2026-05-14T16:27:26+00:00 2025-12-31 580692043 Mauldin & Jenkins LLC 200 Galleria Parkway Suite 1700 Atlanta GA 30339 990 2025-01-02 050577683 Lewy Body Dementia Association Inc LEWY 4049356444 912 Killian Hill Road SW Lilburn GA 30047 ALLISON FELDMAN EXECUTIVE DIRECTOR 4049356444 2026-05-14 true Melissa Seward P02145103 7709558600 2026-05-15 2025 2025-03-06 01:10:19Z ALLISON FELDMAN 912 Killian Hill Road SW Lilburn GA 30047 6519174 false X www.lbda.org X 2003 SC THROUGH OUTREACH, EDUCATION, AND RESEARCH, WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS. 10 10 21 200 0 4587955 4332106 264620 476719 123553 292238 1041 1828 4977169 5102891 389500 564522 0 0 2117962 2455511 54596 4009 233964 1478642 1416498 4040700 4440540 936469 662351 9612448 10756254 330287 461964 9282161 10294290 THROUGH OUTREACH, EDUCATION, AND RESEARCH,WE SUPPORT THOSE AFFECTED BY LEWY BODY DEMENTIAS. false false 2098077 LEWY BODY DEMENTIA ASSOCIATION, INC. (LBDA) PROVIDES INFORMATION ON LEWY BODY DEMENTIAS TO CAREGIVERS, FAMILIES, PROFESSIONALS, AND THE GENERAL PUBLIC, AND ENCOURAGES SCIENTIFIC ADVANCEMENTS. LBDA PROGRAMS INCLUDE A NATIONAL SUPPORT GROUP NETWORK, EXTENSIVE WEBSITE AND ONLINE COMMUNITIES, EMAIL AND TOLL FREE TELEPHONE HELP LINES, AND INFORMATION PACKETS AND BROCHURES. LBDA REPRESENTATIVES ATTEND SCIENTIFIC CONFERENCES, HOST EXHIBITS AT NATIONAL MEDICAL CONFERENCES, AND SUPPORT THE LBDA SCIENTIFIC ADVISORY COUNCIL. THROUGH LBDA'S RESEARCH CENTERS OF EXCELLENCE GRANT PROGRAM, LBDA HELPS FUND ACADEMIC RESEARCH CENTERS DELIVERING CLINICAL CARE, OUTREACH, AND EDUCATION OF PUBLIC AND PROFESSIONALS. 1555411 564522 476719 IN FURTHERANCE OF ITS MISSION TO SUPPORT THOSE WITH LBD, CAREGIVERS, AND RESEARCH RELATED TO THE DISEASE, THE ASSOCIATION ENTERS INTO CONTRACTS WITH OUTSIDE ENTITIES TO ASSIST THEM WITH EDUCATION, SUPPORT, SURVEYS, EMAIL CAMPAIGNS AND RESEARCH EFFORTS ADDRESSING THE DISEASE. 3653488 true true false false false false false false false false true false false false true true true false false false false false false false false false false true false true false false false false false false false false false false false false false false false false false false false false true 19 0 true 21 true false false false false false false false false false false false false X 10 10 false false false false false false false true true false false false true true true true true true true true false false GA SC X X THE ORGANIZATION 4049356444 912 KILLIAN HILL ROAD SW LILBURN GA 30047 CARLA ABDELNOUR VICE PRESIDENT 5.0 X X 0 0 0 GENELL GREENBERG SECRETARY 5.0 X X 0 0 0 JEFFREY JACOB TREASURER 5.0 X X 0 0 0 SARAH SUNG PRESIDENT 5.0 X X 0 0 0 ANGELA LUNDE MEMBER 2.0 X 0 0 0 ANITHA RAO MD MEMBER 2.0 X 0 0 0 JEFFREY BODINGTON MEMBER 2.0 X 0 0 0 JENNIFER GOLDMAN MEMBER 2.0 X 0 0 0 MARY-KAY BOLER MEMBER 2.0 X 0 0 0 RODNEY WITCHER MEMBER 2.0 X 0 0 0 ALLISON FELDMAN Executive Director 40.0 X 229278 0 9200 ANGELA TAYLOR Vice President of Strategic Partnerships 40.0 X 118752 0 3300 JULIA WOOD Director of Professional & Community Education 40.0 X 122566 0 1514 KEITH FARGO Director of Scientific Initiatives 40.0 X 189140 0 7566 LENA FUNG Director of Development 40.0 X 113500 0 3200 SUDHIR SIVAKUMARAN Chief Scientific Officer 40.0 X 140385 0 3077 913621 0 27857 7 false true false HARRIS BAIO & MCCULLOUGH MARKETING COMMUNICATIONS 520 SOUTH FRONT STREET PHILADELPHIA PA 19147 MARKETING 378182 1 541531 3790575 4332106 FEE FOR SERVICE 900099 476719 476719 0 0 0 0 476719 265250 265250 0 0 1443271 1416283 26988 0 26988 26988 0 REFUNDS AND REBATES 900099 1828 1828 0 0 0 0 1828 5102891 476719 0 294066 564522 564522 0 0 238479 166934 47697 23848 1795937 1605507 110495 79935 42110 38303 2121 1686 226242 197285 17466 11491 152743 133193 11792 7758 3184 3184 28400 28400 4009 4009 48696 48696 424556 337460 83184 3912 179968 179968 129685 87093 34614 7978 181411 63792 38691 78928 29378 29378 143181 127321 15860 171058 152110 18948 76981 62562 14419 0 0 0 0 4440540 3653488 553088 233964 1292715 1816079 1361857 0 97707 205363 0 0 0 0 7227 13909 57116 57116 0 0 6822906 8701745 0 0 30036 19158 9612448 10756254 281050 222228 0 220082 0 0 49237 19654 330287 461964 X 9261581 9995663 20580 298627 9282161 10294290 9612448 10756254 662351 349778 0 X false true true false X 2871842 4151470 2932041 4587955 4332106 18875414 447476 264620 476719 1188815 0 0 0 0 0 0 2871842 4151470 3379517 4852575 4808825 20064229 170000 1007650 12998 4900 17716 1213264 0 0 0 0 0 0 170000 1007650 12998 4900 17716 1213264 18850965 500 128420 178647 257329 265250 830146 0 0 500 128420 178647 257329 265250 830146 0 0 0 0 5925 0 1828 7753 2872342 4279890 3564089 5109904 5075903 20902128 0.90187 0.88956 0.04 0.0289 X Schedule A, Part I, Line 10 LEWY BODY DEMENTIA ASSOCIATION, INC. IS A 501(C)(3) DESCRIBED UNDER SECTIONS 509(A)(1) AND 170(B)(1)(A)(VI). HOWEVER, THE ORGANIZATION ALSO QUALIFIES AND ELECTS TO FILE UNDER SECTION 509(A)(2). Schedule A, Part III, Line 12 Other Income DESCRIPTION - REFUNDS & REBATES, COLUMN A - , COLUMN B - , COLUMN C - 5925.0, COLUMN D - , COLUMN E - 1828.0, COLUMN F - 7753.0; RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 57116 57116 0 0 Federal Income Taxes LEASE LIABILITY 19654 OTHER LIABILITIES 19654 X 5403973 349778 0 349778 5054195 48696 0 48696 5102891 4391844 0 0 4391844 48696 0 48696 4440540 Schedule D, Part X, Line 2 FIN 48 (ASC 740) footnote THE ASSOCIATION IS EXEMPT FROM THE INCOME TAXES UNDER SECTION 501(C)(3) OFTHE UNITED STATES INTERNAL REVENUE CODE. ACCORDINGLY, NO PROVISION FOR INCOME TAXES IS RECORDED IN THE ACCOMPANYING FINANCIAL STATEMENTS. HOWEVER, INCOME FROM CERTAIN ACTIVITIES NOT DIRECTLY RELATED TO THE ASSOCIATION'S TAX-EXEMPT PURPOSE IS SUBJECT TO TAXATION AS UNRELATED BUSINESS INCOME. IN THE OPINION OF MANAGEMENT, THE ASSOCIATION HAD NO SIGNIFICANT UNRELATED BUSINESS TAXABLE INCOME DURING 2025 OR 2024. ACCORDINGLY, NO PROVISION OR BENEFIT FOR FEDERAL AND STATE INCOME TAXES HAS BEEN RECORDED IN THE ACCOMPANYING FINANCIAL STATEMENTS. THE ASSOCIATION BELIEVES THAT IT HAS APPROPRIATE SUPPORT FOR ANY TAX POSITIONS TAKEN, AND AS SUCH DOES NOT HAVE ANY UNCERTAIN TAX POSITIONS THAT ARE MATERIAL TO THE FINANCIAL STATEMENTS. true University of Florida 207 Grinter Hall Gainesville FL 32611 596002052 50000 New Investigator Pilot Study Award Program Park Nicollet Methodist Hospital Struthers Parkinson Center 6701 Country Club Drive Golden Valley MN 55427 410132080 12500 Research Centers of Excellence Virginia Commonwealth University 800 East Leigh Street Suite 3200 Richmond VA 23298 546001758 12500 Research Centers of Excellence Regents of the University of Michigan 3003 S State St 1st Floor Wolver Ann Arbor MI 48109 386006309 12500 Research Centers of Excellence Medical University of South Carolina 179 Ashley Ave Charleston SC 29425 576028985 12500 Research Centers of Excellence Oregon Health & Science University 0690 SW Bancroft Ave Mail Code L1 Portland OR 97239 931176109 12500 Research Centers of Excellence Dignity Health 350 West Thomas Road Phoenix AZ 85013 941196203 12500 Research Centers of Excellence Columbia University in the City of New York 154 Haven Ave 2nd Floor New York NY 10032 135598093 12500 Research Centers of Excellence Rush University Medical Center 1201 W Harrison St Suite 300 Chicago IL 60607 362174823 12500 Research Centers of Excellence Stanford University 485 Broadway Mail Code 8838 Redwood City CA 94063 941156365 50000 RCOE Coordinating Center University of Colorado Denver Mail Stop F428 Anschutz Medical Ca Aurora CO 80045 846000555 12500 Research Centers of Excellence Massachusetts General Hospital 55 Fruit Street Boston MA 02114 042697983 12500 Research Centers of Excellence Regents of the University of California San Diego 9500 Gilman Drive MC 0934 San Diego CA 92093 956006144 12500 Research Centers of Excellence University of Washington 4333 Brooklyn Ave NE Box 359472 Seattle WA 98195 916001537 12500 Research Centers of Excellence Mayo Clinic Rochester 200 First St SW Rochester MN 55905 416011702 12500 Research Centers of Excellence Mayo Clinic Arizona 13400 E Shea Blvd Scottsdale AZ 85259 860800150 12500 Research Centers of Excellence Mayo Clinic Jacksonville 4500 San Pablo Rd Jacksonville FL 32224 593337028 12500 Research Centers of Excellence Emory University Grants Depository Account 201 Dowman Dr Atlanta GA 30322 580566256 12500 Research Centers of Excellence University of Pittsburgh 3420 Forbes Ave 300 Murdoch I Buil Pittsburgh PA 15260 250965591 12500 Research Centers of Excellence University of Texas Health San Antonio 7703 Floyd Curl Dr MC 7828 San Antonio TX 78229 741586031 12500 Research Centers of Excellence University of Florida 207 Grinter Hall Gainesville FL 32611 596002052 12500 Research Centers of Excellence Cleveland Clinic Foundation 9500 Euclid Ave Cleveland OH 44195 340714585 12500 Research Centers of Excellence Ohio State University B-034 Graves Hall 333 West 10th Av Columbus OH 43210 316025986 12500 Research Centers of Excellence Houston Methodist Research Institute 6670 Bertner Ave R12-107 Houston TX 77030 741180155 12500 Research Centers of Excellence Duke University PO Box 602651 Charlotte NC 28260 560532129 149698 Dementia Nomenclature Initiative Project University of Miami 1531 Brescia Ave Suite 124 Coral Gables FL 33146 590624458 12500 Research Centers of Excellence University of North Carolina 104 Airport Dr Suite 2200 CB 135 Chapel Hill NC 27599 566001393 12500 Research Centers of Excellence Johns Hopkins University 733 N Broadway Suite 117 Baltimore MD 21205 520595110 12500 Research Centers of Excellence 28 0 Schedule I, Part I, Line 2 Procedures for monitoring use of grant funds Each grantee is required to submit an annual and/or final report for the activities carried out with the funds, which must align with the goals of the program as outlined in the request for applications and in the contract that is signed with the grantee institution. X X false false false false false false false false false ALLISON FELDMAN Executive Director 229278 0 0 0 0 0 9200 0 0 0 238478 0 0 0 KEITH FARGO Director of Scientific Initiatives 189140 0 0 0 0 0 7566 0 0 0 196706 0 0 0 Form 990, Part VI, Line 15 COMPENSATION FOR THE CEO/ED AND OTHER OFFICERS AND KEY EMPLOYEES ARE REVIEWED AND DETERMINED BY THE EXECUTIVE COMMITTEE ON AN ANNUAL BASIS. Form 990, Part VI, Line 11b Review of form 990 by governing body THE BOARD OF DIRECTORS IS PROVIDED A DRAFT COPY OF THE FORM 990 FOR REVIEW PRIOR TO ISSUANCE. EACH BOARD MEMBER IS SENT THE 990 ELECTRONICALLY AND GIVEN A SUFFICIENT AMOUNT OF TIME TO REVIEW AND COMMENT. Form 990, Part VI, Line 12c Conflict of interest policy WE HAVE A WRITTEN POLICY THAT IS SHARED ANNUALLY; AT EACH MEETING, BOARD DIRECTORS GIVE A VERBAL ACKNOWLEDGEMENT IF ANYTHING HAS CHANGED SINCE THE PREVIOUS MEETING. WHERE CONFLICTS MAY ARISE, THE BOARD DIRECTOR INVOLVED WOULD RECUSE THEMSELVES FROM DISCUSSION OR VOTING ON THE RELATED TOPIC. Form 990, Part VI, Line 19 Required documents available to the public LBDA MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. Form 990, Part XII, Line 2c THE ORGANIZATION HAS NOT CHANGED THE OVERSIGHT OR SELECTION PROCESS DURING THE YEAR.