FANCONI CANCER FOUNDATION: Form 990, tax year 2018

View the entire original 990 at ProPublica ↗

Organization
FANCONI CANCER FOUNDATION (EIN 93-0995453)
Tax period
2018-01-01 to 2018-12-31
Filed
2019-11-06
IRS object ID
201913109349302376
Schema version
2018v3.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2019-11-06T17:08:54-06:00ReturnTs
Tax Period End2018-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN911663574PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1LARSON GROSS PLLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line12211 RIMLAND DR STE 422AddressLine1Txt
CityBELLINGHAMCityNm
State AbbreviationWAStateAbbreviationCd
ZIP98226ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2018-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN930995453EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FANCONI ANEMIA RESEARCH FUND INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlFANCBusinessNameControlTxt
Phone5416874658PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11801 WILLAMETTE STREET NO 200AddressLine1Txt
CityEUGENECityNm
State AbbreviationORStateAbbreviationCd
ZIP97401ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMARK PEARLPersonNm
Person TitlePRESIDENTPersonTitleTxt
Phone5416874658PhoneNum
Signature2019-11-06SignatureDt

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonKEATON WERSEN-CPAPreparerPersonNm
PTINP01957642PTIN
Phone3607344280PhoneNum

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address69.7.45.162IPv4AddressTxt
FieldValueIRS element (for citing)
IP2019-11-06IPDt
IP Tm15:08:23IPTm
IP TimezonePSIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device Id1DB086E85E88E90A8E92E8D93107A317A4F5BEEFAtSubmissionCreationDeviceId
At Submission Filing Device Id1EAB4B1ED96A08C9B433A1F6FBB7BE15E6841313AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2018TaxYr
Build TS2020-03-31 21:24:44ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerMARK PEARLPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line11801 WILLAMETTE STREET NO 200AddressLine1Txt
CityEUGENECityNm
State AbbreviationORStateAbbreviationCd
ZIP97401ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$2,784,743GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.FANCONI.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1989FormationYr
Legal Domicile StateORLegalDomicileStateCd
Activity Or MissionTO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent12VotingMembersIndependentCnt
Total Employee11TotalEmployeeCnt
Total Volunteers50TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$3,262,131PYContributionsGrantsAmt
CY Contributions Grants$2,638,623CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$122,924PYInvestmentIncomeAmt
CY Investment Income$142,793CYInvestmentIncomeAmt
PY Other Revenue$80,872PYOtherRevenueAmt
CY Other Revenue$3,327CYOtherRevenueAmt
PY Total Revenue$3,465,927PYTotalRevenueAmt
CY Total Revenue$2,784,743CYTotalRevenueAmt
PY Grants And Similar Paid$0PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,944,039CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$0PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$725,887CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$296,253CYTotalFundraisingExpenseAmt
PY Other Expenses$0PYOtherExpensesAmt
CY Other Expenses$989,617CYOtherExpensesAmt
PY Total Expenses$0PYTotalExpensesAmt
CY Total Expenses$3,659,543CYTotalExpensesAmt
PY Revenues Less Expenses$3,465,927PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$874,800CYRevenuesLessExpensesAmt
Total Assets BOY$7,712,637TotalAssetsBOYAmt
Total Assets EOY$6,843,919TotalAssetsEOYAmt
Total Liabilities BOY$1,132,939TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,391,661TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$6,579,698NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$5,452,258NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO AFFECTED FAMILIES WORLDWIDE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$2,616,051ExpenseAmt
Grant$1,897,607GrantAmt
DescRESEARCH - SINCE FARF WAS FOUNDED IN 1989, WE HAVE SUPPORTED MORE THAN $24 MILLION IN RESEARCH, SUPPORTING MORE THAN 230 RESEARCH GRANTS AT MORE THAN 74 CENTERS WORLDWIDE. EVERY YEAR WE HOST A SCIENTIFIC SYMPOSIUM, GATHERING OVER 200 FANCONI ANEMIA (FA) SCIENTISTS, RESEARCHERS, AND DOCTORS FROM AROUND THE WORLD TO PRESENT RESULTS FROM THEIR RESEARCH AND TO COLLABORATE WITH OTHERS IN THE FIELD. IN ADDITION, WE HOLD SMALL WORKSHOPS ON AREAS OF SPECIFIC INTEREST, SUCH AS HEAD AND NECK SQUAMOUS CELL CARCINOMA, IDENTIFICATION OF NEW DRUSG TO TREAT PATIENTS, AND GENE THERAPY. IN 2019, WE LAUNCHED A CLINICAL REGISTRY TO SUPPORT REASEARCH AND EXPEDITE NEW TREATMENTS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$290,073ExpenseAmt
Grant$46,432GrantAmt
DescFAMILY SUPPORT AND EDUCATION SERVICES - CURRENTLY, THERE ARE NEARLY 1,000 FAMILIES WORLDWIDE THAT ARE REGISTERED WITH OUR ORGANIZATION AND AN UNDETERMINED NUMBER OF NEWLY DIAGNOSED PATIENTS. WHEN FACED WITH THIS FEVESTATING DIAGNOSIS, THEY LOOK TO FARF FOR SUPPORT. WE PRODUCE INFORMATIONAL PUBLICATIONS, INCLUDING OUR HANDBOOK "GUIDELINES FOR DIAGNOSIS AND MANAGEMENT", A FAMILY DIRECTORY, AND A RESOURCE GUIDE LISING ALL TREATMENT CENTERS AND DOCTORS WHO WORK FOR FA. WE ALSO ORGANIZE A WEEK-LONG CAMP FOR FAMILIES AFFECTED BY FA, WHERE WE BRING SCIENTISTS AND CLINICIANS TO PRESENT THE LASTEST RESEARCH AND TREATMENT DISCOVERIES. WE INCLUDE SUPPORT GROUPS FOR PARENTS AND PATIENTS, RECREATIONAL ACTIVITIES FOR CHILDREN, AND GIVE FAMILY MEMBERS AN OPPORTUNITY TO PARTICIPATE IN VARIOUS RESEARCH PROJECTS. IN ADDITION, WE HOLD AN ANNUAL FA ADULT MEETING IN AN EFFORT TO MEET THE SPECIAL NEEDS OF OUR GROWING ADULT POPULATION. FOR BOTH EVENTS, WE OFFER TRAVEL SCHOLARSHIPS FOR ATTENDEES.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$2,906,124TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying Activities0LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Temp Or Permanent Endowments0TempOrPermanentEndowmentsInd
Report Land Building Equipment0ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other Liabilities0ReportOtherLiabilitiesInd
Include FIN48 Footnote0IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J Required0ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With Officer Ent0BusinessRlnWithOfficerEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document11IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee11EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo Contributions0QuidProQuoContributionsInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member12IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE ORGANIZATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone5416874658PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line11801 WILLAMETTE STREET NO 200AddressLine1Txt
CityEUGENECityNm
State AbbreviationORStateAbbreviationCd
ZIP97401ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (13 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
MARK PEARL
PRESIDENT5.00Yes (X)Yes (X)$0$0$0
ANDRE' HESSELS
VICE PRESIDENT5.00Yes (X)Yes (X)$0$0$0
SHARON SCHUMAN
SECRETARY5.00Yes (X)Yes (X)$0$0$0
ORION MARX
TREASURER5.00Yes (X)Yes (X)$0$0$0
LYNN FROHNMAYER
FOUNDER5.00Yes (X)$0$0$0
NANCY GOLDEN
BOARD MEMBER1.00Yes (X)$0$0$0
BILL MCCOREY
BOARD MEMBER1.00Yes (X)$0$0$0
RACHEL ALTMANN
BOARD MEMBER1.00Yes (X)$0$0$0
STELLA DAVIES
BOARD MEMBER1.00Yes (X)$0$0$0
AILEEN CARLOS
BOARD MEMBER1.00Yes (X)$0$0$0
JOHN CONNELLY
BOARD MEMBER1.00Yes (X)$0$0$0
LISA MINGO
BOARD MEMBER1.00Yes (X)$0$0$0
MARK QUINLAN
EXECUTIVE DIRECTOR40.00Yes (X)$108,639$0$2,000
FieldValueIRS element (for citing)
Total Reportable Comp From Org$108,639TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$2,000TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K0TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
All Other Contributions$2,638,623AllOtherContributionsAmt
Noncash Contributions$11,368NoncashContributionsAmt
Total Contributions$2,638,623TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$142,793TotalRevenueColumnAmt
Exclusion$142,793ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescOTHER INCOMEDesc
Business900099BusinessCd
Total Revenue Column$3,327TotalRevenueColumnAmt
Exclusion$3,327ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$3,327OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,784,743TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$146,120ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,637,678TotalAmt
Program Services$1,637,678ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$53,480TotalAmt
Program Services$53,480ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$252,881TotalAmt
Program Services$252,881ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$110,639TotalAmt
Program Services$54,692ProgramServicesAmt
Management And General$35,515ManagementAndGeneralAmt
Fundraising$20,432FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$479,264TotalAmt
Program Services$236,935ProgramServicesAmt
Management And General$153,817ManagementAndGeneralAmt
Fundraising$88,512FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$12,637TotalAmt
Program Services$6,217ProgramServicesAmt
Management And General$4,097ManagementAndGeneralAmt
Fundraising$2,323FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$66,957TotalAmt
Program Services$31,334ProgramServicesAmt
Management And General$22,629ManagementAndGeneralAmt
Fundraising$12,994FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$56,390TotalAmt
Program Services$27,738ProgramServicesAmt
Management And General$18,282ManagementAndGeneralAmt
Fundraising$10,370FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$3,308TotalAmt
Program Services$3,308ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$16,750TotalAmt
Management And General$16,750ManagementAndGeneralAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$32,273TotalAmt
Management And General$32,273ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$8,528TotalAmt
Program Services$3,447ProgramServicesAmt
Management And General$4,799ManagementAndGeneralAmt
Fundraising$282FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$97,428TotalAmt
Program Services$30,801ProgramServicesAmt
Management And General$42,605ManagementAndGeneralAmt
Fundraising$24,022FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$18,353TotalAmt
Program Services$3,490ProgramServicesAmt
Management And General$14,843ManagementAndGeneralAmt
Fundraising$20FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$40,844TotalAmt
Management And General$40,844ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$579,459TotalAmt
Program Services$470,560ProgramServicesAmt
Management And General$38,909ManagementAndGeneralAmt
Fundraising$69,990FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
COMMUNICATION$71,615$69,943$888$784
RECRUITMENT$32,339$5,832$2,603$23,904
EQUIPMENT$26,192$5,037$15,504$5,651
SUPPLIES$19,028$3,274$10,850$4,904

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$43,500TotalAmt
Program Services$9,477ProgramServicesAmt
Management And General$1,958ManagementAndGeneralAmt
Fundraising$32,065FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,659,543TotalAmt
Program Services$2,906,124ProgramServicesAmt
Management And General$457,166ManagementAndGeneralAmt
Fundraising$296,253FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$140BOYAmt
EOY$105EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,017,890BOYAmt
EOY$2,947,264EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$2,422BOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$3,810,565EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$6,692,185BOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$85,985EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$7,712,637BOYAmt
EOY$6,843,919EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$19,480BOYAmt
EOY$43,301EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$1,113,459BOYAmt
EOY$1,348,360EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,132,939BOYAmt
EOY$1,391,661EOYAmt
FieldValueIRS element (for citing)
Organization Follows SFAS117Yes (X)OrganizationFollowsSFAS117Ind

Unrestricted Net Assets UnrestrictedNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,816,176BOYAmt
EOY$4,082,514EOYAmt

Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,763,522BOYAmt
EOY$1,369,744EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$6,579,698BOYAmt
EOY$5,452,258EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$7,712,637BOYAmt
EOY$6,843,919EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$874,800ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$252,640NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,719,329CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,378,398CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,096,737CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,262,131CurrentTaxYearMinus1YearAmt
Current Tax Year$2,638,623CurrentTaxYearAmt
Total$14,095,218TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,719,329CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,378,398CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$3,096,737CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,262,131CurrentTaxYearMinus1YearAmt
Current Tax Year$2,638,623CurrentTaxYearAmt
Total$14,095,218TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$4,086,488SubstantialContributorsTotAmt
Public Support Total170$10,008,730PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$35,113CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,693CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$82,382CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$122,924CurrentTaxYearMinus1YearAmt
Current Tax Year$142,793CurrentTaxYearAmt
Total$388,905TotalAmt
FieldValueIRS element (for citing)
Total Support$14,484,123TotalSupportAmt
Gross Receipts Rltd Activities$80,872GrossReceiptsRltdActivitiesAmt
Public Support CY1700.69100PublicSupportCY170Pct
Public Support PY1700.74030PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Total Book Value Land Buildings$0TotalBookValueLandBuildingsAmt
Total Rev Etc Audited Fincl Stmt$2,499,831TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$252,640NetUnrealizedGainsInvstAmt
Other Revenue-$32,272OtherRevenueAmt
Revenue Not Reported-$284,912RevenueNotReportedAmt
Revenue Subtotal$2,784,743RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$2,784,743TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,627,271TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$3,627,271ExpensesSubtotalAmt
Other Expenses Not Included$32,272OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$32,272ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,659,543TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART XI, LINE 2D - OTHER ADJUSTMENTS:INVESTMENT MANAGEMENT FEES -32,272.
PART XII, LINE 4B - OTHER ADJUSTMENTS:INVESTMENT MANAGEMENT FEES 32,272.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$0SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$0TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EUROPE (INCLUDING ICELAND & GREENLAND)FANCONI ANEMIA RESEARCH$10,000CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)FANCONI ANEMIA RESEARCH$182,081CHECK
EUROPE (INCLUDING ICELAND & GREENLAND)FANCONI ANEMIA RESEARCH$60,800CHECK
FieldValueIRS element (for citing)
Total501c3 Org3Total501c3OrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (10 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxt
CHILDRENS HOSPITAL CORPORATION
300 LONGWOOD AVEBOSTONMA02115042774441501(C)3$686,848CLINICAL TRIAL RESEARCH GRANT
CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVECINCINNATIOH45229310833936501(C)3$85,000RESEARCH GRANT
FRED HUTCHINSON CANCER RESEARCH CENTER
PO BOX 19024SEATTLEWA98109237156071501(C)3$175,000REASEARCH GRANT
OREGON HEALTH AND SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RDPORTLANDOR97239931176109170(C)1$10,046CONTRACTED PROJECT
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY
3145 PORTER DRIVEPALO ALTOCA94304941156365501(C)3$180,000RESEARCH GRANT
THE REGENTS OF THE UNIVESITY OF CALIFORNIA
2195 HEARST AVE ROOM 130BERKELEYCA94720946002123501(C)3$60,800RESEARCH GRANT
ROCKEFELLER UNIVERSITY
1230 YORK AVENUENEW YORKNY10065131624158501(C)3$120,000RESEARCH GRANT
UNIVERSITY OF WASHINGTON
1959 NE PACIFIC STSEATTLEWA98195916001537501(C)3$174,984RESEARCH GRANT
YALE UNIVERSITY
25 SCIENCE PARK 150 MUNSON STNEW HAVENCT06520060646973501(C)3$125,000RESEARCH GRANT
CAMP SUNSHINE AT SEBAGO LAKE INC
35 ACADIA ROADCASCOME04015222582877501(C)3$20,000PROGRAM SUPPORT
FieldValueIRS element (for citing)
Total501c3 Org9Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (4 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmt
SYMPOSIUM SCHOLARSHIPS30$39,194
SYMPOSIUM AND SCIENCE AWARDS4$7,048
CLINICAL TRIAL SCHOLARSHIPS3$1,291
OTHER PROGRAM SCHOLARSHIPS4$5,947

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationTHE ORGANIZATION COMPILES A GRANT FILE FOR EACH GRANT RECIPIENT THAT HOUSES THE GRANT APPLICATION, REVIEWS CONDUCTED BY OUTSIDE REVIEWERS, THE PROPOSAL REVIEW COMMITTEE'S REPORT, A CV FOR ALL OF THOSE PARTICIPATING IN THE PROJECT, AND A SIGNED ACCEPTANCE OF AWARD. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS, FINANCIAL AND RESEARCH REPORTS ARE REQUIRED ON AN ANNUAL BASIS DURING THE LIFE OF THE GRANT AND REVIEWED BY THE EXECUTIVE DIRECTOR TO ENSURE FUNDS ARE BEING USED APPROPRIATELY IN ADDITION TO BEING REVIEWED BY THE PROPOSAL COMMITTEE AND THE BOARD.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BTHE FORM 990 WILL BE PREPARED FOR A BOARD MEETING DURING THE YEAR AT WHICH TIME A FINAL DRAFT VERSION WILL BE SHARED WITH THE BOARD AND APPROVED BY VOTE PRIOR TO SUBMITTING TO THE IRS.
FORM 990, PART VI, SECTION B, LINE 12CON AN ANNUAL BASIS, BOARD MEMBERS STATE ANY REAL OR POTENTIAL CONFLICTS OF INTEREST ON A CONFLICT OF INTEREST DISCLOSURE FORM.
FORM 990, PART VI, SECTION B, LINE 15EXECUTIVE DIRECTOR COMPENSATION IS SET BY THE BOARD PRESIDENT AFTER REVIEWING SELF-CONDUCTED MARKET RESEARCH. EMPLOYEE COMPENSATION IS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES, AS WELL AS A WAGE ANALYSIS REVIEW BY INDEPENDENT PERSONS WHICH IS THEN USED TO FORMULATE WAGES BY THE EXECUTIVE DIRECTOR AND APPROVED BY THE EXECUTIVE COMMITTEE BEFORE IMPLEMENTATION.
FORM 990, PART VI, SECTION C, LINE 19WHEN GOVERNING DOCUMENTS OR THE CONFLICT OF INTEREST POLICY ARE REQUESTED, A COPY IS MAILED TO THE REQUESTING PARTY. THE ANNUAL FORM 990 AND AUDIT REPORT ARE ON THE ORGANIZATION'S WEBSITE AND COPIES ARE ALSO ISSUED WHEN REQUESTED.

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