RORY BELLE FOUNDATION: Form 990, tax year 2023
View the entire original 990 at ProPublica ↗
- Organization
- RORY BELLE FOUNDATION (EIN 88-1920584)
- Tax period
- 2023-01-01 to 2023-12-31
- Filed
- 2024-11-14
- IRS object ID
- 202443199349318889
- Schema version
- 2023v5.1
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-11-14T21:46:48-06:00 | ReturnTs |
| Tax Period End | 2023-12-31 | TaxPeriodEndDt |
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2023-01-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 881920584 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RORY BELLE FOUNDATION | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| In Care Of | % RACHEL HEILMANN | InCareOfNm |
| Business Name Control | RORY | BusinessNameControlTxt |
| Phone | 7204328087 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 8275 E 11TH AVE 200621 | AddressLine1Txt |
| City | DENVER | CityNm |
| State Abbreviation | CO | StateAbbreviationCd |
| ZIP | 80220 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | RACHEL HEILMANN | PersonNm |
| Person Title | PRESIDENT | PersonTitleTxt |
| Phone | 7204328087 | PhoneNum |
| Signature | 2024-11-14 | SignatureDt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| IRS Responsible Prty Info Curr | false | IRSResponsiblePrtyInfoCurrInd |
| Tax | 2023 | TaxYr |
| Build TS | 2024-10-15 13:58:12Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | RACHEL HEILMANN | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1543 IVANHOE STREET | AddressLine1Txt |
| City | DENVER | CityNm |
| State Abbreviation | CO | StateAbbreviationCd |
| ZIP | 80207 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $256,743 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.therorybellefoundation.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2022 | FormationYr |
| Legal Domicile State | CO | LegalDomicileStateCd |
| Activity Or Mission | TO BRING ONE MORE DAY OF JOY TO KIDS AND FAMILIES BATTLING NARS1 DISEASE | ActivityOrMissionDesc |
| Voting Members Governing Body | 6 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 6 | VotingMembersIndependentCnt |
| Total Employee | 0 | TotalEmployeeCnt |
| Total Volunteers | 25 | TotalVolunteersCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $60,128 | PYContributionsGrantsAmt |
| CY Contributions Grants | $193,766 | CYContributionsGrantsAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| CY Investment Income | $3,499 | CYInvestmentIncomeAmt |
| CY Other Revenue | $17,485 | CYOtherRevenueAmt |
| PY Total Revenue | $60,128 | PYTotalRevenueAmt |
| CY Total Revenue | $214,750 | CYTotalRevenueAmt |
| CY Grants And Similar Paid | $0 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| CY Salaries Comp Emp Bnft Paid | $0 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $4,146 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $2,160 | PYOtherExpensesAmt |
| CY Other Expenses | $5,234 | CYOtherExpensesAmt |
| PY Total Expenses | $2,160 | PYTotalExpensesAmt |
| CY Total Expenses | $5,234 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $57,968 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | $209,516 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $57,968 | TotalAssetsBOYAmt |
| Total Assets EOY | $267,644 | TotalAssetsEOYAmt |
| Total Liabilities EOY | $160 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $57,968 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $267,484 | NetAssetsOrFundBalancesEOYAmt |
| Mission | TO BRING ONE MORE DAY OF JOEY TO KIDS AND FAMILIES BATTLING NARS1 | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Desc | NARS1 GENETIC RESEARCH ACCOMPLISHMENTS: CONTINUED FUNDRAISING TO SUPPORT FUTURE GRANT PROGRAMS. ESTABLISHED A NETWORK OF SCIENTIFIC RESOURCES AND BEGAN COLLABORATION ON SEVERAL KEY INITIATIVES. FACILITATED PATIENT REGISTERY THROUGH OUTREACH TO NARS1 POPULATION. ESTABLISHED BIOREPOSITORY. | Desc |
Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | NARS 1 DRUG REPURPOSING ACCOMPLISHMENTS: COLLABORATED WITH ACADEMIC INSTITUTION THAT COMPLETED INITIAL SCREENING ANALYSIS OF AVAILABLE COMPOUNDS. HELD FUNDRAISING EVENT TO SUPPORT FUTURE DRUG REPURPOSING STUDIES. | Desc |
Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Expense | $397 | ExpenseAmt |
| Desc | NARS1 RARE DISEASE AWARNESS ACCOMPLISHMENTS: BOARD MEMBERS ATTENDED SEVERAL CONFERENCES. RECEIVED GRANT TO FUND TRANSLATION SERVICES TO BETTER CONNECT WITH NON-ENGLISH SPEAKING PATIENT POPULATION. BEGAN SELLING FOUNDATION BRANDED MERCHANDISE. | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Program Service Expenses | $397 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | false | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | false | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | false | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | false | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | Yes (true) | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | false | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | Yes (true) | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | false | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | Yes (true) | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | false | BackupWthldComplianceInd |
| Employee | 0 | EmployeeCnt |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Form990 T Filed | false | Form990TFiledInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Excs Tax Sect4951 Or4952 Or4953 | false | ExcsTaxSect4951Or4952Or4953Ind |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 6 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 6 | IndependentVotingMemberCnt |
| Family Or Business Rln | Yes (true) | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | false | MembersOrStockholdersInd |
| Election Of Board Members | false | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | false | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | false | WhistleblowerPolicyInd |
| Document Retention Policy | false | DocumentRetentionPolicyInd |
| Compensation Process CEO | false | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | CO | StatesWhereCopyOfReturnIsFldCd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CHRISTOFFER B DECLERCQ | PersonNm |
| Phone | 7634438595 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 6344 YUMA LN N | AddressLine1Txt |
| City | MAPLE GROVE | CityNm |
| State Abbreviation | MN | StateAbbreviationCd |
| ZIP | 55311 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| No Listed Persons Compensated | Yes (X) | NoListedPersonsCompensatedInd |
Form990 Part VII Section A Form990PartVIISectionAGrp (8 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Former Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd |
|---|---|---|---|---|---|---|
| RACHEL HEILMANN | ||||||
| PRESIDENT | 25.00 | Yes (X) | $0 | $0 | $0 | |
| TERI DECLERCQ | ||||||
| VICE PRESIDENT | 10.00 | Yes (X) | $0 | $0 | $0 | |
| CHRISTOFFER B DECLERCQ | ||||||
| TREASURER | 3.000 | Yes (X) | $0 | $0 | $0 | |
| CATHERINE RIGGS | ||||||
| DIR OF RESEARCH | 5.000 | Yes (X) | $0 | $0 | $0 | |
| SUSAN HOLSCLAW | ||||||
| SECRETARY | $0 | $0 | $0 | Yes (X) | ||
| JUDY KJELSTAD | ||||||
| DIR OF DEVELOPMENT | $0 | $0 | $0 | Yes (X) | ||
| ROSS MCCARTHY | ||||||
| DIR OF PATIENT ENGAGE | 3.000 | Yes (X) | $0 | $0 | $0 | |
| LAUREN ANDERSON | ||||||
| SECRETARY | 3.000 | Yes (X) | $0 | $0 | $0 | |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Former Ofcr Employees Listed | Yes (true) | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| Fundraising | $58,540 | FundraisingAmt |
| All Other Contributions | $135,226 | AllOtherContributionsAmt |
| Noncash Contributions | $21,660 | NoncashContributionsAmt |
| Total Contributions | $193,766 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $3,499 | TotalRevenueColumnAmt |
| Exclusion | $3,499 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fundraising Gross Income | $54,885 | FundraisingGrossIncomeAmt |
| Contri Rpt Fundraising Event | $58,040 | ContriRptFundraisingEventAmt |
| Fundraising Direct Expenses | $38,205 | FundraisingDirectExpensesAmt |
Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $16,680 | TotalRevenueColumnAmt |
| Exclusion | $16,680 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Sales Of Inventory | $4,593 | GrossSalesOfInventoryAmt |
| Cost Of Goods Sold | $3,788 | CostOfGoodsSoldAmt |
Net Income Or Loss NetIncomeOrLossGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $805 | TotalRevenueColumnAmt |
| Exclusion | $805 | ExclusionAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $214,750 | TotalRevenueColumnAmt |
| Exclusion | $20,984 | ExclusionAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Info In Schedule O Part IX | Yes (X) | InfoInScheduleOPartIXInd |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $70 | TotalAmt |
| Management And General | $70 | ManagementAndGeneralAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $574 | TotalAmt |
| Fundraising | $574 | FundraisingAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $92 | TotalAmt |
| Management And General | $92 | ManagementAndGeneralAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,813 | TotalAmt |
| Management And General | $314 | ManagementAndGeneralAmt |
| Fundraising | $2,499 | FundraisingAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $397 | TotalAmt |
| Program Services | $397 | ProgramServicesAmt |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $1,288 | TotalAmt |
| Management And General | $215 | ManagementAndGeneralAmt |
| Fundraising | $1,073 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,234 | TotalAmt |
| Program Services | $397 | ProgramServicesAmt |
| Management And General | $691 | ManagementAndGeneralAmt |
| Fundraising | $4,146 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $39,251 | BOYAmt |
| EOY | $16,000 | EOYAmt |
Savings And Temp Cash Invst SavingsAndTempCashInvstGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $250,607 | EOYAmt |
Pledges And Grants Receivable PledgesAndGrantsReceivableGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $18,717 | BOYAmt |
| EOY | $1,000 | EOYAmt |
Inventories For Sale Or Use InventoriesForSaleOrUseGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $25 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $12 | EOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $57,968 | BOYAmt |
| EOY | $267,644 | EOYAmt |
Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| EOY | $160 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $160 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Org Does Not Follow FASB117 | Yes (X) | OrgDoesNotFollowFASB117Ind |
Rtn Earn Endowment Incm Oth Fnds RtnEarnEndowmentIncmOthFndsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $57,968 | BOYAmt |
| EOY | $267,484 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $57,968 | BOYAmt |
| EOY | $267,484 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $57,968 | BOYAmt |
| EOY | $267,644 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | $209,516 | ReconcilationRevenueExpnssAmt |
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | false | FSAuditedInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
| First5 Years170 | Yes (X) | First5Years170Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $60,128 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $191,895 | CurrentTaxYearAmt |
| Total | $252,023 | TotalAmt |
Gross Receipts Admissions GrossReceiptsAdmissionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year | $61,348 | CurrentTaxYearAmt |
| Total | $61,348 | TotalAmt |
Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year | $3,499 | CurrentTaxYearAmt |
| Total | $3,499 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $60,128 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $256,742 | CurrentTaxYearAmt |
| Total | $316,870 | TotalAmt |
Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $15,136 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $16,511 | CurrentTaxYearAmt |
| Total | $31,647 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $1,000 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $22,220 | CurrentTaxYearAmt |
| Total | $23,220 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $16,136 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $38,731 | CurrentTaxYearAmt |
| Total | $54,867 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $262,003 | PublicSupportTotal509Amt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus1 Year | $60,128 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $256,742 | CurrentTaxYearAmt |
| Total | $316,870 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| First5 Years509 | Yes (X) | First5Years509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | false | GrantRecordsMaintainedInd |
Account Activities Outside US AccountActivitiesOutsideUSGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Region | Europe | RegionTxt |
| Offices | 0 | OfficesCnt |
| Employee | 1 | EmployeeCnt |
| Type Of Activities Conducted | BOARD MEMBER, FUNDRAISING | TypeOfActivitiesConductedTxt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Subtotal Employees | 1 | SubtotalEmployeesCnt |
| Total Employee | 1 | TotalEmployeeCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Schedule G IRS990ScheduleG
Fundraising Event Information FundraisingEventInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Event1 | GALA | Event1Nm |
| Gross Receipts Event1 | $109,655 | GrossReceiptsEvent1Amt |
| Charitable Contri Event1 | $54,770 | CharitableContriEvent1Amt |
| Gross Revenue Event1 | $54,885 | GrossRevenueEvent1Amt |
| Non Cash Prizes Event1 | $21,660 | NonCashPrizesEvent1Amt |
| Rent Facility Costs Event1 | $1,415 | RentFacilityCostsEvent1Amt |
| Food And Beverage Event1 | $12,740 | FoodAndBeverageEvent1Amt |
| Entertainment Event1 | $1,895 | EntertainmentEvent1Amt |
| Other Direct Expenses Event1 | $495 | OtherDirectExpensesEvent1Amt |
| Gross Receipts Total | $109,655 | GrossReceiptsTotalAmt |
| Charitable Contributions Tot | $54,770 | CharitableContributionsTotAmt |
| Gross Revenue Total Events | $54,885 | GrossRevenueTotalEventsAmt |
| Non Cash Prizes Total Events | $21,660 | NonCashPrizesTotalEventsAmt |
| Rent Fclty Costs Total Events | $1,415 | RentFcltyCostsTotalEventsAmt |
| Food And Beverage Total Events | $12,740 | FoodAndBeverageTotalEventsAmt |
| Entertainment Total Events | $1,895 | EntertainmentTotalEventsAmt |
| Oth Direct Expnss Total Events | $495 | OthDirectExpnssTotalEventsAmt |
| Direct Expense Summary Events | $38,205 | DirectExpenseSummaryEventsAmt |
| Net Income Summary | $16,680 | NetIncomeSummaryAmt |
Schedule J IRS990ScheduleJ
| Field | Value | IRS element (for citing) |
|---|---|---|
| Severance Payment | false | SeverancePaymentInd |
| Supplemental Nonqual Rtr Plan | false | SupplementalNonqualRtrPlanInd |
| Equity Based Comp Arrngm | false | EquityBasedCompArrngmInd |
| Comp Based On Revenue Of Flng Org | false | CompBasedOnRevenueOfFlngOrgInd |
| Comp Bsd On Rev Related Orgs | false | CompBsdOnRevRelatedOrgsInd |
| Comp Bsd Net Earns Flng Org | false | CompBsdNetEarnsFlngOrgInd |
| Comp Bsd Net Earns Rltd Orgs | false | CompBsdNetEarnsRltdOrgsInd |
| Any Non Fixed Payments | false | AnyNonFixedPaymentsInd |
| Initial Contract Exception | false | InitialContractExceptionInd |
Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (8 entries)
| TitleTitleTxt |
|---|
| RACHEL HEILMANN |
| PRESIDENT |
| TERI DECLERCQ |
| VICE PRESIDENT |
| CHRISTOFFER B DECLERCQ |
| TREASURER |
| CATHERINE RIGGS |
| DIR OF RESEARCH |
| SUSAN HOLSCLAW |
| SECRETARY |
| JUDY KJELSTAD |
| DIR OF DEVELOPMENT |
| ROSS MCCARTHY |
| DIR OF PATIENT ENGAGE |
| LAUREN ANDERSON |
| SECRETARY |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (12 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Part VI Line 2 | TERI DECLERCQ AND CHRIS DECLERCQ ARE SPOUSES |
| Part VI Line 2 | TERI DECLERCQ IS JUDY KJELSTAD'S DAUGHTER |
| Part VI Line 11b | BOARD MEMBERS WERE FURNISHED A DRAFT COPY FOR REVIEW |
| Part VI Line 11b | PRIOR TO FILING FOR REVIEW AND COMMENT. |
| Part VI Line 12c | BOARD MEMBERS REVIEW THE COI POLICY ANNUALLY. POTENTIAL CONFLICTS |
| Part VI Line 12c | ARE DISCUSSED AND MONITORED DURING MONTHLY BOARD MEETINGS. |
| Part VI Line 19 | NO DOCUMENTS AVAILABLE TO THE PUBLIC |
| Part IX Line 11g | DONATION PROCESSING FEES Total expenses - $574.00 Program service expenses - $0.00 Mgmt and general expenses - $0.00 Fundraising expenses - $574.00 |
| Part IX Line 24e | FUNDRAISING EXPENSES Total expenses - $694.00 Program service expenses - $0.00 Mgmt and general expenses - $0.00 Fundraising expenses - $694.00 |
| Part IX Line 24e | VOLUNTEER APPRECIATION Total expenses - $379.00 Program service expenses - $0.00 Mgmt and general expenses - $0.00 Fundraising expenses - $379.00 |
| Part IX Line 24e | MEMBERSHIP DUES Total expenses - $199.00 Program service expenses - $0.00 Mgmt and general expenses - $199.00 Fundraising expenses - $0.00 |
| Part IX Line 24e | MISCELLANEOUS EXPENSE Total expenses - $16.00 Program service expenses - $0.00 Mgmt and general expenses - $16.00 Fundraising expenses - $0.00 |
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