ALPHA-1 FOUNDATION INC: Form 990, tax year 2022

View the entire original 990 at ProPublica ↗

Organization
ALPHA-1 FOUNDATION INC (EIN 65-0585415)
Tax period
2022-07-01 to 2023-06-30
Filed
2024-03-25
IRS object ID
202400859349301695
Schema version
2022v5.0
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2024-03-25T18:38:14-05:00ReturnTs
Tax Period End2023-06-30TaxPeriodEndDt
Return Type990ReturnTypeCd
Tax Period Begin2022-07-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN650585415EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1Alpha-1 FoundationBusinessNameLine1Txt
Business Name Line2Alpha One FoundationBusinessNameLine2Txt
FieldValueIRS element (for citing)
In Care Of% Mark DelvauxInCareOfNm
Business Name ControlALPHBusinessNameControlTxt
Phone3055679888PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BoulevardAddressLine1Txt
CityMiamiCityNm
State AbbreviationFLStateAbbreviationCd
ZIP331347211ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonMARK DELVAUXPersonNm
Person TitleCFOPersonTitleTxt
Phone3054421776PhoneNum
Signature2024-03-25SignatureDt
Discuss With Paid PreparerfalseDiscussWithPaidPreparerInd

Signing Officer SigningOfficerGrp

Person Full Name PersonFullName

FieldValueIRS element (for citing)
Person FirstMARKPersonFirstNm
Person LastDELVAUXPersonLastNm
FieldValueIRS element (for citing)
SSNXXX-XX-XXXXSSN
FieldValueIRS element (for citing)
IRS Responsible Prty Info CurrfalseIRSResponsiblePrtyInfoCurrInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonPATRICK M LUNNPreparerPersonNm
PTINP01874332PTIN
Phone3054421776PhoneNum
Preparation2024-03-25PreparationDt
Self EmployedYes (X)SelfEmployedInd

Additional Filer Information AdditionalFilerInformation

Trusted Customer TrustedCustomerGrp

FieldValueIRS element (for citing)
Trusted Customer2TrustedCustomerCd
Authentication Assurance LevelAAL2AuthenticationAssuranceLevelCd
Identity Assurance LevelIAL1IdentityAssuranceLevelCd
FieldValueIRS element (for citing)
Tax2022TaxYr
Build TS2023-04-26 12:10:37ZBuildTS

Form 990 IRS990

Doing Business As Name DoingBusinessAsName

FieldValueIRS element (for citing)
Business Name Line1Alpha One FoundationBusinessNameLine1Txt
FieldValueIRS element (for citing)
Principal OfficerMARK B DELVAUXPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BoulevardAddressLine1Txt
CityCoral GablesCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$28,196,628GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website Addresswww.alpha1.orgWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation1995FormationYr
Legal Domicile StateFLLegalDomicileStateCd
Activity Or MissionThe Alpha1 Foundation is committed to finding a cure for Alpha1 Antitrypsin Deficiency and to improving the lives of Alphas worldwideActivityOrMissionDesc
Voting Members Governing Body13VotingMembersGoverningBodyCnt
Voting Members Independent13VotingMembersIndependentCnt
Total Employee19TotalEmployeeCnt
Total Volunteers300TotalVolunteersCnt
Total Gross UBI$368,000TotalGrossUBIAmt
Net Unrelated Bus Txbl Incm$86,623NetUnrelatedBusTxblIncmAmt
PY Contributions Grants$9,050,130PYContributionsGrantsAmt
CY Contributions Grants$8,383,940CYContributionsGrantsAmt
PY Program Service Revenue$366,000PYProgramServiceRevenueAmt
CY Program Service Revenue$368,000CYProgramServiceRevenueAmt
PY Investment Income$1,460,203PYInvestmentIncomeAmt
CY Investment Income$1,628,280CYInvestmentIncomeAmt
PY Other Revenue$13,751PYOtherRevenueAmt
CY Other Revenue$73,079CYOtherRevenueAmt
PY Total Revenue$10,890,084PYTotalRevenueAmt
CY Total Revenue$10,453,299CYTotalRevenueAmt
PY Grants And Similar Paid$2,583,468PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$2,483,684CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$1,692,512PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$1,950,610CYSalariesCompEmpBnftPaidAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$731,545CYTotalFundraisingExpenseAmt
PY Other Expenses$2,088,226PYOtherExpensesAmt
CY Other Expenses$4,113,649CYOtherExpensesAmt
PY Total Expenses$6,364,206PYTotalExpensesAmt
CY Total Expenses$8,547,943CYTotalExpensesAmt
PY Revenues Less Expenses$4,525,878PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$1,905,356CYRevenuesLessExpensesAmt
Total Assets BOY$35,496,616TotalAssetsBOYAmt
Total Assets EOY$37,662,654TotalAssetsEOYAmt
Total Liabilities BOY$2,623,720TotalLiabilitiesBOYAmt
Total Liabilities EOY$2,157,188TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances BOY$32,872,896NetAssetsOrFundBalancesBOYAmt
Net Assets Or Fund Balances EOY$35,505,466NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionThe Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.MissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$3,549,924ExpenseAmt
Grant$2,189,684GrantAmt
Revenue$493,071RevenueAmt
DescAlpha-1 Research Network: The Alpha-1 research infrastructure provides support for a network of Alpha-1 investigators worldwide. It is one of the Foundation's most valuable assets and includes the DNA & Tissue Bank, Therapeutic Development Network, and Clinical Reource Centers. The Foundation's mission is served by scientific meetings that bring together stakeholders with the intent to promote scientific discovery, identify new approaches to the detection of Alpha-1, and educate physicians and patients on Alpha-1. The Alpha-1 Grants and Awards program is the heart of the Foundation's research activities and has established itself as the worldwide leader of Alpha-1 research support.Desc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$490,452ExpenseAmt
Grant$258,600GrantAmt
Revenue$270,000RevenueAmt
DescAlpha-1 Registry and ACT Study: The Research Registry is a confidential database of diagnosed Alphas and carriers willing and able to participate in research studies and clinical trials for new therapies. It is comprised of both patient-supported and clinical data. The Registry represents the largest cohort of Alphas in the world. The goal of the Alpha-1 Coded Testing (ACT) Study is to provide a way for those at risk, including family members of diagnosed Alphas, to learn their genotype. The study includes a research questionnaire, a finger-stick testing kit, and is free and confidential.Desc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$823,684ExpenseAmt
Grant$10,400GrantAmt
Revenue$916,000RevenueAmt
DescAlpha-1 National Conference: The 32nd annual Alpha-1 National Educational Conference was a hybrid conference held on June 9-11, 2023. As the largest annual gathering of the Alpha-1 community, the National Conference provides important opportunities for networking, education, and advocacy. The speakers included some of the leading clinicians and researchers in the Alpha-1 field to bring incredible subject matter expertise and education to the community. The program covered a wide range of medical education and supportive topics to inform, empower and motivate patients to take charge of their health. The last six years of presentations are available on the Foundation's website at www.alpha1.org.Desc

Prog Srvc Accom Acty Other ProgSrvcAccomActyOtherGrp (5 entries)

ExpenseExpenseAmtRevenueRevenueAmtDescDescGrantGrantAmt
$489,559$469,600The mission of Alpha-1 Global is to develop a collaborative global network of Alpha-1 patient leaders, physicians, and researchers.
$246,185$368,000The Alpha-1-To-One Magazine is designed to inform the community of research developments, education, advocacy and fund raising opportunities.
$402,768$370,000Alpha-1 Education Days provide access to current medical information and resources to hundreds of Alphas, their families, and caregivers.
$257,770$250,000The Foundation's Public Policy program monitors relevant legislation and regulatory issues and publicizes the Foundation's positions on such issues.
$822,972$390,000Other Alpha-1 services include patient education (materials, website, etc), a Patient Support Network, and a targeted detection program.$25,000
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$2,219,254TotalOtherProgSrvcExpenseAmt
Total Other Prog Srvc Grant$25,000TotalOtherProgSrvcGrantAmt
Total Other Prog Srvc Revenue$1,847,600TotalOtherProgSrvcRevenueAmt
Total Program Service Expenses$7,083,314TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesYes (true)LobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundYes (true)DonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentYes (true)ReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesYes (true)ReportOtherLiabilitiesInd
Include FIN48 FootnoteYes (true)IncludeFIN48FootnoteInd
Independent Audit Fincl StmtYes (true)IndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesYes (true)ForeignActivitiesInd
More Than5000 K To OrgYes (true)MoreThan5000KToOrgInd
More Than5000 K To IndividualsYes (true)MoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesYes (true)FundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsYes (true)GrantsToOrganizationsInd
Grants To IndividualsYes (true)GrantsToIndividualsInd
Schedule J RequiredYes (true)ScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContriYes (true)DeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityYes (true)RelatedEntityInd
Related Organization Ctrl EntYes (true)RelatedOrganizationCtrlEntInd
Transaction With Control EntYes (true)TransactionWithControlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredYes (true)ScheduleORequiredInd
IRP Document21IRPDocumentCnt
IRP Document W2 G0IRPDocumentW2GCnt
Backup Wthld ComplianceYes (true)BackupWthldComplianceInd
Employee19EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitYes (true)UnrelatedBusIncmOverLimitInd
Form990 T FiledYes (true)Form990TFiledInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Excs Tax Sect4951 Or4952 Or4953falseExcsTaxSect4951Or4952Or4953Ind
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members13GoverningBodyVotingMembersCnt
Independent Voting Member13IndependentVotingMemberCnt
Family Or Business RlnfalseFamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovafalseDecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyYes (true)WhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOYes (true)CompensationProcessCEOInd
Compensation Process OtherYes (true)CompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldALStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldARStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldCTStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldFLStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldGAStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldHIStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldILStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKSStatesWhereCopyOfReturnIsFldCd
States Where Copy Of Return Is FldKYStatesWhereCopyOfReturnIsFldCd
Own WebsiteYes (X)OwnWebsiteInd
Upon RequestYes (X)UponRequestInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonMARK B DELVAUXPersonNm
Phone3055679888PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BoulevardAddressLine1Txt
CityCoral GablesCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (18 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtHighest Compensated EmployeeHighestCompensatedEmployeeIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmtOfficerOfficerIndIndividual Trustee Or DirectorIndividualTrusteeOrDirectorInd
LINDA RODRIGUEZ
Development Director40.00Yes (X)$113,589$0$2,578
RANDEL H PLANT
Sen Dir Research Progs40.00Yes (X)$134,428$0$11,935
ANGELA T MCBRIDE
Sen Dir Corp Relations40.00Yes (X)$120,202$0$16,321
SCOTT SANTARELLA
President and CEO40.00$315,753$0$13,332Yes (X)
MARK B DELVAUX
CFO10.00$0$0$0Yes (X)
DARRELL KOTTON
Director4.000$0$0$0Yes (X)
VIRGINIA CLARK
Physician Director8.000$0$0$0Yes (X)Yes (X)
FRED C WALSH
Vice Chair8.000$0$0$0Yes (X)Yes (X)
JENNIFER JOPP
Director4.000$0$0$0Yes (X)
JON HAGSTROM
Chair8.000$0$0$0Yes (X)Yes (X)
MARTIN R ZAMORA
Director Emeritus4.000$0$0$0Yes (X)
KENNETH IRVINE
Treasurer8.000$0$0$0Yes (X)Yes (X)
PEGGY IVERSON
Secretary8.000$0$0$0Yes (X)Yes (X)
ANN KNEBEL
Director4.000$0$0$0Yes (X)
NOEL G MCELVANEY
Director4.000$0$0$0Yes (X)
FARON SCHONFELD
Director4.000$0$0$0Yes (X)
MARK BRANTLY
Director4.000$0$0$0Yes (X)
CATHERINE VERNON
Director4.000$0$0$0Yes (X)
FieldValueIRS element (for citing)
Total Reportable Comp From Org$683,972TotalReportableCompFromOrgAmt
Total Other Compensation$44,166TotalOtherCompensationAmt
Indiv Rcvd Greater Than100 K4IndivRcvdGreaterThan100KCnt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KYes (true)TotalCompGreaterThan150KInd
Compensation From Other SrcsYes (true)CompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (5 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
AlphaNet Inc
3300 Ponce de Leon BoulevardCoral GablesFL33134Management services$250,000
Moses & Singer LLP
405 Lexington AvenueNew YorkNY10174Legal services$153,349
Original Impressions LLC
PO Box 31792TampaFL33631Printing and publication$169,118
Speaking of Science
6916 Prince Georges AvenueTakoma ParkMD20912Website design$102,500
STEPHEN RENNARD
352 N 114th StOmahaNE68154Consultant$115,000
FieldValueIRS element (for citing)
Cntrct Rcvd Greater Than100 K5CntrctRcvdGreaterThan100KCnt
All Other Contributions$8,383,940AllOtherContributionsAmt
Noncash Contributions$228,196NoncashContributionsAmt
Total Contributions$8,383,940TotalContributionsAmt

Program Service Revenue ProgramServiceRevenueGrp

FieldValueIRS element (for citing)
DescPublication incomeDesc
Business513120BusinessCd
Total Revenue Column$368,000TotalRevenueColumnAmt
Unrelated Business Revenue$368,000UnrelatedBusinessRevenueAmt
FieldValueIRS element (for citing)
Total Program Service Revenue$368,000TotalProgramServiceRevenueAmt

Investment Income InvestmentIncomeGrp

FieldValueIRS element (for citing)
Total Revenue Column$690,915TotalRevenueColumnAmt
Related Or Exempt Func Income$690,915RelatedOrExemptFuncIncomeAmt

Gross Rents GrossRentsGrp

FieldValueIRS element (for citing)
Real$9,140RealAmt

Rental Income Or Loss RentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Real$9,140RealAmt

Net Rental Income Or Loss NetRentalIncomeOrLossGrp

FieldValueIRS element (for citing)
Total Revenue Column$9,140TotalRevenueColumnAmt
Related Or Exempt Func Income$9,140RelatedOrExemptFuncIncomeAmt

Gross Amount Sales Assets GrossAmountSalesAssetsGrp

FieldValueIRS element (for citing)
Securities$18,589,422SecuritiesAmt

Less Cost Oth Basis Sales Expnss LessCostOthBasisSalesExpnssGrp

FieldValueIRS element (for citing)
Securities$17,652,057SecuritiesAmt

Gain Or Loss GainOrLossGrp

FieldValueIRS element (for citing)
Securities$937,365SecuritiesAmt

Net Gain Or Loss Investments NetGainOrLossInvestmentsGrp

FieldValueIRS element (for citing)
Total Revenue Column$937,365TotalRevenueColumnAmt
Related Or Exempt Func Income$937,365RelatedOrExemptFuncIncomeAmt
FieldValueIRS element (for citing)
Fundraising Gross Income$155,211FundraisingGrossIncomeAmt
Fundraising Direct Expenses$91,272FundraisingDirectExpensesAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$63,939TotalRevenueColumnAmt
Exclusion$63,939ExclusionAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$10,453,299TotalRevenueColumnAmt
Related Or Exempt Func Income$1,637,420RelatedOrExemptFuncIncomeAmt
Unrelated Business Revenue$368,000UnrelatedBusinessRevenueAmt
Exclusion$63,939ExclusionAmt

Grants To Domestic Orgs GrantsToDomesticOrgsGrp

FieldValueIRS element (for citing)
Total$1,628,760TotalAmt
Program Services$1,628,760ProgramServicesAmt

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$10,400TotalAmt
Program Services$10,400ProgramServicesAmt

Foreign Grants ForeignGrantsGrp

FieldValueIRS element (for citing)
Total$844,524TotalAmt
Program Services$844,524ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$1,597,300TotalAmt
Program Services$1,184,707ProgramServicesAmt
Management And General$89,992ManagementAndGeneralAmt
Fundraising$322,601FundraisingAmt

Pension Plan Contributions PensionPlanContributionsGrp

FieldValueIRS element (for citing)
Total$26,404TotalAmt
Program Services$18,039ProgramServicesAmt
Management And General$2,582ManagementAndGeneralAmt
Fundraising$5,783FundraisingAmt

Other Employee Benefits OtherEmployeeBenefitsGrp

FieldValueIRS element (for citing)
Total$215,330TotalAmt
Program Services$185,790ProgramServicesAmt
Management And General$1,358ManagementAndGeneralAmt
Fundraising$28,182FundraisingAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$111,576TotalAmt
Program Services$80,944ProgramServicesAmt
Management And General$8,020ManagementAndGeneralAmt
Fundraising$22,612FundraisingAmt

Fees For Services Management FeesForServicesManagementGrp

FieldValueIRS element (for citing)
Total$271,563TotalAmt
Program Services$171,563ProgramServicesAmt
Management And General$100,000ManagementAndGeneralAmt

Fees For Services Legal FeesForServicesLegalGrp

FieldValueIRS element (for citing)
Total$256,368TotalAmt
Program Services$220,221ProgramServicesAmt
Management And General$32,853ManagementAndGeneralAmt
Fundraising$3,294FundraisingAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$86,896TotalAmt
Management And General$86,896ManagementAndGeneralAmt

Fees For Services Lobbying FeesForServicesLobbyingGrp

FieldValueIRS element (for citing)
Total$10,000TotalAmt
Program Services$10,000ProgramServicesAmt

Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp

FieldValueIRS element (for citing)
Total$112,621TotalAmt
Management And General$112,621ManagementAndGeneralAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$435,485TotalAmt
Program Services$299,720ProgramServicesAmt
Management And General$111,697ManagementAndGeneralAmt
Fundraising$24,068FundraisingAmt

Advertising AdvertisingGrp

FieldValueIRS element (for citing)
Total$6,910TotalAmt
Program Services$6,910ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$476,618TotalAmt
Program Services$340,677ProgramServicesAmt
Management And General$47,614ManagementAndGeneralAmt
Fundraising$88,327FundraisingAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$424,946TotalAmt
Program Services$406,637ProgramServicesAmt
Management And General$1,690ManagementAndGeneralAmt
Fundraising$16,619FundraisingAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$226,356TotalAmt
Program Services$167,887ProgramServicesAmt
Management And General$12,753ManagementAndGeneralAmt
Fundraising$45,716FundraisingAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$291,052TotalAmt
Program Services$252,006ProgramServicesAmt
Management And General$27,493ManagementAndGeneralAmt
Fundraising$11,553FundraisingAmt

Conferences Meetings ConferencesMeetingsGrp

FieldValueIRS element (for citing)
Total$1,227,611TotalAmt
Program Services$1,122,676ProgramServicesAmt
Management And General$44,752ManagementAndGeneralAmt
Fundraising$60,183FundraisingAmt

Depreciation Depletion DepreciationDepletionGrp

FieldValueIRS element (for citing)
Total$6,166TotalAmt
Program Services$4,574ProgramServicesAmt
Management And General$347ManagementAndGeneralAmt
Fundraising$1,245FundraisingAmt

Insurance InsuranceGrp

FieldValueIRS element (for citing)
Total$32,599TotalAmt
Program Services$21,980ProgramServicesAmt
Management And General$4,634ManagementAndGeneralAmt
Fundraising$5,985FundraisingAmt

Other Expenses OtherExpensesGrp (4 entries)

DescDescTotalTotalAmtProgram ServicesProgramServicesAmtManagement And GeneralManagementAndGeneralAmtFundraisingFundraisingAmt
Telephone$21,860$16,047$824$4,989
Repair and maintenance$20,977$15,558$1,182$4,237
Dues and subscriptions$139,495$67,341$21,733$50,421
Licenses, fees, and taxes$57,557$23,557$34,000

All Other Expenses AllOtherExpensesGrp

FieldValueIRS element (for citing)
Total$8,569TotalAmt
Program Services$6,353ProgramServicesAmt
Management And General$486ManagementAndGeneralAmt
Fundraising$1,730FundraisingAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$8,547,943TotalAmt
Program Services$7,083,314ProgramServicesAmt
Management And General$733,084ManagementAndGeneralAmt
Fundraising$731,545FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
BOY$7,943,740BOYAmt
EOY$1,200,391EOYAmt

Savings And Temp Cash Invst SavingsAndTempCashInvstGrp

FieldValueIRS element (for citing)
BOY$4,433,622BOYAmt
EOY$508,112EOYAmt

Accounts Receivable AccountsReceivableGrp

FieldValueIRS element (for citing)
BOY$675,118BOYAmt
EOY$949,746EOYAmt

Prepaid Expenses Defrd Charges PrepaidExpensesDefrdChargesGrp

FieldValueIRS element (for citing)
BOY$167,500BOYAmt
EOY$86,986EOYAmt
FieldValueIRS element (for citing)
Land Bldg Equip Cost Or Other Bss$417,840LandBldgEquipCostOrOtherBssAmt
Land Bldg Equip Accum Deprec$408,088LandBldgEquipAccumDeprecAmt

Land Bldg Equip Basis Net LandBldgEquipBasisNetGrp

FieldValueIRS element (for citing)
BOY$12,982BOYAmt
EOY$9,752EOYAmt

Investments Pub Traded Sec InvestmentsPubTradedSecGrp

FieldValueIRS element (for citing)
BOY$21,875,585BOYAmt
EOY$34,601,529EOYAmt

Investments Program Related InvestmentsProgramRelatedGrp

FieldValueIRS element (for citing)
BOY$363,069BOYAmt
EOY$281,138EOYAmt

Other Assets Total OtherAssetsTotalGrp

FieldValueIRS element (for citing)
BOY$25,000BOYAmt
EOY$25,000EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$35,496,616BOYAmt
EOY$37,662,654EOYAmt

Accounts Payable Accr Expnss AccountsPayableAccrExpnssGrp

FieldValueIRS element (for citing)
BOY$1,001,973BOYAmt
EOY$705,296EOYAmt

Grants Payable GrantsPayableGrp

FieldValueIRS element (for citing)
BOY$887,727BOYAmt
EOY$890,392EOYAmt

Deferred Revenue DeferredRevenueGrp

FieldValueIRS element (for citing)
BOY$715,000BOYAmt
EOY$561,500EOYAmt

Other Liabilities OtherLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$19,020BOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$2,623,720BOYAmt
EOY$2,157,188EOYAmt
FieldValueIRS element (for citing)
Organization Follows FASB117Yes (X)OrganizationFollowsFASB117Ind

No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$29,569,884BOYAmt
EOY$33,095,472EOYAmt

Donor Restriction Net Assets DonorRestrictionNetAssetsGrp

FieldValueIRS element (for citing)
BOY$3,303,012BOYAmt
EOY$2,409,994EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$32,872,896BOYAmt
EOY$35,505,466EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$35,496,616BOYAmt
EOY$37,662,654EOYAmt
FieldValueIRS element (for citing)
Info In Schedule O Part XIYes (X)InfoInScheduleOPartXIInd
Reconcilation Revenue Expnss$1,905,356ReconcilationRevenueExpnssAmt
Net Unrlzd Gains Losses Invst$809,153NetUnrlzdGainsLossesInvstAmt
Other Changes In Net Assets-$81,931OtherChangesInNetAssetsAmt
Method Of Accounting AccrualYes (X)MethodOfAccountingAccrualInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedYes (true)FSAuditedInd

FS Audited Basis FSAuditedBasisGrp

FieldValueIRS element (for citing)
Consolidated Basis Fincl StmtYes (X)ConsolidatedBasisFinclStmtInd
FieldValueIRS element (for citing)
Audit CommitteeYes (true)AuditCommitteeInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Public Organization170Yes (X)PublicOrganization170Ind

Gifts Grants Contri Rcvd170 GiftsGrantsContriRcvd170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$8,335,339CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,936,556CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$7,939,893CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$9,050,130CurrentTaxYearMinus1YearAmt
Current Tax Year$8,383,940CurrentTaxYearAmt
Total$41,645,858TotalAmt

Total Calendar Year170 TotalCalendarYear170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$8,335,339CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$7,936,556CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$7,939,893CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$9,050,130CurrentTaxYearMinus1YearAmt
Current Tax Year$8,383,940CurrentTaxYearAmt
Total$41,645,858TotalAmt
FieldValueIRS element (for citing)
Substantial Contributors Tot$29,288,664SubstantialContributorsTotAmt
Public Support Total170$12,357,194PublicSupportTotal170Amt

Gross Investment Income170 GrossInvestmentIncome170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$507,839CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$512,763CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$469,516CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$474,423CurrentTaxYearMinus1YearAmt
Current Tax Year$690,915CurrentTaxYearAmt
Total$2,655,456TotalAmt

Unrelated Business Net Incm170 UnrelatedBusinessNetIncm170Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$17,767CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$73,156CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$62,038CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$137,860CurrentTaxYearMinus1YearAmt
Current Tax Year$86,623CurrentTaxYearAmt
Total$377,444TotalAmt
FieldValueIRS element (for citing)
Total Support$44,678,758TotalSupportAmt
Public Support CY1700.27658PublicSupportCY170Pct
Public Support PY1700.29592PublicSupportPY170Pct
Ten Pct Facts Crcmstncs Test CYYes (X)TenPctFactsCrcmstncsTestCYInd

Form990 Schedule A Part VI Form990ScheduleAPartVIGrp (17 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part II, Line 17The Alpha-1 Foundation maintains an ongoing solicitation program
Part II, Line 17from the general public. During the fiscal year ended June 30,
Part II, Line 172023, the Foundation received contributions from 3,418 donors
Part II, Line 17from across the United States. As shown on Schedule B, 44 donors
Part II, Line 17contributed amounts of $5,000 or higher. Fund raising activities
Part II, Line 17include a general campaign, special events, and other fund
Part II, Line 17raising appeals. The public support percentage for fiscal 2023
Part II, Line 17would be above 34% if the support received from AlphaNet, Inc.,
Part II, Line 17a Section 501(c)(3) Type 2 charity, was excluded from this
Part II, Line 17computation. The support received from AlphaNet has provided
Part II, Line 17funding to support detection of Alpha-1 affected persons,
Part II, Line 17research for improved therapies, and a cure for Alpha-1. The BOD
Part II, Line 17is distributed across the United States and abroad, including 6
Part II, Line 17members who have been diagnosed with Alpha-1, 1 who had a family
Part II, Line 17member diagnosed with Alpha-1, 1 registered nurse, and 5 medical
Part II, Line 17doctors who are experts in the field. All members are
Part II, Line 17independent.

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule C IRS990ScheduleC

Total Grassroots Lobbying TotalGrassrootsLobbyingGrp

FieldValueIRS element (for citing)
Filing Organizations Total$10,000FilingOrganizationsTotalAmt

Total Lobbying Expend TotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$10,000FilingOrganizationsTotalAmt

Other Exempt Purpose Expend OtherExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$7,073,314FilingOrganizationsTotalAmt

Total Exempt Purpose Expend TotalExemptPurposeExpendGrp

FieldValueIRS element (for citing)
Filing Organizations Total$7,083,314FilingOrganizationsTotalAmt

Lobbying Nontaxable Amount LobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Filing Organizations Total$504,166FilingOrganizationsTotalAmt

Grassroots Nontaxable GrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Filing Organizations Total$126,042FilingOrganizationsTotalAmt
FieldValueIRS element (for citing)
Form4720 FiledfalseForm4720FiledInd

Avg Lobbying Nontaxable Amount AvgLobbyingNontaxableAmountGrp

FieldValueIRS element (for citing)
Current Year Minus3$451,409CurrentYearMinus3Amt
Current Year Minus2$462,805CurrentYearMinus2Amt
Current Year Minus1$468,710CurrentYearMinus1Amt
Current Year$504,166CurrentYearAmt
Total$1,887,090TotalAmt
FieldValueIRS element (for citing)
Lobbying Ceiling$2,830,635LobbyingCeilingAmt

Avg Total Lobbying Expend AvgTotalLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$10,000CurrentYearMinus3Amt
Current Year Minus2$10,000CurrentYearMinus2Amt
Current Year Minus1$10,000CurrentYearMinus1Amt
Current Year$10,000CurrentYearAmt
Total$40,000TotalAmt

Avg Grassroots Nontaxable AvgGrassrootsNontaxableGrp

FieldValueIRS element (for citing)
Current Year Minus3$112,852CurrentYearMinus3Amt
Current Year Minus2$115,701CurrentYearMinus2Amt
Current Year Minus1$117,178CurrentYearMinus1Amt
Current Year$126,042CurrentYearAmt
Total$471,773TotalAmt
FieldValueIRS element (for citing)
Grassroots Ceiling$707,660GrassrootsCeilingAmt

Avg Grassroots Lobbying Expend AvgGrassrootsLobbyingExpendGrp

FieldValueIRS element (for citing)
Current Year Minus3$10,000CurrentYearMinus3Amt
Current Year Minus2$10,000CurrentYearMinus2Amt
Current Year Minus1$10,000CurrentYearMinus1Amt
Current Year$10,000CurrentYearAmt
Total$40,000TotalAmt
FieldValueIRS element (for citing)
VolunteersfalseVolunteersInd
Paid Staff Or ManagementfalsePaidStaffOrManagementInd
Media AdvertisementsfalseMediaAdvertisementsInd
Mailings MembersfalseMailingsMembersInd
Publications Or BroadcastfalsePublicationsOrBroadcastInd
Grants Other OrganizationsfalseGrantsOtherOrganizationsInd
Direct Contact LegislatorsfalseDirectContactLegislatorsInd
Rallies DemonstrationsfalseRalliesDemonstrationsInd
Other ActivitiesfalseOtherActivitiesInd
Not Described Section501c3falseNotDescribedSection501c3Ind
Form4720 Filed4912 TaxfalseForm4720Filed4912TaxInd

Schedule D IRS990ScheduleD

FieldValueIRS element (for citing)
Donor Advised Funds Held1DonorAdvisedFundsHeldCnt
Donor Advised Funds Vl EOY$28,369DonorAdvisedFundsVlEOYAmt
Disclosed Org Leg CtrlYes (true)DisclosedOrgLegCtrlInd
Disclosed For Charitable PrpsYes (true)DisclosedForCharitablePrpsInd
Written Policy MonitoringfalseWrittenPolicyMonitoringInd
Section170h Rqr StsfdfalseSection170hRqrStsfdInd
Solicited Assets SalefalseSolicitedAssetsSaleInd
Agent Trustee EtcfalseAgentTrusteeEtcInd
Incl Escrow Custodial Acct LiabfalseInclEscrowCustodialAcctLiabInd

Leasehold Improvements LeaseholdImprovementsGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$200,825InvestmentCostOrOtherBasisAmt
Depreciation$200,825DepreciationAmt

Equipment EquipmentGrp

FieldValueIRS element (for citing)
Investment Cost Or Other Basis$217,015InvestmentCostOrOtherBasisAmt
Depreciation$207,263DepreciationAmt
Book Value$9,752BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Land Buildings$9,752TotalBookValueLandBuildingsAmt

Invst Program Related Org InvstProgramRelatedOrgGrp

FieldValueIRS element (for citing)
DescThe Alpha1 ProjectDesc
Book Value$281,138BookValueAmt
Method ValuationCMethodValuationCd
FieldValueIRS element (for citing)
Total Book Value Program Rltd$281,138TotalBookValueProgramRltdAmt

Other Assets Org OtherAssetsOrgGrp

FieldValueIRS element (for citing)
DescDepositsDesc
Book Value$25,000BookValueAmt
FieldValueIRS element (for citing)
Total Book Value Other Assets$25,000TotalBookValueOtherAssetsAmt
Footnote TextYes (X)FootnoteTextInd
Total Rev Etc Audited Fincl Stmt$11,241,095TotalRevEtcAuditedFinclStmtAmt
Net Unrealized Gains Invst$809,153NetUnrealizedGainsInvstAmt
Other Revenue-$8OtherRevenueAmt
Revenue Not Reported$809,145RevenueNotReportedAmt
Revenue Subtotal$10,431,950RevenueSubtotalAmt
Investment Expenses Not Incld$112,621InvestmentExpensesNotIncldAmt
Other Revenues Not Included-$91,272OtherRevenuesNotIncludedAmt
Revenue Not Reported Fincl Stmt$21,349RevenueNotReportedFinclStmtAmt
Total Revenue Per Form990$10,453,299TotalRevenuePerForm990Amt
Tot Expns Etc Audited Fincl Stmt$8,526,594TotExpnsEtcAuditedFinclStmtAmt
Other Expenses Included$91,272OtherExpensesIncludedAmt
Expenses Not Reported$91,272ExpensesNotReportedAmt
Expenses Subtotal$8,435,322ExpensesSubtotalAmt
Investment Expenses Not Incld2$112,621InvestmentExpensesNotIncld2Amt
Expenses Not Rpt Fincl Stmt$112,621ExpensesNotRptFinclStmtAmt
Total Expenses Per Form990$8,547,943TotalExpensesPerForm990Amt

Supplemental Information Detail SupplementalInformationDetail (15 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
P10, Ln 2The Foundation has adopted the provisions of ASC No. 740 "Income Taxes."
P10, Ln 2Under ASC 740, the Foundation must recognize the tax liability (or benefit)
P10, Ln 2associated with tax positions taken for tax return purposes when it is
P10, Ln 2more-likely-than-not that the position will be sustained. The adoption of
P10, Ln 2ASC 740 had no impact on the Foundation's consolidated financial
P10, Ln 2statements. Management of the Foundation does not believe there are any
P10, Ln 2material uncertain tax positions and accordingly has not recorded any
P10, Ln 2liability for unrecognized tax benefits.
P11, Ln 2dThis amount is an adjustment for rounding.
P11, Ln 4bThis amount reflects special event expenses that are reported at gross in
P11, Ln 4bthe audited financial statements, rather than netted against special event
P11, Ln 4brevenues as is the case on the Form 990.
P12, Ln 2dThis amount reflects special event expenses that are reported at gross in
P12, Ln 2dthe audited financial statements, rather than netted against special event
P12, Ln 2drevenues as is the case on the Form 990.

Schedule F IRS990ScheduleF

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Account Activities Outside US AccountActivitiesOutsideUSGrp

FieldValueIRS element (for citing)
RegionEuropeRegionTxt
Offices0OfficesCnt
Employee1EmployeeCnt
Type Of Activities ConductedProgram servicesTypeOfActivitiesConductedTxt
Specific Services ProvidedEuropean public policySpecificServicesProvidedTxt
Region Total Expenditures$28,278RegionTotalExpendituresAmt
FieldValueIRS element (for citing)
Subtotal Employees1SubtotalEmployeesCnt
Total Employee1TotalEmployeeCnt
Subtotal Spent$28,278SubtotalSpentAmt
Total Spent$28,278TotalSpentAmt

Grants To Org Outside US GrantsToOrgOutsideUSGrp (10 entries)

RegionRegionTxtPurpose Of GrantPurposeOfGrantTxtCash GrantCashGrantAmtManner Of Cash DisbursementMannerOfCashDisbursementTxt
EuropeResearch$95,638Wire
EuropeResearch$74,269Wire
EuropeResearch$74,500Wire
EuropeResearch$102,000Wire
EuropeResearch$88,701Wire
EuropeResearch$90,000Wire
EuropeResearch$100,000Wire
EuropeResearch$78,000Wire
EuropeResearch$99,750Wire
EuropeResearch$41,666Wire
FieldValueIRS element (for citing)
Total501c3 Org10Total501c3OrgCnt
Transfer To Foreign CorpfalseTransferToForeignCorpInd
Interest In Foreign TrustfalseInterestInForeignTrustInd
Foreign Corp OwnershipfalseForeignCorpOwnershipInd
Passive Foreign Investmest CofalsePassiveForeignInvestmestCoInd
Foreign PartnershipfalseForeignPartnershipInd
Boycott CountriesfalseBoycottCountriesInd

Supplemental Information Detail SupplementalInformationDetail (3 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
P1, Ln 2Please see Schedule I, Part IV. The grant-making processes are the same as
P1, Ln 2those for organizations in the United States.
P1, Ln 3, Col FThe organization uses the accrual method to account for its expenditures.

Schedule G IRS990ScheduleG

Schedule I IRS990ScheduleI

FieldValueIRS element (for citing)
Grant Records MaintainedYes (true)GrantRecordsMaintainedInd

Recipient Table RecipientTable (14 entries)

Address Line1USAddress/AddressLine1TxtCityUSAddress/CityNmState AbbreviationUSAddress/StateAbbreviationCdZIPUSAddress/ZIPCdRecipient EINRecipientEINIRC SectionIRCSectionDescCash GrantCashGrantAmtNon Cash AssistanceNonCashAssistanceAmtPurpose Of GrantPurposeOfGrantTxt
University of Florida
1600 SW Archer RoadGainesvilleFL32610596002052501c3$457,398$0Research
Brigham & Women's Hospital
75 Francis StreetBostonMA02115042312909501c3$199,000$0Research
Boston Medical Center
600 Harrison Avenue Gambro 2BostonMA02118043314093501c3$99,500$0Research
Boston University
25 Buick Street 2nd FloorBostonMA02215042103547501c3$146,433$0Research
University of Alabama
1720 2nd Avenue South Ste AB 1170BirminghamAL35294636001138501c3$74,500$0Research
Columbia University
630 West 168th Street Ste 39New YorkNY10027135598093501c3$141,167$0Research
National Jewish Health
1400 Jackson StreetDenverCO80206742044647501c3$140,000$0Research
University of Kentucky
741 South Limestone Street Ste B259LexingtonKY40536616033693501c3$100,000$0Research
Northwestern University
303 E Chicago AvenueChicagoIL60611362167817501c3$82,000$0Research
University of Colorado
1600 BroadwayDenverCO80202846000555501c3$31,739$0Research
Mass Inst of Technology
77 Massachusetts AvenueCambridgeMA02139042103594501c3$124,750$0Research
Saint Louis University
1100 South Grand BoulevardSaint LouisMO63103430654872501c3$5,647$0Research
Nat Org Rare Disorders
55 Kenosia AvenueDanburyCT06810133223946501c3$25,000$0Patient support
University of N Carolina
104 Airport DriveChapel HillNC27599566001393501c3$10,000$0Research
FieldValueIRS element (for citing)
Total501c3 Org14Total501c3OrgCnt
Total Other Org0TotalOtherOrgCnt

Grants Other Asst To Indiv In US GrantsOtherAsstToIndivInUSGrp

FieldValueIRS element (for citing)
Grant TypeEducational scholarshipsGrantTypeTxt
Recipient26RecipientCnt
Cash Grant$10,400CashGrantAmt

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part I Line 2The Foundation has a Grants Advisory Committee consisting of 25 members
Part I Line 2and 2 staff members assigned to the committee The membership of the
Part I Line 2committee consists of medical doctors who are Alpha1 experts and
Part I Line 2researchers The committee reviews grant applications for quality and
Part I Line 2applicability of research funds Prior to acceptance the prospective
Part I Line 2grantee is checked against the US Treasurys OFAC list On a quarterly
Part I Line 2basis all grants are peerreviewed for progress before subsequent payments
Part I Line 2are made Final research reports are submitted and peerreviewed before
Part I Line 2final grant payments are made

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Compensation CommitteeYes (X)CompensationCommitteeInd
Independent ConsultantYes (X)IndependentConsultantInd
Form990 Of Other OrganizationsYes (X)Form990OfOtherOrganizationsInd
Written Employment ContractYes (X)WrittenEmploymentContractInd
Compensation SurveyYes (X)CompensationSurveyInd
Board Or Committee ApprovalYes (X)BoardOrCommitteeApprovalInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Rltd Org Officer Trst Key Empl RltdOrgOfficerTrstKeyEmplGrp (18 entries)

TitleTitleTxtBase Compensation Filing OrgBaseCompensationFilingOrgAmtTotal Compensation Filing OrgTotalCompensationFilingOrgAmtNontaxable Benefits Filing OrgNontaxableBenefitsFilingOrgAmt
LINDA RODRIGUEZ
Development Director$113,589$113,589
RANDEL H PLANT
Sen Dir Research Progs$134,428$134,428
ANGELA T MCBRIDE
Sen Dir Corp Relations$120,202$120,202
SCOTT SANTARELLA
President and CEO$315,753$329,085$13,332
MARK B DELVAUX
CFO
DARRELL KOTTON
Director
VIRGINIA CLARK
Physician Director
FRED C WALSH
Vice Chair
JENNIFER JOPP
Director
JON HAGSTROM
Chair
MARTIN R ZAMORA
Director Emeritus
KENNETH IRVINE
Treasurer
PEGGY IVERSON
Secretary
ANN KNEBEL
Director
NOEL G MCELVANEY
Director
FARON SCHONFELD
Director
MARK BRANTLY
Director
CATHERINE VERNON
Director

Supplemental Information Detail SupplementalInformationDetail (4 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part IIAlphaNet, Inc., another 501(c)(3) organization, provided the fiscal 2023
Part IIservices of the CFO under an administrative services agreement in the
Part IIamount of $100,000. The amount is based on a reasonable estimate of the
Part IIservices provided to the Alpha-1 Foundation.

Schedule M IRS990ScheduleM

Securities Publicly Traded SecuritiesPubliclyTradedGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
Contribution2ContributionCnt
Noncash Contributions Rpt F990$13,196NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt

Other Non Cash Contri Table OtherNonCashContriTableGrp

FieldValueIRS element (for citing)
Non Cash CheckboxYes (X)NonCashCheckboxInd
DescOffice rentDesc
Contribution1ContributionCnt
Noncash Contributions Rpt F990$215,000NoncashContributionsRptF990Amt
Method Of Determining RevenuesFMVMethodOfDeterminingRevenuesTxt
FieldValueIRS element (for citing)
Any Property That Must Be HeldfalseAnyPropertyThatMustBeHeldInd
Review Process Unusual NC GiftsYes (true)ReviewProcessUnusualNCGiftsInd
Third Parties UsedfalseThirdPartiesUsedInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (35 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
Part VI Line 11bThe Form 990 is provided to members of management and the Board of
Part VI Line 11bDirectors for review prior to filing.
Part VI Line 12cWritten conflict of interest statements are obtained from all officers,
Part VI Line 12cboard members, and committee members on an annual basis.
Part VI Line 15a or bCompensation levels are developed using salary surveys and a review of 990s
Part VI Line 15a or bfor comparable not-for-profit organizations.
Part VI Line 18Form 990 is available on www.alpha1.org, and also upon request.
Part VI Line 19Audited financial statements are available on www.alpha1.org. Governing
Part VI Line 19documents and the conflict of interest policy are available upon request.
Part XI Line 9This amount refers to an audit adjustment made to reflect the value of
Part XI Line 9Alpha-1 Foundation's wholly owned subsidiary, The Alpha-1 Project.
Part III Line 4dExpenses: $489559.00 including grants of: $0.00 Revenue: $469600.00
Part III Line 4dThe mission of Alpha-1 Global is to develop a collaborative global network
Part IIIof Alpha-1 patient leaders, physicians, and researchers.
Part III Line 4dExpenses: $246185.00 including grants of: $0.00 Revenue: $368000.00
Part III Line 4dThe Alpha-1-To-One Magazine is designed to inform the community of research
Part III Line 4ddevelopments, education, advocacy and fund raising opportunities.
Part III Line 4dExpenses: $402768.00 including grants of: $0.00 Revenue: $370000.00
Part III Line 4dAlpha-1 Education Days provide access to current medical information and
Part III Line 4dresources to hundreds of Alphas, their families, and caregivers.
Part III Line 4dExpenses: $257770.00 including grants of: $0.00 Revenue: $250000.00
Part III Line 4dThe Foundation's Public Policy program monitors relevant legislation and
Part III Line 4dregulatory issues and publicizes the Foundation's positions on such issues.
Part III Line 4dExpenses: $822972.00 including grants of: $25000.00 Revenue: $390000.00
Part III Line 4dOther Alpha-1 services include patient education (materials, website, etc),
Part III Line 4da Patient Support Network, and a targeted detection program.
Part VI, Line 17The Alpha-1 Foundation is registered to accept charitable donations in all
Part VI, Line 17states that require it.
Part VII, Line 1aThe Chief Financial Officer is an employee of AlphaNet, Inc., an unrelated
Part VII, Line 1anot-for-profit organization which provides its services through an
Part VII, Line 1aadministrative services agreement.
Part VII, Line 5AlphaNet, Inc., another 501(c)(3) organization, provides the services of
Part VII, Line 5the Chief Financial Officer under an administrative services agreement in
Part VII, Line 5the amount of $100,000. The amount is based on the reasonable estimate of
Part VII, Line 5the value of the services provided to the Alpha-1 Foundation.

Schedule R IRS990ScheduleR

Id Related Org Txbl Corp Tr IdRelatedOrgTxblCorpTrGrp

Related Organization Name RelatedOrganizationName

FieldValueIRS element (for citing)
Business Name Line1The Alpha-1 ProjectBusinessNameLine1Txt

US Address USAddress

FieldValueIRS element (for citing)
Address Line13300 Ponce de Leon BoulevardAddressLine1Txt
CityCoral GablesCityNm
State AbbreviationFLStateAbbreviationCd
ZIP33134ZIPCd
FieldValueIRS element (for citing)
EIN272040293EIN
Primary ActivitiesDrug therapiesPrimaryActivitiesTxt
Legal Domicile StateDELegalDomicileStateCd
Direct Controlling NAN/ADirectControllingNACd
Entity TypeC CorpEntityTypeTxt
Ownership1.00000OwnershipPct
Controlled OrganizationYes (true)ControlledOrganizationInd
FieldValueIRS element (for citing)
Receipt Of Int Annts Rnts RyltsfalseReceiptOfIntAnntsRntsRyltsInd
Gift Grnt Or Cap Contri To Oth OrgfalseGiftGrntOrCapContriToOthOrgInd
Gift Grnt Cap Contri From Oth OrgfalseGiftGrntCapContriFromOthOrgInd
Loans Or Guarantees To Other OrgfalseLoansOrGuaranteesToOtherOrgInd
Loans Or Guarantees From Oth OrgfalseLoansOrGuaranteesFromOthOrgInd
Div Related OrganizationfalseDivRelatedOrganizationInd
Asset Sale To Other OrgfalseAssetSaleToOtherOrgInd
Asset Purchase From Other OrgfalseAssetPurchaseFromOtherOrgInd
Asset ExchangefalseAssetExchangeInd
Rental Of Facilities To Oth OrgfalseRentalOfFacilitiesToOthOrgInd
Rental Of Fclts From Oth OrgfalseRentalOfFcltsFromOthOrgInd
Perform Of Services For Oth OrgfalsePerformOfServicesForOthOrgInd
Perform Of Services By Other OrgfalsePerformOfServicesByOtherOrgInd
Sharing Of FacilitiesfalseSharingOfFacilitiesInd
Paid Employees SharingfalsePaidEmployeesSharingInd
Reimbursement Paid To Other OrgfalseReimbursementPaidToOtherOrgInd
Reimbursement Paid By Other OrgfalseReimbursementPaidByOtherOrgInd
Transfer To Other OrgfalseTransferToOtherOrgInd
Transfer From Other OrgfalseTransferFromOtherOrgInd

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