | Philadelphia | PA | 19104 | 232810852 | 501(c)(3) | $194,855 | Research |
| University of Iowa | |||||||
| 200 Hawkins Drive | Iowa City | IA | 52242 | 237436761 | 501(c)(3) | $153,560 | Research |
| University of Oklahoma Health Sciences | |||||||
| 608 Stanton L Young Blvd | Oklahoma City | OK | 73104 | 730762267 | 501(c)(3) | $151,733 | Research |
| University of Wisconsin | |||||||
| 21 North Park Street | Madison | WI | 53715 | 390743975 | 501(c)(3) | $147,000 | Research |
| University of Pennsylvania | |||||||
| 3451 Walnut Street | Philadelphia | PA | 19104 | 232810852 | 501(c)(3) | $140,000 | Research |
| Johns Hopkins University | |||||||
| 600 North Wolfe Street | Baltimore | MD | 21287 | 520595110 | 501(c)(3) | $138,944 | Research |
| University California San Francisco | |||||||
| 100 Stein Plaza | Los Angeles | CA | 90095 | 956006143 | 501(c)(3) | $100,001 | Research |
| University of Oklahoma Health Sciences | |||||||
| 608 Stanton L Young Blvd | Oklahoma City | OK | 73104 | 730762267 | 501(c)(3) | $100,000 | Research |
| University of Oklahoma Health Sciences | |||||||
| 608 Stanton L Young Blvd | Oklahoma City | OK | 73104 | 730762267 | 501(c)(3) | $100,000 | Research |
| University of Minnesota | |||||||
| 200 Oak Street | Minneapolis | MN | 55455 | 416007513 | 501(c)(3) | $100,000 | Research |
| University of Florida | |||||||
| PO Box 115500 | Gainesville | FL | 32610 | 592729133 | 501(c)(3) | $100,000 | Research |
| University of Florida | |||||||
| PO Box 100284 | Gainesville | FL | 32610 | 592729133 | 501(c)(3) | $100,000 | Research |
| University of Chicago | |||||||
| 5801 S Ellis Avenue | Chicago | IL | 60637 | 362177139 | 501(c)(3) | $100,000 | Research |
| Univ Mass Medical Center | |||||||
| S6-408 55 Lake Avenue North | Worchester | MA | 01655 | 043167352 | 501(c)(3) | $100,000 | Research |
| Tufts Univ School of Medicine | |||||||
| 800 Washington Street Box 817 | Boston | MA | 02111 | 042103634 | 501(c)(3) | $100,000 | Research |
| NYU Medical Center | |||||||
| 545 First Avenue GBH-SC1-81 | New York | NY | 10016 | 135562308 | 501(c)(3) | $100,000 | Research |
| Johns Hopkins University | |||||||
| 600 North Wolfe Street | Baltimore | MD | 21287 | 520595110 | 501(c)(3) | $100,000 | Research |
| Foundation of UMDNJ | |||||||
| 90 Bergen Street | Newark | NJ | 07103 | 237313160 | 501(c)(3) | $100,000 | Research |
| Baylor College of Medicine | |||||||
| One Baylor Plaza | Houston | TX | 77030 | 741613878 | 501(c)(3) | $100,000 | Research |
| Florida State University | |||||||
| 600 W College Avenue | Tallahassee | FL | 32306 | 596152180 | 501(c)(3) | $99,997 | Research |
| Indiana University | |||||||
| 509 East Third Street | Bloomington | IN | 47401 | 356001673 | 501(c)(3) | $99,964 | Research |
| Shiley Eye Center | |||||||
| 9500 Gilman Dr | La Jolla | CA | 92093 | 956006144 | 501(c)(3) | $99,446 | Research |
| University of Texas Health Science Center | |||||||
| PO Box 20036 | Houston | TX | 77225 | 741761309 | 501(c)(3) | $98,651 | Research |
| Retina Foundation of the Southwest | |||||||
| 9900 North Central Expressway | Dallas | TX | 75231 | 510151514 | 501(c)(3) | $98,074 | Research |
| University of Washington | |||||||
| 1100 45th Street NE | Seattle | WA | 98105 | 943079432 | 501(c)(3) | $97,251 | Research |
| Louisiana State University | |||||||
| 2020 Gravier Street | New Orleans | LA | 70803 | 721304948 | 501(c)(3) | $95,987 | Research |
| University of Texas Health Science | |||||||
| 1200 Herman Pressler Drive | Houston | TX | 77030 | 741761309 | 501(c)(3) | $95,066 | Research |
| University of Kentucky | |||||||
| 109 Kinkead Hall | Lexington | KY | 40506 | 616033693 | 501(c)(3) | $90,738 | Research |
| Medical University of South Carolina | |||||||
| 167 Ashley Avenue | Charleston | SC | 29425 | 576028985 | 501(c)(3) | $89,440 | Research |
| University of Florida | |||||||
| 1600 SW Archer Road | Gainesville | FL | 32610 | 592729133 | 501(c)(3) | $87,551 | Research |
| Stanford University School of Medicine | |||||||
| SUMC RM L-331 | Stanford | CA | 94305 | 941156365 | 501(c)(3) | $78,107 | Research |
| University of NC Chapel Hill | |||||||
| 104 Airport Drive | Chaple Hill | NC | 27599 | 561150509 | 501(c)(3) | $75,000 | Research |
| University of Michigan | |||||||
| 3003 South State Street | Ann Arbor | MI | 48109 | 386006309 | 501(c)(3) | $75,000 | Research |
| University of Florida | |||||||
| PO Box 100284 | Gainesville | FL | 32610 | 592729133 | 501(c)(3) | $75,000 | Research |
| University of Kentucky | |||||||
| 109 Kinkead Hall | Lexington | KY | 40506 | 616033693 | 501(c)(3) | $74,910 | Research |
| Helen Wills Neuroscience Institute | |||||||
| 112 Barker Hall | Berkeley | CA | 94720 | 946090626 | 501(c)(3) | $74,836 | Research |
| Foundation of UMDNJ | |||||||
| 90 Bergen Street | Newark | NJ | 07103 | 237313160 | 501(c)(3) | $70,137 | Research |
| University of Pennsylvania | |||||||
| 422 Curie Boulevard | Philadelphia | PA | 19104 | 232810852 | 501(c)(3) | $70,000 | Research |
| Massachusetts Eye and Ear Infirmary | |||||||
| 243 Charles Street | Boston | MA | 02114 | 042103591 | 501(c)(3) | $65,000 | Research |
| Kresge Eye Institute | |||||||
| 4717 St Antoine | Detroit | MI | 48201 | 383474766 | N/A | $65,000 | Research |
| University of Florida | |||||||
| PO Box 100284 | Gainesville | FL | 32610 | 592729133 | 501(c)(3) | $50,000 | Research |
| Univ of Massachusetts Medical School | |||||||
| 55 Lake Avenue North | Worchester | MA | 01655 | 043167352 | 501(c)(3) | $45,261 | Research |
| Oregon Health and Science University | |||||||
| 3375 Terwilliger Boulevard SW | Portland | OR | 97201 | 237083114 | 501(c)(3) | $43,333 | Research |
| University of California San Diego | |||||||
| 9500 Gilman Drive | La Jolla | CA | 92037 | 956006144 | 501(c)(3) | $40,000 | Research |
| The Cleveland Clinic Foundation | |||||||
| 9500 Euclid Avenue | Cleveland | OH | 44195 | 340714585 | 501(c)(3) | $40,000 | Research |
| Columbia University | |||||||
| 630 West 168th Street | New York | NY | 10032 | 135598093 | 501(c)(3) | $40,000 | Research |
| Johns Hopkins University | |||||||
| 600 North Wolfe Street | Baltimore | MD | 21287 | 520595110 | 501(c)(3) | $39,000 | Research |
| Case Western Reserve University | |||||||
| 10900 Euclid Avenue | Cleveland | OH | 44106 | 341018992 | 501(c)(3) | $35,000 | Research |
| University of Pennsylvania | |||||||
| 3451 Walnut Street | Philadelphia | PA | 19104 | 232810852 | 501(c)(3) | $29,196 | Research |
| Johns Hopkins University | |||||||
| 600 North Wolfe Street | Baltimore | MD | 21287 | 520595110 | 501(c)(3) | $22,500 | Research |
| University of Pennsylvania | |||||||
| 3451 Walnut Street | Philadelphia | PA | 19104 | 232810852 | 501(c)(3) | $20,057 | Research |
| Helen Wills Neuroscience Institute | |||||||
| 112 Barker Hall | Berkeley | CA | 94720 | 946090626 | 501(c)(3) | $20,000 | Research |
| University of California Berkeley | |||||||
| 2150 Shattuck Avenue | Berkeley | CA | 94720 | 946002123 | 501(c)(3) | $19,822 | Research |
| Net prior year grant refunds | |||||||
| -$1,302 | Net prior year grant refunds | ||||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 68 | Total501c3OrgCnt |
| Total Other Org | 2 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part I, Line 2: | FormAndLineReferenceDesc |
| Explanation | Each grantee is required to submit a yearly scientific progress report, which is reviewed by the FFB science staff and compared with the proposed milestones submitted with the original grant application. Attention is also given to the plan for experiments to be performed in the coming year. Any problems or issues identified by the grantee and/or FFB scientific staff are resolved to our mutual satisfaction; however, if a consensus cannot be reached or if the apparent progress is not satisfactory in the opinion of FFB scientific staff, after consultation with members of the FFB Scientific Advisory Board, the grant is terminated with a short phase out period. Each grantee is required to submit a yearly financial report detailing grant expenditures according to their FFB approved grant budget. Science staff review each financial report for adherence to budgeted expenditures in each category. With proper documentation and if determined appropriate, requests for carryover of unexpended funds to the next fiscal year are reviewed and approved on a case-by-case basis. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| William Schmidt | ||||||||||||||
| Chief Executive Officer | $322,751 | $0 | $0 | $0 | $0 | $0 | $5,736 | $0 | $1,916 | $0 | $330,403 | $0 | $0 | $0 |
| James Minow | ||||||||||||||
| Chief Development Officer | $241,637 | $0 | $0 | $0 | $0 | $0 | $7,245 | $0 | $7,944 | $0 | $256,826 | $0 | $0 | $0 |
| Patricia Zilliox | ||||||||||||||
| Chief Drug Development Officer | $0 | $220,068 | $0 | $0 | $0 | $0 | $0 | $6,585 | $0 | $2,546 | $0 | $229,199 | $0 | $0 |
| Stephen Rose | ||||||||||||||
| Chief Research Officer | $212,557 | $0 | $0 | $0 | $0 | $0 | $6,603 | $0 | $18,847 | $0 | $238,007 | $0 | $0 | $0 |
| Annette Hinkle | ||||||||||||||
| Chief Financial Officer | $191,312 | $0 | $0 | $0 | $0 | $0 | $5,769 | $0 | $7,601 | $0 | $204,682 | $0 | $0 | $0 |
| Pat Dudley | ||||||||||||||
| Chief Human Resource Officer | $137,544 | $0 | $0 | $0 | $0 | $0 | $3,703 | $0 | $18,262 | $0 | $159,509 | $0 | $0 | $0 |
| Susan Brumley | ||||||||||||||
| Sr. National Director Major Gifts | $158,999 | $0 | $0 | $0 | $0 | $0 | $4,960 | $0 | $13,305 | $0 | $177,264 | $0 | $0 | $0 |
| Brian Mansfield | ||||||||||||||
| Deputy Chief Research Officer | $150,221 | $0 | $0 | $0 | $0 | $0 | $4,756 | $0 | $18,371 | $0 | $173,348 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 34 | ContributionCnt |
| Noncash Contributions Rpt F990 | $4,678,189 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | Fair Market Value | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | Event items | Desc |
| Contribution | 0 | ContributionCnt |
| Noncash Contributions Rpt F990 | $786,437 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | Fair Market Value | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (8 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section A, line 2 | Edward Russnow, Director, has a family relationship with Edward Gollob, President. |
| Form 990, Part VI, Section A, line 6 | Members of FFB are known as National Trustees. The qualifications and eligibility for membership and the manner of admission into membership is prescribed by resolution of the Board of Directors. The National Trustees are entitled to vote on election of directors. |
| Form 990, Part VI, Section A, line 7a | During the annual meeting of the National Trustees, members of the Board of Directors are elected. |
| Form 990, Part VI, Section B, line 11 | Data to prepare the federal Form 990 is provided to our outside accounting firm for preparation and guidance. After it has been completed, a draft of the federal Form 990 is reviewed by the Chief Financial Officer. With the CFO's approval the draft federal Form 990 is then made available to all Board members. All board members are invited to attend a special meeting of the Finance Committee to review the federal Form 990. A final draft is made available to all Board members before filing. |
| Form 990, Part VI, Section B, line 12c | Conflict of interest policy forms are obtained upon Board election and hiring. New forms are obtained at the beginning of every fiscal year. Senior management and Board members are aware that conflict of interests must be documented and disclosed to the Board of Directors. Finance staff review activity throughout the year for proper disclosure. |
| Form 990, Part VI, Section B, line 15 | The Compensation Committee approves the compensation of the Cheif Executive Officer and other Chief Officers. On a routine basis, external data provided by outside expert compensation consultants is used to measure reasonableness of salaries to the market place and results are communicated by outside consultants to the Board Chair/Compensation Committee. |
| Form 990, Part VI, Section C, line 19 | FFB's federal Form 990 and consolidated audited financial statements are available at www.fightblindness.org. Other public governing documents including the conflict of interest policy are available upon request through the contact information disclosed on FFB's web site. |
| Part VII, Section A | Part VII FFB acts as the common paymaster for the Foundation Fighting Blindness Clinical Research Institute, a related organization. |
Schedule R IRS990ScheduleR
Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (3 entries)
| Address Line1USAddress/AddressLine1 | CityUSAddress/City | StateUSAddress/State | ZIP CodeUSAddress/ZIPCode | EINEIN | Primary ActivitiesPrimaryActivitiesTxt | Legal Domicile StateLegalDomicileStateCd | Exempt Code SectionExemptCodeSectionTxt | Public Charity StatusPublicCharityStatusTxt | Business Name Line1DirectControllingEntityName/BusinessNameLine1 | Controlled OrganizationControlledOrganizationInd |
|---|---|---|---|---|---|---|---|---|---|---|
| Foundation Fighting Blindness Clinical Research Institute | ||||||||||
| 7168 Columbia Gateway Drive Suite 1 | Columbia | MD | 21046 | 450524687 | Research | DE | 501(c)(3) | Line 11a | Foundation Fighting Blindness | Yes (1) |
| Macular Degeneration International Inc | ||||||||||
| 7168 Columbia Gateway Drive Suite 1 | Columbia | MD | 21046 | 363923922 | Fundraising | IL | 501(c)(3) | Line 7 | Foundation Fighting Blindness | Yes (1) |
| National Retinitis Pigmentosa Foundation | ||||||||||
| 7168 Columbia Gateway Drive Suite 1 | Columbia | MD | 21046 | 522072391 | Fundraising | MD | 501(c)(3) | Line 11a | Foundation Fighting Blindness | Yes (1) |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Receipt Of Int Annts Rnts Rylts | 0 | ReceiptOfIntAnntsRntsRyltsInd |
| Gift Grnt Or Cap Contri To Oth Org | Yes (1) | GiftGrntOrCapContriToOthOrgInd |
| Gift Grnt Cap Contri From Oth Org | 0 | GiftGrntCapContriFromOthOrgInd |
| Loans Or Guarantees To Other Org | 0 | LoansOrGuaranteesToOtherOrgInd |
| Loans Or Guarantees From Oth Org | 0 | LoansOrGuaranteesFromOthOrgInd |
| Div Related Organization | 0 | DivRelatedOrganizationInd |
| Asset Sale To Other Org | 0 | AssetSaleToOtherOrgInd |
| Asset Purchase From Other Org | 0 | AssetPurchaseFromOtherOrgInd |
| Asset Exchange | 0 | AssetExchangeInd |
| Rental Of Facilities To Oth Org | 0 | RentalOfFacilitiesToOthOrgInd |
| Rental Of Fclts From Oth Org | 0 | RentalOfFcltsFromOthOrgInd |
| Perform Of Services For Oth Org | Yes (1) | PerformOfServicesForOthOrgInd |
| Perform Of Services By Other Org | 0 | PerformOfServicesByOtherOrgInd |
| Sharing Of Facilities | Yes (1) | SharingOfFacilitiesInd |
| Paid Employees Sharing | Yes (1) | PaidEmployeesSharingInd |
| Reimbursement Paid To Other Org | 0 | ReimbursementPaidToOtherOrgInd |
| Reimbursement Paid By Other Org | 0 | ReimbursementPaidByOtherOrgInd |
| Transfer To Other Org | 0 | TransferToOtherOrgInd |
| Transfer From Other Org | 0 | TransferFromOtherOrgInd |
Transactions Related Org TransactionsRelatedOrgGrp (3 entries)
| Transaction TypeTransactionTypeTxt | InvolvedInvolvedAmt | Method Of Amount DeterminationMethodOfAmountDeterminationTxt |
|---|---|---|
| Foundation Fighting Blindness Clinical Research Institute | ||
| B | $782,878 | FMV |
| Foundation Fighting Blindness Clinical Research Institute | ||
| L | $99,900 | FMV |
| Foundation Fighting Blindness Clinical Research Institute | ||
| O | $430,566 | FMV |
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