PKD FOUNDATION: Form 990, tax year 2018
View the entire original 990 at ProPublica ↗
- Organization
- PKD FOUNDATION (EIN 43-1266906)
- Tax period
- 2018-07-01 to 2019-06-30
- Filed
- 2021-01-29
- IRS object ID
- 202100299349300905
- Schema version
- 2018v3.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule G
- Schedule I
- Schedule J
- Schedule M
- Schedule O
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2021-01-29T11:51:35-06:00 | ReturnTs |
| Tax Period End | 2019-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 410746749 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CLIFTONLARSONALLEN LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 801 FELIX STREET | AddressLine1Txt |
| City | ST JOSEPH | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64501 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2018-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 431266906 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PKD FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | PKDF | BusinessNameControlTxt |
| Phone | 8169312600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1001 E 101ST TER NO 220 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64131 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ANDY BETTS | PersonNm |
| Person Title | CHIEF EXECUTIVE OFFICER | PersonTitleTxt |
| Phone | 8169312600 | PhoneNum |
| Signature | 2021-01-28 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | HAROLD RAY | PreparerPersonNm |
| PTIN | P01248589 | PTIN |
| Phone | 8162328441 | PhoneNum |
| Preparation | 2021-01-28 | PreparationDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2018 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Amended Return | Yes (X) | AmendedReturnInd |
| Principal Officer | ANDY BETTS | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1001 E 101ST TER NO 220 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64131 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $8,160,246 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.PKDCURE.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1982 | FormationYr |
| Legal Domicile State | MO | LegalDomicileStateCd |
| Activity Or Mission | WE GIVE HOPE. WE FUND RESEARCH, ADVOCATE FOR PATIENTS, AND BUILD A COMMUNITY FOR ALL IMPACTED BY PKD. | ActivityOrMissionDesc |
| Voting Members Governing Body | 17 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 17 | VotingMembersIndependentCnt |
| Total Employee | 45 | TotalEmployeeCnt |
| Total Volunteers | 3593 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $12,652,147 | PYContributionsGrantsAmt |
| CY Contributions Grants | $6,507,595 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $0 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $170,904 | PYInvestmentIncomeAmt |
| CY Investment Income | $217,531 | CYInvestmentIncomeAmt |
| PY Other Revenue | $127,794 | PYOtherRevenueAmt |
| CY Other Revenue | $34,477 | CYOtherRevenueAmt |
| PY Total Revenue | $12,950,845 | PYTotalRevenueAmt |
| CY Total Revenue | $6,759,603 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,412,624 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $2,960,317 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $3,134,496 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $3,127,659 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $235,896 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $137,813 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $932,904 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,948,197 | PYOtherExpensesAmt |
| CY Other Expenses | $1,944,168 | CYOtherExpensesAmt |
| PY Total Expenses | $7,731,213 | PYTotalExpensesAmt |
| CY Total Expenses | $8,169,957 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $5,219,632 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$1,410,354 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $11,398,154 | TotalAssetsBOYAmt |
| Total Assets EOY | $10,606,466 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,354,476 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,852,410 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $10,043,678 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $8,754,056 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS. | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $3,757,904 | ExpenseAmt |
| Grant | $2,637,311 | GrantAmt |
| Desc | RESEARCH:SINCE ITS FOUNDING IN 1982, THE PKD FOUNDATION HAS INVESTED MORE THAN $50 MILLION IN MORE THAN 1,300 RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, FELLOWSHIPS AND SCIENTIFIC MEETINGS. THE FOUNDATION'S FINANCIAL COMMITMENT OVER THE YEARS HAS SEEN RESULTS ON A LOCAL AND EVEN GLOBAL LEVEL, INCLUDING INITIATING FUNDING FOR YOUNG INVESTIGATORS FROM AROUND THE WORLD; SUPPORTING INNOVATIVE RESEARCH IDEAS; AND PROVIDING BRIDGE FUNDING TO RESEARCHERS WORLD-WIDE TO APPLY FOR LARGER NATIONAL INSTITUTES OF HEALTH (NIH) GRANTS. THE FOUNDATION'S FISCAL YEAR INVESTMENTS IN RESEARCH IS OUTLINED BELOW.RESEARCH GRANTS: INVESTED $1,800,000 ON GRANT FUNDING TO 23 PKD PROJECTS THAT FOCUS ON RISK FACTORS FOR PKD MANIFESTATIONS, BETTER UNDERSTANDING OF CELLULAR MECHANISMS THAT ACCELERATE PROGRESSION AND IDENTIFYING TARGETS FOR PKD. THE FOUNDATION ALSO COMMITTED TO FUNDING ONE JUNIOR INVESTIGATOR WITH A THREE-YEAR COMMITMENT THROUGH THE YOUNG INVESTIGATOR AWARD.FELLOWSHIPS: PROVIDED $450,000 IN FELLOWSHIP FUNDING TO 5 SUPPORT TRAINEES IN OBTAINING RESEARCH EXPERIENCE AS THEY INITIATE CAREERS IN PKD.CORE GRANTS: INVESTED $40,000 TO SUPPORT CORE RESEARCH GRANTS SERVICES AND RESOURCES FOR PKD SCIENTISTS IN A PROMINENT GENETIC LAB SO THAT FOUNDATION DOLLARS CAN BE LEVERAGED ACROSS THE PKD RESEARCH COMMUNITY. ADPKD REGISTRY: LED THE DEVELOPMENT AND IMPLEMENTATION OF THE NATION'S FIRST ADPKD PATIENT REGISTRY TO COLLECT VALUABLE DATA ABOUT THE PKD EXPERIENCE DIRECTLY FROM PATIENTS AND SUPPORT THE RECRUITMENT OF PARTICIPANTS FOR CLINICAL STUDIES. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $939,973 | ExpenseAmt |
| Grant | $215,337 | GrantAmt |
| Desc | EDUCATION AND SUPPORT:THE FOUNDATION PROVIDES LOCAL SERVICES THROUGH ITS MORE THAN 60 VOLUNTEER-RUN CHAPTERS ACROSS THE COUNTRY. THESE VOLUNTEERS BRING TO LIFE THE MISSION OF THE ORGANIZATION BY ENSURING THAT NO ONE FACES THIS DISEASE ALONE. EDUCATION MEETINGS PROVIDE VALUABLE INFORMATION FROM HEALTH CARE PROFESSIONALS, WHILE SUPPORT ACTIVITIES RANGE FROM LENDING A LISTENING EAR TO ORGANIZED GROUP OUTINGS. THE FOUNDATION HAS MORE THAN 1917 ACTIVE VOLUNTEERS.CHAPTERS RAISE FUNDS FOR THE FOUNDATION THROUGH EVENTS WHICH ALSO INCREASE AWARENESS OF PKD AND CONNECT LOCAL PATIENTS AND FAMILIES TO EACH OTHER. NINETY ONE CHAPTER FUNDRAISING AND THIRD- PARTY EVENTS WERE HELD THIS YEAR THAT RAISED $623,223. CHAPTERS ALSO RAISE AWARENESS AND MONEY THROUGH THE WALK FOR PKD, THE FOUNDATION'S SIGNATURE FUNDRAISING AND PUBLIC AWARENESS EVENT. THE WALK TOOK PLACE IN 54 CITIES ACROSS THE NATION EACH YEAR AND HAS RAISED NEARLY $32 MILLION SINCE 2000.ON A NATIONAL LEVEL, THE FOUNDATION PROVIDES IN-DEPTH RESOURCES AND EDUCATION ABOUT LIVING WITH PKD TO EMPOWER PEOPLE TO MANAGE THEIR HEALTH. OFFERINGS INCLUDE WEBINARS, VIDEOS, A MULTI-FACETED WEBSITE (CONNECT.PKDCURE.ORG), ONLINE COMMUNITIES AND PRINT MATERIALS. ADDITIONALLY, WEBINARS WERE ATTENDED OR VIEWED BY 383 ATTENDEES.THE ARPKD/ADPKD PATIENT HANDBOOK IS AVAILABLE FOR PEOPLE WITH PKD TO HELP THEM NAVIGATE THEIR DISEASE. 110 HANDBOOKS WERE MAILED AND 430 DOWNLOADED. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,504,821 | ExpenseAmt |
| Grant | $107,669 | GrantAmt |
| Desc | AWARENESS AND ADVOCACY:THE FOUNDATION RAISES AWARENESS THROUGH MARKETING AND PUBLIC RELATIONS SO PEOPLE KNOW WHAT PKD IS, WHAT THE FOUNDATION DOES, AND HOW TO GET INVOLVED. MARKETING MATERIALS INCLUDE PKD NEWS MONTHLY EMAIL NEWSLETTER, OTHER TARGETED EMAILS, DIRECT MAIL SOLICITATIONS, SOCIAL MEDIA, THE PKD BLOG AND PKDCURE.ORG. VOICES OF PKD (HTTPS://CONNECT.PKDCURE.ORG/VOICES-OF-PKD/) FEATURES TESTIMONIALS AND STORIES ABOUT PEOPLE'S EXPERIENCES WITH THE DISEASE. THE FOUNDATION HAS AN ACTIVE SOCIAL MEDIA COMMUNITY, REACHING MORE THAN 34,000 FACEBOOK FANS, 7,000 TWITTER FOLLOWERS, 5,000 INSTAGRAM FOLLOWERS, AND 1,500 LINKEDIN FOLLOWERS. PKDCURE.ORG RECEIVED 998,612 UNIQUE VISITS AND PKDCONNECTION.ORG RECEIVED 268,609 VISITS.THE FOUNDATION PLAYS A KEY ROLE IN LEGISLATIVE ADVOCACY TO SUPPORT PKD-RELATED INITIATIVES. THE PKD ADVOCACY ACTION CENTER (PKDCURE.ORG/ADVOCACY) SENT ADVOCACY ALERTS TO 13,000 PKD ADVOCATORS ABOUT LEGISLATIVE AND PUBLIC POLICY ISSUES IMPACTING PKD PATIENTS AND FAMILIES. THE FOUNDATION JOINS WITH OTHER KIDNEY DISEASE-RELATED ORGANIZATIONS IN EVENTS THAT ALLOW ADVOCATES TO MEET WITH MEMBERS OF CONGRESS TO RAISE AWARENESS OF PKD AND DISCUSS LEGISLATIVE PRIORITIES. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $6,202,698 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Temp Or Permanent Endowments | Yes (1) | TempOrPermanentEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | 0 | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | Yes (1) | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | Yes (1) | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With Officer Ent | 0 | BusinessRlnWithOfficerEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 21 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 45 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | Yes (1) | QuidProQuoContributionsInd |
| Quid Pro Quo Contri Discl | Yes (1) | QuidProQuoContriDisclInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Form1098 C Filed | 0 | Form1098CFiledInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 17 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 17 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | Yes (1) | LocalChaptersInd |
| Policies Reference Chapters | Yes (1) | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | 0 | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AZ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | STEPHANIE BRENDEL | PersonNm |
| Phone | 8169312600 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1001 E 101ST TER NO 220 | AddressLine1Txt |
| City | KANSAS CITY | CityNm |
| State Abbreviation | MO | StateAbbreviationCd |
| ZIP | 64131 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part VII | Yes (X) | InfoInScheduleOPartVIIInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (23 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Highest Compensated EmployeeHighestCompensatedEmployeeInd |
|---|---|---|---|---|---|---|---|
| KLEE KLEBER | |||||||
| CHAIR | 2.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| BEVERLY BENSON | |||||||
| VICE-CHAIR | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| BROCK NELSON | |||||||
| TREASURER | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| PAULA HUTCHINSON | |||||||
| SECRETARY | 1.00 | Yes (X) | Yes (X) | $0 | $0 | $0 | |
| BILL BRAZELL | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ASHLEY BROWN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| KATHERINE DELL | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| GEORGINA HABERMAN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MICHELE KARL | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ANDREA KRINGSTEIN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| MICHAL MRUG | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| DWIGHT ODLAND | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| CRAIG RAMSEYER | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ROB ROTH | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| FRAN TOWEY | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| TERRY WATNICK | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| JERRY WAXMAN | |||||||
| DIRECTOR | 1.00 | Yes (X) | $0 | $0 | $0 | ||
| ANDY BETTS | |||||||
| PRESIDENT & CEO | 40.00 | Yes (X) | $235,343 | $0 | $43,959 | ||
| DAVID BARON | |||||||
| CHIEF SCIENTIFIC OFFICER | 40.00 | $206,170 | $0 | $35,601 | Yes (X) | ||
| KENNETH MCLAUGHLIN | |||||||
| COO - LEFT DECEMBER 2018 | 40.00 | $139,329 | $0 | $35,926 | Yes (X) | ||
| ALEXIS DENNY | |||||||
| DIRECTOR OF GOVT AFFAIRS | 40.00 | $106,873 | $0 | $28,601 | Yes (X) | ||
| SUSAN DEREMER | |||||||
| DIRECTOR OF LEADERSHIP GIFTS | 40.00 | $113,440 | $0 | $13,171 | Yes (X) | ||
| ROBIN STRACHAN - LEFT JULY 2019 | |||||||
| PLANNED GIVING DIRECTOR | 40.00 | $103,943 | $0 | $9,801 | Yes (X) | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $905,098 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $167,059 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 6 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (2 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt | Address Line1ContractorAddress/ForeignAddress/AddressLine1Txt | CityContractorAddress/ForeignAddress/CityNm | Province Or StateContractorAddress/ForeignAddress/ProvinceOrStateNm | CountryContractorAddress/ForeignAddress/CountryCd |
|---|---|---|---|---|---|---|---|---|---|
| NEWPORT ONE | |||||||||
| 21 RAILROAD AVE | DUXBURY | MA | 02332 | FUNDRAISING SERVICE | $145,288 | ||||
| IQVIA TECHNOLOGY SERVICES | |||||||||
| PATIENT REGISTRY AND CONSULTING FEES | $103,500 | 210 PENTONVILLE RD | LONDON | LONDON | UK | ||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 2 | CntrctRcvdGreaterThan100KCnt |
| All Other Contributions | $6,507,595 | AllOtherContributionsAmt |
| Noncash Contributions | $241,596 | NoncashContributionsAmt |
| Total Contributions | $6,507,595 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $145,688 | TotalRevenueColumnAmt |
| Exclusion | $145,688 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,469,294 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $1,397,451 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $71,843 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $71,843 | TotalRevenueColumnAmt |
| Exclusion | $71,843 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $2,256 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $3,192 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$936 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$936 | RelatedOrExemptFuncIncomeAmt |
Other Revenue Misc OtherRevenueMiscGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | ExclusionExclusionAmt |
|---|---|---|---|
| INSURANCE PROCEEDS | 900099 | $35,000 | $35,000 |
| MISCELLANEOUS INCOME | 900099 | $413 | $413 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $35,413 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $6,759,603 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$936 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $252,944 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,620,317 | TotalAmt |
| Program Services | $2,620,317 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $100,000 | TotalAmt |
| Program Services | $100,000 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $240,000 | TotalAmt |
| Program Services | $240,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $304,800 | TotalAmt |
| Program Services | $167,640 | ProgramServicesAmt |
| Management And General | $30,481 | ManagementAndGeneralAmt |
| Fundraising | $106,679 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,120,609 | TotalAmt |
| Program Services | $1,204,733 | ProgramServicesAmt |
| Management And General | $582,968 | ManagementAndGeneralAmt |
| Fundraising | $332,908 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $168,397 | TotalAmt |
| Program Services | $95,712 | ProgramServicesAmt |
| Management And General | $46,725 | ManagementAndGeneralAmt |
| Fundraising | $25,960 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $338,031 | TotalAmt |
| Program Services | $191,854 | ProgramServicesAmt |
| Management And General | $91,147 | ManagementAndGeneralAmt |
| Fundraising | $55,030 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $195,822 | TotalAmt |
| Program Services | $110,870 | ProgramServicesAmt |
| Management And General | $50,182 | ManagementAndGeneralAmt |
| Fundraising | $34,770 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $91,196 | TotalAmt |
| Program Services | $69,534 | ProgramServicesAmt |
| Management And General | $5,125 | ManagementAndGeneralAmt |
| Fundraising | $16,537 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $34,050 | TotalAmt |
| Program Services | $25,962 | ProgramServicesAmt |
| Management And General | $1,914 | ManagementAndGeneralAmt |
| Fundraising | $6,174 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $58,899 | TotalAmt |
| Program Services | $58,899 | ProgramServicesAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $137,813 | TotalAmt |
| Fundraising | $137,813 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,230 | TotalAmt |
| Management And General | $21,230 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $687,619 | TotalAmt |
| Program Services | $609,081 | ProgramServicesAmt |
| Management And General | $51,189 | ManagementAndGeneralAmt |
| Fundraising | $27,349 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $33,108 | TotalAmt |
| Program Services | $33,108 | ProgramServicesAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $252,437 | TotalAmt |
| Program Services | $189,190 | ProgramServicesAmt |
| Management And General | $35,645 | ManagementAndGeneralAmt |
| Fundraising | $27,602 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $54,250 | TotalAmt |
| Program Services | $30,517 | ProgramServicesAmt |
| Management And General | $8,449 | ManagementAndGeneralAmt |
| Fundraising | $15,284 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $198,229 | TotalAmt |
| Program Services | $127,526 | ProgramServicesAmt |
| Management And General | $40,500 | ManagementAndGeneralAmt |
| Fundraising | $30,203 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $40,010 | TotalAmt |
| Program Services | $40,010 | ProgramServicesAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $249,621 | TotalAmt |
| Program Services | $171,617 | ProgramServicesAmt |
| Management And General | $997 | ManagementAndGeneralAmt |
| Fundraising | $77,007 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $146,326 | TotalAmt |
| Program Services | $81,519 | ProgramServicesAmt |
| Management And General | $37,980 | ManagementAndGeneralAmt |
| Fundraising | $26,827 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $27,543 | TotalAmt |
| Program Services | $17,866 | ProgramServicesAmt |
| Management And General | $5,671 | ManagementAndGeneralAmt |
| Fundraising | $4,006 | FundraisingAmt |
Other Expenses OtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | DUES, FEES, MEMBERSHIPS | Desc |
| Total | $49,650 | TotalAmt |
| Program Services | $16,743 | ProgramServicesAmt |
| Management And General | $24,152 | ManagementAndGeneralAmt |
| Fundraising | $8,755 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,169,957 | TotalAmt |
| Program Services | $6,202,698 | ProgramServicesAmt |
| Management And General | $1,034,355 | ManagementAndGeneralAmt |
| Fundraising | $932,904 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $201,071 | TotalAmt |
| Program Services | $81,098 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $119,973 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $228,084 | BOYAmt |
| EOY | $560,278 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,156,801 | BOYAmt |
| EOY | $1,336,795 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,772,108 | BOYAmt |
| EOY | $2,888,585 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $12,287 | BOYAmt |
| EOY | $26,148 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,089 | BOYAmt |
| EOY | $12,805 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $985,578 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $245,461 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $278,353 | BOYAmt |
| EOY | $740,117 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,925,474 | BOYAmt |
| EOY | $5,024,730 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $16,958 | BOYAmt |
| EOY | $17,008 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,398,154 | BOYAmt |
| EOY | $10,606,466 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $754,476 | BOYAmt |
| EOY | $852,410 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $600,000 | BOYAmt |
| EOY | $1,000,000 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,354,476 | BOYAmt |
| EOY | $1,852,410 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows SFAS117 | Yes (X) | OrganizationFollowsSFAS117Ind |
Unrestricted Net Assets UnrestrictedNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,917,718 | BOYAmt |
| EOY | $4,517,567 | EOYAmt |
Temporarily Rstr Net Assets TemporarilyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,125,960 | BOYAmt |
| EOY | $3,236,489 | EOYAmt |
Permanently Rstr Net Assets PermanentlyRstrNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,000,000 | BOYAmt |
| EOY | $1,000,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $10,043,678 | BOYAmt |
| EOY | $8,754,056 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $11,398,154 | BOYAmt |
| EOY | $10,606,466 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$1,410,354 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | $120,732 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,539,923 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,881,314 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,709,118 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $12,652,147 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $6,507,595 | CurrentTaxYearAmt |
| Total | $38,290,097 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,539,923 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $5,881,314 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $5,709,118 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $12,652,147 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $6,507,595 | CurrentTaxYearAmt |
| Total | $38,290,097 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $2,668,285 | SubstantialContributorsTotAmt |
| Public Support Total170 | $35,621,812 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $7,014 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $31,733 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $73,444 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $100,878 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $145,688 | CurrentTaxYearAmt |
| Total | $358,757 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $10,839 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $30,462 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $39,617 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $130,100 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $35,413 | CurrentTaxYearAmt |
| Total | $246,431 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $38,895,285 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $22,656 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.91580 | PublicSupportCY170Pct |
| Public Support PY170 | 0.90330 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: | FormAndLineReferenceDesc |
| Explanation | MISCELLANEOUS INCOME - 2014 AMOUNT: $ 89. 2015 AMOUNT: $ 162. 2016 AMOUNT: $ 737. 2017 AMOUNT: $ 130,100. 2018 AMOUNT: $ 35,413. GROSS REVENUE FROM FUNDRAISING EVENTS - 2014 AMOUNT: $ 10,750. 2015 AMOUNT: $ 30,300. 2016 AMOUNT: $ 38,880. | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $481,510 | CurrentYearMinus3Amt |
| Current Year Minus2 | $456,460 | CurrentYearMinus2Amt |
| Current Year Minus1 | $536,097 | CurrentYearMinus1Amt |
| Total | $1,474,067 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Lobbying Ceiling | $2,211,101 | LobbyingCeilingAmt |
Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $85,018 | CurrentYearMinus3Amt |
| Current Year Minus2 | $58,865 | CurrentYearMinus2Amt |
| Current Year Minus1 | $60,000 | CurrentYearMinus1Amt |
| Current Year | $55,000 | CurrentYearAmt |
| Total | $258,883 | TotalAmt |
Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Year Minus3 | $120,378 | CurrentYearMinus3Amt |
| Current Year Minus2 | $114,115 | CurrentYearMinus2Amt |
| Current Year Minus1 | $134,024 | CurrentYearMinus1Amt |
| Total | $368,517 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grassroots Ceiling | $552,776 | GrassrootsCeilingAmt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $4,079,744 | BeginningYearBalanceAmt |
| Contributions | $409,814 | ContributionsAmt |
| Investment Earnings Or Losses | $276,814 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $148,064 | OtherExpendituresAmt |
| Administrative Expenses | $21,231 | AdministrativeExpensesAmt |
| End Year Balance | $4,597,077 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $2,960,433 | BeginningYearBalanceAmt |
| Contributions | $1,021,831 | ContributionsAmt |
| Investment Earnings Or Losses | $222,220 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $108,000 | OtherExpendituresAmt |
| Administrative Expenses | $16,741 | AdministrativeExpensesAmt |
| End Year Balance | $4,079,744 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $2,773,007 | BeginningYearBalanceAmt |
| Investment Earnings Or Losses | $310,566 | InvestmentEarningsOrLossesAmt |
| Other Expenditures | $108,000 | OtherExpendituresAmt |
| Administrative Expenses | $15,140 | AdministrativeExpensesAmt |
| End Year Balance | $2,960,433 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributions | $2,700,000 | ContributionsAmt |
| Investment Earnings Or Losses | $77,487 | InvestmentEarningsOrLossesAmt |
| Administrative Expenses | $4,480 | AdministrativeExpensesAmt |
| End Year Balance | $2,773,007 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 0.78250 | BoardDesignatedBalanceEOYPct |
| Prmnnt Endowment Balance EOY | 0.21750 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $69,356 | OtherCostOrOtherBasisAmt |
| Depreciation | $780 | DepreciationAmt |
| Book Value | $68,576 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $916,222 | OtherCostOrOtherBasisAmt |
| Depreciation | $244,681 | DepreciationAmt |
| Book Value | $671,541 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $740,117 | TotalBookValueLandBuildingsAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $7,231,115 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | $120,732 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $371,784 | DonatedServicesAndUseFcltsAmt |
| Other Revenue | $226 | OtherRevenueAmt |
| Revenue Not Reported | $492,742 | RevenueNotReportedAmt |
| Revenue Subtotal | $6,738,373 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $21,230 | InvestmentExpensesNotIncldAmt |
| Revenue Not Reported Fincl Stmt | $21,230 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $6,759,603 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $8,520,737 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $371,784 | DonatedServicesUseFcltsAmt |
| Other Expenses Included | $226 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $372,010 | ExpensesNotReportedAmt |
| Expenses Subtotal | $8,148,727 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $21,230 | InvestmentExpensesNotIncld2Amt |
| Expenses Not Rpt Fincl Stmt | $21,230 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $8,169,957 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART V, LINE 4: | THE PURPOSE OF THE RESEARCH OPPORTUNITY FUND AND NAMED ENDOWMENTS (COLLECTIVELY REFERRED TO AS "ENDOWMENTS") IS TO PROVIDE FOR GROWTH-ORIENTED LONG-TERM INVESTMENT OF FUNDS THAT ARE NOT NEEDED TO MEET THE DAY-TO-DAY FINANCIAL OBLIGATIONS OF THE FOUNDATION. |
| PART X, LINE 2: | THE FOUNDATION IS EXEMPT FROM INCOME TAXES UNDER SECTION 501(C)(3) OF THE U.S. INTERNAL REVENUE CODE. THE FOUNDATION DOES NOT OPERATE AS A PRIVATE FOUNDATION. ALTHOUGH IT IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES ON ITS PRINCIPAL OPERATIONS, THE FOUNDATION IS SUBJECT TO FEDERAL INCOME TAXES ON THE NET INCOME FROM ANY OPERATIONS IDENTIFIED BY THE INTERNAL REVENUE SERVICE TO GENERATE UNRELATED BUSINESS INCOME. NO SUCH UNRELATED BUSINESS INCOME TAX WAS INCURRED DURING 2019 OR 2018. THE FOUNDATION FOLLOWS THE STANDARDS FOR EVALUATING UNCERTAIN TAX POSITIONS AND HAS DETERMINED NO LIABILITY SHOULD BE RECORDED FOR UNCERTAIN TAX POSITIONS. |
| PART XI, LINE 2D - OTHER ADJUSTMENTS: | COST OF GOODS SOLD FOR MERCHANDISE SALES 226. |
| PART XII, LINE 2D - OTHER ADJUSTMENTS: | COST OF GOODS SOLD FOR MERCHANDISE SALES 226. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | 0 | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION | N/A | $80,000 |
| EAST ASIA & THE PACIFIC | 0 | 0 | GRANTS TO RECIPIENTS LOCATED IN THE REGION | N/A | $120,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $200,000 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $200,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM | INVESTIGATE ROLE OF MITOCHONDRIAL FITNESS IN PLYCYSTIC KIDNEY DISEASE PROGRESSION | $80,000 | ACH TRANSFER | BOOK |
| EAST ASIA & THE PACIFIC | UNDERSTANDING ROLE OF SOMANTIC VARIATION AND NOVEL MUTATIONAL MECHANISMS | $120,000 | ACH TRANSFER | BOOK |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 3 | Total501c3OrgCnt |
| Total Other Org | 3 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | ALL GRANTEES ARE REQUIRED TO SUBMIT AN ANNUAL RESEARCH PROGRESS REPORT AND AN ANNUAL INSTITUTIONAL FINANCIAL STATUS REPORT. MOST GRANTEES ARE ALSO REQUIRED TO SUBMIT INTERIM QUARTERLY PROGRESS REPORTS. |
| PART I, LINE 3: | EXPENDITURES ARE REPORTED AT THE AMOUNT OF THE GRANT AWARDED AND ARE ACCOUNTED FOR USING THE SAME METHOD IN THE ORGANIZATION'S FINANCIAL STATEMENTS. |
Schedule G IRS990ScheduleG
| Field | Value | IRS element (for citing) |
|---|---|---|
| Mail Solicitations | Yes (X) | MailSolicitationsInd |
| Email Solicitations | Yes (X) | EmailSolicitationsInd |
| Phone Solicitations | Yes (X) | PhoneSolicitationsInd |
| In Person Solicitations | Yes (X) | InPersonSolicitationsInd |
| Solicitation Of Non Govt Grants | Yes (X) | SolicitationOfNonGovtGrantsInd |
| Special Fundraising Events | Yes (X) | SpecialFundraisingEventsInd |
| Agrmt Prof Fundraising Acty | Yes (1) | AgrmtProfFundraisingActyInd |
Fundraiser Activity Info FundraiserActivityInfoGrp
Organization Business Name OrganizationBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | NEWPORT ONE | BusinessNameLine1Txt |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 21 RAILROAD AVE | AddressLine1Txt |
| City | DUXBURY | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 02332 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Activity | MANAGED DIRECT MAIL EFFORTS | ActivityTxt |
| Fundraiser Control Of Funds | 0 | FundraiserControlOfFundsInd |
| Gross Receipts | $484,158 | GrossReceiptsAmt |
| Retained By Contractor | $158,119 | RetainedByContractorAmt |
| Net To Organization | $326,039 | NetToOrganizationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Gross Receipts | $484,158 | TotalGrossReceiptsAmt |
| Total Retained By Contractors | $158,119 | TotalRetainedByContractorsAmt |
| Total Net To Organization | $326,039 | TotalNetToOrganizationAmt |
| Licensed States | AK | LicensedStatesCd |
| Licensed States | AL | LicensedStatesCd |
| Licensed States | AR | LicensedStatesCd |
| Licensed States | AZ | LicensedStatesCd |
| Licensed States | CA | LicensedStatesCd |
| Licensed States | CO | LicensedStatesCd |
| Licensed States | CT | LicensedStatesCd |
| Licensed States | FL | LicensedStatesCd |
| Licensed States | GA | LicensedStatesCd |
| Licensed States | HI | LicensedStatesCd |
| Licensed States | IL | LicensedStatesCd |
| Licensed States | KS | LicensedStatesCd |
| Licensed States | KY | LicensedStatesCd |
| Licensed States | MA | LicensedStatesCd |
| Licensed States | MD | LicensedStatesCd |
| Licensed States | ME | LicensedStatesCd |
| Licensed States | MI | LicensedStatesCd |
| Licensed States | MN | LicensedStatesCd |
| Licensed States | MS | LicensedStatesCd |
| Licensed States | NC | LicensedStatesCd |
| Licensed States | ND | LicensedStatesCd |
| Licensed States | NH | LicensedStatesCd |
| Licensed States | NJ | LicensedStatesCd |
| Licensed States | NM | LicensedStatesCd |
| Licensed States | NV | LicensedStatesCd |
| Licensed States | NY | LicensedStatesCd |
| Licensed States | OH | LicensedStatesCd |
| Licensed States | OK | LicensedStatesCd |
| Licensed States | OR | LicensedStatesCd |
| Licensed States | PA | LicensedStatesCd |
| Licensed States | RI | LicensedStatesCd |
| Licensed States | SC | LicensedStatesCd |
| Licensed States | TN | LicensedStatesCd |
| Licensed States | UT | LicensedStatesCd |
| Licensed States | VA | LicensedStatesCd |
| Licensed States | WA | LicensedStatesCd |
| Licensed States | WI | LicensedStatesCd |
| Licensed States | WV | LicensedStatesCd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | SCHEDULE G, PART I, LINE 2B, COLUMN (V) | FormAndLineReferenceDesc |
| Explanation | PAID PROFESSIONAL FUNDRAISER TO CREATE, PRINT AND SEND DIRECT MAIL CONTRIBUTION SOLICITATIONS. PAYMENTS WERE MADE BY CHECK. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (29 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|
| YALE UNIVERSITY | ||||||||
| 25 SCIENCE PARK 150 MUNSEN STREET | NEW HAVEN | CT | 065113572 | 060646973 | 501(C)(3) | $80,000 | GENETIC APPROACH TO DEFINE MEDIATORS OF POLYCYSTIN-1 FUNCTION IN POLYCYSTIC KIDNEY DISEASE | |
| JOHNS HOPKINS UNIVERSITY | ||||||||
| 6005 HUNT RIDGE RD APT 3431 | BALTIMORE | MD | 21210 | 520595110 | 501(C)(3) | $80,000 | SMALL MOLECULE CORRECTORS REDUCE CYST GROWTH IN ADPKD | |
| NORTHWESTERN UNIVERSITY - ASRSP CASH MANAGEMENT | ||||||||
| 633 CLARK STREET | EVANSTON | IL | 602081112 | 362167817 | 501(C)(3) | $80,000 | THE MOLECULAR AND MECHANISTIC IMPACTS OF FINGER 1 VARIANTS ON PKD2 ION CHANNEL FUNCTION IN THE PRIMARY CILIA. | |
| YALE UNIVERSITY | ||||||||
| 35 BELL STREET | GLASTONBURY | CT | 06033 | 060646973 | 501(C)(3) | $80,000 | CONTROLLING THE VIABILITY OF PKD MUTANT CELLS VIA INACTIVATION OF XBP1 AS A NOVEL STRATEGY TO TREAT ADPKD | |
| UNIVERSITY OF KANSAS MEDICAL SCHOOL | ||||||||
| 10601 NW 75TH TERR | KANSAS CITY | MO | 64152 | 481108830 | 501(C)(3) | $80,000 | PRE-CLINICAL EVALUATION OF CASPASE 1 AS A THERAPEUTIC TARGET IN ADPKD. | |
| REGENTS OF UNIVERSITY OF COLORADO | ||||||||
| PO BOX 910238 | DENVER | CO | 802910238 | 846000555 | 501(C)(3) | $80,000 | UNDERSTANDING THE ROLE OF CD8+ T-CELLS IN HALTING RENAL CYSTOGENESIS | |
| MEDICAL UNIVERSITY OF SOUTH CAROLINA | ||||||||
| 19 HAGOOD AVE MSC 808 | CHARLESTON | SC | 294035120 | 576000722 | GOV | $80,000 | EFFECTS OF DIETARY SALT RESTRICTION ON CYSTOGENESIS IN ARPKD | |
| MAYO CLINIC | ||||||||
| PO BOX 860334 | MINNEAPOLIS | MN | 55486 | 416011702 | 501(C)(3) | $80,000 | THE ROLES OF DNA METHYLATION IN AUTOSOMAL DOMINANT POLYCYSTIC KIDNEY DISEASE | |
| YALE UNIVERSITY | ||||||||
| PO BOX 1873 | NEW HAVEN | CT | 065081873 | 060646973 | 501(C)(3) | $80,000 | ROLE OF INTERSTITIAL CELLS IN RENAL CYSTOGENESIS | |
| UNIV OF KS MEDICAL CENTER RESEARCH INSTITUTE INC | ||||||||
| MSN 1039 3901 RAINBOW BLVD | KANSAS CITY | KS | 661032937 | 481108830 | 501(C)(3) | $80,000 | MECHANISM OF POLYCYSTIN-1-REGULATED G PROTEIN SIGNALING AND ITS ROLE IN THE PATHOGENESIS AND TREATMENT OF PKD | |
| UNIVERSITY OF MARYLAND | ||||||||
| 655 W BALTIMORE ST RBR 2-017A | BALTIMORE | MD | 21201 | 526002033 | 501(C)(3) | $80,000 | POLYCYSTIN-1 CLEAVAGE PRODUCT P100: DISTINCTIVE TOPOLOGY, SPECIFIC PROPERTIES, AND POLYCYSTIN-2-ASSOCIATED CHANNEL ACTIVITY | |
| REGENTS OF THE UNIVERSITY OF CALIFORNIA | ||||||||
| PO BOX 748872 | LOS ANGELES | CA | 900744872 | 943067788 | 501(C)(3) | $80,000 | UNDERSTANDING HOW THE CILIARY TRANSITION ZONE CONTROLS POLYCYSTIN-2 LOCALIZATION TO CILIA | |
| UNIVERSITY OF ALABAMA AT BIRMINGHAM | ||||||||
| 1720 2ND AVE SOUTH LHRB 621 | BIRMINGHAM | AL | 35294 | 636005396 | 501(C)(3) | $80,000 | KIDNEY SPECIFIC DRUG DELIVERY USING NANOPARTICLES IN PKD1 MICE | |
| PRESIDENT AND FELLOWS OF HARVARD COLLEGE | ||||||||
| PO BOX 415649 | BOSTON | MA | 022415649 | 042103580 | 501(C)(3) | $80,000 | TAKING PKD OUT OF THE KIDNEY: DISSECTION OF POLYCYSTIN SIGNALING IN A NOVEL CELL-BASED SYSTEM | |
| UNIVERSITY OF MARYLAND SCHOOL OF MEDICINE | ||||||||
| 22 S GREENE ST ROOM N3W143 | BALTIMORE | MD | 21201 | 526002033 | 501(C)(3) | $80,000 | BAC TRANSGENESIS TO MODEL AN ANEURYSM-ASSOCIATED HUMAN MUTATION IN MICE | |
| CLEVELAND CLINIC FOUNDATION | ||||||||
| PO BOX 931531 | CLEVELAND | OH | 441935012 | 912153073 | 501(C)(3) | $80,000 | REGULATION OF CILIARY G-PROTEIN SIGNALING BY POLYCYSTIN-1 | |
| THE CHILDREN'S MERCY HOSPITAL | ||||||||
| PO BOX 803852 | KANSAS CITY | MO | 641803852 | 440605373 | 501(C)(3) | $80,000 | MOLECULAR CHARACTERIZATION OF CYST FORMATION IN A PORCINE MODEL OF EARLY ADPKD | |
| UNIVERSITY OF MARYLAND BALTIMORE | ||||||||
| PO BOX 41428 | BALTIMORE | MD | 212036428 | 526002033 | GOV | $80,000 | DISRUPTION OF THE APICAL JUNCTIONAL COMPLEX IN CYSTOGENESIS AND ADPKD | |
| ST JOHN'S UNIVERSITY | ||||||||
| 8000 UTOPIA PARK | QUEENS | NY | 11438 | 111630830 | 501(C)(3) | $80,000 | THE ROLE OF POLYCYSTIN-1 IN THE POLYCYSTIN-1/POLYCYSTIN-2 ION CHANNEL COMPLEX | |
| BRIGHAM AND WOMEN'S HOSPITAL | ||||||||
| 77 AVENUE LOUIS PASTEUR 4 BLACKFAN | BOSTON | MA | 02115 | 416011702 | 501(C)(3) | $80,000 | ELUCIDATING THE CYSTOGENIC PROTEOME IN POLYCYSTIC KIDNEY DISEASE | CIRCLE |
| MAYO CLINIC | ||||||||
| PO BOX 860334 | MINNEAPOLIS | MN | 55486 | 416011702 | 501(C)(3) | $40,000 | ADPKD MUTATION DATABASE | |
| YALE UNIVERSITY | ||||||||
| PO BOX 1873 | NEW HAVEN | CT | 065081873 | 060646973 | 501(C)(3) | $60,000 | TARGETING THE CELL CYCLE AS A POTENTIAL TREATMENT FOR ADPKD: THE ROLE OF CYCLIN-DEPENDENT KINASE 1 | |
| MAYO CLINIC | ||||||||
| PO BOX 860334 | MINNEAPOLIS | MN | 55486 | 416011702 | 501(C)(3) | $60,000 | RESTORING CILIARY LEVEL OF FUNCTIONAL POLYCYSTINS AS A NOVEL THERAPEUTIC APPROACH FOR ADPKD TREATMENT | |
| UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER | ||||||||
| 512 RATON PASS | IRVING | TX | 75063 | 756002868 | 501(C)(3) | $60,000 | INVESTIGATING THE M6A RNA METHYLATION PATHWAY AS A THERAPEUTIC OPTION FOR ADPKD TREATMENT | |
| UT SOUTHWESTERN MEDICAL CENTER | ||||||||
| 5323 HARRY HINES BLVD | DALLAS | TX | 75390 | 756002868 | 501(C)(3) | $60,000 | ROLE OF TULP3-MEDIATED CILIARY PROTEIN TRAFFICKING IN KIDNEY CYSTOGENESIS | |
| UNIVERSITY OF MARYLAND | ||||||||
| 737 WEST LOMBARD ST | BALTIMORE | MD | 21201 | 526002033 | 501(C)(3) | $60,000 | RELIEVING THE STRESS OF PKD: A NEW ROLE OF PKHD1 IN DETOXIFICATION MEDIATED VIA DIFFERENTIAL CLEAVAGE OF THE INTRACELLULAR DOMAIN | |
| UNIVERSITY OF COLORADO | ||||||||
| PO BOX 910238 | DENVER | CO | 802910238 | 846000555 | 501(C)(3) | $50,000 | PKD GENE THERAPY TARGETING THE 4E-BP1 PATHWAY | |
| KUMC KIDNEY INSTITUTE | ||||||||
| 4330 SHAWNEE MISSION PARKWAY | FAIRWAY | KS | 66205 | 481108830 | 501(C)(3) | $50,000 | TARGETING THE LKB1-AMPK SIGNALING PATHWAY IN POLYCYSTIC KIDNEY DISEASE | |
| YALE UNIVERSITY | ||||||||
| PO BOX 1873 | NEW HAVEN | CT | 065081873 | 060646973 | 501(C)(3) | $50,000 | GENETIC VARIANTS PREDISPOSING TO INTRACRANIAL ANEURYSM FORMATION IN ADPKD | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 16 | Total501c3OrgCnt |
| Total Other Org | 16 | TotalOtherOrgCnt |
Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Type | KAPLAN PRIZES | GrantTypeTxt |
| Recipient | 2 | RecipientCnt |
| Cash Grant | $100,000 | CashGrantAmt |
| Valuation Method Used | CASH VALUE | ValuationMethodUsedDesc |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | ALL GRANTEES ARE REQUIRED TO SUBMIT AN ANNUAL RESEARCH PROGRESS REPORT AND AN ANNUAL INSTITUTIONAL FINANCIAL STATUS REPORT. MOST GRANTEES ARE ALSO REQUIRED TO SUBMIT INTERIM QUARTERLY PROGRESS REPORTS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | 0 | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | 0 | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (3 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| ANDY BETTS | ||||||||||||||
| PRESIDENT & CEO | $201,793 | $0 | $33,550 | $0 | $0 | $0 | $15,153 | $0 | $28,806 | $0 | $279,302 | $0 | $0 | $0 |
| DAVID BARON | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER | $187,450 | $0 | $18,720 | $0 | $0 | $0 | $24,500 | $0 | $11,101 | $0 | $241,771 | $0 | $0 | $0 |
| KENNETH MCLAUGHLIN | ||||||||||||||
| COO - LEFT DECEMBER 2018 | $90,917 | $0 | $19,000 | $0 | $29,412 | $0 | $24,500 | $0 | $11,426 | $0 | $175,255 | $0 | $0 | $0 |
Schedule M IRS990ScheduleM
Cars And Other Vehicles CarsAndOtherVehiclesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 28 | ContributionCnt |
| Noncash Contributions Rpt F990 | $12,614 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR VALUE | MethodOfDeterminingRevenuesTxt |
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 7 | ContributionCnt |
| Noncash Contributions Rpt F990 | $37,744 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FAIR VALUE | MethodOfDeterminingRevenuesTxt |
Other Non Cash Contri Table OtherNonCashContriTableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Desc | EVENT ITEMS | Desc |
| Contribution | 274 | ContributionCnt |
| Noncash Contributions Rpt F990 | $191,238 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | FMV | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 0 | Form8283ReceivedCnt |
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | Yes (1) | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 32B: | FormAndLineReferenceDesc |
| Explanation | ORGANIZATION UTILIZES ONGOING BANKING RELATIONSHIPS TO MARKET DONATED SECURITIES. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, SECTION B | THE FORM IS AMENDED TO SHOW THE DOLLAR AMOUNTS OF JOINT COSTS ON PART IX, LINE 26, WHICH WERE PREVIOUSLY OMITTED. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 IS PREPARED BY AN INDEPENDENT ACCOUNTING FIRM. PRIOR TO FILING THE FORM 990 FOR PKD FOUNDATION, A DRAFT COPY WILL BE PROVIDED TO THE BOARD OF TRUSTEES FOR REVIEW AND COMMENT. ANY COMMENTS WILL BE ACCUMULATED BY MANAGEMENT AND ADDRESSED ACCORDINGLY PRIOR TO FILING WITH THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | MEMBERS OF THE BOARD OF TRUSTEES OF PKD FOUNDATION ARE REQUIRED TO SIGN AN ANNUAL STATEMENT DISCLOSING ANY CONFLICTS OF INTEREST. THE GOVERNANCE COMMITTEE REVIEWS THE STATEMENTS AND ENSURES THAT BOARD MEMBERS ARE PROHIBITED FROM PARTICIPATING IN DISCUSSIONS OR DECISIONS RELATED TO TRANSACTIONS THAT INVOLVE ACTUAL CONFLICTS OF INTEREST. |
| FORM 990, PART VI, SECTION B, LINE 15 | ANNUALLY, THE CHAIRMAN OF THE BOARD OF TRUSTEES WORKS WITH THE CEO TO DEVELOP THE CEO'S GOALS FOR THE NEW FISCAL YEAR. AT THE END OF EACH FISCAL YEAR, THE EXECUTIVE COMMITTEE EVALUATES THE CEO AGAINST THESE GOALS AND RECOMMENDS TO THE BOARD THE CEO'S COMPENSATION PACKAGE FOR APPROVAL, BASED ON THIS EVALUATION. THE CEO'S COMPENSATION WAS LAST REVIEWED IN 2018. |
| FORM 990, PART VI, SECTION C, LINE 19 | THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON THEIR OWN WEBSITE AND UPON REQUEST. |
| FORM 990, PART VII, SECTION A, LINE 1: | PKD FOUNDATION CONTRACTS WITH ADP TOTALSOURCE TO PROVIDE CERTAIN EMPLOYEE BENEFITS AND PAYROLL SERVICES. EMPLOYEES ARE CONSIDERED TO BE JOINTLY EMPLOYED BY BOTH PKD FOUNDATION AND ADP TOTALSOURCE. IN ORDER TO COMPLY WITH TRANSPARENCY DIRECTIVES AS A PART OF THE FORM 990, THE FOUNDATION HAS DECIDED TO REPORT COMPENSATION IN PART VII TO INCLUDE AMOUNTS PAID AND REPORTED ON W-2'S BY ADP TOTALSOURCE. |
| FORM 990, PART XII, LINE 2C: | NO CHANGE FROM THE PRIOR YEAR. |
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