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FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC: Form 990EZ, tax year 2023

View the entire original 990 at ProPublica ↗

Organization
FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC (EIN 01-0771966)
Tax period
2023-01-01 to 2023-12-31
Filed
2024-06-26
IRS object ID
202401789349201015
Schema version
2023v5.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-06-26T09:23:15-07:00ReturnTs
Tax Period End2023-12-31TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN610567366PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1CHARLES T MITCHELL CO PLLCBusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1229 W MAIN ST STE 103AddressLine1Txt
CityFRANKFORTCityNm
State AbbreviationKYStateAbbreviationCd
ZIP40601ZIPCd
FieldValueIRS element (for citing)
Return Type990EZReturnTypeCd
Tax Period Begin2023-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN010771966EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1FIBROMUSCULAR DYSPLASIA SOCIETY OFBusinessNameLine1Txt
Business Name Line2AMERICA INCBusinessNameLine2Txt
FieldValueIRS element (for citing)
Business Name ControlFIBRBusinessNameControlTxt
Phone2168342410PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line126777 LORAIN RD 311AddressLine1Txt
CityNORTH OLMSTEDCityNm
State AbbreviationOHStateAbbreviationCd
ZIP44070ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonBRADLEY DAARPersonNm
Person TitlePresidentPersonTitleTxt
Signature2024-06-26SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstBRADLEYPersonFirstNm
Person LastDAARPersonLastNm
FieldValueIRS element (for citing)
SSN999009999SSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrYes (true)IRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonGreg Miklavcic CPAPreparerPersonNm
PTINP00946625PTIN
Phone5022277395PhoneNum

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL1AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
Federated Assurance LevelFAL1FederatedAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2023TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990-EZ IRS990EZ

FieldValueIRS element (for citing)
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Website AddressWWW.FMDSA.ORGWebsiteAddressTxt
Organization501c3Yes (X)Organization501c3Ind
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Gross Receipts$159,378GrossReceiptsAmt
Info In Schedule O Part IYes (X)InfoInScheduleOPartIInd
Contributions Gifts Grants Etc$147,939ContributionsGiftsGrantsEtcAmt
Program Service Revenue$11,428ProgramServiceRevenueAmt
Investment Income$11InvestmentIncomeAmt
Cost Or Other Basis Expense Sale$0CostOrOtherBasisExpenseSaleAmt
Fundraising Gross Income$0FundraisingGrossIncomeAmt
Special Events Direct Expenses$0SpecialEventsDirectExpensesAmt
Cost Of Goods Sold$0CostOfGoodsSoldAmt
Total Revenue$159,378TotalRevenueAmt
Grants And Similar Amounts Paid$45,833GrantsAndSimilarAmountsPaidAmt
Salaries Other Comp Empl Bnft$79,009SalariesOtherCompEmplBnftAmt
Fees And Other Pymt To Ind Cntrct$13,182FeesAndOtherPymtToIndCntrctAmt
Occupancy Rent Utlts And Maint$3,599OccupancyRentUtltsAndMaintAmt
Printing Publications Postage$1,037PrintingPublicationsPostageAmt
Other Expenses Total$44,725OtherExpensesTotalAmt
Total Expenses$187,385TotalExpensesAmt
Excess Or Deficit For Year-$28,007ExcessOrDeficitForYearAmt
Net Assets Or Fund Balances BOY$172,491NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$144,484NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIYes (X)InfoInScheduleOPartIIInd

Cash Savings And Investments CashSavingsAndInvestmentsGrp

FieldValueIRS element (for citing)
BOY$175,125BOYAmt
EOY$145,032EOYAmt

Form990 Total Assets Form990TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$175,125BOYAmt
EOY$145,032EOYAmt

Sum Of Total Liabilities SumOfTotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$2,634BOYAmt
EOY$548EOYAmt

Net Assets Or Fund Balances NetAssetsOrFundBalancesGrp

FieldValueIRS element (for citing)
BOY$172,491BOYAmt
EOY$144,484EOYAmt
FieldValueIRS element (for citing)
Primary Exempt PurposeFMDSA is a public health charity working towards better diagnosis and treatment of Fibromuscular Displasia (FMD). We do this by building awareness of FMD, funding research activities, providing patient support, and educating patients and the healthcare community.PrimaryExemptPurposeTxt

Program Srvc Accomplishment ProgramSrvcAccomplishmentGrp (9 entries)

Description Program Srvc AccomDescriptionProgramSrvcAccomTxtProgram Service ExpensesProgramServiceExpensesAmt
Patient Registry: In 2007, the Fibromuscular Dysplasia Society of America (FMDSA) began a data registry with the goal of increasing understanding of FMD. The goals of this registry are to identify patient characteristics associated with FMD, potential markers of the disease, and commonly used imaging and treatment modalities. The Michigan Clinical Outcomes Research and Reporting Program is the coordinating center for the registry. We ended the year with over 4,172 participants in the registry and two new centers joined the registry in 2023 for a total of 20 active registry centers. Researchers have identified genetic variants that are associated with FMD. The genes PHARCTR1, ATP281, LRP1, and LIMA1. In 2022, Ottowa Hospital in Ontario Canada became our first international center and for this reason the name of the registry was changed to "The North American Registry for Fibromuscular Dysplasia".$45,833
Patient Support: Patient support is a large program, due to the increase in patients diagnosedwith FMD. Due to the demand, we have continued to grow the Volunteer Support Network. These volunteers have been identified in the US and internationally. Many groups have evolved to the point of holding local meetings. We also offer support through social media platforms including Inspire, Instagram and Facebook where we have thousands of patients participating. We are also active on Twitter allowing patients, clinicians and physicians to communicate. We continue to add FMD materials and videos to our website and YouTube channel We offer FMD materials in Spanish and Japanese and work with our international colleagues who offer materials in many languages. Finally, FMDSA continue to host and participate in patient Zoom meetings. Patients globally are invited to participate.
Public Awareness Program: This program was initiated in July 2005 as a Grass Roots Awareness Program. We help patients educate their family, friends and healthcare providers about FMD with written materials and videos. We have many valuable resources on our website to help communicate FMD in laymen's terms, including a Public Service Announcement, as well as more in depth information for physicians that can help bridge the gap and build a better relationship between patient and physician. The Public Awareness Program also includes educational work with mediaoutlets, other organizations, journals, speaking engagements and articles. We also offer live Zoom meetings. There is rarely a day that goes by that we are contacted by a newly diagnosed patient. We have seen the diagnosis rate grow in direct roportion to our programs. See additional info on Schedule O.
Heath care professionionals: We educated medical professionals worldwide at meetings such as the International Stroke Conference, Hospital LED Conferences, Grand Rounds and International Research Meetings. The awareness, education and research happening around the world is a direct result of what FMDSA started in 2003.
Public Awareness: In addition, we also particpate in events such as the Cleveland Marathon which helps increase awareness as well as to raise funds to support our programs.
Healthcare Professional Education Program: Prior to the pandemic, we educated medical professionals worldwide at national and international meetings, hospital led conferences, Grand Rounds and podcasts. In 2023 we participated in person meetings including the Society of Vascular Medicine and the the Kentucky Neuroscience Expo. The result of these programs is greater awareness of FMD within the medical community, improved medical expertise for patients, and development of critical partnerships that help spur research activity. We also maintain a research Network Page on the website containing all the information published from the patient registry, other researchers and researcher opportunities for patients to participate in. There are also PowerPoint presentations and videos available for health care providers. We have seen a direct correlation
FMD Research: FMDSA has been sponsoring the Registry for for over a decade. The first participants data was entered into the registry in January 2009. Data from patient experiences is analyzed and used to learn more about the disease. The data has given us a better understanding of Fibromuscular Dysplasia (FMD) and how to treat the disease. In 2021, groundbreaking research identified three new genetic variants that are connected to FMD. The new genes identified are ATP2B1, LRP1, and LIMA1. The awareness, education, and research happening worldwide is a direct result of what FMDSA started in 2003.
The 2023 Annual Conference brought together FMD patients, those who have had spontaneous coronary dissection (SCAD), caregivers and medical professionals. The meeting provides an opportunity for patients to meet others also affected, and that is one of the biggest draws. FMDSA hosts a separate meeting with researchers to go over updates, and current and future research projects. The forum has provided a platform for many research projects including blood draws, saliva collection and quality-of-life studies. There is no other meeting in the world where so many FMD patients have had the opportunity to participate in research.
Website Education: One of our most important charters is to educate patients and family about FMD. We launched a new website in 2021. We offer educational materials, videos, a research section and contacts for patients worldwide. The website continues to be used by patients, family members and medical professionals from all over the world. FMDSA is the premier resource of FMD information for the layperson and an excellent place for physicians to easily find medical articles and abstracts. The FMDSA website also offers community events for those wanting to get more involved. The awareness, education, and research happening worldwide is a direct result of what FMDSA started in 2003. FMDSA is the recognized leader for FMD supportand resources.
FieldValueIRS element (for citing)
Total Program Service Expenses$45,833TotalProgramServiceExpensesAmt

Officer Director Trustee Empl OfficerDirectorTrusteeEmplGrp (8 entries)

TitleTitleTxtAverage Hrs Per Wk Devoted To PosAverageHrsPerWkDevotedToPosRtCompensationCompensationAmt
ALLISON GAINES
DIRECTOR AT LAR2.00$0
CATHLIN JAMISON
DIRECTOR AT LAR16.00$0
JAZETTE VICEDOR
DIRECTOR AT LAR1.50$0
CHRISTI EBERHARDT
DIRECTOR AT LAR0.50$0
ROCHELLE DESROCHERS
DIRECTOR AT LAR10.00$0
BRADLEY DAAR
President1.00$0
ROSIE MIKLAVCIC
Treasurer4.00$0
PAM MACE
EXECUTIVE DIRECTOR60.00$0
FieldValueIRS element (for citing)
Activities Not Previously RptfalseActivitiesNotPreviouslyRptInd
Chg Made To Orgnzng Doc Not RptfalseChgMadeToOrgnzngDocNotRptInd
Organization Had UBIfalseOrganizationHadUBIInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Organization Dissolved EtcfalseOrganizationDissolvedEtcInd
Form1120 Pol FiledfalseForm1120PolFiledInd
Made Loans To From OfficersfalseMadeLoansToFromOfficersInd
Tax Imposed Under IRC4911$0TaxImposedUnderIRC4911Amt
Tax Imposed Under IRC4912$0TaxImposedUnderIRC4912Amt
Tax Imposed Under IRC4955$0TaxImposedUnderIRC4955Amt
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
Tax Imposed On Organization Mgr$0TaxImposedOnOrganizationMgrAmt
Tax Reimbursed By Organization$0TaxReimbursedByOrganizationAmt
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldAZStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldINStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMNStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldMOStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNCStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNDStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNJStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNMStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldNYStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOHStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldOKStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldORStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldPAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldRIStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldTNStatesWhereCopyOfReturnIsFldCd
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States Where Copy Of Return Is FldVAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldWVStatesWhereCopyOfReturnIsFldCd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonANITA MEYERSPersonNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line126777 LORAIN RDAddressLine1Txt
CityNORTH OLMSTEDCityNm
State AbbreviationOHStateAbbreviationCd
ZIP44070ZIPCd
FieldValueIRS element (for citing)
Phone2168342410PhoneNum
FieldValueIRS element (for citing)
Foreign Financial AccountfalseForeignFinancialAccountInd
Foreign OfficefalseForeignOfficeInd
Donor Advised FndsfalseDonorAdvisedFndsInd
Operate HospitalfalseOperateHospitalInd
Tanning Services ProvidedfalseTanningServicesProvidedInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Transaction With Control EntfalseTransactionWithControlEntInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
School OperatingfalseSchoolOperatingInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Part VI Of Comp Of Hghst Pd EmplNONEPartVIOfCompOfHghstPdEmplTxt
Part VI Hghst Pd Cntrct Prof SrvcNONEPartVIHghstPdCntrctProfSrvcTxt
Filed Schedule AYes (true)FiledScheduleAInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$210,821CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$147,225CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$202,598CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$142,236CurrentTaxYearMinus1YearAmt
Current Tax Year$147,938CurrentTaxYearAmt
Total$850,818TotalAmt

Gross Receipts Admissions GrossReceiptsAdmissionsGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$13,921CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$3,702CurrentTaxYearMinus3YearsAmt
Current Tax Year$11,428CurrentTaxYearAmt
Total$29,051TotalAmt

Gross Receipts Non Unrlt Bus GrossReceiptsNonUnrltBusGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Tax Rev Levied Orgnztnl Bnft509 TaxRevLeviedOrgnztnlBnft509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Govt Furn Srvc Fclts Vl509 GovtFurnSrvcFcltsVl509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$224,742CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$150,927CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$202,598CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$142,236CurrentTaxYearMinus1YearAmt
Current Tax Year$159,366CurrentTaxYearAmt
Total$879,869TotalAmt

Amounts Rcvd Dsqlfy Person AmountsRcvdDsqlfyPersonGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Substantial Contributors Amt SubstantialContributorsAmtGrp

FieldValueIRS element (for citing)
Total$0TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$879,869PublicSupportTotal509Amt

Gross Investment Income509 GrossInvestmentIncome509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$171CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$39CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$22CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11CurrentTaxYearMinus1YearAmt
Current Tax Year$11CurrentTaxYearAmt
Total$254TotalAmt

Post1975 UBTI Post1975UBTIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Investment Income And UBTI InvestmentIncomeAndUBTIGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$171CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$39CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$22CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$11CurrentTaxYearMinus1YearAmt
Current Tax Year$11CurrentTaxYearAmt
Total$254TotalAmt

Net Income From Other UBI NetIncomeFromOtherUBIGrp

FieldValueIRS element (for citing)
Total$0TotalAmt

Other Income509 OtherIncome509Grp

FieldValueIRS element (for citing)
Total$0TotalAmt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$224,913CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$150,966CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$202,620CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$142,247CurrentTaxYearMinus1YearAmt
Current Tax Year$159,377CurrentTaxYearAmt
Total$880,123TotalAmt
FieldValueIRS element (for citing)
Public Support CY5090.99970PublicSupportCY509Pct
Public Support PY5090.99970PublicSupportPY509Pct
Investment Income CY0.00030InvestmentIncomeCYPct
Investment Income PY0.00030InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (17 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Grants and Similar Amounts Paid In Excess of $5,000.1| Donee's Name: MCORRP UNIVERSITY OF MICHIGAN | Donee's Address: 24 FRANK LLOYD WRIGHT DRIVE ANN ARBOR MI 48106 | Cash Amount Given: $45833
Other Expenses.1002Office Expenses $517
Other Expenses.1005Travel $4786
Other Expenses.1007Conferences, Conventions, and Meetings $25386
Other Expenses.1012Insurance $1586
Other Expenses.1SUPPLIES $3875
Other Expenses.2SOFTWARE $3310
Other Expenses.3CREDIT CARD FEES $2233
Other Expenses.4PAYROLL EXPENSES $877
Other Expenses.5TELEPHONE $802
Other Expenses.7WEBSITE $497
Other Expenses.8MISC $469
Other Expenses.9DUES $290
Other Expenses.11DONATIONS $50
Other Expenses.12INTERNATIONAL CONV FEES $29
Other Expenses.13BANK CHARGES $18
Total Liabilities.1001Accounts Payable and Accrued Expenses - Beginning $2634 Accounts Payable and Accrued Expenses - Ending $548

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