THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC: Form 990, tax year 2021
View the entire original 990 at ProPublica ↗
- Organization
- THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC (EIN 06-1504413)
- Tax period
- 2021-01-01 to 2021-12-31
- Filed
- 2022-11-08
- IRS object ID
- 202233129349303178
- Schema version
- 2021v4.2
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule D
- Schedule F
- Schedule I
- Schedule J
- Schedule M
- Schedule O
- Schedule R
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2022-11-08T13:12:17-06:00 | ReturnTs |
| Tax Period End | 2021-12-31 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 271728945 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | PKF O'CONNOR DAVIES LLP | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 3001 SUMMER STREET 5TH FLOOR EAST | AddressLine1Txt |
| City | STAMFORD | CityNm |
| State Abbreviation | CT | StateAbbreviationCd |
| ZIP | 06905 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2021-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 061504413 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | THE MULTIPLE MYELOMA RESEARCH | BusinessNameLine1Txt |
| Business Name Line2 | FOUNDATION INC | BusinessNameLine2Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | MULT | BusinessNameControlTxt |
| Phone | 2032290464 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 383 MAIN AVE 5TH FL | AddressLine1Txt |
| City | NORWALK | CityNm |
| State Abbreviation | CT | StateAbbreviationCd |
| ZIP | 06851 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | ROBERT MIANI | PersonNm |
| Person Title | TREASURER/CFO | PersonTitleTxt |
| Phone | 2032290464 | PhoneNum |
| Signature | 2022-11-08 | SignatureDt |
| Discuss With Paid Preparer | Yes (1) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | ROBERT | PersonFirstNm |
| Person Last | MIANI | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | XXX-XX-XXXX | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | GARRETT M HIGGINS | PreparerPersonNm |
| PTIN | P00543209 | PTIN |
| Phone | 2033232400 | PhoneNum |
| Preparation | 2022-11-08 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 3 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2021 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | MICHAEL ANDREINI | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 383 MAIN AVE 5TH FL | AddressLine1Txt |
| City | NORWALK | CityNm |
| State Abbreviation | CT | StateAbbreviationCd |
| ZIP | 06851 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $137,690,657 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | WWW.THEMMRF.ORG | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 1998 | FormationYr |
| Legal Domicile State | CT | LegalDomicileStateCd |
| Activity Or Mission | SEE SCHEDULE O | ActivityOrMissionDesc |
| Voting Members Governing Body | 18 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 17 | VotingMembersIndependentCnt |
| Total Employee | 74 | TotalEmployeeCnt |
| Total Volunteers | 343 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $25,012,712 | PYContributionsGrantsAmt |
| CY Contributions Grants | $37,089,868 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $2,546,093 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $2,348,850 | CYProgramServiceRevenueAmt |
| PY Investment Income | -$1,530,381 | PYInvestmentIncomeAmt |
| CY Investment Income | $2,872,478 | CYInvestmentIncomeAmt |
| PY Other Revenue | $758,795 | PYOtherRevenueAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $26,787,219 | PYTotalRevenueAmt |
| CY Total Revenue | $42,311,196 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $1,830,765 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $6,629,658 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $8,945,794 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $11,130,870 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $0 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $3,821,015 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $17,769,173 | PYOtherExpensesAmt |
| CY Other Expenses | $19,886,535 | CYOtherExpensesAmt |
| PY Total Expenses | $28,545,732 | PYTotalExpensesAmt |
| CY Total Expenses | $37,647,063 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$1,758,513 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $4,664,133 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $73,276,923 | TotalAssetsBOYAmt |
| Total Assets EOY | $85,401,847 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $20,009,693 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $28,167,047 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $53,267,230 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $57,234,800 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | SEE SCHEDULE O | MissionDesc |
| Significant New Program Srvc | 0 | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $6,057,158 | ExpenseAmt |
| Grant | $6,057,158 | GrantAmt |
| Desc | THE MULTIPLE MYELOMA RESEARCH FOUNDATION (MMRF) SUPPORTS INVESTIGATORS AND SCIENTIFIC PROJECTS THROUGH A NUMBER OF RESEARCH GRANTS. THE GOAL OF THIS INITIATIVE IS TO ACCELERATE THE DEVELOPMENT OF THERAPEUTIC APPROACHES FOR MYELOMA THROUGH OUR UNIQUE END-TO-END MODEL THAT SUPPORTS EFFORTS IN BASIC SCIENCE OR TRANSLATION RESEARCH.IN 2021, THE MMRF CONTINUED TO BUILD OUT THE MMRF IMMUNE ATLAS INITIATIVE ("THE ATLAS"), AN IMMUNE PROFILING AND ANALYTICS PLATFORM USING DATA AND SAMPLES FROM THE COMMPASS STUDY TO GENERATE DATA ON THE ROLE OF PATIENT IMMUNITY IN MYELOMA DISEASE BIOLOGY AND RESPONSE TO THERAPY, AND TO SUPPORT AND SPEED EFFORTS TO MAKE IMMUNOTHERAPY MORE PRECISE TO LEVERAGE IMMUNOTHERAPY FOR THE TREATMENT OF MULTIPLE MYELOMA. THE IMMUNE ATLAS WILL DESCRIBE THE IMMUNE LANDSCAPE IN MYELOMA AND HOW IT CHANGES THROUGHOUT THE COURSE OF THE DISEASEAND TREATMENT. THIS EFFORT IS A CRITICAL FIRST STEP TO ESTABLISH STANDARDS AND ALIGNMENT ON HOW IMMUNE DATA IS PRODUCED, PRIORITIZED, AGGREGATED, AND SHARED. AT SCALE, IT HAS THE POTENTIAL TO IDENTIFY NEW IMMUNOLOGIC FACTORS PREDICTIVE OF PATIENT RESPONSE OR RELAPSE TO THERAPY, TO IDENTIFY NEW IMMUNE TARGETS FOR DRUG DEVELOPMENT AND, EVENTUALLY, ENABLE CLINICIANS TO CUSTOMIZE TREATMENTS AND THERAPIES BASED ON AN INDIVIDUAL'S IMMUNE SYSTEM.IN JULY 2020, THE MMRF LAUNCHED THE MMRF CURECLOUD ("CURECLOUD"), A DIRECT-TO-PATIENT REGISTRY THAT OFFERS PATIENTS THE FIRST AT-HOME GENOMIC TESTING PROGRAM AND THE RETURN OF A CLINICAL GRADE REPORT THAT CAN BE USED TO IDENTIFY TREATMENTS AND TRIALS THAT MAY BE RIGHT FOR THEIR CARE. THE AGGREGATED CURECLOUD DATA WILL ALSO BE USED TO DRIVE NEW SCIENTIFIC DISCOVERIES FOR RESEARCHERS THAT WILL GUIDE THE DEVELOPMENT OF NEW TREATMENTS AND CARE PATHWAYS TO IMPROVE OUTCOMES FOR ALL PATIENTS. THE MMRF PLANS TO RECRUIT 5,000 PATIENTS WITH SMOLDERING AND ACTIVE MULTIPLE MYELOMA, WITH 890 PATIENTS ENROLLED BY THE END OF 2021. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $4,175,880 | ExpenseAmt |
| Grant | $572,500 | GrantAmt |
| Revenue | $2,348,850 | RevenueAmt |
| Desc | A KEY COMPONENT OF OUR RESEARCH PROGRAMS HAS BEEN OUR ABILITY TO PARTNER WITH OUR NETWORK OF LEADING ACADEMIC MYELOMA CENTERS THROUGH THE MMRC (MULTIPLE MYELOMA RESEARCH CONSORTIUM). THE MMRC IS A NETWORK OF 21 LEADING CANCER CENTERS AND ADDRESSES THREE CRITICAL AREAS OF UNMET NEED: HIGH-RISK SMOLDERING MYELOMA, HIGH-RISK UPFRONT TREATMENT FOR SYMPTOMATIC MULTIPLE MYELOMA, AND RELAPSED/REFRACTORY TREATMENT AFTER ANTI-CD38 AND BCMA-DIRECTED THERAPIES. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $3,706,744 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | THE MMRF-SPONSORED COMMPASS STUDY COMMENCED IN 2011, AND 1,150 NEWLY DIAGNOSED, UNTREATED PATIENTS WITH ACTIVE MULTIPLE MYELOMA FROM 76 SITES (I.E., HOSPITALS, ACADEMIC MEDICAL CENTERS, AND OTHER COMMUNITY HEALTH CENTERS) IN FOUR COUNTRIES HAD BEEN ENROLLED BY 2015, AT WHICH TIME THE STUDY WAS CLOSED TO NEW PATIENT RECRUITMENT. PATIENTS ARE FOLLOWED FOR EIGHT YEARS THROUGH 2023. NO EXPERIMENTAL TREATMENTS ARE TESTED IN THE STUDY; RATHER, PATIENTS ARE PRESCRIBED STANDARD OF CARE AGENTS BY THEIR PHYSICIAN, AND BLOOD AND BONE MARROW SAMPLES ARE TAKEN FROM THE PATIENTS WHEN THERE IS A CHANGE IN THEIR DISEASE STATUS. THE TISSUE SAMPLES COLLECTED ARE PLACED IN A BIOBANK. AN UNRELATED, THIRD PARTY, NOT-FOR-PROFIT BIOMEDICAL RESEARCH INSTITUTE THEN PERFORMS LABORATORY TESTS ON A PORTION OF EACH OF THE SAMPLES RESULTING IN GENOMIC DATA ABOUT EACH PATIENT. THE MMRF LAUNCHED A SIMILAR SAMPLE/DATA SHARING COLLABORATION WITH EASTERN COOPERATIVE ONCOLOGY GROUP (THE "ECOG"). THE FINDINGS CANNOT BE PATENTED, AND ALL THE DATA ARE PLACED ON A PUBLIC PORTAL (THE MMRF RESEARCHER GATEWAY). THE RESULTING DATA REPOSITORY IS THE MOST COMPREHENSIVE CATALOG OF MULTIPLE MYELOMA AND CONTAINS THE GREATEST AMOUNT OF WHOLE GENOME SEQUENCING DATA OF ANY CANCER, ACCESSIBLE TO ANY RESEARCHER IN THE WORLD. IT WILL PROVIDE FOR MORE INFORMATION THAN IS AVAILABLE FROM CURRENT CANCER TISSUE BANKS THAT TYPICALLY INCLUDE ONLY ONE SAMPLE PER PATIENT. | Desc |
Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $18,592,347 | ExpenseAmt |
| Grant | $0 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | IN ADDITION TO THE PROGRAM EXPENSES DESCRIBED ABOVE, CORRESPONDING ACTIVITIES IN ALIGNMENT WITH THE OVERALL GOALS OF THE ORGANIZATION ARE ALSO SUPPORTED. THESE INCLUDE A PORTFOLIO OF CUTTING-EDGE RESEARCH PROGRAMS IN BASIC SCIENCE, WHICH IDENTIFIES NEW TARGETS THROUGH GENOMICS AND PROTEOMICS RESEARCH; VALIDATION STUDIES, WHICH IDENTIFY NEW COMPOUNDS AND COMBINATIONS IN RESEARCH MODELS BASED ON HIGH-PRIORITY TARGETS; AND INNOVATIVE CLINICAL TRIALS OF NOVEL AND COMBINATION TREATMENTS. AS A PATIENT-FOUNDED ORGANIZATION, THE MMRF STANDS TOGETHER WITH THOSE WHO ARE BATTLING MULTIPLE MYELOMA - PATIENTS, FAMILIES, PHYSICIANS, RESEARCHERS, AND INVESTORS. AT THE SAME TIME, THE MMRF STANDS APART WITH ITS INNOVATIVE APPROACH. THE MMRF GENERATES, INTERPRETS, AND ACTIVATES THE LARGEST COLLECTION OF HIGH-QUALITY DATA AND PLACES IT IN THE PUBLIC DOMAIN. THE MMRF ORCHESTRATES THE PEOPLE, PROGRAMS, AND TECHNOLOGIES NECESSARY TO SPEED THE DISCOVERY OF A CURE. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $18,592,347 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $0 | TotalOtherProgSrvcGrantAmt |
| Total Other Prog Srvc Revenue | $0 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $32,532,129 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | 0 | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | 0 | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | Yes (1) | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | 0 | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | Yes (1) | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | 0 | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (1) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | Yes (1) | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | Yes (1) | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 44 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 74 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 18 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 17 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (1) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | 0 | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | Yes (1) | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | ROBERT MIANI | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Phone | 2036520207 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 383 MAIN AVE 5TH FLOOR | AddressLine1Txt |
| City | NORWALK | CityNm |
| State Abbreviation | CT | StateAbbreviationCd |
| ZIP | 06851 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (33 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | OfficerOfficerInd | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd |
|---|---|---|---|---|---|---|---|---|---|
| KATHY GIUSTI | |||||||||
| FOUNDER & CHIEF MISSION OFFICER | 45.00 | Yes (X) | $612,455 | $0 | $12,770 | ||||
| MICHAEL MORTIMER | |||||||||
| CHAIRMAN | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |||
| LORI TAUBER-MARCUS | |||||||||
| VICE CHAIRMAN | 2.00 | Yes (X) | $0 | $0 | $0 | Yes (X) | |||
| KENNETH ANDERSON MD | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| KAREN ANDREWS | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| THOMAS CONHEENEY | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| RODNEY GILMORE | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| W DANA LAFORGE | |||||||||
| DIRECTOR, THRU DEC. 2021 | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| DAVID LUCCHINO | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| HUGH MARTIN | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| SUSAN MARVIN | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| GERALD MCDOUGALL | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| WILLIAM MCKIERNAN | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| DAVID PARKINSON MD | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| MARIE PINIZZOTTO MD | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| RODGER RINEY | |||||||||
| DIRECTOR, THRU DEC. 2021 | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| ADRIAN ROSENKRANZ | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| STEVEN SHAK | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| KIMBERLY WHITE | |||||||||
| DIRECTOR | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| MICHAEL REINERT | |||||||||
| DIRECTOR, THRU APRIL 2021 | 2.00 | Yes (X) | $0 | $0 | $0 | ||||
| MICHAEL ANDREINI | |||||||||
| PRESIDENT & CEO | 45.00 | $357,361 | $0 | $19,860 | Yes (X) | ||||
| ROBERT MIANI | |||||||||
| TREASURER/CFO | 45.00 | $269,805 | $0 | $20,611 | Yes (X) | ||||
| KAREN DIETZ | |||||||||
| SECRETARY/IN-HOUSE COUNSEL | 45.00 | $217,152 | $0 | $18,778 | Yes (X) | ||||
| ANNE QUINN YOUNG | |||||||||
| CHIEF MARKETING & DEV. OFFICER | 45.00 | $265,892 | $0 | $18,743 | Yes (X) | ||||
| DANIEL AUCLAIR | |||||||||
| CHIEF SCIENTIFIC OFFICER, THRU DEC. 2021 | 45.00 | $226,883 | $0 | $10,551 | Yes (X) | ||||
| STEVEN LABKOFF MD | |||||||||
| CHIEF DATA OFFICER, THRU JULY 2021 | 45.00 | $211,331 | $0 | $26,029 | Yes (X) | ||||
| PETER KOSA | |||||||||
| MIF MANAGING DIRECTOR | 45.00 | $319,603 | $0 | $33,117 | Yes (X) | ||||
| CHANTELLE BRINKLEY | |||||||||
| DIR, OFFICE OF THE FOUNDER, THRU DEC. 2021 | 45.00 | $215,142 | $0 | $8,356 | Yes (X) | ||||
| MINDY FLINN | |||||||||
| VP OF DEVELOPMENT | 45.00 | $202,654 | $0 | $17,841 | Yes (X) | ||||
| CHRISTOPHER WILLIAMS | |||||||||
| VP OF BUSINESS DEVELOPMENT | 45.00 | $199,441 | $0 | $28,082 | Yes (X) | ||||
| GREG RUBENSTEIN | |||||||||
| VP OF MARKETING | 45.00 | $183,897 | $0 | $28,791 | Yes (X) | ||||
| CATHERINE WACHIRA | |||||||||
| CLINCAL RESEACH | 45.00 | $179,100 | $0 | $8,249 | Yes (X) | ||||
| PAUL GIUSTI | |||||||||
| FORMER PRESIDENT & CEO | 0.00 | $352,894 | $0 | $76 | Yes (X) | ||||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $3,813,610 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $251,854 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 36 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | Yes (1) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp (5 entries)
| Address Line1ContractorAddress/USAddress/AddressLine1Txt | CityContractorAddress/USAddress/CityNm | State AbbreviationContractorAddress/USAddress/StateAbbreviationCd | ZIPContractorAddress/USAddress/ZIPCd | ServicesServicesDesc | CompensationCompensationAmt |
|---|---|---|---|---|---|
| REDMEDED LLC | |||||
| 5 GREAT VALLEY PARKWAY SUITE 221 | MALVERN | PA | 19355 | CONTINUING MEDICAL EDUCATION | $2,168,520 |
| TGEN | |||||
| 445 N FIFTH STREET | PHOENIX | AZ | 85004 | CONTRACT RESEARCH | $964,532 |
| PRECISION ONCOLOGY | |||||
| PO BOX 75742 | BALTIMORE | MD | 212755742 | CONTRACT RESEARCH | $959,762 |
| CLINICAL RESEARCH SEQUENCING PLATFORM L | |||||
| 415 MAIN STREET | CAMBRIDGE | MA | 02142 | CONTRACT RESEARCH | $858,345 |
| 10X GENOMICS INC | |||||
| 6230 STONERIDGE MALL ROAD | PLEASANTON | CA | 94588 | CONTRACT RESEARCH | $717,968 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 35 | CntrctRcvdGreaterThan100KCnt |
| Government Grants | $1,461,930 | GovernmentGrantsAmt |
| All Other Contributions | $35,627,938 | AllOtherContributionsAmt |
| Noncash Contributions | $789,542 | NoncashContributionsAmt |
| Total Contributions | $37,089,868 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | RESEARCH & CLINICAL TRIALS | Desc |
| Business | 541610 | BusinessCd |
| Total Revenue Column | $2,348,850 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $2,348,850 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $2,348,850 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $100,955 | TotalRevenueColumnAmt |
| Exclusion | $100,955 | ExclusionAmt |
Gross Amount Sales Assets GrossAmountSalesAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $98,150,984 | SecuritiesAmt |
Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $95,379,461 | SecuritiesAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $2,771,523 | SecuritiesAmt |
Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $2,771,523 | TotalRevenueColumnAmt |
| Exclusion | $2,771,523 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $42,311,196 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $2,348,850 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $2,872,478 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,584,658 | TotalAmt |
| Program Services | $6,584,658 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,000 | TotalAmt |
| Program Services | $45,000 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,640,941 | TotalAmt |
| Program Services | $1,861,751 | ProgramServicesAmt |
| Management And General | $267,398 | ManagementAndGeneralAmt |
| Fundraising | $511,792 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $352,970 | TotalAmt |
| Program Services | $248,828 | ProgramServicesAmt |
| Management And General | $35,739 | ManagementAndGeneralAmt |
| Fundraising | $68,403 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,064,425 | TotalAmt |
| Program Services | $4,980,119 | ProgramServicesAmt |
| Management And General | $715,280 | ManagementAndGeneralAmt |
| Fundraising | $1,369,026 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $203,726 | TotalAmt |
| Program Services | $143,619 | ProgramServicesAmt |
| Management And General | $20,627 | ManagementAndGeneralAmt |
| Fundraising | $39,480 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $279,318 | TotalAmt |
| Program Services | $196,908 | ProgramServicesAmt |
| Management And General | $28,281 | ManagementAndGeneralAmt |
| Fundraising | $54,129 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $589,490 | TotalAmt |
| Program Services | $415,566 | ProgramServicesAmt |
| Management And General | $59,686 | ManagementAndGeneralAmt |
| Fundraising | $114,238 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,249,249 | TotalAmt |
| Program Services | $1,104,190 | ProgramServicesAmt |
| Management And General | $24,656 | ManagementAndGeneralAmt |
| Fundraising | $120,403 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $222,554 | TotalAmt |
| Program Services | $196,712 | ProgramServicesAmt |
| Management And General | $7,824 | ManagementAndGeneralAmt |
| Fundraising | $18,018 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $57,967 | TotalAmt |
| Program Services | $51,236 | ProgramServicesAmt |
| Management And General | $2,038 | ManagementAndGeneralAmt |
| Fundraising | $4,693 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,635,226 | TotalAmt |
| Program Services | $4,933,071 | ProgramServicesAmt |
| Management And General | $27,226 | ManagementAndGeneralAmt |
| Fundraising | $674,929 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $901,453 | TotalAmt |
| Program Services | $369,408 | ProgramServicesAmt |
| Management And General | $19,201 | ManagementAndGeneralAmt |
| Fundraising | $512,844 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,247,028 | TotalAmt |
| Program Services | $1,113,122 | ProgramServicesAmt |
| Management And General | $10,474 | ManagementAndGeneralAmt |
| Fundraising | $123,432 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,106,913 | TotalAmt |
| Program Services | $978,382 | ProgramServicesAmt |
| Management And General | $38,914 | ManagementAndGeneralAmt |
| Fundraising | $89,617 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $219,313 | TotalAmt |
| Program Services | $193,847 | ProgramServicesAmt |
| Management And General | $7,710 | ManagementAndGeneralAmt |
| Fundraising | $17,756 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $226,614 | TotalAmt |
| Program Services | $200,300 | ProgramServicesAmt |
| Management And General | $7,967 | ManagementAndGeneralAmt |
| Fundraising | $18,347 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $563,341 | TotalAmt |
| Program Services | $521,059 | ProgramServicesAmt |
| Fundraising | $42,282 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $999,369 | TotalAmt |
| Program Services | $955,139 | ProgramServicesAmt |
| Management And General | $15,359 | ManagementAndGeneralAmt |
| Fundraising | $28,871 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $157,549 | TotalAmt |
| Program Services | $139,255 | ProgramServicesAmt |
| Management And General | $5,539 | ManagementAndGeneralAmt |
| Fundraising | $12,755 | FundraisingAmt |
Other Expenses OtherExpensesGrp (2 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt |
|---|---|---|
| CLINICAL TRIALS | $6,822,065 | $6,822,065 |
| TISSUE BANKING | $477,894 | $477,894 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $37,647,063 | TotalAmt |
| Program Services | $32,532,129 | ProgramServicesAmt |
| Management And General | $1,293,919 | ManagementAndGeneralAmt |
| Fundraising | $3,821,015 | FundraisingAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Joint Costs | Yes (X) | JointCostsInd |
Total Joint Costs TotalJointCostsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $193,984 | TotalAmt |
| Program Services | $95,390 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $98,594 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,411,175 | BOYAmt |
| EOY | $13,953,290 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $50,308,350 | BOYAmt |
| EOY | $21,392,706 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,260,471 | BOYAmt |
| EOY | $5,289,425 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $6,912,455 | BOYAmt |
| EOY | $7,335,350 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $403,337 | BOYAmt |
| EOY | $225,493 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $4,633,286 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $2,816,485 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,293,328 | BOYAmt |
| EOY | $1,816,801 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $29,648,577 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,595,830 | BOYAmt |
| EOY | $5,648,228 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $91,977 | BOYAmt |
| EOY | $91,977 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $73,276,923 | BOYAmt |
| EOY | $85,401,847 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,304,569 | BOYAmt |
| EOY | $12,252,194 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $2,551,261 | BOYAmt |
| EOY | $3,265,756 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $8,549,840 | BOYAmt |
| EOY | $12,157,093 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $604,023 | BOYAmt |
| EOY | $492,004 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $20,009,693 | BOYAmt |
| EOY | $28,167,047 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $39,494,536 | BOYAmt |
| EOY | $45,234,580 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $13,772,694 | BOYAmt |
| EOY | $12,000,220 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $53,267,230 | BOYAmt |
| EOY | $57,234,800 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $73,276,923 | BOYAmt |
| EOY | $85,401,847 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part XI | Yes (X) | InfoInScheduleOPartXIInd |
| Reconcilation Revenue Expnss | $4,664,133 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$49,703 | NetUnrlzdGainsLossesInvstAmt |
| Other Changes In Net Assets | -$646,860 | OtherChangesInNetAssetsAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Consolidated Basis Fincl Stmt | Yes (X) | ConsolidatedBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $44,140,691 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $41,335,585 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $39,651,088 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $25,012,712 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $37,089,868 | CurrentTaxYearAmt |
| Total | $187,229,944 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $44,140,691 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $41,335,585 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $39,651,088 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $25,012,712 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $37,089,868 | CurrentTaxYearAmt |
| Total | $187,229,944 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $31,187,405 | SubstantialContributorsTotAmt |
| Public Support Total170 | $156,042,539 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $373,452 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,090,003 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $1,349,522 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $426,629 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $100,955 | CurrentTaxYearAmt |
| Total | $3,340,561 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $190,570,505 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $19,313,913 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.81880 | PublicSupportCY170Pct |
| Public Support PY170 | 0.76830 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $635,825 | OtherCostOrOtherBasisAmt |
| Depreciation | $228,556 | DepreciationAmt |
| Book Value | $407,269 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $372,411 | OtherCostOrOtherBasisAmt |
| Depreciation | $145,303 | DepreciationAmt |
| Book Value | $227,108 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $3,625,050 | OtherCostOrOtherBasisAmt |
| Depreciation | $2,442,626 | DepreciationAmt |
| Book Value | $1,182,424 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $1,816,801 | TotalBookValueLandBuildingsAmt |
Invst Program Related Org InvstProgramRelatedOrgGrp (6 entries)
| DescDesc | Book ValueBookValueAmt | Method ValuationMethodValuationCd |
|---|---|---|
| CULLINAN MICA | $615,386 | F |
| ABCURO | $999,997 | F |
| INDAPTA | $1,082,849 | F |
| FORTIS | $500,000 | F |
| CYTOIMMUNE | $1,999,995 | F |
| TRIUMVIRA | $450,001 | F |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Program Rltd | $5,648,228 | TotalBookValueProgramRltdAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | DEFERRED RENT EXPENSE PAYABLE | Desc |
| Amt | $492,004 | Amt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $492,004 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $41,540,179 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$49,703 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $726,437 | DonatedServicesAndUseFcltsAmt |
| Revenue Not Reported | $676,734 | RevenueNotReportedAmt |
| Revenue Subtotal | $40,863,445 | RevenueSubtotalAmt |
| Other Revenues Not Included | $1,447,751 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $1,447,751 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $42,311,196 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $37,532,331 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $726,437 | DonatedServicesUseFcltsAmt |
| Expenses Not Reported | $726,437 | ExpensesNotReportedAmt |
| Expenses Subtotal | $36,805,894 | ExpensesSubtotalAmt |
| Other Expenses Not Included | $841,169 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $841,169 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $37,647,063 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART X, LINE 2: | THE MMRF RECOGNIZES THE EFFECT OF INCOME TAX POSITIONS ONLY IF THOSE POSITIONS ARE MORE LIKELY THAN NOT TO BE SUSTAINED. MANAGEMENT HAS DETERMINED THAT THE MMRF HAD NO UNCERTAIN TAX POSITIONS THAT WOULD REQUIRE FINANCIAL STATEMENT RECOGNITION OR DISCLOSURE. |
| PART XI, LINE 4B - OTHER ADJUSTMENTS: | WRITE-OFF UNCOLLECTIBLE PLEDGES REPORTED ON PART XI, LINE 9 606,582. SPECIAL EVENT EXPENSES RECLASSED TO PART IX 841,169. |
| PART XII, LINE 4B - OTHER ADJUSTMENTS: | SPECIAL EVENT EXPENSES RECLASSED TO PART IX 841,169. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | EUROPE (INCLUDING ICELAND & GREENLAND) | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 0 | EmployeeCnt |
| Type Of Activities Conducted | GRANTMAKING | TypeOfActivitiesConductedTxt |
| Region Total Expenditures | $45,000 | RegionTotalExpendituresAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Offices | 0 | SubtotalOfficesCnt |
| Subtotal Employees | 0 | SubtotalEmployeesCnt |
| Continuation Total Office | 0 | ContinuationTotalOfficeCnt |
| Continuation Total Employee | 0 | ContinuationTotalEmployeeCnt |
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Subtotal Spent | $45,000 | SubtotalSpentAmt |
| Continuation Spent | $0 | ContinuationSpentAmt |
| Total Spent | $45,000 | TotalSpentAmt |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Non Cash AssistanceNonCashAssistanceAmt |
|---|---|---|---|---|
| EUROPE (INCLUDING ICELAND & GREENLAND) | FELLOW | $37,500 | WIRE | $0 |
| EUROPE (INCLUDING ICELAND & GREENLAND) | FELLOW | $7,500 | WIRE | $0 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 2 | Total501c3OrgCnt |
| Total Other Org | 0 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 2: | MMRF RECEIVES PROGRESS REPORTS ON HOW THE GRANTED FUNDS ARE USED. MMRF CONDUCTS A REVIEW PROCESS, DURING WHICH THE INVESTIGATOR'S PROGRESS REPORT IS REVIEWED BY OUTSIDE REVIEWERS TO ENSURE THAT THE APPROPRIATE PROGRESS WAS MADE ON THE STUDY. ONCE THE RESEARCH EMPLOYEE ASSIGNED TO GRANT COORDINATION RECEIVES NOTIFICATION FROM THE REVIEWERS APPROPRIATE PROGRESS WAS MADE AND THE FINDINGS SUPPORT CONTINUES STUDY, HE/SHE PRESENTS THE PROGRESS AND FINDINGS TO AN APPROVAL COMMITTEE FOR A FUNDING RELEASE. |
| PART III ACCOUNTING METHOD: |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (24 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt |
|---|---|---|---|---|---|---|---|---|---|
| BARBARA ANN KARMANOS CANCER HOSPITAL | |||||||||
| 4100 JOHN R STREET | DETROIT | MI | 48201 | 201649466 | 501(C)(3) | $72,500 | $0 | SITE INVESTMENT GRANT | |
| BETH ISRAEL DEACONESS MEDICAL CENTER | |||||||||
| 330 BROOKLINE AVENUE | BOSTON | MA | 02215 | 042103881 | 501(C)(3) | $974,200 | $0 | SITE INVESTMENT GRANT, IMMUNOTHERAPY | |
| BROAD INSTITUTE INC | |||||||||
| 415 MAIN STREET | CAMBRIDGE | MA | 02142 | 263428781 | 501(C)(3) | $67,500 | $0 | FELLOW | |
| CITY OF HOPE | |||||||||
| 1500 EAST DUARTE ROAD MEDICAL | DURATE | CA | 91010 | 953435919 | 501(C)(3) | $370,000 | $0 | SITE INVESTMENT GRANT, FELLOW, IMMUNOTHERAPY | OFFICE BLD 3RD FLOOR |
| DANA FARBER CANCER INSTITUTE | |||||||||
| 44 BINEY ST | BOSTON | MA | 02115 | 042263040 | 501(C)(3) | $2,528,537 | $0 | SITE INVESTMENT GRANT, IMMUNOTHERAPY, PREVENTION | |
| EMORY UNIVERSITY | |||||||||
| 1365 CLIFTON RD BLDG C | ATLANTA | GA | 30322 | 580566256 | 501(C)(3) | $737,075 | $0 | SITE INVESTMENT GRANT, FELLOW, IMMUNOTHERAPY, PREVENTION | |
| H LEE MOFFITT CANCER CENTER & RESEARCH INSTITUTE | |||||||||
| 12902 MAGNOLIA DRIVE | TAMPA | FL | 33612 | 593238634 | 501(C)(3) | $37,500 | $0 | FELLOW | |
| HACKENSACK UNIVERSITY MEDICAL CENTER | |||||||||
| 360 ESSEX CENTER SUITE 302 | HACKENSACK | NJ | 07601 | 221487576 | 501(C)(3) | $40,000 | $0 | SITE INVESTMENT GRANT | |
| ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI | |||||||||
| ONE GUSTAVE L LEVY PLACE PO BOX | NEW YORK | NY | 10029 | 136171197 | 501(C)(3) | $107,000 | $0 | SITE INVESTMENT GRANT, IMMUNOTHERAPY | 1075 |
| JOHNS HOPKINS MEDICAL INSTITUTIONS | |||||||||
| 3910 KESWICK ROAD NO N4327B | BALTIMORE | MD | 21211 | 520595110 | 501(C)(3) | $750,000 | $0 | IMMUNOTHERAPY | |
| LEVINE CANCER CENTER | |||||||||
| 1021 MOREHEAD MEDICAL DRIVE | CHARLOTTE | NC | 28204 | 560529945 | 501(C)(3) | $32,500 | $0 | SITE INVESTMENT GRANT | |
| MAYO CLINIC - ROCHESTER | |||||||||
| 200 FIRST STREET SW | ROCHESTER | MN | 55905 | 416011702 | 501(C)(3) | $7,500 | $0 | SITE INVESTMENT GRANT | |
| MAYO CLINIC - SCOTTSDALE | |||||||||
| 13400 EAST SHEA BOULEVARD | SCOTTSDALE | AZ | 85259 | 860800150 | 501(C)(3) | $7,500 | $0 | SITE INVESTMENT GRANT | |
| MEMORIAL SLOAN-KETTERING CANCER CENTER | |||||||||
| 1275 YORK AVENUE | NEW YORK | NY | 10065 | 131924236 | 501(C)(3) | $315,644 | $0 | SITE INVESTMENT GRANT, FELLOW, TRANSLATIONAL CORE, PREVENTION | |
| OHIO STATE UNIVERSITY RESEARCH FOUNDATION | |||||||||
| B321 STARLING LOVING HALL 320 WEST | COLUMBUS | OH | 43210 | 316401599 | 501(C)(3) | $32,500 | $0 | SITE INVESTMENT GRANT | 10TH AVENUE |
| SARAH CANNON RESEARCH INSTITUTE LLC | |||||||||
| 3322 WEST END ROAD SUITE 900 | NASHVILLE | TN | 37203 | 201557751 | $7,500 | $0 | SITE INVESTMENT GRANT | ||
| THE ROCKEFELLER UNIVERSITY | |||||||||
| 1230 YORK AVENUE | NEW YORK | NY | 10065 | 131624158 | 501(C)(3) | $50,000 | $0 | SITE INVESTMENT GRANT | |
| THE UNIVERSITY OF CHICAGO | |||||||||
| 5841 S MARYLAND AVENUE MC 2115 | CHICAGO | IL | 60637 | 362177139 | STATE OF ILLINOIS | $140,000 | $0 | SITE INVESTMENT GRANT, FELLOW | |
| UCSF MYELOMA RESEARCH PROGRAM | |||||||||
| 1855 FOLSOM STREET ROOM 423 | SAN FRANCISCO | CA | 94103 | 946036493 | 501(C)(3) | $22,500 | $0 | SITE INVESTMENT GRANT | |
| UNIVERSITY OF MICHIGAN | |||||||||
| 4310 CANCER CENTER 1500 EAST | ANN ARBOR | MI | 48109 | 386006309 | STATE OF MICHIGAN | $7,500 | $0 | SITE INVESTMENT GRANT | MEDICAL CENTER DRIVE |
| UNIVERSITY OF TEXAS- SOUTHWESTERN MEDICAL CENTER | |||||||||
| 5323 HARRY HINES BOULEVARD | DALLAS | TX | 75390 | 756002868 | STATE OF TEXAS | $72,500 | $0 | SITE INVESTMENT GRANT | |
| UNIVERSITY OF WISCONSIN | |||||||||
| 21 N PARK STREET SUITE 6401 | MADISON | WI | 53715 | 396006492 | STATE OF WISCONSIN | $7,500 | $0 | FELLOW | |
| VIRGINIA CANCER SPECIALISTS PC | |||||||||
| 8503 ARLINGTON BLVD SUITE 320 | FAIRFAX | VA | 22031 | 541795091 | $7,500 | $0 | SITE INVESTMENT GRANT | ||
| WASHINGTON UNIVERSITY IN ST LOUIS | |||||||||
| 660 E EUCLID AVENUE | ST LOUIS | MO | 63110 | 430653611 | 501(C)(3) | $187,827 | $0 | SITE INVESTMENT GRANT, IMMUNOTHERAPY | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 21 | Total501c3OrgCnt |
| Total Other Org | 3 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, LINE 2: | FormAndLineReferenceDesc |
| Explanation | THE OVERALL RESEARCH BUDGET IS PRESENTED TO THE MMRF BOARD. THE BUDGET IS BROKEN DOWN INTO THREE MAIN CATEGORIES WHICH INCLUDE THE FOLLOWING GRANT TYPES: A) DATA BANK: MMRF-SPONSORED LONGITUDINAL MOLECULAR AND IMMUNE STUDIES (COMMPASS AND THE MMRF CURECLOUD). B) LEARNING NETWORK: GATEWAYS, DATA ANALYSIS INITIATIVES, TRANSLATIONAL SITE INVESTMENTS GRANTS (MMRF TRANSLATIONAL NETWORK), TRANSLATIONAL AND IMMUNE PROGRAM GRANTS, RESEARCH FELLOW GRANTS. C) CLINIC: CLINICAL- SITE INVESTMENT GRANTS, CLINICAL FUNDING AGREEMENT GRANTS, PRECISION MEDICINE GRANTS. THE BUDGET SPEND IS INITIALLY APPROVED BY THE PROGRAMMING COMMITTEE, AND THEN THE BOARD GIVES FINAL APPROVAL. 2. DURING THE YEAR, THERE ARE MONTHLY RESEARCH SPEND MEETINGS WITH THE CEO AND CFO TO DISCUSS PROGRESS ON MAKING THE AWARDS. ADDITIONALLY, ANY CHANGES OR REFORECASTS ARE REVIEWED. IF A CHANGE ARISES THAT IS GREATER THAN $1M, THEN IT IS PRESENTED TO THE PROGRAMMING COMMITTEE TO DISCUSS. 3. THERE ARE TWO DISTINCT TYPES OF GRANTS BEING AWARDED: CLASSICAL RESEARCH SUPPORT GRANTS AND CLINICAL/TRANSLATIONAL SITE SUPPORT GRANTS. THE ACTUAL AWARDS ARE MADE ACCORDING TO THE BELOW SCHEDULE: A. RESEARCH FELLOW AWARDS- QTR. 3 OR QTR. 4 B. CLINICAL AND TRANSLATIONAL SITE SUPPORT GRANTS QTR. 4 C. OTHER GRANTS ARE MADE THROUGHOUT THE YEAR CLASSICAL RESEARCH GRANTS: GRANTS ARE REVIEWED BY AN EXTERNAL GROUP OF SCIENTISTS WITH THE APPROPRIATE AREAS OF EXPERTISE. SCIENTIFIC RATINGS USE THE CURRENT NIH SCORING SYSTEM OF 1-9 WITH 1 DEMONSTRATING THE HIGHEST SCIENTIFIC MERIT AND 9 BEING THE LOWEST. EACH PROPOSAL IS EVALUATED BY TWO INDEPENDENT OUTSIDE REVIEWERS AND THE SCORES ARE AVERAGED TOGETHER. MOST GRANTS CHOSEN SCORE AT LEAST A 3 OR BETTER. ONCE THE GRANTS ARE RATED EXTERNALLY, FINAL REVIEW IS DONE BY THE MMRF RESEARCH LEADERSHIP AND RECOMMENDATIONS ARE MADE TO THE CEO AND CFO TO CONFIRM THE FINAL SELECTION. AFTER EACH GRANT TYPE AWARD IS MADE, AN AWARD LETTER IS SENT TO THE RECIPIENT AND AN EMAIL IS SENT TO THE CFO NOTIFYING THEM OF THE GRANTS AWARDED AND TO PROCEED WITH MAKING THE ACCRUAL FOR THE GRANT. AFTER THE FIRST PAYMENT THE RESEARCHER SENDS IN THE REQUIRED PROGRESS REPORT TO RECEIVE REMAINING PAYMENTS. MMRF CONDUCTS A REVIEW PROCESS, DURING WHICH THE INVESTIGATOR'S PROGRESS REPORT IS REVIEWED BY OUTSIDE REVIEWERS TO ENSURE THAT THE APPROPRIATE PROGRESS WAS MADE ON THE STUDY. ONCE THE RESEARCH EMPLOYEE ASSIGNED TO GRANT COORDINATION RECEIVES NOTIFICATION FROM THE REVIEWERS THAT APPROPRIATE PROGRESS WAS MADE AND THE FINDINGS SUPPORT CONTINUES STUDY, HE/SHE PRESENTS THE PROGRESS AND FINDINGS TO AN APPROVAL COMMITTEE FOR A FUNDING RELEASE. CLINICAL/TRANSLATIONAL SITE SUPPORT GRANTS: GRANT PROPOSALS TO SUPPORT MMRF/C CLINICAL OR TRANSLATIONAL SITES ARE REVIEWED BY MMRF RESEARCH STAFF AND LEADERSHIP IN COLLABORATION WITH OUTSIDE ADVISORS. THE MMRF RESEARCH LEADERSHIP THEN MAKES RECOMMENDATIONS TO THE CEO FOR FINAL APPROVAL. AFTER EACH GRANT TYPE AWARD IS APPROVED, AN AWARD LETTER IS SENT TO THE RECIPIENT AND AN EMAIL IS SENT TO THE CFO NOTIFYING THEM OF THE GRANTS AWARDED AND TO PROCEED WITH MAKING THE ACCRUAL FOR THE GRANT. SUCH GRANTS ARE TYPICALLY RENEWED ANNUALLY OR ARE MULTI-YEAR IN NATURE. CONTINUATION/RENEWAL IS AWARDED BASED ON MILESTONES ESTABLISHED UPON INITIATION OF THE PROGRAM. A CONFLICT OF INTEREST POLICY IS IN PLACE AND A COMMITTEE REVIEWS ANY ISSUES THAT MIGHT ARISE WITH ANY GRANTS. | ExplanationTxt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | Yes (1) | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (14 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| KATHY GIUSTI | ||||||||||||||
| FOUNDER & CHIEF MISSION OFFICER | $400,000 | $0 | $60,000 | $0 | $152,455 | $0 | $11,600 | $0 | $1,170 | $0 | $625,225 | $0 | $0 | $0 |
| MICHAEL ANDREINI | ||||||||||||||
| PRESIDENT & CEO | $308,054 | $0 | $40,000 | $0 | $9,307 | $0 | $11,600 | $0 | $8,260 | $0 | $377,221 | $0 | $0 | $0 |
| PAUL GIUSTI | ||||||||||||||
| FORMER PRESIDENT & CEO | $0 | $0 | $0 | $0 | $352,894 | $0 | $0 | $0 | $76 | $0 | $352,970 | $0 | $0 | $0 |
| PETER KOSA | ||||||||||||||
| MIF MANAGING DIRECTOR | $274,574 | $0 | $23,000 | $0 | $22,029 | $0 | $11,600 | $0 | $21,517 | $0 | $352,720 | $0 | $0 | $0 |
| ROBERT MIANI | ||||||||||||||
| TREASURER/CFO | $243,408 | $0 | $19,000 | $0 | $7,397 | $0 | $10,884 | $0 | $9,727 | $0 | $290,416 | $0 | $0 | $0 |
| ANNE QUINN YOUNG | ||||||||||||||
| CHIEF MARKETING & DEV. OFFICER | $242,689 | $0 | $6,000 | $0 | $17,203 | $0 | $10,855 | $0 | $7,888 | $0 | $284,635 | $0 | $0 | $0 |
| DANIEL AUCLAIR | ||||||||||||||
| CHIEF SCIENTIFIC OFFICER, THRU DEC. | $200,503 | $0 | $6,000 | $0 | $20,380 | $0 | $9,075 | $0 | $1,476 | $0 | $237,434 | $0 | $0 | $0 |
| STEVEN LABKOFF MD | ||||||||||||||
| CHIEF DATA OFFICER, THRU JULY 2021 | $160,680 | $0 | $33,000 | $0 | $17,651 | $0 | $8,751 | $0 | $17,278 | $0 | $237,360 | $0 | $0 | $0 |
| KAREN DIETZ | ||||||||||||||
| SECRETARY/IN-HOUSE COUNSEL | $195,026 | $0 | $5,000 | $0 | $17,126 | $0 | $9,008 | $0 | $9,770 | $0 | $235,930 | $0 | $0 | $0 |
| CHRISTOPHER WILLIAMS | ||||||||||||||
| VP OF BUSINESS DEVELOPMENT | $184,187 | $0 | $5,000 | $0 | $10,254 | $0 | $8,361 | $0 | $19,721 | $0 | $227,523 | $0 | $0 | $0 |
| CHANTELLE BRINKLEY | ||||||||||||||
| DIR, OFFICE OF THE FOUNDER, THRU DEC | $175,898 | $0 | $0 | $0 | $39,244 | $0 | $7,375 | $0 | $981 | $0 | $223,498 | $0 | $0 | $0 |
| MINDY FLINN | ||||||||||||||
| VP OF DEVELOPMENT | $196,476 | $0 | $2,000 | $0 | $4,178 | $0 | $8,174 | $0 | $9,667 | $0 | $220,495 | $0 | $0 | $0 |
| GREG RUBENSTEIN | ||||||||||||||
| VP OF MARKETING | $172,885 | $0 | $5,000 | $0 | $6,012 | $0 | $7,757 | $0 | $21,034 | $0 | $212,688 | $0 | $0 | $0 |
| CATHERINE WACHIRA | ||||||||||||||
| CLINCAL RESEACH | $171,472 | $0 | $0 | $0 | $7,628 | $0 | $0 | $0 | $8,249 | $0 | $187,349 | $0 | $0 | $0 |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| PART I, LINE 4A | THE FOLLOWING EMPLOYEES RECEIVED A SEVERANCE PAYMENT INCLUDED IN THEIR 2021 W-2: PAUL GIUSTI, FORMER PRESIDENT & CEO $352,000 KATHY GIUSTI, FOUNDER & CMO $150,000 CHANTELLE BRINKLEY, HR $30,769 |
| PART I, LINE 7 | THE FOLLOWING EMPLOYEES RECEIVED A BONUS FROM THE ORGANIZATION. EACH BONUS WAS BASED ON THE DISCRETION OF THE COMPENSATION COMMITTEE OF THE BOARD OF DIRECTORS. EACH BONUS WAS BASED UPON A REVIEW OF THE INDIVIDUAL'S PERFORMANCE, AND APPROVED BY THE COMPENSATION COMMITTEE PRIOR TO BEING AWARDED. KATHY GIUSTI, FOUNDER & CMO $60,000 MICHAEL ANDREINI, PRESIDENT & CEO $40,000 ROBERT MIANI, TREASURER/CFO $19,000 KAREN DIETZ, SECRETARY & IN-HOUSE COUNSEL $5,000 STEVEN LABKOFF, MD, CHIEF DATA OFFICER $33,000 ANNE QUINN YOUNG, CHIEF MARKETING & DEVELOPMENT OFFICER $6,000 PETER KOSA, MIF MANAGING DIRECTOR $23,000 DANIEL AUCLAIR, CHIEF SCIENTIFIC OFFICER $6,000 CHRISTOPHER WILLIAMS, VP OF BUSINESS DEVELOPMENT $5,000 MINDY FLINN, VP OF DEVELOPMENT $2,000 GREG RUBENSTEIN, VP OF MARKETING $5,000 |
Schedule M IRS990ScheduleM
Securities Publicly Traded SecuritiesPubliclyTradedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Non Cash Checkbox | Yes (X) | NonCashCheckboxInd |
| Contribution | 46 | ContributionCnt |
| Noncash Contributions Rpt F990 | $789,542 | NoncashContributionsRptF990Amt |
| Method Of Determining Revenues | AVG. SELLING PRICE | MethodOfDeterminingRevenuesTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form8283 Received | 0 | Form8283ReceivedCnt |
| Any Property That Must Be Held | 0 | AnyPropertyThatMustBeHeldInd |
| Review Process Unusual NC Gifts | Yes (1) | ReviewProcessUnusualNCGiftsInd |
| Third Parties Used | 0 | ThirdPartiesUsedInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | PART I, COLUMN (B): | FormAndLineReferenceDesc |
| Explanation | THE ORGANIZATION IS REPORTING THE NUMBER OF CONTRIBUTORS. | ExplanationTxt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (10 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| FORM 990, PART I, LINE 1: | MMRF ACCOMPLISHMENTS FOR 2021: THE MULTIPLE MYELOMA RESEARCH FOUNDATION, INC. AND ITS WHOLLY OWNED SUBSIDIARIES, THE MULTIPLE MYELOMA RESEARCH CONSORTIUM, LLC ("MMRC") AND MYELOMA INVESTMENT FUND, LLC ("MIF"), COLLECTIVELY REFERRED TO AS "THE MMRF," HAS A MISSION TO ACCELERATE A CURE FOR EACH AND EVERY PATIENT WITH MULTIPLE MYELOMA THE SECOND MOST COMMON BLOOD CANCER. THE MMRF, WITH ITS END-TO END PRECISION MEDICINE MODEL, COLLABORATES WITH ITS PARTNERS TO ADVANCE BASIC AND TRANSLATIONAL RESEARCH, AND MOVE THE BEST IDEAS RAPIDLY INTO CLINICAL TRIALS. THE MMRF ALSO ENGAGES WITH PATIENTS AND THEIR FRIENDS AND FAMILIES TO EDUCATE AND EMPOWER THEM TO OPTIMIZE THEIR OUTCOMES. THE MMRF WAS INCORPORATED ON JANUARY 13, 1998. THE PROVEN NETWORK OF THE MMRF ENGAGES THE BEST NEW SCIENCE AND TECHNOLOGY TO ACCELERATE DEVELOPMENT OF TREATMENTS FOR PATIENTS AS QUICKLY AS POSSIBLE. IT IS BASED ON THREE PILLARS: ACCELERATING THE DEVELOPMENT OF NEW TREATMENTS, DRIVING PRECISION MEDICINE, AND EMPOWERING PATIENTS AND THE ENTIRE COMMUNITY. IN 2021, WE CONTINUED TO ADVANCE THE KEY INITIATIVES OF OUR STRATEGIC PLAN WHICH IS ANCHORED BY THREE STRATEGIC OBJECTIVES, WITH A CENTRALIZED FOCUS ON DEI AND HEALTH EQUITY. - ACCELERATE THE DEVELOPMENT OF NOVEL THERAPIES - DRIVE OPTIMAL AND MORE PERSONALIZED TREATMENT APPROACHES - EMPOWER PATIENTS AND THE MYELOMA COMMUNITY PATIENT SERVICES AND EDUCATION ADVANCING PATIENT HEALTH AND WELL-BEING THROUGH EDUCATION - PATIENT EDUCATION WEBINARS AND SUMMITS REACHED 10,000 PATIENTS AND CAREGIVERS IN 2021. - IN 2021, THE MMRF PATIENT NAVIGATION CENTER ANSWERED 4,800 CALLS, ADDRESSED MORE THAN 3,350 CASES, AND OVER 200 REFERRALS TO MYELOMA SPECIALISTS. ITS EXEMPLARY SERVICE HAS EARNED A 5-STAR SATISFACTION RATING FROM THE MYELOMA COMMUNITY. |
| FORM 990, PART III, LINE 1: | A PIONEER IN PRECISION MEDICINE, THE MULTIPLE MYELOMA RESEARCH FOUNDATION (MMRF) SEEKS TO ACCELERATE A CURE FOR EACH AND EVERY MULTIPLE MYELOMA PATIENT. FOUNDED IN 1998 BY KATHY GIUSTI, A MULTIPLE MYELOMA PATIENT, AND HER TWIN SISTER KAREN ANDREWS AS A 501(C)(3) NONPROFIT ORGANIZATION, THE MMRF IDENTIFIES BARRIERS AND THEN FINDS THE SOLUTIONS TO OVERCOME THEM, BRINGING IN THE BEST PARTNERS AND ACTING AS A CATALYST OR SYNERGIST TO DRIVE BETTER OUTCOMES FOR PATIENTS. SINCE ITS INCEPTION, THE ORGANIZATION HAS COLLECTED THOUSANDS OF TISSUE SAMPLES, OPENED NEARLY 100 TRIALS, HELPED BRING 15 FDA-APPROVED THERAPIES TO MARKET, AND BUILT COMMPASS, THE SINGLE LARGEST GENOMIC DATASET FOR ANY CANCER. TODAY, THE MMRF IS BUILDING ON ITS LEGACY IN GENOMICS AND IS EXPANDING INTO IMMUNOTHERAPY, AS THE COMBINATION OF THESE TWO FIELDS WILL BE CRITICAL TO MAKING PRECISION MEDICINE POSSIBLE FOR ALL PATIENTS. THE MMRF HAS RAISED MORE THAN $500 MILLION AND DIRECTS NEARLY 90% OF THE TOTAL FUNDS TO RESEARCH AND RELATED PROGRAMS. |
| FORM 990, PART VI, SECTION A, LINE 2 | KATHY GIUSTI, FOUNDER & CHIEF MISSION OFFICER, AND KAREN ANDREWS, BOARD MEMBER HAVE A FAMILY RELATIONSHIP. |
| FORM 990, PART VI, SECTION B, LINE 11B | THE FORM 990 IS FIRST REVIEWED WITH THE CEO OF THE FOUNDATION. ONCE REVIEWED WITH THE CEO, THE FORM 990 IS EMAILED TO EACH BOARD MEMBER. EACH BOARD MEMBER REVIEWS THE FORM 990 AND IF ANY QUESTIONS ARISE, THEY ARE COMMUNICATED TO THE FOUNDATION AND ADDRESSED. AFTER ALL QUESTIONS ARE ADDRESSED, THE FORM 990 IS SUBMITTED TO THE IRS. |
| FORM 990, PART VI, SECTION B, LINE 12C | THE ORGANIZATION'S CONFLICT OF INTEREST POLICY APPLIES TO ANY DIRECTOR, OFFICER, OR MEMBER OF A STANDING OR ADVISORY COMMITTEE WITH POWERS DELEGATED BY THE MMRF BOARD OF DIRECTORS WHO MAY HAVE A DIRECT OR INDIRECT FINANCIAL INTEREST (I.E. "INTERESTED PERSON"). DUTY TO DISCLOSE A POTENTIAL CONFLICT OF INTEREST: ANY INTERESTED PERSON MUST DISCLOSE THE EXISTENCE OF HIS OR HER FINANCIAL INTEREST TO THE BOARD OR AUDIT COMMITTEE AND MUST BE GIVEN THE OPPORTUNITY TO DISCLOSE ALL MATERIAL FACTS TO THE BOARD, MEMBERS OF THE AUDIT COMMITTEE AND ALL MEMBERS OF ANY COMMITTEE CONSIDERING THE PROPOSED CONTRACT OR TRANSACTION. DETERMINING WHETHER A CONFLICT OF INTEREST EXISTS: AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, THE INTERESTED PERSON SHALL LEAVE THE BOARD OR AUDIT COMMITTEE MEETING WHILE THE DETERMINATION OF A CONFLICT OF INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD OR AUDIT COMMITTEE MEMBERS, AS APPLICABLE, SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS. PROCEDURES FOR ADDRESSING THE CONFLICT OF INTEREST: I. AN INTERESTED PERSON MAY MAKE A PRESENTATION AT THE BOARD OR AUDIT COMMITTEE MEETING, BUT AFTER SUCH PRESENTATION, HE OR SHE SHALL LEAVE THE MEETING DURING THE DISCUSSION OF, AND THE VOTE ON, THE CONTRACT OR TRANSACTION THAT RESULT IN THE CONFLICT OF INTEREST. II. THE CHAIR OF THE BOARD OR CHAIRPERSON OF THE AUDIT COMMITTEE SHALL, IF APPROPRIATE, APPOINT A DISINTERESTED PERSON OR APPOINT OR ESTABLISH AN ADVISORY COMMITTEE TO INVESTIGATE ALTERNATIVES TO THE PROPOSED CONTRACT OR TRANSACTION. AFTER EXERCISING DUE DILIGENCE, THE BOARD OR THE AUDIT COMMITTEE SHALL TAKE ALL REASONABLE STEPS TO DETERMINE WHETHER THE MMRF CAN OBTAIN A MORE ADVANTAGEOUS CONTRACT OR TRANSACTION WITH REASONABLE EFFORTS FROM A PERSON OR ENTITY THAT WOULD NOT GIVE RISE TO A CONFLICT OF INTEREST. IF A MORE ADVANTAGEOUS CONTRACT OR TRANSACTION IS NOT REASONABLY ATTAINABLE UNDER CIRCUMSTANCES THAT WOULD NOT GIVE RISE TO A CONFLICT OF INTEREST, THE BOARD OR AUDIT COMMITTEE SHALL DETERMINE BY A MAJORITY VOTE, BUT NOT LESS THAN TWO, OF THE DISINTERESTED DIRECTORS OR MEMBERS THEREOF WHETHER THE CONTRACT OR TRANSACTION IS IN THE MMRF'S BEST INTEREST AND IS FAIR AND REASONABLE TO THE MMRF; PROVIDED, HOWEVER, IF SUCH CONTRACT OR TRANSACTION IS APPROVED BY DISINTERESTED DIRECTORS WHO DO NOT SATISFY A QUORUM OR VOTING REQUIREMENT APPLICABLE TO THE AUTHORIZATION OF THE ACTION BY REASON OF THE MMRF'S CERTIFICATE OF INCORPORATION, BYLAWS OR A PROVISION OF LAW, THE ACTION MUST BE INDEPENDENTLY APPROVED BY SUCH INTERESTED AND DISINTERESTED DIRECTORS AS SATISFY THE APPLICABLE QUORUM OR VOTING REQUIREMENT. VIOLATION OF THE CONFLICTS OF INTEREST POLICY: III. IF THE BOARD OR AUDIT COMMITTEE HAS REASONABLE CAUSE TO BELIEVE THAT A DIRECTOR, OFFICER OR COMMITTEE MEMBER HAS FAILED TO DISCLOSE ACTUAL OR POSSIBLE CONFLICTS OF INTEREST, IT SHALL INFORM SUCH PERSON OF THE BASIS FOR SUCH BELIEF AND AFFORD SUCH PERSON AN OPPORTUNITY TO EXPLAIN THE ALLEGED FAILURE TO DISCLOSE. IF, AFTER HEARING THE RESPONSE OF THE DIRECTOR, OFFICER OR COMMITTEE MEMBER AND MAKING SUCH FURTHER INVESTIGATION AS MAY BE WARRANTED IN THE CIRCUMSTANCES, THE BOARD OR AUDIT COMMITTEE DETERMINES THAT SUCH PERSON HAS IN FACT FAILED TO DISCLOSE AN ACTUAL OR POSSIBLE CONFLICT OF INTEREST, THE BOARD OR AUDIT COMMITTEE, AS APPLICABLE, SHALL TAKE APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION. |
| FORM 990, PART VI, SECTION B, LINE 15 | ALL SENIOR POSITIONS AND THEIR COMPENSATION ARE REVIEWED AND APPROVED BY THE HR COMMITTEE OF THE BOARD OF DIRECTORS. COMPENSATION IS BENCHMARKED AGAINST OTHER 501(C)(3)'S, RESEARCH ORGANIZATIONS, THIRD PARTY COMPENSATION DATABASE AND THEN REVIEWED BY THE COMPENSATION COMMITTEE. THE COMPENSATION APPROVAL IS DOCUMENTED IN THE MINUTES BY THE COMMITTEE. THIS PROCESS WAS LAST UNDERTAKEN IN 2021. |
| FORM 990, PART VI, SECTION C, LINE 19 | FINANCIAL STATEMENTS, GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, FORM 990 AND FORM 1023 ARE MADE AVAILABLE FOR PUBLIC VIEWING UPON WRITTEN REQUEST AT MMRF'S HEADQUARTERS LOCATED AT 383 MAIN AVENUE, 5TH FLOOR, NORWALK, CT 06851. FORM 990 AND AUDITED FINANCIAL STATEMENTS ARE ALSO AVAILABLE AT THE ORGANIZATION'S WEBSITE: WWW.THEMMRF.ORG THE FORM 990 IS ALSO AVAILABLE ON WWW.GUIDESTAR.ORG, WWW.CHARITYNAVIGATOR.ORG, AND OTHER SIMILAR WEBSITES. |
| FORM 990, PART IX, LINE 11G | CONSULTING: PROGRAM SERVICE EXPENSES 2,019,449. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 265,296. TOTAL EXPENSES 2,284,745. MEDICAL PROFESSIONALS: PROGRAM SERVICE EXPENSES 2,720,982. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 357,457. TOTAL EXPENSES 3,078,439. RECRUITING COSTS & TEMPORARY HELP: PROGRAM SERVICE EXPENSES 192,640. MANAGEMENT AND GENERAL EXPENSES 27,226. FUNDRAISING EXPENSES 52,176. TOTAL EXPENSES 272,042. |
| FORM 990, PART XI, LINE 9: | WRITE-OFF OF UNCOLLECTIBLE PLEDGES -606,582. LOSS ON DISPOSAL OF ASSETS -40,278. |
| FORM 990, PART XII, LINE 2C: | THE MULTIPLE MYELOMA RESEARCH FOUNDATION, INC. AUDIT/FINANCE COMMITTEE RECOMMENDS THE AUDITOR TO THE BOARD, AND THE BOARD APPOINTS THE AUDITOR. THE BOARD ASSUMES RESPONSIBILITY FOR THE OVERSIGHT OF THE AUDIT OF ITS FINANCIAL STATEMENTS. THE POLICY FOR SELECTION AND OVERSIGHT OF THE INDEPENDENT AUDITORS HAS NOT CHANGED SINCE LAST YEAR. |
Schedule R IRS990ScheduleR
Id Disregarded Entities IdDisregardedEntitiesGrp (2 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | EINEIN | Primary ActivitiesPrimaryActivitiesTxt | Legal Domicile StateLegalDomicileStateCd | Total IncomeTotalIncomeAmt | End Of Year AssetsEndOfYearAssetsAmt | Business Name Line1DirectControllingEntityName/BusinessNameLine1Txt |
|---|---|---|---|---|---|---|---|---|---|
| MYELOMA INVESTMENT FUND LLC | |||||||||
| 383 MAIN AVENUE 5TH FLOOR | NORWALK | CT | 06851 | 471162865 | VENTURE PHILANTHROPY FUND | DE | $4,463,381 | $17,364,904 | THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC |
| MULTIPLE MYELOMA RESEARCH CONSORTIUM LLC | |||||||||
| 383 MAIN AVENUE 5TH FLOOR | NORWALK | CT | 06851 | 471142650 | FACILITATING OR SPONSORING CLINICAL TRIALS AND RELATED RESEARCH | CT | $3,744,875 | $2,893,293 | THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC |
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