CHOROIDEREMIA RESEARCH FOUNDATION INC: Form 990, tax year 2020
View the entire original 990 at ProPublica ↗
- Organization
- CHOROIDEREMIA RESEARCH FOUNDATION INC (EIN 04-3511754)
- Tax period
- 2020-07-01 to 2021-06-30
- Filed
- 2022-01-16
- IRS object ID
- 202220179349300002
- Schema version
- 2020v4.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2022-01-16T11:35:28-00:00 | ReturnTs |
| Tax Period End | 2021-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Nicholas LaPier CPA PC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 71 Park Ave | AddressLine1Txt |
| City | W Springfield | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01089 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2020-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 043511754 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CHOROIDEREMIA RESEARCH FOUNDATION INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CHOR | BusinessNameControlTxt |
| Phone | 8002100233 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 23 E BRUNDRETH STREET | AddressLine1Txt |
| City | SPRINGFIELD | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 011092110 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KATHI WAGNER | PersonNm |
| Person Title | EXECUTIVE DIRECTOR | PersonTitleTxt |
| Signature | 2022-01-16 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | KATHI | PersonFirstNm |
| Person Last | WAGNER | PersonLastNm |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Nicholas LaPier | PreparerPersonNm |
| PTIN | P01227383 | PTIN |
| Phone | 4137320200 | PhoneNum |
| Preparation | 2022-01-16 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 2 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2020 | TaxYr |
| Build TS | 2022-09-23 18:48:47Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | KATHI WAGNER | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1901 MAGDALENE MANOR DRIVE | AddressLine1Txt |
| City | TAMPA | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 33613 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $672,399 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.curechm.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2000 | FormationYr |
| Legal Domicile State | MA | LegalDomicileStateCd |
| Activity Or Mission | To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public. | ActivityOrMissionDesc |
| Voting Members Governing Body | 18 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 18 | VotingMembersIndependentCnt |
| Total Employee | 8 | TotalEmployeeCnt |
| Total Volunteers | 300 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $538,010 | PYContributionsGrantsAmt |
| CY Contributions Grants | $671,033 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $1,011 | CYProgramServiceRevenueAmt |
| PY Investment Income | $59,054 | PYInvestmentIncomeAmt |
| CY Investment Income | $355 | CYInvestmentIncomeAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $597,064 | PYTotalRevenueAmt |
| CY Total Revenue | $672,399 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $363,991 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $322,259 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $177,717 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $184,504 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $67,303 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $99,221 | PYOtherExpensesAmt |
| CY Other Expenses | $67,286 | CYOtherExpensesAmt |
| PY Total Expenses | $640,929 | PYTotalExpensesAmt |
| CY Total Expenses | $574,049 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | -$43,865 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $98,350 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $807,483 | TotalAssetsBOYAmt |
| Total Assets EOY | $905,807 | TotalAssetsEOYAmt |
| Total Liabilities EOY | $0 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $807,483 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $905,807 | NetAssetsOrFundBalancesEOYAmt |
| Mission | To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $455,812 | ExpenseAmt |
| Desc | TO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCH AND PATIENT AND FAMILY EDUCATION AND ADVOCACY PROGRAMS | Desc |
| Total Program Service Expenses | $455,812 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (true) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | Yes (true) | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | Yes (true) | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Invest Tax Exempt Bonds | false | InvestTaxExemptBondsInd |
| Escrow Account | false | EscrowAccountInd |
| On Behalf Of Issuer | false | OnBehalfOfIssuerInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 8 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 18 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 18 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | Yes (true) | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (true) | MembersOrStockholdersInd |
| Election Of Board Members | Yes (true) | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | Yes (true) | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Policies Reference Chapters | false | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | KATHI WAGNER | PersonNm |
| Phone | 3125508122 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1901 MAGDALENE MANOR DRIVE | AddressLine1Txt |
| City | TAMPA | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 33613 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (19 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|
| KATHI WAGNER | ||||||
| EXECUTIVE DIRECTOR | 040.00 | Yes (X) | $87,785 | $0 | $0 | |
| NEAL BENCH | ||||||
| PRESIDENT | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| JOHN TROTT | ||||||
| 1ST VICE PRESIDENT | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| MICHAEL MULLEN | ||||||
| 2ND VICE PRESIDENT | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| TARA CASSIDY-DRISCOLL | ||||||
| TREASURER | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| BRIAN MAYER | ||||||
| SECRETARY | 001.00 | Yes (X) | $0 | $0 | $0 | Yes (X) |
| MICHAEL LAENGSFELD | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| JASON MCKINNEY | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| DR CHRISTOPHER MOEN | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| JOHN OSTER | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| DAN PETERSON | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| TRACEY PRETORIUS | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| ANGELA RICKETTS | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| DR JOHN ROSS RIZZO | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| CRAIG ROWLEY | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| JON SALOIS | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| KAYLA SCHILLER | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| BOB HILLER | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| DR STEPHANIE VETERE SIMS | ||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $87,785 | TotalReportableCompFromOrgAmt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Government Grants | $35,382 | GovernmentGrantsAmt |
| All Other Contributions | $635,651 | AllOtherContributionsAmt |
| Total Contributions | $671,033 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Miscellaneous | Desc |
| Total Revenue Column | $1,011 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $1,011 | RelatedOrExemptFuncIncomeAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $1,011 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $355 | TotalRevenueColumnAmt |
| Exclusion | $355 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $672,399 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $1,011 | RelatedOrExemptFuncIncomeAmt |
| Exclusion | $355 | ExclusionAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $178,000 | TotalAmt |
| Program Services | $178,000 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $144,259 | TotalAmt |
| Program Services | $144,259 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $87,785 | TotalAmt |
| Program Services | $53,005 | ProgramServicesAmt |
| Management And General | $18,057 | ManagementAndGeneralAmt |
| Fundraising | $16,723 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $81,674 | TotalAmt |
| Program Services | $49,319 | ProgramServicesAmt |
| Management And General | $16,804 | ManagementAndGeneralAmt |
| Fundraising | $15,551 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,045 | TotalAmt |
| Program Services | $9,086 | ProgramServicesAmt |
| Management And General | $3,095 | ManagementAndGeneralAmt |
| Fundraising | $2,864 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $125 | TotalAmt |
| Management And General | $125 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $7,120 | TotalAmt |
| Management And General | $7,120 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fees For Services Prof Fundraising | FeesForServicesProfFundraising |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $100 | TotalAmt |
| Management And General | $100 | ManagementAndGeneralAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $805 | TotalAmt |
| Program Services | $699 | ProgramServicesAmt |
| Fundraising | $106 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $17,242 | TotalAmt |
| Program Services | $5,080 | ProgramServicesAmt |
| Management And General | $1,363 | ManagementAndGeneralAmt |
| Fundraising | $10,799 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $6,225 | TotalAmt |
| Program Services | $3,759 | ProgramServicesAmt |
| Management And General | $1,280 | ManagementAndGeneralAmt |
| Fundraising | $1,186 | FundraisingAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $779 | TotalAmt |
| Program Services | $779 | ProgramServicesAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,448 | TotalAmt |
| Program Services | $5,102 | ProgramServicesAmt |
| Management And General | $1,738 | ManagementAndGeneralAmt |
| Fundraising | $1,608 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,620 | TotalAmt |
| Program Services | $1,582 | ProgramServicesAmt |
| Management And General | $539 | ManagementAndGeneralAmt |
| Fundraising | $499 | FundraisingAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | FundraisingFundraisingAmt | Program ServicesProgramServicesAmt |
|---|---|---|---|
| Fundraising Expense | $11,500 | $11,500 | |
| Bank Fees | $6,348 | $5,803 | $545 |
| Memberships | $2,503 | $2,503 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,471 | TotalAmt |
| Program Services | $2,094 | ProgramServicesAmt |
| Management And General | $713 | ManagementAndGeneralAmt |
| Fundraising | $664 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $574,049 | TotalAmt |
| Program Services | $455,812 | ProgramServicesAmt |
| Management And General | $50,934 | ManagementAndGeneralAmt |
| Fundraising | $67,303 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $78,639 | BOYAmt |
| EOY | $84,482 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $2,195 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $2,194 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $29 | BOYAmt |
| EOY | $1 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $706,362 | BOYAmt |
| EOY | $807,291 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $22,453 | BOYAmt |
| EOY | $14,033 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $807,483 | BOYAmt |
| EOY | $905,807 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $807,483 | BOYAmt |
| EOY | $655,807 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $250,000 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $807,483 | BOYAmt |
| EOY | $905,807 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $807,483 | BOYAmt |
| EOY | $905,807 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $98,350 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$26 | NetUnrlzdGainsLossesInvstAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
| Public Support Total170 | $0 | PublicSupportTotal170Amt |
| Public Support CY170 | 0.00000 | PublicSupportCY170Pct |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $440,903 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $531,424 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $409,797 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $538,010 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $671,033 | CurrentTaxYearAmt |
| Total | $2,591,167 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $440,903 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $531,424 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $409,797 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $538,010 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $671,033 | CurrentTaxYearAmt |
| Total | $2,591,167 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $120,600 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $157,269 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $106,303 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $257,597 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $297,710 | CurrentTaxYearAmt |
| Total | $939,479 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $120,600 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $157,269 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $106,303 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $257,597 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $297,710 | CurrentTaxYearAmt |
| Total | $939,479 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $1,651,688 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $445 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $484 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $364 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $9,828 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $355 | CurrentTaxYearAmt |
| Total | $11,476 | TotalAmt |
Post1975 UBTI Post1975UBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $445 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $484 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $364 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $9,828 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $355 | CurrentTaxYearAmt |
| Total | $11,476 | TotalAmt |
Net Income From Other UBI NetIncomeFromOtherUBIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income509 OtherIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $441,348 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $531,908 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $410,161 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $547,838 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $671,388 | CurrentTaxYearAmt |
| Total | $2,602,643 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.63460 | PublicSupportCY509Pct |
| Public Support PY509 | 0.71050 | PublicSupportPY509Pct |
| Investment Income CY | 0.00440 | InvestmentIncomeCYPct |
| Investment Income PY | 0.00970 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Incl Escrow Custodial Acct Liab | false | InclEscrowCustodialAcctLiabInd |
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributions | $250,000 | ContributionsAmt |
| End Year Balance | $250,000 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $2,195 | OtherCostOrOtherBasisAmt |
| Depreciation | $2,194 | DepreciationAmt |
| Book Value | $1 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $1 | TotalBookValueLandBuildingsAmt |
Other Securities OtherSecuritiesGrp (2 entries)
| DescDesc |
|---|
| Financial derivatives and other financial products |
| Closely-held equity interests |
Invst Program Related Org InvstProgramRelatedOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Investments | Desc |
| Book Value | $807,291 | BookValueAmt |
| Method Valuation | F | MethodValuationCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Program Rltd | $807,291 | TotalBookValueProgramRltdAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Federal income taxes | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Rev Etc Audited Fincl Stmt | $672,373 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$26 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | -$26 | RevenueNotReportedAmt |
| Revenue Subtotal | $672,399 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $672,399 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $574,049 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $574,049 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $574,049 | TotalExpensesPerForm990Amt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt | Valuation Method UsedValuationMethodUsedDesc |
|---|---|---|---|---|
| North America | FOR CHOROIDEREMIA RESEARCH | $18,030 | WIRE TRANSFER | Book |
| North America | FOR CHOROIDEREMIA RESEARCH | $32,430 | WIRE TRANSFER | Book |
| Europe Including Iceland and Greenland | FOR CHOROIDEREMIA RESEARCH | $65,237 | WIRE TRANSFER | Book |
| Europe Including Iceland and Greenland | FOR CHOROIDEREMIA RESEARCH | $28,562 | WIRE TRANSFER | Book |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 4 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (4 entries)
| Cash GrantCashGrantAmt |
|---|
| University of Wisconsin - McPherson Eye |
| $30,000 |
| University of Michigan |
| $27,187 |
| University of Wisconsin |
| $60,813 |
| University of Pennsylvania |
| $60,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 4 | Total501c3OrgCnt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section B, Line 11 | THE BOARD MEMBERS ARE PROVIDED WITH A COPY OF THE 990 FOR REVIEW BEFORE APPROVAL |
| Form 990, Part XII, Line 2C | COORDINATION OF THE AUDIT IS BY THE DIRECTOR, EXECUTIVE DIRECTOR, AND TREASURER, THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS ARE ACTIVELY INVOLVED AS WELL |
| Form 990, Part IV, Section B, Line C | THE BOARD OF DIRECTORS REGULARLY REVIEWS THE POLICY AND ANY POSSIBLE CONFLICTS OF INTEREST. |
| Form 990, Part VI, Section B, Line 15A | THE BOARD OF DIRECTORS APPROVES COMPENSATION FOR THE EXECUTIVE DIRECTOR. |
| Form 990, Part VI, Section C, Line 19 | Governing Documents, Conflict of Interest Policies, and Financial Statements are available upon request by writing Kathi Wagner, Executive Director at kathiwagnercurechm.org or by phone at 800-210-0233. |
| Form 990, Part I, Line 5 | OF THE 8 LISTED INDIVIDUALS EMPLOYED BY THE ORGANIZATION, 7 ARE PART TIME AND 1 IS FULL TIME. |
| Form 990, Part VI, Section A, Line 4 | THE ORGANIZATION AMENDED THEIR BYLAWS |
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