2026-08-31T12:08:43-05:00 2025-12-31 390974031 WEGNER CPAS LLP 2921 LANDMARK PL STE 300 MADISON WI 537134236 990 2025-01-01 351844264 NATIONAL NIEMANN-PICK DISEASE FOUNDATION INC NATI 8772873672 PO BOX 49 FORT ATKINSON WI 53538 TAYLOR SABKY CHAIR 8772873672 2026-08-31 1 JASON STEPHENS CPA P01263225 6082744020 2026-08-31 2025 TAYLOR SABKY PO BOX 49 FORT ATKINSON WI 53538 929337 0 X NNPDF.ORG X 1992 WI TO SUPPORT AND EMPOWER PATIENTS AND FAMILIES AFFECTED BY NIEMANN-PICK DISEASE THROUGH EDUCATION, COLLABORATION, AND RESEARCH. 11 11 3 20 0 0 633087 886744 29969 24425 6468 18168 6700 0 676224 929337 44068 49356 0 0 204465 120230 0 0 28363 340807 383536 589340 553122 86884 376215 607164 981265 20768 18654 586396 962611 THE NATIONAL NIEMANN-PICK DISEASE FOUNDATION, INC. (NNPDF) IS A NON-PROFIT, PATIENT ADVOCACY AND FAMILY SUPPORT ORGANIZATION DEDICATED TO SUPPORTING AND EMPOWERING PATIENTS AND FAMILIES AFFECTED BY NIEMANN-PICK DISEASE, THROUGH EDUCATION, COLLABORATION AND RESEARCH. 0 0 384429 41378 24425 FAMILY SUPPORT - SUPPORT SERVICES TO FAMILIES WHO HAVE A FAMILY MEMBER DIAGNOSED WITH NIEMANN-PICK DISEASE AND PATIENT ADVOCACY EFFORTS. PATIENT ADVOCACY FOR ACCESS TO MEDICATIONS AND EXPERIMENTAL THERAPIES. EMOTIONAL SUPPORT TO INDIVIDUALS AND FAMILIES DEALING WITH ALL TYPES OF NIEMANN-PICK DISEASE, ASSISTANCE THROUGH CRISES, INFORMATION AND IDEAS ABOUT ISSUES SUCH AS DOCTORS, CLINICS, INSURANCE COMPANIES AND OTHER HEALTH AND HUMAN SERVICE PROGRAMS AND PRACTICAL SUGGESTIONS ABOUT DAY-TO-DAY CARE. COMMUNICATIONS INCLUDING MONTHLY NEWSLETTERS, E-NEWS, AND SOCIAL MEDIA NEWS UPDATES. THE ANNUAL NNPDF FAMILY SUPPORT AND MEDICAL CONFERENCE BRINGS TOGETHER FAMILIES, SCIENTISTS, AND MEDICAL PROFESSIONALS TO SHARE INFORMATION AND PROVIDE SUPPORT. 10285 7978 0 RESEARCH SUPPORT - NNPDF SUPPORTS OVER 450 DIAGNOSED FAMILIES AT ALL STAGES OF THEIR NIEMANN-PICK DISEASE JOURNEY. WE PROVIDE ACCURATE UP-TO-DATE INFORMATION ON THE LATEST ADVANCES IN MEDICINE AND SCIENCE RELATED TO NIEMANN-PICK DISEASE. PROVISION AND MONITORING OF SCIENTIFIC RESEARCH GRANTS AND FELLOWSHIPS TO RESEARCH SCIENTISTS. 394714 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 1 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 3 1 0 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 1 0 0 0 0 0 1 0 0 0 1 1 1 1 1 1 1 0 0 WI MD VA X X EBCFO LLC 8772873672 5550 TECH CENTER DR 203 COLORADO SPRINGS CO 80919 ELIZABETH HEINZE CHAIR 20.00 X X 0 0 0 BECKY MCGUIRE VICE CHAIR (THRU JUNE) 1.00 X X 0 0 0 MIKE SMITH TREASURER 2.00 X X 0 0 0 TAYLOR SABKY SECRETARY/VICE CHAIR 5.00 X X 0 0 0 ANTHONY LEONI DIRECTOR 1.00 X 0 0 0 DAWN STITES DIRECTOR 1.00 X 0 0 0 GAIL KOUJAIAN DIRECTOR 1.00 X 0 0 0 GARLAND ALVEY DIRECTOR 1.00 X 0 0 0 KARI LATO DIRECTOR (THRU JUNE) 1.00 X 0 0 0 KELLY LEE DIRECTOR 1.00 X 0 0 0 MARY FRANCES HARMON DIRECTOR 1.00 X 0 0 0 MEGHANN FERGUSON DIRECTOR (THRU JUNE) 1.00 X 0 0 0 PAUL MERRIGAN DIRECTOR 1.00 X 0 0 0 TRAVIS OBERMEYER DIRECTOR (THRU JUNE) 1.00 X 0 0 0 DEBORAH CHO DIRECTOR 1.00 X 0 0 0 SAIRA SULTAN EXECUTIVE DIRECTOR (THRU JUNE) 40.00 X 0 0 0 SHANTE ANTROM INTERIM EXECUTIVE DIRECTOR (FROM NOVEMBER) 40.00 X 27518 0 0 27518 0 0 0 0 0 0 0 1064 885680 886744 CONFERENCE REGISTRATIO 561920 24425 24425 24425 18168 18168 929337 24425 0 18168 41378 41378 7978 7978 30514 19940 8482 2092 74824 48894 20799 5131 6163 4027 1713 423 8729 5704 2426 599 55426 19626 33588 2212 4505 4505 33677 33677 38066 26999 8023 3044 17405 4717 2086 10602 12171 5920 2347 3904 11774 5571 6203 192701 190715 1986 4887 3245 1286 356 MEMBERSHIP DUES 10550 10000 550 2374 2374 553122 394714 130045 28363 270741 98696 310687 820346 21606 56223 4130 6000 17848 17848 0 0 607164 981265 20768 18654 20768 18654 X 453273 822057 133123 140554 586396 962611 607164 981265 376215 0 X 0 1 X 1 0 X 490047 526689 552816 633087 886744 3089383 490047 526689 552816 633087 886744 3089383 1501577 1587806 328 1551 4934 6468 18168 31449 3120832 131806 0.50880 0.53290 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 9435 9435 0 8413 8413 0 0 930387 1050 1050 929337 0 929337 554172 1050 1050 553122 0 553122 1 0 0 0 0 0 0 0 0 0 EUROPE (INCLUDING ICELAND & GREENLAND) REPLACE VIDEO EQUIPMENT DESTROYED IN FIRE 7978 ETF 0 0 1 0 0 0 0 0 0 PART I, LINE 2: NNPDF GRANTEES ARE REQUIRED TO PROVIDE INTERIM REPORTING ON THEIR RESEARCH, PURSUANT TO THEIR GRANT AGREEMENTS. 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