2026-05-06T08:44:05-05:00 2025-12-31 431985162 SMITH SULLIVAN & BROWN PC 80 FLANDERS ROAD SUITE 302 WESTBOROUGH MA 01581 990 2025-01-01 043563445 JETT FOUNDATION INC JETT 7815855566 390 CIRCUIT STREET NORWELL MA 02061 ERIC SNYDER PRESIDENT & CEO 7815855566 2026-05-06 1 LINDA M SMITH CPA P00316105 5088717178 2026-04-28 2025 2025-03-06 01:10:19Z ERIC SNYDER 390 CIRCUIT STREET NORWELL MA 02061 9247657 0 X HTTP://JETTFOUNDATION.ORG X 2001 MA PROVIDES DIRECT SERVICE AND SUPPORT FOR FAMILIES AFFECTED BY DUCHENNE MUSCULAR DYSTROPHY. 10 10 14 77 0 0 4815724 7082690 0 0 292426 312308 11533 51728 5119683 7446726 1407999 1459319 0 0 1159154 1239739 16200 16200 463993 788765 935008 3372118 3650266 1747565 3796460 6489532 10435173 256655 259163 6232877 10176010 X JETT FOUNDATION EMPOWERS PEOPLE AND FAMILIES IMPACTED BY DUCHENNE MUSCULAR DYSTROPHY THROUGH THE DEVELOPMENT OF TRANSFORMATIVE PROGRAMMING, EDUCATIONAL OPPORTUNITIES, AND ONGOING SUPPORT FOR EVERY STAGE OF A DUCHENNE JOURNEY. 0 0 2347405 1459319 DIRECT SERVICES : CAMP PROMISE, JETT GIVING FUND, FAMILY WORSHOPS/COMMUNITY WEBINAR SERIES, THE COMMUNITY AMBASSADOR PROGRAM, AND FAMILY SUPPORT/PORCH NITE. JETT FOUNDATION'S SUMMER CAMP, CAMP PROMISE, HAS BEEN THE ONLY CAMP IN THE COUNTRY FOR KIDS, TEENS, AND ADULTS WITH MUSCULAR DYSTROPHY AND NEUROMUSCULAR DISEASES SINCE 2009. WITH NO UPPER AGE LIMIT AND A COMPLETE ON-SITE, 24-HOUR MEDICAL TEAM, JETT PROVIDES A FREE AND UNIQUE OPPORTUNITY FOR CAMPERS TO EXPERIENCE A WEEK OF INDEPENDENCE, FREEDOM AND NEW OPPORTUNITIES AWAY FROM THE ROUTINE OF DAILY LIFE. CAMP PROMISE SERVED 153 CAMPERS IN PERSON AT SEVEN LOCATIONS AND ONE WEEK OF VIRTUAL CAMP SERVING 80 CAMPERS. IN TOTAL WE SERVED 233 CAMPERS WITH THE SUPPORT OF 200 VOLUNTEERS. MORE THAN 77% OF CAMPERS WERE OVER THE AGE OF 18 (AND HAVE AGED OUT OF OTHER CAMP OPTIONS). JETT CONTINUES TO HOST MONTHLY EVENTS INCLUDING TRIVIA NIGHTS, GAME SHOWS AND MORE.THE JETT GIVING FUND INCLUDES THREE FINANCIAL ASSISTANCE PROGRAMS: THE ACCESSIBLE VEHICLE FUND, THE EMERGENCY FUND, AND THE EQUIPMENT ASSISTANCE FUND.IN 2025, THE ACCESSIBLE VEHICLE FUND PROVIDED 16 ACCESSIBLE VEHICLES, OFTEN TO LOW-INCOME FAMILIES (UNDER $50,000 HOUSEHOLD INCOME) LACKING SAFE TRANSPORTATION; FIVE FAMILIES HAD MULTIPLE CHILDREN WITH DUCHENNE. SINCE ITS LAUNCH, THE JETT GIVING FUND HAS PROVIDED OVER $6.5 MILLION IN ACCESSIBILITY EQUIPMENT THANKS TO SPONSORS.ESTABLISHED IN 2020, THE EMERGENCY FUND OFFERS IMMEDIATE, FLEXIBLE SUPPORT FOR FAMILIES FACING UNEXPECTED CRISES. IN 2025, IT AWARDED 90 GRANTS TOTALING OVER $130,000 FOR NECESSITIES LIKE FOOD, UTILITIES, MOVING COSTS, AND EVICTION PREVENTION, ENSURING DUCHENNE FAMILIES DON'T HAVE TO CHOOSE BETWEEN BASIC NEEDS. ALL GRANTS WERE REVIEWED AND AWARDED WITHIN A 14-DAY TURNAROUND. JETT FOUNDATION FAMILY WORKSHOPS ARE A NATIONAL EDUCATIONAL PROGRAM THAT BRINGS CLINICIANS, RESEARCHERS, AND FAMILIES AFFECTED BY DUCHENNE TOGETHER TO LEARN ABOUT CARE, CRUCIAL INFORMATION AND RESOURCES IN MANY CITIES EACH YEAR. THE MISSION OF THIS PROGRAM IS TO EMPOWER PATIENTS AND FAMILIES WITH THE KNOWLEDGE NEEDED TO BE THEIR OWN BEST ADVOCATES, SPREAD AWARENESS ABOUT DUCHENNE IN THE MEDICAL FIELD, AND HELP ACCELERATE RESEARCH AND DEVELOPMENT.IN 2025, JETT FOUNDATION WAS ABLE TO CONTINUE IN PERSON EVENTS AS WELL AS HOSTING VIRTUAL OUR COMMUNITY WEBINAR SERIES. JETT HOSTED 18 WEBINARS FEATURING CLINICAL TRIALS, DUCHENNE CARE AND WELLNESS WITH OVER 400 REGISTERED PARTICIPANTS. LAUNCHED IN 2017, THE COMMUNITY AMBASSADOR PROGRAM SPREADS AWARENESS ABOUT DUCHENNE AND THE PROGRAMS AND SERVICES THAT JETT FOUNDATION PROVIDES, THROUGH COMMUNITY AMBASSADORS (MOMS, DADS, GRANDPARENTS, AND SIBLINGS) WHO ARE ALREADY FAMILIAR WITH THE DUCHENNE LANDSCAPE. IN 2025, 34 JETT FOUNDATION AMBASSADORS FROM 20 STATES ENGAGED WITH FAMILIES AFFECTED BY DUCHENNE THROUGHOUT THE COUNTRY. FAMILY SUPPORT/PORCH NITE IS A NATIONAL CAREGIVER SUPPORT PROGRAM WHICH FOCUSES ON BUILDING STRONGER SUPPORT SYSTEMS FOR FAMILIES AFFECTED BY DUCHENNE IN THEIR LOCAL COMMUNITY THROUGH STORY-TELLING, EDUCATION, AND GRIEF-MANAGEMENT. IN 2025, THE ORGANIZATION HOSTED 17 VIRTUAL PORCH NITES WITH 250 PARTICIPANTS. 425815 EDUCATION AND ADVOCACY: EDUCATIONAL CARE PACKAGES/NEWLY DIAGNOSED FAMILY EDUCATION MATERIALS/SERIES A DUCHENNE DIAGNOSIS IS INCREDIBLY OVERWHELMING FOR A FAMILY. JETT FOUNDATION EDUCATIONAL CARE PACKAGES PROVIDE CRUCIAL EDUCATIONAL MATERIALS TO NEWLY DIAGNOSED FAMILIES, CAREGIVERS, TEACHERS AND CLINICIANS THAT ARE SEEKING MORE GUIDANCE ON DUCHENNE. JETT FOUNDATION PROVIDED OVER 200 CARE PACKAGES IN 2025 TO THOSE WHO REQUESTED THEM FROM THE ORGANIZATION'S WEBSITE OR ATTENDED JETT EVENTS OR PROGRAMS. THESE FREE EDUCATIONAL RESOURCES INCLUDE SUPPORT LETTERS FROM THE COMMUNITY, JETT FOUNDATION BROCHURE AND WELCOME LETTER, HEALTH INSURANCE FLIGHT PLAN, CLINICAL TRIAL FLIGHT PLAN, TRANSITION OF CARE CHECKLIST, CLINICAL TRIAL CHEAT SHEET, DAN AND DMD CHILDREN'S BOOK, STANDARDS OF CARE AND DURABLE MEDICAL EQUIPMENT BOOKLET.ADVOCACYTHE JETT FOUNDATION'S CONTINUED WORK IN ADVOCACY HAS BEEN FOCUSED ON EDUCATING REGULATORY AND INDUSTRY PARTNERS ABOUT DUCHENNE IN HOPES TO ACCELERATE THE PATHWAYS TO FINDING TREATMENTS FOR THIS FATAL DISEASE. 2773220 1 1 0 1 0 0 0 0 0 1 1 0 0 1 0 0 1 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 9 0 14 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA AL CA CT FL GA IL KS KY ME MD MI MS MO NH NJ NY NV OK OR PA RI SC TN UT WA WI NC CO ND X X ALLISON CAPUTO 7815855566 390 CIRCUIT STREET NORWELL MA 02061 CHRISTINE MCSHERRY FOUNDER AND DIRECTOR 1.00 X X 0 0 0 ALFRED JACKSON CHAIR/DIRECTOR 1.50 X X 0 0 0 ELLEN HANSON VICE CHAIR/DIRECTOR 1.00 X X 0 0 0 MIKE MULLIN TREASURER 2.00 X X 0 0 0 COLLEEN PIKE DIRECTOR 1.00 X 0 0 0 MELISSA PAIGE DIRECTOR 0.50 X 0 0 0 DIANA JOHNSON DIRECTOR 0.50 X 0 0 0 ADRIAN KIELHORN DIRECTOR 1.00 X 0 0 0 CHRIS SCHLECHTY DIRECTOR 0.50 X 0 0 0 LEO ROBINSON DIRECTOR 0.50 X 0 0 0 ERIC SNYDER PRESIDENT AND CEO 40.00 X 234542 0 26920 MAURA CARROLL DIRECTOR OF DEVEPOLMENT 40.00 X 118537 0 5299 ALLISON CAPUTO DIRECTOR OF FINANCE 40.00 X 103202 0 10966 456281 0 43185 3 0 1 0 ISGENUITY LLC 500 HARRISON AVE BOSTON MA 02118 ARCHITECT 369609 SCALORA CONSULTING 11 CORDAVILLE RD ASHLAND MA 01721 CONSTRUCTION PROJECT MANAGEMENT 111497 2 139434 6943256 7082690 192868 192868 1842554 1723114 119440 119440 119440 129545 139434 77817 51728 51728 7446726 0 0 364036 10000 10000 1449319 1449319 261462 88898 86282 86282 754900 460262 111257 183381 30001 18040 4592 7369 90324 53169 14599 22556 103052 56243 19649 27160 3533 3533 25675 25675 16200 16200 15041 300 14197 544 203347 76934 78205 48208 168159 91776 32063 44320 63003 54360 1212 7431 35040 19124 6681 9235 27963 15261 5332 7370 PROGRAM/EVENT SUPPLIES 387752 379534 4281 3937 MISCELLANEOUS 5495 5495 3650266 2773220 413053 463993 395970 1081772 1214943 3292758 520500 779514 31586 57507 2131773 108104 2049592 2023669 2103091 2555813 23040 13920 150810 630220 6489532 10435173 135927 209163 50000 50000 70728 0 256655 259163 X 4160100 5910737 2072777 4265273 6232877 10176010 6489532 10435173 3796460 146673 0 X 0 1 X 1 0 X 2612059 3521678 3413272 4815724 7082690 21445423 2612059 3521678 3413272 4815724 7082690 21445423 4974140 16471283 1000 6559 116046 174530 192868 491003 76 11533 51728 63337 21999763 0.74870 0.70070 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 3650266 3650266 332513 83128 0 0 251958 284091 318606 332513 1187168 1780752 62990 71023 79652 83128 296793 445190 1292277 186395 1478672 1110767 50000 131510 1292277 982836 127931 1110767 1000000 -17164 982836 0.00000 1.00000 0.00000 0 0 1353228 1353228 677100 16928 660172 34743 34743 0 66702 56433 10269 2023669 SECURITY DEPOSITS 10560 PRE-DEVELOPMENT COSTS 619660 630220 7593399 146673 146673 7446726 0 7446726 3650266 0 3650266 0 3650266 PART V, LINE 4: DURING 2022, A DONOR MADE A CONTRIBUTION OF $1,000,000 TO ESTABLISH A DONOR-RESTRICTED ENDOWMENT FUND, KNOWN AS THE HALE FAMILY ENDOWMENT FUND. NET ASSETS ASSOCIATED WITH ENDOWMENT FUNDS ARE CLASSIFIED AND REPORTED BASED ON THE EXISTENCE OR ABSENCE OF DONOR-IMPOSED RESTRICTIONS. THE ORGANIZATION TAKES A CONSERVATIVE APPROACH TO INVESTING ITS ENDOWMENT FUNDS, WHICH ARE MAINTAINED IN MONEY MARKET FUNDS, MUTUAL FUNDS, AND EXCHANGE TRADED FUNDS AND ARE REPORTED AS HALE FAMILY ENDOWMENT FUND IN THE ACCOMPANYING STATEMENTS OF FINANCIAL POSITION. X X X X 1 BOBBI DAVIS 2912 TAMBAY AVE TAMPA FL 33611 GRANT WRITER 0 0 16200 0 16200 MA AL CA CT FL GA IL KS KY ME MD MI MS MO NV NH NJ NY NC ND OK OR PA RI SC TN UT WA WI CO TEAM JETT 93934 93934 10804 JETT GOLF CLASSIC 175045 45500 129545 36000 19385 11628 268979 139434 129545 36000 19385 22432 77817 51728 1 UMASS CHAN MEDICAL SCHOOL 333 SOUTH STREET SHREWSBURY MA 01545 043108190 501C3 10000 0 RESEARCH 1 0 DIRECT ASSISTANCE - JETT GIVING FUND 16 0 1215729 ACTUAL COST ACCESSIBLE VEHICLES DIRECT ASSISTANCE - JETT GIVING FUND 9 0 72306 ACTUAL COST EQUIPMENT ASSISTANCE DIRECT ASSISTANCE - JETT GIVING FUND 90 0 161284 ACTUAL COST EMERGENCY FUND PART I, LINE 2: THE JETT GIVING FUND INCLUDES THREE FINANCIAL ASSISTANCE PROGRAMS: THE ACCESSIBLE VEHICLE FUND, THE EMERGENCY FUND, AND THE EQUIPMENT ASSISTANCE FUND. IN 2025, THE ACCESSIBLE VEHICLE FUND PROVIDED 16 ACCESSIBLE VEHICLES, OFTEN TO LOW-INCOME FAMILIES (UNDER $50,000 HOUSEHOLD INCOME) LACKING SAFE TRANSPORTATION; FIVE FAMILIES HAD MULTIPLE CHILDREN WITH DUCHENNE. SINCE ITS LAUNCH, THE JETT GIVING FUND HAS PROVIDED OVER $6.5 MILLION IN ACCESSIBILITY EQUIPMENT THANKS TO SPONSORS. ESTABLISHED IN 2020, THE EMERGENCY FUND OFFERS IMMEDIATE, FLEXIBLE SUPPORT FOR FAMILIES FACING UNEXPECTED CRISES. IN 2025, IT AWARDED 90 GRANTS TOTALING OVER $130,000 FOR NECESSITIES LIKE FOOD, UTILITIES, MOVING COSTS, AND EVICTION PREVENTION, ENSURING DUCHENNE FAMILIES DON'T HAVE TO CHOOSE BETWEEN BASIC NEEDS. ALL GRANTS WERE REVIEWED AND AWARDED WITHIN A 14-DAY TURNAROUND. X X 0 0 0 0 0 0 0 0 0 ERIC SNYDER PRESIDENT AND CEO 219542 0 15000 0 0 0 8100 0 18820 0 261462 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B THE GOVERNING BODY REVIEWS THE FORM 990 FOR ACCURACY AND COMPLETENESS BEFORE BEING FILED WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION'S GOVERNING BODY REQUIRES AN ANNUAL DECLARATION FROM ALL BOARD MEMBERS AND SENIOR MANAGEMENT AS TO THE EXISTENCE AND DISCLOSURE OF ANY POTENTIAL CONFLICTS OF INTEREST. THE BOARD MEMBERS SIGN A DISCLOSURE STATEMENT. ANY POTENTIAL CONFLICTS ARE DISCUSSED BY THE DIS-INTERESTED BOARD MEMBERS, WHILE THE PARTY IN POTENTIAL CONFLICT IS REQUIRED TO LEAVE THE ROOM. BOARD MEETING MINUTES WILL DOCUMENT THE DISCUSSION AND DECISION MAKING PROCESS. IN THE EVENT OF A POTENTIAL CONFLICT, PROCEDURES TO OBTAIN COMPETITIVE BIDS AND DILIGENCE ON FAIR MARKET VALUE WILL BE ESTABLISHED. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION'S GOVERNING BODY REVIEWS SALARY DATA, MARKET CONDITIONS AND OTHER APPLICABLE DATA FOR DETERMINING THE COMPENSATION OF THE PRESIDENT AND CEO AND KEY EMPLOYEES WHEN NECESSARY. FORM 990, PART VI, SECTION C, LINE 19 ANOTHER'S WEBSITE/UPON REQUEST