MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2019

View the entire original 990 at ProPublica ↗

Organization
MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period
2019-01-01 to 2019-12-31
Filed
2020-09-21
IRS object ID
202002659349300340
Schema version
2019v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2020-09-21T10:45:31-05:00ReturnTs
Tax Period End2019-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN221478099PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1COHNREZNICK LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line14 BECKER FARM ROADAddressLine1Txt
CityROSELANDCityNm
State AbbreviationNJStateAbbreviationCd
ZIP07068ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2019-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN131665552EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1MUSCULAR DYSTROPHY ASSOCIATIONINCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlMUSCBusinessNameControlTxt
Phone3122605900PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK ST NO 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMICHAEL J KENNEDYPersonNm
Person TitleCFOPersonTitleTxt
Phone3122605900PhoneNum
Signature2020-09-18SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonLORI ROTHE YOKOBOSKY CPAPreparerPersonNm
PTINP01273422PTIN
Phone9732283500PhoneNum
Preparation2020-08-24PreparationDt

Filing Security Information FilingSecurityInformation

IP Address IPAddress

FieldValueIRS element (for citing)
I Pv4 Address209.59.242.22IPv4AddressTxt
FieldValueIRS element (for citing)
IP2020-09-18IPDt
IP Tm08:58:12IPTm
IP TimezoneEDIPTimezoneCd
Filing License TypePFilingLicenseTypeCd
At Submission Creation Device IdDA39A3EE5E6B4B0D3255BFEF95601890AFD80709AtSubmissionCreationDeviceId
At Submission Filing Device Id6C9B1A35775087DBDB8A6D25ECA509C7F6C27838AtSubmissionFilingDeviceId
FieldValueIRS element (for citing)
Tax2019TaxYr
Build TS2021-01-29 14:40:06ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerELLEN VOSSPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK ST NO 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$129,763,914GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.MDA.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1950FormationYr
Legal Domicile StateNYLegalDomicileStateCd
Activity Or MissionTHE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.ActivityOrMissionDesc
Voting Members Governing Body24VotingMembersGoverningBodyCnt
Voting Members Independent24VotingMembersIndependentCnt
Total Employee786TotalEmployeeCnt
Total Volunteers350000TotalVolunteersCnt
Total Gross UBI$286,145TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$103,881,886PYContributionsGrantsAmt
CY Contributions Grants$99,904,218CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$6,232,772PYInvestmentIncomeAmt
CY Investment Income$2,526,139CYInvestmentIncomeAmt
PY Other Revenue$542,895PYOtherRevenueAmt
CY Other Revenue-$1,457,582CYOtherRevenueAmt
PY Total Revenue$110,657,553PYTotalRevenueAmt
CY Total Revenue$100,972,775CYTotalRevenueAmt
PY Grants And Similar Paid$26,577,877PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$26,371,876CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$49,730,603PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$47,805,447CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$47,863,906CYTotalFundraisingExpenseAmt
PY Other Expenses$31,488,552PYOtherExpensesAmt
CY Other Expenses$38,572,476CYOtherExpensesAmt
PY Total Expenses$107,797,032PYTotalExpensesAmt
CY Total Expenses$112,749,799CYTotalExpensesAmt
PY Revenues Less Expenses$2,860,521PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$11,777,024CYRevenuesLessExpensesAmt
Total Assets BOY$83,664,541TotalAssetsBOYAmt
Total Assets EOY$81,509,086TotalAssetsEOYAmt
Total Liabilities BOY$73,718,038TotalLiabilitiesBOYAmt
Total Liabilities EOY$82,222,737TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$9,946,503NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY-$713,651NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$28,614,874ExpenseAmt
Grant$9,901,833GrantAmt
DescHEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE AFFECTED BY MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$19,855,585ExpenseAmt
Grant$16,394,896GrantAmt
DescRESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING MORE THAN 40 NEUROMUSCULAR DISEASES INCLUDING MUSCULAR DYSTROPHY, ALS, AND MANY OTHERS. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS AND CURE. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR UMBRELLA MODEL OF FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$9,124,865ExpenseAmt
Grant$75,147GrantAmt
DescPROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE U.S., OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE, A FLAGSHIP EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NMD COMMUNITY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$57,595,324TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B Required0ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of ArtYes (1)CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (1)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming ActivitiesYes (1)GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related PersonYes (1)GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntYes (1)BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document502IRPDocumentCnt
IRP Document W2 G12IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee786EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (1)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (1)Form990TFiledInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members24GoverningBodyVotingMembersCnt
Independent Voting Member24IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldDEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldIDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldIAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldLAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPRStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWYStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1JENNIFER BUZALSKI CONTROLLERBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone3122605975PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK STREET STE 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (34 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
ANJAN ARALIHALLI
DIRECTOR1.00Yes (X)$0$0$0
ANKUR GHIA
DIRECTOR1.00Yes (X)$0$0$0
BENJAMIN CUMBO III
DIRECTOR1.00Yes (X)$0$0$0
CHARLES D SCHOOR ESQ
DIRECTOR1.00Yes (X)$0$0$0
CHRISTOPHER J ROSA PHD
VICE CHAIR1.00Yes (X)$0$0$0Yes (X)
DANIEL G FRIES
DIRECTOR1.00Yes (X)$0$0$0
DAVE HUTTON
DIRECTOR1.00Yes (X)$0$0$0
DON WOOD
DIRECTOR1.00Yes (X)$0$0$0
ELIZABETH MCNALLY MD PHD
DIRECTOR1.00Yes (X)$0$0$0
EUGENE WILLIAMS
DIRECTOR1.00Yes (X)$0$0$0
GOVERNOR BRAD HENRY
DIRECTOR3.00Yes (X)$0$0$0
JOHN COSTANTINO
DIRECTOR3.00Yes (X)$0$0$0
JOHN TOGNINO
DIRECTOR1.00Yes (X)$0$0$0
KRISTINE WELKER
DIRECTOR3.00Yes (X)$0$0$0
LILIAN WU PHD
DIRECTOR1.00Yes (X)$0$0$0
LOUIS KUNKEL PHD
DIRECTOR1.00Yes (X)$0$0$0
MARK SMITH
DIRECTOR3.00Yes (X)$0$0$0
MIKE ROWLETT
DIRECTOR1.00Yes (X)$0$0$0
PATRICIA NAZEMETZ
DIRECTOR1.00Yes (X)$0$0$0
R RODNEY HOWELL MD
CHAIRMAN5.00Yes (X)$0$0$0Yes (X)
STANLEY APPEL MD
DIRECTOR3.00Yes (X)$0$0$0
STEVE FARELLA
DIRECTOR3.00Yes (X)$0$0$0
STEVE FELSHER
DIRECTOR1.00Yes (X)$0$0$0
VICTOR WRIGHT
DIRECTOR2.00Yes (X)$0$0$0
ELLEN VOS
PRESIDENT & CEO50.00$508,029$0$28,218Yes (X)
KAREN ANDREWS
SECRETARY & CHIEF LEGAL OFFICER50.00$413,969$0$0Yes (X)
MICHAEL KENNEDY
TREASURER & CFO50.00$287,333$0$35,711Yes (X)
JENNIFER ALLEBACH
SVP OF RECREATION AND CAMP PROGRAMS40.00$150,209$0$3,008Yes (X)
KATHY KAUFFMANN
CHIEF STRATEGY DEVELOPMENT OFFICER40.00$152,342$0$17,976Yes (X)
ADAM COTUMACCIO
CHIEF IMPACT & PHILANTHROPY OFFICER40.00$284,234$0$46,389Yes (X)
JEANNE ZUCKER
SENIOR VP, HEALTHCARE PART40.00$260,422$0$11,000Yes (X)
KRISTIN STEPHENSON
SVP, CHIEF POLICY & COMM E40.00$203,107$0$40,598Yes (X)
MEREDITH WILSON
VP, HEALTHCARE COMMUNICATIONS & EDUCATION40.00$179,647$0$8,187Yes (X)
MICHAEL BRUNO
CHIEF PEOPLE AND ADMINISTRATIVE OFFICER40.00$214,376$0$13,292Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$2,653,668TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$204,379TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K49IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
TYLER HAINES CUNNINGHAM
33 GARDEN AVEBRONXVILLENY10708MARKETING$311,959
ERICK JAMES SODERSTROM
66 HUNTING LANESHERBORNMA01770MARKETING$208,000
SIBSON CONSULTING
PO BOX 4058NEW YORKNY10261PENSION MANAGEMENT$172,900
DEB BARGE
PO BOX 35OAS HARBORWA98277CONSULTING$140,000
ELLEN SHEDLARZ
151 EAST 83 ST APT 10ANEW YORKNY10028CONSULTING$120,961
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K8CntrctRcvdGreaterThan100KCnt
Federated Campaigns$1,112,148FederatedCampaignsAmt
Fundraising$52,812,454FundraisingAmt
Government Grants$335,898GovernmentGrantsAmt
All Other Contributions$45,643,718AllOtherContributionsAmt
Noncash Contributions$59,097NoncashContributionsAmt
Total Contributions$99,904,218TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,545,505TotalRevenueColumnAmt
Exclusion$1,545,505ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$6,780TotalRevenueColumnAmt
Exclusion$6,780ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$25,026,821SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$24,046,187SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$980,634SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$980,634TotalRevenueColumnAmt
Exclusion$980,634ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$2,928,946FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$52,812,454ContriRptFundraisingEventAmt
Fundraising Direct Expenses$4,686,952FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$1,758,006TotalRevenueColumnAmt
Exclusion-$1,758,006ExclusionAmt
FieldValueIRS element (for citing)
Gaming Gross Income$65,499GamingGrossIncomeAmt
Gaming Direct Expenses$58,000GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

FieldValueIRS element (for citing)
Total Revenue Column$7,499TotalRevenueColumnAmt
Exclusion$7,499ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

FieldValueIRS element (for citing)
DescQUEST ADVERTISINGDesc
Business541800BusinessCd
Total Revenue Column$286,145TotalRevenueColumnAmt
Unrelated Business Revenue$286,145UnrelatedBusinessRevenueAmt
FieldValueIRS element (for citing)
Other Revenue Total$286,145OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$100,972,775TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$286,145UnrelatedBusinessRevenueAmt
Exclusion$782,412ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$23,783,703TotalAmt
Program Services$23,783,703ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$2,588,173TotalAmt
Program Services$2,588,173ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,183,626TotalAmt
Program Services$480,577ProgramServicesAmt
Management And General$72,018ManagementAndGeneralAmt
Fundraising$631,031FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$36,058,934TotalAmt
Program Services$14,640,686ProgramServicesAmt
Management And General$2,194,008ManagementAndGeneralAmt
Fundraising$19,224,240FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$544,492TotalAmt
Program Services$221,075ProgramServicesAmt
Management And General$33,130ManagementAndGeneralAmt
Fundraising$290,287FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$6,924,383TotalAmt
Program Services$2,811,445ProgramServicesAmt
Management And General$421,315ManagementAndGeneralAmt
Fundraising$3,691,623FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$3,094,012TotalAmt
Program Services$1,256,234ProgramServicesAmt
Management And General$188,255ManagementAndGeneralAmt
Fundraising$1,649,523FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$313,726TotalAmt
Program Services$51,031ProgramServicesAmt
Management And General$26,011ManagementAndGeneralAmt
Fundraising$236,684FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$173,954TotalAmt
Management And General$173,954ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$411,778TotalAmt
Program Services$411,778ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$240,913TotalAmt
Management And General$240,913ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$8,452,184TotalAmt
Program Services$2,655,470ProgramServicesAmt
Management And General$1,634,823ManagementAndGeneralAmt
Fundraising$4,161,891FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$11,024,831TotalAmt
Program Services$2,948,960ProgramServicesAmt
Management And General$712,242ManagementAndGeneralAmt
Fundraising$7,363,629FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$4,980,385TotalAmt
Program Services$2,232,680ProgramServicesAmt
Management And General$591,366ManagementAndGeneralAmt
Fundraising$2,156,339FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$2,931,884TotalAmt
Program Services$1,870,297ProgramServicesAmt
Management And General$192,404ManagementAndGeneralAmt
Fundraising$869,183FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,583,478TotalAmt
Program Services$1,010,127ProgramServicesAmt
Management And General$103,915ManagementAndGeneralAmt
Fundraising$469,436FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$315,915TotalAmt
Management And General$315,915ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$669,763TotalAmt
Program Services$241,087ProgramServicesAmt
Management And General$70,684ManagementAndGeneralAmt
Fundraising$357,992FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$742,373TotalAmt
Program Services$166,041ProgramServicesAmt
Management And General$170,086ManagementAndGeneralAmt
Fundraising$406,246FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
EVENT EXPENSES$5,326,236$20,610$1,027$5,304,599
MISCELLANEOUS EXPENSES$1,405,056$205,350$148,503$1,051,203

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$112,749,799TotalAmt
Program Services$57,595,324ProgramServicesAmt
Management And General$7,290,569ManagementAndGeneralAmt
Fundraising$47,863,906FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$4,641,396TotalAmt
Program Services$666,298ProgramServicesAmt
Management And General$1,127,344ManagementAndGeneralAmt
Fundraising$2,847,754FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$3,383,819BOYAmt
EOY$5,027,072EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$9,445,671BOYAmt
EOY$4,021,308EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$5,660,208BOYAmt
EOY$4,999,917EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
EOY$1,000,000EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$4,689,439BOYAmt
EOY$5,064,978EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$9,640,680LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$6,974,082LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$644,947BOYAmt
EOY$2,666,598EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$59,455,546BOYAmt
EOY$58,344,302EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$384,911BOYAmt
EOY$384,911EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$83,664,541BOYAmt
EOY$81,509,086EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$4,068,625BOYAmt
EOY$7,212,362EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$10,468,957BOYAmt
EOY$11,383,214EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$1,689,054BOYAmt
EOY$1,721,885EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$7,500,000BOYAmt
EOY$7,500,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$49,991,402BOYAmt
EOY$54,405,276EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$73,718,038BOYAmt
EOY$82,222,737EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$5,364,018BOYAmt
EOY-$5,966,906EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$4,582,485BOYAmt
EOY$5,253,255EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$9,946,503BOYAmt
EOY-$713,651EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$83,664,541BOYAmt
EOY$81,509,086EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$11,777,024ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$9,038,089NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets-$7,921,219OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$121,934,463CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$117,071,918CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$113,962,253CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$103,881,886CurrentTaxYearMinus1YearAmt
Current Tax Year$99,904,218CurrentTaxYearAmt
Total$556,754,738TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$121,934,463CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$117,071,918CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$113,962,253CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$103,881,886CurrentTaxYearMinus1YearAmt
Current Tax Year$99,904,218CurrentTaxYearAmt
Total$556,754,738TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$556,754,738PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,700,561CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,736,766CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,920,477CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,548,677CurrentTaxYearMinus1YearAmt
Current Tax Year$1,552,285CurrentTaxYearAmt
Total$8,458,766TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$258,243CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$369,757CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$298,749CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$373,297CurrentTaxYearMinus1YearAmt
Current Tax Year$286,145CurrentTaxYearAmt
Total$1,586,191TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$9,750,743CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$10,013,249CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$8,664,556CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$7,167,108CurrentTaxYearMinus1YearAmt
Current Tax Year$2,986,946CurrentTaxYearAmt
Total$38,582,602TotalAmt
FieldValueIRS element (for citing)
Total Support$605,382,297TotalSupportAmt
Public Support CY1700.91970PublicSupportCY170Pct
Public Support PY1700.90710PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationOTHER REVENUE - 2015 AMOUNT: $ 432,222. 2016 AMOUNT: $ 312,578. 2017 AMOUNT: $ 347,946. SPECIAL EVENTS - 2015 AMOUNT: $ 8,673,714. 2016 AMOUNT: $ 8,970,739. 2017 AMOUNT: $ 7,942,063. 2018 AMOUNT: $ 6,990,769. 2019 AMOUNT: $ 2,928,946. GAMING EVENTS - 2015 AMOUNT: $ 644,807. 2016 AMOUNT: $ 729,932. 2017 AMOUNT: $ 374,547. 2018 AMOUNT: $ 176,339. 2019 AMOUNT: $ 58,000.ExplanationTxt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$411,778FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$411,778FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$57,183,546FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$57,595,324FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$1,000,000FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$250,000FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$1,000,000CurrentYearMinus3Amt
Current Year Minus2$1,000,000CurrentYearMinus2Amt
Current Year Minus1$1,000,000CurrentYearMinus1Amt
Current Year$1,000,000CurrentYearAmt
Total$4,000,000TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$6,000,000LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$463,056CurrentYearMinus3Amt
Current Year Minus2$510,119CurrentYearMinus2Amt
Current Year Minus1$546,855CurrentYearMinus1Amt
Current Year$411,778CurrentYearAmt
Total$1,931,808TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$250,000CurrentYearMinus3Amt
Current Year Minus2$250,000CurrentYearMinus2Amt
Current Year Minus1$250,000CurrentYearMinus1Amt
Current Year$250,000CurrentYearAmt
Total$1,000,000TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$1,500,000GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$1,438CurrentYearMinus3Amt
Total$1,438TotalAmt

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Collection Used Pub ExhibitionYes (X)CollectionUsedPubExhibitionInd
Collection Used PreservationYes (X)CollectionUsedPreservationInd
Coll Used Loan Or Exch ProgYes (X)CollUsedLoanOrExchProgInd
Solicited Assets Sale0SolicitedAssetsSaleInd

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$639,479BeginningYearBalanceAmt
Investment Earnings Or Losses$150,206InvestmentEarningsOrLossesAmt
Administrative Expenses$127,675AdministrativeExpensesAmt
End Year Balance$662,010EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$790,985BeginningYearBalanceAmt
Investment Earnings Or Losses-$43,248InvestmentEarningsOrLossesAmt
Administrative Expenses$108,258AdministrativeExpensesAmt
End Year Balance$639,479EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$477,155BeginningYearBalanceAmt
Contributions$259,816ContributionsAmt
Investment Earnings Or Losses$54,014InvestmentEarningsOrLossesAmt
End Year Balance$790,985EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$357,197BeginningYearBalanceAmt
Contributions$90,075ContributionsAmt
Investment Earnings Or Losses$29,883InvestmentEarningsOrLossesAmt
End Year Balance$477,155EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$362,888BeginningYearBalanceAmt
Investment Earnings Or Losses-$5,691InvestmentEarningsOrLossesAmt
End Year Balance$357,197EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$219,994OtherCostOrOtherBasisAmt
Depreciation$59,655DepreciationAmt
Book Value$160,339BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$9,420,686OtherCostOrOtherBasisAmt
Depreciation$6,914,427DepreciationAmt
Book Value$2,506,259BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$2,666,598TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescACCRUED PENSION COSTDesc
Amt$54,405,276Amt
FieldValueIRS element (for citing)
Total Liability$54,405,276TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$101,548,855TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$9,038,089NetUnrealizedGainsInvstAmt
Other Revenue-$8,322,204OtherRevenueAmt
Revenue Not Reported$715,885RevenueNotReportedAmt
Revenue Subtotal$100,832,970RevenueSubtotalAmt
Investment Expenses Not Incld$139,805InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$139,805RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$100,972,775TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$112,209,009TotExpnsEtcAuditedFinclStmtAmt
Expenses Not Reported$0ExpensesNotReportedAmt
Expenses Subtotal$112,209,009ExpensesSubtotalAmt
Investment Expenses Not Incld2$139,805InvestmentExpensesNotIncld2Amt
Other Expenses Not Included$400,985OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$540,790ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$112,749,799TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART III, LINE 4:THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
PART V, LINE 4:THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES.
PART X, LINE 2:U.S. GAAP PROVIDES ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2019, 2018, 2017, 2016 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES.
PART XI, LINE 2D - OTHER ADJUSTMENTS:FUNDRAISING EXPENSES -400,985. CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -7,921,219.
PART XII, LINE 4B - OTHER ADJUSTMENTS:FUNDRAISING EXPENSES 400,985.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,00PROGRAM SERVICESRESEARCH GRANT$262,599
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM00PROGRAM SERVICESRESEARCH GRANT$1,892,851
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES00PROGRAM SERVICESRESEARCH GRANT$352,723
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,00PROGRAM SERVICESRESEARCH GRANT$80,000
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$2,588,173SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$2,588,173TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,RESEARCH$262,599CHECK
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUMRESEARCH$1,892,851CHECK
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATESRESEARCH$352,723CHECK
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,RESEARCH$80,000CHECK
FieldValueIRS element (for citing)
Total Other Org27TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 2:UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.
PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1SPECIAL EVENTSEvent1Nm
Gross Receipts Event1$33,559,629GrossReceiptsEvent1Amt
Charitable Contri Event1$32,109,906CharitableContriEvent1Amt
Gross Revenue Event1$1,449,723GrossRevenueEvent1Amt
Non Cash Prizes Event1$206,260NonCashPrizesEvent1Amt
Rent Facility Costs Event1$254,540RentFacilityCostsEvent1Amt
Food And Beverage Event1$66,551FoodAndBeverageEvent1Amt
Other Direct Expenses Event1$676,191OtherDirectExpensesEvent1Amt
Event2SIGNATUREEvent2Nm
Gross Receipts Event2$22,181,771GrossReceiptsEvent2Amt
Charitable Contri Event2$20,702,548CharitableContriEvent2Amt
Gross Revenue Event2$1,479,223GrossRevenueEvent2Amt
Non Cash Prizes Event2$403,167NonCashPrizesEvent2Amt
Rent Facility Costs Event2$1,506,888RentFacilityCostsEvent2Amt
Food And Beverage Event2$1,092,497FoodAndBeverageEvent2Amt
Other Direct Expenses Event2$480,858OtherDirectExpensesEvent2Amt
Other Events Total144OtherEventsTotalCnt
Gross Receipts Total$55,741,400GrossReceiptsTotalAmt
Charitable Contributions Tot$52,812,454CharitableContributionsTotAmt
Gross Revenue Total Events$2,928,946GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events$609,427NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events$1,761,428RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$1,159,048FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$1,157,049OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$4,686,952DirectExpenseSummaryEventsAmt
Net Income Summary-$1,758,006NetIncomeSummaryAmt

Gaming Information GamingInformationGrp

FieldValueIRS element (for citing)
Gross Revenue Other Gaming$65,499GrossRevenueOtherGamingAmt
Oth Direct Expnss Other Gaming$58,000OthDirectExpnssOtherGamingAmt
Volunteer Labor Other Gaming0VolunteerLaborOtherGamingInd
Gross Revenue Total Gaming$65,499GrossRevenueTotalGamingAmt
Oth Direct Expnss Total Gaming$58,000OthDirectExpnssTotalGamingAmt
Direct Expense Summary Gaming$58,000DirectExpenseSummaryGamingAmt
Net Gaming Income Summary$7,499NetGamingIncomeSummaryAmt
FieldValueIRS element (for citing)
States Where Gaming ConductedWIStatesWhereGamingConductedCd
States Where Gaming ConductedILStatesWhereGamingConductedCd
States Where Gaming ConductedMIStatesWhereGamingConductedCd
States Where Gaming ConductedNCStatesWhereGamingConductedCd
States Where Gaming ConductedINStatesWhereGamingConductedCd
States Where Gaming ConductedKSStatesWhereGamingConductedCd
States Where Gaming ConductedCTStatesWhereGamingConductedCd
States Where Gaming ConductedCAStatesWhereGamingConductedCd
States Where Gaming ConductedWAStatesWhereGamingConductedCd
States Where Gaming ConductedNYStatesWhereGamingConductedCd
States Where Gaming ConductedMNStatesWhereGamingConductedCd
States Where Gaming ConductedNEStatesWhereGamingConductedCd
LicensedYes (1)LicensedInd
License Suspended Etc0LicenseSuspendedEtcInd
Gaming With NonmembersYes (1)GamingWithNonmembersInd
Member Of Other Entity0MemberOfOtherEntityInd
Gaming Other Facility1.00000GamingOtherFacilityPct

Persons With Books Name PersonsWithBooksName

FieldValueIRS element (for citing)
Business Name Line1JENNIFER BUZALSKI CONTROLLERBusinessNameLine1Txt

Persons With Books US Address PersonsWithBooksUSAddress

FieldValueIRS element (for citing)
Address Line1161 N CLARK STREET STE 3550AddressLine1Txt
CityCHICAGOCityNm
State AbbreviationILStateAbbreviationCd
ZIP60601ZIPCd
FieldValueIRS element (for citing)
Cntrct With3rd Prty For Game Rev0CntrctWith3rdPrtyForGameRevInd

Gaming Manager Business Name GamingManagerBusinessName

FieldValueIRS element (for citing)
Business Name Line1NABusinessNameLine1Txt
FieldValueIRS element (for citing)
Charitable Distribution Rqr0CharitableDistributionRqrInd

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (209 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2TxtAddress Line1ForeignAddress/AddressLine1TxtCityForeignAddress/CityNmCountryForeignAddress/CountryCd
AMERICAN BRAIN FOUNDATION
201 CHICAGO AVEMINNEAPOLISMN55415411717098501(C)(3)$43,333RESEARCH
AMERICAN LUNG ASSOCIATION
55 WEST WACKER DRCHICAGOIL60601131632524501(C)(3)$10,000ADVOCACY
ANN AN ROBERT H LURIE CHILDRENS HOSPITAL OF CHICAGO
225 E CHICAGO BOX 4CHICAGOIL60611362170833501(C)(3)$50,000MEDICAL DIAGNOSIS
ASKLEPIOS BIOPHARMACEUTICAL INC
20 T W ALEXANDER DR STE 110RESEARCH TRIANGLE PARKNC27709200267834C-CORP$192,500RESEARCH
ATRIUM HEALTH FOUNDATION
2018 EAST BLVDCHARLOTTENC28203566060481501(C)(3)$61,450RESEARCH
BAYCARE MEDICAL GROUP
300 PARK PLACE BLVD SUITE 170CLEARWATERFL33759593140335501(C)(3)$25,000MEDICAL DIAGNOSIS
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA MS BCM 310HOUSTONTX77030741613878501(C)(3)$294,300MEDICAL DIAGNOSIS AND RESEARCH
BEAUMONT HEALTH SYSTEM
3601 W 13 MILE ROADROYAL OAKMI48073381459362501(C)(3)$25,000MEDICAL DIAGNOSIS
BILLINGS CLINIC FOUNDATION
PO BOX 31031BILLINGSMT59107810407289501(C)(3)$25,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BOARD OF REGENTS NSHE OBO UNIVERSITY OF NEVADA RENO
CONTROLLERS OFFICE MAIL STOP 0124RENONV89557886000024STATE OF NV$200,000RESEARCH
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616SPRINGFIELDIL62794376005961STATE OF IL$10,000MEDICAL DIAGNOSIS
BOSTON UNIVERSITY BU MEDICAL CAMPUS
85 EAST NEWTON STBOSTONMA02118042103547501(C)(3)$100,000RESEARCH
BRIGHAM AND WOMENS HOSPITAL RESEARCH
PO BOX 3149BOSTONMA02241042312909501(C)(3)$30,000MEDICAL DIAGNOSIS
BROWN UNIVERSITY
350 EDDY STREET BOX 1929PROVIDENCERI02912050258809501(A)$207,005RESEARCH
CALIFORNIA PACIFIC MEDICAL
2324 SACRAMENTO STREETSAN FRANCISCOCA94115942728943501(C)(3)$50,000MEDICAL DIAGNOSIS
CARILION CLINIC RESEARCH AN DEVELOPMENT
101 ELM AVENUE SEROANOKEVA24013540506332501(C)(3)$20,000MEDICAL DIAGNOSIS
CARLE FOUNDATION HOSPITAL
611 WEST PARKURBANAIL61801371119538501(C)(3)$25,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CAROLINAS HEALTHCARE FOUNDATION
208 EAST BOULEVARDCHARLOTTENC28203566060481501(C)(3)$283,701MEDICAL DIAGNOSIS AND RESEARCH
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BOULEVARD 65-WIL SUITELOS ANGELESCA90048951644600501(C)(3)$120,000MEDICAL DIAGNOSIS AND RESEARCH1150
CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100ROUND ROCKTX78681742710396501(C)(3)$10,000MEDICAL DIAGNOSIS
CHILD NEUROLOGY CONSULTANTS OF AUSTIN
6811 AUSTIN CENTER BLVD SUITE 400AUSTINTX78731472192039$25,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVETUCSONAZ85712860667510501(C)(3)$20,000MEDICAL DIAGNOSIS
CHILDRENS HEALTHCARE OF ATLANTA
1577 NORTHEAST EXPRESSWAYATLANTAGA30329580572465501(C)(3)$25,000MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL BOSTON MA
300 LONGWOOD AVENUEBOSTONMA02115042774441501(C)(3)$439,795RESEARCH
CHILDRENS HOSPITAL COLORADO MUSCLE CLINIC
13123 E 16TH AVENUE BOX 285AURORACO80045840166760501(C)(3)$81,225MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL CORPORATION
PO BOX 414413BOSTONMA02241042774441501(C)(3)$25,000MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL LOS ANGELES
4650 SUNSET BLVDLOS ANGELESCA90027951690977501(C)(3)$20,000MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL MEDICAL CENTER
3333 BURNET AVECINCINNATIOH45229310833963501(C)(3)$135,000MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
CHILDRENS HOSPITAL OF ORANGE COUNTY
1201 W LA VETA AVEORANGECA92868952321786501(C)(3)$10,000MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVDPHILADELPHIAPA19104231352166501(C)(3)$90,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANTPITTSBURGHPA15224251865744501(C)(3)$25,000MEDICAL DIAGNOSISFLOOR 3
CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANENORFOLKVA23507540506321501(C)(3)$20,000MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL NEW ORLEANS
200 HENRY CLAY AVENUENEW ORLEANSLA70118720467503501(C)(3)$10,000MEDICAL DIAGNOSIS
CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NWWASHINGTONDC20010521640403501(C)(3)$25,000MEDICAL DIAGNOSIS
CLINICAL NEUROLOGY PC
4221 S WESTERN SUITE 5010OKLAHOMA CITYTX73109412141136501(C)(3)$75,000MEDICAL DIAGNOSIS
COLUMBIA UNIVERSITY MEDICAL CENTER
PO BOX 29789NEW YORKNY10087135598093501(C)(3)$252,927RESEARCH
CONNECTICUT CHILDRENS MEDICAL CENTER
282 WASHINGTON STREETHARTFORDCT06106060646755501(C)(3)$20,000MEDICAL DIAGNOSIS
COOK CHILDRENS MEDICAL CENTER
801 SEVENTH AVENUEFT WORTHFL76104752051646501(C)(3)$30,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CORNELL UNIVERSITY
373 PINE TREE ROADITHACANY14850150532082501(C)(3)$70,000RESEARCH
DANA-FARBER CANCER INSTITUTE
450 BROOKLINE AVENUEBOSTONMA02115042263040C-CORP$60,000RESEARCH
DEAN HEALTH SYSTEMS INC
1808 WEST BELTLINE HWYMADISONWI53715391128616501(C)(3)$20,000MEDICAL DIAGNOSIS
DENT NEUROLOGIC INSTITUTE
3980 SHERIDAN DRIVE 5TH FLOORAMHERSTNY14226161582336501(C)(3)$20,000MEDICAL DIAGNOSIS
DIGNITY HEALTH ST JOSEPHS HOSPITAL
3033 N 3RD AVENUECHANDLERAZ85224860096787501(C)(3)$37,500MEDICAL DIAGNOSIS
DRISCOLL CHILDRENS HOSPITAL
3533 SOUTH ALAMEDA STREETCORPUS CHRISTITX78411742577746501(C)(3)$10,000MEDICAL DIAGNOSIS
DUKE UNIVERSITY MEDICAL CENTER
324 BLACKWELL STDURHAMNC27701562070036501(C)(3)$200,000MEDICAL DIAGNOSIS AND RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOORATLANTAGA30322580566256501(C)(3)$253,356RESEARCH
ESSENTIA HEALTH DULUTH
400 E 3RD STREETDULUTHMN55805410884623501(C)(3)$10,000MEDICAL DIAGNOSIS
GEISINGER CLINIC
100 N ACADEMY AVEDANVILLEPA17822236291113501(C)(3)$20,000MEDICAL DIAGNOSIS
GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUEST PAULFL55101363379150501(C)(3)$50,000MEDICAL DIAGNOSIS
GOOD SHEPHERD REHABILITATION HOSPITAL
850 SOUTH 5TH STREETALLENTOWNPA18103231371947501(C)(3)$50,000MEDICAL DIAGNOSIS
GORDON RESEARCH CONFERENCES
512 LIBERTY LANEW KINGSTONRI02892260150662501(C)(3)$12,500RESEARCH
GREENVILLE HEALTH SYSTEM UPSTATE AFFILIATE ORGANIZATION
701 GROVE ROADGREENVILLESC29605811723202501(C)(3)$20,000MEDICAL DIAGNOSIS
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUENEW BRITAINCT06053060646766501(C)(3)$50,000MEDICAL DIAGNOSIS
HOUSTON METHODIST NEUROLOGY INSTITUTE
6560 FANNIN ST SUITE 802HOUSTONTX77030571201170501(C)(3)$53,775MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI
ONE GUSTAVE L LEVY PLACE BOX 1075NEW YORKNY10029136171197501(C)(3)$100,000RESEARCH
IDAHO PHYSICAL MEDICINE AND REHABILITATION PA
161 E MALLARD DR SUITE 120BOISEID83706820435241$15,000REGISTRY SUPPORT
INLAND NORTHWEST HEALTH SERVICES
PO BOX 2185SPOKANEWA99210911307555501(C)(3)$20,000MEDICAL DIAGNOSIS
INSTITUTO REHABILITACION DEL CARIBE
$20,000MEDICAL DIAGNOSISPO BOX 363792SAN JUANRQ
IU HEALTH NEUROSCIENCE CENTER
355 W 16TH STREET 4TH FLOOR SUITEINDIANAPOLISIN46202351955872501(C)(3)$40,000MEDICAL DIAGNOSIS4700
JOAN & SANFORD I WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE BOX 89NEW YORKNY10065131623978501(C)(3)$270,000RESEARCH
JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117BALTIMOREMD21205520595110501(C)(3)$1,310,148MEDICAL DIAGNOSIS AND RESEARCH
KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARDKANSAS CITYKS66160481108830501(C)(3)$75,000MEDICAL DIAGNOSIS
LACERTA THERAPEUTICS INC
12085 RESEARCH DRIVE SUITE 46ALACHUAFL32615596002052C-CORP$100,000RESEARCH
LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202LOMA LINDACA92350951816009501(C)(3)$35,000MEDICAL DIAGNOSIS
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
433 BOLIVAR STNEW ORLEANSLA70112726087770501(C)(3)$20,000MEDICAL DIAGNOSIS
LSUHSC
1501 KINGS HWYSHREVEPORTLA71103720702002501(C)(3)$20,000MEDICAL DIAGNOSIS
LUDWIG INSTITUTE FOR CANCER RESEARCH LTD
9500 GILMAN DRIVELA JOLLACA92093237121131501(C)(3)$300,000RESEARCH
MAINE MEDICAL CENTER
22 BRAMHALL STPORTLANDOR04102010238552501(C)(3)$15,000MEDICAL DIAGNOSIS
MARSHFIELD CLINIC RESEARCH FOUNDATION
1000 NORTH OAK AVENUEMARSHFIELDWI60302390452970501(C)(3)$10,000MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVENUE STE 300BOSTONMA02199042697983501(C)(3)$235,000MEDICAL DIAGNOSIS AND RESEARCH
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVENUECAMBRIDGEMA01109042103594501(C)(3)$100,000RESEARCH
MAYO CLINIC
4500 SAN PABLO ROADJACKSONVILLEFL32224593337028501(C)(3)$55,000MEDICAL DIAGNOSIS
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROADJACKSONVILLEFL32224593337028501(C)(3)$195,000RESEARCH
MCKINNON MEDICAL GROUP PLLC
351 N BUFFALO DRLAS VEGASNV89145453720025$25,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MCV ASSOCIATED PHYSICIANS
PO BOX 980599RICHMONDVA23298541581185501(C)(3)$30,000MEDICAL DIAGNOSIS
MDA CLINIC AT DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVELEBANONNH03756020222140501(C)(3)$20,000MEDICAL DIAGNOSIS
MEDICAL COLLEGE OF WISCONSIN
9200 WEST WISCONSIN AVENUEMILWAUKEEWI53226390806261501(C)(3)$45,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 606CHARLESTONSC29425576000722501(C)(3)$20,000MEDICAL DIAGNOSIS
MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL
3800 RESERVOIR RD NW 7TH FLOOR PHCWASHINGTONDC20007522228444501(C)(3)$35,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MERCY HEALTH FOUNDATION SPRINGFIELD
620 S GLENSTONE AVESPRINGFIELDIL65802320195818501(C)(3)$10,000MEDICAL DIAGNOSIS
METHODIST LE BONHEUR COMMUNITY OUTREACH
600 JEFFERSON AVEMEMPHISTN38105621251288501(C)(3)$25,000MEDICAL DIAGNOSIS
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2EAST LANSINGMI48824386005984501(C)(3)$25,000MEDICAL DIAGNOSIS
MITOCHONDRIA IN MOTION INC
4440 LINDELL BOULEVARD SUITE 1202ST LOUISMO63108832455511$146,905RESEARCH
MONTEFIORE MEDICAL CENTER
3351 STEUBEN AVE 3RD FLOORBRONXNY10467131740114501(C)(3)$50,000MEDICAL DIAGNOSIS
MYOGENE BIO LLC
907 WESTWOOD BOULEVARD 376LOS ANGELESCA90024831507489C-CORP$99,894RESEARCH
NATIONAL INSTITUTE OF NEUROLOGICAL DISORDERS AND STROKE
PO BOX 5801BETHESDAMD20824US GOVERNMENT$59,688RE
NEMOURS FOUNDATION
10140 CENTURION PARKWAYJACKSONVILLEFL32256590634433501(C)(3)$115,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
NEUROLOGY LLPC
1919 S WHEELING AVENUE SUITE 707TULSAOK74104731502318$25,000MEDICAL DIAGNOSIS
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026BOSTONMA02241135562308STATE OF NY$50,000MEDICAL DIAGNOSIS
NORTHEAST ALS CONSORTIUM
811 W 7TH STREET FLOOR 12LOS ANGELESCA90017562547779501(C)(3)$126,062RESEARCH
NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
710 N LAKESHORE DR SUITE 1119CHICAGOIL60611363097297STATE OF IL$50,000MEDICAL DIAGNOSIS
NORTHWESTERN UNIVERSITY
750 NORTH LAKE SHORE DRIVECHICAGOIL60611362167817501(C)(3)$161,507RESEARCH
OLIVE VIEW-UCLA EDUCATION AN RESEARCH INSTITUTE
14445 OLIVE VIEW DROLIVE VIEWCA91342952249539501(C)(3)$25,000MEDICAL DIAGNOSIS
OREGON HEALTH AN SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RDPORTLANDOR97239931176109STATE OF OR$25,000MEDICAL DIAGNOSIS
OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL
800 NE GLEN OAK AVEPEORIAIL61603383852646501(C)(3)$10,000MEDICAL DIAGNOSIS
PHOENIX CHILDRENS HOSPITAL
1919 EAST THOMAS RDPHOENIXAZ85016860422559501(C)(3)$10,000MEDICAL DIAGNOSIS
PONCE HEALTH SCIENCES UNIVERSITY
PO BOX 7004PONCEPR00732660379122501(C)(3)$20,000MEDICAL DIAGNOSIS
PURDUE UNIVERSITY
155 S GRANT STREETWEST LAFAYETTEGA47907356002041STATE OF IN$59,050RESEARCH
RADY CHILDRENS HOSPITAL FOUNDATION
3020 CHILDRENS WAY MC 5005SAN DIEGOCA92123330170626501(C)(3)$35,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
REGENTS OF THE UNIVERSITY OF CALIFORNIA AT BERKELEY
2195 HEARST AVE RM 120 MC 1104BERKELEYCA94720946002123501(C)(3)$243,203RESEARCH
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
4860 Y STREET SUITE 3850SACRAMENTOCA95817946036494501(C)(3)$137,500MEDICAL DIAGNOSIS AND RESEARCH
REGENTS OF THE UNIVERSITY OF MINNESOTA
PO BOX 1450MINNEAPOLISMN55485416007513501(C)(3)$275,000MEDICAL DIAGNOSIS AND RESEARCH
RESEARCH TRIANGLE INSTITUTE
PO BOX 900002RALEIGHNC27265560686338501(C)(3)$37,500ADVOCACY
RHODE ISLAND HOSPITAL
593 EDDY STREETPROVIDENCERI02903050258954501(C)(3)$10,000MEDICAL DIAGNOSIS
RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAYCHICAGOIL60612362174823501(C)(3)$20,000MEDICAL DIAGNOSIS
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN STREETNEWARKNJ07103462354111STATE OF NJ$165,000MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
SAINT LOUIS UNIVERSITY
221 NORTH GRAND BOULEVARDST LOUISMO63103430654872501(C)(3)$100,000RESEARCH
SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE
10901 NORTH TORREY PINES ROADLA JOLLACA92037510197108501(C)(3)$7,500RESEARCH
SANFORD CHILDRENS SPECIALTY CLINIC
415 NORTH 3RD AVENUEFARGOND58102911770748501(C)(3)$10,000MEDICAL DIAGNOSIS
SANFORD MEDICAL CENTER FARGO
415 NORTH 3RD AVENUEFARGOND58102911770748501(C)(3)$10,000MEDICAL DIAGNOSIS
SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAILSARASOTAFL34239596012500501(C)(3)$20,000MEDICAL DIAGNOSIS
SEATTLE CHILDRENS HOSPITAL
4300 ROOSEVELT WAY NESEATTLEWA98105910564748501(C)(3)$50,000MEDICAL DIAGNOSIS
SHRINERS HOSPITAL FOR CHILDREN PORTLAND
3101 SW SAM JACKSON PARK RPORTLANDOR97239362193608501(C)(3)$10,000MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN CHICAGO
3101 SW SAM JACKSON PARK RPORTLANDOR97239362193608501(C)(3)$20,000MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN TAMPA
3101 SW SAM JACKSON PARK RPORTLANDOR97239362193608501(C)(3)$25,000MEDICAL DIAGNOSIS
ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROADPORT JEFFERSONNY11777412076312501(C)(3)$20,000MEDICAL DIAGNOSIS
ST JOSEPHS HOSPITAL AND MEDICAL CENTER
350 WEST THOMAS RDPHOENIXAZ85013860096787501(C)(3)$12,500MEDICAL DIAGNOSIS
ST LUKES HEALTH SYSTEM
PO BOX 1663BOISEID83701820161600501(C)(3)$20,000MEDICAL DIAGNOSIS
ST PETERS HOSPITAL
310 S MANNING BLVDALBANYNY12208222262982501(C)(3)$150,000MEDICAL DIAGNOSIS
ST VINCENT HOSPITAL DBA PREVEA HEALTH
PO BOX 19070GREEN BAYWI54307390817529501(C)(3)$40,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
STANFORD CHILD HEALTH RESEARCH INSTITUTE
4100 BOHANNON ROADMENLO PARKCA94025770003859501(C)(3)$50,000MEDICAL DIAGNOSIS
STANFORD HEALTH CARE
PO BOX 742835LOS ANGELESCA90074946174066501(C)(3)$50,000MEDICAL DIAGNOSIS
STANFORD UNIVERSITY
3172 PORTER DRIVEPALO ALTOCA94304941156365501(C)(3)$10,000RESEARCH
STEVENS INSTITUTE OF TECHNOLOGY
ONE CASTLE POINT ON HUDSONHOBOKENNJ07030221487354501(C)(3)$100,000RESEARCH
TEMPLE UNIVERSITY
PO BOX 827997PHILADELPHIAPA19182231365971501(C)(3)$50,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
TEXAS NEUROLOGY PA
6301 GASTON AVE STE 300WDALLASTX75214752654757501(C)(3)$40,875MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH STLUBBOCKTX79430752668014501(C)(3)$93,500RESEARCH
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET UNIT 39NEW YORKNY10032135598093501(C)(3)$23,520RESEARCH
THE BOARD OF REGENTS OF THE UNIVERSITY OF WISCONSIN SYSTEM
600 HIGHLAND AVEMADISONWI53792396006492STATE OF WI$20,000MEDICAL DIAGNOSIS
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
1901 SOUTH FIRST STREET SUITE ACHAMPAIGNIL61820376000511501(C)(3)$396,416RESEARCH
THE CHILDREN'S HOSPITAL OF PHILADELPHIA
3615 CIVIC CENTER BLVDPHILADELPHIAPA19104231352166501(C)(3)$100,000RESEARCH
THE CURATORS OF THE UNIVERSITY MISSOURI
ONE HOSP DRIVECOLUMBIAMO65212436003859501(C)(3)$22,500MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE EMORY CLINIC INC
12 EXECUTIVE PARK DR NE RM 433ATLANTAGA30329582030692501(C)(3)$100,000MEDICAL DIAGNOSIS
THE GEORGE WASHINGTON UNIVERSITY
2121 EYE ST NW ROOM 601WASHINGTONDC20052530196584501(C)(3)$71,140RESEARCH
THE HOSPITAL OF SPECIAL SURGERY
535 EAST 70TH STNEW YORKNY10021131624135501(C)(3)$77,500MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE METHODIST HOSPITAL FOUNDATION
6560 FANNIN STREET 802HOUSTONTX77030760094743501(C)(3)$75,000MEDICAL DIAGNOSIS
THE METHODIST HOSPITAL RESEARCH INSTITUTE
6565 FANNIN STREETHOUSTONTX77030870721923501(C)(3)$139,250RESEARCH
THE METROHEALTH SYSTEM
PO BOX 73308CLEVELANDOH44193346004382501(C)(3)$25,000MEDICAL DIAGNOSIS
THE OHIO STATE UNIVERSITY
1960 KENNY RDCOLUMBUSOH43210316025986STATE OF OH$215,000MEDICAL DIAGNOSISAND REGISTRY SUPPORT
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
PO BOX 850HERSHEYPA17033246000376STATE OF PA$35,000MEDICAL DIAGNOSIS
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195CHARLOTTESVILLENC22904546001796501(C)(3)$30,000MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
141 INNOVATION SUITE 250IRVINECA92697952226406501(C)(3)$180,000MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
11000 KINROSS AVENUE SUITE 211LOS ANGELESCA90095956006143501(C)(3)$813,559MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE DEPT 0934LA JOLLACA92093956006144501(C)(3)$80,000MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1855 FOLSOM STREET SUITE 425SAN FRANCISCOCA94143946036493501(C)(3)$85,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE REGENTS OF THE UNIVERSITY OF COLORADO
500 13001 E 17TH PLACE RM W1124AURORACO80045846000555STATE OF CO$100,000RESEARCH
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 S STATE STREETANN ARBORMI48109386006309501(C)(3)$150,000MEDICAL DIAGNOSIS AND RESEARCH
THE RESEARCH FOUNDATION FOR THE SUNY ON BEHALF OF UNIVERSITY
35 STATE STALBANYNY12207141368361501(C)(3)$200,000RESEARCH
THE RESEARCH FOUNDATION OF SUNY AT BINGHAMTON UNIVERSITY
35 STATE STALBANYNY12207141368361501(C)(3)$100,000RESEARCH
THE RESEARCH FOUNDATION ON BEHALF OF SUNY
750 EAST ADAMS STREETSYRACUSENY13210141368361501(C)(3)$20,000MEDICAL DIAGNOSIS
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVECOLUMBUSOH43205316056230501(C)(3)$160,000MEDICAL DIAGNOSIS AND RESEARCH
THE SCRIPPS RESEARCH INSTITUTE
10550 NORTH TORREY PINES ROADLA JOLLACA92037330435954501(C)(3)$100,000RESEARCH
THE SPEAKER FOUNDATION LLC
1701 WILLIAMS COURT 1401COLUMBUSOH31904262087516501(C)(3)$5,000ADVOCACY
THE TOLEDO HOSPITAL DBA PROMEDICA TOLEDO CHILDRENS HOSPITAL
3949 SUNFOREST COURT TWIN OAKSTOLEDOOH43623344428256501(C)(3)$20,000MEDICAL DIAGNOSISMEDICAL BLDG SUITE 203
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREETNEW YORKNY10032135598093501(C)(3)$190,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREETPHILADELPHIAPA19104231352685501(C)(3)$230,000MEDICAL DIAGNOSIS AND RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1720 2ND AVENUE SOUTH AB 1170BIRMINGHAMAL35294636005396STATE OF AL$119,550MEDICAL DIAGNOSIS AND RESEARCH
THE UNIVERSITY OF IOWA
2 GILMORE HALLIOWA CITYIA52242426004813STATE OF IA$272,518MEDICAL DIAGNOSIS AND RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200CHAPEL HILLNC27599566001393501(C)(3)$120,000RESEARCH
THE UNIVERSITY OF OKLAHOMA SCIENCES CENTER
1000 STANTON BLVDOKLAHOMA CITYOK73117736017987STATE OF OK$100,000RESEARCH
THE UNIVERSITY OF ROCHESTER
601 ELMWOOD AVENUE BOX 673ROCHESTERNY14642160743209501(C)(3)$93,223RESEARCH
THOMAS JEFFERSON UNIVERSITY
125 S 9TH STPHILADELPHIAPA19107231352651501(C)(3)$100,000RESEARCH
TRINITY HEALTH DBA MERCY HEALTH SAINT MARYS
200 JEFFERSON SEGRAND RAPIDSMI49503272491974501(C)(3)$20,000MEDICAL DIAGNOSIS
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACEPITTSBURGHPA15213250965591501(C)(3)$100,000RESEARCH
UNIVERSITY FACULTY ASSOCIATES INC
2335 E KASHIAN LANE SUITE 301NIEVES FRESNOCA93701463969536501(C)(3)$20,000MEDICAL DIAGNOSIS
UNIVERSITY HOSPITAL BROOOKLYN SUNY DOWNSTATE MED CTR
750 EAST ADAMS STREETSYRACUSENY13210141368361501(C)(3)$35,000MEDICAL DIAGNOSIS
UNIVERSITY NEUROLOGY INC
77 GOODELL STBUFFALONY14203161359213501(C)(3)$25,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUEBIRMINGHAMAL35233636005396STATE OF AL$20,000MEDICAL DIAGNOSIS
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM 812LITTLE ROCKAR72205716046242STATE OF AR$20,000MEDICAL DIAGNOSIS
UNIVERSITY OF CALIFORNIA DAVIS
1 SHIELDS AVEDAVISCA95616946036494501(C)(3)$12,500MEDICAL DIAGNOSIS
UNIVERSITY OF CINCINNATI PHYSICIANS
51 GOODMAN DR SUITE 530CINCINNATIOH45221316000989501(C)(3)$35,000MEDICAL DIAGNOSIS
UNIVERSITY OF COLORADO DENVER
3100 MARINE STREET ROOM 479BOULDERCO80309846000555STATE OF CO$100,000MEDICAL DIAGNOSIS
UNIVERSITY OF COLORADO DENVER
1800 N GRANT ST STE 400DENVERCO80203846000555501(C)(3)$60,000RESEARCH
UNIVERSITY OF FLORIDA
219 GRINTER HALLGAINESVILLEFL32611596002052STATE OF FL$714,520MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF IOWA
2 GILMORE HALLIOWA CITYIA52242426004813STATE OF IOWA$100,000MEDICAL DIAGNOSIS
UNIVERSITY OF IOWA
2 GILMORE HALLIOWA CITYIA52242426004813STATE OF IOWA$15,000REGISTRY SUPPORT
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD MSC 1039KANSAS CITYKS66160481108830501(C)(3)$529,908RESEARCH
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300LOUISVILLEKY40202611029626501(C)(3)$20,000MEDICAL DIAGNOSIS
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGTON STREET 4TH FLOORBALTIMOREMD21201526002033STATE OF MD$169,373RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTHWORCESTERMA01655043167352STATE OF MA$525,000MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF MIAMI
1320 SOUTH DIXIE HIGHWAY SUITE 650CORAL GABLESFL33146590624458STATE OF FL$707,457MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREETJACKSONMS39216646008520STATE OF MS$20,000MEDICAL DIAGNOSIS
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985450 NEBRASKA MEDICAL CENTEROMAHANE68198470049123STATE OF NE$35,000MEDICAL DIAGNOSIS
UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICOALBUQUERQUENM87131856000642STATE OF NM$20,000MEDICAL DIAGNOSIS
UNIVERSITY OF OREGON
2727 LEO HARRIS PKWYEUGENEOR97401464727800501(C)(3)$70,000RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACEPITTSBURGHPA15213250965591STATE OF PA$150,841MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES
660433762$55,000MEDICAL DIAGNOSIS400 FD ROOSEVELT AVESAN JUANRQ
UNIVERSITY OF ROCHESTER
518 HYLAN BLDG BOX 270140ROCHESTERNY14627160743209501(C)(3)$520,564MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828SAN ANTONIOTX78229741586031STATE OF TX$75,000MEDICAL DIAGNOSIS
UNIVERSITY OF UTAH
75 S 2000 E RM 111SALT LAKE CITYUT84112876000525STATE OF UT$255,475MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902BURLINGTONVT05401030219303STATE OF VT$50,000MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472SEATTLEWA98195916001537STATE OF WA$96,992RESEARCH
UNIVERSITY OF WASHINGTON MEDICAL CENTER
1959 NE PACIFICSEATTLEWA98195916001537STATE OF WA$50,000MEDICAL DIAGNOSIS
UNIVERSITY OF WISCONSIN
4410 SOUTH 3RD STREETRIVER FALLSWI54022391805963501(C)(3)$70,000RESEARCH
UNIVERSITY PHYSICIANS - FINANCE
310 JESSE HALLCOLUMBIAOH65211436003859STATE OF MO$2,500MEDICAL DIAGNOSIS
UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753DALLASTX75284756002868STATE OF TX$190,000MEDICAL DIAGNOSIS
UW HOSPITAL AN CLINICS AUTHORITY
600 HIGHLAND AVEMILWAUKEEWI53792391835630501(C)(3)$20,000MEDICAL DIAGNOSIS
VALLEY CHILDREN'S HOSPITAL
9300 VALLEY CHILDRENS PLACEMADERACA93636941294954501(C)(3)$10,000MEDICAL DIAGNOSIS
VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236DALLASTX75312352528741501(C)(3)$100,000MEDICAL DIAGNOSIS
VIA CHRISTI HOSPITALS WICHITA INC
707 NORTH EMPORIA AVENUEWICHITAKS67214481172106501(C)(3)$20,000MEDICAL DIAGNOSIS
VIA CHRISTI HOSPITALS WICHITA INC
707 NORTH EMPORIA AVENUEWICHITAKS67214481172106501(C)(3)$15,000REGISTRY SUPPORT
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 980568RICHMONDVA23298546001758501(C)(3)$235,001RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVDWINSTON SALEMNC27157223849199501(C)(3)$20,000MEDICAL DIAGNOSIS
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVDWINSTON SALEMNC27157223849199501(C)(3)$99,746RESEARCH
WASHINGTON UNIVERSITY IN ST LOUIS
1054 ONE BROOKINGS DRIVEST LOUISMO63130430653611501(C)(3)$219,070MEDICAL DIAGNOSIS AND RESEARCH
WESLEY NEUROLOGY CLINIC PC
800 CENTERVIEW PARKWAY STE 305CORDOVATN38018621499155501(C)(3)$65,400MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
WEST VIRGINIA UNIVERSITY RESEARCH CORPORATION
886 CHESTNUT RIDGE ROADMORGANTOWNWV26506550665758501(C)(3)$20,000MEDICAL DIAGNOSIS
WRIGHT STATE UNIVERSITY
3640 COLONEL GLENN HWYDAYTONOH45435310732831501(C)(3)$100,000RESEARCH
YALE UNIVERSITY
PO BOX 1873NEW HAVENCT06508060646973501(C)(3)$454,698MEDICAL DIAGNOSIS AND RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org162Total501c3OrgCnt
Total Other Org47TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationUPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments0AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (10 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
ELLEN VOS
PRESIDENT & CEO$506,841$0$0$0$1,188$0$0$0$28,218$0$536,247$0$0$0
KAREN ANDREWS
SECRETARY & CHIEF LEGAL OFFICER$413,969$0$0$0$0$0$0$0$0$0$413,969$0$0$0
MICHAEL KENNEDY
TREASURER & CFO$286,145$0$0$0$1,188$0$8,913$0$26,798$0$323,044$0$0$0
JENNIFER ALLEBACH
SVP OF RECREATION AND CAMP PROGRAMS$139,615$0$10,000$0$594$0$3,008$0$0$0$153,217$0$0$0
KATHY KAUFFMANN
CHIEF STRATEGY DEVELOPMENT OFFICER$152,167$0$0$0$175$0$4,500$0$13,476$0$170,318$0$0$0
ADAM COTUMACCIO
CHIEF IMPACT & PHILANTHROPY OFFICER$283,820$0$0$0$414$0$9,000$0$37,389$0$330,623$0$0$0
JEANNE ZUCKER
SENIOR VP, HEALTHCARE PART$234,677$0$25,000$0$745$0$0$0$11,000$0$271,422$0$0$0
KRISTIN STEPHENSON
SVP, CHIEF POLICY & COMM E$202,927$0$0$0$180$0$4,827$0$35,771$0$243,705$0$0$0
MEREDITH WILSON
VP, HEALTHCARE COMMUNICATIONS & EDUC$179,377$0$0$0$270$0$5,256$0$2,931$0$187,834$0$0$0
MICHAEL BRUNO
CHIEF PEOPLE AND ADMINISTRATIVE OFFI$212,881$0$0$0$1,495$0$0$0$13,292$0$227,668$0$0$0

Schedule L IRS990ScheduleL

Grnt Asst Bnft Interested Prsn GrntAsstBnftInterestedPrsnGrp

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1STANLEY APPELBusinessNameLine1Txt
FieldValueIRS element (for citing)
Relationship With OrgBOARD MEMBERRelationshipWithOrgTxt
Cash Grant$239,250CashGrantAmt
Type Of AssistanceRESEARCH GRANTTypeOfAssistanceTxt
Assistance PurposeSEE PART VAssistancePurposeTxt

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1KAREN ANDREWSBusinessNameLine1Txt
FieldValueIRS element (for citing)
Relationship DescriptionOFFICERRelationshipDescriptionTxt
Transaction$413,969TransactionAmt
TransactionKAREN ANDREWS IS PRINCIPAL AT KAREN ANDREWS LAW LLC, AND IS NOT COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. AS AN EMPLOYEE ON PART VII, SECTION A.TransactionDesc
Sharing Of Revenues0SharingOfRevenuesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART III, LINE 1, COLUMN E:FormAndLineReferenceDesc
ExplanationTHE GRANT AMOUNT WENT TO STANLEY APPEL'S INSTITUTION, THE METHODIST HOSPITAL RESEARCH INSTITUTE. HE WAS THE RESEARCHER THAT THE GRANT BENEFITS.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Closely Held Stock SecuritiesCloselyHeldStockGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution17ContributionCnt
Noncash Contributions Rpt F990$59,097NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts0ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, COLUMN (B):FormAndLineReferenceDesc
ExplanationAMOUNTS IN COLUMN B REPRESENT THE NUMBER OF CONTRIBUTIONS.ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11BALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12CTHE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCE DEPARTMENT IN CONJUNCTION WITH LEGAL.
FORM 990, PART VI, SECTION B, LINE 15A COMPENSATION STUDY WAS DONE AND WAS APPROVED BY THE BOARD OF DIRECTORS.
FORM 990, PART VI, SECTION C, LINE 19GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
FORM 990, PART XI, LINE 9:CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS -7,921,219.
FORM 990, PART XII LINE 2C:THE ORGANIZATION HAS A COMMITTEE RESPONSIBLE FOR THE OVERSIGHT OF THE AUDIT AS WELL AS THE SELECTION OF THE INDEPENDENT ACCOUNTANT.

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