CHOROIDEREMIA RESEARCH FOUNDATION INC: Form 990, tax year 2013

View the entire original 990 at ProPublica ↗

Organization
CHOROIDEREMIA RESEARCH FOUNDATION INC (EIN 04-3511754)
Tax period
2013-07-01 to 2014-06-30
Filed
2015-03-02
IRS object ID
201520619349300402
Schema version
2013v4.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2015-03-02T09:27:34-00:00ReturnTs
Tax Period End2014-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1NICHOLAS LaPIER CPA PCBusinessNameLine1

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line171 PARK AVE ST PO BOX 324AddressLine1
CityW SPRINGFIELDCity
StateMAState
ZIP Code010900324ZIPCode
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2013-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN043511754EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHOROIDEREMIA RESEARCH FOUNDATION INCBusinessNameLine1
FieldValueIRS element (for citing)
Business Name ControlCHORBusinessNameControlTxt
Phone4137812274PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line123 E BRUNDRETH STREETAddressLine1
CitySPRINGFIELDCity
StateMAState
ZIP Code011092110ZIPCode

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonERIC HARTMANPersonNm
Person TitleEXECUTIVE DIRECTORPersonTitleTxt
Signature2015-03-02SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonNICHOLAS LaPIERPreparerPersonNm
Phone4137320200PhoneNum
Preparation2015-03-02PreparationDt
FieldValueIRS element (for citing)
Tax2013TaxYr
Build TS2016-03-07 17:11:31ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerBETH FOSSPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1902 Jenny TerraceAddressLine1
CitySOUTHLAKECity
StateTXState
ZIP Code76092ZIPCode
FieldValueIRS element (for citing)
Gross Receipts$380,133GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.choroideremia.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2000FormationYr
Legal Domicile StateMALegalDomicileStateCd
Activity Or MissionTo raise funds to hasten medical research for a cure or treatment of Choroideremia as well as promote greater understanding of this inherited degenerative eye condition to those affected, the medical and research communities, and the public at large.ActivityOrMissionDesc
Voting Members Governing Body19VotingMembersGoverningBodyCnt
Voting Members Independent19VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$518,215PYContributionsGrantsAmt
CY Contributions Grants$378,872CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$2,068PYInvestmentIncomeAmt
CY Investment Income$1,261CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$520,283PYTotalRevenueAmt
CY Total Revenue$380,133CYTotalRevenueAmt
PY Grants And Similar Paid$219,500PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$235,083CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
CY Salaries Comp Emp Bnft Paid$0CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
PY Other Expenses$66,899PYOtherExpensesAmt
CY Other Expenses$101,717CYOtherExpensesAmt
PY Total Expenses$286,399PYTotalExpensesAmt
CY Total Expenses$336,800CYTotalExpensesAmt
PY Revenues Less Expenses$233,884PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$43,333CYRevenuesLessExpensesAmt
Total Assets BOY$841,613TotalAssetsBOYAmt
Total Assets EOY$884,946TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$841,613NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$884,946NetAssetsOrFundBalancesEOYAmt
MissionTO RAISE FUNDS TO HASTEN MEDICAL RESEARCH FOR CURE OR TREATMENT OF CHOROIDEREMIAMissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$308,261ExpenseAmt
DescTO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCHDesc
Total Program Service Expenses$308,261TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficeYes (true)ForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsfalseGrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Invest Tax Exempt BondsfalseInvestTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document3IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld CompliancefalseBackupWthldComplianceInd
Employee0EmployeeCnt
Employment Tax Returns FiledfalseEmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Excess Business HoldingsfalseExcessBusinessHoldingsInd
Taxable DistributionsfalseTaxableDistributionsInd
Distribution To DonorfalseDistributionToDonorInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members19GoverningBodyVotingMembersCnt
Independent Voting Member19IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Policies Reference ChaptersfalsePoliciesReferenceChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyfalseConflictOfInterestPolicyInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyfalseDocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonLaura OggPersonNm
Phone8175712533PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line12500 Wiltshire StreetAddressLine1
CityBedfordCity
StateTXState
ZIP Code76021ZIPCode
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (18 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndFormer Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
MARK HUYSER-WIERENGA
DIRECTOR001.00Yes (X)$0$0$0
MARK DEVOE
DIRECTOR001.00Yes (X)$0$0$0
GARRY DEAN
DIRECTOR001.00Yes (X)$0$0$0
THOMAS DRISCOLL
DIRECTOR001.00Yes (X)$0$0$0
IAN MACDONALD MD
DIRECTOR001.00Yes (X)$0$0$0
JOHN OSTER
DIRECTOR001.00Yes (X)$0$0$0
MARION SCOTT
DIRECTOR001.00Yes (X)$0$0$0
NICK TUFTNELL
DIRECTOR001.00Yes (X)$0$0$0
LISA VOLKER
DIRECTOR001.00Yes (X)$0$0$0
DERRY WALSH
DIRECTOR001.00Yes (X)$0$0$0
JANET ROWLEY
DIRECTOR001.00Yes (X)$0$0$0
NEAL BENCH
DIRECTOR001.00Yes (X)$0$0$0
BETH FOSS
PRESIDENT001.00$0$0$0Yes (X)
CHRISTOPHER MOEN MD
1ST VP001.00$0$0$0Yes (X)
JEFF BENELI
2ND VP001.00$0$0$0Yes (X)
LIN OGG
TREASURER001.00$0$0$0Yes (X)
DANIEL BOREN
SECRETARY001.00$0$0$0Yes (X)
H ERIC HARTMAN
DIRECTOR001.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Former Ofcr Employees ListedYes (true)FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$378,872AllOtherContributionsAmt
Total Contributions$378,872TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,261TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$380,133TotalRevenueColumnAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$235,083TotalAmt
Program Services$235,083ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$2,991TotalAmt
Program Services$2,991ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Fees For Services Prof FundraisingFeesForServicesProfFundraising

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$359TotalAmt
Program Services$359ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$3,479TotalAmt
Management And General$3,479ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$6,938TotalAmt
Management And General$6,938ManagementAndGeneralAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$1,643TotalAmt
Program Services$1,643ProgramServicesAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$402TotalAmt
Program Services$402ProgramServicesAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$280TotalAmt
Management And General$280ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmt
CONTRACTED PERSONNEL$35,651$17,826$17,825
Symposium$15,602$15,602
CONFERENCES$30,102$30,102
BANK CHARGES$4,270$4,253$17

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$336,800TotalAmt
Program Services$308,261ProgramServicesAmt
Management And General$28,539ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$841,613BOYAmt
EOY$883,153EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$2,195LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$402LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
EOY$1,793EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$841,613BOYAmt
EOY$884,946EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$841,613BOYAmt
EOY$884,946EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$841,613BOYAmt
EOY$884,946EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$841,613BOYAmt
EOY$884,946EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$43,333ReconcilationRevenueExpnssAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind
Public Support Total170$0PublicSupportTotal170Amt
Public Support CY1700.00000PublicSupportCY170Pct

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$244,506CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$486,586CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$409,738CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$517,572CurrentTaxYearMinus1YearAmt
Current Tax Year$378,650CurrentTaxYearAmt
Total$2,037,052TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$244,506CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$486,586CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$409,738CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$517,572CurrentTaxYearMinus1YearAmt
Current Tax Year$378,650CurrentTaxYearAmt
Total$2,037,052TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$118,754CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$56,000CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$97,256CurrentTaxYearMinus1YearAmt
Current Tax Year$57,097CurrentTaxYearAmt
Total$329,107TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$118,754CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$56,000CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$97,256CurrentTaxYearMinus1YearAmt
Current Tax Year$57,097CurrentTaxYearAmt
Total$329,107TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$1,707,945PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$619CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$911CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,068CurrentTaxYearMinus1YearAmt
Current Tax Year$1,261CurrentTaxYearAmt
Total$4,859TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$619CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$911CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,068CurrentTaxYearMinus1YearAmt
Current Tax Year$1,261CurrentTaxYearAmt
Total$4,859TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$244,506CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$487,205CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$410,649CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$519,640CurrentTaxYearMinus1YearAmt
Current Tax Year$379,911CurrentTaxYearAmt
Total$2,041,911TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.83640PublicSupportCY509Pct
Public Support PY5090.96650PublicSupportPY509Pct
Investment Income CY0.00240InvestmentIncomeCYPct
Investment Income PY0.00200InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Incl Escrow Custodial Acct LiabfalseInclEscrowCustodialAcctLiabInd

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$2,195OtherCostOrOtherBasisAmt
Depreciation$402DepreciationAmt
Book Value$1,793BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$1,793TotalBookValueLandBuildingsAmt

Other Securities OtherSecuritiesGrp (2 entries)

DescDesc
Financial derivatives and other financial products
Closely-held equity interests

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescFederal income taxesDesc
FieldValueIRS element (for citing)
Total Rev Etc Audited Fincl Stmt$380,133TotalRevEtcAuditedFinclStmtAmt
Revenue Subtotal$380,133RevenueSubtotalAmt
Total Revenue Per Form990$380,133TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$336,800TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$336,800ExpensesSubtotalAmt
Total Expenses Per Form990$336,800TotalExpensesPerForm990Amt

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EuropeFor Choroideremia Research$162,162Check
North AmericaFor Choroideremia Research$29,221Check
EuropeFor Choroideremia Research$43,700Check
FieldValueIRS element (for citing)
Total Other Org3TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonH ERIC HARTMANPersonNm
TitleDIRECTORTitleTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11THE BOARD MEMBERS ARE PROVIDED WITH A COPY OF THE 990 FOR REVIEW BEFORE APPROVAL
Form 990, Part XII, Line 2CCOORDINATION OF THE AUDIT IS BY THE DIRECTOR, EXECUTIVE DIRECTOR, AND TREASURER, THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS ARE ACTIVELY INVOLVED AS WELL

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