RARE VILLAGE FOUNDATION: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization
RARE VILLAGE FOUNDATION (EIN 83-4699994)
Tax period
2022-01-01 to 2022-12-31
Filed
2023-05-11
IRS object ID
202311319349302806
Schema version
2022v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2023-05-11T11:32:02-04:00ReturnTs
Tax Period End2022-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN742478664PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1TAX BUSTERS INCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line17310 REMCON CIR STE BAddressLine1Txt
CityEl PasoCityNm
State AbbreviationTXStateAbbreviationCd
ZIP79912ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2022-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN834699994EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1RARE VILLAGE FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlRAREBusinessNameControlTxt

US Address USAddress

FieldValueIRS element (for citing)
Address Line16808 OLD GLORY CTAddressLine1Txt
CityMCKINNEYCityNm
State AbbreviationTXStateAbbreviationCd
ZIP75071ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonGINA HANN OFFICERPersonNm
Person TitlePRESIDENT & DIRPersonTitleTxt
Phone2145700700PhoneNum
Signature2023-05-02SignatureDt
Discuss With Paid PreparerfalseDiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstGINAPersonFirstNm
Person LastHANNPersonLastNm

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonKenneth J Croucher JrPreparerPersonNm
PTINP00316524PTIN
Phone9158338299PhoneNum
Preparation2023-05-11PreparationDt

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer0TrustedCustomerCd
OOB Security Verification00OOBSecurityVerificationCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2022TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Gross Receipts$1,374,746GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressHTTPS://RAREVILLAGE.ORG/WebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2019FormationYr
Legal Domicile StateTXLegalDomicileStateCd
Activity Or MissionTO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURESActivityOrMissionDesc
Voting Members Governing Body4VotingMembersGoverningBodyCnt
Voting Members Independent0VotingMembersIndependentCnt
Total Employee0TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
CY Contributions Grants$1,374,501CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
CY Investment Income$245CYInvestmentIncomeAmt
CY Other Revenue$0CYOtherRevenueAmt
CY Total Revenue$1,374,746CYTotalRevenueAmt
CY Grants And Similar Paid$1,064,870CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
CY Salaries Comp Emp Bnft Paid$0CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$39,968CYTotalFundraisingExpenseAmt
CY Other Expenses$65,918CYOtherExpensesAmt
CY Total Expenses$1,130,788CYTotalExpensesAmt
CY Revenues Less Expenses$243,958CYRevenuesLessExpensesAmt
Total Assets BOY$958,533TotalAssetsBOYAmt
Total Assets EOY$1,202,491TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$958,533NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$1,202,491NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURESMissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$1,071,727ExpenseAmt
DescDONATED OVER ONE MILLION DOLLARS TO RESEARCH INITIATIVEDesc
Total Program Service Expenses$1,071,727TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document0IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee0EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Quid Pro Quo ContributionsYes (true)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (true)QuidProQuoContriDisclInd
Form8282 Property Disposed OffalseForm8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft CntrctfalseRcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft CntrctfalsePayPremiumsPrsnlBnftCntrctInd
DAF Excess Business HoldingsfalseDAFExcessBusinessHoldingsInd
Taxable DistributionsfalseTaxableDistributionsInd
Distribution To DonorfalseDistributionToDonorInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members4GoverningBodyVotingMembersCnt
Independent Voting Member0IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldTXStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonGINA HANN OFFICERPersonNm
Phone2145700700PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line16808 OLD GLORY CTAddressLine1Txt
CityMCKINNEYCityNm
State AbbreviationTXStateAbbreviationCd
ZIP75071ZIPCd
FieldValueIRS element (for citing)
No Listed Persons CompensatedYes (X)NoListedPersonsCompensatedInd

Form990 Part VII Section A Form990PartVIISectionAGrp (4 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
AMY SOWELL
TREASURER DIRECTOR3.000.00Yes (X)$0$0$0
AMBER FREED
DIRECTOR3.000.00Yes (X)$0$0$0
GINA HANN
PRESIDENT & DIRECTOR10.000.00Yes (X)$0$0$0
KASEY WOLLEBEN
VICE PRESIDENT SECRETARY DIRE10.000.00Yes (X)$0$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$0TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$0TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K0IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd
All Other Contributions$1,374,501AllOtherContributionsAmt
Total Contributions$1,374,501TotalContributionsAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$245TotalRevenueColumnAmt
Related Or Exempt Func Income$245RelatedOrExemptFuncIncomeAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,374,746TotalRevenueColumnAmt
Related Or Exempt Func Income$245RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$864,870TotalAmt
Program Services$864,870ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$200,000TotalAmt
Program Services$200,000ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$4,251TotalAmt
Program Services$4,251ProgramServicesAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$61TotalAmt
Program Services$61ProgramServicesAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$10,247TotalAmt
Management And General$10,247ManagementAndGeneralAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmt
SUPPLIES$2,377$2,377
POSTAGE$23$23
ADVERTISING$846$846
BANK FEES$145$145

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$47,968TotalAmt
Management And General$8,000ManagementAndGeneralAmt
Fundraising$39,968FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$1,130,788TotalAmt
Program Services$1,071,727ProgramServicesAmt
Management And General$19,093ManagementAndGeneralAmt
Fundraising$39,968FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$958,533BOYAmt
EOY$1,202,491EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$958,533BOYAmt
EOY$1,202,491EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$958,533BOYAmt
EOY$1,202,491EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$958,533BOYAmt
EOY$1,202,491EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$958,533BOYAmt
EOY$1,202,491EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$243,958ReconcilationRevenueExpnssAmt
Other Changes In Net Assets$0OtherChangesInNetAssetsAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewYes (true)AccountantCompileOrReviewInd

Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp

FieldValueIRS element (for citing)
Consolidated Basis Fincl StmtYes (X)ConsolidatedBasisFinclStmtInd
FieldValueIRS element (for citing)
FS AuditedfalseFSAuditedInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$100,025CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$38,873CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,314,036CurrentTaxYearMinus1YearAmt
Current Tax Year$1,374,501CurrentTaxYearAmt
Total$3,827,435TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus3 Years$100,025CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$38,873CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,314,036CurrentTaxYearMinus1YearAmt
Current Tax Year$1,374,501CurrentTaxYearAmt
Total$3,827,435TotalAmt
FieldValueIRS element (for citing)
Public Support Total170$3,827,435PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus1 Year$21CurrentTaxYearMinus1YearAmt
Current Tax Year$245CurrentTaxYearAmt
Total$266TotalAmt
FieldValueIRS element (for citing)
Total Support$3,827,701TotalSupportAmt
First5 Years170Yes (X)First5Years170Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule F IRS990ScheduleF

Grants To Org Outside US GrantsToOrgOutsideUSGrp (2 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtDescription Of Non Cash AsstDescriptionOfNonCashAsstTxt
EUROPE INCLUDING ICELAND AND GREENLANDRESEARCH ACTIVITIES FOR PURPOSE OF$100,000WIRE TRANSFER0
EUROPE INCLUDING ICELAND AND GREENLANDFUND RESEARCH$100,000WIRE TRASNFER
FieldValueIRS element (for citing)
Total501c3 Org1Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Schedule G IRS990ScheduleG

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (10 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdIRC SectionIRCSectionDescValuation Method UsedValuationMethodUsedDescPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtRecipient EINRecipientEIN
RIAAN RESEARCH INITIATIVE
6123 224TH STOAKLAND GARDENSNY11364501C3CASHRESEARCH
NORTHWESTERN UNIVERSITY
633 CLARK STEVANSTONIL60208501C3CASHRESEARCH$53,500
RAREBASE PBC
2882 GREER RDPALO ALTOCA94303501C3CASHRESEARCH$58,000
UT SOUTHWESTERN MEDICAL CENTER
5323 HARRY HINESDALLASTX75390501C3NARESEARCH
NEIL HACKETT
122 OCEAN PARK BLVD 511PALO ALTOCA94303INDIVIDUALCASHRESEARCH$1,000
FINDING HOPE FOR FRSS1L
PO BOX 270405FORT COLLINSCO805270405501C3CASHRESEARCH$422,467873285525
UMASS CHAN MEDICAL SCHOOL
55 N LAKE AVEWORCESTERMA01655501C3CASHFUND RESEARCH$85,000
MAOD FOUNDATION
7221 BROADWAY STGALVESTONTX775548915501C3CASHRESERARCH$27,750880987512
DREXEL UNIVERSITY
3141 CHESTNUT STREETPHILADELPHIAPA19104501C3CASHRESEARCH$28,000
RAIDEN SCIENCE
6107 SW MURRAY BLVD 188BEAVERTONOR970084421501C3CASHRESEARCH$179,021873106343

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceMonitoring procedures (Part I, line 2)FormAndLineReferenceDesc
ExplanationNON PROFIT BOARD GOES THRU BROAD BACKGROUND CHECKS ON ENTITIES AND THEIR NON PROFIT STATUS, AS WELL AS THEIR EXPERTISE ON DOING ADEQUATE RESEARCHExplanationTxt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (6 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990 governing body review Part VI line 11GOVERNING BODY HAS REVIWED 990 PRIOR TO FILING AND THE PRESIDENT HAS SIGNED THE RETURN GOVENING BODY DID NOT DO REVIEW
Conflict of interest policy compliance Part VI line 12cGOVERNING BODY AND BOARD ROUTINELY CHECKS COMPLINACE IN REGARDS TO CONFLICT OF INTEREST BY VOTING ON ALL EXPENDITURES AND MAKING SURE NO RELATED PARTY IS BENEFITING FROM EXPENDITURES
CEO executive director top management comp Part VI line 15aALL MEMBERS OF THE GOVERNING BODY ARE UNPAID, THERE IS NO COMPENSATION FOR ANY MEMBERS OF GOVERNING BODY
Other officer or key employee compensation Part VI line 15bNO EMPLOYEES EXIST IN THE NON PROFIT, NO MEMBER OF OFFICER RECEIVES ANY COMPENSATION FOR WORK PERFOMED IN THE CHARITY
Governing documents etc available to public Part VI line 19ALL DATA AND INFORMATION INCLUDING BOOKKEEPING AND FILING OF 990 IS AVAILABLE UPON REQUEST BY EMAIL TO GOVERNING BODY PRESIDENT
Part III response or note to any other line in Part IIITO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES

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