NATIONAL PSORIASIS FOUNDATION: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- NATIONAL PSORIASIS FOUNDATION (EIN 93-0571472)
- Tax period
- 2023-07-01 to 2024-06-30
- Filed
- 2025-01-31
- IRS object ID
- 202530319349300033
- Schema version
- 2023v6.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2025-01-31T12:03:21-06:00 | ReturnTs |
| Tax Period End | 2024-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 930900579 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MCDONALD JACOBS PC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 121 SW SALMON ST STE 1100 | AddressLine1Txt |
| City | PORTLAND | CityNm |
| State Abbreviation | OR | StateAbbreviationCd |
| ZIP | 97204 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 930571472 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NATIONAL PSORIASIS FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | NATI | BusinessNameControlTxt |
| Phone | 5032447404 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1800 DIAGONAL ROAD 360 | AddressLine1Txt |
| City | ALEXANDRIA | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22314 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | RONALD GOLDSMAN | PersonNm |
| Person Title | CHIEF FINANCIAL OFFICER | PersonTitleTxt |
| Phone | 5032447404 | PhoneNum |
| Signature | 2025-01-30 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | 0 | IRSResponsiblePrtyInfoCurrInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | SANG AHN | PreparerPersonNm |
| PTIN | P00540880 | PTIN |
| Phone | 5032270581 | PhoneNum |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2023 | TaxYr |
| Build TS | 2025-03-06 01:10:19Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | LEAH MCCORMICK HOWARD | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1800 DIAGONAL ROAD 360 | AddressLine1Txt |
| City | ALEXANDRIA | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22314 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $12,755,987 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.PSORIASIS.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1968 | FormationYr |
| Legal Domicile State | VA | LegalDomicileStateCd |
| Activity Or Mission | TO DRIVE EFFORTS TO CURE PSORIATIC DISEASE AND IMPROVE THE LIVES OF THOSE AFFECTED. | ActivityOrMissionDesc |
| Voting Members Governing Body | 21 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 18 | VotingMembersIndependentCnt |
| Total Employee | 68 | TotalEmployeeCnt |
| Total Volunteers | 640 | TotalVolunteersCnt |
| Total Gross UBI | $1,016,015 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $357,238 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $9,711,727 | PYContributionsGrantsAmt |
| CY Contributions Grants | $10,084,711 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $2,024,319 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $1,933,982 | CYProgramServiceRevenueAmt |
| PY Investment Income | $169,130 | PYInvestmentIncomeAmt |
| CY Investment Income | $207,360 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$313,737 | PYOtherRevenueAmt |
| CY Other Revenue | -$630,285 | CYOtherRevenueAmt |
| PY Total Revenue | $11,591,439 | PYTotalRevenueAmt |
| CY Total Revenue | $11,595,768 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $3,419,296 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,930,843 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $6,451,132 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $6,312,918 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $65,763 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $233,613 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $1,455,236 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $3,827,201 | PYOtherExpensesAmt |
| CY Other Expenses | $3,109,478 | CYOtherExpensesAmt |
| PY Total Expenses | $13,763,392 | PYTotalExpensesAmt |
| CY Total Expenses | $12,586,852 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$2,171,953 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$991,084 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $13,817,026 | TotalAssetsBOYAmt |
| Total Assets EOY | $14,679,906 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $4,798,376 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $5,940,214 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $9,018,650 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $8,739,692 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE NATIONAL PSORIASIS FOUNDATION PROVIDES PEOPLE WITH PSORIASIS AND PSORIATIC ARTHRITIS THE SERVICES THEY NEED TO BEST MANAGE THEIR CONDITION, WHILE PROMOTING RESEARCH TO FIND A CURE. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $3,846,872 | ExpenseAmt |
| Grant | $2,930,843 | GrantAmt |
| Desc | RESEARCHNPF CONTINUED TO LEAD COLLABORATIVE, TRANSFORMATIONAL RESEARCH BY ENSURING THAT FUNDING EXTRAMURAL RESEARCH REMAINED A PRIORITY. IN FY 2024, NPF INVESTED OVER $2.9M IN RESEARCH GRANTS AND FELLOWSHIP AWARDS. INTRODUCED IN 2020, THE NPF HAS INVESTED OVER $4M TOWARDS THE PSORIASIS PREVENTION INITIATIVE GRANT, A STUDY AIMED AT PREVENTING THE ONSET ON CARDIOVASCULAR DISEASE IN PEOPLE WITH PSORIATIC DISEASE, AND TO PROVIDE, TIMELY, ADEQUATE TREATMENT FOR THOSE DEEMED TO BE AT HIGH RISK OF DEVELOPING CARDIOVASCULAR DISEASE. IN FY 2023, THE PILOT PHASE OF THE UNIVERSITY OF PENNSYLVANIA-LED STUDY ON CVD CONCLUDED AND PLANNING BEGAN FOR THE LAUNCH OF THE FULL STUDY. THIS UNIQUE, SCALABLE MODEL THAT TESTS CARE COORDINATION ACROSS DERMATOLOGISTS AND PRIMARY CARE PROVIDERS SAW PROMISING EARLY RESULTS IN THE PILOT STUDY. OF THE 25% OF PEOPLE IN PHASE ONE WHO WERE IDENTIFIED AS HAVING AS HIGH RISK FOR CARDIOVASCULAR DISEASE, 85% FOLLOWED THROUGH WITH AN APPOINTMENT WITH THEIR HEALTH CARE PROVIDER TO ADDRESS CARDIOVASCULAR DISEASE. THE PSA DIAGNOSTIC TEST GRANT WAS LAUNCHED IN 2020 WITH THE GOAL OF ADVANCING THE DEVELOPMENT OF THE FIRST DIAGNOSTIC TEST FOR PSA, REDUCING GUESSWORK AND LONG DELAYS IN DIAGNOSIS AND TREATMENT. AT THE CONCLUSION OF THE STUDY THIS FISCAL YEAR, KEY FINDINGS OF THE RESEARCH EVIDENCING THE CRITICAL ADVANCEMENTS IN UNDERSTANDING THE DISEASE TO HELP INFORM THE WORK OF OTHER RESEARCHERS AND CLINICIANS WERE PUBLISHED IN SCIENCE IMMUNOLOGY. THE NPF CONTINUED TO COLLABORATE WITH PUBLIC-PRIVATE PARTNERS IN THE ACCELERATED MEDICINES PARTNERSHIP FOR AUTOIMMUNE AND IMMUNE-MEDIATED DISEASES INITIATIVE, PUBLISHED SEVERAL ABSTRACTS AND PAPERS, AND BROUGHT THE INTERNALLY GENERATED DATA TO THE COMMUNITY. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,321,080 | ExpenseAmt |
| Revenue | $12,000 | RevenueAmt |
| Desc | PROFESSIONAL EDUCATIONNPF CONTINUED TO EXPAND AND STRENGTHEN MEDICAL EDUCATION PROGRAMMING TARGETING HEALTH CARE PROVIDERS AT ALL LEVELS AND STAGES OF CAREER. THE 25TH ANNUAL NPF RESIDENTS' MEETING OFFERED DERMATOLOGY RESIDENTS THE LATEST IN PSORIATIC DISEASE TREATMENT PRESENTED BY EXPERTS IN THE FIELD. NPF ALSO LAUNCHED A COMPLIMENTARY RHEUMATOLOGY FELLOWS MEETING TO OFFER EDUCATION TO NEXT GENERATION RHEUMATOLOGISTS AND DEVELOP THE RELATIONSHIPS BETWEEN THESE FUTURE CARE COLLABORATORS. THE NPF HOSTED ITS BI-ANNUAL NPF RESEARCH SYMPOSIUM: A CURE FOR ALL, THE NATION'S PREMIER PSORIATIC DISEASE RESEARCH EVENT WHICH FEATURED SPEAKERS ON A WIDE ARRAY OF CURRENT TOPICS FROM THE PSORIASIS TO PSA TRANSITION TO THE RESULTS OF A NOVEL KNOCKOUT STUDY AIMING TO CLEAR PSORIASIS SYMPTOMS WITH EARLY AGGRESSIVE BIOLOGIC TREATMENT.THROUGH ITS DEDICATION TO EDUCATING HEALTH CARE PROVIDERS ON PSORIATIC DISEASE AND ITS RELATED DISEASES, NPF HAS EARNED ACCREDITATION AS A PROVIDER OF CONTINUING MEDICAL EDUCATION. IT'S PART OF OUR EFFORTS TO ENSURE ALL DIFFERENT TYPES OF HEALTH CARE PROVIDERS UNDERSTAND THIS COMPLICATED DISEASE. NPF OFFERS THE PSOUND BYTES CONTINUING MEDICAL EDUCATION PODCASTS, WEBINARS, AND IN-PERSON CLASSES AND SEMINARS FOR A WIDE RANGE OF AUDIENCES AND PUBLISHES THE JOURNAL OF PSORIASIS AND PSORIATIC ARTHRITIS, A PEER REVIEWED OUTLET FEATURING CME ARTICLES. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,063,418 | ExpenseAmt |
| Desc | ADVOCACYNPF CONTINUED TO ADVOCATE ON BOTH STEP THERAPY AND COPAY ACCUMULATOR ADJUSTMENT PROGRAMS TO ENSURE PATIENTS HAVE AFFORDABLE ACCESS TO THERAPIES. NPF ALSO LEVERAGED THOUSANDS OF ADVOCATES TO WORK FOR HEALTH INSURANCE COVERAGE IMPROVEMENTS FOR THE MILLIONS OF PEOPLE LIVING WITH PSORIATIC DISEASE, WHILE ALSO WORKING TO IMPROVE THE SAFETY AND AFFORDABILITY OF PSORIASIS AND PSA TREATMENTS AND INCREASING FEDERAL SUPPORT FOR PSORIATIC DISEASE RESEARCH. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,460,775 | ExpenseAmt |
| Revenue | $906,229 | RevenueAmt |
| Desc | EDUCATION, OUTREACH, AND PATIENT SERVICESTHE NPF IS PROUD TO HAVE PUBLISHED THE FIRST EVER PSORIASIS HEALTH INDICATOR REPORT. THIS SET OF DATA ABOUT PSORIATIC DISEASE AND ITS IMPACTS WAS MADE POSSIBLE BY A PARTNERSHIP WITH THE CENTERS FOR DISEASE CONTROL AND THROUGH THE CONTRIBUTIONS OF TODAY'S LEADERS IN DERMATOLOGY AND RHEUMATOLOGY RESEARCH AND CLINICAL CARE. THE PSORIASIS HEALTH INDICATOR REPORT PROVIDES INFORMATION NEEDED TO EDUCATE THE GENERAL PUBLIC, HEALTH OFFICIALS, AND HEALTH CARE PROVIDERS ABOUT KEY ISSUES AND CHALLENGES AFFECTING THE MORE THAN 8 MILLION PEOPLE IN THE U.S. WHO LIVE WITH THIS DISEASE. SINCE 2016, NPF'S PATIENT NAVIGATION CENTER HAS SUPPORTED OVER 90,000 PATIENTS AND THEIR CAREGIVERS WITH FREE, PERSONALIZED SUPPORT DESIGNED TO HELP THEM UNDERSTAND PSORIATIC DISEASE AND TREATMENT OPTIONS, NAVIGATE INSURANCE CHALLENGES, AND FIND THE APPROPRIATE HEALTH CARE PROVIDER. NPF ADVANCE MAGAZINE CONTINUED TO PROVIDE THE LATEST INFORMATION, STORIES, AND RESOURCES FIVE TIMES ANNUALLY FOR OVER 25,000 PRINT SUBSCRIBERS AND HUNDREDS OF THOUSANDS OF ONLINE READERS. EACH WEEK, MORE THAN 283,000 PEOPLE RECEIVED ADVANCE WEEKLY, THE OFFICIAL PATIENT-FOCUSED E-NEWSLETTER OF NPF. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $3,460,775 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Revenue | $906,229 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $9,692,145 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 68 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | Yes (1) | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | Yes (1) | Form990TFiledInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 21 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 18 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ID | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TX | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RONALD GOLDSMAN | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 5032447404 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1800 DIAGONAL ROAD 360 | AddressLine1Txt |
| City | ALEXANDRIA | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22314 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (28 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|---|---|
| LEAH MCCORMICK HOWARD | |||||||||
| PRESIDENT/CEO | 40.00 | Yes (X) | $304,524 | $0 | $35,435 | ||||
| RANDY BERANEK THRU DEC 2021 | |||||||||
| FORMER PRESIDENT/CEO | 40.00 | $53,802 | $0 | $0 | Yes (X) | ||||
| RONALD GOLDSMAN | |||||||||
| CHIEF FINANCIAL OFFICER | 40.00 | Yes (X) | $214,283 | $0 | $18,621 | ||||
| JENNIFER FAGERSTROM | |||||||||
| CHIEF REVENUE OFFICER | 40.00 | $227,737 | $0 | $39,539 | Yes (X) | ||||
| GUY EAKIN | |||||||||
| CHIEF SCIENTIFIC & MEDICAL OFFICER | 40.00 | $153,257 | $0 | $12,559 | Yes (X) | ||||
| RENE ISLAS | |||||||||
| CHIEF OF STAFF | 40.00 | $140,595 | $0 | $26,666 | Yes (X) | ||||
| JASON HARRIS | |||||||||
| VICE PRESIDENT OF GOVERNMENT RELATIONS & ADVOCACY | 40.00 | $153,312 | $0 | $18,346 | Yes (X) | ||||
| KATHERINE SOUTHWICK | |||||||||
| VICE PRESIDENT OF MARKETING & COMMUNICATIONS | 40.00 | $136,394 | $0 | $16,100 | Yes (X) | ||||
| BREANNA BAER | |||||||||
| VICE PRESIDENT, FIELD DEVELOPMENT & OPERATIONS | 40.00 | $141,302 | $0 | $22,187 | Yes (X) | ||||
| ROBERT FRIESEL | |||||||||
| DIRECTOR OF RESEARCH & MEDICAL AFFAIRS | 40.00 | $125,719 | $0 | $20,882 | Yes (X) | ||||
| CAROL OSTROW | |||||||||
| CHAIR-ELECT | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |||
| EYAL OFIR | |||||||||
| VICE CHAIR | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |||
| MIKE REFERMAT | |||||||||
| TREASURER | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |||
| RICHARD SEIDEN | |||||||||
| SECRETARY | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |||
| RON GRAU | |||||||||
| PAST CHAIR | 1.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |||
| JONATHAN SCOTT | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| LARRY GREEN MD | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| MARY CARROLL | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| MICHAEL GRAFF | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| MARK OBERMAN | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| JASON LICHTEN MD | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| PETE MILLER THRU MARCH 2023 | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| MATTHEW T KISELICA | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| APRIL ARMSTRONG MD THRU JUNE 2023 | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| ELAINE HUSNI MD | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| VALERIE HARRISON FROM JUNE 2023 | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| DIANA SANDLER FROM JUNE 2023 | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| BRIAN JANSSEN FROM JUNE 2023 | |||||||||
| DIRECTOR | 1.00 | $0 | $0 | $0 | Yes (X) | ||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $1,650,925 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $210,335 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 17 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | Yes (1) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (3 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| NEXUS DIRECT LLC | |||||
| 780 LYNNHAVEN PARKWAY SUITE 400 | VIRGINIA BEACH | VA | 23452 | DIRECT MARKETING AGENCY | $440,323 |
| CONVERO | |||||
| 201 N UNION STREET SUITE 110 | ALEXANDRIA | VA | 22314 | PUBLIC RELATIONS | $117,400 |
| MILLER NASH LLP | |||||
| 1140 SW WASHINGTON ST SUITE 700 | PORTLAND | OR | 97205 | LEGAL | $109,612 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 3 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $174 | FederatedCampaignsAmt |
| Membership Dues | $30,933 | MembershipDuesAmt |
| Fundraising | $2,702,831 | FundraisingAmt |
| Government Grants | $395,842 | GovernmentGrantsAmt |
| All Other Contributions | $6,954,931 | AllOtherContributionsAmt |
| Noncash Contributions | $25,559 | NoncashContributionsAmt |
| Total Contributions | $10,084,711 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (5 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Unrelated Business RevenueUnrelatedBusinessRevenueAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|---|
| ADVERTISING INCOME | 541800 | $1,016,015 | $1,016,015 | |
| PRODUCT CERTIFICATION | 541900 | $484,392 | $484,392 | |
| PATIENT RECRUITMENT | 541900 | $369,983 | $369,983 | |
| ROYALTIES | 541900 | $38,299 | $38,299 | |
| SCIENTIFIC ADVISORY | 541900 | $12,000 | $12,000 |
Total Oth Program Service Rev TotalOthProgramServiceRevGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $13,293 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $13,293 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $1,933,982 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $318,103 | TotalRevenueColumnAmt |
| Exclusion | $318,103 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $418,929 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $529,672 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$110,743 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$110,743 | TotalRevenueColumnAmt |
| Exclusion | -$110,743 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $2,702,831 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $630,547 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$630,547 | TotalRevenueColumnAmt |
| Exclusion | -$630,547 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $262 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $0 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $262 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $262 | RelatedOrExemptFuncIncomeAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $11,595,768 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $918,229 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $1,016,015 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$423,187 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,293,189 | TotalAmt |
| Program Services | $2,293,189 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $637,654 | TotalAmt |
| Program Services | $637,654 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,143,882 | TotalAmt |
| Program Services | $814,346 | ProgramServicesAmt |
| Management And General | $209,199 | ManagementAndGeneralAmt |
| Fundraising | $120,337 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,250,383 | TotalAmt |
| Program Services | $3,025,907 | ProgramServicesAmt |
| Management And General | $777,332 | ManagementAndGeneralAmt |
| Fundraising | $447,144 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $191,293 | TotalAmt |
| Program Services | $136,184 | ProgramServicesAmt |
| Management And General | $34,985 | ManagementAndGeneralAmt |
| Fundraising | $20,124 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $333,980 | TotalAmt |
| Program Services | $237,765 | ProgramServicesAmt |
| Management And General | $61,080 | ManagementAndGeneralAmt |
| Fundraising | $35,135 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $393,380 | TotalAmt |
| Program Services | $280,053 | ProgramServicesAmt |
| Management And General | $71,943 | ManagementAndGeneralAmt |
| Fundraising | $41,384 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $48,101 | TotalAmt |
| Program Services | $32,709 | ProgramServicesAmt |
| Management And General | $9,620 | ManagementAndGeneralAmt |
| Fundraising | $5,772 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,605 | TotalAmt |
| Program Services | $12,651 | ProgramServicesAmt |
| Management And General | $3,721 | ManagementAndGeneralAmt |
| Fundraising | $2,233 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $245,323 | TotalAmt |
| Program Services | $245,323 | ProgramServicesAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $233,613 | TotalAmt |
| Fundraising | $233,613 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $31,857 | TotalAmt |
| Management And General | $31,857 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $407,613 | TotalAmt |
| Program Services | $373,998 | ProgramServicesAmt |
| Management And General | $20,422 | ManagementAndGeneralAmt |
| Fundraising | $13,193 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $278,941 | TotalAmt |
| Program Services | $267,836 | ProgramServicesAmt |
| Fundraising | $11,105 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $67,711 | TotalAmt |
| Program Services | $34,320 | ProgramServicesAmt |
| Management And General | $6,921 | ManagementAndGeneralAmt |
| Fundraising | $26,470 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $155,087 | TotalAmt |
| Program Services | $110,409 | ProgramServicesAmt |
| Management And General | $28,363 | ManagementAndGeneralAmt |
| Fundraising | $16,315 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $918,956 | TotalAmt |
| Program Services | $691,360 | ProgramServicesAmt |
| Management And General | $11,519 | ManagementAndGeneralAmt |
| Fundraising | $216,077 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $50,214 | TotalAmt |
| Program Services | $35,748 | ProgramServicesAmt |
| Management And General | $9,183 | ManagementAndGeneralAmt |
| Fundraising | $5,283 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $57,871 | TotalAmt |
| Program Services | $41,199 | ProgramServicesAmt |
| Management And General | $10,584 | ManagementAndGeneralAmt |
| Fundraising | $6,088 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| DUES AND SUBSCRIPTIONS | $363,879 | $271,326 | $25,987 | $66,566 |
| PRINTING AND POSTAGE | $205,310 | $93,176 | $2,181 | $109,953 |
| TAXES | $92,486 | $92,486 | ||
| BANK FEES | $76,714 | $20,293 | $56,421 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $90,810 | TotalAmt |
| Program Services | $56,992 | ProgramServicesAmt |
| Management And General | $11,795 | ManagementAndGeneralAmt |
| Fundraising | $22,023 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,586,852 | TotalAmt |
| Program Services | $9,692,145 | ProgramServicesAmt |
| Management And General | $1,439,471 | ManagementAndGeneralAmt |
| Fundraising | $1,455,236 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,155,746 | BOYAmt |
| EOY | $1,023,562 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,788,781 | BOYAmt |
| EOY | $2,461,795 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $703,034 | BOYAmt |
| EOY | $443,481 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,370 | BOYAmt |
| EOY | $2,630 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $152,539 | BOYAmt |
| EOY | $226,382 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $474,439 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $250,562 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $385,368 | BOYAmt |
| EOY | $223,877 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,511,304 | BOYAmt |
| EOY | $9,620,108 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $115,884 | BOYAmt |
| EOY | $678,071 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,817,026 | BOYAmt |
| EOY | $14,679,906 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $617,899 | BOYAmt |
| EOY | $952,666 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,845,657 | BOYAmt |
| EOY | $4,024,290 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $168,500 | BOYAmt |
| EOY | $121,375 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $166,320 | BOYAmt |
| EOY | $841,883 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,798,376 | BOYAmt |
| EOY | $5,940,214 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,506,333 | BOYAmt |
| EOY | $5,271,417 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,512,317 | BOYAmt |
| EOY | $3,468,275 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $9,018,650 | BOYAmt |
| EOY | $8,739,692 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,817,026 | BOYAmt |
| EOY | $14,679,906 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | -$991,084 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $798,596 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | -$86,470 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $12,708,368 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $11,146,561 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $11,642,853 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $9,711,727 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $10,084,711 | CurrentTaxYearAmt |
| Total | $55,294,220 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $12,708,368 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $11,146,561 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $11,642,853 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $9,711,727 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $10,084,711 | CurrentTaxYearAmt |
| Total | $55,294,220 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $18,249,687 | SubstantialContributorsTotAmt |
| Public Support Total170 | $37,044,533 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $216,849 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $164,668 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $214,822 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $284,300 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $318,102 | CurrentTaxYearAmt |
| Total | $1,198,741 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,291,031 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,065,032 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $185,995 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $311,307 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $397,931 | CurrentTaxYearAmt |
| Total | $3,251,296 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $59,744,257 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $4,178,892 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.62010 | PublicSupportCY170Pct |
| Public Support PY170 | 0.61160 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $49,093 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $196,230 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $245,323 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $10,854,436 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $11,099,759 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $704,988 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $176,247 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $616,452 | CurrentYearMinus3Amt |
| Current Year Minus2 | $711,018 | CurrentYearMinus2Amt |
| Current Year Minus1 | $763,609 | CurrentYearMinus1Amt |
| Current Year | $704,988 | CurrentYearAmt |
| Total | $2,796,067 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $4,194,101 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $199,263 | CurrentYearMinus3Amt |
| Current Year Minus2 | $153,665 | CurrentYearMinus2Amt |
| Current Year Minus1 | $229,678 | CurrentYearMinus1Amt |
| Current Year | $245,323 | CurrentYearAmt |
| Total | $827,929 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $154,113 | CurrentYearMinus3Amt |
| Current Year Minus2 | $177,755 | CurrentYearMinus2Amt |
| Current Year Minus1 | $190,902 | CurrentYearMinus1Amt |
| Current Year | $176,247 | CurrentYearAmt |
| Total | $699,017 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $1,048,526 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $25,348 | CurrentYearMinus3Amt |
| Current Year Minus2 | $69,888 | CurrentYearMinus2Amt |
| Current Year Minus1 | $79,586 | CurrentYearMinus1Amt |
| Current Year | $49,093 | CurrentYearAmt |
| Total | $223,915 | TotalAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE C, PART II-A, LINE 1 | FormAndLineReferenceDesc |
| Explanation | OUR ADVOCACY TEAM IS LED BY GOVERNMENT RELATIONS EXPERTS THAT TRACK AND IDENTIFY STATE AND FEDERAL OPPORTUNITIES TO SPEAK UP ON BEHALF OF THE OVER 8 MILLION AMERICANS LIVING WITH PSORIATIC DISEASE. WE DEVELOP POSITION STATEMENTS THAT OUR STAFF AND VOLUNTEERS CAN TAKE INTO MEETINGS WITH POLICYMAKERS. WE WORK WITH VARIOUS STAKEHOLDERS, INCLUDING GOVERNMENT OFFICIALS, INSURERS, PHARMACY BENEFIT MANAGERS, PHARMACEUTICAL MANUFACTURERS, AND EMPLOYERS, TO SPREAD AWARENESS ABOUT THE DAY-TO-DAY CHALLENGES OF LIVING WITH PSORIATIC DISEASE AND ADVOCATE ON BEHALF OF POLICY CHANGES THAT ELIMINATE ACCESS TO CARE BARRIERS. EACH YEAR, THE FOUNDATION HOLDS A CAPITOL HILL DAY TO ADVOCATE FOR POLICIES THAT IMPROVE ACCESS TO CARE. | ExplanationTxt |
Schedule D IRS990ScheduleD
Land LandGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Investment Cost Or Other Basis | $100,000 | InvestmentCostOrOtherBasisAmt |
| Book Value | $100,000 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $179,272 | OtherCostOrOtherBasisAmt |
| Depreciation | $118,696 | DepreciationAmt |
| Book Value | $60,576 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $195,167 | OtherCostOrOtherBasisAmt |
| Depreciation | $131,866 | DepreciationAmt |
| Book Value | $63,301 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $223,877 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| DEFERRED COMPENSATION PLAN | $88,781 |
| OPERATING LEASE | $753,102 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $841,883 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $12,365,507 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $798,596 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $3,000 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $801,596 | RevenueNotReportedAmt |
| Revenue Subtotal | $11,563,911 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $31,857 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $31,857 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $11,595,768 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $12,644,465 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $3,000 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $102,000 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $105,000 | ExpensesNotReportedAmt |
| Expenses Subtotal | $12,539,465 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $31,857 | InvestmentExpensesNotIncld2Amt |
| Other Expenses Not Included | $15,530 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $47,387 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $12,586,852 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART X, LINE 2: | THE ORGANIZATION FOLLOWS THE PROVISION OF FASB ASC TOPIC 740 OF ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND CONCLUDED THAT THERE ARE NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS TOPIC. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | LOSS FROM UNCOLLECTIBLES INCLUDED AS A CHANGE IN NET ASSETS ON FORM 990 102,000. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | GRANT TURNBACKS NETTED WITH EXPENSES ON FINANCIAL STATEMENTS 15,530. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | 0 | 0 | GRANT EXPENSES | DISCOVERY AND EARLY CAREER RESEARCH GRANT | $89,000 |
| NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES | 0 | 0 | GRANT EXPENSES | PSA DIAGNOSTIC AWARD | $423,654 |
| EAST ASIA AND THE PACIFIC | 0 | 0 | GRANT EXPENSE | EARLY CAREER RESEARCH GRANT | $50,000 |
| MIDDLE EAST AND NORTH AFRICA | 0 | 0 | DISCOVERY GRANT | DISCOVERY GRANT | $75,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $637,654 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $637,654 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (9 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt |
|---|---|---|---|---|
| MIDDLE EAST AND NORTH AFRICA | DISCOVERY GRANT | $75,000 | BANK DRAFT | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | DISCOVERY GRANT | $72,000 | BANK DRAFT | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | EARLY CAREER RESEARCH GRANT | $17,000 | BANK DRAFT | $0 |
| NORTH AMERICA (CANADA AND MEXICO, BUT NOT U.S.) | TRANSLATIONAL RESEARCH GRANT | $199,510 | BANK DRAFT | $0 |
| NORTH AMERICA (CANADA AND MEXICO, BUT NOT U.S.) | PSORIATIC DISEASE RESEARCH FELLOWSHIP GRANT | $50,000 | BANK DRAFT | $0 |
| NORTH AMERICA (CANADA AND MEXICO, BUT NOT U.S.) | EARLY CAREER RESEARCH GRANT | $50,000 | BANK DRAFT | $0 |
| NORTH AMERICA (CANADA AND MEXICO, BUT NOT U.S.) | PSORIATIC DISEASE RESEARCH FELLOWSHIP GRANT | $49,710 | BANK DRAFT | $0 |
| NORTH AMERICA (CANADA AND MEXICO, BUT NOT U.S.) | DISCOVERY GRANT | $74,434 | BANK DRAFT | $0 |
| EAST ASIA AND THE PACIFIC | EARLY CAREER RESEARCH GRANT | $50,000 | BANK DRAFT | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 0 | Total501c3OrgCnt |
| Total Other Org | 9 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE RESEARCH DEPARTMENT. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp
Organization Business Name OrganizationBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NEXUS DIRECT LLC | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 780 LYNNHAVEN PARKWAY SUITE 400 | AddressLine1Txt |
| City | VIRGINIA BEACH | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 23452 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activity | DIRECT MAIL | ActivityTxt |
| Fundraiser Control Of Funds | 0 | FundraiserControlOfFundsInd |
| Gross Receipts | $403,454 | GrossReceiptsAmt |
| Retained By Contractor | $233,613 | RetainedByContractorAmt |
| Net To Organization | $169,841 | NetToOrganizationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $403,454 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $233,613 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $169,841 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | ID | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | IA | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | MT | LicensedStatesCd |
| Licensed States | NE | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | SD | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | TX | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WY | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | PEER TO PEER (TAKE ACTION/TEAM NPF) | Event1Nm |
| Gross Receipts Event1 | $905,365 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $905,365 | CharitableContriEvent1Amt |
| Non Cash Prizes Event1 | $11,505 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $14,926 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $7,773 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $13,209 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $56,584 | OtherDirectExpensesEvent1Amt |
| Event2 | COMMIT TO CURE GALA | Event2Nm |
| Gross Receipts Event2 | $777,887 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $777,887 | CharitableContriEvent2Amt |
| Non Cash Prizes Event2 | $5,837 | NonCashPrizesEvent2Amt |
| Rent Facility Costs Event2 | $28,577 | RentFacilityCostsEvent2Amt |
| Food And Beverage Event2 | $14,883 | FoodAndBeverageEvent2Amt |
| Entertainment Event2 | $16,551 | EntertainmentEvent2Amt |
| Other Direct Expenses Event2 | $72,110 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 1 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $1,019,579 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $1,019,579 | CharitableContriOtherEventsAmt |
| Non Cash Prizes Other Events | $6,634 | NonCashPrizesOtherEventsAmt |
| Rent Fclty Costs Other Events | $155,038 | RentFcltyCostsOtherEventsAmt |
| Food And Beverage Other Events | $80,742 | FoodAndBeverageOtherEventsAmt |
| Entertainment Other Events | $41,586 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $104,592 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $2,702,831 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $2,702,831 | CharitableContributionsTotAmt |
| Non Cash Prizes Total Events | $23,976 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $198,541 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $103,398 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $71,346 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $233,286 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $630,547 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$630,547 | NetIncomeSummaryAmt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| SCHEDULE G, PART II, COLUMN A, EVENT #1 | NAME OF EVENT: PEER TO PEER (TAKE ACTION & TEAM NPF) |
| SCHEDULE G, PART II, COLUMN B, EVENT #2 | NAME OF EVENT: COMMIT TO CURE GALA |
| SCHEDULE G, PART II, COLUMN C, OTHER EVENTS | NAME OF EVENT: OTHER COMMUNITY BUILDING SPECIAL EVENTS |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (14 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|---|---|---|---|---|---|---|
| BRIGHAM AND WOMEN'S HOSPTAL INC | ||||||||
| 75 FRANCIS STREET | BOSTON | MA | 02115 | 900656139 | 501 (C)(3) | $50,000 | $0 | BRIDGE GRANT |
| FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH | ||||||||
| 11400 ROCKVILLE PIKE SUITE 600 | NORTH BETHESDA | MD | 20852 | 521986675 | 501 (C)(3) | $100,000 | $0 | AMP AIM GRANT |
| ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI | ||||||||
| ONE GUSTAVE L LEVY PLACE | NEW YORK | NY | 10029 | 136171197 | 501 (C)(3) | $200,000 | $0 | TRANSLATIONAL RESEARCH AWARD |
| BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY | ||||||||
| 485 BROADWAY MAIL CODE 8838 | REDWOOD CITY | CA | 94063 | 941156365 | 501 (C)(3) | $75,000 | $0 | DISCOVERY GRANT AWARD |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | ||||||||
| 1855 FOLSOM STREET STE 425 | SAN FRANCISCO | CA | 941034249 | 946036493 | 501 (C)(3) | $49,999 | $0 | PSORIATIC DISEASE RESEARCH FELLOWSHIP GRANT |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | ||||||||
| 1855 FOLSOM STREET STE 425 | SAN FRANCISCO | CA | 941034249 | 946036493 | 501 (C)(3) | $75,000 | $0 | DISCOVERY GRANT AWARD |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES | ||||||||
| 595 CHARLES E YOUNG DR E | LOS ANGELES | CA | 90095 | 956006143 | 501 (C)(3) | $32,000 | $0 | PSORIATIC DISEASE RESEARCH FELLOWSHIP GRANT |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO | ||||||||
| 9500 GILMAN DRIVE | LA JOLLA | CA | 92093 | 946036493 | 501 (C)(3) | $50,000 | $0 | EARLY CAREER RESEARCH GRANT |
| TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | ||||||||
| PO BOX 785541 | PHILADELPHIA | PA | 19178 | 231352685 | 501 (C)(3) | $1,111,190 | $0 | PPI AWARD |
| UNIVERSITY OF PITTSBURGH | ||||||||
| 4200 FIFTH AVENUE | PITTSBURGH | PA | 15260 | 250965591 | 501 (C)(3) | $100,000 | $0 | BRIDGE GRANT |
| UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER | ||||||||
| 5323 HARRY HINES BLVS | DALLAS | TX | 75390 | 752556007 | 501 (C)(3) | $75,000 | $0 | DISCOVERY GRANT AWARD |
| UNIVERSITY OF UTAH | ||||||||
| 201 PRESIDENTS CIRCLE | SALT LAKE CITY | UT | 84112 | 876000525 | 501 (C)(3) | $200,000 | $0 | TRANSLATIONAL RESEARCH AWARD |
| VANDERBILT UNIVERSITY MEDICAL CENTER | ||||||||
| 1211 MEDICAL CENTER DR | NASHVILLE | TN | 37232 | 352528741 | 501 (C)(3) | $100,000 | $0 | BRIDGE GRANT |
| WASHINGTON UNIVERSITY IN ST LOUIS | ||||||||
| 700 ROSEDALE AVENUE | SAINT LOUIS | MO | 63130 | 430653611 | 501 (C)(3) | $75,000 | $0 | DISCOVERY GRANT AWARD |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 14 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | GRANT RECIPIENTS WITH MULTI-YEAR AWARDS PROVIDE INTERIM SCIENTIFIC AND FISCAL PROGRESS REPORTS. ALL GRANT RECIPIENTS PROVIDE A FINAL SCIENTIFIC REPORT AND ACCOUNTING AT THE CONCLUSION OF THE RESEARCH TERM. THE INTERIM AND FINAL REPORTS ARE REVIEWED BY THE RESEARCH DEPARTMENT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | Yes (1) | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | Yes (1) | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (9 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| LEAH MCCORMICK HOWARD | ||||||||||||||
| PRESIDENT/CEO | $304,524 | $0 | $0 | $0 | $0 | $0 | $32,715 | $0 | $2,720 | $0 | $339,959 | $0 | $0 | $0 |
| RANDY BERANEK THRU DEC 2021 | ||||||||||||||
| FORMER PRESIDENT/CEO | $0 | $0 | $0 | $0 | $53,802 | $0 | $0 | $0 | $0 | $0 | $53,802 | $0 | $0 | $0 |
| RONALD GOLDSMAN | ||||||||||||||
| CHIEF FINANCIAL OFFICER | $214,283 | $0 | $0 | $0 | $0 | $0 | $17,024 | $0 | $1,597 | $0 | $232,904 | $0 | $0 | $0 |
| JENNIFER FAGERSTROM | ||||||||||||||
| CHIEF REVENUE OFFICER | $227,737 | $0 | $0 | $0 | $0 | $0 | $24,254 | $0 | $15,285 | $0 | $267,276 | $0 | $0 | $0 |
| GUY EAKIN | ||||||||||||||
| CHIEF SCIENTIFIC & MEDICAL OFFICER | $153,257 | $0 | $0 | $0 | $0 | $0 | $6,563 | $0 | $5,996 | $0 | $165,816 | $0 | $0 | $0 |
| RENE ISLAS | ||||||||||||||
| CHIEF OF STAFF | $105,042 | $0 | $0 | $0 | $35,553 | $0 | $7,552 | $0 | $19,114 | $0 | $167,261 | $0 | $0 | $0 |
| JASON HARRIS | ||||||||||||||
| VICE PRESIDENT OF GOVERNMENT RELATIO | $153,312 | $0 | $0 | $0 | $0 | $0 | $8,882 | $0 | $9,464 | $0 | $171,658 | $0 | $0 | $0 |
| KATHERINE SOUTHWICK | ||||||||||||||
| VICE PRESIDENT OF MARKETING & COMMUN | $136,394 | $0 | $0 | $0 | $0 | $0 | $6,789 | $0 | $9,311 | $0 | $152,494 | $0 | $0 | $0 |
| BREANNA BAER | ||||||||||||||
| VICE PRESIDENT, FIELD DEVELOPMENT & | $141,302 | $0 | $0 | $0 | $0 | $0 | $7,450 | $0 | $14,737 | $0 | $163,489 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINES 4A-B | FormAndLineReferenceDesc |
| Explanation | RANDY BERANAK RECEIVED A FINAL COMPENSATION PAYMENT OF $53,802 THAT WAS PAID OUT OVER TIME. EMPLOYER CONTRIBUTIONS TO 457(F): LEAH MCCORMICK HOWARD - $17,500 JENNIFER FAGERSTROM - $12,500 RONALD GOLDSMAN - $10,000 | ExplanationTxt |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 4 | ContributionCnt |
| Noncash Contributions Rpt F990 | $25,559 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV ON DATE RECEIVED | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 1 | Form8283ReceivedCnt |
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION ENGAGES WITH OUTSIDE THIRD PARTIES WHEN ACCEPTING REAL ESTATE DONATIONS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 IS REVIEWED BY THE GOVERNANCE & AUDIT COMMITTEE AND IS SHARED WITH ALL BOARD MEMBERS PRIOR TO ITS BEING FILED ELECTRONICALLY WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | WE HAVE A CONFLICT OF INTEREST POLICY THAT IS SIGNED BY ALL DIRECTORS ANNUALLY. ALL DIRECTORS AND KEY EMPLOYEES REFRAIN FROM VOTING OR COMMENTING ON ANYTHING WHERE THERE COULD BE A CONFLICT. |
| FORM 990, PART VI, SECTION B, LINE 15 | THE FOUNDATION SUBSCRIBES TO A SALARY SURVEY FOR COMPARABLE INFORMATION FOR SALARIES. |
| FORM 990, PART VI, SECTION C, LINE 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST. AUDITED FINANCIAL STATEMENTS ARE ALSO DISPLAYED ON THE WEBSITE. |
| FORM 990, PART XI, LINE 9: | GRANT TURNBACKS NETTED WITH EXPENSES 15,530. LOSS FROM UNCOLLECTIBLES -102,000. |
| FORM 990, PART XII, LINE 2C | THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. |
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