CHOROIDEREMIA RESEARCH FOUNDATION INC: Form 990, tax year 2022
View the entire original 990 at ProPublica ↗
- Organization
- CHOROIDEREMIA RESEARCH FOUNDATION INC (EIN 04-3511754)
- Tax period
- 2022-07-01 to 2023-06-30
- Filed
- 2024-03-02
- IRS object ID
- 202440629349300709
- Schema version
- 2022v5.0
- Source
- Download XML · Original 990 at ProPublica
Every field in the e-filed return. Faint text is the IRS element name, for citing.
Return header ReturnHeader
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return | 2024-03-02T01:39:30-00:00 | ReturnTs |
| Tax Period End | 2023-06-30 | TaxPeriodEndDt |
Preparer Firm PreparerFirmGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Firm EIN | 320048525 | PreparerFirmEIN |
Preparer Firm Name PreparerFirmName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | LaPier Dillon & Associates PC | BusinessNameLine1Txt |
Preparer US Address PreparerUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 333 Elm Street | AddressLine1Txt |
| City | W Springfield | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01089 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Return Type | 990 | ReturnTypeCd |
| Tax Period Begin | 2022-07-01 | TaxPeriodBeginDt |
Filer Filer
| Field | Value | IRS element (for citing) |
|---|---|---|
| EIN | 043511754 | EIN |
Business Name BusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | CHOROIDEREMIA RESEARCH FOUNDATION INC | BusinessNameLine1Txt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Control | CHOR | BusinessNameControlTxt |
| Phone | 8002100233 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 23 E BRUNDRETH STREET | AddressLine1Txt |
| City | SPRINGFIELD | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 011092110 | ZIPCd |
Business Officer BusinessOfficerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | Kathi Wagner | PersonNm |
| Person Title | Executive Director | PersonTitleTxt |
| Phone | 8002100233 | PhoneNum |
| Signature | 2023-12-01 | SignatureDt |
| Discuss With Paid Preparer | Yes (true) | DiscussWithPaidPreparerInd |
Signing Officer SigningOfficerGrp
Person Full Name PersonFullName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person First | Kathi | PersonFirstNm |
| Person Last | Wagner | PersonLastNm |
| Field | Value | IRS element (for citing) |
|---|---|---|
| SSN | XXX-XX-XXXX | SSN |
Preparer Person PreparerPersonGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Preparer Person | Nicholas LaPier | PreparerPersonNm |
| PTIN | P01227383 | PTIN |
| Phone | 4137320200 | PhoneNum |
| Preparation | 2023-12-01 | PreparationDt |
Additional Filer Information AdditionalFilerInformation
Trusted Customer TrustedCustomerGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Trusted Customer | 2 | TrustedCustomerCd |
| Authentication Assurance Level | AAL1 | AuthenticationAssuranceLevelCd |
| Identity Assurance Level | IAL1 | IdentityAssuranceLevelCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Tax | 2022 | TaxYr |
| Build TS | 2023-04-26 12:10:37Z | BuildTS |
Form 990 IRS990
| Field | Value | IRS element (for citing) |
|---|---|---|
| Principal Officer | Kathi Wagner | PrincipalOfficerNm |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 1901 MAGDALENE MANOR DRIVE | AddressLine1Txt |
| City | TAMPA | CityNm |
| State Abbreviation | FL | StateAbbreviationCd |
| ZIP | 33613 | ZIPCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Gross Receipts | $560,892 | GrossReceiptsAmt |
| Group Return For Affiliates | false | GroupReturnForAffiliatesInd |
| Organization501c3 | Yes (X) | Organization501c3Ind |
| Website Address | www.curechm.org | WebsiteAddressTxt |
| Type Of Organization Corp | Yes (X) | TypeOfOrganizationCorpInd |
| Formation | 2000 | FormationYr |
| Legal Domicile State | MA | LegalDomicileStateCd |
| Activity Or Mission | To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public. | ActivityOrMissionDesc |
| Voting Members Governing Body | 18 | VotingMembersGoverningBodyCnt |
| Voting Members Independent | 18 | VotingMembersIndependentCnt |
| Total Employee | 7 | TotalEmployeeCnt |
| Total Gross UBI | $0 | TotalGrossUBIAmt |
| PY Contributions Grants | $652,492 | PYContributionsGrantsAmt |
| CY Contributions Grants | $536,725 | CYContributionsGrantsAmt |
| PY Program Service Revenue | $707 | PYProgramServiceRevenueAmt |
| CY Program Service Revenue | $0 | CYProgramServiceRevenueAmt |
| PY Investment Income | $11,682 | PYInvestmentIncomeAmt |
| CY Investment Income | $24,167 | CYInvestmentIncomeAmt |
| CY Other Revenue | $0 | CYOtherRevenueAmt |
| PY Total Revenue | $664,881 | PYTotalRevenueAmt |
| CY Total Revenue | $560,892 | CYTotalRevenueAmt |
| PY Grants And Similar Paid | $274,353 | PYGrantsAndSimilarPaidAmt |
| CY Grants And Similar Paid | $359,320 | CYGrantsAndSimilarPaidAmt |
| CY Benefits Paid To Members | $0 | CYBenefitsPaidToMembersAmt |
| PY Salaries Comp Emp Bnft Paid | $175,222 | PYSalariesCompEmpBnftPaidAmt |
| CY Salaries Comp Emp Bnft Paid | $184,209 | CYSalariesCompEmpBnftPaidAmt |
| CY Total Prof Fndrsng Expns | $0 | CYTotalProfFndrsngExpnsAmt |
| CY Total Fundraising Expense | $90,989 | CYTotalFundraisingExpenseAmt |
| PY Other Expenses | $135,102 | PYOtherExpensesAmt |
| CY Other Expenses | $201,971 | CYOtherExpensesAmt |
| PY Total Expenses | $584,677 | PYTotalExpensesAmt |
| CY Total Expenses | $745,500 | CYTotalExpensesAmt |
| PY Revenues Less Expenses | $80,204 | PYRevenuesLessExpensesAmt |
| CY Revenues Less Expenses | -$184,608 | CYRevenuesLessExpensesAmt |
| Total Assets BOY | $985,906 | TotalAssetsBOYAmt |
| Total Assets EOY | $801,239 | TotalAssetsEOYAmt |
| Total Liabilities EOY | $0 | TotalLiabilitiesEOYAmt |
| Net Assets Or Fund Balances BOY | $985,906 | NetAssetsOrFundBalancesBOYAmt |
| Net Assets Or Fund Balances EOY | $801,239 | NetAssetsOrFundBalancesEOYAmt |
| Mission | To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness to educate people affected by the disease and the public. | MissionDesc |
| Significant New Program Srvc | false | SignificantNewProgramSrvcInd |
| Significant Change | false | SignificantChangeInd |
| Expense | $597,995 | ExpenseAmt |
| Desc | TO PROVIDE GRANTS FOR CHOROIDEREMIA RESEARCH AND PATIENT AND FAMILY EDUCATION AND ADVOCACY PROGRAMS | Desc |
| Total Program Service Expenses | $597,995 | TotalProgramServiceExpensesAmt |
| Described In Section501c3 | Yes (true) | DescribedInSection501c3Ind |
| Schedule B Required | Yes (true) | ScheduleBRequiredInd |
| Political Campaign Acty | false | PoliticalCampaignActyInd |
| Lobbying Activities | false | LobbyingActivitiesInd |
| Subject To Proxy Tax | false | SubjectToProxyTaxInd |
| Donor Advised Fund | false | DonorAdvisedFundInd |
| Conservation Easements | false | ConservationEasementsInd |
| Collections Of Art | false | CollectionsOfArtInd |
| Credit Counseling | false | CreditCounselingInd |
| Donor Rstr Or Quasi Endowments | Yes (true) | DonorRstrOrQuasiEndowmentsInd |
| Report Land Building Equipment | Yes (true) | ReportLandBuildingEquipmentInd |
| Report Investments Other Sec | false | ReportInvestmentsOtherSecInd |
| Report Program Related Invst | Yes (true) | ReportProgramRelatedInvstInd |
| Report Other Assets | false | ReportOtherAssetsInd |
| Report Other Liabilities | false | ReportOtherLiabilitiesInd |
| Include FIN48 Footnote | false | IncludeFIN48FootnoteInd |
| Independent Audit Fincl Stmt | Yes (true) | IndependentAuditFinclStmtInd |
| Consolidated Audit Fincl Stmt | false | ConsolidatedAuditFinclStmtInd |
| School Operating | false | SchoolOperatingInd |
| Foreign Office | false | ForeignOfficeInd |
| Foreign Activities | Yes (true) | ForeignActivitiesInd |
| More Than5000 K To Org | Yes (true) | MoreThan5000KToOrgInd |
| More Than5000 K To Individuals | false | MoreThan5000KToIndividualsInd |
| Professional Fundraising | false | ProfessionalFundraisingInd |
| Fundraising Activities | false | FundraisingActivitiesInd |
| Gaming Activities | false | GamingActivitiesInd |
| Operate Hospital | false | OperateHospitalInd |
| Grants To Organizations | Yes (true) | GrantsToOrganizationsInd |
| Grants To Individuals | false | GrantsToIndividualsInd |
| Schedule J Required | false | ScheduleJRequiredInd |
| Tax Exempt Bonds | false | TaxExemptBondsInd |
| Invest Tax Exempt Bonds | false | InvestTaxExemptBondsInd |
| Escrow Account | false | EscrowAccountInd |
| On Behalf Of Issuer | false | OnBehalfOfIssuerInd |
| Engaged In Excess Benefit Trans | false | EngagedInExcessBenefitTransInd |
| PY Excess Benefit Trans | false | PYExcessBenefitTransInd |
| Loan Outstanding | false | LoanOutstandingInd |
| Grant To Related Person | false | GrantToRelatedPersonInd |
| Business Rln With Org Mem | false | BusinessRlnWithOrgMemInd |
| Business Rln With Fam Mem | false | BusinessRlnWithFamMemInd |
| Business Rln With35 Ctrl Ent | false | BusinessRlnWith35CtrlEntInd |
| Deductible Non Cash Contri | false | DeductibleNonCashContriInd |
| Deductible Art Contribution | false | DeductibleArtContributionInd |
| Terminate Operations | false | TerminateOperationsInd |
| Partial Liquidation | false | PartialLiquidationInd |
| Disregarded Entity | false | DisregardedEntityInd |
| Related Entity | false | RelatedEntityInd |
| Related Organization Ctrl Ent | false | RelatedOrganizationCtrlEntInd |
| Trnsfr Exmpt Non Chrtbl Rltd Org | false | TrnsfrExmptNonChrtblRltdOrgInd |
| Activities Conducted Prtshp | false | ActivitiesConductedPrtshpInd |
| Schedule O Required | Yes (true) | ScheduleORequiredInd |
| IRP Document | 0 | IRPDocumentCnt |
| IRP Document W2 G | 0 | IRPDocumentW2GCnt |
| Backup Wthld Compliance | Yes (true) | BackupWthldComplianceInd |
| Employee | 7 | EmployeeCnt |
| Employment Tax Returns Filed | Yes (true) | EmploymentTaxReturnsFiledInd |
| Unrelated Bus Incm Over Limit | false | UnrelatedBusIncmOverLimitInd |
| Foreign Financial Account | false | ForeignFinancialAccountInd |
| Prohibited Tax Shelter Trans | false | ProhibitedTaxShelterTransInd |
| Taxable Party Notification | false | TaxablePartyNotificationInd |
| Nondeductible Contributions | false | NondeductibleContributionsInd |
| Quid Pro Quo Contributions | false | QuidProQuoContributionsInd |
| Form8282 Property Disposed Of | false | Form8282PropertyDisposedOfInd |
| Rcv Fnds To Pay Prsnl Bnft Cntrct | false | RcvFndsToPayPrsnlBnftCntrctInd |
| Pay Premiums Prsnl Bnft Cntrct | false | PayPremiumsPrsnlBnftCntrctInd |
| Indoor Tanning Services | false | IndoorTanningServicesInd |
| Subj To Tax Rmnrtn Ex Prcht Pymt | false | SubjToTaxRmnrtnExPrchtPymtInd |
| Subject To Excs Tax Net Invst Inc | false | SubjectToExcsTaxNetInvstIncInd |
| Info In Schedule O Part VI | Yes (X) | InfoInScheduleOPartVIInd |
| Governing Body Voting Members | 18 | GoverningBodyVotingMembersCnt |
| Independent Voting Member | 18 | IndependentVotingMemberCnt |
| Family Or Business Rln | false | FamilyOrBusinessRlnInd |
| Delegation Of Mgmt Duties | false | DelegationOfMgmtDutiesInd |
| Change To Org Documents | false | ChangeToOrgDocumentsInd |
| Material Diversion Or Misuse | false | MaterialDiversionOrMisuseInd |
| Members Or Stockholders | Yes (true) | MembersOrStockholdersInd |
| Election Of Board Members | Yes (true) | ElectionOfBoardMembersInd |
| Decisions Subject To Approva | Yes (true) | DecisionsSubjectToApprovaInd |
| Minutes Of Governing Body | Yes (true) | MinutesOfGoverningBodyInd |
| Minutes Of Committees | Yes (true) | MinutesOfCommitteesInd |
| Officer Mailing Address | false | OfficerMailingAddressInd |
| Local Chapters | false | LocalChaptersInd |
| Policies Reference Chapters | false | PoliciesReferenceChaptersInd |
| Form990 Provided To Gvrn Body | Yes (true) | Form990ProvidedToGvrnBodyInd |
| Conflict Of Interest Policy | Yes (true) | ConflictOfInterestPolicyInd |
| Annual Disclosure Covered Prsn | Yes (true) | AnnualDisclosureCoveredPrsnInd |
| Regular Monitoring Enfrc | Yes (true) | RegularMonitoringEnfrcInd |
| Whistleblower Policy | Yes (true) | WhistleblowerPolicyInd |
| Document Retention Policy | Yes (true) | DocumentRetentionPolicyInd |
| Compensation Process CEO | Yes (true) | CompensationProcessCEOInd |
| Compensation Process Other | false | CompensationProcessOtherInd |
| Investment In Joint Venture | false | InvestmentInJointVentureInd |
| States Where Copy Of Return Is Fld | NY | StatesWhereCopyOfReturnIsFldCd |
| Own Website | Yes (X) | OwnWebsiteInd |
| Other Website | Yes (X) | OtherWebsiteInd |
| Upon Request | Yes (X) | UponRequestInd |
Books In Care Of Detail BooksInCareOfDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Person | CORY A MACDONALD | PersonNm |
| Phone | 4135235393 | PhoneNum |
US Address USAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | 23 EAST BRUNDRETH | AddressLine1Txt |
| City | SPRINGFIELD | CityNm |
| State Abbreviation | MA | StateAbbreviationCd |
| ZIP | 01109 | ZIPCd |
Form990 Part VII Section A Form990PartVIISectionAGrp (19 entries)
| TitleTitleTxt | Average Hours Per WeekAverageHoursPerWeekRt | OfficerOfficerInd | Key EmployeeKeyEmployeeInd | Reportable Comp From OrgReportableCompFromOrgAmt | Reportable Comp From Rltd OrgReportableCompFromRltdOrgAmt | Other CompensationOtherCompensationAmt | Individual Trustee Or DirectorIndividualTrusteeOrDirectorInd |
|---|---|---|---|---|---|---|---|
| KATHI WAGNER | |||||||
| EXECUTIVE DIRECTOR | 040.00 | Yes (X) | Yes (X) | $93,474 | $0 | $0 | |
| MICHAEL LAENGSFELD | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| JASON MCKINNEY | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| JOHN OSTER | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| TRACEY PRETORIUS | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| DR JOHN ROSS RIZZO | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| CRAIG ROWLEY | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| JONATHAN SALOIS | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| ROBERT HILLIER | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| DR STEPHANIE VETERE SIMS | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| BRIAN COUNTER | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| AURELIE HARP | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| YAMIL ROSETE RODRIGUEZ | |||||||
| DIRECTOR | 001.00 | $0 | $0 | $0 | Yes (X) | ||
| NEAL BENCH | |||||||
| PRESIDENT | 001.00 | Yes (X) | $0 | $0 | $0 | ||
| JOHN TROTT | |||||||
| 1ST VICE PRESIDENT | 001.00 | Yes (X) | $0 | $0 | $0 | ||
| MICHAEL MULLEN | |||||||
| 2ND VICE PRESIDENT | 001.00 | Yes (X) | $0 | $0 | $0 | ||
| TARA CASSIDY-DRISCOLL | |||||||
| TREASURER | 001.00 | Yes (X) | $0 | $0 | $0 | ||
| BRIAN MAYER | |||||||
| SECRETARY | 001.00 | Yes (X) | $0 | $0 | $0 | ||
| KAYLA SCHILLER | |||||||
| TREASURER | 001.00 | Yes (X) | $0 | $0 | $0 | ||
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Reportable Comp From Org | $93,474 | TotalReportableCompFromOrgAmt |
| Former Ofcr Employees Listed | false | FormerOfcrEmployeesListedInd |
| Total Comp Greater Than150 K | false | TotalCompGreaterThan150KInd |
| Compensation From Other Srcs | false | CompensationFromOtherSrcsInd |
| All Other Contributions | $536,725 | AllOtherContributionsAmt |
| Total Contributions | $536,725 | TotalContributionsAmt |
Investment Income InvestmentIncomeGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $24,167 | TotalRevenueColumnAmt |
Total Revenue TotalRevenueGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Revenue Column | $560,892 | TotalRevenueColumnAmt |
Grants To Domestic Orgs GrantsToDomesticOrgsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $359,320 | TotalAmt |
| Program Services | $359,320 | ProgramServicesAmt |
Grants To Domestic Individuals GrantsToDomesticIndividualsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Foreign Grants ForeignGrantsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Benefits To Members BenefitsToMembersGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $93,474 | TotalAmt |
| Program Services | $56,393 | ProgramServicesAmt |
| Management And General | $19,134 | ManagementAndGeneralAmt |
| Fundraising | $17,947 | FundraisingAmt |
Comp Disqual Persons CompDisqualPersonsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Salaries And Wages OtherSalariesAndWagesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $75,786 | TotalAmt |
| Program Services | $45,729 | ProgramServicesAmt |
| Management And General | $15,508 | ManagementAndGeneralAmt |
| Fundraising | $14,549 | FundraisingAmt |
Pension Plan Contributions PensionPlanContributionsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Employee Benefits OtherEmployeeBenefitsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payroll Taxes PayrollTaxesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $14,949 | TotalAmt |
| Program Services | $9,020 | ProgramServicesAmt |
| Management And General | $3,059 | ManagementAndGeneralAmt |
| Fundraising | $2,870 | FundraisingAmt |
Fees For Services Management FeesForServicesManagementGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Legal FeesForServicesLegalGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $125 | TotalAmt |
| Management And General | $125 | ManagementAndGeneralAmt |
Fees For Services Accounting FeesForServicesAccountingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $8,524 | TotalAmt |
| Management And General | $8,524 | ManagementAndGeneralAmt |
Fees For Services Lobbying FeesForServicesLobbyingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Fees For Services Prof Fundraising | FeesForServicesProfFundraising |
Fees For Srvc Invst Mgmnt Fees FeesForSrvcInvstMgmntFeesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Fees For Services Other FeesForServicesOtherGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $77 | TotalAmt |
| Program Services | $17 | ProgramServicesAmt |
| Fundraising | $60 | FundraisingAmt |
Advertising AdvertisingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Office Expenses OfficeExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $15,516 | TotalAmt |
| Program Services | $2,426 | ProgramServicesAmt |
| Management And General | $2,705 | ManagementAndGeneralAmt |
| Fundraising | $10,385 | FundraisingAmt |
Information Technology InformationTechnologyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $16,156 | TotalAmt |
| Program Services | $6,947 | ProgramServicesAmt |
| Management And General | $4,663 | ManagementAndGeneralAmt |
| Fundraising | $4,546 | FundraisingAmt |
Royalties RoyaltiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Occupancy OccupancyGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Travel TravelGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Pymt Travel Entrtnmnt Pub Ofcl PymtTravelEntrtnmntPubOfclGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Conferences Meetings ConferencesMeetingsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $105,730 | TotalAmt |
| Program Services | $105,730 | ProgramServicesAmt |
Interest InterestGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Payments To Affiliates PaymentsToAffiliatesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Depreciation Depletion DepreciationDepletionGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $5,613 | TotalAmt |
| Program Services | $3,387 | ProgramServicesAmt |
| Management And General | $1,148 | ManagementAndGeneralAmt |
| Fundraising | $1,078 | FundraisingAmt |
Insurance InsuranceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $2,681 | TotalAmt |
| Program Services | $1,617 | ProgramServicesAmt |
| Management And General | $549 | ManagementAndGeneralAmt |
| Fundraising | $515 | FundraisingAmt |
Other Expenses OtherExpensesGrp (4 entries)
| DescDesc | TotalTotalAmt | Program ServicesProgramServicesAmt | FundraisingFundraisingAmt | Management And GeneralManagementAndGeneralAmt |
|---|---|---|---|---|
| Special Events | $6,574 | $2,110 | $4,464 | |
| Fundraising Expense | $20,985 | $20,985 | ||
| Bank Fees | $12,047 | $11,752 | $295 | |
| Memberships | $3,928 | $3,928 |
All Other Expenses AllOtherExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $4,015 | TotalAmt |
| Program Services | $1,371 | ProgramServicesAmt |
| Management And General | $806 | ManagementAndGeneralAmt |
| Fundraising | $1,838 | FundraisingAmt |
Total Functional Expenses TotalFunctionalExpensesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $745,500 | TotalAmt |
| Program Services | $597,995 | ProgramServicesAmt |
| Management And General | $56,516 | ManagementAndGeneralAmt |
| Fundraising | $90,989 | FundraisingAmt |
Cash Non Interest Bearing CashNonInterestBearingGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $158,944 | BOYAmt |
| EOY | $82,361 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Land Bldg Equip Cost Or Other Bss | $2,195 | LandBldgEquipCostOrOtherBssAmt |
| Land Bldg Equip Accum Deprec | $2,195 | LandBldgEquipAccumDeprecAmt |
Investments Program Related InvestmentsProgramRelatedGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $821,349 | BOYAmt |
| EOY | $718,878 | EOYAmt |
Intangible Assets IntangibleAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $5,613 | BOYAmt |
Total Assets TotalAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $985,906 | BOYAmt |
| EOY | $801,239 | EOYAmt |
Total Liabilities TotalLiabilitiesGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $0 | BOYAmt |
| EOY | $0 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Organization Follows FASB117 | Yes (X) | OrganizationFollowsFASB117Ind |
No Donor Restriction Net Assets NoDonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $658,464 | BOYAmt |
| EOY | $440,101 | EOYAmt |
Donor Restriction Net Assets DonorRestrictionNetAssetsGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $327,442 | BOYAmt |
| EOY | $361,138 | EOYAmt |
Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $985,906 | BOYAmt |
| EOY | $801,239 | EOYAmt |
Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| BOY | $985,906 | BOYAmt |
| EOY | $801,239 | EOYAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Reconcilation Revenue Expnss | -$184,608 | ReconcilationRevenueExpnssAmt |
| Net Unrlzd Gains Losses Invst | -$59 | NetUnrlzdGainsLossesInvstAmt |
| Info In Schedule O Part XII | Yes (X) | InfoInScheduleOPartXIIInd |
| Method Of Accounting Cash | Yes (X) | MethodOfAccountingCashInd |
| Accountant Compile Or Review | false | AccountantCompileOrReviewInd |
| FS Audited | Yes (true) | FSAuditedInd |
FS Audited Basis FSAuditedBasisGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Separate Basis Fincl Stmt | Yes (X) | SeparateBasisFinclStmtInd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Audit Committee | Yes (true) | AuditCommitteeInd |
| Federal Grant Audit Required | false | FederalGrantAuditRequiredInd |
Schedule A IRS990ScheduleA
| Field | Value | IRS element (for citing) |
|---|---|---|
| Publicly Supported Org509a2 | Yes (X) | PubliclySupportedOrg509a2Ind |
Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $409,797 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $538,010 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $671,033 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $652,492 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $536,725 | CurrentTaxYearAmt |
| Total | $2,808,057 | TotalAmt |
Total509 Total509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $409,797 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $538,010 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $671,033 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $652,492 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $536,725 | CurrentTaxYearAmt |
| Total | $2,808,057 | TotalAmt |
Substantial Contributors Amt SubstantialContributorsAmtGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $106,303 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $257,597 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $297,710 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $289,392 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $101,726 | CurrentTaxYearAmt |
| Total | $1,052,728 | TotalAmt |
Subst And Dsqlfy Prsns Tot SubstAndDsqlfyPrsnsTotGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $106,303 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $257,597 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $297,710 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $289,392 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $101,726 | CurrentTaxYearAmt |
| Total | $1,052,728 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support Total509 | $1,755,329 | PublicSupportTotal509Amt |
Gross Investment Income509 GrossInvestmentIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $364 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,828 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $355 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $11,682 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $24,167 | CurrentTaxYearAmt |
| Total | $46,396 | TotalAmt |
Post1975 UBTI Post1975UBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Investment Income And UBTI InvestmentIncomeAndUBTIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $364 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $9,828 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $355 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $11,682 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $24,167 | CurrentTaxYearAmt |
| Total | $46,396 | TotalAmt |
Net Income From Other UBI NetIncomeFromOtherUBIGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Other Income509 OtherIncome509Grp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total | $0 | TotalAmt |
Total Support Calendar Year TotalSupportCalendarYearGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Current Tax Year Minus4 Years | $410,161 | CurrentTaxYearMinus4YearsAmt |
| Current Tax Year Minus3 Years | $547,838 | CurrentTaxYearMinus3YearsAmt |
| Current Tax Year Minus2 Years | $671,388 | CurrentTaxYearMinus2YearsAmt |
| Current Tax Year Minus1 Year | $664,174 | CurrentTaxYearMinus1YearAmt |
| Current Tax Year | $560,892 | CurrentTaxYearAmt |
| Total | $2,854,453 | TotalAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Public Support CY509 | 0.61490 | PublicSupportCY509Pct |
| Public Support PY509 | 0.59970 | PublicSupportPY509Pct |
| Investment Income CY | 0.01630 | InvestmentIncomeCYPct |
| Investment Income PY | 0.00800 | InvestmentIncomePYPct |
| Thirty Thr Pct Suprt Tests CY509 | Yes (X) | ThirtyThrPctSuprtTestsCY509Ind |
Schedule B IRS990ScheduleB
Contributor Information ContributorInformationGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributor | RESTRICTED | ContributorNum |
Contributor Business Name ContributorBusinessName
| Field | Value | IRS element (for citing) |
|---|---|---|
| Business Name Line1 | RESTRICTED | BusinessNameLine1 |
Contributor US Address ContributorUSAddress
| Field | Value | IRS element (for citing) |
|---|---|---|
| Address Line1 | RESTRICTED | AddressLine1 |
| Address Line2 | RESTRICTED | AddressLine2 |
| City | RESTRICTED | City |
| State | RESTRICTED | State |
| ZIP Code | RESTRICTED | ZIPCode |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Contributions | RESTRICTED | TotalContributionsAmt |
Schedule D IRS990ScheduleD
| Field | Value | IRS element (for citing) |
|---|---|---|
| Incl Escrow Custodial Acct Liab | false | InclEscrowCustodialAcctLiabInd |
CY Endwmt Fund CYEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $290,342 | BeginningYearBalanceAmt |
| Contributions | $31,700 | ContributionsAmt |
| End Year Balance | $322,042 | EndYearBalanceAmt |
CY Minus1 Yr Endwmt Fund CYMinus1YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Beginning Year Balance | $250,300 | BeginningYearBalanceAmt |
| Contributions | $40,042 | ContributionsAmt |
| End Year Balance | $290,342 | EndYearBalanceAmt |
CY Minus2 Yr Endwmt Fund CYMinus2YrEndwmtFundGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Contributions | $250,300 | ContributionsAmt |
| End Year Balance | $250,300 | EndYearBalanceAmt |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Prmnnt Endowment Balance EOY | 1.00000 | PrmnntEndowmentBalanceEOYPct |
| Endowments Held Unrelated Org | false | EndowmentsHeldUnrelatedOrgInd |
| Endowments Held Related Org | false | EndowmentsHeldRelatedOrgInd |
Equipment EquipmentGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Other Cost Or Other Basis | $2,195 | OtherCostOrOtherBasisAmt |
| Depreciation | $2,195 | DepreciationAmt |
Other Securities OtherSecuritiesGrp (2 entries)
| DescDesc |
|---|
| Financial derivatives and other financial products |
| Closely-held equity interests |
Invst Program Related Org InvstProgramRelatedOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Investments | Desc |
| Book Value | $718,878 | BookValueAmt |
| Method Valuation | F | MethodValuationCd |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Book Value Program Rltd | $718,878 | TotalBookValueProgramRltdAmt |
Other Liabilities Org OtherLiabilitiesOrgGrp
| Field | Value | IRS element (for citing) |
|---|---|---|
| Desc | Federal income taxes | Desc |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Rev Etc Audited Fincl Stmt | $560,833 | TotalRevEtcAuditedFinclStmtAmt |
| Net Unrealized Gains Invst | -$59 | NetUnrealizedGainsInvstAmt |
| Revenue Not Reported | -$59 | RevenueNotReportedAmt |
| Revenue Subtotal | $560,892 | RevenueSubtotalAmt |
| Total Revenue Per Form990 | $560,892 | TotalRevenuePerForm990Amt |
| Tot Expns Etc Audited Fincl Stmt | $745,500 | TotExpnsEtcAuditedFinclStmtAmt |
| Expenses Subtotal | $745,500 | ExpensesSubtotalAmt |
| Total Expenses Per Form990 | $745,500 | TotalExpensesPerForm990Amt |
Supplemental Information Detail SupplementalInformationDetail
| Field | Value | IRS element (for citing) |
|---|---|---|
| Form And Line Reference | V 4 | FormAndLineReferenceDesc |
| Explanation | The Organizations investments consist of a donor restricted endowment fund and funds functioning as quasi-endowment funds. Donor restricted endowments consist of gifts received with a donor stipulation that require the funds to be invested in perpetuity. Quasi-endowment funds consist of Board designated funds. Board designated funds consist of monies internally designated. | ExplanationTxt |
Schedule F IRS990ScheduleF
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Grants To Org Outside US GrantsToOrgOutsideUSGrp (7 entries)
| RegionRegionTxt | Purpose Of GrantPurposeOfGrantTxt | Cash GrantCashGrantAmt | Manner Of Cash DisbursementMannerOfCashDisbursementTxt |
|---|---|---|---|
| Europe Including Iceland and Greenland | FOR CHOROIDEREMIA RESEARCH | $7,391 | WIRE TRANSFER |
| Europe Including Iceland and Greenland | FOR CHOROIDEREMIA RESEARCH | $55,160 | WIRE TRANSFER |
| North America | FOR CHOROIDEREMIA RESEARCH | $2,000 | WIRE TRANSFER |
| North America | FOR CHOROIDEREMIA RESEARCH | $31,558 | WIRE TRANSFER |
| Europe Including Iceland and Greenland | FOR CHOROIDEREMIA RESEARCH | $38,375 | WIRE TRANSFER |
| Europe Including Iceland and Greenland | FOR CHOROIDEREMIA RESEARCH | $61,660 | WIRE TRANSFER |
| Middle East and North Africa | FOR CHOROIDEREMIA RESEARCH | $75,785 | WIRE TRANSFER |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 7 | TotalOtherOrgCnt |
| Transfer To Foreign Corp | false | TransferToForeignCorpInd |
| Interest In Foreign Trust | false | InterestInForeignTrustInd |
| Foreign Corp Ownership | false | ForeignCorpOwnershipInd |
| Passive Foreign Investmest Co | false | PassiveForeignInvestmestCoInd |
| Foreign Partnership | false | ForeignPartnershipInd |
| Boycott Countries | false | BoycottCountriesInd |
Schedule I IRS990ScheduleI
| Field | Value | IRS element (for citing) |
|---|---|---|
| Grant Records Maintained | Yes (true) | GrantRecordsMaintainedInd |
Recipient Table RecipientTable (3 entries)
| Cash GrantCashGrantAmt |
|---|
| RENOVATE BIOSCIENCES INC |
| $50,000 |
| UNIVERSITY OF ROCHESTER |
| $7,391 |
| UNIVERSITY OF PHILADELPHIA |
| $30,000 |
| Field | Value | IRS element (for citing) |
|---|---|---|
| Total Other Org | 3 | TotalOtherOrgCnt |
Schedule O IRS990ScheduleO
Supplemental Information Detail SupplementalInformationDetail (7 entries)
| Form And Line ReferenceFormAndLineReferenceDesc | ExplanationExplanationTxt |
|---|---|
| Form 990, Part VI, Section B, Line 11 | THE BOARD MEMBERS ARE PROVIDED WITH A COPY OF THE 990 FOR REVIEW BEFORE APPROVAL |
| Form 990, Part XII, Line 2C | COORDINATION OF THE AUDIT IS BY THE DIRECTOR, EXECUTIVE DIRECTOR, AND TREASURER, THE FINANCE COMMITTEE AND THE BOARD OF DIRECTORS ARE ACTIVELY INVOLVED AS WELL |
| Form 990, Part IV, Section B, Line C | THE BOARD OF DIRECTORS REGULARLY REVIEWS THE POLICY AND ANY POSSIBLE CONFLICTS OF INTEREST. |
| Form 990, Part VI, Section B, Line 15A | THE BOARD OF DIRECTORS APPROVES COMPENSATION FOR THE EXECUTIVE DIRECTOR. |
| Form 990, Part VI, Section C, Line 19 | GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICIES, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST BY WRITING KATHI WAGNER, EXECUTIVE DIRECTOR AT KATHIWAGNERCURECHM.ORG OR BY PHONE AT 800-210-0233. |
| Form 990, Part I, Line 5 | OF THE 7 LISTED INDIVIDUALS EMPLOYED BY THE ORGANIZATION, 6 ARE PART TIME AND 1 IS FULL TIME. |
| Form 990, Part IV, Line 15 | SCHEDULE F PART II GRANTS TO ORGANIZATIONS OUTSIDE THE UNITED STATES 1 FUNDACAO CHAMPALIMAUD - 7,391, 2 UNIVERSITY OF MELBOURNE - 55,160, 3 INSTITUTE OF NEUROSCIENCE OF MONTPELLIER - 2,000, 4 GOVERNORS OF UNIVERSITY OF ALBERTA - 31,558, 5 ANGILA RUSKIN UNIVERSITY - 38,375, 6 AGENCE COMPTABLE UNIVERSITE - 61,660, 7 HADASSAH-HEBREW UNIVERSITY MEDICAL CENTER - 75,785. |
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