PKD FOUNDATION: Form 990, tax year 2015
View the entire original 990 at ProPublica ↗
- Organization
- PKD FOUNDATION (EIN 43-1266906)
- Tax period
- 2015-07-01 to 2016-06-30
- Filed
- 2016-11-15
- IRS object ID
- 201603209349305790
- Schema version
- 2015v2.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2016-11-15T11:21:37-06:00 | ReturnTs |
| Tax Period End | 2016-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 410746749 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CLIFTONLARSONALLEN LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 2301 VILLAGE DRIVE | AddressLine1Txt |
| City | ST JOSEPH | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64506 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2015-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 431266906 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PKD FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PKDF | BusinessNameControlTxt |
| Phone | 8169312600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1001 E 101ST TER NO 220 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64131 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | RAY SMITH | PersonNm |
| Person Title | CHIEF FINANCIAL OFFICER | PersonTitleTxt |
| Phone | 8169312600 | PhoneNum |
| Signature | 2016-11-14 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | CRISTINA WIEBELT-SMITH CPA | PreparerPersonNm |
| PTIN | P01285393 | PTIN |
| Phone | 8162328441 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2015 | TaxYr |
| Build TS | 2017-02-10 21:41:12Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | JACKIE HANCOCK JR | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1001 E 101ST TER NO 220 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64131 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $11,443,342 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.PKDCURE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1982 | FormationYr |
| Legal Domicile State | MO | LegalDomicileStateCd |
| Activity Or Mission | PROMOTE PROGRAMS OF RESEARCH AND EDUCATION TO DISCOVER TREATMENTS AND A CURE FOR PKD. | ActivityOrMissionDesc |
| Voting Members Governing Body | 15 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 15 | VotingMembersIndependentCnt |
| Total Employee | 50 | TotalEmployeeCnt |
| Total Volunteers | 2400 | TotalVolunteersCnt |
| Total Gross UBI | $1,485 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | -$249 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $7,539,923 | PYContributionsGrantsAmt |
| CY Contributions Grants | $5,881,314 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $7,014 | PYInvestmentIncomeAmt |
| CY Investment Income | $24,748 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$39,158 | PYOtherRevenueAmt |
| CY Other Revenue | -$37,095 | CYOtherRevenueAmt |
| PY Total Revenue | $7,507,779 | PYTotalRevenueAmt |
| CY Total Revenue | $5,868,967 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,886,950 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $1,770,056 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $2,708,941 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $2,792,233 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $15,999 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $79,200 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $641,711 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,884,376 | PYOtherExpensesAmt |
| CY Other Expenses | $1,988,701 | CYOtherExpensesAmt |
| PY Total Expenses | $6,496,266 | PYTotalExpensesAmt |
| CY Total Expenses | $6,630,190 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $1,011,513 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$761,223 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $6,476,331 | TotalAssetsBOYAmt |
| Total Assets EOY | $5,695,290 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $941,887 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $855,835 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $5,534,444 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $4,839,455 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $2,412,722 | ExpenseAmt |
| Grant | $1,770,056 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | RESEARCHSINCE ITS FOUNDING IN 1982, THE PKD FOUNDATION HAS INVESTED MORE THAN $42 MILLION IN RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, AS WELL AS FELLOWSHIPS AND SCIENTIFIC MEETINGS, MAKING US THE LARGEST PRIVATE FUNDER OF POLYCYSTIC KIDNEY DISEASE (PKD) RESEARCH. THIS HAS LED TO NEW DISCOVERIES ABOUT PKD, INCLUDING IDENTIFYING THE GENES RESPONSIBLE FOR PKD, WHICH ENABLES RESEARCHERS TO INVESTIGATE POSSIBLE TREATMENTS. THE FOUNDATION HAS A COMPREHENSIVE, INTEGRATED RESEARCH AND DEVELOPMENT PROGRAM THAT REPRESENTS THE CORE OF OUR WORK, AIMED TO SPEED UP DEVELOPMENT OF TREATMENTS WHICH COULD SLOW OR STOP THE PROGRESSION OF PKD. THE FOUNDATION'S FISCAL YEAR INVESTMENT IN RESEARCH IS OUTLINED BELOW.RESEARCH GRANTS: INVESTED $1,160,000 ON GRANT FUNDING TO 15 PKD PROJECTS THAT FOCUS ON THE DEVELOPMENT OF A TREATMENT FOR PKD OR ON UNDERSTANDING THE WAY IN WHICH CYSTS DEVELOP OR ENLARGE IN PKD.FELLOWSHIPS: PROVIDED $500,000 IN SEED MONEY TO ESTABLISH THE JARED J. GRANTHAM RESEARCH FELLOWSHIP IN PERPETUITY. THIS INVESTMENT WAS MATCHED WITH $1.5 MILLION BY THE AMERICAN SOCIETY OF NEPHROLOGY.CORE GRANTS: INVESTED $70,000 TO SUPPORT CORE RESEARCH GRANTS SERVICES AND RESOURCES FOR PKD SCIENTISTS IN THREE CORE LABS SO THAT FOUNDATION DOLLARS CAN BE LEVERAGED ACROSS THE PKD RESEARCH COMMUNITY.DRUG REPURPOSING: INVESTED $27,000 TO MAINTAIN PKD-SPECIFIC MOUSE COLONIES AND ENSURE AVAILABILITY FOR COMPOUND TESTING. INVESTED $30,000 TO FUND THE COST OF MEDICATIONS FOR A PKD CLINICAL TRIAL ON A REPURPOSED DRUG APPROVED BY THE FDA TO TREAT TYPE 2 DIABETES.SCIENTIFIC MEETINGS: INVESTED $83,122 TO FUND PKD-RELATED MEETINGS THAT BRING EXPERTS TOGETHER AND PROVIDE CONTINUING EDUCATION FOR HEALTH PROFESSIONALS.TISSUE DONATION PROGRAM: INVESTED $10,000 TO COORDINATE DONATIONS OF DISCARDED PKD KIDNEYS TO RESEARCH LABS, ALLOWING PATIENTS TO ACTIVELY PARTICIPATE AND SUPPORT DISCOVERY RESEARCH.CLINICAL TRIAL AWARENESS PROGRAM (CTAP): INVESTED $25,000 TO SUPPORT PARTICIPATION IN CLINICAL TRIALS BY RAISING AWARENESS THROUGH PKD FOUNDATION PATIENTS, FAMILIES AND HEALTH CARE PROFESSIONALS. SEVEN CLINICAL TRIAL ALERTS WERE SENT DURING THE FISCAL YEAR. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,550,409 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $9,780 | RevenueAmt |
| Desc | EDUCATION AND SUPPORTTHE FOUNDATION PROVIDES LOCAL SERVICES THROUGH ITS MORE THAN 60 VOLUNTEER-RUN CHAPTERS ACROSS THE COUNTRY. THESE VOLUNTEERS BRING TO LIFE THE MISSION OF THE ORGANIZATION BY ENSURING THAT NO ONE FACES THIS DISEASE ALONE. EDUCATION MEETINGS PROVIDE VALUABLE INFORMATION FROM HEALTH CARE PROFESSIONALS, WHILE SUPPORT ACTIVITIES RANGE FROM LENDING A LISTENING EAR TO ORGANIZED GROUP OUTINGS. THIS YEAR ALONE, OUR CHAPTERS HELD 212 EDUCATION AND SUPPORT EVENTS.CHAPTERS RAISE FUNDS FOR THE FOUNDATION THROUGH EVENTS WHICH ALSO INCREASE AWARENESS OF PKD AND CONNECT LOCAL PATIENTS AND FAMILIES TO EACH OTHER. EIGHTY-NINE CHAPTER FUNDRAISING AND THIRD- PARTY EVENTS WERE HELD THIS YEAR THAT RAISED $387,000. CHAPTERS ALSO RAISE AWARENESS AND MONEY THROUGH THE WALK FOR PKD, THE FOUNDATION'S SIGNATURE FUNDRAISING AND PUBLIC AWARENESS EVENT. THE WALK TAKES PLACE IN MORE THAN 50 CITIES ACROSS THE NATION EACH YEAR AND HAS RAISED NEARLY $26 MILLION SINCE 2000.ON A NATIONAL LEVEL, THE FOUNDATION PROVIDES IN-DEPTH RESOURCES AND EDUCATION ABOUT LIVING WITH PKD TO EMPOWER PEOPLE TO MANAGE THEIR HEALTH. OFFERINGS INCLUDE WEBINARS, VIDEOS, A MULTI-FACETED WEBSITE (PKDCURE.ORG/LEARN), ONLINE COMMUNITIES AND PRINT MATERIALS. THE BIENNIAL PKD NATIONAL CONVENTION IS THE FOUNDATION'S LARGEST EDUCATION EVENT. THE 2016 CONVENTION WAS ATTENDED BY MORE THAN 400 PKD PATIENTS, FAMILIES, VOLUNTEERS AND RESEARCHERS TO SHARE THE LATEST IN PKD RESEARCH AND SCIENCE, TO LEARN TOGETHER AND TO CONNECT WITH OTHERS IN THE PKD COMMUNITY. THIS YEAR, CONVENTION ATTENDEES HAD THE OPPORTUNITY TO CHOOSE FROM 45 EDUCATION SESSIONS ON TOPICS INCLUDING DIET AND NUTRITION, PAIN AND PKD, POTENTIAL NEW THERAPIES, TRANSPLANTATION AND MORE. ADDITIONALLY, 13 WEBINARS WERE ATTENDED OR VIEWED BY MORE THAN 2,500 PEOPLE.THE PKD PATIENT HANDBOOK IS AVAILABLE FOR PEOPLE WITH ADPKD TO HELP THEM NAVIGATE THEIR DISEASE. IT WAS SENT TO 3,306 PEOPLE LAST YEAR. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,055,928 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | AWARENESS AND ADVOCACYTHE FOUNDATION RAISES AWARENESS THROUGH MARKETING AND PUBLIC RELATIONS SO PEOPLE KNOW WHAT PKD IS, ABOUT THE FOUNDATION AND HOW TO DONATE. MARKETING MATERIALS INCLUDE PKD PROGRESS MAGAZINE, PKDEWS MONTHLY EMAIL NEWSLETTER, SOCIAL MEDIA, DISCUSSION FORUMS, BLOGS AND PKDCURE.ORG. VOICES OF PKD (PKDCURE.ORG/VOICESOFPKD) FEATURES TESTIMONIALS AND STORIES ABOUT PEOPLE'S EXPERIENCES WITH THE DISEASE. THERE WAS A SIGNIFICANT INCREASE ON SOCIAL MEDIA, REACHING MORE THAN 33,000 FOLLOWERS. OUR WEBSITES RECEIVED 604,952 VISITS AND THE PKD CONNECTION BLOG RECEIVED 67,063 VISITS. DISCUSSION FORUMS RECEIVED 14,112 VISITS AND THREE ISSUES OF PKD PROGRESS WERE SENT TO MORE THAN 20,000 MEMBERS OF THE PKD COMMUNITY.THE FOUNDATION PLAYS A KEY ROLE IN LEGISLATIVE ADVOCACY TO SUPPORT PKD-RELATED INITIATIVES. THE PKD ADVOCACY ACTION CENTER (PKDCURE.ORG/ADVOCATE) THAT PROVIDES RESOURCES AND WAYS FOR PEOPLE TO ADVOCATE RECEIVED 6,307 VISITORS, AND 5,137 PEOPLE RECEIVE ADVOCACY ALERTS ABOUT LEGISLATIVE AND PUBLIC POLICY ISSUES IMPACTING PKD PATIENTS AND FAMILIES. THE FOUNDATION JOINS WITH OTHER KIDNEY DISEASE-RELATED ORGANIZATIONS IN EVENTS THAT ALLOW ADVOCATES TO MEET WITH MEMBERS OF CONGRESS TO RAISE AWARENESS OF PKD AND DISCUSS LEGISLATIVE PRIORITIES. PKD FOUNDATION STAFF MEMBERS AND PATIENTS ATTENDED THREE EVENTS IN WASHINGTON, D.C. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $5,019,059 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | 0 | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 28 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 50 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 15 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 15 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RAY SMITH | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8169312600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1001 E 101ST TER STE 220 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64131 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part VII | Yes (X) | InfoInScheduleOPartVIIInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| NELSON BROCK | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| GUAY-WOODFARD DR LISA | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ODLAND DWIGHT | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ROBERTS JULIA | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RONA JEFFREY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| WAXMAN JERRY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RAMSEYER CRAIG | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| CONWAY PAUL | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| WATNICK DR TERRY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| KARL MICHELE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| KRINGSTEIN ANDREA | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| KLEBER KLEE | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| RYAN ANNE | |||||||
| SECRETARY | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| TOWEY JR FRAN | |||||||
| TREASURER | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| CONDELLA JR FRANK | |||||||
| VICE CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| COWLEY JR DR BENJAMIN | |||||||
| CHAIR | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| HANCOCK JACKIE JR | |||||||
| CEO | 40.00 | $198,455 | $0 | $46,640 | Yes (X) | ||
| SMITH RAY | |||||||
| CHIEF FINANCIAL OFFICER | 40.00 | $146,417 | $0 | $31,546 | Yes (X) | ||
| DAVIS-WINGATE MICHELLE | |||||||
| CHIEF DEVELOPMENT OFFICER | 40.00 | $128,080 | $0 | $34,710 | Yes (X) | ||
| CONNELLY ANGELA | |||||||
| CHIEF MARKETING OFFICER | 40.00 | $118,230 | $0 | $33,717 | Yes (X) | ||
| BARON DAVID | |||||||
| CHIEF SCIENTIFIC OFFICER | 40.00 | $159,348 | $0 | $24,118 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $750,530 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $170,731 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 5 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
| Cntrct Rcvd Greater Than100 K | 0 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $312,693 | FundraisingAmt |
| All Other Contributions | $5,568,621 | AllOtherContributionsAmt |
| Noncash Contributions | $66,088 | NoncashContributionsAmt |
| Total Contributions | $5,881,314 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $31,733 | TotalRevenueColumnAmt |
| Exclusion | $31,733 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $5,488,568 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $5,495,553 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$6,985 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$6,985 | TotalRevenueColumnAmt |
| Exclusion | -$6,985 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $30,300 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $312,693 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $60,366 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$30,066 | TotalRevenueColumnAmt |
| Exclusion | -$30,066 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $9,780 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $18,456 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$8,676 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$8,676 | RelatedOrExemptFuncIncomeAmt |
Other Revenue Misc OtherRevenueMiscGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Unrelated Business RevenueUnrelatedBusinessRevenueAmt | ExclusionExclusionAmt |
|---|---|---|---|---|
| ADVERTISING | 511120 | $1,485 | $1,485 | |
| MISCELLANEOUS INCOME | 900099 | $162 | $162 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $1,647 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $5,868,967 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$8,676 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $1,485 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$5,156 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,644,474 | TotalAmt |
| Program Services | $1,644,474 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $125,582 | TotalAmt |
| Program Services | $125,582 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $409,894 | TotalAmt |
| Program Services | $124,899 | ProgramServicesAmt |
| Management And General | $222,545 | ManagementAndGeneralAmt |
| Fundraising | $62,450 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,653,748 | TotalAmt |
| Program Services | $1,180,485 | ProgramServicesAmt |
| Management And General | $265,980 | ManagementAndGeneralAmt |
| Fundraising | $207,283 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $119,361 | TotalAmt |
| Program Services | $79,978 | ProgramServicesAmt |
| Management And General | $560 | ManagementAndGeneralAmt |
| Fundraising | $38,823 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $429,135 | TotalAmt |
| Program Services | $290,618 | ProgramServicesAmt |
| Management And General | $99,668 | ManagementAndGeneralAmt |
| Fundraising | $38,849 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $180,095 | TotalAmt |
| Program Services | $115,589 | ProgramServicesAmt |
| Management And General | $41,147 | ManagementAndGeneralAmt |
| Fundraising | $23,359 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $100,702 | TotalAmt |
| Program Services | $7,427 | ProgramServicesAmt |
| Management And General | $90,174 | ManagementAndGeneralAmt |
| Fundraising | $3,101 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $26,200 | TotalAmt |
| Management And General | $26,200 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $58,120 | TotalAmt |
| Program Services | $58,120 | ProgramServicesAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $79,200 | TotalAmt |
| Fundraising | $79,200 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,417 | TotalAmt |
| Management And General | $3,417 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $86,631 | TotalAmt |
| Program Services | $69,635 | ProgramServicesAmt |
| Management And General | $5,425 | ManagementAndGeneralAmt |
| Fundraising | $11,571 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $23,970 | TotalAmt |
| Program Services | $23,970 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $288,009 | TotalAmt |
| Program Services | $139,586 | ProgramServicesAmt |
| Management And General | $105,053 | ManagementAndGeneralAmt |
| Fundraising | $43,370 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $50,705 | TotalAmt |
| Program Services | $28,140 | ProgramServicesAmt |
| Management And General | $9,576 | ManagementAndGeneralAmt |
| Fundraising | $12,989 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $284,948 | TotalAmt |
| Program Services | $182,885 | ProgramServicesAmt |
| Management And General | $65,104 | ManagementAndGeneralAmt |
| Fundraising | $36,959 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $820,257 | TotalAmt |
| Program Services | $734,478 | ProgramServicesAmt |
| Management And General | $22,423 | ManagementAndGeneralAmt |
| Fundraising | $63,356 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $55,762 | TotalAmt |
| Program Services | $51,717 | ProgramServicesAmt |
| Management And General | $932 | ManagementAndGeneralAmt |
| Fundraising | $3,113 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $11,200 | TotalAmt |
| Program Services | $7,188 | ProgramServicesAmt |
| Management And General | $2,559 | ManagementAndGeneralAmt |
| Fundraising | $1,453 | FundraisingAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| RESEARCH | $138,381 | $138,381 | ||
| DUES, FEES, MEMBERSHIPS | $40,399 | $15,907 | $8,657 | $15,835 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,630,190 | TotalAmt |
| Program Services | $5,019,059 | ProgramServicesAmt |
| Management And General | $969,420 | ManagementAndGeneralAmt |
| Fundraising | $641,711 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $109,012 | TotalAmt |
| Program Services | $44,175 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $64,837 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $618,526 | BOYAmt |
| EOY | $112,888 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,925,411 | BOYAmt |
| EOY | $1,888,329 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $638,208 | BOYAmt |
| EOY | $375,424 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $105,622 | BOYAmt |
| EOY | $92,246 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $32,772 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $20,512 | BOYAmt |
| EOY | $21,327 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $398,200 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $207,314 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $140,529 | BOYAmt |
| EOY | $190,886 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $2,938,227 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $27,523 | BOYAmt |
| EOY | $43,191 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,476,331 | BOYAmt |
| EOY | $5,695,290 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $357,575 | BOYAmt |
| EOY | $480,346 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $500,000 | BOYAmt |
| EOY | $333,333 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $84,312 | BOYAmt |
| EOY | $42,156 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $941,887 | BOYAmt |
| EOY | $855,835 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,147,878 | BOYAmt |
| EOY | $3,672,367 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $386,566 | BOYAmt |
| EOY | $167,088 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,000,000 | BOYAmt |
| EOY | $1,000,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,534,444 | BOYAmt |
| EOY | $4,839,455 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,476,331 | BOYAmt |
| EOY | $5,695,290 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$761,223 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $66,234 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,838,361 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,195,589 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,811,982 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $7,539,923 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,881,314 | CurrentTaxYearAmt |
| Total | $36,267,169 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $6,838,361 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,195,589 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $6,811,982 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $7,539,923 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $5,881,314 | CurrentTaxYearAmt |
| Total | $36,267,169 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $2,097,354 | SubstantialContributorsTotAmt |
| Public Support Total170 | $34,169,815 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $330 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,638 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,444 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $7,014 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $31,733 | CurrentTaxYearAmt |
| Total | $43,159 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $51 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,237 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $129,434 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $10,839 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $30,462 | CurrentTaxYearAmt |
| Total | $172,023 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $36,482,351 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $279,750 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.93660 | PublicSupportCY170Pct |
| Public Support PY170 | 0.91050 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | MISCELLANEOUS INCOME - 2011 AMOUNT: $ 51. 2012 AMOUNT: $ 1,237. 2013 AMOUNT: $ 377. 2014 AMOUNT: $ 89. 2015 AMOUNT: $ 162. GROSS REVENUE FROM FUNDRAISING EVENTS - 2013 AMOUNT: $ 129,057. 2014 AMOUNT: $ 10,750. 2015 AMOUNT: $ 30,300. | ExplanationTxt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $85,018 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $85,018 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,545,172 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $6,630,190 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $481,510 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $120,378 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $483,227 | CurrentYearMinus3Amt |
| Current Year Minus2 | $513,967 | CurrentYearMinus2Amt |
| Current Year Minus1 | $474,909 | CurrentYearMinus1Amt |
| Current Year | $481,510 | CurrentYearAmt |
| Total | $1,953,613 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,930,420 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $29,376 | CurrentYearMinus3Amt |
| Current Year Minus2 | $22,507 | CurrentYearMinus2Amt |
| Current Year Minus1 | $30,381 | CurrentYearMinus1Amt |
| Current Year | $85,018 | CurrentYearAmt |
| Total | $167,282 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $120,807 | CurrentYearMinus3Amt |
| Current Year Minus2 | $128,492 | CurrentYearMinus2Amt |
| Current Year Minus1 | $118,727 | CurrentYearMinus1Amt |
| Current Year | $120,378 | CurrentYearAmt |
| Total | $488,404 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $732,606 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributions | $2,700,000 | ContributionsAmt |
| Investment Earnings Or Losses | $77,487 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $4,480 | AdministrativeExpensesAmt |
| End Year Balance | $2,773,007 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 0.62960 | BoardDesignatedBalanceEOYPct |
| Prmnnt Endowment Balance EOY | 0.36060 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.00980 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $398,200 | OtherCostOrOtherBasisAmt |
| Depreciation | $207,314 | DepreciationAmt |
| Book Value | $190,886 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $190,886 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | SOFTWARE CONTRACT | Desc |
| Amt | $42,156 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $42,156 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $6,680,617 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $66,234 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $726,960 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $18,456 | OtherRevenueAmt |
| Revenue Not Reported | $811,650 | RevenueNotReportedAmt |
| Revenue Subtotal | $5,868,967 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $5,868,967 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $7,375,606 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $726,960 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $18,456 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $745,416 | ExpensesNotReportedAmt |
| Expenses Subtotal | $6,630,190 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $6,630,190 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE PURPOSE OF THE RESEARCH OPPORTUNITY FUND AND NAMED ENDOWMENTS (COLLECTIVELY REFERRED TO AS "ENDOWMENTS") IS TO PROVIDE FOR GROWTH-ORIENTED LONG-TERM INVESTMENT OF FUNDS THAT ARE NOT NEEDED TO MEET THE DAY-TO-DAY FINANCIAL OBLIGATIONS OF THE FOUNDATION. |
| PART X, LINE 2: | THE FOUNDATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE U.S. INTERNAL REVENUE CODE. THE FOUNDATION DOES NOT OPERATE AS A PRIVATE FOUNDATION. ALTHOUGH IT IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON ITS PRINCIPAL OPERATIONS, THE FOUNDATION IS SUBJECT TO FEDERAL INCOME TAXES ON THE NET INCOME FROM ANY OPERATIONS IDENTIFIED BY THE INTERNAL REVENUE SERVICE TO GENERATE UNRELATED BUSINESS INCOME. NO SUCH UNRELATED BUSINESS INCOME TAX WAS INCURRED DURING 2016 OR 2015. THE FOUNDATION FOLLOWS THE STANDARDS FOR EVALUATING UNCERTAIN TAX POSITIONS AND HAS DETERMINED NO LIABILITY SHOULD BE RECORDED FOR UNCERTAIN TAX POSITIONS. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | COST OF GOODS SOLD FOR MERCHANDISE SALES 18,456. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | COST OF GOODS SOLD FOR MERCHANDISE SALES 18,456. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION | N/A | $85,582 |
| NORTH AMERICA - CANADA AND MEXICO, BUT BUT NOT THE UNITED STATES | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION | N/A | $40,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continutation Total Office | 0 | ContinutationTotalOfficeCnt |
| Continutation Total Employee | 0 | ContinutationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $125,582 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $125,582 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt |
|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | CILIA CONFERENCE PLATINUM SPONSORSHIP | $5,582 | ACH TRANSFER | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | RESEARCH THE ROLE OF AUTOPHAGY IN RENAL CYTOGENESIS | $80,000 | ACH TRANSFER | $0 |
| NORTH AMERICA | GENETIC MODIFIERS OF SEVERE POLYCYSTIC LIVER DISEASE RESEARCH | $40,000 | ACH TRANSFER | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | ALL GRANTEES ARE REQUIRED TO SUBMIT AN ANNUAL RESEARCH PROGRESS REPORT AND AN ANNUAL INSTITUTIONAL FINANCIAL STATUS REPORT. MOST GRANTEES ARE ALSO REQUIRED TO SUBMIT INTERIM QUARTERLY PROGRESS REPORTS. |
| PART I, LINE 3: | EXPENDITURES ARE REPORTED AT THE AMOUNT OF THE GRANT AWARDED AND ARE ACCOUNTED FOR USING THE SAME METHOD IN THE ORGANIZATION'S FINANCIAL STATEMENTS. |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| WORDS DATA AND IMAGES LLC | ||||||||
| 3190 RIDER TRAIL SOUTH | EARTH CITY | MO | 63045 | DEVELOPMENT PLANNING AND PROSPECT MANAGEMENT | 0 | $1,039,784 | $47,199 | $992,585 |
| GONSER GERBER LLP | ||||||||
| 9433 N KENTUCKY AVENUE | KANSAS CITY | MO | 64157 | DEVELOPMENT PLANNING AND PROSPECT MANAGEMENT | 0 | $0 | $32,001 | -$32,001 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $1,039,784 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $79,200 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $960,584 | TotalNetToOrganizationAmt |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | GRATITUDE BENEFIT | Event1Nm |
| Gross Receipts Event1 | $342,993 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $312,693 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $30,300 | GrossRevenueEvent1Amt |
| Cash Prizes Event1 | $656 | CashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $4,223 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $38,052 | FoodAndBeverageEvent1Amt |
| Other Direct Expenses Event1 | $17,435 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $342,993 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $312,693 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $30,300 | GrossRevenueTotalEventsAmt |
| Cash Prizes Total Events | $656 | CashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $4,223 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $38,052 | FoodAndBeverageTotalEventsAmt |
| Oth Direct Expnss Total Events | $17,435 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $60,366 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$30,066 | NetIncomeSummaryAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (13 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|
| ASN FOUNDATION FOR KIDNEY RESEARCH | |||||||
| 1510 H STREET NS SUITE 800 | WASHINGTON | DC | 20005 | 455090971 | 501(C)(3) | $500,000 | RESEARCH FELLOWSHIP |
| CASE WESTERN RESERVE UNIVERSITY | |||||||
| 10900 EUCLID AVENUE NORD HALL | CLEVELAND | OH | 44106 | 341018992 | 501(C)(3) | $80,000 | MAGNETIC RESONANCE FINGERPRINTING (MRF) TO ASSESS ARPKD KIDNEY AND LIVER DISEASE PROGRESSION RESEARCH |
| KANSAS UNIVERSITY ENDOWMENT ASSOCIATION | |||||||
| 3901 RAINBOW BOULEVARD | KANSAS CITY | KS | 66160 | 480547734 | 501(C)(3) | $60,000 | PKD BIOMATERIALS & CELLULAR MODELS CORE RESEARCH AND GRANTHAM SYMPOSIUM SPONSORSHIP |
| MAYO CLINIC | |||||||
| 200 FIRST STREET SW PLUMMER 5 | ROCHESTER | MN | 55905 | 416011702 | 501(C)(3) | $180,000 | RESEARCH ON ADPKD GENE MUTATION REGISTRY, DEVELOPMENT OF A COMPUTER AIDED DECISION SUPPORT SYSTEM FOR PKD, AND DEREGULATED CHOLANGIOCYTE AUTOPHAGY: A NEW TARGET FOR POLYCYSTIC LIVER DISEASE |
| NYU HOSPITAL CENTER | |||||||
| 550 FIRST AVENUE | NEW YORK | NY | 10016 | 133971298 | 501(C)(3) | $80,000 | RESEACH ON A NOVEL SCREEN TO IDENTIFY KINASES THAT ARE ACTIVATED IN PKD KIDNEYS |
| SEATTLE CHILDREN'S HOSPITAL FOUNDATION | |||||||
| PO BOX 5371 MS S-200 | SEATTLE | WA | 981455005 | 911156519 | 501(C)(3) | $80,000 | SCREENING FOR MODIFIERS OF PKD SEVERITY USING ENU MUTAGENESIS RESEARCH |
| TENNESSEE PHYSIOLOGICAL SOCIETY | |||||||
| T-4202 MEDICAL CENTER NORTH | NASHVILLE | TN | 372322520 | 271111417 | 501(C)(3) | $6,000 | CVR-PKD SYMPOSIUM SPONSORSHIP |
| UNIVERSITY OF ALABAMA AT BIRMINGHAM | |||||||
| 14720 2ND AVENUE S | BIRMINGHAM | AL | 35294 | 636005396 | 501(C)(3) | $140,211 | RESEARCH ON RENAL VASCULAR FUNCTION IN ARPKD AND INJURY RESPONSE MEDIATED PATHOGENESIS IN CILIOPATHIES |
| UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE | |||||||
| 3901 RAINBOW BOULEVARD | KANSAS CITY | KS | 66160 | 481108830 | 501(C)(3) | $160,000 | RESEARCH ON FUNCTIONAL ROLES OF DNMT1 IN AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE AND POLYCYSTIN-1 MEDIATED CYST REGRESSION |
| UNIVERSITY OF MARYLAND FACULTY PHYSICIANS | |||||||
| 250 W PRATT STREET NO 901 | BALTIMORE | MD | 21201 | 521299563 | 501(C)(3) | $30,000 | SAC CHAIR SALARY SUPPORT |
| UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE | |||||||
| 655 W BALTIMORE STREET | BALTIMORE | MD | 21201 | 526002033 | GOV | $80,000 | ROLE OF FIBROCYSTIN/POLYDUCTIN IN HEALTH AND ARPKD RESEARCH |
| UNIVERSITY OF WASHINGTON | |||||||
| PO BOX 359505 | SEATTLE | WA | 981959505 | 060646973 | 501(C)(3) | $80,000 | MODELING HUMAN PKD CYTOGENESIS WITH PLURIPOTENT STEM CELLS RESEARCH |
| YALE UNIVERSITY | |||||||
| PO BOX 1872 | NEW HAVEN | CT | 06508 | 060646973 | 501(C)(3) | $158,263 | RESEARCH ON VASCULAR INTEGRITY IN ZEBRAFISH PKD MODELS AND EXAMINING THE ROLE OF XBP1 IN THE PATHOGENESIS OF PROTEIN FOLDING-ASSOCIATED POLYCYSTIC KIDNEY DISORDERS |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 13 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ALL GRANTEES ARE REQUIRED TO SUBMIT AN ANNUAL RESEARCH PROGRESS REPORT AND AN ANNUAL INSTITUTIONAL FINANCIAL STATUS REPORT. MOST GRANTEES ARE ALSO REQUIRED TO SUBMIT INTERIM QUARTERLY PROGRESS REPORTS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (5 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| HANCOCK JACKIE JR | ||||||||||||||
| CEO | $198,455 | $0 | $0 | $0 | $0 | $0 | $15,750 | $0 | $30,890 | $0 | $245,095 | $0 | $0 | $0 |
| SMITH RAY | ||||||||||||||
| CHIEF FINANCIAL OFFICER | $146,417 | $0 | $0 | $0 | $0 | $0 | $11,124 | $0 | $20,422 | $0 | $177,963 | $0 | $0 | $0 |
| DAVIS-WINGATE MICHELLE | ||||||||||||||
| CHIEF DEVELOPMENT OFFICER | $128,080 | $0 | $0 | $0 | $0 | $0 | $10,419 | $0 | $24,291 | $0 | $162,790 | $0 | $0 | $0 |
| CONNELLY ANGELA | ||||||||||||||
| CHIEF MARKETING OFFICER | $118,230 | $0 | $0 | $0 | $0 | $0 | $9,137 | $0 | $24,580 | $0 | $151,947 | $0 | $0 | $0 |
| BARON DAVID | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER | $159,348 | $0 | $0 | $0 | $0 | $0 | $4,500 | $0 | $19,618 | $0 | $183,466 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Cars And Other Vehicles CarsAndOtherVehiclesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 1 | ContributionCnt |
| Noncash Contributions Rpt F990 | $200 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR VALUE | MethodOfDeterminingRevenuesTxt |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 11 | ContributionCnt |
| Noncash Contributions Rpt F990 | $38,268 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR VALUE | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | EVENT ITEMS | Desc |
| Contribution | 64 | ContributionCnt |
| Noncash Contributions Rpt F990 | $27,620 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR VALUE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 0 | Form8283ReceivedCnt |
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, COLUMN (B): | FIGURE REPRESENTS THE NUMBER OF DONORS IN EACH CATEGORY. |
| PART I, LINE 32B: | ORGANIZATION UTILIZES ONGOING BANKING RELATIONSHIPS TO MARKET DONATED SECURITIES. |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11 | THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. PRIOR TO FILING THE FORM 990 FOR PKD FOUNDATION, A DRAFT COPY WILL BE PROVIDED TO THE BOARD OF TRUSTEES FOR REVIEW AND COMMENT. ANY COMMENTS WILL BE ACCUMULATED BY MANAGEMENT AND ADDRESSED ACCORDINGLY PRIOR TO FILING WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | MEMBERS OF THE BOARD OF TRUSTEES OF PKD FOUNDATION ARE REQUIRED TO SIGN AN ANNUAL STATEMENT DISCLOSING ANY CONFLICTS OF INTEREST. THE GOVERNANCE COMMITTEE REVIEWS THE STATEMENTS AND ENSURES THAT BOARD MEMBERS ARE PROHIBITED FROM PARTICIPATING IN DISCUSSIONS OR DECISIONS RELATED TO TRANSACTIONS THAT INVOLVE ACTUAL CONFLICTS OF INTEREST. |
| FORM 990, PART VI, SECTION B, LINE 15 | ANNUALLY, THE CHAIRMAN OF THE BOARD OF TRUSTEES WORKS WITH THE CEO TO DEVELOP THE CEO'S GOALS FOR THE NEW FISCAL YEAR. AT THE END OF EACH FISCAL YEAR, THE EXECUTIVE COMMITTEE EVALUATES THE CEO AGAINST THESE GOALS AND RECOMMENDS TO THE BOARD THE CEO'S COMPENSATION PACKAGE FOR APPROVAL, BASED ON THIS EVALUATION. ANNUALLY, THE EXECUTIVE COMMITTEE REVIEWS A NATIONAL SALARY SURVEY CONDUCTED BY AN INDEPENDENT CONSULTANT. UPON THAT REVIEW, SALARIES ARE COMPARED TO THE RANGES RECOMMENDED FOR EACH POSITION. FOUNDATION MANAGEMENT THEN ACTS TO ENSURE THAT SALARIES ARE WITHIN APPROPRIATE RANGES. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON THEIR OWN WEBSITE AND UPON REQUEST. |
| FORM 990, PART VII, SECTION A, LINE 1: | PKD FOUNDATION CONTRACTS WITH ADP TOTALSOURCE TO PROVIDE CERTAIN EMPLOYEE BENEFITS AND PAYROLL SERVICES. EMPLOYEES ARE CONSIDERED TO BE JOINTLY EMPLOYED BY BOTH PKD FOUNDATION AND ADP TOTALSOURCE. IN ORDER TO COMPLY WITH TRANSPARENCY DIRECTIVES AS A PART OF THE FORM 990, THE FOUNDATION HAS DECIDED TO REPORT COMPENSATION IN PART VII TO INCLUDE AMOUNTS PAID AND REPORTED ON W-2'S BY ADP TOTALSOURCE. |
| FORM 990, PART XII, LINE 2C: | NO CHANGE FROM THE PRIOR YEAR. |
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