CHOROIDEREMIA RESEARCH FOUNDATION INC: Form 990, tax year 2017
View the entire original 990 at ProPublica ↗
- Organization
- CHOROIDEREMIA RESEARCH FOUNDATION INC (EIN 04-3511754)
- Tax period
- 2017-07-01 to 2018-06-30
- Filed
- 2019-01-18
- IRS object ID
- 201940189349300824
- Schema version
- 2017v2.3
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2019-01-18T02:46:31-00:00 | ReturnTs |
| Tax Period End | 2018-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Nicholas LaPier CPA PC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 71 Park Avenue Ste A | AddressLine1Txt |
| City | W Springfield | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01089 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2017-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 043511754 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CHOROIDEREMIA RESEARCH FOUNDATION INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CHOR | BusinessNameControlTxt |
| Phone | 4137812274 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 23 E BRUNDRETH STREET | AddressLine1Txt |
| City | SPRINGFIELD | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 011092110 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | TARA CASSIDY- DRISCOLL | PersonNm |
| Person Title | president | PersonTitleTxt |
| Signature | 2019-01-15 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Nicholas LaPier | PreparerPersonNm |
| Phone | 4137320200 | PhoneNum |
| Preparation | 2019-01-18 | PreparationDt |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 75.147.36.125 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2019-01-18 | IPDt |
| IP Tm | 19:34:29 | IPTm |
| IP Timezone | ES | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | F88CE847C45F634F26D6B6DE5F84136C9AD11FEA | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | D9F5C2B0EA96DB4DCFA992E8C1E6690279F9C3F1 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2017 | TaxYr |
| Build TS | 2019-02-21 02:37:17Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | NEAL BENCH | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 397 LAKESHORE LANE | AddressLine1Txt |
| City | CHAPEL HILL | CityNm |
| State Abbreviation | NC | StateAbbreviationCd |
| ZIP | 27514 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $531,038 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.choroideremia.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2000 | FormationYr |
| Legal Domicile State | MA | LegalDomicileStateCd |
| Activity Or Mission | To raise funds to hasten medical research for a cure or treatment of Choroideremia as well as promote greater understanding of this inherited degenerative eye condition to those affected, the medical and research communities, and the public at large. | ActivityOrMissionDesc |
| Voting Members Governing Body | 19 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 19 | VotingMembersIndependentCnt |
| Total Employee | 5 | TotalEmployeeCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $440,903 | PYContributionsGrantsAmt |
| CY Contributions Grants | $531,424 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $445 | PYInvestmentIncomeAmt |
| CY Investment Income | -$386 | CYInvestmentIncomeAmt |
| PY Other Revenue | $2,561 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $443,909 | PYTotalRevenueAmt |
| CY Total Revenue | $531,038 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $28,606 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $161,308 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| CY Salaries Comp Emp Bnft Paid | $57,605 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $54,206 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $298,023 | PYOtherExpensesAmt |
| CY Other Expenses | $216,852 | CYOtherExpensesAmt |
| PY Total Expenses | $326,629 | PYTotalExpensesAmt |
| CY Total Expenses | $435,765 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $117,280 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $95,273 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $700,829 | TotalAssetsBOYAmt |
| Total Assets EOY | $833,614 | TotalAssetsEOYAmt |
| Total Liabilities EOY | $0 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $700,829 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $833,614 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO RAISE FUNDS TO HASTEN MEDICAL RESEARCH FOR CURE OR TREATMENT OF CHOROIDEREMIA | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $225,427 | ExpenseAmt |
| Desc | TO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCH | Desc |
| Total Program Service Expenses | $225,427 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Temp Or Permanent Endowments | false | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | Yes (true) | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | Yes (true) | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Invest Tax Exempt Bonds | false | InvestTaxExemptBondsInd |
| Escrow Account | false | EscrowAccountInd |
| On Behalf Of Issuer | false | OnBehalfOfIssuerInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | false | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 5 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 5 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 19 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 19 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Policies Reference Chapters | false | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | false | ConflictOfInterestPolicyInd |
| Whistleblower Policy | false | WhistleblowerPolicyInd |
| Document Retention Policy | false | DocumentRetentionPolicyInd |
| Compensation Process CEO | false | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Tara Cassidy-Driscoll | PersonNm |
| Phone | 7812548906 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 232 Humphrey St | AddressLine1Txt |
| City | Swampscott | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01907 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (19 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt |
|---|---|---|---|---|---|---|
| NEAL BENCH | ||||||
| 1ST VP | 001.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| CHRISTOPHER MOEN MD | ||||||
| PRESIDENT | 001.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| STEPHANIE SIMS | ||||||
| 2ND VP | 001.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| DANIEL BOREN | ||||||
| SECRETARY | 001.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| MARK HUYSER-WIERENGA | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| TARA CASSIDY- DRISCOLL | ||||||
| TREASURER | 001.00 | Yes (X) | Yes (X) | $0 | $0 | $0 |
| JOHN OSTER | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| MARION SCOTT | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| LISA VOLKER | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| JANET ROWLEY | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| JEFF BENELLI | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| NICKI CAMPBELL | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| TIMMY GALVIN | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| MICHAEL MCCARTHY | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| JOHN TROTT | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| MICHEAL LAENGSFELD | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| JODI MCLAUGHLIN | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| MICHAEL MULLEN | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| KATE EDWARDS-HILLIER | ||||||
| DIRECTOR | 001.00 | Yes (X) | $0 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| All Other Contributions | $531,424 | AllOtherContributionsAmt |
| Total Contributions | $531,424 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$386 | TotalRevenueColumnAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $531,038 | TotalRevenueColumnAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $161,308 | TotalAmt |
| Program Services | $161,308 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $52,398 | TotalAmt |
| Program Services | $6,906 | ProgramServicesAmt |
| Management And General | $44,800 | ManagementAndGeneralAmt |
| Fundraising | $692 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,207 | TotalAmt |
| Program Services | $686 | ProgramServicesAmt |
| Management And General | $4,452 | ManagementAndGeneralAmt |
| Fundraising | $69 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,941 | TotalAmt |
| Management And General | $2,941 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,500 | TotalAmt |
| Program Services | $6,500 | ProgramServicesAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fees For Services Prof Fundraising | FeesForServicesProfFundraising |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,323 | TotalAmt |
| Management And General | $4,395 | ManagementAndGeneralAmt |
| Fundraising | $928 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,833 | TotalAmt |
| Fundraising | $15,833 | FundraisingAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $20,385 | TotalAmt |
| Program Services | $5,880 | ProgramServicesAmt |
| Fundraising | $14,505 | FundraisingAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $78,362 | TotalAmt |
| Management And General | $78,362 | ManagementAndGeneralAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,043 | TotalAmt |
| Management And General | $3,043 | ManagementAndGeneralAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,445 | TotalAmt |
| Management And General | $2,445 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| CONTRACTED PERSONNEL | $27,355 | $2,363 | $12,742 | $12,250 |
| RESEARCH GRANTS | $41,600 | $41,600 | ||
| FUNDRAISING EXPENSES | $630 | $630 | ||
| BANK FEES | $7,861 | $7,861 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,574 | TotalAmt |
| Program Services | $184 | ProgramServicesAmt |
| Management And General | $2,952 | ManagementAndGeneralAmt |
| Fundraising | $1,438 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $435,765 | TotalAmt |
| Program Services | $225,427 | ProgramServicesAmt |
| Management And General | $156,132 | ManagementAndGeneralAmt |
| Fundraising | $54,206 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $636,138 | BOYAmt |
| EOY | $691,757 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $2,195 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $1,961 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $470 | BOYAmt |
| EOY | $234 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $64,221 | BOYAmt |
| EOY | $101,661 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $39,962 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $700,829 | BOYAmt |
| EOY | $833,614 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $700,829 | BOYAmt |
| EOY | $833,614 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $700,829 | BOYAmt |
| EOY | $833,614 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $700,829 | BOYAmt |
| EOY | $833,614 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $95,273 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $37,512 | NetUnrlzdGainsLossesInvstAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
| Public Support Total170 | $0 | PublicSupportTotal170Amt |
| Public Support CY170 | 0.00000 | PublicSupportCY170Pct |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $378,650 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $609,921 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $554,350 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $440,903 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $531,424 | CurrentTaxYearAmt |
| Total | $2,515,248 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $378,650 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $609,921 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $554,350 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $440,903 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $531,424 | CurrentTaxYearAmt |
| Total | $2,515,248 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $57,097 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $53,301 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $57,490 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $120,600 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $157,269 | CurrentTaxYearAmt |
| Total | $445,757 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $57,097 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $53,301 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $57,490 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $120,600 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $157,269 | CurrentTaxYearAmt |
| Total | $445,757 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $2,069,491 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,261 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $49,996 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $13,077 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $445 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $484 | CurrentTaxYearAmt |
| Total | $65,263 | TotalAmt |
Post1975 UBTI Post1975UBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,261 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $49,996 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $13,077 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $445 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $484 | CurrentTaxYearAmt |
| Total | $65,263 | TotalAmt |
Net Income From Other UBI NetIncomeFromOtherUBIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income509 OtherIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $379,911 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $659,917 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $567,427 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $441,348 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $531,908 | CurrentTaxYearAmt |
| Total | $2,580,511 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.80200 | PublicSupportCY509Pct |
| Public Support PY509 | 0.82380 | PublicSupportPY509Pct |
| Investment Income CY | 0.02530 | InvestmentIncomeCYPct |
| Investment Income PY | 0.02600 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Incl Escrow Custodial Acct Liab | false | InclEscrowCustodialAcctLiabInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $2,195 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,961 | DepreciationAmt |
| Book Value | $234 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $234 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (2 entries)
| DescDesc |
|---|
| Financial derivatives and other financial products |
| Closely-held equity interests |
Invst Program Related Org InvstProgramRelatedOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Investments | Desc |
| Book Value | $101,661 | BookValueAmt |
| Method Valuation | F | MethodValuationCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Program Rltd | $101,661 | TotalBookValueProgramRltdAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Federal income taxes | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Rev Etc Audited Fincl Stmt | $568,479 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $37,512 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | $37,512 | RevenueNotReportedAmt |
| Revenue Subtotal | $530,967 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $71 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $71 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $531,038 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $435,694 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $435,694 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $71 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $71 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $435,765 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Grants To Org Outside US GrantsToOrgOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | South America | RegionTxt |
| Purpose Of Grant | Research | PurposeOfGrantTxt |
| Cash Grant | $107,823 | CashGrantAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 1 | Total501c3OrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Part II | FormAndLineReferenceDesc |
| Explanation | ALL GRANTS ARE APPROVED BY THE BOARD OF DIRECTORS AND ARE MONITORED TO ENSURE THE MONEY IS BEING USED TO FUFILL THE PURPOSE OF THE GRANT. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (2 entries)
| Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt |
|---|---|
| Board of Regents of University of Wisconsin | |
| $40,000 | For Choroderemia research |
| UPENN ODC Million Dollar Bike Ride | |
| $50,000 | For Choroderemia research |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 2 | TotalOtherOrgCnt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section B, Line 11 | THE BOARD MEMBERS ARE PROVIDED WITH A COPY OF THE 990 FOR REVIEW BEFORE APPROVAL |
| Form 990, Part XII, Line 2C | COORDINATION OF THE AUDIT IS BY THE DIRECTOR, EXECUTIVE DIRECTOR, AND TREASURER, THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS ARE ACTIVELY INVOLVED AS WELL |
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