AMYOTROPHIC LATERAL SCLEROSIS ASSN: Form 990, tax year 2018
View the entire original 990 at ProPublica ↗
- Organization
- AMYOTROPHIC LATERAL SCLEROSIS ASSN (EIN 13-3271855)
- Tax period
- 2018-02-01 to 2019-01-31
- Filed
- 2019-06-11
- IRS object ID
- 201921629349300207
- Schema version
- 2018v3.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2019-06-11T08:36:02-05:00 | ReturnTs |
| Tax Period End | 2019-01-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 410746749 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CLIFTONLARSONALLEN LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 901 N GLEBE ROAD SUITE 200 | AddressLine1Txt |
| City | ARLINGTON | CityNm |
| State Abbreviation | VA | StateAbbreviationCd |
| ZIP | 22203 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2018-02-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 133271855 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | AMYOTROPHIC LATERAL SCLEROSIS ASSN | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | AMYO | BusinessNameControlTxt |
| Phone | 2024078580 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1275 K STREET NW NO 250 | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20005 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | GREGORY MITCHELL | PersonNm |
| Person Title | EXEC VP, FINANCE & ADMIN | PersonTitleTxt |
| Phone | 2024078580 | PhoneNum |
| Signature | 2019-06-10 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | HEMALI PATEL | PreparerPersonNm |
| PTIN | P01337292 | PTIN |
| Phone | 5712279500 | PhoneNum |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 67.137.57.251 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2019-06-10 | IPDt |
| IP Tm | 12:48:30 | IPTm |
| IP Timezone | ED | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | A31B8943A14933A3BF1B290C164803F9A7DCE6A3 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 1938324BD4D887D076751857843371B82258E98C | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2018 | TaxYr |
| Build TS | 2019-02-21 02:37:17Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE ALS ASSOCIATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | CALANEET BALAS | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1275 K STREET NW NO 250 | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20005 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $42,732,588 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Group Exemption | 4119 | GroupExemptionNum |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.ALSA.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1985 | FormationYr |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Activity Or Mission | LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES. | ActivityOrMissionDesc |
| Voting Members Governing Body | 23 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 23 | VotingMembersIndependentCnt |
| Total Employee | 106 | TotalEmployeeCnt |
| Total Volunteers | 23 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $30,914 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $23,216,448 | PYContributionsGrantsAmt |
| CY Contributions Grants | $29,429,700 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $72,600 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $146,365 | CYProgramServiceRevenueAmt |
| PY Investment Income | $1,546,338 | PYInvestmentIncomeAmt |
| CY Investment Income | -$2,361,210 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$165,651 | PYOtherRevenueAmt |
| CY Other Revenue | -$149,153 | CYOtherRevenueAmt |
| PY Total Revenue | $24,669,735 | PYTotalRevenueAmt |
| CY Total Revenue | $27,065,702 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $22,156,243 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $17,868,141 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $7,936,521 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $8,434,709 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $290,500 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $421,000 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $4,353,885 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $7,434,947 | PYOtherExpensesAmt |
| CY Other Expenses | $8,166,363 | CYOtherExpensesAmt |
| PY Total Expenses | $37,818,211 | PYTotalExpensesAmt |
| CY Total Expenses | $34,890,213 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$13,148,476 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$7,824,511 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $99,633,005 | TotalAssetsBOYAmt |
| Total Assets EOY | $96,316,713 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $3,185,115 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $5,877,998 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $96,447,890 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $90,438,715 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | THE ALS ASSOCIATION LEADS THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH AND TO EMPOWER PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $15,436,780 | ExpenseAmt |
| Grant | $14,568,338 | GrantAmt |
| Desc | RESEARCH PROGRAMS - THE ASSOCIATION FUNDS SCIENTIFIC RESEARCH GRANTS TO DOCTORS/SCIENTISTS TO FIND THE CAUSE AND CURE OF AMYOTROPHIC LATERAL SCLEROSIS (ALS). DURING THE YEAR ENDING JANUARY 31, 2019, RESEARCH GRANTS WERE $14,568,338. THIS LEVEL OF SPENDING IS MADE POSSIBLE WITH FUNDING FROM THE ICE BUCKET CHALLENGE (IBC), AN ORGANIC FUNDRAISING EVENT THAT TOOK PLACE IN THE SUMMER OF 2014, THAT EMPOWERED INDIVIDUALS TO RAISE AWARENESS AND FUNDS FOR ALS BY POURING ICE WATER OVER THEIR HEADS, AND CHALLENGING THEIR FRIENDS TO DO THE SAME. THE ASSOCIATION WAS THE MAIN BENEFACTOR OF THIS EVENT AND RECEIVED APPROXIMATELY $115 MILLION IN CONTRIBUTIONS AS A RESULT. THE ASSOCIATION'S GOAL IS TO FURTHER INCREASE RESEARCH FUNDING IN ENSUING YEARS WITH THE GOAL OF SPENDING OVER $20 MILLION ANNUALLY ON RESEARCH. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $9,144,294 | ExpenseAmt |
| Grant | $3,294,823 | GrantAmt |
| Desc | PATIENT AND COMMUNITY SERVICES - THE ASSOCIATION'S NATIONAL CARE SERVICES DEPARTMENT, IN WORKING WITH THE ASSOCIATION'S NETWORK OF CHAPTERS, IS COMMITTED TO PROVIDING FULLY DEVELOPED, MANAGED AND EVALUATED PROGRAMS AND SERVICES TO PEOPLE LIVING WITH ALS, FAMILIES, CAREGIVERS AND PROFESSIONALS ACROSS THE UNITED STATES. PROGRAMS INCORPORATE THE PERSPECTIVES FROM KEY STAKEHOLDERS INCLUDING PEOPLE LIVING WITH THE DISEASE, SUBJECT MATTER EXPERTS, CLINICAL BEST PRACTICE, CAREGIVERS, TECHNOLOGY, ACADEMICIANS AND RESEARCH. ACTIVITIES ADDRESS CURRENT NEEDS AND EXPLORE FUTURE SERVICES, CREATING A FOUNDATION FOR INNOVATIVE AND ADVANCED PROGRAM DEVELOPMENT BASED ON SPECIFIC COMMUNITY NEEDS AND KNOWLEDGE ADVANCEMENTS. SPECIFIC ACTIVITIES INCLUDE 1) DEVELOPING AND IMPLEMENTING CLINICAL AND PROFESSIONAL EDUCATION PROGRAMS BASED ON ONGOING NEEDS ASSESSMENTS AND BEST PRACTICE; 2) IMPLEMENTING CERTIFIED CARE CENTER CERTIFICATION AND RECERTIFICATION PROGRAMS BASED ON NATIONALLY-RECOGNIZED STANDARDS OF PRACTICE, INCLUDING GRANTS TO SUPPORT CENTERS OF EXCELLENCE; 3) DEVELOPING STRATEGIES AND ACTUALIZING PLANS TO DELIVER CARE THROUGH OTHER THAN CERTIFIED CENTERS; 4) PROVIDING CURRENT INFORMATION, RESOURCES AND REFERRALS TO THE COMMUNITIES WE SERVE; AND 5) DEVELOPING AND IMPLEMENTING COMPREHENSIVE, CONSISTENT PROGRAMS AND SERVICES THAT ADDRESS INDIVIDUAL, FAMILY, AND CAREGIVER NEEDS BASED ON 'BEST PRACTICE AND AVAILABLE RESOURCES. WITH THE HELP OF IBC FUNDING, THE ASSOCIATION CONTINUES TO FUND GRANTS TO ITS CERTIFIED TREATMENT CENTERS OF EXCELLENCE. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,290,965 | ExpenseAmt |
| Grant | $4,981 | GrantAmt |
| Revenue | $146,365 | RevenueAmt |
| Desc | PUBLIC AND PROFESSIONAL EDUCATION - THE ASSOCIATION'S PUBLIC POLICY DEPARTMENT DEVELOPS AWARENESS AND UNDERSTANDING OF ALS AND THE WORK OF THE ASSOCIATION AMONG THE GENERAL PUBLIC, HEALTHCARE PROFESSIONALS, THE SCIENTIFIC COMMUNITY, AND ELECTED AND OTHER GOVERNMENT OFFICIALS. FOR THE YEAR ENDING JANUARY 31, 2019, THE ASSOCIATION WORKED WITH CONGRESS TO CONTINUE FUNDING FOR THE NATIONAL ALS REGISTRY AND THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE AS WELL AS FUNDING FOR ALS RESEARCH AT THE NATIONAL INSTITUTES OF HEALTH. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $27,872,039 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 65 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 106 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Form1098 C Filed | Yes (1) | Form1098CFiledInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 23 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 23 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DE | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | LA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | GREGORY MITCHELL | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2024078580 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1275 K STREET NW SUITE 250 | AddressLine1Txt |
| City | WASHINGTON | CityNm |
| State Abbreviation | DC | StateAbbreviationCd |
| ZIP | 20005 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (37 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| SUE GORMAN | ||||||||
| CHAIRMAN | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| STEPHEN WINTHROP | ||||||||
| CHAIRMAN - UNTIL 12/18 | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| MARK STANCIL | ||||||||
| TREASURER | 4.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| CAMERON WARD | ||||||||
| SECRETARY | 4.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| MARK CALMES | ||||||||
| VICE-CHAIR | 5.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | ||
| TOM CARROLL | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| DON CASEY | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| FRED M DEGRANDIS | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| MILLIE ARNOLD | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| CONNIE HOUSTON | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| SCOTT KAUFFMAN | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| CHRISTI L KOLARCIK PHD | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| JOHN P KRAVE JD | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| LOU LIBBY MD | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| WARREN NELSON | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| STUART OBERMANN | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| ELLYN C PHILLIPS | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| JUDY PRATT DMD | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| CHARLIE ROBINSON D SC PE | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| WENDY J SCHRIBER | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| WILLIAM D SOFFEL | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| EUGENE BRANDON PHD | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| WILLIAM THOET | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| DOUG BUTCHER | ||||||||
| TRUSTEE | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| NANCY FRATES | ||||||||
| TRUSTEE - UNTIL 02/18 | 2.00 | Yes (X) | $0 | $0 | $0 | |||
| CALANEET BALAS | ||||||||
| PRESIDENT & CEO | 37.50 | Yes (X) | $300,317 | $0 | $12,394 | |||
| GREG MITCHELL | ||||||||
| EVP, FINANCE & ADMINISTRATION | 37.50 | Yes (X) | $231,748 | $0 | $11,143 | |||
| BRIAN FREDERICK | ||||||||
| EVP, COMMUNICATION | 37.50 | $195,041 | $0 | $10,162 | Yes (X) | |||
| LANCE SLAUGHTER | ||||||||
| EVP, CHAPTER RELATIONS & GOVERNANCE | 37.50 | $210,684 | $0 | $13,828 | Yes (X) | |||
| KIMBERLY HARDING-MAGINNIS | ||||||||
| SENIOR VP, CARE SERVICES | 37.50 | $188,046 | $0 | $11,988 | Yes (X) | |||
| KATHLEEN SHEEHAN | ||||||||
| VP, PUBLIC POLICY & ADVOCACY | 37.50 | $163,398 | $0 | $14,662 | Yes (X) | |||
| TINA ZEFF | ||||||||
| EVP, DEVELOPMENT | 37.50 | $167,968 | $0 | $19,661 | Yes (X) | |||
| LYLES EDDINS | ||||||||
| VP, DEVELOPMENT | 37.50 | $143,772 | $0 | $5,397 | Yes (X) | |||
| MONICA SANTA CRUZ | ||||||||
| VP, HUMAN RESOURCES & TALENT MANAGEMENT | 37.50 | $143,503 | $0 | $5,483 | Yes (X) | |||
| TERESSA HARRIS | ||||||||
| VP, FINANCE | 37.50 | $147,838 | $0 | $16,928 | Yes (X) | |||
| MARY BRUNEY | ||||||||
| VP, CHAPTER RELATIONS - UNTIL 08/18 | 37.50 | $140,348 | $0 | $7,859 | Yes (X) | |||
| NEIL THAKUR | ||||||||
| EVP, MISSION STRATEGY | 37.50 | $124,461 | $0 | $13,136 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $2,157,124 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $142,641 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 12 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (4 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| NNE MARKETING | |||||
| 1666 MASSACHUSETTS AVENUE SUITE 14 | LEXINGTON | MA | 02420 | DIRECT MARKETING SERVICES | $366,000 |
| LUCIE BRUIJN | |||||
| PO BOX 670236 | CHUGIAK | AK | 99567 | SCIENTIFIC OFFICER RESEARCH OVERSITE | $290,000 |
| DRUM - U MARKETING LLC | |||||
| 20 WEST 37TH STREET 3RD FLOOR | NEW YORK | NY | 10018 | MARKETING CONSULTING SERVICES | $118,750 |
| THREESPOT MEDIA LLC | |||||
| 806 7TH STREET NW SUITE 201 | WASHINGTON | DC | 20001 | MARKETING CONSULTING SERVICES | $113,600 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 4 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $153,834 | FederatedCampaignsAmt |
| Fundraising | $1,628,674 | FundraisingAmt |
| Government Grants | $379,992 | GovernmentGrantsAmt |
| All Other Contributions | $27,267,200 | AllOtherContributionsAmt |
| Noncash Contributions | $166,286 | NoncashContributionsAmt |
| Total Contributions | $29,429,700 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | CONFERENCE FEES | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $146,365 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $146,365 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $146,365 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,641,824 | TotalRevenueColumnAmt |
| Exclusion | $2,641,824 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $10,458,063 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $15,461,097 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | -$5,003,034 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$5,003,034 | TotalRevenueColumnAmt |
| Exclusion | -$5,003,034 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $0 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $1,628,674 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $205,789 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$205,789 | TotalRevenueColumnAmt |
| Exclusion | -$205,789 | ExclusionAmt |
Miscellaneous Revenue MiscellaneousRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $56,636 | TotalRevenueColumnAmt |
| Exclusion | $56,636 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $56,636 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $27,065,702 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $146,365 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | -$2,510,363 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $16,347,937 | TotalAmt |
| Program Services | $16,347,937 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,981 | TotalAmt |
| Program Services | $33,981 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,486,223 | TotalAmt |
| Program Services | $1,486,223 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,564,616 | TotalAmt |
| Program Services | $1,269,496 | ProgramServicesAmt |
| Management And General | $938,321 | ManagementAndGeneralAmt |
| Fundraising | $356,799 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,514,722 | TotalAmt |
| Program Services | $2,948,395 | ProgramServicesAmt |
| Management And General | $545,428 | ManagementAndGeneralAmt |
| Fundraising | $1,020,899 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $139,248 | TotalAmt |
| Program Services | $88,776 | ProgramServicesAmt |
| Management And General | $18,957 | ManagementAndGeneralAmt |
| Fundraising | $31,515 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $642,189 | TotalAmt |
| Program Services | $480,885 | ProgramServicesAmt |
| Management And General | $71,641 | ManagementAndGeneralAmt |
| Fundraising | $89,663 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $573,934 | TotalAmt |
| Program Services | $359,807 | ProgramServicesAmt |
| Management And General | $97,670 | ManagementAndGeneralAmt |
| Fundraising | $116,457 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $179,371 | TotalAmt |
| Program Services | $17,370 | ProgramServicesAmt |
| Management And General | $162,001 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $41,838 | TotalAmt |
| Management And General | $41,838 | ManagementAndGeneralAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $421,000 | TotalAmt |
| Fundraising | $421,000 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $203,217 | TotalAmt |
| Management And General | $203,217 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,798,384 | TotalAmt |
| Program Services | $2,062,257 | ProgramServicesAmt |
| Management And General | $94,721 | ManagementAndGeneralAmt |
| Fundraising | $1,641,406 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $470,042 | TotalAmt |
| Program Services | $417,132 | ProgramServicesAmt |
| Management And General | $5,263 | ManagementAndGeneralAmt |
| Fundraising | $47,647 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $256,498 | TotalAmt |
| Program Services | $140,967 | ProgramServicesAmt |
| Management And General | $50,388 | ManagementAndGeneralAmt |
| Fundraising | $65,143 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $746,603 | TotalAmt |
| Program Services | $487,045 | ProgramServicesAmt |
| Management And General | $90,301 | ManagementAndGeneralAmt |
| Fundraising | $169,257 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,920,433 | TotalAmt |
| Program Services | $1,429,546 | ProgramServicesAmt |
| Management And General | $235,858 | ManagementAndGeneralAmt |
| Fundraising | $255,029 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $123,475 | TotalAmt |
| Program Services | $77,983 | ProgramServicesAmt |
| Management And General | $21,843 | ManagementAndGeneralAmt |
| Fundraising | $23,649 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| CREDIT CARD & DATA FEES | $211,046 | $75,144 | $60,003 | $75,899 |
| TELECOMMUNICATIONS | $198,884 | $149,095 | $17,797 | $31,992 |
| CHAPTER SUPPORT | $22,618 | $15,088 | $7,530 | |
| BAD DEBT EXPENSE | -$6,046 | -$6,046 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $34,890,213 | TotalAmt |
| Program Services | $27,872,039 | ProgramServicesAmt |
| Management And General | $2,664,289 | ManagementAndGeneralAmt |
| Fundraising | $4,353,885 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,250,358 | BOYAmt |
| EOY | $6,371,727 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $520,372 | BOYAmt |
| EOY | $5,692,587 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,417,228 | BOYAmt |
| EOY | $5,984,641 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $98,291 | BOYAmt |
| EOY | $190,949 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $27,479 | BOYAmt |
| EOY | $127,444 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $1,031,429 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $939,369 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $126,189 | BOYAmt |
| EOY | $92,060 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $84,273,526 | BOYAmt |
| EOY | $73,672,514 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,919,562 | BOYAmt |
| EOY | $4,184,791 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $99,633,005 | BOYAmt |
| EOY | $96,316,713 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,077,642 | BOYAmt |
| EOY | $2,070,215 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $174,741 | BOYAmt |
| EOY | $2,818,427 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $932,732 | BOYAmt |
| EOY | $989,356 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,185,115 | BOYAmt |
| EOY | $5,877,998 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $83,168,855 | BOYAmt |
| EOY | $79,882,951 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,271,237 | BOYAmt |
| EOY | $10,555,764 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,007,798 | BOYAmt |
| EOY | $0 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $96,447,890 | BOYAmt |
| EOY | $90,438,715 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $99,633,005 | BOYAmt |
| EOY | $96,316,713 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | -$7,824,511 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $1,809,211 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $6,125 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $137,917,563 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $23,487,328 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $27,407,957 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $23,216,448 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $29,429,700 | CurrentTaxYearAmt |
| Total | $241,458,996 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $137,917,563 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $23,487,328 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $27,407,957 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $23,216,448 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $29,429,700 | CurrentTaxYearAmt |
| Total | $241,458,996 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $734,836 | SubstantialContributorsTotAmt |
| Public Support Total170 | $240,724,160 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $221,293 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,466,148 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,633,793 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,156,702 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,641,824 | CurrentTaxYearAmt |
| Total | $9,119,760 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $29,343 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,042 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $47,788 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $43,647 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $56,636 | CurrentTaxYearAmt |
| Total | $179,456 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $250,758,212 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $596,893 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.96000 | PublicSupportCY170Pct |
| Public Support PY170 | 0.96820 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Schedule C IRS990ScheduleC
Total Grassroots Lobbying TotalGrassrootsLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $13,778 | FilingOrganizationsTotalAmt |
Total Direct Lobbying TotalDirectLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $439,704 | FilingOrganizationsTotalAmt |
Total Lobbying Expend TotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $453,482 | FilingOrganizationsTotalAmt |
Other Exempt Purpose Expend OtherExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $34,442,628 | FilingOrganizationsTotalAmt |
Total Exempt Purpose Expend TotalExemptPurposeExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $34,896,110 | FilingOrganizationsTotalAmt |
Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $1,000,000 | FilingOrganizationsTotalAmt |
Grassroots Nontaxable GrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $250,000 | FilingOrganizationsTotalAmt |
Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Filing Organizations Total | $0 | FilingOrganizationsTotalAmt |
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $1,000,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $1,000,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $1,000,000 | CurrentYearMinus1Amt |
| Current Year | $1,000,000 | CurrentYearAmt |
| Total | $4,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $6,000,000 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $546,049 | CurrentYearMinus3Amt |
| Current Year Minus2 | $529,987 | CurrentYearMinus2Amt |
| Current Year Minus1 | $466,481 | CurrentYearMinus1Amt |
| Current Year | $453,482 | CurrentYearAmt |
| Total | $1,995,999 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $250,000 | CurrentYearMinus3Amt |
| Current Year Minus2 | $250,000 | CurrentYearMinus2Amt |
| Current Year Minus1 | $250,000 | CurrentYearMinus1Amt |
| Current Year | $250,000 | CurrentYearAmt |
| Total | $1,000,000 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $1,500,000 | GrassrootsCeilingAmt |
Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $48,109 | CurrentYearMinus3Amt |
| Current Year Minus2 | $33,626 | CurrentYearMinus2Amt |
| Current Year Minus1 | $15,724 | CurrentYearMinus1Amt |
| Current Year | $13,778 | CurrentYearAmt |
| Total | $111,237 | TotalAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,516,315 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$61,584 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $6,454,731 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,516,315 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $482,577 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $482,577 | OtherExpendituresAmt |
| End Year Balance | $6,516,315 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,333,662 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $386,180 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $203,527 | OtherExpendituresAmt |
| End Year Balance | $6,516,315 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $6,516,315 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$182,653 | InvestmentEarningsOrLossesAmt |
| End Year Balance | $6,333,662 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $5,990,000 | BeginningYearBalanceAmt |
| Contributions | $526,315 | ContributionsAmt |
| Investment Earnings Or Losses | $313,081 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $313,081 | OtherExpendituresAmt |
| End Year Balance | $6,516,315 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 0.03710 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.96290 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $146,535 | OtherCostOrOtherBasisAmt |
| Depreciation | $125,862 | DepreciationAmt |
| Book Value | $20,673 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $488,592 | OtherCostOrOtherBasisAmt |
| Depreciation | $419,427 | DepreciationAmt |
| Book Value | $69,165 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $396,302 | OtherCostOrOtherBasisAmt |
| Depreciation | $394,080 | DepreciationAmt |
| Book Value | $2,222 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $92,060 | TotalBookValueLandBuildingsAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| ANNUITY PAYMENT LIABILITY | $933,628 |
| DEFERRED RENT | $55,728 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $989,356 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $34,421,917 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $1,809,211 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $5,744,096 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $6,125 | OtherRevenueAmt |
| Revenue Not Reported | $7,559,432 | RevenueNotReportedAmt |
| Revenue Subtotal | $26,862,485 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $203,217 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $203,217 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $27,065,702 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $40,431,092 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $5,744,096 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $5,744,096 | ExpensesNotReportedAmt |
| Expenses Subtotal | $34,686,996 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $203,217 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $203,217 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $34,890,213 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | EARNINGS FROM THE ENDOWMENT MUST BE USED TO SUPPORT RESEARCH ACTIVITIES. UPON EXPIRATION OF THE TERM ENDOWMENT, THE CORPUS MAY ALSO BE USED TO SUPPORT RESEARCH ACTIVITIES. |
| PART X, LINE 2: | THE ASSOCIATION FOLLOWS THE ACCOUNTING STANDARD REGARDING THE RECOGNITION AND MEASUREMENT OF UNCERTAIN TAX POSITIONS. THE ASSOCIATION EVALUATED ITS TAX POSITIONS AND DETERMINED ITS POSITIONS ARE MORE-LIKELY-THAN-NOT TO BE SUSTAINED ON EXAMINATION. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | GAIN ON BENEFICIAL INTEREST IN PERPETUAL TRUSTS -26,731. CHANGE IN VALUE OF SPLIT-INTEREST AGREEMENTS 32,856. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (5 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| EUROPE | 0 | 0 | GRANTS | RESEARCH | $1,140,532 |
| NORTH AMERICA | 0 | 0 | GRANTS | RESEARCH | $149,903 |
| SUB-SAHARAN AFRICA | 0 | 0 | GRANTS | RESEARCH | $15,788 |
| EAST ASIA & THE PACIFIC | 0 | 0 | GRANTS | RESEARCH | $130,000 |
| SOUTH AMERICA | 0 | 0 | GRANTS | RESEARCH | $50,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $1,486,223 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $1,486,223 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (13 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| EUROPE | CLINICAL MANAGEMENT | $100,000 | CHECK & WIRE TRANSFER |
| EUROPE | CLINICAL PILOT TRIAL | $435,847 | CHECK & WIRE TRANSFER |
| EUROPE | DRUG DEVELOPMENT CONTRACT | $33,333 | CHECK & WIRE TRANSFER |
| EUROPE | INVESTIGATOR INITIATED PROGRAM | $217,500 | CHECK & WIRE TRANSFER |
| EUROPE | LOU GEHRIG CHALLENGE ALS | $165,515 | CHECK & WIRE TRANSFER |
| EUROPE | STRATEGIC INITIATIVE | $188,337 | CHECK & WIRE TRANSFER |
| EAST ASIA & THE PACIFIC | INVESTIGATOR INITIATED PROGRAM | $100,000 | CHECK & WIRE TRANSFER |
| EAST ASIA & THE PACIFIC | STRATEGIC INITIATIVE | $30,000 | CHECK & WIRE TRANSFER |
| NORTH AMERICA | INVESTIGATOR INITIATED PROGRAM | $100,000 | CHECK & WIRE TRANSFER |
| NORTH AMERICA | LOU GEHRIG CHALLENGE ALS | $49,903 | CHECK & WIRE TRANSFER |
| SUB-SAHARAN AFRICA | INVESTIGATOR INITIATED PROGRAM | $15,788 | CHECK & WIRE TRANSFER |
| SOUTH AMERICA | INVESTIGATOR INITIATED PROGRAM | $25,000 | CHECK & WIRE TRANSFER |
| SOUTH AMERICA | POSTDOCTORAL FELLOWSHIP | $25,000 | CHECK & WIRE TRANSFER |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 13 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | FOREIGN INVESTIGATORS, SIMILAR TO US INVESTIGATORS, ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING AND APPROVED BY OUR RESEARCH DEPARTMENT. | ExplanationTxt |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Solicitation Of Govt Grants | Yes (X) | SolicitationOfGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| NNE MARKETING | ||||||||
| 105 PAUL REVERE ROAD | CONCORD | MA | 07142 | FUNDRAISING COUNSEL | 0 | $2,114,921 | $366,000 | $1,748,921 |
| DRUM - U MARKETING LLC | ||||||||
| 1 E 22ND STREET SUITE 200 | LOMBARD | IL | 60148 | FUNDRAISING COUNSEL | 0 | $1,195,036 | $55,000 | $1,140,036 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $3,309,957 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $421,000 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $2,888,957 | TotalNetToOrganizationAmt |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | DC | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | NANA'S RUN 5K | Event1Nm |
| Gross Receipts Event1 | $275,458 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $275,458 | CharitableContriEvent1Amt |
| Rent Facility Costs Event1 | $170 | RentFacilityCostsEvent1Amt |
| Entertainment Event1 | $204 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $192 | OtherDirectExpensesEvent1Amt |
| Event2 | DETROIT WALK TO DEFEAT | Event2Nm |
| Gross Receipts Event2 | $166,638 | GrossReceiptsEvent2Amt |
| Charitable Contri Event2 | $166,638 | CharitableContriEvent2Amt |
| Rent Facility Costs Event2 | $10,626 | RentFacilityCostsEvent2Amt |
| Entertainment Event2 | $150 | EntertainmentEvent2Amt |
| Other Direct Expenses Event2 | $8,357 | OtherDirectExpensesEvent2Amt |
| Other Events Total | 26 | OtherEventsTotalCnt |
| Gross Receipts Other Events | $1,186,578 | GrossReceiptsOtherEventsAmt |
| Charitable Contri Other Events | $1,186,578 | CharitableContriOtherEventsAmt |
| Rent Fclty Costs Other Events | $93,809 | RentFcltyCostsOtherEventsAmt |
| Entertainment Other Events | $1,201 | EntertainmentOtherEventsAmt |
| Oth Direct Expnss Other Events | $91,080 | OthDirectExpnssOtherEventsAmt |
| Gross Receipts Total | $1,628,674 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $1,628,674 | CharitableContributionsTotAmt |
| Rent Fclty Costs Total Events | $104,605 | RentFcltyCostsTotalEventsAmt |
| Entertainment Total Events | $1,555 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $99,629 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $205,789 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$205,789 | NetIncomeSummaryAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE G, PART I, LINE 2B, COLUMN (V) | FormAndLineReferenceDesc |
| Explanation | THE ASSOCIATION RECEIVES ALL OR 100% OF THE PROCEEDS FROM OUR DIRECT MAIL APPEALS PROGRAM INCLUDING TELEMARKETING. HOWEVER, THE ASSOCIATION IS RESPONSIBLE TO PAY FOR ALL EXPENSES INCURRED IN THE IMPLEMENTATION AND PRODUCTION OF ALL THE DIRECT MAIL AND TELEMARKETING SOLICITATIONS. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (221 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|
| ADVANTAGE HEALTH SAINT MARY'S MEDICAL GROUP | ||||||||
| 200 JEFFERSON AVENUE SE | GRAND RAPIDS | MI | 49503 | 272491974 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| ALLEGHANY HEALTH NETWORK | ||||||||
| 320 E NORTH AVENUE | PITTSBURGH | PA | 15212 | 251320493 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| AMERICAN ACADEMY OF NEUROLOGY INSTITUTE | ||||||||
| 201 CHICAGO AVENUE | MINNEAPOLIS | MN | 55415 | 410726167 | 501(C)3 | $53,333 | CLINICIAN SCIENTIST DEVELOPMENT AWARD | |
| AMERICAN ACADEMY OF NEUROLOGY INSTITUTE | ||||||||
| 201 CHICAGO AVENUE | MINNEAPOLIS | MN | 55415 | 410726167 | 501(C)3 | $80,000 | TREAT ALS CLINICAL SCIENTIST | |
| AMERICAN BRAIN FOUNDATION | ||||||||
| 201 CHICAGO AVENUE | MINNEAPOLIS | MN | 55401 | 411717098 | 501(C)3 | $75,000 | CLINICAL RESEARCH TRAINING FELLOWSHIP | |
| AMERICAN BRAIN FOUNDATION | ||||||||
| 201 CHICAGO AVENUE | MINNEAPOLIS | MN | 55401 | 411717098 | 501(C)3 | $50,000 | SHELIA ESSEY AWARD | |
| AMYLYX PHARMACEUTICALS INC | ||||||||
| 210 BROADWAY NO 201 | CAMBRIDGE | MA | 02139 | 464600503 | 501(C)3 | $100,000 | LOU GEHRIG CHALLENGE ALSA INITIATED | |
| ANELIXIS THERAPEUTICS INC | ||||||||
| 300 TECHNOLOGY SQUARE 4TH FLOOR | CAMBRIDGE | MA | 02139 | 474022454 | 501(C)3 | $624,000 | ALSA INITIATED | |
| APOTHECOM | ||||||||
| 800 TOWNSHIP LINE ROAD SUITE 300 | YARDLEY | PA | 19067 | 264510763 | 501(C)3 | $23,668 | ALS PATIENT SURVEY | |
| BALL STATE UNIVERSITY | ||||||||
| 2000 W UNIVERSITY AVENUE IN 47304 | MUNCIE | IN | 47304 | 356000221 | 501(C)3 | $25,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| BAYLOR | ||||||||
| 6550 FANNIN SUITE 1801 | HOUSTON | TX | 77030 | 741613878 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM | ||||||||
| PO BOX 340 | MILWAUKEE | WI | 53201 | 391805963 | 501(C)3 | $50,000 | CLINICAL MANAGEMENT AWARD | |
| BOARD OF REGENTS OF UNIVERSITY OF WISCONSIN SYSTEM | ||||||||
| PO BOX 500 UNIVERSITY OF WISCONSIN | MILWAUKEE | WI | 53201 | 391805963 | 501(C)3 | $47,156 | YOUTH EDUCATIONAL MATERIALS | |
| BRIGHAM & WOMEN'S HOSPITAL | ||||||||
| 75 FRANCIS STREET | BOSTON | MA | 02115 | 042312909 | 501(C)3 | $50,000 | STRATEGIC INITIATIVE | |
| CEDARS SINAI MEDICAL CENTER | ||||||||
| C/O MANAGER GRANT FUND ACCTNG 8700 | LOS ANGELES | CA | 90048 | 951644600 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | BEVERLY BLVD 6500 WIL 11504720-5940 |
| CEDARS-SINAI MEDICAL CENTER | ||||||||
| 6500 WILSHIRE BLVD SUITE 1150 | LOS ANGELES | CA | 90048 | 951644600 | 501(C)3 | $70,400 | LOU GEHRIG CHALLENGE ALSA INITIATED | |
| CEDARS-SINAI MEDICAL CENTER | ||||||||
| 6500 WILSHIRE BLVD SUITE 1150 | LOS ANGELES | CA | 90048 | 951644600 | 501(C)3 | $500,000 | STRATEGIC INITIATIVE | |
| CLEVELAND CLINIC FOUNDATION | ||||||||
| 9500 EUCLID AVENUE | CLEVELAND | OH | 44195 | 340714585 | 501(C)3 | $64,769 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| CLEVELAND CLINIC FOUNDATION | ||||||||
| NEUROMUSCULAR CENTER 9500 EUCLID | CLEVELAND | OH | 44195 | 340714585 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | AVE S90 |
| CLEVELAND VA RESEARCH FOUNDATION | ||||||||
| 10701 EAST BLVD | CLEVELAND | OH | 44106 | 341710663 | 501(C)3 | $19,440 | CLINICAL MANAGEMENT | |
| COMMUNITY FOUNDATION OF GREATER HUNTSVILLE | ||||||||
| PO BOX 332 | HUNTSVILLE | AL | 35804 | 263750673 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| DARTMOUTH HITCHCOCK FOUNDATION | ||||||||
| LEBANON CLINIC ONE MEDICAL CENTER | LEBANON | NH | 037560001 | 020222139 | 501(C)3 | $37,500 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | DRIVE |
| DARTMOUTH-HITCHCOCK CLINIC | ||||||||
| 1 MEDICAL CENTER DRIVE | LEBANON | NH | 037560001 | 222519596 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| DIGNITY HEALTH - ST JOSEPHS HOSPITAL AZ | ||||||||
| 350 WEST THOMAS ROAD | PHOENIX | AZ | 85013 | 860096787 | 501(C)3 | $40,000 | INVESTIGATOR INITIATED STARTER | |
| DIGNITY HEALTH - ST JOSEPHS HOSPITAL AZ | ||||||||
| 350 WEST THOMAS ROAD | PHOENIX | AZ | 85013 | 860096787 | 501(C)3 | $85,874 | TREAT ALS | |
| DIGNITY HEALTH DBA ST JOSEPH'S HOSPITAL AND MEDICAL CTR | ||||||||
| DIGNITY HEALTH ST JOSEPHS HOSPITAL | LOS ANGELES | CA | 900748781 | 941196203 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | AZ ATTN MISC A/R CASH FILE 57431 |
| DREXEL UNIVERSITY | ||||||||
| TD BANK P O BOX 95000-1090 | PHILADELPHIA | PA | 19195 | 231352630 | 501(C)3 | $40,000 | INVESTIGATOR INITIATED STARTER | |
| DUKE UNIVERSITY | ||||||||
| DEPT OF NEUROLOGY ATTN MEGAN | DURHAM | NC | 27710 | 560532129 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | PHILLIPS DUMC BOX 2900 |
| FACULTY PHYSICIANS AND SURGEONS OF LLUSM | ||||||||
| C/O JEFFREY ROSENFELD PHD MD 11370 | LOMA LINDA | CA | 92354 | 330672915 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | ANDERSON STREET SUITE B-100 |
| GEORGE WASHINGTON UNIVERSITY | ||||||||
| 2150 PENNSYLVANIA AVE NW 7-401 | WASHINGTON | DC | 20037 | 542126575 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| GEORGIA HEALTH SCIENCES FOUNDATION INC | ||||||||
| ALS FUND 21078 1120 15TH STREET | AUGUSTA | GA | 30912 | 352310573 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | FL-1047 |
| GNS HEALTHCARE INC | ||||||||
| 196 BROADWAY | CAMBRIDGE | MA | 021391902 | 271667187 | 501(C)3 | $281,250 | STRATEGIC INITIATIVE | |
| HENNEPIN HEALTHCARE | ||||||||
| FOUNDATION LSB-3 701 PARK AVE | MINNEAPOLIS | MN | 55415 | 421707837 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| HENRY FORD HEALTH SYSTEM | ||||||||
| DEPARTMENT OF NEUROLOGY HOENSELAAR | DETROIT | MI | 482022689 | 381357020 | 501(C)3 | $37,933 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | ALS CLINIC 2799 WEST GRAND BOULEVAR |
| HONOR HEALTH | ||||||||
| NEUROLOGY/ALS CLINIC 8125 N HAYDEN | SCOTTSDALE | AZ | 85258 | 860181654 | 501(C)3 | $50,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | ROAD |
| HOPE LOVES COMPANY INC | ||||||||
| C/O JODI ODONNELL-AMES P O BOX 931 | PENNINGTON | NJ | 08534 | 208418402 | 501(C)3 | $50,000 | CAMP OUTREACH GRANT | |
| HOSPITAL FOR SPECIAL CARE | ||||||||
| ATTN FISCAL DEPT 2150 CORBIN AVE | NEW BRITAIN | CT | 06053 | 060646766 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| HOSPITAL FOR SPECIAL SURGERY | ||||||||
| DEPARTMENT OF NEUROLOGY 535 EAST | NEW YORK | NY | 10021 | 131624135 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 70TH ST |
| HOUSTON METHODIST DEPT OF NEUROLOGY | ||||||||
| ATTN MARY LOUISE SPEARS 6560 FANNIN | HOUSTON | TX | 77030 | 760094743 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | STREET SUITE 802 |
| INDIANA UNIVERSITY | ||||||||
| ATTN MARGARET GRABER 355 W 16TH | INDIANAPOLIS | IN | 46202 | 356001673 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | STREET |
| INNOCENTIVE INC | ||||||||
| 265 WINTER STREET 2ND FLOOR | WALTHAM | MA | 02451 | 203437526 | 501(C)3 | $10,250 | STRATEGIC CHALLENGE TARGET IDENTIFICATION | |
| IZUMI BIOSCIENCES INC | ||||||||
| 23 BLUEBERRY LANE SUITE 100 | LEXINGTON | MA | 02420 | 472572265 | 501(C)3 | $50,000 | DRUG DEVELOPMENT CONTRACT | |
| JEFFERSON WEINBERG ALS CENTER | ||||||||
| 900 WALNUT STREET JHN SUITE 408- | PHILADELPHIA | PA | 19107 | 232809585 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | FARBER INSTITUTE FOR NEUROLOGY |
| KU ENDOWMENT ASSOCIATION | ||||||||
| 3901 RAINBOW BLVD | KANSAS CITY | KS | 66160 | 480547734 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| LAHEY CLINIC INC DBA CURT & SHONDA SCHILLING ALS CLINIC | ||||||||
| DEPARTMENT OF NEUROLOGY 41 MALL | BURLINGTON | MA | 01805 | 042704683 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | ROAD |
| LANKENAU INSTITUTE FOR MEDICAL RESEARCH | ||||||||
| 100 LANCASTER AVENUE | WYNNEWOOD | PA | 19096 | 232175659 | 501(C)3 | $40,000 | INVESTIGATOR INITIATED STARTER | |
| LAUREN SCIENCES LLC | ||||||||
| 345 EAST 94TH STREET SUITE 18A | NEW YORK | NY | 10128 | 273076076 | 501(C)3 | $75,000 | DRUG DEVELOPMENT CONTRACT | |
| LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER - NO | ||||||||
| 433 BOLIVAR STREET 8TH FLOOR | NEW ORLEANS | LA | 70112 | 720702002 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| LUDWIG INSTITUTE FOR CANCER RESEARCH | ||||||||
| 8950 VILLA LA JOLLA DRIVE SUITE | LA JOLLA | CA | 92037 | 237121131 | 501(C)3 | $50,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | C135 |
| LUDWIG INSTITUTE FOR CANCER RESEARCH | ||||||||
| 8950 VILLA LA JOLLA DRIVE SUITE | LA JOLLA | CA | 92037 | 237121131 | 501(C)3 | $530,000 | STRATEGIC INITIATIVE | C135 |
| MASSACHUSETTS GENERAL HOSPITAL | ||||||||
| 55 FRUIT STREET | BOSTON | MA | 02114 | 042697983 | 501(C)3 | $205,000 | ALSA INITIATED | |
| MASSACHUSETTS GENERAL HOSPITAL | ||||||||
| THE GENERAL HOSPITAL CORP DBA | BOSTON | MA | 02199 | 042697983 | 501(C)3 | $49,407 | CLINICAL MANAGEMENT | MASSACHUSETTS GENERAL HOSPITAL |
| MASSACHUSETTS GENERAL HOSPITAL | ||||||||
| BANK OF AMERICA NA | BOSTON | MA | 022414876 | 042697983 | 501(C)3 | $50,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| MASSACHUSETTS GENERAL HOSPITAL | ||||||||
| BANK OF AMERICA NA | BOSTON | MA | 02241 | 042697983 | 501(C)3 | $559,697 | LOU GEHRIG CHALLENGE ALSA INITIATED | |
| MASSACHUSETTS GENERAL HOSPITAL | ||||||||
| 55 FRUIT STREET | BOSTON | MA | 02114 | 042697983 | 501(C)3 | $75,000 | POSTDOCTORAL FELLOWSHIP | |
| MASSACHUSETTS GENERAL HOSPITAL | ||||||||
| MASS GENERAL HOSPITAL RESEARCH BANK | BOSTON | MA | 022414876 | 042697983 | 501(C)3 | $208,992 | TREAT ALS | OF AMERICA NA PO BOX 414876 |
| MASSACHUSETTS INSTITUTE OF TECHNOLOGY | ||||||||
| 77 MASSACHUSETTS AVE ROOM NE49-3000 | CAMBRIDGE | MA | 02139 | 042103594 | 501(C)3 | $25,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | NE49-3000 |
| MAYO CLINIC | ||||||||
| 200 FIRST STREET SW | ROCHESTER | MN | 55905 | 416011702 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| MAYO CLINIC - ALS CLINIC NEUROLOGY | ||||||||
| MAYO CLINIC - ALS CLINIC NEUROLOGY | SCOTTSDALE | AZ | 85259 | 860800150 | 501(C)3 | $50,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 13400 E SHEA BLVD |
| MAYO CLINIC FLORIDA | ||||||||
| 4500 SAN PABLO ROAD S | JACKSONVILLE | FL | 322241865 | 593337028 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| MAYO CLINIC JACKSONVILLE | ||||||||
| 4500 SAN PABLO ROAD | JACKSONVILLE | FL | 32224 | 593337028 | 501(C)3 | $225,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| MAYO CLINIC JACKSONVILLE | ||||||||
| 4500 SAN PABLO ROAD | JACKSONVILLE | FL | 32224 | 593337028 | 501(C)3 | $130,000 | INVESTIGATOR INITIATED STARTER | |
| MAYO CLINIC JACKSONVILLE | ||||||||
| 4500 SAN PABLO ROAD | JACKSONVILLE | FL | 32224 | 593337028 | 501(C)3 | $25,000 | POSTDOCTORAL FELLOWSHIP | |
| MAYO CLINIC JACKSONVILLE | ||||||||
| 4500 SAN PABLO ROAD | JACKSONVILLE | FL | 32224 | 593337028 | 501(C)3 | $32,500 | STRATEGIC INITIATIVE | |
| MAYO CLINIC JACKSONVILLE | ||||||||
| 4500 SAN PABLO ROAD | JACKSONVILLE | FL | 32224 | 593337028 | 501(C)3 | $125,000 | TREAT ALS | |
| MEDICAL UNIVERSITY OF SOUTH CAROLINA | ||||||||
| OFFICE OF GRANTS CPNTRACTS | CHARLESTON | SC | 29403 | 576000722 | 501(C)3 | $25,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | ACCOUNTING 19 HAGOOD AVE SUITE 606 |
| MOUNT SINAI HEALTH SYSTEM | ||||||||
| MOUNT SINAI HEALTH SYSTEM OFFICE | NEW YORK | NY | 10029 | 135564934 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | DEVELOPMENT ONE GUSTAVE L LEVY PLAC |
| NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT | ||||||||
| PO BOX 3006 | ROCKVILLE | MD | 20847 | 501(C)3 | $25,000 | POSTDOCTORAL FELLOWSHIP | ||
| NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS | ||||||||
| ATTN FINANCIAL MGMT BRANCH | BETHESDA | MD | 208922540 | 520858115 | 501(C)3 | $600,000 | LOU GEHRIG CHALLENGE ALSA INITIATED | |
| NC STATE UNIVERSITY | ||||||||
| 2701 SULLIVAN DRIVE SUITE 240 | RALEIGH | NC | 27695 | 566000756 | 501(C)3 | $50,000 | STRATEGIC INITIATIVE | |
| NEBRASKA MEDICINE | ||||||||
| ATTN TOVA SAFFORD 988440 NEBRASKA | OMAHA | NE | 681988440 | 911858433 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | MEDICINE |
| NEUROLOGY ASSOCIATES OF STONY BROOK | ||||||||
| 181 NORTH BELLE MEAD ROAD | EAST SETAUKET | NY | 11733 | 112587430 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| NEW YORK GENOME CENTER | ||||||||
| 101 AVENUE OF THE AMERICAS | NEW YORK | NY | 10013 | 800631734 | 501(C)3 | $1,150,000 | STRATEGIC INITIATIVE | |
| NORTHEAST ALS CONSORTIUM (NEALS) | ||||||||
| 811 W 7TH ST FLOOR 12 | LOS ANGELES | CA | 90017 | 562547779 | 501(C)3 | $30,000 | STRATEGIC INITIATIVE | |
| NORTHEASTERN UNIVERSITY | ||||||||
| 360 HUNTINGTON AVENUE | BOSTON | MA | 021155000 | 041679980 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| NORTHWESTERN UNIVERSITY | ||||||||
| 750 NORTH LAKE SHORE DRIVE | CHICAGO | IL | 60611 | 362167817 | 501(C)3 | $80,000 | INVESTIGATOR INITIATED STARTER | |
| OCHSNER CLINIC FOUNDATION | ||||||||
| ERIC B STILLMAN OCHSNER SUITE 607 | JEFFERSON | LA | 70121 | 720502505 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 1514 JEFFERSON HWY |
| OHIOHEALTH FOUNDATON | ||||||||
| ATTN MARK FLASH 180 EAST BROAD ST | COLUMBUS | OH | 43215 | 237446919 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 31ST FLOOR |
| OREGON HEALTH AND SCIENCE UNIVERSITY | ||||||||
| SPONSORED PROJECTS ADMINISTRATION | PORTLAND | OR | 97239 | 931176109 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 690 SW BANCROFT L106SPA |
| ORIGENT DATA SCIENCES INC | ||||||||
| 8245 BOONE BLVD SUITE 600 | VIENNA | VA | 22182 | 383916182 | 501(C)3 | $47,433 | LOU GEHRIG CHALLENGE ALSA INITIATED | |
| PENN STATE HERSHEY MEDICAL CENTER | ||||||||
| DR ZACHARY SIMMONS DEPT OF | HERSHEY | PA | 17033 | 246000376 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | NEUROLOGY EC 037 30 HOPE DRIVE |
| PISON TECHNOLOGY INC | ||||||||
| 258 HARVARD STREET | BROOKLINE | MA | 02446 | 813603539 | 501(C)3 | $50,000 | STRATEGIC INITIATIVE | |
| PORTLAND VA RESEARCH FOUNDATION | ||||||||
| PO BOX 19832 | PORTLAND | OR | 97280 | 943090170 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| PRESIDENT AND FELLOWS OF HARVARD COLLEGE | ||||||||
| 1350 MASSACHUSETTS AVENUE 6TH FLOOR | CAMBRIDGE | MA | 02138 | 042103580 | 501(C)3 | $56,250 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | FLOOR |
| PRESIDENT AND FELLOWS OF HARVARD COLLEGE | ||||||||
| 1350 MASSACHUSETTS AVENUE 6TH FLOOR | CAMBRIDGE | MA | 02138 | 042103580 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED STARTER | FLOOR |
| PRESIDENT AND FELLOWS OF HARVARD COLLEGE | ||||||||
| 1350 MASSACHUSETTS AVENUE 6TH FLOOR | CAMBRIDGE | MA | 02138 | 042103580 | 501(C)3 | $34,940 | STRATEGIC INITIATIVE | FLOOR |
| PRIZE4LIFE INC | ||||||||
| PO BOX 5755 | BERKELEY | CA | 94705 | 205055664 | 501(C)3 | $54,250 | TREAT ALS | |
| PROVIDENCE HEALTH & SERVICES-OREGON | ||||||||
| ST VINCENT MEDICAL CENTER/BRAIN | PORTLAND | OR | 972285977 | 930386929 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | INSTITUTE FOUNDATION PO BOX 5977 |
| QURALIS CORPORATION | ||||||||
| 700 MAIN STREET NORTH | CAMBRIDGE | MA | 02139 | 814722156 | 501(C)3 | $125,000 | DRUG DEVELOPMENT CONTRACT | |
| REGENTS OF THE UNIVERSITY OF CALIFORINA IRVINE | ||||||||
| 200 S MANCHESTER SUITE 110 | ORANGE | CA | 92868 | 952226406 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA UCSD | ||||||||
| 9500 GILMAN DRIVE MC 0009 | LA JOLLA | CA | 92093 | 956006144 | 501(C)3 | $50,000 | POSTDOCTORAL FELLOWSHIP | |
| RWJ UNIVERSITY HOSPITAL FOUNDATION | ||||||||
| 10 PLUM STREET SUITE 910 | NEW BRUNSWICK | NJ | 08901 | 222378007 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| SCRIPPS FLORIDA | ||||||||
| 130 SCRIPPS WAY | JUPITER | FL | 33458 | 330435954 | 501(C)3 | $75,000 | POSTDOCTORAL FELLOWSHIP | |
| SPECTRUM HEALTH FOUNDATION | ||||||||
| 100 MICHIGAN STREET NE MAIL CODE | GRAND RAPIDS | MI | 49503 | 382752328 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 004 |
| ST JUDE CHILDREN'S RESEARCH HOSPITAL | ||||||||
| 262 DANNY THOMAS PLACE MAIL STOP | MEMPHIS | TN | 38105 | 620646012 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | 733 |
| ST JUDE CHILDREN'S RESEARCH HOSPITAL | ||||||||
| 262 DANNY THOMAS PLACE MAIL STOP | MEMPHIS | TN | 38105 | 620646012 | 501(C)3 | $40,000 | INVESTIGATOR INITIATED STARTER | 733 |
| ST JUDE CHILDREN'S RESEARCH HOSPITAL | ||||||||
| 262 DANNY THOMAS PLACE MAIL STOP | MEMPHIS | TN | 38105 | 620646012 | 501(C)3 | $167,187 | LOU GEHRIG CHALLENGE ALSA INITIATED | 733 |
| ST JUDE CHILDREN'S RESEARCH HOSPITAL | ||||||||
| 262 DANNY THOMAS PLACE MAIL STOP | MEMPHIS | TN | 38105 | 620646012 | 501(C)3 | $21,093 | POSTDOCTORAL FELLOWSHIP | 733 |
| ST LOUIS UNIVERSITY | ||||||||
| DEPT OF NEUROLOGY 1438 SOUTH GRAND | ST LOUIS | MO | 63104 | 430654872 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | BLVD |
| STANFORD UNIVERSITY | ||||||||
| PO BOX 44253 | SAN FRANCISCO | CA | 94144 | 941156365 | 501(C)3 | $50,000 | POSTDOCTORAL FELLOWSHIP | |
| SWEDISH NEUROSCIENCE INSTITUTE | ||||||||
| PHYSICIAN DIVISON 550 17TH AVE | SEATLE | WA | 98122 | 912073120 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | SUITE 400 |
| SYRACUSE UNIVERSITY | ||||||||
| 102 ARCHBOLD NORTH | SYRACUSE | NY | 13244 | 150532081 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| TACONIC BIOSCIENCES INC | ||||||||
| 273 HOVER AVENUE | GERMANTOWN | NY | 125265320 | 141381104 | 501(C)3 | $64,188 | STRATEGIC INITIATIVE | |
| TEMPLE UNIVERSITY | ||||||||
| 1852 N 10TH STREET 083-11 | PHILADELPHIA | PA | 19122 | 231365971 | 501(C)3 | $80,000 | LOU GEHRIG CHALLENGE ALSA INITIATED | |
| THE ALS ASSOCIATION-ALABAMA CHAPTER | ||||||||
| C/O NANCY COLIN PO BOX 2888 | HUNTSVILLE | AL | 35804 | 202218566 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-ARIZONA CHAPTER | ||||||||
| C/O TARYN NORLEY 4643 E THOMAS ROAD | PHONEIX | AZ | 85018 | 860727136 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | SUITE 1 |
| THE ALS ASSOCIATION-ARKANSAS CIO | ||||||||
| 1200 WEST WALNUT SUITE 2309 | ROGERS | AR | 72756 | 204863643 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-CENTRAL & SOUTHERN OHIO CHAPTER | ||||||||
| 1810 MACKENZIE DR STE 120 | COLUMBUS | OH | 43220 | 311235704 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-CONNECTICUT CHAPTER | ||||||||
| 4 OXFORD ROAD UNIT E4 | MILFORD | CT | 06460 | 043417472 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-DCMDVA CHAPTER | ||||||||
| 30 W GUDE DR SUITE 150 | ROCKVILLE | MD | 20850 | 501(C)3 | $15,000 | GRANT FOR CHAPTER SUPPORT | ||
| THE ALS ASSOCIATION-DCMDVA CHAPTER | ||||||||
| 30 W GUDE DR SUITE 150 | ROCKVILLE | MD | 20850 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | ||
| THE ALS ASSOCIATION-EVERGREEN CHAPTER | ||||||||
| 19110 66TH AVE S G-101 | KENT | WA | 98032 | 911950869 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-FLORIDA CHAPTER | ||||||||
| 3242 PARKSIDE CENTER CIRCLE | TAMPA | FL | 336190907 | 943124732 | 501(C)3 | $9,754 | DISASTER RELIEF GRANT | |
| THE ALS ASSOCIATION-FLORIDA CHAPTER | ||||||||
| 3242 PARKSIDE CENTER CIRCLE | TAMPA | FL | 336190907 | 943124732 | 501(C)3 | $15,000 | GRANT FOR CHAPTER SUPPORT | |
| THE ALS ASSOCIATION-FLORIDA CHAPTER | ||||||||
| 3242 PARKSIDE CENTER CIRCLE | TAMPA | FL | 336190907 | 943124732 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-GEORGIA CHAPTER | ||||||||
| 5881 GLENRIDGE DRIVE SUITE 200 | ATLANTA | GA | 30328 | 581943490 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-GOLDEN WEST CHAPTER | ||||||||
| P O BOX 565 | AGOURA HILLS | CA | 913760565 | 954163338 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-GREATER CHICAGO CHAPTER | ||||||||
| 220 WEST HURON SUITE 4003 | CHICAGO | IL | 60610 | 542126575 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-GREATER NEW YORK CHAPTER | ||||||||
| C/O THE ALS ASSOCIATION GREATER NEW | NEW YORK | NY | 10004 | 133616680 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | YORK CHAPTER 42 BROADWAY STE 1724 |
| THE ALS ASSOCIATION-GREATER PHILADELPHIA CHAPTER | ||||||||
| 321 NORRISTOWN RD SUITE 260 | AMBLER | PA | 19002 | 232387205 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-GREATER SACRAMENTO CHAPTER | ||||||||
| 2717 COTTAGE WAY SUITE 8 | SACRAMENTO | CA | 95825 | 680152992 | 501(C)3 | $6,974 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-GREATER SAN DIEGO CHAPTER | ||||||||
| 7920 SILVERTON AVE SUITE O | SAN DIEGO | CA | 921266350 | 043651272 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-INDIANA CHAPTER | ||||||||
| 7202 E 87TH STREET SUITE 102 | INDIANAPOLIS | IN | 46256 | 353029321 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-IOWA CHAPTER | ||||||||
| 3636 WESTOWN PKWY SUITE 204 | WEST DES MOINES | IA | 50266 | 300051272 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-LOUISIANAMISSISSIPPI CHAPTER | ||||||||
| 11725 INDUSTRIPLEX BLVD SUITE 3 | BATON ROUGE | LA | 708095190 | 201742120 | 501(C)3 | $30,000 | GRANT FOR CHAPTER SUPPORT | |
| THE ALS ASSOCIATION-LOUISIANAMISSISSIPPI CHAPTER | ||||||||
| 11725 INDUSTRIPLEX BLVD SUITE 3 | BATON ROUGE | LA | 708095190 | 201742120 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER | ||||||||
| 685 CANTON STREET SUITE 103 | NORWOOD | MA | 02026 | 043085718 | 501(C)3 | $100,000 | ASSISTIVE TECHNOLOGY GRANT | |
| THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER | ||||||||
| 685 CANTON STREET SUITE 103 | NORWOOD | MA | 02026 | 043085718 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-MASSACHUSETTS CHAPTER | ||||||||
| 685 CANTON STREET SUITE 103 | NORWOOD | MA | 02026 | 043085718 | 501(C)3 | $274,581 | PETE FRATES HOME HEALTH INITIATIVE | |
| THE ALS ASSOCIATION-MID AMERICA CHAPTER | ||||||||
| 6950 SQUIBB ROAD STE 210 | MISSION | KS | 66202 | 481021611 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-MNNDSD CHAPTER | ||||||||
| 1919 UNIVERSITY AVE W SUITE 175 | ST PAUL | MN | 55104 | 411756085 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-NATIONAL OFFICE (OKWVKYSCNNEMI) | ||||||||
| 1275 K STREET NW SUITE 250 | WASHINGTON | DC | 20005 | 133271855 | 501(C)3 | $42,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-NEVADA CHAPTER | ||||||||
| 3191 E WARM SPRINGS RD | LAS VEGAS | NV | 89120 | 201531344 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-NORTH CAROLINA CHAPTER | ||||||||
| 4 N BLOUNT ST 2ND FLOOR | RALEIGH | NC | 27601 | 561609591 | 501(C)3 | $7,500 | CAMP OUTREACH GRANT | |
| THE ALS ASSOCIATION-NORTH CAROLINA CHAPTER | ||||||||
| 4 N BLOUNT ST 2ND FLOOR | RALEIGH | NC | 27601 | 561609591 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-NORTHERN OHIO CHAPTER | ||||||||
| 2500 E 22ND STREET SUITE 102 | CLEVELAND | OH | 44115 | 341595148 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-ORANGE COUNTY CHAPTER | ||||||||
| 1232 VILLAGE WAY SUITE A | SANTA ANA | CA | 927054746 | 330282720 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-OREGON & SW WASHINGTON CHAPTER | ||||||||
| 700 NE MULTNOMAH ST SUITE 210 | PORTLAND | OR | 97232 | 680516066 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-RHODE ISLAND CHAPTER | ||||||||
| 2374 POST ROAD SUITE 103 | WARWICK | RI | 028862270 | 050460482 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-ROCKY MOUNTAIN CHAPTER | ||||||||
| 10855 DOVER STREET SUITE 500 | WESTMINSTER | CO | 80021 | 841337868 | 501(C)3 | $50,000 | GRANT FOR CHAPTER SUPPORT | |
| THE ALS ASSOCIATION-ROCKY MOUNTAIN CHAPTER | ||||||||
| 1201 EAST COLFAX AVENUE SUITE 202 | DENVER | CO | 80218 | 841337868 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-ST LOUIS REGIONAL CHAPTER | ||||||||
| 5615 PERSHING AVENUE STE 20 | ST LOUIS | MO | 631121757 | 431458163 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-TENNESSEE CHAPTER | ||||||||
| 4300 SIDCO DRIVE SUITE 200 | NASHVILLE | TN | 37204 | 943124723 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-TEXAS CHAPTER | ||||||||
| 1231 GREENWAY DRIVE SUITE 295 | IRVING | TX | 75038 | 742678974 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-UPSTATE NEW YORK CHAPTER | ||||||||
| 890 SEVENTH NORTH STREET SUITE 108 | LIVERPOOL | NY | 13088 | 371667986 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-WESTERN PENNSYLVANIA CHAPTER | ||||||||
| 416 LINCOLN AVENUE | PITTSBURGH | PA | 15209 | 237123851 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE ALS ASSOCIATION-WISCONSIN CHAPTER | ||||||||
| 2421 N MAYFAIR ROAD SUITE 212 | WAUWATOSA | WI | 53226 | 391600965 | 501(C)3 | $7,000 | MTPA CARE GRANT AWARD | |
| THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM | ||||||||
| 21 N PARK STREET SUITE 6401 | MADISON | WI | 53715 | 396006492 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| THE CURATORS OF THE UNIVERSITY OF MISSOURI | ||||||||
| UNIVERSITY OF MISSOURI AR | KANSAS CITY | MO | 64180 | 436003859 | 501(C)3 | $39,439 | INVESTIGATOR INITIATED STARTER | |
| THE EMORY CLINIC INC | ||||||||
| 12 EXECUTIVE PARK DR NE ROOM 433 | ATLANTA | GA | 30329 | 582030692 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| THE FORBES NORRIS ALS RESEARCH CENTER | ||||||||
| 2324 SACRAMENTO STREET 111 | SAN FRANCISCO | CA | 94115 | 941156581 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| THE HITCHCOCK FOUNDATION | ||||||||
| ALS/NEUROMUSCULAR DISEASE CLINIC | LEBANON | NH | 037560001 | 020222139 | 501(C)3 | $12,500 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | ONE MEDICAL CENTER DRIVE |
| THE J DAVID GLADSTONE INSTITUTE | ||||||||
| VINCENT MOSELEY | SAN FRANCISCO | CA | 94158 | 237203666 | 501(C)3 | $500,000 | STRATEGIC INITIATIVE | |
| THE JOHNS HOPKINS UNIVERSITY | ||||||||
| 733 N BROADWAY SUITE 117 | BALTIMORE | MD | 21205 | 520595110 | 501(C)3 | $345,000 | DRUG DEVELOPMENT CONTRACT | |
| THE JOHNS HOPKINS UNIVERSITY | ||||||||
| 733 N BROADWAY SUITE 117 | BALTIMORE | MD | 21205 | 520595110 | 501(C)3 | $200,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| THE JOHNS HOPKINS UNIVERSITY | ||||||||
| 733 N BROADWAY SUITE 117 | BALTIMORE | MD | 21205 | 520595110 | 501(C)3 | $240,000 | INVESTIGATOR INITIATED STARTER | |
| THE JOHNS HOPKINS UNIVERSITY | ||||||||
| 733 N BROADWAY SUITE 117 | BALTIMORE | MD | 21205 | 520595110 | 501(C)3 | $453,471 | LOU GEHRIG CHALLENGE ALSA INITIATED | |
| THE JOHNS HOPKINS UNIVERSITY | ||||||||
| 733 N BROADWAY SUITE 117 | BALTIMORE | MD | 21205 | 520595110 | 501(C)3 | $25,000 | POSTDOCTORAL FELLOWSHIP | |
| THE MEDICAL COLLEGE OF WISCONSIN INC | ||||||||
| DEPT OF NEUROLOGY 9200 W WISCONSIN | MILWAUKEE | WI | 53226 | 390806261 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | AVE |
| THE METHODIST HOSPITAL RESEARCH INSTITUTE | ||||||||
| 6670 BERTNER AVENUE R12-107 | HOUSTON | TX | 77030 | 870721923 | 501(C)3 | $230,000 | ALSA INITIATED | |
| THE METHODIST HOSPITAL RESEARCH INSTITUTE | ||||||||
| 6670 BERTNER AVENUE R12-107 | HOUSTON | TX | 77030 | 870721923 | 501(C)3 | $20,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| THE PENNSYLVANIA STATE UNIV | ||||||||
| 500 UNIVERSITY DRIVE PO BOX 850 | HERSHEY | PA | 17033 | 246000376 | 501(C)3 | $40,000 | INVESTIGATOR INITIATED STARTER | |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA | ||||||||
| UC SAN DIEGO DEPT OF NEUROSCIENCES | LA JOLLA | CA | 920935004 | 956006144 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 9500 GILMAN DRIVE MC 0662 |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | ||||||||
| 9500 GILMAN DRIVE MC 0009 | LA JOLLA | CA | 92093 | 946036493 | 501(C)3 | $50,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO | ||||||||
| 9500 GILMAN DRIVE MC 0009 | LA JOLLA | CA | 92093 | 946036493 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED STARTER | |
| THE REGENTS OF THE UNIVERSITY OF MICHIGAN | ||||||||
| BOX 223131 | PITTSBURGH | PA | 15251 | 386006309 | 501(C)3 | $100,000 | CLINICAL MANAGEMENT AWARD | |
| THE REGENTS OF THE UNIVERSITY OF MICHIGAN | ||||||||
| BOX 223131 | PITTSBURGH | PA | 15251 | 386006309 | 501(C)3 | -$72,142 | INVESTIGATOR INITIATED STARTER | |
| THE RESEARCH FOUNDATION OF SUNY | ||||||||
| 750 E ADAMS STREET CAB 209 ACCT AND | SYRACUSE | NY | 13210 | 141368361 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | BUDGETING OFFICE |
| THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | ||||||||
| P O BOX 29789 | NEW YORK | NY | 10087 | 135598093 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED STARTER | |
| THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK | ||||||||
| 630 W 168TH STREET SUITE 49 | NEW YORK | NY | 100323725 | 135598093 | 501(C)3 | $589,342 | LOU GEHRIG CHALLENGE ALSA INITIATED | |
| THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | ||||||||
| 3600 SPRUCE STREET MALONEY BUILDING | PHILADELPHIA | PA | 19107 | 231352685 | 501(C)3 | $25,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | 3RD FLOOR |
| THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA | ||||||||
| 3600 SPRUCE STREET MALONEY BUILDING | PHILADELPHIA | PA | 19107 | 231352685 | 501(C)3 | $25,000 | POSTDOCTORAL FELLOWSHIP | 3RD FLOOR |
| THE UNIVERSITY OF CHICAGO | ||||||||
| 5841 S MARYLAND AVE DEPT OF | CHICAGO | IL | 60637 | 362177139 | 501(C)3 | $100,000 | DRUG DEVELOPMENT CONTRACT | |
| THE UNIVERSITY OF CHICAGO MEDICINE | ||||||||
| THE UNIVERSITY OF CHICAGO 5801 | CHICAGO | IL | 606375418 | 362177139 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | SOUTH ELLIS AVENUE |
| THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON | ||||||||
| 7000 FANNIN STREET | HOUTON | TX | 77030 | 741761309 | 501(C)3 | $25,000 | STRATEGIC INITIATIVE | |
| THERA NEUROPHARMA | ||||||||
| 538 NEWTOWN ROAD | BERWYN | PA | 19312 | 812014147 | 501(C)3 | $75,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| TRANSLATIONAL GENOMICS RESEARCH INSTITUTE | ||||||||
| 445 N FIFTH STREET | PHOENIX | AZ | 85004 | 753065445 | 501(C)3 | $40,000 | INVESTIGATOR INITIATED STARTER | |
| UC DAVIS MULTIDISCIPLINARY ALS CLINIC | ||||||||
| 4860 Y STREET SUITE 3850 | SACRAMENTO | CA | 95817 | 946036494 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| UNIV OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO | ||||||||
| 7703 FLOYD CURL DRIVE MSC 7883 | SAN ANTONIO | TX | 782293900 | 741586031 | 501(C)3 | $397 | CLINICAL MANAGEMENT | |
| UNIVERSITY OF CALIFORNIA SAN DIEGO | ||||||||
| 9500 GILMAN DRIVE MC 0934 | SAN DIEGO | CA | 92039 | 956006144 | 501(C)3 | $140,000 | INVESTIGATOR INITIATED STARTER | |
| UNIVERSITY OF CHICAGO | ||||||||
| 6030 S ELLIS AVENUE | CHICAGO | IL | 60637 | 362177139 | 501(C)3 | $40,000 | INVESTIGATOR INITIATED STARTER | |
| UNIVERSITY OF FLORIDA BOARD OF TRUSTEES | ||||||||
| 207 GRINTER HALL | GAINESVILLE | FL | 32611 | 596002052 | 501(C)3 | -$1,133 | CLINICAL MANAGEMENT | |
| UNIVERSITY OF FLORIDA BOARD OF TRUSTEES | ||||||||
| 207 GRINTER HALL | GAINESVILLE | FL | 32611 | 596002052 | 501(C)3 | $50,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| UNIVERSITY OF FLORIDA BOARD OF TRUSTEES | ||||||||
| 207 GRINTER HALL | GAINESVILLE | FL | 32611 | 596002052 | 501(C)3 | $70,000 | INVESTIGATOR INITIATED STARTER | |
| UNIVERSITY OF FLORIDA BOARD OF TRUSTEES | ||||||||
| 207 GRINTER HALL | GAINESVILLE | FL | 32611 | 596002052 | 501(C)3 | $50,000 | STRATEGIC INITIATIVE | |
| UNIVERSITY OF ILLINIOS AT CHICAGO | ||||||||
| 1801 W TAYLOR ST SUITE 4E | CHICAGO | IL | 60612 | 376000511 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| UNIVERSITY OF KENTUCKY | ||||||||
| DEPT OF NEUROLOGY-ALS FUND KY | LEXINGTON | KY | 405360284 | 616001218 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | CLINIC-WING D-ROOM L445 |
| UNIVERSITY OF MARYLAND BALTIMORE | ||||||||
| 620 W LEXINGTON STREET 4TH FLOOR | BALTIMORE | MD | 21208 | 526002033 | 501(C)3 | $50,000 | INVESTIGATOR INITIATED STARTER | |
| UNIVERSITY OF MARYLAND BALTIMORE | ||||||||
| DEPARTMENT OF NEUROLOGY 110 SOUTH | BALTIMORE | MD | 21202 | 526002033 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | PACA ST 3RD FLOOR |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL | ||||||||
| 55 LAKE AVENUE NORTH | WORCESTER | MA | 01655 | 043167352 | 501(C)3 | $100,000 | DRUG DEVELOPMENT CONTRACT | |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL | ||||||||
| 55 LAKE AVENUE NORTH | WORCESTER | MA | 01655 | 043167352 | 501(C)3 | $150,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL | ||||||||
| 55 LAKE AVENUE NORTH | WORCESTER | MA | 01655 | 043167352 | 501(C)3 | $98,491 | POSTDOCTORAL FELLOWSHIP | |
| UNIVERSITY OF MIAMI | ||||||||
| P O BOX 405803 | ATLANTA | GA | 30384 | 592579826 | 501(C)3 | $100,000 | TREAT ALS | |
| UNIVERSITY OF MIAMI | ||||||||
| ALS CENTER OF EXCELLENCE 1120 NW | MIAMI | FL | 33136 | 592579826 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 14TH ST SUITE 1318 |
| UNIVERSITY OF MICHIGAN ALS CLINIC | ||||||||
| UNIVERSITY OF MICHIGAN ALS CLINIC | ANN ARBOR | MI | 48109 | 386006309 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 1500 E MEDICAL CENTER DRIVE |
| UNIVERSITY OF MINNESOTA | ||||||||
| NW 5957 P O BOX 1450 | MINNEAPOLIS | MN | 55485 | 416007513 | 501(C)3 | $33,598 | CLINICAL MANAGEMENT AWARD | |
| UNIVERSITY OF MINNESOTA FOUNDATION | ||||||||
| PO BOX 860266 | MINNEAPOLIS | MN | 554860266 | 416042488 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL | ||||||||
| BANK OF AMERICA LOCKBOX SERVICES PO | ATLANTA | GA | 30384 | 566001393 | 501(C)3 | $25,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | BOX 40242 |
| UNIVERSITY OF OREGON | ||||||||
| 5219 UNIVERSITY OF OREGON | EUGENE | OR | 97403 | 464727800 | 501(C)3 | $50,000 | POSTDOCTORAL FELLOWSHIP | |
| UNIVERSITY OF PITTSBURGH | ||||||||
| 500 ROSS STREET 154-0455 | PITTSBURGH | PA | 15262 | 125096559 | 501(C)3 | $100,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| UNIVERSITY OF PITTSBURGH | ||||||||
| 123 UNIVERSITY PLACE B21 | PITTSBURGH | PA | 15213 | 125096559 | 501(C)3 | $25,000 | POSTDOCTORAL FELLOWSHIP | |
| UNIVERSITY OF ROCHESTER | ||||||||
| 601 ELMWOOD AVENUE BOX 673 | ROCHESTER | NY | 14627 | 160743209 | 501(C)3 | $40,000 | INVESTIGATOR INITIATED STARTER | |
| UNIVERSITY OF ROCHESTER | ||||||||
| 601 ELMWOOD AVENUE BOX 673 | ROCHESTER | NY | 14642 | 160743209 | 501(C)3 | $112,621 | STRATEGIC INITIATIVE | |
| UNIVERSITY OF SOUTH FLORIDA | ||||||||
| 4202 E FOWLER AVENUE ALC 100 | TAMPA | FL | 33620 | 590879015 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| UNIVERSITY OF SOUTHERN CALIFORNIA | ||||||||
| 3720 SOUTH FLOWER STREET | LOS ANGELES | CA | 90089 | 951642394 | 501(C)3 | $25,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER SAN ANTONIO | ||||||||
| 7703 FLOYD CURL DRIVE MAIL CODE | SAN ANTONIO | TX | 782293900 | 741586031 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 7883 |
| UNIVERSITY OF UTAH | ||||||||
| 175 N MEDICAL DR E ROOM 5001 | SALT LAKE CITY | UT | 84132 | 876000525 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| UNIVERSITY OF VERMONT MEDICAL CENTER | ||||||||
| ALS CLINIC 1 SOUTH PROSPECT STREET | BURLINGTON | VT | 05401 | 030219309 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| UNIVERSITY OF VERMONT DEPARTMENT OF NEUROLOGICAL SCIENCES | ||||||||
| 1 SOUTH PROSPECT ST UNIVERSITY | BURLINGTON | VT | 05401 | 030179440 | 501(C)3 | $12,500 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | HEALTH CENTER |
| UNIVERSITY OF WISCONSIN-MILWAUKEE | ||||||||
| BOARD OF REGENTS OF UNIVERSITY OF | MILWAUKEE | WI | 53201 | 396006492 | 501(C)3 | $23,578 | YOUTH EDUCATIONAL MATERIALS | WISCONSIN SYSTEM PO BOX 500 |
| VA CONNECTICUT RESEARCH AND EDUCATION FOUNDATION | ||||||||
| 950 CAMPBELL AVENUE BLDG 35A ROOM | WEST HAVEN | CT | 06516 | 202206467 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 104 |
| VA PUGET SOUND HEALTH CARE SYSTEM | ||||||||
| ATTN VOLUNTARY 1660 SOUTH COLUMBIAN | SEATTLE | WA | 98108 | 741612229 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | WAY |
| VIRGINIA COMMONWEALTH UNIVERSITY | ||||||||
| GRANTS CONTRACTS ACCOUNTING | RICHMOND | VA | 232843039 | 546001758 | 501(C)3 | $25,000 | INVESTIGATOR INITIATED STARTER | |
| VIRGINIA MASON MEDICAL CENTER ALS CLINIC | ||||||||
| NEUROLOGY AND NEUROPHYSIOLOGY 1100 | SEATTLE | WA | 98111 | 910565539 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | 9TH AVE PO BOX 900 M/S X7 NEU |
| WAKE FOREST | ||||||||
| MEDICAL CENTER BLVD | WINSTONSALEM | NC | 271571078 | 223849199 | 501(C)3 | $25,000 | CERTIFIED TREATMENT CENTER OF EXCELLENCE GRANT | |
| WASHINGTON UNIVERSITY IN ST LOUIS | ||||||||
| 700 ROSEDALE AVE CAMPUS BOX 1056 | SAINT LOUIS | MO | 631121408 | 430653611 | 501(C)3 | $125,000 | ALSA INITIATED | |
| WASHINGTON UNIVERSITY IN ST LOUIS | ||||||||
| 700 ROSEDALE AVE CAMPUS BOX 1056 | SAINT LOUIS | MO | 631121408 | 430653611 | 501(C)3 | $25,000 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| WASHINGTON UNIVERSITY IN ST LOUIS | ||||||||
| 700 ROSEDALE AVE CAMPUS BOX 1056 | ST LOUIS | MO | 63112 | 430653611 | 501(C)3 | $25,000 | STRATEGIC INITIATIVE | |
| WEILL CORNELL MEDICAL | ||||||||
| 700 ROSEDALE AVE CAMPUS BOX 1056 | SAINT LOUIS | MO | 631121408 | 133376695 | 501(C)3 | -$2,268 | INVESTIGATOR INITIATED STARTER | |
| YALE UNIVERSITY | ||||||||
| P O BOX 1873 | NEW HAVEN | CT | 06508 | 060646973 | 501(C)3 | $49,969 | INVESTIGATOR INITIATED AWARD MULTI-YEAR | |
| YALE UNIVERSITY | ||||||||
| P O BOX 1873 | NEW HAVEN | CT | 06508 | 060646973 | 501(C)3 | $50,000 | STRATEGIC INITIATIVE | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 221 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (2 entries)
| Grant TypeGrantTypeTxt | RecipientRecipientCnt | Non Cash AssistanceNonCashAssistanceAmt | Valuation Method UsedValuationMethodUsedDesc | Non Cash AssistanceNonCashAssistanceDesc | Cash GrantCashGrantAmt |
|---|---|---|---|---|---|
| DURABLE MEDICAL EQUIPMENT | 15 | $28,481 | FMV | POWER LIFT SEATS | |
| CARE SERVICES GRANTS | 11 | CARE SERVICE GRANTS | $5,500 |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ALL GRANT AWARDED INVESTIGATORS ARE REQUIRED TO PROVIDE A DETAILED REPORT OF THEIR EXPENDITURES AT THE TERMINATION OF THE GRANT. ANY UNEXPENDED FUNDS MUST BE RETURNED TO THE ORGANIZATION. IF ADJUSTMENTS ARE MADE TO THE BUDGET-TRANSFER OF FUNDS TO DIFFERENT CATEGORIES, THESE HAVE TO BE REQUESTED IN WRITING TO OUR RESEARCH DEPARTMENT. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantiation Required | Yes (1) | SubstantiationRequiredInd |
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Independent Consultant | Yes (X) | IndependentConsultantInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | Yes (1) | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | Yes (1) | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| CALANEET BALAS | ||||||||||||||
| PRESIDENT & CEO | $300,317 | $0 | $0 | $0 | $0 | $0 | $8,257 | $0 | $4,137 | $0 | $312,711 | $0 | $0 | $0 |
| GREG MITCHELL | ||||||||||||||
| EVP, FINANCE & ADMINISTRATION | $231,748 | $0 | $0 | $0 | $0 | $0 | $7,042 | $0 | $4,101 | $0 | $242,891 | $0 | $0 | $0 |
| BRIAN FREDERICK | ||||||||||||||
| EVP, COMMUNICATION | $195,041 | $0 | $0 | $0 | $0 | $0 | $6,074 | $0 | $4,088 | $0 | $205,203 | $0 | $0 | $0 |
| LANCE SLAUGHTER | ||||||||||||||
| EVP, CHAPTER RELATIONS & GOVERNANCE | $210,684 | $0 | $0 | $0 | $0 | $0 | $6,589 | $0 | $7,239 | $0 | $224,512 | $0 | $0 | $0 |
| KIMBERLY HARDING-MAGINNIS | ||||||||||||||
| SENIOR VP, CARE SERVICES | $188,046 | $0 | $0 | $0 | $0 | $0 | $5,735 | $0 | $6,253 | $0 | $200,034 | $0 | $0 | $0 |
| KATHLEEN SHEEHAN | ||||||||||||||
| VP, PUBLIC POLICY & ADVOCACY | $163,398 | $0 | $0 | $0 | $0 | $0 | $5,155 | $0 | $9,507 | $0 | $178,060 | $0 | $0 | $0 |
| TINA ZEFF | ||||||||||||||
| EVP, DEVELOPMENT | $167,968 | $0 | $0 | $0 | $0 | $0 | $5,825 | $0 | $13,836 | $0 | $187,629 | $0 | $0 | $0 |
| TERESSA HARRIS | ||||||||||||||
| VP, FINANCE | $147,838 | $0 | $0 | $0 | $0 | $0 | $4,777 | $0 | $12,151 | $0 | $164,766 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 3 | A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. |
| PART I, LINE 5 | INCENTIVE BONUSES AWARDED TO CEO AND EVP'S, ACCRUED IN FY19 BUT PAID 5/1/19. |
| PART I, LINE 6 | INCENTIVE BONUSES AWARDED TO CEO AND EVP'S, ACCRUED IN FY19 BUT PAID 5/1/19. |
Schedule M IRS990ScheduleM
Cars And Other Vehicles CarsAndOtherVehiclesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 170 | ContributionCnt |
| Noncash Contributions Rpt F990 | $112,848 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 32 | ContributionCnt |
| Noncash Contributions Rpt F990 | $166,286 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | AVG HIGH/LOW AT DATE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION USED THE SERVICES OF A CAR PROGRAM DONATION PROCESSOR SERVICE, AMERICA'S CAR DONATION CENTER, TO ACCEPT, PROCESS, AND SELL NON-CASH DONATIONS OF AUTOMOBILES. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 1 | THE EXECUTIVE COMMITTEE CAN BE MADE UP OF UP TO TEN BOARD MEMBERS, WHICH ARE USUALLY BOARD OFFICERS AND COMMITTEE CHAIRS. THIS COMMITTEE CAN MEET IN BETWEEN REGULARLY SCHEDULED BOARD OF TRUSTEE MEETINGS AND HAS THE POWERS OF THE BOARD OF TRUSTEES. ACTIONS TAKEN BY THE EXECUTIVE COMMITTEE ARE REPORTED TO THE FULL BOARD OF TRUSTEES AT THE NEXT REGULARLY SCHEDULED BOARD OF TRUSTEES MEETING. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE CFO OF THE ASSOCIATION WILL REVIEW AND COMMENT ON A DRAFT OF THE RETURN. AFTER ANY CHANGES, A COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE. UPON RECEIPT, THE COMMITTEE WILL REVIEW THE TAX RETURN AND DISCUSS ANY QUESTIONS OR ISSUES WITH THE PREPARER. UPON SATISFACTION OF ANY ISSUES, THE FINAL COPY OF THE 990 AND ITS SUPPORTING STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THEN, THE ENTITY WILL FILE THE FINAL COPY WITH THE IRS AND APPROPRIATE STATE AGENCIES. |
| FORM 990, PART VI, SECTION B, LINE 12C | EACH YEAR, EVERY BOARD MEMBER AND OFFICER OF THE ASSOCIATION MUST COMPLETE THE CONFLICT OF INTEREST POLICY FORM AND SUBMIT IT TO THE CHAIRMAN TO REVIEW AND MAKE ANY NECESSARY DECISIONS SHOULD A CONFLICT OF INTEREST ARISE. IF A CONFLICT IS DETERMINED TO EXIST, THE PERSON WHO HAS A POSSIBLE CONFLICT WILL EXPLAIN HIS OR HER POSITION TO THE GROUP, THEN LEAVE THE MEETING WHILE THE BOARD OR THE EXECUTIVE COMMITTEE DISCUSS THE SITUATION. THE BOARD/COMMITTEE WILL DETERMINE THE APPROPRIATENESS OF THE CONFLICT: IF IT IS AN ACCEPTABLE CONFLICT AS IS, OR IF IT IS ACCEPTABLE SUBJECT TO SPECIFIC CONDITIONS OF THE BOARD, OR IF IT IS NOT ACCEPTABLE AT ALL. THE BOARD WILL THEN COMMUNICATE THEIR FINDINGS TO THE INDIVIDUAL INVOLVED. |
| FORM 990, PART VI, SECTION B, LINE 15 | A COMPENSATION COMMITTEE ASSISTS THE BOARD IN FULFILLING ITS RESPONSIBILITY TO OVERSEE THE COMPENSATION AND BENEFITS TO ITS PRESIDENT, BY PROVIDING COMPARABLE DATA TO DETERMINE THE REASONABLENESS OF THE PRESIDENT'S SALARY. THE SALARY IS THEN REVIEWED BY THE BOARD OF DIRECTORS WITHOUT THE PARTICIPATION OF THE PRESIDENT. THE COMPENSATION FOR OTHER KEY EMPLOYEES IS SET BY THE PRESIDENT AND REVIEWED AND APPROVED BY THE COMPENSATION COMMITTEE ANNUALLY. IN EACH CASE, THE REVIEW INCLUDES THE USE OF APPROPRIATE COMPARABILITY DATA. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION FORM 990'S, FINANCIAL STATEMENTS, CONFLICT OF INTEREST POLICY AND GOVERNING DOCUMENTS ARE AVAILABLE FOR REVIEW AT THE AGENCY'S OFFICE UPON WRITTEN REQUEST. FORM 990 AND THE FINANCIAL STATEMENTS ARE AVAILABLE ON ITS WEBSITE AS WELL. |
| FORM 990, PART IX, LINE 11G | TELECOMMUNICATIONS, PUBLIC POLICY, IT, OTHER CONSULTING: PROGRAM SERVICE EXPENSES 2,062,257. MANAGEMENT AND GENERAL EXPENSES 94,721. FUNDRAISING EXPENSES 1,641,406. TOTAL EXPENSES 3,798,384. |
| FORM 990, PART XI, LINE 9: | CHANGE IN SPLIT INTEREST AND PERPETUAL TRUSTS 6,125. |
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