FOUNDATION FIGHTING BLINDNESS INC: Form 990, tax year 2024

View the entire original 990 at ProPublica ↗

Organization: FOUNDATION FIGHTING BLINDNESS INC (EIN 23-7135845)
Tax period: 2024-07-01 to 2025-06-30
Filed: 2025-11-03
IRS object ID: 202503079349303810
Schema version: 2024v5.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O
Schedule R

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2025-11-03T18:04:01-06:00	ReturnTs
Tax Period End	2025-06-30	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	991856619	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	GRANT THORNTON ADVISORS LLC	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	1000 WILSON BOULEVARD SUITE 1500	AddressLine1Txt
City	ARLINGTON	CityNm
State Abbreviation	VA	StateAbbreviationCd
ZIP	22209	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2024-07-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	237135845	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	THE FOUNDATION FIGHTING BLINDNESS INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	FOUN	BusinessNameControlTxt
Phone	4104230600	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6925 OAKLAND MILLS ROAD 701	AddressLine1Txt
City	COLUMBIA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	21045	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	PETER GINSBERG	PersonNm
Person Title	CHIEF OPERATING OFFICER	PersonTitleTxt
Phone	4104230600	PhoneNum
Signature	2025-11-03	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Field	Value	IRS element (for citing)
IRS Responsible Prty Info Curr	Yes (1)	IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	MARY TORRETTA	PreparerPersonNm
PTIN	P00847851	PTIN
Phone	7038477500	PhoneNum

Field	Value	IRS element (for citing)
Tax	2024	TaxYr
Build TS	2025-03-06 01:10:19Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	JASON D MENZO	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6925 OAKLAND MILLS ROAD 701	AddressLine1Txt
City	COLUMBIA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	21045	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$70,836,638	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.FIGHTINGBLINDNESS.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1971	FormationYr
Legal Domicile State	MD	LegalDomicileStateCd
Activity Or Mission	SEE SCHEDULE O	ActivityOrMissionDesc
Voting Members Governing Body	25	VotingMembersGoverningBodyCnt
Voting Members Independent	24	VotingMembersIndependentCnt
Total Employee	96	TotalEmployeeCnt
Total Volunteers	2500	TotalVolunteersCnt
Total Gross UBI	$0	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$31,823,323	PYContributionsGrantsAmt
CY Contributions Grants	$31,063,702	CYContributionsGrantsAmt
PY Program Service Revenue	$1,028,762	PYProgramServiceRevenueAmt
CY Program Service Revenue	$2,004,208	CYProgramServiceRevenueAmt
PY Investment Income	$1,323,599	PYInvestmentIncomeAmt
CY Investment Income	$2,544,692	CYInvestmentIncomeAmt
PY Other Revenue	$1,526,874	PYOtherRevenueAmt
CY Other Revenue	$1,002,567	CYOtherRevenueAmt
PY Total Revenue	$35,702,558	PYTotalRevenueAmt
CY Total Revenue	$36,615,169	CYTotalRevenueAmt
PY Grants And Similar Paid	$21,112,113	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$22,880,201	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$10,515,059	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$11,708,364	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$542,609	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$732,305	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$9,011,999	CYTotalFundraisingExpenseAmt
PY Other Expenses	$16,056,630	PYOtherExpensesAmt
CY Other Expenses	$14,211,512	CYOtherExpensesAmt
PY Total Expenses	$48,226,411	PYTotalExpensesAmt
CY Total Expenses	$49,532,382	CYTotalExpensesAmt
PY Revenues Less Expenses	-$12,523,853	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$12,917,213	CYRevenuesLessExpensesAmt
Total Assets BOY	$124,009,134	TotalAssetsBOYAmt
Total Assets EOY	$110,885,645	TotalAssetsEOYAmt
Total Liabilities BOY	$31,398,627	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$27,016,811	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	$92,610,507	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$83,868,834	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES, FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, MACULAR DEGENERATION, USHER SYNDROME, AND THE SPECTRUM OF RETINAL DEGENERATIVE DISEASES.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$32,043,327	ExpenseAmt
Grant	$22,880,201	GrantAmt
Revenue	$2,004,208	RevenueAmt
Desc	SEE SCHEDULE O	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$3,681,241	ExpenseAmt
Desc	SEE SCHEDULE O	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$1,641,058	ExpenseAmt
Desc	SEE SCHEDULE O	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$37,365,626	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	0	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	Yes (1)	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	0	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	Yes (1)	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	Yes (1)	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	Yes (1)	RelatedEntityInd
Related Organization Ctrl Ent	Yes (1)	RelatedOrganizationCtrlEntInd
Transaction With Control Ent	Yes (1)	TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	208	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	96	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	0	UnrelatedBusIncmOverLimitInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	25	GoverningBodyVotingMembersCnt
Independent Voting Member	24	IndependentVotingMemberCnt
Family Or Business Rln	Yes (1)	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	Yes (1)	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	Yes (1)	MembersOrStockholdersInd
Election Of Board Members	Yes (1)	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	PETER GINSBERG	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	4104230600	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	6925 OAKLAND MILLS ROAD 701	AddressLine1Txt
City	COLUMBIA	CityNm
State Abbreviation	MD	StateAbbreviationCd
ZIP	21045	ZIPCd

Field	Value	IRS element (for citing)
Info In Schedule O Part VII	Yes (X)	InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (39 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd	Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
ADRIENNE GRAVES PHD
DIRECTOR	1.00	1.00	Yes (X)	$0	$12,500	$0
KAREN PETROU
BOARD CHAIR	10.00	1.00	Yes (X)	$0	$0	$0	Yes (X)
JASON MORRIS
EXECUTIVE VICE CHAIR	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
HAYNES LEA
BOARD SECRETARY	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
STEVEN ALPER
CHAIR, DEVELOPMENT	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
JEFFREY FREED
CHAIR, AUDIT & RISK	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
DAVID NIXON
CHAIR, FINANCE & INVESTMENT; TREAS.	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
JONATHAN STEINBERG MD
CHAIR, SCIENCE	1.00	1.00	Yes (X)	$0	$0	$0	Yes (X)
MARYROSE SYLVESTER
CHAIR, AT LARGE	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
WARREN THALER
CHAIR, NOMINATING & GOVERNANCE	1.00	1.00	Yes (X)	$0	$0	$0	Yes (X)
GORDON GUND
DIRECTOR - CHAIRMAN EMERITUS	1.00	0.00	Yes (X)	$0	$0	$0	Yes (X)
DAVID BRINT
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
SCOTT BURT
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
DARREN DEVOUE
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
LAURA FIETTA
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
ROBERT HEIDENBERG
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
SUBER HUANG MD
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
MARSHA LINK PHD
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
LAURA MANFRE
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
BRADFORD MANNING
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
JANINE MARKS NIXON
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
EVAN MITTMAN
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
GEORGE PEINADO
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
MARTHA STEELE
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
JOSHUA STEINBERG
DIRECTOR	1.00	0.00	Yes (X)	$0	$0	$0
JASON D MENZO
CEO	32.00	8.00		$504,560	$126,140	$93,231	Yes (X)
PETER L GINSBERG
COO	32.00	8.00		$364,025	$91,006	$85,311	Yes (X)
AMY M PALMER LASTER
CHIEF SCIENTIFIC OFFICER	40.00	0.00		$281,622	$0	$27,061	Yes (X)
RUSSELL W KELLEY
MANAGING DIRECTOR, RD FUND	0.00	40.00		$0	$447,300	$85,994		Yes (X)
TODD A DURHAM
SVP CLINICAL & OUTCOMES RESEARCH	40.00	0.00		$324,179	$0	$80,261		Yes (X)
JEFFREY D KLAAS
CHIEF OF STRATEGY AND INNOVATION	40.00	0.00		$344,934	$0	$33,516		Yes (X)
RICHELE DONAT
CHIEF HUMAN RESOURCES OFFICER	40.00	0.00		$324,700	$0	$45,263		Yes (X)
JUDY TAYLOR
SVP/CHIEF DEVELOPMENT OFFICER	40.00	0.00		$290,836	$0	$74,299		Yes (X)
CHRISTOPHER S ADAMS
VP, COMMUNICATIONS & MARKETING	40.00	0.00		$237,414	$0	$64,234			Yes (X)
MICHELE DIVINCENZO
VP, SCIENTIFIC & ED. CONFERENCES	40.00	0.00		$239,787	$0	$60,971			Yes (X)
JEFFRY COLLINS
VP, DATABASE SYSTEMS & TECHNOLOGY	40.00	0.00		$234,136	$0	$53,880			Yes (X)
ANNA WAGNER
VP, FINANCE	40.00	0.00		$239,697	$0	$22,111			Yes (X)
CHAD R JACKSON - SR DIR
PRE-CLINICAL TRANSITIONAL PROG.	40.00	0.00		$207,565	$0	$17,439			Yes (X)
CLAIRE M GELFMAN
FORMER CSO (THRU 6/24)	40.00	0.00		$341,844	$0	$31,176				Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$3,935,299	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$676,946	TotReportableCompRltdOrgAmt
Total Other Compensation	$774,747	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	31	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	Yes (1)	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1Txt	CityContractorAddress/USAddress/CityNm	State AbbreviationContractorAddress/USAddress/StateAbbreviationCd	ZIPContractorAddress/USAddress/ZIPCd	ServicesServicesDesc	CompensationCompensationAmt
FUSE FUNDRAISING GROUP LLC
12355 SUNRISE VALLEY DRIVE SUITE 2	RESTON	VA	20191	DIRECT MARKETING CONSULTANT	$627,860
CHICAGO DOWNTOWN MARRIOTT
540 N MICHIGAN AVENUE	CHICAGO	IL	60611	VENUE FOR VISIONS 2024	$298,482
FAIRMONT SCOTTSDALE PRINCESS
7575 EAST PRINCESS DRIVE	SCOTTSDALE	AZ	85255	VENUE FOR ICS 2024	$287,477
HORIZON GOVERNMENT
440 1ST ST NW SUITE 430	WASHINGTON	DC	20001	GOVERNMENT RELATIONS CONSULTANT	$240,000
MOLECULAR MEDIA INC
8670 66TH COURT	PINELLAS PARK	FL	33782	AV EQUIPMENT RENTAL	$218,718

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	12	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$83,597	FederatedCampaignsAmt
Fundraising	$6,254,537	FundraisingAmt
Government Grants	$167,647	GovernmentGrantsAmt
All Other Contributions	$24,557,921	AllOtherContributionsAmt
Noncash Contributions	$846,278	NoncashContributionsAmt
Total Contributions	$31,063,702	TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDesc	BusinessBusinessCd	Total Revenue ColumnTotalRevenueColumnAmt	Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
CONTRACT REVENUE	900099	$1,889,982	$1,889,982
PROGRAM FEES	900099	$114,226	$114,226

Field	Value	IRS element (for citing)
Total Program Service Revenue	$2,004,208	TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$3,256,434	TotalRevenueColumnAmt
Exclusion	$3,256,434	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$1,407,035	TotalRevenueColumnAmt
Exclusion	$1,407,035	ExclusionAmt

Gross Rents GrossRentsGrp

Field	Value	IRS element (for citing)
Real	$35,179	RealAmt

Less Rental Expenses LessRentalExpensesGrp

Field	Value	IRS element (for citing)
Real	$0	RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Real	$35,179	RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$35,179	TotalRevenueColumnAmt
Exclusion	$35,179	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$32,465,155	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$33,176,897	SecuritiesAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	-$711,742	SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$711,742	TotalRevenueColumnAmt
Exclusion	-$711,742	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$604,925	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$6,254,537	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$1,044,572	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$439,647	TotalRevenueColumnAmt
Exclusion	-$439,647	ExclusionAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$36,615,169	TotalRevenueColumnAmt
Related Or Exempt Func Income	$2,004,208	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$0	UnrelatedBusinessRevenueAmt
Exclusion	$3,547,259	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$19,306,746	TotalAmt
Program Services	$19,306,746	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$3,573,455	TotalAmt
Program Services	$3,573,455	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$2,416,444	TotalAmt
Program Services	$904,110	ProgramServicesAmt
Management And General	$602,750	ManagementAndGeneralAmt
Fundraising	$909,584	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$6,983,907	TotalAmt
Program Services	$2,597,079	ProgramServicesAmt
Management And General	$871,881	ManagementAndGeneralAmt
Fundraising	$3,514,947	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$417,135	TotalAmt
Program Services	$161,154	ProgramServicesAmt
Management And General	$68,373	ManagementAndGeneralAmt
Fundraising	$187,608	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$1,215,324	TotalAmt
Program Services	$459,160	ProgramServicesAmt
Management And General	$115,915	ManagementAndGeneralAmt
Fundraising	$640,249	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$675,554	TotalAmt
Program Services	$249,925	ProgramServicesAmt
Management And General	$103,530	ManagementAndGeneralAmt
Fundraising	$322,099	FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

Field	Value	IRS element (for citing)
Total	$2,247,246	TotalAmt
Program Services	$1,051,166	ProgramServicesAmt
Management And General	$304,111	ManagementAndGeneralAmt
Fundraising	$891,969	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$54,745	TotalAmt
Program Services	$1,620	ProgramServicesAmt
Management And General	$53,125	ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$58,255	TotalAmt
Management And General	$52,880	ManagementAndGeneralAmt
Fundraising	$5,375	FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$240,000	TotalAmt
Program Services	$240,000	ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

Field	Value	IRS element (for citing)
Total	$732,305	TotalAmt
Fundraising	$732,305	FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$183,052	TotalAmt
Management And General	$156,583	ManagementAndGeneralAmt
Fundraising	$26,469	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$493,157	TotalAmt
Program Services	$322,722	ProgramServicesAmt
Management And General	$10,343	ManagementAndGeneralAmt
Fundraising	$160,092	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$543,281	TotalAmt
Program Services	$121,487	ProgramServicesAmt
Management And General	$76,822	ManagementAndGeneralAmt
Fundraising	$344,972	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$396,738	TotalAmt
Program Services	$31,008	ProgramServicesAmt
Management And General	$87,625	ManagementAndGeneralAmt
Fundraising	$278,105	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$127,012	TotalAmt
Program Services	$18,234	ProgramServicesAmt
Management And General	$69,888	ManagementAndGeneralAmt
Fundraising	$38,890	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$483,233	TotalAmt
Program Services	$146,710	ProgramServicesAmt
Management And General	$80,127	ManagementAndGeneralAmt
Fundraising	$256,396	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$1,123,066	TotalAmt
Program Services	$482,590	ProgramServicesAmt
Management And General	$272,298	ManagementAndGeneralAmt
Fundraising	$368,178	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$105,654	TotalAmt
Program Services	$88,591	ProgramServicesAmt
Management And General	$500	ManagementAndGeneralAmt
Fundraising	$16,563	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$208,608	TotalAmt
Program Services	$123,024	ProgramServicesAmt
Management And General	$24,364	ManagementAndGeneralAmt
Fundraising	$61,220	FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
RESEARCH TRIAL COSTS	$7,335,750	$7,335,750
PRINTING & PRODUCTION	$325,348	$150,097	$23,865	$151,386

All Other Expenses AllOtherExpensesGrp

Field	Value	IRS element (for citing)
Total	$286,367	TotalAmt
Program Services	$998	ProgramServicesAmt
Management And General	$179,777	ManagementAndGeneralAmt
Fundraising	$105,592	FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$49,532,382	TotalAmt
Program Services	$37,365,626	ProgramServicesAmt
Management And General	$3,154,757	ManagementAndGeneralAmt
Fundraising	$9,011,999	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$5,907,841	BOYAmt
EOY	$2,694,746	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$5,399,724	BOYAmt
EOY	$6,101,316	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$16,206,701	BOYAmt
EOY	$9,572,815	EOYAmt

Accounts Receivable AccountsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$553,927	BOYAmt
EOY	$1,390,576	EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

Field	Value	IRS element (for citing)
BOY	$16,732	BOYAmt
EOY	$6,943	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$683,433	BOYAmt
EOY	$828,606	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$4,121,573	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$3,521,005	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$691,222	BOYAmt
EOY	$600,568	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$85,735,053	BOYAmt
EOY	$80,569,953	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$8,814,501	BOYAmt
EOY	$9,120,122	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$124,009,134	BOYAmt
EOY	$110,885,645	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$2,799,115	BOYAmt
EOY	$2,235,740	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$21,184,147	BOYAmt
EOY	$18,542,798	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$550,960	BOYAmt
EOY	$861,444	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$6,864,405	BOYAmt
EOY	$5,376,829	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$31,398,627	BOYAmt
EOY	$27,016,811	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$20,614,062	BOYAmt
EOY	$20,367,885	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$71,996,445	BOYAmt
EOY	$63,500,949	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$92,610,507	BOYAmt
EOY	$83,868,834	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$124,009,134	BOYAmt
EOY	$110,885,645	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$12,917,213	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$4,163,847	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$11,693	OtherChangesInNetAssetsAmt
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Consolidated Basis Fincl Stmt	Yes (X)	ConsolidatedBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$27,741,201	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$39,734,129	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$28,901,504	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$31,823,323	CurrentTaxYearMinus1YearAmt
Current Tax Year	$31,063,702	CurrentTaxYearAmt
Total	$159,263,859	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$27,741,201	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$39,734,129	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$28,901,504	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$31,823,323	CurrentTaxYearMinus1YearAmt
Current Tax Year	$31,063,702	CurrentTaxYearAmt
Total	$159,263,859	TotalAmt

Field	Value	IRS element (for citing)
Substantial Contributors Tot	$29,887,457	SubstantialContributorsTotAmt
Public Support Total170	$129,376,402	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$4,394,213	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$4,142,169	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$3,519,873	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$5,031,481	CurrentTaxYearMinus1YearAmt
Current Tax Year	$4,698,648	CurrentTaxYearAmt
Total	$21,786,384	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$130,714	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,099,664	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$919,337	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$891,321	CurrentTaxYearMinus1YearAmt
Current Tax Year	$604,925	CurrentTaxYearAmt
Total	$3,645,961	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$184,696,204	TotalSupportAmt
Gross Receipts Rltd Activities	$4,255,050	GrossReceiptsRltdActivitiesAmt
Public Support CY170	0.70050	PublicSupportCY170Pct
Public Support PY170	0.63210	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	FormAndLineReferenceDesc
Explanation	FFB RD FUND SERVICE FEES - 2020 AMOUNT: $ 30,500. FUNDRAISING EVENTS - 2020 AMOUNT: $ 100,200. 2021 AMOUNT: $ 349,599. 2022 AMOUNT: $ 919,261. 2023 AMOUNT: $ 891,321. 2024 AMOUNT: $ 604,925. SETTLEMENT INCOME - 2021 AMOUNT: $ 750,000. MISCELLANEOUS - 2020 AMOUNT: $ 14. 2021 AMOUNT: $ 65. 2022 AMOUNT: $ 76.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$240,000	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$240,000	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$40,280,383	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$40,520,383	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$3,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$4,500,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus2	$260,000	CurrentYearMinus2Amt
Current Year Minus1	$240,000	CurrentYearMinus1Amt
Current Year	$240,000	CurrentYearAmt
Total	$740,000	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$750,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,125,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$4,593,101	BeginningYearBalanceAmt
Investment Earnings Or Losses	$622,389	InvestmentEarningsOrLossesAmt
End Year Balance	$5,215,490	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$4,033,188	BeginningYearBalanceAmt
Investment Earnings Or Losses	$559,913	InvestmentEarningsOrLossesAmt
End Year Balance	$4,593,101	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$3,634,618	BeginningYearBalanceAmt
Investment Earnings Or Losses	$398,570	InvestmentEarningsOrLossesAmt
End Year Balance	$4,033,188	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$4,200,522	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$565,904	InvestmentEarningsOrLossesAmt
End Year Balance	$3,634,618	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$3,422,374	BeginningYearBalanceAmt
Investment Earnings Or Losses	$939,020	InvestmentEarningsOrLossesAmt
Grants Or Scholarships	$145,067	GrantsOrScholarshipsAmt
Administrative Expenses	$15,805	AdministrativeExpensesAmt
End Year Balance	$4,200,522	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	1.00000	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$504,643	OtherCostOrOtherBasisAmt
Depreciation	$414,879	DepreciationAmt
Book Value	$89,764	BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$3,616,930	OtherCostOrOtherBasisAmt
Depreciation	$3,106,126	DepreciationAmt
Book Value	$510,804	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$600,568	TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDesc	Book ValueBookValueAmt
BENEFICIAL INTERESTS IN REMAINDER TRUSTS	$8,381,381
CHARITABLE GIFT ANNUITY	$738,741

Field	Value	IRS element (for citing)
Total Book Value Other Assets	$9,120,122	TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
DUE TO RELATED PARTY	$4,881,016
CHARITABLE GIFT ANNUITY OBLIGATION	$495,813

Field	Value	IRS element (for citing)
Total Liability	$5,376,829	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$40,711,236	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$4,163,847	NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts	$88,803	DonatedServicesAndUseFcltsAmt
Revenue Not Reported	$4,252,650	RevenueNotReportedAmt
Revenue Subtotal	$36,458,586	RevenueSubtotalAmt
Investment Expenses Not Incld	$156,583	InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt	$156,583	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$36,615,169	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$49,452,909	TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts	$88,803	DonatedServicesUseFcltsAmt
Other Expenses Included	-$11,693	OtherExpensesIncludedAmt
Expenses Not Reported	$77,110	ExpensesNotReportedAmt
Expenses Subtotal	$49,375,799	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$156,583	InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt	$156,583	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$49,532,382	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART V, LINE 4:	EARNINGS CAN BE USED FOR OPERATIONS; PRINCIPAL IS DONOR RESTRICTED.
PART X, LINE 2:	THE ORGANIZATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE CONSOLIDATED FINANCIAL STATEMENTS. UNDER THIS POLICY, THE ORGANIZATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE ORGANIZATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE CONSOLIDATED FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	REFUND OF PREVIOUSLY EXPENDED GRANTS -11,693.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Region Total ExpendituresRegionTotalExpendituresAmt	Specific Services ProvidedSpecificServicesProvidedTxt
EUROPE (INCLUDING ICELAND & GREENLAND)	GRANTMAKING	$2,583,044
MIDDLE EAST AND NORTH AFRICA	GRANTMAKING	$501,880
NORTH AMERICA	GRANTMAKING	$488,531
EUROPE (INCLUDING ICELAND & GREENLAND)	PROGRAM SERVICES	$38,737	TRAVEL

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$3,612,192	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$3,612,192	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (13 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$594,737	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$563,080	WIRE	$0
MIDDLE EAST AND NORTH AFRICA	RESEARCH GRANT	$501,880	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$446,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$300,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$229,309	WIRE	$0
NORTH AMERICA	RESEARCH GRANT	$220,650	WIRE	$0
NORTH AMERICA	RESEARCH GRANT	$192,881	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$188,553	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$99,850	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$98,440	WIRE	$0
NORTH AMERICA	RESEARCH GRANT	$75,000	WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND)	RESEARCH GRANT	$63,075	WIRE	$0

Field	Value	IRS element (for citing)
Total501c3 Org	13	Total501c3OrgCnt
Total Other Org	0	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE F, PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS.	ExplanationTxt

Schedule G IRS990ScheduleG

Field	Value	IRS element (for citing)
Mail Solicitations	Yes (X)	MailSolicitationsInd
Email Solicitations	Yes (X)	EmailSolicitationsInd
Phone Solicitations	Yes (X)	PhoneSolicitationsInd
In Person Solicitations	Yes (X)	InPersonSolicitationsInd
Solicitation Of Non Govt Grants	Yes (X)	SolicitationOfNonGovtGrantsInd
Solicitation Of Govt Grants	Yes (X)	SolicitationOfGovtGrantsInd
Special Fundraising Events	Yes (X)	SpecialFundraisingEventsInd
Agrmt Prof Fundraising Acty	Yes (1)	AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	ActivityActivityTxt	Fundraiser Control Of FundsFundraiserControlOfFundsInd	Gross ReceiptsGrossReceiptsAmt	Retained By ContractorRetainedByContractorAmt	Net To OrganizationNetToOrganizationAmt
FUSE FUNDRAISING GROUP LLC
12355 SUNRISE VALLEY DRIVE SUITE 2	RESTON	VA	20191	FUNDRAISING COUNSEL	0	$1,074,000	$457,304	$616,696
COMMUNITY COUNSELING SERVICE LLC
527 MADISON AVE 5TH FL	NEW YORK	NY	10022	FUNDRAISING CAMPAIGN COUNSEL	0	$0	$275,001	-$275,001

Field	Value	IRS element (for citing)
Total Gross Receipts	$1,074,000	TotalGrossReceiptsAmt
Total Retained By Contractors	$732,305	TotalRetainedByContractorsAmt
Total Net To Organization	$341,695	TotalNetToOrganizationAmt
Licensed States	AL	LicensedStatesCd
Licensed States	AK	LicensedStatesCd
Licensed States	AZ	LicensedStatesCd
Licensed States	AR	LicensedStatesCd
Licensed States	CA	LicensedStatesCd
Licensed States	CO	LicensedStatesCd
Licensed States	CT	LicensedStatesCd
Licensed States	DE	LicensedStatesCd
Licensed States	FL	LicensedStatesCd
Licensed States	GA	LicensedStatesCd
Licensed States	HI	LicensedStatesCd
Licensed States	ID	LicensedStatesCd
Licensed States	IL	LicensedStatesCd
Licensed States	IN	LicensedStatesCd
Licensed States	IA	LicensedStatesCd
Licensed States	KS	LicensedStatesCd
Licensed States	KY	LicensedStatesCd
Licensed States	LA	LicensedStatesCd
Licensed States	ME	LicensedStatesCd
Licensed States	MD	LicensedStatesCd
Licensed States	MA	LicensedStatesCd
Licensed States	MI	LicensedStatesCd
Licensed States	MN	LicensedStatesCd
Licensed States	MS	LicensedStatesCd
Licensed States	MO	LicensedStatesCd
Licensed States	MT	LicensedStatesCd
Licensed States	NE	LicensedStatesCd
Licensed States	NV	LicensedStatesCd
Licensed States	NH	LicensedStatesCd
Licensed States	NJ	LicensedStatesCd
Licensed States	NM	LicensedStatesCd
Licensed States	NY	LicensedStatesCd
Licensed States	NC	LicensedStatesCd
Licensed States	ND	LicensedStatesCd
Licensed States	OH	LicensedStatesCd
Licensed States	OK	LicensedStatesCd
Licensed States	OR	LicensedStatesCd
Licensed States	PA	LicensedStatesCd
Licensed States	RI	LicensedStatesCd
Licensed States	SC	LicensedStatesCd
Licensed States	SD	LicensedStatesCd
Licensed States	TN	LicensedStatesCd
Licensed States	TX	LicensedStatesCd
Licensed States	UT	LicensedStatesCd
Licensed States	VT	LicensedStatesCd
Licensed States	VA	LicensedStatesCd
Licensed States	WA	LicensedStatesCd
Licensed States	WV	LicensedStatesCd
Licensed States	WI	LicensedStatesCd
Licensed States	WY	LicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	NIGHT SIGHT NY	Event1Nm
Gross Receipts Event1	$483,177	GrossReceiptsEvent1Amt
Charitable Contri Event1	$358,977	CharitableContriEvent1Amt
Gross Revenue Event1	$124,200	GrossRevenueEvent1Amt
Rent Facility Costs Event1	$138,432	RentFacilityCostsEvent1Amt
Entertainment Event1	$10,500	EntertainmentEvent1Amt
Other Direct Expenses Event1	$5,683	OtherDirectExpensesEvent1Amt
Event2	GIFT OF VISION	Event2Nm
Gross Receipts Event2	$410,703	GrossReceiptsEvent2Amt
Charitable Contri Event2	$373,803	CharitableContriEvent2Amt
Gross Revenue Event2	$36,900	GrossRevenueEvent2Amt
Rent Facility Costs Event2	$3,742	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$32,006	FoodAndBeverageEvent2Amt
Entertainment Event2	$7,395	EntertainmentEvent2Amt
Other Direct Expenses Event2	$42,957	OtherDirectExpensesEvent2Amt
Other Events Total	48	OtherEventsTotalCnt
Gross Receipts Other Events	$5,965,582	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$5,521,757	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$443,825	GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events	$425,029	RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events	$148,128	FoodAndBeverageOtherEventsAmt
Entertainment Other Events	$7,030	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$223,670	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$6,859,462	GrossReceiptsTotalAmt
Charitable Contributions Tot	$6,254,537	CharitableContributionsTotAmt
Gross Revenue Total Events	$604,925	GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events	$567,203	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$180,134	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$24,925	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$272,310	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$1,044,572	DirectExpenseSummaryEventsAmt
Net Income Summary	-$439,647	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (38 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUE	CLEVELAND	OH	44106	341018992	501(C)(3)	$500,000	$0	RESEARCH
COLUMBIA UNIVERSITY
635 WEST 165TH STREET	NEW YORK	NY	10032	135598093	501(C)(3)	$200,000	$0	RESEARCH
DUKE UNIVERSITY MEDICAL CENTER
2200 W MAINE STREET	DURHAM	NC	27705	560532129	501(C)(3)	$900,000	$0	RESEARCH
FORDHAM UNIVERITY
441 FORDHAM ROAD	BRONX	NY	10458	131740451	501(C)(3)	$539,141	$0	RESEARCH
FOUNDATION FIGHTING BLINDNESS RD FUND
6925 OAKLAND MILLS ROAD 701	COLUMBIA	MD	21045	450524687	501(C)(3)	$8,771,404	$0	RESEARCH
FOUNDATION FOR THE NIH
11400 ROCKVILLE PIKE SUITE 600	NORTH BETHESDA	MD	20852	521986675	501(C)(3)	$25,000	$0	RESEARCH
HARVARD MEDICAL SCHOOL
220 LONGWOOD AVENUE	BOSTON	MA	02114	042103580	501(C)(3)	$402,223	$0	RESEARCH
INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	47405	356001673	501(C)(3)	$169,257	$0	RESEARCH
JOHNS HOPKINS UNIVERSITY
600 NORTH WOLFE STREET	BALTIMORE	MD	21287	520595110	501(C)(3)	$166,454	$0	RESEARCH
MASSACHUSETTS EYE AND EAR INFIRMARY
243 CHARLES STREET	BOSTON	MA	02114	042103591	501(C)(3)	$396,667	$0	RESEARCH
MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROAD	MILWAUKEE	WI	53226	390806261	501(C)(3)	$100,000	$0	RESEARCH
MICHIGAN STATE UNIVERSITY
736 WILSON ROAD D208	EAST LANSING	MI	48823	386005984	501(C)(3)	$267,406	$0	RESEARCH
MITOCHEM THERAPEUTICS INC
17C FRANKLIN STREET	CHARLESTON	SC	29401	453845208		$300,000	$0	RESEARCH
NEW YORK STEM CELL FOUNDATION
619WEST 54TH STREET 3RD FLOOR	NEW YORK	NY	10019	202905531	501(C)(3)	$296,150	$0	RESEARCH
OAKLAND UNIVERSITY
371 WILSON BLVD	ROCHESTER	MI	48309	381714400	501(C)(3)	$140,255	$0	RESEARCH
ODYLIA THERAPEUTICS
1447 PEACHTREE STREET NE	ATLANTA	GA	30309	822120760	501(C)(3)	$631,039	$0	RESEARCH
OHIO STATE UNIVERSITY
1960 KENNY ROAD	COLUMBUS	OH	43210	316025986	501(C)(3)	$75,000	$0	RESEARCH
OREGON HEALTH AND SCIENCE UNIVERSITY
3375 TERWILLIGER BOULEVARD SW	PORTLAND	OR	97201	237083114	501(C)(3)	$460,869	$0	RESEARCH
RETINA FOUNDATION OF THE SOUTHWEST
9600 N CENTRAL EXPRESSWAY SUITE 200	DALLAS	TX	75231	510151514	501(C)(3)	$100,000	$0	RESEARCH
TUFTS UNIVERSITY
136 HARRISON AVENUE	BOSTON	MA	02155	042103634	501(C)(3)	$199,999	$0	RESEARCH
UNIV ALABAMA AT BIRMINGHAM
1670 UNIVERSITY BLVD	BIRMINGHAM	AL	35293	636005396	501(C)(3)	$100,000	$0	RESEARCH
UNIVERSITY HOSPITALS
UH GRANTS DEPT 781686 PO BOX 78000	DETROIT	MI	48278	341567805	501(C)(3)	$178,641	$0	RESEARCH
UNIVERSITY OF CALIFORNIA DAVIS HEALTH
944 GARROD DRIVE	DAVIS	CA	95616	464117124	501(C)(3)	$200,000	$0	RESEARCH
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE	LA JOLLA	CA	92037	956006144	501(C)(3)	$75,000	$0	RESEARCH
UNIVERSITY OF CALIFORNIA IRVINE
228 ALDRICH HALL	IRVINE	CA	92697	952226406	501(C)(3)	$914,667	$0	RESEARCH
UNIVERSITY OF CALIFORNIA SANTA BARBARA
3102 SAASB ROAD	SANTA BARBARA	CA	93106	956006145	501(C)(3)	$300,000	$0	RESEARCH
UNIVERSITY OF DELAWARE
590 AVENUE 1743	NEWARK	DE	19716	911955015	501(C)(3)	$100,000	$0	RESEARCH
UNIVERSITY OF FLORIDA
PO BOX 100284	GAINESVILLE	FL	32610	592729133	501(C)(3)	$24,565	$0	RESEARCH
UNIVERSITY OF HOUSTON
3517 CULLEN BLVD	HOUSTON	TX	77204	746001399	501(C)(3)	$160,400	$0	RESEARCH
UNIVERSITY OF ILLINOIS-CHICAGO
1855 WEST TAYLOR STREET	CHICAGO	IL	60612	376000511	501(C)(3)	$75,000	$0	RESEARCH
UNIVERSITY OF MICHIGAN
733 KELLOGG EYE CENTER 1000 WALL	ANN ARBOR	MI	48105	386006309	501(C)(3)	$250,000	$0	RESEARCH	STREET
UNIVERSITY OF MISSOURI
920 EAST CAMPUS LAN S105C ASRC	COLUMBIA	MO	65211	436003859	501(C)(3)	$119,955	$0	RESEARCH
UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE
120 MASON FARM ROAD	CHAPEL HILL	NC	27599	566001393	501(C)(3)	$50,000	$0	RESEARCH
UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	232810852	501(C)(3)	$1,398,985	$0	RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE	PITTSBURGH	PA	15213	250965591	501(C)(3)	$375,000	$0	RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON
7000 FANNIN UCT 1000	HOUSTON	TX	77030	741761309	501(C)(3)	$24,998	$0	RESEARCH
UNIVERSITY OF WASHINGTON
1100 45TH ST NE	SEATTLE	WA	98105	943079432	501(C)(3)	$474,235	$0	RESEARCH
UNIVERSITY OF WISCONSIN
21 NORTH PARK STREET	MADISON	WI	53715	390743975	501(C)(3)	$200,000	$0	RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	37	Total501c3OrgCnt
Total Other Org	1	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Idemnification Gross Up Pmts	Yes (X)	IdemnificationGrossUpPmtsInd
Written Policy Ref T And E Expnss	Yes (1)	WrittenPolicyRefTAndEExpnssInd
Substantiation Required	Yes (1)	SubstantiationRequiredInd
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Form990 Of Other Organizations	Yes (X)	Form990OfOtherOrganizationsInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	Yes (1)	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	Yes (1)	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	Yes (1)	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (14 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
JASON D MENZO
CEO	$352,711	$88,178	$78,580	$19,645	$73,270	$18,317	$28,430	$7,107	$46,155	$11,539	$579,145	$144,786	$0	$0
PETER L GINSBERG
COO	$263,793	$65,948	$35,664	$8,916	$64,569	$16,142	$27,635	$6,909	$40,614	$10,153	$432,274	$108,068	$0	$0
RUSSELL W KELLEY
MANAGING DIRECTOR, RD FUND	$0	$326,079	$0	$42,765	$0	$78,456	$0	$32,428	$0	$53,566	$0	$533,294	$0	$0
TODD A DURHAM
SVP CLINICAL & OUTCOMES RESEARCH	$248,037	$0	$22,742	$0	$53,400	$0	$27,692	$0	$52,569	$0	$404,439	$0	$0	$0
JEFFREY D KLAAS
CHIEF OF STRATEGY AND INNOVATION	$319,177	$0	$25,205	$0	$552	$0	$29,681	$0	$3,834	$0	$378,450	$0	$0	$0
CLAIRE M GELFMAN
FORMER CSO (THRU 6/24)	$197,419	$0	$47,837	$0	$96,587	$0	$5,399	$0	$25,778	$0	$373,020	$0	$0	$0
RICHELE DONAT
CHIEF HUMAN RESOURCES OFFICER	$241,332	$0	$36,336	$0	$47,032	$0	$24,982	$0	$20,281	$0	$369,964	$0	$0	$0
JUDY TAYLOR
SVP/CHIEF DEVELOPMENT OFFICER	$225,276	$0	$19,713	$0	$45,848	$0	$21,949	$0	$52,351	$0	$365,136	$0	$0	$0
AMY M PALMER LASTER
CHIEF SCIENTIFIC OFFICER	$220,154	$0	$19,052	$0	$42,416	$0	$22,422	$0	$4,640	$0	$308,683	$0	$0	$0
CHRISTOPHER S ADAMS
VP, COMMUNICATIONS & MARKETING	$180,257	$0	$17,047	$0	$40,110	$0	$9,013	$0	$55,221	$0	$301,648	$0	$0	$0
MICHELE DIVINCENZO
VP, SCIENTIFIC & ED. CONFERENCES	$183,567	$0	$16,865	$0	$39,355	$0	$21,313	$0	$39,657	$0	$300,758	$0	$0	$0
JEFFRY COLLINS
VP, DATABASE SYSTEMS & TECHNOLOGY	$178,394	$0	$16,316	$0	$39,427	$0	$20,656	$0	$33,224	$0	$288,016	$0	$0	$0
ANNA WAGNER
VP, FINANCE	$192,892	$0	$15,982	$0	$30,823	$0	$19,034	$0	$3,077	$0	$261,808	$0	$0	$0
CHAD R JACKSON - SR DIR
PRE-CLINICAL TRANSITIONAL PROG.	$183,086	$0	$24,318	$0	$161	$0	$11,064	$0	$6,375	$0	$225,004	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 1A	SPOT BONUSES FOR EXTRAORDINARY WORK MIGHT BE PROVIDED TO EMPLOYEES AND ARE GROSSED UP. THESE SPOT BONUSES AND GROSS UPS ARE INCLUDED IN TAXABLE COMPENSATION.
PART I, LINES 4A-B	SCHEDULE J, PART I, LINE 4A: SEVERANCE PAYMENT IN CALENDAR YEAR 2024, CLAIRE GELFMAN RECEIVED A SEVERANCE PAYMENT OF $20,000 WHICH IS REPORTED AS TAXABLE INCOME ON SCHEDULE J, PART II, COLUMN (B)(III). SCHEDULE J, PART I, LINE 4B: SUPPLEMENTAL NONQUALIFIED RETIREMENT PLAN FFB OFFERS A LONG-TERM INCENTIVE PLAN (LTIP) TO CERTAIN MEMBERS OF THE EXECUTIVE MANAGEMENT TEAM. THE PLAN OPERATES ON A THREE-YEAR CYCLE WHEREIN INCENTIVE PAYMENTS ARE ACCRUED ANNUALLY BASED UPON ACHIEVEMENT OF PERFORMANCE OBJECTIVES AND PAID OUT AT THE END OF THE THREE-YEAR PERIOD. THE LAST CYCLE COVERED FISCAL YEARS 2022, 2023, AND 2024, AND WAS PAID OUT IN THE FALL OF 2024. SUBSEQUENTLY, THE FOLLOWING AMOUNTS ARE INCLUDED AS TAXABLE COMPENSATION IN SCHEDULE J, PART II, COLUMN (B)(III): - JASON D. MENZO: $91,227 - PETER L. GINSBERG: $79,679 - CLAIRE M. GELFMAN: $75,729 - AMY M. PALMER LASTER: $41,945 - RUSSELL W. KELLEY: $77,904 - TODD A. DURHAM: $52,848 - RICHELE DONAT: $46,038 - JUDY TAYLOR: $44,388 - CHRISTOPHER S. ADAMS: $39,717 - MICHELE DIVINCENZO: $38,625 - JEFFRY COLLINS: $38,358 - ANNA WAGNER: $30,670 A NEW LTIP THREE-YEAR CYCLE COMMENCED JULY 1, 2024, AND WILL COVER FISCAL YEARS 2025, 2026, AND 2027. THE FOLLOWING AMOUNTS WERE ACCRUED IN CALENDAR YEAR 2024 AND ARE THEREFORE INCLUDED AS DEFERRED COMPENSATION IN SCHEDULE J, PART II, COLUMN (C): - JASON D. MENZO: $15,531 - PETER L. GINSBERG: $11,589 - AMY M. PALMER LASTER: $7,956 - RUSSELL W. KELLEY: $11,367 - JEFFREY D. KLAAS: $10,707 - TODD A. DURHAM: $8,704 - RICHELE DONAT: $8,265 - JUDY TAYLOR: $7,848 - CHRISTOPHER S. ADAMS: $6,521 - MICHELE DIVINCENZO: $6,485 - JEFFRY COLLINS: $6,264 - ANNA WAGNER: $6,526
PART I, LINE 7	FFB EMPLOYEES PARTICIPATE IN AN ANNUAL INCENTIVE PLAN (AIP). THE PLAN PROVIDES AN ANNUAL CASH BONUS, DEPENDING UPON THE ACHIEVEMENT OF PRE-DETERMINED ORGANIZATION AND INDIVIDUAL PERFORMANCE CRITERIA. CERTAIN SENIOR LEADERSHIP EMPLOYEES PARTICIPATE IN A LONG-TERM INCENTIVE PLAN (LTIP), WHICH PROVIDES A CASH BONUS EVERY THREE YEARS. ELIGIBILITY FOR THE BONUS IS CONTINGENT UPON CONTINUED EMPLOYMENT AND THE ATTAINMENT OF SPECIFIC ORGANIZATIONAL PERFORMANCE GOALS ESTABLISHED IN ADVANCE. BOTH AIP AND LTIP PAYMENTS ARE APPROVED BY THE EXECUTIVE COMMITTEE.

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	45	ContributionCnt
Noncash Contributions Rpt F990	$657,342	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FAIR MARKET VALUE	MethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Desc	EVENT ITEMS	Desc
Contribution	631	ContributionCnt
Noncash Contributions Rpt F990	$188,936	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FAIR MARKET VALUE	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	Yes (1)	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, COLUMN (B):	FormAndLineReferenceDesc
Explanation	THE NUMBER IN THIS COLUMN FOR LINE 9 REPRESENTS THE NUMBER OF CONTRIBUTIONS OF STOCK.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (14 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART I, LINE 1, ORGANIZATION'S MISSION OR SIGNIFICANT ACTIVITIES:	THE URGENT MISSION OF THE FOUNDATION FIGHTING BLINDNESS IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, AGE-RELATED MACULAR DEGENERATION, USHER SYNDROME AND THE ENTIRE SPECTRUM OF RETINAL DEGENERATIVE DISEASES. THE FOUNDATION IS A BEACON FOR THOSE AFFECTED BY THESE BLINDING DISEASES.
FORM 990, PART III, LINE 4A	RESEARCH: THE FOUNDATION FIGHTING BLINDNESS, INC. (THE FOUNDATION) FUNDED RESEARCHERS ARE ACHIEVING REMARKABLE SUCCESS IN DISCOVERING, TESTING, AND DELIVERING TO PATIENTS A WIDE RANGE OF PROMISING THERAPIES TO PREVENT, STOP THE PROGRESSION OF, AND CURE BLINDING DISEASES DUE TO RETINAL DEGENERATIVE DISEASES. THE FOUNDATION HAS ENCUMBRANCES OF OVER $36 MILLION, NOT INCLUDED ON OUR JUNE 30 FINANCIAL REPORT, FOR ACTIVE RESEARCH PROJECTS THAT HAVE FUTURE RESEARCH MILESTONES. OUR SCIENCE COMMITTEE'S SPENDING PLAN INCLUDES SPENDING AT AN AVERAGE OF $28 MILLION ANNUALLY TO SUPPORT FUTURE RESEARCH. AS OF THE END OF OUR FISCAL YEAR 2025, THE FOUNDATION'S RESEARCH GRANTS PROGRAM IS FUNDING 104 GRANTS BEING CONDUCTED BY MORE THAN 133 INVESTIGATORS AT 92 INSTITUTIONS, EYE HOSPITALS, AND UNIVERSITIES IN THE U.S. AND AROUND THE WORLD. A SAMPLING OF THE RESEARCH PROJECTS FUNDED ARE LISTED BELOW: "DEFINING THE UNDERLYING CAUSES OF RETINAL DEGENERATION IN CRB1 DISEASE." JEREMY KAY, DUKE UNIVERSITY DR. KAY AND HIS TEAM HYPOTHESIZE THAT LOSS OF CELL-CELL CONNECTIONS IN THE OUTER RETINA UNDERLIES RP-LIKE ASPECTS OF CRB1-ASSOCIATED DISEASE, WHILE LOSS OF JUNCTIONS BETWEEN EMBRYONIC PROGENITORS UNDERLIES LCA-LIKE ASPECTS. DR. KAY'S TEAM WILL USE MULTIPLE MODELS TO IDENTIFY PRIMARY SITE(S) OF DAMAGE CAUSED BY CRB1 DYSFUNCTION, AND EXPLORE STRATEGIES TO FIX THE DAMAGE. THEY WILL ALSO WORK TO DETERMINE WHETHER THESE CELLULAR FEATURES CAN BE IMAGED IN ANIMALS AND IN PATIENTS AND BE USED AS AN ENDPOINT IN FUTURE CLINICAL TRIALS. "DEVELOPMENT OF A NEW GENE THERAPY FOR AUTOSOMAL DOMINANT RETINITIS PIGMENTOSA" DENISE MONTELL, UNIVERSITY OF CALIFORNIA, SANTA BARBARA DR. MONTELL IS PIONEERING A GENE THERAPY APPROACH TO COMBAT RETINITIS PIGMENTOSA (RP), SPECIFICALLY THE AUTOSOMAL DOMINANT FORM CAUSED BY MISFOLDED RHODOPSIN PROTEIN. BY PROMOTING THE DEGRADATION OF MISFOLDED RHODOPSIN, THROUGH OVEREXPRESSION OF THE ZIP7 GENE, DR. MONTELL AIMS TO SLOW RETINAL DEGENERATION. ADDITIONALLY, OVEREXPRESSING THE ZIP7 GENEA ZINC TRANSPORTER PROTEINMAY RELIEVE CELLULAR STRESS AND PREVENT PHOTORECEPTOR CELL DEATH IN VARIOUS MODELS OF AUTOSOMAL DOMINANT RP. "CHARACTERIZATION AND MITIGATION OF AAV-INDUCED OCULAR INFLAMMATION" WILLIAM BELTRAN, UNIVERSITY OF PENNSYLVANIA DR. BELTRAN AND HIS TEAM ARE WORKING TO IMPROVE THE SAFETY OF GENE THERAPIES THAT USE VIRAL VECTORS TO DELIVER THE THERAPEUTIC GENE TO RETINAL CELLS. AS MORE IRD GENE THERAPIES MOVE FROM THE PRECLINICAL STAGE IN ANIMAL MODELS TO CLINICAL TRIALS, THERE IS AN INCREASING RECOGNITION OF THE NEED TO BETTER UNDERSTAND GENE THERAPY-ASSOCIATED UVEITIS (INFLAMMATION). THIS INFLAMMATORY RESPONSE CAN IMPEDE THE THERAPY'S PERFORMANCE AND CAN CAUSE RETINAL DAMAGE.
PART III, LINE 4B PROGRAM SERVICE ACCOMPLISHMENTS:	PUBLIC HEALTH EDUCATION: DURING FY25, THE FOUNDATION CONTINUED TO PROVIDE EDUCATION AND SUPPORT TO PEOPLE AFFECTED BY RETINAL DEGENERATIVE DISEASES. THE FOUNDATION ALSO FIELDS A TEAM OF PROFESSIONALS FOCUSED ON EDUCATING OPHTHALMOLOGISTS AND OPTOMETRISTS ON THE LATEST ADVANCEMENTS WITH THE FOUNDATION'S RESOURCES AND RESEARCH ON THE INHERITED RETINAL DISEASE SPACE. TO KEEP OUR CONSTITUENTS AND PROFESSIONALS INFORMED, THE FOUNDATION PUBLISHES EXTENSIVE CONTENT VIA THE WEBSITE AND SOCIAL MEDIA/EMAIL CHANNELS; DISTRIBUTES A NEWSLETTER ONLINE AND IN PRINT; PRODUCES AND SHARES EDUCATIONAL PODCASTS WITH LEADING EXPERTS IN THE SPACE; HOSTS VIRTUAL AND IN-PERSON EDUCATIONAL AND NETWORKING SEMINARS; AND HOLDS QUARTERLY INSIGHTS FORUM CALLS TO INFORM THE COMMUNITY ABOUT SCIENTIFIC PROGRESS. THE CONTENT INCLUDES THE LATEST DEVELOPMENTS IN RESEARCH AND CLINICAL TRIALS, AS WELL AS PERSONAL STORIES FROM MEMBERS OF OUR COMMUNITY. ADDITIONALLY, THE FOUNDATION HOSTS REGIONAL FORUM PRESENTATIONS THAT PROVIDE TIMELY CONTENT TO EYE CARE PROFESSIONALS. CHAPTERS BRING THE FOUNDATION'S MESSAGE AND MISSION TO LIFE. IN FY25, THE FOUNDATION SUPPORTED OVER 47 VOLUNTEER-LED CHAPTERS IN 23 STATES IN THE US AND ONE CHAPTER IN LONDON, UK. OUR CHAPTERS HOST VISION CONNECTION, AN ENRICHING AND SUPPORTIVE GATHERING FOR THE BLIND AND LOW-VISION COMMUNITY. EACH SESSION COVERS EDUCATIONAL PRESENTATIONS, COMMUNITY ENGAGEMENT, FUNDRAISING, AND INTERACTIVE Q&A SESSIONS.
PART III, LINE 4C PROGRAM SERVICE ACCOMPLISHMENTS:	MY RETINA TRACKER REGISTRY: THE FOUNDATION MAINTAINS A RESEARCH DATABASE OF PEOPLE AND FAMILIES AFFECTED BY RARE INHERITED RETINAL DEGENERATIVE DISEASES. THE REGISTRY IS DESIGNED TO SHARE DE-IDENTIFIED INFORMATION ABOUT PEOPLE WITH AN INHERITED RETINAL DISEASE WITHIN THE IRD RESEARCH AND CLINICAL COMMUNITIES TO HELP ACCELERATE THE DISCOVERY OF TREATMENTS AND CURES. DURING FISCAL YEAR 2025, APPROXIMATELY 8,000 ADDITIONAL MEMBERS WERE ADDED TO THE REGISTRY, BRINGING THE TOTAL NUMBER OF REGISTERED INDIVIDUALS TO APPROXIMATELY 43,000.
FORM 990, PART VI, SECTION A, LINE 2	JONATHAN STEINBERG AND JOSHUA STEINBERG HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION A, LINE 4	IN MARCH 2025, FFB AMENDED ITS BYLAWS TO ALIGN WITH THE CURRENT STRUCTURE AND OPERATING PRACTICES. NOTABLE CHANGES INCLUDE A REDUCTION IN THE NUMBER OF STANDING COMMITTEES, THE CREATION OF THE EXECUTIVE VICE CHAIR POSITION, REMOVAL OF THE PRESIDENT AS AN ELECTED OFFICER, AND THE INTRODUCTION OF TERM LIMITS.
FORM 990, PART VI, SECTION A, LINE 6	MEMBERS OF FFB ARE KNOWN AS NATIONAL TRUSTEES. THE QUALIFICATIONS AND ELIGIBILITY FOR MEMBERSHIP AND THE MANNER OF ADMISSION INTO MEMBERSHIP IS PRESCRIBED BY RESOLUTION OF THE BOARD OF DIRECTORS. THE NATIONAL TRUSTEES ARE ENTITLED TO VOTE ON ELECTION OF DIRECTORS.
FORM 990, PART VI, SECTION A, LINE 7A	DURING THE ANNUAL MEETING OF THE NATIONAL TRUSTEES, MEMBERS OF THE BOARD OF DIRECTORS ARE ELECTED.
FORM 990, PART VI, SECTION B, LINE 11B	DATA TO PREPARE THE FEDERAL FORM 990 IS PROVIDED TO OUR OUTSIDE ACCOUNTING FIRM FOR PREPARATION AND GUIDANCE. AFTER IT HAS BEEN COMPLETED, A DRAFT OF THE FEDERAL FORM 990 IS REVIEWED BY THE VP, FINANCE AND CHIEF OPERATING OFFICER. WITH THE COO'S APPROVAL, THE DRAFT FEDERAL FORM 990 IS THEN MADE AVAILABLE TO ALL BOARD MEMBERS. ALL BOARD MEMBERS ARE INVITED TO ATTEND A SPECIAL MEETING OF THE FINANCE COMMITTEE TO REVIEW THE FEDERAL FORM 990. A FINAL DRAFT IS MADE AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING.
FORM 990, PART VI, SECTION B, LINE 12C	IN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST, AN INTERESTED PERSON (INCLUDING OFFICERS, DIRECTORS, AND KEY EMPLOYEES) MUST DISCLOSE, IN WRITING PRIOR TO ANY DISCUSSION OR VOTE UPON A PROPOSAL, THE EXISTENCE AND NATURE OF HIS OR HER PERSONAL INTEREST TO THE CHAIR OF THE BOARD AND CHAIR OF THE BOARD COMMITTEE CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER DISCLOSURE OF THE FINANCIAL OR NON-FINANCIAL INTEREST AND ALL MATERIAL FACTS, THE INTERESTED PERSON SHALL LEAVE THE BOARD OR COMMITTEE MEETING WHILE THE FINANCIAL OR NON-FINANCIAL INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS, AND IF SO, WHETHER THERE IS A COMPELLING REASON TO RECOMMEND TO THE BOARD THAT THE CONFLICT OF INTEREST POLICY BE OVERRIDDEN. A QUORUM IS NEEDED FOR VOTING AND THE VOTE TO OVERRIDE SHALL BE BY MAJORITY AND DULY NOTED IN THE MINUTES.
FORM 990, PART VI, SECTION B, LINE 15	THE EXECUTIVE COMMITTEE (COMPRISED OF INDEPENDENT PERSONS) AND THE BOARD OF DIRECTORS APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER. THE EXECUTIVE COMMITTEE APPROVES THE COMPENSATION OF THE OTHER CHIEF OFFICERS. ON A ROUTINE BASIS, EXTERNAL DATA PROVIDED BY OUTSIDE EXPERT COMPENSATION CONSULTANTS IS USED TO MEASURE REASONABLENESS OF SALARIES TO THE MARKET PLACE AND RESULTS ARE COMMUNICATED BY OUTSIDE CONSULTANTS TO THE BOARD CHAIR/COMPENSATION COMMITTEE. DECISIONS MADE BY THE COMMITTEE ARE CONTEMPORANEOUSLY DOCUMENTED.
FORM 990, PART VI, SECTION C, LINE 19	FFB'S FEDERAL FORM 990 AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE AVAILABLE AT WWW.FIGHTBLINDNESS.ORG. OTHER PUBLIC DOCUMENTS INCLUDING THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST THROUGH THE CONTACT INFORMATION DISCLOSED ON FFB'S WEB SITE. THESE DOCUMENTS ARE AVAILABLE FOR THE SAME PERIOD OF DISCLOSURE AS SET FORTH IN SECTION 6104(D).
FORM 990, PART VII, SECTION A:	FFB ACTS AS THE COMMON PAYMASTER FOR THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND, A RELATED ORGANIZATION. BOARD MEMBERS WERE NOT COMPENSATED FOR THEIR SERVICE ON THE BOARD, WITH THE EXCEPTION OF THE CHAIR OF THE RD FUND BOARD, WHO WAS COMPENSATED IN ACCORDANCE WITH THE RD FUND BOARD'S APPROVED COMPENSATION POLICY.
FORM 990, PART XI, LINE 9:	REFUND OF PREVIOUSLY EXPENDED GRANTS 11,693.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (3 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	EINEIN	Primary ActivitiesPrimaryActivitiesTxt	Legal Domicile StateLegalDomicileStateCd	Exempt Code SectionExemptCodeSectionTxt	Public Charity StatusPublicCharityStatusTxt	Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt	Controlled OrganizationControlledOrganizationInd
FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND
6925 OAKLAND MILLS ROAD 701	COLUMBIA	MD	21045	450524687	FUNDS RESEARCH AND CLINICAL TRIALS TO FIND TREATMENTS FOR RETINAL	DE	501(C)(3)	LINE 12A, I	FOUNDATION FIGHTING BLINDNESS INC	Yes (1)
MACULAR DEGENERATION INTERNATIONAL INC
6925 OAKLAND MILLS ROAD 701	COLUMBIA	MD	21045	363923922	FUNDRAISING	IL	501(C)(3)	LINE 7	FOUNDATION FIGHTING BLINDNESS INC	Yes (1)
NATIONAL RETINITIS PIGMENTOSA FOUNDATION INC
6925 OAKLAND MILLS ROAD 701	COLUMBIA	MD	21045	522072391	FUNDRAISING	MD	501(C)(3)	LINE 12A, I	FOUNDATION FIGHTING BLINDNESS INC	Yes (1)

Field	Value	IRS element (for citing)
Receipt Of Int Annts Rnts Rylts	0	ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth Org	Yes (1)	GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org	0	GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org	0	LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org	0	LoansOrGuaranteesFromOthOrgInd
Div Related Organization	0	DivRelatedOrganizationInd
Asset Sale To Other Org	0	AssetSaleToOtherOrgInd
Asset Purchase From Other Org	0	AssetPurchaseFromOtherOrgInd
Asset Exchange	0	AssetExchangeInd
Rental Of Facilities To Oth Org	0	RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org	0	RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org	0	PerformOfServicesForOthOrgInd
Perform Of Services By Other Org	0	PerformOfServicesByOtherOrgInd
Sharing Of Facilities	0	SharingOfFacilitiesInd
Paid Employees Sharing	Yes (1)	PaidEmployeesSharingInd
Reimbursement Paid To Other Org	0	ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org	0	ReimbursementPaidByOtherOrgInd
Transfer To Other Org	0	TransferToOtherOrgInd
Transfer From Other Org	0	TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (2 entries)

Transaction TypeTransactionTypeTxt	InvolvedInvolvedAmt	Method Of Amount DeterminationMethodOfAmountDeterminationTxt
FOUNDATION FIGHTING BLINDNESS RD FUND
B	$8,771,404	FAIR MARKET VALUE
FOUNDATION FIGHTING BLINDNESS RD FUND
O	$1,164,027	FAIR MARKET VALUE

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART II, IDENTIFICATION OF RELATED TAX-EXEMPT ORGANIZATIONS:	FormAndLineReferenceDesc
Explanation	NAME OF RELATED ORGANIZATION: FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND PRIMARY ACTIVITY: FUNDS RESEARCH AND CLINICAL TRIALS TO FIND TREATMENTS FOR RETINAL DISEASES	ExplanationTxt