SICKLE CELL 101: Form 990, tax year 2025

View the entire original 990 at ProPublica ↗

Organization
SICKLE CELL 101 (EIN 46-4141467)
Tax period
2025-01-01 to 2025-11-30
Filed
2026-06-08
IRS object ID
202611599349300101
Schema version
2025v4.1
Source
Download XML · Original 990 at ProPublica

Every field in the e-filed return. Faint text is the IRS element name, for citing.

Return header ReturnHeader

FieldValueIRS element (for citing)
Return2026-06-08T03:19:07-05:00ReturnTs
Tax Period End2025-11-30TaxPeriodEndDt

Preparer Firm PreparerFirmGrp

FieldValueIRS element (for citing)
Preparer Firm EIN454009245PreparerFirmEIN

Preparer Firm Name PreparerFirmName

FieldValueIRS element (for citing)
Business Name Line1FREMPONG CPABusinessNameLine1Txt

Preparer US Address PreparerUSAddress

FieldValueIRS element (for citing)
Address Line1P O BOX 801AddressLine1Txt
CityDULUTHCityNm
State AbbreviationGAStateAbbreviationCd
ZIP30096ZIPCd
FieldValueIRS element (for citing)
Return Type990ReturnTypeCd
Tax Period Begin2025-01-01TaxPeriodBeginDt

Filer Filer

FieldValueIRS element (for citing)
EIN464141467EIN

Business Name BusinessName

FieldValueIRS element (for citing)
Business Name Line1SICKLE CELL 101BusinessNameLine1Txt
FieldValueIRS element (for citing)
Business Name ControlSICKBusinessNameControlTxt
Phone4158817101PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1760 NEWHALL DRIVE SUITE 1085AddressLine1Txt
CitySAN JOSECityNm
State AbbreviationCAStateAbbreviationCd
ZIP95110ZIPCd

Business Officer BusinessOfficerGrp

FieldValueIRS element (for citing)
PersonCASSANDRA TRIMNELL-EHRLICHPersonNm
Person TitleEXECUTIVE DIRECTORPersonTitleTxt
Phone4158817101PhoneNum
Signature2026-05-15SignatureDt
Discuss With Paid PreparerYes (true)DiscussWithPaidPreparerInd

Preparer Person PreparerPersonGrp

FieldValueIRS element (for citing)
Preparer PersonERIC NTI FREMPONGPreparerPersonNm
PTINP01530429PTIN
Phone6782300677PhoneNum
Preparation2026-06-07PreparationDt
Self EmployedYes (X)SelfEmployedInd
FieldValueIRS element (for citing)
Tax2025TaxYr
Build TS2025-03-06 01:10:19ZBuildTS

Form 990 IRS990

FieldValueIRS element (for citing)
Principal OfficerCASSANDRA TRIMNELL EHRLICHPrincipalOfficerNm

US Address USAddress

FieldValueIRS element (for citing)
Address Line1760 NEWHALL DRIVE SUITE 1085AddressLine1Txt
CitySAN JOSECityNm
State AbbreviationCAStateAbbreviationCd
ZIP95110ZIPCd
FieldValueIRS element (for citing)
Gross Receipts$376,327GrossReceiptsAmt
Group Return For AffiliatesfalseGroupReturnForAffiliatesInd
Organization501c3Yes (X)Organization501c3Ind
Website AddressWWW.SC101.ORGWebsiteAddressTxt
Type Of Organization CorpYes (X)TypeOfOrganizationCorpInd
Formation2013FormationYr
Legal Domicile StateCALegalDomicileStateCd
Activity Or MissionTO EDUCATE,ENGAGE, EMPOWER THE GLOBAL SICKLE CELLActivityOrMissionDesc
Voting Members Governing Body5VotingMembersGoverningBodyCnt
Voting Members Independent3VotingMembersIndependentCnt
Total Employee1TotalEmployeeCnt
Total Gross UBI$0TotalGrossUBIAmt
PY Contributions Grants$178,037PYContributionsGrantsAmt
CY Contributions Grants$371,077CYContributionsGrantsAmt
CY Program Service Revenue$0CYProgramServiceRevenueAmt
CY Investment Income$0CYInvestmentIncomeAmt
CY Other Revenue$5,250CYOtherRevenueAmt
PY Total Revenue$178,037PYTotalRevenueAmt
CY Total Revenue$376,327CYTotalRevenueAmt
PY Grants And Similar Paid$90,707PYGrantsAndSimilarPaidAmt
CY Grants And Similar Paid$1,280CYGrantsAndSimilarPaidAmt
CY Benefits Paid To Members$0CYBenefitsPaidToMembersAmt
PY Salaries Comp Emp Bnft Paid$168,251PYSalariesCompEmpBnftPaidAmt
CY Salaries Comp Emp Bnft Paid$103,413CYSalariesCompEmpBnftPaidAmt
PY Total Prof Fndrsng Expns$59,383PYTotalProfFndrsngExpnsAmt
CY Total Prof Fndrsng Expns$0CYTotalProfFndrsngExpnsAmt
CY Total Fundraising Expense$800CYTotalFundraisingExpenseAmt
PY Other Expenses$31,623PYOtherExpensesAmt
CY Other Expenses$134,888CYOtherExpensesAmt
PY Total Expenses$349,964PYTotalExpensesAmt
CY Total Expenses$239,581CYTotalExpensesAmt
PY Revenues Less Expenses-$171,927PYRevenuesLessExpensesAmt
CY Revenues Less Expenses$136,746CYRevenuesLessExpensesAmt
Total Assets EOY$136,746TotalAssetsEOYAmt
Total Liabilities EOY$0TotalLiabilitiesEOYAmt
Net Assets Or Fund Balances EOY$136,746NetAssetsOrFundBalancesEOYAmt
Info In Schedule O Part IIIYes (X)InfoInScheduleOPartIIIInd
MissionTo educate, empower and connect the global sickle cell community through targeted digital engagement and data-driven initiativesMissionDesc
Significant New Program SrvcfalseSignificantNewProgramSrvcInd
Significant ChangefalseSignificantChangeInd
Expense$93,582ExpenseAmt
DescEducation and Empowerment (1) Community educational initiativesDesc

Prog Srvc Accom Acty2 ProgSrvcAccomActy2Grp

FieldValueIRS element (for citing)
Expense$70,759ExpenseAmt
DescData Insights and Scientific Collaborations (1) Clinical trials and survey study awareness (2) Collect and report sickle cell community insightsDesc

Prog Srvc Accom Acty3 ProgSrvcAccomActy3Grp

FieldValueIRS element (for citing)
Expense$70,759ExpenseAmt
DescGlobal Collaborative (1) In-person attendance for congress, symposium etc. (2) Multi-stakeholder virtual collaborations and supportDesc
FieldValueIRS element (for citing)
Total Other Prog Srvc Expense$4,481TotalOtherProgSrvcExpenseAmt
Total Program Service Expenses$239,581TotalProgramServiceExpensesAmt
Described In Section501c3Yes (true)DescribedInSection501c3Ind
Schedule B RequiredYes (true)ScheduleBRequiredInd
Political Campaign ActyfalsePoliticalCampaignActyInd
Lobbying ActivitiesfalseLobbyingActivitiesInd
Subject To Proxy TaxfalseSubjectToProxyTaxInd
Donor Advised FundfalseDonorAdvisedFundInd
Conservation EasementsfalseConservationEasementsInd
Collections Of ArtfalseCollectionsOfArtInd
Credit CounselingfalseCreditCounselingInd
Donor Rstr Or Quasi EndowmentsfalseDonorRstrOrQuasiEndowmentsInd
Report Land Building EquipmentfalseReportLandBuildingEquipmentInd
Report Investments Other SecfalseReportInvestmentsOtherSecInd
Report Program Related InvstfalseReportProgramRelatedInvstInd
Report Other AssetsfalseReportOtherAssetsInd
Report Other LiabilitiesfalseReportOtherLiabilitiesInd
Include FIN48 FootnotefalseIncludeFIN48FootnoteInd
Independent Audit Fincl StmtfalseIndependentAuditFinclStmtInd
Consolidated Audit Fincl StmtfalseConsolidatedAuditFinclStmtInd
School OperatingfalseSchoolOperatingInd
Foreign OfficefalseForeignOfficeInd
Foreign ActivitiesfalseForeignActivitiesInd
More Than5000 K To OrgfalseMoreThan5000KToOrgInd
More Than5000 K To IndividualsfalseMoreThan5000KToIndividualsInd
Professional FundraisingfalseProfessionalFundraisingInd
Fundraising ActivitiesfalseFundraisingActivitiesInd
Gaming ActivitiesfalseGamingActivitiesInd
Operate HospitalfalseOperateHospitalInd
Grants To OrganizationsfalseGrantsToOrganizationsInd
Grants To IndividualsfalseGrantsToIndividualsInd
Schedule J RequiredfalseScheduleJRequiredInd
Tax Exempt BondsfalseTaxExemptBondsInd
Engaged In Excess Benefit TransfalseEngagedInExcessBenefitTransInd
PY Excess Benefit TransfalsePYExcessBenefitTransInd
Loan OutstandingfalseLoanOutstandingInd
Grant To Related PersonfalseGrantToRelatedPersonInd
Business Rln With Org MemfalseBusinessRlnWithOrgMemInd
Business Rln With Fam MemfalseBusinessRlnWithFamMemInd
Business Rln With35 Ctrl EntfalseBusinessRlnWith35CtrlEntInd
Deductible Non Cash ContrifalseDeductibleNonCashContriInd
Deductible Art ContributionfalseDeductibleArtContributionInd
Terminate OperationsfalseTerminateOperationsInd
Partial LiquidationfalsePartialLiquidationInd
Disregarded EntityfalseDisregardedEntityInd
Related EntityfalseRelatedEntityInd
Related Organization Ctrl EntfalseRelatedOrganizationCtrlEntInd
Trnsfr Exmpt Non Chrtbl Rltd OrgfalseTrnsfrExmptNonChrtblRltdOrgInd
Activities Conducted PrtshpfalseActivitiesConductedPrtshpInd
Schedule O RequiredfalseScheduleORequiredInd
IRP Document7IRPDocumentCnt
IRP Document W2 G1IRPDocumentW2GCnt
Employee1EmployeeCnt
Employment Tax Returns FiledYes (true)EmploymentTaxReturnsFiledInd
Unrelated Bus Incm Over LimitfalseUnrelatedBusIncmOverLimitInd
Foreign Financial AccountfalseForeignFinancialAccountInd
Prohibited Tax Shelter TransfalseProhibitedTaxShelterTransInd
Taxable Party NotificationfalseTaxablePartyNotificationInd
Nondeductible ContributionsfalseNondeductibleContributionsInd
DAF Excess Business HoldingsfalseDAFExcessBusinessHoldingsInd
Org Filed In Lieu Of Form1041falseOrgFiledInLieuOfForm1041Ind
Licensed More Than One StatefalseLicensedMoreThanOneStateInd
Indoor Tanning ServicesfalseIndoorTanningServicesInd
Subj To Tax Rmnrtn Ex Prcht PymtfalseSubjToTaxRmnrtnExPrchtPymtInd
Subject To Excs Tax Net Invst IncfalseSubjectToExcsTaxNetInvstIncInd
Info In Schedule O Part VIYes (X)InfoInScheduleOPartVIInd
Governing Body Voting Members5GoverningBodyVotingMembersCnt
Independent Voting Member3IndependentVotingMemberCnt
Family Or Business RlnYes (true)FamilyOrBusinessRlnInd
Delegation Of Mgmt DutiesfalseDelegationOfMgmtDutiesInd
Change To Org DocumentsfalseChangeToOrgDocumentsInd
Material Diversion Or MisusefalseMaterialDiversionOrMisuseInd
Members Or StockholdersfalseMembersOrStockholdersInd
Election Of Board MembersfalseElectionOfBoardMembersInd
Decisions Subject To ApprovaYes (true)DecisionsSubjectToApprovaInd
Minutes Of Governing BodyYes (true)MinutesOfGoverningBodyInd
Minutes Of CommitteesYes (true)MinutesOfCommitteesInd
Officer Mailing AddressfalseOfficerMailingAddressInd
Local ChaptersfalseLocalChaptersInd
Form990 Provided To Gvrn BodyYes (true)Form990ProvidedToGvrnBodyInd
Conflict Of Interest PolicyYes (true)ConflictOfInterestPolicyInd
Annual Disclosure Covered PrsnYes (true)AnnualDisclosureCoveredPrsnInd
Regular Monitoring EnfrcYes (true)RegularMonitoringEnfrcInd
Whistleblower PolicyfalseWhistleblowerPolicyInd
Document Retention PolicyYes (true)DocumentRetentionPolicyInd
Compensation Process CEOfalseCompensationProcessCEOInd
Compensation Process OtherfalseCompensationProcessOtherInd
Investment In Joint VenturefalseInvestmentInJointVentureInd
States Where Copy Of Return Is FldCAStatesWhereCopyOfReturnIsFldCd
Other WebsiteYes (X)OtherWebsiteInd
Upon RequestYes (X)UponRequestInd
OtherYes (X)OtherInd

Books In Care Of Detail BooksInCareOfDetail

FieldValueIRS element (for citing)
PersonCASSANDRA TRIMNELL EHRLICHPersonNm
Phone9259973101PhoneNum

US Address USAddress

FieldValueIRS element (for citing)
Address Line1760 NEWHALL DRIVE SUITE 1085AddressLine1Txt
CitySAN JOSECityNm
State AbbreviationCAStateAbbreviationCd
ZIP95110ZIPCd

Form990 Part VII Section A Form990PartVIISectionAGrp (5 entries)

TitleTitleTxtAverage Hours Per WeekAverageHoursPerWeekRtIndividual Trustee Or DirectorIndividualTrusteeOrDirectorIndOfficerOfficerIndKey EmployeeKeyEmployeeIndReportable Comp From OrgReportableCompFromOrgAmtReportable Comp From Rltd OrgReportableCompFromRltdOrgAmtOther CompensationOtherCompensationAmt
CASSANDRA TRIMNELL EHRLICH
EXECUTIVE DIRECTOR40Yes (X)Yes (X)Yes (X)$44,535$0$0
ANGELA EHRLICH
BOARD CHAIR5Yes (X)Yes (X)$0$0$0
MARKUS KOTHNER
SECRETARY10Yes (X)Yes (X)Yes (X)$0$0$0
STEPHEN AGYENIM-BOATENG
KEY EMPLOYEE20Yes (X)Yes (X)$1,925$0$0
KEITH QUIROLO
KEY EMPLOYEE20$5,950$0$0
FieldValueIRS element (for citing)
Total Reportable Comp From Org$52,410TotalReportableCompFromOrgAmt
Former Ofcr Employees ListedfalseFormerOfcrEmployeesListedInd
Total Comp Greater Than150 KfalseTotalCompGreaterThan150KInd
Compensation From Other SrcsfalseCompensationFromOtherSrcsInd

Contractor Compensation ContractorCompensationGrp (2 entries)

Address Line1ContractorAddress/USAddress/AddressLine1TxtCityContractorAddress/USAddress/CityNmState AbbreviationContractorAddress/USAddress/StateAbbreviationCdZIPContractorAddress/USAddress/ZIPCdServicesServicesDescCompensationCompensationAmt
CONECTA LLC
444 NORTH CAPITAL ST NW STE 612WASHINGTONDC20001CONSULTING$80,500
UPWORK
475 BRANNAN ST SUITE 430SAN FRANCISCOCA94107CONSULTING$10,145
FieldValueIRS element (for citing)
All Other Contributions$371,077AllOtherContributionsAmt
Total Contributions$371,077TotalContributionsAmt
Fundraising Gross Income$5,250FundraisingGrossIncomeAmt

Net Incm From Fundraising Evt NetIncmFromFundraisingEvtGrp

FieldValueIRS element (for citing)
Total Revenue Column$5,250TotalRevenueColumnAmt

Total Revenue TotalRevenueGrp

FieldValueIRS element (for citing)
Total Revenue Column$376,327TotalRevenueColumnAmt
FieldValueIRS element (for citing)
Info In Schedule O Part IXYes (X)InfoInScheduleOPartIXInd

Grants To Domestic Individuals GrantsToDomesticIndividualsGrp

FieldValueIRS element (for citing)
Total$1,280TotalAmt
Program Services$1,280ProgramServicesAmt

Comp Current Ofcr Directors CompCurrentOfcrDirectorsGrp

FieldValueIRS element (for citing)
Total$52,410TotalAmt
Program Services$52,410ProgramServicesAmt

Other Salaries And Wages OtherSalariesAndWagesGrp

FieldValueIRS element (for citing)
Total$47,993TotalAmt
Program Services$47,993ProgramServicesAmt

Payroll Taxes PayrollTaxesGrp

FieldValueIRS element (for citing)
Total$3,010TotalAmt
Program Services$3,010ProgramServicesAmt

Fees For Services Accounting FeesForServicesAccountingGrp

FieldValueIRS element (for citing)
Total$800TotalAmt
Fundraising$800FundraisingAmt

Fees For Services Other FeesForServicesOtherGrp

FieldValueIRS element (for citing)
Total$90,646TotalAmt
Program Services$90,646ProgramServicesAmt

Office Expenses OfficeExpensesGrp

FieldValueIRS element (for citing)
Total$17,015TotalAmt
Management And General$17,015ManagementAndGeneralAmt

Information Technology InformationTechnologyGrp

FieldValueIRS element (for citing)
Total$4,884TotalAmt
Program Services$4,884ProgramServicesAmt

Occupancy OccupancyGrp

FieldValueIRS element (for citing)
Total$37TotalAmt
Program Services$37ProgramServicesAmt

Travel TravelGrp

FieldValueIRS element (for citing)
Total$21,506TotalAmt
Program Services$21,506ProgramServicesAmt

Total Functional Expenses TotalFunctionalExpensesGrp

FieldValueIRS element (for citing)
Total$239,581TotalAmt
Program Services$221,766ProgramServicesAmt
Management And General$17,015ManagementAndGeneralAmt
Fundraising$800FundraisingAmt

Cash Non Interest Bearing CashNonInterestBearingGrp

FieldValueIRS element (for citing)
EOY$136,746EOYAmt

Total Assets TotalAssetsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$136,746EOYAmt

Total Liabilities TotalLiabilitiesGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$0EOYAmt
FieldValueIRS element (for citing)
Org Does Not Follow FASB117Yes (X)OrgDoesNotFollowFASB117Ind

Rtn Earn Endowment Incm Oth Fnds RtnEarnEndowmentIncmOthFndsGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$136,746EOYAmt

Total Net Assets Fund Balance TotalNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$136,746EOYAmt

Tot Liab Net Assets Fund Balance TotLiabNetAssetsFundBalanceGrp

FieldValueIRS element (for citing)
BOY$0BOYAmt
EOY$136,746EOYAmt
FieldValueIRS element (for citing)
Reconcilation Revenue Expnss$136,746ReconcilationRevenueExpnssAmt
Method Of Accounting CashYes (X)MethodOfAccountingCashInd
Accountant Compile Or ReviewfalseAccountantCompileOrReviewInd
FS AuditedfalseFSAuditedInd
Federal Grant Audit RequiredfalseFederalGrantAuditRequiredInd

Schedule A IRS990ScheduleA

FieldValueIRS element (for citing)
Publicly Supported Org509a2Yes (X)PubliclySupportedOrg509a2Ind

Gifts Grants Contris Rcvd509 GiftsGrantsContrisRcvd509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$227,316CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$246,717CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$349,501CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$178,037CurrentTaxYearMinus1YearAmt
Current Tax Year$371,077CurrentTaxYearAmt
Total$1,372,648TotalAmt

Total509 Total509Grp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$227,316CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$246,717CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$349,501CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$178,037CurrentTaxYearMinus1YearAmt
Current Tax Year$371,077CurrentTaxYearAmt
Total$1,372,648TotalAmt
FieldValueIRS element (for citing)
Public Support Total509$1,372,648PublicSupportTotal509Amt

Total Support Calendar Year TotalSupportCalendarYearGrp

FieldValueIRS element (for citing)
Current Tax Year Minus4 Years$227,316CurrentTaxYearMinus4YearsAmt
Current Tax Year Minus3 Years$246,717CurrentTaxYearMinus3YearsAmt
Current Tax Year Minus2 Years$349,501CurrentTaxYearMinus2YearsAmt
Current Tax Year Minus1 Year$178,037CurrentTaxYearMinus1YearAmt
Current Tax Year$371,077CurrentTaxYearAmt
Total$1,372,648TotalAmt
FieldValueIRS element (for citing)
Public Support CY5091PublicSupportCY509Pct
Public Support PY5090PublicSupportPY509Pct
Investment Income CY0InvestmentIncomeCYPct
Investment Income PY0InvestmentIncomePYPct
Thirty Thr Pct Suprt Tests CY509Yes (X)ThirtyThrPctSuprtTestsCY509Ind

Schedule B IRS990ScheduleB

Contributor Information ContributorInformationGrp

FieldValueIRS element (for citing)
ContributorRESTRICTEDContributorNum

Contributor Business Name ContributorBusinessName

FieldValueIRS element (for citing)
Business Name Line1RESTRICTEDBusinessNameLine1

Contributor US Address ContributorUSAddress

FieldValueIRS element (for citing)
Address Line1RESTRICTEDAddressLine1
Address Line2RESTRICTEDAddressLine2
CityRESTRICTEDCity
StateRESTRICTEDState
ZIP CodeRESTRICTEDZIPCode
FieldValueIRS element (for citing)
Total ContributionsRESTRICTEDTotalContributionsAmt

Schedule J IRS990ScheduleJ

FieldValueIRS element (for citing)
Substantiation RequiredYes (true)SubstantiationRequiredInd
Severance PaymentfalseSeverancePaymentInd
Supplemental Nonqual Rtr PlanfalseSupplementalNonqualRtrPlanInd
Equity Based Comp ArrngmfalseEquityBasedCompArrngmInd
Comp Based On Revenue Of Flng OrgfalseCompBasedOnRevenueOfFlngOrgInd
Comp Bsd On Rev Related OrgsfalseCompBsdOnRevRelatedOrgsInd
Comp Bsd Net Earns Flng OrgfalseCompBsdNetEarnsFlngOrgInd
Comp Bsd Net Earns Rltd OrgsfalseCompBsdNetEarnsRltdOrgsInd
Any Non Fixed PaymentsfalseAnyNonFixedPaymentsInd
Initial Contract ExceptionfalseInitialContractExceptionInd

Schedule O IRS990ScheduleO

Supplemental Information Detail SupplementalInformationDetail (9 entries)

Form And Line ReferenceFormAndLineReferenceDescExplanationExplanationTxt
PART VI, SECTION A, LINE 2The Executive Dirctor and the Secretary are husband and wife.
PART VI, SECTION A, LINE 8aThe Secretary keeps notes of the meetings for reference open to all members of the board.
PART VI, SECTION A, LINE 8bThe Secretary and all members of the board have access to written minutes.
PART VI, SECTION C, LINE 18Available on the IRS website and upon request.
PART VI, SECTION C, LINE 19The documents are available on the IRS exempt organization s website and also available upoon request from the Executive Director, Secretary or any member of the board.
FORM 990 - SUPPLEMENTAL INFORMATIONAll other expenses include postage, registration fees, podcast, subscriptions,and other professional expenses.
FORM 990, PART III, LINE 4dOverhead expenses including taxes, bank fees, postage and subscriptions.
PART IX, LINE 11gProgram contractor fees paid to Conecta LLC and Upwork.
PART VI, SECTION B, LINE 11Each member has access to the information about the organization. In addition, the Form 990 is published on the IRS website.

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