MYASTHENIA GRAVIS FOUNDATION OF AMERICA INC: Form 990, tax year 2019
View the entire original 990 at ProPublica ↗
- Organization
- MYASTHENIA GRAVIS FOUNDATION OF AMERICA INC (EIN 13-5672224)
- Tax period
- 2019-01-01 to 2019-12-31
- Filed
- 2020-11-13
- IRS object ID
- 202013189349306031
- Schema version
- 2019v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2020-11-13T14:52:24-06:00 | ReturnTs |
| Tax Period End | 2019-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 362658780 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MUELLER & CO LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1707 N RANDALL RD STE 200 | AddressLine1Txt |
| City | ELGIN | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60123 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2019-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 135672224 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MYASTHENIA GRAVIS FOUNDATION | BusinessNameLine1Txt |
| Business Name Line2 | OF AMERICA INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | MYAS | BusinessNameControlTxt |
| Phone | 8005415454 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 290 TURNPIKE RD NO 5-315 | AddressLine1Txt |
| City | WESTBOROUGH | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01581 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | WILLIAM SAUERWINE | PersonNm |
| Person Title | TREASURER | PersonTitleTxt |
| Phone | 8005415454 | PhoneNum |
| Signature | 2020-10-29 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | BETH ULBRICH | PreparerPersonNm |
| PTIN | P01439597 | PTIN |
| Phone | 8478888600 | PhoneNum |
| Preparation | 2020-10-27 | PreparationDt |
Filing Security Information FilingSecurityInformation
IP Address IPAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| I Pv4 Address | 74.115.53.5 | IPv4AddressTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IP | 2020-10-29 | IPDt |
| IP Tm | 06:17:04 | IPTm |
| IP Timezone | CD | IPTimezoneCd |
| Filing License Type | P | FilingLicenseTypeCd |
| At Submission Creation Device Id | DC14C5778D16AA68FBA7C56F6CA0FBC682DAB197 | AtSubmissionCreationDeviceId |
| At Submission Filing Device Id | 8D9FB055F4BB570AE0EEE57488131A31486402A7 | AtSubmissionFilingDeviceId |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2019 | TaxYr |
| Build TS | 2021-01-29 14:40:06Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Change | Yes (X) | AddressChangeInd |
| Principal Officer | SAMANTHA MASTERSON | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 290 TURNPIKE RD SUITE 5-315 | AddressLine1Txt |
| City | WESTBOROUGH | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01581 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $5,147,379 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.MYASTHENIA.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1952 | FormationYr |
| Legal Domicile State | NY | LegalDomicileStateCd |
| Activity Or Mission | COMMITTED TO FINDING A CURE FOR MYASTHENIA GRAVIS AND CLOSELY RELATED DISORDERS, IMPROVING TREATMENT OPTIONS, AND PROVIDING INFORMATION AND SUPPORT TO PEOPLE WITH MYASTHENIA GRAVIS THROUGH RESEARCH, EDUCATION, COMMUNITY PROGRAMS AND ADVOCACY. | ActivityOrMissionDesc |
| Voting Members Governing Body | 24 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 23 | VotingMembersIndependentCnt |
| Total Employee | 2 | TotalEmployeeCnt |
| Total Volunteers | 1700 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,047,582 | PYContributionsGrantsAmt |
| CY Contributions Grants | $2,058,119 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $216,224 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $140,777 | CYProgramServiceRevenueAmt |
| PY Investment Income | $469,599 | PYInvestmentIncomeAmt |
| CY Investment Income | $448,358 | CYInvestmentIncomeAmt |
| PY Other Revenue | -$147,948 | PYOtherRevenueAmt |
| CY Other Revenue | -$67,682 | CYOtherRevenueAmt |
| PY Total Revenue | $2,585,457 | PYTotalRevenueAmt |
| CY Total Revenue | $2,579,572 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $55,000 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $422,146 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $24,842 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $108,093 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $379,448 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $87,792 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $218,542 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,496,567 | PYOtherExpensesAmt |
| CY Other Expenses | $1,647,982 | CYOtherExpensesAmt |
| PY Total Expenses | $1,955,857 | PYTotalExpensesAmt |
| CY Total Expenses | $2,266,013 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $629,600 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $313,559 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $8,146,592 | TotalAssetsBOYAmt |
| Total Assets EOY | $9,512,374 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $807,663 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $971,734 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $7,338,929 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $8,540,640 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | COMMITTED TO FINDING A CURE FOR MYASTHENIA GRAVIS AND CLOSELY RELATED DISORDERS, IMPROVING TREATMENT OPTIONS, AND PROVIDING INFORMATION AND SUPPORT TO PEOPLE WITH MYASTHENIA GRAVIS THROUGH RESEARCH, EDUCATION, COMMUNITY PROGRAMS AND ADVOCACY. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $636,901 | ExpenseAmt |
| Grant | $422,146 | GrantAmt |
| Revenue | $106,360 | RevenueAmt |
| Desc | EVALUATING, FUNDING, AND DISSEMINATING CRITICAL RESEARCH: FUNDING OF HIGH IMPACT MG RESEARCH AT PROMINENT UNIVERSITIES AND MEDICAL INSTITUTIONS, INCLUDING LEVERAGING FUNDS IN COLLABORATION WITH THE AMERICAN BRAIN FOUNDATION TO BRING NEW SCIENTISTS TO MG RESEARCH THROUGH FELLOWSHIPS, AND FUNDING PILOT GRANTS AIMED AT LEADING TO LARGER STUDIES. MGFA MAINTAINS THE ONLY US MG PATIENT REGISTRY, WHICH HAS BEEN GROWN TO INCLUDE NEARLY 3,000 PARTICIPANTS. MGFA SPONSORS AN ANNUAL SCIENTIFIC SESSION IN CONJUNCTION WITH THE MEETING OF THE AANEM, ATTRACTING AS MANY AS 150 ATTENDEES. MGFA PROVIDES INFORMATION TO MEMBERS ABOUT RESEARCH INITIATIVES AND PROGRESS, AND SENDS E-BLASTS TO MORE THAN 20,000 PEOPLE WHEN THERE IS BREAKING NEWS. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $273,444 | ExpenseAmt |
| Desc | AWARENESS AND ADVOCACY: MGFA PROVIDES OVER 20 EDUCATIONAL BROCHURES ON TOPICS IMPORTANT TO PEOPLE LIVING WITH MG, FREE OF CHARGE TO PATIENTS AND THE PUBLIC. IN ADDITION, MGFA PROVIDES MANUALS AND INFORMATION FOR HEALTH CARE PROFESSIONALS. THE MGFA CONDUCTS AN ANNUAL AWARENESS CAMPAIGN, CENTERED ON JUNE AS THE MG AWARENESS MONTH, REACHING OUT TO PEOPLE THROUGH OUR SUPPORT GROUPS, AN AWARENESS TOOLKIT FOR ALL WHO ARE INTERESTED IN RAISING AWARENESS OF MG IN THEIR COMMUNITIES, PRESS RELEASES, POSTERS AND PROMOTION IN SOCIAL MEDIA. THE MG WALK ALSO SERVES AS A VEHICLE TO GROW AWARENESS AND LINK PATIENTS AND FAMILIES IN MORE THAN 35 COMMUNITIES NATIONWIDE. MGFA MAINTAINS AN EXTENSIVE WEBSITE WITH EDUCATIONAL CONTENT AND NEWS AS WELL AS FACEBOOK PAGE TO PROMOTE AWARENESS AND THE ORGANIZATION'S EDUCATIONAL MISSION. ANNUALLY, A PATIENT EDUCATION CONFERENCE IS PRODUCED IN VARIOUS LOCALES AROUND THE U.S. WITH A FULL PROGRAM OF SPEAKERS, WORKSHOPS AND EXHIBITORS OVER 2 DAYS. THE FOCUS ON MG NEWSLETTER COVERS PATIENT STORIES, ORGANIZATIONAL ACTIVITIES, COMMUNITY AND SUPPORT GROUP ACTIVITIES, AND RESEARCH UPDATES AND IS SENT TO 25,000 PLUS PEOPLE TWICE A YEAR. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $539,815 | ExpenseAmt |
| Desc | INFORMATION, EDUCATION, AND SUPPORT: MGFA PROVIDES MATERIAL, INFORMATION AND REFERRAL, AND EDUCATION AND SUPPORT PROGRAMS TO HELP PEOPLE MANAGE THE CHALLENGES OF LIVING WITH MYASTHENIA GRAVIS. MGFA IS A UNIFIED ORGANIZATION THAT SUPPORTS THE DELIVERY OF PROGRAMS AND SERVICE THROUGH CENTRAL MANAGEMENT OF A NETWORK OF APPROXIMATELY 100 COMMUNITY GROUPS NATIONWIDE. MANUALS, TOOLS, ORIENTATION, NETWORKING AND TRAINING SESSIONS FOR GROUP LEADERS ARE FACILITATED BY THE HOME OFFICE. A DATABASE OF MEMBERS IS MAINTAINED, WITH A NEW TOOL IMPLEMENTED TO ALLOW FOR BETTER IDENTIFICATION OF MEMBERS AND THEIR NEEDS. THE FOUNDATION MAINTAINS A WEB RESOURCE JUST FOR COMMUNITY AND SUPPORT GROUP LEADERS. FOUNDATION STAFF RESPOND DAILY TO TELEPHONE AND EMAIL INQUIRIES FOR THOSE SEEKING INFORMATION ABOUT MG AND CONNECTION TO COMMUNITY RESOURCES. EDUCATIONAL WEBINARS ARE PROVIDED SEVERAL TIMES A YEAR. MGFA HAS A HIGHLY ENGAGED MEDICAL AND SCIENTIFIC ADVISORY BOARD AND NURSES ADVISORY BOARD, POPULATED BY TOP MG EXPERTS WHO SUPPORT THE ORGANIZATION THROUGH REVIEW OF ALL MATERIALS AND INFORMATION OF A MEDICAL NATURE, AND WHO SERVE AS SPEAKERS AND SPOKESPERSONS FOR MGFA AS NEEDED. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $188,952 | ExpenseAmt |
| Revenue | $34,417 | RevenueAmt |
| Desc | MGFA REACHES OUT TO THE MG COMMUNITY THROUGH SOCIAL MEDIA VEHICLES SUCH AS FACEBOOK AND TWITTER WHEN THERE IS BREAKING NEWS. THE ORGANIZATION HAS ALSO DEVELOPED TOOLS AND STRATEGIES TO HELP WITH HEALTH INSURANCE DENIALS FOR MG TREATMENTS AND THERAPIES, AND THROUGH AN ADVOCACY COMMITTEE, PARTNERSHIP WITH OTHER ORGANIZATIONS AND A GRASSROOTS NETWORK, SUPPORTS LEGISLATION AND ISSUES IMPORTANT TO THE MG COMMUNITY. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $188,952 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Revenue | $34,417 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $1,639,112 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | 0 | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (1) | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | 0 | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 6 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 2 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 24 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 23 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (1) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | Yes (1) | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MUELLER & CO LLP | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 8478888600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1707 N RANDALL RD SUITE 200 | AddressLine1Txt |
| City | ELGIN | CityNm |
| State Abbreviation | IL | StateAbbreviationCd |
| ZIP | 60123 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (26 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd |
|---|---|---|---|---|---|---|
| ALLAN WEISS MD | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| CHARLENE HAFER-MACKO MD | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| DENISE ROSSI | ||||||
| TREASURER | 8.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| EDWARD T WALSH | ||||||
| CHAIRPERSON | 20.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| JEFFREY PILGRIM | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| JENNIFER FAUCETT COTE JD | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| JURGEN VENITZ MD PHD | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| ROBERT L RUFF MD PHD | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| SUSAN KLINGER | ||||||
| VICE CHAIR | 8.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| SUZANNE RUFF PHD | ||||||
| SECRETARY | 4.00 | Yes (X) | $0 | $0 | $0 | |
| TOMMY SANTORA | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| MICHAEL LIFSHITZ | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| CELIA MEYER RN | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| KATHERINE RUZHANSKY MD | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| PHIL COGAN | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| DARIN CONSELYEA | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| KIM ELDRIDGE | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| LINDA KUSNER PHD | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| MICHAEL URSIC | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| ANNETTE ZAMPELLI | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| BRIAN GLADDEN | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| JEFFREY GUPTILL | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| SUSIE JOHNSON | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| PAUL STRUMPH | ||||||
| DIRECTOR | 4.00 | Yes (X) | $0 | $0 | $0 | |
| NANCY LAW | ||||||
| CHIEF EXECUTIVE | 40.00 | $0 | $0 | $0 | Yes (X) | |
| BETH ULBRICH | ||||||
| CHIEF FINANCIAL OFFICER | 8.00 | $0 | $0 | $0 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $0 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 0 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | 0 | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (4 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| KELLEN COMPANY | |||||
| 355 LEXINGTON AVE 15TH FLOOR | NEW YORK | NY | 10017 | PROGRAM STAFFING | $301,769 |
| NANCY LAW CONSULTING LLC | |||||
| 46587 INDIAN BRUSH CT | PARKER | CO | 80138 | CHIEF EXECUTIVE | $157,612 |
| MUELLER & CO LLP | |||||
| 1707 N RANDALL RD SUITE 200 | ELGIN | IL | 60123 | FINANCIAL MANAGEMENT | $146,435 |
| EVENT360 | |||||
| 55 EAST JACKSON BLVD SUITE 1010 | CHICAGO | IL | 60604 | AWARENESS AND FUNDRAISING EVENTS | $140,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 4 | CntrctRcvdGreaterThan100KCnt |
| Fundraising | $863,362 | FundraisingAmt |
| All Other Contributions | $1,194,757 | AllOtherContributionsAmt |
| Total Contributions | $2,058,119 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt |
|---|---|---|---|
| RESEARCH STUDIES | 900099 | $106,360 | $106,360 |
| CONFERENCE REGISTRATIONS | 900099 | $34,417 | $34,417 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $140,777 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $246,775 | TotalRevenueColumnAmt |
| Exclusion | $246,775 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,505,130 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,303,547 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $201,583 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $201,583 | TotalRevenueColumnAmt |
| Exclusion | $201,583 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $159,919 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $863,362 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $264,260 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$104,341 | TotalRevenueColumnAmt |
| Exclusion | -$104,341 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $90 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $0 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $90 | TotalRevenueColumnAmt |
| Exclusion | $90 | ExclusionAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | OTHER INCOME | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $36,569 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $36,569 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $36,569 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,579,572 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $177,346 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $344,107 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $422,146 | TotalAmt |
| Program Services | $422,146 | ProgramServicesAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $100,412 | TotalAmt |
| Program Services | $68,412 | ProgramServicesAmt |
| Fundraising | $32,000 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,681 | TotalAmt |
| Program Services | $5,233 | ProgramServicesAmt |
| Fundraising | $2,448 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $561,662 | TotalAmt |
| Program Services | $528,370 | ProgramServicesAmt |
| Management And General | $16,646 | ManagementAndGeneralAmt |
| Fundraising | $16,646 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $166,202 | TotalAmt |
| Management And General | $166,202 | ManagementAndGeneralAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $87,792 | TotalAmt |
| Fundraising | $87,792 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $72,223 | TotalAmt |
| Management And General | $72,223 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $116,461 | TotalAmt |
| Program Services | $71,412 | ProgramServicesAmt |
| Management And General | $45,049 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $49,810 | TotalAmt |
| Program Services | $12,749 | ProgramServicesAmt |
| Management And General | $32,210 | ManagementAndGeneralAmt |
| Fundraising | $4,851 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $19,533 | TotalAmt |
| Program Services | $8,612 | ProgramServicesAmt |
| Management And General | $1,240 | ManagementAndGeneralAmt |
| Fundraising | $9,681 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $47,088 | TotalAmt |
| Program Services | $25,555 | ProgramServicesAmt |
| Management And General | $13,615 | ManagementAndGeneralAmt |
| Fundraising | $7,918 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $211,687 | TotalAmt |
| Program Services | $197,995 | ProgramServicesAmt |
| Management And General | $13,692 | ManagementAndGeneralAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,678 | TotalAmt |
| Program Services | $17,427 | ProgramServicesAmt |
| Management And General | $2,264 | ManagementAndGeneralAmt |
| Fundraising | $1,987 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $18,618 | TotalAmt |
| Management And General | $18,618 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| PRINT, E-BROCHURES AND | $192,421 | $128,292 | $11,237 | $52,892 |
| CONTRACTED RESEARCH SER | $87,802 | $87,802 | $0 | $0 |
| LOCAL PROGRAMMING | $62,760 | $58,474 | $4,286 | $0 |
| REGISTRATIONS & OTHER | $20,037 | $6,633 | $11,077 | $2,327 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,266,013 | TotalAmt |
| Program Services | $1,639,112 | ProgramServicesAmt |
| Management And General | $408,359 | ManagementAndGeneralAmt |
| Fundraising | $218,542 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $467,082 | TotalAmt |
| Program Services | $287,201 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $179,881 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,474,480 | BOYAmt |
| EOY | $519,578 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $137,475 | BOYAmt |
| EOY | $19,603 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $44,669 | BOYAmt |
| EOY | $40,616 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $264,744 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $208,826 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $77,596 | BOYAmt |
| EOY | $55,918 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,412,372 | BOYAmt |
| EOY | $8,876,659 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,146,592 | BOYAmt |
| EOY | $9,512,374 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $610,403 | BOYAmt |
| EOY | $552,421 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $167,500 | BOYAmt |
| EOY | $418,313 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $29,760 | BOYAmt |
| EOY | $1,000 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $807,663 | BOYAmt |
| EOY | $971,734 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,360,048 | BOYAmt |
| EOY | $3,012,607 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,978,881 | BOYAmt |
| EOY | $5,528,033 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $7,338,929 | BOYAmt |
| EOY | $8,540,640 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,146,592 | BOYAmt |
| EOY | $9,512,374 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $313,559 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $888,152 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,419,717 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,671,377 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,521,521 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,047,581 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,058,119 | CurrentTaxYearAmt |
| Total | $9,718,315 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,419,717 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $2,671,377 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,521,521 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,047,581 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,058,119 | CurrentTaxYearAmt |
| Total | $9,718,315 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $519,186 | SubstantialContributorsTotAmt |
| Public Support Total170 | $9,199,129 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $179,423 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $160,262 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $179,463 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $214,653 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $246,775 | CurrentTaxYearAmt |
| Total | $980,576 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,692 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,514 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,513 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,657 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $90 | CurrentTaxYearAmt |
| Total | $6,466 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $10,705,357 | TotalSupportAmt |
| Public Support CY170 | 0.85930 | PublicSupportCY170Pct |
| Public Support PY170 | 0.84890 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,185,183 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $943,667 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $219,753 | GrantsOrScholarshipsAmt |
| End Year Balance | $4,909,097 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,846,974 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$443,477 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $218,314 | GrantsOrScholarshipsAmt |
| End Year Balance | $4,185,183 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,244,669 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $816,522 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $214,217 | GrantsOrScholarshipsAmt |
| End Year Balance | $4,846,974 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,098,295 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $368,874 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $222,500 | GrantsOrScholarshipsAmt |
| End Year Balance | $4,244,669 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,612,685 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | -$278,447 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $235,943 | GrantsOrScholarshipsAmt |
| End Year Balance | $4,098,295 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 0.78110 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.21890 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $1,382 | OtherCostOrOtherBasisAmt |
| Depreciation | $1,060 | DepreciationAmt |
| Book Value | $322 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $263,362 | OtherCostOrOtherBasisAmt |
| Depreciation | $207,766 | DepreciationAmt |
| Book Value | $55,596 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $55,918 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $3,579,652 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $888,152 | NetUnrealizedGainsInvstAmt |
| Other Revenue | $111,928 | OtherRevenueAmt |
| Revenue Not Reported | $1,000,080 | RevenueNotReportedAmt |
| Revenue Subtotal | $2,579,572 | RevenueSubtotalAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $2,579,572 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $2,377,941 | TotExpnsEtcAuditedFinclStmtAmt |
| Other Expenses Included | $111,928 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $111,928 | ExpensesNotReportedAmt |
| Expenses Subtotal | $2,266,013 | ExpensesSubtotalAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $2,266,013 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (5 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | TO PROVIDE MEDICAL RESEARCH TO FIND A CURE FOR MYASTHENIA GRAVIS. |
| PART X, LINE 2: | THE FOUNDATION HAS BEEN DETERMINED TO BE EXEMPT FROM INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AS A PUBLICLY SUPPORTED NOT-FOR-PROFIT VOLUNTARY HEALTH AGENCY, AND ACCORDINGLY, NO PROVISION HAS BEEN MADE FOR EITHER FEDERAL OR STATE INCOME TAXES. IN ADDITION, THE FOUNDATION HAD BEEN DETERMINED BY THE INTERNAL REVENUE SERVICE NOT TO BE A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 501(C)(3) OF THE CODE. THE FOUNDATION HAS EVALUATED ITS TAX POSITIONS TAKEN FOR ALL OPEN TAX YEARS. CURRENTLY, THE 2016, 2017, AND 2018 TAX YEARS ARE OPEN AND SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE; HOWEVER, THE FOUNDATION IS NOT CURRENTLY UNDER AUDIT NOR HAS THE FOUNDATION BEEN CONTACTED BY ANY OF THESE JURISDICTIONS. BASED ON THE EVALUATION OF THE FOUNDATION'S TAX POSITIONS, MANAGEMENT BELIEVES ALL POSITIONS TAKEN WOULD BE UPHELD UNDER AN EXAMINATION; THEREFORE, NO PROVISION FOR THE EFFECTS OF UNCERTAIN TAX POSITIONS HAS BEEN RECORDED FOR THE YEARS ENDED DECEMBER 31, 2019 AND 2018. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | DIRECT FUNDRAISING EVENT EXPENSES 184,151. INVESTMENT MANAGEMENT FEES -72,223. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | DIRECT FUNDRAISING EVENT EXPENSES 184,151. INVESTMENT MANAGEMENT FEES -72,223. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | ROUNDING |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | ActivityActivityTxt | Fundraiser Control Of FundsFundraiserControlOfFundsInd | Gross ReceiptsGrossReceiptsAmt | Retained By ContractorRetainedByContractorAmt | Net To OrganizationNetToOrganizationAmt |
|---|---|---|---|---|---|---|---|---|
| EVENT360 | ||||||||
| 55 EAST JACKSON BLVD STE 1010 | CHICAGO | IL | 60604 | AWARENESS AND FUNDRAISING EVENTS | 0 | $863,362 | $44,800 | $818,562 |
| BETTY ROSS | ||||||||
| 6390 POWELL RD | PARKER | CO | 80134 | DEVELOPMENT | 0 | $0 | $42,992 | -$42,992 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $863,362 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $87,792 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $775,570 | TotalNetToOrganizationAmt |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | DE | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | ID | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | IN | LicensedStatesCd |
| Licensed States | IA | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | LA | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | MO | LicensedStatesCd |
| Licensed States | MT | LicensedStatesCd |
| Licensed States | NE | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | SD | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | TX | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WY | LicensedStatesCd |
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | MG WALK | Event1Nm |
| Gross Receipts Event1 | $863,362 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $863,362 | CharitableContriEvent1Amt |
| Other Direct Expenses Event1 | $184,151 | OtherDirectExpensesEvent1Amt |
| Event2 | GOLF OUTING | Event2Nm |
| Gross Receipts Event2 | $159,919 | GrossReceiptsEvent2Amt |
| Gross Revenue Event2 | $159,919 | GrossRevenueEvent2Amt |
| Rent Facility Costs Event2 | $80,109 | RentFacilityCostsEvent2Amt |
| Gross Receipts Total | $1,023,281 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $863,362 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $159,919 | GrossRevenueTotalEventsAmt |
| Rent Fclty Costs Total Events | $80,109 | RentFcltyCostsTotalEventsAmt |
| Oth Direct Expnss Total Events | $184,151 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $264,260 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | -$104,341 | NetIncomeSummaryAmt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE G, PART I, LINE 2B, COLUMN (V) | FormAndLineReferenceDesc |
| Explanation | A PROFESSIONAL FUNDRAISER PROVIDED SERVICES FOR THE MG WALK EVENT. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (7 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Valuation Method UsedValuationMethodUsedDesc | Non Cash AssistanceNonCashAssistanceDesc | Purpose Of GrantPurposeOfGrantTxt | Address Line1ForeignAddress/AddressLine1Txt | Province Or StateForeignAddress/ProvinceOrStateNm | CountryForeignAddress/CountryCd |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| UNIVERSITY OF CALIFORNIA DAVIS | |||||||||||||
| 1515 NEWTON COURT ROOM 502 | DAVIS | CA | 95616 | 946036494 | 501C(3) | $27,500 | $80,000 | FMV | GRANT PAYABLE | MEDICAL RESEARCH | |||
| AMERICAN BRAIN FOUNDATION | |||||||||||||
| 201 CHICAGO AVENUE | MINNEAPOLIS | MN | 55415 | 411717098 | 501C(3) | $53,333 | $106,667 | FMV | GRANT PAYABLE | MEDICAL RESEARCH | |||
| LAWSON HEALTH RESEARCH INSTITUE | |||||||||||||
| $12,230 | FMV | GRANT PAYABLE | MEDICAL RESEARCH | 750 BASELINE ROAD SUITE 300 | ONTARIO | CA | |||||||
| NEUROMUSCULAR DIAGNOSTIC CENTER | |||||||||||||
| 165 CAMBRIDGET STREET SUITE 820 | BOSTON | MA | 02114 | 041564655 | 501(3) | $55,000 | FMV | GRANT PAYABLE | MEDICAL RESEARCH | ||||
| UNIV OF CAL SAN FRANCISCO | |||||||||||||
| 1701 DIVISADERO ST | SAN FRANCISCO | CA | 94115 | 946036493 | 501(3) | $15,116 | FMV | GRANT PAYABLE | MEDICAL RESEARCH | ||||
| DUKE UNIVERSITY | |||||||||||||
| 2200 WEST MAIN STREET SUITE 900 | DURHAM | NC | 27705 | 560532129 | 501C(3) | $55,000 | FMV | GRANT PAYABLE | MEDICAL RESEARCH | ||||
| MEDICAL UNIVERSITY OF SOUTH CAROLINA | |||||||||||||
| 171 ASHLEY AVENUE | CHARLESTON | SC | 29425 | 576028985 | 501C(3) | $16,800 | FMV | GRANT PAYABLE | MEDICAL RESEARCH | ||||
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ALL RECEIVED RESEARCH GRANT APPLICATIONS ARE REVIEWED AND RATED INITIALLY BY MG EXPERTS, I.E., THE RESEARCH COMMITTEE FROM THE MEDICAL/SCIENTIFIC ADVISORY BOARD, BASED ON THE SCIENTIFIC MERIT OF THE PROPOSAL AND THE EXPERIENCE/COMPETENCE OF THE INVESTIGATOR(S). A SECONDARY REVIEW IS PERFORMED BY A SUBCOMMITTEE OF THE BOARD OF DIRECTORS (BOD), BASED NOT ONLY ON SCIENTIFIC MERIT, BUT ALSO ON THE NEED OF/IMPACT ON MG PATIENTS, LEADING TO FINAL RECOMMENDATIONS TO THE BOD. THE FULL BOD REVIEWS, DISCUSSES AND VOTES ON ALL RECOMMENDED APPLICATIONS AND SELECTS THE FINAL GRANT RECIPIENTS. ONCE THEY RECEIVE GRANT FUNDING, INVESTIGATORS ARE REQUIRED TO SUBMIT ANNUAL PROGRESS REPORTS FOR REVIEW BY THE BOD FOR SECOND-YEAR FUNDING. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART VI, SECTION A, LINE 2 | ROBERT L RUFF AND SUZANNE RUFF HAVE A FAMILY RELATIONSHIP. |
| FORM 990, PART VI, SECTION A, LINE 3 | THE DAY TO DAY MANAGEMENT OF THE ORGANIZATION HAS BEEN DELEGATED TO A MANAGEMENT COMPANY. THE DUTIES OF THE MANAGEMENT COMPANY INCLUDE BUT ARE NOT LIMITED TO PLANNING AND EXECUTING FINANCIAL OPERATIONS AND SUPERVISING THE EXEMPT OPERATIONS. ALL OF THE MANAGEMENT COMPANY DUTIES ARE REVIEWED AND MONITORED BY THE BOARD. THE MANAGEMENT COMPANY IS KELLEN COMPANY IN NEW YORK, NY. |
| FORM 990, PART VI, SECTION B, LINE 11B | A DRAFT OF THE FORM 990 IS FIRST REVIEWED BY THE CHIEF EXECUTIVE, TREASURER AND FINANCE COMMITTEE AND THEN TO THE AUDIT COMMITTEE FOR REVIEW AND COMMENT. THE FORM 990 IS THEN MADE AVAILABLE TO EACH MEMBER OF THE BOARD OF DIRECTORS PRIOR TO SUBMISSION TO INTERNAL REVENUE SERVICE. |
| FORM 990, PART VI, SECTION B, LINE 12C | BOARD MEMBERS PREPARE AN ANNUAL DISCLOSURE STATEMENT. ANY CONFLICTS OF INTEREST THAT ARE REPORTED ARE BROUGHT TO THE ATTENTION OF THE AUDIT COMMITTEE WHICH REPORTS ALL SIGNIFICANT ISSUES TO THE BOARD CHAIR AND CHIEF EXECUTIVE. NECESSARY ACTIONS ARE TAKEN TO MITIGATE ANY CONFLICT OF INTEREST SITUATIONS. |
| FORM 990, PART VI, SECTION B, LINE 15 | CONTRACTS FOR TOP MANAGEMENT CONSULTANTS ARE REVIEWED AND APPROVED BY THE EXECUTIVE COMMITTEE USING COMPARABILITY DATA. |
| FORM 990, PART VI, SECTION C, LINE 19 | A REQUEST FOR PUBLIC DOCUMENT MAY BE RECEIVED IN PERSON, BY PHONE, BY MAIL OR BY EMAIL. THE REQUEST WOULD BE RECEIVED BY THE MANAGEMENT COMPANY WHICH WOULD FORWARD THE REQUEST TO THE CHIEF EXECUTIVE WHO WOULD RESPOND TO THE REQUEST WITHIN TWO WEEKS. FORM 990 IS AVAILABLE TO THE PUBLIC VIA THE ORGANIZATION'S WEBSITE. |
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