MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization: MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period: 2020-01-01 to 2020-12-31
Filed: 2021-10-25
IRS object ID: 202112989349300036
Schema version: 2020v4.1
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule L
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2021-10-25T10:29:51-05:00	ReturnTs
Tax Period End	2020-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	221478099	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	COHNREZNICK LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	14 SYLVAN WAY	AddressLine1Txt
City	PARSIPPANY	CityNm
State Abbreviation	NJ	StateAbbreviationCd
ZIP	070543801	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2020-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131665552	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	MUSCULAR DYSTROPHY ASSOCIATION INC	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Business Name Control	MUSC	BusinessNameControlTxt
Phone	3122605900	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK ST NO 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	MICHAEL J KENNEDY	PersonNm
Person Title	CFO	PersonTitleTxt
Phone	3122605900	PhoneNum
Signature	2021-10-25	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	MICHAEL	PersonFirstNm
Person Last	KENNEDY	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	LORI ROTHE YOKOBOSKY CPA	PreparerPersonNm
PTIN	P01273422	PTIN
Phone	9732283500	PhoneNum
Preparation	2021-10-23	PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	2	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2020	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	DR DONALD S WOOD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK ST NO 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$116,883,195	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.MDA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1950	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.	ActivityOrMissionDesc
Voting Members Governing Body	18	VotingMembersGoverningBodyCnt
Voting Members Independent	18	VotingMembersIndependentCnt
Total Employee	593	TotalEmployeeCnt
Total Volunteers	300000	TotalVolunteersCnt
Total Gross UBI	$410,505	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$0	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$99,904,218	PYContributionsGrantsAmt
CY Contributions Grants	$51,830,703	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$2,526,139	PYInvestmentIncomeAmt
CY Investment Income	$14,247,084	CYInvestmentIncomeAmt
PY Other Revenue	-$1,457,582	PYOtherRevenueAmt
CY Other Revenue	-$2,370,514	CYOtherRevenueAmt
PY Total Revenue	$100,972,775	PYTotalRevenueAmt
CY Total Revenue	$63,707,273	CYTotalRevenueAmt
PY Grants And Similar Paid	$26,371,876	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$15,019,770	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$47,805,447	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$31,271,925	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$26,665,147	CYTotalFundraisingExpenseAmt
PY Other Expenses	$38,572,476	PYOtherExpensesAmt
CY Other Expenses	$22,080,747	CYOtherExpensesAmt
PY Total Expenses	$112,749,799	PYTotalExpensesAmt
CY Total Expenses	$68,372,442	CYTotalExpensesAmt
PY Revenues Less Expenses	-$11,777,024	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	-$4,665,169	CYRevenuesLessExpensesAmt
Total Assets BOY	$81,509,086	TotalAssetsBOYAmt
Total Assets EOY	$71,915,435	TotalAssetsEOYAmt
Total Liabilities BOY	$82,222,737	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$95,625,096	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	-$713,651	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	-$23,709,661	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$19,086,727	ExpenseAmt
Grant	$6,143,702	GrantAmt
Desc	THE SPREAD OF A NOVEL STRAIN OF CORONAVIRUS ("COVID-19") HAS CAUSED SIGNIFICANT BUSINESS DISRUPTIONS ON THE ENTIRE GLOBE BEGINNING IN THE FIRST QUARTER OF 2020. COVID-19 PRESENTED EXTREME CHALLENGES IN 2020 FOR THE ASSOCIATION REGARDING FUNDRAISING ACTIVITIES. EVENT FUNDRAISING WAS DOWN OVER 46% COMPARED TO HISTORICAL TRENDS DUE TO STAY AT HOME ORDERS, RESTRICTIONS ON IN-PERSON GATHERINGS, AND IMPACTS TO SPONSOR AND DONOR LEVELS OF GIVING. THE PANDEMIC CAUSED THE ASSOCIATION TO QUICKLY PIVOT IN ORDER TO CONTINUE TO PROVIDE THEIR MISSION BENEFITS, INCLUDING MOVING TO VIRTUAL FUNDRAISING AND A VIRTUAL PLATFORM FOR SUMMER CAMP AND CARE CENTER SUPPORT. THE ASSOCIATION QUICKLY REDUCED TOTAL EXPENSES BY 37% IN RESPONSE TO THE DECLINE IN FUNDRAISING, WHILE AT THE SAME TIME, PRIORITIZING PROGRAM SERVICES (E.G., RESEARCH, PUBLIC HEALTH, AND PATIENT AND COMMUNITY SERVICES), WITH SPEND IN THESE CRITICAL AREAS AT $27 MILLION IN 2020.HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE AFFECTED BY MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES. PER CDC GUIDELINES, THE 2020 SUMMER CAMP PROGRAM WAS HELD VIRTUALLY.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$11,018,895	ExpenseAmt
Grant	$8,849,011	GrantAmt
Desc	RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING MORE THAN 40 NEUROMUSCULAR DISEASES INCLUDING MUSCULAR DYSTROPHY, ALS, AND MANY OTHERS. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS AND CURE. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR UMBRELLA MODEL OF FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$6,763,708	ExpenseAmt
Grant	$27,057	GrantAmt
Desc	PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE U.S., OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE, A FLAGSHIP EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NMD COMMUNITY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$36,869,330	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	Yes (1)	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	0	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	Yes (1)	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	100	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	593	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	18	GoverningBodyVotingMembersCnt
Independent Voting Member	18	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ID	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WY	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	JENNIFER BUZALSKI CONTROLLER	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	3122605975	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK STREET STE 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (33 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Key EmployeeKeyEmployeeInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
ANJAN ARALIHALLI
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ANKUR GHIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
BENJAMIN CUMBO III
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHARLES D SCHOOR ESQ
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ELIZABETH MCNALLY MD PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
EUGENE WILLIAMS
DIRECTOR	1.00	Yes (X)	$0	$0	$0
GOVERNOR BRAD HENRY
VICE CHAIR	1.00	Yes (X)	$0	$0	$0
HON ROBERT E PIPIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JENNIFER GOTTLIEB
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN COSTANTINO
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN E HOWELL
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN TOGNINO
DIRECTOR	1.00	Yes (X)	$0	$0	$0
KRISTINE WELKER
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LILIAN WU PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LOUIS KUNKEL PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MARK SMITH
DIRECTOR	1.00	Yes (X)	$0	$0	$0
PATRICIA NAZEMETZ
OUTGOING DIRECTOR	1.00	Yes (X)	$0	$0	$0
STEVE FARELLA
CHAIRMAN	5.00	Yes (X)	$0	$0	$0	Yes (X)
STEVE FELSHER
OUTGOING DIRECTOR	1.00	Yes (X)	$0	$0	$0
VICTOR WRIGHT
DIRECTOR	1.00	Yes (X)	$0	$0	$0
DONALD WOOD
PRESIDENT & CEO (NOV-DEC)	50.00		$14,663	$0	$0	Yes (X)
ELLEN VOS
PRESIDENT & CEO (JAN-OCT)	50.00		$823,260	$0	$29,947	Yes (X)
KAREN ANDREWS
SEC. & CHIEF LEGAL OFFICER (JAN-OCT)	50.00		$382,063	$0	$0	Yes (X)
LINDSAY KASSOF
SEC. & ASSOC LEGAL COUN (NOV-DEC)	50.00		$169,755	$0	$15,838	Yes (X)
MICHAEL KENNEDY
TREASURER & CFO	50.00		$280,612	$0	$30,270	Yes (X)
JENNIFER ALLEBACH
SVP OF CAMP PROGRAMS (JAN-NOV)	50.00		$200,697	$0	$2,691		Yes (X)
KATHY KAUFFMANN
CHIEF STRATEGY DEVELOPMENT OFFICER	50.00		$325,534	$0	$38,048		Yes (X)
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	50.00		$215,353	$0	$24,043		Yes (X)
DEBORAH BARGE
SVP, CHIEF FIELD OFFICER	50.00		$234,488	$0	$1,118			Yes (X)
JEANNE ZUCKER
SVP HEALTHCARE PARTNERSHIPS	50.00		$230,581	$0	$12,760			Yes (X)
JONATHON NAGLE
CHIEF TECHNOLOGY OFFICER	50.00		$221,784	$0	$22,931			Yes (X)
JOSHUA ACKLEY
VP OF PR & COMMUNICATIONS	50.00		$219,512	$0	$9,711			Yes (X)
KRISTIN STEPHENSON
CHIEF ADVOCACY & CARE SERVICES OFFICER	50.00		$228,161	$0	$31,349			Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$3,546,463	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$218,706	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	44	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	WAINSCOTT HOLDING LLC	BusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	18 EAST LANCASTER AVENUE	AddressLine1Txt
City	WYNEEWOOD	CityNm
State Abbreviation	PA	StateAbbreviationCd
ZIP	19096	ZIPCd

Field	Value	IRS element (for citing)
Services	PATIENT DATABASE BUILDOUT	ServicesDesc
Compensation	$183,523	CompensationAmt

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	1	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$296,677	FederatedCampaignsAmt
Fundraising	$13,044,526	FundraisingAmt
Government Grants	$329,833	GovernmentGrantsAmt
All Other Contributions	$38,159,667	AllOtherContributionsAmt
Noncash Contributions	$803,597	NoncashContributionsAmt
Total Contributions	$51,830,703	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$965,018	TotalRevenueColumnAmt
Exclusion	$965,018	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$77,828	TotalRevenueColumnAmt
Exclusion	$77,828	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$62,468,245	SecuritiesAmt
Other	$65,015	OtherAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$49,089,820	SecuritiesAmt
Other	$161,374	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$13,378,425	SecuritiesAmt
Other	-$96,359	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$13,282,066	TotalRevenueColumnAmt
Exclusion	$13,282,066	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$1,061,931	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$13,044,526	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$3,923,728	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$2,861,797	TotalRevenueColumnAmt
Exclusion	-$2,861,797	ExclusionAmt

Field	Value	IRS element (for citing)
Gaming Gross Income	$3,950	GamingGrossIncomeAmt
Gaming Direct Expenses	$1,000	GamingDirectExpensesAmt

Net Income From Gaming NetIncomeFromGamingGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,950	TotalRevenueColumnAmt
Exclusion	$2,950	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	QUEST ADVERTISING	Desc
Business	541800	BusinessCd
Total Revenue Column	$410,505	TotalRevenueColumnAmt
Unrelated Business Revenue	$410,505	UnrelatedBusinessRevenueAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$410,505	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$63,707,273	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$410,505	UnrelatedBusinessRevenueAmt
Exclusion	$11,466,065	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$12,732,489	TotalAmt
Program Services	$12,732,489	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$2,287,281	TotalAmt
Program Services	$2,287,281	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$2,552,774	TotalAmt
Program Services	$1,194,695	ProgramServicesAmt
Management And General	$183,270	ManagementAndGeneralAmt
Fundraising	$1,174,809	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$20,861,812	TotalAmt
Program Services	$9,763,302	ProgramServicesAmt
Management And General	$1,497,723	ManagementAndGeneralAmt
Fundraising	$9,600,787	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$312,822	TotalAmt
Program Services	$146,401	ProgramServicesAmt
Management And General	$22,458	ManagementAndGeneralAmt
Fundraising	$143,963	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$5,359,282	TotalAmt
Program Services	$2,508,138	ProgramServicesAmt
Management And General	$384,756	ManagementAndGeneralAmt
Fundraising	$2,466,388	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$2,185,235	TotalAmt
Program Services	$1,022,687	ProgramServicesAmt
Management And General	$156,884	ManagementAndGeneralAmt
Fundraising	$1,005,664	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$380,632	TotalAmt
Program Services	$47,759	ProgramServicesAmt
Management And General	$140,631	ManagementAndGeneralAmt
Fundraising	$192,242	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$130,770	TotalAmt
Management And General	$130,770	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$628,981	TotalAmt
Program Services	$628,981	ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$204,877	TotalAmt
Management And General	$204,877	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,005,708	TotalAmt
Program Services	$1,036,311	ProgramServicesAmt
Management And General	$587,380	ManagementAndGeneralAmt
Fundraising	$382,017	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$4,128,256	TotalAmt
Program Services	$824,857	ProgramServicesAmt
Fundraising	$3,303,399	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$6,292,064	TotalAmt
Program Services	$2,195,251	ProgramServicesAmt
Management And General	$510,269	ManagementAndGeneralAmt
Fundraising	$3,586,544	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$85,082	TotalAmt
Management And General	$66,182	ManagementAndGeneralAmt
Fundraising	$18,900	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$3,310,750	TotalAmt
Program Services	$1,539,514	ProgramServicesAmt
Management And General	$377,547	ManagementAndGeneralAmt
Fundraising	$1,393,689	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$372,048	TotalAmt
Program Services	$174,157	ProgramServicesAmt
Fundraising	$197,891	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$38,161	TotalAmt
Program Services	$32,512	ProgramServicesAmt
Management And General	$2,215	ManagementAndGeneralAmt
Fundraising	$3,434	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$267,278	TotalAmt
Management And General	$267,278	ManagementAndGeneralAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$745,638	TotalAmt
Program Services	$309,660	ProgramServicesAmt
Management And General	$87,424	ManagementAndGeneralAmt
Fundraising	$348,554	FundraisingAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$617,346	TotalAmt
Program Services	$169,401	ProgramServicesAmt
Management And General	$165,610	ManagementAndGeneralAmt
Fundraising	$282,335	FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDesc	TotalTotalAmt	FundraisingFundraisingAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt
EVENT EXPENSES	$1,861,624	$1,861,624
MISCELLANEOUS EXPENSES	$1,011,532	$702,907	$255,934	$52,691

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$68,372,442	TotalAmt
Program Services	$36,869,330	ProgramServicesAmt
Management And General	$4,837,965	ManagementAndGeneralAmt
Fundraising	$26,665,147	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$1,773,766	TotalAmt
Program Services	$254,634	ProgramServicesAmt
Management And General	$430,828	ManagementAndGeneralAmt
Fundraising	$1,088,304	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$5,027,072	BOYAmt
EOY	$4,348,343	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$4,021,308	BOYAmt
EOY	$3,540,042	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$4,999,917	BOYAmt
EOY	$4,426,491	EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

Field	Value	IRS element (for citing)
BOY	$1,000,000	BOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$5,064,978	BOYAmt
EOY	$4,398,695	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$4,321,022	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$2,421,004	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$2,666,598	BOYAmt
EOY	$1,900,018	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$58,344,302	BOYAmt
EOY	$53,276,935	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$384,911	BOYAmt
EOY	$24,911	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$81,509,086	BOYAmt
EOY	$71,915,435	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$7,212,362	BOYAmt
EOY	$4,847,691	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$11,383,214	BOYAmt
EOY	$7,681,991	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$1,721,885	BOYAmt
EOY	$555,933	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$7,500,000	BOYAmt
EOY	$13,000,000	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$54,405,276	BOYAmt
EOY	$69,539,481	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$82,222,737	BOYAmt
EOY	$95,625,096	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	-$5,966,906	BOYAmt
EOY	-$27,557,359	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$5,253,255	BOYAmt
EOY	$3,847,698	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	-$713,651	BOYAmt
EOY	-$23,709,661	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$81,509,086	BOYAmt
EOY	$71,915,435	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	-$4,665,169	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	-$6,000,627	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	-$12,330,214	OtherChangesInNetAssetsAmt
Info In Schedule O Part XII	Yes (X)	InfoInScheduleOPartXIIInd
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$117,071,918	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$113,962,253	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$103,881,886	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$99,904,218	CurrentTaxYearMinus1YearAmt
Current Tax Year	$51,829,703	CurrentTaxYearAmt
Total	$486,649,978	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$117,071,918	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$113,962,253	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$103,881,886	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$99,904,218	CurrentTaxYearMinus1YearAmt
Current Tax Year	$51,829,703	CurrentTaxYearAmt
Total	$486,649,978	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$486,649,978	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,736,766	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,920,477	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,548,677	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,552,285	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,042,846	CurrentTaxYearAmt
Total	$7,801,051	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$369,757	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$298,749	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$373,297	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$286,145	CurrentTaxYearMinus1YearAmt
Current Tax Year	$410,505	CurrentTaxYearAmt
Total	$1,738,453	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$10,013,249	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$8,664,556	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$7,167,108	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$2,994,445	CurrentTaxYearMinus1YearAmt
Current Tax Year	$1,065,881	CurrentTaxYearAmt
Total	$29,905,239	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$526,094,721	TotalSupportAmt
Public Support CY170	0.92500	PublicSupportCY170Pct
Public Support PY170	0.91970	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	FormAndLineReferenceDesc
Explanation	OTHER REVENUE - 2016 AMOUNT: $ 312,578. 2017 AMOUNT: $ 347,946. SPECIAL EVENTS - 2016 AMOUNT: $ 8,970,739. 2017 AMOUNT: $ 7,942,063. 2018 AMOUNT: $ 6,990,769. 2019 AMOUNT: $ 2,928,946. 2020 AMOUNT: $ 1,061,931. GAMING EVENTS - 2016 AMOUNT: $ 729,932. 2017 AMOUNT: $ 374,547. 2018 AMOUNT: $ 176,339. 2019 AMOUNT: $ 65,499. 2020 AMOUNT: $ 3,950.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$628,981	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$628,981	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$35,957,577	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$36,586,558	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$510,119	CurrentYearMinus3Amt
Current Year Minus2	$546,855	CurrentYearMinus2Amt
Current Year Minus1	$411,778	CurrentYearMinus1Amt
Current Year	$628,981	CurrentYearAmt
Total	$2,097,733	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Collection Used Pub Exhibition	Yes (X)	CollectionUsedPubExhibitionInd
Collection Used Preservation	Yes (X)	CollectionUsedPreservationInd
Coll Used Loan Or Exch Prog	Yes (X)	CollUsedLoanOrExchProgInd
Solicited Assets Sale	0	SolicitedAssetsSaleInd

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$662,010	BeginningYearBalanceAmt
Investment Earnings Or Losses	$148,733	InvestmentEarningsOrLossesAmt
Administrative Expenses	$126,423	AdministrativeExpensesAmt
End Year Balance	$684,320	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$639,479	BeginningYearBalanceAmt
Investment Earnings Or Losses	$150,206	InvestmentEarningsOrLossesAmt
Administrative Expenses	$127,675	AdministrativeExpensesAmt
End Year Balance	$662,010	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$790,985	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$43,248	InvestmentEarningsOrLossesAmt
Administrative Expenses	$108,258	AdministrativeExpensesAmt
End Year Balance	$639,479	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$477,155	BeginningYearBalanceAmt
Contributions	$259,816	ContributionsAmt
Investment Earnings Or Losses	$54,014	InvestmentEarningsOrLossesAmt
End Year Balance	$790,985	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$357,197	BeginningYearBalanceAmt
Contributions	$90,075	ContributionsAmt
Investment Earnings Or Losses	$29,883	InvestmentEarningsOrLossesAmt
End Year Balance	$477,155	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	1.00000	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$242,937	OtherCostOrOtherBasisAmt
Depreciation	$99,555	DepreciationAmt
Book Value	$143,382	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$4,078,085	OtherCostOrOtherBasisAmt
Depreciation	$2,321,449	DepreciationAmt
Book Value	$1,756,636	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$1,900,018	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ACCRUED PENSION COST	$60,812,751
PAYCHECK PROTECTION PROGRAM LOAN	$8,726,730

Field	Value	IRS element (for citing)
Total Liability	$69,539,481	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$48,272,446	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	-$6,000,627	NetUnrealizedGainsInvstAmt
Other Revenue	-$12,612,986	OtherRevenueAmt
Revenue Not Reported	-$18,613,613	RevenueNotReportedAmt
Revenue Subtotal	$66,886,059	RevenueSubtotalAmt
Investment Expenses Not Incld	$182,733	InvestmentExpensesNotIncldAmt
Other Revenues Not Included	-$3,361,519	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	-$3,178,786	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$63,707,273	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$71,268,456	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	$3,361,519	OtherExpensesIncludedAmt
Expenses Not Reported	$3,361,519	ExpensesNotReportedAmt
Expenses Subtotal	$67,906,937	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$182,733	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$282,772	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$465,505	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$68,372,442	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART III, LINE 4:	THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
PART V, LINE 4:	THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES.
PART X, LINE 2:	MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2020, 2019, 2018, 2017 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS -12,612,986.
PART XI, LINE 4B - OTHER ADJUSTMENTS:	LOSS ON DISPOSAL OF FIXED ASSETS -96,359. FUNDRAISING EXPENSES NETTED AGAINST FUNDRAISING REVENUE -3,265,160.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	LOSS ON DISPOSAL OF FIXED ASSETS 96,359. FUNDRAISING EXPENSES NETTED AGAINST FUNDRAISING REVENUE 3,265,160.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	REFUND OF PREVIOUSLY REPORTED GRANTS 282,772.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	0	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	PROGRAM SERVICES	RESEARCH GRANT	$196,628
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PROGRAM SERVICES	RESEARCH GRANT	$1,767,487
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	PROGRAM SERVICES	RESEARCH GRANT	$229,833
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,	PROGRAM SERVICES	RESEARCH GRANT	$93,333

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$2,287,281	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$2,287,281	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	RESEARCH	$196,628	CHECK/WIRE
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$1,767,487	CHECK/WIRE
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	RESEARCH	$229,833	CHECK/WIRE
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,	RESEARCH	$93,333	CHECK/WIRE

Field	Value	IRS element (for citing)
Total Other Org	17	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 2:

UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.

PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SPECIAL EVENTS	Event1Nm
Gross Receipts Event1	$6,411,631	GrossReceiptsEvent1Amt
Charitable Contri Event1	$5,883,455	CharitableContriEvent1Amt
Gross Revenue Event1	$528,176	GrossRevenueEvent1Amt
Non Cash Prizes Event1	$83,097	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$58,913	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$9,598	FoodAndBeverageEvent1Amt
Entertainment Event1	$11,351	EntertainmentEvent1Amt
Other Direct Expenses Event1	$2,964	OtherDirectExpensesEvent1Amt
Event2	DISTINGUISHED EVENTS	Event2Nm
Gross Receipts Event2	$6,229,588	GrossReceiptsEvent2Amt
Charitable Contri Event2	$6,111,209	CharitableContriEvent2Amt
Gross Revenue Event2	$118,379	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$58,110	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$119,563	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$113,370	FoodAndBeverageEvent2Amt
Entertainment Event2	$60,366	EntertainmentEvent2Amt
Other Direct Expenses Event2	$4,349	OtherDirectExpensesEvent2Amt
Other Events Total	1	OtherEventsTotalCnt
Gross Receipts Other Events	$1,465,238	GrossReceiptsOtherEventsAmt
Charitable Contri Other Events	$1,049,862	CharitableContriOtherEventsAmt
Gross Revenue Other Events	$415,376	GrossRevenueOtherEventsAmt
Non Cash Prizes Other Events	$12,352	NonCashPrizesOtherEventsAmt
Entertainment Other Events	$3,389,335	EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events	$360	OthDirectExpnssOtherEventsAmt
Gross Receipts Total	$14,106,457	GrossReceiptsTotalAmt
Charitable Contributions Tot	$13,044,526	CharitableContributionsTotAmt
Gross Revenue Total Events	$1,061,931	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$153,559	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$178,476	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$122,968	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$3,461,052	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$7,673	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$3,923,728	DirectExpenseSummaryEventsAmt
Net Income Summary	-$2,861,797	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (163 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt	Address Line1ForeignAddress/AddressLine1Txt	CityForeignAddress/CityNm	CountryForeignAddress/CountryCd
ACURASTEM INC
605 E HUNTINGTON DR SUITE 103	MONROVIA	CA	91016	811640548	C-CORP	$100,000	RESEARCH
ANN AN ROBERT H LURIE CHILDRENS HOSPITAL OF CHICAGO
225 E CHICAGO BOX 4	CHICAGO	IL	60611	362170833	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
ARKANSAS CHILDREN'S RESEARCH INSTITUTE
13 CHILDRENS WAY	LITTLE ROCK	AZ	72202	710694931	501(C)(3)	$29,750	REGISTRY SUPPORT
ATRIUM HEALTH FOUNDATION
2018 EAST BLVD	CHARLOTTE	NC	28203	566060481	501(C)(3)	$29,179	RESEARCH
BAYCARE MEDICAL GROUP
300 PARK PLACE BLVD SUITE 170	CLEARWATER	FL	33759	593140335	501(C)(3)	$25,000	MEDICAL DIAGNOSIS
BILLINGS CLINIC FOUNDATION
PO BOX 31031	BILLINGS	MT	59107	810407289	501(C)(3)	$24,725	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BOARD OF REGENTS NSHE OBO UNIVERSITY OF NEVADA RENO
CONTROLLERS OFFICE MAIL STOP 0124	RENO	NV	89557	886000024	STATE OF NV	$116,667	RESEARCH
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616	SPRINGFIELD	IL	62794	376005961	STATE OF IL	$23,638	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BRIGHAM AND WOMENS HOSPITAL RESEARCH
PO BOX 3149	BOSTON	MA	02241	042312909	501(C)(3)	$30,000	MEDICAL DIAGNOSIS
CALIFORNIA PACIFIC MED CTR FOUNDATION
2015 STEINER STREET 2ND FL	SAN FRANCISCO	CA	94115	940562680	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
CARLE FOUNDATION HOSPITAL
611 WEST PARK	URBANA	IL	61801	371119538	501(C)(3)	$22,225	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CAROLINAS HEALTHCARE FOUNDATION
208 EAST BOULEVARD	CHARLOTTE	NC	28203	566060481	501(C)(3)	$295,953	MEDICAL DIAGNOSIS AND RESEARCH
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BOULEVARD 65-WIL SUITE	LOS ANGELES	CA	90048	951644600	501(C)(3)	$35,904	MEDICAL DIAGNOSIS AND RESEARCH	1150
CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100	ROUND ROCK	TX	78681	742710396	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
CHILD NEUROLOGY CONSULTANTS OF AUSTIN
6811 AUSTIN CENTER BLVD SUITE 400	AUSTIN	TX	78731	472192039		$20,353	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVE	TUCSON	AZ	85712	860667510	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
CHILDRENS HEALTHCARE OF ATLANTA
1577 NORTHEAST EXPRESSWAY	ATLANTA	GA	30329	580572465	501(C)(3)	$25,000	MEDICAL DIAGNOSIS
CHILDREN'S HOSPITAL BOSTON MA
300 LONGWOOD AVENUE	BOSTON	MA	02115	042774441	501(C)(3)	$140,000	RESEARCH
CHILDRENS HOSPITAL COLORADO
13123 E 16TH AVENUE BOX 285	AURORA	CO	80045	840166760	501(C)(3)	$73,900	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL CORPORATION
PO BOX 414413	BOSTON	MA	02241	042774441	501(C)(3)	$25,000	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL LOS ANGELES
4650 SUNSET BLVD	LOS ANGELES	CA	90027	951690977	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF ORANGE COUNTY
1201 W LA VETA AVE	ORANGE	CA	92868	952321786	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$70,369	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANT	PITTSBURGH	PA	15224	251865744	501(C)(3)	$25,000	MEDICAL DIAGNOSIS	FLOOR 3
CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANE	NORFOLK	VA	23507	540506321	501(C)(3)	$37,975	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL NEW ORLEANS
200 HENRY CLAY AVENUE	NEW ORLEANS	LA	70118	720467503	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501(C)(3)	$25,000	MEDICAL DIAGNOSIS
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE	CINCINNATI	OH	45229	310833963	501(C)(3)	$62,200	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CLINICAL NEUROLOGY PC
4221 S WESTERN SUITE 5010	OKLAHOMA CITY	TX	73109	412141136	501(C)(3)	$75,000	MEDICAL DIAGNOSIS
COLUMBIA UNIVERSITY MEDICAL CENTER
PO BOX 29789	NEW YORK	NY	10087	135598093	501(C)(3)	$253,117	RESEARCH
CONNECTICUT CHILDRENS MEDICAL CENTER
282 WASHINGTON STREET	HARTFORD	CT	06106	060646755	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
DEAN HEALTH SYSTEMS INC
1808 WEST BELTLINE HWY	MADISON	WI	53715	391128616	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
DIGNITY HEALTH ST JOSEPHS HOSPITAL
3033 N 3RD AVENUE	CHANDLER	AZ	85224	860096787	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
DRISCOLL CHILDRENS HOSPITAL
3533 SOUTH ALAMEDA STREET	CORPUS CHRISTI	TX	78411	742577746	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
DUKE UNIVERSITY MEDICAL CENTER
PO BOX 602651	CHARLOTTE	NC	28260	560532129	501(C)(3)	$100,000	MEDICAL DIAGNOSIS AND RESEARCH
EDGE RESEARCH
1560 WILSON BLVD STE 475	ARLINGTON	VA	22209	541839444	C-CORP	$18,750	RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)(3)	$218,895	RESEARCH
ESSENTIA HEALTH DULUTH
400 E 3RD STREET	DULUTH	MN	55805	410884623	501(C)(3)	$26,325	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
FSHD SOCIETY
450 BEDFORD STREET	LEXINGTON	MA	02420	521762747	501(C)(3)	$13,800	ADVOCACY AND RESEARCH
GEISINGER CLINIC
100 N ACADEMY AVE	DANVILLE	PA	17822	236291113	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUE	ST PAUL	FL	55101	363379150	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
GOOD SHEPHERD REHABILITATION HOSPITAL
850 SOUTH 5TH STREET	ALLENTOWN	PA	18103	231371947	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
HERSHEY MEDICAL CENTER
PENN STATE - PO BOX 859 NEUROLOGY	HERSHEY	PA	17033	246000376	STATE OF PA	$17,700	REGISTRY SUPPORT	MAIL CODE ECO37
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUE	NEW BRITAIN	CT	06053	060646766	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
HOUSTON METHODIST HOSPITAL FOUNDATION
6560 FANNIN STREET STE 802	HOUSTON	TX	77030	760094743	501(C)(3)	$7,000	REGISTRY SUPPORT
HOUSTON METHODIST NEUROLOGY INSTITUTE
6560 FANNIN ST SUITE 802	HOUSTON	TX	77030	571201170	501(C)(3)	$39,400	REGISTRY SUPPORT
IDAHO PHYSICAL MEDICINE AND REHABILITATION PA
161 E MALLARD DR SUITE 120	BOISE	ID	83706	820435241		$12,025	REGISTRY SUPPORT
INLAND NORTHWEST HEALTH SERVICES
PO BOX 2185	SPOKANE	WA	99210	911307555	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
INSTITUTO REHABILITACION DEL CARIBE
						$20,000	MEDICAL DIAGNOSIS		PO BOX 363792	SAN JUAN	RQ
IZUMI BIOSCIENCES INC
23 BLUEBERRY LANE SUITE 100	LEXINGTON	MA	02420	472572265	C-CORP	$39,960	RESEARCH
JOAN & SANFORD I WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE BOX 89	NEW YORK	NY	10065	131623978	501(C)(3)	$116,667	RESEARCH
JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)(3)	$867,288	MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD	KANSAS CITY	KS	66160	481108830	501(C)(3)	$75,000	MEDICAL DIAGNOSIS
LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202	LOMA LINDA	CA	92350	951816009	501(C)(3)	$35,000	MEDICAL DIAGNOSIS
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
433 BOLIVAR ST	NEW ORLEANS	LA	70112	726087770	501(C)(3)	$36,100	MEDICAL DIAGNOSIS
LSUHSC
1501 KINGS HWY	SHREVEPORT	LA	71103	720702002	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
LUDWIG INSTITUTE FOR CANCER RESEARCH LTD
9500 GILMAN DRIVE	LA JOLLA	CA	92093	237121131	501(C)(3)	$81,667	RESEARCH
MAINE MEDICAL CENTER
22 BRAMHALL ST	PORTLAND	OR	04102	010238552	501(C)(3)	$18,750	MEDICAL DIAGNOSIS
MARSHFIELD CLINIC RESEARCH FOUNDATION
1000 NORTH OAK AVENUE	MARSHFIELD	WI	60302	390452970	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVENUE STE 300	BOSTON	MA	02199	042697983	501(C)(3)	$125,000	MEDICAL DIAGNOSIS
MASSACHUSETTS INSTITUTE OF TECHNOLOGY
77 MASSACHUSETTS AVENUE	CAMBRIDGE	MA	01109	042103594	501(C)(3)	$200,000	RESEARCH
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$216,667	MEDICAL DIAGNOSIS AND RESEARCH
MCKINNON MEDICAL GROUP PLLC
351 N BUFFALO DR	LAS VEGAS	NV	89145	453720025		$23,950	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MCV ASSOCIATED PHYSICIANS
PO BOX 980599	RICHMOND	VA	23298	541581185	501(C)(3)	$30,000	MEDICAL DIAGNOSIS
MDA CLINIC AT DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222140	501(C)(3)	$12,298	MEDICAL DIAGNOSIS
MEDICAL COLLEGE OF WISCONSIN
9200 WEST WISCONSIN AVENUE	MILWAUKEE	WI	53226	390806261	501(C)(3)	$16,858	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 606	CHARLESTON	SC	29425	576000722	501(C)(3)	$10,012	MEDICAL DIAGNOSIS
MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL
3800 RESERVOIR RD NW 7TH FLOOR PHC	WASHINGTON	DC	20007	522228444	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
MERCY HEALTH FOUNDATION SPRINGFIELD
620 S GLENSTONE AVE	SPRINGFIELD	IL	65802	320195818	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
METHODIST LE BONHEUR COMMUNITY OUTREACH
600 JEFFERSON AVE	MEMPHIS	TN	38105	621251288	501(C)(3)	$14,933	MEDICAL DIAGNOSIS
METHODIST NEUROLOGICAL INSTITUTE
6560 FANNIN STREET	HOUSTON	TX	77030	870721923	501(C)(3)	$11,400	REGISTRY SUPPORT
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2	EAST LANSING	MI	48824	386005984	501(C)(3)	$25,000	MEDICAL DIAGNOSIS
MITOCHONDRIA IN MOTION INC
4440 LINDELL BOULEVARD SUITE 1202	ST LOUIS	MO	63108	832455511	C-CORP	$141,210	RESEARCH
MONTEFIORE MEDICAL CENTER
3351 STEUBEN AVE 3RD FLOOR	BRONX	NY	10467	131740114	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
MYOGENE BIO LLC
907 WESTWOOD BOULEVARD 376	LOS ANGELES	CA	90024	831507489	C-CORP	$116,456	RESEARCH
NEMOURS FOUNDATION
10140 CENTURION PARKWAY	JACKSONVILLE	FL	32256	590634433	501(C)(3)	$100,000	MEDICAL DIAGNOSIS
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026	BOSTON	MA	02241	135562308	STATE OF NY	$50,000	MEDICAL DIAGNOSIS
NORTHEAST ALS CONSORTIUM
811 W 7TH STREET FLOOR 12	LOS ANGELES	CA	90017	562547779	501(C)(3)	$30,522	RESEARCH
NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
710 N LAKESHORE DR SUITE 1119	CHICAGO	IL	60611	363382383	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
OLIVE VIEW-UCLA EDUCATION AN RESEARCH INSTITUTE
14445 OLIVE VIEW DR	OLIVE VIEW	CA	91342	952249539	501(C)(3)	$25,000	MEDICAL DIAGNOSIS
OREGON HEALTH AN SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	931176109	STATE OF OR	$25,000	MEDICAL DIAGNOSIS
OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL
800 NE GLEN OAK AVE	PEORIA	IL	61603	383852646	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
PHOENIX CHILDRENS HOSPITAL
1919 EAST THOMAS RD	PHOENIX	AZ	85016	860422559	501(C)(3)	$7,500	MEDICAL DIAGNOSIS
PONCE HEALTH SCIENCES UNIVERSITY
PO BOX 7004	PONCE	PR	00732	660379122	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
RADY CHILDRENS HOSPITAL FOUNDATION
3020 CHILDRENS WAY MC 5005	SAN DIEGO	CA	92123	330170626	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
4860 Y STREET SUITE 3850	SACRAMENTO	CA	95817	946036494	501(C)(3)	$50,000	MEDICAL DIAGNOSIS AND RESEARCH
REGENTS OF THE UNIVERSITY OF MINNESOTA
PO BOX 1450	MINNEAPOLIS	MN	55485	416007513	501(C)(3)	$193,717	MEDICAL DIAGNOSIS AND RESEARCH
RESEARCH FOUNDATION OF SUNY
520 LEE ENTRANCE SUITE 211	AMHERST	NY	14225	141368361	STATE OF NY	$40,000	RESEARCH
RESEARCH TRIANGLE INSTITUTE
PO BOX 900002	RALEIGH	NC	27265	560686338	501(C)(3)	$112,500	ADVOCACY
RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAY	CHICAGO	IL	60612	362174823	501(C)(3)	$16,465	MEDICAL DIAGNOSIS
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN STREET	NEWARK	NJ	07103	462354111	STATE OF NJ	$50,375	MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
SAINT LOUIS UNIVERSITY
221 NORTH GRAND BOULEVARD	ST LOUIS	MO	63103	430654872	501(C)(3)	$116,667	RESEARCH
SANFORD CHILDRENS SPECIALTY CLINIC
415 NORTH 3RD AVENUE	FARGO	ND	58102	911770748	501(C)(3)	$6,327	MEDICAL DIAGNOSIS
SANFORD MEDICAL CENTER FARGO
415 NORTH 3RD AVENUE	FARGO	ND	58102	911770748	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAIL	SARASOTA	FL	34239	596012500	501(C)(3)	$11,894	MEDICAL DIAGNOSIS
SHRINERS HOSPITAL FOR CHILDREN PORTLAND
3101 SW SAM JACKSON PARK R	PORTLAND	OR	97239	362193608	501(C)(3)	$10,000	MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN CHICAGO
3101 SW SAM JACKSON PARK R	PORTLAND	OR	97239	362193608	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN TAMPA
3101 SW SAM JACKSON PARK R	PORTLAND	OR	97239	362193608	501(C)(3)	$25,000	MEDICAL DIAGNOSIS
ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROAD	PORT JEFFERSON	NY	11777	412076312	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
ST LUKES HEALTH SYSTEM
PO BOX 1663	BOISE	ID	83701	452716222	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
ST PETERS HOSPITAL
310 S MANNING BLVD	ALBANY	NY	12208	222262982	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
STANFORD HEALTH CARE
PO BOX 742835	LOS ANGELES	CA	90074	946174066	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
STEVENS INSTITUTE OF TECHNOLOGY
ONE CASTLE POINT ON HUDSON	HOBOKEN	NJ	07030	221487354	501(C)(3)	$116,667	RESEARCH
TEMPLE UNIVERSITY
PO BOX 827997	PHILADELPHIA	PA	19182	231365971	501(C)(3)	$35,000	MEDICAL DIAGNOSIS
TEXAS NEUROLOGY PA
6301 GASTON AVE STE 300W	DALLAS	TX	75214	752654757	501(C)(3)	$49,850	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
TEXAS TECH UNIVERSITY HEALTH SCIENCES CENTER
3601 4TH ST	LUBBOCK	TX	79430	752668014	501(C)(3)	$23,375	RESEARCH
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET UNIT 39	NEW YORK	NY	10032	135598093	501(C)(3)	$173,209	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE CURATORS OF THE UNIVERSITY MISSOURI
ONE HOSP DRIVE	COLUMBIA	MO	65212	436003859	501(C)(3)	$30,945	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE EMORY CLINIC INC
12 EXECUTIVE PARK DR NE RM 433	ATLANTA	GA	30329	582030692	501(C)(3)	$100,000	MEDICAL DIAGNOSIS
THE HOSPITAL OF SPECIAL SURGERY
535 EAST 70TH ST	NEW YORK	NY	10021	131624135	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
THE METHODIST HOSPITAL FOUNDATION
6560 FANNIN STREET 802	HOUSTON	TX	77030	760094743	501(C)(3)	$100,000	MEDICAL DIAGNOSIS
THE METROHEALTH SYSTEM
PO BOX 73308	CLEVELAND	OH	44193	346004382	501(C)(3)	$25,000	MEDICAL DIAGNOSIS
THE OHIO STATE UNIVERSITY
1960 KENNY RD	COLUMBUS	OH	43210	316025986	STATE OF OH	$228,192	MEDICAL DIAGNOSISAND REGISTRY SUPPORT
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
PO BOX 850	HERSHEY	PA	17033	246000376	STATE OF PA	$5,339	MEDICAL DIAGNOSIS
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195	CHARLOTTESVILLE	NC	22904	546001796	501(C)(3)	$13,333	MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
141 INNOVATION SUITE 250	IRVINE	CA	92697	952226406	501(C)(3)	$90,000	MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
11000 KINROSS AVENUE SUITE 211	LOS ANGELES	CA	90095	956006143	501(C)(3)	$449,237	MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE DEPT 0934	LA JOLLA	CA	92093	956006144	501(C)(3)	$30,000	MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1855 FOLSOM STREET SUITE 425	SAN FRANCISCO	CA	94143	946036493	501(C)(3)	$80,192	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 S STATE STREET	ANN ARBOR	MI	48109	386006309	501(C)(3)	$29,167	MEDICAL DIAGNOSIS AND RESEARCH
THE RESEARCH FOUNDATION FOR THE SUNY ON BEHALF OF UNIVERSITY
35 STATE ST	ALBANY	NY	12207	141368361	501(C)(3)	$118,333	MEDICAL DIAGNOSIS AND RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	43205	316056230	501(C)(3)	$19,829	MEDICAL DIAGNOSIS
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$50,000	MEDICAL DIAGNOSIS
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUE S LOWDER 608	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$5,015	MEDICAL DIAGNOSIS
THE UNIVERSITY OF IOWA
2 GILMORE HALL	IOWA CITY	IA	52242	426004813	STATE OF IA	$167,172	RESEARCH
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	27599	566001393	501(C)(3)	$136,667	RESEARCH
THE UNIVERSITY OF ROCHESTER
601 ELMWOOD AVENUE BOX 673	ROCHESTER	NY	14642	160743209	501(C)(3)	$476,667	RESEARCH
THOMAS JEFFERSON UNIVERSITY
125 S 9TH ST	PHILADELPHIA	PA	19107	231352651	501(C)(3)	$116,667	RESEARCH
TRINITY HEALTH DBA MERCY HEALTH SAINT MARYS
200 JEFFERSON SE	GRAND RAPIDS	MI	49503	272491974	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
UNIVERSITY HOSPITAL BROOOKLYN SUNY DOWNSTATE MED CTR
450 CLARKSON AVENUE BOX 3	BROOKLYN	NY	11203	146013200	STATE OF NY	$35,000	MEDICAL DIAGNOSIS
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM 812	LITTLE ROCK	AR	72205	716046242	STATE OF AR	$19,468	MEDICAL DIAGNOSIS
UNIVERSITY OF CINCINNATI PHYSICIANS
51 GOODMAN DR SUITE 530	CINCINNATI	OH	45221	316000989	501(C)(3)	$35,000	MEDICAL DIAGNOSIS
UNIVERSITY OF COLORADO DENVER
3100 MARINE STREET ROOM 479	BOULDER	CO	80309	846000555	STATE OF CO	$164,999	MEDICAL DIAGNOSIS
UNIVERSITY OF FLORIDA
219 GRINTER HALL	GAINESVILLE	FL	32611	596002052	STATE OF FL	$308,067	MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF IOWA
2 GILMORE HALL	IOWA CITY	IA	52242	426004813	STATE OF IOWA	$100,000	MEDICAL DIAGNOSIS
UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE INC
3901 RAINBOW BLVD MSC 1039	KANSAS CITY	KS	66160	481108830	501(C)(3)	$508,705	RESEARCH
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300	LOUISVILLE	KY	40202	611029626	501(C)(3)	$35,000	MEDICAL DIAGNOSIS
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGTON STREET 4TH FLOOR	BALTIMORE	MD	21201	526002033	STATE OF MD	$19,443	RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
55 LAKE AVENUE NORTH	WORCESTER	MA	01655	043167352	STATE OF MA	$252,991	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF MIAMI
1320 SOUTH DIXIE HIGHWAY SUITE 650	CORAL GABLES	FL	33146	590624458	STATE OF FL	$372,407	MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	39216	646008520	STATE OF MS	$35,000	MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985450 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	470049123	STATE OF NE	$35,000	MEDICAL DIAGNOSIS
UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICO	ALBUQUERQUE	NM	87131	856000642	STATE OF NM	$6,422	MEDICAL DIAGNOSIS
UNIVERSITY OF OREGON
2727 LEO HARRIS PKWY	EUGENE	OR	97401	464727800	501(C)(3)	$81,667	RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE	PITTSBURGH	PA	15213	250965591	STATE OF PA	$50,000	MEDICAL DIAGNOSIS
UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES
				660433762		$9,260	MEDICAL DIAGNOSIS		400 FD ROOSEVELT AVE	SAN JUAN	RQ
UNIVERSITY OF ROCHESTER
518 HYLAN BLDG BOX 270140	ROCHESTER	NY	14627	160743209	501(C)(3)	$175,000	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828	SAN ANTONIO	TX	78229	741586031	STATE OF TX	$75,000	MEDICAL DIAGNOSIS
UNIVERSITY OF UTAH
75 S 2000 E RM 111	SALT LAKE CITY	UT	84112	876000525	STATE OF UT	$123,173	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902	BURLINGTON	VT	05401	030219303	STATE OF VT	$20,775	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
UNIVERSITY OF WASHINGTON
4333 BROOKLYN AVE NE BOX 359472	SEATTLE	WA	98195	916001537	STATE OF WA	$189,562	RESEARCH
UNIVERSITY OF WASHINGTON MEDICAL CENTER
1959 NE PACIFIC	SEATTLE	WA	98195	916001537	STATE OF WA	$50,000	MEDICAL DIAGNOSIS
UNIVERSITY OF WISCONSIN
4410 SOUTH 3RD STREET	RIVER FALLS	WI	54022	391805963	501(C)(3)	$81,667	RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753	DALLAS	TX	75284	756002868	STATE OF TX	$158,750	MEDICAL DIAGNOSIS
UW HOSPITAL AN CLINICS AUTHORITY
600 HIGHLAND AVE	MILWAUKEE	WI	53792	391835630	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236	DALLAS	TX	75312	352528741	501(C)(3)	$115,000	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
VIA CHRISTI HOSPITALS WICHITA INC
707 NORTH EMPORIA AVENUE	WICHITA	KS	67214	481172106	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 980568	RICHMOND	VA	23298	546001758	501(C)(3)	$274,168	RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTON SALEM	NC	27157	223849199	501(C)(3)	$20,000	MEDICAL DIAGNOSIS
WASHINGTON UNIVERSITY IN ST LOUIS
1054 ONE BROOKINGS DRIVE	ST LOUIS	MO	63130	430653611	501(C)(3)	$125,000	MEDICAL DIAGNOSIS AND RESEARCH
WESLEY NEUROLOGY CLINIC PC
800 CENTERVIEW PARKWAY STE 305	CORDOVA	TN	38018	621499155	501(C)(3)	$66,850	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
WILLIAM BEAUMONT HOSPITAL
3811 WEST 13 MILE ROAD SUITE 501	ROYAL OAK	MI	48073	381459362	501(C)(3)	$52,450	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
YALE UNIVERSITY
PO BOX 1873	NEW HAVEN	CT	06508	060646973	501(C)(3)	$351,372	MEDICAL DIAGNOSIS AND RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	153	Total501c3OrgCnt
Total Other Org	10	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	Yes (1)	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (12 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
ELLEN VOS
PRESIDENT & CEO (JAN-OCT)	$435,559	$0	$0	$0	$387,701	$0	$0	$0	$29,947	$0	$853,207	$0	$0	$0
KAREN ANDREWS
SEC. & CHIEF LEGAL OFFICER (JAN-OCT)	$382,063	$0	$0	$0	$0	$0	$0	$0	$0	$0	$382,063	$0	$0	$0
KATHY KAUFFMANN
CHIEF STRATEGY DEVELOPMENT OFFICER	$280,232	$0	$45,000	$0	$302	$0	$2,077	$0	$35,971	$0	$363,582	$0	$0	$0
MICHAEL KENNEDY
TREASURER & CFO	$279,744	$0	$0	$0	$868	$0	$2,077	$0	$28,193	$0	$310,882	$0	$0	$0
KRISTIN STEPHENSON
CHIEF ADVOCACY & CARE SERVICES OFFIC	$227,964	$0	$0	$0	$197	$0	$1,269	$0	$30,080	$0	$259,510	$0	$0	$0
JONATHON NAGLE
CHIEF TECHNOLOGY OFFICER	$211,653	$0	$10,000	$0	$131	$0	$1,558	$0	$21,373	$0	$244,715	$0	$0	$0
JEANNE ZUCKER
SVP HEALTHCARE PARTNERSHIPS	$230,015	$0	$0	$0	$566	$0	$0	$0	$12,760	$0	$243,341	$0	$0	$0
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	$215,051	$0	$0	$0	$302	$0	$1,327	$0	$22,716	$0	$239,396	$0	$0	$0
DEBORAH BARGE
SVP, CHIEF FIELD OFFICER	$234,343	$0	$0	$0	$145	$0	$623	$0	$495	$0	$235,606	$0	$0	$0
JOSHUA ACKLEY
VP OF PR & COMMUNICATIONS	$219,394	$0	$0	$0	$118	$0	$0	$0	$9,711	$0	$229,223	$0	$0	$0
JENNIFER ALLEBACH
SVP OF CAMP PROGRAMS (JAN-NOV)	$199,342	$0	$0	$0	$1,355	$0	$1,523	$0	$1,168	$0	$203,388	$0	$0	$0
LINDSAY KASSOF
SEC. & ASSOC LEGAL COUN (NOV-DEC)	$169,558	$0	$0	$0	$197	$0	$1,212	$0	$14,626	$0	$185,593	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 4A	FormAndLineReferenceDesc
Explanation	ELLEN VOSS, OUTGOING PRESIDENT & CEO RECEIVED $350,000 SEVERANCE PAYMENT IN 2020.	ExplanationTxt

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	KAREN ANDREWS	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Relationship Description	OFFICER	RelationshipDescriptionTxt
Transaction	$382,063	TransactionAmt
Transaction	KAREN ANDREWS IS PRINCIPAL AT KAREN ANDREWS LAW LLC, AND IS NOT COMPENSATED BY MUSCULAR DYSTROPHY ASSOCIATION, INC. AS AN EMPLOYEE ON PART VII, SECTION A. KAREN ANDREWS ACTS AS OUR CHIEF LEGAL COUNSEL.	TransactionDesc
Sharing Of Revenues	0	SharingOfRevenuesInd

Schedule M IRS990ScheduleM

Securities Closely Held Stock SecuritiesCloselyHeldStockGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	54	ContributionCnt
Noncash Contributions Rpt F990	$803,597	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	0	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, COLUMN (B):	FormAndLineReferenceDesc
Explanation	AMOUNTS IN COLUMN B REPRESENT THE NUMBER OF CONTRIBUTIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11B	ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C	THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE.
FORM 990, PART XI, LINE 9:	CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS -12,612,986. REFUND OF PREVIOUSLY REPORTED GRANTS 282,772.
FORM 990, PART XII LINE 2C:	THE ORGANIZATION HAS A COMMITTEE RESPONSIBLE FOR THE OVERSIGHT OF THE AUDIT AS WELL AS THE SELECTION OF THE INDEPENDENT ACCOUNTANT.