MUSCULAR DYSTROPHY ASSOCIATION: Form 990, tax year 2021

View the entire original 990 at ProPublica ↗

Organization: MUSCULAR DYSTROPHY ASSOCIATION (EIN 13-1665552)
Tax period: 2021-01-01 to 2021-12-31
Filed: 2022-08-02
IRS object ID: 202202149349300110
Schema version: 2021v4.2
Source: Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header
Form 990
Schedule A
Schedule B
Schedule C
Schedule D
Schedule F
Schedule G
Schedule I
Schedule J
Schedule M
Schedule O

Return header ReturnHeader

Field	Value	IRS element (for citing)
Return	2022-08-02T11:15:50-05:00	ReturnTs
Tax Period End	2021-12-31	TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

Field	Value	IRS element (for citing)
Preparer Firm EIN	221478099	PreparerFirmEIN

Preparer Firm Name PreparerFirmName

Field	Value	IRS element (for citing)
Business Name Line1	COHNREZNICK LLP	BusinessNameLine1Txt

Preparer US Address PreparerUSAddress

Field	Value	IRS element (for citing)
Address Line1	14 SYLVAN WAY	AddressLine1Txt
City	PARSIPPANY	CityNm
State Abbreviation	NJ	StateAbbreviationCd
ZIP	070543801	ZIPCd

Field	Value	IRS element (for citing)
Return Type	990	ReturnTypeCd
Tax Period Begin	2021-01-01	TaxPeriodBeginDt

Filer Filer

Field	Value	IRS element (for citing)
EIN	131665552	EIN

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	MUSCULAR DYSTROPHY ASSOCIATION	BusinessNameLine1Txt
Business Name Line2	INC	BusinessNameLine2Txt

Field	Value	IRS element (for citing)
Business Name Control	MUSC	BusinessNameControlTxt
Phone	3122605900	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK ST 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Business Officer BusinessOfficerGrp

Field	Value	IRS element (for citing)
Person	MICHAEL J KENNEDY	PersonNm
Person Title	CFO	PersonTitleTxt
Phone	3122605900	PhoneNum
Signature	2022-07-29	SignatureDt
Discuss With Paid Preparer	Yes (1)	DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

Field	Value	IRS element (for citing)
Person First	MICHAEL	PersonFirstNm
Person Last	KENNEDY	PersonLastNm

Field	Value	IRS element (for citing)
SSN	999009999	SSN

Preparer Person PreparerPersonGrp

Field	Value	IRS element (for citing)
Preparer Person	LORI ROTHE YOKOBOSKY CPA	PreparerPersonNm
PTIN	P01273422	PTIN
Phone	9732283500	PhoneNum
Preparation	2022-07-27	PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

Field	Value	IRS element (for citing)
Trusted Customer	3	TrustedCustomerCd
Authentication Assurance Level	AAL1	AuthenticationAssuranceLevelCd
Identity Assurance Level	IAL1	IdentityAssuranceLevelCd

Field	Value	IRS element (for citing)
Tax	2021	TaxYr
Build TS	2022-09-23 18:48:47Z	BuildTS

Form 990 IRS990

Field	Value	IRS element (for citing)
Principal Officer	DR DONALD S WOOD	PrincipalOfficerNm

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK ST 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Field	Value	IRS element (for citing)
Gross Receipts	$67,354,758	GrossReceiptsAmt
Group Return For Affiliates	0	GroupReturnForAffiliatesInd
Organization501c3	Yes (X)	Organization501c3Ind
Website Address	WWW.MDA.ORG	WebsiteAddressTxt
Type Of Organization Corp	Yes (X)	TypeOfOrganizationCorpInd
Formation	1950	FormationYr
Legal Domicile State	NY	LegalDomicileStateCd
Activity Or Mission	THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.	ActivityOrMissionDesc
Voting Members Governing Body	21	VotingMembersGoverningBodyCnt
Voting Members Independent	21	VotingMembersIndependentCnt
Total Employee	248	TotalEmployeeCnt
Total Volunteers	1206	TotalVolunteersCnt
Total Gross UBI	$789,094	TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm	$124,760	NetUnrelatedBusTxblIncmAmt
PY Contributions Grants	$51,830,703	PYContributionsGrantsAmt
CY Contributions Grants	$60,181,680	CYContributionsGrantsAmt
PY Program Service Revenue	$0	PYProgramServiceRevenueAmt
CY Program Service Revenue	$0	CYProgramServiceRevenueAmt
PY Investment Income	$14,247,084	PYInvestmentIncomeAmt
CY Investment Income	$3,151,404	CYInvestmentIncomeAmt
PY Other Revenue	-$2,370,514	PYOtherRevenueAmt
CY Other Revenue	$60,906	CYOtherRevenueAmt
PY Total Revenue	$63,707,273	PYTotalRevenueAmt
CY Total Revenue	$63,393,990	CYTotalRevenueAmt
PY Grants And Similar Paid	$15,019,770	PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid	$13,666,745	CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members	$0	PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members	$0	CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid	$31,271,925	PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid	$20,116,776	CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns	$0	PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns	$0	CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense	$22,355,542	CYTotalFundraisingExpenseAmt
PY Other Expenses	$22,080,747	PYOtherExpensesAmt
CY Other Expenses	$19,636,115	CYOtherExpensesAmt
PY Total Expenses	$68,372,442	PYTotalExpensesAmt
CY Total Expenses	$53,419,636	CYTotalExpensesAmt
PY Revenues Less Expenses	-$4,665,169	PYRevenuesLessExpensesAmt
CY Revenues Less Expenses	$9,974,354	CYRevenuesLessExpensesAmt
Total Assets BOY	$71,915,435	TotalAssetsBOYAmt
Total Assets EOY	$75,564,994	TotalAssetsEOYAmt
Total Liabilities BOY	$95,625,096	TotalLiabilitiesBOYAmt
Total Liabilities EOY	$70,843,244	TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY	-$23,709,661	NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY	$4,721,750	NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part III	Yes (X)	InfoInScheduleOPartIIIInd
Mission	THE MUSCULAR DYSTROPHY ASSOCIATION (MDA) IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE WITH MUSCULAR DYSTROPHY, ALS, AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE.	MissionDesc
Significant New Program Srvc	0	SignificantNewProgramSrvcInd
Significant Change	0	SignificantChangeInd
Expense	$14,076,243	ExpenseAmt
Grant	$7,134,393	GrantAmt
Desc	HEALTH CARE AND COMMUNITY SERVICES:MDA IS COMMITTED TO TRANSFORMING THE LIVES OF PEOPLE AFFECTED BY MUSCULAR DYSTROPHY, ALS AND RELATED NEUROMUSCULAR DISEASES THROUGH INNOVATIONS IN SCIENCE AND INNOVATIONS IN CARE. AS THE LARGEST SOURCE OF FUNDING FOR NEUROMUSCULAR DISEASE RESEARCH OUTSIDE OF THE FEDERAL GOVERNMENT MDA HAS COMMITTED MORE THAN $1 BILLION TO ACCELERATE THE DISCOVERY OF THERAPIES AND CURES. WE SUPPORT THE LARGEST NETWORK OF MULTIDISCIPLINARY CLINICS AT MORE THAN 150 TOP MEDICAL INSTITUTIONS, SERVE THE COMMUNITY WITH ONE-ON-ONE SPECIALIZED SUPPORT, AND OFFER EDUCATIONAL CONFERENCES, EVENTS, AND MATERIALS FOR FAMILIES AND HEALTHCARE PROVIDERS. EACH OF OUR MDA CARE CENTERS OFFERS INDIVIDUALS AND FAMILIES BEST-IN-CLASS, COMPREHENSIVE CARE FROM AN INTEGRATED MULTIDISCIPLINARY TEAM OF HEALTHCARE SPECIALISTS CONVENIENTLY SITED AT ONE LOCATION. IN A SINGLE DAY, PATIENTS CAN SEE MULTIPLE HEALTHCARE PROVIDERS WHO WORK TOGETHER TO ENSURE COORDINATED INDIVIDUAL CARE FOR EVERY PATIENT TO BEST FIT THEIR SPECIFIC NEEDS. HIGHLY TRAINED MDA CARE SPECIALISTS SERVE AS AN IMPORTANT PART OF THE CARE TEAM, HELPING FAMILIES NAVIGATE THE HEALTH SYSTEM, ANSWERING QUESTIONS, DISTRIBUTING MDA EDUCATIONAL MATERIALS, COORDINATING MDA SERVICES, AND ASSISTING WITH COMMUNITY RESOURCE REFERRALS. EACH YEAR THOUSANDS OF CHILDREN/YOUNG ADULTS LEARN VITAL LIFE SKILLS AND GAIN INDEPENDENCE AT SUMMER CAMP AND THROUGH RECREATIONAL PROGRAMS, AT NO COST TO FAMILIES. EACH CAMP IS STAFFED WITH DEDICATED HEALTH PROFESSIONALS AND TRAINED CAMP VOLUNTEERS WHO MEET THE MEDICAL AND PHYSICAL NEEDS OF EACH CAMPER ALL AT NO COST TO FAMILIES.	Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

Field	Value	IRS element (for citing)
Expense	$7,730,993	ExpenseAmt
Grant	$6,499,657	GrantAmt
Desc	RESEARCH: MDA IS THE LARGEST NON-GOVERNMENTAL FUNDER OF NEUROMUSCULAR DISEASE RESEARCH IN THE COUNTRY, SUPPORTING MORE THAN 40 NEUROMUSCULAR DISEASES INCLUDING MUSCULAR DYSTROPHY, ALS, AND MANY OTHERS. SINCE ITS INCEPTION IN 1950, MDA HAS INVESTED MORE THAN $1 BILLION IN NEUROMUSCULAR DISEASE RESEARCH TO UNCOVER NEW TREATMENTS AND CURE. A SINGLE BREAKTHROUGH CAN LEAD TO A CURE. OUR UMBRELLA MODEL OF FUNDING RESEARCH ACROSS MANY NEUROMUSCULAR DISEASES MEANS FINDINGS FROM ONE DISEASE OFTEN ENABLE PROGRESS IN OTHERS, MAXIMIZING THE SPEED AT WHICH WE CAN MAKE PROGRESS. SUPPORT FOR MDA'S RESEARCH ENABLES MDA TO FUND LEADING RESEARCH TEAMS WORKING TOWARD BREAKTHROUGH THERAPIES, WHICH CAN HAVE A LIFE-CHANGING IMPACT ON PATIENTS. MDA-FUNDED BREAKTHROUGHS INCLUDE DRUGS FOR AMYOTROPHIC LATERAL SCLEROSIS (ALS), DUCHENNE MUSCULAR DYSTROPHY (DMD), PERIODIC PARALYSIS, POMPE DISEASE, AND SPINAL MUSCULAR ATROPHY (SMA). MDA LAUNCHED THE MOVR (NEUROMUSCULAR OBSERVATIONAL RESEARCH) DATA HUB AS A TRANSFORMATIVE PLATFORM, COMBINING MDA'S CARE CENTER NETWORK WITH A STATE-OF-THE-ART INFORMATION-MANAGEMENT SYSTEM. AS THE LARGEST CENTRALIZED DATA HUB FOR MULTIPLE NEUROMUSCULAR DISEASES, MOVR AGGREGATES CLINICAL, GENETIC, AND PATIENT-REPORTED DATA ACROSS BROAD COMMUNITIES OF HEALTHCARE PROVIDERS, RESEARCHERS, AND INDUSTRY PARTNERS THAT WILL LEAD TO RAPID DEVELOPMENTS IN PATIENT CARE, TREATMENTS, AND CURES.	Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

Field	Value	IRS element (for citing)
Expense	$5,772,023	ExpenseAmt
Grant	$32,695	GrantAmt
Desc	PROFESSIONAL AND PUBLIC HEALTH EDUCATION:MDA OFFERS A BROAD AND EXPANDING ARRAY OF RESOURCES AND EVENTS EXPERTLY DEVELOPED TO RESPOND TO THE RAPIDLY CHANGING TREATMENT LANDSCAPE. OUR RESOURCES FOR PROVIDING RELEVANT MEDICAL EDUCATION TO PROFESSIONALS ARE UNPARALLELED AND OUR SERVICES AND INITIATIVES REFLECT OUR LEADERSHIP IN THIS AREA. WE PROVIDE BOTH ACCREDITED CONTINUING MEDICAL EDUCATION (CME) AND NON-CME PROGRAMS. AS THE MOST COMPREHENSIVE NEUROMUSCULAR DISEASE MEETING IN THE U.S., OUR ANNUAL MDA CLINICAL & SCIENTIFIC CONFERENCE PROVIDES A UNIQUE OPPORTUNITY TO LEARN FROM, BE INSPIRED BY, AND SHARE IDEAS WITH EXPERTS FROM ACADEMIA, GOVERNMENT, AND INDUSTRY. AT THE COMMUNITY LEVEL, WE ESTABLISHED MDA ENGAGE, A FLAGSHIP EDUCATIONAL EVENT SERIES THAT BRINGS LOCAL HIGH-IMPACT EDUCATIONAL PROGRAMS TO THE NMD COMMUNITY. EACH OF THE ENGAGE PROGRAMS INCORPORATES MULTIPLE MODULES OF INTEREST, FROM THERAPY DEVELOPMENT ROUNDTABLES TO DISEASE MANAGEMENT TO GENETIC TESTING, DESIGNED SPECIFICALLY FOR COMMUNITY AUDIENCES. EACH EVENT ALSO INCLUDES A SOCIAL ELEMENT FOR FAMILIES AND PARTICIPANTS WITH THE AIM OF STRENGTHENING THE COMMUNITY AND HELPING ATTENDEES MAKE PERSONAL.	Desc

Field	Value	IRS element (for citing)
Total Program Service Expenses	$27,579,259	TotalProgramServiceExpensesAmt
Described In Section501c3	Yes (1)	DescribedInSection501c3Ind
Schedule B Required	Yes (1)	ScheduleBRequiredInd
Political Campaign Acty	0	PoliticalCampaignActyInd
Lobbying Activities	Yes (1)	LobbyingActivitiesInd
Subject To Proxy Tax	0	SubjectToProxyTaxInd
Donor Advised Fund	0	DonorAdvisedFundInd
Conservation Easements	0	ConservationEasementsInd
Collections Of Art	Yes (1)	CollectionsOfArtInd
Credit Counseling	0	CreditCounselingInd
Donor Rstr Or Quasi Endowments	Yes (1)	DonorRstrOrQuasiEndowmentsInd
Report Land Building Equipment	Yes (1)	ReportLandBuildingEquipmentInd
Report Investments Other Sec	0	ReportInvestmentsOtherSecInd
Report Program Related Invst	0	ReportProgramRelatedInvstInd
Report Other Assets	0	ReportOtherAssetsInd
Report Other Liabilities	Yes (1)	ReportOtherLiabilitiesInd
Include FIN48 Footnote	Yes (1)	IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt	Yes (1)	IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt	0	ConsolidatedAuditFinclStmtInd
School Operating	0	SchoolOperatingInd
Foreign Office	0	ForeignOfficeInd
Foreign Activities	Yes (1)	ForeignActivitiesInd
More Than5000 K To Org	Yes (1)	MoreThan5000KToOrgInd
More Than5000 K To Individuals	0	MoreThan5000KToIndividualsInd
Professional Fundraising	0	ProfessionalFundraisingInd
Fundraising Activities	Yes (1)	FundraisingActivitiesInd
Gaming Activities	0	GamingActivitiesInd
Operate Hospital	0	OperateHospitalInd
Grants To Organizations	Yes (1)	GrantsToOrganizationsInd
Grants To Individuals	0	GrantsToIndividualsInd
Schedule J Required	Yes (1)	ScheduleJRequiredInd
Tax Exempt Bonds	0	TaxExemptBondsInd
Engaged In Excess Benefit Trans	0	EngagedInExcessBenefitTransInd
PY Excess Benefit Trans	0	PYExcessBenefitTransInd
Loan Outstanding	0	LoanOutstandingInd
Grant To Related Person	0	GrantToRelatedPersonInd
Business Rln With Org Mem	0	BusinessRlnWithOrgMemInd
Business Rln With Fam Mem	0	BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent	0	BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri	Yes (1)	DeductibleNonCashContriInd
Deductible Art Contribution	0	DeductibleArtContributionInd
Terminate Operations	0	TerminateOperationsInd
Partial Liquidation	0	PartialLiquidationInd
Disregarded Entity	0	DisregardedEntityInd
Related Entity	0	RelatedEntityInd
Related Organization Ctrl Ent	0	RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org	0	TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp	0	ActivitiesConductedPrtshpInd
Schedule O Required	Yes (1)	ScheduleORequiredInd
IRP Document	73	IRPDocumentCnt
IRP Document W2 G	0	IRPDocumentW2GCnt
Backup Wthld Compliance	Yes (1)	BackupWthldComplianceInd
Employee	248	EmployeeCnt
Employment Tax Returns Filed	Yes (1)	EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit	Yes (1)	UnrelatedBusIncmOverLimitInd
Form990 T Filed	Yes (1)	Form990TFiledInd
Foreign Financial Account	0	ForeignFinancialAccountInd
Prohibited Tax Shelter Trans	0	ProhibitedTaxShelterTransInd
Taxable Party Notification	0	TaxablePartyNotificationInd
Nondeductible Contributions	0	NondeductibleContributionsInd
Quid Pro Quo Contributions	Yes (1)	QuidProQuoContributionsInd
Quid Pro Quo Contri Discl	Yes (1)	QuidProQuoContriDisclInd
Form8282 Property Disposed Of	0	Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct	0	RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct	0	PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services	0	IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt	0	SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc	0	SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VI	Yes (X)	InfoInScheduleOPartVIInd
Governing Body Voting Members	21	GoverningBodyVotingMembersCnt
Independent Voting Member	21	IndependentVotingMemberCnt
Family Or Business Rln	0	FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties	0	DelegationOfMgmtDutiesInd
Change To Org Documents	0	ChangeToOrgDocumentsInd
Material Diversion Or Misuse	0	MaterialDiversionOrMisuseInd
Members Or Stockholders	0	MembersOrStockholdersInd
Election Of Board Members	0	ElectionOfBoardMembersInd
Decisions Subject To Approva	0	DecisionsSubjectToApprovaInd
Minutes Of Governing Body	Yes (1)	MinutesOfGoverningBodyInd
Minutes Of Committees	Yes (1)	MinutesOfCommitteesInd
Officer Mailing Address	0	OfficerMailingAddressInd
Local Chapters	0	LocalChaptersInd
Form990 Provided To Gvrn Body	Yes (1)	Form990ProvidedToGvrnBodyInd
Conflict Of Interest Policy	Yes (1)	ConflictOfInterestPolicyInd
Annual Disclosure Covered Prsn	Yes (1)	AnnualDisclosureCoveredPrsnInd
Regular Monitoring Enfrc	Yes (1)	RegularMonitoringEnfrcInd
Whistleblower Policy	Yes (1)	WhistleblowerPolicyInd
Document Retention Policy	Yes (1)	DocumentRetentionPolicyInd
Compensation Process CEO	Yes (1)	CompensationProcessCEOInd
Compensation Process Other	Yes (1)	CompensationProcessOtherInd
Investment In Joint Venture	0	InvestmentInJointVentureInd
States Where Copy Of Return Is Fld	AL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	AZ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	CT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	DE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	FL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	GA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	HI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ID	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IL	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	IA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KS	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	KY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	LA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ME	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MO	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	MT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NE	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NJ	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NM	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NY	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	NC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	ND	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OH	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OK	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	OR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	PR	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	RI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SC	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	SD	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	TN	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	UT	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	VA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WA	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WV	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WI	StatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is Fld	WY	StatesWhereCopyOfReturnIsFldCd
Own Website	Yes (X)	OwnWebsiteInd
Upon Request	Yes (X)	UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	JON VAN COTT VP OF FINANCE CONTROLLER	BusinessNameLine1Txt

Field	Value	IRS element (for citing)
Phone	6467132020	PhoneNum

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	161 N CLARK STREET STE 3550	AddressLine1Txt
City	CHICAGO	CityNm
State Abbreviation	IL	StateAbbreviationCd
ZIP	60601	ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (29 entries)

TitleTitleTxt	Average Hours Per WeekAverageHoursPerWeekRt	Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd	Reportable Comp From OrgReportableCompFromOrgAmt	Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt	Other CompensationOtherCompensationAmt	OfficerOfficerInd	Highest Compensated EmployeeHighestCompensatedEmployeeInd
ANJAN ARALIHALLI
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ANKUR GHIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
BENJAMIN CUMBO III
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHARLES D SCHOOR ESQ
DIRECTOR	1.00	Yes (X)	$0	$0	$0
CHRIS ROSA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
DAN FRIES
DIRECTOR	1.00	Yes (X)	$0	$0	$0
ELIZABETH MCNALLY MD PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
EUGENE WILLIAMS
DIRECTOR	1.00	Yes (X)	$0	$0	$0
GOVERNOR BRAD HENRY
VICE CHAIR	1.00	Yes (X)	$0	$0	$0	Yes (X)
HON ROBERT E PIPIA
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JENNIFER GOTTLIEB
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN COSTANTINO
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN E HOWELL
DIRECTOR	1.00	Yes (X)	$0	$0	$0
JOHN TOGNINO
DIRECTOR (DECD NOV. 2021)	1.00	Yes (X)	$0	$0	$0
LILIAN WU PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
LOUIS KUNKEL PHD
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MARK SMITH
DIRECTOR	1.00	Yes (X)	$0	$0	$0
MATT PLUMMER
DIRECTOR	1.00	Yes (X)	$0	$0	$0
NANCY KINDELAN
DIRECTOR	1.00	Yes (X)	$0	$0	$0
STEVE FARELLA
CHAIRMAN	5.00	Yes (X)	$0	$0	$0
VICTOR WRIGHT
DIRECTOR	1.00	Yes (X)	$0	$0	$0
DONALD WOOD
PRESIDENT & CEO	50.00		$434,363	$0	$23,165	Yes (X)
LINDSAY KASSOF
SEC. & ASSOC LEGAL COUNSEL	50.00		$175,868	$0	$15,775	Yes (X)
MICHAEL KENNEDY
TREASURER & CFO	50.00		$290,169	$0	$30,739	Yes (X)
BRIAN BEIRNE
VP OF MULTI-CHANNEL MARKETING	50.00		$187,737	$0	$37,966		Yes (X)
JOSHUA ACKLEY
VP OF PR & COMMUNICATIONS	50.00		$219,790	$0	$4,064		Yes (X)
KATHY KAUFFMANN JAN-AUG
CHIEF STRATEGY DEVELOPMENT	50.00		$216,777	$0	$24,038		Yes (X)
KRISTINE WELKER
CHIEF OF STAFF	50.00		$263,684	$0	$4,873		Yes (X)
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	50.00		$216,489	$0	$25,465		Yes (X)

Field	Value	IRS element (for citing)
Total Reportable Comp From Org	$2,004,877	TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org	$0	TotReportableCompRltdOrgAmt
Total Other Compensation	$166,085	TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K	38	IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed	0	FormerOfcrEmployeesListedInd
Total Comp Greater Than150 K	Yes (1)	TotalCompGreaterThan150KInd
Compensation From Other Srcs	0	CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp

Contractor Name ContractorName

Business Name BusinessName

Field	Value	IRS element (for citing)
Business Name Line1	KEITH GORDON	BusinessNameLine1Txt

Contractor Address ContractorAddress

US Address USAddress

Field	Value	IRS element (for citing)
Address Line1	30 WEST 15TH STREET SUITE 4N	AddressLine1Txt
City	NEW YORK	CityNm
State Abbreviation	NY	StateAbbreviationCd
ZIP	10011	ZIPCd

Field	Value	IRS element (for citing)
Services	MARKETING COST	ServicesDesc
Compensation	$218,305	CompensationAmt

Field	Value	IRS element (for citing)
Cntrct Rcvd Greater Than100 K	1	CntrctRcvdGreaterThan100KCnt
Federated Campaigns	$248,583	FederatedCampaignsAmt
Fundraising	$17,209,241	FundraisingAmt
Government Grants	$8,989,377	GovernmentGrantsAmt
All Other Contributions	$33,734,479	AllOtherContributionsAmt
Noncash Contributions	$63,421	NoncashContributionsAmt
Total Contributions	$60,181,680	TotalContributionsAmt

Investment Income InvestmentIncomeGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$864,066	TotalRevenueColumnAmt
Exclusion	$864,066	ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$104,363	TotalRevenueColumnAmt
Exclusion	$104,363	ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

Field	Value	IRS element (for citing)
Securities	$5,054,391	SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

Field	Value	IRS element (for citing)
Securities	$2,650,029	SecuritiesAmt
Other	$117,024	OtherAmt

Gain Or Loss GainOrLossGrp

Field	Value	IRS element (for citing)
Securities	$2,404,362	SecuritiesAmt
Other	-$117,024	OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$2,287,338	TotalRevenueColumnAmt
Exclusion	$2,287,338	ExclusionAmt

Field	Value	IRS element (for citing)
Fundraising Gross Income	$361,164	FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event	$17,209,241	ContriRptFundraisingEventAmt
Fundraising Direct Expenses	$1,193,715	FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

Field	Value	IRS element (for citing)
Total Revenue Column	-$832,551	TotalRevenueColumnAmt
Exclusion	-$832,551	ExclusionAmt

Other Revenue Misc OtherRevenueMiscGrp

Field	Value	IRS element (for citing)
Desc	QUEST ADVERTISING	Desc
Business	541800	BusinessCd
Total Revenue Column	$789,094	TotalRevenueColumnAmt
Unrelated Business Revenue	$789,094	UnrelatedBusinessRevenueAmt

Field	Value	IRS element (for citing)
Other Revenue Total	$789,094	OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

Field	Value	IRS element (for citing)
Total Revenue Column	$63,393,990	TotalRevenueColumnAmt
Related Or Exempt Func Income	$0	RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue	$789,094	UnrelatedBusinessRevenueAmt
Exclusion	$2,423,216	ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

Field	Value	IRS element (for citing)
Total	$12,261,585	TotalAmt
Program Services	$12,261,585	ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

Field	Value	IRS element (for citing)
Total	$1,405,160	TotalAmt
Program Services	$1,405,160	ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

Field	Value	IRS element (for citing)
Total	$958,540	TotalAmt
Program Services	$414,413	ProgramServicesAmt
Management And General	$34,071	ManagementAndGeneralAmt
Fundraising	$510,056	FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

Field	Value	IRS element (for citing)
Total	$14,433,024	TotalAmt
Program Services	$6,239,939	ProgramServicesAmt
Management And General	$513,010	ManagementAndGeneralAmt
Fundraising	$7,680,075	FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

Field	Value	IRS element (for citing)
Total	$228,847	TotalAmt
Program Services	$98,939	ProgramServicesAmt
Management And General	$8,134	ManagementAndGeneralAmt
Fundraising	$121,774	FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

Field	Value	IRS element (for citing)
Total	$3,355,950	TotalAmt
Program Services	$1,450,904	ProgramServicesAmt
Management And General	$119,284	ManagementAndGeneralAmt
Fundraising	$1,785,762	FundraisingAmt

Payroll Taxes PayrollTaxesGrp

Field	Value	IRS element (for citing)
Total	$1,140,415	TotalAmt
Program Services	$493,044	ProgramServicesAmt
Management And General	$40,535	ManagementAndGeneralAmt
Fundraising	$606,836	FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

Field	Value	IRS element (for citing)
Total	$268,282	TotalAmt
Program Services	$82,784	ProgramServicesAmt
Management And General	$15,895	ManagementAndGeneralAmt
Fundraising	$169,603	FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

Field	Value	IRS element (for citing)
Total	$128,666	TotalAmt
Management And General	$128,666	ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

Field	Value	IRS element (for citing)
Total	$486,336	TotalAmt
Program Services	$486,336	ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

Field	Value	IRS element (for citing)
Total	$275,911	TotalAmt
Management And General	$275,911	ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

Field	Value	IRS element (for citing)
Total	$2,234,532	TotalAmt
Program Services	$465,578	ProgramServicesAmt
Management And General	$26,254	ManagementAndGeneralAmt
Fundraising	$1,742,700	FundraisingAmt

Advertising AdvertisingGrp

Field	Value	IRS element (for citing)
Total	$2,513,406	TotalAmt
Program Services	$775,561	ProgramServicesAmt
Management And General	$148,916	ManagementAndGeneralAmt
Fundraising	$1,588,929	FundraisingAmt

Office Expenses OfficeExpensesGrp

Field	Value	IRS element (for citing)
Total	$4,248,924	TotalAmt
Program Services	$734,383	ProgramServicesAmt
Management And General	$346,946	ManagementAndGeneralAmt
Fundraising	$3,167,595	FundraisingAmt

Information Technology InformationTechnologyGrp

Field	Value	IRS element (for citing)
Total	$2,689,572	TotalAmt
Program Services	$1,454,268	ProgramServicesAmt
Management And General	$339,599	ManagementAndGeneralAmt
Fundraising	$895,705	FundraisingAmt

Occupancy OccupancyGrp

Field	Value	IRS element (for citing)
Total	$1,602,216	TotalAmt
Program Services	$4,901	ProgramServicesAmt
Management And General	$630,888	ManagementAndGeneralAmt
Fundraising	$966,427	FundraisingAmt

Travel TravelGrp

Field	Value	IRS element (for citing)
Total	$115,897	TotalAmt
Program Services	$7,908	ProgramServicesAmt
Management And General	$53,366	ManagementAndGeneralAmt
Fundraising	$54,623	FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

Field	Value	IRS element (for citing)
Total	$2,244	TotalAmt
Program Services	$153	ProgramServicesAmt
Management And General	$1,033	ManagementAndGeneralAmt
Fundraising	$1,058	FundraisingAmt

Interest InterestGrp

Field	Value	IRS element (for citing)
Total	$199,898	TotalAmt
Program Services	$29,524	ProgramServicesAmt
Management And General	$13,988	ManagementAndGeneralAmt
Fundraising	$156,386	FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

Field	Value	IRS element (for citing)
Total	$990,442	TotalAmt
Program Services	$356,735	ProgramServicesAmt
Management And General	$633,707	ManagementAndGeneralAmt

Insurance InsuranceGrp

Field	Value	IRS element (for citing)
Total	$398,818	TotalAmt
Program Services	$58,904	ProgramServicesAmt
Management And General	$27,907	ManagementAndGeneralAmt
Fundraising	$312,007	FundraisingAmt

Other Expenses OtherExpensesGrp (2 entries)

DescDesc	TotalTotalAmt	Program ServicesProgramServicesAmt	Management And GeneralManagementAndGeneralAmt	FundraisingFundraisingAmt
MISCELLANEOUS EXPENSES	$1,811,030	$267,483	$126,725	$1,416,822
EVENT EXPENSES	$1,669,941	$490,757		$1,179,184

Total Functional Expenses TotalFunctionalExpensesGrp

Field	Value	IRS element (for citing)
Total	$53,419,636	TotalAmt
Program Services	$27,579,259	ProgramServicesAmt
Management And General	$3,484,835	ManagementAndGeneralAmt
Fundraising	$22,355,542	FundraisingAmt

Field	Value	IRS element (for citing)
Joint Costs	Yes (X)	JointCostsInd

Total Joint Costs TotalJointCostsGrp

Field	Value	IRS element (for citing)
Total	$3,730,653	TotalAmt
Program Services	$537,347	ProgramServicesAmt
Management And General	$909,165	ManagementAndGeneralAmt
Fundraising	$2,284,141	FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

Field	Value	IRS element (for citing)
BOY	$4,348,343	BOYAmt
EOY	$7,912,128	EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

Field	Value	IRS element (for citing)
BOY	$3,540,042	BOYAmt
EOY	$3,720,119	EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

Field	Value	IRS element (for citing)
BOY	$4,426,491	BOYAmt
EOY	$3,621,220	EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

Field	Value	IRS element (for citing)
BOY	$4,398,695	BOYAmt
EOY	$2,183,933	EOYAmt

Field	Value	IRS element (for citing)
Land Bldg Equip Cost Or Other Bss	$6,781,878	LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec	$3,286,231	LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

Field	Value	IRS element (for citing)
BOY	$1,900,018	BOYAmt
EOY	$3,495,647	EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

Field	Value	IRS element (for citing)
BOY	$53,276,935	BOYAmt
EOY	$53,532,735	EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

Field	Value	IRS element (for citing)
EOY	$1,074,301	EOYAmt

Other Assets Total OtherAssetsTotalGrp

Field	Value	IRS element (for citing)
BOY	$24,911	BOYAmt
EOY	$24,911	EOYAmt

Total Assets TotalAssetsGrp

Field	Value	IRS element (for citing)
BOY	$71,915,435	BOYAmt
EOY	$75,564,994	EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

Field	Value	IRS element (for citing)
BOY	$4,847,691	BOYAmt
EOY	$5,293,050	EOYAmt

Grants Payable GrantsPayableGrp

Field	Value	IRS element (for citing)
BOY	$7,681,991	BOYAmt
EOY	$5,380,356	EOYAmt

Deferred Revenue DeferredRevenueGrp

Field	Value	IRS element (for citing)
BOY	$555,933	BOYAmt
EOY	$2,265,058	EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

Field	Value	IRS element (for citing)
BOY	$13,000,000	BOYAmt
EOY	$10,500,000	EOYAmt

Other Liabilities OtherLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$69,539,481	BOYAmt
EOY	$47,404,780	EOYAmt

Total Liabilities TotalLiabilitiesGrp

Field	Value	IRS element (for citing)
BOY	$95,625,096	BOYAmt
EOY	$70,843,244	EOYAmt

Field	Value	IRS element (for citing)
Organization Follows FASB117	Yes (X)	OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	-$27,557,359	BOYAmt
EOY	$980,444	EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

Field	Value	IRS element (for citing)
BOY	$3,847,698	BOYAmt
EOY	$3,741,306	EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	-$23,709,661	BOYAmt
EOY	$4,721,750	EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

Field	Value	IRS element (for citing)
BOY	$71,915,435	BOYAmt
EOY	$75,564,994	EOYAmt

Field	Value	IRS element (for citing)
Info In Schedule O Part XI	Yes (X)	InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss	$9,974,354	ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst	$3,478,512	NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets	$14,978,545	OtherChangesInNetAssetsAmt
Info In Schedule O Part XII	Yes (X)	InfoInScheduleOPartXIIInd
Method Of Accounting Accrual	Yes (X)	MethodOfAccountingAccrualInd
Accountant Compile Or Review	0	AccountantCompileOrReviewInd
FS Audited	Yes (1)	FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

Field	Value	IRS element (for citing)
Separate Basis Fincl Stmt	Yes (X)	SeparateBasisFinclStmtInd

Field	Value	IRS element (for citing)
Audit Committee	Yes (1)	AuditCommitteeInd
Federal Grant Audit Required	0	FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

Field	Value	IRS element (for citing)
Public Organization170	Yes (X)	PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$113,962,253	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$103,881,886	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$99,904,218	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$51,829,703	CurrentTaxYearMinus1YearAmt
Current Tax Year	$60,181,680	CurrentTaxYearAmt
Total	$429,759,740	TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$113,962,253	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$103,881,886	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$99,904,218	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$51,829,703	CurrentTaxYearMinus1YearAmt
Current Tax Year	$60,181,680	CurrentTaxYearAmt
Total	$429,759,740	TotalAmt

Field	Value	IRS element (for citing)
Public Support Total170	$429,759,740	PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$1,920,477	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$1,548,677	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$1,552,285	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,042,846	CurrentTaxYearMinus1YearAmt
Current Tax Year	$968,429	CurrentTaxYearAmt
Total	$7,032,714	TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$298,749	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$373,297	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$286,145	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$410,505	CurrentTaxYearMinus1YearAmt
Current Tax Year	$789,094	CurrentTaxYearAmt
Total	$2,157,790	TotalAmt

Other Income170 OtherIncome170Grp

Field	Value	IRS element (for citing)
Current Tax Year Minus4 Years	$8,664,556	CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years	$7,167,108	CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years	$2,994,445	CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year	$1,065,881	CurrentTaxYearMinus1YearAmt
Current Tax Year	$361,164	CurrentTaxYearAmt
Total	$20,253,154	TotalAmt

Field	Value	IRS element (for citing)
Total Support	$459,203,398	TotalSupportAmt
Public Support CY170	0.93590	PublicSupportCY170Pct
Public Support PY170	0.92500	PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170	Yes (X)	ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

Field	Value	IRS element (for citing)
Form And Line Reference	SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:	FormAndLineReferenceDesc
Explanation	OTHER REVENUE - 2017 AMOUNT: $ 347,946. SPECIAL EVENTS - 2017 AMOUNT: $ 7,942,063. 2018 AMOUNT: $ 6,990,769. 2019 AMOUNT: $ 2,928,946. 2020 AMOUNT: $ 1,061,931. 2021 AMOUNT: $ 361,164. GAMING EVENTS - 2017 AMOUNT: $ 374,547. 2018 AMOUNT: $ 176,339. 2019 AMOUNT: $ 65,499. 2020 AMOUNT: $ 3,950.	ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

Field	Value	IRS element (for citing)
Contributor	RESTRICTED	ContributorNum

Contributor Business Name ContributorBusinessName

Field	Value	IRS element (for citing)
Business Name Line1	RESTRICTED	BusinessNameLine1

Contributor US Address ContributorUSAddress

Field	Value	IRS element (for citing)
Address Line1	RESTRICTED	AddressLine1
Address Line2	RESTRICTED	AddressLine2
City	RESTRICTED	City
State	RESTRICTED	State
ZIP Code	RESTRICTED	ZIPCode

Field	Value	IRS element (for citing)
Total Contributions	RESTRICTED	TotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$486,336	FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$486,336	FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$26,546,519	FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$27,032,855	FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$1,000,000	FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$250,000	FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

Field	Value	IRS element (for citing)
Filing Organizations Total	$0	FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$1,000,000	CurrentYearMinus3Amt
Current Year Minus2	$1,000,000	CurrentYearMinus2Amt
Current Year Minus1	$1,000,000	CurrentYearMinus1Amt
Current Year	$1,000,000	CurrentYearAmt
Total	$4,000,000	TotalAmt

Field	Value	IRS element (for citing)
Lobbying Ceiling	$6,000,000	LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$546,855	CurrentYearMinus3Amt
Current Year Minus2	$411,778	CurrentYearMinus2Amt
Current Year Minus1	$628,981	CurrentYearMinus1Amt
Current Year	$486,336	CurrentYearAmt
Total	$2,073,950	TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

Field	Value	IRS element (for citing)
Current Year Minus3	$250,000	CurrentYearMinus3Amt
Current Year Minus2	$250,000	CurrentYearMinus2Amt
Current Year Minus1	$250,000	CurrentYearMinus1Amt
Current Year	$250,000	CurrentYearAmt
Total	$1,000,000	TotalAmt

Field	Value	IRS element (for citing)
Grassroots Ceiling	$1,500,000	GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

Field	Value	IRS element (for citing)
Collection Used Pub Exhibition	Yes (X)	CollectionUsedPubExhibitionInd
Collection Used Preservation	Yes (X)	CollectionUsedPreservationInd
Coll Used Loan Or Exch Prog	Yes (X)	CollUsedLoanOrExchProgInd
Solicited Assets Sale	0	SolicitedAssetsSaleInd

CY Endwmt Fund CYEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$684,320	BeginningYearBalanceAmt
Investment Earnings Or Losses	$113,304	InvestmentEarningsOrLossesAmt
Administrative Expenses	$96,308	AdministrativeExpensesAmt
End Year Balance	$701,316	EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$662,010	BeginningYearBalanceAmt
Investment Earnings Or Losses	$148,733	InvestmentEarningsOrLossesAmt
Administrative Expenses	$126,423	AdministrativeExpensesAmt
End Year Balance	$684,320	EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$639,479	BeginningYearBalanceAmt
Investment Earnings Or Losses	$150,206	InvestmentEarningsOrLossesAmt
Administrative Expenses	$127,675	AdministrativeExpensesAmt
End Year Balance	$662,010	EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$790,985	BeginningYearBalanceAmt
Investment Earnings Or Losses	-$43,248	InvestmentEarningsOrLossesAmt
Administrative Expenses	$108,258	AdministrativeExpensesAmt
End Year Balance	$639,479	EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

Field	Value	IRS element (for citing)
Beginning Year Balance	$477,155	BeginningYearBalanceAmt
Contributions	$259,816	ContributionsAmt
Investment Earnings Or Losses	$54,014	InvestmentEarningsOrLossesAmt
End Year Balance	$790,985	EndYearBalanceAmt

Field	Value	IRS element (for citing)
Prmnnt Endowment Balance EOY	1.00000	PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org	0	EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org	0	EndowmentsHeldRelatedOrgInd

Leasehold Improvements LeaseholdImprovementsGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$28,283	OtherCostOrOtherBasisAmt
Depreciation	$19,328	DepreciationAmt
Book Value	$8,955	BookValueAmt

Equipment EquipmentGrp

Field	Value	IRS element (for citing)
Other Cost Or Other Basis	$6,753,595	OtherCostOrOtherBasisAmt
Depreciation	$3,266,903	DepreciationAmt
Book Value	$3,486,692	BookValueAmt

Field	Value	IRS element (for citing)
Total Book Value Land Buildings	$3,495,647	TotalBookValueLandBuildingsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDesc	AmtAmt
ACCRUED PENSION COST	$45,337,427
PAYCHECK PROTECTION PROGRAM LOAN	$2,067,353

Field	Value	IRS element (for citing)
Total Liability	$47,404,780	TotalLiabilityAmt
Footnote Text	Yes (X)	FootnoteTextInd
Total Rev Etc Audited Fincl Stmt	$80,742,972	TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst	$3,478,512	NetUnrealizedGainsInvstAmt
Other Revenue	$14,029,357	OtherRevenueAmt
Revenue Not Reported	$17,507,869	RevenueNotReportedAmt
Revenue Subtotal	$63,235,103	RevenueSubtotalAmt
Investment Expenses Not Incld	$275,911	InvestmentExpensesNotIncldAmt
Other Revenues Not Included	-$117,024	OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt	$158,887	RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990	$63,393,990	TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt	$52,311,561	TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included	$117,024	OtherExpensesIncludedAmt
Expenses Not Reported	$117,024	ExpensesNotReportedAmt
Expenses Subtotal	$52,194,537	ExpensesSubtotalAmt
Investment Expenses Not Incld2	$275,911	InvestmentExpensesNotIncld2Amt
Other Expenses Not Included	$949,188	OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt	$1,225,099	ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990	$53,419,636	TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
PART III, LINE 4:	THE MDA ART COLLECTION IS ONE OF THE MOST VARIED COLLECTIONS IN THE NATION. THE VERSATILITY ATTESTS TO THE IMAGINATION AND TALENT OF THE ARTISTS. THE COLLECTION FEATURES UNUSUAL ARTISTIC MEDIA, FROM DIGITAL DESIGNS TO COLLAGES WITH CORN, TO PAINT APPLIED WITH WHEELCHAIR WHEELS AND HUMAN FEET. THERE ARE ALSO MANY WORKS IN MORE TRADITIONAL OILS, WATERCOLORS, ACRYLICS, PEN AND INK, CRAYONS, PASTELS, BRONZE, CERAMICS AND PHOTOGRAPHY. SUBJECT MATTER RANGES FROM SELF-PORTRAITS TO LANDSCAPES AND FROM STILL LIFES TO OUTER SPACE FANTASIES. IN ADDITION TO SHOWCASING THE WORK OF TALENTED ARTISTS WHO ARE AFFECTED BY NEUROMUSCULAR DISEASES, THE COLLECTION ALLOWS THE ARTISTS TO ARTICULATE THEIR DISTINCTIVE VISION OF LIVING WITH A DISABILITY.
PART V, LINE 4:	THE ASSOCIATION'S ENDOWMENT CONSISTS OF ONE INDIVIDUAL FUND ESTABLISHED FOR THE ADVANCEMENT OF RESEARCH, PROGRAMS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY. THE GLEN E. & DAVID K. GUTTORMSEN ENDOWED FUND FOR DUCHENNE MUSCULAR DYSTROPHY RESEARCH WAS ESTABLISHED IN AN AGREEMENT, EFFECTIVE MAY 25, 2010, WHEREBY THE ASSOCIATION IS TO MAINTAIN AND ADMINISTER THE FUND IN ACCORDANCE WITH THE DONOR'S DESIRES.
PART X, LINE 2:	MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES THAT ALL OF THE POSITIONS TAKEN BY THE ASSOCIATION IN ITS FEDERAL AND STATE EXEMPT ORGANIZATION TAX RETURNS ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION. THE ASSOCIATION'S RETURNS FOR YEARS ENDED DECEMBER 31, 2021, 2020, 2019, 2018 ARE OPEN FOR EXAMINATION BY FEDERAL AND STATE TAXING AUTHORITIES, WHICH GENERALLY IS FOR THREE YEARS AFTER THEY ARE FILED. IF APPLICABLE, THE ASSOCIATION WOULD RECOGNIZE INTEREST AND PENALTIES ASSOCIATED WITH TAX MATTERS AS PART OF GENERAL AND ADMINISTRATIVE EXPENSES AND WOULD INCLUDE ACCRUED INTEREST AND PENALTIES IN ACCRUED EXPENSES.
PART XI, LINE 2D - OTHER ADJUSTMENTS:	CHANGES IN UNRECOGNIZED BENEFIT PLAN COSTS 14,432,141. FUNDRAISING EXPENSES -402,784.
PART XI, LINE 4B - OTHER ADJUSTMENTS:	LOSS ON DISPOSAL OF FIXED ASSETS -117,024.
PART XII, LINE 2D - OTHER ADJUSTMENTS:	LOSS ON DISPOSAL OF FIXED ASSETS 117,024.
PART XII, LINE 4B - OTHER ADJUSTMENTS:	REFUND OF PREVIOUSLY REPORTED GRANTS 546,404. FUNDRAISING EXPENSES 402,784.

Schedule F IRS990ScheduleF

Field	Value	IRS element (for citing)
Grant Records Maintained	0	GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (4 entries)

RegionRegionTxt	Type Of Activities ConductedTypeOfActivitiesConductedTxt	Specific Services ProvidedSpecificServicesProvidedTxt	Region Total ExpendituresRegionTotalExpendituresAmt
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	PROGRAM SERVICES	RESEARCH GRANT	$172,568
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	PROGRAM SERVICES	RESEARCH GRANT	$1,064,235
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	PROGRAM SERVICES	RESEARCH GRANT	$134,071
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,	PROGRAM SERVICES	RESEARCH GRANT	$34,286

Field	Value	IRS element (for citing)
Subtotal Offices	0	SubtotalOfficesCnt
Subtotal Employees	0	SubtotalEmployeesCnt
Continuation Total Office	0	ContinuationTotalOfficeCnt
Continuation Total Employee	0	ContinuationTotalEmployeeCnt
Total Office	0	TotalOfficeCnt
Total Employee	0	TotalEmployeeCnt
Subtotal Spent	$1,405,160	SubtotalSpentAmt
Continuation Spent	$0	ContinuationSpentAmt
Total Spent	$1,405,160	TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (4 entries)

RegionRegionTxt	Purpose Of GrantPurposeOfGrantTxt	Cash GrantCashGrantAmt	Manner Of Cash DisbursementMannerOfCashDisbursementTxt	Non Cash AssistanceNonCashAssistanceAmt
EAST ASIA AND THE PACIFIC - AUSTRALIA, BRUNEI, BURMA, CAMBODIA,	RESEARCH	$172,568	CHECK/WIRE	$0
EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM	RESEARCH	$1,064,235	CHECK/WIRE	$0
NORTH AMERICA - CANADA AND MEXICO, BUT NOT THE UNITED STATES	RESEARCH	$134,071	CHECK/WIRE	$0
SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,	RESEARCH	$34,286	CHECK/WIRE	$0

Field	Value	IRS element (for citing)
Total Other Org	26	TotalOtherOrgCnt
Transfer To Foreign Corp	0	TransferToForeignCorpInd
Interest In Foreign Trust	0	InterestInForeignTrustInd
Foreign Corp Ownership	0	ForeignCorpOwnershipInd
Passive Foreign Investmest Co	0	PassiveForeignInvestmestCoInd
Foreign Partnership	0	ForeignPartnershipInd
Boycott Countries	0	BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDesc

ExplanationExplanationTxt

PART I, LINE 2:

UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF RESEARCH GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND SUBMISSION TO MDA OF CURRENT REGULATORY DOCUMENTS NECESSARY TO CONDUCT THE RESEARCH (INSTITUTIONAL REVIEW BOARD APPROVALS, ANIMAL CARE APPROVALS, FDA OR OTHER REGULATORY AGENCY APPROVALS, AND THE LIKE). CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS REPORTS AND REPORTS OF EXPENDITURES FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT. FOR SOME MDA TRANSLATIONAL RESEARCH GRANTS, PAYMENTS TO THE GRANTEE ARE CONTINGENT UPON MEETING DEFINED MILESTONES. IN SUCH CASES, A STEERING COMMITTEE REVIEWS THE PROGRESS OF THE GRANTEE AND DETERMINES WHETHER THE MILESTONE HAS BEEN MET.

PART III ACCOUNTING METHOD:

Schedule G IRS990ScheduleG

Fundraising Event Information FundraisingEventInformationGrp

Field	Value	IRS element (for citing)
Event1	SPECIAL EVENTS	Event1Nm
Gross Receipts Event1	$12,243,927	GrossReceiptsEvent1Amt
Charitable Contri Event1	$11,928,601	CharitableContriEvent1Amt
Gross Revenue Event1	$315,326	GrossRevenueEvent1Amt
Non Cash Prizes Event1	$47,337	NonCashPrizesEvent1Amt
Rent Facility Costs Event1	$114,408	RentFacilityCostsEvent1Amt
Food And Beverage Event1	$79,165	FoodAndBeverageEvent1Amt
Entertainment Event1	$38,396	EntertainmentEvent1Amt
Other Direct Expenses Event1	$34,839	OtherDirectExpensesEvent1Amt
Event2	DISTINGUISHED EVENTS	Event2Nm
Gross Receipts Event2	$5,326,478	GrossReceiptsEvent2Amt
Charitable Contri Event2	$5,280,640	CharitableContriEvent2Amt
Gross Revenue Event2	$45,838	GrossRevenueEvent2Amt
Non Cash Prizes Event2	$197,991	NonCashPrizesEvent2Amt
Rent Facility Costs Event2	$394,234	RentFacilityCostsEvent2Amt
Food And Beverage Event2	$224,773	FoodAndBeverageEvent2Amt
Entertainment Event2	$46,310	EntertainmentEvent2Amt
Other Direct Expenses Event2	$16,262	OtherDirectExpensesEvent2Amt
Gross Receipts Total	$17,570,405	GrossReceiptsTotalAmt
Charitable Contributions Tot	$17,209,241	CharitableContributionsTotAmt
Gross Revenue Total Events	$361,164	GrossRevenueTotalEventsAmt
Non Cash Prizes Total Events	$245,328	NonCashPrizesTotalEventsAmt
Rent Fclty Costs Total Events	$508,642	RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events	$303,938	FoodAndBeverageTotalEventsAmt
Entertainment Total Events	$84,706	EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events	$51,101	OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events	$1,193,715	DirectExpenseSummaryEventsAmt
Net Income Summary	-$832,551	NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

Field	Value	IRS element (for citing)
Grant Records Maintained	Yes (1)	GrantRecordsMaintainedInd

Recipient Table RecipientTable (167 entries)

Address Line1USAddress/AddressLine1Txt	CityUSAddress/CityNm	State AbbreviationUSAddress/StateAbbreviationCd	ZIPUSAddress/ZIPCd	Recipient EINRecipientEIN	IRC SectionIRCSectionDesc	Cash GrantCashGrantAmt	Non Cash AssistanceNonCashAssistanceAmt	Purpose Of GrantPurposeOfGrantTxt	Address Line2USAddress/AddressLine2Txt
ACURASTEM INC
605 E HUNTINGTON DR SUITE 103	MONROVIA	CA	91016	811640548	C CORP	$50,000	$0	RESEARCH
ANN AN ROBERT H LURIE CHILDRENS - HOSPITAL OF CHICAGO
225 E CHICAGO BOX 4	CHICAGO	IL	60611	362170833	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
ARKANSAS CHILDREN'S HOSPITAL
1 CHILDRENS WAY SLOT 512-15	LITTLE ROCK	AR	72202	710236857	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
ARKANSAS CHILDREN'S RESEARCH INSTITUTE
13 CHILDRENS WAY	LITTLE ROCK	AR	72202	710694931	501(C)(3)	$5,550	$0	MOVR REGISTRY SUPPORT
BAYCARE MEDICAL GROUP
300 PARK PLACE BLVD SUITE 170	CLEARWATER	FL	33759	593140335	501(C)(3)	$12,500	$0	MEDICAL DIAGNOSIS
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZA MS BCM 310	HOUSTAN	TX	77030	741613878	C CORP	$121,773	$0	RESEARCH
BILLINGS CLINIC FOUNDATION
PO BOX 31031	BILLINGS	MT	59107	810407289	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BILLINGS CLINIC RESEARCH
ATTN KATHY WILKINSON 801 NORTH 29TH	BILLINGS	MT	59101	810407289	501(C)(3)	$6,400	$0	MOVR REGISTRY SUPPORT	BILLING
BOARD OF REGENTS NSHE OBO UNIVERSITY OF NEVADA RENO
CONTROLLERS OFFICE MAIL STOP 0124	RENO	NV	89557	886000024	501(C)(3)	$96,667	$0	RESEARCH
BOARD OF REGENTS OF THE UNIVERSITY OF OKLAHOMA
HEALTH SCIENCES CENTER 865 RESEARCH	OKLAHOMA	OK	73104	731563627	501(C)(3)	$142,308	$0	RESEARCH	PARKWAY URP865-450
BOARD OF TRUSTEES OF SOUTHERN ILLINOIS UNIVERSITY
PO BOX 19616	SPRINGFIELD	IL	62794	376005961	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
BRIGHAM AND WOMENS HOSPITAL RESEARCH
PO BOX 3149	BOSTON	MA	02241	042312909	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
BROWN UNIVERSITY OFFICE OF SPONSORED PROJECTS - BROWN UNIVERSITY
350 EDDY STREET BOX 1929	PROVIDENCE	RI	02912	050258809	501(C)(3)	$13,030	$0	RESEARCH
CALIFORNIA PACIFIC MED CTR FOUNDATION
2015 STEINER STREET 2ND FL	SAN FRANCISCO	CA	94115	940562680	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
CARLE FOUNDATION HOSPITAL
611 WEST PARK	URBANA	IL	61801	371119538	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CAROLINAS HEALTHCARE FOUNDATION
208 EAST BOULEVARD	CHARLOTTE	NC	28203	566060481	501(C)(3)	$319,228	$0	RESEARCH
CEDARS-SINAI MEDICAL CENTER
8700 BEVERLY BOULEVARD	LOS ANGELES	CA	90048	951644600	501(C)(3)	$45,833	$0	MEDICAL DIAGNOSIS AND RESEARCH
CENTRAL TEXAS NEUROLOGY CONSULTANTS
16040 PARK VALLEY DR B 100	ROUND ROCK	TX	78681	742710396	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDRENS CLINICS FOR REHABILITATIVE SERVICES
2600 NORTH WYATT DRIVE	TUCSON	AZ	85712	860667510	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HEALTHCARE OF ATLANTA
1577 NORTHEAST EXPRESSWAY	ATLANTA	GA	30329	580572465	501(C)(3)	$8,333	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL NEW ORLEANS
200 HENRY CLAY AVENUE	NEW ORLEANS	LA	70118	720467503	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL COLORADO
13123 E 16TH AVENUE BOX 285	AURORA	CO	80045	840166760	501(C)(3)	$45,833	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS HOSPITAL CORPORATION
PO BOX 414413	BOSTON	MA	02241	042774441	501(C)(3)	$133,974	$0	MEDICAL DIAGNOSIS AND RESEARCH
CHILDRENS HOSPITAL LOS ANGELES
4650 SUNSET BLVD	LOS ANGELES	CA	90027	951690977	501(C)(3)	$35,600	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
CHILDRENS HOSPITAL MEDICAL CENTER RESEARCH ACCOUNTING
3333 BURNET AVENUE ML 4900	CINCINNATI	OH	45229	310833963		$8,475	$0	MOVR REGISTRY SUPPORT
CHILDRENS HOSPITAL OF ORANGE COUNTY
201 W LA VETA AVE	ORANGE	CA	92868	952321786	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF PHILADELPHIA
3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	231352166	501(C)(3)	$43,750	$0	MEDICAL DIAGNOSIS
CHILDRENS HOSPITAL OF PITTSBURGH FOUNDATION
4401 PENN AVENUE CENTRAL PLANT	PITTSBURGH	PA	15224	251865744	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	FLOOR 3
CHILDRENS HOSPITAL OF THE KINGS DAUGHTERS INC
601 CHILDRENS LANE	NORFOLK	VA	23507	540506321	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
CHILDRENS NATIONAL MEDICAL CENTER
111 MICHIGAN AVENUE NW	WASHINGTON	DC	20010	521640403	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
CHILDREN'S RESEARCH INSTITUTE (CNMC)
111 MICHIGAN AVENUE	NW WASHINGTON	DC	20010	521654453	501(C)(3)	$76,190	$0	RESEARCH
CHILDRENS SPECIALTY GROUP PLLC
811 REDGATE AVENUE	NORFOLK	VA	23507	540506321	501(C)(3)	$6,925	$0	MOVR REGISTRY SUPPORT
CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER
3333 BURNET AVE	CINCINNATI	OH	45229	310833963	501(C)(3)	$93,990	$0	MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
CLINICAL NEUROLOGY
PC4221 S WESTERN SUITE 5010	OKLAHOMA CITY	TX	73109	412141136	501(C)(3)	$75,000	$0	MEDICAL DIAGNOSIS
CONNECTICUT CHILDRENS MEDICAL CENTER
282 WASHINGTON STREET	HARTFORD	CT	06106	060646755	501(C)(3)	$13,333	$0	MEDICAL DIAGNOSIS
COOK CHILDRENS MEDICAL CENTER
801 SEVENTH AVENUE	FORT WORTH	TX	76104	752051646	501(C)(3)	$5,525	$0	MOVR REGISTRY SUPPORT
DARTMOUTH-HITCHCOCK CLINIC
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	222715483	501(C)(3)	$15,000	$0	MOVR REGISTRY SUPPORT
DIGNITY HEALTH ST JOSEPHS HOSPITAL
3033 N 3RD AVENUE	CHANDLER	AZ	85224	860096787	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
DRISCOLL CHILDRENS HOSPITAL CORPUS
3533 SOUTH ALAMEDA STREET	CHRISTI	TX	78411	742577746	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
DUKE UNIVERSITY MEDICAL CENTER
PO BOX 602651	CHARLOTTE	NC	28260	560532129	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
EMORY UNIVERSITY
1599 CLIFTON ROAD NE 4TH FLOOR	ATLANTA	GA	30322	580566256	501(C)(3)	$77,931	$0	RESEARCH AND MOVR REGISTRY SUPPORT
FSHD SOCIETY
450 BEDFORD STREET	LEXINGTON	MA	02420	521762747	501(C)(3)	$13,800	$0	ADVOCACY AND RESEARCH
GEISINGER CLINIC
100 N ACADEMY AVE	DANVILLE	PA	17822	236291113	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
GEISINGER CLINIC
100 N ACADEMY AVE	DANVILLE	PA	17822	260812968	501(C)(3)	$15,200	$0	MOVR REGISTRY SUPPORT
GEORGETOWN UNIVERSITY
ATTN RESEARCH PO BOX 825673	PHILADELPHIA	PA	19182	530196603	501(C)(3)	$15,100	$0	MOVR REGISTRY SUPPORT
GILLETTE CHILDRENS SPECIALTY HEALTHCARE
200 EAST UNIVERSITY AVENUE	ST PAUL	FL	55101	363379150	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
GOOD SHEPHERD REHABILITATION HOSPITAL
850 SOUTH 5TH STREET	ALLENTOWN	PA	18103	231371947	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
HOSPITAL FOR SPECIAL CARE
2150 CORBIN AVENUE	NEW BRITAIN	CT	06053	060646766	501(C)(3)	$66,200	$0	MEDICAL DIAGNOSIS
HOUSTON METHODIST
6560 FANNIN SUITE 802	HOUSTON	TX	77030	760094743	501(C)(3)	$5,300	$0	MOVR REGISTRY SUPPORT
IDAHO PHYSICAL MEDICINE AND REHABILITATION PA
PO BOX 1128	BOISE	ID	83701	820435241		$7,500	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
ILLINOIS INSTITUTE OF TECHNOLOGY
10 W 35TH STREET SUITE 7D7-1	CHICAGO	IL	60616	362170136	501(C)(3)	$24,916	$0	RESEARCH
INDIANA UNIVERSITY
509 E 3RD STREET	BLOOMINGTON	IN	47401	356001673		$64,167	$0	RESEARCH
INLAND NORTHWEST HEALTH SERVICES
PO BOX 2185	SPOKANE	WA	99210	911307555	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
INSTITUTO REHABILITACION DEL CARIBE
PO BOX 363792	SAN JUAN	PR	00918			$10,000	$0	MEDICAL DIAGNOSIS
IRON HORSE DIAGNOSTICS INC
21053 N 75TH STREET	SCOTTSDALE	AZ	85255	454537278	C CORP	$41,700	$0	RESEARCH
JOAN & SANFORD I WEILL MEDICAL COLLEGE OF CORNELL UNIVERSITY
1300 YORK AVENUE BOX 89	NEW YORK	NY	10065	131623978		$213,446	$0	RESEARCH
JOHNS HOPKINS UNIVERSITY
733 N BROADWAY SUITE 117	BALTIMORE	MD	21205	520595110	501(C)(3)	$475,755	$0	MEDICAL DIAGNOSIS RESEARCH AND REGISTRY SUPPORT
KUMC RESEARCH INSTITUTE INC
3901 RAINBOW BOULEVARD	KANSAS CITY	KS	66160	481108830	501(C)(3)	$180,422	$0	MEDICAL DIAGNOSIS AND RESEARCH
LOMA LINDA UNIVERSITY
24887 TAYLOR STREET SUITE 202	LOMA LINDA	CA	92350	951816009	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER
433 BOLIVAR ST	NEW ORLEANS	LA	70112	726087770	501(C)(3)	$18,333	$0	MEDICAL DIAGNOSIS
LSUHSC
1501 KINGS HWY	SHREVEPORT	LA	71103	720702002	501(C)(3)	$7,500	$0	MEDICAL DIAGNOSIS
LUDWIG INSTITUTE FOR CANCER RESEARCH LTD
9500 GILMAN DRIVE	LA JOLLA	CA	92093	237121131		$145,833	$0	RESEARCH
MAINE MEDICAL CENTER
22 BRAMHALL ST	PORTLAND	OR	04102	010238552	501(C)(3)	$13,750	$0	MEDICAL DIAGNOSIS
MASSACHUSETTS GENERAL HOSPITAL
101 HUNTINGTON AVENUE STE 300	BOSTON	MA	02199	042697983	501(C)(3)	$589,835	$0	MEDICAL DIAGNOSIS AND RESEARCH
MAYO CLINIC JACKSONVILLE
4500 SAN PABLO ROAD	JACKSONVILLE	FL	32224	593337028	501(C)(3)	$215,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
MCKINNON MEDICAL GROUP PLLC
351 N BUFFALO DR	LAS VEGAS	NV	89145	453720025		$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MCV ASSOCIATED PHYSICIANS
PO BOX 980599	RICHMOND	VA	23298	541581185	501(C)(3)	$9,167	$0	MEDICAL DIAGNOSIS
MDA CLINIC AT DARTMOUTH-HITCHCOCK MEDICAL CENTER
ONE MEDICAL CENTER DRIVE	LEBANON	NH	03756	020222140	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
MEDICAL COLLEGE OF WISCONSIN
9200 WEST WISCONSIN AVENUE	MILWAUKEE	WI	53226	390806261	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
MEDICAL UNIVERSITY OF SOUTH CAROLINA
19 HAGOOD AVENUE SUITE 606	CHARLESTON	SC	29425	576000722	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
MEDICAL UNIVERSITY OF SOUTH CAROLINA OFFICE OF RESEARCH AND SPONSORED PROGR
1 SOUTH PARK CIRCLE BUILDING 1 STE	CHARLESTON	SC	29407	576000722	501(C)(3)	$15,000	$0	MOVR REGISTRY SUPPORT	506
MEDSTAR GEORGETOWN UNIVERSITY HOSPITAL
3800 RESERVOIR RD NW 7TH FLOOR PHC	WASHINGTON	DC	20007	522228444	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
METHODIST LE BONHEUR COMMUNITY OUTREACH
600 JEFFERSON AVE	MEMPHIS	TN	38105	621251288	501(C)(3)	$43,025	$0	MEDICAL DIAGNOSIS AND MOVR REGISTRY SUPPORT
METHODIST NEUROLOGICAL INSTITUTE
6560 FANNIN STREET	HOUSTON	TX	77030	870721923	501(C)(3)	$100,000	$0	RESEARCH
MICHIGAN STATE UNIVERSITY
426 AUDITORIUM ROAD ROOM 2 EAST	BIG RAPIDS	MI	48824	386005984	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS	LANSING
MITOCHONDRIA IN MOTION INC
4440 LINDELL BOULEVARD SUITE 1202	ST LOUIS	MO	63108	832455511	S CORP	$50,432	$0	RESEARCH
MONTEFIORE MEDICAL CENTER
3351 STEUBEN AVE 3RD FLOOR	BRONX	NY	10467	131740114	501(C)(3)	$41,667	$0	MEDICAL DIAGNOSIS
MYOGENE BIO LLC
907 WESTWOOD BOULEVARD 376	LOS ANGELES	CA	90024	831507489	501(C)(3)	$91,526	$0	RESEARCH
NEMOURS FOUNDATION
10140 CENTURION PARKWAY	JACKSONVILLE	FL	32256	590634433	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
NEW YORK UNIVERSITY SCHOOL OF MEDICINE
PO BOX 415026	BOSTON	MA	02241	135562308	STATE OF NY	$40,000	$0	MEDICAL DIAGNOSIS
NORTHEAST ALS CONSORTIUM
811 W 7TH STREET FLOOR 12	LOS ANGELES	CA	90017	562547779	C CORP	$34,806	$0	RESEARCH
NORTHWESTERN MEDICAL GROUP DEPARTMENT OF NEUROLOGY
710 N LAKESHORE DR SUITE 1119	CHICAGO	IL	60611	363382383	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
NORTHWESTERN UNIVERSITY
CHICAGO CAMPUS RUBLOFF BUILDING 7TH	CHICAGO	IL	60611	362167817	501(C)(3)	$96,144	$0	RESEARCH	FLOOR750 NORTH LAKE SHORE DRIVE
OLIVE VIEW-UCLA EDUCATION AN RESEARCH INSTITUTE
14445 OLIVE VIEW DR	OLIVE VIEW	CA	91342	952249539	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
OREGON HEALTH AN SCIENCE UNIVERSITY
3181 SW SAM JACKSON PARK RD	PORTLAND	OR	97239	931176109	STATE OF OR	$25,000	$0	MEDICAL DIAGNOSIS
OSF MULTI-SPECIALTY GROUP DBA ILLINOIS NEUROLOGICAL
800 NE GLEN OAK AVE	PEORIA	IL	61603	383852646	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
PHOENIX CHILDRENS HOSPITAL
1919 EAST THOMAS RD	PHOENIX	AZ	85016	860422559	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
PONCE HEALTH SCIENCES UNIVERSITY
PO BOX 7004	PONCE	PR	00732	660379122	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RADY CHILDRENS HOSPITAL FOUNDATION
3020 CHILDRENS WAY MC 5005	SAN DIEGO	CA	92123	330170626	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
REGENTS OF THE UNIVERSITY OF CALIFORNIA DAVIS
4860 Y STREET SUITE 3850	SACRAMENTO	CA	95817	946036494	501(C)(3)	$211,032	$0	MEDICAL DIAGNOSIS AND RESEARCH
REGENTS OF THE UNIVERSITY OF MINNESOTA
PO BOX 1450	MINNEAPOLIS	MN	55485	416007513	501(C)(3)	$189,224	$0	MEDICAL DIAGNOSIS AND RESEARCH
RESEARCH TRIANGLE INSTITUTE
PO BOX 900002	RALEIGH	NC	27265	560686338	501(C)(3)	$112,500	$0	ADVOCACY
RUSH UNIVERSITY MEDICAL CENTER
1653 W CONGRESS PARKWAY	CHICAGO	IL	60612	362174823	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
RUTGERS THE STATE UNIVERSITY OF NEW JERSEY
65 BERGEN STREET	NEWARK	NJ	07103	462354111	STATE OF NJ	$142,308	$0	MEDICAL DIAGNOSIS RESEARCH AND REGISTRY SUPPORT
SAINT LOUIS UNIVERSITY
221 NORTH GRAND BOULEVARD ST	LOUISVILLE	MO	63103	430654872	501(C)(3)	$42,857	$0	RESEARCH
SANFORD CHILDRENS SPECIALTY CLINIC
415 NORTH 3RD AVENUE	FARGO	ND	58102	911770748	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
SANFORD MEDICAL CENTER FARGO
415 NORTH 3RD AVENUE	FARGO	ND	58102	911770748	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
SARASOTA MEMORIAL HOSPITAL
1700 TAMIAMI TRAIL	SARASOTA	FL	34239	596012500	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
SHRINERS HOSPITALS FOR CHILDREN
3101 SW SAM JACKSON PARK	PORTLAND	OR	97239	362193608	501(C)(3)	$30,000	$0	MEDICAL DIAGNOSIS
SPECTRUM HEALTH FOUNDATION
100 MICHIGAN NE MC 004	GRAND RAPIDS	MI	49503	382752328	501(C)(3)	$7,500	$0	MEDICAL DIAGNOSIS
ST CHARLES HOSPITAL FOUNDATION
200 BELLE TERRE ROAD	PORT JEFFERSON	NY	11777	412076312	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ST LUKES HEALTH SYSTEM
PO BOX 1663	BOISE	ID	83701	452716222	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
ST PETERS HOSPITAL
310 S MANNING BLVD	ALBANY	NY	12208	222262982	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
STANFORD HEALTH CARE
PO BOX 742835	LOS ANGELES	CA	90074	946174066	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
STEVENS INSTITUTE OF TECHNOLOGY
ONE CASTLE POINT ON HUDSON	HOBOKEN	NJ	07030	221487354	C CORP	$35,714	$0	RESEARCH
TEMPLE UNIVERSITY
PO BOX 827997	PHILADELPHIA	PA	19182	231365971	501(C)(3)	$35,000	$0	MEDICAL DIAGNOSIS
TEXAS NEUROLOGY PA
6301 GASTON AVE STE 300W	DALLAS	TX	75214	752654757	501(C)(3)	$33,617	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK
630 WEST 168TH STREET UNIT 39	NEW YORK	NY	10032	135598093	501(C)(3)	$323,293	$0	MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
THE BOARD OF TRUSTEES OF THE UNIVERSITY OF ILLINOIS
1901 S FIRST STREET	ACHAMPAIGN	IL	61820	376000511	501(C)(3)	$303,951	$0	RESEARCH
THE CURATORS OF THE UNIVERSITY MISSOURI
ONE HOSP DRIVE	COLUMBIA	MO	65212	436003859	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE EMORY CLINIC INC
12 EXECUTIVE PARK DR NE RM 433	ATLANTA	GA	30329	582030692	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
THE HOSPITAL OF SPECIAL SURGERY
535 EAST 70TH ST	NEW YORK	NY	10021	131624135	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS
THE MEDICAL COLLEGE OF WISCONSIN INC DEPT OF NEUROLOGY
ATTN MARIE MEJAKI 8701 WATERTOWN	MILWAUKEE	WI	53226	390806261	501(C)(3)	$5,200	$0	MOVR REGISTRY SUPPORT	PLANK ROAD
THE METHODIST HOSPITAL FOUNDATION
6560 FANNIN STREET 802	HOUSTON	TX	77030	760094743	501(C)(3)	$100,000	$0	MEDICAL DIAGNOSIS
THE METROHEALTH SYSTEM
PO BOX 73308	CLEVELAND	OH	44193	346004382	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS
THE OHIO STATE UNIVERSITY
1960 KENNY RD	COLUMBUS	OH	43210	316025986	STATE OF OH	$180,073	$0	MEDICAL DIAGNOSIS, RESEARCH AND REGISTRY SUPPORT
THE PENNSYLVANIA STATE UNIVERSITY COLLEGE OF MEDICINE
PO BOX 850	HERSHEY	PA	17033	246000376	STATE OF PA	$56,873	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
THE RECTOR AND VISITORS OF THE UNIVERSITY OF VIRGINIA
PO BOX 400195	CHARLOTTESVILLE	NC	22904	546001796	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA
1608 FOURTH STREET SUITE 220	BERKELEY	CA	94710	946002123	501(C)(3)	$71,428	$0	RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA (IRVINE)
141 INNOVATION SUITE 250	IRVINE	CA	92697	952226406	501(C)(3)	$172,500	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA LOS ANGELES
11000 KINROSS AVENUE SUITE 211	LOS ANGELES	CA	90095	956006143	501(C)(3)	$292,033	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVE	SAN DIEGO	CA	92093	956006144	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO
1855 FOLSOM STREET SUITE 425	SAN FRANCISCO	CA	94143	946036493	501(C)(3)	$75,400	$0	MEDICAL DIAGNOSIS, REGISTRY SUPPORT AND MOVR REGISTRY SUPPORT
THE REGENTS OF THE UNIVERSITY OF MICHIGAN
3003 S STATE STREET	ANN ARBOR	MI	48109	386006309	501(C)(3)	$31,688	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE RESEARCH FOUNDATION FOR THE SUNY ON BEHALF OF UNIVERSITY
35 STATE ST	ALBANY	NY	12207	141368361	501(C)(3)	$52,857	$0	MEDICAL DIAGNOSIS AND RESEARCH
THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL
700 CHILDRENS DRIVE	COLUMBUS	OH	43205	316056230	501(C)(3)	$61,850	$0	MEDICAL DIAGNOSIS & RESEARCH
THE SCRIPPS RESEARCH INSTITUTE
10550 NORTH TORREY PINES ROAD	LA JOLLA	CA	92037	330435954	501(C)(3)	$92,308	$0	RESEARCH
THE TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREET	PHILADELPHIA	PA	19104	231352685	501(C)(3)	$142,308	$0	MEDICAL DIAGNOSIS & RESEARCH
THE UNIVERSITY OF ALABAMA AT BIRMINGHAM
1600 7TH AVENUE S LOWDER 608	BIRMINGHAM	AL	35233	636005396	STATE OF AL	$20,000	$0	MEDICAL DIAGNOSIS
THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL
104 AIRPORT DRIVE SUITE 2200	CHAPEL HILL	NC	27599	566001393	501(C)(3)	$67,857	$0	RESEARCH
THE UNIVERSITY OF UTAH
75 S 2000 ERM 215	SALT LAKE CITY	UT	84112	876000525	STATE OF UT	$10,000	$0	MEDICAL DIAGNOSIS
THOMAS JEFFERSON UNIVERSITY
125 S 9TH ST	PHILADELPHIA	PA	19107	231352651	501(C)(3)	$104,386	$0	RESEARCH
TRINITY HEALTH DBA MERCY HEALTH SAINT MARYS
200 JEFFERSON SE	GRAND RAPIDS	MI	49503	272491974	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
TRUSTEES OF BOSTON UNIVERSITY BOSTON
85 EAST NEWTON STREET M-921	BOSTON	MA	02118	042103547	501(C)(3)	$92,308	$0	RESEARCH
UNIVERSITY HOSPITAL BROOOKLYN SUNY DOWNSTATE MED CTR
450 CLARKSON AVENUE BOX 3	BROOKLYN	NY	11203	146013200	STATE OF NY	$29,167	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES
4301 WEST MARKHAM 812	LITTLE ROCK	AR	72205	716046242	STATE OF AR	$35,000	$0	MEDICAL DIAGNOSIS & MOVR REGISTRY SUPPORT
UNIVERSITY OF CINCINNATI
51 GOODMAN DR SUITE 530	CINCINNATI	OH	45221	316000989	501(C)(3)	$57,500	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF COLORADO DENVER
3100 MARINE STREET ROOM 47	BOULDER	CO	80309	846000555	STATE OF CO	$294,737	$0	MEDICAL DIAGNOSIS & RESEARCH
UNIVERSITY OF FLORIDA
219 GRINTER HALL	GAINESVILLE	FL	32611	596002052	STATE OF FLORIDA	$194,040	$0	MEDICAL DIAGNOSIS RESEARCH, RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF IOWA
2 GILMORE HALL	IOWA CITY	IA	52242	426004813	STATE OF IOWA	$200,919	$0	MEDICAL DIAGNOSIS & RESEARCH
UNIVERSITY OF LOUISVILLE RESEARCH FOUNDATION INC
300 E MARKET STREET SUITE 300	LOUISVILLE	KY	40202	611029626	501(C)(3)	$6,667	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF MARYLAND BALTIMORE
620 W LEXINGTON STREET 4TH FLOOR	BALTIMORE	MD	21201	526002033		$69,231	$0	RESEARCH
UNIVERSITY OF MASSACHUSETTS MEDICAL SCHOOL
OFFICE OF SPONSORED PROGRAMS55 LAKE	WORCESTER	MA	01655	043167352	STATE OF MA	$202,161	$0	MEDICAL DIAGNOSIS AND RESEARCH	AVENUE NORTH
UNIVERSITY OF MIAMI
1320 SOUTH DIXIE HIGHWAY SUITE 650	CORAL GABLES	FL	33146	590624458	STATE OF FL	$550,986	$0	MEDICAL DIAGNOSIS RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF MISSISSIPPI MEDICAL CENTER
2500 NORTH STATE STREET	JACKSON	MS	39216	646008520	STATE OF MS	$20,000	$0	MEDICAL DIAGNOSIS RESEARCH AND REGISTRY SUPPORT
UNIVERSITY OF NEBRASKA MEDICAL CENTER
985450 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	470049123	STATE OF NE	$46,667	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF NEW MEXICO HSC
1 UNIVERSITY OF NEW MEXICO	ALBUQUERQUE	NM	87131	856000642	STATE OF NM	$41,078	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF OREGON
2727 LEO HARRIS PKWY	EUGENE	OR	97401	464727800	501(C)(3)	$70,000	$0	RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACE	PITTSBURGH	PA	15213	250965591	STATE OF PA	$160,094	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF PUERTO RICO MEDICAL SCIENCES
400 FD ROOSEVELT AVE	SAN JUAN	PR	00936	660433762		$36,667	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF ROCHESTER
518 HYLAN BLDG BOX 270140	ROCHESTER	NY	14627	160743209	501(C)(3)	$213,962	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO
7703 FLOYD CURL DRIVE MSC 7828	SANANTONIO	TX	78229	741586031	STATE OF TX	$75,000	$0	MEDICAL DIAGNOSIS
UNIVERSITY OF UTAH
75 S 2000 ERM 111	SALT LAKE CITY	UT	84112	876000525	STATE OF UT	$10,000	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF VERMONT MEDICAL CENTER
PO BOX 1902	BURLINGTON	VT	05401	030219303	STATE OF VT	$20,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
UNIVERSITY OF WASHINGTON MEDICAL
CENTER - 1959 NE PACIFIC	SEATTLE	WA	98195	916001537		$285,847	$0	MEDICAL DIAGNOSIS AND RESEARCH
UNIVERSITY OF WISCONSIN
4410 SOUTH 3RD STREET	RIVER FALL	WI	54022	391805963	501(C)(3)	$93,333	$0	RESEARCH
UT SOUTHWESTERN MEDICAL CENTER
PO BOX 841753	DALLAS	TX	75284	756002868	STATE OF TX	$125,000	$0	MEDICAL DIAGNOSIS
UW HOSPITAL AN CLINICS AUTHORITY
600 HIGHLAND AVE	MILWAUKEE	WI	53792	391835630	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
VANDERBILT UNIVERSITY MEDICAL CENTER
PO BOX 121236	DALLAS	TX	75312	352528741	501(C)(3)	$112,500	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
VIA CHRISTI HOSPITALS WICHITA INC
707 NORTH EMPORIA AVENUE	WICHITA	KS	67214	481172106	501(C)(3)	$10,000	$0	MEDICAL DIAGNOSIS
VIRGINIA COMMONWEALTH UNIVERSITY
PO BOX 980568	RICHMOND	VA	23298	546001758	501(C)(3)	$52,222	$0	RESEARCH
WAKE FOREST UNIVERSITY HEALTH SCIENCES
MEDICAL CENTER BLVD	WINSTON SALEM	NC	27157	223849199	501(C)(3)	$20,000	$0	MEDICAL DIAGNOSIS
WASHINGTON UNIVERSITY IN ST LOUIS
1054 ONE BROOKINGS DRIVE ST	ST LOUIS	MO	63130	430653611	501(C)(3)	$113,084	$0	MEDICAL DIAGNOSIS AND RESEARCH
WESLEY NEUROLOGY CLINIC
PC 800 CENTERVIEW PARKWAY STE 305	CORDOVA	TN	38018	621499155	501(C)(3)	$50,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
WILLIAM BEAUMONT HOSPITAL
3811 WEST 13 MILE ROAD SUITE 501	ROYAL OAK	MI	48073	381459362	501(C)(3)	$25,000	$0	MEDICAL DIAGNOSIS AND REGISTRY SUPPORT
WRIGHT STATE UNIVERSITY DAYTON
3640 COLONEL GLENN HWY	DAYTON	OH	45435	310732831		$92,308	$0	RESEARCH
YALE UNIVERSITY
PO BOX 1873	NEW HAVEN	CT	06508	060646973	501(C)(3)	$263,353	$0	MEDICAL DIAGNOSIS AND RESEARCH

Field	Value	IRS element (for citing)
Total501c3 Org	150	Total501c3OrgCnt
Total Other Org	17	TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 2:	FormAndLineReferenceDesc
Explanation	UPON AWARDING A GRANT, BUT PRIOR TO DISBURSEMENT OF ANY FUNDS, MDA REQUIRES THE FOLLOWING OF MEDICAL DIAGNOSIS GRANTEES: RETURN OF THE SIGNED NOTICE OF AWARD AND BUSINESS ASSOCIATE AGREEMENT. CONTINUED FUNDING FOR THE PERIOD OF THE GRANT IS CONTINGENT UPON SUBMISSION TO, AND APPROVAL BY, MDA OF ANNUAL PROGRESS AND ACTIVITY REPORTS AND EXPENDITURE REPORTS FROM ALL GRANTEES. IF SUCH REPORTS ARE NOT RECEIVED, OR ARE DEEMED UNSATISFACTORY, MDA MAY OPT TO SUSPEND OR CANCEL FUNDING FOR THE GRANT.	ExplanationTxt

Schedule J IRS990ScheduleJ

Field	Value	IRS element (for citing)
Compensation Committee	Yes (X)	CompensationCommitteeInd
Independent Consultant	Yes (X)	IndependentConsultantInd
Compensation Survey	Yes (X)	CompensationSurveyInd
Board Or Committee Approval	Yes (X)	BoardOrCommitteeApprovalInd
Severance Payment	Yes (1)	SeverancePaymentInd
Supplemental Nonqual Rtr Plan	0	SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm	0	EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org	0	CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs	0	CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org	0	CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs	0	CompBsdNetEarnsRltdOrgsInd
Any Non Fixed Payments	0	AnyNonFixedPaymentsInd
Initial Contract Exception	0	InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)

TitleTitleTxt	Base Compensation Filing OrgBaseCompensationFilingOrgAmt	Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt	Bonus Filing OrganizationBonusFilingOrganizationAmount	Bonus Related OrganizationsBonusRelatedOrganizationsAmt	Other Compensation Filing OrgOtherCompensationFilingOrgAmt	Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt	Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt	Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt	Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt	Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt	Total Compensation Filing OrgTotalCompensationFilingOrgAmt	Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt	Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt	Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
DONALD WOOD
PRESIDENT & CEO	$434,363	$0	$0	$0	$0	$0	$0	$0	$23,165	$0	$457,528	$0	$0	$0
MICHAEL KENNEDY
TREASURER & CFO	$290,169	$0	$0	$0	$0	$0	$3,462	$0	$27,277	$0	$320,908	$0	$0	$0
KRISTINE WELKER
CHIEF OF STAFF	$263,684	$0	$0	$0	$0	$0	$3,462	$0	$1,411	$0	$268,557	$0	$0	$0
SHARON HESTERLEE
CHIEF RESEARCH OFFICER	$216,489	$0	$0	$0	$0	$0	$2,654	$0	$22,811	$0	$241,954	$0	$0	$0
KATHY KAUFFMANN JAN-AUG
CHIEF STRATEGY DEVELOPMENT	$193,700	$0	$0	$0	$23,077	$0	$208	$0	$23,830	$0	$240,815	$0	$0	$0
BRIAN BEIRNE
VP OF MULTI-CHANNEL MARKETING	$187,737	$0	$0	$0	$0	$0	$1,673	$0	$36,293	$0	$225,703	$0	$0	$0
JOSHUA ACKLEY
VP OF PR & COMMUNICATIONS	$219,790	$0	$0	$0	$0	$0	$0	$0	$4,064	$0	$223,854	$0	$0	$0
LINDSAY KASSOF
SEC. & ASSOC LEGAL COUNSEL	$175,868	$0	$0	$0	$0	$0	$2,135	$0	$13,640	$0	$191,643	$0	$0	$0

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, LINE 4A	FormAndLineReferenceDesc
Explanation	KATHY KAUFFMANN, CHIEF STRATEGY DEVELOPMENT RECEIVED $23,077 SEVERANCE PAYMENT IN 2021.	ExplanationTxt

Schedule M IRS990ScheduleM

Securities Closely Held Stock SecuritiesCloselyHeldStockGrp

Field	Value	IRS element (for citing)
Non Cash Checkbox	Yes (X)	NonCashCheckboxInd
Contribution	1004	ContributionCnt
Noncash Contributions Rpt F990	$63,421	NoncashContributionsRptF990Amt
Method Of Determining Revenues	FMV	MethodOfDeterminingRevenuesTxt

Field	Value	IRS element (for citing)
Any Property That Must Be Held	0	AnyPropertyThatMustBeHeldInd
Review Process Unusual NC Gifts	0	ReviewProcessUnusualNCGiftsInd
Third Parties Used	0	ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail

Field	Value	IRS element (for citing)
Form And Line Reference	PART I, COLUMN (B):	FormAndLineReferenceDesc
Explanation	AMOUNTS IN COLUMN B REPRESENT THE NUMBER OF CONTRIBUTIONS.	ExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDesc	ExplanationExplanationTxt
FORM 990, PART VI, SECTION B, LINE 11B	ALL BOARD MEMBERS WERE PROVIDED A COPY OF THE FEDERAL FORM 990 BEFORE FILING WITH THE IRS.
FORM 990, PART VI, SECTION B, LINE 12C	THE CONFLICT OF INTEREST POLICY IS MONITORED BY THE HUMAN RESOURCES DEPARTMENT IN CONJUNCTION WITH LEGAL. BOARD MEMBERS ARE REQUIRED TO SIGN AN CONFLICT OF INTEREST DISCLOSURE ANNUALLY. WHEN A CONFLICT OF INTEREST ARISES, THE PERSON WITH THE CONFLICT IS REQUIRED TO RECUSE HIS/HERSELF FROM THE MATTER AND DISCUSSION INVOLVED.
FORM 990, PART VI, SECTION B, LINE 15	MDA HAS A COMPENSATION COMMITTEE OF THE GOVERNING BOARD THAT REVIEWS THE CEO AND EXECUTIVE TEAM COMPENSATION. A COMPENSATION STUDY IS COMPLETED BY AN INDEPENDENT CONSULTANT AND REVIEWED WITH THE COMPENSATION COMMITTEE. ANNUAL REVIEWS ARE COMPLETED AND CONTRACTS ARE AMENDED AS THEY EXPIRE.
FORM 990, PART VI, SECTION C, LINE 19	GOVERNING DOCUMENTS AND THE CONFLICT OF INTEREST POLICIES ARE INTERNAL DOCUMENTS. COPIES OF THE AUDITED FINANCIAL STATEMENTS ARE AVAILABLE ON MDA'S WEBSITE.
FORM 990, PART XI, LINE 9:	CHANGE IN UNRECOGNIZED BENEFIT PLAN COSTS 14,432,141. REFUND OF PREVIOUSLY REPORTED GRANTS 546,404.
FORM 990, PART XII LINE 2C:	THE ORGANIZATION HAS A COMMITTEE RESPONSIBLE FOR THE OVERSIGHT OF THE AUDIT AS WELL AS THE SELECTION OF THE INDEPENDENT ACCOUNTANT.