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FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC: Form 990EZ, tax year 2024

View the entire original 990 at ProPublica ↗

Organization
FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC (EIN 01-0771966)
Tax period
2024-01-01 to 2024-12-31
Filed
2025-02-13
IRS object ID
202530449349201243
Schema version
2024v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2025-02-13T11:02:26-08:00ReturnTs
Tax Period End2024-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN610567366PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1CHARLES T MITCHELL CO PLLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1229 W MAIN ST STE 103AddressLine1Txt
CityFRANKFORTCityNm
State AbbreviationKYStateAbbreviationCd
ZIP40601ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2024-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN010771966EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FIBROMUSCULAR DYSPLASIA SOCIETY OFBusinessNameLine1Txt
Business Name Line2AMERICA INCBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlFIBRBusinessNameControlTxt
Phone2168342410PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line126777 LORAIN RD 311AddressLine1Txt
CityNORTH OLMSTEDCityNm
State AbbreviationOHStateAbbreviationCd
ZIP44070ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonBRADLEY DAARPersonNm
Person TitlePresidentPersonTitleTxt
Signature2025-02-13SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonGreg Miklavcic CPAPreparerPersonNm
PTINP00946625PTIN
Phone5022277395PhoneNum
FieldValueIRS element (for citing)
Tax2024TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Schedule B Not RequiredYes (X)ScheduleBNotRequiredInd
Website AddressWWW.FMDSA.ORGWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$145,437GrossReceiptsAmt
Info In Schedule O Part IYes (X)InfoInScheduleOPartIInd
Contributions Gifts Grants Etc$145,428ContributionsGiftsGrantsEtcAmt
Investment Income$9InvestmentIncomeAmt
Cost Or Other Basis Expense Sale$0CostOrOtherBasisExpenseSaleAmt
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Special Events Direct Expenses$0SpecialEventsDirectExpensesAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt
Total Revenue$145,437TotalRevenueAmt
Grants And Similar Amounts Paid$50,000GrantsAndSimilarAmountsPaidAmt
Salaries Other Comp Empl Bnft$69,339SalariesOtherCompEmplBnftAmt
Fees And Other Pymt To Ind Cntrct$7,538FeesAndOtherPymtToIndCntrctAmt
Occupancy Rent Utlts And Maint$3,600OccupancyRentUtltsAndMaintAmt
Printing Publications Postage$1,491PrintingPublicationsPostageAmt
Other Expenses Total$21,260OtherExpensesTotalAmt
Total Expenses$153,228TotalExpensesAmt
Excess Or Deficit For Year-$7,791ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$144,484NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$136,693NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIYes (X)InfoInScheduleOPartIIInd

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$145,032BOYAmt
EOY$137,816EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$145,032BOYAmt
EOY$137,816EOYAmt

Sum Of Total Liabilities SumOfTotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$548BOYAmt
EOY$1,123EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$144,484BOYAmt
EOY$136,693EOYAmt
FieldValueIRS element (for citing)
Primary Exempt PurposeFMDSA is a public health charity working towards better diagnosis and treatment of Fibromuscular Displasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community.PrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp (8 entries)

Description Program Srvc AccomDescriptionProgramSrvcAccomTxtProgram Service ExpensesProgramServiceExpensesAmt
In 2007, FMDSA began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify characteristics associated with FMD, potential markers of the disease, and commonly used treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. Enrollment in the FMD Registry increased from 4172 patients at the end of 2023 to 4598 patients at the end of 2024. There are 19 active participating sites. Providence Heart Institute joined the registry, and Miami Baptist Health and Seattle Childrens Hospital were closed to enrollment.$50,000
Patient support is a large program due to the increase in patients diagnosed with FMD. Due to the demand, we continue to grow the Volunteer Support Network. Volunteers have been identified in the US and internationally. Many hold local meet ups. We offer support through social media platforms, including Inspire, Instagram, and Facebook, where thousands of patients participate. We are active on Twitter, allowing patients and physicians to communicate. We continue to add FMD materials and videos to our website and YouTube channel. We offer FMD materials in multiple languages and work with our international colleagues who offer materials in many languages. FMDSA continues to host and participate in patient Zoom meetings. Patients globally are invited to participate.
We help patients educate their family, friends, and healthcare providers about FMD with written materials and videos. We have many valuable resources on our website to help communicate FMD in simple terms, including a Public Service Announcement, as well as in-depth information that can help bridge the gap and build a better relationship between patient and physician. The Program also includes educational work with media outlets, other organizations, journals, speaking engagements, and articles. There is rarely a day that goes by that we are not contacted by a newly diagnosed patient. We have seen the diagnosis rate grow in direct proportion to our programs. We also participate in events such as the Cleveland & Detroit Marathon, which helps increase awareness as well as raise funds to support our programs.
We educate medical professionals worldwide at meetings such as the International Stroke Conference, Hospital Led Conferences, Grand Rounds, and Research Meetings. The awareness, education, and research happening around the world is a direct result of what FMDSA started in 2003.
In 2024, we participated in in-person meetings, including the American Heart Association Scientific Sessions, VanSCAD in Vancouver, Canada, and the Kentucky Neuroscience Expo. The result of these programs is greater awareness of FMD within the medical community, improved medical knowledge, and the development of critical partnerships that help research activity. We maintain a Research Page on the website containing data published from the patient registry, other researchers and researcher opportunities for patients to participate in. There are also PowerPoint presentations and videos available for healthcare providers.
FMDSA has been sponsoring the North American FMD Registry for 16 years. The first participant's data was entered in January 2009. Data from patient experiences is analyzed and used to learn more about the disease. Previously, research identified new genetic variants connected to FMD. (PHARCTR1, ATP281, LRP1, and LIMA1), and in 2024, a key driver gene called UBR4 was discovered. This was a huge advancement. Based on the associated genes, researchers believe that 3-5% of the U.S. population may be affected,
The Annual Conference brings together FMD patients, those who have had spontaneous coronary dissection (SCAD), caregivers, and medical professionals. The meeting provides an opportunity for patients to meet others also affected, which is a big draw to the meeting. FMDSA hosts a separate meeting with researchers to discuss updates and current and future research projects. The forum has provided a platform for many research projects, including blood draws, saliva collection, and quality-of-life studies. There is no other meeting in the world where patients have the opportunity to participate in research. For multiple reasons, there was no meeting in 2024, but we participated in and also coordinated Zoom webinars. In 2025, we will be hosting a virtual conference so that patients worldwide have the opportunity to participate.
One of our most important charters is to educate patients and families about FMD. We offer educational materials, videos, a research section, news and events, and contacts for patients worldwide. The website is a resource for patients, family members, and medical professionals worldwide. FMDSA is the premier resource of FMD information for the layperson and an excellent place for physicians to easily find medical articles and abstracts. The FMDSA website also offers community events for those wanting to get more involved. FMDSA is the recognized leader in FMD support and resources.
FieldValueIRS element (for citing)
Total Program Service Expenses$50,000TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (7 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmt
DR BRADLEY DARR
President2.00$0
ROSIE MIKLAVCIC
Treasurer5.00$0
JAZETTE VICEDOR
DIRECTOR AT LAR1.50$0
ROCHELLE DESROCHERS
DIRECTOR AT LAR11.75$0
CATHLIN JAMISON
DIRECTOR AT LAR40.00$0
ALLISON GAINES
DIRECTOR AT LAR2.50$0
PAM MACE
EXECUTIVE DIRECTOR60.00$0
FieldValueIRS element (for citing)
Activities Not Previously RptfalseActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not RptfalseChgMadeToOrgnzngDocNotRptInd
Organization Had UBIfalseOrganizationHadUBIInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Organization Dissolved EtcfalseOrganizationDissolvedEtcInd
Form1120 Pol FiledfalseForm1120PolFiledInd
Made Loans To From OfficersfalseMadeLoansToFromOfficersInd
Tax Imposed Under IRC4911$0TaxImposedUnderIRC4911Amt
Tax Imposed Under IRC4912$0TaxImposedUnderIRC4912Amt
Tax Imposed Under IRC4955$0TaxImposedUnderIRC4955Amt
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
Tax Imposed On Organization Mgr$0TaxImposedOnOrganizationMgrAmt
Tax Reimbursed By Organization$0TaxReimbursedByOrganizationAmt
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
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Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonANITA MEYERSPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line126777 LORAIN RDAddressLine1Txt
CityNORTH OLMSTEDCityNm
State AbbreviationOHStateAbbreviationCd
ZIP44070ZIPCd
FieldValueIRS element (for citing)
Phone2168342410PhoneNum
FieldValueIRS element (for citing)
Foreign Financial AccountfalseForeignFinancialAccountInd
Foreign OfficefalseForeignOfficeInd
Donor Advised FndsfalseDonorAdvisedFndsInd
Operate HospitalfalseOperateHospitalInd
Tanning Services ProvidedfalseTanningServicesProvidedInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
School OperatingfalseSchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Part VI Of Comp Of Hghst Pd EmplNONEPartVIOfCompOfHghstPdEmplTxt
Part VI Hghst Pd Cntrct Prof SrvcNONEPartVIHghstPdCntrctProfSrvcTxt
Filed Schedule AYes (true)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$147,225CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$202,598CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$142,236CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$147,938CurrentTaxYearMinus1YearAmt
Current Tax Year$145,428CurrentTaxYearAmt
Total$785,425TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$3,702CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus1 Year$11,428CurrentTaxYearMinus1YearAmt
Total$15,130TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$150,927CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$202,598CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$142,236CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$159,366CurrentTaxYearMinus1YearAmt
Current Tax Year$145,428CurrentTaxYearAmt
Total$800,555TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$800,555PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$39CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$22CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$11CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11CurrentTaxYearMinus1YearAmt
Total$83TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$39CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$22CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$11CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11CurrentTaxYearMinus1YearAmt
Total$83TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$150,966CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$202,620CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$142,247CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$159,377CurrentTaxYearMinus1YearAmt
Current Tax Year$145,428CurrentTaxYearAmt
Total$800,638TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.99990PublicSupportCY509Pct
Public Support PY5090.99970PublicSupportPY509Pct
Investment Income CY0.00010InvestmentIncomeCYPct
Investment Income PY0.00030InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (16 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Grants and Similar Amounts Paid In Excess of $5,000.1| Donee's Name: MCORRP UNIVERSITY OF MICHIGAN | Donee's Address: 24 FRANK LLOYD WRIGHT DRIVE ANN ARBOR MI 48106 | Cash Amount Given: $50000
Other Expenses.1001Advertising and Promotion $802
Other Expenses.1005Travel $4726
Other Expenses.1007Conferences, Conventions, and Meetings $1051
Other Expenses.1012Insurance $3535
Other Expenses.1SOFTWARE $4985
Other Expenses.2SUPPLIES $1910
Other Expenses.4CREDIT CARD FEES $1287
Other Expenses.5TELEPHONE $1141
Other Expenses.6FILING FEES $1131
Other Expenses.7DUES $390
Other Expenses.8PAYROLL EXPENSES $160
Other Expenses.10WEBSITE $52
Other Expenses.11DONATIONS $50
Other Expenses.12BANK CHARGES $40
Total Liabilities.1001Accounts Payable and Accrued Expenses - Beginning $548 Accounts Payable and Accrued Expenses - Ending $1123

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