FOUNDATION FIGHTING BLINDNESS INC: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
FOUNDATION FIGHTING BLINDNESS INC (EIN 23-7135845)
Tax period
2023-07-01 to 2024-06-30
Filed
2024-11-07
IRS object ID
202433129349301503
Schema version
2023v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-11-07T07:12:56-06:00ReturnTs
Tax Period End2024-06-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN420714325PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1RSM US LLPBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1100 INTERNATIONAL DRIVE SUITE 1400AddressLine1Txt
CityBALTIMORECityNm
State AbbreviationMDStateAbbreviationCd
ZIP21202ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2023-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN237135845EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1THE FOUNDATION FIGHTING BLINDNESS INCBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlFOUNBusinessNameControlTxt
Phone4104230600PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line16925 OAKLAND MILLS ROAD 701AddressLine1Txt
CityCOLUMBIACityNm
State AbbreviationMDStateAbbreviationCd
ZIP21045ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonPETER GINSBERGPersonNm
Person TitleCHIEF OPERATING OFFICERPersonTitleTxt
Phone4104230600PhoneNum
Signature2024-11-05SignatureDt
Discuss With Paid PreparerYes (1)DiscussWithPaidPreparerInd
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (1)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonJULIA FLANNERYPreparerPersonNm
PTINP00928915PTIN
Phone4102469301PhoneNum
Preparation2024-11-05PreparationDt
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2024-10-15 13:58:12ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerJASON MENZOPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line16925 OAKLAND MILLS ROAD 701AddressLine1Txt
CityCOLUMBIACityNm
State AbbreviationMDStateAbbreviationCd
ZIP21045ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$101,659,035GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.FIGHTINGBLINDNESS.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1971FormationYr
Legal Domicile StateMDLegalDomicileStateCd
Activity Or MissionTHE URGENT MISSION OF THE FOUNDATION FIGHTING BLINDNESS IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, AGE-RELATED MACULAR DEGENERATION, USHER SYNDROME AND THE ENTIRE SPECTRUM OF RETINAL DEGENERATIVE DISEASES. THE FOUNDATION IS A BEACON FOR THOSE AFFECTED BY THESE BLINDING DISEASES.ActivityOrMissionDesc
Voting Members Governing Body25VotingMembersGoverningBodyCnt
Voting Members Independent25VotingMembersIndependentCnt
Total Employee78TotalEmployeeCnt
Total Volunteers2500TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$28,901,504PYContributionsGrantsAmt
CY Contributions Grants$31,823,323CYContributionsGrantsAmt
PY Program Service Revenue$457,678PYProgramServiceRevenueAmt
CY Program Service Revenue$1,028,762CYProgramServiceRevenueAmt
PY Investment Income$1,346,765PYInvestmentIncomeAmt
CY Investment Income$1,323,599CYInvestmentIncomeAmt
PY Other Revenue-$268,055PYOtherRevenueAmt
CY Other Revenue$1,526,874CYOtherRevenueAmt
PY Total Revenue$30,437,892PYTotalRevenueAmt
CY Total Revenue$35,702,558CYTotalRevenueAmt
PY Grants And Similar Paid$27,872,429PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$21,112,113CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$8,954,322PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$10,515,059CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$605,928PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$542,609CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$7,837,916CYTotalFundraisingExpenseAmt
PY Other Expenses$13,832,761PYOtherExpensesAmt
CY Other Expenses$16,056,630CYOtherExpensesAmt
PY Total Expenses$51,265,440PYTotalExpensesAmt
CY Total Expenses$48,226,411CYTotalExpensesAmt
PY Revenues Less Expenses-$20,827,548PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$12,523,853CYRevenuesLessExpensesAmt
Total Assets BOY$130,891,355TotalAssetsBOYAmt
Total Assets EOY$124,009,134TotalAssetsEOYAmt
Total Liabilities BOY$30,670,536TotalLiabilitiesBOYAmt
Total Liabilities EOY$31,398,627TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$100,220,819NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$92,610,507NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTHE MISSION OF THE FOUNDATION FIGHTING BLINDNESS, INC. (FOUNDATION) IS TO DRIVE THE RESEARCH THAT WILL PROVIDE PREVENTIONS, TREATMENTS AND CURES, FOR PEOPLE AFFECTED BY RETINITIS PIGMENTOSA, MACULAR DEGENERATION, USHER SYNDROME, AND THE SPECTRUM OF RETINAL DEGENERATIVE DISEASES.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$28,854,715ExpenseAmt
Grant$21,112,113GrantAmt
Revenue$1,028,762RevenueAmt
DescRESEARCH: THE FOUNDATION FIGHTING BLINDNESS, INC. (THE FOUNDATION) FUNDED RESEARCHERS ARE ACHIEVING REMARKABLE SUCCESS IN DISCOVERING, TESTING, AND DELIVERING TO PATIENTS A WIDE RANGE OF PROMISING THERAPIES TO PREVENT, STOP THE PROGRESSION OF, AND CURE BLINDNESS DUE TO RETINAL DEGENERATIVE DISEASES. THE FOUNDATION HAS ENCUMBRANCES OF OVER $43 MILLION, NOT INCLUDED ON OUR JUNE 30 FINANCIAL REPORT, FOR ACTIVE RESEARCH PROJECTS THAT HAVE FUTURE RESEARCH MILESTONES. OUR SCIENCE COMMITTEE'S SPENDING PLAN INCLUDES SPENDING AT AN AVERAGE OF $28 MILLION ANNUALLY TO SUPPORT FUTURE RESEARCH.AS OF THE END OF OUR FISCAL YEAR 2024, THE FOUNDATION'S RESEARCH GRANTS PROGRAM IS FUNDING 108 GRANTS BEING CONDUCTED BY MORE THAN 135 INVESTIGATORS AT 88 INSTITUTIONS, EYE HOSPITALS AND UNIVERSITIES IN THE U.S. AND AROUND THE WORLD. A SAMPLING OF THE RESEARCH PROJECTS FUNDED ARE LISTED BELOW."IN VIVO RETINAL RNA EDITING USING THE CELLULAR ADENOSINE DEAMINASE ACTING ON RNA (ADAR) ENZYME." - HADASSAH-HEBREW UNIVERSITY MEDICAL CENTERDOCTOR SHARON AND HIS TEAM WILL ADVANCE RNA EDITING TECHNOLOGY TO CORRECT SPECIFIC RETINAL DISEASE-CAUSING MUTATIONS. BY DEVELOPING AND ADMINISTERING NOVEL BIOLOGICAL MACHINERY TO THE RETINA THAT USES ENZYMES CALLED "ADENOSINE DEAMINASE ACTING ON RNA OR ADAR THAT SERVES AS MOLECULAR EDITORS TO CORRECT A SPECIFIC MUTATION IN RNA. THE TECHNIQUE IS LIKE GENE EDITING BUT INSTEAD OF EDITING THE GENE, THIS TECHNIQUE EDITS RNA, WHICH IS THE TRANSCRIPT OR MESSAGE READ FROM THE GENE TO PRODUCE PROTEIN."TESTING THE EFFICACY OF RT011, A DEUTERATED FORM OF DHA, AS A MUTATION INDEPENDENT THERAPY IN RETINITIS PIGMENTOSA." - KARSTEN SCHMIDT, BIOJIVABIOJIVA IS TESTING IF RT011, A NOVEL MUTATION-INDEPENDENT ORAL DRUG CANDIDATE, CAN PRESERVE RETINAL CONES AND CONE FUNCTION DESPITE ROD DEATH IN RETINITIS PIGMENTOSA. TO ACCOMPLISH THIS GOAL, THIS PROJECT WILL EVALUATE RT011 (D-DHA [DOCOSAHEXAENOIC ACID]), A DEUTERATED DHA ANALOGUE IN TWO COMPLEMENTARY ANIMAL MODELS OF CHRONIC RP (A JUVENILE PIG MODEL WITH EARLY RP ONSET AND AN ADULT MOUSE MODEL WITH LATE RP ONSET)."AAV- ANC80 GENE THERAPY PLATFORM TO TREAT VISION LOSS CAUSED BY RPGRIP1 MUTATIONS." - ASHLEY WINSLOW, ODYLIA THERAPEUTICS.DOCTOR WINSLOW IS LEADING THE TEAM AT ODYLIA THERAPEUTICS TO ADVANCE A GENE THERAPY FOR LEBER CONGENITAL AMAUROSIS (LCA6) RESULTING FROM RPGRIP1 MUTATIONS. THE THERAPY (OT-004) EMPLOYS THE ANC80 AAV CAPSID TO DELIVER A FUNCTIONAL RPGRIP1 GENE TO PHOTORECEPTORS. ODYLIA WILL CARRY OUT VECTOR PRODUCTION FOR TOXICOLOGY STUDIES, ASSESS VECTOR BIODISTRIBUTION AND TRANSGENE EXPRESSION, AND EVALUATE VECTOR SAFETY IN A 90-DAY TOXICOLOGY STUDY.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$4,249,284ExpenseAmt
DescPUBLIC HEALTH EDUCATION:DURING FISCAL YEAR 2024, THROUGH OUR CHATLOS FOUNDATION PUBLIC EDUCATION PROGRAM, THE FOUNDATION AIMED TO CONTINUE TO PROVIDE EDUCATION AND SUPPORT TO PEOPLE AFFECTED BY RETINAL DEGENERATIVE DISEASES. THE FOUNDATION ALSO FIELDS A TEAM OF PROFESSIONALS FOCUSED ON EDUCATING OPHTHALMOLOGISTS AND OPTOMETRISTS ON THE LATEST ADVANCEMENTS WITH THE FOUNDATION'S RESOURCES AND RESEARCH ON THE INHERITED RETINAL DISEASE SPACE. TO KEEP OUR CONSTITUENTS AND PROFESSIONALS INFORMED, THE FOUNDATION PUBLISHES EXTENSIVE CONTENT VIA THE WEBSITE AND SOCIAL MEDIA/EMAIL CHANNELS; DISTRIBUTES A NEWSLETTER ONLINE AND IN PRINT; PRODUCES AND SHARES EDUCATIONAL PODCASTS WITH LEADING EXPERTS IN THE SPACE; AND HOLDS QUARTERLY INSIGHTS FORUM CALLS TO INFORM THE COMMUNITY ABOUT SCIENTIFIC PROGRESS. THE CONTENT PRODUCED INCLUDES THE LATEST DEVELOPMENTS IN RESEARCH AND CLINICAL TRIALS, AS WELL AS PERSONAL STORIES FROM MEMBERS OF THE FIGHTING BLINDNESS COMMUNITY. ADDITIONALLY, THE FOUNDATION HOLDS CONTINUING MEDICAL EDUCATION COURSES TWICE A YEAR, FOCUSED ON PROVIDING TIMELY CONTENT TO EYE CARE PROFESSIONALS. CHAPTERS BRING THE FOUNDATION'S MESSAGE AND MISSION TO LIFE. IN FY24, THE FOUNDATION SUPPORTED OVER 47 VOLUNTEER-LED CHAPTERS IN 23 STATES AND EXPANDED OUT OF THE US BY ADDING TWO NEW CHAPTERS IN LONDON, UK, AND PARIS, FRANCE. OUR CHAPTERS LAUNCHED A NEW PROGRAM, VISION CONNECTION, AN ENRICHING AND SUPPORTIVE GATHERING FOR THE BLIND AND LOW-VISION COMMUNITY. EACH SESSION COVERS EDUCATIONAL PRESENTATIONS, COMMUNITY ENGAGEMENT, FUNDRAISING, AND INTERACTIVE Q&A SESSIONS.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$4,302,726ExpenseAmt
DescMY RETINA TRACKER REGISTRY:THE FOUNDATION MAINTAINS A RESEARCH DATABASE OF PEOPLE AND FAMILIES AFFECTED BY RARE INHERITED RETINAL DEGENERATIVE DISEASES. THE REGISTRY IS DESIGNED TO SHARE DE-IDENTIFIED INFORMATION ABOUT PEOPLE WITH AN INHERITED RETINAL DISEASE WITHIN THE IRD RESEARCH AND CLINICAL COMMUNITIES TO HELP ACCELERATE THE DISCOVERY OF TREATMENTS AND CURES. DURING FISCAL YEAR 2024, APPROXIMATELY 10,000 ADDITIONAL MEMBERS WERE ADDED TO THE REGISTRY, BRINGING THE TOTAL NUMBER OF REGISTERED INDIVIDUALS TO OVER 35,000.Desc
FieldValueIRS element (for citing)
Total Program Service Expenses$37,406,725TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (1)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other AssetsYes (1)ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl Stmt0IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtYes (1)ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign ActivitiesYes (1)ForeignActivitiesInd
More Than5000 K To OrgYes (1)MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional FundraisingYes (1)ProfessionalFundraisingInd
Fundraising ActivitiesYes (1)FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (1)DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related EntityYes (1)RelatedEntityInd
Related Organization Ctrl EntYes (1)RelatedOrganizationCtrlEntInd
Transaction With Control EntYes (1)TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document244IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (1)BackupWthldComplianceInd
Employee78EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible Contributions0NondeductibleContributionsInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members25GoverningBodyVotingMembersCnt
Independent Voting Member25IndependentVotingMemberCnt
Family Or Business RlnYes (1)FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or StockholdersYes (1)MembersOrStockholdersInd
Election Of Board MembersYes (1)ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMEStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldSCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldUTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1PETER GINSBERGBusinessNameLine1Txt
FieldValueIRS element (for citing)
Phone4104230600PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line16925 OAKLAND MILLS ROAD 701AddressLine1Txt
CityCOLUMBIACityNm
State AbbreviationMDStateAbbreviationCd
ZIP21045ZIPCd
FieldValueIRS element (for citing)
Info In Schedule O Part VIIYes (X)InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (37 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtKey EmployeeKeyEmployeeIndHighest Compensated EmployeeHighestCompensatedEmployeeInd
DAVID BRINT
CHAIRMAN OF THE BOARD10.001.00Yes (X)Yes (X)$0$0$0
JONATHAN STEINBERG MD
VICE CHAIR, RESEARCH1.001.00Yes (X)Yes (X)$0$0$0
KAREN PETROU
EXECUTIVE VICE CHAIR1.00Yes (X)Yes (X)$0$0$0
MARYROSE SYLVESTER
VICE CHAIR, AT LARGE1.00Yes (X)Yes (X)$0$0$0
STEVEN ALPER
INTERIM VICE CHAIR, DEVELOPMENT1.00Yes (X)Yes (X)$0$0$0
JASON MORRIS
VICE CHAIR, BOARD COMM & DEV/TREASURER1.00Yes (X)Yes (X)$0$0$0
BRADFORD MANNING
VICE CHAIR, MARKETING, COMM & SOCIAL MEDIA1.00Yes (X)Yes (X)$0$0$0
HAYNES LEA
SECRETARY1.00Yes (X)Yes (X)$0$0$0
GORDON GUND
DIRECTOR - CHAIRMAN EMERITUS1.00Yes (X)Yes (X)$0$0$0
SCOTT BURT
DIRECTOR1.00Yes (X)$0$0$0
WILLIAM CARTY
DIRECTOR1.00Yes (X)$0$0$0
DARREN DEVOUE
DIRECTOR1.00Yes (X)$0$0$0
JASON FERREIRA
DIRECTOR1.00Yes (X)$0$0$0
JEFFREY FREED
DIRECTOR1.00Yes (X)$0$0$0
ADRIENNE GRAVES PH D
DIRECTOR1.001.00Yes (X)$0$0$0
ROBERT HEIDENBERG
DIRECTOR1.00Yes (X)$0$0$0
JANICE LEHRER-STEIN
DIRECTOR1.00Yes (X)$0$0$0
MARSHA LINK PHD
DIRECTOR1.00Yes (X)$0$0$0
LAURA MANFRE
DIRECTOR1.00Yes (X)$0$0$0
EVAN MITTMAN
DIRECTOR1.00Yes (X)$0$0$0
DAVID NIXON
DIRECTOR1.00Yes (X)$0$0$0
WARREN THALER
DIRECTOR1.001.00Yes (X)$0$0$0
JANINE MARKS NIXON
DIRECTOR1.00Yes (X)$0$0$0
MARTHA STEELE
DIRECTOR1.00Yes (X)$0$0$0
JOSHUA STEINBERG
DIRECTOR1.00Yes (X)$0$0$0
JASON D MENZO
CEO32.008.00Yes (X)$416,489$104,122$68,385
PETER GINSBERG
COO32.008.00Yes (X)$290,019$72,505$63,272
CLAIRE GELFMAN
CHIEF SCIENTIFIC OFFICER40.00Yes (X)$392,360$0$60,801
RICHELE DONAT
CHRO40.00$265,633$0$33,815Yes (X)
JUDY L TAYLOR
SVP, CHIEF DEVELOPMENT OFFICER40.00$227,974$0$59,043Yes (X)
RUSSELL W KELLEY
MANAGING DIRECTOR, RD FUND0.0040.00$0$347,534$64,959Yes (X)
TODD A DURHAM
VP, CLINICAL & OUTCOMES RESEARCH40.00$262,294$0$60,969Yes (X)
CHRISTOPHER S ADAMS
VP, COMMUNICATIONS & MARKETING40.00$192,708$0$50,323Yes (X)
MICHELE C DIVINCENZO
VP, SCIENTIFIC & EDUCATIONAL CONFERENCES40.00$199,289$0$48,895Yes (X)
AMY M PALMER LASTER
SVP, SCIENCE STRATEGY & AWARDS40.00$220,621$0$16,903Yes (X)
JEFFRY C COLLINS
VP, DATABASE SYSTEMS & TECHNOLOGY40.00$192,978$0$40,702Yes (X)
CHAD R JACKSON
SR DIR, PRE-CLINICAL TRANSLATIONAL PROG40.00$197,593$0$16,231Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$2,857,958TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$524,161TotReportableCompRltdOrgAmt
Total Other Compensation$584,298TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K25IndivRcvdGreaterThan100KCnt
Former Ofcr Employees Listed0FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmtAddress Line1ContractorAddress/ForeignAddress/AddressLine1TxtCityContractorAddress/ForeignAddress/CityNmCountryContractorAddress/ForeignAddress/CountryCd
FUSE FUNDRAISING GROUP LLC
12355 SUNRISE VALLEY DRIVE SUITE 2RESTONVA20191DIRECT MARKETING CONSULTANT$828,679
CHICAGO DOWNTOWN MARRIOTT
540 N MICHIGAN AVECHICAGOIL60611VENUE FOR VISIONS 2024 CONFERENCE$262,500
SYSTEM SOURCE
338 CLUBHOUSE ROADHUNT VALLEYMD21031IT CONSULTANT$232,411
IQVIA TECHNOLOGY SERVICES LTD
MY RETINA TRACKER CONSULTANT$176,752210 PENTONVILLE ROADLONDONUK
TPC SAWGRASS
110 CHAMPIONSHIP WAYPONTE VERDRA BEACHFL32082VENUE FOR GOLF EVENT$153,320
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K18CntrctRcvdGreaterThan100KCnt
Federated Campaigns$131,394FederatedCampaignsAmt
Fundraising$6,084,961FundraisingAmt
All Other Contributions$25,606,968AllOtherContributionsAmt
Noncash Contributions$1,603,398NoncashContributionsAmt
Total Contributions$31,823,323TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmt
CONTRACT REVENUE900099$800,775$800,775
PROGRAM FEES900099$227,987$227,987
FieldValueIRS element (for citing)
Total Program Service Revenue$1,028,762TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,331,144TotalRevenueColumnAmt
Exclusion$3,331,144ExclusionAmt

Royalties Revenue RoyaltiesRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$1,673,311TotalRevenueColumnAmt
Exclusion$1,673,311ExclusionAmt

Gross Rents GrossRentsGrp

FieldValueIRS element (for citing)
Real$27,026RealAmt

Less Rental Expenses LessRentalExpensesGrp

FieldValueIRS element (for citing)
Real$0RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$27,026RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$27,026TotalRevenueColumnAmt
Exclusion$27,026ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$62,884,148SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$64,891,693SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities-$2,007,545SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column-$2,007,545TotalRevenueColumnAmt
Exclusion-$2,007,545ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$891,321FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$6,084,961ContriRptFundraisingEventAmt
Fundraising Direct Expenses$1,064,784FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column-$173,463TotalRevenueColumnAmt
Exclusion-$173,463ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$35,702,558TotalRevenueColumnAmt
Related Or Exempt Func Income$1,028,762RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$2,850,473ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$17,518,008TotalAmt
Program Services$17,518,008ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$3,594,105TotalAmt
Program Services$3,594,105ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$1,815,946TotalAmt
Program Services$851,708ProgramServicesAmt
Management And General$465,224ManagementAndGeneralAmt
Fundraising$499,014FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$6,759,069TotalAmt
Program Services$2,438,090ProgramServicesAmt
Management And General$878,708ManagementAndGeneralAmt
Fundraising$3,442,271FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$370,386TotalAmt
Program Services$138,198ProgramServicesAmt
Management And General$61,647ManagementAndGeneralAmt
Fundraising$170,541FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$978,136TotalAmt
Program Services$374,911ProgramServicesAmt
Management And General$107,501ManagementAndGeneralAmt
Fundraising$495,724FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$591,522TotalAmt
Program Services$220,734ProgramServicesAmt
Management And General$85,567ManagementAndGeneralAmt
Fundraising$285,221FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$1,899,001TotalAmt
Program Services$1,388,825ProgramServicesAmt
Management And General$260,984ManagementAndGeneralAmt
Fundraising$249,192FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$31,743TotalAmt
Program Services$176ProgramServicesAmt
Management And General$31,567ManagementAndGeneralAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$61,753TotalAmt
Management And General$57,345ManagementAndGeneralAmt
Fundraising$4,408FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$240,000TotalAmt
Program Services$240,000ProgramServicesAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$542,609TotalAmt
Fundraising$542,609FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$211,519TotalAmt
Management And General$186,251ManagementAndGeneralAmt
Fundraising$25,268FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$627,974TotalAmt
Program Services$404,963ProgramServicesAmt
Management And General$6,854ManagementAndGeneralAmt
Fundraising$216,157FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$421,595TotalAmt
Program Services$99,195ProgramServicesAmt
Management And General$95,163ManagementAndGeneralAmt
Fundraising$227,237FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$451,089TotalAmt
Program Services$29,236ProgramServicesAmt
Management And General$102,062ManagementAndGeneralAmt
Fundraising$319,791FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$125,741TotalAmt
Program Services$17,761ProgramServicesAmt
Management And General$60,965ManagementAndGeneralAmt
Fundraising$47,015FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$572,038TotalAmt
Program Services$205,437ProgramServicesAmt
Management And General$93,788ManagementAndGeneralAmt
Fundraising$272,813FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,961,285TotalAmt
Program Services$1,212,896ProgramServicesAmt
Management And General$290,574ManagementAndGeneralAmt
Fundraising$457,815FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$86,638TotalAmt
Program Services$74,037ProgramServicesAmt
Management And General$254ManagementAndGeneralAmt
Fundraising$12,347FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$204,648TotalAmt
Program Services$115,856ProgramServicesAmt
Management And General$23,500ManagementAndGeneralAmt
Fundraising$65,292FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtFundraisingFundraisingAmtManagement And GeneralManagementAndGeneralAmt
TRIAL RELATED COSTS$8,261,887$8,261,887
PROF FUNDRAISING-OTHER$330,133$330,133
PRINTING & PRODUCTION$289,778$220,702$54,189$14,887

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$279,808TotalAmt
Management And General$158,929ManagementAndGeneralAmt
Fundraising$120,879FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$48,226,411TotalAmt
Program Services$37,406,725ProgramServicesAmt
Management And General$2,981,770ManagementAndGeneralAmt
Fundraising$7,837,916FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$4,523,190BOYAmt
EOY$5,907,841EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$3,113,386BOYAmt
EOY$5,399,724EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$19,463,729BOYAmt
EOY$16,206,701EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$541,936BOYAmt
EOY$553,927EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$16,821BOYAmt
EOY$16,732EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$774,207BOYAmt
EOY$683,433EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$4,692,695LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$4,001,473LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$671,000BOYAmt
EOY$691,222EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$93,775,426BOYAmt
EOY$85,735,053EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$8,011,660BOYAmt
EOY$8,814,501EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$130,891,355BOYAmt
EOY$124,009,134EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,993,845BOYAmt
EOY$2,799,115EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$20,414,511BOYAmt
EOY$21,184,147EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$442,676BOYAmt
EOY$550,960EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$7,819,504BOYAmt
EOY$6,864,405EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$30,670,536BOYAmt
EOY$31,398,627EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$19,019,760BOYAmt
EOY$20,614,062EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$81,201,059BOYAmt
EOY$71,996,445EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$100,220,819BOYAmt
EOY$92,610,507EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$130,891,355BOYAmt
EOY$124,009,134EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$12,523,853ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$4,905,675NetUnrlzdGainsLossesInvstAmt
Prior Period Adjustments$4PriorPeriodAdjustmentsAmt
Other Changes In Net Assets$7,862OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or Review0AccountantCompileOrReviewInd
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Consolidated Basis Fincl StmtYes (X)ConsolidatedBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$31,895,116CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$27,741,201CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$39,734,129CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$28,901,504CurrentTaxYearMinus1YearAmt
Current Tax Year$31,823,323CurrentTaxYearAmt
Total$160,095,273TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$31,895,116CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$27,741,201CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$39,734,129CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$28,901,504CurrentTaxYearMinus1YearAmt
Current Tax Year$31,823,323CurrentTaxYearAmt
Total$160,095,273TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$42,585,098SubstantialContributorsTotAmt
Public Support Total170$117,510,175PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$5,325,536CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$4,394,213CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$4,142,169CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$3,519,873CurrentTaxYearMinus1YearAmt
Current Tax Year$5,031,481CurrentTaxYearAmt
Total$22,413,272TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$358,160CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$130,714CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,099,664CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$919,337CurrentTaxYearMinus1YearAmt
Current Tax Year$891,321CurrentTaxYearAmt
Total$3,399,196TotalAmt
FieldValueIRS element (for citing)
Total Support$185,907,741TotalSupportAmt
Gross Receipts Rltd Activities$2,490,804GrossReceiptsRltdActivitiesAmt
Public Support CY1700.63210PublicSupportCY170Pct
Public Support PY1700.58150PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp

FieldValueIRS element (for citing)
Form And Line ReferenceSCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:FormAndLineReferenceDesc
ExplanationFFB RD FUND SERVICE FEES - 2019 AMOUNT: $ 100,000. 2020 AMOUNT: $ 30,500. MISCELLANEOUS - 2019 AMOUNT: $ 71. 2020 AMOUNT: $ 14. 2021 AMOUNT: $ 65. 2022 AMOUNT: $ 76. FUNDRAISING EVENTS - 2019 AMOUNT: $ 258,089. 2020 AMOUNT: $ 100,200. 2021 AMOUNT: $ 349,599. 2022 AMOUNT: $ 919,261. 2023 AMOUNT: $ 891,321. SETTLEMENT INCOME - 2021 AMOUNT: $ 750,000.ExplanationTxt

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$240,000FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$240,000FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$48,178,488FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$48,418,488FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$1,000,000FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$250,000FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus1$1,000,000CurrentYearMinus1Amt
Current Year$1,000,000CurrentYearAmt
Total$2,000,000TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$3,000,000LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus1$260,000CurrentYearMinus1Amt
Current Year$240,000CurrentYearAmt
Total$500,000TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus1$250,000CurrentYearMinus1Amt
Current Year$250,000CurrentYearAmt
Total$500,000TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$750,000GrassrootsCeilingAmt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$4,033,188BeginningYearBalanceAmt
Investment Earnings Or Losses$559,913InvestmentEarningsOrLossesAmt
End Year Balance$4,593,101EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$3,634,618BeginningYearBalanceAmt
Investment Earnings Or Losses$398,570InvestmentEarningsOrLossesAmt
End Year Balance$4,033,188EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$4,200,522BeginningYearBalanceAmt
Investment Earnings Or Losses-$565,904InvestmentEarningsOrLossesAmt
End Year Balance$3,634,618EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$3,422,374BeginningYearBalanceAmt
Investment Earnings Or Losses$939,020InvestmentEarningsOrLossesAmt
Grants Or Scholarships$145,067GrantsOrScholarshipsAmt
Administrative Expenses$15,805AdministrativeExpensesAmt
End Year Balance$4,200,522EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$3,381,828BeginningYearBalanceAmt
Investment Earnings Or Losses$137,702InvestmentEarningsOrLossesAmt
Grants Or Scholarships$83,399GrantsOrScholarshipsAmt
Administrative Expenses$13,757AdministrativeExpensesAmt
End Year Balance$3,422,374EndYearBalanceAmt
FieldValueIRS element (for citing)
Prmnnt Endowment Balance EOY1.00000PrmnntEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$1,075,765OtherCostOrOtherBasisAmt
Depreciation$963,177DepreciationAmt
Book Value$112,588BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Other Cost Or Other Basis$3,616,930OtherCostOrOtherBasisAmt
Depreciation$3,038,296DepreciationAmt
Book Value$578,634BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$691,222TotalBookValueLandBuildingsAmt

Other Assets Org OtherAssetsOrgGrp (2 entries)

DescDescBook ValueBookValueAmt
BENEFICIAL INTERESTS IN REMAINDER TRUSTS$8,013,244
CHARITABLE GIFT ANNUITY$801,257
FieldValueIRS element (for citing)
Total Book Value Other Assets$8,814,501TotalBookValueOtherAssetsAmt

Other Liabilities Org OtherLiabilitiesOrgGrp (2 entries)

DescDescAmtAmt
CHARITABLE GIFT ANNUITY OBLIGATION$560,604
DUE TO RELATED PARTY$6,303,801
FieldValueIRS element (for citing)
Total Liability$6,864,405TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$38,635,750TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$4,905,675NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$73,616DonatedServicesAndUseFcltsAmt
Other Revenue-$1,859,848OtherRevenueAmt
Revenue Not Reported$3,119,443RevenueNotReportedAmt
Revenue Subtotal$35,516,307RevenueSubtotalAmt
Investment Expenses Not Incld$186,251InvestmentExpensesNotIncldAmt
Revenue Not Reported Fincl Stmt$186,251RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$35,702,558TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$41,108,157TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$73,616DonatedServicesUseFcltsAmt
Other Expenses Included-$6,997,757OtherExpensesIncludedAmt
Expenses Not Reported-$6,924,141ExpensesNotReportedAmt
Expenses Subtotal$48,032,298ExpensesSubtotalAmt
Investment Expenses Not Incld2$186,251InvestmentExpensesNotIncld2Amt
Other Expenses Not Included$7,862OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$194,113ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$48,226,411TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (5 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART V, LINE 4:EARNINGS CAN BE USED FOR OPERATIONS; PRINCIPAL IS DONOR RESTRICTED.
PART X, LINE 2:THE ORGANIZATION PERFORMED AN EVALUATION OF ITS UNCERTAINTY IN INCOME TAX FOR THE YEARS ENDED JUNE 30, 2024 AND 2023, AND DETERMINED THAT THERE WERE NO MATTERS THAT WOULD REQUIRE RECOGNITION IN THE CONSOLIDATED FINANCIAL STATEMENTS OR THAT MAY HAVE ANY EFFECT ON ITS TAX-EXEMPT STATUS. THE ORGANIZATION FOLLOWS THE ACCOUNTING STANDARD ON ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES, WHICH ADDRESSES THE DETERMINATION OF WHETHER TAX BENEFITS CLAIMED OR EXPECTED TO BE CLAIMED ON A TAX RETURN SHOULD BE RECORDED IN THE CONSOLIDATED FINANCIAL STATEMENTS. UNDER THIS POLICY, THE ORGANIZATION MAY RECOGNIZE THE TAX BENEFIT FROM AN UNCERTAIN TAX POSITION ONLY IF IT IS MORE LIKELY THAN NOT THAT THE TAX POSITION WOULD BE SUSTAINED ON EXAMINATION BY TAXING AUTHORITIES, BASED ON THE TECHNICAL MERITS OF THE POSITION. MANAGEMENT HAS EVALUATED THE ORGANIZATION'S TAX POSITIONS AND HAS CONCLUDED THAT THE ORGANIZATION HAS TAKEN NO UNCERTAIN TAX POSITIONS THAT REQUIRE ADJUSTMENT TO THE CONSOLIDATED FINANCIAL STATEMENTS TO COMPLY WITH PROVISIONS OF THIS GUIDANCE. THE ORGANIZATION IS NO LONGER SUBJECT TO INCOME TAX EXAMINATIONS FOR THE U.S. FEDERAL, STATE OR LOCAL TAX AUTHORITIES FOR YEARS BEFORE JUNE 30, 2021.
PART XI, LINE 2D - OTHER ADJUSTMENTS:REVENUE FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 6,447,594. ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS -8,307,442.
PART XII, LINE 2D - OTHER ADJUSTMENTS:EXPENSES FROM AFFILIATE INCLUDED ON CONSOLIDATED FINANCIAL STATEMENTS 1,309,685. ELIMINATION ENTRY INCLUDED ON FINANCIAL STATEMENTS -8,307,442.
PART XII, LINE 4B - OTHER ADJUSTMENTS:GRANT REFUNDS 7,862.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp (3 entries)

RegionRegionTxtOfficesOfficesCntEmployeeEmployeeCntType Of Activities ConductedTypeOfActivitiesConductedTxtRegion Total ExpendituresRegionTotalExpendituresAmtSpecific Services ProvidedSpecificServicesProvidedTxt
EUROPE (INCLUDING ICELAND & GREENLAND)00GRANTMAKING$3,391,431
NORTH AMERICA00GRANTMAKING$202,674
EUROPE (INCLUDING ICELAND & GREENLAND)00PROGRAM SERVICES$57,200TRAVEL
FieldValueIRS element (for citing)
Subtotal Offices0SubtotalOfficesCnt
Subtotal Employees0SubtotalEmployeesCnt
Continuation Total Office0ContinuationTotalOfficeCnt
Continuation Total Employee0ContinuationTotalEmployeeCnt
Total Office0TotalOfficeCnt
Total Employee0TotalEmployeeCnt
Subtotal Spent$3,651,305SubtotalSpentAmt
Continuation Spent$0ContinuationSpentAmt
Total Spent$3,651,305TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (11 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxtNon Cash AssistanceNonCashAssistanceAmt
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$290,505WIRE$0
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$294,518WIRE$0
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$469,000WIRE$0
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$872,356WIRE$0
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$100,000WIRE$0
NORTH AMERICARESEARCH GRANT$127,674WIRE$0
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$617,500WIRE$0
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$99,204WIRE$0
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$548,348WIRE$0
NORTH AMERICARESEARCH GRANT$75,000WIRE$0
EUROPE (INCLUDING ICELAND & GREENLAND)RESEARCH GRANT$100,000WIRE$0
FieldValueIRS element (for citing)
Total501c3 Org10Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt
Transfer To Foreign Corp0TransferToForeignCorpInd
Interest In Foreign Trust0InterestInForeignTrustInd
Foreign Corp Ownership0ForeignCorpOwnershipInd
Passive Foreign Investmest Co0PassiveForeignInvestmestCoInd
Foreign Partnership0ForeignPartnershipInd
Boycott Countries0BoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationEACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS.ExplanationTxt

Schedule G IRS990ScheduleG

FieldValueIRS element (for citing)
Mail SolicitationsYes (X)MailSolicitationsInd
Email SolicitationsYes (X)EmailSolicitationsInd
Phone SolicitationsYes (X)PhoneSolicitationsInd
In Person SolicitationsYes (X)InPersonSolicitationsInd
Solicitation Of Non Govt GrantsYes (X)SolicitationOfNonGovtGrantsInd
Special Fundraising EventsYes (X)SpecialFundraisingEventsInd
Agrmt Prof Fundraising ActyYes (1)AgrmtProfFundraisingActyInd

Fundraiser Activity Info FundraiserActivityInfoGrp (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdActivityActivityTxtFundraiser Control Of FundsFundraiserControlOfFundsIndGross ReceiptsGrossReceiptsAmtRetained By ContractorRetainedByContractorAmtNet To OrganizationNetToOrganizationAmt
FUSE FUNDRAISING GROUP LLC
12355 SUNRISE VALLEY DRIVERESTONVA20191FUNDRAISING COUNSEL0$1,114,074$674,993$439,081
GASKILL STRATEGIES LLC
1759 CENTRAL AVEMEMPHISTN38104FUNDRAISING COUNSEL0$0$77,439-$77,439
RED DELUXE
PO BOX 3350MEMPHISTN38173FUNDRAISING COUNSEL0$0$120,310-$120,310
FieldValueIRS element (for citing)
Total Gross Receipts$1,114,074TotalGrossReceiptsAmt
Total Retained By Contractors$872,742TotalRetainedByContractorsAmt
Total Net To Organization$241,332TotalNetToOrganizationAmt
Licensed StatesALLicensedStatesCd
Licensed StatesAKLicensedStatesCd
Licensed StatesAZLicensedStatesCd
Licensed StatesARLicensedStatesCd
Licensed StatesCALicensedStatesCd
Licensed StatesCOLicensedStatesCd
Licensed StatesCTLicensedStatesCd
Licensed StatesDELicensedStatesCd
Licensed StatesFLLicensedStatesCd
Licensed StatesGALicensedStatesCd
Licensed StatesHILicensedStatesCd
Licensed StatesIDLicensedStatesCd
Licensed StatesILLicensedStatesCd
Licensed StatesINLicensedStatesCd
Licensed StatesIALicensedStatesCd
Licensed StatesKSLicensedStatesCd
Licensed StatesKYLicensedStatesCd
Licensed StatesLALicensedStatesCd
Licensed StatesMELicensedStatesCd
Licensed StatesMDLicensedStatesCd
Licensed StatesMALicensedStatesCd
Licensed StatesMILicensedStatesCd
Licensed StatesMNLicensedStatesCd
Licensed StatesMSLicensedStatesCd
Licensed StatesMOLicensedStatesCd
Licensed StatesMTLicensedStatesCd
Licensed StatesNELicensedStatesCd
Licensed StatesNVLicensedStatesCd
Licensed StatesNHLicensedStatesCd
Licensed StatesNJLicensedStatesCd
Licensed StatesNMLicensedStatesCd
Licensed StatesNYLicensedStatesCd
Licensed StatesNCLicensedStatesCd
Licensed StatesNDLicensedStatesCd
Licensed StatesOHLicensedStatesCd
Licensed StatesOKLicensedStatesCd
Licensed StatesORLicensedStatesCd
Licensed StatesPALicensedStatesCd
Licensed StatesRILicensedStatesCd
Licensed StatesSCLicensedStatesCd
Licensed StatesSDLicensedStatesCd
Licensed StatesTNLicensedStatesCd
Licensed StatesTXLicensedStatesCd
Licensed StatesUTLicensedStatesCd
Licensed StatesVTLicensedStatesCd
Licensed StatesVALicensedStatesCd
Licensed StatesWALicensedStatesCd
Licensed StatesWVLicensedStatesCd
Licensed StatesWILicensedStatesCd
Licensed StatesWYLicensedStatesCd

Fundraising Event Information FundraisingEventInformationGrp

FieldValueIRS element (for citing)
Event1NIGHT FOR SIGHTEvent1Nm
Gross Receipts Event1$680,638GrossReceiptsEvent1Amt
Charitable Contri Event1$518,938CharitableContriEvent1Amt
Gross Revenue Event1$161,700GrossRevenueEvent1Amt
Rent Facility Costs Event1$145,553RentFacilityCostsEvent1Amt
Entertainment Event1$8,900EntertainmentEvent1Amt
Other Direct Expenses Event1$35,814OtherDirectExpensesEvent1Amt
Event2VISIONWALK - NEW YORKEvent2Nm
Gross Receipts Event2$415,770GrossReceiptsEvent2Amt
Charitable Contri Event2$415,770CharitableContriEvent2Amt
Other Events Total53OtherEventsTotalCnt
Gross Receipts Other Events$5,879,874GrossReceiptsOtherEventsAmt
Charitable Contri Other Events$5,150,253CharitableContriOtherEventsAmt
Gross Revenue Other Events$729,621GrossRevenueOtherEventsAmt
Rent Fclty Costs Other Events$416,706RentFcltyCostsOtherEventsAmt
Food And Beverage Other Events$106,099FoodAndBeverageOtherEventsAmt
Entertainment Other Events$26,417EntertainmentOtherEventsAmt
Oth Direct Expnss Other Events$325,295OthDirectExpnssOtherEventsAmt
Gross Receipts Total$6,976,282GrossReceiptsTotalAmt
Charitable Contributions Tot$6,084,961CharitableContributionsTotAmt
Gross Revenue Total Events$891,321GrossRevenueTotalEventsAmt
Rent Fclty Costs Total Events$562,259RentFcltyCostsTotalEventsAmt
Food And Beverage Total Events$106,099FoodAndBeverageTotalEventsAmt
Entertainment Total Events$35,317EntertainmentTotalEventsAmt
Oth Direct Expnss Total Events$361,109OthDirectExpnssTotalEventsAmt
Direct Expense Summary Events$1,064,784DirectExpenseSummaryEventsAmt
Net Income Summary-$173,463NetIncomeSummaryAmt

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (30 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2Txt
UNIV ALABAMA AT BIRMINGHAM
1670 UNIVERSITY BLVDBIRMINGHAMAL35293636005396501(C)(3)$100,000$0RESEARCH
BAYLOR COLLEGE OF MEDICINE
ONE BAYLOR PLAZAHOUSTONTX77030741613878501(C)(3)$499,940$0RESEARCH
BIOJIVA
4300 EL CAMINO REAL SUITE 201LOS ATLOSCA94022883372722$483,751$0RESEARCH
CASE WESTERN RESERVE UNIVERSITY
10900 EUCLID AVENUECLEVELANDOH44106341018992501(C)(3)$500,000$0RESEARCH
COLUMBIA UNIVERSITY
635 WEST 165TH STREETNEW YORKNY10032135598093501(C)(3)$400,000$0RESEARCH
UNIVERSITY OF DELAWARE
590 AVENUE 1743NEWARKDE19716911955015501(C)(3)$100,000$0RESEARCH
DUKE UNIVERSITY MEDICAL CENTER
2200 W MAINE STREETDURHAMNC27705560532129501(C)(3)$700,000$0RESEARCH
FOUNDATION FIGHTING BLINDNESS RD FUND
6925 OAKLAND MILLS ROAD 701COLUMBIAMD21045450524687501(C)(3)$8,307,442$0RESEARCH
HARVARD MEDICAL SCHOOL
220 LONGWOOD AVENUEBOSTONMA02114042103580501(C)(3)$402,223$0RESEARCH
INDIANA UNIVERSITY
509 E 3RD STREETBLOOMINGTONIN47405356001673501(C)(3)$169,257$0RESEARCH
MASSACHUSETTS EYE AND EAR INFIRMARY
243 CHARLES STREETBOSTONMA02114042103591501(C)(3)$200,000$0RESEARCH
MEDICAL COLLEGE OF WISCONSIN
8701 WATERTOWN PLANK ROADMILWAUKEEWI53226390806261501(C)(3)$100,000$0RESEARCH
MITOCHEM THERAPEUTICS INC
17C FRANKLIN STREETCHARLESTONSC29401453845208501(C)(3)$300,000$0RESEARCH
RETINA FOUNDATION OF THE SOUTHWEST
9600 N CENTRAL EXPRESSWAY SUITE 200DALLASTX75231510151514501(C)(3)$100,000$0RESEARCH
OAKLAND UNIVERSITY
371 WILSON BLVDROCHESTERMI48309381714400501(C)(3)$145,665$0RESEARCH
OREGON HEALTH AND SCIENCE UNIVERSITY
3375 TERWILLIGER BOULEVARD SWPORTLANDOR97201237083114501(C)(3)$622,107$0RESEARCH
ODYLIA THERAPEUTICS
1447 PEACHTREE STREET NEATLANTAGA30309822120760501(C)(3)$868,961$0RESEARCH
TUFTS UNIVERSITY
136 HARRISON AVENUEBOSTONMA02155042103634501(C)(3)$199,975$0RESEARCH
UNIVERSITY HOSPITALS
UH GRANTS DEPT 781686 PO BOX 78000DETROITMI48278341567805501(C)(3)$31,260$0RESEARCH
UNIVERSITY OF CALIFORNIA SAN DIEGO
9500 GILMAN DRIVELA JOLLACA92037956006144501(C)(3)$175,000$0RESEARCH
UNIVERSITY OF CALIFORNIA IRVINE
228 ALDRICH HALLIRVINCECA92697952226406501(C)(3)$300,000$0RESEARCH
UNIVERSITY OF HOUSTON
3517 CULLEN BLVDHOUSTONTX77204746001399501(C)(3)$160,400$0RESEARCH
MICHIGAN STATE UNIVERSITY
736 WILSON ROAD D208EAST LANSINGMI48823386005984501(C)(3)$266,686$0RESEARCH
UNIVERSITY OF MICHIGAN
733 KELLOGG EYE CENTER 1000 WALLANN ARBORMI48105386006309501(C)(3)$175,000$0RESEARCHSTREET
UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE
120 MASON FARM ROADCHAPEL HILLNC27599566001393501(C)(3)$50,000$0RESEARCH
UNIVERSITY OF PENNSYLVANIA
3451 WALNUT STREETPHILADELPHIAPA19104232810852501(C)(3)$1,093,565$0RESEARCH
UNIVERSITY OF PITTSBURGH
123 UNIVERSITY PLACEPITTSBURGHPA15213250965591501(C)(3)$375,000$0RESEARCH
UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON
7000 FANNIN UCT 1000HOUSTONTX77030741761309501(C)(3)$24,998$0RESEARCH
UNIVERSITY OF WASHINGTON
1100 45TH ST NESEATTLEWA98105943079432501(C)(3)$611,811$0RESEARCH
FOUNDATION FOR THE NIH
11400 ROCKVILLE PIKE SUITE 600NORTH BETHESDAMD20852521986675501(C)(3)$50,000$0RESEARCH
FieldValueIRS element (for citing)
Total501c3 Org29Total501c3OrgCnt
Total Other Org1TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferencePART I, LINE 2:FormAndLineReferenceDesc
ExplanationEACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY SCIENTIFIC PROGRESS REPORT, WHICH IS REVIEWED BY THE FFB SCIENCE STAFF AND COMPARED WITH THE PROPOSED MILESTONES SUBMITTED WITH THE ORIGINAL GRANT APPLICATION. ATTENTION IS ALSO GIVEN TO THE PLAN FOR EXPERIMENTS TO BE PERFORMED IN THE COMING YEAR. ANY PROBLEMS OR ISSUES IDENTIFIED BY THE GRANTEE AND/OR FFB SCIENTIFIC STAFF ARE RESOLVED TO OUR MUTUAL SATISFACTION; HOWEVER, IF A CONSENSUS CANNOT BE REACHED OR IF THE APPARENT PROGRESS IS NOT SATISFACTORY IN THE OPINION OF FFB SCIENTIFIC STAFF, AFTER CONSULTATION WITH MEMBERS OF THE FFB SCIENTIFIC ADVISORY BOARD, THE GRANT IS TERMINATED WITH A SHORT PHASE OUT PERIOD. EACH GRANTEE IS REQUIRED TO SUBMIT A YEARLY FINANCIAL REPORT DETAILING GRANT EXPENDITURES ACCORDING TO THEIR FFB APPROVED GRANT BUDGET. SCIENCE STAFF REVIEW EACH FINANCIAL REPORT FOR ADHERENCE TO BUDGETED EXPENDITURES IN EACH CATEGORY. WITH PROPER DOCUMENTATION AND IF DETERMINED APPROPRIATE, REQUESTS FOR CARRYOVER OF UNEXPENDED FUNDS TO THE NEXT FISCAL YEAR ARE REVIEWED AND APPROVED ON A CASE-BY-CASE BASIS.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Idemnification Gross Up PmtsYes (X)IdemnificationGrossUpPmtsInd
Written Policy Ref T And E ExpnssYes (1)WrittenPolicyRefTAndEExpnssInd
Substantiation RequiredYes (1)SubstantiationRequiredInd
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance Payment0SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (12 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtCompensation Based On Rltd OrgsCompensationBasedOnRltdOrgsAmtBonus Filing OrganizationBonusFilingOrganizationAmountBonus Related OrganizationsBonusRelatedOrganizationsAmtOther Compensation Filing OrgOtherCompensationFilingOrgAmtOther Compensation Rltd OrgsOtherCompensationRltdOrgsAmtDeferred Compensation Flng OrgDeferredCompensationFlngOrgAmtDeferred Comp Rltd OrgsDeferredCompRltdOrgsAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmtNontaxable Benefits Rltd OrgsNontaxableBenefitsRltdOrgsAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtTotal Compensation Rltd OrgsTotalCompensationRltdOrgsAmtComp Report Prior990 Filing OrgCompReportPrior990FilingOrgAmtComp Report Prior990 Rltd OrgsCompReportPrior990RltdOrgsAmt
JASON D MENZO
CEO$336,556$84,139$79,645$19,911$288$72$14,656$3,664$40,052$10,013$471,197$117,799$0$0
CLAIRE GELFMAN
CHIEF SCIENTIFIC OFFICER$342,166$0$48,610$0$1,584$0$12,043$0$48,758$0$453,161$0$0$0
PETER GINSBERG
COO$253,239$63,310$35,954$8,989$826$206$14,901$3,725$35,717$8,929$340,637$85,159$0$0
RUSSELL W KELLEY
MANAGING DIRECTOR, RD FUND$0$296,734$0$50,248$0$552$0$18,571$0$46,388$0$412,493$0$0
TODD A DURHAM
VP, CLINICAL & OUTCOMES RESEARCH$238,960$0$22,795$0$539$0$14,099$0$46,870$0$323,263$0$0$0
RICHELE DONAT
CHRO$232,420$0$32,266$0$947$0$15,992$0$17,823$0$299,448$0$0$0
JUDY L TAYLOR
SVP, CHIEF DEVELOPMENT OFFICER$197,745$0$28,994$0$1,235$0$13,538$0$45,505$0$287,017$0$0$0
MICHELE C DIVINCENZO
VP, SCIENTIFIC & EDUCATIONAL CONFERE$177,695$0$20,900$0$694$0$12,098$0$36,797$0$248,184$0$0$0
CHRISTOPHER S ADAMS
VP, COMMUNICATIONS & MARKETING$174,359$0$17,975$0$374$0$2,027$0$48,296$0$243,031$0$0$0
AMY M PALMER LASTER
SVP, SCIENCE STRATEGY & AWARDS$201,581$0$18,618$0$422$0$11,697$0$5,206$0$237,524$0$0$0
JEFFRY C COLLINS
VP, DATABASE SYSTEMS & TECHNOLOGY$172,455$0$19,507$0$1,016$0$11,687$0$29,015$0$233,680$0$0$0
CHAD R JACKSON
SR DIR, PRE-CLINICAL TRANSLATIONAL P$176,521$0$20,920$0$152$0$11,560$0$4,671$0$213,824$0$0$0

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, LINE 1ASPOT BONUSES FOR EXTRAORDINARY WORK ARE PROVIDED TO EMPLOYEES. IF THE BONUS IS $1,000 OR LESS, IT IS GROSSED UP. THESE SPOT BONUSES AND GROSS UPS ARE INCLUDED IN TAXABLE COMPENSATION.
PART I, LINE 7FFB EMPLOYEES PARTICIPATE IN AN ANNUAL INCENTIVE PLAN. THE PLAN PROVIDES AN ANNUAL CASH BONUS DEPENDING UPON THE ACHIEVEMENT OF PRE-DETERMINED ORGANIZATION AND INDIVIDUAL PERFORMANCE CRITERIA.

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution52ContributionCnt
Noncash Contributions Rpt F990$1,337,694NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescEVENT ITEMSDesc
Contribution702ContributionCnt
Noncash Contributions Rpt F990$265,704NoncashContributionsRptF990Amt
Method Of Determining RevenuesFAIR MARKET VALUEMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Form8283 Received0Form8283ReceivedCnt
Any Property That Must Be Held0AnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (1)ReviewProcessUnusualNCGiftsInd
Third Parties UsedYes (1)ThirdPartiesUsedInd

Supplemental Information Detail SupplementalInformationDetail (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART I, COLUMN (B):THE NUMBER IN THIS COLUMN FOR LINE 9 REPRESENTS THE NUMBER OF CONTRIBUTIONS OF STOCK.
PART I, LINE 32B:WHEN DONATED STOCK IS RECEIVED, OUR BROKER MERRILL LYNCH IMMEDIATELY CONVERTS THESE CONTRIBUTIONS INTO CASH.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
FORM 990, PART VI, SECTION A, LINE 2JONATHAN STEINBERG AND JOSHUA STEINBERG HAVE A FAMILY RELATIONSHIP.
FORM 990, PART VI, SECTION A, LINE 6MEMBERS OF FFB ARE KNOWN AS NATIONAL TRUSTEES. THE QUALIFICATIONS AND ELIGIBILITY FOR MEMBERSHIP AND THE MANNER OF ADMISSION INTO MEMBERSHIP IS PRESCRIBED BY RESOLUTION OF THE BOARD OF DIRECTORS. THE NATIONAL TRUSTEES ARE ENTITLED TO VOTE ON ELECTION OF DIRECTORS.
FORM 990, PART VI, SECTION A, LINE 7ADURING THE ANNUAL MEETING OF THE NATIONAL TRUSTEES, MEMBERS OF THE BOARD OF DIRECTORS ARE ELECTED.
FORM 990, PART VI, SECTION B, LINE 11BDATA TO PREPARE THE FEDERAL FORM 990 IS PROVIDED TO OUR OUTSIDE ACCOUNTING FIRM FOR PREPARATION AND GUIDANCE. AFTER IT HAS BEEN COMPLETED, A DRAFT OF THE FEDERAL FORM 990 IS REVIEWED BY THE VP, FINANCE AND CHIEF OPERATING OFFICER. WITH THE COO'S APPROVAL, THE DRAFT FEDERAL FORM 990 IS THEN MADE AVAILABLE TO ALL BOARD MEMBERS. ALL BOARD MEMBERS ARE INVITED TO ATTEND A SPECIAL MEETING OF THE FINANCE COMMITTEE TO REVIEW THE FEDERAL FORM 990. A FINAL DRAFT IS MADE AVAILABLE TO ALL BOARD MEMBERS BEFORE FILING.
FORM 990, PART VI, SECTION B, LINE 12CIN CONNECTION WITH ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST, AN INTERESTED PERSON (INCLUDING OFFICERS, DIRECTORS, AND KEY EMPLOYEES) MUST DISCLOSE, IN WRITING PRIOR TO ANY DISCUSSION OR VOTE UPON A PROPOSAL, THE EXISTENCE AND NATURE OF HIS OR HER PERSONAL INTEREST TO THE CHAIR OF THE BOARD AND CHAIR OF THE BOARD COMMITTEE CONSIDERING THE PROPOSED TRANSACTION OR ARRANGEMENT. AFTER DISCLOSURE OF THE FINANCIAL OR NON-FINANCIAL INTEREST AND ALL MATERIAL FACTS, THE INTERESTED PERSON SHALL LEAVE THE BOARD OR COMMITTEE MEETING WHILE THE FINANCIAL OR NON-FINANCIAL INTEREST IS DISCUSSED AND VOTED UPON. THE REMAINING BOARD SHALL DECIDE IF A CONFLICT OF INTEREST EXISTS, AND IF SO, WHETHER THERE IS A COMPELLING REASON TO RECOMMEND TO THE BOARD THAT THE CONFLICT OF INTEREST POLICY BE OVERRIDDEN. A QUORUM IS NEEDED FOR VOTING AND THE VOTE TO OVERRIDE SHALL BE BY MAJORITY AND DULY NOTED IN THE MINUTES.
FORM 990, PART VI, SECTION B, LINE 15THE COMPENSATION COMMITTEE AND THE BOARD OF DIRECTORS APPROVES THE COMPENSATION OF THE CHIEF EXECUTIVE OFFICER. THE COMPENSATION COMMITTEE APPROVES THE COMPENSATION OF THE OTHER CHIEF OFFICERS. ON A ROUTINE BASIS, EXTERNAL DATA PROVIDED BY OUTSIDE EXPERT COMPENSATION CONSULTANTS IS USED TO MEASURE REASONABLENESS OF SALARIES TO THE MARKET PLACE AND RESULTS ARE COMMUNICATED BY OUTSIDE CONSULTANTS TO THE BOARD CHAIR/COMPENSATION COMMITTEE.
FORM 990, PART VI, SECTION C, LINE 19FFB'S FEDERAL FORM 990 AND CONSOLIDATED AUDITED FINANCIAL STATEMENTS ARE AVAILABLE AT WWW.FIGHTBLINDNESS.ORG. OTHER PUBLIC DOCUMENTS INCLUDING THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST THROUGH THE CONTACT INFORMATION DISCLOSED ON FFB'S WEB SITE. THESE DOCUMENTS ARE AVAILABLE FOR THE SAME PERIOD OF DISCLOSURE AS SET FORTH IN SECTION 6104(D).
FORM 990, PART VII, SECTION A:FFB ACTS AS THE COMMON PAYMASTER FOR THE FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND, A RELATED ORGANIZATION.
FORM 990, PART XI, LINE 9:GRANT REFUNDS 7,862.

Schedule R IRS990ScheduleR

Id Related Tax Exempt Org IdRelatedTaxExemptOrgGrp (3 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdEINEINPrimary ActivitiesPrimaryActivitiesTxtLegal Domicile StateLegalDomicileStateCdExempt Code SectionExemptCodeSectionTxtPublic Charity StatusPublicCharityStatusTxtBusiness Name Line1DirectControllingEntityName/BusinessNameLine1TxtControlled OrganizationControlledOrganizationInd
FOUNDATION FIGHTING BLINDNESS RETINAL DEGENERATION FUND
6925 OAKLAND MILLS ROAD 701COLUMBIAMD21045450524687FUNDS RESEARCH AND CLINICAL TRIALS TO FIND TREATMENTS FOR RETINAL DISEASESDE501(C)(3)LINE 12A, IFOUNDATION FIGHTING BLINDNESS INCYes (1)
MACULAR DEGENERATION INTERNATIONAL INC
6925 OAKLAND MILLS ROAD 701COLUMBIAMD21045363923922FUNDRAISINGIL501(C)(3)LINE 7FOUNDATION FIGHTING BLINDNESS INCYes (1)
NATIONAL RETINITIS PIGMENTOSA FOUNDATION INC
6925 OAKLAND MILLS ROAD 701COLUMBIAMD21045522072391FUNDRAISINGMD501(C)(3)LINE 12A, IFOUNDATION FIGHTING BLINDNESS INCYes (1)
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts Rylts0ReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth OrgYes (1)GiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth Org0GiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other Org0LoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth Org0LoansOrGuaranteesFromOthOrgInd
Div Related Organization0DivRelatedOrganizationInd
Asset Sale To Other Org0AssetSaleToOtherOrgInd
Asset Purchase From Other Org0AssetPurchaseFromOtherOrgInd
Asset Exchange0AssetExchangeInd
Rental Of Facilities To Oth Org0RentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth Org0RentalOfFcltsFromOthOrgInd
Perform Of Services For Oth Org0PerformOfServicesForOthOrgInd
Perform Of Services By Other Org0PerformOfServicesByOtherOrgInd
Sharing Of Facilities0SharingOfFacilitiesInd
Paid Employees SharingYes (1)PaidEmployeesSharingInd
Reimbursement Paid To Other Org0ReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other Org0ReimbursementPaidByOtherOrgInd
Transfer To Other Org0TransferToOtherOrgInd
Transfer From Other Org0TransferFromOtherOrgInd

Transactions Related Org TransactionsRelatedOrgGrp (2 entries)

Transaction TypeTransactionTypeTxtInvolvedInvolvedAmtMethod Of Amount DeterminationMethodOfAmountDeterminationTxt
FOUNDATION FIGHTING BLINDNESS RD FUND
B$8,307,442FAIR MARKET VALUE
FOUNDATION FIGHTING BLINDNESS RD FUND
O$1,106,466FAIR MARKET VALUE

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