FURP.ORG / PUBLIC DATA EXPLORER

AMYOTROPHIC LATERAL SCLEROSIS: Form 990, tax year 2021

View the entire original 990 at ProPublica ↗

Organization
AMYOTROPHIC LATERAL SCLEROSIS (EIN 94-3124732)
Tax period
2021-02-01 to 2022-01-31
Filed
2022-11-21
IRS object ID
202213259349300621
Schema version
2021v4.2
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2022-11-21T10:38:47-06:00ReturnTs
Tax Period End2022-01-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN273605969PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1CBIZ MHM LLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1140 FOUNTAIN PKWY N STE 410AddressLine1Txt
CityST PETERSBURGCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33716ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2021-02-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN943124732EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1AMYOTROPHIC LATERAL SCLEROSISBusinessNameLine1Txt
Business Name Line2ASSOCIATIONBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlAMYOBusinessNameControlTxt
Phone8136379000PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13244 PARKSIDE CENTER CIRCLEAddressLine1Txt
CityTAMPACityNm
State AbbreviationFLStateAbbreviationCd
ZIP33619ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonRAY CARSONPersonNm
Person TitlePRESIDENT/CEOPersonTitleTxt
Phone8136379000PhoneNum
Signature2022-11-11SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstRAYPersonFirstNm
Person LastCARSONPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonPAUL DUNHAMPreparerPersonNm
PTINP00100222PTIN
Phone7275721400PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer3TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2021TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Address ChangeYes (X)AddressChangeInd

Doing Business As Name DoingBusinessAsName

FieldValueIRS element (for citing)
Business Name Line1THE ALS ASSOCIATION FLORIDA CHAPTER INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Principal OfficerRAY CARSONPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line13244 PARKSIDE CENTER CIRCLEAddressLine1Txt
CityTAMPACityNm
State AbbreviationFLStateAbbreviationCd
ZIP33619ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,401,527GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Group Exemption4119GroupExemptionNum
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.ALS.ORG/FLORIDAWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1987FormationYr
Legal Domicile StateFLLegalDomicileStateCd
Activity Or MissionIMPROVING THE LIVES OF PEOPLE LIVING WITH ALS, RAISING PROGRAM FUNDS & PARTICIPATING IN ADVOCACY.ActivityOrMissionDesc
Voting Members Governing Body15VotingMembersGoverningBodyCnt
Voting Members Independent15VotingMembersIndependentCnt
Total Employee21TotalEmployeeCnt
Total Volunteers500TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$2,711,833PYContributionsGrantsAmt
CY Contributions Grants$4,371,316CYContributionsGrantsAmt
PY Program Service Revenue$0PYProgramServiceRevenueAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$2,447PYInvestmentIncomeAmt
CY Investment Income$1,416CYInvestmentIncomeAmt
PY Other Revenue-$54,028PYOtherRevenueAmt
CY Other Revenue-$172,888CYOtherRevenueAmt
PY Total Revenue$2,660,252PYTotalRevenueAmt
CY Total Revenue$4,199,844CYTotalRevenueAmt
PY Grants And Similar Paid$312,384PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$479,643CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,219,290PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,297,830CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$0PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$19,443CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$369,000CYTotalFundraisingExpenseAmt
PY Other Expenses$922,772PYOtherExpensesAmt
CY Other Expenses$1,277,947CYOtherExpensesAmt
PY Total Expenses$2,454,446PYTotalExpensesAmt
CY Total Expenses$3,074,863CYTotalExpensesAmt
PY Revenues Less Expenses$205,806PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,124,981CYRevenuesLessExpensesAmt
Total Assets BOY$1,859,209TotalAssetsBOYAmt
Total Assets EOY$2,655,654TotalAssetsEOYAmt
Total Liabilities BOY$845,187TotalLiabilitiesBOYAmt
Total Liabilities EOY$521,224TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,014,022NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$2,134,430NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionOUR MISSION IS TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$1,922,583ExpenseAmt
Grant$289,847GrantAmt
DescPATIENT SERVICES: THE ALS ASSOCIATION FLORIDA CHAPTER PROVIDED A WIDE RANGE OF SERVICES AND PROGRAMS TO HELP PEOPLE LIVING WITH LOU GEHRIG'S DISEASE. THE CHAPTER SERVED 1,340 PATIENTS IN FISCAL YEAR 2022. PROGRAMS INCLUDED: 1) PARTNERSHIP WITH 10 MULTIDISCIPLINARY ALS CLINICS IN THE STATE OF FLORIDA, WHICH INCLUDE IN-KIND STAFF SUPPORT, PROVIDING 1,736 CLINIC VISITS; 2) A NETWORK OF NINE CARE SERVICES STAFF WHO HELPED PATIENTS, FAMILIES, AND CAREGIVERS NAVIGATE THE PHYSICAL, SOCIAL, EMOTIONAL, AND FINANCIAL EFFECTS OF ALS THROUGH CASE MANAGEMENT, SOCIAL WORK SERVICES, REFERRALS, ASSESSMENTS, EDUCATION AND GOVERNMENT/VETERAN BENEFITS/INSURANCE ADVOCACY; 3) SUPPORT/RESOURCE GROUPS IN 18 STATEWIDE LOCATIONS, 165 MEETINGS HELD, ATTENDED BY 1,233 PEOPLE OVER THE YEAR; (CONTINUED ON SCHEDULE O)4) LOANED MEDICAL EQUIPMENT AND ASSISTIVE TECHNOLOGY PROGRAMS THAT PROVIDED 281 PIECES OF DURABLE MEDICAL EQUIPMENT AND ASSISTIVE AUGMENTED COMMUNICATION DEVICES TO PATIENTS IN NEED; 5) ALS SPECIALTY HOME HEALTH COORDINATION; 6) FUNDING FOR 140 MONETARY GRANTS TO PATIENTS THAT PROVIDED 983 HOURS OF RESPITE CARE, AS WELL AS HOME MODIFICATIONS, VAN MODIFICATIONS, TRANSPORTATION, MEDICAL EQUIPMENT NOT COVERED BY INSURANCE, AND OTHER FINANCIAL NEEDS; 7) THE RICK AND SHERRY MURRAY MEDICAL FUTURES SCHOLARSHIP FUND, PROVIDING SCHOLARSHIPS TO 1 STUDENT; 8) ONE HOPE AND HELP SYMPOSIUM, A FULL-DAY EVENT THAT FEATURED INFORMATIVE SESSIONS FOR PATIENTS, CAREGIVERS, AND SUPPORTERS OF PEOPLE WITH ALS AND INCLUDED IMPORTANT KEYNOTE SPEAKERS, A VENDOR FAIR, OPPORTUNITIES TO "ASK THE DOCS, AND AN AMBASSADOR OF HOPE. IN FISCAL YEAR 2022, BECAUSE OF COVID-19, THIS EVENT WAS HELD VIRTUALLY AND ATTENDED BY 349 CONSTITUENTS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$423,179ExpenseAmt
Grant$40,074GrantAmt
DescAWARENESS: THROUGH PUBLIC OUTREACH, MEDIA RELATIONS, ONLINE PLATFORMS, CHAPTER COLLATERAL, AND SOCIAL MEDIA, THE ALS ASSOCIATION FLORIDA CHAPTER CONTINUED TO RAISE AWARENESS ABOUT ALS, THE PEOPLE WE SERVE, OUR PUBLIC POLICY GOALS, AND THE SEARCH FOR A TREATMENT AND CURE. OUR WEBSITE IS AN INVALUABLE SOURCE OF INFORMATION FOR THOSE LIVING WITH ALS AND PEOPLE LOOKING FOR THE LATEST INFORMATION ABOUT THE DISEASE. CHAPTER COLLATERAL SUCH AS BROCHURES, INFOGRAPHIC HANDOUTS, AND FLYERS PROVIDED OUR CONSTITUENTS IN THE COMMUNITIES WE SERVE WITH TIMELY INFORMATION ABOUT THE CHAPTER AND THE ACHIEVEMENT OF OUR MISSION PRIORITIES.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$149,722ExpenseAmt
Grant$149,722GrantAmt
DescRESEARCH: THE ALS ASSOCIATION FLORIDA CHAPTER, THROUGH THE ALS ASSOCIATION, HAS FUNDED RESEARCH AT SEVERAL RENOWNED RESEARCH CENTERS IN THE STATE INCLUDING THE MAYO CLINIC IN JACKSONVILLE, THE UNIVERSITY OF SOUTH FLORIDA IN TAMPA, THE UNIVERSITY OF FLORIDA IN GAINESVILLE AND JACKSONVILLE, THE UNIVERSITY OF MIAMI, AND HOLY CROSS. FLORIDA PATIENTS AND RESEARCHERS PARTICIPATE IN A VARIETY OF STUDIES INCLUDING BIOMARKER, DRUG DEVELOPMENT, GENETICS, DISEASE MECHANISM, OBSERVATIONAL/NATURAL HISTORY, AND SYMPTOM MANAGEMENT. THE CHAPTER ALSO WORK TO ENCOURAGE PEOPLE LIVING WITH ALS TO REGISTER WITH THE NATIONAL ALS REGISTRY THROUGH THE CENTERS FOR DISEASE CONTROL AND PREVENTION.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp

FieldValueIRS element (for citing)
Expense$90,913ExpenseAmt
DescADVOCACY: THE ALS ASSOCIATION FLORIDA CHAPTER SUPPORTS THE ALS ASSOCIATION'S ADVOCACY AGENDA INCLUDING APPROPRIATIONS, LEGISLATION, AND REGULATORY AFFAIRS.FEDERAL PUBLIC POLICY PRIORITIES:APPROPRIATIONS FOR ALS RESEARCH, INCLUDING THE CDC NATIONAL ALS REGISTRY, DEPARTMENT OF DEFENSE ALS RESEARCH PROGRAM AND NATIONAL INSTITUTE OF HEALTH PROGRAMS.LEGISLATION:WAIVE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY - THE ALS DISABILITY INSURANCE ACCESS ACT (S.379/ H.R.1171) TO ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) OR MEDICARE DID NOT PASS IN THE 115TH CONGRESS. UNDER CURRENT LAW, PEOPLE WITH ALS WHO QUALIFY FOR SOCIAL SECURITY DISABILITY INSURANCE (SSDI) MUST WAIT FIVE MONTHS BEFORE RECEIVING SSDI AND ACCESS TO MEDICARE. THE LEGISLATION WOULD ELIMINATE THE FIVE-MONTH WAITING PERIOD FOR PEOPLE WITH ALS. THE BILL WILL BE RE-INTRODUCED IN THE 116TH CONGRESS.REGULATORY AFFAIRS:MEDICARE PROPOSED RULE - THE ALS ASSOCIATION SUBMITTED COMMENTS ON THE CENTERS FOR MEDICARE AND MEDICAID (CMS) PROPOSED RULE 1689-P. THE LETTER FOCUSED ON TWO COMPONENTS OF THE PROPOSED RULE: HOME HEALTH AND HOME INFUSIONS.CHAPTER ADVOCACY ACTIVITIES:MARCH 2021 - PARTICIPATED IN "FLY-IN" ADVOCACY TOP ROOTS (IN WASHINGTON, DC) EVENT VIRTUALLY THIS YEAR BECAUSE OF COVID-19. MET WITH TARGETED FLORIDA REPRESENTATIVES OVER ZOOM VIDEO CALLS.MAY-JUNE 2021 - ANNUAL NATIONAL ALS ADVOCACY DAYS AND PUBLIC POLICY CONFERENCE. ADVOCATES MET WITH MEMBERS OF FLORIDA'S CONGRESSIONAL DELEGATION AND THEIR STAFFS VIA ZOOM CALLS DUE TO TRAVEL RESTRICTIONS RELATED TO COVID-19.OTHER ADVOCACY ACTIVITIES:BOARD OF DIRECTORS COMMITTEE ON ADVOCACY FOCUSED ON ENGAGING BOARD MEMBERS IN FEDERAL ADVOCACY AND DISCUSSED OPTIONS FOR BUILDING A STATE ADVOCACY PROGRAM.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$90,913TotalOtherProgSrvcExpenseAmt
Total Program Service Expenses$2,586,397TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi Endowments0DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To IndividualsYes (1)GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document7IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee21EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members15GoverningBodyVotingMembersCnt
Independent Voting Member15IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1RAY CARSONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone8136379000PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13244 PARKSIDE CENTER CIRCLEAddressLine1Txt
CityTAMPACityNm
State AbbreviationFLStateAbbreviationCd
ZIP33619ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (16 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
HAMPTON GRAHAM
CHAIRMAN5.00Yes (X)Yes (X)$0$0$0
GLENN STAMBAUGH
VICE CHAIRMAN5.00Yes (X)Yes (X)$0$0$0
TROY FIELDS
TREASURER5.00Yes (X)Yes (X)$0$0$0
SHARON SAM MAYBROOK
SECRETARY5.00Yes (X)Yes (X)$0$0$0
JOHN CANNISTRA
IMMEDIATE PAST CHAIRMAN3.00Yes (X)$0$0$0
ALECIA BAILEY
TRUSTEE3.00Yes (X)$0$0$0
BRIAN CHAPPELL
TRUSTEE3.00Yes (X)$0$0$0
JO-ANN CLYNCH
TRUSTEE3.00Yes (X)$0$0$0
JOHN COLLINS
TRUSTEE3.00Yes (X)$0$0$0
KEVIN CONN
TRUSTEE3.00Yes (X)$0$0$0
JEFF ELBERT
TRUSTEE3.00Yes (X)$0$0$0
BRITTANY HARVEY
TRUSTEE3.00Yes (X)$0$0$0
CHRISTINE HOPKINS RANKIN
TRUSTEE3.00Yes (X)$0$0$0
MELISSA SPRING
TRUSTEE3.00Yes (X)$0$0$0
ASHOK VERMA
TRUSTEE3.00Yes (X)$0$0$0
RAY CARSON
PRESIDENT/CEO40.00Yes (X)$150,000$0$4,509
FieldValueIRS element (for citing)
Total Reportable Comp From Org$150,000TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$4,509TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K1IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (3 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
UNIVERSITY OF MIAMI
1150 NW 14TH ST STE 609MIAMIFL33136CENTER SUPPORT$246,908
USF FOUNDATION INC
4202 E FOWLER AVE ALC 100TAMPAFL33620CENTER SUPPORT$215,427
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO RDJACKSONVILLEFL32224CENTER SUPPORT$201,159
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K3CntrctRcvdGreaterThan100KCnt
Fundraising$1,234,476FundraisingAmt
Government Grants$1,311,706GovernmentGrantsAmt
All Other Contributions$1,825,134AllOtherContributionsAmt
Noncash Contributions$220,921NoncashContributionsAmt
Total Contributions$4,371,316TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,044TotalRevenueColumnAmt
Exclusion$1,044ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$29,167SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$28,795SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$372SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$372TotalRevenueColumnAmt
Exclusion$372ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$1,234,476ContriRptFundraisingEventAmt
Fundraising Direct Expenses$172,888FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$172,888TotalRevenueColumnAmt
Exclusion-$172,888ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,199,844TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion-$171,472ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$402,945TotalAmt
Program Services$402,945ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$76,698TotalAmt
Program Services$76,698ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$154,509TotalAmt
Program Services$123,607ProgramServicesAmt
Management And General$15,451ManagementAndGeneralAmt
Fundraising$15,451FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$955,523TotalAmt
Program Services$681,504ProgramServicesAmt
Management And General$12,638ManagementAndGeneralAmt
Fundraising$261,381FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$24,183TotalAmt
Program Services$17,195ProgramServicesAmt
Management And General$266ManagementAndGeneralAmt
Fundraising$6,722FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$78,158TotalAmt
Program Services$56,664ProgramServicesAmt
Management And General$1,954ManagementAndGeneralAmt
Fundraising$19,540FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$85,457TotalAmt
Program Services$61,957ProgramServicesAmt
Management And General$2,136ManagementAndGeneralAmt
Fundraising$21,364FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$2,505TotalAmt
Management And General$2,505ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$71,555TotalAmt
Program Services$18,179ProgramServicesAmt
Management And General$52,734ManagementAndGeneralAmt
Fundraising$642FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$36,000TotalAmt
Program Services$36,000ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$19,443TotalAmt
Fundraising$19,443FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$861,819TotalAmt
Program Services$856,888ProgramServicesAmt
Management And General$1,987ManagementAndGeneralAmt
Fundraising$2,944FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$77,211TotalAmt
Program Services$61,772ProgramServicesAmt
Management And General$7,719ManagementAndGeneralAmt
Fundraising$7,720FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$41,892TotalAmt
Program Services$33,514ProgramServicesAmt
Management And General$4,189ManagementAndGeneralAmt
Fundraising$4,189FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$24,023TotalAmt
Program Services$19,218ProgramServicesAmt
Management And General$2,402ManagementAndGeneralAmt
Fundraising$2,403FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$12,698TotalAmt
Management And General$12,698ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$20,276TotalAmt
Program Services$13,835ProgramServicesAmt
Management And General$1,217ManagementAndGeneralAmt
Fundraising$5,224FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$14,455TotalAmt
Program Services$11,970ProgramServicesAmt
Management And General$1,039ManagementAndGeneralAmt
Fundraising$1,446FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$5,313TotalAmt
Program Services$4,251ProgramServicesAmt
Management And General$531ManagementAndGeneralAmt
Fundraising$531FundraisingAmt

Other Expenses OtherExpensesGrp

FieldValueIRS element (for citing)
DescMEDICAL EQUIPMENTDesc
Total$110,200TotalAmt
Program Services$110,200ProgramServicesAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,074,863TotalAmt
Program Services$2,586,397ProgramServicesAmt
Management And General$119,466ManagementAndGeneralAmt
Fundraising$369,000FundraisingAmt
FieldValueIRS element (for citing)
Joint CostsYes (X)JointCostsInd

Total Joint Costs TotalJointCostsGrp

FieldValueIRS element (for citing)
Total$15,449TotalAmt
Program Services$2,575ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$12,874FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$344,353BOYAmt
EOY$1,004,107EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$579,198BOYAmt
EOY$655,529EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$395,609BOYAmt
EOY$385,398EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$13,262BOYAmt
EOY$12,198EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$1,145,347LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$624,616LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$526,442BOYAmt
EOY$520,731EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
EOY$77,691EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$345BOYAmt
EOY$0EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$1,859,209BOYAmt
EOY$2,655,654EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$77,300BOYAmt
EOY$91,609EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$232,777BOYAmt
EOY$299,831EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$161,496BOYAmt
EOY$0EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$190,600BOYAmt
EOY$0EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$183,014BOYAmt
EOY$129,784EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$845,187BOYAmt
EOY$521,224EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$931,329BOYAmt
EOY$2,061,930EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$82,693BOYAmt
EOY$72,500EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,014,022BOYAmt
EOY$2,134,430EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,859,209BOYAmt
EOY$2,655,654EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$1,124,981ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst-$4,573NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Info In Schedule O Part XIIYes (X)InfoInScheduleOPartXIIInd
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,579,574CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,344,722CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,962,348CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,711,833CurrentTaxYearMinus1YearAmt
Current Tax Year$4,371,316CurrentTaxYearAmt
Total$13,969,793TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$587CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus1 Year$29CurrentTaxYearMinus1YearAmt
Total$616TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,579,574CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,345,309CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,962,348CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,711,862CurrentTaxYearMinus1YearAmt
Current Tax Year$4,371,316CurrentTaxYearAmt
Total$13,970,409TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$53,256CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$80,166CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$59,373CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$19,218CurrentTaxYearMinus1YearAmt
Current Tax Year$60,378CurrentTaxYearAmt
Total$272,391TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$53,256CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$80,166CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$59,373CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$19,218CurrentTaxYearMinus1YearAmt
Current Tax Year$60,378CurrentTaxYearAmt
Total$272,391TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$13,698,018PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,276CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$16,584CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$17,343CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$10,987CurrentTaxYearMinus1YearAmt
Current Tax Year$1,044CurrentTaxYearAmt
Total$50,234TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,808CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,933CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,224CurrentTaxYearMinus2YearsAmt
Total$4,965TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$6,084CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$18,517CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$18,567CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$10,987CurrentTaxYearMinus1YearAmt
Current Tax Year$1,044CurrentTaxYearAmt
Total$55,199TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,540CurrentTaxYearMinus4YearsAmt
Total$2,540TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,588,198CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,363,826CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,980,915CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,722,849CurrentTaxYearMinus1YearAmt
Current Tax Year$4,372,360CurrentTaxYearAmt
Total$14,028,148TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.97650PublicSupportCY509Pct
Public Support PY5090.97520PublicSupportPY509Pct
Investment Income CY0.00390InvestmentIncomeCYPct
Investment Income PY0.00480InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

FieldValueIRS element (for citing)
VolunteersYes (1)VolunteersInd
Paid Staff Or ManagementYes (1)PaidStaffOrManagementInd
Media Advertisements0MediaAdvertisementsInd
Mailings Members0MailingsMembersInd
Publications Or Broadcast0PublicationsOrBroadcastInd
Grants Other Organizations0GrantsOtherOrganizationsInd
Direct Contact LegislatorsYes (1)DirectContactLegislatorsInd
Direct Contact Legislators$36,000DirectContactLegislatorsAmt
Rallies Demonstrations0RalliesDemonstrationsInd
Other Activities0OtherActivitiesInd
Total Lobbying Expenditures$36,000TotalLobbyingExpendituresAmt
Not Described Section501c30NotDescribedSection501c3Ind

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART II-B, LINE 1:FormAndLineReferenceDesc
ExplanationTHE CHAPTER'S ADVOCACY EFFORTS INCLUDE BOTH GRASSROOTS AND DIRECT LOBBYING ACTIVITIES. GRASSROOTS ACTIVITIES ARE CONDUCTED BY VOLUNTEERS, PATIENTS AND/OR OTHER CONSTITUENTS. GRASSROOTS VOLUNTEERS MEET WITH LEGISLATORS AND/OR SEND INFORMATION ON KEY LEGISLATIVE PRIORITIES TO LEGISLATIVE OFFICES. THE CHAPTER WORKS WITH ELECTED OFFICIALS AT THE STATE AND FEDERAL LEVELS. DIRECT LOBBYING IS CONDUCTED THROUGH VIRTUAL MEETINGS WITH LEGISLATORS. FOR THE FISCAL YEAR ENDED JANUARY 31, 2022, THE PRESIDENT/CEO, TWO STAFF MEMBERS AND ABOUT ONE DOZEN VOLUNTEER PARTICIPATED IN VIRTUAL MEETINGS WITH FEDERAL LEGISLATORS. INDIVIDUAL MEETINGS LASTED BETWEEN 15 AND 30 MINUTES.ExplanationTxt

Schedule D IRS990ScheduleD

Land LandGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$225,000OtherCostOrOtherBasisAmt
Book Value$225,000BookValueAmt

Buildings BuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$485,609OtherCostOrOtherBasisAmt
Depreciation$197,438DepreciationAmt
Book Value$288,171BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$434,738OtherCostOrOtherBasisAmt
Depreciation$427,178DepreciationAmt
Book Value$7,560BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$520,731TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescDUE TO NATIONAL ALSDesc
Amt$129,784Amt
FieldValueIRS element (for citing)
Total Liability$129,784TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$4,368,159TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst-$4,573NetUnrealizedGainsInvstAmt
Other Revenue$172,888OtherRevenueAmt
Revenue Not Reported$168,315RevenueNotReportedAmt
Revenue Subtotal$4,199,844RevenueSubtotalAmt
Revenue Not Reported Fincl Stmt$0RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$4,199,844TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,247,751TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$172,888OtherExpensesIncludedAmt
Expenses Not Reported$172,888ExpensesNotReportedAmt
Expenses Subtotal$3,074,863ExpensesSubtotalAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,074,863TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART X, LINE 2:THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION AND ITS AFFILIATED CHAPTERS, INCLUDING THE ASSOCIATION, HAVE BEEN RECOGNIZED COLLECTIVELY BY THE INTERNAL REVENUE SERVICE AS TAX-EXEMPT ORGANIZATIONS DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE OF 1986. INCOME EARNED IN FURTHERANCE OF THE ASSOCIATION'S TAX-EXEMPT PURPOSE IS EXEMPT FROM FEDERAL AND STATE INCOME TAXES. THE ASSOCIATION, THROUGH THE COLLECTIVE EXEMPTION DESCRIBED PREVIOUSLY, IS TREATED AS A PUBLICLY SUPPORTED ORGANIZATION, AND NOT AS A PRIVATE FOUNDATION. THE ASSOCIATION HAS ADOPTED THE PROVISIONS OF ASC TOPIC 740, INCOME TAXES, RELATING TO ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES AND DOES NOT BELIEVE IT HAS ANY MATERIAL INCOME TAX EXPOSURE RELATING TO UNCERTAIN TAX POSITIONS. THE ASSOCIATION'S INCOME TAX FILINGS FOR PERIODS AFTER THE FISCAL YEAR ENDED JANUARY 31, 2019 REMAIN SUBJECT TO EXAMINATION. BEGINNING WITH THE YEAR ENDED JANUARY 31, 2009, THE ASSOCIATION RECEIVED RENT FROM A TENANT, WHICH IS CONSIDERED UNRELATED TAXABLE BUSINESS INCOME. THIS AGREEMENT WAS TERMINATED DURING THE YEAR ENDED JANUARY 31, 2021 AND GENERATED A NOMINAL AMOUNT OF INCOME TAX EXPENSE IN THAT YEAR.
PART XI, LINE 2D - OTHER ADJUSTMENTS:EVENT EXPENSES DEDUCTED ON PART VIII, LINE 8B 172,888.
PART XII, LINE 2D - OTHER ADJUSTMENTS:EVENT EXPENSES DEDUCTED ON PART VIII, LINE 8B 172,888.

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Solicitation Of Govt GrantsYes (X)SolicitationOfGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (1)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp

Organization Business Name OrganizationBusinessName

FieldValueIRS element (for citing)
Business Name Line1GOODUNITEDBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line1796 MEETING STAddressLine1Txt
CityCHARLESTONCityNm
State AbbreviationSCStateAbbreviationCd
ZIP29403ZIPCd
FieldValueIRS element (for citing)
ActivityFACEBOOK FUNDRAISING EVENTActivityTxt
Fundraiser Control Of FundsYes (1)FundraiserControlOfFundsInd
Gross Receipts$40,193GrossReceiptsAmt
Retained By Contractor$19,443RetainedByContractorAmt
Net To Organization$20,750NetToOrganizationAmt
FieldValueIRS element (for citing)
Total Gross Receipts$40,193TotalGrossReceiptsAmt
Total Retained By Contractors$19,443TotalRetainedByContractorsAmt
Total Net To Organization$20,750TotalNetToOrganizationAmt
Licensed StatesFLLicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1WALK TO DEFEAT ALS EVENTSEvent1Nm
Gross Receipts Event1$783,864GrossReceiptsEvent1Amt
Charitable Contri Event1$783,864CharitableContriEvent1Amt
Rent Facility Costs Event1$4,711RentFacilityCostsEvent1Amt
Other Direct Expenses Event1$41,507OtherDirectExpensesEvent1Amt
Event2CEO SOAK/RING OF HONOREvent2Nm
Gross Receipts Event2$262,544GrossReceiptsEvent2Amt
Charitable Contri Event2$262,544CharitableContriEvent2Amt
Rent Facility Costs Event2$58,137RentFacilityCostsEvent2Amt
Food And Beverage Event2$12,065FoodAndBeverageEvent2Amt
Other Direct Expenses Event2$15,589OtherDirectExpensesEvent2Amt
Other Events Total2OtherEventsTotalCnt
Gross Receipts Other Events$188,068GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$188,068CharitableContriOtherEventsAmt
Rent Fclty Costs Other Events$22,908RentFcltyCostsOtherEventsAmt
Oth Direct Expnss Other Events$17,971OthDirectExpnssOtherEventsAmt
Gross Receipts Total$1,234,476GrossReceiptsTotalAmt
Charitable Contributions Tot$1,234,476CharitableContributionsTotAmt
Rent Fclty Costs Total Events$85,756RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$12,065FoodAndBeverageTotalEventsAmt
Oth Direct Expnss Total Events$75,067OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$172,888DirectExpenseSummaryEventsAmt
Net Income Summary-$172,888NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (2 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtValuation Method UsedValuationMethodUsedDescNon Cash AssistanceNonCashAssistanceDescPurpose Of GrantPurposeOfGrantTxt
THE ALS ASSOCIATION
1300 WILSON BLVD STE 600ARLINGTONVA22209133271855501(C)(3)$27,020$0N/AN/ARESEARCH
THE ALS ASSOCIATION
1300 WILSON BLVD STE 600ARLINGTONVA22209133271855501(C)(3)$375,925$0N/AN/AADVOCACY, AWARENESS, CARE SERVICES, ETC.
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp (4 entries)

Grant TypeGrantTypeTxtRecipientRecipientCntCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtValuation Method UsedValuationMethodUsedDescNon Cash AssistanceNonCashAssistanceDesc
MEDICAL FUTURES SCHOLARSHIPS1$5,000$0N/AN/A
TRANSPORTATION12$2,198$0N/AN/A
EQUIPMENT LOAN PROGRAM438$0$0EQUIPMENT IS NOT VALUED672 PIECES OF DURABLE MEDICAL EQUIPMENT AND COMMUNICATION DEVICES LOANED
CARE ASSIST GRANTS (SEE PART IV)140$69,500$0N/AN/A

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 2:APPLICANTS APPLY FOR GRANTS ONLINE. APPLICATIONS ARE REVIEWED FOR A VARIETY OF FACTORS, INCLUDING BUT NOT LIMITED TO CONFORMITY WITH GRANT CRITERIA, VALIDITY OF NEED, OTHER POTENTIAL FUNDING SOURCES, ETC. GRANTS ARE SUBSTANTIATED THROUGH RESPITE CALENDARS, EQUIPMENT INVOICES, AND OTHER RELEVANT RECEIPTS.
PART III - GRANTS AND OTHER ASSISTANCE TO DOMESTIC INDIVIDUALS:FINANCIAL ASSISTANCE PROGRAMS AID FINANCIALLY STRESSED PEOPLE LIVING WITH ALS AND THEIR FAMILIES WITH EQUIPMENT AND SERVICES. ASSISTANCE IS AVAILABLE FOR RESPITE CARE, HOME MODIFICATIONS, VAN MODIFICATIONS OR VAN PURCHASE ASSISTANCE, MEDICAL EQUIPMENT, ASSISTIVE TECHNOLOGY, AND TRANSPORTATION TO AN ALS CERTIFIED CENTER OF EXCELLENCE OR CLINIC AFFILIATED WITH THE ALS ASSOCIATION FLORIDA CHAPTER. WE ALSO OFFER TEMPORARY LOANER EQUIPMENT, INCLUDING SPEECH GENERATING DEVICES, TO FLORIDA RESIDENTS WITH A VERIFIED DIAGNOSIS OF ALS WHO ARE UNINSURED, UNDERINSURED, WHO CANNOT ACCESS THEIR INSURANCE (WHILE IN A NURSING HOME OR HOSPICE) OR WHO ARE WAITING FOR INSURANCE APPROVAL. WE COLLABORATE WITH DURABLE MEDICAL EQUIPMENT (DME) COMPANIES, ACCESSIBLE VAN DEALERS AND MODIFICATION BUSINESSES THAT PROVIDE SERVICES TO PEOPLE WITH ALS AND HAVE SPECIALISTS KNOWLEDGEABLE ABOUT THE PROGRESSIVE EQUIPMENT NEEDS OF PERSONS WITH ALS.

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonRAY CARSONPersonNm
TitlePRESIDENT/CEOTitleTxt
Base Compensation Filing Org$130,000BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs$0CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization$20,000BonusFilingOrganizationAmount
Bonus Related Organizations$0BonusRelatedOrganizationsAmt
Other Compensation Filing Org$0OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs$0OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org$4,509DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs$0DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org$0NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs$0NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org$154,509TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs$0TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org$0CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs$0CompReportPrior990RltdOrgsAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 7FormAndLineReferenceDesc
ExplanationTHE CHAPTER OFFERS AN EXECUTIVE INCENTIVE PROGRAM FOR THE PRESIDENT/CEO. THE PROGRAM OPENS FOR THE FISCAL YEAR ONCE THE CHAPTER MEETS CERTAIN CRITERIA AS SPECIFIED IN THE PROGRAM DOCUMENT AND APPROVED BY THE BOARD. ONCE THE INITIAL CRITERIA IS MET, THE PRESIDENT/CEO CAN EARN AN INCENTIVE AWARD RANGING FROM $0 TO $20,000 BY ACHIEVING OBJECTIVES OUTLINED IN THE PLAN. ACHIEVING "THRESHOLD LEVEL" (10 OF 15 OBJECTIVES MET) EARNS AN INCENTIVE OF $5,000; "TARGET LEVEL" (12 OF 15 OBJECTIVES MET) RESULTS IN AN INCENTIVE OF $10,000; AND "MAXIMUM LEVEL" (14 OF 15 OBJECTIVES MET) EARNS AN INCENTIVE OF $20,000.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution26ContributionCnt
Noncash Contributions Rpt F990$110,721NoncashContributionsRptF990Amt
Method Of Determining RevenuesSTOCK QUOTEMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescMEDICAL EQUIPMENTDesc
Contribution115ContributionCnt
Noncash Contributions Rpt F990$110,200NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Form8283 Received0Form8283ReceivedCnt
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties Used0ThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2THE FOLLOWING TRUSTEES HAVE PROFESSIONAL BUSINESS RELATIONSHIPS OUTSIDE OF THEIR DUTIES AS BOARD MEMBERS: HAMPTON GRAHAM AND GLENN STAMBAUGH HAMPTON GRAHAM AND BRIAN CHAPPELL
FORM 990, PART VI, SECTION B, LINE 11BTHE AUDIT REPORT AND FORM 990 IS FIRST REVIEWED AND DISCUSSED WITH THE FINANCE COMMITTEE AND THE ACCOUNTANT. ONCE ANY QUESTIONS OR CONCERNS HAVE BEEN ADDRESSED, THE FINANCE COMMITTEE VOTES TO ACCEPT THE AUDIT REPORT AND FORM 990. ONCE THIS IS COMPLETE, BOTH ARE PRESENTED TO THE ENTIRE BOARD OF DIRECTORS FOR VOTE AND APPROVAL.
FORM 990, PART VI, SECTION B, LINE 12CBOARD MEMBERS AND KEY EMPLOYEES ARE ASKED TO SIGN A CONFLICT OF INTEREST POLICY ANNUALLY. ANNUAL INQUIRIES OF BOARD MEMBERS AND THE CEO ARE MADE BY THE CHAIRMAN OF THE BOARD. ANY POTENTIAL CONFLICTS ARE REVIEWED BY THE EXECUTIVE COMMITTEE OF THE BOARD AND PRESENTED TO THE FULL BOARD IN EXECUTIVE SESSION. BOARD MEMBERS WITH A CONFLICT ON ANY VOTING MATTERS RECUSE THEMSELVES FROM THE VOTE. ANNUAL INQUIRIES OF EMPLOYEES ARE MADE BY THE CEO. ANY POTENTIAL CONFLICTS ARE REVIEWED AND ADDRESSED BY THE CEO, AS APPROPRIATE.
FORM 990, PART VI, SECTION B, LINE 15THE PROCESS FOR DETERMINING THE PRESIDENT/CEO'S SALARY IS AS FOLLOWS: (1) THE PRESIDENT/CEO'S PERFORMANCE IS REVIEWED BY THE CHAIRMAN AND A WRITTEN EVALUATION IS PROVIDED TO THE PRESIDENT/CEO AND TO THE EXECUTIVE COMMITTEE; (2) SALARY IS DETERMINED AND DOCUMENTED BY USING COMPARABLE DATA FROM NONPROFITS OF SIMILAR MISSION, BUDGET SIZE, AND GEOGRAPHIC REGION, INCLUDING SISTER ALS CHAPTERS, WITH ALLOWANCES MADE FOR DIFFERENCES IN SIZE AND LOCATION; (3) THE EXECUTIVE COMMITTEE MAKES A RECOMMENDATION TO THE BOARD FOR APPROVAL; AND (4) THE BOARD'S CONSIDERATION AND APPROVAL OF THE COMPENSATION IS DOCUMENTED IN THE BOARDS MINUTES. THE PROCESS FOR DETERMINING KEY EMPLOYEE'S SALARY IS AS FOLLOWS: (1) THE EMPLOYEE'S PERFORMANCE IS REVIEWED BY THE PRESIDENT/CEO; AND (2) SALARY IS DETERMINED AND DOCUMENTED BY USING COMPARABLE DATA FROM NONPROFITS OF SIMILAR MISSION, BUDGET SIZE, AND GEOGRAPHIC REGION.
FORM 990, PART VI, SECTION C, LINE 19THE CHAPTER MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.
FORM 990, PART IX, LINE 11GPAYROLL ADMINISTRATION: PROGRAM SERVICE EXPENSES 3,090. MANAGEMENT AND GENERAL EXPENSES 107. FUNDRAISING EXPENSES 1,065. TOTAL EXPENSES 4,262. OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 15,041. MANAGEMENT AND GENERAL EXPENSES 1,880. FUNDRAISING EXPENSES 1,879. TOTAL EXPENSES 18,800. CONTRACTOR FEES: PROGRAM SERVICE EXPENSES 32,460. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 32,460. SUBCONTRACTOR FEES-CENTER SUPPORT: PROGRAM SERVICE EXPENSES 806,297. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 806,297.
FORM 990, PART XII, LINE 2C:THE FINANCIAL STATEMENT AUDIT AND SELECTION OF THE INDEPENDENT CPA FIRM IS MANAGED BY THE PRESIDENT/CEO AND OVERSEEN BY THE FINANCE COMMITTEE OF THE BOARD. THE CPA FIRM PRESENTS THE AUDIT AND 990 TO THE FINANCE COMMITTEE. THE FIRM MEETS WITH THE TREASURER AT LEAST ONCE WITHOUT STAFF PRESENT TO ENSURE THE PROCESS IS FULLY INDEPENDENT. THE FINANCE COMMITTEE THEN PRESENTS THE AUDIT AND 990 TO THE FULL BOARD. THE CPA FIRM IS CHOSEN FROM THREE (3) INDEPENDENT PROPOSALS WHEN A CHANGE IN FIRM IS MADE. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.