CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION: Form 990, tax year 2022
View the entire original 990 at ProPublica ↗
- Organization
- CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION (EIN 41-1984675)
- Tax period
- 2022-01-01 to 2022-12-31
- Filed
- 2023-07-31
- IRS object ID
- 202342139349300204
- Schema version
- 2022v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
- Return header
- Form 990
- Schedule A
- Schedule B
- Schedule C
- Schedule D
- Schedule F
- Schedule I
- Schedule J
- Schedule O
- Reasonable Cause Explanation
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2023-07-31T13:40:33-07:00 | ReturnTs |
| Tax Period End | 2022-12-31 | TaxPeriodEndDt |
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2022-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 411984675 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CHIL | BusinessNameControlTxt |
| Phone | 8884173435 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO Box 1226 | AddressLine1Txt |
| City | Lexington | CityNm |
| State Abbreviation | KY | StateAbbreviationCd |
| ZIP | 40588 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Amy Brin | PersonNm |
| Person Title | Executive Director | PersonTitleTxt |
| Phone | 2147897316 | PhoneNum |
| Signature | 2023-07-31 | SignatureDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | Yes (1) | IRSResponsiblePrtyInfoCurrInd |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 1 | TrustedCustomerCd |
| OOB Security Verification | 11 | OOBSecurityVerificationCd |
| Last Submission Rqr OOB | 1 | LastSubmissionRqrOOBCd |
| Authentication Assurance Level | AAL2 | AuthenticationAssuranceLevelCd |
| Profile Password Change | Yes (X) | ProfilePasswordChangeInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2022 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990 IRS990
Doing Business As Name DoingBusinessAsName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Child Neurology Foundation | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Amy Brin | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 601 W Short Street | AddressLine1Txt |
| City | Lexington | CityNm |
| State Abbreviation | KY | StateAbbreviationCd |
| ZIP | 40508 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $1,869,480 | GrossReceiptsAmt |
| Group Return For Affiliates | 0 | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | https://www.childneurologyfoundation.org/ | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2000 | FormationYr |
| Legal Domicile State | MN | LegalDomicileStateCd |
| Activity Or Mission | To serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them. | ActivityOrMissionDesc |
| Voting Members Governing Body | 14 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 14 | VotingMembersIndependentCnt |
| Total Employee | 11 | TotalEmployeeCnt |
| Total Volunteers | 54 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| Net Unrelated Bus Txbl Incm | $0 | NetUnrelatedBusTxblIncmAmt |
| PY Contributions Grants | $2,930,859 | PYContributionsGrantsAmt |
| CY Contributions Grants | $1,169,746 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $608,908 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $728,465 | CYProgramServiceRevenueAmt |
| PY Investment Income | $13,506 | PYInvestmentIncomeAmt |
| CY Investment Income | -$30,731 | CYInvestmentIncomeAmt |
| PY Other Revenue | $1,175 | PYOtherRevenueAmt |
| CY Other Revenue | $2,000 | CYOtherRevenueAmt |
| PY Total Revenue | $3,554,448 | PYTotalRevenueAmt |
| CY Total Revenue | $1,869,480 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $332,203 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $481,375 | CYGrantsAndSimilarPaidAmt |
| PY Benefits Paid To Members | $0 | PYBenefitsPaidToMembersAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $1,351,864 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $1,510,158 | CYSalariesCompEmpBnftPaidAmt |
| PY Total Prof Fndrsng Expns | $52,500 | PYTotalProfFndrsngExpnsAmt |
| CY Total Prof Fndrsng Expns | $12,188 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $324,287 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $1,453,565 | PYOtherExpensesAmt |
| CY Other Expenses | $1,676,975 | CYOtherExpensesAmt |
| PY Total Expenses | $3,190,132 | PYTotalExpensesAmt |
| CY Total Expenses | $3,680,696 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $364,316 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$1,811,216 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $4,583,151 | TotalAssetsBOYAmt |
| Total Assets EOY | $2,744,200 | TotalAssetsEOYAmt |
| Total Liabilities BOY | $1,009,080 | TotalLiabilitiesBOYAmt |
| Total Liabilities EOY | $1,001,080 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $3,574,071 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $1,743,120 | NetAssetsOrFundBalancesEOYAmt |
| Info In Schedule O Part III | Yes (X) | InfoInScheduleOPartIIIInd |
| Mission | The mission of the Child Neurology Foundation is to serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care - and the highest quality of life-for every child. | MissionDesc |
| Significant New Program Srvc | Yes (1) | SignificantNewProgramSrvcInd |
| Significant Change | 0 | SignificantChangeInd |
| Expense | $345,600 | ExpenseAmt |
| Grant | $319,500 | GrantAmt |
| Revenue | $0 | RevenueAmt |
| Desc | RESEARCH GRANTS: Since 2001, CNF has proudly awarded grants and scholarships totaling over $4.87M to child neurologists, medical students, institutions, and researchers who are working on treatments and cures for pediatric ne urologic diseases. To encourage collaboration and increase research, the Foundation awarded a $150,000 Pediatric Epilepsy Research Foundation (PERF) Elterman and a $150,000 PERF Shields Research Grant in 2022 to support clinical or basic science research by a child neurologist or developmental pediatrician early in their academic career who are members of the Child Neurology Society. To further support interest in the field of child neurology, the Foundation also awarded three of the the Dr. Kenneth F. Swaiman Medical Student Scholarships in the amount of $5,000 for medical students interested in exploring a career in child neurology, plus $1,000 travel stipend for attendance at the Child Neurology Society Annual Meeting, and the Neurodevelopmental Disabilities Summer Research Scholarship of $3,500 to a medical student who has an interest in training in neurodevelopmental disabilities or child neurology. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $1,772,329 | ExpenseAmt |
| Grant | $161,875 | GrantAmt |
| Revenue | $15,965 | RevenueAmt |
| Desc | COMMUNITY SUPPORT AND EDUCATION: In 2022 , CNF provided 75 families with Chromebooks and hotspots to better access telehealth, provided emotional support to over 190 families, reached over 550 clinicians with education, and built collaborations with over 50 other patient advocacy organizations. Program topics included family support, digital access, Infantile Spams Action Network, transition of care, and shortening the diagnostic odyssey, transition of care, care coordination, preventing epilepsy deaths, and clinical trials. CNF also collected insights from over 1,600 families and child neurologists via surveys and focus groups. This information influences the development of CNF programming going forward. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Prog Srvc Expense | $0 | TotalOtherProgSrvcExpenseAmt |
| Total Other Prog Srvc Grant | $0 | TotalOtherProgSrvcGrantAmt |
| Total Other Prog Srvc Revenue | $0 | TotalOtherProgSrvcRevenueAmt |
| Total Program Service Expenses | $2,117,929 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (1) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (1) | ScheduleBRequiredInd |
| Political Campaign Acty | 0 | PoliticalCampaignActyInd |
| Lobbying Activities | Yes (1) | LobbyingActivitiesInd |
| Subject To Proxy Tax | 0 | SubjectToProxyTaxInd |
| Donor Advised Fund | 0 | DonorAdvisedFundInd |
| Conservation Easements | 0 | ConservationEasementsInd |
| Collections Of Art | 0 | CollectionsOfArtInd |
| Credit Counseling | 0 | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (1) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (1) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | 0 | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | 0 | ReportProgramRelatedInvstInd |
| Report Other Assets | 0 | ReportOtherAssetsInd |
| Report Other Liabilities | Yes (1) | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | Yes (1) | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (1) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | 0 | ConsolidatedAuditFinclStmtInd |
| School Operating | 0 | SchoolOperatingInd |
| Foreign Office | Yes (1) | ForeignOfficeInd |
| Foreign Activities | Yes (1) | ForeignActivitiesInd |
| More Than5000 K To Org | 0 | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | 0 | MoreThan5000KToIndividualsInd |
| Professional Fundraising | 0 | ProfessionalFundraisingInd |
| Fundraising Activities | 0 | FundraisingActivitiesInd |
| Gaming Activities | 0 | GamingActivitiesInd |
| Operate Hospital | 0 | OperateHospitalInd |
| Grants To Organizations | Yes (1) | GrantsToOrganizationsInd |
| Grants To Individuals | 0 | GrantsToIndividualsInd |
| Schedule J Required | Yes (1) | ScheduleJRequiredInd |
| Tax Exempt Bonds | 0 | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | 0 | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | 0 | PYExcessBenefitTransInd |
| Loan Outstanding | 0 | LoanOutstandingInd |
| Grant To Related Person | 0 | GrantToRelatedPersonInd |
| Business Rln With Org Mem | 0 | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | 0 | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | 0 | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | 0 | DeductibleNonCashContriInd |
| Deductible Art Contribution | 0 | DeductibleArtContributionInd |
| Terminate Operations | 0 | TerminateOperationsInd |
| Partial Liquidation | 0 | PartialLiquidationInd |
| Disregarded Entity | 0 | DisregardedEntityInd |
| Related Entity | 0 | RelatedEntityInd |
| Related Organization Ctrl Ent | 0 | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | 0 | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | 0 | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (1) | ScheduleORequiredInd |
| IRP Document | 23 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Employee | 11 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (1) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | 0 | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | 0 | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | 0 | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | 0 | TaxablePartyNotificationInd |
| Nondeductible Contributions | 0 | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | 0 | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | 0 | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | 0 | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | 0 | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | 0 | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | 0 | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | 0 | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 14 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 14 | IndependentVotingMemberCnt |
| Family Or Business Rln | 0 | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | 0 | DelegationOfMgmtDutiesInd |
| Change To Org Documents | Yes (1) | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | 0 | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | 0 | MembersOrStockholdersInd |
| Election Of Board Members | 0 | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | 0 | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (1) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (1) | MinutesOfCommitteesInd |
| Officer Mailing Address | 0 | OfficerMailingAddressInd |
| Local Chapters | 0 | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (1) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (1) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (1) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (1) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (1) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (1) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (1) | CompensationProcessCEOInd |
| Compensation Process Other | 0 | CompensationProcessOtherInd |
| Investment In Joint Venture | 0 | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | AK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | AR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | CT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | DC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | FL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | GA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | HI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | IL | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | KY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MD | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ME | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | MS | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | ND | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NJ | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NM | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NV | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OH | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OK | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | OR | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | PA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | RI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | SC | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | TN | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | UT | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | VA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WA | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WI | StatesWhereCopyOfReturnIsFldCd |
| States Where Copy Of Return Is Fld | WV | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Lindsey Taveren Director of Finance | PersonNm |
| Phone | 8595514987 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | PO Box 1226 | AddressLine1Txt |
| City | Lexington | CityNm |
| State Abbreviation | KY | StateAbbreviationCd |
| ZIP | 40588 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part VII | Yes (X) | InfoInScheduleOPartVIIInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (21 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | Average Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Key EmployeeKeyEmployeeInd | Highest Compensated EmployeeHighestCompensatedEmployeeInd | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|---|---|
| Amy Brin Executive Director | |||||||||
| Ex Officio Non-voting Member | 45.00 | 0 | Yes (X) | $299,644 | $0 | $85,940 | |||
| Greta Wright | |||||||||
| Chief Operations Officer | 41 | 0 | $191,270 | $0 | $79,646 | Yes (X) | |||
| Katie Hentges | |||||||||
| Director of Programs | 44 | 0 | $102,756 | $0 | $27,681 | Yes (X) | |||
| Dr Amaris Sanchez Larragoity | |||||||||
| Director | 1 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Donald Pearl | |||||||||
| Director | 1 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr John Millichap | |||||||||
| Director | 1 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr M Scott Perry | |||||||||
| Director | 2 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Madeline Chadehumbe | |||||||||
| Director | 1 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Rebecca Schultz | |||||||||
| Director | 2 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Sonika Agarwal | |||||||||
| Director | 2 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Bruce Cohen | |||||||||
| Ex Officio Child Neurology Society President | 2 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Peter Kang | |||||||||
| Ex Officio Child Neurology Society President-Elect | 1 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Anup Patel | |||||||||
| President | 5 | 0 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Dr Scott Pomeroy | |||||||||
| Past-President | 1 | 0 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Stephen Peters | |||||||||
| President-Elect | 3 | 0 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Dr Shaun Hussain | |||||||||
| Secretary | 2 | 0 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Timothy Engel | |||||||||
| Treasurer | 2 | 0 | Yes (X) | $0 | $0 | $0 | Yes (X) | ||
| Monique Terrell | |||||||||
| Ex Officio Child Neurology Society Executive Director Non-voting Member | 0.5 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Ann Tilton | |||||||||
| Ex Officio Honorary Director Non-voting member | 2 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr Mary Zupanc | |||||||||
| Ex Officio Honorary Director Non-voting member | 2 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Dr W Donald Shields | |||||||||
| Ex Officio Honorary Director Non-voting member | 2 | 0 | $0 | $0 | $0 | Yes (X) | |||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $593,670 | TotalReportableCompFromOrgAmt |
| Tot Reportable Comp Rltd Org | $0 | TotReportableCompRltdOrgAmt |
| Total Other Compensation | $193,267 | TotalOtherCompensationAmt |
| Indiv Rcvd Greater Than100 K | 3 | IndivRcvdGreaterThan100KCnt |
| Former Ofcr Employees Listed | 0 | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | Yes (1) | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | 0 | CompensationFromOtherSrcsInd |
Contractor Compensation ContractorCompensationGrp
Contractor Name ContractorName
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | Digital Health Solutions LLC | BusinessNameLine1Txt |
Contractor Address ContractorAddress
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 133 W Market St | AddressLine1Txt |
| Address Line2 | Number 238 | AddressLine2Txt |
| City | Indianapolis | CityNm |
| State Abbreviation | IN | StateAbbreviationCd |
| ZIP | 46204 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Services | Development of Child Health Improvement through Computer Automation system for child neurology | ServicesDesc |
| Compensation | $443,470 | CompensationAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Cntrct Rcvd Greater Than100 K | 1 | CntrctRcvdGreaterThan100KCnt |
| Federated Campaigns | $0 | FederatedCampaignsAmt |
| Membership Dues | $0 | MembershipDuesAmt |
| Fundraising | $0 | FundraisingAmt |
| Related Organizations | $0 | RelatedOrganizationsAmt |
| Government Grants | $59,013 | GovernmentGrantsAmt |
| All Other Contributions | $1,110,733 | AllOtherContributionsAmt |
| Noncash Contributions | $0 | NoncashContributionsAmt |
| Total Contributions | $1,169,746 | TotalContributionsAmt |
Program Service Revenue ProgramServiceRevenueGrp (2 entries)
| DescDesc | BusinessBusinessCd | Total Revenue ColumnTotalRevenueColumnAmt | Related Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt | Unrelated Business RevenueUnrelatedBusinessRevenueAmt | ExclusionExclusionAmt |
|---|---|---|---|---|---|
| Corporate Advisory Board | 900099 | $712,500 | $0 | $0 | $712,500 |
| Peer Support Program Webinars | 611430 | $15,965 | $15,965 | $0 | $0 |
Total Oth Program Service Rev TotalOthProgramServiceRevGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Revenue | $728,465 | TotalProgramServiceRevenueAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | -$30,731 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$30,731 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
Incm From Invest Bond Proceeds IncmFromInvestBondProceedsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
Royalties Revenue RoyaltiesRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
Rental Income Or Loss RentalIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Real | $0 | RealAmt |
| Personal | $0 | PersonalAmt |
Gain Or Loss GainOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Securities | $0 | SecuritiesAmt |
| Other | $0 | OtherAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contri Rpt Fundraising Event | $0 | ContriRptFundraisingEventAmt |
Other Revenue Misc OtherRevenueMiscGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Credit card rebate | Desc |
| Business | 900099 | BusinessCd |
| Total Revenue Column | $2,000 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $2,000 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
Miscellaneous Revenue MiscellaneousRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $0 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | $0 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $0 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Revenue Total | $2,000 | OtherRevenueTotalAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $1,869,480 | TotalRevenueColumnAmt |
| Related Or Exempt Func Income | -$12,766 | RelatedOrExemptFuncIncomeAmt |
| Unrelated Business Revenue | $0 | UnrelatedBusinessRevenueAmt |
| Exclusion | $712,500 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $475,375 | TotalAmt |
| Program Services | $475,375 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,000 | TotalAmt |
| Program Services | $1,000 | ProgramServicesAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,000 | TotalAmt |
| Program Services | $5,000 | ProgramServicesAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $645,318 | TotalAmt |
| Program Services | $80,284 | ProgramServicesAmt |
| Management And General | $477,001 | ManagementAndGeneralAmt |
| Fundraising | $88,033 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $664,680 | TotalAmt |
| Program Services | $271,913 | ProgramServicesAmt |
| Management And General | $275,529 | ManagementAndGeneralAmt |
| Fundraising | $117,238 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $155,019 | TotalAmt |
| Program Services | $63,769 | ProgramServicesAmt |
| Management And General | $62,178 | ManagementAndGeneralAmt |
| Fundraising | $29,072 | FundraisingAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $45,141 | TotalAmt |
| Program Services | $18,569 | ProgramServicesAmt |
| Management And General | $18,106 | ManagementAndGeneralAmt |
| Fundraising | $8,466 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $21,276 | TotalAmt |
| Program Services | $5,286 | ProgramServicesAmt |
| Management And General | $12,955 | ManagementAndGeneralAmt |
| Fundraising | $3,035 | FundraisingAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $65,708 | TotalAmt |
| Program Services | $31,295 | ProgramServicesAmt |
| Management And General | $34,413 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,544 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $15,544 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Prof Fundraising FeesForServicesProfFundraising
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,188 | TotalAmt |
| Fundraising | $12,188 | FundraisingAmt |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,027,169 | TotalAmt |
| Program Services | $889,322 | ProgramServicesAmt |
| Management And General | $112,160 | ManagementAndGeneralAmt |
| Fundraising | $25,687 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,926 | TotalAmt |
| Program Services | $175 | ProgramServicesAmt |
| Management And General | $1,751 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $12,390 | TotalAmt |
| Program Services | $952 | ProgramServicesAmt |
| Management And General | $9,890 | ManagementAndGeneralAmt |
| Fundraising | $1,548 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $260,564 | TotalAmt |
| Program Services | $223,476 | ProgramServicesAmt |
| Management And General | $26,371 | ManagementAndGeneralAmt |
| Fundraising | $10,717 | FundraisingAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $49,661 | TotalAmt |
| Program Services | $19,054 | ProgramServicesAmt |
| Management And General | $23,219 | ManagementAndGeneralAmt |
| Fundraising | $7,388 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $168,662 | TotalAmt |
| Program Services | $25,102 | ProgramServicesAmt |
| Management And General | $122,645 | ManagementAndGeneralAmt |
| Fundraising | $20,915 | FundraisingAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $16,028 | TotalAmt |
| Program Services | $14,928 | ProgramServicesAmt |
| Management And General | $1,100 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,900 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $1,900 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $0 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,367 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $8,367 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $9,575 | TotalAmt |
| Program Services | $0 | ProgramServicesAmt |
| Management And General | $9,575 | ManagementAndGeneralAmt |
| Fundraising | $0 | FundraisingAmt |
Other Expenses OtherExpensesGrp (3 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | Management And GeneralManagementAndGeneralAmt | FundraisingFundraisingAmt |
|---|---|---|---|---|
| Bad Debt Expense | $25,000 | $0 | $25,000 | $0 |
| Dues & Subscriptions | $776 | $0 | $776 | $0 |
| Present Value Adj on Grants Payable | -$7,571 | -$7,571 | $0 | $0 |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $3,680,696 | TotalAmt |
| Program Services | $2,117,929 | ProgramServicesAmt |
| Management And General | $1,238,480 | ManagementAndGeneralAmt |
| Fundraising | $324,287 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $387,276 | BOYAmt |
| EOY | $170,536 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,598,955 | BOYAmt |
| EOY | $1,063,446 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,923,611 | BOYAmt |
| EOY | $954,169 | EOYAmt |
Accounts Receivable AccountsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $5,907 | EOYAmt |
Receivables From Officers Etc ReceivablesFromOfficersEtcGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $31,401 | BOYAmt |
| EOY | $8,896 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $80,937 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $54,950 | LandBldgEquipAccumDeprecAmt |
Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $19,274 | BOYAmt |
| EOY | $25,987 | EOYAmt |
Investments Pub Traded Sec InvestmentsPubTradedSecGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $523,677 | BOYAmt |
| EOY | $446,669 | EOYAmt |
Investments Other Securities InvestmentsOtherSecuritiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Other Assets Total OtherAssetsTotalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $98,957 | BOYAmt |
| EOY | $68,590 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,583,151 | BOYAmt |
| EOY | $2,744,200 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $270,023 | BOYAmt |
| EOY | $290,630 | EOYAmt |
Grants Payable GrantsPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $299,536 | BOYAmt |
| EOY | $391,965 | EOYAmt |
Deferred Revenue DeferredRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $235,000 | BOYAmt |
| EOY | $158,000 | EOYAmt |
Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Escrow Account Liability EscrowAccountLiabilityGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Loans From Officers Directors LoansFromOfficersDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $100,000 | BOYAmt |
| EOY | $90,000 | EOYAmt |
Other Liabilities OtherLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $104,521 | BOYAmt |
| EOY | $70,485 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $1,009,080 | BOYAmt |
| EOY | $1,001,080 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $448,077 | BOYAmt |
| EOY | $575,013 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,125,994 | BOYAmt |
| EOY | $1,168,107 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $3,574,071 | BOYAmt |
| EOY | $1,743,120 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $4,583,151 | BOYAmt |
| EOY | $2,744,200 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$1,811,216 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$19,735 | NetUnrlzdGainsLossesInvstAmt |
| Donated Services And Use Fclts | $0 | DonatedServicesAndUseFcltsAmt |
| Investment Expense | $0 | InvestmentExpenseAmt |
| Prior Period Adjustments | $0 | PriorPeriodAdjustmentsAmt |
| Other Changes In Net Assets | $0 | OtherChangesInNetAssetsAmt |
| Method Of Accounting Accrual | Yes (X) | MethodOfAccountingAccrualInd |
| Accountant Compile Or Review | 0 | AccountantCompileOrReviewInd |
| FS Audited | Yes (1) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (1) | AuditCommitteeInd |
| Federal Grant Audit Required | 0 | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Organization170 | Yes (X) | PublicOrganization170Ind |
Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,454,513 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,823,166 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,984,818 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,751,727 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,169,746 | CurrentTaxYearAmt |
| Total | $10,183,970 | TotalAmt |
Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $0 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $0 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $0 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $0 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $0 | CurrentTaxYearAmt |
| Total | $0 | TotalAmt |
Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $0 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $0 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $0 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $0 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $0 | CurrentTaxYearAmt |
| Total | $0 | TotalAmt |
Total Calendar Year170 TotalCalendarYear170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $1,454,513 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $1,823,166 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,984,818 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $2,751,727 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $1,169,746 | CurrentTaxYearAmt |
| Total | $10,183,970 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Substantial Contributors Tot | $4,922,538 | SubstantialContributorsTotAmt |
| Public Support Total170 | $5,261,432 | PublicSupportTotal170Amt |
Gross Investment Income170 GrossInvestmentIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | -$9,974 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $29,253 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $16,769 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $17,275 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | -$50,465 | CurrentTaxYearAmt |
| Total | $2,858 | TotalAmt |
Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $0 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $0 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $0 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $0 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $0 | CurrentTaxYearAmt |
| Total | $0 | TotalAmt |
Other Income170 OtherIncome170Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $600 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $0 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $2,250 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $1,750 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $2,000 | CurrentTaxYearAmt |
| Total | $6,600 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Support | $10,193,428 | TotalSupportAmt |
| Gross Receipts Rltd Activities | $728,465 | GrossReceiptsRltdActivitiesAmt |
| Public Support CY170 | 0.51616 | PublicSupportCY170Pct |
| Public Support PY170 | 0.47512 | PublicSupportPY170Pct |
| Thirty Thr Pct Suprt Tests CY170 | Yes (X) | ThirtyThrPctSuprtTestsCY170Ind |
Form990 Schedule A Part VI Form990ScheduleAPartVIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule A, Part II, Line 10 | FormAndLineReferenceDesc |
| Explanation | Miscellaneous Revenue - $2,000 from credit card rewards | ExplanationTxt |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule C IRS990ScheduleC
| Field | Value | IRS element (for citing) |
|---|---|---|
| Volunteers | 0 | VolunteersInd |
| Paid Staff Or Management | Yes (1) | PaidStaffOrManagementInd |
| Media Advertisements | 0 | MediaAdvertisementsInd |
| Mailings Members | Yes (1) | MailingsMembersInd |
| Mailings Members | $4,129 | MailingsMembersAmt |
| Publications Or Broadcast | 0 | PublicationsOrBroadcastInd |
| Grants Other Organizations | 0 | GrantsOtherOrganizationsInd |
| Direct Contact Legislators | Yes (1) | DirectContactLegislatorsInd |
| Direct Contact Legislators | $1,032 | DirectContactLegislatorsAmt |
| Rallies Demonstrations | 0 | RalliesDemonstrationsInd |
| Other Activities | 0 | OtherActivitiesInd |
| Total Lobbying Expenditures | $5,161 | TotalLobbyingExpendituresAmt |
| Not Described Section501c3 | 0 | NotDescribedSection501c3Ind |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule C, Part II-B, Line 1 | FormAndLineReferenceDesc |
| Explanation | The Child Neurology Foundation aims to raise awareness, influence policy changes, and improve the lives of children facing neurological challenges and their families. We engage in lobbying activities to directly communicate our organization's goals and perspectives to policymakers. In building relationships with legislators and their staff, we work to educate them about the needs and concerns of children with neurological conditions and their families. Our lobbying efforts focus on proposing and supporting legislation that promotes access to quality healthcare, inclusive education, and social support systems. To strengthen our advocacy efforts, we conduct comprehensive research and analysis of existing policies related to children with neurological conditions. By studying the current legal and regulatory framework, we identify gaps and areas that require improvement. Our research findings inform our lobbying strategies and enable us to propose evidence-based policy solutions that address the specific needs of the children and families we serve. We actively collaborate with other nonprofits, advocacy organizations, and stakeholders working in the field of children's neurological conditions. Through these partnerships, we amplify our collective voice and advocate for common goals. By joining forces, we enhance our advocacy impact and create a united front in advocating for policy changes that benefit children with neurological conditions and their families. We engage our community members, volunteers, and families affected by neurological conditions to participate in our advocacy efforts. Through targeted campaigns, we raise awareness about the issues faced by children with neurological conditions, encouraging individuals to contact their legislators and voice their support for policies that enhance the well-being and opportunities for these children. We provide resources, toolkits, and guidance to empower our grassroots supporters in advocating effectively. | ExplanationTxt |
Schedule D IRS990ScheduleD
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $134,075 | BeginningYearBalanceAmt |
| Contributions | $700 | ContributionsAmt |
| Investment Earnings Or Losses | -$16,454 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $3,500 | GrantsOrScholarshipsAmt |
| Other Expenditures | $429 | OtherExpendituresAmt |
| Administrative Expenses | $1,370 | AdministrativeExpensesAmt |
| End Year Balance | $113,022 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $133,951 | BeginningYearBalanceAmt |
| Contributions | $0 | ContributionsAmt |
| Investment Earnings Or Losses | $4,974 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $3,500 | GrantsOrScholarshipsAmt |
| Other Expenditures | $0 | OtherExpendituresAmt |
| Administrative Expenses | $1,350 | AdministrativeExpensesAmt |
| End Year Balance | $134,075 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $130,017 | BeginningYearBalanceAmt |
| Contributions | $0 | ContributionsAmt |
| Investment Earnings Or Losses | $8,783 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $3,500 | GrantsOrScholarshipsAmt |
| Other Expenditures | $0 | OtherExpendituresAmt |
| Administrative Expenses | $1,349 | AdministrativeExpensesAmt |
| End Year Balance | $133,951 | EndYearBalanceAmt |
CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $115,616 | BeginningYearBalanceAmt |
| Contributions | $0 | ContributionsAmt |
| Investment Earnings Or Losses | $20,183 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $3,500 | GrantsOrScholarshipsAmt |
| Other Expenditures | $0 | OtherExpendituresAmt |
| Administrative Expenses | $2,282 | AdministrativeExpensesAmt |
| End Year Balance | $130,017 | EndYearBalanceAmt |
CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $130,442 | BeginningYearBalanceAmt |
| Contributions | $0 | ContributionsAmt |
| Investment Earnings Or Losses | -$9,974 | InvestmentEarningsOrLossesAmt |
| Grants Or Scholarships | $3,500 | GrantsOrScholarshipsAmt |
| Other Expenditures | $0 | OtherExpendituresAmt |
| Administrative Expenses | $1,352 | AdministrativeExpensesAmt |
| End Year Balance | $115,616 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Board Designated Balance EOY | 0 | BoardDesignatedBalanceEOYPct |
| Prmnnt Endowment Balance EOY | 0.89 | PrmnntEndowmentBalanceEOYPct |
| Term Endowment Balance EOY | 0.11 | TermEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | 0 | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | 0 | EndowmentsHeldRelatedOrgInd |
Land LandGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Investment Cost Or Other Basis | $0 | InvestmentCostOrOtherBasisAmt |
| Other Cost Or Other Basis | $0 | OtherCostOrOtherBasisAmt |
| Book Value | $0 | BookValueAmt |
Buildings BuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Investment Cost Or Other Basis | $0 | InvestmentCostOrOtherBasisAmt |
| Other Cost Or Other Basis | $0 | OtherCostOrOtherBasisAmt |
| Depreciation | $0 | DepreciationAmt |
| Book Value | $0 | BookValueAmt |
Leasehold Improvements LeaseholdImprovementsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Investment Cost Or Other Basis | $0 | InvestmentCostOrOtherBasisAmt |
| Other Cost Or Other Basis | $0 | OtherCostOrOtherBasisAmt |
| Depreciation | $0 | DepreciationAmt |
| Book Value | $0 | BookValueAmt |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Investment Cost Or Other Basis | $21,803 | InvestmentCostOrOtherBasisAmt |
| Other Cost Or Other Basis | $0 | OtherCostOrOtherBasisAmt |
| Depreciation | $12,191 | DepreciationAmt |
| Book Value | $9,612 | BookValueAmt |
Other Land Buildings OtherLandBuildingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Investment Cost Or Other Basis | $59,134 | InvestmentCostOrOtherBasisAmt |
| Other Cost Or Other Basis | $0 | OtherCostOrOtherBasisAmt |
| Depreciation | $42,759 | DepreciationAmt |
| Book Value | $16,375 | BookValueAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Land Buildings | $25,987 | TotalBookValueLandBuildingsAmt |
| Federal Income Tax Liability | $0 | FederalIncomeTaxLiabilityAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)
| DescDesc | AmtAmt |
|---|---|
| Lease Liability - Current | $34,829 |
| Lease Liability - Longterm | $35,656 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Liability | $70,485 | TotalLiabilityAmt |
| Footnote Text | Yes (X) | FootnoteTextInd |
| Total Rev Etc Audited Fincl Stmt | $1,874,611 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$19,734 | NetUnrealizedGainsInvstAmt |
| Donated Services And Use Fclts | $24,865 | DonatedServicesAndUseFcltsAmt |
| Recoveries Prior Year Grants | $0 | RecoveriesPriorYearGrantsAmt |
| Other Revenue | $0 | OtherRevenueAmt |
| Revenue Not Reported | $5,131 | RevenueNotReportedAmt |
| Revenue Subtotal | $1,869,480 | RevenueSubtotalAmt |
| Investment Expenses Not Incld | $0 | InvestmentExpensesNotIncldAmt |
| Other Revenues Not Included | $0 | OtherRevenuesNotIncludedAmt |
| Revenue Not Reported Fincl Stmt | $0 | RevenueNotReportedFinclStmtAmt |
| Total Revenue Per Form990 | $1,869,480 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $3,705,562 | TotExpnsEtcAuditedFinclStmtAmt |
| Donated Services Use Fclts | $24,866 | DonatedServicesUseFcltsAmt |
| Prior Year Adjustments | $0 | PriorYearAdjustmentsAmt |
| Losses Reported | $0 | LossesReportedAmt |
| Other Expenses Included | $0 | OtherExpensesIncludedAmt |
| Expenses Not Reported | $24,866 | ExpensesNotReportedAmt |
| Expenses Subtotal | $3,680,696 | ExpensesSubtotalAmt |
| Investment Expenses Not Incld2 | $0 | InvestmentExpensesNotIncld2Amt |
| Other Expenses Not Included | $0 | OtherExpensesNotIncludedAmt |
| Expenses Not Rpt Fincl Stmt | $0 | ExpensesNotRptFinclStmtAmt |
| Total Expenses Per Form990 | $3,680,696 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail (2 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Schedule D, Part V, Line 4 | In 2010, the Society of Neurodevelopment Disabilities (NDD) dissolved, and thereby, transferred remaining assets to CNF. These funds are intended to endow an annual educational scholarship for medical students interested in the field of child neurology, with priority given to an applicant focused on neuro-developmental disabilities. The annual award amount is currently $3,500, with an allowance for travel expenses to CNS as approved by the NDD Committee. The amount or number of awards may be adjusted based on endowment value as approved by the board of CNF. |
| Schedule D, Part X, Line 2 | The Foundation is organized and operates on a not-for-profit basis and its tax-exempt status has been recognized by the internal revenue service under section 501(c)(3). The Foundation is classified as an organization which is not private foundations under the internal revenue code (IRC) and charitable contributions by donors are tax deductible. The Foundation is subject to unrelated business income taxes under the IRC for federal and state tax purposes. The Foundation follows the provisions of FASB, which requires a tax position be recognized or derecognized based on a "more likely than not" threshold. This applies to positions taken or expected to be taken in a tax return. The Foundation does not believe its financial statements include any uncertain tax positions. The Foundation's tax returns are subject to review and examination by federal authorities. |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp (2 entries)
| RegionRegionTxt | OfficesOfficesCnt | EmployeeEmployeeCnt | Type Of Activities ConductedTypeOfActivitiesConductedTxt | Specific Services ProvidedSpecificServicesProvidedTxt | Region Total ExpendituresRegionTotalExpendituresAmt |
|---|---|---|---|---|---|
| Europe (including Iceland and Greenland) | 0 | 0 | Grantmaking | Infantile Spasms Awareness Week Grant to the UK Infantile Spasms Trust | $5,000 |
| North America (including Canada and Mexico, but not the United States) | 0 | 1 | Program Services | Marketing and programming services | $5,995 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Office | 0 | TotalOfficeCnt |
| Total Employee | 1 | TotalEmployeeCnt |
| Total Spent | $10,995 | TotalSpentAmt |
| Transfer To Foreign Corp | 0 | TransferToForeignCorpInd |
| Interest In Foreign Trust | 0 | InterestInForeignTrustInd |
| Foreign Corp Ownership | 0 | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | 0 | PassiveForeignInvestmestCoInd |
| Foreign Partnership | 0 | ForeignPartnershipInd |
| Boycott Countries | 0 | BoycottCountriesInd |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | Schedule F, Part I, Line 2 | FormAndLineReferenceDesc |
| Explanation | Starting in 2016, CNF provided grants to support organizations' efforts in increasing infantile spasms awareness. To be eligible for an award, an organization needs to be a member of Infantile Spasms Action Network (ISAN) and complete the grant application. If all criteria on the application was met, then the organization was cut a check. Each organization awarded was required to submit a reconciliation report 90-days after the completion of their awareness building activity concluded. | ExplanationTxt |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (1) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (7 entries)
| Address Line1USAddress/AddressLine1Txt | CityUSAddress/CityNm | State AbbreviationUSAddress/StateAbbreviationCd | ZIPUSAddress/ZIPCd | Recipient EINRecipientEIN | IRC SectionIRCSectionDesc | Cash GrantCashGrantAmt | Non Cash AssistanceNonCashAssistanceAmt | Purpose Of GrantPurposeOfGrantTxt | Address Line2USAddress/AddressLine2Txt | Business Name Line2RecipientBusinessName/BusinessNameLine2Txt |
|---|---|---|---|---|---|---|---|---|---|---|
| Ann and Robert H Lurie Children's Hospital of Chicago | ||||||||||
| 225 E Chicago Avenue | Chicago | IL | 60611 | 362170833 | 501c3 | $175,000 | $0 | 2023 PERF Grant - $150,000; 2023 Transition of Care Quality Improvement Grant - $25,000 | ||
| University of Rochester | ||||||||||
| 500 Joseph C Wilson Blvd | Rochester | NY | 14627 | 160743209 | 501c3 | $150,000 | $0 | 2023 PERF Grant - $150,000 | RC Box 270140 | |
| National Tuberous Sclerosis Association | ||||||||||
| 8737 Colesville Road | Silver Spring | MD | 20910 | 953018799 | 501c3 | $41,375 | $0 | 2022 Infantile Spasms Awareness Network Governance Grant - $36,375; 2022 Infantile Spasms Awareness Week Grant - $5,000 | Suite 400 | DBA TSC Alliance |
| Child Neurology Society | ||||||||||
| 1000 West County Road E | St Paul | MN | 55126 | 237359775 | 501c3 | $31,000 | $0 | 2022 Unrestricted Symposium Grant - $30,000; Dodge Research Grant Contribution - $1,000 | Suite 290 | |
| Children's Hospital Corporation | ||||||||||
| 300 Longwood Avenue | Boston | MA | 02115 | 042774441 | 501c3 | $25,000 | $0 | 2022 Transition of Care Quality Improvement Grant | DBA Boston Children's Hospital | |
| American Epilepsy Society | ||||||||||
| 135 South LaSalle St | Chicago | IL | 60603 | 046112600 | 501c3 | $12,500 | $0 | 2022 Unrestricted Symposium Grant - $10,000; 2022 Parents Against Mortality in Epilepsy (PAME) Grant - $2,500 | Suite 2850 | |
| Dup15q Alliance Inc | ||||||||||
| PO Box 1669 | Highland Park | IL | 60035 | 200751232 | 501c3 | $12,000 | $0 | 2022 Infantile Spasms Awareness Network Governance Grant - $7,000; 2022 Infantile Spasms Awareness Week Grant - $5,000 | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total501c3 Org | 14 | Total501c3OrgCnt |
| Total Other Org | 14 | TotalOtherOrgCnt |
Supplemental Information Detail SupplementalInformationDetail (3 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Schedule I, Part I, Line 2 | Since 2001, the CNF has attracted premier young investigators for its awards. We publicize the award to request candidates with the American Academy of Neurology; Professors of Child Neurology; Child Neurology Society; and the American Academy of Pediatrics. Applications reviewed via a defined methodology community. Upon grant award, recipients sign a contract with CNF which outlines expectations for reporting during and at the conclusion of the grant award. CNF manages the execution of the grant administration and reporting throughout the grant duration. Child neurologist researcher applicants are asked to submit a letter of application. These letters are ranked by a committee of well-respected child neurologists. (Members avoid conflict of interest by recusing themselves.) Top contenders are invited to submit full applications. CNF uses a hybrid of the NIH research application. The committee then ranks and submits the top applicant to the CNF Board of Directors for confirmation. Outside donors are not involved in the selection of the awardee or any guidelines regarding the use of research funds. Grant award checks are never made payable to the individual researcher. Rather, checks are made payable to the institutions for which they either work or go to school. Reports are required of the researcher at the midpoint of their research in the form of progress reports and at the end to show the results of their research. In the case of scholarship recipients, the same is true. Check are made payable to their institution and their reports are due at the end of their research. Additionally, starting in 2016, CNF provided grants to support organizations' efforts in increasing infantile spasms awareness. To be eligible for an award, an organization needs to be a member of infantile spasms action network and complete the grant application. If all criteria on the application was met, then the organization was cut a check. Each organization awarded was required to submit a reconciliation report 90-days after the completion of their awareness building activity concluded . CNF also provides grants to support projects that improve the quality of care provided to patients and families at the clinic level. These projects can be things like quality improvement projects, research projects, or other clinic process improvements to directly improving the relationships between families and medical professionals. |
| Schedule I, Part II, Line 1 | PERF GRANT DESCRIPTION: The Pediatric Epilepsy Research Foundation, PERF, has partnered with the CNF Research Grants Program annually since 2001. Their mission is to enhance the quality of life of children (and their families) with epilepsy and/or other neurologic disorders. PERF supports research primarily in pediatric epilepsy and/or all areas of pediatric neurology research. PERF also supports education and recruitment of young physicians in the field of child neurology. The grants are named PERF Elterman Research Grant and PERF Shields Research Grant; INFANTILE SPASMS AWARENESS WEEK GRANT DESCRIPTION: Two $5,000 grants were given out to participating organizations in the Infantile Spasms Action Network to support projects that increased public awareness of infantile spasms during Infantile Spasms Awareness Week; TRANSITION OF CARE GRANT DESCRIPTION: The Child Neurology Foundation (CNF) expanded our work in Transition of Care by awarding two $25,000 grants to institutions to improve Transition of Care practices. NDD AWARD DESCRIPTION: The Neuro Developmental Disorder (NDD) Research Scholarship is a clinical research scholarship for a first- or second-year US or Canadian medical student who has an interest in training in neurodevelopmental disabilities or child neurology. The award is made for clinical research focused in the field of neurodevelopmental disabilities in children or young adults to be conducted under the direction of a child neurology/NDD subspecialist. SWAIMAN AWARD DESCRIPTION: To honor the legacy of Dr. Swaiman and his contribution to child neurology, the Child Neurology Foundation (CNF) offers the Dr. Kenneth F. Swaiman Medical Student Scholarship thanks to the support of his wife and pediatric neurologist Dr. Phyllis Sher. Administered annually, the $5,000 summer research scholarship was be given to each of three (3) U.S. or Canadian medical students who have an interest in exploring a career in child neurology. Travel expenses of up to $1,000 were provided to attend the annual Child Neurology Society meeting. The award will be open to second or third-year medical students for a basic or clinical research project in child neurology conducted under the direction of a child neurologist. |
| Schedule I, Part III | HARNETT GRANT DESCRIPTION: Brendan Harnett Infantile Spasms Family Grant - Founded in 2014 by Dr. Michael Harnett as an enduring memorial to his nephew, Brendan Michael Harnett. Brendan was diagnosed with infantile spasms and passed away before his first birthday. CNF gratefully partnered with the Harnett family again in 2022 to honor Brendan through offering one $1,000 grant to assist families living with infantile spasms. |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Club Dues Or Fees | Yes (X) | ClubDuesOrFeesInd |
| Written Policy Ref T And E Expnss | Yes (1) | WrittenPolicyRefTAndEExpnssInd |
| Substantiation Required | Yes (1) | SubstantiationRequiredInd |
| Compensation Committee | Yes (X) | CompensationCommitteeInd |
| Form990 Of Other Organizations | Yes (X) | Form990OfOtherOrganizationsInd |
| Written Employment Contract | Yes (X) | WrittenEmploymentContractInd |
| Compensation Survey | Yes (X) | CompensationSurveyInd |
| Board Or Committee Approval | Yes (X) | BoardOrCommitteeApprovalInd |
| Severance Payment | Yes (1) | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | 0 | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | 0 | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | 0 | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | 0 | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | 0 | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | 0 | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | Yes (1) | AnyNonFixedPaymentsInd |
| Initial Contract Exception | 0 | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (2 entries)
| TitleTitleTxt | Base Compensation Filing OrgBaseCompensationFilingOrgAmt | Compensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmt | Bonus Filing OrganizationBonusFilingOrganizationAmount | Bonus Related OrganizationsBonusRelatedOrganizationsAmt | Other Compensation Filing OrgOtherCompensationFilingOrgAmt | Other Compensation Rltd OrgsOtherCompensationRltdOrgsAmt | Deferred Compensation Flng OrgDeferredCompensationFlngOrgAmt | Deferred Comp Rltd OrgsDeferredCompRltdOrgsAmt | Nontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt | Nontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmt | Total Compensation Filing OrgTotalCompensationFilingOrgAmt | Total Compensation Rltd OrgsTotalCompensationRltdOrgsAmt | Comp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmt | Comp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Amy Brin Executive Director | ||||||||||||||
| Ex Officio Non-voting Member | $249,276 | $0 | $50,164 | $0 | $204 | $0 | $65,575 | $0 | $20,364 | $0 | $385,583 | $0 | $74,611 | $0 |
| Greta Wright | ||||||||||||||
| Chief Operations Officer | $172,544 | $0 | $18,500 | $0 | $226 | $0 | $48,354 | $0 | $31,292 | $0 | $270,916 | $0 | $44,456 | $0 |
Supplemental Information Detail SupplementalInformationDetail (4 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Schedule J, Part I, Line 1a | In 2022 the Foundation provided the Executive Director with the benefit of Delta Skyclub Membership. Receipts were required to substantiate the expense. |
| Schedule J, Part I, Line 3 | Child Neurology Foundation contracted with TriNet, a cloud-based professional employer organization (PEO), and all employees of the CNF are co-employees with TriNet. The CNF's Board of Directors is responsible for hiring and setting the compensation of the Executive Director. The Board employs procedures including: a separate compensation committee, use of a compensation survey/study, review of other organization's 990s, and no involvement of persons with conflict of interest. The Board last set compensation in 2022. |
| Schedule J, Part I, Line 4 | A former employee holding a senior position received severance pay which is accrued in the Foundation's 2022 personnel expenses as well as included in Part VII, Column F "Other Compensation" as well as in Schedule J, Column C "Retirement and other deferred compensation". |
| Schedule J, Part I, Line 7 | All Foundation staff are eligible for an annual bonus, typically paid in January for the prior year's work. Due to the reporting requirements of Schedule J, the 2021 bonus paid in 2022 is reflected in part B column ii, and the deferred bonus for 2022 is included in Column C. This results in a double counting of bonus income. Similarly, on Part VII the 2021 bonus paid in 2022 is included in column D, and the deferred bonus for 2022 is included in Column F. The Board Compensation Committee determines the bonus of the Executive Director based on the year end performance review. The Executive Director determines staff eligibility based on annual performance reviews. |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (8 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part III, Line 2 | The Neurology Social Services Network (NSSN) was launched by CNF in 2022 to help patient advocacy organizations refer families to local service organizations to address social determinants of health. Some examples of services for families include access to food shelves, transportation assistance, and housing assistance. The program also tracks the outcomes of those referrals, measures the impact of organizational programs, and collaboratively aggregates data about how patient advocacy organizations are making an impact. |
| Form 990, Part VI, Section A, Line 4 | During the fiscal year 2022, Child Neurology Foundation made significant changes to its governing documents. These changes were implemented to enhance the organization's governance structure, ensure compliance with evolving legal and regulatory requirements, and to adapt to the evolving needs of our organization and the communities we serve. These changes were undertaken after thorough review and deliberation by the Board of Directors and in consultation with legal counsel to ensure compliance with all relevant laws, regulations, and best practices. It is important to note that these changes do not impact the tax-exempt status of the Child Neurology Foundation. The organization continues to operate exclusively for charitable purposes as defined under section 501(c)(3) of the Internal Revenue Code. BYLAWS AMENDMENTS: The Child Neurology Foundation amended its bylaws to reflect updated language and provisions that align with the organization's current operations and strategic direction. These amendments include updated headquarters address, board meeting requirements, and the addition of the Finance Committee established in 2019. ARTICLES OF INCORPORATION AMENDMENTS: Amendments were made to Child Neurology Foundation's Articles of Incorporation to update the organization's purpose statement, ensuring it accurately reflects its mission and activities. Additionally, clarification was made for allowable advocacy activities, to comply with applicable state and federal laws and regulations. |
| Form 990, Part VI, Section B, Line 11b | The Executive Director/CEO, Treasurer, Director of Accounting and Finance, and external counsel undertook extensive review of the draft form 990 prior to presenting to the finance committee for review. The final form 990 is presented to the board of directors for their review and approval prior to filing. |
| Form 990, Part VI, Section B, Line 12c | The Foundation has a conflict of interest policy covering all board members and any other person who has an official position with the Foundation. Board members complete a conflict of interest policy form on an annual basis which is monitored and previewed by the board officers after submission. If a director is uncertain whether a conflict of interest exists, the conflict of interest policy states that it is better to err on the side of disclosure. When a director is aware of a potential conflict of interest the director must promptly disclose that conflict to the chair or to the full Board, as appropriate. The board would determine the severity of the conflict and the appropriate action to take, including omission from voting on any related matters and document in the meeting minutes. In certain cases a director may be removed from the official Foundation capacity if they are not able to divest from the conflicting relationship. |
| Form 990, Part VI, Section B, Line 15 | The Foundation's executive committee is responsible for hiring and setting the compensation of the executive director. The committee employs procedures (use of compensation surveys and board approval) and last set compensation in 2022. |
| Form 990, Part VI, Section C, Line 19 | The Foundation does not make its governing documents or conflict of interest policy available to the public. The most recent three years of IRS Form 990s and Audited financial statements are available at https://www.childneurologyfoundation.org/about-cnf/ |
| Form 990, Part VII, Section B, Line 1(B) | Digital Health Solutions LLC: Development of the Child Health Improvement through Computerized Automation - Child Neurology |
| Form 990, Part IX, Line 11g | The Child Neurology Foundation spent $583,705 in 2022 on contractor/service providers with specialized skills to assist with program management, advocacy, meeting and event facilitation, and marketing. The Foundation also spent $443,470 on a contract with Digital Health Solutions LLC for the development of the Child Health Improvement through Computerized Automation - Child Neurology. |
Reasonable Cause Explanation ReasonableCauseExplanation
| Field | Value | IRS element (for citing) |
|---|---|---|
| Explanation | Extension filed | ExplanationTxt |
Comments