FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC: Form 990, tax year 2020
View the entire original 990 at ProPublica ↗
- Organization
- FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC (EIN 01-0771966)
- Tax period
- 2020-01-01 to 2020-12-31
- Filed
- 2021-10-13
- IRS object ID
- 202142869349300324
- Schema version
- 2020v4.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2021-10-13T10:33:12-04:00 | ReturnTs |
| Tax Period End | 2020-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 020644478 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Wagner & Company CPA | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1655 W Market St Suite 225 | AddressLine1Txt |
| City | Akron | CityNm |
| State Abbreviation | OH | StateAbbreviationCd |
| ZIP | 44313 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2020-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 010771966 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Fibromuscular Dysplasia Society of America Inc | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | FIBR | BusinessNameControlTxt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 26777 Lorain Road STE 311 | AddressLine1Txt |
| City | North Olmsted | CityNm |
| State Abbreviation | OH | StateAbbreviationCd |
| ZIP | 44070 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Bradley Daar | PersonNm |
| Person Title | President | PersonTitleTxt |
| Phone | 2168342410 | PhoneNum |
| Signature | 2021-10-04 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | Bradley | PersonFirstNm |
| Person Last | Daar | PersonLastNm |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Steven Wagner | PreparerPersonNm |
| PTIN | P00027993 | PTIN |
| Phone | 3308641550 | PhoneNum |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 0 | TrustedCustomerCd |
| OOB Security Verification | 00 | OOBSecurityVerificationCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2020 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | FMDSA | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $150,966 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.fmdsa.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2003 | FormationYr |
| Legal Domicile State | DE | LegalDomicileStateCd |
| Activity Or Mission | FMDSA is a public health charity working towards better diagnosis and treatment of Fibromuscular Displasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community. | ActivityOrMissionDesc |
| Voting Members Governing Body | 11 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 11 | VotingMembersIndependentCnt |
| Total Employee | 2 | TotalEmployeeCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $210,821 | PYContributionsGrantsAmt |
| CY Contributions Grants | $147,225 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $13,921 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $3,702 | CYProgramServiceRevenueAmt |
| PY Investment Income | $171 | PYInvestmentIncomeAmt |
| CY Investment Income | $39 | CYInvestmentIncomeAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $224,913 | PYTotalRevenueAmt |
| CY Total Revenue | $150,966 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $41,250 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $51,666 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $72,189 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $72,874 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $18,567 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $59,588 | PYOtherExpensesAmt |
| CY Other Expenses | $29,864 | CYOtherExpensesAmt |
| PY Total Expenses | $173,027 | PYTotalExpensesAmt |
| CY Total Expenses | $154,404 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $51,886 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$3,438 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $154,206 | TotalAssetsBOYAmt |
| Total Assets EOY | $161,979 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $2,709 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $13,920 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $151,497 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $148,059 | NetAssetsOrFundBalancesEOYAmt |
| Mission | FMDSA is a public health charity working towards better diagnosis and treatment of Fibromuscular Displasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $55,980 | ExpenseAmt |
| Desc | Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. The first patient was entered in 2009. Over the last year, enrollment in the registry increased from 2675 patients to 3018 patients at the end of 2020. We currently have 17 registry centers constituting the largest FMD registry. Seattle Childrens Hospital and the University of Colorado joined the registry in 2020. Our goal is to continue enrolling patients and adding additional centers. The registry data helped us to learn more about FMD, how to treat the disease and has driven research hopefully leading to a cure. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $21,418 | ExpenseAmt |
| Desc | Patient Support:As we spread awareness, and see a drastic increase in diagnosed patients, patient support becomes a larger part of our responsibility. Due to the demand, we have continued to grow the Volunteer Support Network. These volunteers have been identified in the US and internationally. Many groups have evolved to the point of holding local meetings. We also offer support through social media platforms including Inspire, Instagram and Facebook where we have thousands of patients participating. We are also active on Twitter allowing patients, clinicians and physicians to communicate. We continue to add FMD materials and videos to our website and patient toolbox. We offer FMD materials in Spanish and Japanese and work with our international colleagues who offer materials in several other languages. Finally, we continue to participate in patient meetings throughout the US and internationally, offering guidanace and resources to patients. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $16,493 | ExpenseAmt |
| Desc | Public Awareness Program:This program was initiated in July 2005 as a Grass Roots Awareness Program. We help patients educate their family, friends and healthcare providers about FMD with material provided by FMDSA. We have many valuable resources on our website to help communicate FMD in laymens terms, including a Public Service Announcement, as well as more in depth information for physicians that can help bridge the gap and build a better relationship between patient and physician. The Public Awareness Program also includes educational work with media outlets, other organizations, journals, speaking engagements and articles. We also offer live Zoom meetings. There is rarely a day that goes by that we are contacted by a newly diagnosed patient. We have seen the diagnosis rate grow in direct proportion to our programs. See additional info on Schedule O | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (4 entries)
| ExpenseExpenseAmt | DescDesc |
|---|---|
| $7,289 | Healthcare Professional Education Program:This program combines attending medical conferences and presenting within hospital environments and is a major focus of FMDSA and has been an avenue to educate thousands of medical professionals. The result is a greater awareness of FMD within the medical community, improved medical expertise for patients, and development of critical partnerships that are helping us spur more research activity. In addition to our Physician page, we have also maintained a research Network Page on the website containing all the information published from the patient registry and other researchers studying FMD. There are also PowerPoint presentations and videos available for health care providers. We have seen a direct correlation between our awareness and educational programs to the increase in patients getting diagnosed. Unfortuntely, in 2020, our 13th annual meeting was postponed due to COVID. See additonal info on Schedule O. |
| $6,193 | Annual Conference: FMDSA conferences are held to educate patients and medical professionals on the latest data being released. Attendance grows annually, attendees being: newly diagnosed patients, those who have had spontaneous coronary dissection (SCAD), caregivers and medical professionals interested in learning about FMD. In addition to learning more about FMD, the annual meeting provides an opportunity for patients to meet others also affected, this opportunity is one of the biggest draws. We host a separate meeting with all of the investigators that are participating in the patient registry to go over updates, current and future research projects. The forum has provided a platform for different research projects including blood draws, saliva collection and quality of life studies. There is no other meeting in the world where so many FMD patients have had the opportunity to participate in research. In 2020, the meeting was postponed due to COVID. |
| $4,256 | FMD Research: FMDSA did not directly fund any research grants in 2020 aside from sponsoring The United States Registry for Fibromuscular Dysplasia, which produces research data that gets published in major medical journals. This category includes expenses related to the time we spend talking with candidate reserachers and follow up on medical data as well as time spent on the coordination of research projects. |
| $2,094 | Website Education: One of our most important charters is to educate patients and family about FMD. We have become the recognized leader around the world for FMD support and resources. Our website continues to grow exponentially since inception with patients, family members and physicians from all over the world using our resources, especially our new Patient and Physician tool boxes. FMDSA is the premier resource of FMD information for the layperson and an excellent place for physicians to easliy find medical articles and abstracts. The FMDSA website also offers patient resources and community events for those wanting to get more involved. The awareness, education, and research happening worldwide is a direct result of what FMDSA started in 2003. |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $19,832 | TotalOtherProgSrvcExpenseAmt |
| Total Program Service Expenses | $113,723 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | false | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | false | ForeignActivitiesInd |
| More Than5000 K To Org | false | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Transaction With Control Ent | false | TransactionWithControlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 2 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Form8899 Filedind | false | Form8899Filedind |
| Form1098 C Filed | false | Form1098CFiledInd |
| DAF Excess Business Holdings | false | DAFExcessBusinessHoldingsInd |
| Taxable Distributions | false | TaxableDistributionsInd |
| Distribution To Donor | false | DistributionToDonorInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 11 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 11 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (true) | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Pamela Mace | PersonNm |
| Phone | 2168342410 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 26777 Lorain Road | AddressLine1Txt |
| City | North Olmsted | CityNm |
| State Abbreviation | OH | StateAbbreviationCd |
| ZIP | 44070 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (12 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Key EmployeeKeyEmployeeInd |
|---|---|---|---|---|---|---|---|---|
| Christi Eberhardt | ||||||||
| Director at Large | 0.50 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Molly Clark | ||||||||
| Director at Large | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Rochelle DesRochers | ||||||||
| Director at Large | 15.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Sally Albrigo | ||||||||
| Director at Large | 0.50 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Rosie Miklavcic | ||||||||
| Director at Large | 1.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Claudia Kime | ||||||||
| Director at Large | 4.00 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Lisa Foster | ||||||||
| Director at Large | 0.50 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Dawn Marisch | ||||||||
| Director at Large | 0.50 | 0.00 | Yes (X) | $0 | $0 | $0 | ||
| Bradley Daar | ||||||||
| President | 3.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Carol Rogers | ||||||||
| Vice President | 2.00 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Virginia Edleman | ||||||||
| Secretary | 4.50 | 0.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |
| Pamela Mace | ||||||||
| Executive Director | 60.00 | 0.00 | $0 | $0 | $0 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $0 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $0 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 0 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| All Other Contributions | $147,225 | AllOtherContributionsAmt |
| Total Contributions | $147,225 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Annual MeetingConf | Desc |
| Business | 541900 | BusinessCd |
| Total Revenue Column | $3,702 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $3,702 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $3,702 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $39 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $39 | RelatedOrExemptFuncIncomeAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $150,966 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $3,741 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $51,666 | TotalAmt |
| Program Services | $51,666 | ProgramServicesAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $67,695 | TotalAmt |
| Program Services | $49,670 | ProgramServicesAmt |
| Management And General | $6,929 | ManagementAndGeneralAmt |
| Fundraising | $11,096 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,179 | TotalAmt |
| Program Services | $3,800 | ProgramServicesAmt |
| Management And General | $530 | ManagementAndGeneralAmt |
| Fundraising | $849 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,146 | TotalAmt |
| Management And General | $4,146 | ManagementAndGeneralAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,108 | TotalAmt |
| Program Services | $1,715 | ProgramServicesAmt |
| Management And General | $4,283 | ManagementAndGeneralAmt |
| Fundraising | $110 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,300 | TotalAmt |
| Management And General | $3,300 | ManagementAndGeneralAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,957 | TotalAmt |
| Program Services | $5,957 | ProgramServicesAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,378 | TotalAmt |
| Management And General | $2,378 | ManagementAndGeneralAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt | Program ServicesProgramServicesAmt |
|---|---|---|---|---|
| Bank and merchant fees | $1,279 | $548 | $731 | |
| State Registration fees | $3,500 | $3,500 | ||
| Misc software | $3,196 | $2,281 | $915 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $154,404 | TotalAmt |
| Program Services | $113,723 | ProgramServicesAmt |
| Management And General | $22,114 | ManagementAndGeneralAmt |
| Fundraising | $18,567 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $32,456 | BOYAmt |
| EOY | $52,291 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $79,649 | BOYAmt |
| EOY | $109,688 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $24,567 | BOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,674 | BOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $14,860 | BOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $154,206 | BOYAmt |
| EOY | $161,979 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,709 | BOYAmt |
| EOY | $20 | EOYAmt |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $13,900 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,709 | BOYAmt |
| EOY | $13,920 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $151,497 | BOYAmt |
| EOY | $148,059 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $151,497 | BOYAmt |
| EOY | $148,059 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $154,206 | BOYAmt |
| EOY | $161,979 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$3,438 | ReconcilationRevenueExpnssAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | Yes (true) | AccountantCompileOrReviewInd |
Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| FS Audited | false | FSAuditedInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $161,377 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $126,926 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $175,608 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $210,821 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $147,225 | CurrentTaxYearAmt |
| Total | $821,957 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $8,207 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $11,520 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $8,430 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $13,921 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $3,702 | CurrentTaxYearAmt |
| Total | $45,780 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $169,584 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $138,446 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $184,038 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $224,742 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $150,927 | CurrentTaxYearAmt |
| Total | $867,737 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $867,737 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $52 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $21 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $15 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $171 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $39 | CurrentTaxYearAmt |
| Total | $298 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $52 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $21 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $15 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $171 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $39 | CurrentTaxYearAmt |
| Total | $298 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $169,636 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $138,467 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $184,053 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $224,913 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $150,966 | CurrentTaxYearAmt |
| Total | $868,035 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.99970 | PublicSupportCY509Pct |
| Public Support PY509 | 0.99960 | PublicSupportPY509Pct |
| Investment Income CY | 0.00000 | InvestmentIncomeCYPct |
| Investment Income PY | 0.00000 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable
Recipient Business Name RecipientBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | MCORRP University of Michigan | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 24 Frank Lloyd Wright Drive | AddressLine1Txt |
| City | Ann Arbor | CityNm |
| State Abbreviation | MI | StateAbbreviationCd |
| ZIP | 48106 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cash Grant | $51,666 | CashGrantAmt |
| Valuation Method Used | Cash | ValuationMethodUsedDesc |
| Purpose Of Grant | Patient registry | PurposeOfGrantTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (6 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990 governing body review Part VI line 11 | Form 990 is reviewed by the Chairperson and distributed electronically to each board member prior to signature and transmission to the IRS. |
| Conflict of interest policy compliance Part VI line 12c | Employees and directors of FMDSA are required to sign the Volunteer Handbook which discusses various policies, including the code of conduct, conflict of interest and whistleblower policies. |
| CEO executive director top management comp Part VI line 15a | The pay of the executive director is determined by the board of directors. |
| Other officer or key employee compensation Part VI line 15b | The pay of the executive director is determined by the board of directors. |
| Governing documents etc available to public Part VI line 19 | The governing documents can be obtained through proper request to the organziation through contact information available on the website. |
| General explanation attachment | Other states registered:Alabama AL08-351AlaskaArizona 25431ArkansasCalifornia CT147629Colorado 20083005977Florida CH16556HawaiiIllinois 01-105,443Kansas 422-044-8Kentucky 6211Maryland 13970Massachusetts 48394Michigan MICS 28540MinnesotaMissouri CO-157-08New Hampshire 17337 Additional states registered:New Jersey CH-30785-00New MexicoNew York 20-47-45North Carolina SL004981North Dakota 9150Ohio 03-4369Oklahoma 4312203627Oregon 38826Pennsylvania 36253Rhode Island 97-3568South Carolina P15624Tennessee CO10684Utah 7096298-CHARVirginiaWashington 25347West VirginiaWisconsin 10631-800 Addition to Part III, Health Care Professionals:In 2020, before the pandemic, we educated medical professionals worldwide at the International Stroke Conference held in California. From there, we participated in the FMD/SCAD Symposium at Emory Hospital in Atlanta, Georgia. In addition, medical advisory board members continue to participate in medical conferences and grand rounds presenting on FMD. The awareness, education and research happening around the world is a direct result of what FMDSA started in 2003. In November 2019, we were honored to participate in the International Symposium of Fibromuscular Dysplasia & Related Vascual Disorders, held in Warsaw. This event also hosted separate patient meetings where we were able to offer guidance and resources to the patients in Poland. Additional info to Part III, Public Awareness:In addition, we also participate in events such as the Cleveland Marathon which helps increase awareness of the disease as well as to raise funds to support our programs. Unfortunately, in 2020, the marathon was cancelled due to COVID. As stated above, in August 2019, we participated in the second, Vancouver SCAD Conference and in November, we were honored to participate in the International Symposium of Fibromuscular Dysplasia & Related Vascular Disorders, held in Warsaw, Poland. These international research meetings continue to grow and are very well attended. Physicians and researchers from around the world attend and share their knowledge, and together they identify research priorities. |
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