HUNTINGTON S DISEASE FOUNDATION: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
HUNTINGTON S DISEASE FOUNDATION (EIN 23-7376197)
Tax period
2019-01-01 to 2019-12-31
Filed
2020-11-11
IRS object ID
202003169349300440
Schema version
2019v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2020-11-11T06:20:29-08:00ReturnTs
Tax Period End2019-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN134036703PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1SCHALL & ASHENFARB CPASBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1307 5th Ave 15th FloorAddressLine1Txt
CityNEW YORKCityNm
State AbbreviationNYStateAbbreviationCd
ZIP100166517ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2019-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN237376197EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Hereditary Disease FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlHEREBusinessNameControlTxt
Phone2129812121PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1601 West 168th StreetAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10032ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMeghan DonaldsonPersonNm
Person TitleCEOPersonTitleTxt
Signature2020-11-11SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonMichael SchallPreparerPersonNm
PTINP02024184PTIN
Phone2122682800PhoneNum
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2021-01-29 14:40:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerMeghan DonaldsonPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1601 West 168th Street 54AddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10032ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,349,424GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresshdfoundation.comWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1968FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionTo fund innovative research towards curing Huntington's disease and impacting other brain disorders.ActivityOrMissionDesc
Voting Members Governing Body17VotingMembersGoverningBodyCnt
Voting Members Independent15VotingMembersIndependentCnt
Total Employee3TotalEmployeeCnt
Total Volunteers1TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$2,169,236PYContributionsGrantsAmt
CY Contributions Grants$1,650,090CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$474,934PYInvestmentIncomeAmt
CY Investment Income$330,387CYInvestmentIncomeAmt
PY Other Revenue$47,187PYOtherRevenueAmt
CY Other Revenue$47,508CYOtherRevenueAmt
PY Total Revenue$2,691,357PYTotalRevenueAmt
CY Total Revenue$2,027,985CYTotalRevenueAmt
PY Grants And Similar Paid$978,642PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,467,686CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$374,694PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$367,598CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$68,000PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$72,000CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$229,388CYTotalFundraisingExpenseAmt
PY Other Expenses$716,323PYOtherExpensesAmt
CY Other Expenses$394,547CYOtherExpensesAmt
PY Total Expenses$2,137,659PYTotalExpensesAmt
CY Total Expenses$2,301,831CYTotalExpensesAmt
PY Revenues Less Expenses$553,698PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$273,846CYRevenuesLessExpensesAmt
Total Assets BOY$10,922,906TotalAssetsBOYAmt
Total Assets EOY$12,457,716TotalAssetsEOYAmt
Total Liabilities BOY$844,715TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,141,006TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$10,078,191NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$11,316,710NetAssetsOrFundBalancesEOYAmt
MissionTo fund innovative research towards curing Huntington's disease and impacting other brain disorders.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$1,858,695ExpenseAmt
Grant$1,467,686GrantAmt
DescThe Hereditary Disease Foundation commemorates its 51st year by making an even greater impact toward developing novel therapeutics and cures. We have put in place strategies and new grant funding programs to maximize our effectiveness. We have been funding catalytic and paradigm-changing research since our birth - including identifying the Huntington's Disease marker in 1983 and the HD Gene in 1993, and supporting gene silencing approaches since 2002. We want to continue to make an impact by funding research that pushes the envelope.The Hereditary Disease Foundation provides funding for research that advances the discovery and development of treatments for Huntington's Disease and other brain disorders. We are passionate about funding and the Foundation intends to use the endowment funds for its scientific activities which includes providing grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for neurodegenerative diseases, including Huntington's Disease. The Hereditary Disease Foundation funds the most innovative, creative and paradigm-changing research possible. The data generated with HDF funding often allows researchers to get initial findings that help them apply successfully for larger, long-term funding from other funding agencies, including the National Institutes of Health. The Foundation's current focus is on:1) Modifier Studies - On DNA repair pathways, protein degradation and other modifiers of phenotype and age of onset.2) Research mechanisms of HD neurogeneration and biomarkers and therapy for HD-induced neurodegeneration.Type of funding:The Basic Research Grants Program: Supports projects contributing to identifying and understanding the fundamental defects in Huntington's Disease. Postdoctoral Fellowships: These postdoctoral fellowships are intended to cultivate interest in Huntington's Disease research by bright young scientists. Fellowships are granted to those who possess imagination, rigor, creativity and spirit to push forward toward a cure for HD and ensure that these learning can be applied to other brain diseases.Desc
Total Program Service Expenses$1,858,695TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (true)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingYes (true)ProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonYes (true)GrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document7IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee3EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Form8282 Filed0Form8282FiledCnt
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Form8899 FiledindfalseForm8899Filedind
Form1098 C FiledfalseForm1098CFiledInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members17GoverningBodyVotingMembersCnt
Independent Voting Member15IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyfalseDocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonTravis CareyPersonNm
Phone2129282121PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1601 West 168th StreetAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10033ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (18 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
Meghan Donaldson
CEO30.000.00Yes (X)Yes (X)$110,000$0$0
Travis Carey
CFO3.000.00Yes (X)$19,084$0$0
Nancy Wexler PhD
President7.000.00Yes (X)Yes (X)$0$0$0
Alice Wexler PhD
Secretary1.000.00Yes (X)Yes (X)$0$0$0
Bruce Donaldson
Treasurer1.000.00Yes (X)Yes (X)$0$0$0
David Zwally
Chair1.000.00Yes (X)Yes (X)$0$0$0
Anne Young MD PhD
Vice Chair1.000.00Yes (X)Yes (X)$0$0$0
Berta Gehry
Director1.000.00Yes (X)$0$0$0
Frank Gehry
Director1.000.00Yes (X)$0$0$0
David Gerstenhaber
Director1.000.00Yes (X)$0$0$0
Kelly Posner Gerstenhaber PhD
Director1.000.00Yes (X)$0$0$0
Barry Evenchick
Director1.000.00Yes (X)$0$0$0
David Housman PhD
Director1.000.00Yes (X)$0$0$0
Joan Leiman
Director1.000.00Yes (X)$0$0$0
Karen Newman
Director6.000.00Yes (X)$0$0$0
Herbert Pardes MD
Director2.000.00Yes (X)$0$0$0
Robi Blumenstein
Director1.000.00Yes (X)$0$0$0
Sandy Fox
Director1.000.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$129,084TotalReportableCompFromOrgAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
Cntrct Rcvd Greater Than100 K0CntrctRcvdGreaterThan100KCnt
Fundraising$441,707FundraisingAmt
All Other Contributions$1,208,383AllOtherContributionsAmt
Total Contributions$1,650,090TotalContributionsAmt
Total Program Service Revenue$0TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$295,551TotalRevenueColumnAmt
Exclusion$295,551ExclusionAmt

Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$2,296,861SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$2,262,025SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$34,836SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$34,836TotalRevenueColumnAmt
Exclusion$34,836ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$59,414FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$441,707ContriRptFundraisingEventAmt
Fundraising Direct Expenses$59,414FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Net Income Or Loss NetIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$0TotalRevenueColumnAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescOther IncomeDesc
Total Revenue Column$47,508TotalRevenueColumnAmt
Exclusion$47,508ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$47,508OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,027,985TotalRevenueColumnAmt
Exclusion$377,895ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,157,686TotalAmt
Program Services$1,157,686ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$100,000TotalAmt
Program Services$100,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$210,000TotalAmt
Program Services$210,000ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$129,084TotalAmt
Program Services$55,000ProgramServicesAmt
Management And General$52,084ManagementAndGeneralAmt
Fundraising$22,000FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$168,592TotalAmt
Program Services$134,874ProgramServicesAmt
Management And General$3,701ManagementAndGeneralAmt
Fundraising$30,017FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$41,999TotalAmt
Program Services$31,047ProgramServicesAmt
Management And General$4,073ManagementAndGeneralAmt
Fundraising$6,879FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$27,923TotalAmt
Program Services$15,934ProgramServicesAmt
Management And General$8,458ManagementAndGeneralAmt
Fundraising$3,531FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$72,000TotalAmt
Fundraising$72,000FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$62,315TotalAmt
Management And General$62,315ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$76,984TotalAmt
Program Services$2,000ProgramServicesAmt
Management And General$56,257ManagementAndGeneralAmt
Fundraising$18,727FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$9,704TotalAmt
Program Services$864ProgramServicesAmt
Management And General$7,269ManagementAndGeneralAmt
Fundraising$1,571FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$17,165TotalAmt
Program Services$12,546ProgramServicesAmt
Management And General$1,646ManagementAndGeneralAmt
Fundraising$2,973FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$70,049TotalAmt
Program Services$48,087ProgramServicesAmt
Management And General$6,306ManagementAndGeneralAmt
Fundraising$15,656FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$86,718TotalAmt
Program Services$61,696ProgramServicesAmt
Management And General$6,003ManagementAndGeneralAmt
Fundraising$19,019FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$19,604TotalAmt
Program Services$14,492ProgramServicesAmt
Management And General$1,901ManagementAndGeneralAmt
Fundraising$3,211FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$9,355TotalAmt
Program Services$6,916ProgramServicesAmt
Management And General$907ManagementAndGeneralAmt
Fundraising$1,532FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Postage and Shipping$30,881$460$1,694$28,727
Other$11,772$7,093$1,134$3,545

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$2,301,831TotalAmt
Program Services$1,858,695ProgramServicesAmt
Management And General$213,748ManagementAndGeneralAmt
Fundraising$229,388FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$345,388BOYAmt
EOY$258,816EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$782,260BOYAmt
EOY$891,676EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$257,108BOYAmt
EOY$24,309EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$19,789BOYAmt
EOY$20,343EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$98,022LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$33,600LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$84,026BOYAmt
EOY$64,422EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$9,434,335BOYAmt
EOY$11,198,150EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$10,922,906BOYAmt
EOY$12,457,716EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$18,766BOYAmt
EOY$17,500EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$825,949BOYAmt
EOY$1,123,506EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$844,715BOYAmt
EOY$1,141,006EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,078,721BOYAmt
EOY$1,513,539EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$8,999,470BOYAmt
EOY$9,803,171EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$10,078,191BOYAmt
EOY$11,316,710EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$10,922,906BOYAmt
EOY$12,457,716EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss-$273,846ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$1,512,365NetUnrlzdGainsLossesInvstAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,886,920CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,107,686CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$747,377CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,169,236CurrentTaxYearMinus1YearAmt
Current Tax Year$1,650,090CurrentTaxYearAmt
Total$8,561,309TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,886,920CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,107,686CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$747,377CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,169,236CurrentTaxYearMinus1YearAmt
Current Tax Year$1,650,090CurrentTaxYearAmt
Total$8,561,309TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$2,034,458SubstantialContributorsTotAmt
Public Support Total170$6,526,851PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$267,915CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$273,233CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$265,653CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$317,651CurrentTaxYearMinus1YearAmt
Current Tax Year$295,551CurrentTaxYearAmt
Total$1,420,003TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$25,439CurrentTaxYearMinus1YearAmt
Current Tax Year$47,508CurrentTaxYearAmt
Total$72,947TotalAmt
FieldValueIRS element (for citing)
Total Support$10,054,259TotalSupportAmt
Public Support CY1700.64920PublicSupportCY170Pct
Public Support PY1700.64480PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$8,534,335BeginningYearBalanceAmt
Investment Earnings Or Losses$1,595,553InvestmentEarningsOrLossesAmt
Other Expenditures$426,717OtherExpendituresAmt
End Year Balance$9,703,171EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$8,401,672BeginningYearBalanceAmt
Contributions$676,151ContributionsAmt
Investment Earnings Or Losses-$543,488InvestmentEarningsOrLossesAmt
End Year Balance$8,534,335EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$7,700,419BeginningYearBalanceAmt
Investment Earnings Or Losses$1,155,712InvestmentEarningsOrLossesAmt
Other Expenditures$454,459OtherExpendituresAmt
End Year Balance$8,401,672EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$7,566,144BeginningYearBalanceAmt
Investment Earnings Or Losses$580,315InvestmentEarningsOrLossesAmt
Other Expenditures$446,040OtherExpendituresAmt
End Year Balance$7,700,419EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$8,250,520BeginningYearBalanceAmt
Investment Earnings Or Losses-$225,617InvestmentEarningsOrLossesAmt
Other Expenditures$458,759OtherExpendituresAmt
End Year Balance$7,566,144EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated OrgfalseEndowmentsHeldUnrelatedOrgInd
Endowments Held Related OrgfalseEndowmentsHeldRelatedOrgInd
Related Org List Sch RfalseRelatedOrgListSchRInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$98,022InvestmentCostOrOtherBasisAmt
Depreciation$33,600DepreciationAmt
Book Value$64,422BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$64,422TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$3,578,035TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$1,512,365NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$100,000DonatedServicesAndUseFcltsAmt
Revenue Not Reported$1,612,365RevenueNotReportedAmt
Revenue Subtotal$1,965,670RevenueSubtotalAmt
Investment Expenses Not Incld$62,315InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$62,315RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$2,027,985TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$2,339,516TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$100,000DonatedServicesUseFcltsAmt
Expenses Not Reported$100,000ExpensesNotReportedAmt
Expenses Subtotal$2,239,516ExpensesSubtotalAmt
Investment Expenses Not Incld2$62,315InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$62,315ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$2,301,831TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part V, Line 4: Intended uses of the endowment fund.HDF intends to use the endowment funds for its scientific activities which includes grants to fund scientific research to further the understanding of, and to develop diagnostics and therapeutics for, neurodegenerative diseases, including Huntington's Disease.
Part X : FIN48 FootnoteHDF does not believe its financial statements include any material, uncertain tax positions. Tax filings for the periods ending December 31, 2016 and later are subject to examination by applicable taxing authorities.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
Canada00Grants to recipientsScientific Research$75,000
Israel00Grants to recipientsScientific Research$75,000
United Kingdom00Grants to recipientsScientific Research$60,000
FieldValueIRS element (for citing)
Subtotal Spent$210,000SubtotalSpentAmt
Total Spent$210,000TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (3 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
CanadaScientific Research$75,000Wire Trans.
IsraelScientific Research$75,000Wire Trans.
United KingdomScientific Research$60,000Wire Trans.
FieldValueIRS element (for citing)
Total Other Org3TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePart I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside USFormAndLineReferenceDesc
ExplanationHDF monitors its grants by requiring science research progress reports from grantees as a condition to further payments of any grant payable in installments, and a final report on completion of the researchExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (true)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

FieldValueIRS element (for citing)
Business Name Line1Susan Quinlan MartinBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1350 East 55th StreetAddressLine1Txt
CityNew YorkCityNm
State AbbreviationNYStateAbbreviationCd
ZIP10022ZIPCd
FieldValueIRS element (for citing)
ActivityEvent ConsultantActivityTxt
Fundraiser Control Of FundsfalseFundraiserControlOfFundsInd
Gross Receipts$501,121GrossReceiptsAmt
Retained By Contractor$72,000RetainedByContractorAmt
Net To Organization$429,121NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$501,121TotalGrossReceiptsAmt
Total Retained By Contractors$72,000TotalRetainedByContractorsAmt
Total Net To Organization$429,121TotalNetToOrganizationAmt
Licensed StatesNYLicensedStatesCd
Licensed StatesCALicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1FR eventsEvent1Nm
Gross Receipts Event1$501,121GrossReceiptsEvent1Amt
Charitable Contri Event1$441,707CharitableContriEvent1Amt
Gross Revenue Event1$59,414GrossRevenueEvent1Amt
Rent Facility Costs Event1$5,000RentFacilityCostsEvent1Amt
Food And Beverage Event1$54,039FoodAndBeverageEvent1Amt
Entertainment Event1$375EntertainmentEvent1Amt
Gross Receipts Total$501,121GrossReceiptsTotalAmt
Charitable Contributions Tot$441,707CharitableContributionsTotAmt
Gross Revenue Total Events$59,414GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$5,000RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$54,039FoodAndBeverageTotalEventsAmt
Entertainment Total Events$375EntertainmentTotalEventsAmt
Direct Expense Summary Events$59,414DirectExpenseSummaryEventsAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (12 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmt
Brigham and Womens Hospital
75 Francis StBostonMA02115042312909501(c)(3)$75,000$0
Broad Institute
320 Charles StCambridgeMA02141263428781501(c)(3)$120,380$0
Caltech
1200 E California BlvdPasadenaCA91125951643307501(c)(3)$75,000$0
Childrens Hospital of Philly
3401 Civic Center BlvdPhiladelphiaPA19104232237932501(c)(3)$46,738$0
Columbia University Med Ctr
1790 BroadwayNew YorkNY10019135598093501(c)(3)$150,000$0
Duke University
307 Trent DriveDurhamNC27710560532129501(c)(3)$12,883$0
J David Gladstone Institute
1650 Owens StSan FranciscoCA94158237203666501(c)(3)$75,000$0
Mass Institute of Technology
77 Massachusetts AvenueCambridgeMA02139042103594501(c)(3)$79,863$0
Stanford University
450 Serra MallStanfordCA94305941156365501(c)(3)$131,636$0
Thomas Jefferson University
4201 Henry AvenuePhiladelphiaPA19144231352651501(c)(3)$75,000$0
UCLA
405 Hilgard AvenueLos AngelesCA90095956006143501(c)(3)$109,550$0
Univ of California Irvine
260 Aldrich HallIrvineCA92697952226406501(c)(3)$206,636$0
FieldValueIRS element (for citing)
Total501c3 Org12Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeScientific Research - Gehry PrizeGrantTypeTxt
Recipient1RecipientCnt
Cash Grant$100,000CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceGrantmaker's Description of How Grants are UsedFormAndLineReferenceDesc
ExplanationHDF monitors its grants by requiring science research progress reports from grantees as a condition to further payments of any grant payable in installments, and a final report on completion of the researchExplanationTxt

Schedule L IRS990ScheduleL

Grnt Asst Bnft Interested Prsn GrntAsstBnftInterestedPrsnGrp

FieldValueIRS element (for citing)
PersonDavid HousmanPersonNm
Relationship With OrgBoard MemberRelationshipWithOrgTxt
Cash Grant$79,863CashGrantAmt
Type Of AssistanceResearch GrantTypeOfAssistanceTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution1ContributionCnt
Noncash Contributions Rpt F990$56,324NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsfalseReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Line 2: Description of Business or Family Relationship of Officers, Directors, EtNancy Wexler, President, and Alice Wexler, Secretary, are sisters and both are members of the board of directors.Meghan Donaldson, CEO, and Bruce Donaldson, Board Member, are married and are both members of the board of directors. Kelly Posner Gerstenhaber and David Gerstenhaber are married and both are members of the board of directors.Frank Gehry and Berta Gehry are married and both are members of the board of directors.Sandy Fox is the aunt of David Zwally and both are members of the board of directors.
Form 990, Part VI, Line 11b: Form 990 Review ProcessThe Foundation provides the 990 to the board of directors for approval.
Form 990, Part VI, Line 12c: Explanation of Monitoring and Enforcement of ConflictsAnnual conflict of interest statements are circulated to all officers, directors, and key employees at the board of directors meeting. Management maintains signed copies of these statements for all such individuals to ensure compliance with this policy.
Form 990, Part VI, Line 15a: Compensation Review & Approval Process - CEO, Top ManagementA written employee contract is established and approved by the board or compensation committee.
Form 990, Part VI, Line 19: Other Organization Documents Publicly AvailableThe Foundation makes its financial statements and 990 available to the public on its website, www.hdfoundation.org. The Foundation makes its governing documents and conflicts of interest policy available to the public upon request.

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