NATIONAL NEUTROPENIA NETWORK INC: Form 990EZ, tax year 2016
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL NEUTROPENIA NETWORK INC (EIN 38-3207136)
- Tax period
- 2016-01-01 to 2016-12-31
- Filed
- 2017-05-15
- IRS object ID
- 201731359349207788
- Schema version
- 2016v3.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2017-05-15T11:39:18-07:00 | ReturnTs |
| Tax Period End | 2016-12-31 | TaxPeriodEndDt |
| Return Type | 990EZ | ReturnTypeCd |
| Tax Period Begin | 2016-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 383207136 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | National Neutropenia Network | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | NATI | BusinessNameControlTxt |
| Phone | 8773267117 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | US PO Box 1693 | AddressLine1Txt |
| City | Brighton | CityNm |
| State Abbreviation | MI | StateAbbreviationCd |
| ZIP | 48116 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Kate Bottiger | PersonNm |
| Person Title | Director | PersonTitleTxt |
| Phone | 5172940736 | PhoneNum |
| Signature | 2017-05-15 | SignatureDt |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 204.73.55.132 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2016 | TaxYr |
| Build TS | 2021-01-29 14:40:06Z | BuildTS |
Form 990-EZ IRS990EZ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Schedule B Not Required | Yes (X) | ScheduleBNotRequiredInd |
| Website Address | neutropenianet.org | WebsiteAddressTxt |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Gross Receipts | $46,056 | GrossReceiptsAmt |
| Info In Schedule O Part I | Yes (X) | InfoInScheduleOPartIInd |
| Contributions Gifts Grants Etc | $31,837 | ContributionsGiftsGrantsEtcAmt |
| Program Service Revenue | $13,570 | ProgramServiceRevenueAmt |
| Membership Dues | $0 | MembershipDuesAmt |
| Investment Income | $9 | InvestmentIncomeAmt |
| Sale Of Assets Gross | $0 | SaleOfAssetsGrossAmt |
| Cost Or Other Basis Expense Sale | $0 | CostOrOtherBasisExpenseSaleAmt |
| Gain Or Loss From Sale Of Assets | $0 | GainOrLossFromSaleOfAssetsAmt |
| Gaming Gross Income | $0 | GamingGrossIncomeAmt |
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Special Events Direct Expenses | $0 | SpecialEventsDirectExpensesAmt |
| Special Events Net Income Loss | $0 | SpecialEventsNetIncomeLossAmt |
| Gross Sales Of Inventory | $0 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $0 | CostOfGoodsSoldAmt |
| Gross Profit Loss Sls Of Invntry | $0 | GrossProfitLossSlsOfInvntryAmt |
| Other Revenue Total | $640 | OtherRevenueTotalAmt |
| Total Revenue | $46,056 | TotalRevenueAmt |
| Grants And Similar Amounts Paid | $2,025 | GrantsAndSimilarAmountsPaidAmt |
| Benefits Paid To Or For Members | $0 | BenefitsPaidToOrForMembersAmt |
| Salaries Other Comp Empl Bnft | $0 | SalariesOtherCompEmplBnftAmt |
| Fees And Other Pymt To Ind Cntrct | $18,058 | FeesAndOtherPymtToIndCntrctAmt |
| Occupancy Rent Utlts And Maint | $0 | OccupancyRentUtltsAndMaintAmt |
| Printing Publications Postage | $1,783 | PrintingPublicationsPostageAmt |
| Other Expenses Total | $27,160 | OtherExpensesTotalAmt |
| Total Expenses | $49,026 | TotalExpensesAmt |
| Excess Or Deficit For Year | -$2,970 | ExcessOrDeficitForYearAmt |
| Net Assets Or Fund Balances BOY | $26,644 | NetAssetsOrFundBalancesBOYAmt |
| Other Changes In Net Assets | $150 | OtherChangesInNetAssetsAmt |
| Net Assets Or Fund Balances EOY | $23,824 | NetAssetsOrFundBalancesEOYAmt |
Cash Savings And Investments CashSavingsAndInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $25,644 | BOYAmt |
| EOY | $23,824 | EOYAmt |
Land And Buildings LandAndBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Other Assets Total Detail OtherAssetsTotalDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,000 | BOYAmt |
| EOY | $0 | EOYAmt |
Form990 Total Assets Form990TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $26,644 | BOYAmt |
| EOY | $23,824 | EOYAmt |
Sum Of Total Liabilities SumOfTotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $26,644 | BOYAmt |
| EOY | $23,824 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Primary Exempt Purpose | The primary purpose of the National Neutropenia Network is to promote awareness education and research and provide a support system for individuals with severe chronic neutropenia and their families through a national resource network. | PrimaryExemptPurposeTxt |
Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp (3 entries)
| Description Program Srvc AccomDescriptionProgramSrvcAccomTxt | Grants And AllocationsGrantsAndAllocationsAmt | Program Service ExpensesProgramServiceExpensesAmt |
|---|---|---|
| The Neutropenia Family Conference is a life-changing event for patients and families. The Conference gives them the rare opportunity to meet with expert physicians who have treated many patients with neutropenia as well as devoting many years of their professional life to research related to this bone marrow failure condition. Private patient-physician consultations take place at our conference and for some patients these meetings result in life-changing advice. In addition to educational sessions, programs are designed to give patients and families plenty of time to meet and mingle. With the isolation that comes from living with a rare disease like neutropenia, this is a rare and wonderful opportunity. Children had a fantastic time at Neutropenia Kids Kamp where activities centered on understanding their disease are an important part of the program while having fun is the centerpiece. They leave camp with new friends and with a sense of belonging that often eludes them in their daily life. Our Family Conference also give patients access to the professional staff at the Severe Chronic Neutropenia International Registry. Many patients have worked with the staff for decades but never met them. This is a moving and meaningful experience for both staff and patients. Many of our patients experience major financial challenges as part of living with a rare disease. Some face daunting medical bills and income loss as they grapple with neutropenia. They cannot attend the Conference without financial assistance. | $17,230 | $38,157 |
| With the internet serving as the primary information source for patients seeking knowledge about their neutropenia, our website Neutropenianet.org provides a reliable resource to help them sort through the confusion and misguided advice that can come from visiting various social networking sites. Neutropenianet.org provides the latest information related to diagnosis and treatment of neutropenia in a language that is accessible to the layperson. Information from our website is often used by patients to help educate their physicians who rarely have any experience treating this disease. In 2016 we mailed out well over a hundred Patient Information Packets requested through our website. The packet includes: a patient handbook authored by expert physicians and a customizable ER card to present to hospital emergency personnel, and our most recent newsletters. Information packets are shipped at no cost to patients and families. The website gives patients who cannot attend the Conference an alternate option as they can watch videos of educational sessions presented by top experts on neutropenia at the Family Conference. Patient stories are another popular feature of our website. The firsthand knowledge of the struggle other patients face eases the isolation that comes from living with an extremely rare disease. We respond personally to hundreds of inquiries from patients and families seeking specific information or guidance related to their neutropenia. In 2016, we had more than 20,000 new visitors to our website with average page sessions nearly two minutes. More than 4,500 were return visitors to our website. For some patients their visit to our website opens up a new path for them, one that leads to medical information and care that changes their life. | $0 | $860 |
| The National Neutropenia Network produces a newsletter filled with information of clinical interest and medical value to patients. We include stories on the latest treatment and features on individuals with exceptional experiences managing their neutropenia. It reaches close to 800 patients. For those patients who do not use the internet, many of them seniors, the newsletter is a valuable benefit. | $0 | $1,843 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $40,860 | TotalProgramServiceExpensesAmt |
Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (9 entries)
| TitleTitleTxt | Average Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRt | CompensationCompensationAmt | Employee Benefit ProgramEmployeeBenefitProgramAmt | Expense Account Other AllwncExpenseAccountOtherAllwncAmt |
|---|---|---|---|---|
| Kate Bottiger | ||||
| Chair | 2 | $0 | $0 | $0 |
| Sharon White | ||||
| Director | 1 | $0 | $0 | $0 |
| Taylor Carlton | ||||
| Treasurer | 1 | $0 | $0 | $0 |
| Lucy Lyman | ||||
| Director | 0 | $0 | $0 | $0 |
| Mariel Lewis | ||||
| Director | 2 | $0 | $0 | $0 |
| Rajan Lakhia | ||||
| Director | 1 | $0 | $0 | $0 |
| Krista Moroder | ||||
| Director | 2 | $0 | $0 | $0 |
| Ron Bloxham | ||||
| Director | 1 | $0 | $0 | $0 |
| Marylee Reeves | ||||
| Executive Director | 15 | $6,350 | $0 | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activities Not Previously Rpt | 0 | ActivitiesNotPreviouslyRptInd |
| Chg Made To Orgnzng Doc Not Rpt | 0 | ChgMadeToOrgnzngDocNotRptInd |
| Organization Had UBI | 0 | OrganizationHadUBIInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Organization Dissolved Etc | 0 | OrganizationDissolvedEtcInd |
| Direct Indirect Pltcl Expend | $0 | DirectIndirectPltclExpendAmt |
| Form1120 Pol Filed | 0 | Form1120PolFiledInd |
| Made Loans To From Officers | 0 | MadeLoansToFromOfficersInd |
| Tax Imposed Under IRC4911 | $0 | TaxImposedUnderIRC4911Amt |
| Tax Imposed Under IRC4912 | $0 | TaxImposedUnderIRC4912Amt |
| Tax Imposed Under IRC4955 | $0 | TaxImposedUnderIRC4955Amt |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| Tax Imposed On Organization Mgr | $0 | TaxImposedOnOrganizationMgrAmt |
| Tax Reimbursed By Organization | $0 | TaxReimbursedByOrganizationAmt |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Lopez Business Services | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO Box 1693 | AddressLine1Txt |
| City | Brighton | CityNm |
| State Abbreviation | MI | StateAbbreviationCd |
| ZIP | 481169998 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8105997664 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Donor Advised Fnds | 0 | DonorAdvisedFndsInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Tanning Services Provided | 0 | TanningServicesProvidedInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | 0 | TransactionWithControlEntInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| School Operating | 0 | SchoolOperatingInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Part VI Of Comp Of Hghst Pd Empl | NONE | PartVIOfCompOfHghstPdEmplTxt |
| Part VI Hghst Pd Cntrct Prof Srvc | NONE | PartVIHghstPdCntrctProfSrvcTxt |
| Filed Schedule A | Yes (1) | FiledScheduleAInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $52,718 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,069 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $49,934 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $51,400 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $31,440 | CurrentTaxYearAmt |
| Total | $188,561 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,385 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $0 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $21,041 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $15,078 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $14,607 | CurrentTaxYearAmt |
| Total | $59,111 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $61,103 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,069 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $70,975 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $66,478 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $46,047 | CurrentTaxYearAmt |
| Total | $247,672 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $35,000 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $10,000 | CurrentTaxYearAmt |
| Total | $45,000 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $0 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $0 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $0 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $35,000 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $10,000 | CurrentTaxYearAmt |
| Total | $45,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $202,672 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $35 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $16 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $11 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $9 | CurrentTaxYearAmt |
| Total | $83 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $35 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $16 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $12 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $11 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $9 | CurrentTaxYearAmt |
| Total | $83 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $61,138 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $3,085 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $70,987 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $66,489 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $46,056 | CurrentTaxYearAmt |
| Total | $247,755 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.81803 | PublicSupportCY509Pct |
| Public Support PY509 | 0.86083 | PublicSupportPY509Pct |
| Investment Income CY | 0.00034 | InvestmentIncomeCYPct |
| Investment Income PY | 0.00041 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests PY509 | Yes (X) | ThirtyThrPctSuprtTestsPY509Ind |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990-EZ, Part I, Line 8 | Sale of memorabilia |
| Form 990-EZ, Part I, Line 10 | Form 990-EZ , Part 1, line 10 - Financial assistance grants for patients with significant financial challenges that prohibited them from attending the family conference without support. These grants covered conference costs such as lodging, meals and in some cases help with travel. |
| Form 990-EZ, Part I, Line 16 | Form 990-EZ line 16 - Other expenses include: primary conference costs as well as website management, office supplies and patient support programs. |
| Form 990-EZ, Part I, Line 20 | Due to the Chase Bank on line payment on 12/02/2015 of $150.00 and a second on line payment of $150.00 on 12/31/2015, the double payment confused the year end balance. In the 2015 part 1 line 20 the adjustment of $150.00 was recorded and now in the 2016 part 1 line 20 the item is reversed. |
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