CHORDOMA FOUNDATION: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization
CHORDOMA FOUNDATION (EIN 20-8423943)
Tax period
2022-01-01 to 2022-12-31
Filed
2023-08-23
IRS object ID
202342359349301504
Schema version
2022v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2023-08-23T14:21:41-04:00ReturnTs
Tax Period End2022-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN561743537PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1LANGDON & COMPANY LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1223 US HIGHWAY 70 EAST SUITE 100AddressLine1Txt
CityGARNERCityNm
State AbbreviationNCStateAbbreviationCd
ZIP275294051ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2022-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN208423943EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHORDOMA FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCHORBusinessNameControlTxt
Phone9198096779PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 2127AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27702ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonJOSH SOMMERPersonNm
Person TitleEXEC. DIR. & PRES.PersonTitleTxt
Phone9198096779PhoneNum
Signature2023-08-22SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstJOSHPersonFirstNm
Person LastSOMMERPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonSUSAN DEANPreparerPersonNm
PTINP01281194PTIN
Phone9196621001PhoneNum
Preparation2023-08-22PreparationDt
FieldValueIRS element (for citing)
Tax2022TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJOSH SOMMERPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 2127AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27702ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$4,886,250GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.CHORDOMAFOUNDATION.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2007FormationYr
Legal Domicile StateNCLegalDomicileStateCd
Activity Or MissionTHE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.ActivityOrMissionDesc
Voting Members Governing Body15VotingMembersGoverningBodyCnt
Voting Members Independent14VotingMembersIndependentCnt
Total Employee11TotalEmployeeCnt
Total Volunteers120TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$2,961,128PYContributionsGrantsAmt
CY Contributions Grants$4,812,417CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
PY Investment Income$1,432PYInvestmentIncomeAmt
CY Investment Income$15,406CYInvestmentIncomeAmt
PY Other Revenue$123,194PYOtherRevenueAmt
CY Other Revenue$58,427CYOtherRevenueAmt
PY Total Revenue$3,085,754PYTotalRevenueAmt
CY Total Revenue$4,886,250CYTotalRevenueAmt
PY Grants And Similar Paid$1,925,627PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,199,415CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$977,164PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,193,089CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$491,001CYTotalFundraisingExpenseAmt
PY Other Expenses$469,393PYOtherExpensesAmt
CY Other Expenses$696,265CYOtherExpensesAmt
PY Total Expenses$3,372,184PYTotalExpensesAmt
CY Total Expenses$3,088,769CYTotalExpensesAmt
PY Revenues Less Expenses-$286,430PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,797,481CYRevenuesLessExpensesAmt
Total Assets BOY$6,529,695TotalAssetsBOYAmt
Total Assets EOY$7,599,511TotalAssetsEOYAmt
Total Liabilities BOY$2,131,664TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,353,307TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$4,398,031NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$6,246,204NetAssetsOrFundBalancesEOYAmt
MissionTHE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$1,713,330ExpenseAmt
Grant$1,169,414GrantAmt
Desc(RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, THE CHORDOMA FOUNDATION INITIATED AND FUNDED A PORTFOLIO OF RESEARCH PROJECTS SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE, AND PROVIDED A VARIETY OF VITAL SERVICES TO THE CHORDOMA RESEARCH COMMUNITY, INCLUDING BANKING CHORDOMA TUMOR TISSUE, DEVELOPING AND DISTRIBUTING PRECLINICAL MODELS OF CHORDOMA, PERFORMING PRECLINICAL DRUG SCREENING, AND FACILITATING PATIENT PARTICIPATION IN CLINICAL TRIALS.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$603,572ExpenseAmt
Grant$30,000GrantAmt
Desc(PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, THE CHORDOMA FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, AND OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$2,316,902TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemYes (true)BusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document12IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee11EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsfalseQuidProQuoContributionsInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members15GoverningBodyVotingMembersCnt
Independent Voting Member14IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
Own WebsiteYes (X)OwnWebsiteInd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonJOSH SOMMERPersonNm
Phone9198096779PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO BOX 2127AddressLine1Txt
CityDURHAMCityNm
State AbbreviationNCStateAbbreviationCd
ZIP27702ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtKey EmployeeKeyEmployeeIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
DANIEL FREED
HEAD OF TARG40.00Yes (X)$153,838$0$13,647
KENNY BRIGHTON
HEAD OF PHIL40.00Yes (X)$153,136$0$5,603
JOSH SOMMER
EXEC. DIR. &50.00$132,248$0$12,084Yes (X)Yes (X)
TAMMY SILVERTHORNE
DIRECTOR OF40.00$100,001$0$15,355Yes (X)
SHANNON LOZINSKY
DIRECTOR OF40.00$100,250$0$11,619Yes (X)
SARA NICK
HEAD OF ENGA40.00$100,500$0$3,705Yes (X)
LESLIE ADLER
DIRECTOR2.00$0$0$0Yes (X)
PAUL FELDMAN
DIRECTOR2.00$0$0$0Yes (X)
STEVEN GOLICK
DIRECTOR2.00$0$0$0Yes (X)
CHRISTOPHER HEERY
DIRECTOR2.00$0$0$0Yes (X)
ALICIA JEFFREYS
DIRECTOR2.00$0$0$0Yes (X)
INGEMAR LANEVI
TREASURER2.00$0$0$0Yes (X)
SUSAN MAHONY
DIRECTOR2.00$0$0$0Yes (X)
STEVEN MANDEL
DIRECTOR2.00$0$0$0Yes (X)
SHREYASKUMAR PATEL
DIRECTOR2.00$0$0$0Yes (X)
DAVID SANDAK
CHAIR4.00$0$0$0Yes (X)
CHRISTY SHAFFER
DIRECTOR2.00$0$0$0Yes (X)
JULIE SONG
SECRETARY2.00$0$0$0Yes (X)
MEGAN STEWART
DIRECTOR2.00$0$0$0Yes (X)
JOHN THERIEN
DIRECTOR2.00$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$715,387TotalReportableCompFromOrgAmt
Total Other Compensation$62,013TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K6IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$4,812,417AllOtherContributionsAmt
Noncash Contributions$592,187NoncashContributionsAmt
Total Contributions$4,812,417TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$15,406TotalRevenueColumnAmt
Exclusion$15,406ExclusionAmt

Gross Rents GrossRentsGrp

FieldValueIRS element (for citing)
Real$34,192RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$34,192RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$34,192TotalRevenueColumnAmt
Related Or Exempt Func Income$34,192RelatedOrExemptFuncIncomeAmt

Other Revenue Misc OtherRevenueMiscGrp (2 entries)

DescDescTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
EMPLOYEE RETENTION CREDIT$21,475$21,475
OTHER INCOME$2,760$2,760
FieldValueIRS element (for citing)
Other Revenue Total$24,235OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,886,250TotalRevenueColumnAmt
Related Or Exempt Func Income$58,427RelatedOrExemptFuncIncomeAmt
Exclusion$15,406ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$926,915TotalAmt
Program Services$926,915ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$30,000TotalAmt
Program Services$30,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$242,500TotalAmt
Program Services$242,500ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$470,557TotalAmt
Program Services$288,790ProgramServicesAmt
Management And General$44,334ManagementAndGeneralAmt
Fundraising$137,433FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$576,540TotalAmt
Program Services$353,834ProgramServicesAmt
Management And General$54,319ManagementAndGeneralAmt
Fundraising$168,387FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$9,659TotalAmt
Program Services$5,928ProgramServicesAmt
Management And General$910ManagementAndGeneralAmt
Fundraising$2,821FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$63,327TotalAmt
Program Services$38,865ProgramServicesAmt
Management And General$5,966ManagementAndGeneralAmt
Fundraising$18,496FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$73,006TotalAmt
Program Services$44,805ProgramServicesAmt
Management And General$6,878ManagementAndGeneralAmt
Fundraising$21,323FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$977TotalAmt
Program Services$703ProgramServicesAmt
Management And General$143ManagementAndGeneralAmt
Fundraising$131FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$14,523TotalAmt
Management And General$14,523ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$130,405TotalAmt
Program Services$104,301ProgramServicesAmt
Management And General$6,612ManagementAndGeneralAmt
Fundraising$19,492FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$14,590TotalAmt
Program Services$8,716ProgramServicesAmt
Fundraising$5,874FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$53,239TotalAmt
Program Services$11,391ProgramServicesAmt
Management And General$25,796ManagementAndGeneralAmt
Fundraising$16,052FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$123,183TotalAmt
Program Services$57,176ProgramServicesAmt
Management And General$27,727ManagementAndGeneralAmt
Fundraising$38,280FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$35,770TotalAmt
Program Services$7,653ProgramServicesAmt
Management And General$17,332ManagementAndGeneralAmt
Fundraising$10,785FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$61,307TotalAmt
Program Services$16,743ProgramServicesAmt
Management And General$8,392ManagementAndGeneralAmt
Fundraising$36,172FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$9,104TotalAmt
Management And General$9,104ManagementAndGeneralAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$20,775TotalAmt
Program Services$13,632ProgramServicesAmt
Management And General$6,291ManagementAndGeneralAmt
Fundraising$852FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
IN-KIND CONTRIBUTIONS$157,143$147,701$2,539$6,903
BAD DEBT EXPENSE$50,000$50,000
MEETING EXPENSES$25,249$17,249$8,000

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,088,769TotalAmt
Program Services$2,316,902ProgramServicesAmt
Management And General$280,866ManagementAndGeneralAmt
Fundraising$491,001FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$804,311BOYAmt
EOY$267,171EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$5,065,451BOYAmt
EOY$6,102,120EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$584,490BOYAmt
EOY$1,123,782EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$34,262BOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$21,334BOYAmt
EOY$28,107EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$127,442LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$49,111LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$19,847BOYAmt
EOY$78,331EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$6,529,695BOYAmt
EOY$7,599,511EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$214,632BOYAmt
EOY$573,348EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$1,905,855BOYAmt
EOY$776,434EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$11,177BOYAmt
EOY$3,525EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$2,131,664BOYAmt
EOY$1,353,307EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,250,101BOYAmt
EOY$3,052,256EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,147,930BOYAmt
EOY$3,193,948EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$4,398,031BOYAmt
EOY$6,246,204EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$6,529,695BOYAmt
EOY$7,599,511EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$1,797,481ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$50,692OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,350,245CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,151,081CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,488,341CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,961,128CurrentTaxYearMinus1YearAmt
Current Tax Year$4,812,417CurrentTaxYearAmt
Total$17,763,212TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$2,350,245CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$5,151,081CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,488,341CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,961,128CurrentTaxYearMinus1YearAmt
Current Tax Year$4,812,417CurrentTaxYearAmt
Total$17,763,212TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$4,720,147SubstantialContributorsTotAmt
Public Support Total170$13,043,065PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$4,180CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$1,049CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$5,729CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$26,512CurrentTaxYearMinus1YearAmt
Current Tax Year$49,598CurrentTaxYearAmt
Total$87,068TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$11,150CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,512CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,775CurrentTaxYearMinus2YearsAmt
Total$15,437TotalAmt
FieldValueIRS element (for citing)
Total Support$17,865,717TotalSupportAmt
Gross Receipts Rltd Activities$201,386GrossReceiptsRltdActivitiesAmt
Public Support CY1700.73010PublicSupportCY170Pct
Public Support PY1700.76780PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferencePART II, LINE 10FormAndLineReferenceDesc
ExplanationCONFERENCE REGISTRATION FEES 15,437ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule D IRS990ScheduleD

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$7,540OtherCostOrOtherBasisAmt
Depreciation$7,113DepreciationAmt
Book Value$427BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$56,342OtherCostOrOtherBasisAmt
Depreciation$41,998DepreciationAmt
Book Value$14,344BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$63,560OtherCostOrOtherBasisAmt
Book Value$63,560BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$78,331TotalBookValueLandBuildingsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$4,984,136TotalRevEtcAuditedFinclStmtAmt
Donated Services And Use Fclts$47,194DonatedServicesAndUseFcltsAmt
Other Revenue$50,692OtherRevenueAmt
Revenue Not Reported$97,886RevenueNotReportedAmt
Revenue Subtotal$4,886,250RevenueSubtotalAmt
Total Revenue Per Form990$4,886,250TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,135,963TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$47,194DonatedServicesUseFcltsAmt
Expenses Not Reported$47,194ExpensesNotReportedAmt
Expenses Subtotal$3,088,769ExpensesSubtotalAmt
Total Expenses Per Form990$3,088,769TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
SCHEDULE D, PAGE 3, PART XTHE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2022 OR 2021.
SCHEDULE D, PAGE 4, PART XI, LINE 2DGAIN ON FOREIGN CURRENCY 50,692

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)

RegionRegionTxtType Of Activities ConductedTypeOfActivitiesConductedTxtSpecific Services ProvidedSpecificServicesProvidedTxtRegion Total ExpendituresRegionTotalExpendituresAmt
EUROPEGRANTSRESEARCH$22,000
SOUTH ASIAGRANTSRESEARCH$220,500
FieldValueIRS element (for citing)
Subtotal Spent$242,500SubtotalSpentAmt
Total Spent$242,500TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
SOUTH ASIARESEARCH$220,500WIRE TRANSFER
EUROPERESEARCH$22,000WIRE TRANSFER
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
SCHEDULE F, PAGE 1, PART I, LINE 2MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS.
SCHEDULE F, PAGE 1, PART I, LINE 3EUROPE 22,000 0 SOUTH ASIA 220,500 0

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (6 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtPurpose Of GrantPurposeOfGrantTxtBusiness Name Line2RecipientBusinessName/BusinessNameLine2Txt
CANCER RESEARCH INSTITUTE
29 BROADWAY FLOOR 4NEW YORKNY10006131837442501C3$200,000RESEARCH GRANT
CHILDREN'S HOSPITAL OF PHILADELPHIA
3615 CIVIC CENTER BOULEVARDPHILADELPHIAPA19104231352166501C3$75,019RESEARCH GRANTCHOP
START
4383 MEDICAL DRIVE SUITE 4021SAN ANTONIOTX78229208313687$300,762RESEARCH GRANT
THE JACKSON LABORATORY
600 MAIN STREETBAR HARBORME04609010211513501C3$125,720RESEARCH GRANT
UNIVERSITY OF NC AT CHAPEL HILL
120 MASON FARM ROADCHAPEL HILLNC27519566001393501C3$21,133RESEARCH GRANT
UPMC DEPARTMENT OF NEUROSURGERY
200 LOTHROP STREETPITTSBURGPA15213232919472501C3$100,000RESEARCH GRANT
FieldValueIRS element (for citing)
Total501c3 Org5Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypePATIENT ASSISTANCEGrantTypeTxt
Recipient10RecipientCnt
Cash Grant$30,000CashGrantAmt
Valuation Method UsedFMVValuationMethodUsedDesc

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE I, PAGE 1, PART I, LINE 2FormAndLineReferenceDesc
ExplanationMONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtBonus Filing OrganizationBonusFilingOrganizationAmountOther Compensation Filing OrgOtherCompensationFilingOrgAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmt
DANIEL FREED
HEAD OF TARGET DISCO$143,581$10,203$54$4,607$9,040$167,485
KENNY BRIGHTON
HEAD OF PHILANTHROPY$138,082$15,000$54$4,592$1,011$158,739

Schedule L IRS990ScheduleL

Bus Tr Involve Interested Prsn BusTrInvolveInterestedPrsnGrp

Name Of Interested NameOfInterested

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1SMITH ANDERSON LLPBusinessNameLine1Txt
FieldValueIRS element (for citing)
Relationship DescriptionBOARD DIRECTORRelationshipDescriptionTxt
Transaction$47,194TransactionAmt
TransactionIN-KIND LEGAL SVCSTransactionDesc
Sharing Of RevenuesfalseSharingOfRevenuesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE L, PART VFormAndLineReferenceDesc
ExplanationTHE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP.ExplanationTxt

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution6ContributionCnt
Noncash Contributions Rpt F990$435,045NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescTECH SOLUTIONSDesc
Contribution1ContributionCnt
Noncash Contributions Rpt F990$157,142NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PAGE 6, PART VI, LINE 11BFINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR, TREASURER AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL.
FORM 990, PAGE 6, PART VI, LINE 12CEACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION.
FORM 990, PAGE 6, PART VI, LINE 15ATHE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE.
FORM 990, PAGE 6, PART VI, LINE 15BTHE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR.
FORM 990, PAGE 6, PART VI, LINE 19GOVERNING DOCUMENTS INCLUDING ARTICLES OF INCORPORATION, BY-LAWS, POLICIES, ANNUAL AUDITS, AND 990S ARE ON FILE IN THE FINANCE OFFICE AND ARE AVAILABLE TO THE PUBLIC UPON REQUEST. SOME OF THESE DOCUMENTS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE.
FORM 990, PART XI, LINE 9GAIN ON FOREIGN CURRENCY 50,692

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