ALPHA-1 FOUNDATION INC: Form 990, tax year 2020

View the entire original 990 at ProPublica ↗

Organization
ALPHA-1 FOUNDATION INC (EIN 65-0585415)
Tax period
2020-07-01 to 2021-06-30
Filed
2022-03-04
IRS object ID
202240639349301009
Schema version
2020v4.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2022-03-04T09:58:42-06:00ReturnTs
Tax Period End2021-06-30TaxPeriodEndDt
Return Type990ReturnTypeCd
Tax Period Begin2020-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN650585415EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Alpha-1 FoundationBusinessNameLine1Txt
Business Name Line2Alpha One FoundationBusinessNameLine2Txt
FieldValueIRS element (for citing)
In Care Of% Mark DelvauxInCareOfNm
Business Name ControlALPHBusinessNameControlTxt
Phone3055679888PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BoulevardAddressLine1Txt
CityMiamiCityNm
State AbbreviationFLStateAbbreviationCd
ZIP331347211ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMARK DELVAUXPersonNm
Person TitleVice President CFOPersonTitleTxt
Phone3054421776PhoneNum
Signature2022-03-04SignatureDt
Discuss With Paid PreparerfalseDiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstMARKPersonFirstNm
Person LastDELVAUXPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonPATRICK M LUNNPreparerPersonNm
PTINP01874332PTIN
Phone3054421776PhoneNum
Preparation2022-03-04PreparationDt
Self EmployedYes (X)SelfEmployedInd

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer0TrustedCustomerCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2020TaxYr
Build TS2022-09-23 18:48:47ZBuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

FieldValueIRS element (for citing)
Business Name Line1Alpha One FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Principal OfficerMARK B DELVAUXPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BoulevardAddressLine1Txt
CityCoral GablesCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$16,076,762GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.alpha1.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1995FormationYr
Legal Domicile StateFLLegalDomicileStateCd
Activity Or MissionThe Alpha1 Foundation is committed to finding a cure for Alpha1 Antitrypsin Deficiency and to improving the lives of Alphas worldwideActivityOrMissionDesc
Voting Members Governing Body12VotingMembersGoverningBodyCnt
Voting Members Independent12VotingMembersIndependentCnt
Total Employee19TotalEmployeeCnt
Total Volunteers300TotalVolunteersCnt
Total Gross UBI$240,000TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$62,038NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$7,621,556PYContributionsGrantsAmt
CY Contributions Grants$7,939,893CYContributionsGrantsAmt
PY Program Service Revenue$561,000PYProgramServiceRevenueAmt
CY Program Service Revenue$240,000CYProgramServiceRevenueAmt
PY Investment Income$2,917,916PYInvestmentIncomeAmt
CY Investment Income$2,701,074CYInvestmentIncomeAmt
PY Other Revenue$70,931PYOtherRevenueAmt
CY Other Revenue$61,472CYOtherRevenueAmt
PY Total Revenue$11,171,403PYTotalRevenueAmt
CY Total Revenue$10,942,439CYTotalRevenueAmt
PY Grants And Similar Paid$3,663,209PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$2,915,188CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,701,046PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,734,769CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$550,275CYTotalFundraisingExpenseAmt
PY Other Expenses$2,046,655PYOtherExpensesAmt
CY Other Expenses$1,606,146CYOtherExpensesAmt
PY Total Expenses$7,410,910PYTotalExpensesAmt
CY Total Expenses$6,256,103CYTotalExpensesAmt
PY Revenues Less Expenses$3,760,493PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$4,686,336CYRevenuesLessExpensesAmt
Total Assets BOY$27,046,714TotalAssetsBOYAmt
Total Assets EOY$34,603,486TotalAssetsEOYAmt
Total Liabilities BOY$2,173,143TotalLiabilitiesBOYAmt
Total Liabilities EOY$2,367,672TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$24,873,571NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$32,235,814NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionThe Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$3,083,689ExpenseAmt
Grant$2,570,963GrantAmt
Revenue$558,543RevenueAmt
DescAlpha-1 Research Network: The Alpha-1 research infrastructure provides support for a network of Alpha-1 investigators worldwide. It is one of the Foundation's most valuable assets and includes the DNA & Tissue Bank, Genetics Laboratory, and Clinical Resource Centers. The Foundation's mission is served by scientific meetings that bring together stakeholders with the intent to promote scientific discovery, identify new approaches to the detection of Alpha-1, and educate physicians and patients on Alpha-1. The Alpha-1 Grants and Awards Program is the heart of the Foundation's research activities and has established itself as the worldwide leader of Alpha-1 research support.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$235,825ExpenseAmt
Revenue$674,000RevenueAmt
DescAlpha-1 National Conference: The 30th annual Alpha-1 National Educational Conference was held virtually on June 10-12, 2021. The speakers included some of the leading clinicians and researchers in the field of Alpha-1 to bring incredible subject matter expertise and education to the community. The program covered a wide range of medical education and supportive topics to inform, empower and motivate patients to take charge of their health. The last five years of presentations are available on the Foundation's website at www.alpha1.org.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$584,050ExpenseAmt
Grant$300,225GrantAmt
Revenue$135,000RevenueAmt
DescAlpha-1 Registry and ACT Study: The Research Registry is a confidential database of diagnosed Alphas and carriers willing and able to participate in research studies and clinical trials for new therapies. The Registry represents the largest cohort of Alphas in the world. The goal of the Alpha-1 Coded Testing (ACT) Study is to provide a way for those at risk, including family members of diagnosed Alphas, to learn their genotype. The study includes a research questionnaire, a finger-stick testing kit, and is free and confidential. The ACT Study has enrolled over 40,000 individuals since 2001.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (5 entries)

ExpenseExpenseAmtGrantGrantAmtRevenueRevenueAmtDescDesc
$167,712$4,000$210,000The mission of Alpha-1 Global is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers.
$121,164$230,000The Foundation's Public Policy program monitors relevant legislation and regulatory issues and publicizes the Foundation's positions on such issues.
$174,212$240,000The Alpha-1-To-One Magazine is designed to inform the community of research developments, education, advocacy and fund raising opportunities.
$203,844$295,000Alpha-1 Education Days provide access to current medical information and resources to hundreds of Alphas, their families, and caregivers.
$507,308$40,000$366,000Other Alpha-1 services include patient education (materials, website, etc), a Patient Support Network, and a targeted detection program.
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$1,174,240TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$44,000TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue$1,341,000TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$5,077,804TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundYes (true)DonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsYes (true)MoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityYes (true)RelatedEntityInd
Related Organization Ctrl EntYes (true)RelatedOrganizationCtrlEntInd
Transaction With Control EntYes (true)TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document24IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee19EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (true)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (true)Form990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
DAF Excess Business HoldingsfalseDAFExcessBusinessHoldingsInd
Taxable DistributionsfalseTaxableDistributionsInd
Distribution To DonorfalseDistributionToDonorInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members12GoverningBodyVotingMembersCnt
Independent Voting Member12IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMARK B DELVAUXPersonNm
Phone3055679888PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BoulevardAddressLine1Txt
CityCoral GablesCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd
FieldValueIRS element (for citing)
Info In Schedule O Part VIIYes (X)InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (17 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtFormer Ofcr Director TrusteeFormerOfcrDirectorTrusteeIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeIndOfficerOfficerIndIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
MIRIAM A O'DAY
President and CEO40.00Yes (X)$276,735$0$6,968
RANDEL H PLANT
Sen Dir Research Progs40.00$121,544$0$13,213Yes (X)
ANGELA T MCBRIDE
Sen Dir Corp Relations40.00$108,866$0$16,573Yes (X)
SCOTT SANTARELLA
President and CEO40.00$0$0$0Yes (X)
MARK B DELVAUX
Vice President and CFO10.00$0$0$0Yes (X)
JEANINE M D'ARMIENTO
Chair8.000$0$0$0Yes (X)Yes (X)
ELIZABETH JOHNSON
Vice Chair8.000$0$0$0Yes (X)Yes (X)
FRED C WALSH
Vice Chair8.000$0$0$0Yes (X)Yes (X)
JENNIFER JOPP
Secretary8.000$0$0$0Yes (X)Yes (X)
JON HAGSTROM
Treasurer8.000$0$0$0Yes (X)Yes (X)
MARTIN R ZAMORA
Director8.000$0$0$0Yes (X)Yes (X)
KENNETH IRVINE
Director4.000$0$0$0Yes (X)
PEGGY IVERSON
Director4.000$0$0$0Yes (X)
ANN KNEBEL
Director4.000$0$0$0Yes (X)
NOEL G MCELVANEY
Director4.000$0$0$0Yes (X)
FARON SCHONFELD
Director4.000$0$0$0Yes (X)
JAMES K STOLLER
Director4.000$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$507,145TotalReportableCompFromOrgAmt
Total Other Compensation$36,754TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K3IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedYes (true)FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsYes (true)CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (2 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
AlphaNet Inc
3300 Ponce de Leon BoulevardCoral Gables FLFL33134Management services$185,500
Original Impressions LLC
PO Box 31792TampaFL33631Printing and publication$145,071
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K2CntrctRcvdGreaterThan100KCnt
All Other Contributions$7,939,893AllOtherContributionsAmt
Noncash Contributions$210,230NoncashContributionsAmt
Total Contributions$7,939,893TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescPublication incomeDesc
Business511120BusinessCd
Total Revenue Column$240,000TotalRevenueColumnAmt
Unrelated Business Revenue$240,000UnrelatedBusinessRevenueAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$240,000TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$460,728TotalRevenueColumnAmt
Related Or Exempt Func Income$460,728RelatedOrExemptFuncIncomeAmt

Gross Rents GrossRentsGrp

FieldValueIRS element (for citing)
Real$8,788RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$8,788RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$8,788TotalRevenueColumnAmt
Related Or Exempt Func Income$8,788RelatedOrExemptFuncIncomeAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$7,374,669SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$5,134,323SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$2,240,346SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$2,240,346TotalRevenueColumnAmt
Related Or Exempt Func Income$2,240,346RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$52,684FundraisingGrossIncomeAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$52,684TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$10,942,439TotalRevenueColumnAmt
Related Or Exempt Func Income$2,709,862RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$240,000UnrelatedBusinessRevenueAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,809,734TotalAmt
Program Services$1,809,734ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$15,000TotalAmt
Program Services$15,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$1,090,454TotalAmt
Program Services$1,090,454ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,415,121TotalAmt
Program Services$1,066,584ProgramServicesAmt
Management And General$86,955ManagementAndGeneralAmt
Fundraising$261,582FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$22,499TotalAmt
Program Services$16,174ProgramServicesAmt
Management And General$2,199ManagementAndGeneralAmt
Fundraising$4,126FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$196,215TotalAmt
Program Services$160,403ProgramServicesAmt
Management And General$5,088ManagementAndGeneralAmt
Fundraising$30,724FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$100,934TotalAmt
Program Services$74,957ProgramServicesAmt
Management And General$7,529ManagementAndGeneralAmt
Fundraising$18,448FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$149,680TotalAmt
Management And General$149,680ManagementAndGeneralAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$60,708TotalAmt
Program Services$16,025ProgramServicesAmt
Management And General$33,822ManagementAndGeneralAmt
Fundraising$10,861FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$55,840TotalAmt
Management And General$55,840ManagementAndGeneralAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$135,874TotalAmt
Management And General$135,874ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$214,323TotalAmt
Program Services$162,021ProgramServicesAmt
Management And General$52,302ManagementAndGeneralAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$330,231TotalAmt
Program Services$241,561ProgramServicesAmt
Management And General$17,399ManagementAndGeneralAmt
Fundraising$71,271FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$109,894TotalAmt
Program Services$70,192ProgramServicesAmt
Management And General$20,031ManagementAndGeneralAmt
Fundraising$19,671FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$210,912TotalAmt
Program Services$160,256ProgramServicesAmt
Management And General$12,373ManagementAndGeneralAmt
Fundraising$38,283FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total-$293TotalAmt
Program Services-$166ProgramServicesAmt
Management And General-$127ManagementAndGeneralAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,473TotalAmt
Program Services$1,359ProgramServicesAmt
Management And General-$236ManagementAndGeneralAmt
Fundraising$350FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$15,580TotalAmt
Program Services$11,838ProgramServicesAmt
Management And General$914ManagementAndGeneralAmt
Fundraising$2,828FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$23,367TotalAmt
Program Services$15,905ProgramServicesAmt
Management And General$3,662ManagementAndGeneralAmt
Fundraising$3,800FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Telephones$21,728$14,867$668$6,193
Dues and subscriptions$211,492$150,640$17,263$43,589
Licenses, fees, and taxes$59,337$20,788$38,549
Bad debt expenses$6,000$6,000

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$6,256,103TotalAmt
Program Services$5,077,804ProgramServicesAmt
Management And General$628,024ManagementAndGeneralAmt
Fundraising$550,275FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$1,049,020BOYAmt
EOY$4,319,457EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,835,636BOYAmt
EOY$4,294,626EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$2,079,860BOYAmt
EOY$982,721EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$35,014BOYAmt
EOY$21,728EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$414,904LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$393,155LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$24,346BOYAmt
EOY$21,749EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$22,023,016BOYAmt
EOY$24,801,956EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY-$25,312BOYAmt
EOY$136,115EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$25,134BOYAmt
EOY$25,134EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$27,046,714BOYAmt
EOY$34,603,486EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,873,780BOYAmt
EOY$1,937,857EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$284,000BOYAmt
EOY$416,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$15,363BOYAmt
EOY$13,815EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$2,173,143BOYAmt
EOY$2,367,672EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$22,278,931BOYAmt
EOY$29,114,292EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$2,594,640BOYAmt
EOY$3,121,522EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$24,873,571BOYAmt
EOY$32,235,814EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$27,046,714BOYAmt
EOY$34,603,486EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$4,686,336ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$2,538,609NetUnrlzdGainsLossesInvstAmt
Investment Expense$135,874InvestmentExpenseAmt
Other Changes In Net Assets$1,424OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Consol And Sep Basis Fincl StmtYes (X)ConsolAndSepBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$9,245,514CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,669,714CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$8,335,339CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$7,936,556CurrentTaxYearMinus1YearAmt
Current Tax Year$7,939,893CurrentTaxYearAmt
Total$41,127,016TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$9,245,514CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,669,714CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$8,335,339CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$7,936,556CurrentTaxYearMinus1YearAmt
Current Tax Year$7,939,893CurrentTaxYearAmt
Total$41,127,016TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$29,175,981SubstantialContributorsTotAmt
Public Support Total170$11,951,035PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$471,866CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$493,565CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$507,839CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$512,763CurrentTaxYearMinus1YearAmt
Current Tax Year$469,516CurrentTaxYearAmt
Total$2,455,549TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$122,780CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$104,576CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$17,767CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$73,156CurrentTaxYearMinus1YearAmt
Current Tax Year$62,038CurrentTaxYearAmt
Total$380,317TotalAmt
FieldValueIRS element (for citing)
Total Support$43,962,882TotalSupportAmt
Public Support CY1700.27184PublicSupportCY170Pct
Public Support PY1700.28250PublicSupportPY170Pct
Ten Pct Facts Crcmstncs Test CYYes (X)TenPctFactsCrcmstncsTestCYInd
Facts And Circumstances TestThe Foundation maintains an ongoing nationwide solicitation program from the general public, the Alpha-1 community, and public charities.FactsAndCircumstancesTestTxt

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp (18 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part II Line 17The Alpha-1 Foundation maintains an ongoing solicitation program
Part II Line 17from the general public. During the fiscal year ended June 30,
Part II Line 172021, the Foundation received contributions from 3,327 donors
Part II Line 17from across the United States. As shown on Schedule B, 43 donors
Part II Line 17contributed amounts of $5,000 or higher. Fund raising activities
Part II Line 17include a general campaign, special events, and other fund
Part II Line 17raising appeals. The public support percentage for fiscal 2021
Part II Line 17would be 33.3% if the support received from AlphaNet, Inc., a
Part II Line 17Section 501(c)(3) Type 2 charity were excluded from this
Part II Line 17computation. The support received from AlphaNet has provided
Part II Line 17funding to support detection of Alpha-1 affected persons,
Part II Line 17research for improved therapies, and a cure for Alpha-1
Part II Line 17antitrypsin deficiency. The Board of Directors is comprised of 12
Part II Line 17individuals, geographically distributed across the United States
Part II Line 17and abroad, including 6 members who have been diagnosed with
Part II Line 17Alpha-1, 1 who had a family member diagnosed with Alpha-1, 1
Part II Line 17registered nurse, and 4 medical doctors who are experts in the
Part II Line 17field. All directors are independent.

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$10,000FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$10,000FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$6,246,103FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$6,256,103FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$462,805FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$115,701FilingOrganizationsTotalAmt
FieldValueIRS element (for citing)
Form4720 FiledfalseForm4720FiledInd

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$517,689CurrentYearMinus3Amt
Current Year Minus2$540,927CurrentYearMinus2Amt
Current Year Minus1$451,409CurrentYearMinus1Amt
Current Year$462,805CurrentYearAmt
Total$1,972,830TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$2,959,245LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$10,000CurrentYearMinus3Amt
Current Year Minus2$10,000CurrentYearMinus2Amt
Current Year Minus1$10,000CurrentYearMinus1Amt
Current Year$10,000CurrentYearAmt
Total$40,000TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$129,422CurrentYearMinus3Amt
Current Year Minus2$135,232CurrentYearMinus2Amt
Current Year Minus1$112,852CurrentYearMinus1Amt
Current Year$115,701CurrentYearAmt
Total$493,207TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$739,811GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$10,000CurrentYearMinus3Amt
Current Year Minus2$10,000CurrentYearMinus2Amt
Current Year Minus1$10,000CurrentYearMinus1Amt
Current Year$10,000CurrentYearAmt
Total$40,000TotalAmt
FieldValueIRS element (for citing)
VolunteersfalseVolunteersInd
Paid Staff Or ManagementfalsePaidStaffOrManagementInd
Media AdvertisementsfalseMediaAdvertisementsInd
Mailings MembersfalseMailingsMembersInd
Publications Or BroadcastfalsePublicationsOrBroadcastInd
Grants Other OrganizationsfalseGrantsOtherOrganizationsInd
Direct Contact LegislatorsfalseDirectContactLegislatorsInd
Rallies DemonstrationsfalseRalliesDemonstrationsInd
Other ActivitiesfalseOtherActivitiesInd
Not Described Section501c3falseNotDescribedSection501c3Ind
Form4720 Filed4912 TaxfalseForm4720Filed4912TaxInd

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Donor Advised Funds Held1DonorAdvisedFundsHeldCnt
Donor Advised Funds Vl EOY$28,369DonorAdvisedFundsVlEOYAmt
Disclosed Org Leg CtrlYes (true)DisclosedOrgLegCtrlInd
Disclosed For Charitable PrpsYes (true)DisclosedForCharitablePrpsInd
Written Policy MonitoringfalseWrittenPolicyMonitoringInd
Section170h Rqr StsfdfalseSection170hRqrStsfdInd
Solicited Assets SalefalseSolicitedAssetsSaleInd
Agent Trustee EtcfalseAgentTrusteeEtcInd
Incl Escrow Custodial Acct LiabfalseInclEscrowCustodialAcctLiabInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$200,825InvestmentCostOrOtherBasisAmt
Depreciation$200,825DepreciationAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$154,020InvestmentCostOrOtherBasisAmt
Depreciation$134,063DepreciationAmt
Book Value$19,957BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$60,059InvestmentCostOrOtherBasisAmt
Depreciation$58,267DepreciationAmt
Book Value$1,792BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$21,749TotalBookValueLandBuildingsAmt

Invst Program Related Org InvstProgramRelatedOrgGrp

FieldValueIRS element (for citing)
DescThe Alpha1 ProjectDesc
Book Value$136,115BookValueAmt
Method ValuationCMethodValuationCd
FieldValueIRS element (for citing)
Total Book Value Program Rltd$136,115TotalBookValueProgramRltdAmt

Other Assets Org OtherAssetsOrgGrp

FieldValueIRS element (for citing)
DescDepositsDesc
Book Value$25,134BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Other Assets$25,134TotalBookValueOtherAssetsAmt
Federal Income Tax Liability$13,815FederalIncomeTaxLiabilityAmt
Total Liability$13,815TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$13,481,045TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$2,538,609NetUnrealizedGainsInvstAmt
Revenue Not Reported$2,538,609RevenueNotReportedAmt
Revenue Subtotal$10,942,436RevenueSubtotalAmt
Other Revenues Not Included$3OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$3RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$10,942,439TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$6,120,229TotExpnsEtcAuditedFinclStmtAmt
Expenses Subtotal$6,120,229ExpensesSubtotalAmt
Investment Expenses Not Incld2$135,874InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$135,874ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$6,256,103TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (8 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
P10, Ln 2The Foundation has adopted the provisions of ASC No.740 "Income Taxes."
P10, Ln 2Under ASC 740, the Foundation must recognize the tax liability (or benefit)
P10, Ln 2associated with tax positions taken for tax return purposes when it is
P10, Ln 2more-likely-than-not that the position will be sustained. The adoption of
P10, Ln 2ASC 740 had no impact on the Foundation's consolidated financial
P10, Ln 2statements. Management of the Foundation does not believe there are any
P10, Ln 2material uncertain tax positions and accordingly has not recorded any
P10, Ln 2liability for unrecognized tax benefits.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Grants To Org Outside US GrantsToOrgOutsideUSGrp (10 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EuropeResearch$99,000Wire
East Asia and the PacificResearch$99,000Wire
EuropeResearch$71,700Wire
EuropeResearch$181,537Wire
EuropeResearch$157,750Wire
EuropeResearch$99,000Wire
Middle East and North AfricaResearch$100,000Wire
EuropeResearch$100,000Wire
EuropeResearch$75,167Wire
EuropeResearch$100,000Wire
FieldValueIRS element (for citing)
Total501c3 Org10Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
P1, Ln 2Please see Schedule I, Part IV. The grant-making processes are the same as
P1, Ln 2those for organizations in the United States.
P2, Ln 1The organization utilizes accrual accounting for its grants made.

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1COLVirtualEvent1Nm
Gross Receipts Event1$52,684GrossReceiptsEvent1Amt
Gross Revenue Event1$52,684GrossRevenueEvent1Amt
Gross Receipts Total$52,684GrossReceiptsTotalAmt
Gross Revenue Total Events$52,684GrossRevenueTotalEventsAmt
Net Income Summary$52,684NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (16 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
University of Florida
PO Box 113001GainesvilleFL32611596002052501c3$495,192$0Research
American Thoracic Society
25 Broadway 18th FloorNew YorkNY10004202138855501c3$40,000$0Research
Boston University
One Silber WayBostonMA02215042103547501c3$80,000$0Research
The CHEST Foundation
2595 Patriot BoulevardGlenviewIL60026363286520501c3$12,500$0Research
Univ of Colorado at Denver
1600 BroadwayDenverCO80202846000555501c3$46,167$0Research
Columbia University
630 West 168th St Ste 39New YorkNY10027135598093501c3$256,333$0Research
Brigham & Women's Hospital
75 Francis StreetBostonMA02115042312909501c3$199,000$0Research
Mayo Clinic
200 First St SWRochesterMN55902416011702501c3$99,000$0Research
Baylor College of Medicine
1 Baylor PlazaHoustonTX77030741613878501c3$99,000$0Research
Saint Louis University
1100 South Grand BoulevardSaint LouisMO63103430654872501c3$189,618$0Research
University of N Carolina
104 Airport DrChapel HillNC27599566001393501c3$15,897$0Research
Clemson University
105 Sikes HallClemsonSC29634576000254501c3$56,495$0Research
SUNY Research Foundation
PO Box 9AlbanyNY12201141368361501c3$200,000$0Research
Boston Medical Center
One Boston Medical Center PlBostonMA02118043314093501c3$100,000$0Research
University of North Texas
1155 Union CircleDentonTX76203756002149501c3$23,035$0Research
Nat Org Rare Disorders
55 Kenosia AvenueDanburyCT06810133223946501c3$25,000$0Research
FieldValueIRS element (for citing)
Total501c3 Org16Total501c3OrgCnt
Total Other Org16TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeEducational scholarshipsGrantTypeTxt
Recipient6RecipientCnt
Cash Grant$15,000CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part I Line 2The Foundation has a Grants Advisory Committee consisting of 21 members and
Part I Line 2a staff member assigned to the committee The membership of the committee
Part I Line 2consists primarily of medical doctors who are Alpha1 experts and
Part I Line 2researchers The committee reviews grant applications for quality and
Part I Line 2applicability of research funds Prior to acceptance the prospective
Part I Line 2grantee is checked against the US Treasurys OFAC list On a quarterly
Part I Line 2basis all grants are peerreviewed for progress before subsequent payments
Part I Line 2are made Final research reports are submitted and peerreviewed before
Part I Line 2final grant payments are made

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (17 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
MIRIAM A O'DAY
President and CEO$276,735$6,968$283,703
RANDEL H PLANT
Sen Dir Research Progs$121,544$13,213$134,757
ANGELA T MCBRIDE
Sen Dir Corp Relations$108,866$16,573$125,439
SCOTT SANTARELLA
President and CEO
MARK B DELVAUX
Vice President and CFO
JEANINE M D'ARMIENTO
Chair
ELIZABETH JOHNSON
Vice Chair
FRED C WALSH
Vice Chair
JENNIFER JOPP
Secretary
JON HAGSTROM
Treasurer
MARTIN R ZAMORA
Director
KENNETH IRVINE
Director
PEGGY IVERSON
Director
ANN KNEBEL
Director
NOEL G MCELVANEY
Director
FARON SCHONFELD
Director
JAMES K STOLLER
Director

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part IIAlphaNet, Inc., another Section 501(c)(3) organization, provided the fiscal
Part II2021 services of the Vice President/CFO under an administrative services
Part IIagreement in the amount of $100,000. The amount is based on the
Part IIreasonable estimate of the services provided to the Alpha-1 Foundation.

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution1ContributionCnt
Noncash Contributions Rpt F990$10,230NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescOffice rentDesc
Contribution1ContributionCnt
Noncash Contributions Rpt F990$200,000NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (35 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part VI Line 11bThe Form 990 is provided to members of management and the Board of
Part VI Line 11bDirectors for review prior to filing.
Part VI Line 12cWritten conflict of interest statements are obtained from all officers,
Part VI Line 12cboard members and committee members annually.
Part VI Line 15a or bCompensation levels are developed using salary surveys and a review of 990s
Part VI Line 15a or bfor comparable not-for-profit organizations.
Part VI Line 18Form 990 is available on www.alpha1.org, and also upon request.
Part VI Line 19The audited financial statements are available on www.alpha1.org. Governing
Part VI Line 19documents and the conflict of interest policy are available upon request.
Part XI Line 9This amount refers to an audit adjustment made to reflect the value of
Part XI Line 9Alpha-1 Foundation's wholly owned subsidiary, The Alpha-1 Project.
Part III Line 4dExpenses: $167712.00 including grants of: $4000.00 Revenue: $210000.00
Part III Line 4dIncludes foreign grants
Part III Line 4dThe mission of Alpha-1 Global is to develop a collaborative global network
Part IIIof Alpha-1 patient leaders, physicians, and researchers.
Part III Line 4dExpenses: $121164.00 including grants of: $0.00 Revenue: $230000.00
Part III Line 4dThe Foundation's Public Policy program monitors relevant legislation and
Part III Line 4dregulatory issues and publicizes the Foundation's positions on such issues.
Part III Line 4dExpenses: $174212.00 including grants of: $0.00 Revenue: $240000.00
Part III Line 4dThe Alpha-1-To-One Magazine is designed to inform the community of research
Part III Line 4ddevelopments, education, advocacy and fund raising opportunities.
Part III Line 4dExpenses: $203844.00 including grants of: $0.00 Revenue: $295000.00
Part III Line 4dAlpha-1 Education Days provide access to current medical information and
Part III Line 4dresources to hundreds of Alphas, their families, and caregivers.
Part III Line 4dExpenses: $507308.00 including grants of: $40000.00 Revenue: $366000.00
Part III Line 4dOther Alpha-1 services include patient education (materials, website, etc),
Part III Line 4da Patient Support Network, and a targeted detection program.
Part VII, Line 1aThe Vice President and Chief Financial Officer is an employee of AlphaNet,
Part VII, Line 1aInc., an unrelated not-for-profit organization which provides its services
Part VII, Line 1athrough an administrative services agreement.
Part VII, Line 5AlphaNet Inc., another 501(c)(3) organization, provides the services of the
Part VII, Line 5Vice President and Chief Financial Officer under an administrative services
Part VII, Line 5agreement in the amount of $100,000. The amount is based on the reasonable
Part VII, Line 5estimate of the value of the services provided to the Alpha-1 Foundation.
Part VI, Line 17MD, MA, MI, MN, MS, NH, NJ, NM, NY, ND, OR, PA, RI, SC, TN, UT, WV, WI

Schedule R IRS990ScheduleR

Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp

Related Organization Name RelatedOrganizationName

FieldValueIRS element (for citing)
Business Name Line1The Alpha-1 Project IncBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BoulevardAddressLine1Txt
CityCoral GablesCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd
FieldValueIRS element (for citing)
EIN272040293EIN
Primary ActivitiesDrug TherapiesPrimaryActivitiesTxt
Direct Controlling NAN/ADirectControllingNACd
Entity TypeC corpEntityTypeTxt
Share Of Total Income$1,427ShareOfTotalIncomeAmt
Share Of EOY Assets$180,065ShareOfEOYAssetsAmt
Controlled OrganizationYes (true)ControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts RyltsfalseReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth OrgYes (true)GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgfalseGiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other OrgfalseLoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth OrgfalseLoansOrGuaranteesFromOthOrgInd
Div Related OrganizationfalseDivRelatedOrganizationInd
Asset Sale To Other OrgfalseAssetSaleToOtherOrgInd
Asset Purchase From Other OrgfalseAssetPurchaseFromOtherOrgInd
Asset ExchangefalseAssetExchangeInd
Rental Of Facilities To Oth OrgfalseRentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth OrgfalseRentalOfFcltsFromOthOrgInd
Perform Of Services For Oth OrgfalsePerformOfServicesForOthOrgInd
Perform Of Services By Other OrgfalsePerformOfServicesByOtherOrgInd
Sharing Of FacilitiesfalseSharingOfFacilitiesInd
Paid Employees SharingfalsePaidEmployeesSharingInd
Reimbursement Paid To Other OrgfalseReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other OrgYes (true)ReimbursementPaidByOtherOrgInd
Transfer To Other OrgfalseTransferToOtherOrgInd
Transfer From Other OrgfalseTransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (2 entries)

Transaction TypeTransactionTypeTxtInvolvedInvolvedAmtMethod Of Amount DeterminationMethodOfAmountDeterminationTxt
The Alpha-1 Project Inc
B$160,000Management approval
(no name)
Q$8,266Management approval

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