HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA: Form 990, tax year 2016

View the entire original 990 at ProPublica ↗

Organization
HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA (EIN 45-4955538)
Tax period
2016-01-01 to 2016-12-31
Filed
2017-09-01
IRS object ID
201712449349300711
Schema version
2016v3.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2017-09-01T09:31:44-04:00ReturnTs
Tax Period End2016-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN800859043PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1SOUTH FLORIDA FINANCIAL ADVISORY NETWORKBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1301 NE 51ST ST STE 1240AddressLine1Txt
CityBOCA RATONCityNm
State AbbreviationFLStateAbbreviationCd
ZIP334314931ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2016-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN454955538EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1HUNTINGTON'S DISEASE YOUTHBusinessNameLine1Txt
Business Name Line2ORGANIZATION OF AMERICA INCBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlHUNTBusinessNameControlTxt
Phone9522705428PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 272185AddressLine1Txt
CityBOCA RATONCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33486ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonBRYAN VIAU JRPersonNm
Person TitleCHAIRPERSONPersonTitleTxt
Phone9522705428PhoneNum
Signature2017-09-15SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonN RICHARD GRASSANO CPAPreparerPersonNm
PTINP00071054PTIN
Phone3052948137PhoneNum
Preparation2017-08-30PreparationDt

Filing Security Information FilingSecurityInformation

FieldValueIRS element (for citing)
At Submission Creation Device IdD2DF197510C15A21CC78B70D78F6D5C231CFBF64AtSubmissionCreationDeviceId
At Submission Filing Device IdD2DF197510C15A21CC78B70D78F6D5C231CFBF64AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2016TaxYr
Build TS2021-01-29 14:40:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd
Principal OfficerBRYAN VIAU JRPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 272185AddressLine1Txt
CityBOCA RATONCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33486ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$250,563GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.HDYO.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2013FormationYr
Legal Domicile StateFLLegalDomicileStateCd
Activity Or MissionPROVIDE EDUCATION, ADVICE, SUPPORT AND GUIDANCE TO CHILDREN, YOUNG PEOPLE AND THEIR FAMILIES IMPACTED BY HUNTINGTON'S DISEASE (HD). PROMOTE AWARENESS AND PROVIDE EDUCATION WITHIN PROFESSIONAL SETTINGS FOR THOSE WORKING WITH HD FAMILIES.ActivityOrMissionDesc
Voting Members Governing Body3VotingMembersGoverningBodyCnt
Voting Members Independent3VotingMembersIndependentCnt
Total Employee1TotalEmployeeCnt
Total Volunteers50TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$183,632PYContributionsGrantsAmt
CY Contributions Grants$250,556CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
CY Investment Income$7CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
PY Total Revenue$183,632PYTotalRevenueAmt
CY Total Revenue$250,563CYTotalRevenueAmt
CY Grants And Similar Paid$0CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$70,684PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$76,178CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$0CYTotalFundraisingExpenseAmt
PY Other Expenses$99,251PYOtherExpensesAmt
CY Other Expenses$139,427CYOtherExpensesAmt
PY Total Expenses$169,935PYTotalExpensesAmt
CY Total Expenses$215,605CYTotalExpensesAmt
PY Revenues Less Expenses$13,697PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$34,958CYRevenuesLessExpensesAmt
Total Assets BOY$17,932TotalAssetsBOYAmt
Total Assets EOY$52,890TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$17,932NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$52,890NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE HUNTINGTON'S DISEASE YOUTH ORGANIZATION (WHICH THIS ENTITY IS A PART OF) IS AN INTERNATIONAL NON-PROFIT ORGANIZATION SET UP TO SPECIFICALLY PROVIDE SUPPORT FOR YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$139,427ExpenseAmt
Desc2ND ANNUAL NORTH AMERICAN YOUTH CAMP: ALL EXPENSES PAID, 4-DAY CAMP FOR 56 YOUNG PEOPLE FROM HD FAMILIES THROUGHOUT THE US & CANADA (47 USA, 9 CANADA). CAMP IS FULL OF SUPPORT, EDUCATION, CONNECTION AND FUN TO HELP YOUNG PEOPLE FORGET ABOUT HD AND LEAVE CAMP WITH A MORE POSITIVE OUTLOOK ON LIFE. CAMP TOOK PLACE IN MARYLAND.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$76,178ExpenseAmt
DescDIRECTOR OF YOUTH SERVICES ROLE: YEAR THREE OF OUR DIRECTOR OF YOUTH SERVICES AS OUR SINGLE EMPLOYEE IN THE US. HE WORKS OUT OF GEORGETOWN UNIVERSITY AND PROVIDES FACE-TO-FACE AND VIRTUAL SUPPORT TO YOUNG PEOPLE AND FAMILIES THROUGHOUT THE MID-ATLANTIC REGION IN THE USA.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$215,605TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Temp Or Permanent EndowmentsfalseTempOrPermanentEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsfalseGrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With Officer EntfalseBusinessRlnWithOfficerEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredfalseScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee1EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members3GoverningBodyVotingMembersCnt
Independent Voting Member3IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyfalseConflictOfInterestPolicyInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyfalseDocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonBRYAN VIAU JRPersonNm
Phone9522705428PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 272185AddressLine1Txt
CityBOCA RATONCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33486ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (3 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
BRYAN VIAU JR
CHAIRPERSON15.00Yes (X)Yes (X)$0$0$0
SETH ROTBERG
BOARD MEMBER4.00Yes (X)$0$0$0
KRISTEN POWERS
BOARD MEMBER2.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Related Organizations$1,100RelatedOrganizationsAmt
All Other Contributions$249,456AllOtherContributionsAmt
Total Contributions$250,556TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$7TotalRevenueColumnAmt
Related Or Exempt Func Income$7RelatedOrExemptFuncIncomeAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$250,563TotalRevenueColumnAmt
Related Or Exempt Func Income$7RelatedOrExemptFuncIncomeAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$76,178TotalAmt
Program Services$76,178ProgramServicesAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$631TotalAmt
Program Services$631ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$316TotalAmt
Program Services$316ProgramServicesAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$519TotalAmt
Program Services$519ProgramServicesAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$59,588TotalAmt
Program Services$59,588ProgramServicesAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$1,000TotalAmt
Program Services$1,000ProgramServicesAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmt
NO. AMERICAN CAMP IN 2016$38,555$38,555
2017 CAMP AUSTRALIA & NZ$17,140$17,140
REIMBURSEMENT TO DIRECTOR$10,479$10,479
TRANSFER TO JP MORGAN$5,955$5,955

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$5,244TotalAmt
Program Services$5,244ProgramServicesAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$215,605TotalAmt
Program Services$215,605ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$17,932BOYAmt
EOY$42,554EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
EOY$10,336EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$17,932BOYAmt
EOY$52,890EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Org Does Not Follow SFAS117Yes (X)OrgDoesNotFollowSFAS117Ind

Rtn Earn Endowment Incm Oth Fnds RtnEarnEndowmentIncmOthFndsGrp

FieldValueIRS element (for citing)
BOY$17,932BOYAmt
EOY$52,890EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$17,932BOYAmt
EOY$52,890EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$17,932BOYAmt
EOY$52,890EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$34,958ReconcilationRevenueExpnssAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedfalseFSAuditedInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$183,682CurrentTaxYearMinus1YearAmt
Current Tax Year$250,556CurrentTaxYearAmt
Total$434,238TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year$7CurrentTaxYearAmt
Total$7TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$183,682CurrentTaxYearMinus1YearAmt
Current Tax Year$250,563CurrentTaxYearAmt
Total$434,245TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$434,245PublicSupportTotal509Amt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$183,682CurrentTaxYearMinus1YearAmt
Current Tax Year$250,563CurrentTaxYearAmt
Total$434,245TotalAmt
FieldValueIRS element (for citing)
Public Support CY5091.00000PublicSupportCY509Pct
Public Support PY5091.00000PublicSupportPY509Pct
Investment Income CY0.00000InvestmentIncomeCYPct
Investment Income PY0.00000InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990 - ORGANIZATION'S MISSIONTHE HUNTINGTON'S DISEASE YOUTH ORGANIZATION (WHICH THIS ENTITY IS A PART OF) IS AN INTERNATIONAL NON-PROFIT ORGANIZATION SET UP TO SPECIFICALLY PROVIDE SUPPORT FOR YOUNG PEOPLE AROUND THE WORLD IMPACTED BY HUNTINGTON'S DISEASE.
FORM 990, PAGE 1, PART I, LINE 6THIS ENTITY PROVIDES EDUCATION, ADVICE, SUPPORT AND GUIDANCE TO CHILDREN, YOUNG PEOPLE AND THEIR FAMILIES IMPACTED BY HUNTINGTON'S DISEASE (HD). ALSO, TO PROMOTE AWARENESS AND PROVIDE EDUCATION WITHIN PROFESSIONAL SETTINGS FOR THOSE WORKING WITH HD FAMILIES.
FORM 990, PAGE 6, PART VI, LINE 11BORGANIZATION CHAIRPERSON REVIEWS AND APPROVES 990 FILINGS
FORM 990, PAGE 6, PART VI, LINE 15BCOMPENSATION LEVEL DETERMINED BY BOARD OF DIRECTORS
FORM 990, PAGE 6, PART VI, LINE 19NO DOCUMENTS AVAILABLE TO THE PUBLIC

Reasonable Cause Explanation ReasonableCauseExplanation

FieldValueIRS element (for citing)
ExplanationORGANIZATION HAS BEEN WORKING WITH IRS ON PRIOR YEAR FILING ISSUES. UNTIL THOSE WERE ASSESSED AND RESPONDED TO IT WAS DIFFICULT TO OBTAIN SUFFICIENT INFORMATION TO COMPLETE A FULL FORM 990. THIS WAS THE FIRST YEAR A FORM 990 WAS REQUIRED. ORGANIZATION PREVIOUSLY FILED FORMS 990-EZ.ExplanationTxt

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