CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION: Form 990, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATION (EIN 41-1984675)
Tax period
2023-01-01 to 2023-12-31
Filed
2024-11-15
IRS object ID
202413209349302816
Schema version
2023v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-11-15T08:23:25-07:00ReturnTs
Tax Period End2023-12-31TaxPeriodEndDt
Return Type990ReturnTypeCd
Tax Period Begin2023-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN411984675EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1CHILD NEUROLOGY EDUCATION AND RESEARCH FOUNDATIONBusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlCHILBusinessNameControlTxt
Phone8884173435PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 1226AddressLine1Txt
CityLexingtonCityNm
State AbbreviationKYStateAbbreviationCd
ZIP40588ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonLindsey TaverenPersonNm
Person TitleDirector of Finance & AccountingPersonTitleTxt
Phone2147897316PhoneNum
Signature2024-11-15SignatureDt
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (1)IRSResponsiblePrtyInfoCurrInd
Tax2023TaxYr
Build TS2024-10-15 13:58:12ZBuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

FieldValueIRS element (for citing)
Business Name Line1Child Neurology FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Principal OfficerLindsey TaverenPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 1226AddressLine1Txt
CityLexingtonCityNm
State AbbreviationKYStateAbbreviationCd
ZIP40588ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$3,146,217GrossReceiptsAmt
Group Return For Affiliates0GroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresshttps://www.childneurologyfoundation.org/WebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2000FormationYr
Legal Domicile StateMNLegalDomicileStateCd
Activity Or MissionTo serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them.ActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee12TotalEmployeeCnt
Total Volunteers50TotalVolunteersCnt
Total Gross UBI$0TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$0NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$1,169,746PYContributionsGrantsAmt
CY Contributions Grants$2,401,347CYContributionsGrantsAmt
PY Program Service Revenue$728,465PYProgramServiceRevenueAmt
CY Program Service Revenue$669,258CYProgramServiceRevenueAmt
PY Investment Income-$30,731PYInvestmentIncomeAmt
CY Investment Income$70,749CYInvestmentIncomeAmt
PY Other Revenue$2,000PYOtherRevenueAmt
CY Other Revenue$4,863CYOtherRevenueAmt
PY Total Revenue$1,869,480PYTotalRevenueAmt
CY Total Revenue$3,146,217CYTotalRevenueAmt
PY Grants And Similar Paid$481,375PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$373,923CYGrantsAndSimilarPaidAmt
PY Benefits Paid To Members$0PYBenefitsPaidToMembersAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,510,158PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,801,668CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$12,188PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$407,611CYTotalFundraisingExpenseAmt
PY Other Expenses$1,676,975PYOtherExpensesAmt
CY Other Expenses$1,273,751CYOtherExpensesAmt
PY Total Expenses$3,680,696PYTotalExpensesAmt
CY Total Expenses$3,449,342CYTotalExpensesAmt
PY Revenues Less Expenses-$1,811,216PYRevenuesLessExpensesAmt
CY Revenues Less Expenses-$303,125CYRevenuesLessExpensesAmt
Total Assets BOY$2,744,200TotalAssetsBOYAmt
Total Assets EOY$2,028,346TotalAssetsEOYAmt
Total Liabilities BOY$1,001,080TotalLiabilitiesBOYAmt
Total Liabilities EOY$1,142,979TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$1,743,120NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$885,367NetAssetsOrFundBalancesEOYAmt
MissionThe mission of the Child Neurology Foundation is to serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care - and the highest quality of life-for every child.MissionDesc
Significant New Program Srvc0SignificantNewProgramSrvcInd
Significant Change0SignificantChangeInd
Expense$335,817ExpenseAmt
Grant$321,804GrantAmt
Revenue$0RevenueAmt
DescRESEARCH GRANTS: Since 2001, CNF has proudly awarded grants and scholarships totaling over $5.2M to child neurologists, medical students, institutions, and researchers who are working on treatments and cures for pediatric ne urologic diseases. To encourage collaboration and increase research, the Foundation awarded a $150,000 Pediatric Epilepsy Research Foundation (PERF) Elterman and a $150,000 PERF Shields Research Grant in 2023 to support clinical or basic science research by a child neurologist or developmental pediatrician early in their academic career who are members of the Child Neurology Society. To further support interest in the field of child neurology, the Foundation also awarded three of the the Dr. Kenneth F. Swaiman Medical Student Scholarships in the amount of $6,000 for medical students interested in exploring a career in child neurology, plus $1,500 travel stipend for attendance at the Child Neurology Society Annual Meeting, and the Neurodevelopmental Disabilities Summer Research Scholarship of $3,500 to a medical student who has an interest in training in neurodevelopmental disabilities or child neurology.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$1,285,645ExpenseAmt
Grant$52,119GrantAmt
Revenue$29,258RevenueAmt
DescCOMMUNITY SUPPORT AND EDUCATION: In 2023 , CNF provided 47 families with Chromebooks and hotspots to better access telehealth, provided emotional support to over 262 families, reached over 460 clinicians with education, and built collaborations with over 68 other patient advocacy organizations via the Neurology Social Services Network (NSSN). Through the NSSN CNF provides access to local service organizations such as food shelves, transportation assistance, and housing assistance. In 2023, the NSSN processed 300 referrals providing resources across 47 states. In 2023 education program topics included family support, digital access, transition of care, shortening the diagnostic odyssey, care coordination, preventing epilepsy deaths, and clinical trials. CNF also collected insights from families and child neurologists via surveys and focus groups. This information influences the development of CNF programming going forward.Desc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$0TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$0TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue$0TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$1,621,462TotalProgramServiceExpensesAmt
Described In Section501c3Yes (1)DescribedInSection501c3Ind
Schedule B RequiredYes (1)ScheduleBRequiredInd
Political Campaign Acty0PoliticalCampaignActyInd
Lobbying ActivitiesYes (1)LobbyingActivitiesInd
Subject To Proxy Tax0SubjectToProxyTaxInd
Donor Advised Fund0DonorAdvisedFundInd
Conservation Easements0ConservationEasementsInd
Collections Of Art0CollectionsOfArtInd
Credit Counseling0CreditCounselingInd
Donor Rstr Or Quasi EndowmentsYes (1)DonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (1)ReportLandBuildingEquipmentInd
Report Investments Other Sec0ReportInvestmentsOtherSecInd
Report Program Related Invst0ReportProgramRelatedInvstInd
Report Other Assets0ReportOtherAssetsInd
Report Other LiabilitiesYes (1)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (1)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (1)IndependentAuditFinclStmtInd
Consolidated Audit Fincl Stmt0ConsolidatedAuditFinclStmtInd
School Operating0SchoolOperatingInd
Foreign Office0ForeignOfficeInd
Foreign Activities0ForeignActivitiesInd
More Than5000 K To Org0MoreThan5000KToOrgInd
More Than5000 K To Individuals0MoreThan5000KToIndividualsInd
Professional Fundraising0ProfessionalFundraisingInd
Fundraising Activities0FundraisingActivitiesInd
Gaming Activities0GamingActivitiesInd
Operate Hospital0OperateHospitalInd
Grants To OrganizationsYes (1)GrantsToOrganizationsInd
Grants To Individuals0GrantsToIndividualsInd
Schedule J RequiredYes (1)ScheduleJRequiredInd
Tax Exempt Bonds0TaxExemptBondsInd
Engaged In Excess Benefit Trans0EngagedInExcessBenefitTransInd
PY Excess Benefit Trans0PYExcessBenefitTransInd
Loan Outstanding0LoanOutstandingInd
Grant To Related Person0GrantToRelatedPersonInd
Business Rln With Org Mem0BusinessRlnWithOrgMemInd
Business Rln With Fam Mem0BusinessRlnWithFamMemInd
Business Rln With35 Ctrl Ent0BusinessRlnWith35CtrlEntInd
Deductible Non Cash Contri0DeductibleNonCashContriInd
Deductible Art Contribution0DeductibleArtContributionInd
Terminate Operations0TerminateOperationsInd
Partial Liquidation0PartialLiquidationInd
Disregarded Entity0DisregardedEntityInd
Related Entity0RelatedEntityInd
Related Organization Ctrl Ent0RelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd Org0TrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted Prtshp0ActivitiesConductedPrtshpInd
Schedule O RequiredYes (1)ScheduleORequiredInd
IRP Document27IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Employee12EmployeeCnt
Employment Tax Returns FiledYes (1)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over Limit0UnrelatedBusIncmOverLimitInd
Foreign Financial Account0ForeignFinancialAccountInd
Prohibited Tax Shelter Trans0ProhibitedTaxShelterTransInd
Taxable Party Notification0TaxablePartyNotificationInd
Nondeductible ContributionsYes (1)NondeductibleContributionsInd
Nondeductible Contri DisclYes (1)NondeductibleContriDisclInd
Quid Pro Quo ContributionsYes (1)QuidProQuoContributionsInd
Quid Pro Quo Contri DisclYes (1)QuidProQuoContriDisclInd
Form8282 Property Disposed Of0Form8282PropertyDisposedOfInd
Rcv Fnds To Pay Prsnl Bnft Cntrct0RcvFndsToPayPrsnlBnftCntrctInd
Pay Premiums Prsnl Bnft Cntrct0PayPremiumsPrsnlBnftCntrctInd
Indoor Tanning Services0IndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht Pymt0SubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst Inc0SubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business Rln0FamilyOrBusinessRlnInd
Delegation Of Mgmt Duties0DelegationOfMgmtDutiesInd
Change To Org Documents0ChangeToOrgDocumentsInd
Material Diversion Or Misuse0MaterialDiversionOrMisuseInd
Members Or Stockholders0MembersOrStockholdersInd
Election Of Board Members0ElectionOfBoardMembersInd
Decisions Subject To Approva0DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (1)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (1)MinutesOfCommitteesInd
Officer Mailing Address0OfficerMailingAddressInd
Local Chapters0LocalChaptersInd
Form990 Provided To Gvrn BodyYes (1)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (1)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (1)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (1)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (1)WhistleblowerPolicyInd
Document Retention PolicyYes (1)DocumentRetentionPolicyInd
Compensation Process CEOYes (1)CompensationProcessCEOInd
Compensation Process OtherYes (1)CompensationProcessOtherInd
Investment In Joint Venture0InvestmentInJointVentureInd
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Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonLindsey Taveren Interim EDPersonNm
Phone8595514987PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1PO Box 1226AddressLine1Txt
CityLexingtonCityNm
State AbbreviationKYStateAbbreviationCd
ZIP40588ZIPCd
FieldValueIRS element (for citing)
Info In Schedule O Part VIIYes (X)InfoInScheduleOPartVIIInd

Form990 Part VII Section A Form990PartVIISectionAGrp (20 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtAverage Hours Per Week Rltd OrgAverageHoursPerWeekRltdOrgRtOfficerOfficerIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtHighest Compensated EmployeeHighestCompensatedEmployeeIndIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndFormer Ofcr Director TrusteeFormerOfcrDirectorTrusteeInd
Amy Brin Executive Director
Ex Officio Non-voting Member450Yes (X)$294,315$0$360,845
Breanna McCormley Former
Director of Development450$139,623$0$14,070Yes (X)
Dr Amaris Sanchez Larragoity
Director10$0$0$0Yes (X)
Dr Donald Pearl
Director10$0$0$0Yes (X)
Dr John Millichap
Director10$0$0$0Yes (X)
Dr Madeline Chadehumbe
Director10$0$0$0Yes (X)
Dr Rebecca Schultz
Director10$0$0$0Yes (X)
Dr Sonika Agarwal
Director10$0$0$0Yes (X)
Dr Bruce Cohen
Ex Officio Child Neurology Society Past President10$0$0$0Yes (X)
Dr Peter Kang
Ex Officio Child Neurology Society President10$0$0$0Yes (X)
Monique Terrell
Ex Officio Child Neurology Society Executive Director Non-voting Member10$0$0$0Yes (X)
Dr Mary Zupanc
Ex Officio Honorary Director Non-voting member10$0$0$0Yes (X)
Dr W Donald Shields
Ex Officio Honorary Director Non-voting member10$0$0$0Yes (X)
Stephen Peters
President70Yes (X)$0$0$0
Dr M Scott Perry
President Elect30Yes (X)$0$0$0
Dr Ann Tilton
Past President30Yes (X)$0$0$0
Dr Shaun Hussain
Secretary20Yes (X)$0$0$0
Timothy Engel
Treasurer20Yes (X)$0$0$0
Dr Anup Patel
Former President50$0$0$0Yes (X)
Dr Scott Pomeroy
Former Past-President10$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$433,938TotalReportableCompFromOrgAmt
Tot Reportable Comp Rltd Org$0TotReportableCompRltdOrgAmt
Total Other Compensation$374,915TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K2IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedYes (1)FormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (1)TotalCompGreaterThan150KInd
Compensation From Other Srcs0CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (2 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtAddress Line2ContractorAddress/USAddress/AddressLine2TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
Digital Health Solutions LLC
133 W Market StNumber 238IndianapolisIN46204Development of Child Health Improvement through Computer Automation system for child neurology$266,370
Artemis Policy Group
1150 Connecticut Avenue NWSuite 803WashingtonDC20036Advocacy strategy and community organization$114,000
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K2CntrctRcvdGreaterThan100KCnt
Federated Campaigns$0FederatedCampaignsAmt
Membership Dues$0MembershipDuesAmt
Fundraising$7,500FundraisingAmt
Related Organizations$0RelatedOrganizationsAmt
Government Grants$90,394GovernmentGrantsAmt
All Other Contributions$2,303,453AllOtherContributionsAmt
Noncash Contributions$0NoncashContributionsAmt
Total Contributions$2,401,347TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp (2 entries)

DescDescBusinessBusinessCdTotal Revenue ColumnTotalRevenueColumnAmtRelated Or Exempt Func IncomeRelatedOrExemptFuncIncomeAmtUnrelated Business RevenueUnrelatedBusinessRevenueAmtExclusionExclusionAmt
Corporate Advisory Board900099$640,000$0$0$640,000
Peer Support Program Webinars611430$29,258$29,258$0$0

Total Oth Program Service Rev TotalOthProgramServiceRevGrp

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Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$669,258TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$70,749TotalRevenueColumnAmt
Related Or Exempt Func Income$70,749RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

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Exclusion$0ExclusionAmt

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Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Gross Rents GrossRentsGrp

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Real$0RealAmt
Personal$0PersonalAmt

Less Rental Expenses LessRentalExpensesGrp

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Real$0RealAmt
Personal$0PersonalAmt

Rental Income Or Loss RentalIncomeOrLossGrp

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Real$0RealAmt
Personal$0PersonalAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

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Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

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Securities$0SecuritiesAmt
Other$0OtherAmt

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Securities$0SecuritiesAmt
Other$0OtherAmt

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Securities$0SecuritiesAmt
Other$0OtherAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

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Total Revenue Column$0TotalRevenueColumnAmt
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Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Contri Rpt Fundraising Event$7,500ContriRptFundraisingEventAmt
Fundraising Direct Expenses$0FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

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Total Revenue Column$0TotalRevenueColumnAmt
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FieldValueIRS element (for citing)
Gaming Gross Income$0GamingGrossIncomeAmt
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Net Income From Gaming NetIncomeFromGamingGrp

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Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Gross Sales Of Inventory$0GrossSalesOfInventoryAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt

Net Income Or Loss NetIncomeOrLossGrp

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Total Revenue Column$0TotalRevenueColumnAmt
Related Or Exempt Func Income$0RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt

Miscellaneous Revenue MiscellaneousRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$4,863TotalRevenueColumnAmt
Related Or Exempt Func Income$4,863RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$0ExclusionAmt
FieldValueIRS element (for citing)
Other Revenue Total$4,863OtherRevenueTotalAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$3,146,217TotalRevenueColumnAmt
Related Or Exempt Func Income$104,870RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$0UnrelatedBusinessRevenueAmt
Exclusion$640,000ExclusionAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$372,923TotalAmt
Program Services$372,923ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$1,000TotalAmt
Program Services$1,000ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt

Benefits To Members BenefitsToMembersGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$656,734TotalAmt
Program Services$46,119ProgramServicesAmt
Management And General$557,632ManagementAndGeneralAmt
Fundraising$52,983FundraisingAmt

Comp Disqual Persons CompDisqualPersonsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,076,030TotalAmt
Program Services$399,707ProgramServicesAmt
Management And General$426,974ManagementAndGeneralAmt
Fundraising$249,349FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$45,981TotalAmt
Program Services$16,900ProgramServicesAmt
Management And General$18,143ManagementAndGeneralAmt
Fundraising$10,938FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$22,923TotalAmt
Program Services$8,425ProgramServicesAmt
Management And General$9,045ManagementAndGeneralAmt
Fundraising$5,453FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$30,597TotalAmt
Program Services$7,707ProgramServicesAmt
Management And General$17,325ManagementAndGeneralAmt
Fundraising$5,565FundraisingAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$39,747TotalAmt
Program Services$4,665ProgramServicesAmt
Management And General$35,082ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$24,448TotalAmt
Program Services$0ProgramServicesAmt
Management And General$24,448ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$114,000TotalAmt
Program Services$114,000ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Prof Fundraising FeesForServicesProfFundraising

FieldValueIRS element (for citing)
Total$0TotalAmt
Fundraising$0FundraisingAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$557,075TotalAmt
Program Services$460,491ProgramServicesAmt
Management And General$79,045ManagementAndGeneralAmt
Fundraising$17,539FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$10,298TotalAmt
Program Services$3,042ProgramServicesAmt
Management And General$3,833ManagementAndGeneralAmt
Fundraising$3,423FundraisingAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$11,483TotalAmt
Program Services$499ProgramServicesAmt
Management And General$8,546ManagementAndGeneralAmt
Fundraising$2,438FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$189,518TotalAmt
Program Services$104,748ProgramServicesAmt
Management And General$56,545ManagementAndGeneralAmt
Fundraising$28,225FundraisingAmt

Royalties RoyaltiesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$50,302TotalAmt
Program Services$17,829ProgramServicesAmt
Management And General$21,543ManagementAndGeneralAmt
Fundraising$10,930FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$170,054TotalAmt
Program Services$40,761ProgramServicesAmt
Management And General$112,953ManagementAndGeneralAmt
Fundraising$16,340FundraisingAmt

Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$6,949TotalAmt
Program Services$5,179ProgramServicesAmt
Management And General$1,500ManagementAndGeneralAmt
Fundraising$270FundraisingAmt

Interest InterestGrp

FieldValueIRS element (for citing)
Total$1,650TotalAmt
Program Services$0ProgramServicesAmt
Management And General$1,650ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Payments To Affiliates PaymentsToAffiliatesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$17,915TotalAmt
Program Services$3,059ProgramServicesAmt
Management And General$10,719ManagementAndGeneralAmt
Fundraising$4,137FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$9,613TotalAmt
Program Services$0ProgramServicesAmt
Management And General$9,592ManagementAndGeneralAmt
Fundraising$21FundraisingAmt

Other Expenses OtherExpensesGrp (3 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Bad Debt Expense$25,000$0$25,000$0
Dues & Subscriptions$5,625$4,931$694$0
Digital Access Equipment$9,477$9,477$0$0

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
Program Services$0ProgramServicesAmt
Management And General$0ManagementAndGeneralAmt
Fundraising$0FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$3,449,342TotalAmt
Program Services$1,621,462ProgramServicesAmt
Management And General$1,420,269ManagementAndGeneralAmt
Fundraising$407,611FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$170,536BOYAmt
EOY$233,234EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$1,063,446BOYAmt
EOY$666,148EOYAmt

Pledges And Grants Receivable PledgesAndGrantsReceivableGrp

FieldValueIRS element (for citing)
BOY$954,169BOYAmt
EOY$411,531EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$5,907BOYAmt
EOY$1,300EOYAmt

Receivables From Officers Etc ReceivablesFromOfficersEtcGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Rcvbl From Disqualified Prsn RcvblFromDisqualifiedPrsnGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Oth Notes Loans Receivable Net OthNotesLoansReceivableNetGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Inventories For Sale Or Use InventoriesForSaleOrUseGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$8,896BOYAmt
EOY$23,154EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$68,146LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$47,829LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$25,987BOYAmt
EOY$20,317EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$446,669BOYAmt
EOY$493,398EOYAmt

Investments Other Securities InvestmentsOtherSecuritiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Intangible Assets IntangibleAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$146,511EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$68,590BOYAmt
EOY$32,753EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$2,744,200BOYAmt
EOY$2,028,346EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$290,630BOYAmt
EOY$460,055EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$391,965BOYAmt
EOY$442,269EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$158,000BOYAmt
EOY$125,000EOYAmt

Tax Exempt Bond Liabilities TaxExemptBondLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Escrow Account Liability EscrowAccountLiabilityGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Loans From Officers Directors LoansFromOfficersDirectorsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Mortg Notes Pybl Scrd Invst Prop MortgNotesPyblScrdInvstPropGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt

Unsecured Notes Loans Payable UnsecuredNotesLoansPayableGrp

FieldValueIRS element (for citing)
BOY$90,000BOYAmt
EOY$80,000EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$70,485BOYAmt
EOY$35,655EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$1,001,080BOYAmt
EOY$1,142,979EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$575,013BOYAmt
EOY$30,996EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$1,168,107BOYAmt
EOY$854,371EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$1,743,120BOYAmt
EOY$885,367EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$2,744,200BOYAmt
EOY$2,028,346EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss-$303,125ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$55,372NetUnrlzdGainsLossesInvstAmt
Donated Services And Use Fclts$0DonatedServicesAndUseFcltsAmt
Investment Expense$0InvestmentExpenseAmt
Prior Period Adjustments$0PriorPeriodAdjustmentsAmt
Other Changes In Net Assets-$610,000OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewYes (1)AccountantCompileOrReviewInd

Acct Compile Or Review Basis AcctCompileOrReviewBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
FS AuditedYes (1)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Separate Basis Fincl StmtYes (X)SeparateBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (1)AuditCommitteeInd
Federal Grant Audit Required0FederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,823,166CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,984,818CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,551,727CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,169,746CurrentTaxYearMinus1YearAmt
Current Tax Year$2,401,347CurrentTaxYearAmt
Total$10,930,804TotalAmt

Tax Rev Levied Orgnztnl Bnft170 TaxRevLeviedOrgnztnlBnft170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$0CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$0CurrentTaxYearMinus1YearAmt
Current Tax Year$0CurrentTaxYearAmt
Total$0TotalAmt

Govt Furn Srvc Fclts Vl170 GovtFurnSrvcFcltsVl170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$0CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$0CurrentTaxYearMinus1YearAmt
Current Tax Year$0CurrentTaxYearAmt
Total$0TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$1,823,166CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,984,818CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$2,551,727CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$1,169,746CurrentTaxYearMinus1YearAmt
Current Tax Year$2,401,347CurrentTaxYearAmt
Total$10,930,804TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$4,846,741SubstantialContributorsTotAmt
Public Support Total170$6,084,063PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$29,253CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$16,769CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$17,275CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year-$50,465CurrentTaxYearMinus1YearAmt
Current Tax Year$126,127CurrentTaxYearAmt
Total$138,959TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$0CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$0CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$0CurrentTaxYearMinus1YearAmt
Current Tax Year$0CurrentTaxYearAmt
Total$0TotalAmt

Other Income170 OtherIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$0CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$2,250CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$1,750CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$2,000CurrentTaxYearMinus1YearAmt
Current Tax Year$34,127CurrentTaxYearAmt
Total$40,127TotalAmt
FieldValueIRS element (for citing)
Total Support$11,109,890TotalSupportAmt
Public Support CY1700.54763PublicSupportCY170Pct
Public Support PY1700.51616PublicSupportPY170Pct
Thirty Thr Pct Suprt Tests CY170Yes (X)ThirtyThrPctSuprtTestsCY170Ind

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp (2 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Schedule A, Part II, Line 1In the 2021 column there is a -$200K adjustment for a contract amendment with donor for restricted revenue related to research grants. The remaining -$410K restricted revenue adjustment was from a 2018 pledge not represented on this schedule.
Schedule A, Part II, Line 10Retired equipment sale, CNF staff honoraria, and bank credit

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Total Direct Lobbying TotalDirectLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$162,809FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$162,809FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$3,286,584FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$3,449,393FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$322,470FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$80,618FilingOrganizationsTotalAmt

Tot Lbbyng Grassroot Mns Non Tx TotLbbyngGrassrootMnsNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Tot Lbby Expend Mns Lbbyng Non Tx TotLbbyExpendMnsLbbyngNonTxGrp

FieldValueIRS element (for citing)
Filing Organizations Total$0FilingOrganizationsTotalAmt

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$0CurrentYearMinus3Amt
Current Year Minus2$0CurrentYearMinus2Amt
Current Year Minus1$5,161CurrentYearMinus1Amt
Current Year$322,470CurrentYearAmt
Total$327,631TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$491,447LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$0CurrentYearMinus3Amt
Current Year Minus2$0CurrentYearMinus2Amt
Current Year Minus1$0CurrentYearMinus1Amt
Current Year$162,809CurrentYearAmt
Total$162,809TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$0CurrentYearMinus3Amt
Current Year Minus2$0CurrentYearMinus2Amt
Current Year Minus1$0CurrentYearMinus1Amt
Current Year$80,618CurrentYearAmt
Total$80,618TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$120,927GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$0CurrentYearMinus3Amt
Current Year Minus2$0CurrentYearMinus2Amt
Current Year Minus1$0CurrentYearMinus1Amt
Current Year$0CurrentYearAmt
Total$0TotalAmt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule C, Part II-A, Line 1bFormAndLineReferenceDesc
ExplanationThe Child Neurology Foundation aims to raise awareness, influence policy changes, and improve the lives of children facing neurological challenges and their families. We engage in lobbying activities to directly communicate our organization's goals and perspectives to policymakers. In building relationships with legislators and their staff, we work to educate them about the needs and concerns of children with neurological conditions and their families. Our lobbying efforts focus on proposing and supporting legislation that promotes access to quality healthcare, inclusive education, and social support systems.ExplanationTxt

Schedule D IRS990ScheduleD

CY Endwmt Fund CYEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$113,022BeginningYearBalanceAmt
Contributions$100ContributionsAmt
Investment Earnings Or Losses$12,335InvestmentEarningsOrLossesAmt
Grants Or Scholarships$3,500GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$875AdministrativeExpensesAmt
End Year Balance$121,082EndYearBalanceAmt

CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$134,075BeginningYearBalanceAmt
Contributions$700ContributionsAmt
Investment Earnings Or Losses-$16,454InvestmentEarningsOrLossesAmt
Grants Or Scholarships$3,500GrantsOrScholarshipsAmt
Other Expenditures$429OtherExpendituresAmt
Administrative Expenses$1,370AdministrativeExpensesAmt
End Year Balance$113,022EndYearBalanceAmt

CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$133,951BeginningYearBalanceAmt
Contributions$0ContributionsAmt
Investment Earnings Or Losses$4,974InvestmentEarningsOrLossesAmt
Grants Or Scholarships$3,500GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$1,350AdministrativeExpensesAmt
End Year Balance$134,075EndYearBalanceAmt

CY Minus3 Yr Endwmt Fund CYMinus3YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$130,017BeginningYearBalanceAmt
Contributions$0ContributionsAmt
Investment Earnings Or Losses$8,783InvestmentEarningsOrLossesAmt
Grants Or Scholarships$3,500GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$1,349AdministrativeExpensesAmt
End Year Balance$133,951EndYearBalanceAmt

CY Minus4 Yr Endwmt Fund CYMinus4YrEndwmtFundGrp

FieldValueIRS element (for citing)
Beginning Year Balance$115,616BeginningYearBalanceAmt
Contributions$0ContributionsAmt
Investment Earnings Or Losses$20,183InvestmentEarningsOrLossesAmt
Grants Or Scholarships$3,500GrantsOrScholarshipsAmt
Other Expenditures$0OtherExpendituresAmt
Administrative Expenses$2,282AdministrativeExpensesAmt
End Year Balance$130,017EndYearBalanceAmt
FieldValueIRS element (for citing)
Board Designated Balance EOY0BoardDesignatedBalanceEOYPct
Prmnnt Endowment Balance EOY0.832PrmnntEndowmentBalanceEOYPct
Term Endowment Balance EOY0.168TermEndowmentBalanceEOYPct
Endowments Held Unrelated Org0EndowmentsHeldUnrelatedOrgInd
Endowments Held Related Org0EndowmentsHeldRelatedOrgInd

Land LandGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$0InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Book Value$0BookValueAmt

Buildings BuildingsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$0InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$0DepreciationAmt
Book Value$0BookValueAmt

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$0InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$0DepreciationAmt
Book Value$0BookValueAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$21,803InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$15,536DepreciationAmt
Book Value$6,267BookValueAmt

Other Land Buildings OtherLandBuildingsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$46,343InvestmentCostOrOtherBasisAmt
Other Cost Or Other Basis$0OtherCostOrOtherBasisAmt
Depreciation$32,293DepreciationAmt
Book Value$14,050BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$20,317TotalBookValueLandBuildingsAmt
Federal Income Tax Liability$0FederalIncomeTaxLiabilityAmt

Other Liabilities Org OtherLiabilitiesOrgGrp

FieldValueIRS element (for citing)
DescLease Liability - CurrentDesc
Amt$35,655Amt
FieldValueIRS element (for citing)
Total Liability$35,655TotalLiabilityAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$2,662,461TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$55,378NetUnrealizedGainsInvstAmt
Donated Services And Use Fclts$70,866DonatedServicesAndUseFcltsAmt
Recoveries Prior Year Grants$0RecoveriesPriorYearGrantsAmt
Other Revenue$0OtherRevenueAmt
Revenue Not Reported$126,244RevenueNotReportedAmt
Revenue Subtotal$2,536,217RevenueSubtotalAmt
Investment Expenses Not Incld$0InvestmentExpensesNotIncldAmt
Other Revenues Not Included$610,000OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$610,000RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$3,146,217TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$3,520,212TotExpnsEtcAuditedFinclStmtAmt
Donated Services Use Fclts$70,870DonatedServicesUseFcltsAmt
Prior Year Adjustments$0PriorYearAdjustmentsAmt
Losses Reported$0LossesReportedAmt
Other Expenses Included$0OtherExpensesIncludedAmt
Expenses Not Reported$70,870ExpensesNotReportedAmt
Expenses Subtotal$3,449,342ExpensesSubtotalAmt
Investment Expenses Not Incld2$0InvestmentExpensesNotIncld2Amt
Other Expenses Not Included$0OtherExpensesNotIncludedAmt
Expenses Not Rpt Fincl Stmt$0ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$3,449,342TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Schedule D, Part V, Line 4In 2010, the Society of Neurodevelopmental Disabilities (NDD) dissolved, and thereby, transferred remaining assets to CNF. These funds are intended to endow an annual educational scholarship for medical students interested in the field of child neurology, with priority given to an applicant focused on neuro-developmental disabilities. The annual award amount is currently $3,500, with an allowance for travel expenses to CNS as approved by the NDD Committee. The amount or number of awards may be adjusted based on endowment value as approved by the board of CNF.
Schedule D, Part X, Line 2The Foundation is organized and operates on a not-for-profit basis and its tax-exempt status has been recognized by the internal revenue service under sections 501(c)(3). The Foundation is classified as an organization which is not private foundations under the internal revenue code (IRC) and charitable contributions by donors are tax deductible. The Foundation is subject to unrelated business income taxes under the IRC for federal and state tax purposes. The Foundation follows the provisions of FASB, which requires a tax position be recognized or derecognized based on a "more likely than not" threshold. This applies to positions taken or expected to be take in a tax return. The Foundation does not believe its financial statements include any uncertain tax positions. The Foundation's tax returns are subject ot review and examination by federal authorities.
Schedule D, Part XI, Line 4bIn 2023, the Child Neurology Foundation amended a prior year contract with a donor resulting in the removal of $610,000 in restricted revenue earmarked for research grants.

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (1)GrantRecordsMaintainedInd

Recipient Table RecipientTable (8 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxtAddress Line2USAddress/AddressLine2Txt
Rector and Visitors of the University of Virginia
1001 N Emmet StreetCharlottesvilleVA22903546001796$150,000$02023 PERF Grant - $150,000
University of Utah
201 South Presidents CircleSalt Lake CityUT84112876000525$150,000$02023 PERF Grant - $150,000Room 159
University of Louisville Research Foundation
2215 South Brook StreetLouisevilleKY40208611029629$25,000$02023 Quality Improvement Grant
American Epilepsy Society
135 South LaSalle StreetChicagoIL60603046112600$12,500$02023 Unrestricted Symposium Sponsorships - $12,500Suite 2850
University of Pittsburgh of the Commonwealth
PO Box 640458PittsburghPA15264250965591$12,500$02023 Quality Improvement Grant
Regents of the University of California
120 TheoryIrvineCA92697952226406$6,000$02023 Swaiman ScholarSuite 200
Weill Medical College of Cornell University
1300 York AvenueNew YorkNY10065131623978$6,000$02023 Swaiman Scholar
Rush University Medical Center
1700 West Van Buren StreetChicagoIL60612362174823$6,000$02023 Swaiman ScholarSuite 271B
FieldValueIRS element (for citing)
Total501c3 Org10Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Supplemental Information Detail SupplementalInformationDetail

FieldValueIRS element (for citing)
Form And Line ReferenceSchedule I, Part I, Line 2FormAndLineReferenceDesc
ExplanationSince 2001, the CNF has attracted premier young investigators for its awards. We publicize awards to request candidates with the American Academy of Neurology; Professors of Child Neurology; Child Neurology Society; and the American Academy of Pediatrics. Applications reviewed via a defined methodology community. Upon grant award, recipients sign a contract with CNF which outlines expectations for reporting during and at the conclusion of the grant award. CNF manages the execution of the grant administration and reporting throughout the grant duration. Child neurologist researcher applicants are asked to submit a letter of application. These letters are ranked by a committee of well-respected child neurologists. (Members avoid conflict of interest by recusing themselves). Top contenders are invited to submit full applications. CNF uses a hybrid of the NIH research application. The committee then ranks and submits the top applicant to the CNF Board of Directors for confirmation. Outside donors are not involved in the selection of the awardee or any guidelines regarding the use of research funds. Grant award checks are never made payable to the individual researcher. Rather, checks are made payable to the institutions for which they either work or go to school. Reports are required of the researcher at the midpoint of their research in the form of progress reports and at the end to show the results of their research. In the case of scholarship recipients, the same is true. Checks are made payable to their institution and their reports are due at the end of their research. CNF also provides grants to support projects that improve the quality of care provided to patients and families at the clinic level. These projects can be things like quality improvement projects, research projects, or other clinic process improvements to directly improving the relationships between families and medical professionals.ExplanationTxt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Club Dues Or FeesYes (X)ClubDuesOrFeesInd
Written Policy Ref T And E ExpnssYes (1)WrittenPolicyRefTAndEExpnssInd
Substantiation RequiredYes (1)SubstantiationRequiredInd
Compensation CommitteeYes (X)CompensationCommitteeInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentYes (1)SeverancePaymentInd
Supplemental Nonqual Rtr Plan0SupplementalNonqualRtrPlanInd
Equity Based Comp Arrngm0EquityBasedCompArrngmInd
Comp Based On Revenue Of Flng Org0CompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related Orgs0CompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng Org0CompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd Orgs0CompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsYes (1)AnyNonFixedPaymentsInd
Initial Contract Exception0InitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp

FieldValueIRS element (for citing)
PersonAmy Brin Executive DirectorPersonNm
TitleEx Officio Non-voting MemberTitleTxt
Base Compensation Filing Org$256,364BaseCompensationFilingOrgAmt
Compensation Based On Rltd Orgs$0CompensationBasedOnRltdOrgsAmt
Bonus Filing Organization$37,500BonusFilingOrganizationAmount
Bonus Related Organizations$0BonusRelatedOrganizationsAmt
Other Compensation Filing Org$450OtherCompensationFilingOrgAmt
Other Compensation Rltd Orgs$0OtherCompensationRltdOrgsAmt
Deferred Compensation Flng Org$339,101DeferredCompensationFlngOrgAmt
Deferred Comp Rltd Orgs$0DeferredCompRltdOrgsAmt
Nontaxable Benefits Filing Org$21,744NontaxableBenefitsFilingOrgAmt
Nontaxable Benefits Rltd Orgs$0NontaxableBenefitsRltdOrgsAmt
Total Compensation Filing Org$655,159TotalCompensationFilingOrgAmt
Total Compensation Rltd Orgs$0TotalCompensationRltdOrgsAmt
Comp Report Prior990 Filing Org$65,575CompReportPrior990FilingOrgAmt
Comp Report Prior990 Rltd Orgs$0CompReportPrior990RltdOrgsAmt

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Schedule J, Part I, Line 1aIn 2023 the Foundation provided the Executive Director with the benefit of Delta Skyclub Membership. Receipts were required to substantiate the expense.
Schedule J, Part I, Line 3Child Neurology Foundation contracted with TriNet, a cloud-based professional employer organization (PEO), and all employees of the CNF are co-employees with TriNet. The CNF's Board of Directors is responsible for hiring and setting the compensation of the Executive Director. The Board employs procedures including: a separate compensation committee, use of a compensation survey/study, review of other organization's 990s, and no involvement of persons with conflict of interest. The Board last set compensation in 2023.
Schedule J, Part I, Line 4The Executive Director Amy Brin signed a resignation contract in late 2023 with the Board of Directors which included severance pay to be distributed after the negotiated final date of employment March 1, 2024. The severance package is accrued in the Foundation's 2023 personnel expenses as well as included in Part VII, Column F "Other Compensation" as well as in Schedule J, Column C "Retirement and other deferred compensation".
Schedule J, Part I, Line 7All Foundation staff are eligible for an annual bonus, typically paid in January for the prior year's work. The 2022 bonus paid in 2023 is reflected in part B column ii. There is no 2023 deferred bonus included in Column C. Similarly, on Part VII, the 2022 bonus paid in 2023 is included in column D, and there is no deferred bonus for 2023 included in Column F. The Board Compensation Committee determines the bonus of the Executive Director based on the year end performance review. The Executive Director determines staff eligibility based on annual performance reviews. No 2023 bonuses were awarded.

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (7 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Form 990, Part VI, Section B, Line 11bThe Interim Executive Director, Treasurer, and Staff Accountant undertook extensive review of the draft form 990 prior to presenting to the finance committee for review. The final form 990 is presented to the board of directors and external counsel for their review and approval prior to filing.
Form 990, Part VI, Section B, Line 12cThe Foundation has a conflict of interest policy covering all board members and any other person who has an official position with the Foundation. Board members complete a conflict of interest policy form on an annual basis which is monitored and previewed by the board officers after submission. If a director is uncertain whether a conflict of interest exists, the conflict of interest policy states that it is better to err on the side of disclosure. When a director is aware of a potential conflict of interest the director must promptly disclose that conflict to the chair or to the full Board, as appropriate. The board would determine the severity of the conflict and the appropriate action to take, including omission from voting on any related matters and document in the meeting minutes. In certain cases a director may be removed from the official Foundation capacity if they are not able ot divest from the conflicting relationship.
Form 990, Part VI, Section B, Line 15The Foundation's executive committee is responsible for hiring and setting the compensation of the executive director. The committee employs procedures (use of compensation surveys and board approval) and last set compensation in 2022.
Form 990, Part VI, Section C, Line 19The Foundation does not make its governing documents or conflict of interest policy available to the public. The most recent three years of IRS Form 990s and Audited financial statements are available at https://www.childneurologyfoundation.org/about-cnf/
Form 990, Part VII, Section B, Line 1(B)Digital Health Solutions LLC: Development of the Child Health Improvement through Computerized Automation - Child Neurology
Form 990, Part IX, Line 11gThe Child Neurology Foundation spent $557K in 2023 on contractor/service providers with specialized skills to assist with program management, meeting and event facilitation, grant writing, and marketing. The Foundation also spent $266K on a contract with Digital Health Solutions LLC for the development of the Child Health Improvement through Computerized Automation - Child Neurology.
Form 990, Part XI, Line 9Amended a pledge agreement signed in 2018 and 2021 with a donor related to research grants, resulting in the removal of $610K of restricted revenue from prior years.

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